Cheryl <carpathienblue@yahoo.com>
- Friday, June 20, 2003 10:18 AM CDT
Hi - I am from Quilts of Love - we make virtual quilts I would love for you to stop by and check us out? maybe you would let us have the honor of making a quilt just for you? hugs Angel Toto
Angel Toto
- Friday, June 20, 2003 0:52 AM CDT
The mesh idea is genius! I am glad things are moving along and the insurance will hopefully be straightened out. I pray for you guys. I know it is so hard to be "living two seperate lives" but hopefully you can get Brian eating good and this will definitely all be worth it. I guess parents of sick children really spend a lot more time with their kids than the average parent and in a way that is such a blessing. It is a very strong bond there. I am glad Brian is doing well. We are supposed to go see Nemo too:)
Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)
Tracy and Katia
- Thursday, June 19, 2003 8:33 AM CDT
i dont know brian but i read about him on this web page. it is a shame that GOD has picked him out of all these people on earth to suffer from this terrible disease. BRAIN GET WELL SOON!
Averi Height
Baltimore, Md - Wednesday, June 18, 2003 8:34 AM CDT
Good job Brian!! I'm so glad you're doing so well and keeping everybody on track!
Rachel <www.caringbridge.org/ny/connors_page>
- Tuesday, June 17, 2003 8:41 PM CDT
*Brian*
Keep up the good work, buddy! Everyone is SO proud of you for doing so great! It makes me so happy hearing about the wonderful progress you've been making.
*Niki*
Excellent news as far as Medicaid goes. That would be wonderful if it works out for you. It was great to get an update from you.
Shannon -- http://www.caringbridge.org/ma/samanthatherese/ <humphity319@aol.com>
Haverhill, MA USA - Tuesday, June 17, 2003 7:43 PM CDT
Brian is the sweetest boy you'll ever meet.
We all love him very much. He is doing so well.
He is very determined.
Telisha <twoodfin@chva.org>
Richmond, Va - Tuesday, June 17, 2003 1:42 PM CDT
Way to go Brian! Gina and I are very happy for you and the
family. If you meet Brian Daubach, the baseball player, ask him to play for the Brewers next year, they need him desperately.
Mark Gehring <markandgina@compufort.com>
Jefferson, WI - Tuesday, June 17, 2003 12:08 AM CDT
GREAT WEB SITE.. YES, WE REALLY DO LOVE BRIAN AND MOM..
BRIAN IS EATING BY MOUTH MORE AND MORE EVERY DAY! BRIAN. "GOOD TAKING YOUR BITES " LOVE DEBBIE AND BRENDA
DEBBIE GRANT AND BRENDA BOSHER <DGRANT@CHVA.ORG AND BBOSHER@CHVA.ORG>
MIDLOTHIAN, VA 23112 - Tuesday, June 17, 2003 10:11 AM CDT
BRIAN, I AM SO PROUD OF YOU! WOW! AND MOM, YOU A REAL BALL OF ENERGY WHETHER YOU FEEL THAT WAY OR NOT. YOU ARE AWESOME. THANK YOU FOR TAKING THE TIME TO UPDATE:)
Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)
TRACY AND KATIA
- Friday, June 13, 2003 12:49 AM CDT
Brian and family now that my thoughts and prayers are with you.
Emma <lilteak@msn.com>
Uniontown, Pa. Fayette - Wednesday, June 11, 2003 7:43 PM CDT
Niki - I'm not surprised Brian's doing great either. Your little boy is truly amazing! I'm glad Eric's keeping so busy and it's wonderful that your sister-in-law is able to be there with you!
(Thanks for checking into Connor's guestbook, it meant a lot to me!)
Rachel <www.caringbridge.org/ny/connors_page>
- Sunday, June 8, 2003 10:47 PM CDT
Glad everyone is safe and things went so well so far. I am so proud of you Brian. Keep it up.
Hugs & Loves,
Thu & Binh & Brian & Cindy & Angela <Thu_nguyen@maxtor.com>
Denver, Co - Sunday, June 8, 2003 11:11 AM CDT
PRAYING YOU HAVE A SAFE TRIP AND THANK YOU GOD FOR WORKING OUT THE INSURANCE. LOVE, TRACY AND KATIA
Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)
TRACY AND KATIA
- Sunday, June 1, 2003 6:29 PM CDT
Hi all The Daubachs ...from a cold (in our terms), dry and dusty South Africa. Gee those tornados sound really scary! I think I am happier here with our snakes and other creepy crawlies. Had a Night Adder (very poisonous) snake casually crossing the lawn just the other evening. Heard the birds going crazy as they are not fond of snakes. Carol being a keen birder, got her binocs out and almost stood on the snake. So we scooped it up into a bucket and deposited further out in the country so that it could get on with doing what snakes do best, but rather not on our lawn!
Hope Brian's feeding clinic is all going along as planned. Looking forward to the next journal update. Photos look great. Brian's hair does look a little wild but that's OK! I have a dislike for what seems to be a fashion here amongst young men, the shaven heads that remind me so much of chemo kids!
Thinking of you guys!
Love from us.
Derek and Carol Stedall <derekstedall@icon.co.za>
Pretoria, South Africa - Sunday, June 1, 2003 1:11 PM CDT
Have a safe trip and good luck on Brian's feeding clinic. The tornadoes are surely made you want to move back to CO.
Stop by us if you come here for a visit.
Take cares,
Thu
Denver, CO - Friday, May 30, 2003 11:16 AM CDT
You are the 2nd website talking about recent tornadoes... I hope this bad weather is behind all of you in those areas. I would have gone home too, not the meat department! Poor Brian hitting his head and all of you sick. You have really been through some trials lately, BIG TRIALS and come out with championship medals! Love, Tracy and Katia
Visit Katia's Page and sign her guestbook :) (Leukemia AML M4)
Tracy and Katia Solomon
- Thursday, May 22, 2003 12:40 AM CDT
I remember growing up with Tornadoes as a kid. They are not somthing I miss at all! More power to you for dealing with those on top of everything else. I just picked up your childs link from another page. I hope that the bill gets taken care of. Inscurance companies wouldn't be so anal if some of their head honchos kids had to deal with what ours do! I am glad that they don't, I just wish that there was more understanding in those people, ya know?
Anyway, I am glad all is going well. Visit Aizees page if you want. www.caringbridge.org/ut/fti
Stay strong. You have a beautiful family.
Cheryl <carpathienblue@yahoo.com>
Oakley, - Saturday, May 17, 2003 0:47 AM CDT
Hope you all are "safe " now from all the tornados !! Niki, I just appreciate you so much.. you keep me grounded when I am just about to lose it ... I figure if you can deal with all your tumoil ..I can too... Thanks so much for being "real"... Blessings,
Danette
Danette Prater www.caringbridge.com/tx/jacobprater <jakesmom@wt.net>
Santa Fe ,Tx, - Thursday, May 15, 2003 10:43 PM CDT
HAPPY MOTHER'S DAY!
Love,
The Doctor Famiy Zackie's page
Dana Doctor
- Saturday, May 10, 2003 10:30 PM CDT
I hope all you guys are "on the mend" and Mommy is staying well.I love the new picture on the page!!!
Take care,
Danette
Danette Prater www.caringbridge.com/tx/jacobprater <jakesmom@wt.net>
Santa Fe , Texas - Tuesday, May 6, 2003 5:34 PM CDT
Niki, your update is way to short... I love Brian's hair. It's curly and cute...
Just so you know I visited,
Your JMML family
Lam Do, www.caringbridge.org/ca/lukedo <lamdo@yahoo.com>
San Jose, CA USA - Sunday, May 4, 2003 8:37 AM CDT
Just dropping in to see how everything is going. Hope both your trips work out just fine! God Bless,
Kathy Haws
Thousand Oaks, CA. - Sunday, May 4, 2003 0:07 AM CDT
Niki,
I wanted to thank you for calling Pam while she was in the hospital with Shanna. You have been a real blessing and encouragement to her. I pray that all goes well with your family this summer. I will be checking back to see how the feeding clinic and Colorado trip went. Thanks again for your support of Shanna and her family.
Cindy Hatfield (Shanna's god-mother; boy that makes me sound old!! =) <cindydbq@yahoo.com>
Sterling Heights, MI - Friday, May 2, 2003 6:30 PM CDT
Dear Niki, Thank you so much for your support to my family. You know how important that it is at times like these. My spirits are a little down right now because Laura just left work to take Colby back to CHP. ( they were home for about 28 hours ) I called her at work and told her that Colby was burning up ( 104.7 F ) and sweating and somewhat miserable. She called CHOP and they wanted CAT SCANS done in Pittsburgh before he is on the road for 6 hours to Philadelphia. Anyway, thanks again for your loyal support. Sending lots of prayer and love your way.
jack-colby's daddy forever and ever and ever
www.caringbridge.org/pa/colby, UNIONTOWN PA - Saturday, April 26, 2003 11:14 PM CDT
I PRINTED THAT POEM ON THE FRONT AND HAVE SHOWED IT TO SO MANY PEOPLE. I LOOK AT IT OFTEN AND LET IT MAKE A DIFFERENCE IN MY LIFE. YOU SEE, I AM A COMPLETE NEAT FREAK!!! AND I REALLY NEED A REMINDER TO STOP AND TAKE TIME AND ENJOY EACH DAY AND INDIVIDUAL TIME WITH MY CHILDREN AND HUSBAND. INDIVIDUAL TIME MEANS SO MUCH MORE TO EACH OF THEM THAN EVEN FAMILY TIME. THANK YOU FOR SHARING THAT POEM:)
Visit Katia's Page and sign her guestbook :) (Leukemia AML M4)
TRACY SOLOMON <TMSOL87@AOL.COM>
TAMPA, FL - Friday, April 25, 2003 3:48 AM CDT
Hello My name is Jenna and i was born wiht a rare bone disease. Brian's story gives me hope and encourages me. Keep Smiling Brian!
http://www.matmice.com/home/fighterandchampion
Jenna <hockeys_life@hotamil.com>
Kamloops, BC Canada - Tuesday, April 22, 2003 5:59 PM CDT
HAPPY EASTER!!!
Visit Katia's Page and sign her guestbook :) (Leukemia AML M4)
TRACY SOLOMON
- Saturday, April 19, 2003 3:17 PM CDT
Just want to stop by and wish you all ……..
The Nguyen Family
denver, co - Friday, April 18, 2003 3:38 PM CDT
Wishing you a wonderful evening and a happy Easter. I have come to know the Caringbridge by way of Colby Cole and his father, Jack. I pray for all the children daily and know that God is with them.
May God bless you and your family and keep you in his loving care.
Renne' I. Cole-Dowler <rennedo@aol.com>
Washington, PA - Wednesday, April 16, 2003 8:03 PM CDT
I printed that "To a Child" and I am hanging it on my fridge. That is so sweet and I can use it like a "to do" list. Love, Tracy
Visit Katia's Page and sign her guestbook :) (Leukemia AML M4)
Tracy Solomon
- Friday, April 11, 2003 10:37 AM CDT
Hi Brain!!!
You a hero! Keep fighting and always take time to have fun!!!! My prayers are with you!
Hugs!
http://www.caringbridge.org/ny/danielle/
Danielle
Long Island, NY United States - Thursday, April 10, 2003 1:10 AM CDT
Brian and Eric,
Just dropping in to say "Hi" to the both of you and hope you are having a great week.
Kathy Haws
Thousand Oaks, CA. - Friday, April 4, 2003 1:25 AM CST
Hi Niki and family,
I was just checking in for new info on the kids. How is your mom too ,btw? Hope all is well .Thanks for the story "To a child" . I sent it to everyone !! Well goodnight and God bless you all,
Danette
Danette Prater www.caringbridge.com/tx/jacobprater <jakesmom@wt.net>
Santa Fe , Tx - Friday, April 4, 2003 0:14 AM CST
Dear Brian & Family,
A big Hello from Cindy. Glad Brian is doing well. How are things going with the study? Hope you manage to get Jake (and Kyle ?) to Virgina with ease (Hehehe).
The Nguyen Family <thu_nguyen@maxtor.com>
Denver, CO - Wednesday, April 2, 2003 5:35 PM CST
NIKI, thanks for dropping by to check up on Colby. GOOD NIGHT AND PLEASANT DREAMS TO ALL (jack-colby's daddy forever and ever and ever)
www.caringbridge.org/pa/colby
UNIONTOWN, PA USA - Monday, March 31, 2003 10:49 PM CST
GOOD MORNING ALL FROM COLBY AND CREW - GOD BLESS ALL
(jack-colby's daddy forever and ever and ever)
UNIONTOWN, PA USA - Sunday, March 30, 2003 5:51 AM CST
Hey guys! Your page is very bright! When I clicked over to the guestbook, I was still seeing blue! I love those colors though:) Love, Tracy
Visit Katia's Page and sign her guestbook :) (Leukemia AML M4)
Tracy Solomon
- Saturday, March 29, 2003 12:12 AM CST
Hi Niki,
I love the colors you used on the page!!( patriotic). Just was stopping by to say "hi" . we are thinking of ya!! Take good care.
Love,
Danette
Danette Prater www.caringbridge.com/tx/jacobprater <jakesmom@wt.net>
Santa Fe , TX - Friday, March 28, 2003 6:54 PM CST
Hi,
It was great to read your last update about the feeding clinic. We're sure it will work out really well.
We hope Brian and all you guys are doing fine. As you know, Conor ( Ford ) is in the last stages of the transplant process and Kristy and Darren and the boys are getting ready to head down to Calgary next week. Niki, you have been an inspiration for everybody with the messages you've posted on his website.
Take care and lots of hugs and kisses to Brian from little Dickens the Doggie( he's a rascally Yorkie!)
Wilson Russell and Barbara Yaffe
wilson russell <wilsonrussell@telus.net>
Vancouver, BC Canada - Friday, March 28, 2003 6:38 PM CST
JUST DROPPING BY TO SAY HELLO AND WISH YOU HAPPY ST. PATRICKS DAY. WE ARE PRAYING FOR YOU TODAY! LOVE, THE SOLOMON FAMILY (KATIA'S FAMILY)
KATIA'S PAGE (LEUKEMIA AML M-4)
Tracy
- Monday, March 17, 2003 1:16 PM CST
Hello,
I am a Quilting Angel from Quilts Of Love. We would be honored if you would stop by our site when you have a moment to spare and see the beautiful online quilts we make for children. If you wish we would love to make your child a quilt of love for their very own.
Warm hugs,
Island Princess
Island Princess <islandprincess@quiltsoflove.com>
- Monday, March 17, 2003 10:19 AM CST
HI GUYS - SENDING LOTS OF LOVE AND PRAYERS YOUR WAY - the coles
jack-colby's daddy forever and ever
UNIONTOWN, PA USA - Friday, March 14, 2003 7:11 PM CST
Bet you are having computer withdrawls!! Are the kids on Spring break yet? Hope you get more done than me (haha)
Love ya, be blessed,
Danette
Danette Prater www.caringbridge.com/tx/jacobprater <jakesmom@wt.net>
Santa Fe , TX - Thursday, March 13, 2003 10:50 PM CST
GOOD MORNING ALL FROM ALL OF US HERE ON THE COLE PONDEROSA!!! HAVE A GREAT DAY (jack-colby's daddy forever & ever)
www.caringbridge.org/pa/colby
UNIONTOWN, PA USA - Saturday, March 8, 2003 7:02 AM CST
Hello, just wanted to check in to see if there were updates and let you know your family is in our prayers. How is Brian? I have family in Virginia but haven't been in years. Love, Tracy Solomon
http://caringbridge.org/fl/katia_leukemiapage
Tracy Solomon <tmsol87@aol.com>
- Wednesday, March 5, 2003 1:26 PM CST
Just wanted to say "Hello". I am a friend of Colby's and wanted say that my prayers are also with Brian and your family. I spent many weeks at the University of Nebraska Medical Center years ago with a loved one. The people there were wonderful to us. God Bless your family and all the other families going through such rough times. There are many people out there praying and rooting for your kids.
Bev Gorr <bgorr@wishworld.org>
Pittsburgh, PA - Monday, March 3, 2003 9:11 PM CST
Niki, wow, what a mouth ful!!! Life sure can be tough at times. But as the old saying goes, nobody said that it would be a rose garden. "DARN!" Just started moving around on caringbridge again after a short break to regroup and gain some strength. Hoping you guys get all things organized the best you can and the rest just happens to fall in place. Sending lots of love and prayers your way (jack-colby's daddy forever & ever) THANKS FOR HOLDING MY FAMILY IN PRAYER
www.caringbridge.org/pa/colby
UNIONTOWN, PA USA - Sunday, March 2, 2003 8:46 PM CST
There is a lot to figure out so I will keep checking in on you. You all deserve a vacation after that though! That would be very nice. Someday Brian will be eating a big STEAK and you will look back on these days and recall all the miracles that lead up to that steak! The Solomons are praying for you. Love, Tracy
Visit Katia's Page and sign her guestbook :)
Tracy Solomon
Tampa, FL - Thursday, February 27, 2003 4:49 AM CST
Hello, I just found your web site through the request of Colby's page.I pray for all the children on Caringbrige. I now have added your family to the list. I will pray for your plans to work out and for the money issue's and eating classes to work.
A christian Grand mother who is a prayer warrior.
Bonnie Prince
Bonnie Prince <bjprince>
wildwood , mo usa - Wednesday, February 26, 2003 11:43 PM CST
I printed the Thoughts of a Mom thing. That really rings true. I pray the best for your trip and I truly feel this will be able to help Brian. May God Bless you! Love, Tracy
http://caringbridge.org/fl/katia_leukemiapage/
Tracy Solomon
- Friday, February 21, 2003 1:13 PM CST
Hi Niki! I finally found Brian's website. Your boys are adorable! Brian is just precious. I have to e-mail you. I think Shanna and Brian resemble each other! I wish I could just hug him! Hope all goes well at the feeding clinic, if you made it in the storm! Pam
Pam Lahr <pamlahr@hotmail.com>
Chesterfield, MI USA - Tuesday, February 18, 2003 7:45 PM CST
Niki and Brian,
The storms are very bad here on the east side. Alot of airports and business' are closed. Reported to get 2ft by Monday. If you still travel, please be careful and we will be telling the Angels up high to carry the plane to safe destinations.
Thinking of you
Talk to ya soon
Love ya
Laura
www.caringbridge.org/pa/colby
- Monday, February 17, 2003 0:16 AM CST
HAPPY VALENTINE'S DAY
Wishing you the best and sending some special love filled hugs XOXOXOXOXOXO
Niki, thanks for being there!!!!
Love
The Cole's
www.caringbridge.org/pa/colby
- Friday, February 14, 2003 11:19 PM CST
Just wanted to drop by and say hello. I saw your name on the Caringbridge site about stopping by and saying hello so I thought I would try to keep up with you and your progress. You look very nice in your glasses by the way. Our oldest daughter, Sharayah just started wearing glasses. Hope you are doing well still and I will check back for updates. Tracy Solomon (Katia's mommy)
Tracy Solomon <tmsol87@aol.com>
Tampa, FL - Friday, February 14, 2003 10:06 AM CST
Dearest Niki,
YOU ARE A SWEETHEART!!! I wish you could be here also. Your entry was so beautiful and thoughtful, it made me cry! (just a little bit) We love you and hope that some day we all can get together and party!!! Sending lots of love and prayers your way. (jack-colby's daddy forever & ever)
www.caringbridge.org/pa/colby
UNIONTOWN, PA USA - Tueday, February 11, 2003 10:13 PM CST
GOODNIGHT GUYS---PLESANT DREAMS---THE CAM MAN & DADDY
WWW.CARINGBRIDGE.ORG/PA/COLBY
UNIONTOWN, PA USA - Saturday, February 8, 2003 10:57 PM CST
Hi Brian
the cam man
Uniontown, PA USA - Tueday, February 4, 2003 6:44 PM CST
Niki,
Just wanted to thank you for supporting Laura through these very tough times. Our JMML families and others support has been a
GOD sent to my family. We love you all!!! Say hi to the boys from all of us. (jack-colby's daddy forever & ever)
www.caringbridge.org/pa/colby
Uniontown, PA USA - Saturday, February 1, 2003 10:24 AM CST
Lovin those glasses...you boys are HANDSOME!
Love, The Doctor Crew
- Tuesday, January 28, 2003 at 10:48 PM (CST)
Hello Niki and family
just wanted to say
that we think
of you all everyday
Love Laura & Colby
www.caringbridge.org/pa/colby
- Monday, January 27, 2003 at 10:52 PM (CST)
Just popping in to say hello and to wish you
continued healing of your body and soul
Thanks for all the encouraging words
We love you all
The Cole's
www.caringbridge.org/pa/colby
Uniontown, Pa - Thursday, January 23, 2003 at 10:30 AM (CST)
Glad to hear that Brian is doing well. take care.
Christamae www.caringbridge.com/ca/oellacz
- Sunday, January 19, 2003 at 09:55 PM (CST)
Sending good thoughts and prayers from the Buckeye State.
Blessings,
Bonnie <www.caringbridge.com/page/jamiebowman>
Columbus, Ohio - Thursday, January 16, 2003 at 07:48 PM (CST)
I am amazed by Brians truimphs. He is an inspiration to us all. God bless him!
Angela , Tony's mom, (Transplant 3/7/02 for JMML) <caringbridge.org/ky/tonypolichetti>
Mt. washington, KY USA - Monday, January 13, 2003 at 03:18 PM (CST)
Wow! Reading! Fabulous! It was so much fun talking to him on the phone this morning....he sounds so mature...asking us when we're coming to visit again and getting excited when we said we'd be there for his birthday. De might have a good home for Quincy...call her for details....Mucho Amor and lots of hugs...Mom and Dad
Angie Sutton <aksutton.1@netzero.net>
- Sunday, January 12, 2003 at 12:13 PM (CST)
my grandson is 1yr old and was diagnosed with jmml in Oct. he will be undergoing stem cell BMT JAN. 20TH God Bless you Brian
Becky Brooks <drumguy@hotmail.com>
Miami, OK usa - Friday, January 10, 2003 at 03:16 AM (CST)
Happy New Year & Cancer-Free Years !!!
Hahaha, you always have enough words to fill up the page. Great to hear your mom recovers well.
Keep heeling Brian !!!
Thu <fale2000@yahoo.com>
Denver, CO - Friday, January 03, 2003 at 04:19 PM (CST)
Happy New Year!!!! Many warm wishes for continued healing and for God to keep a close watch on all of you. I was so pleased to hear that everyone is doing well. 2003 will be filled with Peace and Cheer. Niki, thank you for all your wisdom and thoughtfulness. Sending our love and prayers.
Oh, by the way, it looks like you will be getting closer to Dana and I (the east coast)in the summer. Maybe if things are going well, we can all get together!!!!!
The Cole's
Jack, Laura, Colby & Cameron
www.caringbridge.org/pa/colby
Uniontown, Pa - Wednesday, January 01, 2003 at 11:26 PM (CST)
Hi Niki, Jeff, Eric and Brian
Thanks for the email reply Niki. I am wondering whether you have solved your digital camera dilemma by now! If not, I will mail you some comments as I have been researching the options for friends and schools in our area. I am a great supporter of Epson's 3.3 Mp camera and Epson's photo quality priters are excellent! If you are not going to do your own printing AND BE WARNED! It is far more expensive than having "family shots" printed commercially, then there are many options available for purchase. I can fill your guestbook with comments so will leave it at that. Will mail you some additional comments and suggestions soon.
We are at home this Christmas and are looking forward to a quiet sunny day at home. Temperatures of 30deg C + for us here in sunny South Africa in December!
To totally confuse you I suggest you have a look at the web site www.dpreview.com for very comrehensive reviews on all digital cameras.
Wishing you all a "white" and blessed Christmas.
All our love.
Derek, Carol and Tamsin <derekstedall@icon.co.za>
Pretoria, South Africa - Wednesday, December 18, 2002 at 11:12 PM (CST)
Happy Holidays to you all
Sending HUGS
Thinking of you
Love
Laura
The Cole Family
www.caringbridge.org/pa/colby, - Sunday, December 15, 2002 at 09:32 PM (CST)
Sending loves and hugs to your way and Happy Thanksgiving !!!
The Nguyen Family <fale2000@yahoo.com>
Denver, co - Wednesday, November 27, 2002 at 10:04 PM (CST)
Have a happy and healthy Thanksgiving. We Love you!
Doctor Family
Zachary's web link
- Wednesday, November 27, 2002 at 01:48 PM (CST)
Hello everyone
Finally a few moments to catch my breath. Praying that the feeding issue improves. Always thinking of you all
Love
Laura
www.caringbridge.org/pa/colby
- Sunday, November 03, 2002 at 11:08 PM (CST)
Just want to stop by and wish Brian & Family .....
Nguyen Family <fale2000@yahoo.com>
denver, co - Thursday, October 31, 2002 at 05:26 PM (CST)
Hi Brian,
Saw your school photo. You're a very handsome little boy.
We hope you like school and all the neat things you get to do there. Our little doggie, Dickens, sends you lots of licks on your face and lots of tail wags. He wants us to send you his photo so you can see how cute he is. We'll do that soon.
bye for now
Barbara and Wilson
Barbara Yaffe/Wilson Russell <wilsonrussell@telus.net>
Vancouver, BC Canada - Wednesday, October 16, 2002 at 05:20 PM (CDT)
Brian you look awesome. May you climb the mountains and get their good tidings.Nature's peace will flow into you as sunshine flows into the trees. The winds will blow their own freshness into you, and the storms their energy, while cares will drop off like autumn leaves..
Mike Harstad <mauka-kai@msn.com>
Richland, WA Benton - Tuesday, October 15, 2002 at 07:41 PM (CDT)
Wow! Brian looks terrific! (as does whole family) It was so fun to see him. No longer a little pumpkin head!!!! Give him a hug for me.....love, Sharon
Sharon Scanlan
Evergreen, Co - Tuesday, October 15, 2002 at 06:38 AM (CDT)
OMG! I almost didn't recognize Brian! He looks awesome. What an amazing child. I hope his feeding issues improve. I guess you have learned to take life, one step at a time. As always, thank you for being such a wonderful resource for us JMML parents. You truly are an amazing woman (blushing yet).
Love you,
Dana
Dana
Zachary's web link
- Friday, October 04, 2002 at 04:15 PM (CDT)
Thinking of you all
Love
Laura
www.caringbridge.org/pa/colby
Uniontown, pa - Wednesday, October 02, 2002 at 02:15 AM (CDT)
Hello Brian and family
How is school going? Hope to talk to you soon.
Keep shining!!!
Love
Laura (Colby's mom)
XOXOXO
Uniontown, PA - Tuesday, September 17, 2002 at 10:05 PM (CDT)
Hello little buddy,
Glad to see you are having so much fun. I really enjoyed talking to your mommy on the phone. You are a true miracle and such an inspiration to all. I am so proud of you. Keep shining little star.
Love to all
Laura
www.caringbridge.org/pa/colby <colcam@charter.net>
Uniontown, PA - Friday, September 13, 2002 at 07:19 AM (CDT)
Hi! I'm Connor Summerville's Aunt Sarah....you signed in on his webpage recently, and I just wanted to thank you for taking the time to reach out to Rachel, Jim, and Connor. I know that they need people like you sooooo much right now!!!! Especially a survivior of 2 transplants....way to go, Brian!!!! You must be a very strong boy :) They are lucky to have contact with people who can give them the understanding and information that we want so badly to give and cannot. I thank you so much for that. God Bless you and your beautiful family!
With much love, Sarah
Sarah Clayton (Connor Summerville's aunt) <sclayton11@yahoo.com>
Hamden, CT 06514 - Saturday, September 07, 2002 at 10:53 AM (CDT)
Hi Brian,
We're friends of Conor Ford and we saw your mommy's message on his webpage. So, we said ' We've got to check this guy Brian out' and we looked at your webpage.
We're glad you like kindergarden. You must be meeting a lot of new kids there and learning a lot of new things. Do they have pictures of dinosaurs and sharks? We've never seen a real shark but we read that you have. Wow! That must have been real exciting.
Anyway, you take good care of yourself and have a good time in school.
PS That brother of yours is a great baseball player! Say hi to him for us.
wilson russell and barbara yaffe <wilsonrussell@telus.net>
vancouver, bc canada - Thursday, September 05, 2002 at 06:11 PM (CDT)
Sorry I missed your Birthday Brian ..........
Happy Birthday Day & Many Years To Come!!!!
Many hugs sending your way....
Thu <fale2000@yahoo.com>
Denver, CO - Friday, August 30, 2002 at 10:19 AM (CDT)
HAPPY BIRTHDAY, BRIAN!!! 6 YRS. OLD.........BOY, ARE YOU AN EXPERIENCED GUY FOR ONLY 6 YRS.OLD. MAY THE TRAVELS THAT YOU HAVE ENDURED BE A BLESSING IN NOT ONLY YOUR LIFE BUT TO EVERYONE YOU 'TOUCH' AS WELL !!!
Danette Prater www.caringbridge.com/tx/jacobprater <jakesmom@wt.net>
SANTA FE, TX USA - Saturday, August 24, 2002 at 10:11 PM (CDT)
HAPPY 6TH BIRTHDAY to our sweet, sweet Brian!!
It is such a miracle that you are still with us after all you have been through, and we are grateful for that each and every day. You inspire so many others with your strength and spirit and success. You make us all laugh so much too! I believe BIG things are in store for you someday.
We love you so very much and look forward to a super fun day with you!
oxoxoxox
Mommy, Daddy, Eric (& Quincy, the cat!) <ndaubach@cox.net>
Omaha, Ne USA - Saturday, August 24, 2002 at 09:07 AM (CDT)
I am waiting Niki ????....Hmm, tic tock tic tock tic tock...running out of patient already...hehehehe ....JK...I am sure you will have 10 pages of update.
Cheers,
Thu <fale2000@yahoo.com>
Denver, CO - Monday, August 19, 2002 at 12:13 PM (CDT)
Hello Niki,
Looking forward to the update. It was wonderful chatting with the group last week. Please know you are always in our prayers.
Love to all >>>>>>>> Laura(Colby's mom) <colcam@charter.net>
XOXOXOXOXOOXOX, - Saturday, August 17, 2002 at 08:17 PM (CDT)
Hello...I just wanted to say a big hello from Smile Quilts. We are a group of ladies who stitch virtual quilts for children. When you have a moment to spare please stop by Smile Quilts and have a look around. We would love to make your child a Smile Quilt of their very own.
Sincerely,
The Quilting Angel's
Quilting Angel Island Princess <mooks@bellsouth.net>
- Monday, August 12, 2002 at 03:33 PM (CDT)
Hello Niki,
Just a line to let you know we think about you often and pray for strength to carry you through the rough waters. Hope all is well with Brian and the rest of the family and we continue praying for your mom to have a successfull BMT.
Love and prayers
Laura (Colby's mom)
www.caringbridge.com/pa/colby
Uniontown, PA - Saturday, July 20, 2002 at 10:57 PM (CDT)
All,
I am thrilled to hear how well the boys are doing - what a blessing. I am very sorry to hear your mom is having such a difficult time - our prayers are with her as she moves along towards her BMT. We think of you often!
Holli, George, Hannah and Hailey <hdj@gator.net>
Gainesville, FL - Saturday, July 13, 2002 at 02:54 PM (CDT)
Niki,
I would like to thank you for your support since our recent discovery of Colby's relapse. You wear your heart on your sleeve. It is encouraging to read about Brian's recovery and the normal childhood events. We continue to pray for your mom and her BMT process. She is so fortunate to have your knowledge and expertise in the BMT process. I will be contacting you soon. I know you are consumed with your current situations and we will continue to keep you and your family in prayer and close to our hearts.
Love and prayer
The Cole Family
www.caringbridge.com/pa/colby <colcam@charter.net>
GOD IS WITH YOU, - Friday, July 05, 2002 at 12:11 AM (CDT)
Hi Brian, Sprite here from Smile Quilts stopping in to wish you a great summer full of lots of fun and a Happy 4th of July. Stop in at the Smile Quilt site by clicking on the graphic. We would love to make you a Smile Quilt. Hugs, Sprite for Smile Quilts.
Sprite for Smile Quilts <sprite@tds.net>
Eckert, Colorado USA - Wednesday, July 03, 2002 at 02:14 PM (CDT)
Hi Nikki,
Hope Brian is still doing well and so is your mom.
Happy Father Day Jeff!
Hope you will enjoy this day soon.
Thu & Binh & Brian & Cindy <fale2000@yahoo.com>
Denver, CC - Wednesday, June 19, 2002 at 12:05 PM (CDT)
HAPPY FATHER'S DAY JEFF!
Dana
Zachary's web link <dmdoc@msn.com>
- Saturday, June 15, 2002 at 12:37 PM (CDT)
Niki...Hi, I'm Becky...Libbie's mom.
I hate to hear what your mom is going through....I will pray for Brian AND your mom.
My family too has dropped their lives to come help us and I know where you are coming from....My mom is here with us in Houston and my sister and her 1 yr old have left their home in California and husband/daddy to take care of our 2 yr. old son while my husband continues to work to pay the bills!!!
I hope Brian continues to get better all the time.
Becky Nichols (www.caringbridge.com/tx/princesslibbie <becnic@texas.net>
Austin, Tx - Friday, June 14, 2002 at 11:51 PM (CDT)
Dear Niki and family,
Hehehe, when you are update, you are really update. It gave me great joy when knowing Brian is doing better everyday and sadden with your Mom illness. I hope and pray for your mom will be cruising through her BMT. Your family has gone through 2 BMT and now another one soon. It just beyond anyone's imagination to know in real life, that this is actually happening to your family. I pray for a happy ending to Brian and your Mom. Thinking and praying of your family all the times.
Loves,
http://www.caringbridge.com/co/cindy/
Thu Nguyen <fale2000@yahoo.com>
Denver, CO - Monday, May 20, 2002 at 12:38 PM (CDT)
Dear Niki and Family:
I am Sarah’s husband (Lam Do), Luke’s father. Thank you for your support of Luke and our family, especially your last entry in Luke’s guest book. You were so very much correct. Luke was doing so poorly at that time and we were so emotionally in the dump... He is now much much better with the GVHD under control and we are tapering his steroid. We are just beginning to advance his fluids intake. I have learn so much from reading your web site. I am so glad to hear that Brian is doing well and that Eric is just stellar. I am so sorry to hear about your mom’s fight with multiple myeloma. It is ironic that she will also get a bone marrow transplant. We hope and pray for her success at curing the MM. Just like you, we are so thankful of our parents moving from Oklahoma here to help raise my daughter Christina, just as your parent help out with Brian and Eric. Our parents have sacrifice so much for their children. I don’t think we can ever thank them enough… We will continue to check in with Brian’s web site to see his continual progress. You and your family will always be on our mind and in our prayers.
Lam Do; www.caringbridge.com/ca/lukedo; Dx JMML 09-01, BMT 03-18-02 <lamdo@mindspring.com>
San Jose, CA USA - Wednesday, May 15, 2002 at 11:04 PM (CDT)
Wow! Brian, you are looking so grown-up! It looks like you had a lot of fun being a prancing pony! Give your mommy and Eric hugs for me, okay? :) Love ya kiddo!
Tammy L Healy <najusa@dashlink.com>
Lampasas, TX 76550 - Wednesday, May 15, 2002 at 08:20 PM (CDT)
HAPPY MOTHER'S DAY NIKI!
Dana Doctor www.caringbridge.com/nj/zacharyd <dmdoc@msn.com>
- Saturday, May 11, 2002 at 05:07 PM (CDT)
I recently found your site, and scanned your journal entries. What a lovely family you have! Best wishes to you in your continuing journey. You are a brave soul.
My daughter, Chandler, has also been the beneficiary of "brushing therapy" -- I must admit I was skeptical when her Occupational Therapist recommended it when she was four. But after completing the five-a-day brushings (2 at home, 3 at preschool) for a few months --- she was a changed child. Her gross motor problems, behavior problems, and "smell" aversions improved greatly. Who knew? She's now six, finishing kindergarten, and you'd never know she had the behaviour problems she did. My husband was treated for AML during her fourth year --- and I think the disruption of his illness caused a lot of her behavior problems. But now we're through it.
The other day, we found one of her "brushes" in the bottom of the toy box. Jeez, you would have thought we had found "treasure" when she reached down and picked it up. She has an attachment to her brush like you would expect a child to have to a favorite "blankie". The brush has now been "enshrined" on a shelf in her room. I hope your son Brian benefits equally and sometime in the future looks with fond memories at his favorite brush.
Best wishes.
Kristine <kristinemk@aol.com>
St. Louis, MO - Tuesday, May 07, 2002 at 02:57 PM (CDT)
Hi,
I got your site off of Cindy's. We are praying for you & your family.
http://www.caringbridge.com/ga/chasesmiracle/
Tutee <chasesmiracle@yahoo.com>
Ga USA - Monday, April 29, 2002 at 11:06 PM (CDT)
Hi Niki and family.
It has been some time since I last made a guestbook entry (Nov 2000). Brian's progress has been fantastic! It is so special to follow your "success" story. A wonderful caring family! It seems like another world you are in when we read of your holiday in Texas. The new holiday photos are great. We are a long, long way away here in South Africa and as you enter spring, we unpack jerseys and blankets as our winter approaches. Autumn leaves are very colourful!
Duncan's site is back on line at a new address www.gamaroff.com/duncan.
All our love
Derek, Carol and Tamsin
Derek Stedall <derekstedall@icon.co.za>
Pretoria, South Africa - Monday, April 29, 2002 at 10:57 PM (CDT)
Doris (Smile Quilt) <cdmaa@insightbb.com>
- Sunday, April 21, 2002 at 04:33 PM (CDT)
Hi My name is Diane my son Alex was diagnosed with jcml june 2000 he was 4months old at the time he had him bmt sept 28,2000 and is doing great he just had his second birthday Jan 2002. It's nice to hear someone that has been cancer free for such a long time. If you have any advise for us or anything we should watch for it would be appreciated to hear. I'm glad Brian is doing so well and we will pray that he continues to do so well.You can email me anytime at mitton_family@hotmail.com Keep up the great work Brian
Diane Mitton <mitton_family@hotmail.com>
Saint John NB, Canada - Friday, March 15, 2002 at 06:26 PM (CST)
Hello.. wow Mom, when you update, you REALLY update!!! :)
When Make A Wish came to our house (we delayed about a year
'til he was a little older/thru with the really intense chemo)
Ronnie said he wanted a motorcycle.
Then he talked to them more & they got Buzz Lightyear out of him, so thats how we ended up at Disney.
The Buzz Lightyear ride REALLY is pretty cool by the way!!!
I think the Give Kids the World village you stay at when you go there (www.gktw.org) was GREAT.
I honestly enjoyed it there more than Disney.
They couldnt have a better bunch of volunteers there... everyone friendlier/more helpful than the next.
You will love it if you go there.
I would have liked to stay there totally and forget trying to squeeze in as much as possible
for the 3 different ages of my kids (4 3/4, 8 1/2 & 12 at the time) at all the Disney attractions.
Well, glad to hear you are doing well!!!
Keep us posted!
chris
www.geocities.com/goochsplace
<chrisrusso_@hotmail.com>
Bethel, CT - Monday February 18, 2002 1:44 AM CST
HAPPY VALENTINE'S DAY !!!!
Keep the updates coming! We love good news!!!!
Chris {Goochie's mom}
www.geocities.com/goochsplace
<chrisrusso_@hotmail.com>
- Wednesday February 13, 2002 11:21 PM CST
Dear Niki, I'm Sarah, Luke Do's mom who you emailed recently. You know, I could'nt remember how I found your website. In fact, I've been trying to remember to get back to you sooner but I couldn't. I just found the paper where I wrote down your website. It could have been through dana doctor's site. Anyway thank you for your support and encouragement. I am so happy to hear that Brian's doing well. My husband just spoke to a Vietnamese couple in Denver who's daughter Cindy was just diagnosed with JMML last week. It does seem more prevalent now. I believe they are with Kaiser but may go to Denver Children's hospital. Did Brian receive the regimen that is being used now of 2 rounds of chemo with ARA-C, fludarabine, and accutane then splenectomy then l week of total body radiation with chemo then the transplant. Luke is scheduled for admit for the chemo/radiation/transplant on 2/ll. Do you have any recommendations in terms of the transplant phase. We're wondering if we should both take time off, one time off, have visitors, have more than one person to help each day in the hospital. We also wonder how to relieve the stress from the entire ordeal. We will continue to pray for Brian. Our web sites if I didn't give them to you already are www.caringbridge.com/ca/lukedo and www.saveluke.org. Keep the faith, Sarah
Sarah Gaskins <lamdo@mindspring.com>
San Jose, CA USA - Saturday February 2, 2002 11:32 PM CST
We love your pictures and have really enjoyed having Keith & Angie here for a few days. They're so special and we love them!
Mike & Shirley Armstrong <shirmike@zianet.com>
Las Cruces, NM USA - Sunday January 20, 2002 8:49 AM CST
Hello,
I am the mother of Kayli Jankowski and she was dx w/
JMML on 7/27/01. Brian's story is very encouraging and
I hope that he continues to do well. Boy this has been
a journey... we are still waiting for a marrow match
for our daughter and the waiting game is rough but I
am very optimistic that we will find one soon.
Please take care.
Jennie (Kayli's mom dx JMML) www.caringbridge.com/ca/kayli <jjankowski@valleychildrens.org>
Fresno, Ca -
I am the mother of Luke who was diagnosed with JMML 9/01. He has had chemotherapy and splenectomy and has a 5/6 unrelated donor. His BMT will likely be in 3-4 weeks. It is inspiring to read about Brian's story. We pray to god that Luke will also be fortunate enough to have a good outcome. He is 21 months old and feels great now after treatment but the impending months are very scary to think about. I wish you well in this new year.
Sarah Gaskins <lamdo@mindspring.com>
San Jose, CA USA - Saturday, January 05, 2002 at 01:09 AM (CST)
Happy New Year to you guys and glad to see by latest update he is doing well!
Chris <chrisrusso_@hotmail.com
www.caringbridge.com/page/gooch>
Bethel, Ct - Thursday, January 03, 2002 at 11:50 PM (CST)
Dear Niki, Jeff, Eric and Brian,
I hope you had a wonderful holiday. I just wanted to wish you a very happy and healthy New Year. I am thrilled to see how far Brian has come, he is truely amazing. I wish for him a healthy life and the ability to forget all he has been through. Niki; words could never describe what you mean to me. I could have never kept my sanity through Zachary's treatment had I never met you. You are a gift from god. I just hope I can be to others what you were to me. I hope someday cancer wont be such a common topic for us and stories like Eric's quaterback experience fill our lives.
God Bless you and yours,
Dana Doctor
Dana Doctor <www.caringbridge.com/nj/zacharyd>
Whiting, NJ - Sunday, December 30, 2001 at 12:39 PM (CST)
my two year old neice Kayli was diagnosed in July with JMML. She is a fighter. This February she is schedualed to have her first BMT, but we are still looking for a donor. I hope Brian continues to be healthy and happy.
Casey Jankowski <cmj80@yahoo.com www.caringbridge.com/ca/kayli>
Fresno, CA - Wednesday, December 26, 2001 at 02:47 AM (CST)
Hello. I stumbled upon your site in the acor site.
I am glad to hear of your successful battle. My son will be 5 in Jan & was diagnosed with ALL July of 2000. I know what a financially and emotionally long road it has been for all of you. I pray your woes & troubles are all behind you.
Chris
www.caringbridge.com/page/gooch <">
Chrisrusso_@hotmail.com
>
Bethel, CT - Saturday, December 08, 2001 at 03:18 PM (CST)
Hey Niki! the picture of Brian is sooo great!! He's so grown up. Thank goodness the potty training is over, I know how much you liked it, HA!. So glad to hear everything is going good. Love to you all.
Tami <TamiCvn13>
- Wednesday, October 24, 2001 at 08:39 PM (CDT)
Dear Niki, Jeff, Eric, and Brian, We are so pleased to hear of everyone's progress. Eric, congratulations on being student of the month! Way to go! Brian, potty trained is such a huge step! And such clever things to say! I'm glad, Jeff & Niki, that you are getting out some. We think of you often, Love, Diane, Dick, Moriah.
Diane <efthido@groupwise.ccsd.net>
Las Vegas, NV USA - Tuesday, October 23, 2001 at 03:38 PM (CDT)
Nicki,
So great to catch up on the Daubach's and the activities of those two fantastic boys, (three including Jeff!) Now that some traveling can be done, please know that you have a place to stay if you're St. Louis way.
Adios for now,
Mark, Lisa and family
Mark Friederich <fried5@earthlink.net>
Wildwood, MO USA - Monday, October 22, 2001 at 08:38 PM (CDT)
Hi Niki, I love the pictures! It is great to know Brian is doing so well, it gives me hope for Zachary. I am so lucky to have found you!
Dana Doctor <dmdoc@msn.com>
whiting, nj USA - Thursday, August 16, 2001 at 09:37 PM (CDT)
Your good news just keeps getting better!!! The smiles on Eric and Brian's faces are true signs of the love and care they receive from mom and dad. You are proof that the power of love can conquer the impossible. Your lives have touched and inspired many and I thank you for sharing your life with so many so we can all share the joy of your good news. Keep it coming!!!! Love, Penny
Penny <Pfortenb@jcpenney.com>
Mesquite, Tx USA - Tuesday, May 29, 2001 at 08:03 AM (CDT)
We are thrilled for you all...."de-porting" is another step...a giant step... down the road to Brian's remarkable recovery ......won't be long before he will really be eating corn....hugs all around....Mom and Dad
<aksutton@unisono.net.mx>
San Miguel de Allende, Gto. Mexico - Sunday, May 27, 2001 at 09:22 AM (CDT)
Great pictures Niki!!! Both are getting so big.
susan <yellowdog1>
rochester, new york - Sunday, May 27, 2001 at 05:00 AM (CDT)
WOW!, what a handsome stud that brian is.... Great pictures of both the guys love the update. always in my heart mike.
mike <maukakai@msn.com>
- Monday, May 14, 2001 at 07:08 AM (CDT)
Glad to here things are progressing so well with "The Big, Little Guy".
Spencer <ssutton@enginuityinc.com>
Fort Collins, CO USA - Wednesday, February 14, 2001 at 09:12 AM (CST)
Niki,
What great pictures!!! I love the black and white of you and the boys.
diane
diane aleem <mk4me2@netzero.net>
dallas, tx usa - Friday, February 09, 2001 at 11:54 PM (CST)
Hi Brian & Niki!
I just love your pictures! You just keep smiling that charming smile, ok? Glad to know that you are able to return to school even if you are back at home because of the weather. Happy Valentine's Day, Sweetie!
Amy, Lance, Savannah & Jasmin Olson <amyolson11@yahoo.com>
Woodridge, IL - Friday, February 09, 2001 at 09:59 PM (CST)
Hi Niki - very cool pictures! To see Brian - standing all by himself, no walker, no oxygen hose. How I love it! He is doing so well. You are a testimony of love and strength. Keep plugging along!!
Sheri White <greg-sheri.white@prodigy.net>
Rockford, IL USA - Friday, January 19, 2001 at 10:06 PM (CST)
Hi Niki!
Thanks for the 15 Dec. update.
"Progressing" -- "Catching up" -- "surviving" -- "Thriving" -- How wonderful to here these words from Brian's mother. And yes --Thanks to Mark -- Thanks to all the "Marks" out there for their bone marrow, stem cell, blood donations !!!. Hope you have a good "white?" Christmas while we bake in the sun here in RSA. Love to you all and special hugs for Eric and Brian.
Derek Stedall (Duncan's dad) <derekstedall@icon.co.za>
Pretoria, South Africa - Friday, December 22, 2000 at 06:13 AM (CST)
First, it's not go "Go Huskers", it's "Go Bluejays"!! It's a must to go see at least one Creighton B-ball game this winter! Secondly, We are glad to hear that Omaha is treating you so well. Our four years there were great. Lastly and most importantly, we are elated to hear of Brian progress. All the Daubachs are in our prayers.
Bob, Kate and Jack Harstad <bobharstad@clix.pt>
Porto, Portugal - Saturday, December 02, 2000 at 06:42 PM (CST)
Hi Niki and all!
Thanks for the update. We are following your progress - How wonderful it is to have two kids to irritate each other on occasions, headbutting and all!
Derek <derekstedall@icon.co.za>
Pretoria, South Africa - Thursday, November 16, 2000 at 10:20 AM (CST)
Hi Niki and Family. Niki your mail to me is still in my "in-box",almost a month after receiving it. I have often opened your web page and read parts of your journal. So many reminders of platelett counts, blood counts, transfusions etc. You guys are extremely brave and courageous! How your world has changed so much since that first dx.in Dec 96. No one can possible understand what you have been and are going through. I know what it is like to be able to share your emotions, fears and small "victories" as they happen regarding Brian's progress, by way of your journal updates.
To have to care for Eric as he is confronted with all the emotions and attention that Brian demands must be equally difficult for you. Your are indeed wonderful parents to both of your precious children.
It is over a month now that Duncan lost the fight against his cancer of the soft muscle tissue. A time of reflection and adjustment. A precious child releaved now of his suffering and pain. We pray for your family as we do for many others with similar experiences.
Duncan's Story is at www.adm.co.za/duncan
Hope the move went well and that by now you are settled in your new home. Keep the updates coming!
Derek, Carol and Tamsin Stedall - Pretoria, South Africa.
Duncan's Dad <derekstedall@icon.co.za>
Pretoria, South Africa - Sunday, October 22, 2000 at 01:05 AM (CDT)
Gorgeous pictures! I will be in constant pray for the four of you as you make the move to the Midwest! Love, Donna
Donna Smith
Irving, TX USA - Sunday, September 24, 2000 at 11:50 AM (CDT)
What great pics ! ! !
We are thinking of you often ........
Hope everything is going well. Please tell us if you need anything. Brian, Eric .......... gotta get ready for those girls soon ........They are going to be chasing you around the playground in no time ! ! ! Love to all .......
Jennifer & Brian Felix your POKWC friends .........
Bensenville, IL - Saturday, September 23, 2000 at 06:25 PM (CDT)
Niki & Jeff,
Love the pictures!!! Jeff, good luck on the new job! And to all of you, here's to a smooth and safe move!! GO HUSKERS!!
love ya,
diane
diane aleem
dallas, tx usa - Thursday, September 21, 2000 at 08:32 AM (CDT)
Hey Aunt Niki and Uncle Jeff, I am glad things are finally starting to look up for Brian and his fight against Leukemia!! I love you all and hope to hear from you soon!! Love, Your neice!
Bethany Daubach
Carbondale , IL. USA - Friday, September 01, 2000 at 01:05 AM (CDT)
Niki & Jeff, thanks for the update.Your family is always in lisa and my prayers. We bless you on your move,I know you love colorado, but what your doing for brian's future health is unselfish and so loving of ALL of you. LOTS OF HUGS MIKE
MIKE HARSTAD
Richland, Wa Benton - Wednesday, August 30, 2000 at 11:02 AM (CDT)
Niki,
I have kept up with Brian through your posts to PED-ONC, but I just made my first visit to your webpage.( I love the sandbox picture!) I admire you guys even more now that I have read additional details of your son's treatment and two(!) BMT's. As the Daddy of a 5 yr old survivor of a single BMT, I know some of what you have been through. Best of luck in the future. I hope to read more good news in the future as Brian enjoys the "lower altitudes" of Nebraska.
Ricky, Daddy of Garrett, AML m4. BMT 1/14/98
Conroe, Texas USA - Monday, August 28, 2000 at 09:58 AM (CDT)
Congratulations on the progress that has occurred for your family in the past year. We hope that the move to Omaha is smooth one. Please keep in touch with you Colorado friends.
Doug & Kelly Miller
Denver, CO - Wednesday, August 16, 2000 at 04:55 PM (CDT)
Niki - love the sandbox picture!!! oxygen and all! No stopping him,now!
Sheri White
Rockford, IL USA - Sun Jul 9 3:39:24 CST 2000
Hi Niki and all- Picture of Brian asleep at the table was too cute! Good to hear Eric enjoyed DINOSAUR. I enjoyed it with my grandson. Keep cheering for the STARS and keep the good news coming. Love, Connie
Connie Jones <bandcjones@earthlink.net>
arlington, tx usa - Friday, June 02, 2000 at 11:59 PM (CDT)
One can only be inspired by Brians strength and spirit. The grace and love displayed by your family can only lead one to believe that the Angels from Heaven are with you and have blessed your home. Lots of Love to each of you.
Les, Jackie, Alyson & Alex <Jackie.McMullen@Progent.com>
Danville, CA USA - Friday, June 02, 2000 at 09:26 PM (CDT)
Hi, Niki. It's was super to hear that Brian is taking STEPS!! Wow! De and I are excited for him. Sounds like things are moving in a positive fashion. Let's try to get together soon. We are already missing Mexico and the pace of life that goes along with it. We'll show you some of the pictures we took at Dad's birthday party. De has been pushing for a scanner so we could send that sort of thing on the internet, but I haven't fallen for one yet. Do you have any recommendations? Hope you have a great Mom's Day this weekend. Love David & De
David & De <sutts@frii.com>
Fort Collins, CO USA - Thursday, May 11, 2000 at 07:15 PM (CDT)
Niki you have done a great job with the web page. I just want to thank you so much for your friendship. You have been a great inspiration in helping me deal with our situation. You are a wonderful person and I really feel blessed having you in my life. Thank you for pointing me in the right direction regarding the Doctor situation. I cannot tell you the peace that I am finally feeling. You are a very special friend and I thank you for being a part of my life. Kay
Kay Bohan <Pkbo62@aol.com>
Evergreen , Co USA - Tuesday, May 09, 2000 at 10:23 PM (CDT)
NIKI AND JEFF, JUST READ YOUR NEWS LETTER ABOUT BRIAN.I' M SO OVERJOYED THAT HE IS MAKING
SUCH GREAT PROGRESS.I REALLY ENJOYED SEEING PICTURES OF BRIAN.I'VE BEEN THINKING ,AND
PRAYING FOR YOU ALL.HOPE TO SEE YOU IN JUNE.
TERESA
LOVELAND 1549 NORTH ADAMS ST. 80538, CO - Sunday, May 07, 2000 at 07:38 PM (CDT)
Niki & Jeff---you have a beautiful web page!! Brian & Eric are very lucky to have you 2 as parents. As you can see from the wonderful notes of support, you are an inspiration to us all & an example of marital strength through many tough times. Thank you for sending regular updates & reminders of the blessings we need to keep in front of us!! We love you all very much!
Steve & Brenda Harstad <blh@libra.pvh.org>
Loveland, CO USA - Thursday, April 20, 2000 at 11:14 AM (CDT)
God Bless Brian! Your whole family is beautiful!
God grant you as much energy as you need, and may Brian's and Eric's giggles refresh you daily.
Maria, William's mom <msansalone@m-w.com>
Springfield, MA USA - Monday, April 17, 2000 at 08:07 AM (CDT)
Hi Niki I'm checking out Brian's Page!
Rae Anne Alesch <c_alesch@yahoo.com>
Marcus, IA United States - Sunday, April 16, 2000 at 07:50 PM (CDT)
Hello Niki, You may not remember us, I met you in Omaha at UNMC. My son, Tim (20 yr.old) had a BMT and was a few doors down the hall from Brian. I was so glad to read your website. It was forwarded to me by Wil. I am awed by your strength and courage! Tim is doing good. In fact, today we are celebrating his 21st birthday. My very best to Brian and all of you. I will keep you in my prayers. God Bless.
Ann Jones
Ann Jones <rogandan@verinet.com>
Loveland, CO US - Thursday, April 06, 2000 at 11:54 PM (CDT)
Niki and Jeff- You are such an inspiration to us all. I am grateful for your friendship and updates on your family. My parent's are celebrating their 50th anniversary tomorrow and I know when that day comes for you, you will be in awe of what your marriage has accomplished and survived. I know you sleep with one eye open every night, but I also know God has made you angels on earth for all of us to follow your example. You are wonderful teachers! My prayers every day are not only for Brian, but they are also for you. Your friendship has blessed us all. Thank you
for being who and all you are to us.
Penny Fortenberry <pfortenb@jcpenney.com>
Mesquite, Tx. USA - Thursday, April 06, 2000 at 08:56 AM (CDT)
Niki, just checking out the website. Pretty cool, and I'm sure it's a source of inspiration for many who visit. Love you guys, give my boy a kiss.
Ken D. Struble <Sseaphin@aol.com>
Omaha, NE - Monday, March 27, 2000 at 01:05 AM (CST)
What a beautiful and VERY special family! Brian is such an inspiration! Thanks Niki for sharing your family and self with us on the POKWC onelist!!!
Tammy Healy <najusa@n-link.com>
Lampasas, TX usa - Saturday, March 11, 2000 at 01:46 PM (CST)
We enjoyed your journal. Adam and family have only just begun our journey. BMT 12/99.
adam,Megan,Patti& Tracy Smith <Psmith402@aol.com>
Cleveland, OH USA - Friday, March 03, 2000 at 09:56 PM (CST)
Thanks for the update. As you know, we think of you often
Nick & Lori <ntrombetta@aol.com>
Brighton, co us of a - Monday, February 21, 2000 at 11:05 PM (CST)
Niki and Jeff, I love you guys, and your two little ones.
This is such a special website, but not nearly as special as
you all, oops, I mean, All Ya'll!
Donna Smith <acudonna@flash.net>
Irving, TX USA - Friday, February 18, 2000 at 10:06 PM (CST)
Niki, you are an encouragement and a role model to me. Brian is blessed to have you and Jeff as parents. Keep it up and stay cheerful!
I can't wait to see your website on Brian's BMTs.
Joyce Ngu <Petjoy@tm.net.my>
Kuching, Sarawak Malaysia - Thursday, February 17, 2000 at 02:36 AM (CST)
Niki- Thinking of you - hoping all went well in Omaha.
Bill and connie Jones <bandcjones@eathlink.net>
arlington, Tx tarrant - Thursday, February 10, 2000 at 01:49 AM (CST)
Niki,
I tried to get on Brianspage unsuccessfully. After many conversations with tech support here I am. What a beautiful family you have. Brian will be in my prayers. Hugs from Amanda.
Andrea <madgejr@aol.com>
Arlington, MA - Wednesday, February 02, 2000 at 06:08 AM (CST)
Just wanted to let you know that Brian and your entire family is always in our hearts and prayers!
Buffy, Bryan, and Tristan Krajewski <bkrajew@optonline.net>
Riverhead, NY United States - Monday, January 31, 2000 at 07:08 PM (CST)
A belated Happy Birthday to Eric and a Happy New Year to all. You are in our prayers.
Connie Jones <bandcjones@earthlink.net>
Arlington, tx tarrant - Saturday, January 15, 2000 at 02:45 AM (CST)
Niki and Family,
What terrific news you have about Brian and what a wonderful way to share your happiness. Just wish I could see the photos -- for some reason my program won't open them. But there is always the refrigerator at the Sutton's house in Mexico....
Dianne Walta Hart <dianne.w.hart@orst.edu>
Corvallis, OR USA - Saturday, December 04, 1999 at 06:11 PM (CST)
Wow, this web page is great! What’s even better is Brian’s condition. Normal labs, that’s OUTSTANDING! Tell him to keep up the good work.
Patrick Pucelik <pucelik@earthlink.net>
Omaha, NE USA - Friday, December 03, 1999 at 07:35 AM (CST)
This website is GREAT!!! Congratulations on Brian's progress--this kind of news is the best!!! Our prayers are with you daily.
Diane & Jeff Aleem <mk4me2@mciworld.com>
Dallas, Tx USA - Wednesday, December 01, 1999 at 11:37 PM (CST)
A website! Brian has a website! We, as his grandparents have been able to share the awareness of his ups and downs, to be aware of the dedication Niki and Jeff have put into his care, and to be grateful for seeing a parting of the mist of uncertainty that Brian has endured. E-mail kept us appraised. Now a website allows us to also register our thanks to all the caregivers and friends who have been so needed and supportive. Bless you all!
Angie and Keith <aksutton@unisono.net.mx>
San Miguel de Allende, Gto. Mexico - Wednesday, December 01, 1999 at 09:38 PM (CST)
KATE AND I JUST HAD OUR FIRST CHILD. IF WE CAN BE HALF THE PARENTS THAT NIKI AND JEFF ARE, OUR SON JACK WILL BE VERY LUCKY!! BRIAN IS IN OUR PRAYERS EVERY DAY. WE SEND OUR LOVE FROM SPAIN.
BOB AND KATE HARSTAD <harstad@ctv.es>
Ourense, Ga. Spain - Wednesday, December 01, 1999 at 03:20 PM (CST)
Just a little visit to the web page. Awesome!
Renata Meusch <RMeusch@aol.com>
Greeley, CO USA - Wednesday, December 01, 1999 at 10:47 AM (CST)
Warm wishes from Sunny Florida! We think of all of you often. Love you bunches...Karey and Jamie
Karey Kazos Freeman <kfreeman@coxorlando.com>
Orlando, FL USA - Wednesday, December 01, 1999 at 08:14 AM (CST)
Being the Uncle to this brave and charming child, I am impressed with the effort the parents put into both their children, Eric and Brian. I'm glad my nephew can get the support and love that he truely deserves from everyone and the rest of the family gets the kudos they deserve.
Paul Sutton <pksutton@netzero.net>
Lynnwood, WA USA - Wednesday, December 01, 1999 at 12:13 AM (CST)
Brian is a beautiful child. Prayers are with you and your family.
Linda MacDonald <linmacd@attglobal.net>
Falls Church, VA USA - Tuesday, November 30, 1999 at 01:04 PM (CST)
Niki, What a beautiful family you have !
Brian is always in my prayers as is all the PED-ONC family.
Wishing Brian much happiness and good health!
Elaine and Jamie
Elaine <vizena@sprint.ca>
Nepean, Ont Canada - Monday, November 29, 1999 at 07:14 PM (CST)
Click here to go back to the main page.
Hey Brian. Happy 4th of July!!! We came upon your web site from a friend of our's site. She has a caring bridge site too. So does my son Jimmy~~** We liked your pictures! You are a very sweet looking boy. We hope you feel better. We will be checking back often. Keep smiling buddy!! Friends from S. Fla. Lin, Jim, Mike, Amy & Jimmy-Joe~* http://www.caringbridge.org/fl/jimmyjoe/ 
