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me and aggie with "the beast of the east"... representin' ya'll. ;)


our senior pictures... family resemblance much?
For Doug and everyone in Iraq and overseas: COME HOME SAFE!

IMPORTANT DATES!!











~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
i have been diagnossed with eosinophilic disease, an autistic spectrum disorder, dysuautonomia, and depression/a personality disorder. here is some more information about each of those. feel free to explore the links in the table below this for more information as well.

eosinophilic disease is caused by an abnormal number of white blood cells called eosinophils in the digestive track and in other organs. it causes alot of food allergies and intolerences. i currently don't eat any of the top 8 food allergens (milk, eggs, soy, wheat, fish, shellfish, peanuts and treenuts), corn, beef or gluten. i may not need to avoid all those foods forever. i also drink an formula called elecare. i had a feeding tube in 2004 but i no longer need it. i was originally diagnossed as only having eosinophils in my colon, but in march, a livber biopsy showed that i now have them in my liver as well.
many people go about 2-4 years between onset of symptoms and diagnosis. i was diagnossed at 18 even though i had symptoms since infancy beacuse this disease was unheard of when i was a baby.

the autism spectrum is very wide. no two people with an asd are exactly alike. i fall right on the line between pdd-nos and aspergers syndrome. i also have sensory intergrations disorder, which is very common in people with asd's. i have trouble with loud noises and crowds and i love heavy pressure and heavy blankets. i sleep with a 12 pound weighted blanket.

dysautonomia is a dysfunction of the autonomic nerve system, which controls all the involuntary functions. some of those functions include heart rate, rhythem and function, blood pressure, temperature, digestion, and breathing every case of dysautonomia is different and ranges from mild to debilitating to life-threatening.
*a note about the dysautonomia: most people who have dysautonomia have a specific type, such as postural orthostatic tachycardia syndrome, nuero-cardiogenic syncope, or vaso-vagil syncope. mine doesn't have a name and is just unspecified dysautonomia. i was diagnossed by a rhumatolagist with POTS and later found to not have any specific type by my wonderful cardiologist, dr. duncan. mine is secondary to the eosinophilic disease, which means that when the eos gets worse, so does the dysautonomia*

depression and mental illness effect your thinking, mood, and personal relations, amoung other things. i receive treatment at the institute of living and the olin neurophychiatry research center in hartford, ct. like all mental illnesses, there are no difinative tests and they are diagnossed based on symptoms. one doctor might have different opinions and might say it's something compleatly different and i am just going by what my doctors have told me.


Food Allergy Network
American Partnership for Eosinophilic Disease (APFED)
Campaign Urging Research for Eosinophilic Disease (CURED)
Whole Foods Allergy Cookbook (highly recemended!)
What is an Eosinophil?
Food Allergies (from the Mayo Clinic)
Kids with Food Allergies
New England Society of Allergy
AJ's book on Eosinphilic Disease
Connecticut Asthma and Allergy - Dr. Bedard


National Dysautonomia Research Foundation (NDFR)
Dysautonomia Information Network (DINet)
NINDS page on Dysautonomia
A guide to living with Dysautonomia
Neuroscience for kids - The Autonomic Nerve System
American Heart Association - Autonomic Dysfunction
Helping friends understand Dysautonomia
But you don't LOOK sick!
Connecticut Children's Medical Center Cardiology (where I used to go)
Hartford Hospital Cardiology (where I go now)

i also have endometriosis and raynauds, but they don't effect me on a daily basis. the endometriosis used to, but i had surgery to fix it and remove my galbladder on november 19th, 2004 and i get a shot every three months to keep it at bay. the raynauds only effects me when i'm cold.
i also have had several abnormal results on bloodwork for liver function and liver problems run in my family so i am followed by a gi doctor for that.




Lucky in my bed.
August 1st 1992 - August 1st 2005

my pets... not pictured is claire the hermit crab and my female betta fish


these are pets who are no longer with us... but i still feel they deserve a space on here.



I miss you Papa.
These ribbons are in memory of my grandfather james t moynihan sr who passed away in 1999 from lung cancer


in case you can't tell, i love the red hot chili peppers :)






I adopted a cute lil'
emo fetus
from Fetusmart!
Hooray fetus!


I adopted a cute lil'
December birthstone fetus
from Fetusmart!
Hooray fetus!


I adopted a cute lil'
fairy fetus
from Fetusmart!
Hooray fetus!







*HUGS* TOTAL!
GIVE ME A HUG!

Get hugs of your own



this is so people know which doctor i'm talking about in the journal
dr. duncan - cardiologist
david vaughn - social worker
dr. rau - gynocologist
dr. stone - primary care



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prayer list
the newington police department - they've lost two officers in less than a year
elliott - he has relapsed and needs a bone marrow transplant
kat - that she can go home and stay home
johnnyray - he is back in the hospital but we hope he can come home to ct soon!
lena jay - that she continues to recover from her dystonia surgery
everyone who was effected by the hurricane
the families of xion and kent
everyone overseas especially doug, as he was deployed to kuwait recently :(

Journal

Tuesday, June 10, 2008 10:17 PM CDT

it makes me sad to say that somehow i lost access to my page sometime last fall and someone else gained access to it.

there are some strange entries that i deleted and some really weird guestbook messages that i have to go in and delete.

i'm ok and everything so dont start worrying or anything.

i started a carepage so i could keep making a journal so i'll start updating both of them now.

if you want to get updated on what's been going on, go to carepages.com and the pagename is laurenm04

but i will start updating this page again now that i have access to it again.

if anyone else is having problems with strange entries in their guestbooks or journals you should contact caringbridge.

lauren

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Hospital Information:


Institute of Living
200 Retreat Avenue
Hartford, CT 06102
(860) 545-7000
www.instituteofliving.org


Hartford Hospital
80 Seymore Street
Hartford, CT 06102
(860) 545-5000
www.harthosp.org



Links:

http://www.redsox.com   boston red sox
  
  


 

E-mail Author: AbbaRabbit@Yahoo.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent. This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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