Journal History

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Saturday, October 27, 2007 4:48 PM CDT

Well once again time waits for no one....


I trust everyone who may still pop in on Jessie is doing well! She continues to do well! The beginning of this month, actually the 4th was 6yrs off treatment!!!! That was the last time she had CHEMO!!

While we have been missing in action we taped a PSA for the RMH Charities and did a photos shoot for them as well, the pic on the top of the page is the one you should be seeing around! We were picked as the Nationwide family!! Still not really sure what it all means, except Jessie and I smiled for 9 hrs straight!!! LOL We had a great time though and as always met a great bunch of people! The RMH has meant so much to us as I have said over and over I am sure in the past you have gotten tired of hearing it... They are awesome places if you can support them please do in anyway you can!!!!

I will update again when I have more details as to when the PSA will be on the air and you will see the pics around!

As always keep Jessie in your prayers as we continue to search for her pain cure, her side continues to cause an unknown discomfort.

Much Love and tons of hugs,
Lynn

Saturday, August 11, 2007 11:25 AM CDT

Wow,
Time has a way of waiting for no one!!

Jessie has been doing Great!!!

She was away at Camp Can Do this week, it is a camp sponcered by Hershey Medical center for children who have had cancer or those who have finished treatment. This is Jessie's last year to attend as she is 6yrs out of treatment!!!!!!

You will never guess where I am writing to you from..... Hershey Medical Center.... Jessie is inpatient... While at camp she had a terrible pain in her lower back they brought her here to clinic and ran labs on her... her creatnie, was 2.6 normal is .1 or lower Jessie, as far back as I can remember has never been above 1.4 without alot of panic, so needless to say they admitted her. I am happy to report the CT scan showed nothing her count is down to 1.5 today, although she is still in pain we are headed in the right direction I believe with the kidney results. her liver numbers are perfect! As well as all of her other labs, so was this a kidney level a fluke test who knows , I do know though the pain was real, you could see it in her poor little face.... We are on the oncology wing here, I have to say my heart sank as those doors swung open and we entered that wing to go to her room... How fast those memories flood your mind, things you think you have forgotten. Then I look around at the families there, my heart so goes out to them knowing that they are in their journey not knowing where it may lead them. Please keep these families in your prayers....

I hope Jessie will soon be leaving here again, she hasn't been inpatient in over 2yrs and I tell you I have not missed this at all... As I am sure I can speak for her also! Keep her to in your prayers for it is frustrating when there is pain and no real known reason why????

For those of you who still stop by thank you!!! We love you and still continue to pray for all those we have met along this journey!

Hugs,
Jessie & her mom!

Sunday, May 13, 2007 9:34 PM CDT

Happy Mother's Day!!!

Wow does time go by quickly!!!!

Jessie is doing very well!!!

She recieved First Honors this semester in School I am VERY proud of her!!!!!

She also turned 16yrs old on May 2nd,2007 it was such a WONDERFUL day!!!! She is a beautiful young lady!!!!! I remember oh so well when she was 9 wondering how many more birthdays will she have and now she is 16 and on her way to 100!!!!! Praise God!!!!!!!

Thank you all so much for your prayers!!! Do you ever get tired of hearing that???!?!?!?!?!?! Well, I NEVER get tired of telling you that!!!!!!

I will change her pics soon to just some birthday ones!!!

Please take care and I hope you enjoyed the day to all the moms out there!!!

Hugs and MUCH love!!!!
Lynn

Tuesday, April 3, 2007 7:40 AM CDT

April 9th,2007

Hi, I hope everyone had a wonderful Easter!! We did it was quiet but very nice!

I come tonight to ask you to keep Jessie in your prayers she is not feeling well and hasn't for almost a week now. She has lower back pain, she has has x-rays and they see nothing there, she has been taling ibprophen reguarly but doesn't get any relief as well as a heating pad. The doc has now suggested physical theraphy, Jessie does not want to go..... Please pray for some relief of the pain as she cries alot with the pain. I hate when there is nothing I can do for her.....It is so sad...... Thank you for stopping by and wishing her congrads on her Anniversary this is truly an awesome celebration!!!
Hugs,
Lynn




I know, I know, It has been to long again.....

Jessie is doing really well!! The reason I am here today is to say HAPPY ANNIVERSARY!!! Today is the 6th anniversary of Jessie's Liver Transplant!!!
We are so VERY thankful for our awesome TRANSPLANT TEAM they are from AI duPont Childrens Hospital in DE.

Also never to forget the Gift of Life my sister gave to Jessie!! She donated a portion of her liver to Jess and saved her life!!! I will forever be thankful!!!
My sis is doing well and recovered within 2 weeks!! Jessie has has stuggles but is doing real well now! Her numbers at times get a bit high, but that is to keep us on our toes!!!

Hope all is well in your corner of the world!!

Once again I thank you from Colin, myself and the rest of our family for traveling this road with us and keeping us in your Prayers & thoughts daily!! We love you all and can't thank God enough for you!

Under the Grace of God,
Jessie,Lynn,Colin & family

Please remember to be an Organ donor so you to can change a life!!
Blood and Bone marrow donation is also a Awesome way to save a life!!

Saturday, January 20, 2007 8:54 PM CST

WoW!

Once again time has passed me by........

Life is good though!!!
We have passed Jessie 6YR anniversary of her diagnosis!! She still remains cancer free and feelin Great!!!!! Praise be to God!!! He sent us Awesome Doctors and an Awesome Support team!!!! And for all we are so VERY thankful!!!


Jessie will be starting her 2nd term in 10th grade this coming week and now begins her classes in nursing she is VERY excited and a bit scared but I KNOW she will do GREAT she has LOTS of hands on experience already!!!

If you read the guest book you will see that yet another child has been diagnosed with this VERY RARE form of ADULT cancer WHERE OH WHERE does it come from??????? I hope some day soon we will have all these answers........

Once again THANK YOU for 6yrs of continued Prayers and Support we could not have made it this far without all of you!!!!

Love & hugs Jessie & Her mommy!

Friday, December 1, 2006 12:38 AM CST

WOW December 1st......
Where does time go?!??!?!?!!??

I trust everyone had a pleasent Thanksgiving and are looking forward to the Christmas Holidays!

Jessie is doing well. We needed to cancel her visit to transplant clinic, because I was in Trinidad for my father-in-laws funeral... I missed Thanksgiving with my kids and family it was very difficult for me ,but I felt I to needed to support my husband during his time of grief. The kids spent it with my dad and had a great time with him cooking and enjoying there feast!


Well I will write again after her appt.

Hugs to all,
Lynn

Friday, November 17, 2006 9:07 AM CST

WOW!
Once again time has flown bye!!!!!
Jessie continues to do well!!!
Little bumps but nothing we can't handle!

I can't help but think about how thankful I am for all that has been given to Jessie and the rest of our family in form of Blessings! This Thanksgiving think of those Blessings you may be surprised how many you can count. I know I was sometime life just keeps throwing curve balls but when I think back and still today those Blessings far out way those times.

Jessie and I wish you and yours a Very Happy Thanksgiving!!!



As I was typing this entry:
I got word that my husbands dad passed away in Trinidad....... Jessie is pretty upset as she was very close to him. I have included a pic of her and him on her photo page.....Please pray for our family....


Hugs to all,

Lynn

Tuesday, October 3, 2006 8:34 AM CDT

***UPDATE***
!0/8/2006
Jesssie did ok at appt on Thursday! They are going to follow her in 3 months and did some blood work to check hormones so if I hear anything else I will update again!
Thanks for checking in!

Also some sad news our dog ran away she is about 12lb little white schnauser (not sure of spelling) Jessie is very upset........ :-(


WOW!

I truly am sorry for the delay for those who still take the time to check in.

Life in our house is always busy. With good things these days!!! I am so very thankful for that!

As I am typing I just realized tomorrow is Jessie's 5 yr annniversary off treatment!!! It's 5 yRS!!!!!! YES!!!!!! Praise God for He is GOOD!!

Jessie now has a myspace she updates I will put the address at the end of the entry so you can check it out if you like!

Jessie update: Well she has had her first mammogram and she says her last! I smiled and let her know it is only the beginning! She had a very bad case of masstitis(not sure of spelling) During exams they decided to due a ultra sound of both her breasts and then did the mammo, she has a benign sist but other then that antibiotics cleared up the infection, what brought all this on was she was VERY sore and swollen there was a bloody discharge from one nipple so off to the doc we went. We go on Thursday for a pediatric gyno appt. Hopfully we can staighten her out. I will update sooner this time.

Also when we were down for her recent clinic appt. we found out her surgeon AKA lifesaver is moving on to a new hosp. in South Dakota so looks like we will be going out west if ever Jessie is in need of surgery again! Only kidding... But we will so miss Dr Casas she is a Great doc and a wonderful friend!!! We love you Doc!!!

Well how can I thank you all for all the prayers,thoughts and kind things you have done for our family over the last 5yrs..... Please know we LOVE you and pray for all of you!!!

Big Hugs!!!
Lynn


http://www.myspace.com/smilinjessie

Sunday, August 27, 2006 7:28 PM CDT

Hello!

Well we are back on home turf!! I have to say I am SO VERY HAPPY to be back!!

Jessie is doing well. She can't wait to go back to school! She will be starting the nursing program at the Carreer Center, when she graduates in 3 yrs she will be a CNA! Her goal long term is to go to school to be an RN and then she wants to work at ST. Judes! My prayers are she is able to meet her goals!


Today is the anniversary of one of Jessie's favorite angels we miss her so much are prayers are with her family!


I will be back in a few days to let you know how some tests Jessie's having turn out, keep her in your prayers as I know you always do!

Much Love and hugs!
Lynn

Monday, July 31, 2006 6:09 PM CDT

Hello!
All is well here on the island!

Jessie is doing well!!! Maybe not drinking as she should but doing ok!

Mom is counting on the days she returns to her home!!!!!!!!

Hugs,
Lynn

Saturday, July 22, 2006 6:35 PM CDT

Hello from sunny and oh so HOT Trinidad!!!!

We are having a very nice time and all is well!!!

Can you believe that is our little Jessie in that pic?!?!??!????!??!?

Somewhere along the way she has grown up!!!

I added new pics to photo page as well! Also at the bottom of this page is a link to our dot mac acct. check out tons of pics there updated daily so keep checking back!

Hugs to all!!!

Lynn,Jessie and family!

Friday, July 21, 2006 4:31 PM CDT

Hello from Trinidad!!!!!!
We are all here in the heat of the Carribean!!! & Lovin it!!!!

We left the states on Wednesday and will return in August around the 9th!

Jessie so far is doing fine! We worried a bit about the heat and stuff but she is good!!!

We will update a bit later! But know all is well!!!

Hugs,
Lynn

Sunday, June 18, 2006 1:42 PM CDT

Hi!
Just a quick update!
Jessie is in Kentucky for the Transplant Games!
I found a photo of her there so I put it here to share with you! You can go to the web site by following the link!!
She comes home on Wednesday night!
She is competing in Bowling!

I will update later.
Hugs,
Lynn


Web Site; http://www.donorsareheroes.org/teamphilly/index.php

Friday, June 9, 2006 8:13 AM CDT

Good Morning!!!
Well we had a busy week.

Jessie went to Hershey Medical Center on Wednesday and we met with Doctor Cilley he was a wonderful man, as are ALL of Jessie's docs.(men and women that is :-) ) Anyhow, He spent alot of time with Jessie 45 minutes to be exact!!! He questioned her alot about the location and all the info on her pain. His conclusion is she is suffering from what they call RSD- Reflex Sympathetic Dystrophy, new to me... I have been reading online, yes internet doc to the rescue again, :-) Alot of what I read does point in this direction, so we shall see... Treatment he suggested chiropractor,massage theraphy & possible accupuncture LOL.. We will hold of on the needle thing till we see if the massage or other works.

Also, Kristen, our wonderful social worker for the RMH told of a study just completed at AI for this same thing RSD so I asked transplant if it were possible for someone from the study to meet with Jessie and see what they think So that is all pending for now. Jessie did FINALLY seemed relieved that some took the time and listened. YEA! Not that I myself don't think all of her docs have listened. I think they have just were't sure where to go. ALthough if you remember back they first said "functional Pain" which is very close to what we have heard. :-) So I am going to put a call into my chiropractor and see what he thinks if he would look at her.

I can't say to much ,but can I ask you to pray for Jessie she needs some extra ones right now. These past couple months have taken a real toll on her......

Jessie also leaves next Saturday to go to Kentucky for the Transplant Games!! She is very excited about this she will be competing in the Bowling Games! Good luck Jess!!!

I am going to close for now, sign in if you have a minute!
Hugs, Lynn

***Breaking News****
My oldest daughter graduates tonight!!! I am so happy for her!! She will be attending College Misercordia in the fall for Nursing!! Her Grad. pic is in the photo album!!

Thursday, June 1, 2006 5:57 AM CDT

Goodmorniing!

Just wanted to stop in to let you know how yesterday went. Dr. Cocarhan was very nice. Although Jessie wasn't as impressed. I am not sure sometimes what she is looking for... He has decided to become more aggressive with her lactose intolerance and cleaning her bowels out and also her heartburn. He has put her back on Previcid 2'x a day, mirolax once a day for 2 weeks and a new lactose drug. So we shall see. He to mentioned the "Functional Pain" but wants to try this approach first. We will return there on June 15 to see him and also Transplant clinic is held there that day so we will be seeing Dr. Dunn from AI.

School is winding down here they only have 4 more full days and 3 half days. Jessie is glad and excited for next year when she will start the nursing assistant program at our carreer center it is a difficult program but she has the power to do it!!! She has showed me over and over the strength she has when it comes to something she wants!

Next Wednesday is our appt. with the pediatric surgeon at Hershey, by request of her pediatrition so we shall see what he has to say also.. It is now 5 months we have been looking for this answer... My guess is we already got it..... Just hate to see that there is nothing you can do but deal with it....

I hope everyone had a Great holiday weekend last weekend. NEVER forget what the men and women of the arm forces have done and continue to do so we can live free and safe!

Hugs to all who stop by, sign in if you have a minute!

lynn

Tuesday, May 23, 2006 10:39 PM CDT

Hello,
Sorry for the delay...
Not much has changed around here, Jessie is still complaining of the belly pain. We see a new doc at Geisinger Medical center next Wednesday His name is Doc Cocran he is a gastro doc, new eyes maybe some new insight in how to resolve the pain. We can only pray.

Then on June 7th she is scheduled to see Doc Silly at Hershey Medical center he is a surgeon. Doc Childs her pediatrition wants her to see him. He has already left Doc know he is friends with Doc Dunn at AI duPont so he will be new eyes also...Although he spoke of nerve damage so that it may not be curable which may go right back to the "functional pain" Docs at Delaware first thought... So it may mean seeing a pain managment team to help keep it under control.

I ask you to just keep her in your prayers and pray for the docs to finally have an answer for her.

Hope all is well with you in whatever corner of the world you are in.

Hugs,
Lynn

Friday, May 5, 2006 7:32 AM CDT

Goodmorning!

WOW...

Our computer was down for a few days and I felt so lost... I check in on so many kids and wasn't able to do so.

Jessie also celebrated her 15th Birthday on Tuesday the 2nd of May!!!!! Happy Birthday Sweety!!!
She had a great day and I was so VERY thankful for yet another birthday and the hope of MANY MANY MORE to come!!!!!!


Thank you to all who signed in with wishes for her she will be thrilled!!!

She is doing good this week only came home one afternooon the rest she stayed in school! The day she came home her blood sugar was 300....she had a donut for breakfast in school.... She is good otherwise!! We wait to see what will be the next step for her belly pain...It continues to be a 4 1/2 on a 1 to 5 pain scale....


Thanks so much for stopping by!
Hugs,
Lynn

Saturday, April 29, 2006 3:03 PM CDT

HI!
I am so loving this spring weather!!!!
It is always so nice to watch the new life bloom!!!

Now to the reason you stop..

Jessie had chest pain on Thursday morning she had a chest xray and all was well, later she had shooting pain into her shoulder which was very scary to me to watch I had no idea what was happening, the docs say it is an inflamation in the muscle by her ribs and chest bone, she is taking motrine for this..Could be due to reflux which I thought they said she doesn't have......

Jessie had her Upper GI done yesterday as well as an EKG. Both test were unofficially fine. So we are still at a stand still with the belly pain, the docs will be treating her as if they are abdominal migranes... That is why she had an EKG the new medicine can effect the Q waves in her heart.

She developed a odd rash and was VERY itchy on Friday morning so she has been taking benedryl, we may need to have labs on Monday if the itching continues to make sure all is still well with her liver. So as you see sometimes there are bumps in the road. :-)


Please continue to keep our friend John in your payers we would also ask you to pray for a new friend her name is Anna she also had a liver transplant due to cancer...and her AFP which is a cancer marker for her type is on the rise which could mean a reaccurance, please keep her and her family in your prayers.

Hugs to all who stop by!
Please sign and let Jessie know you were here!!!

Lynn

Tuesday, April 25, 2006 12:42 AM CDT

Hello!

Yesterday Jessie went to Transplant clinic. They have decided to do another upperGI with a small bowel follow?!?! She will be having this done on Friday of this week so we are off to Delaware again Thursday evening. I hope we can soon give her some relief... She had me up 2 or 3 times last night complaining of this pain. They are also tossing around that this pain may be "Abdominal Migranes"?!?!?!? So we shall see....

Her pediatrician here still after yesterdays appt. feels we are dealing with a surgical issue rather then a gastric one.....Me I pray for comfort soon for Jessie it is now going into its 4th month.... Please continue your prayers for her......

Continue to also keep our friend John in your prayers.

Hugs,
Lynn

Please sign Jessie's guestbook she looks daily to see if anyone has been here.

Monday, April 17, 2006 10:51 AM CDT

***UPDATE****4/19/2006
Well the trip to CHOP was a costly and uneventful....
I am not real sure why we are getting or looking for a second oppinion... The docs don't go against each other, I knew as soon as this one called our doc from Delaware by her first name, things would not be any different. I don't want you to think we don't trust our AI docs cause we do they are a Wonderful team of docs, Jessie's primary just seems to think we need to do more for her so he is looking for someone who will just take another look.
He asked us if we want to try Hershey... I want to , but Jessie looked so sad yesterday when yet another doc brushed her off....They don't see it in her face.... So we are in the thinking process right now, not to sure what we will do next, she went to school today , says she doesn't know if she will stay... I make her stay even though it breaks my heart... Please continue to keep her in your prayers.
Lynn

Good Morning!

It is my prayer that you all had a Wonderful Easter Holiday!

Jessie is doing ok..... She continues to have a pain in her stomach, still ongoing from the end of January. She has been back to our primary 3 times now ... She is now experiencing shortness of breath and dizziness... So our doc has asked us to get a 2nd opinion so we are schedule to go tomorrow to CHOP, Children's Hospital of Philadelphia, to meet with one of there top docs in I believe surgery. So we shall see what they think...... I just pray we find an answer soon....
Her docs in Delaware think she has what they call "Functional Abdominal Pain", which is the nerves in the stomach are very sensitive and this is just something she will have to deal with...I so hope they are wrong....

Our friend John is doing so much better please keep those prayers going!!! They are working!!!

Hugs to you all I will update when we get home tomorrow!
The pic above is Jessie yesterday in church! She is growing up so fast!! Her 15th birthday isn't long away. May2nd!!!!God is good!!!!

Hugs,
Lynn

Please if you take the time to stop by say Hello! Jessie loves to know people check up on her!

Sunday, April 2, 2006 10:49 PM CDT

Hi!

In just a few minutes eastern time it will be April 3rd 2006, for those of you who may not remember it will be 5 YEARS POST TRANSPLANT for Jessie!!! She is truely excited about reaching this milestone!!!

Praise our Truly AWESOME GOD!!!!

As you know we could not have gotten this far with out the Gift of Love and Life my sister Tracie gave to Jessie!!!! We will forever be thankful to her and our AWESOME Transplant team! Life is Good!

As most of you have probably seen on TV the story about prayers?!?!?!? They have no idea what they are talking about I have living in my home a walking, talking, true miracle and answer to OH so many prayers!!! Thank you so much for your faithfulness to Jessie and all her family we would not have been able to get through all this with out all of you and the MANY MANY MANY prayers that have been said and answered!!! I thank you from the bottom of my heart!

Now for Jessie...she is is still having her belly pain....This all started the end of January....thats a long time to feel discomfort.....We did all the med changes....and we are almost 2 weeks into the change....She goes back to clinic on the 24th...So we shall see.....This weekend she had some shortness of breath but it only happened and went away so I will let the doc know tomorrow....

Continue to keep our friend John in your prayers he is doing much better thanks to ALL THE PRAYERS!! keep them goin!

Thanks & Hugs,
Lynn A VERY Lucky MOM!!!

Thursday, March 23, 2006 6:41 AM CST

Goodmorning!

Again, I want to say Thank you for your thoughts and prayers during our recent scare.....

Jessie didn't go to school yesterday...but did go today, pray for her strength this has really taken a toll on her...

We have yet to get to the source of the belly pain, like I mentioned before we are going to try diet on our end since that is all we can do.. They have changed some of her meds so we will see what happens..... Her Rapamune she takes for rejection can cause some belly discomfort so we have changed that to night time when her belly should be full and see if it makes a difference. My dad and I were talking about if it were food or meds that she takes on a daily basis it might be that... So transplant suggested trying the rapa,instead of the morning on an empty belly try it at night on a full belly, if this is it YES!!! and why didn't we think of that 1,000 tests ago :-) It will just be good for Jessie to get the relief.

Jessie and I have had a long chat about all this. She seems ok in trying some different approaches since we believe there can't possibly be another test she can do....


Please continue to lift our friend John up in your prayers and his family.. As some of you who visit here know all to well the emotional rollercoaster we travel on.

Many hugs,
Lynn a very lucky and thankful mom!

Thursday, March 23, 2006 6:41 AM CST

Goodmorning!

Again, I want to say Thank you for your thoughts and prayers during our recent scare.....

Jessie didn't go to school yesterday...but did go today, pray for her strength this has really taken a toll on her...

We have yet to get to the source of the belly pain, like I mentioned before we are going to try diet on our end since that is all we can do.. They have changed some of her meds so we will see what happens..... Her Rapamune she takes for rejection can cause some belly discomfort so we have changed that to night time when her belly should be full and see if it makes a difference. My dad and I were talking about if it were food or meds that she takes on a daily basis it might be that... So transplant suggested trying the rapa,instead of the morning on an empty belly try it at night on a full belly, if this is it YES!!! and why didn't we think of that 1,000 tests ago :-) It will just be good for Jessie to get the relief.

Jessie and I have had a long chat about all this. She seems ok in trying some different approaches since we believe there can't possibly be another test she can do....


Please continue to lift our friend John up in your prayers and his family.. As some of you who visit here know all to well the emotional rollercoaster we travel on.

Many hugs,
Lynn a very lucky and thankful mom!

Tuesday, March 21, 2006 8:29 PM CST

Sorry for the delay...
Computer at RMH would not let me update for some reason...

Well the rollercoaster ride is over... The nodules are GONE!!!!! One is completely gone and the other 2 are fading...seems to have been the microplasm pnemonia, We are so thankful for all the thoughts and prayers...this ride is so rough and I wonder sometimes does it end?!?!?!

She also had her belly emptying test today and that like all the others show nothing......Jessie is sooooooooooooo down.... She just wants the pain to go away.... The GI doc told her today maybe it is all in her head??????? She is very weepy says it is not in her head it is in her belly....Please pray for relief of this pain or for Jessie to try to think of other things....They want her to return to school tomorrow she doesn't feel she can....Whats a mom to do.....So we need to now step back and regroup and I will have to try and get her mind on other things... We have decided we would now try her diet, she isn't a bad eater ,but not a real good one either... She is willing at this point to try anything.

Thanks so much for holding us in your thoughts and prayers during this recent scare. I tell you we were all scared even the docs thats what made it worse. Now to recover and move on.

Please keep a dear family we know in your thoughts and prayers John had a liver transplant last week and is coming along but needs to be kept in your prayers.

Thanks and Many hugs,
Lynn a very relieved mom.

Sunday, March 12, 2006 8:17 AM CST

Good Morning!

Jessie cntinues to get over this bought with pnemonia. She is still complaining about Belly pain and has some nasty mouth sores..................

We have a date for the lung byopsies it will be on March 20th @1pm in the afternoon. Please lift Jessie in prayer at this time. Did you know if and only if this is cancer again it will be a new form nothing to do with her last cancer....I can't even imagine.....They are also worried about the section of her belly wall that is thick....They may rescope her when she is under for the other test. The byopsies that were done during her last scope have yet to come back except to say she is lactose intollerant..

Next month on the 3rd will be Jessie's 5yr Transplant anniversary!!!!!!!! Thanks to my sister Jessie had the "Gift of Life"!!!!

Well we are off to church! I will keep you updated as I know more.

Jessie is going to try to get back to school this week I am not sure how I feel about that! Just want her healthy for March 20th.....

Love and hugs to all who visit!
Thanks for the ongoing prayers,
Lynn

Tuesday, March 7, 2006 10:10 PM CST

Hello,

We are home......and the waiting begins....

Because of Jessie's pnemonia they are unable to perform the byopsies....So the week of the 20th she will be rescanned "CT" and then the following day she will have the procedure to check out what the nodules are.

We haven't gotten the byopsies back yet of her stomach taken last week. The reason we await these is because her stomach wall has a portion that is "Thick" so we need to know why..... One test from her belly came back and told us she is lactose intollerent so she heeds to be careful with dairy.

She is still unable to return to school we need her healthy. To find out about her lungs. She is ok about it all. Worried but ok.... Mom basket case :-} We hope to be able to send her next week as long as she wears a mask.

Thank you for your thoughts and prayers and as I hear things I will let you all know.

Many Hugs,
Lynn

Saturday, March 4, 2006 7:03 AM CST

Goodmorning!

I am going to keep this short for now.....

Jessie's test went ok.....
She also had a CT scan added at the last minute.... I am sad to say...we have 3 nodules on her lungs.....we are not sure at this time what they may be...because of her history they will be going in surgically to check them out.
We have done all of the easy things to see if that is what they may be all have come out ok.....so we need to do the other.... hopefully by the end of the day today I will know the game plan as it changes often... She has been inpatient since Thursday here in Delaware, we may escape today for a few days but we will be back here on Wednesday as it stands right now. Like I said I will update as the day goes on. Did I mention she now also has pneumonia?

I promise to come back soon and update with all details…

Please pray for Jessie as she is very sad about all that is going on…. She wanted an answer for her belly pain…..not all this and by the way we still don’t know what is causing the pain……


Hugs & prayers,
Lynn a very concerned and yes scared mom…..

Saturday, March 4, 2006 7:03 AM CST

Goodmorning!

I am going to keep this short for now.....

Jessie's test went ok.....
She also had a CT scan added at the last minute.... I am sad to say...we have 3 nodules on her lungs.....we are not sure at this time what they may be...because of her history they will be going in surgically to check them out.
We have done all of the easy things to see if that is what they may be all have come out ok.....so we need to do the other.... hopefully by the end of the day today I will know the game plan as it changes often... She has been inpatient since Thursday here in Delaware, we may escape today for a few days but we will be back here on Wednesday as it stands right now. Like I said I will update as the day goes on. Did I mention she now also has pneumonia?

I promise to come back soon and update with all details…

Please pray for Jessie as she is very sad about all that is going on…. She wanted an answer for her belly pain…..not all this and by the way we still don’t know what is causing the pain……


Hugs & prayers,
Lynn a very concerned and yes scared mom…..

Monday, February 27, 2006 8:34 AM CST

***UPDATE***
2/28/2006
We will be leaving today when Jessie returns from school to head to Delaware she we have pre-op testing early tomorrow, then she will have a endoscope on Thursday morning. Please pray they find what's going on and we can treat it simply and move on. Thanks for the prayers!



GoodMorning!

Well once again it has been awhile...... Wish I could report things have been quiet....
Jessie is doing ok, yes just ok.... She has been complaining about an odd pain in her stomach for close to 4 weeks now. We have been running all over trying to give her an answer to why it hurts...We still have no idea... Her pain is in the center of her stomach area right under her scar. She has had 2 ulta sounds, and a ct scan with dye and contrast, also a just a plain xray, still nothing shows why??? We went to clinic on Monday the 20th and she had her labs done, we were on our way home and were called back her liver numbers were way out of wack even for Jessie... So she had yet another ulta sound Monday night this time of her liver alone all looked good, so she was scheduled for a liver byopsy, mom's most feared procedure, all has gone well so far, it did show that her liver had some toxcicity but NO sign of rejection. So where does this leave us.... They have dicontinued her Nexium since this can be hard on her liver and have put her back on zantac and mylanta as needed. We started this on Friday, to say the least it hasn't been a good weekend....She has horrible heartburn once again and the pain is STILL there.... It is so hard to not be able to fix something... She feels we don't believe her and that is so far from the truth we are all going crazy trying to figure out how to give her relief. She is missing school and worring about making up her work. The pain in her stomach hurts most when she takes deep breaths or when she lays down on her back. They truely have tested all things, so now the plan is to go down with a scope to check it all out so hopefuly we will have an answer for her. Keep her in your prayers as I know you always do. I try to keep it positive but sometimes this old mom just fails.....


On a Happier note! Jessie helped with our local cancer telethon this weekend! She did the tote board and spoke a on TV she really did enjoy herself and it took her mind off things! Sometimes I think she thinks to much... So this was good for her!!! they raised over $110,000.00 so that was good for our small town! Although I thought about it I know Jessie's bill was over that....So in the large pic we need lots more money for research!

Again, Thank you for stopping by and saying a prayer for Jessie,keeping in mind also all the other children who continue there battles against all illnesses..

We pray for each of you each day!
Many hugs,
Lynn

Saturday, January 28, 2006 8:46 PM CST

Hi,
Picture on top is of Jessie with her new quilt!! She recieved it from The Quilting Angels! It is Beautiful & she loves it!!! Of course it is purple!!!

We will update with in a day or so.
Please know all is well!!!!

Lynn

Friday, December 30, 2005 12:07 AM CST

Hello!
Well the day everyone plans for, for so long is again behind us.... Although the true meaning of Christmas stays with us always through good times and bad!

Jessie went to clinic yesterday for her diabeties. Things look good her a1c number has dropped to 6 form 8 so she is considered under control! Her liver numbers also look Great so into the New Year we go with a very Happy Bang!!

As this month approaches it will be 5 yrs as of the 13th since Jessie's diagnosis.. We have learned alot these past 5 yrs somethings I am grateful for other things I would have liked to have left unknown. For whatever reason we have been sent on this journey we have become a better family because it. You learn to care more and cherish each and every moment of every day. Remember to hug your family and friends keep them close and always tell them how much you appreciate and love them!

May this New Year bring you Blessings and the desire to be a caring friend to all!

Hugs & Prayers for you always!
Lynn

Friday, December 16, 2005 8:10 AM CST

Good Morning!

Sorry for delay once again in updating time goes by so quickley.

Jessie continues to do well!! She had clinic on the 5th of this month and all was well! Her liver enzymes are on the upward swing again ,so we are to do labs in the next couple days.

We were going to go to the Lighting of the Ronald McDonald house last night but our area had a nasty storm so we stayed put,she was going to have labs drawn there also so now in the next few days we will have them done here.

We attended the Christmas Party in Delaware for the transplant kids and their families, we had a wonderful time! The pic on the top of this page is Jessie at the party!

My thoughts and prayers are with each of you this Christmas Season, I have been having a rough go at it, my mom has been gone for 3yrs now and it is not getting any easier..... My prayers are with everyone who has lost a loved one, it really never does seem to get easier...

On a Brighter note! Please enjoy this Christmas season remember the true meaning of it! Hug you Kids and all your family share a smile with a stranger, be Happy!

Many hugs and MUCH love to all,
Lynn & Jessie

Wednesday, November 23, 2005 10:05 AM CST

Hello!

Happy Thanksgiving!!!

When I came here to write my mind was racing with things to say...

I am so VERY Thankful for my family, my friends, Jessie's doctors and nurses we just wouldn't be here today if it weren't for the Prayers, thoughts, hugs and tears.

Jessie is feeling good. Not 100ut she is doing good! She continues to monitor her sugars and take insuline when needed. She goes to transplant clinic on Dec.5th, it has been 2 months longest it has been since transplant. I hope we can soon push it out even further!

Please keep all of the children and their families in your prayers this holiday season there are lots who need the comfort.

Jessie got her report card and did well! I am so glad she enjoys school! Just a quick note Her sister Brittny whose senior pic is on the photo page, made Highest honors I am so proud of her and Jessie's brother Darrin made first honors!!! I am so proud of ALL my kids and so VERY Thankful for each one of them!!!

Have a Great Holiday!
Much love and many hugs,
Lynn

Wednesday, November 2, 2005 9:15 AM CST

Goodmorning,

Once again sorry for delay. Things here are good! Like they say no news is good news!

Jessie had labs drawn last week and they look good, even with the lowering of her anti-rejection drugs. So that is a good thing!

She continues monitoring her blood sugar taking insuline if over 150 and at meals to cover her carb intake, anything over 30 carbs she takes 1 unit to cover it. She is doing well with this. Although Halloween candy has ALOT of sugar we saw just how much she ATE when her test came back at 200... SHe has been in the low 100 and as low as 87 so that was a high one for her... How do you keep candy away...... I know be tough...but i am a whimp.. :-( Please don't panic I am tough with her when it comes to the seriousness of blood sugar levels.

Hard for me to believe we are in November... I am not sure I told you but my birthday was in October, and my hubby surprised me with a weekend in Miami!! It was so nice all the kids knew where I was going no one told me, so I knew I was off to the beach and up here it is cold there now so needless to say I packed all warm clothes.... Didn't need them at all.... He told me where we were going only when we got to the airport... It was a beautiful get away we had an awesome time. I of course grounded all my kids for keeping secrets from mommy!!!! Only kidding they are a GREAT bunch of kids!! Thanks for the birthday surprise!!!


Thanks to all of you who continue to visit Jessie's page she checks everyday for entries in her guest book, please take a second and say hi!

Love & prayers to you all!!!

Lynn

Saturday, October 8, 2005 10:38 PM CDT

Hello!

Well the reason you come by! Jessie is doing ok. She is handling her new situation like she handles all else with a smile! She is still currently taking the insulin at bedtime, checking her blood sugar 1hr after each meal and first thing in the am. We are up to 10units of insulin. Whe we return on Thursday the 13th she will be educated on the short acting insulin. This will be given after counting all her carbs then eating and taking the dose required to cover the meal. Seems doable with a bit of time. She really is very comfortable with the whole thing. God Bless her she is trooper.

While we were in Delaware this past time she had a VERY special visitor! Her councelor from Camp Cando! Thank you so much Illana for stopping by it MEANT SO very MUCH to Jessie and even me! I LOVE to see Jessie smile and feel good about herself! Thank you!

Well the day has passed.. JESSIE IS OFF TREATMENT 4YRS!!!!!! Praise God!!!!! I am so very thankful for all HE has done in her life and for the lessons learned. I wasn't able to convince anyone to do 4yr scans so I leave it in the Lord's hands as I have all along. ALL of you to have played a very important part in this Journey, through thoughts prayers and support we can't ever thank you enough. Her doctors and nurses where would she be without all of you?!?!?!?!? You are the BEST!!!!

As you may know Jessie was a fosterchild before we adopted her. Well we had a WONDERFUL social worker, Her name is Marnie, we have kept in touch over the years. I recieved an email from her today she is due with her second baby and found out the little guy has a serious heart problem and will need surgery shortly after he is born. I ask you that you please keep the Georges family in your prayers. We all know the power of prayer! Please storm heaven on their behalf!

Thank you all so much for stopping by.
Many hugs and much love,
Lynn

Jessie has a new email address on the bottom. Why not send her some email!!!

Wednesday, September 28, 2005 9:23 AM CDT

GoodMorning!

Wow is it good to be back home!?!?!??!!!

Jessie is doing ok. She could use some words of encouragement... She is on insulin at bedtime and will soon be starting the carb counting and insuline before each meal. Her blood sugars are just to high to ignore. She is down a bit because she really thought things were better!! Just a little set back. But, Hey next week on October 4th!!!! Jessie will be 4yrs OFF treatment!!!!!!! We are so very thankful for all your prayers and support through the years!!!!

I spoke to the doc about my concern for cancer and he told me it was very unlikely... So they will do no scans for her 4th yr. We are considered finished unless she becomes symptimatic.......


A quick note about my brother: he is off chemo and back to work. I will let you know what follow up scans look like when they take place I think it is the end of October. By the way does anyone know what happened to the month of September?!?!??!??!?! Wow the days just keep moving on!

Many hugs to all who check in!
Lynn

ps Jessie asked me to please get on today and change the colors of her page!!!!! They really are ugly to say the least.

Tuesday, September 20, 2005 8:31 AM CDT

Hello from Trinadad!

I am sorry I didn't update sooner...Jessie's
great-grandmother passed away, so we rushed out on Saturday morning to come to be with my mother in law.


Jessie did go to her appt. on Friday morning. The doc is treating her for Stage 1 Diabeties even though he is not convinced that it is it. He feels it is probably her meds causing the rise in her sugar. The prograf she is on can do that....She is presently taking Lantus insulin just at bed time.

I will update later with other news when I get back to the states. Which is not till Saturday. For now all is well.

When I called home all is going smoothly Thanks to my dad!! He is caring for the 6 kids!


Love to all,
Lynn

Monday, September 12, 2005 6:30 AM CDT

*@*@**@*@*@**@**@*
It is Wednesday night...9/14/05
Jessie will be seen on Friday morning by Dr. Doyle... They are trying to figure why the onset of the diabetes... We haven't been able to come up with any real answer sooooo ....Well as you know in the past I play internet doctor...as I am sure we all do when we are worried.. I looked up pancreatic cancer and well let just say I didn't like what I read. Can I ask that you please keep Jessie in extra prayer as this is NOT a road we wish to travel. I will update as soon as I know more...



GoodMorning!

Jessie is doing well and Lovin High School!!! I am so glad!!

Last Friday we had a neurology appt at AI in Delaware, an appt. I forgot about..... Good news there though she has been seizure free so they discharged her!!! Still have to watch her for 3months, but should be fine!

Well I suppose Jessie didn't want to cut down a doc so we in exchange for that one have now added an Endriconologist to her list! Jessie sugar level was 285 and another test they ran I think it was a HG1 was 8 it is supposed to be 5, this shows how her insulin is working. She is now under the care of Dr. Doyle for this issue. So on Friday we picked up a accu-check so we can check am blood sugars.. Friday night before bed she was complaining of a headache so I tested her and it was 405 WOW normal between 90to 110.... So Sat am it was 269, Sunday 181 and this morning 224, so now we just wait and see what all this means...

We pray all of you are doing well!! The last couple weeks have been rough for our country with Katrina and the rememberance of 9/11, please pray for OUR country!

Hugs & Prayers,
Lynn

Tuesday, August 30, 2005 10:28 AM CDT

GoodMorning!

WOW, Jessie is off to high school today! 9th Grade! It is hard for me to believe, I am so Thankful!!!
She was a bit scared but, she will do fine after all she has weathered this is a piece of cake!

She went to Camp Cando as I said before and truly enjoyed herself and can not wait till next summer to return! We also had her annual Oncology appt. and all is well!!! So one more year and we are officially discharged! October 4th will be 4yrs of treatment! I haven't gotten anyone to repeat her yearly scan, due to increase risk in cancer, so we will have Faith all is well! They will check if she becomes symptomatic.......

Well lets see this year I have a senior in high school, my "kids" are getting so old!! I have 2 juniors and a sophmore and a freshmen so 5 in high school and a third grader!!! I am so thankful to have good kids! They try hard and do well!!

As always I ask you continue to pray for those who are battling illness and for those parents who are left behind.

Thanks so much for signing in! We pray for you all daily!
Many hugs,
Lynn

Monday, August 15, 2005 11:17 AM CDT

Hi!

Thanks so much for taking time to sign in! Jessie really enjoys reading your entries! I tell her though I am just as bad, if I visit a page and all is well I go on, but those kids are important to, so she has told me if I visit I must say hello! My orders from my boss! :-)

I stopped by a page of a young lady we came to know and really love here at caringbridges, she has passed on, but her daddy keeps the site going. He spoke today about getting ready for school and how he no longer needs to do those things. I know back when Jessie was really struggling things took on a different meaning, now that things are stable,I forget and I complain. We all need to think about and be SO VERY GRATEFUL for what we have and the Blessings we recieve! I can't say I will never complain again, but I do hope I will stop and Thank God for ALL my Blessings. I have 6 kids to ready for school.....Thank you God for each and everyone one of them!

Jessie is away at Camp Cando this week, she left yesterday. This is a camp sponcered by the American Cancer Society, she attends through Hershey Medical Center, it is a beautiful camp! Next year will be her last year elegible to attend. You are able to attend till you are 5 yrs out of treatment. In October the 4th to be exact she will be 4yrs out of treatment!! Yes!!!!!! She has her yearly oncology appt. on the 24th of August.

Jessie went to the Transplant camp in West Virginia and she loved it wants to go back again! She has had a good summer she was able to attend 3 different camps! As I have said before she is excited for school to begin on Aug. 30th, 9th grade at our high school!! WOW!

Please take a moment and Thank God for your many Blessings, pray for the families with ill children and those who have lost there children. It means alot to all!

Hugs and much love for your continued support.
Lynn

My brother continues to do well. Scans are soon please keep him in your thoughts and prayers. Thank You

Saturday, August 6, 2005 7:10 AM CDT

Goodmorning!

Thanks so much for stopping by! If you have a minute please sign the guest book, Jessie really does enjoy reading her messages.

She had clinic on Thursday and all is good for Jessie! They are Jessie's normals!!! We are so happy we made 2months without blood work! Her creatine was 1.2 and blood sugar 152(fasting) so we need to work on those a bit. She looks great and feels great and for that I am so thankful!

She left on Friday for West Virgina for Transplant Camp it sounds wonderful and I am sure she is having a great time! She comes back home on Monday! Then the 14th she is off to Camp Cando! She starts school on the 3oth and she is so excited to begin her high school years...I am scared, why not really sure!

My three other girls have been in Texas since July 12th they return today I am so excited I really missed them, when you are used to 6 kids and then for a month only have 3 seems so quite... My boys will also return today from our church camp this is the second time they went this summer they really enjoyed it! I am so glad for them!! So come this Tuesday morning we will all be back together!!!! I can't wait to hear all the confusion once again I so missed it! Silly huh Should have enjoyed the peace and quiet....but to me it was deafening!

Please keep all the children in your prayers there are so many who really need your prayers!

My brother is doing fine, thank you for your continued prayers.

Many hugs to all,
Lynn

Sunday, July 24, 2005 10:00 PM CDT

Hello!

WOW! It has been a long time!

Jessie is doing GREAT! Praise God!

She attended camp and really enjoyed herself! Which I am so thankful for she needed to get away. She will be going to West Virginia Aug. 5th for a Transplant camp she is so looking forward to it! Then on Aug. 14th she is off to Camp Cando in Hershey! This is a camp for kids in treatment or finished with treatment for cancer, she will be able attend this year and then next and then she will be 5yrs out and won't qualify!! YEA!!!!! So I told her go and enjoy herself it includes a day at Hershey park!!!

Summer is going by so quickley to me. My other 3 daughters are in Texas and will return on Aug. 4th they have been gone since July 12th I really do miss them so we are half a family seems strange with only 3 kids... Can't wait till we are all back together!

My brother is doing ok. They stopped his IV Chemo because he had a side effect on numbing hands and feet and that is not one they like him to have, so he continues the meds(pills) and will for 3 more cycles and then he will have CLEAR scans. Thank you for keeping him and his family in your prayers please continue to do so!

We also would ask you to keep a special little friend of ours in your prayers his name is Max and his daddy works with Jessie's daddy, he is I beleive 3 yrs old and has leukemia, he is in treatment and is doing well , but I ask you pray for him and his parents as we all know what a difficult rode we travel.

Many hugs and prayers to each of you who still check on our Miracle Girl! We love you,
Lynn

Monday, June 27, 2005 8:23 AM CDT

GoodMorning!

Things here are going smoothly!

Jessie had clinic on the 13th and all is "Jessie normal" so they asked for blood work here in July and they won't see her till Aug.4th wow 2 months!!! I am so thankful to be moving further out!

Jess will be going to our church camp on July 10th she is looking forward to it!! My youngest who is 8yrs is there this week hope she is doing ok I know I am not...... :-( She has never been away from home.. Jessie will also be going to a Transplant camp in Aug. in West Virginia she is also quite excited about that.

Sorry about the lack of updates on my brother... HE is doing well completed his 5th round of the IV chemo it really makes him sensitive to cold weird stuff those drugs do.....Thankful though they are out there. He has 3 more IV rounds to go. Continue to keep him in your prayers as well as his family.
I had my colonoscopy done a week or so ago and all is clear! So the doc said i needn't come back for 5yrs glad for that!

I hope everyone is enjoying there summer!
Many hugs to you all & love and prayers!
Lynn

Friday, June 3, 2005 12:51 AM CDT

Hello!!!

Wow it is almost a whole month since I wrote.... sorry about that...Although I am sure if you know me you know if there was something going on this is the first place I run, to get the prayers started!

Jessie is doing good, battling a bit of a cold, but we can handle that! She is almost done with 8th grade one more week , 5 more days, she says! Today she is at Dorney PArk for her school field trip, it is raining but she called a little while ago and said she is still having fun!!!

This weekend is our Relay for Life! Jessie is doing the Survivor lap with my dad, brother and a very close friend, Ruth, That lap to me is s awesome!

Thanks so much for stopping in, we go to clinic on June 13th! So I will update then if not before!!

Much love and hugs to all,
Lynn

Tuesday, May 10, 2005 7:20 AM CDT

Good Morning!

Sorry I am late with wishes for a Happy Mother's Day! I trust all had a great day! My day was fantastic! My kids make me so very proud they are so sweet and caring!

Jessie had clinic last Thursday and all went well! She doesn't go back till June 13th!

We attended the ribbon cutting for the new wing at the RMH it is awesome! It even has a movie theater in the basement! It has gone from a 24 room house to a 50 room house it is huge! Mixed emotions, so Happy to have such a beautiful place to call "home away from home" So sad we need such a big house so many kids in need of care....and to think this is only one of many...I am so thankful for all who donated to our house!!! Our church is now doing a drive for supplies Jessie will be thrilled to take it to them! She really loves her extended family!


Today is my brother's 3rd round of the IV chemo, he is half way there. Thank you so much for keeping him and his family in your prayers it means so much to me as I am sure it does to him! Today is his wife's birthday! Happy Birthday Lori!!!

Once again thank you so much for Jessie's birthday wishes she wanted me to make sure I told all of you!!!
Take care and I will be back again. Please know even if I don't update I visit sites everyday and pray continuously for all of you!

Love and many Hugs,

Lynn

Monday, May 2, 2005 10:55 AM CDT

This is short!!

but,

This wish is big!!!!


HAPPY 14th BIRTHDAY SWEET Jessie!!!!!

All is well here, clinic on Thursday will update then!

Thanks for all the wishes in the guest book! I can't wait till she gets home from school!

Hugs,Lynn

Monday, April 25, 2005 9:20 AM CDT

Goodmorning!!

Sorry it has been awhile.... All is well here!!
Jessie is feeling pretty good! Some complaints about heartburn and her hip hurting,but all in all she is doing GREAT!!! She had blood levels done last week and all is Jessie's norm. We go to clinic again on the 5th of May, we changed are date so we could be at the Ronald Mcdonald House for the ribbon cutting they have added on to the house it looks beautiful!

My daughters and I attended a Women's retreat this past weekend it was a wonderful experience! I shared a bit of Jessie's story, 4yrs ago when this journey began these same women prayed for Jessie and I wanted them to see how prayers have been answered I beleive they enjoyed meeting her. When I was preparing what I would say I asked Jessie for her favorite bible verse and without hesitation she told me Jeremiah 29:11, wow I have to admit I didn't really know she had a verse she was so sure of. I will share it with you, Jeremiah 29:11, For I know the plans I have for you, declares the Lord,"plans to prosper you and not harm you, plans to give you hope and a future. Wow I was so impressed that she seemed to pick a verse that so fit her! I asked here how did she ever find such a verse and she told me that Miss Ruth had included it in her bible she recieved for confirmation! I think it is an awesome verse! Thank you Miss Ruth!

Next Monday May 2nd is Jessie's 14th Birthday!!! WOW!! My little girl is becoming such a little lady!!! Our address is at the bottom of the page if you would like to send her birthday wishes, she would like that I am sure!


News on my brother: he continues to do ok. He is a bit tired, and the chemo makes him real sensitive to cold for the first 48 to 72 hrs, he gets a electric shock kinda if he touches something cold......he is through 2 round 4 more to go..Please continue to to lift him and his family in prayer!

Love and prayers to all who stop by!
Hugs,
Lynn

WOW! I just noticed we are almost at 50,000 visitors! So many caring people! Let us know if you are the 50,000!!!! Thank you so much for visiting!!!

Sunday 4/03/2001!!

This is a day I will live to ever be THANKFUL for the GIFT OF LIFE Jessica received from my sister! It is so amazing to me what a difference 4 yrs has made! I really wanted to put up a collage of pics, but illiterate me can't get it to work..lol.. So if I get it together I will post it!
I ask that if you are not an organ donor on your license that you truly consider it! It is a life saving choice you can make for so many people!! Today you can help by donating blood, platelets and bone marrow, contact your local Red Cross I am sure they can direct you to the right places! Again, as I have said many times THANK you from the bottom of my heart for all your prayers, thoughts and gestures throughout this Wonderful Journey! Although it hasn't always been wonderful it has been a Blessing to get to meet so many people along the way! So please join with me in singing: Happy Anniversary to you, Happy Anniversary to you, Happy Anniversary dear Jessie and Tracie! Happy Anniversary to you!!!!!!! Be glad I don't have sound..lol.!!!!

Love & Many hugs to you all!!!
Lynn


ps
Happy Birthday Kristen!!!!!!!
Hello!

Wednesday, March 30, 2005

I hope everyone had a Blessed Easter! I know I did, as you can see on the top of this page, my children I am so VERY blessed to have each and everyone of them!!! They are my reason for breathing! I am so proud of them!!!


As you know Jessie and I returned from Deleware this afternoon. Monday she saw transplant they were happy with her, her numbers are on the high side but Jessie's normal... Today they told me that even though we always say "Jessie's normal" we need to soon check out why they are so high...So back to one of my favorites a liver byopsy... Good news we will probably wait till school is finished. Otherwise she looks good to them.

Next was her eye exam, She did fine there also her eyes looked good! After all the worry.. doc thinks maybe the Tylenol 3 (codiene) may have dialated her eyes...hhmmm Well the doc checked out her lazy eye and says not much can be done that kids with lazy eye can have them go straight back like Jessie's is doing now...So when Jess thinks she might want to do surgery they can but say it is only 70 percent sure it will work so I think that is on the back burner for awhile.

Then today... Well Jessie went to hospital at 7:30 was taken into the OR at about 9:10 was a bit of a wait... She was funny under the verset though.... Kept telling me it wasn't working but couldn't keep her eyes open or her head up... Anyway the doc tells me about a half hour. So in 35 minutes I was ready to pace... then in 50 minutes someone might have to control me..lol... well in 60 min. he came out guess he could hear my thoughts. He had trouble getting through to Jessie's belly but did after a bit, Now here comes some spelling..that is what Caringbridge needs a spell checker..lol..Esophagas is clear YEA!!! Now the belly it seems that she has a few ulcerations and alot of red sore spots.....So they took byopsies and we will know more in 2 to 3 weeks, I will need a wig by then. :-)
She is to remain on her meds now till we hear the path reports. So keep those prayers a flyin!

Please remember how much each one of you mean to Jessie and I! With out your support where would we be?

As for my Bro he started his chemo on Tuesday and for now is feeling ok. I think I wrote to say before he will have a 2hr iv every three weeks and take 10 pills a day for 14 days and be off a week in between this will go on for 6 months. Please keep his family and him in your prayers. I finally got a pic of all of them from Easter check it out on the pic page. Again from the bottom of my heart THANK YOU!!

Many Hugs,
Lynn

Wednesday, March 23, 2005 7:02 AM CST

***UPDATE*** 3/24/05
We will be leaving for DE on Sunday afternoon and returning on Wednesday night... Jessie will have her scope on Wednesday. So she will have her appts. Monday and then preop testing Tuesday & scope on Wednesday. Keep her in your prayers.

Hope you all have a nice Easter!



Good Morning!

Happy Easter!

Jessie is home and back to school!!

The final finding were a possible reaccurrance of the same problem she had on her legs now in her hip, so she is back on Naprison(sp). Erythema Nodosum is what was on her legs.

Her eyes continue to be fixed....She did have a ct and there were no visible tumors or causes..We go to an eye specialist at AI duPont on Monday so I pray for an answer, wondering if this is where all her headaches are coming from.....

She says she is feeling good just a slight headache and of course she still has a bit of heartburn says the carafate has made an improvement though so we shall see.

Thank you so much for all your support!

Update on my brother:
He will start his chemo the Monday after Easter. It is a 2hr IV followed by 14 pills, every 3weeks for 6 months, please continue to keep his family and him in your prayers as most of us know the chemo route isn't the easiest. He is a fireman by profession so he is out of work for awhile....

Thanks so much for stopping sign in if ya have a minute!

Hugs, Lynn

Saturday, March 19, 2005 9:20 PM CST

3/20/05
It is Sunday night and Jessie is still in the hosp.
We are still awaiting her blood cultures.. Her sed rate dropped to 6 today so it is getting better. She is a bit sad not liking this set back at all...Her eyes remain fixed with no real answer as to why as of yet...She has the eye doc appt. next Monday at AI along with her trnsplant clinic appt. so we shall see...Thanks again for stoppin in . Please let her know you were here!

Hugs,
Lynn

Where do I begin.......
Well...yesterday Jessie came home from school with a pain in her right hip bone and a blasted headache as she says.... She took some pain reliever and went to bed. At about 6:30 am she awoke and had her sis come get me.. She wasn't able to get out of bed her hip was hurting and pain was going down both her legs and of course her head was gonna explode...She had a fever of 101.8.. I called her medical doc in DE who suggested she see her ped. here at home..We went there at 10am and saw Dr.caggiano. He examined her and she was admitted to our local hosp. They did a hip asperation, she screamed in pain....it is so very hard to stand by and watch...They found it to be clean of"pus" but xray shows some white spots beleived to be a possible viral infection... Then while examining her for headaches they discovered her pupils are contricted and not responding, so off to CT scan we go...So far it has come back negative... Just when you exhale a bit.... So she is in the hospital, after tomorrows blood work they will decide where they go from there.. Her sed rate is 66 but white cells look good.. Liver numbers are all high again... Well I ask for your continued prayers for her.

Many hugs,
Lynn

Wednesday, March 16, 2005 10:36 PM CST

Hello!

Thanks for taking a moment to stop by and check on Jessie!
She is presently pretty cranky about the heartburn she is experiecing. She has been given yet another med for this...So she now takes 150 zantac, 40 protonix, carafate 250mg 4'x a day....plus all the other meds..... She actually came home from school today and called the doc herself because she wasn't happy with a new med she wants to be scoped and get to the botttom of this ever going problem....It was good to see her step up and take charge of her care it must truly be driving her crazy... although I have to admit it breaks my heart ...She continues with the headaches also for this they gave her tylenol with codiene, makes her sleep so she doesn't like them at all... All this said... I am so thankful for all she has survived so and I know with God by herside she will go and live up to His will!

My brother is doing ok. Please continue to pray for him to cope. Keep my sister in law in prayers also for we know the main caretaker can be under amount of stress also. He goes to his oncologist on Monday and we will know the plan from there.

Thank you again for your thoughts and prayers for Jessie and our family! We care and love each of you very much!
Many Hugs,
Lynn a lucky mom! and I thank God each day for everyone of my kids.

Wednesday, March 9, 2005 12:25 AM CST

Hello!

Just dropping in to let you all know my brother came home on Monday!! Today is his Birthday!! Happy Birthday John!! and MANY MANY MORE!!!!
He is doing well probably more then he should??? He will be going on the 21st to see when he will begin his treatment. Keep him in your prayers!


Jessie is doing well! I was sitting today thinking about 4yrs ago and how things have changed... She just loves school this year and is doing really well. I spoke to her teacher today who explained her transition to the high school next year it is so hard for me to believe she is going to high school!!! She wants to pursue a nursing career, I think she will be a GREAT one!!! Of course she has made it very clear it will be with children she will be such a Great advocate for them!

Thank you again for all your prayers and for stopping by sign in if you have a minute!

Hugs,
Lynn

Sunday, March 6, 2005 7:49 AM CST

Good Morning!

Hope all is well in your corner of the world!

Jessie had her Neuro. appt. on Friday and all looks good! We will start to wean her from her meds the 1st of May!
Next clinic and labs is on the 28th, she was happy to be at the hosp. and not to have to do labs.

In less then one month Jessie will celebrate her 4yrs "2nd birthday"!
I can't even begin to express how happy and lucky we were through all she has been through. I keep track of other children who wait way to long for there transplants, some don't make it to the day....
I thank God and my Sister and our WONDERFUL transplant team for making Jessie's go so very smoothly. Don't get me wrong I am not sure I thought all was going wonderfully back then but when I sit now and think about it all What a MIRACLE it truly was!!!! Please if you are not already become and organ donor on your drivers license you can save so many lives!

Update on my brother! Thanks to answered prayers he is doing much better. Last night when I visited he was up and walking and dressed in clothes not his hospital muma as he called it! He has done all he had to, to be discharged so we are hoping today or tomorrow he will be on his way home.
He did get some of the pathology reports back and although they aren't what we hoped for they aren't the worst they could be. They found non-acute cells in 3 of the nodes they took surrounding his tumor doing chemo is now a definite thing no longer a maybe. He will start that 3weeks from the day of his surgery so I figure somewhere around the 22nd. He is in good spirits although "scared" as to be expected... So keep those prayers a stormin we really do appreciate it! He says hello to all and Thank you!

One more thing. One of the young ladies we have grown to love here at CB passed away a few months ago loved a basketball team in her area in honor of Cheyenne they have been mailing packages to friends of hers. Well Jessie received one of them! We want to thank them! It was very nice and the smiles are always priceless!

Thanks so much for stopping in. If you have a minute say hello!

Many hugs,
Lynn

Monday, February 28, 2005 8:43 AM CST

***UPDATE****
3/1/05
My brother is out of surgery we were told 45min to an hour it turned into 4hrs...The tumor was large the colon had adheared itself to the abdomen wall so they had to scrape it away from there and then remove tumor....he feels it is stage 3to4 colon cancer..he removed nodes but thinks they look clear. he has also said chemo will follow... My bro is in alot of pain...please pray for some relief.
I will update as time goes on..

**Annie ** I am so sorry to hear about your dad we will certainly pray for him. Life changes so quickly..

Give all your family and friends big hugs let them know how muuch you love them!

Hugs and love to you all,
Lynn



Good Morning!

While we wait for the northeaster to arrive thought I would come in and let you know Jessie did great on the telethon!!! She just loves Andy who is one of our local anchor people on the news. He brings out the best in her!!! Thanks Andy!

Well she spoke to lots of people...it broke my heart to hear her tell people how much she misses her purple room...Her make a wish was having her bedroom redone in purple, well when we bought our new house she had to leave her room behind....Guess I need to look into making her wish a reality again! Maybe I should call a home show see if they want the challenge!! Any suggestions???

She is feeling well! Her next appts are Friday with her neurologist, then on the 28th with transplant & eye doc for her lazy eye it is now doing new things... Her heart burn issue is working out a bit she is on new meds so we shall see.. as of this morning she is still complaining.....

OK... PLEASE tomorrow at 1:30pm STORM heaven with your prayers my brother will be undergoing his surgery. They will remove the tumor and reconnect his colon. Please pray the tumor has stayed in the colon and in its self. I did add a pic of him and his kids on pic page. I will be with him and his wife through this time. Pray for a cure!!!!! For all Cancer... I think I will join the "Cancer Sucks Club" ALways thought it did just seems everywhere you turn you hear of yet another case we need to get a CURE!

Love to all and THANK YOU so MUCH for your continued support and prayers!

Hugs,
lynn

Tuesday, February 22, 2005 2:24 PM CST

????Question???? 2/23/05
I try to donate blood and today I tried to donate platelets, they have a heck of a time finding my veins any suggestions on how I can get my veins up???? I really was disappointed when they weren't able to get the platelets today...hey my count was over 250,000 wow thEy said mine were able to help 2 people instead of one.....I am going back again in 2 weeks to try again.. Hey they typed me for bone Marrow donation I am so excited to be able to be put on the national registry real soon!!!

I also added a pic of my brother and his 2 kids on the photo page please keep him and his family in your prayers next Tuesday will be the day...
Much love to all!
Hugs


Hello!

Jessie had her clinic appt. yesterday and did very well! We are happy she continues to put on weight! Finally it took 3yrs to get her back where she belongs, but thank God she is doing great!!!

Her liver numbers were good! GGT"s still up but coming down slowly verrryyy slowly..

The verdict with her heart burn is to once again switch her meds.....She is presently taking Prevacid she will now take the "little purple pill" Nexium. and they have increased her Zantac to 150 2x's a day. I just got her Previcid filled and it was $508.00, thankfuly insurance paid the bill..but such a waste...although knowing Jessie give her a bit and they will put her back on them... :-)

She goes to Nero. clinic on March 4th and then back to transplant clinic on March 21st. I am hoping to get her in to the eye docs there to check out her lazy eye that now goes straight up instead of just to the side....

Thank you so much for all your prayers! We couldn't do this without all of you! Hey the doc said yesterday that it is almost time to write up Jessie's tumor!!! Because there was NO cure and that she is here and doing well!!!

Jessie is also doing are local telethon for the American Cancer Society this weekend, those of you who are close donate! I beleive she will be working the number boards for donations so lets make her work hard! They are Happy to be using Jessie cause she is a survivor!!! Her little sister Malika will be dancing for her dance school so it will be a busy weekend!! Also a little plug to for all who are close and know Jessie's brother Colyn"abudl" he is in our local theater which is doing Oliver! He plays Charlie Bates. It was WONDERFUL! They will be doing 3 more shows, Thurs, Friday and Saturday so if you get a chance go see it you won't be sorry! Also he and Darrin, my other son! will be in the next play Jesus Christ Superstar which will start running on March 9th so keep these fun dates in mind!

My brother continues to wait till March 1st.... I still have my hair... HE is doing ok in a bit of pain but just wanting it to be over, I spoke to him and it will seem he will have chemo after surgery , for precaution. Please continue to keep him and his family in your prayers. I am trying to get a pic of them up here, for some reason I have none of them all... Guess I need to go take one!


Please continue to keep all the children and families who are here at Caringbridge in your prayers. Those who have lost there children....oh hard it must be....


Many hugs,
Lynn

I will update soon.

Wednesday, February 9, 2005 10:10 AM CST

****UPDATE****
2/14/05
Well it seems all plans have changed for my brother..his insurance refuses to pay for docs in Allentown so he will be using one from Wilkes-Barre. Mercy Hosp. and the surgery is now scheduled for March 1st......I will be crazy by then...as I am sure he and his wife will be also...Please continue to hold him up in prayer. He is in pain and passing a bit of blood..


Jessie is doing good! Hope everyone had a Great Valentines Day!!


2/12/05
My brother's journey......
Well it would seem the tumor has the long name as all do slightly differentiated adenocarcinoma....such long names....all mean the same....
His surgery is scheduled for Wednesday at Leigh Valley Hosp. in Allentown. They will cut on each side of the tumor and reconnect the colon. At this time they are not sure if chemo will follow.... I ask that you keep him and his family in prayer. I will be keeping you updated on Jessie's page, maybe I will create one for him as his journey continues......He told Jessie he is now a member of her club....Honestly we never want ANY new members.....





Hello!

All is well here in Jessie land! Her numbers have improved a bit. She continues to complain about heartburn they have once again increased her Prevacid and put her back on Zantac...so we shall see.. I asked that they scope her and they will. So I am giving the medicine till her clinic appt. on the 21st to see how she does... Seems it will stop with the med increases then when she adjust to it it comes back again, so my concern is that we are masking something... Rapamune one of her anti-rejection meds causes heartburn so.... she is presently taking 30mg of Prevacid 2'x a day and 75mg of Zantac once a day. We will see as time goes what will happen next. She got her report card and did very well!!! She is so proud! I am so glad school continues to go well for her!!!


Now onto not such good news for our family... My younger brother,John, he is 36yrs. found out today he has a tumor in his colon, most likely to be cancer....it is so hard to type with so many tears..... he is married with 2 small children.... The plan as of now is to remove the tumor as soon as possible like yesterday..... PLEASE PLEASE pray for him and his wife and children...... I KNOW for a fact prayer works look at Jessie, If it be the Lord's will this to shall pass.. Please for now Storm heaven with prayers!


I will close for now , I will be back with updates.

Hugs and much love to all,
Lynn

Monday, January 31, 2005 9:51 AM CST

Good Morning!

Wow the last day in January....Where does the time go....

Jessie is doing well lookin good!
Numbers are about the same....GGT's still not budging coming in at 300 and the norm is 25......

Tomorrow is report card day.. Jessie says she did well! I have noticed such a change in her! She is so much into school this year...finally! Since 4th grade when our journey began she has had trouble doing school stuff, now in 8th grade she is catching up!!! I am so Happy for her!!!
This takes such a toll on our kids but they seem to just keep on keepin on! It's all the prayers that are heard on there behalf! Thank you all so much for being faithful! Sign in if you have a moment!

Much love and many hugs,
Lynn

Friday, January 21, 2005 9:31 AM CST

GoodMorning,

Sorry for delay in the update..Guess you get tired of reading that. Just at times not much to say and for that I am so thankful. Jessie continues to do well and look great!

Monday's labs were off a bit Jessie's liver numbers just refuse to come down in normal range. We repeated labs yesterday and they are about the same, some went up yet higher and one came down a few points....So the the plan is to repeat her labs this Monday and come up with a game plan..that is if there is a game plan :-) Jessie is quite unique! She also had her EEG on Monday I haven't heard anything on that as of yet, her appt. for neuro isn't till March. Oh still haven't heard about ulta sound on ovaries...the waiting game...

I suppose my prayer request is as always to pray for Jessie's liver functions, I was told a few years ago she might have 10yrs with this liver before she would need another, this being because her bile duct just doesn't work real well, her GGT count which I am sure you will remember should be about 25 and Jessie's is 298 this is the bile leaving the liver and if it remains there it causes damage since transplant the lowest we have ever gotten Jessie's is 74 so pray the damage remains minemal. This count has also been up as high as 900 and something so we have improved it. Also I ask that you continue to pray for ALL the families of Caringbridges there are so many. Say extra prayers for those who live on with out there little ones........

Thanks so much for dropping by let us know you were here, except you Ms. Pam..lol...Love to all and many hugs,

Lynn

Thursday, January 13, 2005 3:27 PM CST

Hello!

I look at the picture at the top of this page and I Thank God for answered prayers and for all the people we have met during these last 4 years!!!! I am so very thankful to be able to say today was the day 4yrs ago we were told Jessie would not likely win this fight... I am so happy to be able to look at the smile on her beautiful face and touch her soft skin! I owe all the docs and nurses and all of you many thanks for making this all possible.To my sister I owe my biggest thanks to her gift of life kept Jessie here! Please encourage people to be organ donors it truely does save lives!

Jessie is doing well! and as you can see Lookin beautiful!

We haven't heard officially about her ultra sound, but it would seem the cist is GONE!

Monday the 17th is her labs, EEG and transplant clinic visit I will report in after.

Again, THANK YOU for all your support through these years.

Many Hugs,
One lucky mom !

Thursday, January 6, 2005 9:03 AM CST

WOW!
Twice in one week!

Jessie is doing fine! Looking Great!

Just wanted to update she goes to clinic on the 17th and she will also be having an EEG to check on her seizure activity if none we can start to wean her from her med, that would be great. As you may remember 2yrs ago she had a seizure , no visible ones since then, she did have alot of activity in her sleep though so we shall see. Oh I pray we can take off that med she would be happy I am sure!

Hope everyone is enjoying there day! The kids are here, home from school!!! It is really icy here we had some snow, but seems the ice took over.. Oh well it is winter!


Take care! Love ya!
Hugs,
Lynn

Monday, January 3, 2005 2:38 PM CST

HAPPY NEW YEAR!!!!

I am so very sorry for the LOOOOOOOOOOONNNNNNNNNGGGGGGGG delay in entry!

My prayer is you all had a Great Christmas season! We did!

Jessie is Looking good and Feeling Great!!! Thanks to all of you for your contiued prayers, thoughts & support! You are all such an important part of our "family".

Above is a pic of all my Kids! I am so proud of them all! They are getting so grown up...They are getting old...ya see I say THEY are getting old soon they will pass me by!

Jessie has had some liver number issues over the pasted weeks and her appointment with the pediatric gynocologist. She made out ok. Last week on Wednesday she had her ulta sound of the cist on her ovarie haven't heard back yet, but the doc even came to take a look so I hope it was they couldn't find it and not that it is still there...If it is she will have surgery to remove it. So we shalll see.


Jessie was so excited to return to school as were all my kids! I am glad they like school so much! or is it they want to get away from mom.......hhmmmmmm Oh well any case i am glad they want to go!

Thank you to all who sent cards! She smiled as I knew she would, We got our pics back so I will be sending them out soon! Take care and God Bless each of you this coming year!

Many HUgs,
Lynn

Sunday, December 12, 2004 11:17 PM CST

Hello!

Jessie continues to do very well!! Praise God!

We attended the 2004 Christmas Party for the transplant kids of AI and there families. We had a Great Time!

It is truly awesome to look around a room filled of Happy kids and see what a miracle of organ donation can do!! Thanks to 2 awesome docs, Dr. Casas & Dr. Dunn and a GREAT bunch of Nurse Practitioners & of course all the extra's Social worker, finance and office ladies! We have been so VERY blessed to have the BEST TEAM anywhere!! We love you all!!! Thanks for saving the lives of our children!

I have changed out some of the pics so you can see the smiles on the faces of these kids!!!

PLEASE BE AN ORGAN AND TISSUE DONOR!!!

Jessie doesn't go back to clinic till Jan. 6th I think...but we will be going down Dec. 20th to see OB/GYN she is having trouble with what they call a large cist that seems to continue growing each time they look at it, so we shall see...She will have labs done that day for transplant also. I will update after that appt.

We are busy getting ready for Christmas it has been alot of fun decorating our new house! Lots and lots of lights! The kids don't have big lists this year so we shall see... Please give you kids a big hugs and tell them how much they are loved. I ask that you keep our friends in your prayers who will be celebrating the holidays without there little one be it the first or the 10th I am sure the pain is still the same...

We send lots of love and tons of hugs!!!
Lynn & Jessie

ps. Someone asked me about sending Jessie a Christmas card! Please feel free to do so the address is on the bottom of this page! She will LOVE it am sure to hear from her friends who check on her here!! Thanks in advance for the smiles!

Wednesday, December 1, 2004 7:40 PM CST

Hello!

I trust that all of you had a good Thanksgiving! We did! When I stopped and really thought about all that has been happening in our lives we have SO VERY MUCH to be Thankful for!

Jessie is doing well! We had a scare in her blood work,but we repeated it and all is well.

Please keep in your prayers all the families who will be celebrating the holiday season without one of there babies...The list is longer then I would like to think about so many friends we have met here lost there earthly battle...

***UPDATE***
This morning Thursday, a young man returned our Bitzy to the animal shelter she is home with us now where she belongs! Thank God for honest people!

Saturday, November 13, 2004 10:21 AM CST

Goodmorning!

Jessie continues to do well!!! She had bloodwork this week and her numbers are returning to "her" normal ranges! Thank God for medicines! Her body seems to need the FK, Prograf,to stay out of rejection the Rapamune just isn't enough. So we just need to pay attention to her kidneys and make sure they stay within the normal range. They now are just adjusting the med dosages again they are reading high in her blood so she needs labs again this coming week it will take a bit but they will get them under control!

Thank you for checking in and know we keep all of you in our thoughts and prayers always.

Have a good weekend! We will keep you updated!

Bitzy is doing great! Although I believe the name should have been Bite'sy


Hugs,
Lynn

Monday, November 1, 2004 10:36 PM CST

Hello,
I came here earlier today to update started and quit....It has been a sad weekend here at Caringbridge for lots of people who have come to admire and love to special kids who have now earned there angel wings. Cheyenne who was special in her own right! She sent packages to lots of kids Jessie included and made them smile when she herself was suffering, but from what I read very seldom let that be known. These kids are so brave such fighters! Conor was another who fought the fight as a brave little trooper! Please keep both of these families in your prayers as they begin there lives with out these angels.

Jessie, well she is doing Great all her numbers are coming back to "Jessie's normal" range, for this I am so Very Thankful! She has a lump under her right arm that appears to be just a infected hair folic?!?! so she is on antibiotics for 10 days to see if it helps. She is getting a bit of a cold. YA know I feel bad even saying these little things when I read what others are dealing with..Jessie has had her share of rough times and I have to say I so thankful to have her here today. I think about what a true miracle her life has been.

Well, I suppose I should close....Oh Ms. Bitzy, the puppy, Is doing really well also! She is just so sweet, I need to get some pics on here and I will soon. She is up to 3.5lbs ! We just love her to pieces.

Please take care, hug your kids let them know how much they are loved.

Hugs to all,
we love you,
Lynn

Tuesday, October 19, 2004 2:40 PM CDT

Hello!
Well we are home from Delaware ALREADY!!!!
We were there this morning for am stat labs, she got an IV and her ultra sound of her liver. They were ready then for the byopsie when the news came her numbers were down a bit they decided they would postphone the byopsy for 2 more weeks!! They think the med changes maybe finally working and if that is the case no need to byopsy! WHEW!!!
I know i am glad! And thankful for answered prayer! Jessie was glad also that we were able to be on our way by 10:30am!!


Now to the puppy news! She arrived on Friday night around 6:20pm to Harrisburg airport! She is beautiful and tiny! We love her to pieces it has been hard and the suggestions were all good ones! We chose "Itzy Bitzy" it fits her well! She went to the vet and all is well! We love our new addition I will post new pics soon!

We love you all who stop bye and keep Jessie in your prayers! They work!

Hugs,
Lynn

Wednesday, October 13, 2004 6:37 AM CDT

Goodmorning!

Thanks so much for the names! They are all wonderful!
As you might think with 6 kids we haven't agreed on much... Marsh"mellow", Pumpkin, Sugar,Spirit, Yetta,Snowy, Chrystal, Lilly,Killer???? Oh my the list goes on.....She looks like she will be arriving on Saturday kids are so excited cause now they get to come to the airport! She will be arriving the day before my birthday so I should get to name her?!?!?! NOT I seem to have no say.....

Well onto the reason you stop by... Jessie's labs on Monday we worse then before....even after the predisone boost, extra dose of rejection med,Rapamune and the adding on her old Prograf so...... We are back to Delaware on the 19th for stat labs an ultra sound of her liver and you guest it...for Jessie the dreaded byopsie for those who follow closely Jessie's last 2 byopsies she was very ill afterward....never really sure why if if it was just a coincidense........We ask for prayers for these have been such a blessing before and continue to be.

I will be back with anything new keep the names coming! I will try to get you a name by the time she arrives we may need to make one name out of all of them but then which one would come first?!?!?!?!?

Love and hugs to all who stop by!
Lynn

Saturday, October 9, 2004 11:02 PM CDT

Hello!

Well it has been a Great week for the most part!

Jessie is officially 3yrs off treatment and had her scans on Monday and she is CANCER FREE!!!!!! These are her last scans so I suppose this makes us really off all cancer care!!


Jessie seems so relieved to be done! I am to but, I am sure as many of you may know or feel they could scan her monthly and make me very happy! Not sure I am ready to never scan again, funny how it is hard to move on as much as I am SO HAPPY to say we are done!


Jessie was in the hospital Sunday through Tuesday for her scans due to the need to hydrate her and then sedate her for her MRI which was also CLEAR I am happy to report although it does'nt explain her headaches.... I am glad to know all is clear throughout her body!!!


Now the not so positive news is she is in moderate rejection of her liver.....they put her on a predison boost and had to give her back her FK which is hard on her kidneys, so back to the old song "Drink Jessie Drink"....... She also has a large sist looking thing on her right ovarie so we have a new doc on board for that.... Ya know we just had to make a new friend!


Also check out the picture page we have a new family member to arrive this week from Arkansas she is only 1.9lbs!!! If you have any ideas for a name we would like to hear them!!!

Thanks so much for following Jessie and most of all for all your prayers, prayers always get answered although I have to admit they aren't always what we want to hear..... In Jessie's case though AMEN!

Keep all the children in your prayers and hug yours tightly! We love you all!

Lynn

Wednesday, September 22, 2004 8:24 AM CDT

Good Morning!

I honestly cannot believe how long it has been since I updated this page.... I am sorry for those of you who follow closely. I hope you thought maybe no news is good news!

We made it safely home from Texas! We had a Wonderful time and the ride was not bad at all!!

If you ask Jessie one of her favorite times was on the way home we stopped in Atlanta Georgia there she was able to see Kelli! She is the mom to a Sweet Angel named Sara, we met in Delaware, she also had liver cancer and a transplant, she had her healing though in heaven.. We miss Sara and her family and I have to say it was AWESOME to get to hug Kelli, I miss her. When you are away from home the new friends you meet are so very important in your life!

Well, alot has happened since last I was here. Jessie's health is going Great! She is feeling Good and looking Great! She has her 6 month scans next month, no date as of yet but I understand it will be her last unless she becomes symptimatic....oh my... On October 4th she will be 3yrs off treatment!!!
She has also started 8th grade! WoW I can't beleive it! We also have moved......oh my if you ask me now I will NEVER move again! We were able to buy a Victorian home here in Hazleton, it has 7 bedrooms!!! So we have lots of space! and might I add alot of work....but it will all come together sooner then later I hope! Jessie was a bit sad to leave her make-a-wish room as was I but I told her to look at it as a step forward in leaving the past behind...are you buying this??? She didn't either, so I guess I will be buying purple paint real soon. She also now takes a bus from the new house to school, when we don't miss the morning one she enjoys it!! :-)

I promise to come back more often.

I ask you to please keep our friends here at Caringbridge in your prayers they need the touch of God's love.

We Love you all!
Sign in and let us know how you are doing!
I will get to all our pages soon and sign in!
Know you are ALWAYS in my prayers!
*Hugs*
Lynn

p.s. Chris asked in the guestbook if we have room for visitors??? WE ALWAYS have room for our friends, just let us know when you might be passing by and you are welcome to stop in Jessie would Love it and so would I!!!

Wednesday, August 4, 2004 11:21 PM CDT

Hello!!!

***UPDATE***
Jessie is doing fine we were able to have her labs drawn on Friday. No results as of yet. She complains alot about the heat here she isn't liking it to much. She is having fevers again and headaches wish I knew what was causing it... Her foot is swollen again alos seems like it is always something...
Ya know though I am so thankful she is here to make all these complaints...So I to will stop...

The kids went to a water park and reallyu enjoyed themselves! I will upload pics when i return home! I loaded sum but they are large!

We head back towards home on Tuesday night. We should arrive back in PA on Saturday! We will be stopping in Alabama and I am hoping to connect with friends in Georgia! I will be calling you soon!

Many hugs! Please keep the kids and Families here at CB in your prayers so many need them.

Many hugs!
From the Great state of Texas I wish you Hello!!!

I have to admitt it wasn't a bad trip, 6 kids in a mini van 24hrs riding with a stop in Arkansas to sleep.... We left home at 9PM Monday night and arrived in Dallas Texas at 3Pm today.

Jessie is doin well and didn't complain to much at all. I will have some new pics as soon as we load them. We go to Children's Hosp. in Dallas on Friday for labs.


I will update with anything interesting. Otherwise we should be back home next week sometime!

Hugs,
Lynn

Friday, July 30, 2004 9:36 PM CDT

Hello!

Once again I apologize for delay....Days just fly by....


We returned on Wednesday and they repeated labs they looked ok so home we came....Sometimes I think they forget we are 2 and half hours away.... On Tuesday they called and said Jessie's Rapamune level was 20.5, with 7-10 being normal...It is her anti-rejection med for those who don't know what it is... So we were to skip a dose and lower it to 3mg a day from 4. so on Wednesday when they ran labs they got her Rapa level back on Thursday...Ready.... 27... So guess where we went today?!??!?!? Give up??!?!?!? Back to Delaware for repeat labs...So we should know Monday her level again till then we skip meds on Sat. & Sun. and drop to 2mg on Monday. Now for those who read regurally you know we leave Monday morning for are 24 hr ride to Texas... So we are off not knowing how her levels will be....SOOOOOO on Friday while we are in Texas Jessie will have blood work...on vacation she says aaaaahhhhhhhhhhh... So we will get it done at Children's Hospital in Dallas it is near where we will be staying. We are headed to Watatagua (sp). Her fever did not happen this evening...It has been happening every day between 7 & 8pm real strange......

On a Happy note we met one of the young men's mom that we follow here on CB at The RMH today she is very sweet. We were so happy to have the chance to meet her. Please Keep Brandon in your prayers as he is having some difficulties, but he is also experiencing the Grace of answered prayers! I will put a link to his page stop by and pass on some kind words.
http://www.caringbridge.org/de/brandonhastings/

As always I ask for prayers for all the families and there children.

Many hugs,
Lynn

Tuesday, July 27, 2004 12:33 AM CDT

Hi!

Thanks for caring enough to drop by! We really do apprieciate your visits,please sign the guest book to let us know you were here.

Well Jessie made it to clinic yesterday, where they did repeat labs which were a bit better then Friday's, although her kidney function is on the rise again coming in at 1.4 normal is .8 for her... She is still having fever only at night, a bit strange I think... and still has belly pain, they did a chest and tummy xray and they both showed nothing, so she is to return tomorrow, yes the day she should be leaving for the games in Minnesota it seems she will not be going..........I am sad for her,but she told the doc she really didn't want to go..... So the plan is we go in for stat labs tomorrow and if her creatine is still high she will either go to day meds or be admitted for hydration...As I am, sure you all remember she has trouble drinking so that is again a prayer request that she just find it in her to drink...

Well I will keep you informed as we go on this part of our journey....


Good Luck to Team Philadelphia!!!

Hugs,
Lynn

Friday, July 23, 2004 11:10 PM CDT

Hello!
I know it has been along time.....
Jessie had her byopsy last Thursday the 15th, the results were as they thought originally,"Erythema Nodosum", so the plan is to let it run its course... She was doing well...
Last night she woke with a very bad headache and a fever of 101.5, I gave her motrin and sent her back to bed. She was OK?? then today complaining about a headach off and on...Then tonight at 7 she came to me with a bad headache and again had a fever and she had a pain in her stomach so off to the docs we went. He sent her for blood work and her liver numbers are elevated soooooo I had to make a call to her Del. docs they are concerned but we are still home I am to watch and if she makes it without a trip to the ER at AI we need to go on Monday for clinic.....She is scheduled to leave Wednesday for the Transplant games in Minne. so I pray she is still on that plane....Seems to always be something.

Just a note: My son who is about to turn 16, dove into a pool on Thursday...a 4 foot one...he banged his head on the bottom...and he now has a compression fracture of his number 4t in his spine....he can walk and all but is in pain...please keep him in your prayers, his name is Darrin. Good news they took a CT scan of his head and he does have a brain, now he just needs to use it...

I will update with any news.
Many hugs,
Lynn

Tuesday, July 13, 2004 7:03 AM CDT

GoodMorning!

Hope everyone is enjoying their summer!

Jessie had her clinic appt. yesterday. They have decided to byopsy her leg. It seems to be spreading it started on the shin of her right leg and last week it showed up with 2 lumps in her left leg and now it seems to be causing her left ankel to swell and discomfort if she walks to much. We spent a very long day at the hosp. mostly just sitting and waiting. We return Wednesday night and she will have "surgery" Thursday not sure of the time yet. They have tried and tested her for all the easy stuff before having to do this invasive stuff at least we will get to the bottom of it.... She seems a bit nervous, but ok. Her liver numbers continue to climb up,they should be climbing down...Her ggt's, which is the flow from her liver,which has been a hassle since transplant is 232 it should be about 25....this went up a bit since last week, not to sure why...

Jessie got her Transplant Game uniforms and stuff yesterday!! She leaves on the 28th of this month and returns on the 1st of Aug. She is excited about going! When she returns we will be taking our family vacation! We are driving out to Texas, 24hrs with 6 kids in a van! Sounds like a great ride!!!! Just a bit of sarcasm. Actually I can't wait!!! I have never been any further south then Maryland.

Well need to go have mommy time....At Curves...I would rather a ice cream cone! Smile!

Please keep the kids of Caringbridge in your prayers. Please raise Jess in prayer on Thursday, when I know a time I will update!

Many hugs & prayers,
Lynn

Tuesday, July 6, 2004 6:16 PM CDT

Hello!

Welcome to the ongoing lump-in-the-leg saga..lol

We went to the ped. doc. today to check out Jessie's leg. She now has 2 lumps on her other leg. Without saying anything the doc diagnosed her with the same thing they think is on her other leg. So now it is important we find out WHERE it is coming from. As I said before, we checked her stool, and strept throat test all came back negative, so now we are checking her for TB..... She had a chest xray this afternoon and a ppd test, funny thing about ppd is... if it is negative it could be false due to her anti rejection meds, and if its positive then it can also be false because of her anti-rejection meds..... the saga continues..... She is doing well complaining as always, I suppose when she isn't complaining I should panic!


Now on to some awesome news!!! We were in CT. on Sunday & Monday, we had a great time we had the HONOR, yes Chris the Honor of meeting Gooch and his WONDERFUL family, not saying this just cause Chris will be stopping by!!! It was so nice of Chris and her family to open there house to us! The pic on the top of the page is of Gooch and Jessie. She was so excited to finally meet him. She follows his page closely and uses it to check out other kids she follows. Funny thing, Chris and I were talking and Gooch looked at Jessie and says "mothers.." guess we gettin' on to much for him! You can check out his page at the link below!!!

http://caringbridge.org/page/gooch/

Well I need to run and pick up my oldest from work so till I know more.....

Love and Hugs,
Lynn

Thursday, July 1, 2004 7:53 AM CDT

Happy July!!!

The months at times just fly by.......

Jessie is doing ok and enjoying her summer!! She really enjoys swimming! On Monday we went to a dear friends house to swim, she had a Great time as well as the other kids.Thanks Ann for having us , and she didn't complain about her feet at all :-) She sends a big "Hello" to the girls!!!


Ok for the medical end....The "lump" on her leg is still there and still the same size... We have stopped the naprison,because it may hurt her kidneys.... the plan , to wait yet another 2 weeks we have a clinic appt. on July 12, so the waiting game continues. She has been complaining alot about "burning in her chest" so we changed her medicine from zantac to prevacid, I hope this will make a difference for her, she loves soda and can no longer drink it because of the burning. She is also complaining of headaches that don't go away so I am calling neurology today to see what they think, don't really know where they are coming from. She also has mouth sores, so she is back doing the magic mouthwash, so I hope that to will soon resolve itself. Even though it sounds like lots she is doing Good! I am the only one she realy complains to others she tells she is fine!


I hope everyone has a safe holiday, we are off to Conneticut for a few days to visit family.

Please keep all the children and families of Caring Bridge in your prayers.

Many hugs,
Lynn

Wednesday, June 16, 2004 10:32 PM CDT

WOW 2'x IN ONE WEEK!!!

Well it turns out we went to her kidney clinic appt. after all.. The doc thought she needed to be seen sooner then Sept. so we squeezed it in. Needless to say my hubby was upset that I even thought about cancelling one of Jessie's appts. So the results....While sitting in the waiting area I noticed a lump on her leg over her shin bone...When I questioned her she said "I showed that lump to you before." Well I kinda remember her showing me a lump but it was maybe as big as a quarter...well it is now the size of an egg...almost tripple in size since the first time I saw it..So when the Nurse Practitioner was examing her I said I know her leg has nothing to do with her kidney but could you check it out for me and tell me what you think...Well needless to say no one really had an answer her or the doc, so off to xray we went ...Then the wait began till today when we returned for labs. We went to the transplant dept. and saw the doc on call there he read the xray and said it appears to be ready "erythema nodosum !?!?!?!?!?? What???? Well simply put "hahahahah" it is an inflamation of the fatty tissue above the shin bone, oh I knew that...NOT... Ok so what causes this???ready??? a strep throat or an infection in her bowels....Oh I see the relationship there?!?!!?? Not... Ok so we swab her throat, run a few more blood tests, and mom gets to wait for her to "stool" then take a sample to the local hosp. they will be so glad to see me coming ! I am so sure of that! So now we await the results of all these while she takes a antinflamatory med.. So if nothing shows and the med doesn't work???? Because of her history we byopsy the spot......SO PRAYER PARTNERS we need prayers that this is a simple inflamation and not the "C" monster. Seems we have alot of scares and thats ok as long as they remain a scare..

Her labs are up a bit her liver numbers that is, creatine still 1.1 so she as always needs to drink drink drink....

School is now officially over!!!!! YEa for them!!!!

Please keep in your prayers all of our friends here at Caringbridge so many of them need them....

Lots of hugs,
We will keep you updated..

Lynn & Jessie

Sunday, June 13, 2004 7:52 AM CDT

Good Morning!

Sorry it has been awhile, though here no news is good news!

We are just busy enjoying our "normal" life stuff! Normal, hhhmmmm can you define that for me?!?!?!?

Any way I have cancelled Jessie's clinic appt. for this week, I just have so many things with the kids to do, track dinners and parties.. My oldest got a job!!! So it has been my job to obtain her working papers, I can't believe how difficult it is to work a few hrs a week for a 16yr old... She will be working in a dietary dept. in a local nursing home,(so you all should be safe, :-) ) She is schooling to be a nurse so it is a start.

Jessie had labs last week and liver numbers are looking ok, her creatine is 1.1 so that is a bit high. All in all though she is doing Great!!!

Next week June21-25th is our Bible School at church I ask you keep our school in your prayers we are usually small in number, but my thought is if we touch one child it is all worth it!

I will try to update once a week, now that school is almost over, 3 more half days, it will be busy around here. To entertain 6 kids who after a few days will be bored silly!!

Jessie asked me to say thank you for signing her guestbook! She really does love to read your entries! She askes that you continue to pray for all the children and their families here at Caringbridge.

Many hugs, Jessie & her mom

Wednesday, May 26, 2004 11:05 AM CDT

Hello!

I see it has been awhile since I updated, old therory applies here no news is good news.

Jessie continues to do well. Thank you for all your prayers!

School is out here the 16th of June, the kids are very excited for this year to end. I to look forward to the summer to just sit and relax a bit, seems all the running during the year comes to an end for awhile in the summer!

Jessie returns to clinic on June 15th for labs and just a checkup.

Jessie has the opportunity to once again travel to the Transplant Games these are olympic style games this year they will be in Minnesota she is excited about going! She will compete in the 50yd dash and bowling.


The other day Jessie and I had an opportunity to chat with a wonderful young man named Darrin, he is doing an article on the Ronald McDonald House,our home away from home! It is so easy to talk about the House it has meant so VERY much to us during her stays, they are like are family!


Please continue to keep all of the children and there families in prayer.

If you visit why not say HI! Jessie said the other day, why is it that people only sign when I am not feeling well????

Many hugs & prayers to all,

Lynn

Wednesday, May 26, 2004 11:05 AM CDT

Hello!

I see it has been awhile since I updated, old therory applies here no news is good news.

Jessie continues to do well. Thank you for all your prayers!

School is out here the 16th of June, the kids are very excited for this year to end. I to look forward to the summer to just sit and relax a bit, seems all the running during the year comes to an end for awhile in the summer!

Jessie returns to clinic on June 15th for labs and just a checkup.

Jessie has the opportunity to once again travel to the Transplant Games these are olympic style games this year they will be in Minnesota she is excited about going! She will compete in the 50yd dash and bowling.


The other day Jessie and I had an opportunity to chat with a wonderful young man named Darrin, he is doing an article on the Ronald McDonald House,our home away from home! It is so easy to talk about the House it has meant so VERY much to us during her stays, they are like are family!


Please continue to keep all of the children and there families in prayer.

If you visit why not say HI! Jessie said the other day, why is it that people only sign when I am not feeling well????

Many hugs & prayers to all,

Lynn

Friday, May 14, 2004 3:24 PM CDT

Hi,
Well the verdict is in.. It's not a bad one. We will be waiting till October to rescan Jessie(her normal 6 month scan) that will be her final one. She will only be 3 and half years out, so I think I need to see if that is ok.. I thought it was 5 yrs...Anyone one know what they usually do???

Above is a picture of Jessie with her award she recieved last night at a social held by our Cancer Society, it is an Inspirational Award! It was a nice time!

I suppose for now my only wish is your continued prayers for all the children and there families. Thank you so much for dropping by, if you have a minute sign in at let us know you were here!

Many hugs,
Lynn

***some new pics***

Sunday, May 9, 2004 11:33 AM CDT

****Update****
My kids just presented me in a "ceremony" as they called it a beautiful necklace and roses, two beautiful cards, and the best they sang to me, needless to say the tears were flowing I suppose this is why I am here these kids are Great! I am putting the lyrics to the song below, It is a song by Boyz to Men group called "A Song for Momma"the words are awesome! Thank you to God and my children for the Best day ever.

Song for Mama
Boyz II Men
Evolution


you taught me everything
and everything you've given me
i always keep it inside
you're the driving force in my life
yeah
there isn't anything
or anyone that i can be
and it just wouldn't feel right
if i didn't have you by my side
you were there for me to love and care for me
when skies were gray
whenever i was down
you were always there
to comfort me
and no one else can be
what you have been to me
you'll always be
you will always be the girl
in my life for all times

chorus:
Mama
mama you know i love you
(oh you know i love you)
mama
mama you're the queen of heart
your love is like
tears from the stars
mama i just you to know
lovin' you is like food to my soul

you're always down for me
have always been around for me even when i was bad
you showed me right from my wrong
(yes you did)
and you took up for me
when everyone was downin' me
you always did understand
you gave me strength to go on
there was so many times
looking back when i was so afraid
and then you come to me
and say to me
i can face anything
and no one else cando
what you have done for me
you'll always be
you will always be
the girl in my life

Chorus:
Mama
mama you know i love you
(oh you know i love you)
mama
mama you're the queen of heart
your love is like
tears from the stars
mama i just you to know
lovin' you is like food to my soul

never gonna go a day without you
fills me up just thinking about you
i'll never go a day
without my mama

Chorus:
Mama
mama you know i love you
(oh you know i love you)
mama
mama you're the queen of heart
your love is like
tears from the stars
mama i just you to know
lovin' you is like food to my soul






Happy Mother’s Day!!
This is my prayer and wish to each and every mother!
I sat in church today surrounded by my children all placed in my home by God for a special reason, although I may not know what that is I felted overwhelmed today with what an honor it is to have been picked by Him to be there mommy! I hope I can do good by them. Although some days are quite overwhelming with now “5”teenagers and a 7 yr old who thinks she maybe there mom I am truly Blessed!
I thought of all moms all over the world, ones who live in poorer countries and struggle each day to make sure their children are fed and kept safe, and most do not complain they look at their children as gifts from God! My thoughts also came to the mothers here at Caringbridges how we struggle with the sickness and sometimes death of our children it is hard to believe sometimes this is His Will and plan for our children. He gives them to us for a time to nurture and love what a Blessing bestowed on us!

Please pray for those moms who are facing this day for the first time with one of there children gone.

Please enjoy your day and hug those children all around you!

Much love and hugs,
Lynn


Jessie is doing well!!! We should know more Tuesday afternoon or Wednesday morning. I will update then.

Sunday, May 9, 2004 11:33 AM CDT

Happy Mother’s Day!!
This is my prayer and wish to each and every mother!
I sat in church today surrounded by my children all placed in my home by God for a special reason, although I may not know what that is I felted overwhelmed today with what an honor it is to have been picked by Him to be there mommy! I hope I can do good by them. Although some days are quite overwhelming with now “5”teenagers and a 7 yr old who thinks she maybe there mom I am truly Blessed!
I thought of all moms all over the world, ones who live in poorer countries and struggle each day to make sure their children are fed and kept safe, and most do not complain they look at their children as gifts from God! My thoughts also came to the mothers here at Caringbridges how we struggle with the sickness and sometimes death of our children it is hard to believe sometimes this is His Will and plan for our children. He gives them to us for a time to nurture and love what a Blessing bestowed on us!

Please pray for those moms who are facing this day for the first time with one of there children gone.

Please enjoy your day and hug those children all around you!

Much love and hugs,
Lynn


Jessie is doing well!!! We should know more Tuesday afternoon or Wednesday morning. I will update then.

Thursday, May 6, 2004 6:59 AM CDT

Hello,
Sorry for delay in updating...
Trying to get thoughts together...
Jessie is fine, seems once again her lungs are clearing, no real answer though as to what "it" is... So once again we wait, seems the tumor board meets once a week on a Tuesday so they will review her next Tuesday and I suppose they will make a desission then. So the waiting game once again begins. Don't get me wrong I am so VERY thankful it is going away, but why does it keep coming back and what its it........

Thank you so much for all your thoughts and prayers, I know we have answered ones once again in that it is going away again....


Many hugs,
Lynn

Thursday, May 6, 2004 6:59 AM CDT

Hello,
Sorry for delay in updating...
Trying to get thoughts together...
Jessie is fine, seems once again her lungs are clearing, no real answer though as to what "it" is... So once again we wait, seems the tumor board meets once a week on a Tuesday so they will review her next Tuesday and I suppose they will make a desission then. So the waiting game once again begins. Don't get me wrong I am so VERY thankful it is going away, but why does it keep coming back and what its it........

Thank you so much for all your thoughts and prayers, I know we have answered ones once again in that it is going away again....


Many hugs,
Lynn

Thursday, April 29, 2004 9:25 AM CDT

May 2nd 2004
Thirteen years ago today Jessie was born 1lb 4ounces! She fought a great fight and is here today as a living Miracle! I thank God each and every day for Jessie's life!
If you stop by today please take a minute and wish her a Happy Birthday!
You can do that by signing the guest book! :-)

I will update on Tuesday as soon as I know anything!

Many hugs to all!



Good morning!

Life is good!

Jessie will celebrate her 13th Birthday on Sunday!!!!! May 2nd!!! She was 9 when all this started I am so thankful for this time to be able to celebrate yet another!! She doesn’t want to do anything special…She tells me she has no friends to take to a movie, breaks my heart, so it will be her Family that make this a special day for her!! Wow another teenager in my house ya know this makes 5! AAAAAAAAHHHHHHHHH me screaming…LOL…

I also just wanted to let you know Tracie did a fantastic speech at Donor day in DE she truly is an angel here on earth! Jessie didn’t get up front with her but did do a TV interview for a local DE TV station! When asked, Jessie responded to one question with an answer, ready “yes I SUPPOSE I am grateful…….oh my……. I know she is! Funny how tongue tired you become…. We had a nice luncheon and all went well.

Yesterday our local TV station interviewed Jessie and Tracie and guess who else in her eyeore t-shirt?!?!?!? Yes me! They wanted medical answers sooooooo… Oh well I hope what I said took away from what I wore…. We just wanted to get across the message as to HOW VERY important organ donation is!!! It will be airing this evening at 5:30 and then repeated throughout the night! My prayer is one person sees it and changes there mind on donation one donor can help up to 50 people it is an awesome gift! Please if your reading this do it for Jessie next time you do you drivers license add that you want to be a donor it is the BEST gift you could ever give!!!!!!

They will be putting Jessie web site on TV tonight, if you are new here please read back about how Jessie has gotten this far and see that organ donation is a true Gift of Life!

As for Jessie’s health she is doing well. She is waiting on her testing on May4th she comments often as to HOW many tests she will have… Please pray for her scans …her lungs don’t look good….At this point as I said before we aren’t sure what we are dealing with, fungus, infection or “C” please pray a simple antibiotic is our cure!

Many hugs to all of you!
Love,
Lynn

For anyone who may want to get in touch with us our phone number and address is at the bottom of this page!

Take care!

Keep all the children of Caringbridges in your thoughts and prayers there are so many…..

Thursday, April 29, 2004 9:25 AM CDT

Good morning!

Life is good!

Jessie will celebrate her 13th Birthday on Sunday!!!!! May 2nd!!! She was 9 when all this started I am so thankful for this time to be able to celebrate yet another!! She doesn’t want to do anything special…She tells me she has no friends to take to a movie, breaks my heart, so it will be her Family that make this a special day for her!! Wow another teenager in my house ya know this makes 5! AAAAAAAAHHHHHHHHH me screaming…LOL…

I also just wanted to let you know Tracie did a fantastic speech at Donor day in DE she truly is an angel here on earth! Jessie didn’t get up front with her but did do a TV interview for a local DE TV station! When asked, Jessie responded to one question with an answer, ready “yes I SUPPOSE I am grateful…….oh my……. I know she is! Funny how tongue tired you become…. We had a nice luncheon and all went well.

Yesterday our local TV station interviewed Jessie and Tracie and guess who else in her eyeore t-shirt?!?!?!? Yes me! They wanted medical answers sooooooo… Oh well I hope what I said took away from what I wore…. We just wanted to get across the message as to HOW VERY important organ donation is!!! It will be airing this evening at 5:30 and then repeated throughout the night! My prayer is one person sees it and changes there mind on donation one donor can help up to 50 people it is an awesome gift! Please if your reading this do it for Jessie next time you do you drivers license add that you want to be a donor it is the BEST gift you could ever give!!!!!!

They will be putting Jessie web site on TV tonight, if you are new here please read back about how Jessie has gotten this far and see that organ donation is a true Gift of Life!

As for Jessie’s health she is doing well. She is waiting on her testing on May4th she comments often as to HOW many tests she will have… Please pray for her scans …her lungs don’t look good….At this point as I said before we aren’t sure what we are dealing with, fungus, infection or “C” please pray a simple antibiotic is our cure!

Many hugs to all of you!
Love,
Lynn

For anyone who may want to get in touch with us our phone number and address is at the bottom of this page!

Take care!

Keep all the children of Caringbridges in your thoughts and prayers there are so many…..

Thursday, April 22, 2004 11:17 AM CDT

HI,
I am sorry for the delay in updating.
Things are going well here, If you like rollercoaster rides it's GREAT!

Jessie and my sister Tracie will be speaking at Donor Awareness Day at AI duPont on Tuesday the 27th of April, then they will also be on our local news to also talk about the importance of all forms of donations be it organ, blood, bone marrow all these are so VERY important.!

Jessie's scans will be repeated on May 4th to see what is appearing in her lungs.. This is a concern to the docs at AI they have now added a Pulmonary Function Test to see to what capacity her lungs are working at. This will also be the day they do a renal scan to check kidney function, so it is a VERY full and stress free day :-)

Please continue to pray for Jessie's healing and all of the children of Caringbridges and there families, there are way too many.

Jessie received a special package this week from one of her Caringbridge friends her name is Cheyenne, thanks sweetie she really enjoyed her gift. I ask that you Please keep Cheyenne in your prayers.

Well I will close for now; know you are all in our thoughts and prayers each day!
You are all VERY special to us!

Many hugs and much love,
Lynn

**New Photos**

I picked this border because I keep thinking of the poem "Footprints" I know HE carries us through all that life brings our way!



FOOTPRINTS IN THE SAND

By Mary Stevenson

written in 1936

© U.S. Copyright 1984



One night I dreamed I was walking
Along the beach with the Lord.
Many scenes from my life flashed across the sky.
In each scene I noticed footprints in the sand.
Sometimes there were two sets of footprints.
Other times there were one set of footprints.
This bothered me because I noticed that
During the low periods of my life when I was
Suffering from anguish, sorrow, or defeat,
I could see only one set of footprints,
So I said to the Lord, "You promised me,
Lord, that if I followed You,
You would walk with me always.
But I noticed that during the most trying periods
Of my life there have only been
One set of prints in the sand.
Why, When I have needed You most,
You have not been there for me?"
The Lord replied,
"The times when you have seen only one set of footprints
Is when I carried you."

Thursday, April 8, 2004 8:49 PM CDT

Hi!

Well today was a bit of a roller coaster ride…but aren’t all days?!?!??!?!

Jess had her 6month scan today, she also saw a kidney doc, and had labs for her liver..

Good news first - Her liver numbers look great! Even with the reduction of prograf to 0!!! She is just on Rapamune for rejection now, so that is good because this is not hard on her kidneys, yes kidneys the other news we got today is she has 2 working kidneys?!?!? As you know if you have been following Jessie for 3yrs we have been under the impression she only had 1 working kidney, today I was told the second is much smaller then the one but still works at about 40 to 50so this is good news , but all the time we worried about only one…..They are concerned and will look into this kidney and do all they can to preserve it she will have renal ultrasound on May 4th, she will also have a repeat CT scan on her lungs, the not so good news…..there seems to be a cloudiness in the lower lobes of both lungs as well as a few nodules on each lung last time we only had one now we have a few appearing once again, they listened to her lungs and they said they are clear sounding….So guess what is next……we will wait a MONTH to rescan, sleepless in Hazleton will be my next few weeks…..I just have to keep my eye on her, like I don’t do that already… :-) Fever of 101 or greater ,bad cough , or respiratory difficulties I am to call them…

I tell ya Jessie keeps us hoppin and down on out knees in prayer!

Thank you so much for checking! Please sign the guestbook so she knows you stopped by.

Many hugs to all!
Lynn & Jessie

Our little friend Jacob and his wonderful family will be traveling back to Ohio tomorrow, Friday, Please keep them in your prayers for a safe trip! We were sad to say goodbye to them today, but it is WONDERFUL that they get to return home! We will miss you!

Thursday, April 8, 2004 8:49 PM CDT

Hi!

Well today was a bit of a roller coaster ride…but aren’t all days?!?!??!?!

Jess had her 6month scan today, she also saw a kidney doc, and had labs for her liver..

Good news first - Her liver numbers look great! Even with the reduction of prograf to 0!!! She is just on Rapamune for rejection now, so that is good because this is not hard on her kidneys, yes kidneys the other news we got today is she has 2 working kidneys?!?!? As you know if you have been following Jessie for 3yrs we have been under the impression she only had 1 working kidney, today I was told the second is much smaller then the one but still works at about 40 to 50%, so this is good news , but all the time we worried about only one…..They are concerned and will look into this kidney and do all they can to preserve it she will have renal ultrasound on May 4th, she will also have a repeat CT scan on her lungs, the not so good news…..there seems to be a cloudiness in the lower lobes of both lungs as well as a few nodules on each lung last time we only had one now we have a few appearing once again, they listened to her lungs and they said they are clear sounding….So guess what is next……we will wait a MONTH to rescan, sleepless in Hazleton will be my next few weeks…..I just have to keep my eye on her, like I don’t do that already… :-) Fever of 101 or greater ,bad cough , or respiratory difficulties I am to call them…

I tell ya Jessie keeps us hoppin and down on out knees in prayer!

Thank you so much for checking! Please sign the guestbook so she knows you stopped by.

Many hugs to all!
Lynn & Jessie

Our little friend Jacob and his wonderful family will be traveling back to Ohio tomorrow, Friday, Please keep them in your prayers for a safe trip! We were sad to say goodbye to them today, but it is WONDERFUL that they get to return home! We will miss you!

Saturday, April 3, 2004 5:25 AM CST

Good Morning!

This day is so VERY Special to us in that it is Jessica’s “3rd” Birthday! Today 3yrs ago my sister without hesitation donated a part of her liver to SAVE Jessica’s life! For this I will ever be Thankful to her and to the Wonderful Transplant doctors and the team that works right by there side to make sure all goes well!

To God all Glory is given! As you may know Jessie is adopted and I thank God for placing her here He knew the whole plan even though we did not, Jess went through a lot but He had her where He wanted her in that my sis all though no blood relation was here to donate and save Jessie life! He has a big plan for all of us although we may not always like it, if we ask He is there to carry us through and make us stronger.

We are off to NYC today to visit family and just hang out! Last night we went out and celebrated this day! Above you will see a picture of my sister and Jessica.

Thank you for your continued prayers as we continue down the road that has been chosen for us all. Keep all the children of Caringbridge in your thoughts and prayers, pray for there families also as they to need strength to go down the road.

Please be an Organ Donor, donate Blood, Bone Marrow, anything you can these children need you as well as adults. There is a bumper sticker I have it say let me see if I can get this right, Why take your organs with you , when Heaven knows we need them here. Be an Organ Donor or something like that I am sure you get the meaning!
Well have a great day! Know we continue to pray for all of you! We Love You!

Hugs,
Lynn

***NEW PICS***

Saturday, April 3, 2004 5:25 AM CST

Good Morning!

This day is so VERY Special to us in that it is Jessica’s “3rd” Birthday! Today 3yrs ago my sister without hesitation donated a part of her liver to SAVE Jessica’s life! For this I will ever be Thankful to her and to the Wonderful Transplant doctors and the team that works right by there side to make sure all goes well!

To God all Glory is given! As you may know Jessie is adopted and I thank God for placing her here He knew the whole plan even though we did not, Jess went through a lot but He had her where He wanted her in that my sis all though no blood relation was here to donate and save Jessie life! He has a big plan for all of us although we may not always like it, if we ask He is there to carry us through and make us stronger.

We are off to NYC today to visit family and just hang out! Last night we went out and celebrated this day! Above you will see a picture of my sister and Jessica.

Thank you for your continued prayers as we continue down the road that has been chosen for us all. Keep all the children of Caringbridges in your thoughts and prayers, pray for there families also as they to need strength to go down the road.

Please be an Organ Donor, donate Blood, Bone Marrow, anything you can these children need you as well as adults. There is a bumper sticker I have it say let me see if I can get this right, Why take your organs with you , when Heaven knows we need them here. Be an Organ Donor or something like that I am sure you get the meaning!
Well have a great day! Know we continue to pray for all of you! We Love You!

Hugs,
Lynn

Wednesday, March 31, 2004 7:31 AM CST

Good Morning!
Sorry it has been a whole week since an update….time waits for no one…

Jessie is doing well. We went to clinic Monday morning, she is maintaining her weight, and her wound is closing nicely. She was met in clinic by a nutritionist who once again went over proper nutrition for her; she really doesn’t seem to listen too much to what they have to say…..They are thinking she may be on the road to anorexic…. Please pray for her desire to eat. They did not replace the tube as of yet still giving her time to try. Next week are her 6months scans already….She will be admitted Wednesday, April 7th, for IV fluids since her kidney continues to act up, the fluids will flush the dye through her system faster the scans are on Thursday, they are hoping to get a kidney doc to look into her kidney functions and see what he has to say. They stopped her prograf-FK- in hopes this would help, this is one of her anti-rejection meds, she continues to take Rapamune hoping this one will work alone to keep her healthy. Kind of scary since she has been on prograf since transplant to just stop it….
When we came home on Monday she went to a intake for counseling, the doc there explained the difference between anorexic and anorexia, first is no desire to eat and drink the other is you don’t, see Jessie still eats some just not enough, I did ask the nutritionist in DE, what was a good weight for Jess she looked and said she is just under the 50thn the charts, so the concern would be if she dropped any lower. She was also given more Juice’s to try and boost her up she has yet to try them… She did however last night try the pedisure formula with chocolate syrup and seemed to be ok with it so even if we can get these down 3 a day would be great it would help so we shall see…

On to some good stuff!!! Jessie will be celebrating her “3rd”new birthday!! Saturday April 3rd is the 3rd anniversary of her transplant! Thank you God for this second chance!!! Thank you to my sister! Who so unselfishly gave part of her liver to save my daughter!!! I will never be able to thank her enough! If you would like to tell my sis thanks, leave it in Jessie’s guest book I will make sure she sees it!!

Just a thought that was passed on to me….Lynn, did you know that God never gives us too much to handle, I of course gave the look…and she said, don’t you wish He didn’t trust you so much?!?!? I smiled….I was told when Jess fist got sick God never gives us more then we can handle, my answer was always my shoulders must be made of steel!

Well I guess you have had enough of my rambling…..
PLEASE pray for the kids of Caringbridges, there are so very many, we have lost 2 more that I follow.. And a few are just hanging on to the love of there parents.. Lift them up.
Also, little Jacob in pic with Jessie ,starts his post transplant chemo, keep him and his family in your prayers, this was a difficult time for Jessie I pray his will go by quickly and he will be off to being a little boy!!
Many hugs,
Lynn a very lucky mom


PLEASE SIGN THE GUESTBOOK!!!

Wednesday, March 31, 2004 7:31 AM CST

Good Morning!
Sorry it has been a whole week since an update….time waits for no one…

Jessie is doing well. We went to clinic Monday morning, she is maintaining her weight, and her wound is closing nicely. She was met in clinic by a nutritionist who once again went over proper nutrition for her; she really doesn’t seem to listen too much to what they have to say…..They are thinking she may be on the road to anorexic…. Please pray for her desire to eat. They did not replace the tube as of yet still giving her time to try. Next week are her 6months scans already….She will be admitted Wednesday, April 7th, for IV fluids since her kidney continues to act up, the fluids will flush the dye through her system faster the scans are on Thursday, they are hoping to get a kidney doc to look into her kidney functions and see what he has to say. They stopped her prograf-FK- in hopes this would help, this is one of her anti-rejection meds, she continues to take Rapamune hoping this one will work alone to keep her healthy. Kind of scary since she has been on prograf since transplant to just stop it….
When we came home on Monday she went to a intake for counseling, the doc there explained the difference between anorexic and anorexia, first is no desire to eat and drink the other is you don’t, see Jessie still eats some just not enough, I did ask the nutritionist in DE, what was a good weight for Jess she looked and said she is just under the 50th% on the charts, so the concern would be if she dropped any lower. She was also given more Juice’s to try and boost her up she has yet to try them… She did however last night try the pedisure formula with chocolate syrup and seemed to be ok with it so even if we can get these down 3 a day would be great it would help so we shall see…

On to some good stuff!!! Jessie will be celebrating her “3rd”new birthday!! Saturday April 3rd is the 3rd anniversary of her transplant! Thank you God for this second chance!!! Thank you to my sister! Who so unselfishly gave part of her liver to save my daughter!!! I will never be able to thank her enough! If you would like to tell my sis thanks, leave it in Jessie’s guest book I will make sure she sees it!!

Just a thought that was passed on to me….Lynn, did you know that God never gives us too much to handle, I of course gave the look…and she said, don’t you wish He didn’t trust you so much?!?!? I smiled….I was told when Jess fist got sick God never gives us more then we can handle, my answer was always my shoulders must be made of steel!

Well I guess you have had enough of my rambling…..
PLEASE pray for the kids of Caringbridges, there are so very many, we have lost 2 more that I follow.. And a few are just hanging on to the love of there parents.. Lift them up.
Also, little Jacob in pic with Jessie ,starts his post transplant chemo, keep him and his family in your prayers, this was a difficult time for Jessie I pray his will go by quickly and he will be off to being a little boy!!
Many hugs,
Lynn a very lucky mom

Tuesday, March 23, 2004 7:07 PM CST

Hello,
I am sorry for taking so long to update.
Jessie is fine! It turns out to be an inner infection....which right in front of my eyes they lanced and drained, I did remain standing although I think I felt hundreds of hands keeping me upright! :-)

I now have the pleasure of cleaning and repacking the guaze 2'x daily. The wound as they call it, is about 4 inches long and 2or more inches DEEP yes I can see her inners... SMILE, or is it get a bucket?!?!??!!?

All joking aside she is fine! Thanks so much for all you prayers and thougths they mean the world to all of us! She goes once again back to duPont on Monday for clinic and I think the kidney doc??? They have lowered her FK,one of her rejection meds, in hopes it will help her kidney behave it self, no ng tube went back in so we will see on Monday once agian whats up.

Many Hugs to all!
Lynn

Tuesday, March 23, 2004 7:07 PM CST

Hello,
I am sorry for taking so long to update.
Jessie is fine! It turns out to be an inner infection....which right in front of my eyes they lanced and drained, I did remain standing although I think I felt hundreds of hands keeping me upright! :-)

I now have the pleasure of cleaning and repacking the guaze 2'x daily. The wound as they call it, is about 4 inches long and 2or more inches DEEP yes I can see her inners... SMILE, or is it get a bucket?!?!??!!?

All joking aside she is fine! Thanks so much for all you prayers and thougths they mean the world to all of us! She goes once again back to duPont on Monday for clinic and I think the kidney doc??? They have lowered her FK,one of her rejection meds, in hopes it will help her kidney behave it self, no ng tube went back in so we will see on Monday once agian whats up.

Many Hugs to all!
Lynn

Thursday, March 18, 2004 9:16 PM CST

**UPDATE**
Saturday 3-20
Jessie is still complaining of alot of pain...She has had water like stools but still no substance...The lump on her side has grown that her skin is taunt over her insision...We leave for DE tomorrow as of now the house is full so I suppose we will be at a hotel..Monday morning her labs are at 8am and then we go to clinic..She just now came in and she has a lump on her arm and shoulder????
I promise to update on Monday as soon as I can. Thanks so very much for all of your prayers and thoughts!
Hugs to all!
Lynn (a little worried)



A VERY long day......

As I noted before we had to head to DE. to see what was up with Jessie..

Well when we arrived they checked the "lump" they sent her for xrays and blood work. The xray shows a large build up of stool in her track and a possible infection behind her liver, so we are HOME on antibiotics and lots of stuff to make her :-)
She is in alot of pain, hopefuly things will move along real soon, we need to return to DE on Monday to see how things are looking. Her labs looked good GGT's up a bit again they are on a slow climb,they determine the bile in the liver hers is leaving slowly.. Her Creatine is also still on the rise, even with the feeds and her drinking so we are hoping to see a kidney specialist on Monday also. Please pray no fever or back we go...before Monday..also for some pain relief she is only getting motrin every 4hrs now... OH, they also stopped her feeds till Monday so no tube it will give her nose a rest... AHHHHHHHHH she just came in and is warm-taking temp as I type...Long days.....but as I complain I thank God she is here, many are not...Well temp of 100.1, not to bad...I have to keep a watch tonight now...

Hey on a good note Little Jacob in pic above was discharged today to the RMH !!!! Go JAcob!!! He is doing Great, he will be starting his chemo next week I beleive, please keep him in your thoughts and prayers.

Continue to keep ALL the children and families in your prayers here at Caringbridges there are so many....This week 2 of the children I have been following lost there fight here on earth and won there Heavenly reward.

Well thanks for checking in I think I will go rest a bit.
We pray for you all each day!


Many hugs a VERY lucky and tired mom,
Lynn

Monday, March 15, 2004 4:17 PM CST

****Prayers****
Thursday March 18th, 2004
We are on our way to DE. Jessie has been complaining of pain in her right side for a few days...It appears swollen today, so I won't rest till they say it is nothing.....Please pray its nothing...
Hugs!




Hello,

We are getting 3 to 7 inches of snow tomorrow ........ Funny when I was a kid I prayed for snow now I wish it would go away already I am ready for spring! I love to see new growth! and Green lots of Green right now here in our area it is all brown......Oh well enough complaining....

Jessie had clinic on Thursday and all went well we put new NG tube in ,she isn't doing well replacing it daily makes her nose very sore.... On Friday we did her labs which looked better so we are off to a monthly labs, she also saw her neurologist who said all is well he will see her in 6 months then next April they will see if they are able to wean her from the seizure meds. On April 8th when we return to Delaware she will have her 6 month scans we will have then passed her 3yr Transplant birthday which is on April 3 hard to believe!

The picture on the top of this page is of Jacob and Jessie, believe it or not he had the "same" rare tumor that Jessie had he had his liver transplant on March 2nd he is doing well!! They seemed to have a special connection one we may never know. His dad said on Jacob's page they stared at each other and smiled, silently understanding each other...His smile is priceless,I can't seem to get it out of my mind! They are a Great family and we were honored to meet them! Please keep Jacob and his family in your prayers as they still have 2 rounds of post transplant chemo to complete they can be quiet difficult.

Please continue to pray for all the Caringbridge children and families the list goes on and on.....

Many hugs,
Love,
Lynn

Monday, March 8, 2004 3:03 PM CST

Hello!

I have spring fever and we had a taste last week and now it is back to snow.......

Jessie continues to do well. Although last night her tube fell off and there was milk everywhere...and a very stong smelll of vanilla...Oh well after cleaning her up at 2:30am she went back to sleep to wake again and now find the whole tube out of her nose...I think she sleeps like a wild women. :-) So she inserted the tube herself....Oh my! and restarted the flow, Thank God she has her guardian angels around her and it went into the right place! So this morning she removed the tube and has decided she will put it in at night and remove it in the morning, I hope this is a sign that she will soon choose to drink then use the tube...My prayer!

Once again she returned from school to tell me I haven't updated in awhile and I should. I asked her to do it and she told me I do such a good job I could do it.. "smile". She did tell me though to remind all of you to sign in so she knows you stopped by! :-) She also thanks everyone for your prayers, thoughts and kind words.

Please keep the kids and families of Caringbridges in your prayers there are many!

We will be meeting a new friend on Thursday when we go to clinic in DE. He is a cutie! He recieved his new liver a week ago and is doing GREAT!

Take care and we will sign in again soon. Oppps Jessie's counts last week were still elevated so I suppose we will see on Friday where she stands, waiting for med levels to come back may need to adjust some dosages.

Did anyone see the Passion Movie?? I have know the story my whole life but, hearing and seeing it has brought a renewed sense of what our Lord did for me for us! Mary also has a different feeling for me...watching your child suffer as she did and how we all watch ours... Still a numbness when I think of it all. I am so happy to be saved and know HIm as my savior!

Many hugs to you all!
Thanks for checking in!
Lynn & Jessie


ps, ok Jess back to school work. I love ya!

Sunday, February 29, 2004 10:18 PM CST

***New Pics***
**Monday March 1, 2004**
I missed the actual phone call, but it seems Jessie's numbers are off...I need to take her for labs on THursday again....If I hear what they were tomorrow I will update then.

Happy March to all!!

Please continue to pray for all caringbridge children and families there are many who need you prayers.

Hi,
Jessie continues to do well. Thanks to all your prayers and God's will for her!

The picture above was taken this weekend at our American Cancer Telethon, the gentlemen in the pic with Jessie is her Make A Wish person! His name is Andy and he is one of our local TV anchormen! He has been wonderful to Jessie! He interviewed her twice this weekend! She was a bit shy, funny cause she does like to talk but the camera goes on and she goes quiet.... She was able though to give Andy some facts on Childhood cancer that he shared with the audience.

I will update more tomorrow after her counts are in.

We went to see the Passion of Christ tonight I have to say I am still numb......

Hugs,
Lynn

Wednesday, February 25, 2004 7:49 PM CST

HI!

While Jessie was at school today she viewed her web page...when she came home I was informed I needed to update since it has been since the 20th. So here I am! "Smiles" !

She has been doing very well, we will be getting blood work on Friday to see where she stands with her numbers...funny how you live your life wondering what the numbers will be this time....

Jessie will also be on our local Cancer Telethon this weekend as well as her little sister Malika, she will be dancing with her dance school, Jessie will be interviewed.

In closing I once again ask for prayers for all the families that walk this road it isn't always easy, good thing we can count on being carried when it is rough the Lord never leaves our side!


Many hugs,
Please sign in,
Lynn & Jessie


ps. Happy Jessie now get back to your school work! :-)

Friday, February 20, 2004 10:57 AM CST

Hi,

Sorry delay in updating, no real reason....

We went to clinic on Monday, Jessie's counts for her liver are looking GREAT! Her kidney number is comiong back to normal range. It was 1.3 down from 1.5, so my prayer is it continues to come back in normal range.

Thanks to all who offered advice on NG tube, she is doing well with it on Monday they changed her tube to a size"10" from a "12", looks better and NO more nose bleeds!! We also have been able to use clear tape so it is'nt as noticible. Also it doesn't hurt her face. We will add a new pic this weekend sometime.

We continue to loose children to childhood illness, please pray for there peace and for the families left behind....Thank you for continued prayers for all the children. My special request for Jessie at this time is that she realizes the importance of her nutrition to drink and eat better to help save her kidney as well as keeping her new liver healthy. I think this last hospitalization has left her feeling, will I ever be 'ok', how scary to think that each day....These kids and I mean all of them are given such strength from ABOVE!

Jessie is home from school toady as she says she is very tired and her throat hurts, please pray it goes no further..She really has been sleeping ALL day so far...

Much Thanks
Many Prayers for each of you
and Tons of Hugs are sent your way!
Love,
Lynn & Jessie

Saturday, February 14, 2004 10:09 PM CST

Happy Valentine's Day!!


Hope everyone had a love filled day!

Jessie is doing fine, she wanted to let everyone know she is Thankful for your guestbook entries!

She also wanted those of you who like her smile see that she is still smiling even though she has her NG tube!

We go to Del. tomorrow for clinic on Monday, I will keep up with updates as I have them.

*Question, anyone who has dealt with NG feeding tubes, did your child have frequent nose bleeds??? Jessie is having them not sure if it is "normal"


Many hugs,
Please keep the families and children of CB in your prayers always!
Love,
Lynn & Jessie

Thursday, February 12, 2004 8:21 PM CST

Hello,

Well it is in...SHe has a NG tube and is very unhappy...It is only a temporary thing till she builds up her strength, pray it happens real fast....It bled alot when they put it in then she got sick and threw up blood again...It is so sad ...

She is planning though to go to her Valentine dance tomorrow & she wants to go back to her dance class next Wednesday I hope it works out!

Well I am exhausted, but knew you were probably waiting an update, sorry it took so long to do..

Many Hugs,
Love,
Lynn

Tuesday, February 10, 2004 9:59 PM CST

Hello!

Sorry I didn't get here yesterday...just adjusting to being back home 2 weeks of stuff to do can be overwhelming...

Jess had her blood work yesterday. Her hemo. is holding at 10.1 !!! Her liver numbers are much better!!
Her kidney function.....well her creatine is 1.5...When I asked at what point do we worry I was told 1.5, so I haven't heard anything much back from them my thought is they will wait til Monday and if it is still on the high side she will have to have an NG tube till she is up to drinking and eating more...we can't afford to loose this kidney as she only has the one working one.....She tries but really just doesn't seem to have it in her to drink what is required of her to get by, which is about 2liters a day....Please pray her kidney will hang on until we get her to understand the importance of drinking, this has been a battle with her since chemo days.....


On a better note, her best friend moved back to Hazleton she was thrilled they went to a basketball game last night and she had a great time! I am trying to talk her into her school Valentine's dance on Friday, no luck yet though...


Tommy, Jess says HELLO!!!! and thank you so much for her card! She says she does see you when you wave!! Thanks Louise!

Also Karen thanks so much for the card! It means so much to have friends we have never really met to reach out and make her smile!

Thank you from a very greateful mom, for all her cards, the thoughts and the prayers for my special girl!


We will be back with any news. Please keep in your prayers ALL the children here at Caringbridge as they need them to!

Many hugs,
Lynn

Saturday, February 7, 2004 2:31 PM CST

Hello!

We are HOME!!!!!

We came home yesterday things were so hectic so it has taken me a bit to get on here. I am sorry for the delay..

The test at Christiana showed NOTHING....so we still really don't have any answer to the bleeding, her hemo. has stayed steady for 2 days so we were allowed to leave. She will have blood work here on Monday and we will go from there. She has a clinic appt. next monday the 16th in Del.


She is so VERY happy to be home!!! I wanted to stay at the RMH one more night but she said please can we go home now so we did, I braved the lousy weather and drove home, all went well!!

Thanks for all the prayers, cards and thoughts for Jessie, she has once again came through a fighter!! Never doubt the power of prayer!

I'll update again soon.

Hugs,
Lynn

Wednesday, February 4, 2004 11:23 AM CST

Feb. 5th
HI,
Jessie will soon be on er way to CHristiana Hosp. here in Del. for a test to see where she may be bleeding near her liver. Yesterdays test showed unexplained blood near a duct to her liver. So this test will give them a better pic. and they will be able to fix it with a bit of foam??? Test like your plumbing?!?!?!?
Anyway she is sleeping again which is a bit unusual I suppose if you sleep it all goes away for awhile......
THanks so much for your guestbook entries and your prayers! Hugs to all of you! Please know we also continue to pray for all of you even though this slow computer doesnt allow me to always sign guestbooks we do check in.
Special prayers for our little friend KAtia today is her transplant day Please remember her and her family as they start this day one of many.

I will be back as I know more!
Love & Hugs,Lynn


Hello!
Thanks for checking in.
Jessie is still in the hosp. They thought maybe today would be the escape day.....but....yesterday early evening Jessie had a tar like stool which was clearly made up of blood...so...thne she had yet another about 6PM and then about 7:30 she had a blood (new) stool which was liquid. Yesterday after her transfusion her hemo. was 11.7 today it is down to 9 so they are looking at why....She is soon headed to a nucular stomach xray they aren't sur eit will show anything...So she will be going over to Christiana hosp. in the next couple days to have a more invasive study where she will be sleeping while they try to find the cause of the bleeding...Our Jessie always keeping us hoping and down on our knees.....

She says hello and don't worry she is feeling good, looking forward to heading home! Not sure though when that will be.

Karen,My hubby said there are cards at home we will let you know if it is there! Thanks so very much for thinking of her!!

I will update as I know things!
Thanks for the prayers and guestbook entries entries she checks them more then I can tell you! It gets lonely in here she says.....

Many Hugs,
Lynn

Monday, February 2, 2004 8:13 PM CST

Hi,

Today was an interesting day...
Jessie had am labs:
hemo=7.7 down from 10.2 on Friday
alt=54 up from 42 on Friday
ast=80 up from 35 on Friday
ggt=288 up from 147 on Friday

Basicaly what this means is she had 2 units of blood for the red count.
and All her liver numbers are on the high side.

They are not sure what is dropping her red count so they gave her blood today will do labs in the am and she is scheduled for an ultra sound sometime tomorrow. Please pray they find why her numbers are all over the place her white cells have dropped also....

On the other hand all she is complaining about is a headache..

Thanks so much for stopping bye and the family next to us thanks you for the prayers!

Hugs to all,
Lynn & Jessie

Sunday, February 1, 2004 4:23 PM CST

Hi!
Happy February!
Thanks so much for stopping by!
Jessie is doing much better today she went shopping in the gift shop with her room mate. She is a sweet young lady that Jess has roomed with before, keep her in your prayers to as she is need of a 3 organ transplant, to take place as soon as they are available!

Jessie is now abe to eat solid food. The problem is now she has to eat! She is so funny NPO I am starving....You can eat now I am not hungry...LOL...oh well she will come around.


I will be back with news as it happens.. :-)

Many Hugs,
Lynn

Please sign in if you stop by!

Friday, January 30, 2004 11:57 AM CST

***UPDATE***
Hi,
Jessie has been made NPO 3 letters she chooses not to hear.. They had to change her diet again due to the fact that her belly has become distended. They need to wait and see what is happening, please pray it is simple gas and she does not begin to get sick...
I will update with other news as soon as I have some...There are a LOT of sick children please keep them ALL in your prayers and thoughts!
Thank you!
Hugs,
Lynn




Hi!

Things continue to improve. Thanks to all of you for your many Prayers!!

We will be here it seems till at least Monday,maybe another week dependening on her antibiotics. Excuse speling errors.

Jessie asked me to say hello to you all and thanks so much for signing her guestbook it truly means alot to her! She says to tell you prayers are important and they work!

I will update as things change for now know all is ok!

She is in room 10a 3CSouth at AI Dupont Childrens Hospital Wilimington Dela.

Many Hugs,
Lynn

ps. Thanks Madeline & Delores for your friendship it means alot to both of us!

Thursday, January 29, 2004 11:02 AM CST

Hi,
Well things continue to look good.
Jessie was moved to a room on 3csouth she is so happy!
She got up today and took a walk, she still isn't eating anything but she will soon.....
Thank you for your continued prayers.

I will be back soon to update a bit more.

Many hugs,
Lynn & Jessie

Tuesday, January 27, 2004 12:03 AM CST

***UPDATE***
HI, Thanks for checking back. Jessie is still in PICU (Pediatric Intensive Care Unit)
She is doing ok and they feel they found the cause to be that her bowl was obstructed, so happy to know it isn't her liver bleeding as they had thought at one point.
The plan today is to wake her up more, the pain medicine has kept her pretty sleepy.
I will update again as things change. Once again I can't thank you enough for all you prayers for her!
Many hugs,
Lynn


Hello!

Well today should have been Jessie's last day of antibiotics...instead she is just getting out of the OR here in Delaware..

We ended up at our local ER last night around 10PM Jessie vomited (green) at home and became very dizzy and I feel she passed out. Upon arriving at our ER she had 3 seperate incidences were she vomitted ALOT of blood.She was given a unit of blood & 3 units of plasma, her hemo. was 7.1. My sister in law Lori was there and for her I am thankful she did the transfer with us which was great to have her along it helps so much when there is a familuar face. Thanks Lori!

We transfered her here and arrived about 4:30AM, once here they hung blood and at 8Am the docs came in and she was on her way to the OR, the results are intestine that was wrapped and blocked they were able to unwrap it without having to cut it. They also did an endoscope and found nothing.. She will be palce in PICU until they see how she does.. I will update as soon as I know anything I need to go see her I hope she is moved..

Please keep her in your prayers as I know you always do! We are so VERY thankful for all of you!

Many Hugs,
A very tired and scared mom.

Monday, January 26, 2004 12:16 AM CST

Hello!

Well today should have been Jessie's last day of antibiotics...instead she is just getting out of the OR here at Delaware..

We ended up at our local ER last night around 10PM Jessie vomited (green) at home and became very dizzy and I feel she passed out. Upon arriving at our ER she had 3 seperate incidences were she vomitted ALOT of blood.She was given a unit of blood & 3 units of plasma, her hemo. was 7.1. My sister in law Lori was there and for her I am thankful she did the transfer with us which was great to have her along it helps so much when there is a familuar face. Thanks Lori!

We transfered her here and arrived about 4:30AM, once here they hung blood and at 8Am the docs came in and she was on her way to the OR, the resukts are intestine that was wrapped and blocked they were able to unwrap it without having to cut it. They also did an endoscope and found nothing.. She will be palce in PICU until they see how she does.. I will update as soon as I know anything I need to go see her I hope she is moved..

Please keep her in your prayers as I know you always do! We are so VERY thankful for all of you!

Many Hugs,
A very tired and scared mom.

Saturday, January 17, 2004 8:35 PM CST

***UDPATE*** January 19th, Monday!
Dad came home today and so did Jessie!!!
I will be doing Jessie's meds here at home through her IV, was a bit scared but hey I think I can handle it. She will have them for another 8 days.
Thanks so VERY much for all your prayers!
Will update soon.


Hello,
So glad you have checked.
Jessie is at this moment in our local hospital… She was complaining yesterday of stomach pain, I left her go most of the day. Then she started to run a fever 102.9 before we ran to ER. Then when we arrived they need to stabilize her before moving her to Delaware, well she took a good turn quickly and they decided to keep her local. I am thankful! She on the other hand is not in a children’s hospital so she is “BORED” no child life nothing to do… The doc called before I left tonight and said it is a 10 day of antibiotics….soooooooooo she really isn’t happy… Her insurance won’t cover home health so she may be stuck there the whole time, I would be willing to do it but I don’t think they will let me, it’s funny in way after going through all this you do learn how things are done….sad but true.

I will keep you updated as to what is going on. Dad is doing well he may escape tomorrow, he is on the 4th floor and Jessie is on the 5th, so I have been elevator hopping all day!

If by chance you would like to send Jessie a card you can send it here at home and I will take it to her since I am not sure if she will come home or stay.

Jessica Rodriguez
307 East Chapel Street
Hazleton, PA 18201

The hospital is:
Jessica Rodriguez
Room #518
Hazleton Health Alliance
Broad Street Campus
Hazleton, Pa. 18201

Oh I am not sure about her echo of her heart that was scheduled for Monday; I will have to check that out on Monday. Again THANK YOU so very much for your continued prayers!

Many hugs,
Lynn

Friday, January 16, 2004 7:43 AM CST

Hello!

Are you keeping warm?!?!??!?? It is so cold here today the kids are home from school...

Jessie and I came home yesterday. Her hemoglobin was up from 9.6 to 9.9 so they left her come home. We return on Monday for her heart echo then Tuesday morning 8am labs to see how her blood is looking and hopefuly they will have the results of her echo. After I updated the other day we left RMH and went to a hotel since the house was already full, so sad, Louise our sweet Nurse Practitioner called the hotel to let us know that when they drew Jessies level they did all her numbers and her liver numbers have once again went up.... So she dropped off a script for Jess for PREDNISONE, she is back on her steriods for a couple days, and they have upped her Rapumune,rejection med, to 4mg from 2. They want to see if this will make a difference. They have no idea why they are rising..Except if there is a problem with her heart, they feel it might be one of her chemo drugs, adriamycin, this has side effect that can effect you heart functions. It would seem that some of he liver ducts are dialated and holding to much blood in her liver which would cause the raise in numbers, the reason the blood would be there is because the heart isn't pupming properly. This is what hopefuly the echo will tell us. Prayers go up and Blessings will come down.

My dad is doing very well! Thank you so much for your prayers. He has a bit of recovery, but I am sure he will do fine!

Many hugs,
I will update as things happen!
Love,
Lynn

Wednesday, January 14, 2004 2:46 PM CST

Hi,
Thanks for stopping by.

We are still in Delaware... Jessie had her byopsy and ultra sound yesterday. Today we got the results. Her byopsy shows that all is well as far as rejection or infection...
Her ulta sound shows some dialation of the ducts and to much blood present, which seems to mean that her heart is not pumping properly, so we will come back down on Monday to have an heart echo done..This is most likely a side effect from her chemo she had. So we shall see...It may explain why she is so tired all the time.


As we were preparing to check out of the RMH Jess had a Bloody stool (sorry) So we checked out of the house and went to the hosp. for a repeat CBC which showed her hemoglobin has dropped a point so we were asked to hang out another night, well the RMH is full and we gave up our room so they planned then to admitt Jessie and no beds there either...No room at any inns. :-) Well the RMH is putting us in a near by hotel so we can get to the hosp. quickly if need be. Any more of those stools and she will be admitted through the ER, which has children sleeping in the halls waiting for beds.. I find it so sad to see and hear of so many sick children... Please keep all children in your prayers..

We won't be home tomorrow for my dad...please keep him in your prayers, so his will be a quick recovery..

I will keep you all posted.

Thanks again so much for all you prayers & Thoughts we love each of you.
Many Hugs,
Lynn & Jessie

Monday, January 12, 2004 4:29 PM CST

***UPDATE***
We are off to Delaware, we need to be for ultra sound for 2pm, and a byopsy around 3pm. Please keep Jessie close in your thoughts and prayers. Today is also 3yrs since her original diagnoses and she is here to tell us all about it! Praise God!


Hello!
Thanks for stopping by!

As you may remember we had to return to AI, last week due to high liver numbers..While in Delaware her numbers were a bit better so we were to have levels done today here at home, Well they have gone up again so we will be returning this week sometime to AI. I am not sure when that will happen but I will keep you all updated when I know. I ask that you just remember her in you prayers as I know you already do. What they will do is an ultra sound of her liver and then go from there a possible byopsy may be needed to tell whether there is infection or rejection, so we shall see.

We are thankful for all you signings in the guestbook , keep them comin Jessie loves to read them.

I also wanted to let you know my dad will have his surgery on Thursday. As you may remember he was diagnosed with prostrate cancer in October, he will have it removed that day. Please keep him in your prayers. Thank you.

Many hugs & prayers,
Lynn

Wednesday, December 31, 2003 1:57 PM CST

Jan.7th
Jessie's counts were a bit better on Monday, the plan is to do more bloodwork this Monday and see how they are.
Thanks for all the prayers!



Happy New Year!
We are so thankful to be starting the New Year with
CLEAR SCANS!!!!!!
To Jesus are all the thanks!!!
Thank you to all our Prayer Warriors!!!
We love you!

Although Jessie’s scans are clear which as we said we are thankful, her liver numbers are all off…….never a dull moment for our Jessie, she loves to keep us hopping and down on our knees in prayer.
We go back to Delaware Sunday night for labs Monday morning and if all is still out of shape she will be having an ultra sound and then a possible Biopsy of her liver…….
I will keep you all posted.
Her numbers were as follows for those of you who know what they mean….
AST-120, normal 25-41
ALT-162, normal 30-65
GGT-125, normal 5-55
So you see they are a bit high……

Our prayer for each of you is a Very Happy & Healthy New Year!
Thanks so much for another year of prayers!
Many hugs to you all!

Monday, December 29, 2003 6:44 AM CST

Good Morning!
I pray all of you had a good Holiday!
I beleieve we all did! Jessie enjoyed Christmas, although I find it hard to buy for her when I think she has all she ever asks for...Spoiled?!?!??!? never....

We look forward to a brand new year. Hoping the Lord will help us handle what ever it brings for our family. There was a time the future didn't reallly phase me...Now I worry, suppose I should just go back to the old way... Whatever it may hold this year and the many to follow I am sure we can handle it with God's help as we have done so many times before.
As many know the ending to this year is met with such sadness for ALOT of Caringbridge familes we have lost way to many kids.... Please where ever you can help make a difference, donating blood, marrow or money we need a cures for childhood illnesses.

On Wednesday Jessie will be having her scans-CLEAR-scans I pray. I ask you will remember her when praying. I know you all aready do in that she is remaining healthy.

Thank you all for a wonderful year of friendship and prayers! Jessie loves all of you and loves to hear from you all!
May this year be all you pray for!
Many Hugs,
Lynn

Friday, December 19, 2003 2:55 PM CST

**New Pics**

Hello,
I am sorry it has taken so long to update...

We had a wonderful time visiting the Ronald McDonald House!
It looks just beautiful with it's Christmas lights!
The picture above is Jessie and Ronald, as if you all don't know that clown, Jess helped turn the lights on it was magical!

We also got to meet one of our little friends from here on Caringbridges, he also had a liver transplant at AI, he is a sweety! We also met his wonderful parents, it was so nice to finally meet someone you think of and pray for daily! Jessie enjoyed playing with Logan he is 2yrs old and she just loves the little ones!

Well Christmas is fast approaching, I was thinking today...next week this time it will all be over....Please always remember our Lord is always here and never is more than a prayer away.

Please also remember why we celebrate this season, and please remember all the families with an empty spot at there Christmas table this year... Keep all the families and children in your prayers!

Jessie has her scans scheduled for Dec. 31st, I pray we can move on from all this very soon... Or can you ever really breath again????


Merry Christmas!
Many hugs and Much love to everyone!!
Lynn

Tuesday, December 2, 2003 9:38 AM CST

****New Pics****

Happy December!
Wow! how this year has flown by.....

Our hope is that everyone had a nice Thanksgiving. Our prayers were with much Thankfulness as well as some saddness, over the firends who we have lost.... Please continue to pray for all the children on Caringbrides as well as the families who struggle with there losses....

Our pastor mentioned on Sunday how Christmas has changed...A women at our Walmart was trampled on "Black Friday" as she tried to get a bargain. Gift giving seems to have become such an issue that the true meaning has gotten lost....Why do we celebrate Christmas???? I know this year I am going to step back and remember.

Jessie continues to do well. She complains of aches and pains, but all considered she is well! For this I am so thankful.
She goes to clinic next week the 11th. We will be then attending the annual Lighting of the Ronald Mcdonald House, she will be flipping the switch to turn the lights on and I will be sharing how THANKFUL our family is for the services the house provides!
Her scans will be between Christmas & New Years, we will then see whats up. Till then we wait.

There are a few children that we are praying real hard for right now, Katia, Davin, Dustin, Rosie, Amy, Shell ...these are only a few, there are so many please pray for all of them and there families. This road is long,lonely and very scary. "Footprints" is what comes to my mind always remembering when things get rough He will carry you through.

Many hugs and prayers,
Jessies Mom

Sunday, November 23, 2003 9:03 AM CST

GoodMorning!

Things here continue to move along with all doing well!
We thank God each day for that!


As this holiday approaches I think of all I truly have to be thankful for, its amazing some of the things I take for granted.

My prayers are with all of the families who will face these holidays with a empty spot in there home, we will continue to pray for you as well as all who have losted that special loved one or ones, it really never seems to hurt less, just that you have learned to cope a bit better... I miss my mom so very much.....

I was asked to speak at the Lighting of the Ronald McDonald House in Delaware,for Christmas, although I don't find myself a good speaker, the house has meant so much to us that it will be easy to share our story. They truly are a GREAT service for families!

I hope all who visit will have a Blessed Thanksgiving, please know we continue to lift all of you in prayer.

If you have a moment let Jessie know you stopped in, she loves to see who visits!

Till Next time many (((((((HUGS))))))

A very Thankful Mom

Thursday, November 13, 2003 8:40 AM CST

****UPDATE****

Jessie's oncologist is willing to wait the 2 months! I am happy with this just hope we don't regret it....
My Dad is HOME!!! He came home late yesterday afternoon!



GoodMorning!

I am sorry it has taken so long for this update. Been waiting more info. Jessie blood work looks good. Her scan....well the lump is still on her lung, although they say it is not as puffy as it was last month.....They are willing to wait till after CHristmas to check again....I am waiting to hear from her oncologist to see if he thinks that is a good idea. Last month he said if it was still there he would have to at least byopsy it to check it out. As of this morning I don't know anything yet....Wait Wait Wait.....


As for my dad he had his surgery on Monday they put in 2 stents and angyoplasted(sp) the other 2. He is still in the hosp. though due to his kidney functions...I am hoping he will call soon and say he needs a ride home! :-)



Thank you for all your thoughts and prayers I will get back to you as soon as possible with other results....


Many hugs,
Much love.
Lynn

Friday, November 7, 2003 6:56 AM CST

GoodMorning?!?!?!?!

It is a good morning you know why??? Because I woke up, I am able to walk ,talk & see and for the most part I have good health,except for the getting old aches and pains :-), the Lord has chosen also to give me yet another day. For all of this I am thankful! There are people who don't have what I have...... So every day is a Good Morning!


Jessie continues to worry on she truly is my WORRIER!!! Her scans are on Monday hard to beleive a month is gone already, the dark circles under my eyes should not be a give away to my sleepless nights.... With all of you praying I can't imagine she is not going to be fine! THank you in advance..

For those of you who have been praying for my dad, I ask with all my heart for you to continue to lift him up. He had his Catherization yesterday....he has 6 blockages...1-100%, 1@90%, 2@40%, 2@20%, his aorta is also enlarged from his high blood pressure all these years....So the plan is to see if his aorta is 5 cent. larger then it is supposed to be if it is they need to do open heart surgery....then he will also fix blockages, otherwise he will just fix blockages with stents,and angiaplasty (sp)and treat the aorta with meds so it doesn't get any bigger. We should know more today as they did his heart CT yesterday as always we wait...HE is a bit down but strong in his faith! I just ask for continued prayers for him. Thank you!



As I have mentioned before we leave today for Lancaster for our annual Christian puppetry competion! Pray for the kids they have worked so hard! It was a difficult dession for me to go but my daddy insists...So I shall go. Have to listen to my dad. :-)


I hope all of you have a Great weekend, I will update as soon as I know anything! We love all of you and pray for you always!

Many hugs,
Lynn

Sunday, November 2, 2003 9:02 AM CST

GoodMorning,

Hope this Sunday finds things going well with all who stop by. I thought I would update quickly before heading off to church.

Jessie had a good week. She complains often of not feeling well, I think it all stems from her worry... She does that oh so well.... I see in my last update I messed up the date for her scans it will be Monday the 10th. THe lump under her arm has disappeared alot. So that looks promising that it was a simple blocked oil gland. Now my prayer is when the xray is taken so is the nodule gone.

I mentioned about the little boy from England that has the same tumor Jessie had, well he had his surgery on Thursday, they were able to remove the whole tumor,but not without some difficulty, please keep him in your prayers his name is Tommy .

Info on my dad..He will be admitted to hosp. on Tuesday, Wednesday a kidney doc will be seing him, yes in all this they now find he has some kidney difficulty his creatine is 2.2, I know when Jessie's is 1.1 she gets told to drink drink drink, so we shall see what that brings him, then please lift him in prayer on Thursday as that is when they will be looking at his heart. I don't have a time yet for the catherization, but I will update and let you all know how it goes. After all of this they should schedule him for the surgery to remove his cancer, I am so thankful his is slow moving...


This weekend coming, our church puppet team the, Mini Missionaries will be in a competition, this will be our 4th year! I was proud of my son the other day he explained to someone that we are Spreading the Gospel through our puppets and he really enjoys being able to share the Word in a fun way cause people seem to listen to puppets. Keep our team in prayer on Friday and Saturday. It takes place in a church in Lancaster Pa. I have a pic of one of there performances on the pic page. Will add more after competition. Jessie really missed doing this during her illness,but is glad to be back!


Well I have rambled enough I am sure... Need to run now before I am late.

We love you and Thank God each day for all of you! Remember the Caringbridge kids each time you pray the list is ever growing....

Many hugs, Lynn

Friday, October 24, 2003 4:20 PM CDT

Hello!

Well 2 weeks down and 2 to go..Scans are scheduled now for Nov. 11 @ 8:30am. The lump under her arm remains although appears to be a little smaller,so we shall see on Monday.

Jessie had a good week at school.She is feeling good she says it is because of all of your prayers! SO keep um comin! :-)

My dad had his stress test yesterday, unfortunatly he is in need of a Heart catherization, not sure of that date yet, so his other surgery is off till we see if his heart is ok....always something... huh... His faith is strong and he will be fine!

Today marks the one year anniversary of my mom's death,wow so hard to beleive....I miss you mom, so very much....

Thanks again for stopping by and checking in. We can't begin to thank you enough for all your prayers and kind words.

Oh, I can't beleieve it a mom from the UK contacted me her son has the SAME kind of cancer as Jessie....I have to admitt I never thought I would find anyone after how rare they strees it is...I am so thankful she contacted me it will be nice to talk with her.

Well I am hoping to have a good weekend, My prayer is all of you will to!

Many hugs and prayers,
Lynn

This prayer-poem was sent to me email, thought I would share it with you:

The Holy Alphabet


Although things are not perfect
Because of trial or pain
Continue in thanksgiving
Do not begin to blame
Even when the times are hard
Fierce winds are bound to blow
God is forever able
Hold on to what you know
Imagine life without His love
Joy would cease to be
Keep thanking Him for all the things
Love imparts to thee
Move out of "Camp Complaining"
No weapon that is known
On earth can yield the power
Praise can do alone
Quit looking at the future
Redeem the time at hand
Start every day with worship
To "thank" is a command
Until we see Him coming
Victorious in the sky
We'll run the race with gratitude
X alting God most high
Y es, there'll be good times and yes some will be bad,
but...
Zion waits in glory...where none are ever sad!

"I AM Too blessed to be stressed!" The shortest distance
between a problem and a solution is the distance between your knees and the floor.
The one who kneels to the Lord can stand up to anything. Love
and peace be with you forever, Amen.

Tuesday, October 21, 2003 3:28 PM CDT

Hello,

First let me thank you for all your prayers and birthday wishes they mean alot.

Jessie is doing ok, she now has a lump of some kind under her arm, I took her to her primary and he put her on yet another antibiotic in case it is a bacterial infection, possibly a blocked pore. So again we wait and see...3days it should be gone if not back to doc, he says then he will take it from there, he feels it will have to be removed and looked at. Waiting is so difficult in all this.


My dad continues to have great spirits and faith! He will do fine! After Thursday we will know when his surgery will be scheduled.

Please never take your family for granted, always hug them and tell them they are loved! It will be one year since I lost my mom on Friday it has gone so fast, yet some days it is hard to believe.... I still want to call and tell her things, it amazes me just how much I depended on her, for how independent I thought I was...NEVER think they will be there tomorrow, because tomorrow may NEVER come.Do it today and always!

Thanks so much again for stopping in, for your many thoughts and prayers. Jesus has been with Jessie thus far and He will continue to hold her in His palm of His hand!

Many hugs,
Lynn

Please Remember ALL the children of CB in your prayers!

Friday, October 17, 2003 10:29 AM CDT

Hello,

Well we have made it through week one. Jessie continues to do well. She broke down one night and cried about being worried...How do you comfort when you to worry the worst...I tried to comfort her in telling her no one knows what the future holds for her but no matter what Jesus and all of us would be behind her cheering her on! She really is a sweet girl. I do not like to see her worry.. They have started her on an antibiotic,just incase its a infection,she had a TB test,which thankfuly was negative. Her imunesupression is lowered during the antibiotic which is only 5 days , in 10 days then I can take her back up to full dose. I know I need not even ask ,but continue to keep her lifted in prayer. Thank you!!

My dad has made a choice also, he will have the surgery to remove his prostrate,I will keep updated on his date as soon as we know it.

Last year on this date I turned 40, today on this date I turn 39,hehehehe. Forever 39.....

We love you!
Keep the prayers going for all the kids here at CB, they NEED you.

Many Hugs,
Lynn

Friday, October 10, 2003 1:44 PM CDT

Hello,
Well the verdict is in......
We will be waiting one month, so many sleepless nights I am afraid..., I spoke with her oncologist this afternoon, he says we should wait to make sure it isn't just an inflamed nodule, after one month if it is still there they will either byopsy and or remove it. So it seems it is just a waiting game..... Not sure I am ready for this...


I have yet another prayer request, my father was diagnosed with prostrate cancer, he had a bone scan and it has not spread anywhere else, THANK GOD! He is making a desision to either do radiation or having it removed, pray the right desision is made! He is doing ok with all of this, me I am a worrier....


Thanks so much for all your prayers and support!

Caringbridge will be upgrading this weekend so it will be hard to update know I will as soon as possible, please just keep the prayers coming!

We love you,
Hugs,
Lynn & Jessie

Tuesday, October 7, 2003 9:50 AM CDT

******UPDATE*******
Please I don't know what to say ,just please PRAY!
It seems Jessie has a nodule on her lung. I am waiting a call from her Oncologist to see how we will proceed. As soon as I know I will update for now please PRAY PRAY PRAY




Happy October!!!

Sorry it has been awhile.. I have been trying to set Jessie's scans. They will be done this Thursday, October 9th @ 8:30am, I ask that you all pray for CLEAR scans! We will be going to Delaware for her scans. We will be leaving Wednesday night and stay at the Ronald McDonald House,home away from home the staff there are WONDERFUL! THey will be doing her normal labs and her oncologist ask that we test her thyriod due to her being so very tired all the time. So we shall see.

Since last I updated a young man that we jsut met through CB passed away his name was Dustin and just yesterday a baby just 12months old Noah left his earthly life, please keep these families in your prayers, they need to feel the presents of our Lord.


I will update again as soon as I know something about Jessie's scans and labs. THANK YOU so much for your continued prayers they truly are being answered here! Jessie is so happy when you sign her guestbook, it is the first thing she checks when she comes home from school.

Thank you so much for being there! We love you all!
Many hugs,
Lynn

Please Hug your children,grandchildren,neices,nephews tell them they are loved!

Please keep ALL the children in your prayers!

Thursday, September 25, 2003 0:04 AM CDT

Hello,
Hope this entry finds all at peace and feeling well.
Jessie is feeling GREAT these days for this we are very thankful!
So many of the children we follow aren't having such great days, I ask that you remember the children here at Caringbridge in your prayers as they need them all.

The picture on this page is Jessie in her new braids, I am a bit disappointed as they are coming out and have only been in a week. She is always playing with her hair... :-)

I have also added her journey to the top of the page, this way all will know the Miracle her life truly is!

I called Hershey for her scan appts. for next month haven't heard when they will be yet. Pray for clear scans it will be 2 yrs for her in Oct.

Well it is late and 6am comes quickly so I will go for now. Thanks so much for continuing to read Jessie's page and praying for her please sign in she loves to read your entries!

New pics were added today also!

Much love and Many hugs,
Lynn

Tuesday, September 16, 2003 11:43 AM CDT

Hello!

Sorry about the delay in journaling...

Jessie had clinic yesterday and did fine. Her liver numbers are a bit elevated, but nothing they are worried about. She is able to discontinue her actigal*given to help bile leave the liver* so we shall see.. She doesn't go back to clinic till Nov.20th we will do labs here next month. She is also due for her 6 month scans next month hard to believe six months have passed already... THEY WILL BE CLEAR....

I am doing fine thanks for all of the well wishes, we still aren't sure what the pain is they are to schedule scans of my bile ducts to look for stones, not sure when it will take place, till then I watch everything I put in my mouth don't want that pain back...

Please continue to pray for all the children...Hug your kids your family.....Make sure they know you love them.
This is a link to a little lady who would love to have you sign in and let her know you are praying.
http://caringbridge.org/fl/katia_leukemiapage/

Again thank you so much for your prayers!
Oh almost forgot Jessie has what may be a small frature of her big toe so she is limping around. They can't do anything for a broken toe so it is taped. Pray for her pain relief. :-)

Many Hugs & Much Love,
Lynn

Monday, September 8, 2003 9:27 AM CDT

***AJ passed away today please keep his family in your prayers..***
http://caringbridge.org/mn/ajtoivola/
Please let his family know you care..


GoodMorning!

I am sorry for the delay in journals...
Last Wednesday, the first day of school, I found myself in the ER here, not for Jessie but for me....I never got to put my kids off for the first day of school...I couldn't believe how sad I was.. I went in for a severe pain in my stomach, I believe I have an ulcer,self diagnose,LOL, well how about I ended up on the heart floor followed by a heart catherization...my doc is so cautious..I am FINE Praise God I have a good heart! Now back to my stomach, pain was relieved with nitro while I was in the hospital, so now I wait for the attack to come back,lol.... I go on Wed. for a Scope of my stomach so hopefuly we will see whats going on...

Now the reason you have stopped by! Jessie is doing GREAT! She is liking school, overwhelming at times but she likes it. We were scheduled for clinic today, but I wasn't able to drive the 2 hrs so we will do it next week.

Please continue to pray for the children we lost little Brittany last week.. We need lots of pray for little AJ and Katia, Michelle, and Taylor only to mention a few there are way to many.....

I will update again real soon.

We love all of you!

Many hugs,
Lynn

Tuesday, September 2, 2003 0:38 AM CDT

Hello,
It is very early on Tuesday morning...
Tomorrow,Wednesday, Jessie starts school as do all my children. I am so thankful to be sending them off, I need to stop and think about the parents who aren't so fortunate...Their child is either so ill.....or worse yet has left them and gone to heaven, while how wonderful for the child to longer be sick or in pain....the pain the parents feel.....I ask that as you read this page you stop and pray for the children who can't go to school and for the parents who will miss sending them off this year.... Take a moment today and every day to HUG aand LOVE your children, grandchildren, neices or nephews as we never know when or where this"Cancer Monster" will attack....

September is Child Hood Cancer Awareness month PLEASE where your gold pin if you have one check link above if you do not, write to your congress men and senator's make them aware of this childhood ender, so they can inturn make funds available for research.

My heart is so very heavy these past couple of days as i read children pages who have relapsed or are so fighting to breath and live, PLEASE keep all the children and their families in your prayers they so desperatly need all of you to pray!

I also have learned of a little 1yr. old in our area who is having trouble with his liver his name is Ethan, I ask that you lift him up , his mom still isn't sure why he is Yellow, pray it to be an easy fix....I worry so much for him having the liver knowledge I do...Wish I never learned it all, but glad to be able to help when I can.

Jessie goes back to AI, in Delaware next Monday for clinic, she has been complaining alot lately of being dizzy and headaches, please oh please let it be nothing...

I found the poem at the top of this page, it so sums up the feeling we all seem to have, Jessie's scans are next month and already my stomach is in knots..I wish we knew more about her cancer, so I could feel better about it NEVER rearing its ugly head again...

I hope I haven't rambled to much, but seems I was lead here...All I can ask is that you PRAY PRAY PRAY for these children! Only a few names, AJ, Katia, Brittny, Taylor, Michele& Ethan, there are MANY MANY more but these are ones who are needing it now, please don't think the rest do not, but these children are critical...

I love all of you for stopping bye, Please sign Jessie's guest book if only a Hello she loves to read your entries and looks everyday more then once to see who stopped by.

Many hugs,
One Lucky Mom
Lynn

Thursday, August 21, 2003 7:20 AM CDT

Goodmorning!
Jessie came home from camp last Saturday, she had a WONDERFUL time! She talks about it often. She had a great time at the dance, I come to find her "date" was 18yrs old and a leader in training, he made her a silk arrangement of flowers and made the dance a dream for her! Thanks Ryan!
She is already talking about camp next year!

My kids go back to school Sept. 3rd. We have been shopping to get ready, funny when they were little or younger I went to the store and got there clothes and done , now they want to pick and for some reason we never agreee...oh well I suppose I am getting old....

Jessie had blood work and all numbers are still good, just need to continue to work on drinking....

Thanks for checking in!
Many hugs,
Lynn

Please remember the Caringbridge families in your prayers.

Hi,
I found this in one of my earlier journal entries, I thought I would share it again:
AWESOME

This is almost overwhelming when you think about it.

You MUST read to the end: (smile)

Moses and the people were in the desert, but what was he going to do
with them?

They had to be fed, and feeding 2 or 3 million people requires a lot of food.

According to the Quartermaster General in the Army, it is reported that
Moses would have to have had 1500 tons of food each day. Do you know
that to bring that much food each day, two freight trains, each at least a
mile long, would be required!

Besides you must remember, they were out in the desert, so they would
have to have firewood to use in cooking the food. This would take 4000
tons of wood and a few more freight trains, each a mile long, just for one
day.

And just think, they were forty years in transit.

And Oh yes! They would have to have water. If they only had enough to
drink and wash a few dishes, it would take 11,000,000 gallons each day
and a freight train with tank cars, 1800 miles long, just to bring water!

And then another thing!

They had to get across the Red Sea at night. Now, if they went on a
narrow path, double file, the line would be 800 miles long and would require
35 days and nights to get through. So there had to be a space in the Red
Sea, 3 miles wide so that they could walk 5000 abreast to get over in one
night.

But then, there is another problem...............each time they camped at the
end of the day, a campground two-thirds the size of the state of Rhode
Island was required, or a total of 750 square miles long........ think of it!
This much space for camping.

Do you think Moses figured all this out before he left Egypt? I think not!
You see, Moses believed in God. God took care of these things for him.

Now do you think God has any problem taking care of all your needs?

I asked the Lord to bless you As I prayed for you today. To guide you and
protect you as you go along your way.......... His love is always with you,
His promises are true, And when we give Him all our cares, You know He
will see us through.

Our God is an Awesome God!!

So when the road you're traveling on seems difficult at best, just remember
I'm praying and God will do the rest.

Tuesday, August 12, 2003 9:03 PM CDT

***Update***
Jessie is going back to camp in the morning!! The new pic here on the page is her in her dress for the dance! Will update when she returns!
Hugs!!


Hi!
Well today Jessie came home from camp....Yes a few days early seems they think she may have pink eye...to me her eyes are so brite white, but I understand there concern....She has to take the eye drops for 2 days,today and tomorrow then she can return to camp on Thursday, only bummer is they go to Hershey Park tomorrow...so she misses that part of camp...she is sad but doin ok....

I will return her on Thursday though because they have a dance on Friday night and she has a DATE... How about that..LOL... So she got out her pretty yellow dress and is very excited! So I suppose it was ok that she come home since I didn't send a dress the first time. So we did all her laundry and repacked for the end of the week.

Hope all is well with everyone. Please continue to lift Jessie and all the children and families of Caringbridges up in prayer.

We Love you
Many hugs,
Lynn

Monday, August 11, 2003 7:52 AM CDT

Hmmmmmm.....

I updated Jessie's page yesterday.... The picture and background changed but not the entry.....

Hello!
Thanks so much for stopping by! Jess is at camp this week down in Lebeanon Pa. Camp Can Do! She was a bit reluctant to stay , but she did.

The picture above is from Easter My Beautiful Girls! My boys disappeared so that is why they are not there.. :-)

I hope everyone is well! Have a Great week and I will update when Jessie returns.


Hugs, Lynn

Wednesday, July 23, 2003 11:40 AM CDT

Hello!

It is nice that you took some time today to check in on Jessie!

She continues to do well! She is nervously awaiting camp on August 10th. She will be attending Camp Cando, which is a camp for kids with cancer. I beleive she will have a GREAT time she is not as sure... This is the first year I feel good about her going.The first year she was very ill, last year she had just had surgery, this year she is doing good! So I thought this was a good year for her to check it out! Hopfully there will be kids there for her to chat with and make some friends, it has been difficult to maintain friendships with missing so much school.

Well I hope you all continue to have a Great summer! Please continue to remember Caringbridge families and their children in your prayers!!!

Many Hugs,
Lynn

Wednesday, July 23, 2003 11:40 AM CDT

Hello!

It is nice that you took some time today to check in on Jessie!

She continues to do well! She is nervously awaiting camp on August 10th. She will be attending Camp Cando, which is a camp for kids with cancer. I beleive she will have a GREAT time she is not as sure... This is the first year I feel good about her going.The first year she was very ill, last year she had just had surgery, this year she is doing good! So I thought this was a good year for her to check it out! Hopfully there will be kids there for her to chat with and make some friends, it has been difficult to maintain friendships with missing so much school.

Well I hope you all continue to have a Great summer! Please continue to remember Caringbridge families and their children in your prayers!!!

Many Hugs,
Lynn

Friday, July 11, 2003 7:23 AM CDT

Hello!

I hope this visit finds all doing well!!!
Above is a 4th Of July pic of my dad and Jessica! That is my dad's famous birthday hat!!!

We went to clinic in Deleware yesterday, we saw both Jessie's Neurologist & our Transplant team! She did well at both appointments. She goes back for neurology in 6 months, they will wait 2 yrs before testing again for seisures if she is not having any at that time they will start to wean her off the meds....2yrs seems so long but I suppose thats how it is done. Transplant was funny! Jessie and her Aunt Tracie plotted to put a tattoo on her scar from transplant & of course Auntie found the perfect one! It said PRINCESS as you who know Jessie know what a princess she is!! :-) Well when they lifted her shirt I am not sure who laughed more Jessie or Louise(nurse practitioner) ...Then she went up to the office to show everyone else who thought it was great! Well her numbers yesterday were Good again! Thank you God!!! She goes back for clinic in 2 months. Her only number that wasn't so good was her creatine which is her kidney function. So she is to drink ,drink, drink! Which is pretty much next to impossible..lol...she realy isn't a drinker, but Louise explained to her as we have at least a hundred times before , you only have one kidney, ALL the meds you are on are damaging to your kidney so it is VERY important to flush you kidney well!! We are not sure when her one kidney stopped working if chemo did it in or if it was like that from birth... Pray she will pick up an extra glass of liquid each day!!!

Well we have a busy weekend ahead,Jessie was asked to go to a Golf tournament for Make A Wish, we have our church Sunday School picnic and he brother Colin sings in Church on Sunday! Then Monday starts our VBS at church, so busy days ahead! Keep us in your prayers as we continue to pray for all of you! It is a proven fact that prayers are answered, just wish sometimes they were answered with what are requests are.....Always remember when you feel you are all alone Jesus is right there waiting to hold you in His everlasting arms!!!!!!

God Bless,
Hugs,
Much Love,
Lynn & Jessie


*****NEW PICTURES*** from the 4th of July!

Thursday, July 3, 2003 10:49 AM CDT

Hello!

I am sorry for the lateness in my update....

Things continue to go well!! Praise God!

Before we left for vacation Jessie was having slight rejection of her liver, they upped her anti rejection med and she is back on track!

She really enjoyed her vacation, I hope to have more pictures up real soon. The above one is at the pool at our condo in Ocean City. (wishin it was "OUR" condo) LOL

Well I hope all have a safe and fun weekend. It's my dad's birthday first one without my mom.....won't be easy...The first year is tough......So many firsts.... My prayers and thoughts are always on the families who have to celebrate all the "firsts", not sure seconds or thirds will be any better.....

Big hugs to all who check in!!!
We love ya!

Lynn & Jessie

Tuesday, June 24, 2003 9:34 AM CDT

Hello!! From Ocean City Maryland!!!

We are having a great time so far!! No rain!!! It is 92 degrees!!!

Coming from PA it is like heaven!
Jessie is having a great time!! She is boogie boarding and swimming which is her favoite!

We will update on the weekend with some vacation pics!!
We love you all for checking in!

Big Hugs,
Lynn

Tuesday, June 10, 2003 6:43 AM CDT

Goodmorning!

Jessie continues to do well! She has a bit of a sore throat the last couple days, but over all is doing well.

Little Story:
Yesterday our phone rang, the caller ID says Hersher Medical Center, why is it that your heart stops beating and you think if you don't answer it will go away?!?!? Well I braved it and answered.. It was Jessie's oncologist, Dr Freiburg, just calling to see how Jessie was doing and to see if we could make an appointment to stop in and have bloodwork and let him check her out! Ya see Jessie's transplant team has been doing her scans to see all was clear, but we haven't been seeing her oncologist,which I have to admit at times worried me, well now those worries are over. He asked that he be able to check her out once a year for the next couple of years with her transplant team still doing her scans, that works Great for me. Jessie was so happy to talk to him on the phone, funny how absence makes the heart grow fonder. :-) We go to clinic on Wednesday for oncology in Hershey . Then on the 20th in Delaware for transplant and neurology, the day befroe we go on vacation aaaaaaahhhhhh all WILL be well!??!?!
I suppose the reason I started the story was because, I wonder will the fear ever go away?????? In my head I knew it wasn't anything because it has been a year since we saw him, but how quickly ALL that fear comes flying back....

Another thing I wanted to mention is we are officially one year since INPATIENT!!! I am so glad! I can remember thinking will it ever be normal again!?!??! We I can't say we are "normal" but I guess we are as close as we can be! LOL

Thank you for stopping by and reading my ramble, We love all of you and pray for our visitors always!
Please always remember the children of Caringbridges in your prayers there are so many.............

Tons of hugs,
Lynn

Tuesday, June 10, 2003 6:43 AM CDT

Goodmorning!

Jessie continues to do well! She has a bit of a sore throat the last couple days, but over all is doing well.

Little Story:
Yesterday our phone rang, the caller ID says Hersher Medical Center, why is it that your heart stops beating and you think if you don't answer it will go away?!?!? Well I braved it and answered.. It was Jessie's oncologist, Dr Freiburg, just calling to see how Jessie was doing and to see if we could make an appointment to stop in and have bloodwork and let him check her out! Ya see Jessie's transplant team has been doing her scans to see all was clear, but we haven't been seeing her oncologist,which I have to admit at times worried me, well now those worries are over. He asked that he be able to check her out once a year for the next couple of years with her transplant team still doing her scans, that works Great for me. Jessie was so happy to talk to him on the phone, funny how absence makes the heart grow fonder. :-) We go to clinic on Wednesday for oncology in Hershey . Then on the 20th in Delaware for transplant and neurology, the day befroe we go on vacation aaaaaaahhhhhh all WILL be well!??!?!
I suppose the reason I started the story was because, I wonder will the fear ever go away?????? In my head I knew it wasn't anything because it has been a year since we saw him, but how quickly ALL that fear comes flying back....

Another thing I wanted to mention is we are officially one year since INPATIENT!!! I am so glad! I can remember thinking will it ever be normal again!?!??! We I can't say we are "normal" but I guess we are as close as we can be! LOL

Thank you for stopping by and reading my ramble, We love all of you and pray for our visitors always!
Please always remember the children of Caringbridges in your prayers there are so many.............

Tons of hugs,
Lynn

Friday, May 30, 2003 9:40 AM CDT

******UPDATE*********
June 2, 2003, Monday
Little Anthony passed away this morning.... :-(
He has been a great little fighter!
Please take time and pray for his family.
his site is: http://www.caringbridge.org/page/anthonym/

*****UPDATE******
Little Jalen has now also passed away... :-(
Please pray for his family.....why oh why??????
http://www.caringbridge.org/fl/jalen/


Goodmorning!!!

Thanks for stopping by!!!
We love your visits and smile at each guestbook entry!!

Jessie continues to do GREAT!!! Praise God!!!
Her best friend at school is moving away today, about 2hrs from us...She is sad...Her loss of friends has been final up until this one I try to reassure her she can keep in touch!!! Still sad for both of them good friend aren't always easy to find.....

Jess goes to clinic on June 16th, then thaat weekend we off to Ocean City MD., for a whole week!! There will be 12 of us in one house!!! Fun?!?!??! Hey we will all be together thats what matters!!

There are 2 little guys we follow here who need some extra prayers these days, Jalen & Anthony.Please keep them very close in your hearts and there families as well!

Hopefuly this will post as the last update I did I lost....

We Love ya!
Hugs,
Jessie & her mom

Thursday, May 22, 2003 6:22 PM CDT

Hello!

Sorry it's been awhile...
Things here are going good, Jessie's headaches have subsided!! My conclusion is that it must have been the seizures that were causing the pain, or should I say the lack of sleep ,because of the seizures she wasnt sleeping well at all. I would get up in the middle of the night and she would be awake, now she sleeps so soundly.

She is sleeping over her friends tonight , so mommy goes through withdrawl....lol...I am so use to her being right here so sad huh...

Well I hope all who check in are doing well! We really do apprieciate your visits, thoughts and prayers! Please know we pray for all families here on Caringbridge!

Hugs to all!!!
Lynn

Thursday, May 22, 2003 6:22 PM CDT

Hello!

Sorry it's been awhile...
Things here are going good, Jessie's headaches have subsided!! My conclusion is that it must have been the seizures that were causing the pain, or should I say the lack of sleep ,because of the seizures she wasnt sleeping well at all. I would get up in the middle of the night and she would be awake, now she sleeps so soundly.

She is sleeping over her friends tonight , so mommy goes through withdrawl....lol...I am so use to her being right here so sad huh...

Well I hope all who check in are doing well! We really do apprieciate your visits, thoughts and prayers! Please know we pray for all families here on Caringbridge!

Hugs to all!!!
Lynn

Friday, May 9, 2003 8:08 AM CDT

***** Happy Mother's Day! May God Bless each and every one!*****


Goodmorning!!
God Bless Each of You!!!!
You all truly are a blessing to us!!
Your entries for Jessica's birthday were so heartfelt!
The smiles on her face were Priceless!


We went to clinic yesterday and with Great relief I can say ALL is WELL!!! Praise God for all answered prayers!
The docs all felt she looked Terrific!!!!
The cyst is just a cyst!
Her blood levels are coming down again nicely so all is well! I even got permission for her to travel out of the country! We are hoping to take the kids to Trinadad later this summer. Although we will be taking them half at a time due to finances, but they will all get there soon, they look forward to seeing where daddy grew up!

I ask that you continue to pray for all the children here at caringbride they all need you prayers! God Blessings to all!

Hugs,
Lynn

Friday, May 2, 2003 7:23 AM CDT

****Doc Update****
Doc says just a cyst! She goes on Thursday to clinic so I will get another opinion, but I am happy with what her primary says it is. We just need to watch it.
Thanks for all your prayers!!
We are off to enjoy her birthday dinner!!!


****Update**** Jessie found a small lump this morning...Please pray it is nothing. We go to doc at 5PM today I will update after. Thanks for your prayers.



***New Pictures***

Good Morning!!!!

Happy Birthday to you, Happy Birthday to you, Happy Birthday Dear Jessica, Happy Birthday to you!!!!!!

Today is Jessie's 12th birthday!!! I am so thankful for this birthday!! If you have a chance and you are here already please sign Jessie's web page!!

Last year at this time Jessie was in the hospital, I woke early and decorated her room while she slept when she woke she was so suprised to see everything, she asked me who did this??? I told her the birthday fairie who else????

While I was away she did fine as I knew she would! Me well thats a different story..lol.. I missed my kids a whole bunch, but I have to admitt it was BEAUTIFUL there!! temps of 95 every day no rain,and guess what in the tropics there is no snow!!! As we all know after the winter we had I could have stayed forever!! I ask my hubby to return home and send the kids to me!!!

Well enjoy your day! I know I myself have so much to be thankful for!!!!

Please keep in your prayers the families here at Caringbridges, while I was away 3 families lost there young sons.....We need a cure!

Hugs to all!!
Thanks again to all of you who checked in on Jessie she was thrilled!!!

Lynn













2 Years of a Brand New Life!!!



I am so Happy to introduce my sister Tracie, Jessica's Auntie, who was more then happy to donate a section of her liver to Save Jessica's Life for this we will ever be thankful!!!! The following is an entry for a donor book that our wonderful Transplant team is putting together: "On April 3rd 2003 it will be 2 yrs that I donated my liver to save my niece, Jessica's life. I've been asked to write how it feels to be a donor... Simply put.... It is in giving that we recieve the most. My life was a gift, it has been an honor to give that gift back and if I had to do it again, there is no doubt in my mind and in my heart that I would do it again.. It is by God's Grace that we go on... It is in God's love that we share life!!" Prayerfully yours, Tracie

Friday, May 2, 2003 7:23 AM CDT

Good Morning!!!!

Happy Birthday to you, Happy Birthday to you, HAppy Birthday dear Jessica, Happy Birthday to you!!!!!!

Today is Jessie's 12th birthday!!! I am so thankful for this birthday!! If you have a chance and you are here already please sign Jessie's web page!!

Last year at this time Jessie was in the hospital, I woke early and decorated her room while she slept when she woke she was so suprised to see everything, she asked me who did this??? I told her the birthday fairie who else????

While I was away she did fine as I knew she would! Me well thats a different story..lol.. I missed my kids a whole bunch, but I have to admitt it was BEAUTIFUL there!! temps of 95 every day no rain,and guess what in the tropics there is no snow!!! As we all know after the winter we had I could have stayed forever!! I ask my hubby to return home and send the kids to me!!!

Well enjoy your day! I know I myself have so much to be thankful for!!!!

Please keep in your prayers the families here at Caringbridges, while I was away 3 families lost there young sons.....We need a cure!

Hugs to all!!
Thanks again to all of you who checked in on Jessie she was thrilled!!!

Lynn













2 Years of a Brand New Life!!!



I am so Happy to introduce my sister Tracie, Jessica's Auntie, who was more then happy to donate a section of her liver to Save Jessica's Life for this we will ever be thankful!!!! The following is an entry for a donor book that our wonderful Transplant team is putting together: "On April 3rd 2003 it will be 2 yrs that I donated my liver to save my niece, Jessica's life. I've been asked to write how it feels to be a donor... Simply put.... It is in giving that we recieve the most. My life was a gift, it has been an honor to give that gift back and if I had to do it again, there is no doubt in my mind and in my heart that I would do it again.. It is by God's Grace that we go on... It is in God's love that we share life!!" Prayerfully yours, Tracie

Friday, May 2, 2003 7:23 AM CDT

Good Morning!!!!

Happy Birthday to you, Happy Birthday to you, HAppy Birthday dear Jessica, Happy Birthday to you!!!!!!

Today is Jessie's 12th birthday!!! I am so thankful for this birthday!! If you have a chance and you are here already please sign Jessie's web page!!

Last year at this time Jessie was in the hospital, I woke early and decorated her room while she slept when she woke she was so suprised to see everything, she asked me who did this??? I told her the birthday fairie who else????

While I was away she did fine as I knew she would! Me well thats a different story..lol.. I missed my kids a whole bunch, but I have to admitt it was BEAUTIFUL there!! temps of 95 every day no rain,and guess what in the tropics there is no snow!!! As we all know after the winter we had I could have stayed forever!! I ask my hubby to return home and send the kids to me!!!

Well enjoy your day! I know I myself have so much to be thankful for!!!!

Please keep in your prayers the families here at Caringbridges, while I was away 3 families lost there young sons.....We need a cure!

Hugs to all!!
Thanks again to all of you who checked in on Jessie she was thrilled!!!

Lynn













2 Years of a Brand New Life!!!



I am so Happy to introduce my sister Tracie, Jessica's Auntie, who was more then happy to donate a section of her liver to Save Jessica's Life for this we will ever be thankful!!!! The following is an entry for a donor book that our wonderful Transplant team is putting together: "On April 3rd 2003 it will be 2 yrs that I donated my liver to save my niece, Jessica's life. I've been asked to write how it feels to be a donor... Simply put.... It is in giving that we recieve the most. My life was a gift, it has been an honor to give that gift back and if I had to do it again, there is no doubt in my mind and in my heart that I would do it again.. It is by God's Grace that we go on... It is in God's love that we share life!!" Prayerfully yours, Tracie

Monday, April 21, 2003 7:15 AM CDT

GoodMorning!

I trust everyone had a Great Easter holiday!?!?!

It was a very emotional weekend for me, it is coming up on 6 months that my mom passed away....I am not sure how people make it through with no emotion...I thought alot about the parents out there who have lost there child, how difficult the holidays can be....I prayed extra hard for them these past couple a days...

Jessica was confirmed this Sunday in church! That was quite emotional to... There she was just standing there looking so good, I of course remember 2yrs ago when we escaped form the hospital to come home for Easter, she was very ill then, so to look at her yesterday was an ABSOLUTE MIRACLE the Lord has been so good to her!!! Congrads Jessie on yet another milestone in your life!!! I look forward to graduation, college, marriage, and Grandbabies, spoil them and send them home!!!!

Well Colin and I leave for Trinadad on Wednesday we will be gone for a week!!! I have to say with mixed feelings I can't wait!!! My dad and sister will be caring for the children while we are gone!
I ask that if you have a minute while I am gone sign Jessie's page I know it will bring a smile to her face! She is dreading me being gone, but I know she will do fine!!! It's funny I think I need a break, then when I get it I am not sure I want it......I have to admit I look forward to white sandy beaches and chrystal blue waters!!! and WARM weather this winter has been rough.... I will think of you all and I won't forget you all in my prayers, wish I could take all of you with me!!!!
I won't have access, I don't think to a computer, but know I will update when I return!

We had a very nice weekend. We have company from New York, Our niece and Colin's grandmother. It has been really nice visiting with them.

I will try and add new pics of Jessie's confirmation before I leave! New pic on top is a pic from her party it was the cake!!!

Love you ,
Hugs,
Lynn



2 Years of a Brand New Life!!!



I am so Happy to introduce my sister Tracie, Jessica's Auntie, who was more then happy to donate a section of her liver to Save Jessica's Life for this we will ever be thankful!!!! The following is an entry for a donor book that our wonderful Transplant team is putting together: "On April 3rd 2003 it will be 2 yrs that I donated my liver to save my niece, Jessica's life. I've been asked to write how it feels to be a donor... Simply put.... It is in giving that we recieve the most. My life was a gift, it has been an honor to give that gift back and if I had to do it again, there is no doubt in my mind and in my heart that I would do it again.. It is by God's Grace that we go on... It is in God's love that we share life!!" Prayerfully yours, Tracie

Thursday, April 17, 2003 10:54 AM CDT

Good morning!

I sit here each day and read about many children who are surviving, fighting, and loosing this battle... I ask myself why ??? Why some go on, why some do not.....

Many, many years ago our Lord was placed on a cross to die,while His mother watched. Three days later He arose from the dead and continues to live!!!

I think each one of our children are a gift from God! Each child who leaves us I beleive becomes and angel! One free of pain and all that went along with the sickness they had, had being the best word they are now free!!!! Why they couldn't be free here, I will never know until the day I am home with them!

I am not sure why I felt to write my thoughts today , but they were laying so heavy on my heart I thought maybe you wouldn't mind if I vented a bit.

I love alll the families we have come to know here on Caringbridge and are very thankful for all there support! I hope we are able to support each of you also.

The reason you check in: Jessie is doing VERY well! She has so far adjusted to her new seizure med. I pray they are under control! She seems to be sleeping a bit better then before. She continues though to complain about headaches, it will take till June to get her meds where they need to be....So we shall see if by then we can also control her headaches...

I hope all of you have a nice Easter holiday, I ask that you take a minute to stop and remember what it all means! "Be still and know He is!!" ALIVE!!!!

GIVE YOUR kids a BIG HUG and tell them that you LOVE them!!!!!

Hope I haven't rambled to much....
Hugs to all,
Lynn a Blessed Mom!

Sign in and let us know how you are!!!

Thursday, April 17, 2003 10:54 AM CDT

Good morning!

I sit here each day and read about many children who are surviving, fighting, and loosing this battle... I ask myself why ??? Why some go on, why some do not.....

Many, many years ago our Lord was placed on a cross to die,while His mother watched. Three days later He arose from the dead and continues to live!!!

I think each one of our children are a gift from God! Each child who leaves us I beleive becomes and angel! One free of pain and all that went along with the sickness they had, had being the best word they are now free!!!! Why they couldn't be free here, I will never know until the day I am home with them!

I am not sure why I felt to write my thoughts today , but they were laying so heavy on my heart I thought maybe you wouldn't mind if I vented a bit.

I love alll the families we have come to know here on Caringbridge and are very thankful for all there support! I hope we are able to support each of you also.

The reason you check in: Jessie is doing VERY well! She has so far adjusted to her new seizure med. I pray they are under control! She seems to be sleeping a bit better then before. She continues though to complain about headaches, it will take till June to get her meds where they need to be....So we shall see if by then we can also control her headaches...

I hope all of you have a nice Easter holiday, I ask that you take a minute to stop and remember what it all means! "Be still and know He is!!" ALIVE!!!!

GIVE YOUR kids a BIG HUG and tell them that you LOVE them!!!!!

Hope I haven't rambled to much....
Hugs to all,
Lynn a Blessed Mom!

Sign in and let us know how you are!!!

Monday, April 7, 2003 3:39 PM CDT

Hello!
Praise God!
Jessica has now completed 2 years of her new life! It is hard for me to believe that it has been 2yrs... As Mary Lee said in the guest book, it diffently has been a happy & sad journey, we have been angry, confused, up & down.....
Well I want you to know today we are so thankful for the whole journey ! We have learned alot we have cried alot, we have made terrific new friends we have lost friends. It truly has been quite a rollercoaster ride. I have to say I wouldn't change a thing....except to say I wish childhood cancer NEVER came to be....

We Celebrated Tracie's gift to Jessie on Saturday the 5th, as you all know it was a complete surprise! I can't beleive we pulled it all off!
I spoke to everyone about Jessie's journey, before all this I wasn't a speaker at all, it has become easy though to share Jessie's story because it has been such a blessing to see how God worked in her life and all of the "angels among us" that helped us along the way! Jessica's brother sang Alabama's Song, "Angels Among Us" it was BEAUTIFUL he to is an "angel among us" it was so very touching as he sang he looked in Jessie's eyes, needless to say the words brought tears to many eyes! I thank a little boy's dad on Caring Bridges for sharing this song on his site, I never heard it before and it fit our story so very well!
There were 100 people in attendance, it really was an honor to stand in front of all of them and to thank them for all they to have done during this journey, each one of them to an "angel"! We were honored to have one of Jessie's aides there Kris she was one of the "angels among us" while we were in Deleware, she used to come in on her time off and read to Jessie, she was a blessing to Jess and myself! Also in attendance was a Great new friend we have Madeline,she to was one of our "angels among us", she helped me out on Mother's Day, I was able to spend time at home with my other children while she kept Jessie company in the hospital, this way I could spend half the day with my kids at home and the other back with Jessie! She was there all the time it was so nice to have her to run to! We met her at our "Home away from Home", The Ronald Mcdonald House the volunteers although I feel now they are family!!they are wonderful!! Although those in attendance are only a small piece of this puzzle we thank all who have made our puzzle complete!! All of you are angels in our eyes!! WE LOVE YOU ALL!!!!

Thanks to all Jessies Medical Angels we thank God each and every day for all of you!!!!!

I am so Thankful for my sis & the gift she gave Jessie!

Please remember when doing you DL to add that you will be a donor it saves!!!

Hugs to all!!!

Tuesday, April 1, 2003 5:20 PM CST

Hello & Happy April!!

Well it is hard to believe, in just 2 days it will be 2yrs!! Since Jessie's transplant!

It is kinda like a "second birthday" for her!

I will update again soon. I am not feeling well but wanted to check in here and say Hello & we love all of you!

PLEASE SIGN THE GUESTBOOK!!! Begging I suppose.....


Hugs,
Lynn

Thursday, March 27, 2003 10:12 PM CST

Hello!
Sorry it has taken a bit to update...
Praises are to be said !! Jessie's 6 month scans still are coming back CLEAR!!!!
We haven't gotten the results of the MRI yet.
The unfortunate news is that her EEG showed that she IS having seizures.... They have put her on a new medicine for them. They have also decided that her migranes may be coming form the seizures so we are waiting out the new meds and see what happens. If the headaches don't stop they will need to add another med, so we shall see the waiting begins...
Thanks to all of you who prayed for her this week it has been a hectic and stressful one at that. I am so thankful for the clear scans, not happy about the seisures but hey we can control them with meds, the C monster can get way out of control.

The plans for the upcoming celebration are going well! If anyone reading would like to attend email me and I will fill you in!

Please all take care , stop and enjoy the spring!!!
Hug those kids!!!

Hugs and prayers to all.
Lynn, a very thankful mom!

Thursday, March 27, 2003 10:12 PM CST

Hello!
Sorry it has taken a bit to update...
Praises are to be said !! Jessie's 6 month scans still are coming back CLEAR!!!!
We haven't gotten the results of the MRI yet.
The unfortunate news is that her EEG showed that she IS having seizures.... They have put her on a new medicine for them. They have also decided that her migranes may be coming form the seizures so we are waiting out the new meds and see what happens. If the headaches don't stop they will need to add another med, so we shall see the waiting begins...
Thanks to all of you who prayed for her this week it has been a hectic and stressful one at that. I am so thankful for the clear scans, not happy about the seisures but hey we can control them with meds, the C monster can get way out of control.

The plans for the upcoming celebration are going well! If anyone reading would like to attend email me and I will fill you in!

Please all take care , stop and enjoy the spring!!!
Hug those kids!!!

Hugs and prayers to all.
Lynn, a very thankful mom!

Monday, March 24, 2003 9:25 PM CST

****Wednesday, 3-26-2003*****
Jessie has been doing well here! Her blood counts are fine, so far we haven't heard anything about her scans(no news is good news I am praying!) except the MRI we did last night needs repeating tomorrow at 7:30am, then she will see the neurologist at 9:30 and if all is ok we are out of here... It has been nice to visit, but I stress visit, as I sit here I can help but think how thankful I am to have been home now for almost 9 months. So many new faces, and I worry about the old ones still here still battling.. Pray for all the children all over the world the sick as well as the healthy!
WE are SO PROUD of Jessies NP she became a Doctor yesterday!!!! Way to go "Dr. Kathy" we love you & wish you the Best!!
I will update more as I know the results..
Love and many Hugs to all of you!
Lynn


Hi!
I didn't think I would be updating already.....

Jessie came home today from school today with another "pain in her head" she says its not like a headache, so we are off to AI DuPont tomorrow early.. She is scheduled for an EEG,not sure what time for this one and then an MRI of her head at 6pm tomorrrow night... We will be staying at the Ronald Mcdonald House for the next couple days. I will keep all posted on what's happenin.
Please as always keep her in your prayers....

Hugs,
Lynn, a worried mom....

Friday, March 21, 2003 6:56 AM CST

HAPPY SPRING!!!!!

Hello!
Thanks so much for stopping in!
Jessie went to the eye doctor this week, good news her script hasn't changed very much, so we are glad for that! She has been complaining about headaches again and also being dizzy...she also had a "spell" I am not sure it if it was a petit mal seizure????? Sooooo we are doing her scans including her head and also a EEG when she goes back to clinic, I ask that you pray we find nothing.

Jessie continues to go to school everyday all day and do well in her subjects! She is your typical 11 yr old girl! Presently she likes to tip her hair with "blue" gel!!
There are a many children on Caringbridge who need your prayers please remember each of them and there families.

May God Bless each of you!
We Love you!
Hugs,
Lynn & Jessie


PLEASE PRAY FOR OUR TROOPS!!!!

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Thursday, March 6, 2003 9:41 AM CST

Goodmorning!
I truly hope all that check in today are doing well!
Once again we are sitting and watching the snow fall. I love to watch it, but I think we have had enough! :-)
I am feeling pretty much like a snowman(women)! Kids are home today because of weather, I have to admitt we were cuddling in my bed earlier this morning and it was awesome to feel there warmth.
, and hearing there giggles!! :-)

Jessie had blood work done yesterday, things are still ok?!?! Her GGT's( this is a blood test that tells us if the bile is being taken from the liver this has ALWAYS been a problem for Jessie) as you know if you have been following it has been dropping so very nice!! Yesterday though it has doubled, on its way back up....My thought is its a fluke the lab made a boobooo... We shall see next week she needs to get more blood work.

Praise God! Colby the little boy I told you about on my last entry, it looks like Prayers have been heard he has not relapsed!!!!! Check in on him and his family!http://www.caringbridge.org/pa/colby
They would love to hear from you!
The young mom I spoke of has passed away, please keep her husband and 2 young children in your prayers.

We LOVE all of you!!!
Many hugs and God's Blessings to all of you!!!

Love Lynn, Mom to 6 wonderful kids!!!!!

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Monday March 3, 2003 @ 5:40 EST

Hello, every one I hope you all had a nice weekend it was ok here I do not need to go to
Delaware till April YaHOOO 2 month and then I get to see the nurse that took care of me
They are really special people I would like to thank them for all their hard work while I was in hospital I would like to thank the doctors that help me though the time of need and all of you for checking in on me so often! I love all of you!! If you didn’t already guess it is me Jessie my mom finally let me write!!!





What Cancer Cannot Do

Cancer is so limited....

It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot eat away peace.
It cannot destroy confidence.
It cannot kill friendship.
It cannot shut out memories.
It cannot silence courage.
It cannot invade the soul.
It cannot reduce eternal life.
It cannot quench the spirit.
It cannot lessen the power of the resurrection.

If an incurable disease has invaded your life, refuse to let it touch your spirit. Your body can be severely afflicted and you may have a great struggle, but if you keep trusting Gods love, your spirit will remain strong.

~Author unknown ~

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Monday February 17th, 2003

Hello!
I hope this entry finds everyone doing well!
Jessie and everyone here is doing well, if we were snowmen and women we would be just loving it!!! We have had about 18 inches of snow and it just continues to fall! This winter I have felt like I am trapped inside of a snow globe and whoever ownes it REALLY enjoys seeing the snow fly!
On Friday,Valentine's Day, it was National Organ and Tissue Donor day, I missed this, but it wasn't intentional. This is so VERY IMPORTANT for each of us to take time and really think about being a donor whether it is blood, organs, marrow,tissue, now or when we leave this earth, there are SO MANY people in need of all of those things MANY children as well as adults. Please I am begging you as a Mom who had a child who benefited from donation, DO IT, it will make you feel good that you have helped someone somewhere. I know in being honest I never thought of it I was always an organ donor on my licsense, but now I seee there are things I can be donating while I am alive to, are bodies are a wonderful gift from God, they replace what we give so PLEASE GIVE!

The Spring will be here soon, the beginning of NEW life, Why not try now to give a new chance at life!?!?!?!

Once again thanks for stopping by! Jessie's just loves to read all your entries, please take time and let her know you were here! The counter tellls us you stop in why not say Hello!!!

Hugs & MUCH love,
Lynn


Below is a picture of the Childhood Cancer Aweness Tree, that displayed gold ribbons with the names of children who have battled or continue to battle this AWEFUL monster.

What Cancer Cannot Do

Cancer is so limited....

It cannot cripple love.
It cannot shatter hope.
It cannot corrode faith.
It cannot eat away peace.
It cannot destroy confidence.
It cannot kill friendship.
It cannot shut out memories.
It cannot silence courage.
It cannot invade the soul.
It cannot reduce eternal life.
It cannot quench the spirit.
It cannot lessen the power of the resurrection.

If an incurable disease has invaded your life, refuse to let it touch your spirit. Your body can be severely afflicted and you may have a great struggle, but if you keep trusting Gods love, your spirit will remain strong.

~Author unknown ~

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Tueday, February 4, 2003 3:32 PM CST

WOW
Jessica is doing fantastic!! Are you ready her GGT'S are 50 yes 50 they have never been that low in 2 yrs!

Prayers go UP
Blessings come down!!!

As you all have read Jessie went to clinic on Monday, her counts were wonderful, what can I say they were the best they have ever been!!! For this we PRAISE GOD!!!!!!

Yesterday was National Live Donor Day, thank God for all of these WONDERFUL GIVING people!!!
I have placed a picture of Jessie and my sister on the photo page, for some reason I was unable to get it on front page. If you have a minute and want to email her and let her know what a selfless thing she has done, traseadea@aol.com is her email. My sis was asked to write about being a donor, I want to share it with you,
"On April 3rd 2003 it will be 2yrs that I donated my liver to save my niece, Jessica's life.. I've been asked to write how it feels to be a donor... Simply put.... It is in giving that we recieve the most. My life was a gift, it has been an honor to give that gift back and if I had to do it again, there is no doubt in my mind and in my heart that I would do it again.. It is by God's Grace that we go on... It is in God's love that we share life!!
Prayerfully yours, Tracie

We Love you Aunt Tracie!!!!!!

Thanks to all of you for checking in we love you and keep those prayers going up , cause those blessings WILL come down, remembering in His time, not ours.


Hugs to you all!
Lynn & Jessie!!

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Friday, January 31, 2003 at 12:03 PM (CST)

Hello,
As we close out another month, I sit and think how this new year has begun.

There are lots of things we can be thankful for as well as tons of sadness for some families..... I do believe a statement that has been floating around to be my fealing through all of this:

If the Lord brings you to it, He will bring you through it!
AMEN Praise be to our God!

Another favorite of mine is, Prayers go and BLessings come down. Although I sit and think of that, how about when we pray and the outcome isn't what we had hoped for?.?.?
I suppose then the other comes into play, If He brings us to it, He will bring us through it.


Jessie continues to do really well, all the kids at her school have been coming down with the flu, she had her flue shot so I pray it will pass her by. Her last blood test showed her WBC at 2.4...hhhmmmmm We are not sure why any ideas??? Her last round of chemo was October 2001. I suppose we will just keep a watch, could actually be her rejection drugs. Praise God though she is feeling GREAT!
We go to clinic on Monday , haven't been there since Oct. WOW I never thought it we ever be so long! "Praises" It truly is because of God, our docs & nurses, and of course because of ALL OF YOU for your continued prayers and thoughts SHE has gotten so far!! Thanks be to God for ALL of you!!!
If you are reading this and have ever had a Celabration of Life party or attended one and there was something special about it can you email me, I am in the thinking process of one! A surprise one... Now i have to hope Jessies and her Aunt Tracie don't read my journal.. :-)

Well I hope this finds all of you doing well! We pray each evening for all of you and thank our Heavenly Father for each of you.

Love & Hugs,
Lynn

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Friday, January 24, 2003 at 01:56 PM (CST)

Hello,
Thanks for stopping by! As always we are happy to report all with Jessie is going really well! Praises to God! She is doing really well in school and seems to be adjusting well to life as it should be!
I was asked to write an article for the Ronald McDonald House in Delaware which for over a year was our home away from home! The people there are so wonderful! I have included it here on the page!
I hope everyone will have a WARM weekend it has been so very cold here, this morning it was -1 and -20 wind factor.

Blessings to all!



Thank You!

These two words are so heartfelt! Our family could not even begin to really thank all of the wonderful people we met at the RMH
We showed up on there door step April1, 2001, we were nervous about what would happen next in the life of our daughter. Stepping back a few months, in January of 2001 our daughter Jessica then 9yrs old was diagnosed with a “Very Rare” form of Liver Cancer, she had an undifferentiated sarcoma with rhapided tendencies; it took over 80% of her liver. Her outcome was not very hopeful. We were needless to say devastated. The months that followed involved rounds of chemo and a meeting with a doc from AI Dupont Children’s Hospital. We were informed at that time that he would consider Jessie, for a liver transplant, this was our only hope for survival, although we had 40% shrinkage of the tumor, the only way was to transplant. We were told about living donor organ donation, I was a bit nervous with this since we adopted Jessie how were we ever going to find someone in her biological family for a match? I was soon told it didn’t have to be from family member and our search was on, it ended almost as quickly as it started, my sister was a match for Jessie, God was looking out for Jessie!
So this is how we ended up in Delaware. At first I thought I would stay right in the Hospital with Jessie. I spoke to our social worker and she convinced me it was best so that I was able to rest that I stay at the RMH. She booked me a room and we arrived April 1, 2001, 2 days before the transplant was to take place. We were greeted with smiling faces! The volunteers that evening were wonderful they gave us a tour and helped us to settle in. I can remember them telling me the room had been booked for one month, I couldn’t even begin to imagine being there that long. It soon became a home away from home for my entire family; each staff person and each volunteer were so wonderful to us! Since that date Jessie has been through a lot and for the first year after transplant home was the RMH for me. It was a wonderful place to rest, and each evening we would have a cooked dinner provide by a group of wonderful people! The friendships we have made, will last us a life time, for this we are so thankful. In a time of uncertainty we were able to find comfort with a great bunch of strangers who have now become extended family! We have been at the house for many holidays in fact I think we have hit them all. It was hard to be away from family and they understand that and make you feel like family always! Christmas time at the house is beautiful there are trees everywhere and the house is lit beautifully. They also help with shopping which has been a God send to our family 2yrs now. People donate items to the house and help make Christmas wonderful! God Bless each of you!
At this time Jessie is 2yrs after diagnosis and I am so happy to report she is doing great! It has been a long road, but all is headed in the right direction. Although we are not at the house as often as in the passed when we return it is like we never left, people call, and write to us. And keep us in there prayers, this means so much to us.
I ask you as a new year begins, remember the RMH they exist on donations from wonderful people, and believe me when things seemed so gloomy they were there to help.
When I was asked to write this I panicked a bit I am in no way a writer, but God blessed us with a wonder new extended family and for this we will always be thankful. God Bless all of you!



Love & Hugs to each of you!
Lynn

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Sunday, January 12, 2003 at 07:54 PM (CST)

Jan. 17, 2003
I added some new pics of Jessie and some of her favorite people at AI, although please know there are MANY MANY more people she would love to add to her favorites! I need to learn how to make a grouping of pics so I am able to add lots of pics at one time!
Things here are going well Jessie seems so happy these days for this I am so very thankful!
I would also like to take time to thank all you wondeful people for signing in,the smile it brings to her face is priceless!
I left Sundays journal here for a few more days. I am so thankful for her health. Praise's be to Our God!!!



Hello!
As I sit and ponder what it is I would like to say… I think back about this journey that has now reached the 2 year mark, I have to admit, there were times I thought it may never end and if it did I would be missing one of my children…



It has only been one year since I started to journal here at Caringbridge, but 2 years on Jan. 13th that our whole life as we knew it would change forever. For bad or for good?????? We have made many friends along Jessica’s journey, I am so Thankful for each one of them what a Blessing each of you truly are! We have experienced the happy times and the sad times with each one.. We have lost good friends, although we know somewhere down the line we will find them all again!



For those of you who have been following I do not want to repeat myself, so I thought I would just make a time line of a sort.



October2000- Jessie begins to complain of back pain and leg pain. We take her to her primary physician, he does blood work finds she is anemic 10 is her count. He prescribes liquid iron 3 times a day.

In the months to follow she seems to continue to get worse, now she is not eating, sleeping all the time and still complaining about some pain.

December 2000- I call primary again he says to call after holidays and they would again check her blood.

January 2001- I call after the 1st to get appointment I am given one Jan. 11th. Jessie still not eating, sleeping a lot, not complaining about leg pain unless she walks a lot.

January 11th 2001- I take Jessie to doc, he sits and talks with her, he checked her blood work , now remember we are on tons of iron for over3months and it has gone up to 10.5, He checks her weight she has lost 10lbs since the middle of October. He exams her and tells her ”Jessie you are a very healthy little lady, and other then your iron level, which we will wait a bit longer to give it more time to build up you are Great!’ I tried to speak about her not eating, sleeping all the time, but it was all blamed on a low iron level.

January 13th, 2001- very early morning hrs. Jessie has tremendous pain in stomach, I try to have her go to bathroom I myself convinced its all in my head and she is now constipated from all the iron. Twice through the nite I ask her to try to go potty.

In the morning my older son comes to me and tells me Jessie is crying, “mommy please help me please help me…”I went to her she looked terrible I asked her to get dressed and I would call doctor, I was told he was in with patients to put warm compress on her tummy and they would call me back. When Jessie came downstairs I was in shock she was unable to zipper her jeans, I sat her down asked he to drink a cup of tea, she drank this right down, but no sooner down then up. I then made a decision to take her to the hospital, my sister in law is a nurse in the ER there so I would ask her to take a look. Never in my mind did I think that would be when our lives as we new it would change.

January13,2001-mid day-Jessie continued to cry in pain and fear, she had never been ill, that she could remember, although she was born 1lb4oz and 3months premature, not something she remembered. They did an x-ray then a cat scan. The poor doc that had to come and tell me…. HE simply said, I am not sure what to say except she has a 80% tumor of her liver…. He said she needed to go to a children’s hospital to be looked and diagnosed for sure, it being Saturday I said ok, I will call on Monday and make an appt., he said no I am afraid you will just let the ambulance know where you want to go they are on the way here right now…. I looked to my poor sister in law and said, can you live without your liver???? She shook her head no…… We chose Hershey Children’s Hospital

January, February and March, were filled with tests, biopsies, chemo, sad times, happy times, close times for our family and real tough times for our family.

April 2001, This was the month Jessie was given her second chance at life.

April1st,2001- Admitted to AI Dupont Children’s Hospital in Wilmington Delaware.

April 2nd, 2001- Exploratory done to see how the transplant would proceed on the next day.

April 3rd, 2001- Jessica was given life once again by my sister her Aunt Tracie. All went really well.

April 2001 to April 2002- Jessie had many hospitalizations, she had at least 2 very close calls with infection. She continued to receive 2 more cycles of chemo for preventative reasons. We stopped in October 2001, she had gotten way to ill and there was no more visible cancer so we opted to chance it otherwise we are sure she would have gotten a infection we would have lost her to.

May 2002- Jessica was admitted and had repair done to her bile duct that since transplant had been giving her a difficult time. Things looked good at first, but then started to slide a bit, we just continued with blood work and prayers.

June 2002- Jessica was able to attend the Transplant Olympics in Florida, she had a GREAT time!

June 2002 to Present I am so Grateful to report Jessie is doing well, she has now been out of the hospital for 7months!!!

January 2003- Her blood work for the first of the year was EXCELLENT we pray for Jessie that is the Beginning to her Healthy Long Life!



One of the reasons I chose to do this entry is, Through all of Jessica’s Journey there were times I thought we were all alone, that we were given this to bear without any help…. So now as I look back I can see where Our Lord carried us through because with out Him and His Power and Love we would have fallen… He truly is the only one who can give us the strength we need.

Although I have NO idea what the future holds for Jessica I know she has been made stronger with what she has been through. She was and continues to be a very caring young lady. She has experienced loss of her friends, although she is sad, she believes they are angels watching over her. I sit through tears typing this wondering WHY??? So many children are loosing there battles, we will never have the answers, I suppose not now but we will someday know why …..



I thank all of you for continuing to visit Jessie’s page, she checks it daily for entries and loves to read them! I have entered her email address at the bottom of the page if anyone would like to write her she is also looking for email pals!



I want to thank everyone, Jessie’s oncologist at Hershey, nurses and staff there, AI Transplant team,and nurses and staff we love you! All of the friends we have made here, ALL our friends around us, Our church family!! I don’t ever want to take lightly the prayers and kindness that has been shown to Jessie through her journey! Thank you from one lucky mom.



Love you and God Bless each of you!!!

Lynn

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Wednesday, January 08, 2003 at 10:39 PM (CST)

Hi!
So glad you stopped by! I can share some great news with all of you!!! Jessie had blood work today, first time since Nov. that is a very long time for us between tests..... Her numbers were are you ready?!?!?!??

AST & ALT's were normal.... GGT's= 64 !!!!!!!!!!! They have NEVER been this low remembering normal for them is 25 to 55, Jessie's lowest and it only happened once was 71.. She has been SO HAPPY she has waited so long for good news and finally she has had some!! When I spoke with Kathy our NP for transplant we joked about a zero missing from that number , but oh how I thank God it isn't there, we needed some very welcomed good news. Praise God!!

It has been a very difficult time for friends here at Caringbridge both at the end of 2002 and the beginning of 2003, please keep all these families and kids in your prayers. I am so thankful for the friends we have made through this web site, this month it will be a year that Jessie has had her page and that we have been able to meet lots of very nice people. Thanks to all of them for there prayers and notes to us! We love all of you!

God Bless!
Lynn & Jessie

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Wednesday, January 01, 2003 at 10:33 PM (CST)

Happy New Year!!

I pray this year brings peace and healing to all!!


Love Lynn & Jessie

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Wednesday, December 25, 2002 at 11:49 AM (CST)

***UPDATE****
Our little friend Justin passed away on Christmas Day we ask that you please keep his family in your prayers.



Merry Christmas!

WOW it hasn't been an easy holiday this year...as much as I try it has been a very sad one, loosing my mom, and we have lost so many children here on Caringbridges, 2 of them within the last couple days.

Jessie is doing well! We were in Delaware for labs at the beginning of the month things are looking ok. She will have labs the end of this week and then back to clinic in FEB. I can't beleive it I am so thankful! We also attended the Transplant Christmas Party which really is a VERY nice thing they do for the children. It is amazing to see all the children our Doc's have helped through all the years!! God Bless them both!!!

I hope to update soon with new pics!

Please hug your children and keep them close in your hearts!! Pray for the families here who are finding the holidays a bit difficult.


We Love you for checking in!!!
Jessie & Mom

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Thursday, December 05, 2002 at 05:17 PM (CST)

Hello!!
Well the weather outside is frightful, but the Ronald McDonald House in DE is delightful!!!!
We came down last night for clinic this morning and blood work, well we woke to SNOW and all the Snow!! We went to clinic , and all is well with Jessie, but we decided to stay another night so we can arrive safely at home!
We trust all of you had a Blessed Thanksgiving! We did it was sad at times, but great to be surrounded by family and friends!
While in clinic today Jessie did so well we are Out 2 months till her next clinic visit, she will have repeat labs 1 month at home. I praise our God each day that He gave us the miracle we needed to pull Jess through all of this. There were days I never thought it would be 2 months till we would see the smiling faces of our transplant team!! They are the Greatest!!
Well with the holidays fast approaching, I hope each of you have a very Blessed season, remembering why we celebrate, the Greatest Gift ANY of us could ever had been given the Birth of Our Lord and Savior Jesus Christ!!
I ask in closing you remember all the children out there who aren't feeling real well this season, pray for them and there families they need His strength to get through these tough times.

We Love each of you!
Hugs, Lynn & Jessie

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Tuesday, November 26, 2002 at 08:51 PM (CST)

Hello!
Things here are going well! For this I am so Thankful!
Jessie has been complaining off and on about different things, so far all has been easily fixed. She has started some counceling to help her deal with things she has been through. I ask that you lift her in prayer, so many things she has been through none of us will ever experience, I pray...

I hope everyone has a Very Blessed Thanksgiving, we have so much to be thankful for here...there will be some saddness as this will be our first holiday without my mom.....so very sad... I am in charge of dinner I just hope I make her happy with my preperations, she was a perfectionist... As I was shopping today I could almost hear her telling me "No not that use this"...lol.... I sure do miss her..

There are a few actually, more then I like to think of,families who will be celebrting this holiday without there child....Please lift them to the Lord so that He can supply them with the strength they need at this difficult time....

Please take a minute and let Jessie know you dropped by...

Love to you all, Hug your Family & Friends!!!!

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Saturday, November 16, 2002 at 10:31 AM (CST)

***Update***
A friend we made here at ccaringbridges passed away this morning I ask as you pray you pray for comfort & strength for his family, he was only 11yrs old,from Florida.

http://caringbridge.org/fl/robertmitchel/

Goodmorning!
I once again appologize for delay, seems I do that alot lately....
Jessie is doing well! Her liver counts are at the best the have been in a very long time! For this we thank our Lord, and of course our great transplant team!!!
I had a meeting with Jessie's teachers, she is doing well, it has been difficult for her but I beleive and so do they that since the begginning of the year she is progressing very well!

Things here are about the same some days are better then others.. I really miss my mom, my best friend....I spent alot of time with her.... My dad is doing ok...He continues to go with the flow of things, I see him sad at times and other times just kinda starring off into space, I suppose all things considered this is all very normal...

Since being here on Caringbridges and meeting lots of families some with much saddness others we share there joy, I am so very thankful for the people who have become our friends!
I ask that everyone who reads this page keep all of the families in your prayers they go through more then the average person could ever imagine.... Why we do not know...but with the help of Our Lord we can get through these times. "For when you only see one set of footprints it is then that I carried you (footprints)

Continue to love you family and share many hugs & kisses as we are never guareenteed tomorrow......

Love to all of you and thank you for stopping by, sign in if you have a minute!

Lynn

Please visit the link at the bottom of the page! It is a page my husband made in Memory of My Mom, it contains a poem written by my daughter and will contain more as we psot them hopefully by the end of the weekend!

---

Monday, November 04, 2002 at 06:54 AM (CST)

Good Morning!
I am so sorry for the delay in updating.
As you know we went to Delaware on Thurdsday for bloodwork, Her counts still remain a bit elevated, they are still awaiting her med levels. They are going to try to change some meds to try and take away headaches. They need to be careful though because of her FK level(one of her rejection meds), so we shall see...
So far nothing as appeared on scans, Praise God!!!!
Their concern for Jessie is depression...I ask for prayers in this area, she has been through alot and has really worried about other children and has lost some very young friends and now her nanny......So much for a young child...In my 40 years I have not had so much saddness as she has in her 11.... I am not sure I could have imagined so much...
I ask for continuing prayers for my Dad, he knows my mom is celebrating now in heaven, but it doesn't take away his feeling of loneliness.... Thank you all so much for your entries of sympathy I do apprieciate each one! I will share my childrens pros they have written for my mom in a few days or as an update here so plese check back soon.

As always jot a quick note and let us know you were here!

May God bless each one of you!
'Hug those kids!!!

Love, Lynn

---

Tuesday, October 29, 2002 at 09:48 PM (CST)

Hello!
Thanks for stopping by.
Well things here are quiet, sometimes to quiet.....
Jessie had her blood work yesterday and her body scan, scan looks good so far the only thing they see is a dialation of her bile duct., blood work says her ggt's are down to 200 so they continue to drop.... So the duct must be ok. On the other hand her ast and alt's (Liver enzymes) are on the rise, they have almost trippled, so there for we are off to Delaware tomorrow and in for stat bloodwork on Thursday morning....and we will see from there...Jessie also has some mouth sores one on her tongue and one the size of a nickle on the inside of her lip, so they are going to culture the large one while we are there.My O My...

Sometimes the saddness I feel for the loss of my mom is overwhelming....Wish I could shake the feeling. I know in my heart how much better where she is and how happy she must be to be with our Lord, I just miss her so much already she wasn't only my mom she was my Best Friend!

I would ask that you make sure you hug and kiss your family as much as possible for we never know when the blink of the eye will take them away... My mom said to Jessie the night she passed, we were talking about dying how ironic and she turned to Jessie and said "Jessie we are not even guarenteed tomorrow," wow if I had only known, I would have stayed all night with her and never left her side........

Love to you all & God Bless each of you with many tomorrows....
Lynn

---

Thursday, October 24, 2002 at 10:30 PM (CDT)

Hi,
As I wrote earlier my mom passed on this morning. I ask that as you pray, pray for my father as he has lost his very best friend, my parents were married for 44yrs and have been friends since age 4!! My dad is so very sad....It truly breaks my heart.....
Jessie is so sadden by all of this...My other children some are talking some just sitting silently watching as we carry on the day or should I say go through the motions .......

Jessie will be having her blood work done this morning-Friday..and we are possibly doing her body scan right here in town...I am awaiting her pediatrian. We have yet to get other results....

For those who are close: Mom's viewing will be 7to9 PM at Krapt & Hughes Funeral home on Broad Street, Funeral will be on Saturday @10 AM.

Thanks for all your prayers! Hugs to all!
Love Lynn

---

Thursday, October 24, 2002 at 06:08 AM (CDT)

Hello!
It is with much sadness I write... My Mom went to be with Jesus early this morning... Jessie was so very close to my mom. I ask for prayers for her as well as my family. This will be VERY difficult as some of you know....

I will update as I can...

We did not get results of Jessie's scan yesterday, and we need to look at when we can go to Delaware for the other


God Bless Each of you and hug and love your family!!!!

Love Lynn

---

Wednesday, October 23, 2002 at 07:25 AM (CDT)

Hello,
Well I finally got an answer late yesterday.. They have scheduled Jessie for a CAT Scan at 11am this morning. The nurse wasn't able to tell me if there was anything on xray, just said doc wants he to get a scan today at 11 am. I will update as soon as I know anything. She will also be going to Delaware Friday for bloodwork and a full body scan at 3 pm.
Thanks so much for checking in and God Bless each of you!

Love, Lynn

---

Monday, October 21, 2002 at 05:40 PM (CDT)

Hello,
Thanks so much for checking in today!
Jessie has not been feeling well the last couple of days... As I mentined before she is back to sleeping an aweful lot... I have to admit this worries me, this was our first sign of her tumor growth last time....
I took her to her pediatritian this afternoon, he sent her for an xray of her neck and upper back cause she seems to be in alot of pain...We do not know the results as of yet... She is going to Delaware on Thursday for blood work and I hope a full body scan.
Please I ask that you all continue to pray for Jessie.
Also, in praying keep in mind all of the other children!
I will report more as I know it.

God Bless each of you!
Lynn

---

Monday, October 21, 2002 at 05:40 PM (CDT)

Jessica was born May 2.1991, she was 1lb 4oz. she was also 3 months premature. She fought her way through this battle and when she was 4& half months old and just turning 5lbs, she came home form the hospital & to our home! Surprisingly she came to us only on a monitor, to keep an eye on her heart and her breathing. She was amazing !! So small yet such a fighter! She continued to grow and do very well. She was a bit slow in sitting,walking & talking. She wore baces on her legs for a little while. Once she was ready though there was no stopping her, all I had prayed for her to walk and talk, I now spent asking her to please sit and be quiet....I suppose we all pray for things and then aren't always greatful for the answers...We seem to take for granted things until the day when your whole life spins in circles and is never the same again....
Jessie entered 4th grade in Sept.of 2000. She seemed quite happy to be in school! Early October of that same year she started to get tired walking to and from school and would even cry at times with pain in her legs... This baffled me but I thought maybe it had to do with the slight Cerebral Palsey she had from birth. I looked into it and was told this was unlikely. Jessie continued to complain about things, we would go shopping and she was to tired to walk, at times she would push things over on the shelves and fall asleep.. Not normal at all.... Time to call the doctor, i got an appt. and took her in. Well they checked her over and all seemed ok... I told them what i was seeing... They sent her for blood work and all looked fine there except her redcells were low 10 was the number. The conclusion was liquid iron 3'x daily, and we would see from there. She had also lost 10lb for no known reason.... She continued to sleep all the time, she would come home from school and sleep till next morning if alous to do that. She ate nothing, she would tell me it made her sick to her stomach to see us eat and also the smell.....So back to the phone I called the doc., it was close to Christmas so he told me to watch her on her school break and get back to him after.... The holidays were the same sleeping alll the time even when we had company....After the holidays I called the doc back again, Jan.3rd, we were given an appt. for Jan.11th...Oh my...When we finally went, I old the doc everything that had been going on, they checked her over and ddi a iron test...Well after all the time on ron she went to 10.5, so the thought was to just continue for another few months... This is so frustrating when your a mom and KNOW something is wrong but no one seems to see what it is your seeing......Well it was 2 days later..Jessie was up all nite with a pain in her stomach...I of course thought well all the iron has now caused her to back up r have a blockage. Well after arestless night we headed for the Emergency room. Upon entering the hospital, Jessie turned to me and said I don't want any surgery, my response, that is not what we are here for I am hoping they can give you somethng to move your bowels and we will be out of here...... Oh how I wish it was only that easy...... My sister-in-law works at the hospital and was there when we got there. We were put in a room and the doc examined Jess...He asked if an exray would be ok, I said yes...he then mentioned getting a surgeon....i looked at Jessica and she at me...oh my....The one we picked was in the hosp. so after he read the exray he ordered a cat scan.... still not thinking all that much...we went on with the motions... WHile still in CT room, the doc came out and said: I am note sure how to tell you this, I suppose there is no good way.... Jessica hs a mass in her liver...it seems to be about 80% of it... You will need to take her to a children hospital... My response , ok I will call on Monday and make an appt...His response: I am sorry there is an ambulance on its way here now , youwill need to let them know where you want to go........Still so calm I look at my poor sister-in-law who is probably wishing she wasn't here...I say do you need your liver to live???? She shakes her head yes...at which time I realise where we are.... I called my husband and my parents,wow a day that will FOREVER be in our minds... We chose to take Jessica to Hershey Medical Center in Hershey ,PA. There we met lots of Wonderful People!!! Although I wish I would have met them at a balllpark or Walmart... not because they were Jessica's new doctors an Oncologist,what is that, well we soon found out...Jess was dianosed with a VERY RARE form of liver cancer..they called it an undiffrientiated rhabdid sarcoma of the liver...wow... Only cure transplant...what...a transplant that only happens on tv....right???/ Nope after 3 rounds of chemo, the big guns of chemo I was told. Jessie was given a second chance at life on April 3,2001!!!!! My sister was a match for Jessie!!! To me this was amazing...You see we adopted Jessie in 1997.. I was amazed that my sister was found to be a good match!!! I later found out that it no longer needs to be a living relative!!! Amazing !!! Prasie God!!!!
I will continue her story a bit later..

---

October 13, 2002

**Update**
Jessie had blood work today 10-9-02, Her counts have come down a bit again, so she can wait 2 weeks till her next ones.WOW.
I have been reading so many diferent things these past couple days, it brings back both good and bad memories... One thing though I am so sure of is, That without Jesus Christ watching over all of us we could not have coped. It is because of Him and His strength that we are all healed.
There are SO MANY children here on Caring bridges that NEED your prayers please include them each and every time you go to Him in prayer. Pray for the families who are on the outside watching and hurting, because of the helplessness they are feeling...It isn't easy at all.......
Thank you for your continued thoughts and prayers for Jessie! She loves all of you for checking in!
10-03-2002
Hello!
WOW it has been 1 Year today since Jessie had chemo!!!!! I never thought back then that we would be a year out anytime soon!! Praise God!! He is awesome and so is Jessie!!! She continues to do well. She came home again form school on Wed. she falls asleep in math class??? I think she is avoiding that class.. !!!SMILE!!! She had blood work on Wed. also , we got results early this morning her numbers once again are on the rise so we need more blood work next week, if you remember they stopped her predisone so this can cause her numbers to rise so we need to make sure she doesn't begin to reject. Always something...
I hope everyone is doing well! Thank you so much for caring and checking on Jessie , she loves to check and see who been visiting! So please take a minute and say hi! She will love it!

God's Blessings!
Lynn



This is almost overwhelming when you think about it.

You MUST read to the end: (smile)

Moses and the people were in the desert, but what was he going to do
with them?

They had to be fed, and feeding 2 or 3 million people requires a lot of food.

According to the Quartermaster General in the Army, it is reported that
Moses would have to have had 1500 tons of food each day. Do you know
that to bring that much food each day, two freight trains, each at least a
mile long, would be required!

Besides you must remember, they were out in the desert, so they would
have to have firewood to use in cooking the food. This would take 4000
tons of wood and a few more freight trains, each a mile long, just for one
day.

And just think, they were forty years in transit.

And Oh yes! They would have to have water. If they only had enough to
drink and wash a few dishes, it would take 11,000,000 gallons each day
and a freight train with tank cars, 1800 miles long, just to bring water!

And then another thing!

They had to get across the Red Sea at night. Now, if they went on a
narrow path, double file, the line would be 800 miles long and would require
35 days and nights to get through. So there had to be a space in the Red
Sea, 3 miles wide so that they could walk 5000 abreast to get over in one
night.

But then, there is another problem...............each time they camped at the
end of the day, a campground two-thirds the size of the state of Rhode
Island was required, or a total of 750 square miles long........ think of it!
This much space for camping.

Do you think Moses figured all this out before he left Egypt? I think not!
You see, Moses believed in God. God took care of these things for him.

Now do you think God has any problem taking care of all your needs?

I asked the Lord to bless you As I prayed for you today. To guide you and
protect you as you go along your way.......... His love is always with you,
His promises are true, And when we give Him all our cares, You know He
will see us through.

Our God is an Awesome God!!

So when the road you're traveling on seems difficult at best, just remember

---

Wednesday, September 25, 2002 at 06:23 AM (CDT)

Hello!
I am sorry it has taken so long to update....
Jessie is doing well! She went to clinic in Delaware this week, her counts are about the same, they are on the high side ,but they are willing to leave them go for now. She will return in 2 MONTHS I have to admitt I NEVER thought we would hear those words....... They stopped her predisone on Monday, so we need to get blood levels here on Monday to make sure all is going good. So on Monday they stopped her predisone, zantac and lowered her periactin and her stool softner, she was very happy with the decrease in meds!!
Yesterday she came home from school at noon, complaining of being very tired so we shall see, she still has difficulty putting in the full day, but me the mean mommy I am make her stay....It really is hard for me to change.. I still want her in a bubble so nothing happens to her ever again........
She went to visit her friend Justin on Monday while in Delaware they had a good time they shot a game of pool and just chatted about things... I ask that all of you keep Justin and his family in your prayers.. We are all praying for a miracle for this little man! His web page is www.caringbridge.org/ny/justinbryce, if you would like to follow him and let his mom and family know you will pray for them!
We also found out that another friend of ours at DuPont isn't doing well her name is HeatherLynn, her family has been told she has 2 weeks ...Please keep them in your prayers...As well pray for a cure!! Keep in mind this is Childhood Cancer awareness month, check out the link above and take the time to write a letter!
I have included the story from the last entry I have had many comments about it! Enjoy!

God's Blessings to all of you,
Lynn

AWESOME

This is almost overwhelming when you think about it.

You MUST read to the end: (smile)

Moses and the people were in the desert, but what was he going to do
with them?

They had to be fed, and feeding 2 or 3 million people requires a lot of food.

According to the Quartermaster General in the Army, it is reported that
Moses would have to have had 1500 tons of food each day. Do you know
that to bring that much food each day, two freight trains, each at least a
mile long, would be required!

Besides you must remember, they were out in the desert, so they would
have to have firewood to use in cooking the food. This would take 4000
tons of wood and a few more freight trains, each a mile long, just for one
day.

And just think, they were forty years in transit.

And Oh yes! They would have to have water. If they only had enough to
drink and wash a few dishes, it would take 11,000,000 gallons each day
and a freight train with tank cars, 1800 miles long, just to bring water!

And then another thing!

They had to get across the Red Sea at night. Now, if they went on a
narrow path, double file, the line would be 800 miles long and would require
35 days and nights to get through. So there had to be a space in the Red
Sea, 3 miles wide so that they could walk 5000 abreast to get over in one
night.

But then, there is another problem...............each time they camped at the
end of the day, a campground two-thirds the size of the state of Rhode
Island was required, or a total of 750 square miles long........ think of it!
This much space for camping.

Do you think Moses figured all this out before he left Egypt? I think not!
You see, Moses believed in God. God took care of these things for him.

Now do you think God has any problem taking care of all your needs?

I asked the Lord to bless you As I prayed for you today. To guide you and
protect you as you go along your way.......... His love is always with you,
His promises are true, And when we give Him all our cares, You know He
will see us through.

Our God is an Awesome God!!

So when the road you're traveling on seems difficult at best, just remember

---

Monday, September 09, 2002 at 10:48 AM (CDT)

Hello!
I hope this entry finds all of you who check in, doing well!
Jessie is doing fine, she is a bit tired when she comes home from school. The days are long for her.
Jessie just called a few moments ago from school and as she called so did Kathy from AI Dupont, it was funny Jessie calling to say I don't feel well and Kathy to tell me her blood counts a bit better and to wait 2 weeks before we get them again.. To funny when jessie heard her counts were ok, she seemed ok...She worries so much about those numbers... It is funny I have been reading other pages and moms mention how those numbers can control your life...So very true....
Above you will see two links I have added to Jessie's page, they are both important. The link to Childhood cancer is important in that you can find a link there to help push through a stamp for awareness of childhood cancer, I ask that you take a moment and fill it out and mail it in. The other link is to Jessie's Smile Quilt, ladies take time and make these for sick children I think it is wonderful and Jessie's is beautiful it even comes with music! If you have a minute they tell you how you can make a square and add it on!
Please continue to pray they find a cure for all Childhood Cancer it is robbing our children of there lives!

Please sign Jessie's Guestbook

Hug Your Kids & Family!!!!!!!!

God Bless!
Lynn
****I got this emailed to me thought it was interesting!*****

AWESOME

This is almost overwhelming when you think about it.

You MUST read to the end: (smile)

Moses and the people were in the desert, but what was he going to do
with them?

They had to be fed, and feeding 2 or 3 million people requires a lot of food.

According to the Quartermaster General in the Army, it is reported that
Moses would have to have had 1500 tons of food each day. Do you know
that to bring that much food each day, two freight trains, each at least a
mile long, would be required!

Besides you must remember, they were out in the desert, so they would
have to have firewood to use in cooking the food. This would take 4000
tons of wood and a few more freight trains, each a mile long, just for one
day.

And just think, they were forty years in transit.

And Oh yes! They would have to have water. If they only had enough to
drink and wash a few dishes, it would take 11,000,000 gallons each day
and a freight train with tank cars, 1800 miles long, just to bring water!

And then another thing!

They had to get across the Red Sea at night. Now, if they went on a
narrow path, double file, the line would be 800 miles long and would require
35 days and nights to get through. So there had to be a space in the Red
Sea, 3 miles wide so that they could walk 5000 abreast to get over in one
night.

But then, there is another problem...............each time they camped at the
end of the day, a campground two-thirds the size of the state of Rhode
Island was required, or a total of 750 square miles long........ think of it!
This much space for camping.

Do you think Moses figured all this out before he left Egypt? I think not!
You see, Moses believed in God. God took care of these things for him.

Now do you think God has any problem taking care of all your needs?

I asked the Lord to bless you As I prayed for you today. To guide you and
protect you as you go along your way.......... His love is always with you,
His promises are true, And when we give Him all our cares, You know He
will see us through.

Our God is an Awesome God!!

So when the road you're traveling on seems difficult at best, just remember
I'm praying and God will do the rest.

---

Wednesday, September 04, 2002 at 11:37 PM (CDT)

HI!
Well Jessie did her first day of school in almost 2 yrs!!!! I went in with her, because I also had to take our youngest one in she started Kindergarden!!, It was a morning of mixed emotions, grateful to have the house all to myself, and oh so thankful to have Jess there I can remember thinking will she ever go back....To see her there you would never know all she has been through... Praise God for all He has done for her!!! She had a great day she said, just a bit tired!
She had her blood work yesterday, it is all about the same, so we will check again on Monday and go from there again.....
We ask for another prayer request another of Jessie friends at AI,he is 10yrs old is having a very difficult time please pray for him and his family. They are not from Del. so mom is there by herself dealing with all that comes her way she needs a lift... I know as a mom who was far from home it is hard... when dad has to tend to other kids and work he can't always be there and you are left to hold it together..not easy...Please pray for God to carry her through this....
Please continue also to keep little Sara's family in your prayers......

God bless each of you!! Hug your children and let them know just how much they mean to you!!!!!

Love and hugs,
Lynn

---

Thursday, August 29, 2002 at 02:53 PM (CDT)

Hello!
Thanks for checking in! Jessie was in Delaware today for blood work, things are a bit better, counts dropping a bit. Blood work next week here so we shall see.

For those of you who are praying for Sara's family thank you! She was laid to rest today. This really has been a sad time for Jessie, she really loved that little"georgia peach" we will miss her, we also look forward to seeing her again someday! Her page is www.caringbridge.com/ga/saraspage,if you would like to let her parents know there are people out here who care.

God Bless each of you for checking in!

Hugs to all, Lynn

At the bottom of the page is a link to a smile quilt that was made for Jessie if you click on the space it will come up. I am trying to work on a button... You can add a block to the quilt if you would like to! Thanks.

---

Friday, August 23, 2002 at 11:21 PM (CDT)

*****Update******
Sara passed away this morning, Tuesday August 27th.... I ask that each of you pray for this new angel.. Please keep her family in your prayers for the difficult days ahead!

I ask that you also pray for comfort for Jessie, she is quite upset & wishes she could have said goodbye...

Hug your Family, you never know........



Hello!
Praise God!! Jessie's bile duct is not closed!!! She is so very happy, no stent!!!!

Jessie's counts continue to rise......her AST & ALT's are on the rise as well as her GGT's jumped from 270 to 340 in 3 days..... So what the thought is now is that she is in a mild rejection... They have increased all of her suppression drugs.. This worries me a bit... She is due to go back to school on the 4th and she is now suppressed even more so I worry about what she may catch... She goes back to Delaware on Thursday of next week for counts to see where we are with the increase in meds.. I find her stomach to be very hard and distended...the thought was she needed to have a good BM.....she has and not much has changed...Oh well we will see....

VBS is over , I made it through..lol... We had a Great week although our school was small I think the kids really enjoyed it!!! Jessie was glad to be there, last year she was in the hosp.

Thanks again for your continued support and prayers for Jessie!!!
I ask that you continue to also pray for Little Sara & her family, this continues to be a difficult time for them all.

Love a lucky mom!

---

Wednesday, August 21, 2002 at 02:22 PM (CDT)

*****Prayers****
We have just found out that our little friend Sara is in need of prayer, her cancer has returned to both her liver & her lungs, they have have given her one month to live! Please keep this Little Angel in your prayers as well as her sister,mom & dad. Her web page is as follows. Please support this family in prayer!


Hello!!
Thank you so much for checking in! Jessie continues to do ok... She will be going to Delaware this Friday to have her ultrasound done. They were not able to get an appt. next week & didn't want to chance waiting till the following week. I will update when I know the plan.
Please pray for Jessie's! She is having a VERY difficult time understanding what's happening to Dear Little Sara and WHY? It's so hard to explain to her when I to don't know why except that it is truly in the hands of the Lord! In Bible School this week we have learned that God knows all about us He knows what we will think and say before we do...So in knowing that I am sure His plan will be done in all our lives and that He will be there with us and carry us when need be. *boy He has a big load here..lol*
Yesterday we talked at Bible School about how God Helps Us, I asked the children did God ever help them through a tough time? I got many different answers. Then Jessie spoke...Oh my what a young lady...had tears throughout the room....She told us how Jesus helped her through all her tough times and how He carried her when she was to weak to walk.....Also she said, He is helping her handle whats happening to her best friend and little sister Sara...Sometimes I wish I had the strength and Faith of a child..Seems things would be less complicated.
I am A very Lucky mom to have been blessed with such a sweet girl!
Take time to Smile and Hug someone today!!!!!

God Bless you!!!!
Much love & Hugs to all!
Lynn

---

Monday, August 19, 2002 at 03:41 PM (CDT)

*****Prayers****
We have just found out that our little friend Sara is in need of prayer, her cancer has returned to both her liver & her lungs, they have have given her one month to live! Please keep this Little Angel in your prayers as well as her sister,mom & dad. Her web page is as follows. Please support this family in prayer!
www.caringbridge.com/ga/saraspage

Hi!
Jessie is doing ok! Looking forward to VBS this week! Me on the other hand a bit scared....I am our director this week, I ask for some extra prayers! :-)

Jess had her blood work done this morning, her AST & ALT's are down a bit again which is good! Her GGT's on the other hand our still on the rise today they were 297, normal 5-75... So we are back to Delaware on Monday to see what is going on she will have an ultrasound to see if the bile duct is closed or closing.... Ya know when I think things are crashing here I think of all the children losing there battle....kinda makes our stuff not so bad.....Please as I said up top keep little Sara in your prayers a MIRACLE would be WONDERFUL right about now!!!!!

Thanks so much for your continued concern in Jessie she is a sweet sweet angel and we love her as I know you do or you wouldn't be here!!!!!

Love one lucky mom

P.S. For those of you who have Gold Ribbons please remember to wear them the month of September is Childhood Cancer Awareness month!

---

Tuesday, August 13, 2002 at 10:11 PM (CDT)

*****Prayers****
We have just found out that our little friend Sara is in need of prayer, her cancer has returned to both her liver & her lungs, they have have given her one month to live! Please keep this Little Angel in your prayers as well as her sister,mom & dad. Her web page is as follows. Please support this family in prayer!
www.caringbridge.com/ga/saraspage


Hello!
I hope this day finds all of you doing well! Praise God for yet another day!

Jessie had blood work done yesterday the results are as follows, her AST & ALT's have come down nicely, her GGTs have climbed yet again they are now 236-normal 5-75, I ask when you pray for Jessie you pray for the lowering of her GGts. At the present time they are just going to have repeat labs next week, the next actual step would be an ultasound to see if the duct is closing yet again.

I spoke with the Nurse Practitioner, and we laughed, I told her Jessie was not aloud to have any blood work between Sept.2002 & June of 2003! You ask why? Well ya see Jessie is planning on going back to school, and we want her to stay there!! She told me even J RO needed to have her blood tested they kid her about being J RO instead of J Lo..lol... As many of you know the last 2yrs of school probably don't add up to a full year for her . She is a bit scared to return since she will be entering 6th grade, and isn't sure she is ready...She got ill the middle of 4th grade..

We ask for continued prayer for all the children on Caring Bridges there are many.......Justin & Sara are 2 of Jessie's friends who need your prayers, please remember them. Andrew one of her little buddies got to go home today!!!!! Go Andrew he is such a little fighter! Praise God for his healing!!!

Isaiah 66:12&13
For this is what the Lord says:
"I will extend peace to her like a river, and the wealth of nations like a flooding stream;
you will nurse and be carried on her arm and dandled on her knees.
As a mother comforts her child, so will I comfort you."


God Bless each of you !
Give someone a hug today & share smiles with many!

Love a very blessed mom!

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Wednesday, August 07, 2002 at 12:06 AM (CDT)

Hello!
Sorry it took so long to update.
Jessie had bloodwwork here this week.
AST=97 up from 73, normal 25-41
ALT=104 up from 103, normal 30-65
GGT=198 up from 163, normal 5-75
Her hemoglobin is good up from 8.4 to 10.6,her bilrubin is normal.
So as you see we are a bit on the rise again.. The Transpalnt team has upped her rejection meds so we will see on Monday if things areany better... We go to Delaware for these tests.
I have updated the pics ( sorry Kim for delay-LOL)
Please continue to pray for Jessie and all of the children whose families use caring bridge's services, another one of the children we have been following passed away.....Please keep Nate's family in your prayers!

Thank you for your continued concern in Jessica's Journey!

God Bless each one of you,
Lynn

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Monday, July 29, 2002 at 08:13 PM (CDT)

Hello!'
Jessie is doing Great! All her numbers have come down again!
Praise God!!!!
AST-73, norm.25-41
ALT-103, norm.30-65
GGT-163, norm.5-75
and her bilirubin is normal!!
She gets bloodwork next Monday here and then they will see from there where we get it the following week!
She went to visit her frinds today at Dupont, we ask that you keep Andrew, Olivia & Justin in your prayers! She also would like me to add her friend in Georgia, her name is Sara!
I have been visiting and praying for lots of kids who use caringbridge web sites please as you pray mention children in your prayers there are so many out there in need. Don't forget there families sickness effects everyone around...
Make sure you hug your children always and tell them how much they mean to you and how much you love them!

God Bless each of you for checking in on one of my "angels"
Love.Lynn

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Saturday July 27, 2002

Hello,
Jessie's counts have been about the same. On Thursday her GGT's which is the one we are concerned about has come down some more from 187 to 172 that is so good for Jessie! They put ultrasound on hold till after we see what happens with Monday's blood work!
Back to Del. tomorrow and blood work Monday!
Hope everyone is having a Great summer!
God Bless!
p.s. We have 2 friends who are in need of extra prayers, please keep them in mind as you pray.
Love, Lynn

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Thursday, July 18, 2002 at 11:31 AM (CDT)

Hello!
I hope today finds all of you doing well!!
Jessie went for blood work this morning.
AST=163 normal, 25-40
ALT=163 normal, 30-65
GGT=220 normal, 5-75
So it is easy to see her numbers are still high although they haven't gone higher since Tuesday my prayer is they are going to hold and then start to come back down. The plan is for her to go in on Monday to AI DuPont and have stat blood levels if they are the same or higher she will have a byopsy done to see whats happening.
Jessie herself feels Great! Thank God for that!! I ask that you continue to pray for Jessie, she has some friends she has made along the way who are not feeling very well these days I ask that each of you take time even right now to offer a prayer for them and their families, it is a long hard road they travel. As we know the only one who is with them always and can help them through these tough times is our Lord Jesus!

God Bless each of you! If you have kids give them extra hugs and kisses today!!!!!

love,
Lynn

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Monday, July 15, 2002 at 05:44 PM (CDT)

Tuesday's blood work still on the rise, more on Thursday!!
God Bless each of you for checking back!


Hello!
Jessie went to clinic today......Physically she is doing well! Her liver numbers are another thing though...AST's and ALT's are trippled in number...not good at all....Her GGT's are 218 up from 147...So ya see numbers are not lookin good at all... We were able to come home today, we repeat bloodwork here tomorrow, hopefully they will be able to do them....we have had trouble in the past with her ggt's... Jessie taking this all rather well, not happy about the possibility of a byopsy though, but that is how they tell whats happening inside. Things it can be are a viral infection, rejection or we may need to drain liver which would be the bilanary stent put back in, which means that....she will have it in for 6 months at which time if it doesn't remain open, the bile duct, she will be in need of yet another liver... Please pray for her as well as all children!

God Bless each of you!
Lynn

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Thursday, July 11, 2002 at 08:43 AM (CDT)

Hi to All!
Thanks so much for your prayers and concerns for Jessie!

Jessica is doing ok, complaining here and there of different pains.....Trying to focus her on other things, not always easy to do though...It really is hard for her to get back in the "Normal" groove...her concern...when will something go wrong again....Any suggestions on how to try to make her think more positively??? She says every time she thinks all is well something else goes wrong....Wish I could reasure her things would be ok....but how can I ever do that......Life in general is never sure we found that out.....
I can't name everyone by name , but I ask that when you are praying for Jessie that you mention all the families at Caring Bridge's there are MANY children and there families that need our prayers!
Jessie goes back to clinic on Monday the 15th hope all is well...

God Bless each of you and your families!
Love, Lynn

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Wednesday, July 03, 2002 at 03:18 PM (CDT)

Hello!
Jessica made it home safe and sound!
She reports having a WONDERFUL time!! When asked what was your favorite part she says flying..imagine that the plane ride was the Best she says! She also enjoyed the Games she talks about the Opening & Closing Ceromonies how touched she felt in seeing both the Donor Families & like herself a recipiant. She thinks I would have loved them, but I would have cried she says and she is probably right!
As I have mentioned a few times before, Organ Donation is so VERY Important you will never know just how many lives you alone can save!
Keep Jessie as always in your prayers, her counts are still creeping up....She has another 2 week break before she has them done again.

God Bless each of you!
Love,Lynn

Please sign her guest book each time you visit sshe still looking!!

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Friday, June 28, 2002 at 08:56 PM (CDT)

****NEW PICS****
Hi!
Sorry it has been so long..... All seems to be going well!
Jessie is off to Florida for the Transplamt Games!!!! and of course DISNEY she really was a bit nervous to go, but I am sure she will do fine! Me, I am going through a bit of withdraw I am afraid...I miss her, been awhile since we have been apart.. Although I am sure she will have a GREAT time and I hope she makes lots of friends!!
I just wanted to share a bit with all of you. Organ Donation is so very important! I can't stress this enough, if you could see the smiles on the childrens faces yesterday as they were leaving, knowing each one of them is truly a living miracle!! The knowledge alone that God has given to each doctor and staff member of the Transplant Family it is awesome. It brought tears to my eyes (lots) to see these kids and know they are a small number who benefit from organ donation. Please, My prayer is this, that each one who reads this page and has family and friends will strongly consider becoming a donor whether it be giving blood or when you go to be with our Lord, organs, it truly is an AWESOME gift you can give someone! I met a mom who was part of a donor family, her 6yr old daughter was able to save 5 peoples lives with the donation of her organs, 6 yrs old imagine how her mom must have felt making that desision....Please talk it over with your family imagine how a family your size could help save lives of others!!!!
A web site you may want to check out is www.donors1.org they will be updating the events of the games in Florida! If Jessie does well I suppose from what they say it will be on this page! Check it out and while there, look around at what else the Gift of Life Org. does!!
Well as I hear things I will update the page here. I will be adding new pics this afternoon,Jessie in her uniform!!
I Love each one of you for checking in! If ya have a chance how about signing guess book and letting us know you stopped by we both like to hear from you!!!
Take care & God Bless Each of you!

Love, Lynn

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Thursday June 27, 2002 at 4:55 PM

****NEW PICS****

Hi!
Sorry it has been so long..... All seems to be going well!
Jessie is off to Florida for the Transplamt Games!!!! and of course DISNEY she really was a bit nervous to go, but I am sure she will do fine! Me, I am going through a bit of withdraw I am afraid...I miss her, been awhile since we have been apart.. Although I am sure she will have a GREAT time and I hope she makes lots of friends!!
I just wanted to share a bit with all of you. Organ Donation is so very important! I can't stress this enough, if you could see the smiles on the childrens faces yesterday as they were leaving, knowing each one of them is truly a living miracle!! The knowledge alone that God has given to each doctor and staff member of the Transplant Family it is awesome. It brought tears to my eyes (lots) to see these kids and know they are a small number who benefit from organ donation. Please, My prayer is this, that each one who reads this page and has family and friends will strongly consider becoming a donor whether it be giving blood or when you go to be with our Lord, organs, it truly is an AWESOME gift you can give someone! I met a mom who was part of a donor family, her 6yr old daughter was able to save 5 peoples lives with the donation of her organs, 6 yrs old imagine how her mom must have felt making that desision....Please talk it over with your family imagine how a family your size could help save lives of others!!!!
A web site you may want to check out is www.donors1.org they will be updating the events of the games in Florida! If Jessie does well I suppose from what they say it will be on this page! Check it out and while there, look around at what else the Gift of Life Org. does!!
Well as I hear things I will update the page here. I will be adding new pics this afternoon,Jessie in her uniform!!
I Love each one of you for checking in! If ya have a chance how about signing guess book and letting us know you stopped by we both like to hear from you!!!
Take care & God Bless Each of you!

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Monday, June 17, 2002 at 12:44 PM (CDT)

Hello!
Praise God!
Jessie's count has dropped again, it is now 140 from 220! Continue to pray as you can seee it is working!!!
She gained 3lbs so she is now 75lbs up from 72.
She is smiling away today!!
She does not need blood work now till she returns home from Florida!!!

God Bless Each of You!!!

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Sunday, June 16, 2002 at 07:01 AM (CDT)

Good Morning!!
Happy Father's Day !
Jessie continues to improve her eating although at times she still wants nothing... Her liquid intake has improved, but still needs to increase a bit. We are off to clinic again tomorrow so I will update as soon as we return home.
A week tomorrow she is off to Disney with the Transplant team for the TransplantGames she is so excited!
Thank you for all your prayers and concerns!!

Love,
Lynn

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Thursday, June 13, 2002 at 12:39 PM (CDT)

Hello!
Well we just returned home from the hospital!
Jessie has gained some weight, her counts have dropped a bit, her GGT on Monday was 220 and today 197, Prayers are being answered I ask that you continue to pray for her He is listening!!!!
We go back on Monday for more blood work. They did not put feeding tube in because things are getting a bit better now waiting to see how things are on Monday.
Jessie in better spirits today so glad to see her SMILE back again!!

God Bless Each of You!
Lynn

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Monday, June 10, 2002 at 03:49 PM (CDT)

Hello!
We are home!!!
Jessie is doing ok...They put off putting feeding tube in until possibly Thursday.
Her GGT count today is up to 220 so as we feared it is on the rise again......
I ask for continued prayers.
I will update again soon.
Love,
Lynn

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Saturday, June 08, 2002 at 11:51 PM (CDT)

Prayers...
Jessica is very depressed the last few days... SHe continues not to drink or eat enough for them not to put the NG tube in her nose to feed her....This will take place on Monday before we return home...
My heart truly aches for her she seems not to be able to take charge of this problem she has a choice to just drink and no tube ,but she continues to say she is not thirsty and cannot bear to keep drinking...
I think the badgering toeat and drink are back firing...I pray that when they insert this tube she will be able to build up her strength and get back to herself.

God Bless Each of you!
Lynn a very concerned mom...

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Friday, June 07, 2002 at 09:27 PM (CDT)

Hi!
Jessie was discharged today to the RMH.
SHe is doing well! Not in real good spirits though... Her intake is very low,food & drink, so they have given her this weekend if it does not improve she will get a NG tube inserted Monday morning. She is SSSSSSSSSSSSSOOOOOOOOOOOOOOOO disappointed... SHe needs nutrition and calories though so they have no choice...
Her GGt went down 1 pt. today...So I ask for contiued prayers!!!

Thanks and God Bless,
Lynn

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Thursday, June 06, 2002 at 05:25 PM (CDT)

Hi,
Jessie continues to improve. She shed a few tears today due to the fact the docs have told her to drink or stay in the hospital....I am out of ideas to make her drink, she hasn't drank more then about 12 ounces she is to drink about a 2 liter bottle of liquid to be on target for fluid intake, it is important to her one working kidney that she flush all the meds out of it...
Unfortunatly her GGT count is still on the rise 178 today, I ask for continued prayers.
We are to be discharged tomorrow to the RMH and then home on Monday after blood work so we shall see... My mom and dad are on there way here to visit it will be a nice weekend with them here!

God Bless each of you!
Lynn

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Wednesday, June 05, 2002 at 03:38 PM (CDT)

Hello!
Jessie pretty much back to normal!
Her counts for today have stayed the same GGT'S 159, her AST'S today have double...So she was given seriods through her iv.. They are looking at stopping her antibiotics tomorrow and if her appitite improves she should be able to return home on Friday! I look forward to getting home to my family!

Thanks for checking in!
Love & Hugs,
Lynn

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Tuesday, June 04, 2002 at 01:33 PM (CDT)

Hello!
Day is going well! Jessie up and moving around really well! SHe was a bit itchy today she had telenol with codiene and seems that makes her itchy to.
She asked me to tell you all thank you very much for all your prayers and concerns says she will be home soon!
They found a stone in her liver bile when they operated it seems to be a bug of a sort possibly ecoli... So they have switched her antibiotics, so we shall see...Her counts are still rising a bit 159 for her GGT's which a day or so ago were down to 71...I pray that they will once again drop.....
The important thing is she looks good and is traveling around like a pro!!!!

Take care and God Bless each of you!
Lynn

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Monday, June 03, 2002 at 05:29 PM (CDT)

Hello from Delaware!!!
Jessie is feeling really good today! She has some belly cramps but that is normal.
She no longer has her pain meds connected and all drains and "stuff" are gone she is progressing well. She did alot of walking today! Malika and daddy went home today, she was sad to see them go but maybe now we can hear ourselves think..lol..Malika while great company sure can talk ALOT!!!
HHHmmmm her blood count....well today it was on the rise again her GGT's were 95 still low for Jessie, please continue to pray they hang low.....All othe liver #'s ok today.

God Bless each of you!
Love, Lynn & Jessie

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Sunday June 2,2002

Praise be to GOD!!!!!
The Lord is so good! Happy June to all!! I feel this will be a Great 6 months of the year!!!!
I am so excited!! Jessie's GGT count is "71" it has never been so low!!! When we came in it was 129 then went up to 138 day before surgey the day after it was 113 yesterday 91 and today 71!!The lowest it has ever been is 99! Normal is 25,but with Jessie she has always been 250 or more she has been as high as 900! So you see why I Know prayers have been answered!
I pray our rollercoaster ride contines upward!
I Praise the WONDERFUL Transplant Team here at AI if it were not for there Knowledge where would Jessie and so many others be today! Thanks to all of them!!!!We love you all!
The Nurses what can I say they are the BEST around they care so much for Jessie it's not just a job for them they truly give it there all!! We love them to!!!
And not by far the least we LOVE ALL of you for your prayers and concern for this Angel!!! With out your support where would we be......Thanks!!!!!
Jessie is doing so much better today she is a wake and talking today getting to be more like herself. Malika is here today so she is entertaining Jess whether she wants to be entertained or not..LOL. We took her out on the outside porch today she seems to enjoy it more today then yesterday.
Thanks again for checking in!! It's so nice to have such good people around me!

God Bless!
Lynn a very lucky mom!

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Friday, May 31, 2002 at 11:30 AM (CDT)

Hello!
Finally I am able to update, I am sorry it has taken so long.
Jessie did well in surgery, they had said it may be 7 hrs it turned out to be 3 and a half so it wasn't to bad of a wait.. They were able to clear some more of the scar tissue from her bile duct so we now pray it remains open. This is all they can do surgically for her if it should close again it would mean the stent would be placed in, if this were to fail as it has the last 3 times it was placed we maybe looking at another transplant.... I ask that as you pray you pray for the healing of this bile duct, so far we have had GREAT results all her liver functions are better then they have been in a very long time! Praise God for much answered prayer!
She has been sleeping alot since her return to her room, they removed her NG tube this morning, she still has her drain and her folly which they will look at tomorrow. They would like her to get out to a chair today, although she is not happy about this we will try it later today. She looks good her eyes are white as snow!!!! Amen!!!
God Bless each one of you for checking in!
Lynn

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Wednesday, May 29, 2002 at 11:13 AM (CDT)

****UPDATE*****
Jessie will have surgery at 1PM! Please I ask all to lift her to the Lord at this time! She is a bit depressed so ask you pray for her strength.

She is in Room 14 3c south.

Hello,
Well we are off to Delaware!! A day early.... Doctor Casas called this morning and asked that Jessie come in today and her surgery is rescheduled for tomorrow, Thursday...
I ask that you continue praying lift her up to our God, I hope this is the beginning to the end for her.
I will keep the web sight up as often as I can so please check in and let us know you were here, she still checking each day! Thanks to all of you and God Bless each of you!
Lynn

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Saturday, May 25, 2002 at 10:07 PM (CDT)

Hello!
Thanks for checking in!
Jessie continues to do ok..Not feeling well, I think it is because of the upcoming surgery she is so worried. Please pray that I have the right words to say...It is so hard cause sometimes all I want to do is cry...She has been through so very much at such a young age... I know I should be Praising God for all He has done , and I do!! But still I sit and watch her or listen to her words and still I find myself saying why her...why does any child have to go through such things...There is a reason I am told and I am not to question, but as a mom how can you not wonder "WHY????"
Now that I got that off my chest... Jessie went to her Oncologist on Wed. appt went well he will see her after she is done with her upcoming surgery and recovery, he assured me her cancer was a localized one and should not spread to other areas, oh how I pray he is right!
Well we have 6 more days till surgery pray for her, although I know that if you check in here you already are praying and I thank you, He does answer prayer! He is an Awesome God!
Bless each one of you!
The lucky mom of an angel!

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Wednesday, May 22, 2002 at 07:30 AM (CDT)

Hi,
All is well here. Jessie went to clinic on Monday and things are ok, liver numbers ok. Surgery is set for next Friday....
She goes to Oncology clinic today. If anything developes I will keep you posted!
God Bless each of you for checking in on Jessie! She continues to need your prayers....

Her Lucky Mom

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Saturday, May 18, 2002 at 08:10 AM (CDT)

Hi!
I trust everyone is doing well!
Jessie is doing good, she complains now and then but is doing Great!
She was unable to attend the class field trip they felt it would be to much walking for her so she stayed home on Thursday, she was a bit sad but seemed to enjoy her day.
Last night was the Relay For Life here in Hazleton. Jessica was invited by special invitation to walk the Survivors Lap ! It was a great experience for her, she enjoyed it! She said she wasn't only walikng for her but for all her friends she has met throughout her journey, her friend Sara was on her mind most! Tracie, my sister and the reason Jessie is a survivor walked with her and so did I, it was a touching experience!

Please if you are able support your local:
Cancer Society, Gift of Life,organ donation, & Make A Wish they all help lots of people each year!

God Bless,
Lynn
13 days till surgery, Please keep her close in thoughts and prayers!

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Monday, May 13, 2002 at 08:31 AM (CDT)

Goodmorning!
I hope all Mom's had a Great day yesterday! I know I did celebrating the life of all my children!
Jessie is home from school today as she is not feeling to well..... She goes to clinic next Monday... Then the 31st is the day of her surgery....
Continue to pray for her strength

A very blessed Mom!
Lynn

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Friday, May 10, 2002 at 09:05 AM (CDT)

Hello!
Jessie doing ok....She is not really feelin well...complains of headaches and pain in her belly, she is on meds for both.. She did go to school the rest of this week and is looking forward to a school field trip next week. I am glad she will be there and able to go!
Please sign in if you visit she still looks to see who has been here.
God Bless each of you for your concern!
Lynn, a very lucky mom!!

My mom is home, thanks to much Prayer!!!!

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Tuesday, May 07, 2002 at 10:28 PM (CDT)

Hi!
Praise God, we are home again!
Jessie doing well still on hospital time though she is still awake...lol..
She has done real well and is going to go back to school tomorrow!
Well we are free for awhile no blood work till May 20th then on May 30th she will be admitted for her surgery on the 31st. Continue to pray for our angel!
Hope all is well with everyone, God Bless you for stopping by!

Lynn
My mom comes home tomorrow thank you for your prayers!

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Sunday, May 05, 2002 at 07:36 PM (CDT)

Hello!
Jessie had a Great Birthday! She had 2 cakes and lots of well wishes!!
The Transplant Team,Nurses of 3C South the, best group of nurses!,and all Jessie's friends here made her day very special!
On Friday Jessie had a ct scan...It showed a blockage on the underside of her liver. She will have to come back in for her surgery on May 31st, they are unable to do it now. Tomorrow she will have her medaport removed surgically she isn't real happy about that,but it continues to grow bacteria which is not a good thing. Once this is done and she is ok we should be able to return home on Tuesday! I ask for contiued prayer for her!
God Bless!
Lynn
My mom continues to improve! Thank you!

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Wednesday, May 01, 2002 at 09:20 PM (CDT)

Hello!
Thank you for all your prayers!
Jessie is doing OK. She went to Christiana today and unfortunatly they had to put her stent back in.. She is a bit sad , But doing Great!
The transplant team hopes to fix the stricture before we return home, this way the she will be free of the tube that presently is in her side.
She is excited about tomorrow! Here at DuPont it is Donor Awareness Day! She will be helping her social worker Bev hand out donor info by the cafeteria, she looks forward to this!!! They are also having a luncheon for Donors and recipients, so it will be a Great Day! She doesn't know but they are going to have a cake for her birthday! She will be so thrilled!
Tomorrow is Jessie's 11th Birthday! Praise God for all He has done in her life, and for ALL the knowledge He provides for her doctors and the Transplant Team here at AI, They are WONDERFUL!!!!!!

A Lucky mom!
Lynn

ps. my mom continues to improve, thank you for all your prayers!

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Sunday, April 28, 2002 at 09:53 AM (CDT)

Hi!
Jessie is doing better today!
She will be going this week over to Christiania Hospital for a scan of her bianary ducts, if by chance again the one is blocked she will have to have a stint put back in her liver, which we have had before and was surgically fixed in Jan. not sure why it has happened again.... Jessie is a bit upset at the thought of it going back in again. Please pray for her...She truly has been through alot and it seems sometimes when we think its getting better we go back a few steps...
Thursday is Jessica's 11th birhtday! Wow she is getting so old..lol... Thank you God for all you have done in bringing her yet another year of life!!!

God Bless all of you who stop by!
Lynn

I also ask that you lift my mom & Jessie's nanny, up in prayer. She is in the ICU back home. She is suffering from kidney failure.

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Saturday, April 27, 2002 at 08:43 AM (CDT)

Hello,
Well I am typing from the Ronald Mcdonald Room at A I duPont.... We spent the entire night in the ER, She finally got a room at 8:45 this morning.
Jessie wasn't feeling well and seemed to be turning yellow, her eyes, which is jundance,not sure of spelling, her doctor admitted her and it seems we will be here awhile...
I ask you lift her up in prayer, she is a bit down, as the test they will be doing this time she will have to go to sleep for I have tried to explain it will be easier to be asleep but she doesnt seem to understand all that.
Hope all is well with everyone!

Love, Lynn
ps. My mom is in intensive care at our hospital back home so please lift her in prayer also!

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Thursday, April 25, 2002 at 10:53 PM (CDT)

Hi!
Jessie back home! Her levals still not what they should be...We go back again on Monday.....She is not feeling wll since we came home. She is running a low grade fever and now she is up itching. She had a CT Scan today will know results tomorrow I hope.
Contiue to pray for healing! We know he answers all !!

Lynn

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Monday, April 22, 2002 at 06:01 PM (CDT)

HI !
Jessie went to Delaware today to DuPont, she had a good clinic appt. all thinks she looks great!
When we got home we got a call about her blood work...... Things there are NOT so good...We need to return on Thursday with the possibility of Jessie being admitted. I ask that you lift her in prayer, she was very disappointed after speaking to them and then to me....She doesn't look forward to Thursday...

Lynn

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Thursday, April 18, 2002 at 07:34 AM (CDT)

GoodMorning!
All is well here! Thanks be to God!
Jessie did the Make A Wish Telethon on Saturday and was a Star!
We went to her Oncology Clinic yesterday,still no scan makes me so nervous.... back in 5 weeks... Monday back to DuPont!
Jessie is doing so WELL ! She is back to school finished almost 2 full weeks now!! She complains of being tired, but does well!

New pics!

God Bless !!!!
Lynn

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Wednesday, April 10, 2002 at 09:50 PM (CDT)

Hello!
All is well here! Jessica's seems to enjoy being back at school. Although she is always so tired, I suppose just adjusting back to being busy all day. I ask that you continue to pray for her strenghth she truly is a fighter, I hope I can be half the person she is already at 10! She will be 11 in less then a month hard to believe..... For those of you who are local Jessica will be on WBRE at 3Pm on Saturday, for the Make A Wish Telethon, I ask that you give them a call and support there efforts in helping children fullfill a wish!
I am still going to contiue to post my sister poem to Jessica to me it is so very special!
Tomorrow is my sister's birthday if you get a chance let her know how special a person she is! email- traseadea@aol.com thanks!

This is a poem my sister sent to Jessica:
Jessica If I could give you diamonds for each tear you cried* If I could give you sapphires for each truth you've seen* If I could give you rubies for the heartache you've known* If I could give you pearls for the wisdom that you've shown* then you'll have a treasure, Jessica, that could mount to the skies* That would almost match the sparkle in your kind and loving eyes* but I have no pearls or diamonds, as I'm sure you're well aware* so I'll give you gifts more precious, my love, liver and care. ( Surprise ending!! ) I love you! Aunt Tracie xxoo

Love and prayers to you all!
Lynn

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Wednesday, April 03, 2002 at 07:42 AM (CST)

Hello!
I trust all had a Great Easter holiday!
I know we did it was so wonderful to celebrate both the life of Christ and the second chance at life that was given to Jessica! I thank God each and every day for the knowledge that our Lord has given to the doctors and staff at AI DuPont ! We love you Doctor Dunn, Dr.Casas.Kathy . Louise, Bev, Jenn,Sara, Beth, oh my I could go on and on I don't want to miss anyone you all have bee such a very important part in Jessica' s recovery! God Bless each of you!
Although we ended up back at Dupont yesterday, because she was complaining of a pain in her side it turns out to be a stich that is poking through. Thank God! While there she had blood work which to is improving! So even though she didn't start back to school yesterday we got a great report!
Great news! She went back to school today ! It is the 1 year anniversary of her transplant today !!! Praise God for all He has done in getting her this far!!!!
A Heart felt thanks to my sister who unselfishly gave my daughter another year of life! We love you Tracie and miss ya much...
This month is donor awareness month please consider saving somone's life! Don't take your organs with you heaven knows we need them here on earth!

Update!
This is a poem my sister sent to Jessica:
Jessica If I could give you diamonds for each tear you cried* If I could give you sapphires for each truth you've seen* If I could give you rubies for the heartache you've known* If I could give you pearls for the wisdom that you've shown* then you'll have a treasure, Jessica, that could mount to the skies* That would almost match the sparkle in your kind and loving eyes* but I have no pearls or diamonds, as I'm sure you're well aware* so I'll give you gifts more precious, my love, liver and care. ( Surprise ending!! ) I love you! Aunt Tracie xxoo

God Bless!
Lynn , a very Happy Mom!

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Monday, March 25, 2002 at 09:56 PM (CST)

Our Lord has Risen!
Praise God for all the good He has done and continues to do!
Last Easter Jessica was just 2 weeks out of her transplant and looked so very sick. Today thanks to our Lord she is doing wonderfully!

I hope that all of you have had a Blessed Easter season! I know we have in just looking back at last years pics and looking at Jessica today She is born again, thanks to the miracles of medicine and the healing hands of our Lord!
Praise Him for alll things Great and Small!
Lynn
Check out new pic taken in our church.

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Friday, March 22, 2002 at 09:55 AM (CST)

Hello!
Another great week has passed! Praise God!
Jessica had her oncology appt.on Wednesday, he said he will monitor her once a month for awhile, then he will go to every three months. Blood work I am asssuming was fine, I didnt hear from his office to say anything different.
Back to DuPont on Monday it's hard to believe in someways that it's been a month already, other times I feel like it's been a life time. Continue to pray that all is well!
Jessica will be on our local channel 28 WBRE for the Make-A Wish Telethon, which will be on April13th. tune in if you get a chance! They have been good to Jessica, for those of you who might not know they redid her bedroom in purple and when i say purple i mean purple..lol.. I will try to post a pic of it very soon!
I hope the Lord is continuing to Bless you and your's !
God Bless, Lynn

p.s. if you stop by, please say hi! Jessica looks often! Thanks!

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Sunday, March 17, 2002 at 07:31 PM (CST)

Hello!
All is well here at home!
Back to Hershey on Wednesday, it seems like forever since we checked in at Oncology,hope all is well....
Life is so very precious, don't ever take it for granted....
The Lord has been so GOOD to Jessie!
How do people ever make it through life without the help of the Lord??? I am so glad for my younger years and the people who influenced me to except the Lord and His Love! If you are reading Jessica's page and you have yet to find Him look for Him He is there for you always!!

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Thursday, March 14, 2002 at 03:55 PM (CST)

Hello!
I apologize for the delay in entries.
Jessica is doing really well!! Praise God!
She goes for an ocology appt. next week and the following week is in DuPont, so please continue to keep her in your prayers.

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Thursday, March 07, 2002 at 03:03 AM (CST)

Goodmorning!
Jessie is doing Great! She attended school all day yesterday. She says she was a bit tired but good! I pray for her strength to increase each day.
Well I am off today for a vacation, a bit scared to go , but others say I need it!
I am not sure how often I will update but this will be a place for Jessie and I to communicate while I am gone, so bare with us! It has been a very long time since we have been seperated. :-(
God Bless & Take care!
Lynn

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Sunday, March 03, 2002 at 09:12 AM (CST)

Goodmorning!
Things here at home are going very well! Jessica seems well, her only complaint is being tired.
Once again I would like to thank all of you for stopping by! She looks each and every day to see who has been bye. So if you stop each day let her know she would love it!
God Bless!
Lynn

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Tuesday, February 26, 2002 at 09:37 AM (CST)

Hi everyone TV was fun I had a great time.My counts are good.So I don't have to go for one month, mom is a little scared, but i feel fine will be nice to not be stuck for a while!

Dear willam I am in 5th grade I go to Heights- Terrace School, although I am being tutored at home till April,moms way of keeping me in a bubble! My favorite cartoons are on Disney. For fun I like to go outside, ride my bike, I like to read, go swimming & bowling! Thanks for writing! Keep in touch!
For all who have been praying for my little friend Sara she is at home now. She is doing well! My hope is she will continue to be well! Continue to pray for her as she continues to recieve more chemo, and I know how hard it is...
God Bless! Love, Jessica

Hi, As you see Jessie wanted to do her own thing today, that continues to happen I thank God she is getting back to herself!!!
I realised I repeated my entry of a couple of weeks ago, I suppose it just hit me so much I like to share the story hope no one minded...
Love the luckiest mom!

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Saturday February 23, 2002 0:56 AM CST

Hello,
Jessie is doing well!! She is excited about being on TV today! I believe it is only a local broadcast. So I am not sure how far it will be seen.
I was sitting wondering what to write....THis page is such a wondeful service thatcaring bridge provides! Back when Jessie was very ill, it would have been a great place to write out all my feelings and to let all know how she is doing... I thank God those days seem to be behind us,and I have to say I hope forever... So what can I write.....My thoughts drifted to some of the things she has said to me to support me through all this, yes I said her support me. It is funny how at times when you think you are the one to lean on you find yourself leaning instead...One day as we left the Oncology doctor after being told "If we do chemo we may loose her & if this type of cancer returns we will loose her"..hhhmmm now decide where you want to go from here...WOW what a place to be, didn't seem like there really was a right desision...When we were driving away from the hospital I remember tears flowing non-stop...Jessica loked at me and said,"mom what happened?? Why are you crying??" I said "oh Jessie it's just such a very hard desision..." She said" Well mom where is your faith? I believe that when I had my transplant,the doctors removed all my cancer." "Besides mom if it happens that I die, I will always be with you as your angel!" my responce to her was I am to comfort you not you comfort me.. She said "mom you always are a comfort to me, can't I comfort you sometimes...
I love you Jessie!!!
Thanks to all of you who have been checking on my angel! She truly enjoys your messages!

One Lucky Mom!

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Thursday February 21, 2002 3:16 PM CST

Hello!
Hope everyone is fine! Jessie is doing well. She will be on our local cancer telethon this weekend. She will be on around 12:30 they are going to interview her. Then she can hang around and see what else she can help with. Then next year she can be more active! She is so excited to be able to do this. Next month she will be on the Make - A- Wish Telethon, she is becoming a TV star! I am just glad she is willing to try and help. Although I don't know why I am surprised, she has always been such a caring child!

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Tuesday February 19, 2002 7:06 AM CST

Goodmorning!
Things here at home are going well! Thanks be to God!
We added a new pic of Jessica! While at the lunch on Sunday they took a formal pic of her I hope you enjoy!

God Bless You!

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Sunday February 17, 2002 5:13 PM CST

Hi!
Jessica and I attended the yearly Donor appreciation luncheon in Philly today! It was wonderful to be in a room with such loving people who have thought of others before themselves! We were sad that Jessie's Aunt Tracie couldn't be there she lives in Maine for those who don't know. We love her and thank God each day for her Gift of Life she gave to Jessica! Jessie excepted her pin and a letter from the Gift of Life Organization!

God Bless

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Friday February 15, 2002 2:18 PM CST

Hello!
Happy Valentines Day!
Jessica is doing well. She really has been bugging me to let her go back to school...It's so hard after all she has been through I would like to just keep her in a bubble unable to be touched by anyone or any thing. I wonder sometimes what I did wrong as she was growing , could I have caught all of this sooner... I know the answer, but at times I can't help but think what if?????
She is such a wonderful young lady with so very much to give, she worries about everything and takes her sickness in stride. To be able to put aside what ales us to think of others??? Shouldn't we all be like that???
Jessica wants each of you that pray for her to pray for Sara, as you know she is a 3yr. old little angel Jessica has come to care about, she is having a time of it.
Please remember all children and there families... If you children are healthy take a minute to Thank God! Followed by a big hug and kiss for them!

God BLess You for checking in,
The luckiest mom!

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Monday February 11, 2002 3:38 PM CST

HI All!
Good news today counts are once again getting better! I pray we are on our way to good things!
I was thinking today.....one year ago this time Jessie was getting her second round of chemo...She was so very sick... Today she is FEELING GREAT !!!! Praise God for all HE has done!!!!!Last year we seemed to have no hope..... Now because of the grace of God she Has ALL the Hope!!!! I can't help to think of how very true...."Footprints" is...He truly does carry you through!
I ask that as you pray you will remember Jessica's little friend Sara and her mom, times are difficult, but with the Lord by there side they take each day one at a time..

God Bless you!!
Jessie's Mom

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Thursday February 7, 2002 3:00 PM CST

Hi!
Sorry it has been so long since we wrote.
Jessie was in Delaware on Monday for blood work, enzimes are up to high again, but they left her go still trying to give meds a chance to work. She had a bad ear infection when she went in so they gave her meds to help with that.
We went to see Jessie's new friend Sara while we were in Delaware, we weren't able to see her tho we ask that you lift her up in your prayers. She is a sweet sweet baby! Jessica being Jessica worries about her all the time..

Thanks for checking in on my angel!
Love,
Her lucky Mom!

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Friday February 1, 2002 6:46 AM CST

Happy February!!

I STILL FEEL GOOD, BUT I AM GETING A COLD . EVERYONE HAS BEEN REALLY GREAT HELPING OUT WITH THINGS. WHEN YOU HAVE A PROBLEM YOU CAN ASK THE LORD TO HELP YOU OUT!
GOD BLESS EVERYONE!

LOVE JESSICA....

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Tuesday January 29, 2002 8:01 PM CST

HI! EVERYBODY I AM DOING GREAT TODAY! I FEEL GREAT! THANK YOU FOR PRAYING FOR ME AND CONTINUE TO PRAY FOR MY FAMILY AND HELPING THEM WITH THERE PROBLEMS.

TRUST IN CHRIST! LOVE,JESSICA

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Monday January 28, 2002 2:10 PM CST

Hi!!!
Thanks so much for continuing to check in on Jessica!
Jessie went for blood work today and the results are in: All of her liver enzymes are on the way down!!!! Praise God!!!!
She went to school today for about 2 hrs and really enjoyed herself! We hope to let her go back fulltime the begining in April, Lord willing! She really needs to get back to a some what normal life, she has spent the last year in and out of the hospital at this time its all she knows.
She really enjoyed doing her own journal page so look to see her journals in the very near future!
Love to all & God Bless!!!
Lynn

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Saturday January 26, 2002 1:01 PM CST

hi it;S jessie. my mom said i could do the journal entry. And i feel ok i guess today.
how i feel about what happden to me. i was scared at fist. but my mom was there to get me past been scared.thankyou everyone for your love and prayers .

god bless;jesssica thank you everyone.......

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Thursday January 24, 2002 1:25 PM CST

HI,
We are back from the hospital! Praise God we didn't have to stay.
Jessie's counts still on the rise, she will be starting a new medication tomorrow, I pray that this will start to put things in order.
Although things seem tough at times , I have to admit how very lucky I am that the Lord gave me this angel to care for. She is so very special to me! I see the look on peoples faces when they see her they light up she has touched the hearts of many people and continues to be so kind in the midst of what she deals with each day, from medication to blood work & the emotional rollercoaster of never really knowing what comes next.... This to me is so hard, to see a 10yr. who should be in school having fun with friends and just hangin out, not worrying when pill time is and will I be admitted to the hosp. or can I go home..... She is so strong, I think I draw my strength from her...
Please continue to pray for both Jessie and ALL the children & families that each day ride this rollercoaster of emotion...
Jesus truly is with each of them holding them in His loving arms!

God Bless & Thank you,
Lynn

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Tuesday January 22, 2002 11:56 AM CST

Hi All,
Sorry it has been a few days...
We went to Delaware on Sunday and returned home this morning. Jessie had a clinic appt. It shows that her liver enzymes are on the rise again.....We return on Thursday for more blood work. Please continue to pray for her...She was feeling good and now is a bit sad.. I wish things would just let up a bit for her, she has been through so very much...Now yet again she faces more....
I know I am not to question , but it really is so hard not to when, all I can think is Why???????
God Bless You!
Hope all is well with everyone!
Lynn

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Saturday January 19, 2002 10:49 PM CST

HI,
Today was a better day. Jessie complained of little pain.
She helped make dinner, then she baked brownies. She really seems to like to cook!
Jessie is still Jessie..she worries about everyone but herself, as always...Her new friend she met at the hosp. isn't feeling well...She spent alot of time today thinking of her....Keep her in your prayers also as you pray for Jessie.
We go back to Delaware tomorrow evening, for our clinic appt. on Monday. When we go as you might already know we stay at the Ronald McDonald House, what a WONDERFUL place, the people are wonderful! The house is large and beautiful. I thank God for the people who make it all possible. If anyone needs a charity I highly recommend you donate to them, there mission is a wonderful one.
God Bless you all !!
Lynn & Jessie

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Friday January 18, 2002 10:01 PM CST

Hi!
Jessie still complaining a bit about pain, called docs they said she should be relaxing..Steps only once a day...
She went to Hershey today for blood work and to visit with the staff. She asked her oncologist to be her doc again. He was so tickled he said he would love to! So for our follow up we are back to Hershey for Oncology.
Kathy from DuPont called today with good news her counts are still droping! Praise God I pray we are finally on a up swing! We spoke about Jessie not drinking or eating well, I ask that you pray for her in this area, she may need to have a NG tube put in so she gets the proper nurishment...
I thank God for all of you who have taken time to sign her page she loves to read it!

God Bless!
Lynn

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Thursday January 17, 2002 2:43 PM CST

Hello,
Another day at home!! Amen!!!
Jessie is doing well today! She is presently working with her teacher, she has homeboard instruction. She seems to like it although I think she would like to be back in school with all the other kids and her friends. Hopefully when all is well and cold and flu season is over she will be able to return.
She woke early this morning again complaining of pain. I believe it is just from over doing it. We will see how she does tonight she needs blood work tomorrow if she still is not feeling well we will go to Delaware so the docs can look at her.
I am praying that is not the reaccuring bowel infection she gets.....
Once again thanks to all who are writing her she thinks this is Great!

God Bless You!
Lynn

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Wednesday January 16, 2002 8:09 PM CST

Hi,Thank you so much for all of your entries! They all brought smiles to Jessica's face and these days they are priceless!
I want you to know that each day I will try my best to update this page so all will know how she is doing.
Today was a good day we went shopping and she did ok, a bit tired and she is complaining a bit about some pain. I have to remind her she just had surgery and she can't do all she wants to do..
I was thinking today about a day when Jessie told me, I was upset about a report we recieved and was crying, her comfort for me was I am your angel here and that will not stop if I should go home with Jesus, I will then be your Guardian angel! She amazes me how she seems to always know what to say! To have the Faith of a child!
Keep checking back!
God Bless You!
Lynn

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Jan.15,2002 9:30PM

Hi! Welcome to Jessica's Journey!

Where to begin....Jessie is a 10yr old little girl. Last January 13th,2001 she was diagnosed with a very rare form of liver cancer. The name the doctors at Hershey Medical Center in PA. gave to it was, Undifrientiated Sarcoma of the Liver, WOW...
Jessica came into our family when she was 4months old she was born 3 months early and weighed only 1lb 4oz. She was born a fighter I have to admitt when I think about her early weeks I wonder why she again was made to fight for her life????
Jessica now a young lady loves the Lord and because of this she has had the strength to keep on going. She has also had enough faith to remind her mom that He is there and He has held her hand through her journey! Sometimes it is hard to believe he is there, but how would we ever get through all of this without Him?? I remember in my nightly walks through the hospital halls thinking how would anyone who did not know Him EVER make it through all of this.....
Since Jessica's diagnosis she has had 3 rounds of chemo, I was told they were the big guns,simply because there was no survival on record for her cancer. Her docs were wonderful they came up with a combination that she had 40% shrinkage of her tumor that took over 80% of her liver. The Lord truly had His hand in that. Her doc at HMC put Jessie's case on the web which is where the next miracle happened, a doctor at A.I. Dupont Hosp. in Delaware learned of Jessie's case. He is Dr. Dunn, a Transplant doctor, he contacted Dr. Frieburg,Jessie's Oncologist at HMC, and a meeting was set up, Dr. Dunn was due to come to Hershey,only 3 days after her diagnoses was given, another miracle! We met with him and decided we would search for a live liver donor! I spoke with him about donors bills and he told me that Jessie's insurance would pay for all of the expenses in my book another miracle! A live donor only need to be Jessies Blood type and be willing to give up some time to heal.
When our meeting was over I called my sister who lives in Maine and told her of our meeting. In the middle of my talking she said, "hey I will call you back", I was not happy but left her go. Within a few minutes she called me back, she was so happy she had called her doc and confirmed that her blood type matched Jessica's. I said and what? She said I am on my way home to be tested, My response was "not my sister and my daughter", her response "try to stop me"... Once again another miracle! She was tested and on April 3,2001 she gave Jessie her left lobe of her liver!!Yet another miracle!
It hasn't been an easy road for Jessie, she has had set backs and some rejection of her new liver, but the Lord as you see has NEVER left her side!
She recieved 2 rounds of follow- up chemo, she did not do well with either of them so we have oppted to once again trust our faith and believe when the liver was removed so was her cancer!
We just came home from the hosp. today she was in for a week, she had another operation to fix a sticture in her liver, my prayer is that this was our last long stay att he hosp. While there this visit we had the pleasure of meeting 2 very special people Kelli and Sara, they have been down a similiar road and we thank God for bringing us together! God Bless you both!

I will continue to update Jessie's Journey and add things as I remember them! I really have lots to say!

Please always remember that even in the darkest days Our Lord is by our side!

God Bless, Lynn

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