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Welcome to Maxwell's Space.
It has been designed to help keep you informed of his progress and to communicate with his parents and family.
Please check the guest book, feel free to leave a note and take time to read the postings
Journal
Monday, November 17, 2008 10:58 AM CST Hello,
WOW what a weekend we had. Drama seems to find us always on Fridays and stays with us through the weekend.
Maxwells legs weren't getting better if not worse and his arms showed some slight discolor and when I got out there on Friday afternoon it looked like around his eye's were turning a slight bluish
So, we were advised to take him down to childs in Minneapolis and had him transported by ambulance cuz I was scared to drive him in his wheelchair being he turns purple when up in the chair.
But before all this was really going on, I got a call from Jim at his work and he told me that he had pulled his shoulder muscle while ....well that's a whole long story in itself but he apparently did like a partial dislocation of his shoulder.
He called to tell me this and that he was going to the ER out there and the school nurse didn't think he should drive home to our hometown ER.
After he had called I had received a call from Max's Dr.s nurse saying we should take Max in to Minneapolis ER.
I called Jim back telling him this and he figured he would drive home and stay with Spencer and that I could go and meet Max at the ER.
I was really scared and nervous being there by myself not knowing what they might find and what decision I may have to make without Jim right there.
I called my Aunt and she and my other Aunt met me at the ER to be with me for suppport and help me to understand anything that may have came up where I would shut down if I hear something that would make me upset. I'm good at that. Tell me something bad and not wanting to hear and I don't hear anything after that.
Joanne was concerned about me being there too all alone and was trying to call Scott or someone to be with me. My sister in law, Laurie had just gotten back from out of town on bussiness and was beat, Joanne wasn't able to just pack Ralph up and go otherwise she would always be there for us, but I had let her know my Aunts were going to meet me so she felt better about that.
Max came was released from the Hosp with no findings as to why he's turning purple in his legs.
So, back to the drawing board and calling all his DR.s to see what they would like to try next.
Max has no blockage any where that they could find.
Like his school PT teacher said that maybe we just have to challange his heart more and get him going again being it's been awhile since he's been up because of his TLSO not being ready and fitting just right (which never does)
Well I should get running here. I have to go out there to bring his one AFO that I forgot in my jeep the other day.
I'll let you know if Max's purpleness gets better. I told Max purple and red hair doesn't go well together so he should not turn purple (he he).
He doesn't show any signs of distress so, at least he's not in pain.
And he just talks his talk to us. OH, we did get a smile out of him Saturday when I was going to lift him off the bed and into his wheelchair.
Thanks for the prayers being sent our way for Jim and Maxwell. Very much needed right now til we figure out and get past all this stuff right now.
Lisa
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