CaringBridgeTM
Guestbook

guestb3.gif (3186 bytes)

Thanks for visiting our guestbook!
(This is an open guestbook.  Please feel free to add an entry to the guestbook for others to read.)

**** IF YOU DON'T SEE YOUR ENTRY AFTER ADDING -- PLEASE CLICK ON RELOAD/REFRESH ****
*** AOL Users:  The AOL browser seems to have particular problems reloading after this page is updated.  Your Entry is probably already there - you are just not seeing it.  Close your screen completely and re-enter it.***

 

Click here to sign the guestbook.

Click here to go back to the main page.


I'm so sorry I missed posting yesterday, Nicholas' birthday. I know just how even more difficult these days are. We miss them always but these days have such a cutting edge... May our Lord hold you close and may you know His and Nicholas' presence in a very special way.

Yolanda Rogers, Mom to Anna <weloveanna@earthlink.net>
Alt Spgs, FL USA - Tuesday, August 28, 2007 7:45 PM CDT
Just sending some


________XXXXXXXXX_______ XXXXXXXXX_________
______XXXXXXXXXXXX____XXXXXXXXXXXXX ________
_____XXXXXXXXXXXXXX__XXXXXXXXXXXXXX ______
______XXXXXXXXXXXXXXXXXXXXXXXXXXXX _______
_______XXXXXXXXXXXXXXXXXXXXXXXXXX________
________XXXXXXXXXXXXXXXXXXXXXXXX_________
__________XXXXXXXXXXXXXXXXXXXXX __________
____________XXXXXXXXXXXXXXXX _____________
______________XXXXXXXXXXXXX ______________
________________XXXXXXXXX ________________
__________________XXXXX __________________
___________________ XX ____________________
______________________________________________


To you,

From Everyone at Post Pals
www.postpals.co.uk

viks <viks@postpals.co.uk>
- Tuesday, March 13, 2007 7:36 PM CDT


I was posting this picture on Cassie's site, and thought I would swing by your page to say "hello", sorry I didn't sign on the 27th.

Lots of love

Viks




viks <viks@postpals.co.uk>
- Sunday, August 27, 2006 8:01 AM CDT
Remembering you and Nicholas on the eve of his 7th birthday. May our Lord's awesome presence and Nicholas' be made known to you in a very special way and may the thought of holding him again in Heaven soothe and encourage your heart.

In His Love,
Yolanda Rogers
http://www.galatians5.com


Mom to Anna
Alt Spgs, FL USA - Saturday, August 26, 2006 10:34 AM CDT
Remembering you and Nicholas with love on his Homegoing anniversary. Receive a tearful, wordless hug from those who know your pain.

http://www.galatians5.com

Yolanda Rogers, Mom to Anna <galatians5@truevine.net>
Alt Spgs, FL USA - Friday, February 17, 2006 6:56 PM CST
GOD BLESS YOU ALL
PRESLEY BARTLEBAUGH <PRESLEY_6@MSN.COM>
MAYFIELD , PA LACKAWANNA - Friday, October 28, 2005 4:09 PM CDT

www.postpals.co.uk

Liz Cook - Postpals
Brighton, England, UK - Sunday, September 4, 2005 8:25 AM CDT
Remembering you and Nicholas with love on the eve of his birthday. May you continue to know our Lord's comfort and peace in a very special way.

In His Love,
Yolanda Rogers
http://www.galatians5.com

Mom to Anna <galatians5@truevine.net>
Altamonte Springs, FL USA - Friday, August 26, 2005 6:53 PM CDT
Hoping you are able to enjoy Mothers Day and the good times with your little guy, although they were too few, overshadow the grief somehow.
Chris & Gooch
- Saturday, May 7, 2005 10:36 AM CDT

HAPPY EASTER LOVE WWW.POSTPALS.CO.UK

Post Pals <info@postpals.co.uk>
- Friday, March 25, 2005 9:54 AM CST
Wishing you peace, I know the loss is a huge one, no matter how much time transpires there will always be a big hole in your life and your heart.
Chris - Gooch's mom
- Friday, February 18, 2005 7:53 PM CST
Sorry I didn't post on Nicholas' Homegoing anniversary due to computer problems. I know how very, very much remembering him means. May our gracious and merciful Lord continue bless you abundantly with His comfort, His peace and, most of all, His hope.

In His Love,
Yolanda Rogers
http://www.galatians5.com

Mom to Anna <galatians5@truevine.net>
Altamonte Springs, FL USA - Friday, February 18, 2005 7:49 PM CST
Denise,
I've been on the Hunters Hope website before but really never got into the journals of the families. I know we don't talk about Nicholas that much but I want you to know that he is always in our thoughts and prayers. There has been many occasions that I have just stopped at the gravesite just to say Hi. Someday when Hailey gets older, I want her to understand why we stop and put flowers there. I know getting the grandkids pictures taken probably wasn't the easiest for you or Ron but for everything you both have been through including Lex, you are all doing well. Even though we don't talk about it often, please remember if your ever having one of those days or just want to chit chat, you know where I am. Nicholas will always be in our lives and looking over us. He's remembered everyday. Through everything it has also taught me to be a better mom and not take life for granted.

Heather
Etters, PA USA - Thursday, December 9, 2004 1:17 PM CST
Happy Birthday in Heaven Nicholas.
Mom, I can only imagine how hard it is to endure outliving a child, but I wish you peace

Chris - Gooch's mom
Share the Love
- Saturday, August 28, 2004 8:06 AM CDT
thinking of you on nicholas' birthday. may you feel his love around you all day. thoughts and prayers, angelique parker
www.caringbridge.org/oh/harleiparker

angelique parker <pfloyd326@yahoo.com>
ohio - Friday, August 27, 2004 10:14 PM CDT
Happy Heavenly Birthday Angel Nicholas, my thoughts and prayers are with your family today.
Teri
Nashville, TN - Friday, August 27, 2004 6:40 PM CDT
Remembering you and Nicholas on the eve of his birthday. May our Lord continue to bless you with His comfort, peace and, most of all, hope.

In His Love,
Yolanda Rogers
http://www.galatians5.com

Mom to Anna <galatians5@truevine.net>
Altamonte Springs, FL USA - Thursday, August 26, 2004 7:18 PM CDT


Im sending all my love to you all,

Love

Viks

viks <viks@postpals.co.uk>
- Saturday, July 17, 2004 12:53 AM CDT
Hello, just dropping by to send a hug to you









Love Viks on behalf of everyone at Post Pals


viks <viks@postpals.co.uk>
- Sunday, May 30, 2004 4:42 PM CDT
Hi, my name is Krystal. I just wanted to say I'm really sorry bout your baby. I really hope someday they find a cure for Krabbe disease.
Krystal <BadBoyzRock2000@bolt.com>
Rockland, Me America - Wednesday, May 12, 2004 12:41 AM CDT
Mothers Day Prayer

I Pray for you that on this special Mothers day,
God fills your heart in a truley beautiful way.
And may, He in His reach from heaven above,
Flow the wonderful family spirit, of His love.
I pray He grant, truley sweet and Angelic care,
That you may know, He is, always there.
I pray within God's great vast Love for you
In life, daily onward, In all that you may do,
You feel His love, His strength, His peace,
This Mothers Day blesses a spiritual release.

Have a Blessed Mothers Day

Chris Ullrich - Bella's Grammy <c_ullrich@msn.com, caringbridge.com/page/isabellaledesma>
- Saturday, May 8, 2004 10:38 PM CDT

Thinking of you this Easter, Love everyone at Post Pals






viks <viks@postpals.co.uk>
- Saturday, April 10, 2004 5:09 PM CDT
im sure you must get bored of hearing it, and i wish i could find something more orginal to say, but i AM thinking of you,






Love viks from BWC and Post Pals



viks <viks@postpals.co.uk>
- Tuesday, March 9, 2004 3:50 AM CST
You are in our prayers as another anniversary of Nicholas' Homegoing approaches. We know how terribly hard these days can be, how sharper the pain, how keener the sense of loss. Praise God that by His mercy we know exactly where our beloved children are! May this knowledge kindle and lift your hearts.
Yolanda Rogers, Mom to Anna, - - http://www.galatians5.com - - <galatians5@truevine.net>
Altamonte Springs, FL USA - Monday, February 16, 2004 5:17 PM CST

I gently wrap warm thoughts of you
in my christmas prayers
For Heaven to smile on you
For Angels to watch over you
and the love of Jesus to fill your heart
Have A Merry Christmas
God Bless You And Your Family This Holiday


Chris Ullrich - Grand-daughter dx with AML M5 <c_ullrich@msn.com, www.caringbridge.com/page/isabellaledesma >
Hemingford, Ne USA - Saturday, December 13, 2003 9:47 AM CST
Happy Birthday Nicholas!!! I am sure you had a wonderful day. Make sure you send your mommy and daddy some kisses....
With love,
Erika Sears
~Angel Haley's Mom~

Erika Sears <GregErika@MindSpring.com>
Seneca, SC - Thursday, August 28, 2003 2:56 PM CDT
Dropping by to let you know you are in our prayers as you celebrate the remembrance of Nicholas' birth and life with you this side of Heaven. We pray our Lord would not only fill your hearts with peace but also with the joy of the sure and blessed hope of holding Nicholas' again.
Yolanda Rogers, Mommy to Anna, http://www.galatians5.com - <galatians5@truevine.net>
Altamonte Springs, FL USA - Tuesday, August 26, 2003 6:01 PM CDT
Denise and Ron:

I just wanted to let you know that we continue to think about and pray for all of you.

www.caringbridge.org/nc/noellenicholas

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Wednesday, July 16, 2003 1:56 PM CDT
Deinse and Ron:

I continue to check on you all but don't always sign the guestbook. I wish I could say the "right" words to make you feel so much better, but we all know that there are no "right" words that anyone could say to ease the pain of losing a child. Please know that you are constantly being thought about. I will continue to check on you all.

www.caringbridge.org/nc/noellenicholas

Yours in Christ,

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Thursday, May 22, 2003 8:02 AM CDT
Denise and Ron:

Easter is such a special day to remember our precious children. It is because of Easter that we can be assured that we will one day be reunited with them.

We continue to think about and pray for you.

www.caringbridge.org/nc/noellenicholas

Yours in Christ,

Wendy Baber <vbaber@traid.rr.com>
Winston-Salem, NC - Sunday, April 20, 2003 8:21 PM CDT
I am not sure what to say to you, as I dont want to pretend to even begin to imagine what you are going through. But I wanted to drop by and extend our condolences and wishes that Nicholas is pain free and at peace, looking over you all.
Chris ~ Gooch's Site


- Saturday, April 19, 2003 11:45 AM CDT
Denise and Ron , although I never had the privilege of knowing you or Nicholas , I see your love shine through in your words, your sadness for your lost angel. Im sure as you say he is looking down on you now watching and smiling, laughing and playing with the other angels.Take care and smile once a day, with love and caring
wendy in nz <Cetecea@hotmail.com>
wellington, New Zealand - Monday, April 14, 2003 6:05 AM CDT
Denise and Ron:

I wanted you guys to know that your Caringbridge Family is still here. We continue to think about you all. We know that the pain is oh, so deep and the hurt is beyond comprehension. We serve such an awsome God. I know that the wonderful memories that I have of my sweet Noelle and Nicholas will be forever etched in my heart; as will the memories you have of your sweet Nicholas be forever etched in your hearts.

Please know that we continue to think about and pray for all of you.

www.caringbridge.org/nc/noellenicholas

Yours in Christ,

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Saturday, March 29, 2003 9:06 PM CST
Denise, Ron, and Alexis,

Thank you for sharing your beautiful son, Nicholas. I am so sorry that you lost your beautiful son to a horrific disease. May you find comfort knowing he is in heaven and that there are so many people who care. My heart goes out to you and you are in my prayers. Nicholas will live in your hearts forever and he will never be forgotten. One day, you will all be reunited. God bless.

Diane <thevezz@aol.com>
San Francisco, CA USA - Friday, March 28, 2003 10:49 PM CST
Denise and Ron:

Just coming by to check in on you guys and let you know that I continue to lift you up in prayer. I bet your Nicholas is showing my Nicholas all of the cool hiding places up in heaven. One day, when we are reunited with our little angels, they will have so much to tell us. Until then, we must continue on serving our Heavenly Father.

http://www.caringbridge.org/nc/noellenicholas

Yours in Christ,

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Thursday, March 20, 2003 12:03 AM CST
Nicholas is beautiful. My heart breaks for you and your family. I know these two years have passed in a way you never could have imagined. I hope you have many people in your lives who continue to speak his name. He will not be forgotten.

hometown.aol.com/lostmyjosh/joshua.html

Kelly <lostmyjosh@aol.com>
Grand Rapids, Michigan - Sunday, March 16, 2003 9:38 PM CST
My heart is heavy with your grief, pain and sorrow. We know all too well how incredibly (almost impossibly) hard this trial is to bear. As I see the many websites lovingly made by parents with breaking hearts and endless tears, I am more and more grateful to our Saviour and thank our Lord for Heaven. We pray that His comfort, peace, assurance and hope be yours.



Yolanda, Mommy to Anna, http://www.galatians5.com <galatians5@truevine.net>
Altamonte Springs, FL USA - Sunday, March 16, 2003 7:20 PM CST
Thank you for sharing your angel Nicholas. He is so cute and precious. I am so sorry for your loss. My heart breaks for you. I lost my child Shelly too. It is the worst happening there is. My heart is with you. I never heard of this disease before could you email me some info? God Bless You All!
Susan Huddleston <confusednkc@yahoo.com>
Kansas City, KS USA - Saturday, March 15, 2003 7:15 PM CST
I came across your website through Heavenly Lights newsletter. I'm Christy and my daughter Jordyn is Laura's inspiration behind Heavenly Lights Memorial. I wish so much that there were no more children to add to the growing stars and pages. What a beautiful little boy, Nicholas is. My heart aches for you.

I know the 1st month is coming up and it does hurt. Please know you're in my thoughts and prayers.

http://www.geocities.com/ourangeljordyn/Welcome

Christy Fitzpatrick...Angel Jordyn's Mommy always <Ourangeljordyn@aol.com>
Fort Riley, KS USA - Saturday, March 15, 2003 11:46 AM CST
Denise and Ron:

I came across this poem last week and thought about you guys. I'm not sure whether or not you've seen it... I hope it helps to some degree to know that others really do care.

DON'T TELL ME

Please don't tell me you know how I feel,
Unless you have lost your child too.

Please don't tell me my broken heart will heal,
Because that is just not true.

Please don't tell me my son is in a better place,
Though it is true, I want him here with me.

Don't tell me someday I'll hear his voice and see his face,
Beyond today I cannot see.

Don't tell me it is time to move on,
Because I cannot.

Don't tell me to face the fact he is gone,
Because denial is something I can't stop.

Don't tell me to be thankful for the time I had,
Because I wanted more.

Don't tell me when I am my "old self" you will be glad,
I'll never be as I was before.

What you CAN tell me is you will be here for me,
That you will listen when I talk of my child.

You CAN share with me my precious memories,
You CAN even cry with me for a while.

And PLEASE DON'T hesitate to say his name,
Because it is something I long to hear everyday.

Friend, please realize that I can never be the same,
But if you stand by me, you may like the new person I become someday.

~ Author Unknown

Please know that you are being thought of today.

www.caringbridge.org/nc/noellenicholas

Yours in Christ,

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Monday, March 10, 2003 1:16 PM CST
Hi Denise and Ron:

I wanted you to know that we continue to think about and pray for you. Van, Nathan and I had to face another "first" yesterday. Those "firsts" just keep coming around, don't they? And I bet the seconds and thirds... and so on aren't any easier. Yesterday was our daughter's birthday. Noelle would have been 7 years old. Taking new flowers and balloons to the cemetary for our daughter made me feel so horrible. I must say that sometimes when I think that things are getting tolerable we are blindsided by another bout of whatever it is that grief has to offer.

I was just thinking the other day that if God came to me 7 years ago and said, "Wendy, I have a special little girl and precious little boy that I want to send to earth for a while. I want to send them to you and Van. Now, the little girl can only stay there for 6 and 1/2 years and she will have to go through a lot the last year of her life. The little boy will come a few years later and will be born with a bad liver and will eventually succombe to an infection in his bloodstream AND he will live through a very difficult 11 months... his whole entire lifespan. Would you and Van be willing to sign up for this assignment?" I would have told God that I would be willing to take both Noelle and Nicholas without a shadow of a doubt. There is no way that I would ever trade the time that I had with our sweet little girl and boy. I only wish that I could have had so much more time with them.

When Noelle was first diagnosed she asked me if kids were supposed to be sick. When I told her no, Noelle's immediate response was, "Well, God picked me and Nicholas to be sick." And I have to think that about our family. God picked me and Van to have two sick kids knowing that He would take them back one day. God did not say that the grieving process would be easy or even tolerable at times, but He did say that He would never leave or forsake us. And for that we are thankful. Though our prayers were not answered here on earth as we wanted them answered, I completely trust that God finished your Nicholas', and my Noelle and Nicholas' chapters when they met Him in Heaven.

Please know that Van and I continue to pray for all of you. I cannot say that we know exactly how you feel, but I can say that I know exactly how it feels to have a broken heart from the loss of a child, or in our case, two children.

I will check in on you guys again soon.

www.caringbridge.org/nc/noellenicholas

Yours in Christ,

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Wednesday, March 5, 2003 8:19 AM CST
I came across your webpage for your precious Nicholas and am just in tears. I am so very sorry for your loss. I have an online childrens memorial...and would be honored to add a star in memory of Nicholas if you would like one.
My thoughts and prayers will be with you and your whole family....Praying that God's love will be a source of comfort and strength to you - now and in the days ahead…
God bless
Laura/Heavenly Lights Childrens Memorial
http://www.heavenlylights.homestead.com

Laura/Heavenly Lights Childrens Memorial <heavenlylights@charter.net>
mn - Thursday, February 27, 2003 10:37 PM CST
I just wanted to check in to let you all know that we continue to keep all of you in our thoughts and prayers.

www.caringbridge.org/nc/noellenicholas

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Sunday, February 23, 2003 5:15 PM CST
Denise and Ron:

Thank you for sharing you love for Nicholas with all of us. We will continue to lift all of you up in prayer as you continue on this very painful journey in your lives.

A Million Times

A million times we've needed you,
A million times we've cried.

If love alone could have saved you
You never would have died.

In life we loved you dearly,
In death we love you still.

In our hearts you hold a place
That no one else will ever fill.

It broke our hearts to lose you,
But you didn't go alone.

Part of us went with you,
The day God took you Home.

Author Unknown


Yours in Him,
Wendy Baber


www.caringbridge.org/nc/noellenicholas
Winston-Salem, NC - Monday, February 17, 2003 5:59 PM CST
I am so sorry for all your pain, not that any day is easy, but today must be especially hard.
{{{hugs}}}

Chris ~ Gooch's Site


- Monday, February 17, 2003 9:42 AM CST
Denise and Ron:

I continue to pray for all of you as you face the many challenges that grief brings. Though our little ones are not physically here with us for this Valentines week, I know that they are celebrating in a much better way than we could ever imagine.

www.caringbridge.org/nc/noellenicholas

Yours in Christ,


Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Monday, February 10, 2003 8:01 AM CST
Denise and Ron:

Just stopping by to let you know that you are being thought about and prayed for.

www.caringbridge.org/nc/noellenicholas

Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Monday, February 3, 2003 1:36 PM CST
Denise and Ron, I just wanted to stop by and let you know that I have been thinking about and praying for you today. Nicholas sure had such beautiful blue eyes and a precious smile. I sometimes wonder what my "little man" and "Brookie Brooke" are doing up there with God... whatever it is, I know that all of our children are receiving the best care that they can possibly get.

"I assure you, those who listen to my message and believe in God who sent me have eternal life. They will never be condemned for their sins, but they have already passed from death into life." (John 5:24)

www.caringbridge.org/nc/noellenicholas


Wendy Baber <vbaber@triad.rr.com>
Winston-Salem, NC - Tuesday, January 28, 2003 at 01:32 PM (CST)
I know this is of no consolation to you, but many people are thinking of you and your son.
Wendy "adopted" your site, so we can get more awareness for our kids,
and hopefully get a little more support and encouragement for the parents who are left to pick up the pieces.
There are way too many parents in your shoes, dealing with the unbearable loss of a child.

If You Could See Me Now

I know that you are heartbroken
and sad that I am gone.
But I am in Heaven now, Momma,
and I've never once been left alone.

Oh I wish you could see me now.
Heaven is a beautiful place to be.
Jesus is the light that shines here.
And He walks daily with me.

Oh, the skies are never gray here.
And it never ever rains.
And, although I know you still feel it...
Up here, there is no pain.

Angels are always singing for me.
Their voices are beautiful and clear.
I am in the presence of loved ones.
And Momma, I haven't seen one tear!

I know that you are hurting for me.
And I can't make your pain disappear.
But if you could see me now, you'd know
I am happy in Heaven
and I still love you from here!

~Author~
Kaye Des'Ormeaux
Copyright 2000


Chris ~ Gooch's Site


- Tuesday, January 28, 2003 at 12:26 AM (CST)
Denise and Ron:
You don't know me, but I can be another prayer warrior for your family. I received your name from Chris Russo, Gooch's mom. She really is a lady who has such a heart for all children who don't feel well and their families. She told me about the Chubby Chica web-site and from there I came to read about Nicolas.
I have a son named Nicholas as well. He earned his wings last year on St. Patricks Day, March 17, 2002 - at just 11-months-old. I also have a daughter who had an inoperable brain stem tumor, and she earned her wings just four months and four days after our sweet "little man", July 21, 2002 - at just 6-years-old. Understanding why is so hard. Please know that even though our children did not leave this world from the same "monster", our pain is also so deep. We will be praying for you and will continue to keep in touch.

www.caringbridge.org/nc/noellenicholas

"Search me, O God, and know my heart; test me and know my anxious thoughts. See if there is any offensive way in me, and lead me in the way everlasting." Psalm 139:23-24

www.caringbridge.org/nc/noellenicholas

Wendy Baber
- Saturday, January 25, 2003 at 11:01 AM (CST)
Denise, thanks for sharing the web site with me. Nick is a very special little man and you are just as special. My hearts and prayers go out to you.
Ed <Eds3Angel@aol.com>
New Bloomfield, PA - Thursday, April 18, 2002 at 08:14 AM (CDT)
I have just read Nicholas' journal. We were going through the same things more or less at the same time. Our Daughter Jaymie-Leigh was born 9th September 1999 and she passed away 8th March 2001. Love to you and your family, Dawn Parke.
Dawn Parke <www.dawnparke@blueyonder.co.uk>
West Midlands, England - Sunday, October 21, 2001 at 01:30 PM (CDT)
I worked with Denise when we were in highschool. lost
touch even though we were local. Denise came into McDonald's
& we talked sharing our kids were the same age. Denise then told me about Nick's illness which touched my heart. I would
do anything to help her & her family. Nicholas was a beautiful little boy & will be missed greatly.

Fran harrison <franharrison69@aol.com>
Etters, PA United States - Monday, August 13, 2001 at 12:03 PM (CDT)
I worked with Denise when we were in highschool. lost
touch even though we were local. Denise came into McDonald's
& we talked sharing our kids were the same age. Denise then told me about Nick's illness which touched my heart. I would
do anything to help her & her family. Nicholas was a beautiful little boy & will be missed greatly.

Fran harrison <franharrison69@aol.com>
Etters, PA United States - Monday, August 13, 2001 at 12:03 PM (CDT)
Denise and Ron, Thanks for e-mailing this web page of Nicholas. Your angel boy is very special and is now with my angel Anthony!
Dianna Greene and son Dalton Shell <TOMDIA22@aol.com>
- Wednesday, April 11, 2001 at 05:12 PM (CDT)
Denise and Ron,
We enjoyed looking at your photos on-line. Nicholas was an adorable baby boy. He looked very happy with his big sister holding him. Our baby girl Anna got her wings on December 17, 2000 (she had Krabbe, also) and we know that our special children must be laughing with each other right now. It is much harder on all of us who miss having those sweet little ones around.

Take care - you are in our thoughts and prayers,

Kristen and Scott Okarski

Kristen and Scott Okarski <kokarski.cfl.rr.com>
Ormond Beach, FL USA - Saturday, March 31, 2001 at 07:09 PM (CST)
Dear Denise and Ron, I'm saddened to learn about the passing of Nicholas. Words can only do so much, but you're in our thoughts and prayers during this difficult time. Thank you for sharing your story with all of us. My friend Tara and Rick have a 9-month-old daughter Gracie who was diagnosed with Krabbe's Disease in January...so we've been reading the stories about other families that have been dealing with this disease. Again, our thoughts and prayers are with you!
Stephanie K. Farwell <skf15@hotmail.com>
Cottage Grove, WI USA - Monday, March 12, 2001 at 09:56 PM (CST)
Dear Denise and Ron,
Our thoughts and prayers are with you during this difficult time. Words can not express how deeply saddened we are. The website is wonderful - it makes us feel like we knew Nicholas. He will make a beautiful angel. Take care and God Bless you all.

Hunter's Hope Foundation <sara@huntershope.org>
Orchard Park, NY - Monday, February 26, 2001 at 12:06 PM (CST)
Hello !

We visited Nicholas pages,
thank you for the wonderful site.

Our daughter Anna is the same age as your son,
Anna was born 28. august 1999 and was diagnosted Krabbe
disease at august 2000.

We wish you all the best.
Greetings from Europe - Finland.

Yours,
Kirsi, Sami and Anna










Kirsi, Sami and Anna <kirsi.aromaa@jippii.fi>
Helsinki, Finland - Wednesday, January 31, 2001 at 09:01 AM (CST)

Diane Heisey <diamah@aol.com>
Palmyra, PA USA - Wednesday, January 24, 2001 at 02:38 PM (CST)


- Thursday, January 18, 2001 at 08:16 AM (CST)

Click here to sign the guestbook.

Click here to go back to the main page.