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Jason Thoennes Web Page Welcome to Jason's Web Page. It has been provided to keep people updated about Jason Thoennes and our battle with Epidermolysis Bullosa. Jason has Simplex, Dowling-Meara EB.
Journal
Sunday, March 11, 2007 0:15 AM CST It has been a long time since we've updated our journal. Jason is growing and doing wonderful. He will be seven 4/12/2007, wow how time flies. Track season is soon approaching and Jason can't wait, track is one of his favorite sports. Our lives are busy, everyone is healthy, and things are going quite well. We continue to do what we can helping other familes with EB.
Thanks to everyone for their help, support, and encouragement.
Steve, Sue, Adam, Ethan, Jason, and David Thoennes - 3/11/2007
Read Journal History
Hospital Information: Patient Room: NICU Children's Hospitals and Clinics - St. Paul 345 Smith Avenue St. Paul, MN 651 220-6210
Links: http://www.thoennesfamily.com The Thoennes Family Web Site http://www.ebkids.org Epidermolysis Bullosa Medical Research Foundation http://www.debra.org Dystrophic Epidermolysis Bullosa USA Web Site
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