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SURVIVOR JACKSON!
10 MONTHS OFF TREATMENT!

This is Jackson's 2008 soccer photo. Love it!

Welcome to our son Jackson's web page. Jackson was diagnosed with ALL (Acute Lymphoblastic Leukemia) on November 22, 2004. Jackson's treatment is approximately 3 1/2 years long. Click here for more information on his protocol, CCG1991.

Please check back frequently for updates on his treatment. Please make sure you sign his guestbook each time you visit us. Jackson loves reading all the entries! Thank you to all our friends and family for your thoughts and prayers!










Jackson and Faith with the "Butt Tree" at Camp Okizu.


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You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself,"I have lived through this horror. I can take the next thing that comes along.". . . You must do the thing you think you cannot do.
-Eleanor Roosevelt




This photo is one of our favorites! Jackson meeting Jamy (the animator) for Yoda from Star Wars! Thank you Jamy for such a wonderful surprise!


If you are ever wanting to know how we, Jackson's parents are feeling, this beautiful song sums it up. It is called He's My Son performed by Mark Schultz.



JACKSON'S SMILE QUILT!


JACKSON'S QUILT OF LOVE!



Jackson's banner made by the Big Brave Banner Site



The Littlest Soldiers

The medals on our chests
Are portacaths for meds
Helmets won't stay on
Cause no hair is on our heads.

Our weapons of destruction
We take every day
We fight the battle within us
While we struggle on to play.

We fight with honor and courage
No marine could do as well
We are only little children
Living in this hell.

So bring on the medals
The Purple Hearts of Wars
The Gold Cross, The Silver Star
To place upon our scars.

For We are the Children of Cancer
No one has fought so hard
But every day we struggle on
Our LIFE is our reward.

by Cheryl Jagannathan
mom to a leukemia survivor


Important Information!!
Normal Blood Counts for Healthy Children

White Blood Cells (WBC): 5,000-10,000
Absolute Neutrophil Count (ANC): over 1500
Hemoglobin (HGB): 11.5-13.5
Hematocrit (HCT): 34-40%
Platelets: 160,000-500,000

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Journal

Tuesday, December 2, 2008

Here we are two months since I last updated Jackson's site. It is no intention to wait so long, but it is nice to just breeze through life.

Halloween was wonderful! Jackson was a bottle of mustard and Faith was a geisha princess. They both had us laughing with their costume choices, but they were adorable. The rain held off and we were thankful to see the kids having such a great time trick or treating. Halloween is just another memory of when Jackson started to get sick. So it is extra nice to see him running around enjoying life.

Jackson is now done with soccer. His team had a great year and we have seen him come a long way. He continues to love soccer, just like his dad. We are now on to CYO basketball, which he is really liking also. The practices are at Jackson's school, and are only twice a week. Enjoying the break of driving to Petaluma three times a week.

Thanksgiving was nice and quiet. We hosted at our home with my mom and dad joining us. We enjoyed watching the parade on TV and just hanging out. It was nice being home. For the last three years, we have celebrated thanksgiving time at Disneyland. Jackson was diagnosed four years ago on Thanksgiving weekend and we have avoided the holiday with fun time at Disneyland. We didn't go this year, which was a little weird, but it was nice looking back at how far we have come.

Jackson's oncology appointment in November went great. Dr. Robbin's was happy with how he was doing and we moved his appointments to every six weeks. We don't go back to UCSF until after Christmas. yeah!

Faith continues to do well in school. She is loving kindergarten and making lots of new friends. She makes us laugh alot.

Thank you to everyone that continues to check in on Jackson and our family. We love still reading your guestbook entries. It is always nice popping on Caringbridge to check in. Happy Holidays!

Tiffany

Read Journal History


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View personal photos

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Hospital Information:

Patient Room: Home Sweet Home!

UCSF Children's Hospital
505 Parnassus Ave.
San Francisco, CA 94143

Links:

  
http://www.caringbridge.org/visit/kathyvanriper   Our great friend
http://www.marrow.org   National Bone Marrow Donor Program


 
 

E-mail Author: jetoneil@yahoo.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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