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Jake Austin Griffin Our Little Bear 
November 16, 1998 - April 8, 2004
Jake was diagnosed with a 6.0x5.5x4.0cm inoperable malignant brainstem tumor, a DIFFUSE PONTINE GLIOMA on November 9, 2001, exactly one week before his third birthday. His type is extremely rare with only about 150-250 cases diagnosed in the U.S. each year and carries with it a very poor prognosis. We chose to use an alternative medicine named Protocel, with which we feel he had wonderful results. We feel that it gave us the most amazing quality of life with our son and the most precious gift of all....time. Always remember...Every day is a gift.
Journal
Wednesday, February 20, 2008 9:07 AM CST What a big family I have now. I am still completely amazed that I have four children. It is sometimes so strange to me when I think about my family. My girlfriend in Ohio lost her daughter to the same type of tumor as Jake around the same time as well. She has 3 boys now. She has always said to me that she feels like she has 2 different families. Her family with Megan and her family after Megan died. I feel the same way. For me it is especially true because when Jake was alive we did not have other children. Our children now will always "know" him but they have never met him. Therefore, it is as if we had our family when Jake was alive and now we have a different family. I guess it is also a way to compartmentalize and separate my feelings. I have the sad grieving part of myself that misses my boy so incredibly much and I also have the happy and blessed part of myself that loves and appreciates my “new family” so incredibly much.
I think that is why I have always had such trouble journaling anything since Jake died and I found out I was pregnant with Colton. Part of me is so sad inside and I want to journal about it at times….yet I feel like if I do I am not acknowledging that part of me that is so happy inside. I guess I just feel like this is Jakes page and I always want it to be about Jake. I don’t want him to lose his page to the “new family.” I also do not want to lose touch with all of the wonderful people that we met on our journey through Jake’s illness.
My solution …… 2 different pages. I have created a myspace page for Colton, Cannon and Katherine. It is to keep my friends and family out of the area updated with info. and current pictures.
The website address is www.myspace.com/susanjude
I must sign off for now. Babies need cuddling.
Love to you all, Susan
Read Journal History
Hospital Information: Patient Room: HEAVEN .. ..
Links: http://www.myspace.com/susanjude The Griffin Family Website http://www.caringbridge.org/mn/maddie Our sweet friend Maddie's page
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