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Welcome to Ryan's and Alyssa's Web Page. They both have Krabbe Disease and this web page is devoted to keeping friends and family updated on both our children.
Journal
Tuesday, September 22, 2015 9:02 AM CDT Hi Everyone,
I really don't know if anyone still follows this site, but I have some time so I thought I would give a brief update!!!
Everyone is doing very well!! Katie is already 16 years old and has her driving permit!! Stay off the roads!! I have no patience and am too nervous to drive with her so Bill takes her out daily! Her test is scheduled for Dec. 29th. I know what you are all thinking, SNOW!! Well it is New England and she will have to learn to drive in it. If it is really snowy, her test will be easier. All she will have to do is drive very slowly and I am sure there won't be a lot of parking and U turning in the snow!!
She is also in her Junior Year of High School which means colleges. We have scheduled a few tours with her friend and her Mom. She really doesn't know what she wants to do yet, so we are just going to look at a few different campuses!!
Ryan is doing very well. He is sooo stable! He continues to defy the odds everyday!! He is 14 years old already!! He has his therapies still at home including a retired school teacher who used to work with Alyssa! We are so grateful for her as she does the neatest things with him! Ryan can stil give us his "smiles" and grunts on a good day! These small jestures, we cherish in our hearts! The winter is coming fast so we will start his sick plan Oct. 1st as a preventative for the winter months. Please pray he gets through another winter!!
Carlton is already 3 and a half!! He is sooo tall and is mistaken for a 6 year old when we are out and about!! He has started preschool and is doing very well. The teachers tell me, he is a great friend and good listener!! We are so proud of him!!
Bill and I are also doing well and just taking each day as it comes!! We can't believe how quickly time goes by!! Please give all your children big hugs from us!!
God Bless
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