Brianna and her friend's Julie, Latoya and Sonia at Camp Good Days!
LOVE LOVE LOVE this video...such a powerful message if you watch it all the way thru.
Welcome to Brianna's Web Site! I created it to keep family and friends updated on Brianna during her treatment for leukemia. On New Year's Eve 1998, Brianna was diagnosed with Acute Lymphocytic Leukemia (pre-b cell) when she was 6 years old. She received 2 1/2 years of combination chemotheraphy (POG 9605 protocol) and completed her treatments in July of 2001. She is now 16 years old, in remission and doing very well. She is followed at the KNOT clinic (Kids Now Off Therapy) where her Oncologist tracks her progress as an official long term survivor. This includes appointments (now only once a year!) for a complete physical, blood work and addressing any therapy related issues that may arise.
CHILDHOOD CANCER FACTS
September is Childhood Cancer Awareness Month. The Gold Ribbon has become the unifying symbol ~ The precious nature of all children and the golden flame of hope that burns brightly for childhood cancer patients, survivors, families and loved ones.
~ Cancer is the number one disease killer of children. More children die of cancer than AIDS, asthma, diabetes, cystic fibrosis, and congenital anomalies COMBINED.
~ Currently, one in every 330 children is diagnosed with cancer before their 20th birthday. On average, that is 46 children, or two classrooms of children every weekday in the USA who are diagnosed with cancer! On average, 1 in every 4 elementary schools have a child who is being treated for cancer. The average high school has 2 students who are current or former cancer patients.
~ In the USA, childhood cancer as a group is the 6th most common type of cancer. Currently more than 1 in every 900 persons between 20-45 years of age is a survivor of childhood cancer.
~ Unlike many adult cancers, the cause of the majority of childhood cancers are unknown and cannot be prevented by a lifestyle change (smoking, diet etc)
~ Because lengthy treatments interupt normal growth of children, long term side effects may include but are not limited to: learning disabilities, impaired endocrine systems, growth difficulties, fertility issues, cardiovascular disorders, dental abnormalties, bone damage, and even secondary cancers from the chemotherapy that initially cured them. It is not uncommon for patients, siblings and caretakers to have symptoms of depression or Post Tramatic Stress long after diagnosis or treatment.
~ Historically, the investment in childhood cancer research has paid dividends in understanding the basic biology of cancer, provided the principles of therapy and continued advances in treatment for adult cancers and other diseases. The first evidence that chemotherapy could be a curative of human cancer resulted from a clinical trial in children.
"YOU'RE BRAVER THAN YOU BELIEVE, STRONGER THAN YOU SEEM AND SMARTER THAN YOU THINK." - Christopher Robin
Journal
Friday, October 3, 2008 8:04 PM CDT
hmmm long time no update. I thought about it plenty of times...started one in fact but the cyber space monster ate it up. So I guess I will give a quick update of the last several months...
10th grade....she survived it and did pretty well. I would tell you her exact GPA if I remembered it..but that was months ago and my brain power is limited. Bad mommy. I believe it was 90 or slightly higher. I was proud and pleased.
Summer...way to short. We didn't do nearly the activities that we usually do. Especially camping which we love. Our buddies "the blondies" moved to the middle of no where which is very far away from here. We usually do a ton of stuff in the summer together. Really miss them. We did go white water rafting again which was alot of fun (although a bit more dangerous than last time). Brianna and Pete got tossed from the raft when we were stuck in a rapid (very scary) and Ris and I were holding on for dear life. B also volunteered again at a local hospital. One day a week she was on the adult oncology floor, another in peds and the third shift was with seniors. She enjoyed the experience but has definately decided she does not want to work in the medical field.
August brought B's sweet sixteen! On the top list of things to do that day was get her permit. So my girl is now driving. Where have the years gone....? The milestones bring such reflections.... She also went off to Camp Good Days again and loved it of course.
This school year is a tough one. She is on the swim team again and having trouble with her shoulder all season. She has tendonitis in her rotator cuff and now has to see an orthopedics specialist. She also has a dexascan scan scheduled next week (due because of the steroid treatment and to monitor the osteopenia). Her school schedule is going ok, but very tough this year. She is taking a SUPA course for college credit, plus 2 AP (advanced placement) courses. And she rejoined band after a 2 year break when it wouldn't fit in her schedule. Me, I got sick of my current job sucking the life out of me and finally decided it was time to start looking for something less stressful. I was offered and accepted a new position in the same department, just a different unit doing something different. I am hoping once I get on track that things will settle down at work a bit. If nothing else it will be a switch to a different kind of stress!
The last 6 weeks also brought on a renewed sense of HATE for cancer and chronic illnesses. My Dad's cancer relapsed after a 2 year remission from his transplant. (see link below) He has had a lot of problems with side effects from the recommended treatment to get him back into remission. He now has to receive the infusions inpatient instead of outpatient. Another loved one in our family has also been recently diagnosed with an agressive form of breast cancer. B lost another one of her friends from camp and many from my MOM's group are struggling with their kids illnesses. It is so frustrating that this beast needs to keep entering our lives :-( Even more frustrating to know that a cure (for cancer and many other diseases) is within our reach if only the funding for research could occur. Please keep our love ones in your thoughts and prayers.
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