Welcome to Jordan's Web Page. He was diagnosed with Desmoplastic Small Round Cell Tumor in October 2003 at age 12. He was treated at Connecticut Children's Medical Center by Dr Eileen Gillan who followed Dr Brian Kushner's P6 protocol. He had an extensive surgery at Sloan Kettering by Dr Michael LaQuaglia, followed by radiation, stem cell rescue and 6 months of oral chemo.
He has remained tumor free since his surgery. Unfortunately, on March 28,2006 following a routine 3 month check up, he was diagnosed with MDS, a form of leukemia which rapidly progressed to AML. He received a bone marrow transplant on June 23, 2006 from his brother at MSKCC and is currently recovering from the transplant at home after being in NY for over 4 months.
This website has been provided to keep family and friends updated about his progress.

Journal

Tuesday, October 7, 2008 6:05 PM CDT

CONGRATULATIONS JORDAN!! Today you are a 5 year survivor of DSRCT. It has been a difficult journey filled with ups and downs to say the least, but today we are filled with only happiness and gratitude to God that you are here with us, torturing us at times yes, but I suppose that's the job of a healthy teenager. We pray that you continue to beat the odds and focus on making your future as bright as possible. We love you!!
Love,
Mom, Dad, Matthew, Zachary and Emily

Links:

E-mail Author: kmfm66@sbcglobal.net

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