~JAXON'S JOURNEY~

This page is for our precious little boy Jaxon. He was born a very healthy baby on April 29, 2001. He was diagnosed with Acute Myelogenous Leukemia (AML) M5 on September 1, 2001. He is currently in remission and has amazed the doctors and nurses with his unbelievable spirit and strength. On February 1, 2002, Jaxon received an umbilical cord blood stem-cell transplant at Southwest Texas Methodist Children's Hospital in San Antonio, TX. He is now 3 years post-transplant and doing GREAT! Please continue to pray for us and don't forget to sign the guestbook before you leave. Thanks for taking the time to check on us today!

Journal

Monday, March 27, 2006 8:38 AM CST

Hello to all,

We are all doing great! Jaxon is doing wonderful and is still getting his labs done every 6 months. He has now been in remission for 4 years. We had a "Happy Remission Party" again this year. Next year will be the last one! Those years have gone by so fast. Next February will be 5 years in remission and he is pretty much considered cured after that.

We didn't do a whole lot this past off-season. Jaxon went to preschool 3 days a week and Maci took gymnastics. It's lots of fun to watch a 2 year old in a gymnastics suit doing "tricks" as she would call them. Cliff had hernia surgery, worked out, traveled back and forth to Cleveland and hunted the whole off-season. The kids and I didn't get on an airplane once the whole time. It was a nice break.

Cliff is still with the Cleveland Indians. We are in Florida for Spring Training right now. We will be leaving here shortly and heading to Cleveland for the season. We will be there for about 6 months. We have lots of plans for this summer. The kids and I will travel to some of the away games and go to lots of home games. We have two birthday parties to get ready for. Maci will be 3 on April 5th and Jaxon will be 5 on April 29th. Maci wants to have a Strawberry Shortcake party and Jaxon wants to have a Disney Character party. He wants me to call Disney World and have the characters come to his party. I don't know how I will pull that one off! We are also in the process of moving into a house in Cleveland that we purchased before we left last season. This is very hard to do without being there. Thank goodness for the internet! It will be very nice to have a house to go to instead of an apartment. The kids need a yard to play in. It is in a wonderful neighborhood that has an amazing community pool, t-ball for Jaxon, a beautiful park, and lots of summer activities for the kids. We will be very busy! Hopefully it will get warm soon in Cleveland. Maci will take dance and Jaxon will possibly take Taekwondo again. The kids may also go to a summer camp that is once a week for a couple of hours a day. Who knows what we'll end up doing!

Cliff and I have gotten involved with the Northeast Ohio Leukemia and Lymphoma Society. This will keep us very busy as well. Cliff and I are honorary chairs of the Light the Night event that is being held at the ball park in September. So, all season we will be promoting the event through radio and TV public service announcements, attending corporate events and proving our personal story. This should be very exciting! Jaxon's story was featured on the news in the Cleveland area earlier this month. He was so excited to be on TV. We are thankful that we are able to use our story to provide awareness to as many people as we can.

Our friend Lindsey Crowder has just recently relapsed after being off treatment for 2 years. Her family is devastated. She is undergoing treatment and needs lots of prayers. You can check on her from the link below. She is such a sweet little girl! We met them while Jaxon was inpatient at Arkansas Children's Hospital.

Thanks to anyone who continues to check on us and for all of the support and prayers that helped us to get to this place in our life! We are truly blessed.

The Lee's

Hospital Information:

Patient Room:

AT HOME! But recieve treatment at Arkansas Children's Hospital

Little Rock, AR

Links:

E-mail Author: kristenmlee@msn.com

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