BENJI

Severe Dysautonomia
(suspected to be genetic in origin)
Severe Gastrointestinal Dysmotility
Eosiniphilic Gut Disease
Various Metabolic/Possible Mitochondrial Issues

Gastrostomy for venting
Roux en Y Jejunostomy for nutrition
Central Line (Hohn Catheter) for Hydration
Sigmoid Loop Colostomy for Bowel Management

No nutrition by mouth - Continuously fed amino acid formula (Neocate One +) through jejunostomy by pump Zevex Infinity/Zevex Enteralite) supplemented with IV Nutrition (TPN) through Central Line by pump(Curlin 4000).


Benji's Caringbridge site provides a unique way to update family and friends on Benji's overall health and progress. I have had the pleasure of meeting and making many new friends through Caringbridge; friends who continue offer support, love and prayer for our family as well as others even as they are supporting a sick child of their own. Please feel free to sign the guestbook and let us know who you are. In a neverending quest for a diagnosis, you never know what you might contribute to, or learn, from others. We love to hear from family and friends as well as make new friends. Thanks for visiting!

E-mail Author: pennycrittenden@comcast.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.