Journal History

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Sunday, November 6, 2016 8:18 PM CST

Hello TO ALL, especially YOU, Colette!!! :)

I will be gearing up soon for the 12th Annual (2016) Connor's Courage Toy Drive for Vanderbilt Children's Hospital. Stay tuned for more info, dates, drop off locations, etc.

You may click on 'Read Journal History' at the top of page for all past entries dated back to when this page was first created not long after Connor's original diagnosis in October, 2001. The support of friends and family all those years ago, and the continued support today, is what keeps us going. Connor was, is, and will always be my inspiration for all I do in life. Thank you for traveling this lifelong journey with me.

AND, thank you all for stopping by Connor's page!!!

Love and hugs,
Rhonda, Forever Connor's Mommy :)


Saturday, November 30, 2013 3:22 PM CST

Good afternoon! It has been entirely too long since I updated, and for that, I apologize. Sending a special THANK YOU to Colette for her loyalty and devotion. :)

The 9th Annual Connor's Courage Toy Drive for Vanderbilt Children's Hospital is well underway. Following is the info on my Facebook event page:


COLLECTING TOYS NOW THROUGH DECEMBER 17th. Starting the first week in November, drop off points will be posted, and/or pick up arrangements can be made. Watch for more info! :)

NOTE: This is an ongoing Event from NOW through December 17th. Invited guests can choose the "Going" option, if they plan on participating by donating a toy. Thanks!!!

This is the 9th Annual “Connor’s Courage” Toy Drive, in memory of my son, Connor Jordan Hunley. Connor battled rhabdomyosarcoma, a rare form of childhood cancer, from 6 years of age (Oct., 2001), until he passed away on November 1, 2004, one day past his 10th birthday. We were inpatient a great deal of time while Connor was in treatment over that 3 year period, at Vanderbilt Children’s Hospital/Monroe Carroll Children's Hospital. Connor did spend several holidays inpatient, although thankfully never on Christmas morning. Yet, there are lots of families who ARE there on Christmas morning. It is our goal each year to honor Connor’s memory by collecting new, unwrapped toys, for those children who wake up Christmas morning in a hospital bed. Santa delivers the toys collected to each child, and the remainder of collected items are distributed to and by the Child Life Department at the hospital. Keep in mind that by children, it could be a baby, all the way up to 18 years of age.

NOTE: WE CAN’T ACCEPT STUFFED ANIMALS, due to weakened immune systems, and the germs stuffed animals may harbor.

Suggestions for donations:

(All items donated need to be NEW and UNWRAPPED. They will be sorted at Vanderbilt based on gender/age)

- Coloring Books and crayons
- Magna-Doodles, Etch-a-sketch, etc.
- Board Games
- Books (for any age-birth to age 18)
- Matchbox/Hot Wheel cars
- Dolls
- Portable CD players
- CD's
- Little Tykes toys
- Building blocks
- Action Figures
- headphones
- DVD's to watch in their hospital rooms...
- Electronic games, such as Bop-It, Simon, etc.
- Puzzles (all ages)
- LEGOS
- Any craft kits for girls (bracelets, necklaces, door hangers. etc.)
- Little People brand toys and characters (farm animals, princesses, etc.)
- Remote control cars, helicopters, planes
- Video games (any system)
- Playing cards such as UNO, the kids LOVE UNO and the nurses love playing it with the kids.
- iTunes gift cards (These are awesome for in-patient teens)
- Gift cards for various stores (Wal-Mart, Target, Toys-R-Us)

Call Rhonda (Connor's Mom) at 615-512-8889 for toy pick-up, or to get info on a drop-off location.

TO DROP OFF TOYS IN THE GALLATIN AREA, or for a MAILING ADDRESS FOR GIFT CARDS OR DONATIONS, the address is as follows:

Rhonda Hunley
Connor's Courage Toy Drive
1045 Blue Jay Way
Gallatin, TN 37066

(For drop offs, please call or message me beforehand so that I can make sure to be here. Thanks!)

We would love to have to use an 18 wheeler (courtesy of LIGHTNING Transportation) to deliver toys AGAIN this year. Last year was the largest Drive yet. Our goal is to beat last year's load! :) Any group/organization/workplace who would like to participate, feel free to email me at rhonda.hunley@yahoo.com, with any questions.

______________________________________________________

I know that Connor is ALWAYS with me. I feel him, I see the signs he sends, and I'm so thankful for that! I anxiously await the blessed day when I will be reunited with him in Heaven....never to part again. It is so difficult to fathom that he would be 19 years old now. W.O.W.! How handsome he would be! :)

Have a wonderful Christmas season. Make lasting memories, and enjoy one another. Thank you all for visiting.

May God bless us all,
Love and hugs,
Rhonda, Forever Connor's Mom


Tuesday, November 1, 2011 11:21 AM CDT

For those of you not on my Facebook, following are my posts from the past 2 days, as well as comments made by friends and family (Colette, you KNOW this is mainly for you, my dear and faithful friend :) ):


Rhonda Akins Hunley 10.31.2011

♥ 17 years ago today, at 6:42 am on a Monday morning, the single most spectacular, miraculous moment of my life occurred when 7 lb 12 oz Connor Jordan Hunley came into this world. I will NEVER forget the joy of that moment for as long as I live. HAPPY 17th BIRTHDAY, my forever Sunshine Boy, in Heaven today. I miss you every second of every minute of ever hour of every day of every week of every month of every year....that never changes. You were then, and you are now, my reason for being. I love you with every fiber of my being. As we honor you today, I know that you will be watching over us, hopefully sending us some of your strength to get through another of your birthdays, without you physically here with us. Happy Halloween Birthday, Sweetheart! ♥

Yesterday at 5:36am near Gallatin

Tammy Hughes, Jessica Griffin, LaShawn Holmes and 61 others like this..
__________________________________________________

Kim Pryor Dorris: My sweet Sister..thinking of you today and knowing your precious Connor is celebrating big time in paradise..I know he is so proud of his mommy and the amazing woman you are..Happy Birthday Connor!!! Love you bunches Sis!!

Anita Slaven: Rhonda ...XOXO to you today.

Jennifer Greene Miller: Thinking of you today. Maybe he is on a scavenger hunt. Miss you Connor. How about some strawberry milk.

Samantha Ford Barnett: You are my hero Rhonda!! Peace & love to you ♥

Sue Richardson: I will be with you in Spirit at your balloon release today. Thinking of you.

Stacy Anderson Warfield: ‎(((Big hugs))) to you today and tomorrow!!! You are in my thoughts and prayers, gorgeous!!

Lu Hill Sipos: We have baloons and a helium tank ready!!

Toni Cantrell Reedy: Happy Birthday to Connor, I know he is celebrating today in heaven. My thoughts and prayers are with you today and always. You are one of the strongest and amazing women that I have ever known. If I don't make it today, know that I am there with you in spirit.

Sharon Kay Ennis Holweger: Rhonda, I know what today means to you, It is one of the days that is etched in your heart forever. my thoughts and prayers are with you. as always

Julia Taylor Proctor: Happy Birthday, Connor! God's Blessings to Rhonda & Eddie!

Tracy Tilley Olson: Happy, Happy Birthday to Connor!!!! You are in my thoughts Rhonda!!

Pamela Rush: Dakotah and I are releasing a balloon this morning...♥ u girl!!!!

Deb Glaus Flowers: Please know we love you and thinking you and all the family today.

Pam Knight: Happy birthday Connor! Your mon is a amazing women!! I hope you enjoy your balloons today! Please say hi to my mom and dad and tell them I miss them!!!!

Shana Gainer: Happy Birthday to Connor!!! He's partying with the angels today!!! Love you chica :)

Kathy Ann Mikulsky: Happy Halloween Birthday Sunshine Boy! I will honor you today by sending up a balloon bouquet......watch for it! :) I miss you too and will always carry you in my heart. Your picture adorns my fridge and my computer desk. You taught me so much in your short life on earth. I never met you in person but someday I will and until that day remember always I LOVE YOU! Your mom is the BEST!!!!! (I know you already know that) Please continue to watch over all of us and send us a sign today. Also please give my Uncle Bob a hug for me, he arrived in Heaven yesterday. I know you were there to welcome him.

Deborah Pearce: love you...

Mary Sloan: Connor is a angel in heaven watching over you

Angela Thompson Patterson: We love you...as always you are in my heart and prayers. Celebrate today! Happy Birthday little man!

Debra Presley: HAPPY BIRTHDAY CONNOR!!!!!! aunt debra loves u so much and misses u still everyday. i cant believe this is number 17. i can still just see that gorgeous little face smiling up at me. i know that u already know this, but u have one of the most amazing women i have ever met for a mom. she loves you so much and has never failed in doing everything to honor your memory. she has taught alot of people so much. i know that i am so thankful to have had the chance to know and love u and now am just as thankful to have such a perfect angel watchin over me. i know u r celebrating 2day but could u please send an extra blessing down for ur mom and dad 2day. and nanny and poppie too!!! i know this is really hard for them all. just know connor u will always be in my heart. i love u now and forever!!!! happy birthday again sweetheart. love u!!!! and rhonda, u will be on my mind 2day. i love u guys!

Linda Champa: Happy Birthday to your Sunshine Boy, Rhonda! He is loving you right back!

Shannon Mosley Gala: Happy birthday, Connor.

Laverne Patterson Griffin: Happy Birthday Sunshine Boy Connor

Donna Davis: Happy Birthday,Sunshine Boy.Miss u Connor

Stephanie Ann Gillenwater: Now that I am in tears, let me say, Happy Birthday, Connor! Your mom is one of the strongest women I know! She, probably unknowingly, has helped show many grieving people how to live and enjoy life again! I am one of them! Rhonda, keeping you extra close at heart today and tomorrow. Love you. Xo's

Kimberly Williams: Connor, I never had the honor of meeting you, but I am positive you are a sweetheart just like your Mom. As you know, she is a very special lady, and she loves you dearly. You are truly her sunshine, and she spreads that around to everyone she knows! Happy Birthday Sweet Boy! Rhonda, I am thinking of you today...Love Ya!

Dennis Julianna Sr: Happy Birthday Connor.

Celeste Charilyn Criss: Happy Birthday Connor! My happy thoughts are with you today Rhonda.

Rita White Brewer: I thought of Connor this morning...Happy Birthday Connor with lots of love and hugs !!!♥

Lori Cushenberry-Pierce: Happy bday to Angel Connor.

Becky Troutman Cothron: Rhonda, My thoughts and prayers are with you today and tomorrow. Tell Diane and Carl I am thinking and praying for them also......I love you.

Kandis Tucker: Happy birthday to Connor. I wish I would of had the pleasure of meeting him. If he was anything like his momma I know he had the biggest heart! Love you and thinking of you today sweet lady! And also thanks for defending me on Sunday ;)

Michael Kelly: Happy Birthday to my lil buddy Connor!!! Keep your bright lights shining down on us.

Christie Powell Swancey: Thinking of you and Connor today! Love you, and Happy Birthday in heaven Connor!

Tammy Hughes: Connor was blessed to have you as his mother ...

___________________________________








Rhonda Akins Hunley 11.01.2011

At 7:40 am, on a Monday morning 7 years ago today, my child, my everything, took his final earthly breath in front of my eyes, with his Nana and Poppy and his kitty, Zoe, also by his bedside. Yesterday, we celebrated Connor's BIRTH, the absolute BEST day of my life. Today, we remember all that he WAS, and all he accomplished in his 10 short years on this earth. The day we lost Connor was the WORST day of our lives.....period. Nothing can compare. Nothing ever will. Several of you, unfortunately, are also a part of the "club" no one wants to be a member of. The club of parents/siblings/grandparents/​aunts/uncles, etc. who have lost someone they love more than anything, as a child, young adult or even adult before they have had a chance to live a long life. We will never understand "Why??". All we can do is rely on our Faith, and KNOW that we will someday see them again. As I know is true of Connor, and so many others.....they accomplished more in their short time here than some do in an entire lifetime. Connor's work was complete, he received his reward, he is in Heaven smiling down on us.....that is the most important thing of all. We miss him terribly, that will never change. But we cling to the HOPE of being reunited with him one sweet day..... Remembering Connor Jordan Hunley, my Sunshine Boy, TODAY and always. ♥ 10/31/94 - 11/01/04 ♥

4 hours ago near Gallatin


Pamela Higginbotham Floyd, Hannah Marie Ryals, Mandy Estes Petitt and 8 others like this.

___________________________________

Wendy Wallace Shelton: Praying for you today as you celebrate Conners "going to Heaven" day! Love you.

Terri Warren-Carver: May you feel God's and Conner's loving arms wrapped around you especially today Rhonda! Until you experience a loss of a loved one you can never imagine the pain nor the life changing circumstances that occur because of the loss. Love you girl!

Connie Claiborne Dixon: Love you girl!!

Kathy Ann Mikulsky: Remembering your sunshine boy with you Rhonda. I will NEVER forget your amazing Connor! I love him with all my heart and your post was absolutely beautiful! Love you!!!!! First little trick or treater at my door yesterday was a lady bug :):):)

Donna Murphy Minshew: Praying for you today! I can't imagine what you have been thru, but I certainly hope all of the prayers help make it bearable.! Love and Hugs!!

Sharon Kay Ennis Holweger: prayers and HUGS....

Samantha Ford Barnett: Years as I type this- God and other Angel Moms like you are how I get through this! Thank you so much & God Bless you Rhonda. I hope I can get where you are at peace ♥

Deanna Bryant: ‎((Hugs)).....Love You :)

Samantha Ford Barnett: ‎*tears* I couldn't see

Candy Belanger: Remembering Connor...always.♥ ((Hugs))

Lexia Scott: Warm hugs and smiles on this day. Sending you and your family lots of love and prayers.

Susan Gates Joyce: Thinking of you today as I often do. Love and hugs to you.

Rita White Brewer: Connor was an amazing little boy who touched so many lives! I thought of him when I first got up this morning...yesterday his birthday...today the memory of his sweet life and that one day there will be a great reunion day!! ♥♥♥

Tammy Hunley Wasilewsky: Thinking of Connor always. Ragan and Victoria released happy birthdayto balloons yesterday with sweet messages. Today we remember you, along with our entire family. Miss you Connor! Love you Rhonda!

Angela Shivers Pryor: Remembering Connor, not only today but each and every day!!!! Connor will always hold a special place in my heart and I'm privileged that I was able to get to know him and the family. I still hold onto my Xmas ornaments and all the memories that I shared with Connor. He was a sweet boy and has an amazing mom. As you get thru today, just remember that he's always with you and refer back to the "letter to mom" that I shared with you last year. Love ya Ms. Rhonda

Stephanie Gregory Ferrell: We will always remember everything he did to help Jack. Love you.

Kandis Tucker: Love you!

Darlene Troutt Taylor: Thoughts and prayers are with you today. I know this is a Hard time of year for you as is every day without Connor here with you. I can't imagine the pain you have been through. I will never forget Connor. He was a very SPECIAL young man. I'm sure he is enjoying Heaven and at your side in Spirit. Love you Rhonda!

Linda Champa: Thinking about the best day of your life, too, and celebrating Connor's beautiful life.

Sharon Butcher Haskins: Rhonda, thinking of you today in prayer. Connor, is in the heart of so many, I think of him often.....such a special little boy. May the Lord be your comfort today and always. With Love and Hugs.

Janette Kizer Fields: Love ewe..sweet-pea

Deborah Pearce: love you...

Donna Davis: Tears

Gwen Gregory: Happy Birthday, Connor ... sweet angel in Heaven.

Rhonda Akins Hunley: I just want to thank you ALL for these precious messages. You have no idea how your words have helped me over the past 2 days. Love to you all, and I know that Connor would be high-fiving each one of you if he was able....instead, he's definitely smiling down on you. ♥


Becky Troutman Cothron: Rhonda, Today just feel his arms wrapped around you.....and let God comfort you....Praying for comfort and peace today for you and your family.......I love all of you.

________________________________

So thankful for all the love and support shown to us over the years since Connor was first diagnosed. Thank you ALL for being there(here) for us!

With love and hugs,
Rhonda, Forever Connor's Mommy







Monday, December 27, 2010 10:51 AM CST

Hope everyone had a very Merry Christmas! Missing Connor so much....as always. :'(

Wishing you all a Blessed New Year in 2011! Love to all!

With Appreciation for your loyalty to Connor's page.....

~Rhonda, FOREVER Connor's Mommy


Monday, October 31, 2010 9:36 AM CDT

Hope everyone had a very Merry Christmas! Missing Connor so much....as always. :'( Wishing you all a Blessed New Year in 2011! Love you all!

From 10/31/2010 - Copying from my Facebook Posts just now....

♥ ♥ Happy 16th Birthday to my bestest buddy ever, Connor Jordan Hunley! I love you so much sweetheart and yearn to be able to hold you, see you, touch you, hear your laughter, smell your scent...... I know you're enjoying a very special birthday celebration in Heaven....I just miss you so very much!!! All my love in the world, Mommy. :') ♥ ♥


They say that time in heaven is compared to 'the blink of an eye' for us on this earth. It helps me to think of my Connor, running ahead of me through a beautiful field of wildflowers, butterflies, and ladybugs......so happy and completely caught up in what he is.....and when he turns to look behind him, smiling, I'll already be there.


I miss your laughter, fun, and gentleness. I miss the things I used to do for you. I miss the time, now filled with emptiness, when each day was a stage for something new. I miss your love, though mine for you remains, A passion with no outlet to the sea, A teardrop in a desert, that contains what's left of my maternal... ecstasy. I miss your presence, like a silent chord that anchored even solitude in grace. I miss, for my love's labor, the reward of seeing some small pleasure in your face. All these I miss, and yet they are all here Within my heart, far more than I can bear.
-Nicholas Gordon

‎"A butterfly lights beside us like a sunbeam.
And for a brief moment its glory
and beauty belong to our world.
But then it flies again,
And though we wish it could have stayed...
...We feel lucky to have seen it." Author Unknown

Missing Connor AS MUCH as I ever have....Happy 16th birthday, my precious child! I long to be with you again, and anxiously anticipate that blessed day.


Thank you to all who still visit Connor's page. It means more to me than you will EVER know.......

Love,
Rhonda, Connor's Forever Mommy


Wednesday, June 2, 2010 9:52 AM CDT

As requested by my dear friend, Colette, following are the updates following my brother, Johnny's, wreck. Connor is definitely watching over him!:)
_____________________________________________
Please pray for my older brother Johnny. He's been in a car wreck and was life flighted to Vanderbilt. Mom and I just saw him. He's having surgery later today, numerous injuries. Thank you!!!!!May 24 at 10:43am via Facebook for iPhone

Wow! Thank you ALL for your support through your comments today. I read them to Mom as they came in, helped us get through today. You guys are the best! Just got to see Johnny about an hour ago, following his surgery. He did well during the surgery. It's going to be at least 2 months before he can even think about walk...ing again. I'll detail more in a comment on this post.....too long.
May 24 at 7:57pm
He broke the bones in both feet, fractured an ankle, broke several ribs, had a collapsed lung, broke the radius bone in his left arm (from the elbow to wrist), broken nose, lacerations, messed up a knee.....Head to toe injuries. Please keep those prayers coming! :) I love and appreciate you all!!!

Johnny rested well last night. His doctor told him yesterday that he's probably looking at 6 MONTHS without being able to be on his feet. He has a long hard recovery road ahead of him. We also found out yesterday that, in addition to all of his other injuries, his left eye socket was fractured in the accident, as well.... Thank you all for your support! Please keep those prayers going up! ¢¾ See More
May 26 at 7:19am

Johnny is doing much better. Thank you ALL for your prayers! He is in an orthapaedic rehab part of the hospital, but may actually be getting discharged today or tomorrow. He will stay at my parents' house for a few days. He is learning to maneuver himself into the wheelchair. Improving day by day..... :)
June 2 at 6:30 am

Thank you ALL!
~Rhonda, Forever Connor's Mommy!


Saturday, October 31, 2009 6:30 AM CDT

At 6:42 am, 15 years ago, Eddie and I were blessed with Connor's entry into this world. The greatest moment of either of our lives, hands down. Connor is celebrating his birthday in Heaven, I can only imagine what a celebration that will be......

My dearest Connor,

Wow....15 years old...HAPPY BIRTHDAY DARLING! :) It is so difficult for me to comprehend that you would now be 15! I remember the moment of your birth just like it was yesterday! There will never, ever be another moment in my life that can compare to that one. I hope and pray that you know JUST how much you are loved and missed. Some people think that since it will be 5 years tomorrow since your journey to Heaven, that we must be "over it" by now. There could be nothing further from the truth. I miss you every second of every minute of every hour of every single day.....and that will never change. I talk about you so much, to this day, and do all I can to keep your memory alive. You are the greatest Blessing that God has ever given to me, and I am so thankful that He chose me to be your Mom. You have taught me so much, Cconnor. Isn't it supposed to be the other way around....?:) As tears stream down my face right now, I just want you to know that I love you so very much, and that...when the time comes, I will be right there with you again...for eternity. Happy Birthday, my Sunshine "Boy"......I thank God every day for the gift of "YOU"......

All my love Forever.....
Mommy


Monday, November 10, 2008 10:26 AM CST

Good morning, faithful Connor fans. It warms my heart to know that after four years following his passing to Heaven, that there are still those of you who faithfully sign the guestbook and provide words of encouragement. As many of you know, Connor would've turned 14 years old on Halloween of this year, and the following day, November 1, 2008, was the fourth anniversary of his death. October is always the worst month of the year for us........we miss Connor so very much!

I am gearing up to start the 2008 Connor's Courage Toy Drive, for Vanderbilt Children's Hospital. Anyone wanting to donate a toy (no stuffed animals please), you may email me at rshunley@comcast.net, and I will provide you with my mailing address. I would like to have all of the toys and/or gift cards by December 15th, so that I can make the delivery to the hospital in plenty of time for Christmas. It is a great Church or School project, and helps put smiles on some very sick children's faces who are hospitalized at Christmas-time.

Also, I have the 2009 Relay For Life website up and running. The Connor's Courage team will be participating this year. It will be held on May 1, 2009, at Drake's Creek Park in Hendersonville. For anyone wanting to make an online donation to support the team's efforts, the link is as follows:

http://main.acsevents.org/goto/connorsmommy

Again, thank you all for continuing to check in! It means more to all of us that you will ever know. God bless you all and have a wonderful Holiday Season. Be thankful for the gifts God has given you! :)

Love and hugs,
Rhonda, Forever Connor's Mommy


Saturday, January 5, 2008 3:32 AM CST

Due to the overwhelming response I have received, both through the guestbook and through personal emails, Connor's page will remain up. It is, and always has been, a complete tribute to him. It is apparent by all of the messages, that he HAS touched and CONTINUES to touch countless lives. If there is one person that this page helps in their walk with God or their outlook on life, then who am I to interfere with that.

I will update as events happen related to honoring Connor, such as the Relay For Life and the Christmas Connor's Courage Toy Drive. I will give details, for those of you who have so graciously given of yourselves and your time, in the past, or will in the future.

Thanks for your encouraging words. As some of you know, Eddie and I are now divorced. Please keep us both in your prayers, as we BOTH struggle with the changes we have been through, and are continuing to go through.

I know I speak for us both when I express our undying gratitude to you all who have been with us, either throughout this entire journey, and for those of you who still "happen" upon Connor's page. Yes, that smile of Connor's could light up the world.

Peace, love, laughter and happiness to you all, for a most blessed 2008.

With love and gratitude,
Rhonda, Forever Connor's Mommy


Saturday, December 22, 2007 9:40 AM CST

Merry Christmas, everyone! May you all feel Joy, Peace and Love this Holiday season.

The third annual "Connor's Courage" Toy Drive for Vanderbilt Children's Hospital was a HUGE success. Thank you to all of you who donated toys! I made the last delivery to the hospital yesterday (12/21/07). Lots of very special children will have smiles on their faces Christmas morning.

Thank you all for continuing to visit Connor's page. I think the time has come for me to shut the page down. I will wait until after the first of the year to do so. You all have no idea how much your kind words, thoughts, and prayers have meant to us through the years. I know, through this page, that Connor will NEVER be forgotten. That is my goal.

We will never forget the kindness of you all! Merry Christmas and wishes for your best year ever in 2008!

Love and hugs,
Rhonda, Forever Connor's Mommy


Saturday, September 8, 2007 6:14 PM CDT

Hello everyone, and thanks for checking in. I thought it best to FINALLY let everyone know what has been going on, as I know several of you have been deeply concerned for us.

First of all, let me say that the Relay was good, but not as much of a success as last year's. The main reason is the STORMS that moved through that night. It rained like there was no tomorrow. Everything and everyone was completely soaked. We were trying to grill out, that was impossible. So much work went into that night, and it was a complete wash-out. We ended up packing up and going home by midnight, as the rain just would NOT let up.

Our "Connor's Courage" team did come in 3rd place in the Community Fundraising category, which was GREAT considering we were a first year team. We raised around $3,200 for the American Cancer Society. Thank you to all who donated and to all of you who helped us raise money! We do plan on making this an annual event, so get ready for those emails preceding the 2008 Relay.

I will close for now. Thank you for continuing to support us. May God bless us all, peace to all, and our love to you all.

Love,
Rhonda, Forever Connor's Mommy


Thursday, April 26, 2007 9:28 AM CDT

Well, can you believe it??? Finally....an update!

I wanted to give you all the info on our local Relay For Life (Hendersonville). It will be an all night event, to be held on May 11 (Friday-starting at 7:00 pm) through Saturday morning, May 12 (ending at 7:00 am). It will be held at the Hendersonville High School football field.

This year will mark the first year that we are hosting a "Connor's Courage" team and booth. Our booth will have hot dogs, bowls of homemade chili, chili dogs, chips and drinks, along with lots of homemade baked goods. We will be manning the booth all night long, and will have a baseball throwing game in which the speed you throw the ball will be checked with radar. There will be events throughout the night to keep everyone pumped up. Each team will have a member walking the track at all times for the 12 hour period. At 10:00 pm, there will be a luminaria lighting ceremony to honor those who are fighting the fight or have survived cancer, and to memorialize those who lost their lives to this dreaded disease.

For those of you who do not know, the Relay For Life is an annual fundraiser for the American Cancer Society. The money raised in our local Relay stays in this area, for research, programs, etc. You may link to the website for the Hendersonville Relay by clicking here.

For any of you who wish to make an online donation to our team, you may do so at the following link: Connor's Courage Donation Page. Our team is currently at number 6 among approximately 60-70 teams! We have 23 members at the present time. Thank you to all of you who have already made a donation, or offered to help in some other way.

Thank you so much for continuing to check in on us. We sincerely appreciate each and every one of you! Peace to all and may God bless us all!

We love you,
Rhonda and Eddie, Forever Connor's Mommy and Daddy


Sunday, December 24, 2006 9:42 AM CST

Hello friends and family, thanks for checking in. Today, as I am updating, is Christmas Eve. I wish you all a wonderful Christmas. We did the Toy Drive again this year, in Connor's memory. Thank you to everyone who helped collect toys, and thank you to all of you who gave so freely. A special "Thank you" to my friend, Elizabeth who collected a TON of toys from her family, her church, and her workplace. Elizabeth, you are truly an "Earth Angel". I took the toys down to Vanderbilt Children's Hospital on Thursday and gave them to the Child Life Department to distribute. They will be given to children in the hospital on Christmas morning. Some will be used in the hospital playrooms, in Radiation, and in the Oncology clinic. Once again, THANK YOU to all who gave!

Most of you probably already know that Richie passed away early on Thanksgiving morning. Please stop by his page and offer his family some words of encouragement as they face their first Christmas without his physical presence. They have embarked on a new, most painful journey. Please also keep them in your prayers.

I received the following in an email this morning and wanted to share it with you all:
--------------------------------

First Corinthians 13
Christmas Version

If I decorate my house perfectly with plaid bows,
Strands of twinkling lights and shiny balls,
But do not show love to my family,
I'm just another decorator.

If I slave away in the kitchen,
Baking dozens of Christmas cookies,
Preparing gourmet meals and arranging
A beautifully adorned table at mealtime:
But do not show love to my family
I'm just another cook.

If I work at a soup kitchen,
Carol in the nursing home,
And give all that I have to charity;
But do not show love to my family,
It profits me nothing.

If I trim the spruce with shimmering angels
And crocheted snowflakes,
Attend a myriad of holiday parties
And sing in the choir's cantata
But do not focus on Christ,
I have missed the point.

Love stops the cooking to hug the child.
Love sets aside the decorating to kiss the spouse.
Love is kind, though harried and tired.
Love does not envy another's home
That has coordinated Christmas China and table linens.

Love does not yell at the kids to get out of the way ,
But is thankful they are there to be in the way.
Love does not give only to those who are able
To give in return; but rejoices in giving
To those who cannot.

Love bears all things,
Believes all things,
Hopes all things, and endures all things.
Love never fails.

Video games will break,
Pearl necklaces will be lost,
Golf clubs will rust,
But giving the gift of love will endure.

-----------------------------------------
Please take time this Christmas to thank God for your blessings. Never take your family for granted. Be mindful that someone who may appear to be a "Scrooge", may have every reason to not "get into the Christmas spirit". Christmas, as joyful as it can be for most, can also be very painful to those who are missing someone very precious to them. And before I get emails telling me that I should not "feel" this way, let me say that I do understand the "true meaning" of Christmas, and I am SO THANKFUL for the birth of Christ. Without Him, and the hope we have through Him, we would have nothing. But, thanks to the commercialism of the Season, Christmas goes way beyond the true meaning. So, just be aware that not everyone is able to be as ecstatic about Christmas as they once were.

************************************************************************

Connor,
Oh sweetheart, we miss you so very much. This year has been so much more difficult, as we faced your birthday, and now on through the Christmas season, without you here. It was worse than last year, without a doubt. People say that time heals all wounds, that is just not true. There will never come a day, as long as I am on this Earth, that I do not miss you with every ounce of my being. I am filled with my memories of you, and of how special and wonderful you have always been. Our memories of you will get us through Christmas Day. And I know that you will be right there with us in Spirit, helping us along. THANK YOU for all the signs you send to me. Nana has been getting some pretty obvious ones lately, too! You have been very busy. But I know, that you know, that those signs keep us going. As you celebrate Christ's birth there with HIM, please know that our thoughts and love are with you every second. I anxiously await that day when I can be right there by your side, never to part from you again. There is no pain like this, Connor. You are my life, you are my reason for being. I am so alone without you here. Thank you for all of the lessons you have taught me about love, kindness, compassion....the list goes on and on. Please be with me and Daddy, and with all of your loved ones left here without you tomorrow. And don't forget, save my place right there beside you! I love you more than anything in the entire universe. Merry Christmas, my Sunshine Boy, Mommy will see you soon!
All my love, now and forever,
Mommy
**********************************************************************

Merry Christmas everyone. May you all have a wonderful day filled with happy times. Thank you for being here with us. Thank you for signing the guestbook. Thank you for letting us know that Connor will NEVER BE FORGOTTEN. That means more to us that anything! Thank you for your prayers for us. Please keep all of those with empty chairs this Christmas in your prayers, as well. Peace to all, and may God bless us all!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper Ever!"



Sunday, December 24, 2006 9:42 AM CST

Hello friends and family, thanks for checking in. Today, as I am updating, is Christmas Eve. I wish you all a wonderful Christmas. We did the Toy Drive again this year, in Connor's memory. Thank you to everyone who helped collect toys, and thank you to all of you who gave so freely. A special "Thank you" to my friend, Elizabeth who collected a TON of toys from her family, her church, and her workplace. Elizabeth, you are truly an "Earth Angel". I took the toys down to Vanderbilt Children's Hospital on Thursday and gave them to the Child Life Department to distribute. They will be given to children in the hospital on Christmas morning. Some will be used in the hospital playrooms, in Radiation, and in the Oncology clinic. Once again, THANK YOU to all who gave!

Most of you probably already know that Richie passed away early on Thanksgiving morning. Please stop by his page and offer his family some words of encouragement as they face their first Christmas without his physical presence. They have embarked on a new, most painful journey. Please also keep them in your prayers.

I received the following in an email this morning and wanted to share it with you all:
--------------------------------

First Corinthians 13
Christmas Version

If I decorate my house perfectly with plaid bows,
Strands of twinkling lights and shiny balls,
But do not show love to my family,
I'm just another decorator.

If I slave away in the kitchen,
Baking dozens of Christmas cookies,
Preparing gourmet meals and arranging
A beautifully adorned table at mealtime:
But do not show love to my family
I'm just another cook.

If I work at a soup kitchen,
Carol in the nursing home,
And give all that I have to charity;
But do not show love to my family,
It profits me nothing.

If I trim the spruce with shimmering angels
And crocheted snowflakes,
Attend a myriad of holiday parties
And sing in the choir's cantata
But do not focus on Christ,
I have missed the point.

Love stops the cooking to hug the child.
Love sets aside the decorating to kiss the spouse.
Love is kind, though harried and tired.
Love does not envy another's home
That has coordinated Christmas China and table linens.

Love does not yell at the kids to get out of the way ,
But is thankful they are there to be in the way.
Love does not give only to those who are able
To give in return; but rejoices in giving
To those who cannot.

Love bears all things,
Believes all things,
Hopes all things, and endures all things.
Love never fails.

Video games will break,
Pearl necklaces will be lost,
Golf clubs will rust,
But giving the gift of love will endure.

-----------------------------------------
Please take time this Christmas to thank God for your blessings. Never take your family for granted. Be mindful that someone who may appear to be a "Scrooge", may have every reason to not "get into the Christmas spirit". Christmas, as joyful as it can be for most, can also be very painful to those who are missing someone very precious to them. And before I get emails telling me that I should not "feel" this way, let me say that I do understand the "true meaning" of Christmas, and I am SO THANKFUL for the birth of Christ. Without Him, and the hope we have through Him, we would have nothing. But, thanks to the commercialism of the Season, Christmas goes way beyond the true meaning. So, just be aware that not everyone is able to be as ecstatic about Christmas as they once were.

************************************************************************

Connor,
Oh sweetheart, we miss you so very much. This year has been so much more difficult, as we faced your birthday, and now on through the Christmas season, without you here. It was worse than last year, without a doubt. People say that time heals all wounds, that is just not true. There will never come a day, as long as I am on this Earth, that I do not miss you with every ounce of my being. I am filled with my memories of you, and of how special and wonderful you have always been. Our memories of you will get us through Christmas Day. And I know that you will be right there with us in Spirit, helping us along. THANK YOU for all the signs you send to me. Nana has been getting some pretty obvious ones lately, too! You have been very busy. But I know, that you know, that those signs keep us going. As you celebrate Christ's birth there with HIM, please know that our thoughts and love are with you every second. I anxiously await that day when I can be right there by your side, never to part from you again. There is no pain like this, Connor. You are my life, you are my reason for being. I am so alone without you here. Thank you for all of the lessons you have taught me about love, kindness, compassion....the list goes on and on. Please be with me and Daddy, and with all of your loved ones left here without you tomorrow. And don't forget, save my place right there beside you! I love you more than anything in the entire universe. Merry Christmas, my Sunshine Boy, Mommy will see you soon!
All my love, now and forever,
Mommy
**********************************************************************

Merry Christmas everyone. May you all have a wonderful day filled with happy times. Thank you for being here with us. Thank you for signing the guestbook. Thank you for letting us know that Connor will NEVER BE FORGOTTEN. That means more to us that anything! Thank you for your prayers for us. Please keep all of those with empty chairs this Christmas in your prayers, as well. Peace to all, and may God bless us all!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper Ever!"



Tuesday, October 31, 2006 3:40 AM CST

ADDED 11/12/06 - For those of you who do not know of Richie Shannon, he is 15 years old, and he and his family live in Nevada. He has been battling rhabdomyosarcoma for 6 long years. He is currently at home with his family on hospice, as all treatment options have been exhausted. Please visit his site here: Richie's site, and offer him and his family some words of encouragement. And then, PLEASE say a prayer for them all. No one should have to go through what he is now going through, and NO PARENT should ever have to watch their child suffer so..... Thank you all!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
HAPPY 12th BIRTHDAY, CONNOR--10/31/06! Oh, how we wish you were here to celebrate. Yet, we know there must be the greatest of celebrations planned for you today in Heaven! Thank you for all of the signs you have been sending lately, some of them are VERY OBVIOUS! You brought us so much joy in the time that we had here with you, Connor. There will never be a child loved more than you. We send you all of our love today, and every day! We miss you terribly! Save our place right next to you. Only God knows when we will be reunited. But we know that once we are, we will NEVER have to part again! We love you more than anything in the entire universe, Connor. You are now, and will forever be, Mommy's Sunshine Boy! We'll see you soon, sweetheart, until then, HAPPY, HAPPY BIRTHDAY! And tomorrow, November 1st, as we mark the 2nd anniversary of you making your journey to Heaven, you continue to celebrate with all of your friends and family who are there with you!

All our love, NOW AND FOREVER,
Mommy and Daddy
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thank you all for continuing to check in on us, through Connor's website. For those of you who are able, we ask that today, October 31st, Connor's 12th birthday, you release a balloon to him. We will be doing that throughout the day. And just remember Connor, whether you ever had the pleasure of meeting him or not, for the vibrant, wonderful, carefree, loving, compassionate, witty young man that he was. We know he will never be forgotten. We appreciate all of the kind words in the guestbook, especially over the past several days, as THIS day has approached. I will do an update soon, but today, we honor CONNOR JORDAN HUNLEY. We honor him, our memories with him, our happy times with him.....everything that was, and is, Connor. Thank you for remembering, along with us. We appreciate you, and we need you, and your prayers, as we continue on without Connor.

Happy Halloween everyone. And the HAPPIEST of birthdays to our precious son, CONNOR!

With love and gratitude,

Rhonda and Eddie Hunley, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper"!


Thursday, August 3, 2006 9:21 AM CDT

Finally, an update!

Hello family and friends, thanks for checking in, and thank you for your patience in waiting for an update.

Wow, much has happened since my last update in APRIL! I think I’ll just back up, and go from there.

As most of you know by now from the guest book, my biological Daddy (NOT POPPY) passed away on May 8th. His throat cancer was beyond treatable by the time it was found. His body was too weak to withstand any treatment. Thank you for all of the prayers for me, my brother, and the rest of Daddy’s family.

~~~~~~Loyd Neal Akins-----Sept. 17, 1947 to May 8, 2006~~~~~~

The Hendersonville Relay For Life was held on May 12-13. Eddie and I were on the committee, so we stayed the entire night. During opening ceremonies, Eddie read a speech that I had written regarding Connor’s diagnosis and subsequent treatment. As he read, I was standing with him, looking out at the audience, and there were definitely a lot of tears shed for Connor. Countless people came up to us afterwards, letting us know how Connor’s story had inspired them in their own lives. That means the world to us. It shows that Connor’s legacy lives on, and his battle was not in vain. I KNOW that he was “with” us that night, smiling down from Heaven and cheering us on. This year’s Relay beat all prior records for Sumner County, raising more than $207,000!!! Go Relay teams!

The following Sunday was Mother’s Day, my second without my Sunshine Boy by my side. I left that morning for about 30 minutes, and when I returned, I noticed flowers had been planted in front of our house. I went inside and asked Eddie who had planted them. It was Linda and her children. Ryan and Jeci had actually thought of doing it, and as soon as I left, Eddie called and they came right away and planted them. Was that not the sweetest thing?!? Here they are, in their own grief, but wanted to make sure my Mother’s Day was special….Thank you Martin7! I know our “boys” were proud of you, as well!

May 18th marked the second annual award given in Connor’s Memory at his school, Goodlettsville Elementary. I was able to attend. The award was given to a third grade girl this year, for her outstanding performance throughout the year. As I stated last year, the award will be given each year to a third grader (as Connor was in 3rd grade when he passed away), until the year when Connor would have graduated High School. We are so honored and grateful to have the school do this for Connor. THANK YOU Mr. Westveer, and the entire faculty, staff and students of Goodlettsville Elementary!

Father’s Day was Eddie’s second without Connor, and the Martin7 made it special for him, as they had for me on Mother’s Day. They took us out to breakfast at Cracker Barrel. Of course, it was their first without Kevin, so it was certainly a difficult day for them, but they chose to start it out by doing something nice for Eddie. Once, again, THANK YOU!

I am now officially a Real Estate agent! My license was activated the first week in July. I enrolled in a fantastic class in June, to try to give me a jump start on my new career, called ‘Learn To Win’. It is a 10 week course, and has given a TON of great information. I am ready for business, so if anyone out there is thinking of buying or selling, PLEASE email me, and I will do all I can to help make your Real Estate need a reality. My email address is rshunley@comcast.net. Anyone living out of this area, I can find you a wonderful agent in your own area, through our contacts at Century 21. Just let me know what you need!

Colette, dear Colette, you are such a reliable “constant” in so many Caring Bridge guest books. You have been there for us for so long now, and I just want to express my appreciation for your unwavering devotion. THANK YOU! And I will address a question you posted in Connor’s guest book, as I’m sure there are probably others who are wondering, as well. How do I describe Ginny to all of Connor’s faithful CaringBridge friends? We first met Ginny at Vanderbilt Children’s Hospital. She, at that time, was a Child Life Specialist there, and would come to Connor’s room to help keep him entertained and occupied while undergoing chemotherapy. Plus, during the many stays when he was inpatient for a fever, and unable to leave his room, Ginny was always there for him. They developed a bond like no other. Ginny became a part of our family, and I do mean that. In the summer of 2003, she embarked on an new journey in her life, and re-enrolled in college to become a Nurse Practitioner. This took her away from Vanderbilt, and away from Nashville. But, NOT away from Connor. She would always come to see him when she would come into town. She would sometimes come into town JUST to see Connor. Ginny was, to Connor and to all who knew them together, Connor’s “girlfriend”. She would come to our house and Connor’s friends would come over. They would ask, “Are you REALLY Connor’s girlfriend?”, to which she would always reply “YES!”. Connor would smile from ear to ear. This is very difficult for me to write, as I am typing through tears. But, for the most part, they are Happy Tears, as I think back on all the joy Ginny brought to Connor’s life. I can see them now, in Connor’s go-cart, zipping around our neighborhood, or, with Connor’s Potato Gun, (YES, you read correctly, POTATO GUN!) that Ginny MADE for him. It was made from PVC piping, and would shoot out potatoes, QUITE a distance, I might add. It was the funniest thing. Ginny was there for Connor, coming to see him in the last couple of weeks of his life, spending “special time” with him, as he lay on the hospital bed, unable to get up. She was also there for us at the funeral home and at Connor’s funeral. She actually showed up at this year’s Relay. We had no idea she was coming, but she did come, along with her fiance`, Steven, around midnight. They had driven from Knoxville to be there for us, and for Connor. I can’t describe with words how special Ginny is to our family. She recently got married, CONGRATULATIONS GINNY AND STEVEN! We will always think of Ginny as Connor’s first “True Love”, because that is definitely what she was to Connor. Thank you, Colette, for asking about Ginny, and giving me the opportunity to share that with you all…..

Tomorrow, August 4th is Nana’s birthday. Happy Birthday Nana! Nana and Poppy are so special to me. Poppy was, for sure, Connor’s best buddy in the whole world. Please continue to keep them in your prayers, as they continue on without Connor, their ONLY grandchild. I have asked Connor to please send Nana a special birthday wish from Heaven.

Kevin and Linda’s oldest son, Ryan, has had two major surgeries this summer. He carries the same gene as his Dad for colon cancer, so he has had these procedures to try to solve the problem before it ever is able to start. He just came home from the hospital last night from his latest surgery and is doing GREAT! Way to go, Ryan! Please keep those prayers going up for him, and for Linda, the kids, and for Kevin’s parents, Kent and Marilyn, and his sister, Krista, as well. I stopped by the hospital yesterday to see Ryan. He was asleep, but I was able to visit with Marilyn for a while, as she was sitting with him while Linda ran some errands. Marilyn, I enjoyed talking with you, and I DO understand where you are in your grief…..hang in there, we’ll see our boys again!

The dog days of summer are here! As most of you are also experiencing, we have been in the upper 90’s for a week now, with heat indexes at or around 105 degrees. I hope everyone is finding a way to stay cool!

Before I close, I want to ask for prayers for my cousin, Tabitha. You may have read her posts in the guest book. I know she kept you informed during Daddy’s illness. Tabitha’s Dad and my Daddy are brothers. She suffered a stroke about 3 weeks ago. She is only 33 years old, with two young daughters. She is at home and doing O.K., but needs our prayers for a full recovery. Please keep her, her husband, Donnie, and daughters, Chelsea and Carlee, in your prayers.

Thank you all for continuing to check in on us. Yes, it is difficult to write, without Connor here with us. I have thought about shutting down the site, but then I go to the guest book, and see that you are all out there, and that you do care, and that you will ALWAYS remember Connor, and I just can’t do it. So, I will continue to update, when I can. Thank you for sharing this journey with us. Everyday without Connor is so very difficult, yet it brings us one day closer to being reunited with him! What a day that will be! August 1st marked 1 year, and 9 months since I last held my son in my arms. It seems impossible that I have been able to BREATHE all this time……without my reason for being here with me…….

Peace to all, and may God bless us all!

Rhonda and Eddie, Forever Mommy and Daddy to Connor, the “Bravest Little Trooper” EVER!





Monday, July 24, 2006 7:08 AM CDT

***New journal entry coming soon**

There are new photos in the Photo Album.

Thanks!
Rhonda, Forever Connor's Mommy


Sunday, April 9, 2006 10:21 AM CDT

Yes, FINALLY an update! I know many of you have been wondering about the tornados hitting our area. Fortunately, we were spared. Although there is widespread damage all over the area. We are thankful, very thankful, especially after driving around on Saturday and viewing the damage. Entire neighborhoods have been completely devastated. Linda and her children are all O.K., although their house did sustain some damage. Gallatin, about 10 minutes up the road, seems to be the hardest hit. The area looks like a war zone, cars crumpled, homes COMPLETELY gone. There are, I believe, 9 confirmed deaths in Sumner county. After seeing the damage, it is utterly amazing that there aren't more. Thank you all for the prayers for us, and our families and friends, and for your concern.

Now, to update on the past 3 months---

I started Real Estate school in January. I just had my finals on Monday of this past week. I should find out my grades tomorrow. Once you pass the course, you then go for the BIG exam. It is a 2 part exam, state and national. Once you pass that (and from what I've heard, it may take more than once to pass!), you have to take 30 more hours of school before you can apply for your license. I will study ALOT before going to sit for my exam, so I'm not sure when I will go. Hopefully, I will have my license within a couple of months, and will be ready to sell real estate. I'm very excited about this. Most of you know that I have been working as a Personal Assistant to a real estate agent for the past year, since shortly after Connor passed away. I have learned alot, and I am anxious to get started on my own.

Thank you, Tabitha, for letting the visitors to the web page know about Daddy. My biological father, Neal Akins, has terminal throat cancer, and was diagnosed a couple of months ago. He and my Mom divorced when I was 6 years old. THIS IS NOT POPPY. Anyway, he is now in the nursing home in Westmoreland. He really needs prayers. He has a trach, but is having a very difficult time, and is on oxygen 24/7. Thank you all for the prayers that you have already been sending up for him. If anyone out there would like to send him a card of encouragement, it could be sent to:

Lloyd Neal Akins
c/o Westmoreland Care and Rehab
1559 New Hwy. 52
Westmoreland, TN 37186

The Relay for Life in Hendersonville is quickly approaching. It will be held on May 12, 2006. Eddie and I were chosen to be the Honorary Chairpersons in Connor's Memory. You can read about it by clicking here, or here. Anyone wishing to donate, just email me and I'll supply you with all of the info. The money raised goes to the American Cancer Society. Anyone living in this area, there is a rumor circulating that Eddie may enter the Womanless Dessert Auction at midnight that night. Now that will be something to see.......
Also, on that same night, May 12, Lu will be having her second annual fundraising event for Gabe's My Heart. It will be held at the Old Natchez Country Club in Franklin, Tn, from 7:00 until 11:00 p.m. It will include a silent auction, as well as a wine tasting, and she has lined up some very special guests. Any of you who are able, please go and support Lu, and help her raise funds to help with the many children's programs she is involved in with Vanderbilt Children's Hospital. And please keep Gabe, and all of the childhood cancer survivor's, in your prayers, that they may grow up and live a long, HEALTHY, happy life, CANCER-FREE!

I know there are so many things I am leaving out. It is my fault for not updating in SO long. I have tried many times, but the words would not come to me. Grief is a life-long process. Yes, it has been more that 17 months since I have had my baby here with me, which seems unreal. Do the days get easier? Possibly a little more bearable, but never mistakenly think it gets "easier" with time. Any of you who have ever experienced great loss, I know you understand what I mean when I say that. There was a program on towards the end of January. It was an hourlong show on Vanderbilt Children's Hospital. A couple of friends let us know beforehand that there would be a clip of Connor in the program. The show was centered on "success stories" of children who have been treated at Vanderbilt. Eddie and I sat through that hour, and I must tell you that was one of the most intense hours of my life. Not knowing when or where we would catch a glimpse of Connor, a glimpse that we had never seen before. A clip that we had never seen before. We sat in silence throughout that emotionally charged hour. We did get our glimpse. It was a day we well-remembered. Connor and Mike--the food tray delivery guy, Connor's buddy. They had shot the clip for a tape they put together for the NEW Children's Hospital that opened in early 2004. We had never been able to see the tape. Yet, there was Connor on this program some 2 years later. I can't possibly describe all of the emotions we experienced as we viewed the program. We held out hope for another glimpse of Connor, we never took our eyes off the screen. Thankfully a friend of Nana's taped the program, and gave us a copy. We thought we were taping it, but it didn't work. Anyway, that night set us both back in the grief process. It was the emotional surge that trying to catch sight of Connor on TV created. That may not make sense, and I know I'm rambling. Very few of you, thankfully, probably understand completely what I am saying. The only way to understand is if you yourself have lost a child or grandchild. I pray that no one else EVER has to experience this pain. Yet, I also know that some will......

Thank you for standing by us. Thank you for your patience with us. I know that, for some of you, your patience has probably worn very thin by now. I am so sorry for any hurts I have caused by lack of communication, etc. Sometimes I distance myself, for whatever reasons, from some of those who I care about the most. I just get to a point when I CAN'T TALK ABOUT IT ANY MORE. I know that is not right, and also not good, but it is the only way I can "deal" sometimes. I will never be the same person I was before Connor was diagnosed. I will also never be the person I was before Connor passed away. I am trying to adjust to the "new normal". I know that I sometimes do a poor job making that adjustment. Just please, please do NOT take it personally. I am no expert, by any means, on going through this process, I am learning as I go. Again, I apologize to anyone I have hurt. Please bear with me.
Have a good week everyone, Peace to all, and may God bless us all!

~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Sunday, January 8, 2006 10:36 PM CST

Hello family and friends, thanks for checking in. Yes, I know an update is L-O-N-G overdue! I'm so sorry. This one may be kind of long, so let's get started......

The Toy Drive was a huge success! Thank you to everyone who donated toys, helped with the Drive, collected toys, etc. Two different schools collected for the Drive in memory of Connor. They are Gene Brown Elementary, thank you to Mrs. Holdren's kindergarten class, Mrs. Robinson's kindergarten class, and Ms. Jones and Ms. Lee's fifth grade classes, for all the toys you donated! Also, Madison Creek Elementary School--thank you to the fifth grade classes for all the donations, and to Mrs. Mitchell for organizing the toy drop-off! Also, thank you to Albany International in Portland (Nana's work) and Nashville Wraps here in Hendersonville for collecting so many toys! Eddie's coworkers all brought toys to their December sales meeting for the Drive, as well. So many people helped, all of you are very much appreciated!

I have to share something special that happened at Madison Creek Elementary. I went to pick up the toys they had collected one morning before school let out for the Christmas holiday. I went into the office and had them page Mrs. Mitchell to let her know I was there. She sent probably 8-10 children up with boxes and boxes full of toys. They went outside with me to help me load them into my vehicle. When we were finished, I was talking to them, and thanking them for helping with the Toy Drive. I asked if I could have a hug. One of the boys in the back of the group yelled "YES!" and ran towards me. He nearly dove into me and wrapped his arms around me and gave me a wonderful hug. In the midst of that, as I was taking it in, a girl who was out there in the group said "Not so hard, CONNOR!" I was completely stunned. First of all, that a boy of 11 would voluntarily hug me in front of his friends. Secondly, that the hugs was SO SIMILAR to the way my Connor always hugged me. And thirdly, HIS NAME WAS CONNOR! I considered that my Christmas hug straight from Connor in Heaven!

My dear friend, Christian, her husband Bill, and their son, Will came over on December 23 to help me get all of the toys that we collected to the Monroe Carroll-Vanderbilt Children's Hospital. THANK YOU GUYS! We had two SUV's packed as full as we could possibly get them. I know there were lots of smiles on Christmas morning to some very deserving children!

I want to thank Wayne and Melanie Gordon for a wonderful Christmas gift they put together for us. They met me at the mausoleum one day before Christmas to deliver it. It is a collage of "Connor pictures". It took my breath away when I saw it.......



........see what I mean??? THANK YOU "MR." WAYNE AND MELANIE FOR DOING THIS FOR US! It is something that we will treasure for a lifetime!

I would like to request prayers for Kevin Martin's dear family. Kevin finished his job here on earth and made his heavenly journey on New Year's Day morning around 11:25 a.m. He battled long and hard. I do believe that he was in complete control of WHEN he would be "going home". His determination was absolutely amazing. His family is and always has been so very important to him, and he held on throughout the holidays, for them, I'm certain. We have been fortunate to be able to spend this time with Linda, Jeci, Ryan, Brandon, Tyler, Karissa, Kent and Marilyn, Krista and Wayne, and all of the Martin's family and friends. They have a support system that is OUT OF THIS WORLD! Kevin's motto was "Party On", and I know he was so proud of his family for surrounding themselves with friends and loved ones from all over, all week long. Linda and Kevin's closest friends, Alex and Alicia, Doug and Gayle, Matthew and Linda L., and Terry and Sonia, have been constantly by their sides, helping them and encouraging them in every way imaginable. I know that Linda appreciates all that EVERYONE has done for her and the children over the past week. The weeks and months ahead, it will be crucial that they continue to feel the love that surrounds them., as they start into the next chapter of their lives. We, as Linda and Kevin's friends, feel honored that Linda chose Kevin's resting place to be in the mausoleum where Connor's resting place is. He is two "places" down from Connor. Linda had taken the kids there many times to "visit" Connor, so going there is not something that is brand new to them. As Linda said to me yesterday outside of the mausoleum, who would've thought on that day almost 3 years ago when we met, that Kevin and Connor would both be gone on to Heaven now. Again, please keep the Martin's in your prayers, THANK YOU! And please remember Kevin's parents, too, as we know all too well the pain that they are going through, and will continue to go through.

A big 'ole HAPPY BIRTHDAY to our buddy, Gabe (Gabe's My Heart), who celebrated his 4th birthday on January 1! Gabe is more than two years in remission now, WAY TO GO, GABE!

Thank you all for being here with us. Thank you to those of you who still sign Connor's guestbook! We read all of the entries and they mean so much to us! Thank you to everyone who sent us Christmas cards this year. A special thank you to Kathy M., and Terre for my Christmas packages! I am horribly, embarrassingly (is that a word???) behind on returning phone calls, emails, getting out thank-you's, etc. I'm not going to make excuses, just keep in mind that I am quite dysfunctional these days. (STOP LAUGHING LU AND CHRISTIAN! You KNOW how bad I am about returning calls!) My rudeness in that department is certainly not intentional. Please, please, please forgive me if you are one of those people I have not gotten back with.:)

As we enter another year, we are reminded of the many blessings in our lives. Our greatest blessing is our salvation. Without that, we have nothing. We are also extremely grateful for the blessing of Connor Jordan Hunley! God blessed us with 10 wonderful years with Connor. And, we know that we WILL be reunited someday, OH WHAT A DAY! As much as we miss Connor, it brings us great peace to know that we will, someday, hold him in our arms again.


We are blessed with a fantastic support system. We could not have made it without you all! Let 2006 be the year that you spend more QUALITY TIME WITH YOUR FAMILY! Do that in Connor's Memory. Be thankful if you have healthy children. Show them everyday how thankful you are. I think it is a common misconception among some people that Connor, and all of the other children who have, or have had, cancer or leukemia, were always "sickly" children. Quite the contrary. Connor's worst malady before his diagnosis was chronic earaches his first year and having tubes put in around his 1st birthday. He was ALWAYS perfectly healthy. My reason for saying that is to make you realize that it CAN and sometimes DOES happen to "you". So, make the best of the time you are given. Never take a single moment for granted. Oh, to be able to hold Connor, to see Connor, to touch Connor, to hear his laughter......just one more time.....


***********Connor*********

Oh sweetheart, how I miss you! Happy New Year!!! I know that Kevin arrived there with you on New Year's Day! What a party that must've been! Mrs. Linda and I have been seeing all of your go-cart tracks in the sky. You help take care of Kevin, and I know Kevin will help take care of you until we are all reunited again. I hope you can feel the love that I send to you each and everyday, Connor. Thank you for all of the signs you continue to send. You keep us going from day to day. Nana and Poppy appreciate their signs, as well. They also miss you so much, Christmas will never be the same without you here with us all. You are our guiding light now, Connor. We can't wait to see you, save our place, O.K.??

All Our Love, Now and for Eternity!
Mommy and Daddy

***********~***********


Have a wonderful week, everyone. I'll try not to go so long between updates next time. Peace to all, and may God bless us all!

We love you!
Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Sunday, December 25, 2005 8:58 AM CST

I couldn't let Christmas pass without wishing you all a very Merry Christmas and a wonderful New Year! Hoping today brings you and your family lots of smiles, hugs, love, celebration, reflecting on Christ's birth, joy, thankfulness, forgiveness, and happiness!

We are thankful for each of you reading this. Thank you for continuing to check in on us, and for loving our son!

I will do a complete update over the next couple of days, just wanted to say "MERRY CHRISTMAS!"


***********Connor***********

Oh, sweetheart, Mommy could write a book on our emotions today! Merry Christmas, my Sunshine Boy! Mommy and Daddy miss you so very much, today more than ever! Our Christmas magic is missing, due to the fact that you are no longer physically here with us. We know you are joining in the most wonderful celebration in Heaven, and for that, we are so thankful. We can't wait until that glorious day when we get to join you, AND BE WITH YOU FOREVER! Please let us know that you are "with" us today, Angel-cake, that really helps us so very much! Feel all of the love that is flowing from our hearts to yours in Heaven, not only today, but every moment that we live. Tell everyone we said "Hi", and enjoy being with your family and friends who have already received their reward. We will see you soon, sweetheart. MERRY CHRISTMAS!

We love you more that anything in the whole universe!
~~Mommy and Daddy.....Zoe and Doris, too! (Yes, Connor, I know how you always made sure Santa came to see your pets, so this year is no exception, they are enjoying their surprises as I type!)

***********^i^***********

We love you all....Merry Christmas!
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Monday, December 5, 2005 8:14 AM CST

ADDED TUESDAY, DECEMBER 6, 2005--NANNY MAYBELLE (GRAVES) PASSED AWAY LAST NIGHT. SHE HAS NOW JOINED CONNOR, AND ALL OF HER LOVED ONES, IN HEAVEN. THANK YOU FOR ALL OF THE PRAYERS FOR HER AND FOR OUR FAMILY. Visitation will be all day on Wednesday at Anderson and Woodard Funeral Home in Westmoreland. Visitation will continue on Thursday at the funeral home, with the funeral following at 2:00 pm.


Hello everyone, thanks for checking in. I hope you all had a wonderful Thanksgiving, full of good food, prayers of Thanksgiving, and the love of family and friends.

Thank you for all the prayers for Nanny Maybelle. Please pray for a peaceful passing for her at this time. As I told you in my previous post, her brain scan showed little activity following her stroke. She is still in the hospital, but, thanks to a new program at Sumner Regional Medical Center, she is under Hospice care, there at the hospital.

Please also continue to keep Kevin and his family in your prayers. That Kevin is something else, giving it all he has, against all odds. Thankfully, he now has a warm, compassionate Hospice nurse. You can see all of the ways God continues to bless this wonderful family by reading Linda's entries each day. Please stop by their page and offer them some words of support, they really need it at this time.

The Toy Drive is moving right along. I made a pickup on Friday at Nashville Wraps here in Hendersonville. My wonderful friend, Elizabeth, works there, and rallied her co-workers to help with the Drive. Then, Saturday night Elizabeth's (and her husband Tommy!) church had a spaghetti supper and singing that we attended. They donated lots of toys for the drive, as well! THANK YOU to all of you who have donated toys! And thank you to all of you who are collecting for the drive! We are meeting Tuesday night at Gilda's Club in Nashville to wrap the first group of toys collected. Kudos to Lu for doing an outstanding job implementing and organizing the Toy Drive for the second year! The Toy Drive continues, so it is not too late to donate a toy or gift card for the children at Vanderbilt Children's Hospital. Thank you to Jeci, Kevin and Linda's daughter, for rallying the students at Western Kentucky University, and getting them involved! If you need info on the Drive, please email me (rshunley@comcast.net) and I will fill you in on the details. It would be a great project to get your office, school or business involved in! Just one toy per person would help tremendously!

We also still have "Connor's Courage" wristbands available. Ann, thank you, your wristbands are on their way to California! The wristbands are $3 each. You can read about them, and see a photo, if you go to Journal History, and read the Oct. 25, 2005 entry. Thank you to everyone who has purchased the wristbands!

***********Connor***********

Hi sweetheart! Mommy and Daddy love you and miss you so very much! Christmas will never be the same again, without you here with us. We try to put on a "happy face" for everyone, but inside, we are not so joyful. Thank you for continuing to help us and for watching over us! We long for the day when we will get to see you again, that day WILL come! Lots and lots of people are donating toys for the children at Vanderbilt, Connor, because of what you mean to them! Please keep a watch out for Nanny Maybelle, she will be there soon, and I know she will be looking for your smiling face to greet her!

All our love, my Sunshine Boy, now and forever,
We'll see you soon,
Mommy and Daddy

***********^***********



Have a wonderful week, everyone. Try not to focus on the commercialism of Christmas. Do something nice for someone. Say "Hi" to a stranger. Let the other car have that "perfect" parking space. Spend QUALITY time with your children. Tell your family how much they mean to you. SHOW your family how much they mean to you. Do it TODAY, tomorrow may never come. Thank you for being our friends. Thank you for standing by us. Thank you for remembering Connor. Thank you for loving Connor. We are thankful. We are blessed. We appreciate you all.....

We love you all!
Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"




Thursday, November 24, 2005 5:44 AM CST

Happy Thanksgiving everyone! Thanks for checking in. We wish you all a wonderful day, filled with many happy moments, lots of good food, the love of family and friends, and feelings of thankfulness for all you have been blessed with. Don't get so caught up in the chaos of the day that you forget to thank God for all you have been given. If you are able to see the sunrise this morning, you are blessed. If you are able to hear the laughter of children, you are blessed. If you are able to taste the wonderful food prepared for your Thanksgiving feast, you are blessed. If you are able to smell the aromas of pies in the oven, you are blessed. If you are able to feel the hugs circulating among family today, you are blessed. If you are able to worship God openly, without fear of persecution, you are blessed. Give thanks today for all of the ways you have been blessed. May God bless you all abundantly, as you have blessed our family.

An update on "Nanny" Maybelle: she is declining daily. She had a brain scan last week, and it came back showing little brain activity. She had seemed to be responding slightly when she had her eyes open, but that has stopped over the past several days. Poppy, his brother, Kenneth, and sister, Diane, were meeting last night with Hospice while I was on the phone with Nana. We will be going by the hospital this morning before we go to Nana and Poppy's house. At this point, it will be a blessing when God calls her home. She is 85 years old, and has lived a full life. Saying "goodbye" is never easy, but knowing she is ready to meet her Maker is the most important thing. Thank you for keeping our family in your prayers. The following picture was taken when Connor was only 2 years old. It is Poppy, Connor, and Nanny Maybelle:




Please continue to remember Kevin and his family in your prayers. The man is utterly amazing, giving everything 200 percent, as he continues to battle his cancer. Please keep him and his entire family in your prayers, especially today: Kevin, Linda, Jeci, Ryan, Brandon, Tyler, Karissa, Kevin's Mom and Dad, his sister, nieces and nephews, in-laws, and all of the extended family. God does work miracles, as is apparent in Kevin's case. No, I don't mean he has been "healed" physically, but if you take a look at his web page, and all of the love that comes from so many people touched by his story, and the vigorousness of his "fight", you will see the miracle that God is working. No matter the outcome, nothing can change the fact that Kevin has altered the lives of many. Many will long remember the love of a man for his family, a man named Kevin Martin.

Thank you for those of you who continue to order the "Connor's Courage" wristbands. For those of you who don't know about them, you can go back to the journal history to see a photo, and read about them. They are $3 each. You can email me to place an order if you do not live locally, and I will mail them to you. My cousin, Tabitha, is selling them in Westmoreland (THANK YOU TABITHA!) and Nana is selling them in Portland (THANK YOU NANA!).

The Toy Drive is in full force! Some of our drop off locations are: Gene Brown Elementary (Hendersonville), in care of Melissa Holdren (Thanks, Melissa!), the office of Dr. Angela Templeton (Hendersonville-Pediatric Dentist), Albany International (Portland-Nana's Work), Kathy's Country Cupboard (Westmoreland), several banks around the Westmoreland area (Thanks, Tabitha!), and of course, we will take toy donations at our house (140 Vintage Circle, Hendersonville, TN 37075). The main thing to remember for the Toy Drive is NO STUFFED ANIMALS. The children at Vanderbilt have very compromised immune systems, and stuffed animals carry LOTS of germs. For a listing of "ideas" for needed toys, email me and I'll get a list to you. The first pickup will be by December 5, as the Christmas party for the children able to come (40 have signed up so far), will be held on December 8th, hosted by Lu and Gabe's My Heart. Lu has other drop off locations listed on Gabe's web site. Toys collected after December 5th will be distributed to children who are inpatient on Christmas, and also will serve to replenish the Oncology (cancer) Clinic at Vanderbilt, for children going through treatment. Thank you to those of you who have helped so far, and those of you who plan to donate in the near future! With your help, we can put a smile on the faces of some very deserving children this Christmas. Most of you have never walked the floors of a children's cancer ward (Thank the good Lord for that!). But if you have, you know they are some of the bravest, unselfish, caring and compassionate children you will ever meet. Thank you, Lu, for the wonderful job you do with the Toy Drive!

I would be telling a story if I said that I'm looking forward to the holidays. Yes, it has been over a year, but never mistakenly think that time has "healed" our wounds. The constant pain of the loss of a child is something that never "heals". A huge part of us went with Connor when he made his Heavenly journey. The people we were prior to his diagnosis are gone, and will never be back. We have been changed. Our hearts are shattered, and will remain that way until the blessed day when we are reunited with Connor. Yet, our Faith is STRONG. We know, through the promises laid out in the Bible, that we WILL see Connor again. We have been told, over and over again, the people "can't imagine" how we feel. In a moment, after you read the rest of this paragraph, I would like to ask you to close your eyes. Then think about the love you have for your child/children. Think of the joy they bring to your lives. Think of their smiles, think of their laughter, think of their kisses, think of their mischievous ways, think of all the love they give, think of the precious gift God gave you the day they were born, think of how you felt the moment of their birth. Then, imagine they are gone from your sight, imagine the pain of not being able to grasp hold of them physically again, on this earth. Think of a quiet house, without the sounds of children present. Think of the utter emptiness of empty arms. Think of knowing that as long as you live, you will never physically see their face again.......

That gives you a small inkling to what if "feels" like. Although there is NO WAY for anyone to truly imagine unless they have experienced this loss. Now, before I get emails telling me that I am angry and bitter over the loss of my child, let me say this. I am NOT angry and bitter. The reason I am NOT is because I have a forgiving God. A God that has promised that, through his Son's death and resurrection, that I am forgiven for my sins, and that I will have a home in eternity with Him. That is what carries us day-by-day. As I have said before, many times, if I did not have that assurance, I would have no reason to go on. Yet, I do know that Jesus died for all of us, so that by declaring that He is the Son of God, and asking for forgiveness for my sins, I am forgiven. There is nothing more important than your salvation. We are all given a choice, have you made yours yet? Don't be "left behind". Loved ones await us in Heaven....... I am not trying to "preach". Please do not think that. I am far from perfect. I have sinned throughout my life. We ALL have. No one is perfect. But everyone can be forgiven, all they have to do is ask. Ask and you shall receive. No, I do not pretend to understand things like cancer, or innocent children suffering as Connor did. I can't imagine that there is a "plan" in that. But, I also know that it is not in my human psyche to understand that. When I get to Heaven, I will either ask God to please explain that to me, or, I will be so overcome with joy that all former things will no longer matter. I like to think it will be the latter.

***********

Connor,

Happy Thanksgiving, sweetheart! I will be thanking God, as I do every day, that He gave you to us for 10 wonderful years. You have forever changed my life. I have learned more from you than anyone can imagine. Isn't it supposed to be the other way around?? You, Connor Jordan Hunley, are my inspiration to keep going. I can't wait to hold you in my arms again, sweetheart! I know you are being taken care of by so many loved ones who have gone on. I also know that you have many wonderful friends with you, friends who have parents who are missing them terribly, as well. Know that we send our love to you constantly. Thank you for helping us through the days. Thank you for the signs you continue to send. Thank you for sending Nana a most OBVIOUS sign lately, she cherishes it, Connor. We miss you, we love you, we will see you soon!

All our love for eternity,
Mommy and Daddy

***********


Again, have a wonderful Thanksgiving. Enjoy what God has given to you. Thank you for being here for us. We couldn't travel this journey without each of you with us. Whether near or far, you are appreciated, and we thank God for you. Enjoy the special moments of the holiday season. Remember those less fortunate, have a charitable heart throughout the Christmas season. Christmas is not about gifts and shopping and commercialism, it is about family, about Faith, about creating special moments, moments to cherish, memories to last a lifetime. Make special memories with your loved ones. Be thankful if your loved ones are here with you. God has blessed you abundantly, be thankful.....

We love you all,
Rhonda and Eddie, Forever Connor's Mommy and Daddy


Friday, November 11, 2005 11:06 PM CST



ADDED TUESDAY MORNING (11/15/05)--Thank you for all of the prayers for "Nanny" Maybelle. The stroke she suffered was massive, with a brain bleed. As of yesterday evening, a CT scan showed that the bleeding appears to have stopped. The doctor said that the next week will be a "wait and see" situation. She could have major damage from the stroke, time will tell. He also said that she could have more strokes, which, of course, would not be good. She was resting good last night when I last saw her. Again, thank you so much for the prayers, I know that her entire family appreciates them.

Also, please keep Kevin and his family in your prayers, as he continues to fight. Continue to pray for comfort and peace for all of them. Thank you!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

ADDED SUNDAY MORNING (11/13/05)--8:15 a.m.--PLEASE PRAY FOR POPPY'S MOTHER, CONNOR'S GREAT-GRANDMOTHER, MAYBELLE GRAVES OF WESTMORELAND. SHE HAD A MASSIVE STROKE OVERNIGHT AND IS IN SUMNER REGIONAL HOSPITAL IN GALLATIN. THE STROKE HAS DONE MAJOR DAMAGE, AND THE NEXT 24 HOURS ARE CRITICAL. I JUST FOUND OUT, AND I AM HEADED THERE NOW. PLEASE, PLEASE SAY A PRAYER FOR HER, AND ALL OF OUR FAMILY. THANK YOU!

Hello friends and family, thanks so much for checking in. Well, Oct. 31 and Nov. 1 have come and gone. I'm sorry it has taken me so long to update on Connor's birthday balloon release. I will start with that. What we had dreaded for so long, a birthday celebration WITHOUT the honoree, our precious son, turned out to be a wonderful tribute to what Connor means to so many people. We had a great turnout, we figured between 60 and 70 people. Everyone congregated in the mausoleum first, so that we could write messages to Connor on the balloons. People just KEPT coming in, I really didn't think that many would be able to come. Alot of people couldn't because of it being on Halloween, they had to get their little ones ready to trick-or-treat. So we were quite pleased with the number of family and friends who were able to come. I wouldn't dare start naming names, for fear of leaving someone out. We all gathered outside on a hillside in the cemetary. The sun was shining brightly as we all gathered in a circle. We joined hands, and our minister, Keith Parker, led us all in prayer. We then counted to "11" and released our balloons as we yelled "Happy Birthday" to Connor. Thank you to all of you who were able to gather with us to celebrate Connor's life. There are no words that I could type to make you aware of just what your presence there meant to us. A huge thank you, also, to those of you who were able to release balloons to Connor from wherever you may have been. I know that several of you emailed to let me know that you would be sending balloons up from your city. WOW is all I can say! I'm sure the view from Heaven of all the balloons coming his way really made Connor feel all of the love that went up with the balloons. Connor's birthday continued back at our house. We had some food and a birthday cake here for those who could come on over. We also had several people come later who were not able to attend the balloon release. I know that all of you could have been anywhere on October 31st. We are touched that you spent it with us and that you would want to help us honor Connor on his birthday. It was a full day, full of lots of hugs, memories, tears, laughter, sharing, love, warmth, prayer, comfort.....




Tuesday, November 1, 2005. One year to the day since Connor was called home to live eternally in Heaven. We made it past the 7:40 am mark. We then decided to take off to Pigeon Forge/Gatlinburg. Connor always LOVED to go there, and we made many wonderful memories with him through the years. We would usually go at least once a year, sometimes twice. One of the funniest memories was of the year when Connor was either 3 or 4. We took him to this little kiddie park in Pigeon Forge. It was empty that day, so he was able to go from ride to ride, and ride for as long as he wanted. Then, he discovered that they had little go-carts for children his age. He got in one, and was the only child on the track. The poor attendant working the track was CONSTANTLY having to go pull Connor's go-cart away from the wall, because he kept driving it straight into the wall. We were laughing so hard that we were nearly crying. As soon as the guy would get off the track for Connor to take off again, Connor would be into the wall. It probably took 20 minutes for him to go half a lap, and we are talking short laps. That was his first "driving" experience, other than his motorized Jeep at Nana and Poppy's. Anyway, back to this year. We just stayed a couple of nights, but it was just what we needed. Nana and Poppy had actually gone there on Sunday, so we were able to meet up with them the second day for breakfast. When we went to Gatlinburg, our first stop was "Cooter's", from The Dukes of Hazzard fame. That was ALWAYS where Connor wanted to go first, and we always did. Everything up there reminds us of Connor, and that is a good thing. We decided that we will try to take a little retreat there every year around the 1st of November.

Friday night, November 4, was the 3rd annual Cowboy Ball, the fundraiser for AngelHeart Farm. We did not attend last year, as it was held just before Connor passed away. The year before, he was the official "Cowboy" of the Ball. This year, we were able to meet the artist, Shary Akers, who is working on the bronze of Connor and Basko, the horse. She had it with her, so we were able to get an idea of what it will be like. She still has quite a bit of work to do on the bronze (Jim, I know you were asking about it). She did mention that she hopes to have the finished product by next year's Ball. Alot of money was raised for AngelHeart that night, and I know Tracy was thrilled to find out that she will be getting a much-needed tractor with some of the money raised.




Today, Veteran's Day, a dedication was held at the new Memorial Park Plaza in Hendersonville. Eddie and I were able to attend. This is the new fountain we have here in Hendersonville with the brick pavers. Thank you, Connie and Bob, for Connor's paver! There were representatives there today from nearly all branches of the Military, Fire and Police. There were soldiers there who have just returned from Iraq. It was a very moving service. Thank you to all of those who fight for our FREEDOM, and to keep us safe! And thank you to the Rotary Club for making the Memorial Park a reality.

Thank you to all of you who have purchased the Connor's Courage wristbands. We do have our second order in now, so please email me if you would like to order one. They are $3 each. Details on the wristbands are in the last journal entry. Angel at First Place Trophy here in Hendersonville, still has some in her store, if you want to go by there to get one. If you have ordered one through me, I now have filled all of the orders, so if you haven't gotten your's yet, it is on it's way!

I also now have the posters and flyers regarding the Toy Drive for Vanderbilt Children's Hospital. It is being held by Lu, Gabe's Mom, of Gabe's My Heart. If you live locally, and your business or workplace is interested in being a drop-off location for the Toy Drive, please email me and let me know. We will get a box, a poster, and flyers detailing the types of toys needed to you ASAP. Let's help these children battling life threatening diseases at least have a very Merry Christmas.

Also, if you live in Hendersonville, and you would like to have a team for the Relay For Life in 2006, please email me, and I will get you all the information. We had a meeting last week regarding the Relay, and Eddie and I are on the Team Development Committee. You can have workplace teams, or maybe a team for someone you know who is battling or has battled cancer. The Relay will be held on May 19, 2006. The more teams we have, the more money that can be raised for the American Cancer Society! We need research, research, research to try to combat this disease.

Please remember to keep the Martin7 in your prayers. Kevin is now at home on Hospice care. Pray for God to provide the entire family with the peace they need, and pray for Kevin to be pain-free. This family is very dear to us. We are hurting with them, and for them.

God has promised never to leave us or forsake us, even in the darkest of times. We may not always "feel" Him with us, but rest assured that He is there. No matter what curve balls life throws at us, God's love to us is a constant presence, a presence that nothing can ever take from us. That is why when we are at the very end of our rope, and we are dangling from the cliff, we can trust that He will either hold us up, or be there to catch us if we slip and fall. That same God that I trust in each and every day, is right now, at this very moment, holding my child in His loving arms. Oh what joy that thought brings to mind. And, I know, through my faith in Him, that I will someday get to join them. God will wipe every tear from my eye, and grief and mourning will be a thing of the past, never to be thought of again.

***********

Connor,

Happy Birthday, Sunshine Boy! Your 11th birthday has now come and gone. We all hope that you were able to retrieve all of your balloons! We are certain that you had lots of help from all of your friends in Heaven. I wonder just how magnificent your party in Heaven was??? Can't wait until we get to celebrate with you, sweetheart.

Thank you SO MUCH for all of the obvious signs you have sent to us lately. Especially the one when Linda was here with us! Lots of family members and friends shared different personal stories with me over the past couple of weeks regarding your "visits" to them. Thank you, you always know just what everyone needs, Connor!

Give yourself a great big hug, and consider that from Mommy. We will see you soon, be sure and save our place right next to you!

All our love,
For Eternity,
Mommy and Daddy

***********

Thank you all for being here with us, in your hearts. We never forget to count our blessings, and we are very blessed. Please continue to remember those who have lost loved ones recently, especially as the holidays are quickly approaching. Please remember Tammy (Eddie's sister) and her family in your prayers, as Shelton (Tammy's husband)lost his Mother this week, Ms. Sylvia Draper. Thanksgiving and Christmas will be very difficult this year for lots of people, be thankful if you have not experienced any loss or tragedy in your life over the past year. Smile more, put others before yourself, do something nice for someone, without expecting anything in return. And always, always, thank God for the blessings He has given you....

We love you all,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Friday, November 11, 2005 6:42 AM CST

I will be adding an update by tonight. I worked on the new background and attempted to get a specific song to play last night on the web page, until I was too tired to finish the update. Sorry to make you think there was a new update. Please keep Kevin and his family in your prayers throughout today, and each day thereafter. And please check back tomorrow for an update on here, I will tell about Connor's birthday, and the one year "anniversary". Thanks for being here for us!

Love,
Rhonda, Forever Connor's Mommy


Tuesday, October 25, 2005 11:02 PM CDT

Hello friends and family, thanks for checking in. Yes, it is almost here. Connor's 11th birthday on Halloween, and then the one year anniversary of his passing on November 1, 2005. One year.....it seems impossible that we have been without our Sunshine Boy for an entire year. Yet, we have. One year without his laughter. One year without his kisses. One year without his hugs. One year without hearing "I love you Mommy". One year without hearing his footsteps in the house. One year without his sweet notes and pictures. One year of grocery shopping without getting any of Connor's favorites. One year of watching the school bus go up and down the street. One year of firsts.....first Thanksgiving without Connor, first Christmas without Connor, etc., etc., etc. One year of the loud "quietness" of a house without a child. It is deafeningly LOUD. One year of empty arms. One year of the reality of the sometimes outcome of cancer. One year of daily "visits" to my child at the mausoleum. One year of family "get-togethers" without Connor. One year of life going on around us. One year of NOT getting to tuck my baby in at night. One year of not hearing "Now I lay me down to sleep....." One year of toys and bicycles collecting dust. One year of smiling on the outside, when I feel as though I am dying on the inside.

Yes, one year. But, also, one year of "Connor moments". One year of family and friends holding us up. One year that Connor has been pain-free and cancer-free. One year that Connor has been able to bask in all the glory that is Heaven. One year of thanking God EVERY SINGLE DAY that he chose us to be Connor's parents. One year of thanking God every day that He gave us 10 wonderful years with Connor, here on earth. One year of eagerly anticipating the day when we will be reunited. One year of KNOWING that we will see Connor again. One year of "feeling" Connor all around us. One year of stopping to watch the sun set. One year of truly appreciating just how fragile life really is. One year.........

October 30, 1994 fell on a Sunday evening. I had worked the Friday before, and before I left work that day, I remember that some of my co-workers thought that I would go into labor that weekend. The weekend passed by, and Sunday night, we were relaxing in front of the T.V., catching those last moments of the weekend before Monday rolled around again. Around 9:00, my water broke. We took off to the hospital, and called the grandparents "in". I was in labor all night, and Connor Jordan Hunley came into the world on a bright Monday morning, which just happened to be Halloween, at 6:42 a.m., weighing 7 lbs and 12 ounces. He was 20 inches long. There has never been another moment in my life to compare to that moment of the doctor placing our son in my arms for the first time. For those of you out there fortunate enough to be parents, I know that you know just that feeling that I am referring to. I don't think my heart has ever felt a love just like that. Here is this little life that God has entrusted me with. Oh, nothing even comes close to that wondrous feeling. And I do thank God everyday for letting me experience the wonder of Mother-hood. I will forever be Connor's Mommy, and I have known no greater joy!

We are planning to meet at the mausoleum on Monday, October 31st, at 4:00 p.m. We will have balloons for anyone who can come, to release to Connor. We will have Sharpies, so that you can write a message to Connor, if you choose. We would like for anyone who is able to come, to be thinking of a "happy" memory of Connor that you would like to share. We do not want this to be a sad gathering, but rather a celebration of the life of Connor, and all that he was. We know that he continues to impact lives, even with his physical absence. After we release the balloons, everyone is invited to come over to our house for birthday cake. I know some of you reading this will probably think that we have truly "lost it" by having cake, but we will celebrate Connor's life, and his birthday is the perfect day to do just that. I know that Connor will be smiling down on us. So, YOU are invited. The mausoleum is located just behind the Hendersonville Funeral Home, adjacent to the Memory Gardens. The funeral home is across from Lowes in Hendersonville, just off Gallatin Road. We would love to see you on Monday! I know the time will be an issue for some of you, but if we make it any later, the mausoleum will be closed. Plus, with the time change this weekend, we wanted to make sure we still had some daylight to do the balloon release. Even if you can't make it by 4:00, feel free to stop by anyway. If you do not live locally, we would love to hear that you released a birthday balloon to Connor on Monday.

We have a new project that we have started. As I have told you before, our friend Lu, started a foundation in honor of Gabe, called Gabe's My Heart. She is putting together backpacks for newly diagnosed children at Vanderbilt Children's Hospital (aka Monroe Carroll Children's Hospital). We tried to think of something that we could include in the backpacks to memorialize Connor. We decided on the silicone wristbands. So, we ordered 500 of them. There are approximately 100-125 children diagnosed a year at Vanderbilt. So 250 of the wristbands will be put aside for this year (125) and next year (125). The remaining 250, we are currently selling for $3 each. Our goal is to get this first order sold, so that we can double our order next time. 100 percent of the proceeds from the sale of the wristbands will benefit children currently undergoing treatment for cancer or leukemia at Vanderbilt. I took a picture, so that you could see the wristbands:



One side has the words "Connor's Courage", the other side has the word, "INSPIRE". Connor's Courage is self-explanatory. INSPIRE is what all of the children battling cancer do for us, they INSPIRE us. Connor always inspired us, as did all of the other amazing children we have met. We want the children to be INSPIRED to FIGHT, FIGHT, FIGHT with all they have in them! The wristbands are royal blue, Connor's favorite color, of course. We considered yellow, his other favorite color, but with the LIVESTRONG wristbands, we wanted something to stand out on it's own. A sweet, wonderful friend by the name of Angel offered to put some of the wristbands in her shop, First Place Trophy, in Hendersonville, to sell. It is located off Walton Ferry Road, just off Gallatin Road, behind The Movie Gallery and Jersey Mike's. She is open Monday through Friday. You can also email me, if you would like one, and either stop by our house to get one, or I can bring them to you. If you do not live here in Hendersonville, I will be happy to mail them to you. My email is at the bottom of the page, but I'll include it here, rshunley@comcast.net. A HUGE THANK YOU to Angel, Nana, and Elizabeth for selling some for us, also to Tabitha, who will be selling them in Westmoreland. They are going quickly, but we do plan on placing another order very soon. Also, thank you to Tommy and Elizabeth for helping to fund the first order! It is our goal to see these blue wristbands on arms all over this area, and beyond!

We owe another big THANK YOU to Tony and Malissa, and all of our neighbors in our old neighborhood, Sumner Meadows, for the Tree Planting and Dedication that was held Sunday in Connor's Memory. Thank you to those of you who braved the cold, drizzly afternoon to help us honor Connor. For those of you familiar with Hendersonville and Sumner Meadows, the tree is planted in the front common area, close to the swing set. You can see it from New Shackle Island Road. We were especially pleased that Connor's friend, John Tyler, and his Mom, Gaye, his Grandmother, and his sister came. Thank you ALL so much!

Eddie and I attended Nikie's visitation on Sunday evening. As I stated in my last update, she passed away on October 20th, at the age of 19, after battling cancer for 3 years. She was always such a delight to be around, she was always smiling. Connor was inpatient at Vanderbilt MANY times when Nikie was also in for one reason or another. Her Mom, Cindy, and I became good friends. Please keep Cindy, Nikie's sister, Kayla, and the rest of her family in your prayers. They especially need prayers now, as much as ever.

Also, please continue to pray for Kevin Martin and Richie. Their web pages are updated often, so you can read the latest on them by clicking on their name, it will take you to their pages.

Please remember the Toy Drive that we plan to help Lu with. A couple of you have already volunteered your workplace as a drop-off site. THANK YOU SO MUCH! I will give more info in the next couple of weeks. Again, please email me if you are interested in helping with this project. You can read my last update if you missed the info on it before.

~~~~~~~~~~**********~~~~~~~~~~

Connor,

Oh my, we are a mere 6 days away from your 11th birthday! I wonder what kind of celebration is being planned for you in Heaven?!? I know it will be utterly amazing! Watch for your birthday balloons, we will be sending them up around 4:00 on Monday, Oct. 31. They will be blue and yellow, of course! I can't believe that we will be celebrating your birthday without you physically here with us. Oh, how I always thought we would be watching you grow up, graduate, go to college, get married, start a family, and live happily ever after. Life sure caught us off guard. We know that you just finished your job here on earth way ahead of the rest of us, so God rewarded you early. But, oh, how we ache to hold you, to hear you, to see you, to smell you. We look forward to the day when God decides it is time for us to be reunited! Thank you for continuing to "show" us that you are around! Please send Uncle Chad a special birthday wish tonight, Oct. 25, on his 25th birthday. He is sad that you are not here to celebrate with him, as we have always done in the past. We all love you and miss you so much. Happy birthday, sweetheart! Mommy and Daddy also plan on shooting some fireworks on your birthday, and on November 1st, since they were one of your most favorite things in the whole world! I know you will be celebrating with all of your friends up there, just know that we are also celebrating your life down here.

All of our love,
For eternity,
Mommy and Daddy, Zoe and Doris, too!

**********~~~~~~~~~~**********

Thank God for the blessings in your life. If you have children, read the first paragraph of my update again to remind you of some of the ways you are blessed everyday. We are thankful for you all. We are thankful that you continue to support us. Thank you for loving us, and most of all, for loving our special child, our Sunshine Boy, Connor Jordan Hunley.

Love,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper"!


Friday, October 7, 2005 8:45 AM CDT

ADDED THURSDAY, OCTOBER 20, 2005 - Nikie has now joined Connor and all those who have gone before her, in Heaven. She passed away around 1:20 am this morning. Please visit her page, and let her family know that you are thinking of them. The most difficult days of their lives lie ahead. We'll miss you, sweet Nikie!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Hello family and friends, thanks for checking in! We are blessed to have so many wonderful friends who continue to support us through this journey. By the way, HAPPY BIRTHDAY TODAY TO LINDA MARTIN!

It has been a while since my last update, so let me start by asking for special prayers for some of our friends:

Please keep the Martin family in your prayers, as Kevin continues his battle against cancer. The entire family needs our prayers, Kevin, Linda, Jeci, Ryan, Brandon, Tyler, Karissa, Kevin's parents, and extended family. They are all deeply feeling the toll that cancer takes on families. We were able to attend, last month, the baptism of Kevin, Linda, Jeci, Ryan and Brandon, at their church. What a day that was!

Also, Nikie continues to fight. She has been so strong throughout this, with such a positive outlook. Please keep her, her Mom Cindy, and sister Kayla in your prayers.

I found out yesterday, through Linda Martin that Richie in Nevada has had an apparent relapse of rhabdomyosarcoma. He battled it first back in, I think, 2001, the same year Connor was diagnosed. Then, he relapsed a couple of years ago, and had a stem cell transplant. He has been "cancer-free" for 2 years now. They have found a mass in his stomach, along with a questionable area on his lung. You can read all of the details on his page. His family and the Martin family have been friends since the Martin's lived in Nevada. Richie and Ryan Martin are very good friends. Please pray for Richie to beat the odds!

Since my last update, Eric passed away from rhabdo. He was just shy of his 10th birthday.Rhabdo is a relentless beast, but what people sometimes don't realize is that the cancer doesn't beat the kids, the kids ultimately beat the cancer! They receive their reward for "a job well done, good and faithful servant". I know that Eric has met up with Connor, Cheyenne, Jason, Ian, Chyanna, Felicia and all of the other children gone too soon. Our prayers continue for Eric's Mom and Dad, Kasey and Mike, and his sister, Katy, along with all of his extended family and friends.

The month of September seemed to pass by quickly. On September 16, Nana, Grandma and I took a weekend trip to Indianapolis. My Grandma's cousin, Emma, lived there for many years. She passed away a few years back, so we visited the mausoleum which is her resting place. We enjoyed our little "girl's getaway". On the way back through Louisville, we stopped to visit my great aunt Margot. She was married to my Grandma's brother, Hoyt. Uncle Hoyt passed away the same year Connor was born. She had battled heart problems and cancer for quite some time, and was in the hospital. We had a good visit with her. The following week, Grandma got the call that Aunt Margot had passed away. So, the following Friday, several of us went back up to Louisville for her Memorial service. We were so glad that we had been able to visit with her before she made her Heavenly journey. She leaves behind two daughters, Sylvia and Linda (Ronnie is Linda's husband), two granddaughters, Leslie and Amy, and a great granddaughter, Alyssa, along with many friends. Her sister, Helga, and her family, live in Virginia.

The past week has been filled with many visits, cards, phone calls and gifts from so many, as my birthday was Saturday, October 1st. I am truly blessed. You all made sure that my time was filled. I had dreaded my first birthday since Connor's passing. He always made his Mommy feel so special with his handmade notes, cards and special gifts, along with lots of hugs and kisses. There are a ba-jillion things I miss about Connor. I couldn't even begin to tell you. I did feel his presence throughout my birthday. I know he was sending his love my way. Special thank you's to Nana, Christian and Caitlyn, Lu, Tabitha, Kyla and Brett, Jordan, Elizabeth and Tommy, Susan and Kayli, Linda, Karissa and Jeci, Kathy, Terre and Ashley, Beverly and Victoria, Kathy M., Ann R., and all of you who sent well-wishes my way.

If any of you are in the Hendersonville area, there is a new Memorial Park Plaza adjacent to the Kid's Kingdom and tennis courts by the lake between Sanders Ferry Rd. and Cherokee Dr. You can see the fountain from Gallatin Rd. The circle surrounding the fountain has sections of special bricks purchased in memory or in honor of Military personnel, Policemen and Firemen. The Chief Deputy for Sumner County, Bob Barker, purchased a large brick in memory of Connor, as Connor was an Honorary Goodlettsville Fireman. We are so touched by this gesture of kindness. Thank you, Bob and Connie, for doing this for our precious child! This picture may not show up very well, but I'll add it anyway:



As I have told you before, Eddie and I are on the committee for the Hendersonville Relay For Life for 2006. We are also getting started on helping Gabe's Mom, Lu, on a couple of her projects that she spearheads for Gabe's foundation, Gabe's My Heart. One of those projects is her annual Toy Drive for the children of Vanderbilt Children's Hospital. The toys will be distributed at a Christmas party held at Pump It Up, for kids at the clinic, and for the children who are inpatient on Christmas. If you own a business, or know of someone who does, or if your workplace is willing to participate, and you (or they) are willing to let us put a poster up detailing the toy drive, along with a toy drop-off box, please email me and let me know. Lu has done an outstanding job with this project in the past, and we want to make sure that it is bigger and better than ever this year! There were a couple of Toy Drives held last year in Connor's Memory. Any that may be held this year, we would love to be able to include, In Connor's Memory, in the Gabe's My Heart toy drive. The one thing that needs to be stressed about the toy drive is that NO STUFFED ANIMALS can be accepted, because of the germ factor, and the weakened immune systems of the children in the hospital. The posters will explain all of that. Again, for more info, please email me or Lu (her contact info is on Gabe's page), and we will get back with you. THANK YOU!

Happy Anniversary next week on October 13th to Nana and Poppy!

We are quickly approaching what would be Connor's 11th birthday on October 31st (Halloween). Also, November 1, 2005 will mark ONE YEAR since Connor was called home to Heaven. Yes, we are hurting worse than ever. It is unfathomable to think that he has been gone from our sight for almost a year. I can't bear to even think about it. Each day is getting more difficult as we approach the end of October. Please keep us, along with our family and friends, in your prayers. Please also pray for Connor's friends, as I know they miss him, too. Thank you, Jordan, for my birthday phone call, you have no idea how much that meant to me! I will update before the end of the month with details regarding our plans for honoring Connor on his birthday.

I know there are so many things that I am leaving out. We have been so busy lately, and it seems like so much has happened. I will add things as I think of them.

~~~~~~~~~~CONNOR~~~~~~~~~~

Hi sweetheart, Mommy and Daddy miss you so very much! You have been so busy lately, making sure we notice all of the wonderful signs you send to us. Thank you for letting me, Nana and Grandma know that you were with us in Indianapolis. There was no denying that you were there! Thank you, also, for taking care of Mommy on my birthday. You are the most special Sunshine Boy ever! We love you more than all of the stars in the sky, more than all of the drops of water in the sea. We can't wait to see you! Your birthday is coming up! We are sad that you will not be "here" with us on your birthday, but we can only imagine the celebration that you will enjoy in Heaven, with all of your family and friends who are there with you! Be sure to watch for all of the balloons coming your way on October 31st! Thank you for being the best son ever! We all miss and love you so very much! We'll see you soon, Angel-cake!

All our love for eternity,
Mommy and Daddy (Zoe and Doris, too!)

~~~~~~~~~~ ~~~~~~~~~~


Thank you all, once again, for being here. Thank you for all you do for us. Thank you to all of the faithful guestbook signers! Enjoy your weekend! Fall is here, it has always been my favorite season. Get outside with your family and enjoy the cooler temps. Our time here is so short, make the most of every second. As we have learned, there is nothing more precious than time spent with loved ones. Make that special effort to do just that, spend time with those you love. Do that in memory of Connor. We know that Connor continues to impact lives here. I hope he has impacted yours.....

We love you all,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Friday, October 7, 2005 8:45 AM CDT

Hello family and friends, thanks for checking in! We are blessed to have so many wonderful friends who continue to support us through this journey. By the way, HAPPY BIRTHDAY TODAY TO LINDA MARTIN!

It has been a while since my last update, so let me start by asking for special prayers for some of our friends:

Please keep the Martin family in your prayers, as Kevin continues his battle against cancer. The entire family needs our prayers, Kevin, Linda, Jeci, Ryan, Brandon, Tyler, Karissa, Kevin's parents, and extended family. They are all deeply feeling the toll that cancer takes on families. We were able to attend, last month, the baptism of Kevin, Linda, Jeci, Ryan and Brandon, at their church. What a day that was!

Also, Nikie continues to fight. She has been so strong throughout this, with such a positive outlook. Please keep her, her Mom Cindy, and sister Kayla in your prayers.

I found out yesterday, through Linda Martin that Richie in Nevada has had an apparent relapse of rhabdomyosarcoma. He battled it first back in, I think, 2001, the same year Connor was diagnosed. Then, he relapsed a couple of years ago, and had a stem cell transplant. He has been "cancer-free" for 2 years now. They have found a mass in his stomach, along with a questionable area on his lung. You can read all of the details on his page. His family and the Martin family have been friends since the Martin's lived in Nevada. Richie and Ryan Martin are very good friends. Please pray for Richie to beat the odds!

Since my last update, Eric passed away from rhabdo. He was just shy of his 10th birthday.Rhabdo is a relentless beast, but what people sometimes don't realize is that the cancer doesn't beat the kids, the kids ultimately beat the cancer! They receive their reward for "a job well done, good and faithful servant". I know that Eric has met up with Connor, Cheyenne, Jason, Ian, Chyanna, Felicia and all of the other children gone too soon. Our prayers continue for Eric's Mom and Dad, Kasey and Mike, and his sister, Katy, along with all of his extended family and friends.

The month of September seemed to pass by quickly. On September 16, Nana, Grandma and I took a weekend trip to Indianapolis. My Grandma's cousin, Emma, lived there for many years. She passed away a few years back, so we visited the mausoleum which is her resting place. We enjoyed our little "girl's getaway". On the way back through Louisville, we stopped to visit my great aunt Margot. She was married to my Grandma's brother, Hoyt. Uncle Hoyt passed away the same year Connor was born. She had battled heart problems and cancer for quite some time, and was in the hospital. We had a good visit with her. The following week, Grandma got the call that Aunt Margot had passed away. So, the following Friday, several of us went back up to Louisville for her Memorial service. We were so glad that we had been able to visit with her before she made her Heavenly journey. She leaves behind two daughters, Sylvia and Linda (Ronnie is Linda's husband), two granddaughters, Leslie and Amy, and a great granddaughter, Alyssa, along with many friends. Her sister, Helga, and her family, live in Virginia.

The past week has been filled with many visits, cards, phone calls and gifts from so many, as my birthday was Saturday, October 1st. I am truly blessed. You all made sure that my time was filled. I had dreaded my first birthday since Connor's passing. He always made his Mommy feel so special with his handmade notes, cards and special gifts, along with lots of hugs and kisses. There are a ba-jillion things I miss about Connor. I couldn't even begin to tell you. I did feel his presence throughout my birthday. I know he was sending his love my way. Special thank you's to Nana, Christian and Caitlyn, Lu, Tabitha, Kyla and Brett, Jordan, Elizabeth and Tommy, Susan and Kayli, Linda, Karissa and Jeci, Kathy, Terre and Ashley, Beverly and Victoria, Kathy M., Ann R., and all of you who sent well-wishes my way.

If any of you are in the Hendersonville area, there is a new Memorial Park Plaza adjacent to the Kid's Kingdom and tennis courts by the lake between Sanders Ferry Rd. and Cherokee Dr. You can see the fountain from Gallatin Rd. The circle surrounding the fountain has sections of special bricks purchased in memory or in honor of Military personnel, Policemen and Firemen. The Chief Deputy for Sumner County, Bob Barker, purchased a large brick in memory of Connor, as Connor was an Honorary Goodlettsville Fireman. We are so touched by this gesture of kindness. Thank you, Bob and Connie, for doing this for our precious child! This picture may not show up very well, but I'll add it anyway:



As I have told you before, Eddie and I are on the committee for the Hendersonville Relay For Life for 2006. We are also getting started on helping Gabe's Mom, Lu, on a couple of her projects that she spearheads for Gabe's foundation, Gabe's My Heart. One of those projects is her annual Toy Drive for the children of Vanderbilt Children's Hospital. The toys will be distributed at a Christmas party held at Pump It Up, for kids at the clinic, and for the children who are inpatient on Christmas. If you own a business, or know of someone who does, or if your workplace is willing to participate, and you (or they) are willing to let us put a poster up detailing the toy drive, along with a toy drop-off box, please email me and let me know. Lu has done an outstanding job with this project in the past, and we want to make sure that it is bigger and better than ever this year! There were a couple of Toy Drives held last year in Connor's Memory. Any that may be held this year, we would love to be able to include, In Connor's Memory, in the Gabe's My Heart toy drive. The one thing that needs to be stressed about the toy drive is that NO STUFFED ANIMALS can be accepted, because of the germ factor, and the weakened immune systems of the children in the hospital. The posters will explain all of that. Again, for more info, please email me or Lu (her contact info is on Gabe's page), and we will get back with you. THANK YOU!

Happy Anniversary next week on October 13th to Nana and Poppy!

We are quickly approaching what would be Connor's 11th birthday on October 31st (Halloween). Also, November 1, 2005 will mark ONE YEAR since Connor was called home to Heaven. Yes, we are hurting worse than ever. It is unfathomable to think that he has been gone from our sight for almost a year. I can't bear to even think about it. Each day is getting more difficult as we approach the end of October. Please keep us, along with our family and friends, in your prayers. Please also pray for Connor's friends, as I know they miss him, too. Thank you, Jordan, for my birthday phone call, you have no idea how much that meant to me! I will update before the end of the month with details regarding our plans for honoring Connor on his birthday.

I know there are so many things that I am leaving out. We have been so busy lately, and it seems like so much has happened. I will add things as I think of them.

~~~~~~~~~~CONNOR~~~~~~~~~~

Hi sweetheart, Mommy and Daddy miss you so very much! You have been so busy lately, making sure we notice all of the wonderful signs you send to us. Thank you for letting me, Nana and Grandma know that you were with us in Indianapolis. There was no denying that you were there! Thank you, also, for taking care of Mommy on my birthday. You are the most special Sunshine Boy ever! We love you more than all of the stars in the sky, more than all of the drops of water in the sea. We can't wait to see you! Your birthday is coming up! We are sad that you will not be "here" with us on your birthday, but we can only imagine the celebration that you will enjoy in Heaven, with all of your family and friends who are there with you! Be sure to watch for all of the balloons coming your way on October 31st! Thank you for being the best son ever! We all miss and love you so very much! We'll see you soon, Angel-cake!

All our love for eternity,
Mommy and Daddy (Zoe and Doris, too!)

~~~~~~~~~~ ~~~~~~~~~~


Thank you all, once again, for being here. Thank you for all you do for us. Thank you to all of the faithful guestbook signers! Enjoy your weekend! Fall is here, it has always been my favorite season. Get outside with your family and enjoy the cooler temps. Our time here is so short, make the most of every second. As we have learned, there is nothing more precious than time spent with loved ones. Make that special effort to do just that, spend time with those you love. Do that in memory of Connor. We know that Connor continues to impact lives here. I hope he has impacted yours.....

We love you all,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


October 6, 2005 8:46 P.M.

I am working on an update. I will try to add it tomorrow.

Thanks for your patience!

We love you all,
Rhonda and Eddie,
Forever Mommy and Daddy To Connor, our "Bravest Little Trooper!"


Thursday, August 25, 2005 10:12 PM CDT

September 1, 2005--10 months today since we said goodbye to our Sunshine Boy.....please pray for us and our family. We miss Connor so very much! Thank you!

It is with the heaviest of hearts that I tell you that Jason Archer passed away this afternoon after battling rhabdo for almost 2 years. He, too, lives in Hendersonville. His family needs our prayers and support more than ever. His parents are David and Pam. Today was David's 50th birthday. I so DESPISE cancer, and what it does to families. To think that another family now has to go through this daily pain makes me physically ill. Jason makes the 3rd child, (yes, at 19, he is still a child to his parents)in Hendersonville to pass away to rhabdo in the past year. The first being 12 year old Felicia Dary in August, 2004, then Connor on November 1, 2004, and now Jason. It is so difficult for me to understand with rhabdo being so "rare", how is it that this keeps happening??? I'm not sure when Pam will feel up to posting, so if I hear of the arrangements (probably tomorrow), I will post them here.

Please also keep Kevin Martin and his family in your prayers. Kevin is having more difficulties and is in Vanderbilt. I spoke with Linda today, and he could possibly be there up to 12 more days. Remember, Kevin and Linda have 5 children. Linda is amazing, keeping up with everything. Please pray for Kevin to heal up, so that he can go back home and be with his entire family.

I went tonight to the first Relay For Life committee meeting here in Hendersonville. Eddie didn't get home from work in time to go, but we are both planning to get involved on the committee for the 2006 Relay. We are excited about it, and know that Connor will be right with us, guiding us along. He is our strength and inspiration. We also will be involved in the Portland Relay, with Nana's team from her work. They have always been so good to us!

I want to thank the person who left the beautiful note to Connor and the "Connor" charms for me at the mausoleum. It meant so much to me, I hope you know that. I just love it when Connor has visitors at his resting place. Also, a HUGE thank you to Kevin and Linda's son, Brandon. Linda, Brandon and Karissa came over on Tuesday night to hang out with us for a while. When they got ready to leave, they had planned to go by the mausoleum, but it was closed for the day. Brandon went out to the car and brought back his game ball from the state championship game that he played in a few weeks ago. He had written "To Connor, From Brandon" on it, and wanted us to take it and leave it at the mausoleum for Connor. How sweet is that??? He had to be so proud to get that ball after his game, yet he wants Connor to have it. It touched my heart beyond belief. THANK YOU, BRANDON! Connor is smiling down on you, for sure!

I know there is more that I need to write, but I am tired and ready for bed. I mainly needed to tell you about Jason and about Kevin. Please remember all of our friends in your prayers who are fighting their own battles with the relentless cancer beast. Nikie and Eric are both fighting so hard right now, as well. Please also remember those parents who no longer have their child here with them. Please never mistakenly think that time makes it all better, that is just not the case. My heart will never be whole again until I can hold my baby in my arms. Each day brings fresh pain. But, each day also brings beautiful memories and all the reminders Connor sends to us. Nothing can take those away!

~~~~~~~~~~

Connor,

Hey sweetheart! I know you have greeted Jason by now! I am so glad that the two of you met here a couple of different times. That way you already know each other there in Heaven. I know you are already having a blast together, I hear he is really good at the video games, so you may have met your match! We can't wait until the day when we get to join you, Connor. Please keep a watch out for us. I heard the "Creed" song yesterday and thought of you with the lyrics--"With arms wide open, under the sunlight--welcome to this place, I'll show you everything..." I can just imagine you standing there with your arms wide open, with that gorgeous smile on your face, meeting us at the gate, anxious to show us everything. Thoughts like that bring a smile to my face. We love you more than anything in the entire universe, angel-cake, and will FOREVER! We'll see you soon!

All our love,
Mommy and Daddy

Zoe and Doris miss you so much, keep a watch over them, as well!

~~~~~~~~~~


Enjoy your weekend everyone! Please remember the Archer family, and pray for the pain they are now experiencing. As I've said a thousand times before---do not take one single second for granted, as things can change in the blink of an eye. Do not wait to tell your loved ones how much they mean to you, you may not get the opportunity "tomorrow". Cherish your family and friends. Make sure that Christ is the center of your life. Without the hope of eternal life, we have nothing.

Peace to all, and may God bless us all!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Monday, August 1, 2005 7:05 PM CDT

Hello family and friends, thanks for checking in. It is with heavy heart that I relay the news to you that Sadie Grace passed away yesterday, Sunday, July 31, 2005. She has fought her entire life with seizures of unknown origin, and she has been through so much. It is so difficult to comprehend how this can happen to a child. Sadie Grace was only 2 years old, and had battled this since she was 7 weeks old. Connor was in the hospital the first time Sadie Grace was brought in. The connection between our families' is that my dear friend Christian's mom (Meme Jewel) is best friends with Sadie Grace's grandmother, Marsha. Please keep Sadie Grace's Mommy and Daddy, Cyndi and Scott, and her grandparents, Marsha and Jimmy, and the rest of the family in your prayers, especially in the coming days. Sadie Grace's Memorial Service will be held Wednesday, August 3rd, at 3:00 p.m. at Hendersonville First Baptist Church, with visitation 2 hours prior to the service. We are truly heartbroken for this precious family, as they now begin the journey of living without Sadie Grace with them. We know all too well the feelings they must be experiencing. As soon as Christian called me on Sunday to tell me the news, I went to the mausoleum and had a long talk with Connor. I am certain that he was waiting at Heaven's gates for Princess Sadie Grace, and is now showing her what it means to be a child, as they explore all the glory of Heaven! May God shelter them both, and all of the other Caring Bridge children, as we all await our reunions!

"Blessed are they that mourn, for they shall be comforted."
Matthew 5:4 KJV


Another urgent prayer request that I must make is for Patty, Chance's Mom. Most of you know what an inspiration Chance has been to so many children through Caring Bridge, including Connor. He has always been there, ready to offer up prayers and ask for prayer requests for everyone except himself. Now we must all step up to the plate and be there for them. Patty has been diagnosed with inoperable cancer, and is not doing well. Please, please pray for this family, and visit their page and send them some words of support. I know that Chance and his sister, Angel, are probably so scared right now, as Patty is a single parent. She has devoted EVERYTHING to these children.

Yes, today does mark 9 months since we last held Connor in our arms. It seems impossible that I am still able to breathe, and that my heart is still functioning without him here. I can't possibly imagine any worse pain than the pain of losing your child or grandchild. It is a pain that never ever goes away. It is with you every moment of every day. There is no way to explain the anguish of waking up to each new day and realizing that your child is no longer sleeping in his or her bedroom down the hall.

Following are a couple of poems included in a book entitled: Remembering With Love by Elizabeth Leang, Ph.D. and Sherokee Ilse.

~~~~~~~~~~ ~~~~~~~~~~ ~~~~~~~~~~ ~~~~~~~~~~ ~~~~~~~~~~

We Remember Them--from Gates Of Prayer, Reform Judaism Prayerbook

In the rising of the sun, and in it's going down.....
We remember them.

In the blowing of the wind, and in the chill of winter....
We remember them.

In the opening of buds, and in the warmth of summer....
We remember them.

In the rustling of leaves, and the beauty of Autumn....
We remember them.

In the beginning of the year, and when it ends....
We remember them.

When we are weary and in need of strength....
We remember them.

When we are lost and sick at heart....
We remember them.

When we have joys we yearn to share....
We remember them.

So long as we live, they too shall live,
for they are now a part of us as....

We remember them.

~~~~~~~~~~ ~~~~~~~~~~ ~~~~~~~~~~ ~~~~~~~~~~ ~~~~~~~~~~

I'm So Glad You Came
by: Jane Peterson
In memory of her daughter,
Colleen Kryder Murphy.

I'm so glad you came
For I will always know your light
In my hands;
Always.

And the power of your leaving
Was exquisite.
A kind of profound silence.
I will always be able to recall it
In a moment;
Always.

But I am so glad you came.
So incredibly honored
To have known you at all.
I will always know your light
In my hands,
And in a blink, I will see it;
Always.

~~~~~~~~~~ ~~~~~~~~~~ ~~~~~~~~~~

O.K., to lighten things up a bit, I will share more picture stories. The main photo on Connor's journal page, directly underneath "Our Greatest Joy and Blessing!", was taken in November, 2002, outside The Old Mill Restaurant in Pigeon Forge, Tennessee. Those of you who have been to the Gatlinburg/Pigeon Forge area probably know how wonderful The Old Mill is. Connor loved it, and so did we. I think his smile says it all, as the picture was taken AFTER we had eaten. The picture of Connor on the surfboard was taken at Universal Studios/Islands of Adventure in Orlando, last May, 2004. Some of you probably recognize that very surfboard, as it is a favorite photo-op for tourists. Connor in the General Lee was taken at Cooter's Place in Gatlinburg, in November, 2002. Connor is a HUGE Duke's of Hazzard fan, so that was always our first stop as we drove into Gatlinburg. If Connor was still here, he would be so excited that Cooter has now opened a store in the Music Valley area around the Opryland Hotel, about 20 minutes from where we live. The family photo was taken at Meme Jewel's house in Hendersonville. Christian and Meme, with Caitlyn, Will and Nicole's help, hosted an end-of-treatment party for Connor after his first bout with rhabdo, back in September, 2002. I think it is apparent in all of our faces the joy we felt at having finished treatment, with the hope of a cancer-free future ahead. Don't get me wrong, we weren't ignorant to the chance of a recurrence, we just were elated at having finally gotten a year of hard treatment behind Connor. The Connor and Basko photo was taken at AngelHeart Farm (link below) back in the Spring of 2002, a few months into treatment. Tracy at AngelHeart uses this photo on her brochures, and is currently having a bronze statue made in the likeness of the photo. We have had more comments on that particular picture than any other. I think it conveys so many words about Connor's battle, without a word at all, if that makes sense. The Connor the Fireman photo was taken in February, 2003. That night was a Chamber of Commerce meeting and we were invited by the Goodlettsville Fire Department. That was the night they made Connor an Honorary Goodlettsville Fireman. We had just found out earlier in the day that Connor had relapsed (the first relapse). We are so thankful to the GFD for all they did for Connor, and for our family. Was Connor not the most handsome Fireman EVER in that picture?!? The last photo on the journal page is self-explanatory. Yes, Christmas, 2002, Connor was going on three months being cancer-free, life was just starting to return to some kind of "normal". He was so happy in that picture, it makes me happy to look at that smile.

I will close with that. Please remember our other friends (links in the last journal) in your prayers as well. Linda and Kevin Martin are hosting a fundraiser for the Vanderbilt Ingram Cancer Center tomorrow night, August 2, at Twelve Stones in Goodlettsville. We will be there, and I am hoping to meet some of you there, as well. Kevin really needs our prayers now, as does the entire family.

Have a good week, everyone. My Mom's (Connor's Nana) birthday is Thursday, August 4th. Happy, happy birthday Mom, you ARE the best Mom in the entire world! A happy 1st birthday to Colby! We were able to attend his birthday party over the weekend. His birthday is actually August 4th, as well.

Cherish each moment, savor the sunshine, enjoy the rain, count your blessings, thank God everyday FOR your blessings, say "I Love You" without hesitation, share a smile, help someone in need, be kind to everyone you encounter, be thankful, hug those children and make them KNOW they are loved beyond words, and live each day as if it is your last, make sure you are ready, just in case it is!


********** ********** **********
Connor,

It's Mommy again, I guess I wear your ear out, don't I buddy?? I miss you so very much! I know that you are going to take good care of Sadie Grace until her family gets there. Remember, she is a princess, no 4-wheeling in the go-cart. A ride is fine, just, please, not in the mud, O.K.? Sweetheart, I hope you know how very much I love you. I would have gladly taken your sickness from you in a heartbeat, if I could've. Yet, I know that doesn't concern you anymore, as you are free to do all you want to now, without any hinderances. Thank you for the hard wind for the "Connor" windchimes this afternoon as I was praying, I know you are always with me, my Sunshine Boy! Thanks for always sharing your strength with me, Mommy is nowhere near as strong as you! I love you sweetie-pie, Mommy will see you soon, save my place!

All my love,
Mommy

********** ********** **********

Peace to all, and may God bless us all!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Tuesday, July 26, 2005 10:50 PM CDT

Hello family and friends, thanks for checking in! Please continue to keep Ryan's family in your prayers, as they have had his funeral service, but are now preparing for a Memorial Service/Celebration of Life to be held in Clarksville on August 13th, 2005. We know, all too well, the road they are now travelling, and we KNOW they need prayers.

Someone had written in the guestbook awhile back that they wish they knew the details of the pictures of Connor that I used in his border, so I thought I would share that with you. The picture of Connor in the blue t-shirt was made in front of the house where we lived up until 3 months ago. It was made in June or July of 2004. It was just a care-free day for Connor, riding his bike in the neighborhood, when I stopped him long enough to snap the picture. The second picture is of Connor in his new go-cart, right after he got it. Some of you probably remember, Eddie's workplace, Kellogg's/Keebler, sent us on a 10 day trip to Florida as soon as they found out about Connor's second relapse. We arrived home on Saturday, May 29, 2004. Connor had always asked me if he could have a go-cart, and my usual response was "when you get older". When the guys at Eddie's work asked us, other than the trip, what was the one thing that Connor wanted more than anything?, of course, the first thing would be to NOT BE SICK ANYMORE. But since we knew that was in God's hands, the second thing was a go-cart. When you get the news that your child is now considered terminal, all you want to do is make every day happier than the one before, at all costs. So, we arrived home that evening, went into the house, then lured Connor into the garage, where the shiny new go-cart awaited him. The shock on his face was priceless, it is a glorious moment that I will never forget. Anyway, that smile in that photo was one of the most genuine smiles ever! Another big thank you to Kellogg's for helping make Connor's dreams come true! The third picture of a beautifully bald Connor was taken in the clinic. You can't really tell by the photo, but he was walking around the clinic with his backpack on backwards. He was always trying to make others laugh, and he was always successful. The fourth picture was taken on the deep-sea fishing adventure that we took on May 28, 2004, from Port Canaveral, next to Cocoa Beach. Connor (and us!) had so much fun that day. That is one trip that I am so thankful that we took together as a family. I actually zoomed in on the photo to get the close-up of Connor's smile, but if I had zoomed out, you would've been able to see that Connor was standing next to the Captain of the boat, and the Captain was holding the fish that Connor caught. I love that picture, because of the wonderful memories of that day, and how much fun we had. Connor never did anything half-way. I have learned so much from him!

July 13th was my Grandma "Cass"'s birthday. We all met at Cracker Barrel and had a wonderful meal together along with birthday cake and a homemade Oreo ice cream pie that my cousin, Kyla (Brett's Mommy) made. Yum, yum yum! Happy birthday, Grandma, we all love you very much!

July 16th was Eddie's 20 year high school class reunion. A couple of his friends and their spouses came to our house before hand to visit, then we all proceeded to the reunion together. It was actually at a country club about a 1/2 mile from our house, how convenient! We had a good time, Eddie enjoyed seeing all of his former classmates, and I made some new friends, as well.

As I had added to my last journal, please, please keep Sadie Grace and her family in your prayers. She has struggled since the age of 7 weeks, after having a major seizure. Connor was in the hospital when she was brought in for the first time. She is now home on Hospice care, and I believe she has Kiersten, Connor's wonderful hospice nurse. Thank you for the prayers for them, and I know they certainly appreciate them.

I want to keep the following links in here, so that you can visit the following sites to offer encouragement and prayers:

Kevin Martin--husband of my friend, Linda, and Father to 5 beautiful children. Please pray that this current chemo will work on destroying those cancer cells.

Nikie--Nikie and her Mom, Cindy, and sister, Kayla, are on a 2 week trip at this time. Nikie wanted to go the the Mall of America in Minneapolis, and also to New York City, as she has relatives there. Please pray for a pain-free trip, and a safe return home.

Jason--He continues to struggle with rhabdo, he really needs encouragement, as does his family.

Eric--another of our friends with rhabdo. Please pray for pain control, and a peace which surpasses all understanding for the entire family.

Also, a little girl by the name of Hannah, who goes to our church, has had a scare over the weekend, as she and her family were told that she has cancer in her arm. Hannah is 8 years old. After a biopsy yesterday, they are now thinking that it MAY NOT be cancer after all. They should know something more definite in a day or two. Please keep them in your prayers, as I know all the feelings they went through hearing the "C" word, and those are feelings that no child, or parent, should ever have to feel.

We want to wish our buddy, Gabe, a wonderful time on his trip to DisneyWorld and the Sea Lions! We wish you luck in finding Connor's star in the castle at Give Kids the World! Have a blast, little buddy, you deserve it! Tell Woody, Buzz, and Chip 'N Dale, "Hi" from Connor, they were his favorites!

Thank you all, once again, for being here for us. Thank you to those of you who still sign the guestbook. I know that some of you read faithfully, and can't think of the words to say, that is O.K., too. Just knowing you are here means so much to us. Please keep us in your prayers. The days are getting more difficult as time goes by. There are reminders of Connor everywhere. That is always a good thing, but the pain in our hearts never ceases, as we think of all the things that we will never get to see Connor experience, here on earth. But we KNOW that Connor is experiencing Heaven, in all it's glory, every moment, and the knowledge of that, paired with the fact that we WILL be with him again, keeps us going from day to day. It is so difficult for anyone to truly understand who hasn't been through this, but I assure you, the pain is always there.



~~~In you, O Lord, I have taken refuge; let me never be put to shame; deliver me in your righteousness. Turn your ear to me, come quickly to my rescue; be my rock of refuge, a strong fortress to save me. Since you are my rock and my fortress, for the sake of your name lead and guide me. Free me from the trap that is set for me, for you are my refuge. Into your hands, I commit my spirit; redeem me, O Lord, the God of Truth.

Psalm 31 1-5~~~

**********

Connor,

How can we possibly get through another day without you here with us, sweetheart??? We miss you terribly, and love you with everything we have in us. Yes, you are all around us, that is apparent in so many ways. We can't wait until the day we walk through that gate and see your beaming smile greeting us! That day can't possibly come soon enough! Until then, you just enjoy your perfect, healthy body, and have fun with all of your friends. When we get there, you can fill us in on all we have missed, and then we'll make up for lost time, O.K.? We love you, to infinity and beyond.....!

All our love, now and forever,
Mommy and Daddy

**********


Have a wonderful week, hug and love on those children, then give them another hug for us. Do not take one single moment for granted, as life can certainly change forever in the blink of an eye. Peace to all, and may God bless us all!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Monday, July 11, 2005 6:25 PM CDT

***ADDED 7/23/05***PLEASE PRAY FOR LITTLE SADIE GRACE, AND HER FAMILY. GO TO HER PAGE AND OFFER ENCOURAGEMENT IF YOU CAN. WE TRULY LOVE THIS DEAR FAMILY.

Hello friends and family, thanks for checking in. I want to start by asking for prayers for Ryan's family. Ryan became the newest of the CaringBridge children to enter the Heavenly gates on Sunday afternoon, July 10th, 2005. I know that Connor and Cheyenne and so many others, were there to greet Ryan. Ryan's family is now left here without their child/grandchild/brother/nephew/cousin/friend, etc., and they need our prayers as much as ever. Please visit Ryan's page and offer some encouraging words, if you can. I know they will sincerely appreciate it.

Since my last update, Connor's little cousin, Brett, turned ONE YEAR OLD! His birthday was on June 16th, and his party was the following Saturday. You can look back at last year's journal entries to see a picture of Connor holding Brett when he was just one day old. Connor had just gotten out of the hospital after getting chemo. Anyway, Brett was so precious at his party. He seemed to love it, and was such a good boy. At one point, I pulled him around the room in a new wagon he got, and he was just all smiles for everyone. When his party was over, his Mommy, Kyla (my cousin), brought all of the balloons outside that she had used to decorate and we all released them to Connor. That was so sweet of you, Kyla, thank you so much, you know that meant alot to me!

Eddie's birthday was on June 21st, he turned a little bit older than "1". O.K., you twisted my arm, he turned 38. We went to the Texas Roadhouse for dinner and Beverly and Garvin, along with Connie, met us there. Layna Marie stopped by for a minute to wish him a Happy Birthday. I had brought a cake by earlier, a surprise to Eddie, and after we ate, I snuck back towards the kitchen, where our waitress met me with the cake. She helped me light ALL 38 CANDLES! You should've seen that "blazing" cake. I'm surprised the sprinklers didn't go off. I think Eddie was really surprised. It was a bittersweet day, as Connor wasn't there physically with us, but I know he was showering his Daddy with birthday kisses from Heaven.

We had dinner the following weekend with Connor's kindergarten teacher, Mrs. Crick, and her husband. We met them at Red Lobster, and had a wonderful time. Connor certainly loved Mrs. Crick, and I know she loves him, as well. He was always her "helper" in class. I can remember so vividly walking him to class on that first day of school. I was more upset that day than he was, and never ventured far from the school, until it was time to pick him up again. He came out that day smiling from ear to ear, he had LOVED his first day at school, and had lots to tell Mommy. Those are some of the memories that I cherish, and that no one can take from me. Oh, how I love that child of mine!

Friday, July 1st marked 8 long months since Connor left his earthly home to go to Heaven. It seems unimaginable that I haven't held him, kissed him, heard him laugh, etc. for more than 250 days now. Every day is difficult, the first of the month is especially difficult. The 4th of July was also another tough day. Connor LOVED shooting fireworks. He and Eddie spent a small fortune last year, to make it an extra special night. This year, we just watched the local displays, and did not purchase the first firework. It just wasn't the same, nothing is the same. We did release some red, white and blue balloons to Connor that afternoon. And as Tracy wrote in the guestbook, I can only imagine what the fireworks look like from Heaven!

We went to a couple of baseball games this past weekend to watch our buddies Ryan and Brandon play. They are both on the Goodlettsville All-Star team, and are doing great! Ryan is the son of our friends Keith and Marliss. Brandon is the son of Linda and Kevin. Kevin is starting back on a chemo that he has had some positive results from, please pray for it to knock out all of those cancer cells! Kevin is such a fighter, and he sure does enjoy watching those ball games!

Also, please keep our friends, Nikie and Jason in your prayers, as they continue to fight. Nikie is having increasing pain, and all treatment has stopped. I think Jason is still on an oral chemo at home. These two young adults deserve to be able to LIVE LIFE, not have to constantly deal with the late effects of cancer!

I hope you all have a wonderful week. Please keep the families of the victims of the London bombings in your prayers. Such senseless acts...... Our friend from the UK, HelenH, was actually in London on the day of the bombings. You can read about it on her site. Thank God everyday for the blessings in your life. If you have healthy children, thank God several times a day! Spend quality time with your child/children, if they are here with you. There is nothing else so important that it can't wait. Drop everything and PLAY, PLAY and PLAY! Make sure they know how much they are loved! Thank you for continuing this journey with us. We are thankful for you all. Please keep us in your prayers, along with our families, as we face each new day without the Sunshine of our Life here with us.

**********Connor**********

Sweetheart, Mommy and Daddy miss you so very much! Oh, how we can't WAIT to see you again! Connor, you amaze us with all of the signs that you send to us. I know that Nana has been getting some really obvious signs, as well. THANK YOU, THANK YOU, THANK YOU! I know that you have a new playmate up there named Ryan. Connor, take good care of him, as I know you will. All of us left here miss you so very much, and we look forward to that blessed reunion day! What a day, glorious day, that will be! Get ready for lots and lots of hugs and kisses, 'cause once I get there, I'm never letting my baby go! We love you more than anything in the entire universe, and nothing will ever change that! We'll see you soon, our Sunshine Boy!

All our love,
Mommy and Daddy

**********

Thanks again to all of you for your continued support. We appreciate you more than we could ever tell you! Peace to all, and may God bless us all!

We love you!

~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Sunday, June 12, 2005 7:58 AM CDT

( An update will be forth-coming, I'm trying to experiment with borders right now, that is why it has changed. Thanks for checking! )

UPDATE--MONDAY, JUNE 20TH--PLEASE KEEP RYAN AND HIS FAMILY IN YOUR PRAYERS, AS HE HAD A VERY DIFFICULT DAY ON SUNDAY. THANK YOU!

Hello family and friends, thanks for continuing to check in on us. Alot has been going on since my last update, so I'll start from where I left off last time.

On May 15th, Vanderbilt Children's Hospital had a Memorial/Remembrance Service for the children who have passed away. Eddie and I, along with Nana and Poppy, attended in Connor's Memory. The service itself was extremely difficult to sit through, although quite touching. The room was FULL of those who have lost their children/grandchildren. Connor's Urologist, Dr. Brock, spoke, and he told us later he was speaking directly to us. He was the physician who originally diagnosed Connor, and was with us throughout the entire journey. After the service, we were able to speak with him, along with Dr. Shankar, for quite some time. They both mean so much to us! Connor touched so many people's lives, that is evident to us every day! Alot of his nurses, and other caregivers were there, as well. Afterwards, we were given a flower to plant in the Children's Garden in front of the hospital. Poppy and I each planted one for Connor. We were also given a small pot of the herb, Rosemary, to plant at our homes, in remembrance of our child/grandchild. The name Rosemary is derived from an old latin term for "dew of the sea", a reference to it's pale blue-like flowers and the fact that it is often grown near the sea. It is a symbol of remembrance and friendship. So now, we have rosemary growing in our flower garden, as do Nana and Poppy.

On May 21st, my cousin's daughter, Natasha, graduated from Westmoreland High. Nana and I went together. I also graduated from Westmoreland High, although our school was the "old" school. They have since built new schools, and moved the high school twice. I got to see alot of my family on that side (Poppy's side). Congratulations Tasha, and best wishes for a BRIGHT future!

That night, I went to a wedding. My dear friend, Terre, with whom I worked with for 11 years at the car dealership before Connor's diagnosis, her beautiful daughter, and also dear friend of mine, Ashley, got married. Ashley and Greg make such a wonderful couple, and it was a beautiful outdoor wedding just as the sun was setting. I watched Ashley grow up, and I am so proud of the fine young lady she has grown into. Best wishes to Ashley and Greg for a long, happy Christian life together! Terre, Ashley, and Phyllis, it was so good to see you all, I love you!

I took off work, as did Nana, on May 23rd, as Connor's school was having a special end-of-year assembly. The third graders were all gathered in the auditorium/cafeteria. They were presented various achivement awards, based on grades, attendance, etc. Then, the Principal, Mike Westveer, spoke about Connor. Some of the children there, as well as the parents, still were not aware that Connor had passed away. He announced a new Award that will be given each year until Connor's class graduates High School, and possibly even after that. It will be given each year to a 3rd grader (Connor was a 3rd grader in the 2004/2005 school year), chosen by the teachers, based on the attributes that Connor possessed. The student will be presented with a "Connor J. Hunley Award of Courage" trophy, and their name will be added to a perpetual plaque that will hang in the foyer of Goodlettsville Elementary. I then presented the school with a plaque that Eddie and I had made with Connor's image in bronze, thanking the school for all they did for Connor, and for all they meant to him, and to us. Thank you, Nana, for standing up there with me for the presentation. The plaques will hang permanently in the school that Connor loved so much. Thank you, Principal Westveer, and the entire staff and students, for honoring Connor in this way! We love you all! It was a very emotional morning for everyone involved.

On Saturday, May 28th, Eddie walked his Mom, Beverly, down the aisle as she married Garvin, whom she met a couple of months before Connor passed away. I've written before that Joe, Eddie's Dad, passed away two weeks after having heart surgery in February, 2001. Connor was diagnosed later that year on October 12, 2001. The wedding was beautiful. I kept the guest registry, along with Victoria and Andie, and Connor's photo's and memory candle were right there on the table with us. Garvin has a great family, including two wonderful daughters, Layna Marie and Connie, and their spouses, Glenn and Eric. Layna Marie and Glenn have two children, Garrett (age 5) and Colby (age 10 months), both are PRECIOUS! We have really enjoyed getting to know them and their families, and they have welcomed us with open arms. Beverly and Garvin went on a cruise for their honeymoon and had a great time.

Last Wednesday, Linda Martin, Kevin's wonderful wife, invited Eddie and me to the taping of 'The 100 Greatest Country Duets', in Nashville. She and her friend from Denver, Holly, had been given tickets by Linda's friend, Kathy, and she had two extra tickets. THANK YOU LINDA for thinking of us. We had a wonderful time! And it was a pleasure to meet you, Holly, as well. Please visit Kevin's site, and leave them some encouraging words in his guestbook. He is having a very difficult time right now, and Linda is trying to hold everything together for him and for their 5 children. Please keep them, especially Kevin, in your constant prayers.

Eddie and I had another yard sale yesterday, thrown together at the last minute. We had some things left over from the move that we just were not going to need, and we needed to get them out of the garage. It did rain all day, but we did get rid of alot of stuff. Our very last customer was a lady named Betty, with two of her friends. We got to talking to them, and it turns out that her 6 year old grandson, Wil, has been going through treatment for leukemia for three years now. She was so sweet, and we really enjoyed meeting and talking with her. Wil does not have a website, but he DOES need our prayers. I know that his family would appreciate it, and we have the best prayer warriors out there!

June 1st marked 7 months without our baby here with us. Thank you to those of you who sign on the 1st of each month to let us know you remembered, it means alot to us. Please keep us, as well as our family, in your prayers, as well. Does it get "easier" as time goes by? NO, we just remind ourselves that each day is bringing us one day closer to being with Connor again. It could never get "easier" to be without your child/grandchild/brother/sister/Mom/Dad/Spouse, etc. Only those who have had to walk this road can truly understand that. So, you may see us with a smile, but nothing has been able to put our hearts back together, a huge piece is missing, the piece right in the middle that holds it all together. The pain NEVER ceases. Our faith in God carries us through each day, without that, we WOULD NOT have the will to go on without Connor, I am 100 percent certain of that. Our network of family and friends help us tremendously, as well. That includes each of you reading this. Please, if you see us or talk to us, don't be afraid to say Connor's name to us, it is music to our ears. He will forever be a part of our lives, and we WILL be with him again. Please say an extra prayer for Nana and Poppy. I can see the pain in their faces every time I see them. Connor is their only grandchild, and he and Poppy were best buddies.

Please keep all of the families of children who have gone on to heaven in your prayers. Say a special prayer for Ian's family, as the first anniversary of his passing is coming up on June 20th. You may recall that he passed away on Father's Day last year. Brian and Kellie and all of their family will need extra good thoughts and prayers during that time. Also, pray really hard for little Ryan, from reading his website this morning, he is now at home on hospice care. Pray for him, and for his entire family. Continue your prayers for all those still fighting the battle, as well as those in remission. We got to spend the day with Gabe, Lu and Rob on Memorial Day. They came over, as did Keith, Marliss and Ashton, and Nana and Poppy. Gabe is doing so well, we pray for a long, happy, healthy life for Connor's buddy. We love you all and appreciate your continued support. Please help us keep Connor's Memory alive, that is of utmost importance to us! A special thank you to HelenH for the note to Connor that you sent, and to Kathy M. for my beautiful ladybug bracelet!

**********

Connor,

Mommy and Daddy love you more than anything in the whole entire universe! We miss you terribly, but we are so happy that you are not having to hurt or suffer anymore! I wonder about all the adventures you are having, and I can hardly wait to experience all the beauty and wonder of Heaven with you, my Angel-cake! Thank you for the storms yesterday, you know how much Mommy loves that! Please give Kel a break from all the rain she has been getting! When I see the white stripes in the sky now, instead of airplanes, I imagine that they are made by you, Cheyenne, Ian, and all of your buddies up there as you race around on your go-carts! Thank you for all the reminders that you are around us, it keeps us going. We will see you soon, we love you more than anything, and will forever!

All our love,
Mommy and Daddy, Zoe and Doris, too!

**********


Thanks to all of you for being here and checking on us. We appreciate you...... Have a wonderful week! Hug your children tight, then hug them even tighter! They are your own blessing from God, never take a moment for granted!

Love and hugs,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper"!






Wednesday, May 11, 2005 4:03 AM CDT

Hello friends and family, thanks for checking in. Wow, a month since my last update, we have been busy, busy, busy! I don't even know where to begin. But, I think I'll start with the Relay For Life in Portland. It was a success, although the totals were down slightly from last year. That Friday, the weather turned VERY cold, windy, and rainy, so thankfully, the Relay was moved inside. It didn't have the same "feel" as being outside, but under the circumstances, I don't think anyone could have stood the weather for very long that night. Our booth was the "Racing For A Cure" booth, with the photo of our smiling Connor in his new go-cart for the first time on everyone's shirts. Our team alone raised $15,335 for the American Cancer Society! We were awarded the Top Team Award (third straight year!!), the Spirit Award, Best Theme, and 2nd place in Food. WAY TO GO ALBANY!! We had so many friends and family show up that night for Connor! Thank you to Lu, Rob and Gabe for participating with us. Gabe is doing so well, and is 18 months off treatment for rhabdo! Also, thank you to Becky, Skylar and Paige for coming, and staying late into the evening, and to Lori, Mike and precious Hayden for making the trip for Connor. Hayden is the spitting image of Connor at the age of 3! And, thanks to all of my family for being there! We were able to meet Matt M. from Portland, who had his bone marrow transplant recently. His doctors gave him a pass to attend the Relay. It was sooo good to finally meet them, we wish Matt nothing but great things! Thanks again to everyone who purchased luminaries, for Connor, or for another loved one. Connor had 22 LUMINARIES!!! All of the luminaries lined the hallways of the school, and at the candle lighting ceremony, and reading of ALL the names, we all walked silently down the hallways past the luminaries. There were a lot of tough moments during the evening and night, but God saw us through, and we know that Connor was with us. Connor's buddies Jack and Gabe cut the ribbon to start the event, as they are both cancer survivors.Gabe is 3, and Jack is 5, so young to have already been through so much...... They, along with Connor, comprised the "Three Bald Buddies", as they were all together in treatment at one time. We love them and their families so much, and wish them CLEAR SCANS, and LONG, HAPPY, HEALTHY LIVES! Connor's buddy, Austin (his wonderful Mom works with Nana), presented us with a beautiful gift. His 4-H project before Christmas was telling about his buddy, Connor, and what Connor had been through, AND about their friendship. He won 1st PLACE with his project, and presented the finished product, ALONG WITH HIS BLUE RIBBON, to us. I could barely speak as I read what he had written. Austin, you have given us a gift that we will cherish for a lifetime! What a mature young man you are! I hope I don't embarrass Austin, but, in Connor's memory, I heard, he also entered the "Womanless Beauty Pageant", dressed as a busty, blonde Hooter's girl, along to the song, "One Hot Mama" by Trace Adkins. It was absolutely hilarious! The audience was roaring at his excellent performance! Way to go, Austin! I think one of the hardest parts of the entire night was when I saw last year's large handprint poster. Each year, all of the survivors add their handprint to a poster, and it is displayed the following year. There, in the corner, was Connor's little handprint, with his name in his handwriting right beside it. What a difference a year makes..... I know there are probably things I am leaving out about that night, but, all in all, the night was a success for the American Cancer Society, raising over $90,000 total between all the teams. The following photo was taken that night in front of our team's booth. It is Eddie, me holding the poster of Connor, Lu and little Gabe:





We were invited by Kevin Carter to attend his annual "Waiting For Wishes" event held at The Palm restaurant. He and his wonderful wife, Shima, hold the event each year. This year, they raised over $125,000 for the Make-A-Wish Foundation! What a special night! We were able to present a plaque to Kevin, in Connor's memory, for all Kevin has done for him. It was a very bittersweet night. Kevin will now be playing for the Miami Dolphins. The Titans and the city of Nashville are losing a treasure in Kevin Carter, that is for certain. We wish him all the best! You can click on the link to his foundation at the bottom of this page for photos from that night. Thank you, Kevin and Shima, for all you have done for our family!

Yes, we are in our new home. Our new address, for those of you who have asked, is: 140 Vintage Circle, Hendersonville, TN 37075. We LOVE IT! Connor has been showing his presence since we moved in, there is no doubt about that! We know he is with us, every second of every day, that is what keeps us going. That, along with the promise that one sweet day, we will be reunited with him! As far as the move, there is still lots of unpacking to do, but we are getting settled in. A HUGE THANK YOU TO NANA AND POPPY FOR ALL YOUR HELP WITH THE MOVE, we couldn't have done it without you! Bless their hearts, they have had to help us move 3 different times in the past 5 years (without a complaint, I might add!). Trust me, we will be here for a while! Zoe and Doris love their new home as well. Zoe has done alot of exploring. One day we couldn't find her, and searched and searched. I finally opened the door to the linen closet. She had snuck in there when I opened the door earlier in the day, and when I found her, she was curled up on some towels, as snug and content as could be. One night last week, I fell asleep on the sofa holding Doris. When I awoke, he was nowhere to be seen. All I could think was that Zoe might have had a midnight snack. I found Zoe lying in the floor in the office, which she never does, so I knew something was up. I got to moving boxes around, and there sat little Doris, on his hind legs, eyes wide. I rescued him and put him back into the safety of his "hamster condo" that Connor bought for him. Poor little thing, but thankfully, his "sister" had not harmed him. As I said before, our new subdivision is adjacent to the cemetary and mausoleum, the mausoleum being Connor's resting place. I know, for me, it is comforting to be this close to his resting place. I will reiterate, I know Connor is not there in spirit, but it is the last place I saw his earthly body, and it is comforting for me to go there. For some, it brings no comfort to visit the graves of their loved ones, and that is O.K. For each and every individual, they have to find the things that bring THEM comfort, and for me, this is one of those things. I love to decorate and just sit and remember, as I look at all of his pictures. Yes, some days, I sit there and have a good cry, but that is therapy, as well.

I dreaded Mother's Day this year, with everything I had in me. THANK YOU to all of you who were thinking of me, and for all of you who left messages or sent cards. You are all so wonderful to us! A big thank you to Abby, Kelli, Christian and Marsha for the gifts you brought me, you are all so thoughtful! And, thank you to everyone for the phone calls, and a special thank you to sweet Paige for the message you left for me, you made my night! We are truly blessed with the most caring and compassionate network of friends. Lu, thanks for your ear that you lend to me sooo often, and for all of the things you do to honor Connor! Lu recently had a Wine-tasting event, it was on the evening of our move. I had to miss it, unfortunately, but she had me write out a few thoughts on Connor, which were read at the event. She is always doing something to raise awareness of the plight of our children, against the childhood cancer monster. Thank you, Lu, you are appreciated and admired so much for your efforts! And thank you for making us a part of your family! O.K., I got a little side-tracked, but back to Mother's Day. I wasn't able to attend church, selfish of me, I know, but I just didn't think I could sit through a sermon on Mom's, without bawling my eyes out. So, I visited the mausoleum when it opened, and asked my baby to please help me make it through the day. I then headed to Nana's, Eddie went to visit with his Mom and family. We just decided to do things that way this year, because I really didn't want to be around alot of people. The day passed like all the others, none have been easy without Connor here, but we made it through. Another holiday, another day without our precious child here with us. A belated Happy Mother's Day to all you Mothers out there! Those with your children here, those whose children now reside in Heaven, and thoughts and prayers to those of you who no longer have your Moms here with you. A note to Nana: Thank you for being the best Mom ever! I love and appreciate you so much, and would not have been able to make it through all of this without your love and guidance! I hope you know how loved you are, and I KNOW you know how much Connor loves you. It is in his eyes and his smile in every memory and picture of the two of you. Happy Mother's Day, also to Grandmama, Grandma "Cass", Granny Akins, Nanny Graves, Nannie Glaus, and Memaw Hunley! A big help at Nana's on Sunday was getting to see Brett. Thank you, Kyla and Jeremy, for sharing him with us on Mother's Day! Brett will be 1 year old next month! You can look back in the journal history from last year in June to see Connor holding him shortly after he was born. He is so precious, and just the happiest little boy! He is taking lots of steps on his own now, and growing so fast!

Please keep Jason in your constant prayers, as well as Kevin, and Nikie. They are all having increasing difficulties, and need our fervent prayers. I was happy to read that Nikie recently got to attend her prom, and what a beauty she was. Check out her page for lots of great photos from that night. We know, all too well, how difficult this journey is, so the happy moments mean so much. Again, please keep them in your thoughts and prayers, along with their entire families. Cancer not only affects the individual involved, it is like an octopus with tentacles that stretch out to each and every loved one, affecting them as well. Have I told you lately that I hate cancer?!?!?!

Please forgive me if I have left anything pertinent out of this update, it is late and I am typing through sleepy eyes. I will add things if they come to me, at a later time, preferably during the daytime. Thank you to all of you who continue to support us. If you are reading this, you are certainly one of those people! We love and appreciate you all! Please keep us in your prayers, as well as all of the families of children whose lives here on earth were cut short for any reason. Also, continue to pray for all of those still fighting the fight, and for those in remission, that they never suffer a relapse. The Hendersonville and Goodlettsville Relays are both this Friday night, I think. We hope to be able to stop by both at some point. Have a great week, everyone. Count your blessings, and thank God each day for them! We are all blessed, no matter what the circumstances may be at the moment. I thank God every day for my Salvation, and hope of eternal life. It is a free gift to all, all we have to do is accept it, isn't that wonderful?!? With it, I know I will be with my baby for eternity, what a day, wonderful day, that will be! Peace to all, and may God bless us all!

**********Connor**********

Mommy and Daddy miss you so much, every moment of every day! We love you tons, more than the entire universe, to infinity and beyond! Thank you for all of the signs you have been sending, and thank you for opening my eyes to them! We long for the day when we have our grand reunion! Until that blessed day, you continue to have the most wonderful days with all of your friends and family who are there with you. Save our place, we'll be there soon! Thank you for making Mommy the happiest Mommy in the world! I am so blessed to have you as my son, and thank God every day for letting me be your Mommy, FOREVER YOUR MOMMY. Thanks for helping to protect Doris from that "mean 'ole puddy tat", Zoe! No, I'm kidding, you know that, there is nothing mean about Zoe. We love you so very much, Connor, nothing can ever separate the bond that we have, not time nor distance. See you soon, sweetheart!

All our love,
Mommy and Daddy


********** **********

We love you all!
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Monday, April 11, 2005 7:38 AM CDT

Hello family and friends, thanks for checking in. It has been awhile since my last update, and for that, I apologize. I sincerely appreciate all of the continued postings in the guestbook, even with no recent update. THANK YOU!!!

Easter morning, we, along with Nana and Poppy, attended the Sunrise Service at the Funeral Home. It was a rainy morning, so it had to be indoors. Thank you, Nana and Poppy, for going with us! Eddie and I than proceeded to early service at our church, then onto Cracker Barrel for breakfast. We decided to forego our "normal" Easter get-togethers this year. Another holiday without Connor, another day without Connor... I thank God everyday for Christ's life, death, and resurrection, so that we may all have the hope of eternal life, that is what Easter is all about. Of course, traditions such as easter egg hunts, Easter Bunny visits during the night, coloring eggs, all of those things were absent this year without our Sunshine Boy here with us. I want to thank Paige for the sweet bunny she left at the mausoleum. It was holding two connected hearts between it's hands, and she had written a "C" on one, and a "P" on the other. Thank you, Paigie, you are so sweet, and I know Connor was smiling from ear to ear! Thanks, also, to Linda and Karissa for "having lunch with Connor" at the mausoleum. All of the things that people do let us know that Connor's memory is very much ALIVE!

The first Saturday that we attempted the yard sale, the weather was horrible. It rained and the wind was unbelievable. So, we had it again this past Saturday. I am proud to say that we raised $325.00 for the American Cancer Society, and for our Relay team. Thank you to all who came! Thank you, also, to Helenmary, Lu, and Kelli for your donated items for the sale, and to Martha and Kelli for the tables and racks that you let us borrow. We got to meet Lori P. and her son Hayden. Lori is a faithful guestbook signer. Hayden is a little cutie-pie, with his blonde hair that remind me so much of Connor at that age. He also has alot of the same personality traits as Connor. I think he enjoyed seeing Doris, Connor's hamster. Zoe hid out, as she does nearly everytime someone comes in for the first time. Thank you, Lori, for your kind donation to the Relay! Thank you, also, to Connie and Bob for your donation, and to HelenH, AND to Marliss and Keith. AND, last but certainly not least, thanks to those of you who have purchased luminaries for the Relay. I can hardly wait until that night, when the pathway is lined with all of the lit luminaries in honor or memory of someone who has battled cancer. It is always alarming to see how many there are, but it is beautiful to see them all being honored. The Relay is coming up, it will be on Friday night, April 22-23, from 7:00 pm til 7:00 am Saturday morning. Eddie and I have volunteered to be there all night. There will be a special Remembrace ceremony at 9:00 pm, reading all the names from the luminaries, and giving "Survivor" ribbons to the Survivors in attendance. Anyone who would like to attend, just email me, and I will get you all the info.

Eddie and I have bought a house, and we are scheduled to close on April 29th. The house we are in, we have been renting for almost two years. This house was a God-send at the time we moved into it. Connor absolutely LOVED the neighborhood, and made so many friends here. But, we obviously can't stay in a rental situation forever. We KNOW that Connor will be with us wherever we are. We looked at dozens of houses until we found "THE ONE". It is in a brand new neighborhood, and "our" house is still not completely finished, although it is getting close. The neighborhood is located to the side of, and behind the cemetary/funeral home/mausoleum where Connor was laid to rest. We can see the mausoleum from the bonus room window. We looked at houses all over this area, but we both fell in love with this one, and, of course, the location is an added bonus. This house that we are currently in holds lots of memories, but we will carry those with us to our new home. We have told Connor's friends where we are moving to, and we will keep in touch with them.

I really miss having the links to other children on the web page. Hopefully, in the near future, CaringBridge will devise a good plan on re-adding them. I'm sorry that we had to remove them. Please keep Nikie G., Jason A., Matt M., and all of the other children in your prayers. Also, Cheyenne's family, Tyler's family, Ian's family, Justin's family, and all of the families left here to go on without their child. The pain never decreases. This weekend was an especially difficult, emotional one for me. Every day is difficult, staying busy helps some. But, you never know when something will happen, or you will see a reminder, and it will HIT YOU LIKE A TON OF BRICKS. The thought of NEVER seeing your child again, HERE ON EARTH, is a most overwhelming thought. I miss Connor more with each new day. I am so thankful for the bond that we have, that connects us even still. But I miss his kisses, his smell, his laughter, his little hand in mine, his mischievious ways, watching him play with Zoe and Doris, having him riding in the car with me, EVERYTHING about my baby, I miss terribly! I anxiously await the day when we will be together again! As Cheyenne's Dad, Roy, put it, all fear of death subsides when you lose a child, and you long for your reunion. Yet, we all know that only God can decide when it is time, so until then, I will try to fulfill my purpose here on earth, and live for Christ.

Thank you all for continuing this journey with us. May you all have a wonderful week. Cherish all of your "special" moments with your family. Shower your children with love, praise and affection. Make certain that they KNOW how special they are, and how LOVED they are. Never take a single moment for granted, things can often change in the blink of an eye. Know that we love you all and appreciate you. Spring is in the air, stop to enjoy the flowering trees, and the birds singing. I saw a butterfly yesterday, and thought instantly of Connor. Take care, peace to all, and may God bless us all!

***

Connor,

Hi sweetheart! Mommy and Daddy miss you so very much! I wonder what all you have been doing there in Paradise?? Save our place, angel-cake, we can't wait to see all of your favorite places! Thank you for showing us that you are around us. A special thanks for "showing" Nana that you are with her as well, that was a wonderful gift to her, Connor. We love you more that the whole universe, and we'll see you soon, O.K.? Until then, have lots and lots of fun with all of your friends!

All our love, now and forever!
Mommy and Daddy

***


We love you all,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Friday, March 25, 2005 7:42 AM CST

ADDED FRIDAY, APRIL 1 - We will be having the garage sale tomorrow, April 2, at our house. The address is listed below. If you live locally, and can come, please stop by. We hope to start around 7:00 am, providing the rain is OUT OF HERE! Thanks!

Hello friends and family, thanks for checking in.

I want to address the "link" issue first. CaringBridge has required everyone to remove all links to other CaringBridge pages, from our own pages. Apparently, there has been some problems with people not getting permission to add links, etc., so we ALL have to comply and remove the links. Hopefully, this will be temporary, and CaringBridge will devise a system that works well, and pleases everyone. I'm sorry that I had to remove the link list, but they would have removed it for me, and I did not want to risk losing the page altogether. I am so thankful for CaringBridge, and I do realize that they have to protect the children and their privacy. I have saved the list in Wordpad, so if you need a particular link, just email me and I will send it to you.

I was able to attend Tyler's Celebration of Life service two weeks ago. It was a BEAUTIFUL service! Tyler's Dad, Pat, did an outstanding job of speaking and sharing thoughts of Tyler. I know that Tyler has now joined Connor, Cheyenne, and all of the other children GONE TOO SOON, and there is no telling what kind of adventures they are having.

The Relay for Life is quickly approaching, it will be held on April 22/23 in Portland. If you are thinking of ordering something from the "CONNOR STORE", please get those orders in soon! We were to have our Yard Sale tomorrow, but the weatherman is calling for rain, so we have decided to put it off for another week. Hopefully, next Saturday, the weather will cooperate. Also, there will be a special luminaria ceremony at the Relay, where candles burn in honor or memory of those who have battled cancer. If you are interested in purchasing a luminaria, they are $5 each, with all of the money going to the American Cancer Society. Email me, if you would like to purchase one, and I will email you the form with instructions.

As Easter Sunday is almost here, the grief of not having Connor here is overwhelming. Yet, I rejoice in the fact that he will be spending Easter with Jesus. I have written a short poem for Connor:


^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^

My Easter Wish For You, Connor, My Precious Son


I wish for you, Connor Jordan Hunley......
Fields of beautiful flowers,
Streams of the bluest of blue waters,
Butterflies and ladybugs,
The purest of JOY,
Boundless energy,
Easter eggs and jelly beans,
Peeps and malted robin eggs,
Bunnies, bunnies and more bunnies,
Endless hugs and kisses,
An Easter sunrise that takes one's breath away,
For you to feel the deepest of love
That I have for you,
This Easter,
And for ETERNITY,
I can't wait until the moment
When I can see your face again,
Save my place, sweetheart,
Mommy will be there soon,
When God decides it is time.
Happy Easter, my SUNSHINE BOY,
I pray you feel the love and hugs
that I send to you,
Every moment
Of every day.

Missing you.......
All my love,
Mommy, Easter--2005
(AKA - Rhonda Hunley)

^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^


I included the following in my Easter entry from 2004, I felt like I should include it again this year:


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Matthew 28:1-10 NIV
After the Sabbath, at dawn on the first day of the week, Mary Magadalene and the other Mary went to look at the tomb. There was a violent earthquake, for an angel of the Lord came down from Heaven, and, going to the tomb, rolled back the stone and sat on it. His appearance was like lightning, and his clothes were white as snow. The guards were so afraid of him that they shook and became like dead men. The angel said to the women, "Do not be afraid, for I know that you are looking for Jesus, who was crucified. He is not here: He has risen, just as He said. Come and see the place where He lay. Then go quickly and tell His disciples: 'He has risen from the dead and is going ahead of you into Galilee. There you will see Him.' Now I have told you."

So the women hurried away from the tomb, afraid yet filled with joy, and ran to tell the disciples. Suddenly Jesus met them. "Greetings," He said. They came to Him, clasped His feet and worshiped Him. Then Jesus said to them, "Do not be afraid. Go and tell my brothers to go to Galilee; there they will see Me."

Matthew 28:16-20 NIV
Then the eleven disciples went to Galilee, to the mountain where Jesus had told them to go. When they saw Him, they worshipped Him; but some doubted. Then Jesus came to them and said, "All authority on Heaven and on earth has been given to me. Therefore, go and make disciples of all nations, baptizing them in the name of the Father and of the Son and of the Holy Spirit, and teaching them to obey everything I have commanded you. And sure I am with you always, to the very end of the age."

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I am so thankful for the sacrifice that Jesus made for us all. Because of His suffering on the cross, His death, and His resurrection, we ALL can have the HOPE of eternal life! I KNOW that I will be with my child again. It is all up to us, as individuals, to accept Christ as our Lord and Saviour, and to be baptized in His name. We have the ability to either accept Him, or deny Him. I can only speak for myself, but knowing that there IS a Heaven and a Hell, and knowing that my child is waiting for me in Heaven, certainly helps me in my daily walk. Without the promise of eternal life, what reason would I have to go on?? Noone knows what tomorrow holds, so why put off another day, doing what you know you need to do. Noone is perfect. I know I'm certainly not. I have my faults, I have my sins, but I know that, as a Christian, God forgives me of my transgressions. So each day, I will strive to do better, and to live the life that I know God would want me to live. I'm not trying to preach a sermon, it is just that time is of the essence, do not delay what you can do today. We are all here for a purpose. To be honest with you all, I have prayed EVERY DAY since Connor left this world, for God to take me, as well. It has not happened yet, so I know that He still has a purpose for me. So if, through the trial we have faced, one person's life can be changed for the better, perhaps we are fulfilling our purpose.

I hope you all have a wonderful Easter. STOP AND REFLECT ON THE REAL MEANING OF EASTER SUNDAY. Spend time with those you love. We will be attending a Sunrise Service at the Mausoleum/Cemetary where Connor was laid to rest, at 6:00 am on Sunday morning. I pray that God sends us a beautiful morning for the service. Enjoy your own services/celebrations. Please keep us in your prayers, as well as all of those spending their first Easter without their precious child, Mother, Father, sibling, etc., with them. We appreciate you all, peace to all and may God bless us all!

******

Connor,

Happy Easter, sweetheart! Mommy and Daddy miss you more and more each day. Thank you for sending us some of your strength at the times when we need it the most. We can't wait to see you again. We send you ALL OF OUR LOVE AND KISSES! We have been kitty-sitting and frog-sitting for Aunt Tammy, Uncle Shelton, Ragan and Victoria this week. Zoe has had a BIG adjustment to make with their kitty, Chloe, joining her in HER abode. I'm sure you have been enjoying watching their antics! You have so many Easter surprises at the mausoleum. Paige left you two special bears yesterday, she misses her friend, Connor, so much. You also have things from Nana and Poppy, Sherry, Grandma "Cass", Jon Tyler and Mommy and Daddy. We think about you every minute of every day. We'll see you soon, sugar-plum.

All our love, now and forever,
Mommy and Daddy

******


We love and appreciate you all,
Have a blessed Easter,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Friday, March 11, 2005 6:49 AM CST

Hello friends and family, thanks for checking in!

We are heartbroken for Tyler's family. He finished his earthly duties and went to Heaven on March 7, 2005, after battling cancer for over two years. Visitation started last night, and will be today, Friday, March 11, at Madison Funeral Home from 2-5 pm and 6-8 pm. The funeral will be tomorrow, Saturday, March 12, at Grace Baptist Church at 11:00 am, with visitation there at the church from 9-11 am. Please keep this family in your prayers. You can read Tyler's obituary here. You will have to scroll down to Patrick Tyler Doughtie. You may recall that Grace Baptist Church is where I worked during Connor's first period of remission back in late 2002/early 2003. I know that the wonderful church family there will be taking the best care of the Doughtie family.

I know that Connor was there to greet Tyler at Heaven's gate. There is no doubt in my mind about that. On March 7, the very day Tyler passed away, I received a Personal Creations catalog in the mail. I have ordered lots of personalized things from them since Connor passed away. Anyway, on page 22 of the catalog, there was an ad for personalized children's shirts. They showed examples, such as Cousins, Brothers, and Best Buddies. The "Best Buddies" shirt had three little boys on it. Below them were their names: TYLER, CONNOR, EDDIE. I have made a copy of the page, and will be giving it to Tyler's Dad. I was in disbelief when I saw it, and the fact that it arrived on the very day Tyler passed away was NO coincidence.

THANK YOU TONS to those of you who have been able to order from Connor's store. So far, we have raised $97.00 for the Relay For Life through the profits from the store. We have a Relay meeting Monday night, and I will be sharing this info with our Relay team, although they may read it here first! The "Let Kids Be Kids" bumper stickers are now available at the store, for those of you who are interested. Also, in the next couple of weeks, we will be having a yard sale to raise funds for the Relay. I'll give more info before, for those of you who live locally, and might like to come.

My new job is going great! Kelli and I get along beautifully. So far, we have mostly been working out of her home office. She is teaching me alot about the Real Estate business. Who knows, maybe someday I will be selling homes. But for now, this job is definitely a God-send, and I am so thankful for it. I still visit the mausoleum each day, it is about five minutes from Kelli's house, so I go when I get off work. Connor's spot is all decorated for Easter. Thank you, Nana, Grandma and Sherry, for the Easter trees and bunny.

Thank you all for your on-going prayers for me and Eddie, and our extended families. I guess we are doing O.K., but we miss Connor more and more each day. You never know what is going to trigger a flood of grief emotions. The other day, it was stopping for a school bus to let children off. Yesterday, it was the music from the ice cream truck in our neighborhood. Connor would always come running in at the first sound of the truck, grab some money, and go out and wait patiently for him to get to our house. Many times, he would buy ice cream for himself, and for his friends. So many reminders each day of our lives now without our little boy here with us. It is the worst possible pain. We anxiously await the day when we will be reunited with Connor!


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This was always one of Connor's favorites for me to read to him, he loved to hear of the "Armor of God":

Finally, be strong in the Lord and in His mighty power. Put on the full armor of God so that you can take your stand against the devil's schemes. For our struggle is not against flesh and blood, but against the rulers, against the authorities, against the powers of this dark world and against the spiritual forces of evil in the heavenly realms. Therefore, put on the full armor of God, so that when the day of evil comes, you may be able to stand your ground, and after you have done everything, to stand. Stand firm then, with the belt of truth buckled around your waist, with the breastplate of righteousness in place, and with your feet fitted with the readiness that comes from the gospel of peace. In addition to all this, take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. Take the helmet of salvation and the sword of the Spirit, which is the word of God. And pray in the Spirit on all occasions with all kinds of prayers and requests. With this in mind, be alert and always keep on praying for all the saints. Pray also for me, that whenever I open my mouth, words may be given me so that I will fearlessly make known the mystery of the Gospel for which I am an ambassador in chains. Pray that I may declare it fearlessly, as I should.

Ephesians 6:10-20 (from Paul's letter from prison)

^^^^^^^^^^


I hope everyone has a wonderful weekend, and week ahead. Cherish your family time. Hug your children tight, and tell them what a true BLESSING they are to you. Thank you all for keeping Connor's memory alive, it means so much to us. Please keep us in your prayers, as well as all of the other families HAVING to adjust to life without their children here with them. Also, please pray for the children fighting the fight now, as well as those in remission. Our wonderful friend, Gabe, had CLEAR SCANS THIS WEEK! WAY TO GO, GABE, WE LOVE YOU, LITTLE BUDDY! We are so thankful for all of you. Thank you for continuing to visit Connor's site, and for the encouragement and prayers that you offer us. Peace to all, and may God bless us all!



**********CONNOR**********

We love you more than anything in the whole wide world, sweetheart, and we can't wait to see you again! Thank you for all the reminders each day that you are "with" us. Thank you, especially, for my reminder the other morning, YES, Mommy heard it! We are now, and forever will be, SO PROUD OF YOU! We are so lucky to be your Mommy and Daddy! Be sure and show Tyler around, and let him know that his family is thinking of him. You continue to be an inspiration to so many, Connor. We love you so very much, infinity and beyond!

All our love for eternity,
Mommy and Daddy

**********


In closing, please also pray for Nicole, the sister of my dear, dear friend, Christian. She has been in intensive care this week, with serious problems stemming from a possible bacterial infection. Christian has been an Angel-On-Earth for us throughout Connor's entire illness and passing, and continues to be. They are deeply concerned about Nicole. So I ask you all to remember their family in your prayers. THANK YOU!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper" EVER!


Sunday, February 27, 2005 10:17 PM CST

ADDED FRIDAY MORNING, MARCH 4 - I am saddened to learn this morning that Melody passed away last night at 11:55 pm, surrounded by her loving and adoring family. Please pray for them as they face the most difficult days of their lives.

Also, please pray for our friends, Sadie Grace, and Tyler, as they are both having a very difficult time right now. THANK YOU!

Hello family and friends, thanks for checking in. Whew, I know it has been over two weeks since my last update, and I'm SORRY that it has taken so long.

First of all, thank you to everyone who has been helping out the Relay by ordering products from the "Connor Store". I am fully aware that not everyone is able to do this, and I certainly don't expect you to if you aren't able. You ALL help us JUST BY BEING HERE FOR US. That helps us more than anything else.

Also, thank you for all of the prayers, cards, emails, letters, and guestbook entries. Not only for us, but for the friends that I mention on Connor's page. Tyler is continuing to have a very difficult time at home on hospice. He is having seizures daily, from what I have read. He did have a wonderful surprise last night, as he received a a call from LANCE ARMSTRONG himself. I think Sheryl Crowe even talked to him. What a great thing for them to do, to bring some happiness to this little guy's life! Please pray for peaceful, pain-free days for him.

Also, I don't think they have put it on his page, but from what I've heard through Nana, Matt's transplant will NOW be on March 7th or 8th. It was originally scheduled for February 28. Please keep him in your prayers, for a successful transplant.

Valentine's Day was the worst day that I have had since Connor's funeral day. For me, the day seemed even worse than Thanksgiving and Christmas, although they were torturous as well. I missed my little Valentine SOOOOOO much that day, and all of his little love notes and kisses. I know that some of you reading this have travelled this road, so you completely understand when I say that the grief sometimes sneaks up on you, and becomes as unbearable AGAIN as it was in the very beginning. For the rest of my life here on this earth, there will not be one second that Connor, my baby boy, will be physically with me. That thought completely overwhelms and consumes me. My sweet, smiling, caring, generous, loving, wonderful sunshine boy will never run up and throw his arms around my neck and tell me how much he loves me, ever again, here on earth. Yes, he is ALWAYS with me in spirit, and in my heart, of that I am certain. But I long for his physical presence so intensely......Thank you, Jordan and Brian, for coming over and bringing Valentine's for us, and for hanging out with me and Eddie. We all rode Connor's go-cart and bicycles down to the park. Then we all released Valentine's balloons to him. We watched the balloons until we couldn't see them anymore, so we are sure they made it to Connor.

Thank you for all of the advice on the job search. I FOUND a job. I started last week. It is part time, only 20 hours a week. I hope to increase those hours soon, if not there, maybe with another part-time job in addition to this one. Anyway, I am the personal assistant for a real estate agent here in Hendersonville named Kelli Smith. She interviewed me on Feb. 15th. She called me on the 17th and told me that we actually go to church together, but had never met. She found out through our preacher, who told her, "That's Connor's Mom!" So, it was definitely Connor at work, and a "God thing", all rolled up into one! She and I get along so well together. I am really enjoying it, and it helps keep my mind focused. She knows all about Connor, and is very understanding about my grief. By the way, if anyone in this area need an agent, please call Kelli, she will take GREAT care of you (and tell her Rhonda sent you!).

We had a wonderful lesson in church this morning, on "Living For Heaven". The songs we sang were all so powerful, Eddie and I were both overcome with emotion. 'This World Is Not My Home", and "When We All Get To Heaven" were a couple of them. Oh, what a day that WILL be! Thank you, Keith, if you are reading this, for the thought-provoking lesson you prepared!

I hope you all have a wonderful week. I will let you know when we have more info on fundraising for the Relay. I have a couple of ideas that I am considering. And, by the way, someone had mentioned that I should make a bumper sticker with my "Let Kids Be Kids - CURE Childhood Cancer" slogan. It is now available in the Connor store. I have one on each side of my car's rear bumper already.

Thank you, a million times, for your support. I know there is more I was wanting to write, but my brain is in shut-down mode for the night. If I think of anything else, I will add it tomorrow. Hug those precious children tight! Never let a day go by without them knowing of the deep, deep love that you have for them. Most of all, make SURE they develop a close, personal relationship with Jesus. Peace to all, and may God bless us all!

We love you,
Rhonda and Eddie, Mommy and Daddy to Connor, the "Bravest Little Trooper"

****Connor****

Mommy and Daddy miss you more than ever, sweetheart. You are on our minds ALL THE TIME. Thank you for being the wonderful son that you ARE. We will see you soon, sweetheart. I want you to know that Doris is still such a good little hampster. Mommy is taking good care of him, and I know he misses you soooo much. Zoe has been mad lately, because of a cat that has claimed our deck as it's home away from home. It looks SO much like Zoe, it is nearly a mirror image. It sits at the door, peering in at her, and it upsets her so much. Please send Zoe a little patience in dealing with this unwelcome "new friend". She does not like to share her domain, you know. She misses her "brother Connor" so very much! Nana and Poppy sent a stuffed bunny home with me today that I will be bringing to the mausoleum for you, with a special note just for you. They miss you so very much, too, and wanted you to know. We all love you, sweetheart, save our place, O.K.?

ALL OR LOVE, NOW AND FOREVER,
Mommy and Daddy

**********




Saturday, February 12, 2005 2:48 PM CST

FEBRUARY 14, 2005 - HAPPY VALENTINE'S DAY, CONNOR! Mommy is missing you SOOOOOO much today, my heart is shattered that you are not HERE with me. I'm sending you tons of love, I hope you can feel it! You will forever be MY VALENTINE!

ALL MY LOVE,
FOREVER YOUR MOMMY



Hello friends and family, thank so much for checking in. We are so appreciative of Connor's faithful followers continuing to uphold and strengthen us. It has now been 104 days since Connor made his journey to Heaven, and 104 days since we were left here without him. Does it "get any easier"? No, it certainly does not. It is just something you deal with, what choice do you have? We have our O.K. days, and then we have our BAD days. The BAD days sneak up on you when you least expect them to. And it may be something that you wouldn't dream could trigger such emotions. I heard the song "You've Got A Friend In Me", by Randy Newman, the other night. It was the song from 'Toy Story'. Well, of course, 'Toy Story' is one of Connor's favorite movies of all times. I didn't think I would ever stop crying. Just the thought of how much he enjoyed watching that movie, and how much I enjoyed watching it with him, and then BAM--the realization that I will never have that opportunity again. That is just one example of literally thousands of daily reminders....

I want to ask for prayers for Tyler and his family. I first heard about Tyler when I was working at Grace Baptist Church. Some of Tyler's family attended there. He was diagnosed with a brain tumor in January, 2003. He lives locally, but most of his treatment has been at St. Jude's. He went through very aggressive treatment, and was "loosely" considered in remission in the latter part of 2003. He relapsed in 2004. He had a seizure in December, which landed him in Vanderbilt through Christmas. He is now at home on Hospice care. Please visit his site and offer much-needed words of support to him and his family. They are at a place right now that is all too familiar to us, and we know how devastating each minute of watching your child suffer is. Thank you, our faithful prayer warriors, for always praying for our friends, as well!

Also, please continue those prayers for Matt. If all goes as planned, according to the news, his transplant will be on February 28. We pray for the transplant to be a complete success. So, so many people are now on the bone marrow registry thanks to the drives held over the past month for Matt. And, sadly, Jason has found a couple of new lumps, after stopping treatment in December. You may recall, Jason has rhabdo, same as Connor had, although in a different location. He lives in Hendersonville, same town as us.

Also, please say a prayer for our dear family friend, Don, in South Carolina. He had surgery this week to remove a mass. We pray that he heals up completely, with no further problems. We love you Don! Also, thank you, Mike and Don, for the beautiful tribute CD that you sent us. We will cherish it forever!

I have not found THE job yet. I am continuing my search. Thank you to all of you who have sent suggestions, I appreciate them all.

I attended a meeting with Nana this past week for the Relay for Life being held in Portland. The event will be held on April 22-23, 2005, at Portland Middle School from 7:00 pm to 7:00 am. Nana's work's (Albany International) team is Racing For A Cure, they will be using the above picture of Connor in his go-cart giving the thumb's up. Eddie and I will be on their team, as well. There will be different fundraisers going on between now and Relay time. I know that there will be a giant yard sale sometime in March. Luminarias will also be sold for the Relay in 'Honor of...' or in "Memory of...'. All of the money raised goes directly to the American Cancer Society. Eddie and I are trying to think of a good fundraiser that we can do to raise money for the Relay. If anyone has any ideas, or would like to make a donation (made payable to the American Cancer Society), feel free to contact me by email or by the address listed below. THANK YOU!

Eddie and I visited Connor's school - Goodlettsville Elementary - yesterday afternoon. We met with the new principal to discuss a couple of ideas on ways to honor/memorialize Connor, there at the school. It was so good to be there, in Connor's domain. He LOVED his school, all of his friends, and all of his teachers. We were able to see some of his friends, all of his teachers, with the exception of Mrs. Miles, who retired the year after she had Connor, and the ladies in the office. It all brought back such good memories, such as Connor smiling from ear to ear when I would pick him up in the afternoons. I even had Eddie sit there with me as they dismissed school, just so I could watch the entire "end of day dismissal" that all the children look forward to. Thank you, Mr. Westveer, for allowing us to spend special time there, and for wanting to do something in Connor's memory!

Eddie and I have been watching some videos made through the years of Connor. They have brought many laughs and many tears. We need to try to get them put on DVD. It is so bittersweet to watch them. One was of his preschool graduation. He wore a little white cap and gown, and walked across the stage to get his "diploma". THANK GOD we have that tape. It rips my insides out to think that we will never get to experience Connor's high school or college graduation. Thanks to that tape, we do have THAT memory forever. We are thankful that Connor got to experience alot in his ten years, yet we are painfully aware of so many things that he will never get to experience. IF YOU HAVE A HEALTHY CHILD, STOP READING RIGHT NOW, GO HUG THEM, TELL THEM HOW MUCH YOU LOVE THEM, AND THANK GOD THAT THEY ARE HEALTHY. There are so many others in the same situation as us, please keep them ALL in your prayers. No one except someone who has lost a child, can imagine the day-by-day, hour-by-hour, minute-by-minute, second-by-second pain that those left behind experience. It is a club that NO ONE, and I mean NO ONE wants to be a member of.

I am thankful that Connor's friends continue to stop by to see us, and just "hang out". Thank you, Jon Tyler, for the sweet note and Yu-Gi-Oh cards that you left at the mausoleum, and for the visit to us with your Mom and Caroline. Thank you, Bryan and Kyle, for stopping by this week. We know that Connor will never be forgotten, and you guys help us to realize that. Thank you, thank you, thank you!

Happy Valentine's Day, everyone. Cherish all the hand made Valentine's and notes from your children. Yes, I do have mine from last year in a spot where I see it EVERY DAY, several times a day. Also, HAPPY BIRTHDAY (Aunt) SHERRY on Valentine's Day!

Thank you all for being here. Thank you for your prayers for us. Thank you for continuing to sign the guestbook. Thank you, HelenH, for your efforts in the guestbook, to let us know how many lives Connor has changed. We love and appreciate you all!

^i^ ^i^ ^i^ Our Precious Connor ^i^ ^i^ ^i^

Happy Valentine's Day, my sunshine boy! I hope you can see all of your decorations at the mausoleum. Mommy and Daddy miss you so very much. We can't wait to be with you again, and then, guess what?? - We will NEVER EVER have to say goodbye again!!!!! What a wonderful day that will be. Please continue to let Mommy borrow some of your strength, Connor, and thank you so much for helping me through the tough days without you. I love you, I love you, I love you infinity and beyond, and even more than that! Save my place, I'll catch up to you soon, O.K.? Give Cheyenne, Ian, Garrett, Justin, Zackery, Maddie, Reid, Gabbie, Maxie, Suryan, Brooks, Chyanna, and ALL of our CaringBridge and Vanderbilt buddies, lots of Valentine's hugs and tell them it is from their Mommies and Daddies, O.K.? And while you're at it, wrap your arms around yourself, and give CONNOR the BIGGEST hug of all, from your Mommy and Daddy!!!!

All our love, now and for eternity!!!
Forever Your Mommy and Daddy

^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^


Have a good week everyone!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Monday, January 31, 2005 9:37 AM CST

ANOTHER BRIEF UPDATE (Thursday, Feb. 3): One of our local news channels had a report last night on Matt's second bone marrow drive, held yesterday. During the segment, they reported that a 10 for 10 match has been found for Matt, and that he will have his transplant on February 28th. I don't know where the person is from, but they reported that it is a 26 year old donor. Also, he is now considered in remission! Both of these things are wonderful news. He will also, hopefully, get to come home later this week for a while before time for his transplant. He has been in the hospital for four months. I know that this family is rejoicing at this news. We are rejoicing with them, and I knew you would all want to know. If you can, drop them a line of support in their guestbook. THANK YOU!

ADDED TUESDAY, FEBRUARY 1---Please say a prayer for Garrett Burnham's family. He has been battling a rhabdo relapse, and went to Heaven this morning. The next few days will be the most difficult days of their lives. Thank you, in advance, for praying for them!

Hello family and friends, thanks for checking in. Thank you all for the continued support that you give, it is very much needed and appreciated. Eddie and I are so thankful that we have such a wonderful support system. So many of you have been there with us since DAY 1, and you continue to hold us up.

A couple of weeks ago, I was able to go visit with Paige and her Mom, Becky, and her brother and sister, Cody and Skylar. Paige, most of you remember, is Connor's friend from first grade who wrote and recorded the special song 'Hero' for Connor. It was played at his Memorial service. I have tried and tried to get it onto this page so that you could all hear it. It will work for a couple of hours, and then I get an error code. I know that Sharon in Arkansas was able to hear it one night for the brief time it was on the page. I will keep working on it. Anyway, I thoroughly enjoyed my visit with them. It is obvious to me how much they love Connor, and that truly warms my heart. Paige even went to the Build-A-Bear store and built her own bear and named it......you guessed it, CONNOR! Thank you, Paigie, for being so open to me about Connor, you know I love to hear his name!

I have started my job search. Yes, I NEED to go back to work. I am unsure of what I want to do, but I will most likely start out part-time for a little while. I would prefer to work in the Hendersonville area, close to home, and close to the mausoleum. I know that some think that I shouldn't go to the mausoleum so much, but, frankly, no one can know what is best for me EXCEPT ME. It is the one place where I feel most at peace. I'm sorry to be so blunt about that, but it is the way I feel. A bereaved parent MUST find the best ways to bring about much-needed healing, and for me, a part of that healing is being able to spend time at the place where I feel so close to Connor. Connor is in Heaven, I know that, but his body, that I held in my arms for ten wonderful years, is at his final resting place. I actually get alot of reading done while there, one of the few times I actually sit down and read. So many of you have sent me wonderful books on grieving, and they are helping me so much. But back to the job search, anyone who lives locally and knows of anything in this area, please email me and let me know. As I said, I'm not sure what I want to do, but will weigh all options.

I have been to the doctor a couple of times over the past two weeks. I had been quite weak, and some other symptoms, and just needed to be checked out. Through bloodwork, I was found, once again, to be severely anemic. My doctor told me that he was surprised I was able to get out of bed each day, due to the anemia. He put me on iron, and will keep a watch on my blood counts. I had just attributed everything to grief, so I'm glad, thanks to the urging of my Mom, Eddie and others, that I went to the doctor. I am feeling better, since I started the iron supplement. I have to tell you, the night before the second visit, I knew they were going to draw blood again, and I had that on my mind. I have always been a big baby about that. Anyway, all it took was one thought of Connor, and the literally hundreds of shots that I, myself, administered to him DAILY, along with EVERYTHING else that child went through, and I immediately stopped my inner whining over one measly needle stick. Thank you, Connor, for teaching Mommy so much about bravery and heroism. Sometimes I start thinking about everything Connor went through, and I never ONCE heard him complain about a single shot, procedure, surgery, radiation treatment, chemo, etc., etc., etc....... I honestly WISH I had one ounce of his strength. But what he had went beyond strength, it was a quiet acceptance of something that would bring most to their knees, me included. What I saw Connor go through on a daily basis, most adults have never had to face, and if they did, probably would not be anywhere near as undaunted and courageous as Connor, and so many other children who have faced this. Connor, the lessons you have taught me, I will carry for the rest of my life!

We were able to attend the "Premiere Party" at the Martin's on Saturday night. A documentary on Kevin's cancer battle, and Linda's journaling in CaringBridge, has been filmed for the 'Country in the Rockie's' event this week. The event raises money for cancer research at Vanderbilt. Thank you, Linda and Kevin, for including us in the movie viewing. Tracy, from AngelHeart was there, along with Q-Bert's Mommy and Daddy, Sarah Jane and Doug. Most of you know that Q-Bert is Connor's therapy dog buddy whom we met way back when Connor was taking radiation for the first time in 2002. We were also able to meet so many of Linda and Kevin's friends, whom I had always read about in her journals. Also, Eddie "bonded" with Ryan and Brandon, two of their children, as they played pool. We enjoyed the night, but our thoughts always go to how much Connor would have enjoyed it, as well.

We are participating in the Portland Relay for Life again this year. Nana's work, Albany Int./Appleton Wire Division always has a team in the Relay. In past years, Connor has always been involved, as well. Last year, we watched him walk up and receive his Survivor ribbon, and then he walked the Survivor lap. I am sitting here shaking as I type as I think about how difficult this year will be. Yes, the old cliche', 'What a difference a year makes...' is quite fitting. But, we will do this in his memory. I will give more info as it gets closer to time regarding different fundraisers, etc., should anyone want to get involved in Connor's memory. We would welcome the help!

Thank you to those of you who always respond to the different prayer requests that I make for other children. I see your postings in their guestbooks, and I am so grateful. Connor has always had the BEST PRAYER WARRIORS! Please keep us, and our families in your prayers, as we continue through each day without Connor here with us. Please say a special prayer for Nana and Poppy, as well, as they struggle through the loss of their only grandchild. We all miss him immensely, more today than yesterday. Please also keep Roy and Donna, Cheyenne's Dad and Mom, Brian and Kellie, Ian's Dad and Mom, Bill and Chris, Justin's Dad and Mom, John and Monica, Gabbie's Dad and Mom, and so, so many other grieving parents and their families, in your prayers. God holds us up each day, and those prayers really make a difference.We are thankful for you all!

*****
Connor,
Mommy and Daddy continue to miss you so very much, and we will do so every day of our lives until we get to re-join you. We love you more than all the stars in the sky, more than every drop of water in the sea, more than anything in the whole wide world. You are our inspiration, our hero, and we can carry on because we know that is what you would expect from us. We can't wait to see you again, sweetheart, and can't wait to hold you in our arms. Give all your buddies hugs, and tell them it is from their Mommies and Daddies, who miss them so much. Thank you for continuing to let us know that you are around. That "strong-willed" trait that you have always had is shining through! We love you, Connor Jordan Hunley, and we will love you forever, for eternity, infinity and beyond!

All our love,
Mommy and Daddy

*****


Thanks, again, for being here. We know you don't have to be, but we are so thankful that you are. Have a wonderful week everyone. Make special memories with your family. Cherish those homemade Valentines that the kids bring home from school. I have a Valentine that Connor gave me last year that I look at every day. You'd better believe that I realize it's value! Hug your children tight, don't let a day go by without them KNOWING how loved they are, and how much they mean to you. Teach them about Jesus, and the price He paid for them. We thank God every day for the gift of His Son, so that we may have eternal life. As a result, we KNOW that we will be with Connor again, for eternity, in the wonder and glory of Heaven. What a day that will be! Peace to all, and may God bless us all!

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Wednesday, January 19, 2005 10:25 AM CST

Hello everyone, thanks for checking in. I want to start on a happy note today. Lauren has a new baby brother! Ethan Reece Legge was born at 8:12 p.m. on January 18th. He weighed 5 lbs 8 1/2 ounces and was 19 in long. He is healthy, praise God! Congratulations Reece, Tammy, Lauren, Sissy and Chris!

Now, onto an urgent prayer request. Many of you know of Kevin's battle with cancer. His wife, Linda, is a dear friend of mine. She has been very supportive throughout Connor's battle. They have 5 children. Their 14 year old son, Ryan, tested positive for the cancer gene. He had a colonoscopy yesterday (1/18), and they found 30 polyps in his colon. Five of them were biopsied, but they will not have results back until next week. Please pray that it is NOT CANCER, and that the doctors will determine the best plan of action for Ryan. Together, we can storm Heaven for the Martin 7!

Also, please visit Daniel Gade's web site and offer him support. He was injured in Iraq a week ago, and has had to have his leg amputated. Thank you to Colette and Cheyenne's Dad, Roy, for the info.

Thank you to all of you who continue to visit Connor's web page, whether you sign in or not. I know so many of you have told me that you just don't know what to say. Just say that you will ALWAYS remember Connor. Don't be afraid to say his name, don't worry that it will upset us, Connor's name is music to our ears. I am so far behind on answering emails and returning phone calls, thank you all for being so patient. Just day-to-day "stuff" has become very difficult to keep up with. My brain seems to stay in a fog.

We have been busy over the past week. We met with Dr. Shankar and Dr. Debbie last Thursday, just to talk. We had not seen Dr. Shankar since Connor's visitation, it was good to talk to her. It is apparent to us, the great impact that Connor and his life has had on everyone who had the privilege of knowing him, and that includes EVERYONE at Vanderbilt Children's Hospital. We are thankful for the wonderful care that Connor always received at Vanderbilt. I've said it before, but I will say it again, he COULD NOT have had a better team of doctors, nurses, care partners, child life specialists, etc. We will never forget all of the compassion and kindness shown to Connor over his three years of treatment.

After our meeting Thursday, Eddie and I headed over to the Alive Hospice facility in Nashville. They had scheduled a Memorial service for those patients in their care, who left this world in October, November and December, 2004. It was really nice. Each family was able to go up, put a leaf on a tree with their loved one's name, and say a little about them. We will certainly take any and every opportunity to honor Connor!

Saturday, we went to see "The Polar Express" at the IMAX theater. Aunt Tammy, Uncle Shelton, Ragan and Victoria invited us to see it with them. It was a great movie, especially in 3D. It was bittersweet watching it, as all I could think about was how much Connor would have enjoyed seeing it. Thank you, Aunt Tammy, for the tickets!

Sunday evening, we attended a benefit for Terra's Angels. It was founded by the Mom of Terra Murrell, who battled cancer for nine years. She passed away on July 1, 2001. I think this is the fourth year for the benefit, and it continues to grow each year. We met Lu, Rob and Gabe there. We also met, for the first time, Logan, his Mom and Dad, and both sets of his grandparents. What wonderful people they are! Gabe and Logan had the best time, dancing around to all the music. They are both now in remission from rhabdo, Logan is two years old, and Gabe just turned three on January 1st. Alot of money was raised Sunday night, which will benefit the families at Vanderbilt with children in treatment.

There is a bone marrow drive being held TODAY in Portland for Matt. He is currently in Vanderbilt, and a bone marrow match needs to be found right away, so that he can proceed with a transplant. Please keep him and his family in your prayers.

My heart aches for Connor, every single second of every single day. Thank you, Mary, for the poem, 'The Cord', that you shared in the guestbook, it meant alot to me. When I think about just how sick Connor was at the end, it certainly is comforting to know that he is now pain-free and cancer-free in Heaven. But, OH HOW I MISS HIM. I remind myself of the saying, "Don't cry because it is over, smile because it happened." I would not trade one day of the ten years we had with Connor, for ANYTHING. And, because of the promises laid out in the Bible, I KNOW that I WILL be with my child again. Thank you, God, for the gift of your Son on the cross so that we could all have the hope of eternal life. As I have said before, without Hope, we have nothing.

Eddie wanted me to share the following with you all:



He had the first tattoo done about a week after Connor passed away. He had always wanted one, but never could decide on a design, until now. He has gotten a total of three, all memorializing Connor.


***Connor, Mommy and Daddy continue to miss you and everything about you, every single second. We know that you are having a big time in Heaven, and we can't wait for the day when we get to join you! Thank you for the reminders that you are watching over us, I always ask God to make sure my eyes are open to them. You are the bravest young man I will ever know, you will ALWAYS BE MY HERO! When I think of all the suffering you did in silence, with NEVER A COMPLAINT, it tears my heart apart. You have taught me so much, I hope that I can make you as proud of me, as I am of you. We love you so much, Angel-cake, more than anything in the whole wide world! Save us a place, O.K.? ~~All our love for eternity, Mommy and Daddy***


Thanks, again, for checking in. Your presence keeps us going. Your words mean so much. We have been blessed. Count your blessings, hug your children tight, then, for us, hug them even tighter. Be thankful if you have your children to hold. We "hold" onto our memories, thank God for our memories!

We love you,
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"



Sunday, January 9, 2005 5:42 PM CST

Urgent Prayer Request added 1/11/05--Please visit Garrett's page and offer words of encouragement. He has been battling rhabdo and is currently in the PICU with an infection and is not expected to survive. He is 9 years old.

Hello everyone, thanks so much for checking in. I hope everyone had a safe New Year. We went to "Aunt Tammy (Eddie's sister) and Uncle Shelton's" for a while on New Year's Eve. I think we were home by around 11:00 pm that night. Another day without Connor, another night without Connor, another holiday without Connor. As I have stated before, many, many parents who have lost children have told me that the pain NEVER gets any easier, no matter how many days, weeks, months, years, or even decades it has been. I can certainly believe that. January 1 marked two months since Connor made his Heavenly journey. If anything, the pain increases and intensifies with each new day. The world, apparently, continues to go on around you, but your world has STOPPED in it's tracks and will never be even remotely "normal" again. I always told Connor that I felt as though my purpose in this world was to be his "Mommy", and that God had put me here for that reason. He would squeeze my neck and plant those butterfly kisses square on my mouth. Oh, how I long for some more of that good lovin' from my Sunshine Boy.

I do talk to Connor daily, throughout the day. I have asked him to share some of his extraordinary strength with Mommy. He continues to show me that he IS around me and watching over me. THAT'S my Connor. Thank you to Tracy, Linda, Kathy and others who have been sharing their own "Connor stories".


I want to thank Laurie for sending the following to me:

New Years Resolutions For The Bereaved Parent

I RESOLVE..........

~~ That I will grieve as much and for as long as I feel like grieving, and that I will not let others put a time table on my grief.

~~That I will grieve in whatever way I feel like grieving, and I will ignore those who try to tell me what I should or should not be feeling and how I should or should not be behaving.

~~That I will cry whenever and wherever I feel like crying, and I will not hold back my tears just because someone else feels I should be "brave" or "getting better" or "healing by now".

~~That I will talk about my child as often as I want to, and I will not let others turn me off just because they can't deal with their own feelings.

~~That I will not expect family and friends to know how I feel, understanding one who has not lost a child cannot possibly know how it feels.

~~ That I will not blame myself for my child's death, and I will constantly remind myself that I did the best job of parenting I could have possibly have done. But when feelings of guilt are overwhelming, I will remind myself that this is a normal part of the grief process and it will pass.

~~That I will not be afraid or ashamed to seek professional help if I feel it is necessary.

~~That I will commune with my child at least once a day in whatever way feels comfortable and natural to me, and that I won't feel compelled to explain this communion to others or to even justify or even discuss it with them.

~~ That I will try to eat, sleep, and exercise every day in order to give my body strength it will need to help me cope with my grief.

~~To know that I am not losing my mind and I will remember myself that loss of memory, feelings of disorientation, lack of energy, and a sense of vulnerability are all normal parts of the grief process.

~~To know that I will heal, even though it will take a long time.

~~To let myself heal and not to feel guilty about feeling better.

~~To remind myself that the grief process is circuitous- that is, I may not make steady upward progress. And when I find myself slipping back into the old moods of despair and depression, I will tell myself
that slipping backward is also a normal part of the grief process and these moods too will pass.

~~ To try to be happy about something for some part of everyday, knowing that at first, I may have to force myself to think cheerful thoughts so eventually they can become a habit.

~~That I will reach out at times and try to help someone else, knowing that helping others will help me to get over my depression.

~~That even though my child is dead, I will opt for life, knowing that is what my child would want me to do.

(Written by Nancy Mower- TFC, Honolulu, HI)

______________________________________________
We thank you for all the support and words of encouragement you all have been leaving for Matt since I added the link to his page. He and his family sincerely appreciate it. You all are the best!

I want to share a couple of pictures with you. Most of you know of Connor's two pets. Zoe, our black cat, has been with our family for a little over 2 years now. She is, and will forever be, Connor's little sister. She is a PERFECT cat. Then there is Doris, Connor's MALE hamster. Our dear friend, Susan, gave Doris to Connor in late September, as he was recovering from surgery. They had a very special "bond" that was evident to everyone who saw Connor holding Doris. Anyway, the following are a couple of pics from last week, so that you may see them:



I might add that Zoe was exercising TONS of self-control. And Doris actually put his "hands" on the steering wheel just like I asked him to do (I think Connor had a hand in that!).

Thank you to everyone for the continued guestbook entries, emails, cards, phone calls, visits, "lunch-dates", prayers, books, and everything you continue to do for us. Everyday is hard, extremely hard. Somedays, it takes all the strength we have to just get out of bed and face another day. Please continue to pray for us. Please also pray for Connor's extended family--Grandparents, Great-Grandmothers, Aunts, Uncles, Cousins, and close friends. And, thank you for those prayers! I have decided to add a couple more pictures to this journal. The first was taken last December (2003), the second was this December (2004) at the mausoleum:



Have a great week, everyone. Cherish each new day that God gives you. Drop everything for a chance to love on, play with, or just "be with" your children. They truly are one of our greatest gifts from God. As I have said a million times before, NEVER TAKE ONE SINGLE MOMENT FOR GRANTED. Tomorrow certainly is not guaranteed, two hours from now is not guaranteed. Make the most of THIS moment. Hug your loved ones and tell them just how much you love them and how much it means to you to have them in your life. And, most importantly, ALWAYS thank God for your blessings. I thank God every single day for allowing me the honor and privilege of being Connor's Mommy. I also thank Him for the gift of His Son on the cross, because, if you think about it, if Jesus had not died for us, we would be WITHOUT HOPE. Thank God, we are NOT without hope....

^^^^^^^^^^^^^^^^^^
Connor,
Mommy and Daddy love you so very much, more than all the stars in the sky, more than anything in the world, to Infinity and Beyond!!!!! We can't wait to see you again, you be sure and save a place for us. We know you will be full of excitement to show us all the breathtaking places you have been exploring. Thank you for helping Mommy get through the days, you always seem to know when I need your help the most. We love you Angel-cake, we'll be there soon, when God decides it is time.
All our love, Mommy and Daddy (Zoe and Doris, too!)
^^^^^^^^^^^^^^^^^^
Peace to all, and may God bless us all!
We Love You!
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"




Sunday, January 9, 2005 5:42 PM CST

Urgent Prayer Request added 1/11/05--Please visit Garrett's page and offer words of encouragement. He has been battling rhabdo and is currently in the PICU with an infection and is not expected to survive. He is 9 years old.

Hello everyone, thanks so much for checking in. I hope everyone had a safe New Year. We went to "Aunt Tammy (Eddie's sister) and Uncle Shelton's" for a while on New Year's Eve. I think we were home by around 11:00 pm that night. Another day without Connor, another night without Connor, another holiday without Connor. As I have stated before, many, many parents who have lost children have told me that the pain NEVER gets any easier, no matter how many days, weeks, months, years, or even decades it has been. I can certainly believe that. January 1 marked two months since Connor made his Heavenly journey. If anything, the pain increases and intensifies with each new day. The world, apparently, continues to go on around you, but your world has STOPPED in it's tracks and will never be even remotely "normal" again. I always told Connor that I felt as though my purpose in this world was to be his "Mommy", and that God had put me here for that reason. He would squeeze my neck and plant those butterfly kisses square on my mouth. Oh, how I long for some more of that good lovin' from my Sunshine Boy.

I do talk to Connor daily, throughout the day. I have asked him to share some of his extraordinary strength with Mommy. He continues to show me that he IS around me and watching over me. THAT'S my Connor. Thank you to Tracy, Linda, Kathy and others who have been sharing their own "Connor stories".


I want to thank Laurie for sending the following to me:

New Years Resolutions For The Bereaved Parent

I RESOLVE..........

~~ That I will grieve as much and for as long as I feel like grieving, and that I will not let others put a time table on my grief.

~~That I will grieve in whatever way I feel like grieving, and I will ignore those who try to tell me what I should or should not be feeling and how I should or should not be behaving.

~~That I will cry whenever and wherever I feel like crying, and I will not hold back my tears just because someone else feels I should be "brave" or "getting better" or "healing by now".

~~That I will talk about my child as often as I want to, and I will not let others turn me off just because they can't deal with their own feelings.

~~That I will not expect family and friends to know how I feel, understanding one who has not lost a child cannot possibly know how it feels.

~~ That I will not blame myself for my child's death, and I will constantly remind myself that I did the best job of parenting I could have possibly have done. But when feelings of guilt are overwhelming, I will remind myself that this is a normal part of the grief process and it will pass.

~~That I will not be afraid or ashamed to seek professional help if I feel it is necessary.

~~That I will commune with my child at least once a day in whatever way feels comfortable and natural to me, and that I won't feel compelled to explain this communion to others or to even justify or even discuss it with them.

~~ That I will try to eat, sleep, and exercise every day in order to give my body strength it will need to help me cope with my grief.

~~To know that I am not losing my mind and I will remember myself that loss of memory, feelings of disorientation, lack of energy, and a sense of vulnerability are all normal parts of the grief process.

~~To know that I will heal, even though it will take a long time.

~~To let myself heal and not to feel guilty about feeling better.

~~To remind myself that the grief process is circuitous- that is, I may not make steady upward progress. And when I find myself slipping back into the old moods of despair and depression, I will tell myself
that slipping backward is also a normal part of the grief process and these moods too will pass.

~~ To try to be happy about something for some part of everyday, knowing that at first, I may have to force myself to think cheerful thoughts so eventually they can become a habit.

~~That I will reach out at times and try to help someone else, knowing that helping others will help me to get over my depression.

~~That even though my child is dead, I will opt for life, knowing that is what my child would want me to do.

(Written by Nancy Mower- TFC, Honolulu, HI)

______________________________________________
We thank you for all the support and words of encouragement you all have been leaving for Matt since I added the link to his page. He and his family sincerely appreciate it. You all are the best!

I want to share a couple of pictures with you. Most of you know of Connor's two pets. Zoe, our black cat, has been with our family for a little over 2 years now. She is, and will forever be, Connor's little sister. She is a PERFECT cat. Then there is Doris, Connor's MALE hamster. Our dear friend, Susan, gave Doris to Connor in late September, as he was recovering from surgery. They had a very special "bond" that was evident to everyone who saw Connor holding Doris. Anyway, the following are a couple of pics from last week, so that you may see them:



I might add that Zoe was exercising TONS of self-control. And Doris actually put his "hands" on the steering wheel just like I asked him to do (I think Connor had a hand in that!).

Thank you to everyone for the continued guestbook entries, emails, cards, phone calls, visits, "lunch-dates", prayers, books, and everything you continue to do for us. Everyday is hard, extremely hard. Somedays, it takes all the strength we have to just get out of bed and face another day. Please continue to pray for us. Please also pray for Connor's extended family--Grandparents, Great-Grandmothers, Aunts, Uncles, Cousins, and close friends. And, thank you for those prayers! I have decided to add a couple more pictures to this journal. The first was taken last December (2003), the second was this December (2004) at the mausoleum:



Have a great week, everyone. Cherish each new day that God gives you. Drop everything for a chance to love on, play with, or just "be with" your children. They truly are one of our greatest gifts from God. As I have said a million times before, NEVER TAKE ONE SINGLE MOMENT FOR GRANTED. Tomorrow certainly is not guaranteed, two hours from now is not guaranteed. Make the most of THIS moment. Hug your loved ones and tell them just how much you love them and how much it means to you to have them in your life. And, most importantly, ALWAYS thank God for your blessings. I thank God every single day for allowing me the honor and privilege of being Connor's Mommy. I also thank Him for the gift of His Son on the cross, because, if you think about it, if Jesus had not died for us, we would be WITHOUT HOPE. Thank God, we are NOT without hope....

^^^^^^^^^^^^^^^^^^
Connor,
Mommy and Daddy love you so very much, more than all the stars in the sky, more than anything in the world, to Infinity and Beyond!!!!! We can't wait to see you again, you be sure and save a place for us. We know you will be full of excitement to show us all the breathtaking places you have been exploring. Thank you for helping Mommy get through the days, you always seem to know when I need your help the most. We love you Angel-cake, we'll be there soon, when God decides it is time.
All our love, Mommy and Daddy (Zoe and Doris, too!)
^^^^^^^^^^^^^^^^^^
Peace to all, and may God bless us all!
We Love You!
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"




Thursday, December 30, 2004 11:48 AM CST

****ADDED 1/05/05--Our family has known of a young man in Portland, TN (where Nana and Poppy live)who has recently been diagnosed, I think in October, 2004, with an aggressive form of leukemia. He really needs extra prayers. His name is Matt, and you can get to his web site here: Matt's site. Thank you!

Hello family and friends, thanks for checking in. I hope you all had a good Christmas. I know that for those of you reading this who are in our situation, if you feel as we do, you are glad to have it behind you this year. There is absolutely nothing like going to the mausoleum on Christmas morning to "visit" your child. I cherish the memories of Christmas since Connor was born. Seeing him race into the living room on Christmas morning, his eyes dancing with excitement. Paper flying, the ooh's and the aah's. Checking Santa's plate and cup to make sure he had his snack. Even when Connor was taking chemo, he never let the sickness or nausea slow him down on Christmas morning. And, he ALWAYS made sure that our pets were taken care of by Santa. They would always have their own stocking, and Connor always helped me pick out their toys and treats. Most Christmases, he would open their stocking for them before he would even open his own. His love of animals was something so obvious to all who knew him. We have our memories, thank goodness, no one can take those away.

We spent Christmas Day at Nana and Poppy's with my family. Thanks to Nana, we had a toast that afternoon to Connor, with eggnog, his favorite drink. Sunday, the day after Christmas, was spent at Grandmama's house. Connor's absence, at both places, was felt by everyone.

I was able to go with the wonderful folks at ShoLodge to deliver the toys they collected for their toy drive in Connor's memory. They had tons of toys, and they also donated a rocking chair with a Memorial plaque with Connor's name on it. Cracker Barrel, in turn, donated a child's rocking chair to match. We took them down to Vanderbilt Children's Hospital the Monday before Christmas. Thank you, Pam, and everyone who helped make the holidays brighter for some well-deserving children. Also, thank you to Tabitha and Lorie, and all those who donated stuffed animals in Connor's memory for a separate toy drive. They collected over 250 stuffed animals and toys, and delivered them the day before Christmas Eve to the hospital. We are thankful to all for helping keep Connor's memory alive.

As most of you have probably been doing, I have been following the news all week from the aftermath of Sunday's tsunamis in Asia. The situation there is horrible, so much more than any of us can even comprehend. To think that something like that can happen, with no warning, in today's world with all the technology we have, is frightening. Hopefully, this tragedy can bring the entire world together with a common cause of helping our fellow-man. It is a reminder of how fragile life is, and how things can CHANGE FOREVER in the blink of an eye. Please keep all of the people of these countries, especially the hardest hit, Sri Lanka, Indonesia, India, and Thailand, in your prayers. It will be a long, hard road of recovery for them.

I want to thank all of you who have made donations to various charities in Connor's memory. I know that AngelHeart Farm, Make-A-Wish, CaringBridge, and the Gideon Bible program are several that have received donations. We are thankful. Connor told me back in October, before his birthday, that he wanted to donate some of his birthday money to the Sumner County Humane Society. He just said that out of the blue one day when he was opening some of his cards. The shelter is just a mile or two from our house, and Connor and I would often go there and play with the cats. They do not keep the cats in cages, they are in three different rooms, and you can just go in and play with them. Connor would have the biggest time there, making sure he played with EVERY cat. Last week, I took his birthday money there and donated it in his memory. I know he was so proud.

We have been taking note of the amazing sunsets since Connor has been gone. Knowing what an artist he was, it is not surprising to me that the sky has been filled each evening with some of the most brilliant colors. Also, in my last entry, I alluded to Connor bringing my attention to the Christmas Eve star. I thought I would share that story with you all. I was lying in bed that night, the night before Christmas. Eddie was downstairs watching television. I was crying my eyes out, with our kitty, Zoe, lying at my feet. I heard a loud noise on our deck, which is right outside one of our bedroom windows. I jumped up and looked out, and didn't see anything or anyone. I turned my focus upward, and the sky was completely cloudy except for one very small section. In that section was one of the brightest stars I have ever seen. I knew, at that point, that Connor, somehow made that noise happen so that I could see that twinkling star. I know, to some of you, that sounds like I have finally gone off the "deep end". But, I know my Connor, and I know how determined he is. So, at a very low point that night, he managed to come through for his Mommy. Thank you, Connor, you knew just what Mommy needed at that moment!

Thank you all for being here for us. I have debated in my mind about keeping this site going. It is a great source of support for us, and has been all along. So, I suppose as long as people are reading, I'll keep writing. There have been many days when your guestbook entries have given us the strength to keep going, whether you know that or not. We have made such wonderful friends through this journey, many through this web page. I know you all enjoy reading Colette's entries, she takes such time and attention to each one. Thank you, Colette! Also, I want to thank Sharon in Arkansas. Sharon lost a son several years ago, so she knows all too well the pain of losing a child. Imagine my surprise, at Connor's visitation, when she walked up to me in the funeral home and introduced herself. Thank you, Sharon, you don't know how much that meant to us. Thank you to you all who continue to check on us. It is so clear to us the "ripple" effect that Connor's life has had.

***To our precious Connor -- Mommy and Daddy managed to survive Christmas without you here with us. I know you helped us along, so we thank you for that. We miss you so very much, more today than yesterday. We know that we will never "get past" the pain of losing you, as long as we are left here on earth. But, we also know that we WILL BE WITH YOU AGAIN. And then, we will NEVER have to say goodbye. We look forward to that day, Connor, we can hardly wait! We know you had a wonderful Christmas with Jesus, and that definitely brings us great comfort. I know how you would always try to meet the new kids in the hospital who had just been diagnosed, and try to make them feel better. So, for that reason, I know that you have probably been in charge of welcoming all the children from Asia into Heaven. You always have had a way about you that made others feel comfortable, so I know you have been a BIG help in Heaven. Please give Cheyenne, Ian, Maxie, Justin, Gabbie, Suryan, Zach, Chyanna, Brooks, Whitney, and all our other CaringBridge friends, big hugs from us. We love you, sweetheart, with everything we have in us. We'll see you soon! All our love, for eternity--Mommy and Daddy***


Thank you all, once again, for your support. We appreciate you. Have a safe and wonderful New Year, may it bring peace and healing to us all!

We love you!
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"




Saturday, December 25, 2004 3:58 AM CST

Merry Christmas everyone. We are thankful for you. Thank you for continuing to lift us up. Cherish each moment of your Christmas celebrations. Reflect on the true meaning of Christmas.

**Connor-
Mommy and Daddy are in such pain this Christmas at your physical absence. Nothing, and I mean NOTHING is the same. Thank you for bringing my attention to the bright star in the cloudy sky tonight, Mommy needed to see that. Enjoy your Christmas in Heaven with Jesus and all those who have joined the Heavenly ranks. We can't wait to see you again, sweetheart! We long to hold you, and shower you with all our love. Merry Christmas, our Sunshine Boy.....

With all our love, now and for eternity--Mommy and Daddy**

May God bless you all.....

We love you!
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Monday, December 6, 2004 9:58 AM CST

Hello family and friends, thanks for checking in. I know that it has been too long without an update. No excuses, I just haven't been able to find the right words. Thank you all for your concern for us. We are still here, so, God still has a purpose for us here on earth. We miss Connor so very much. Words can't begin to come close to this pain, so I won't even try to explain it. There is not a minute that goes by that Connor is not on our minds. It is difficult to even try to fathom a lifetime of days like these. But, we do cling to our faith, and to the promises of the Bible. We know that we will see Connor again. THAT is what keeps us going. Without our faith, we would have nothing.

Thank you to all of you who have sent cards, books and gifts. Thank you to the Nashville Fire Dept. for the golf tournament held last week for us. Thank you to the youth group at Hillhurst Baptist Church for the pancake breakfast held a few weeks back. What a remarkable group they are! Thank you to everyone who is holding us up in prayer. Please forgive us for not getting out thank you cards yet. I have started on them, and have hundreds ahead of me from Connor's birthday, and the visitation and funeral. I will get to them all. We are so very appreciative of everything that has been done for our family. We have been blessed beyond words with such a great support system. We also have alot of calls that need to be returned, thank you all for your patience.

As I stated in an earlier journal entry, the days seem to get harder with each passing day. There will never come a day when we are not missing Connor with every fiber of our being. I put up a small Christmas tree this past week at the mausoleum. The ornaments are Scooby Doo, Spongebob, and Care Bears. We have not put up a tree at home, and we haven't yet decided whether or not we will. To be honest, we would like to fast-forward through Christmas this year. But, we know that is not possible. Yes, there is great joy in the knowledge that Connor will be spending his Christmas with Jesus Himself this year. But we want him here with us. With Connor being an "only child" and "only grandchild" (on my side of the family), Christmas has been all about Connor for the past ten years. We can't even imagine how it will be this year.

Nana and I were able to attend the Martina McBride Christmas show here in Nashville this past Friday night, thank you, Tanya for the tickets! The show was beautiful, and she ended it with my all time favorite Christmas song, 'O Holy Night'. Her voice is unbelieveable! Connor would have really enjoyed it, as Martina has always been one of his favorites.

Each year, my dear friend, Christian, and her family host a party at their home with Santa Claus. The children all get to sit with Santa and share their "list" with him. We have gone the past couple of years with Connor. The party was last night, and Connor's best friend, Jordan, was kind enough to attend with us. Jordan is a phenomenal young man from a wonderful family. Our friends, Lu, Rob and Gabe also went to the party. We had a wonderful time. We got to see Sadie Grace and her family. She was so precious in her Christmas dress and cute Christmas shoes. I know that Connor was "with" us throughout the evening. He thought the world of Jordan. Thank you, Jordan, for being comfortable enough with us to go, it means so much to us.

We hope you all have a wonderful week. Don't get so caught up in the hustle and bustle of the holiday season that you forget the true meaning of Christmas. Slow down, and enjoy the special moments of "family time". Please remember all of the children still fighting, some are in the hospital now, and will be through Christmas. Please also pray for the families who no longer have their child with them. We continue to pray that someday there will be a cure for all cancers, so that noone has to go through the pain of losing someone so dear to them. Thank you all for standing by us, and for holding us up in prayer. We appreciate you all. Thank you to Innlink here in Hendersonville, and to my cousin, Tabitha, for organizing the toy drives for Vanderbilt Children's Hospital in Connor's Memory. What a beautiful gesture, and way to help keep Connor's memory alive! Peace to all, and may God bless us all!

~~Connor, Mommy and Daddy love you so very much! We can't wait to see you again! We know that you will be waiting for us when our time comes, to show us all the best places in Heaven. Thank you for watching over us, and for sending us signs that you are around us. It really helps us get through the days, sweetheart. We are so proud to be your Mommy and Daddy, God has truly blessed us. We love you, our Sunshine Boy, more than anything in the WHOLE WIDE WORLD!

We love you all,
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, the "Bravest Little Trooper"


Wednesday, November 24, 2004 10:33 AM CST

On this Thanksgiving, some of the things that I am thankful for......

--for my salvation

--that God chose ME to be Connor's Mommy

--that I had 10 years and one day with the most amazing son

--that I WILL be reunited with my child, never to have to part again

--that Connor no longer has to be in pain

--that Connor is healthy, happy and care-free in Heaven

--that I have an amazing husband and life-partner in Eddie

--for my wonderful, supportive family

--for my amazing friends, which includes every one of you

--for our incredible church family

--that we live in a free country

--that God sent his only Son to die on the cross for our sins, so that we may have eternal life

--that I have a roof over my head, and food to eat

--for my tons of memories that noone can ever take from me

--that Connor was loved by so many people, the world over

--that Connor will live on in the hearts of all who knew him

--that Connor taught me so many lessons, such as to never take a single moment for granted

--for my many friendships formed through CaringBridge

--that I have had the opportunity to get to "know" some of the most amazing and resilient children and their families through Connor's journey

**********


Shout for joy to the Lord, all the earth.

Worship the Lord with gladness;
come before Him with joyful songs.

Know that the Lord is God.
It is He who made us, and we are His;
we are His people, the sheep of His pasture.

Enter His gates with Thanksgiving and His courts with praise;
give thanks to Him and praise His name.

For the Lord is good and His love endures forever;
His faithfulness continues through all generations.

~~Psalm 100~~A Psalm. For giving thanks.

**********



My prayer for you all is that you are able to enjoy your Thanksgiving, no matter what the circumstances. Pause to give thanks for your many blessings. If you have an empty seat at the table this year, share memories of that wonderful person, and keep their memory alive. Be thankful for all that God has given you. Thank you, God, for all you have given me! Please keep our family, as well as the families of so many children who now reside in Heaven, in your prayers. Also, please pray for all those still fighting. We appreciate you all.......

We love you all,
~~Rhonda and Eddie, Forever Mommy and Daddy to Connor, our "Bravest Little Trooper!"


Saturday, November 20, 2004 10:06 PM CST

Hello family and friends, thanks for checking in. I want to start by thanking everyone for your continued support. The cards, guestbook entries, prayers and general well-wishes mean so much to us.

Eddie and I went out of town for a few days this past week. We drove to Charleston, S.C., and stayed for a couple of nights (THANKS JERRY AND RHONDA FOR THE USE OF YOUR BEAUTIFUL HOME!!), then we drove part of the way home on Thursday and stayed in Pigeon Forge for one night, and drove the rest of the way home yesterday. I can tell you, you can't run away from grief. Not that we were trying to run away, because we were not. But I can say that I could not STAND to be away from home right now. I just need to be around 'everything Connor'. Thank you to Nana, Sherry and Christian for making sure Connor and the mausoleum were visited each day while we were away. It was our first visit to Charleston, and it IS a beautiful city. It did feel good to be at the beach, as Connor always LOVED the beach. But it is SO GOOD to be home.

Last Sunday, we attended a Grief therapy group that the funeral home sponsors called "Mourning to Morning". It was good to hear someone put into words the emotions that are going on inside of you. Nana and Poppy, and Grandmama also attended with us. One thing that stood out in my mind--the gentleman speaking said that a lady at one of the sessions said that she never thought she could hurt SO MUCH, and still be breathing. We know EXACTLY how she feels. Hopefully, we all came away with something beneficial. They have monthly sessions, and I'm sure we will try to attend as often as possible.

I want to thank Laurie, Helenmary and Rachel for the invitation to see "The Lion, the Witch and the Wardrobe" last night at Hendersonville High School. Colette, I know you have spoken of the story before in Connor's guestbook. The play was wonderful, put on by quite a talented cast. Laurie is the Drama teacher at the school, and they dedicated the performances to Connor. We were extremely touched by this kind gesture.

To put to rest a common misconception, the days are NOT getting any easier. We miss Connor with our entire being. His absence is felt more and more with each passing day. The first morning in Charleston, the grief nearly swallowed me up. Thank you, Debbie, for lending an ear to me that morning in my panic-stricken state. Yes, we do know that Connor is now HEALTHY, HAPPY and WHOLE. We are so thankful for that, we truly are. But the human nature in us makes us miss him terribly. Everything reminds us of him. Everywhere we go, there are reminders of Connor, and of what "might have been", especially with the holiday decorations and music around every corner. Connor lived everyday of his life to it's fullest, there is no doubt about that. And, along with that, he helped us to do the same. A part of us is gone, a HUGE part of us. There is no question about it, this pain is THE WORST pain that a parent could ever experience. I'm sure those of you reading this who have been down this road know EXACTLY what I mean. As many of you have told me, the pain never goes away, only becomes more "tolerable" with the passing years.

Again, as I have done so many times in the past, I have to encourage you all to count your blessings. If you have children, cherish every SECOND of their lives. Sometimes I think, 'if only I had one more day here with Connor'. Appreciate it for all it's worth (priceless!!), while you have it. When your child reaches for you to give you a hug, or stands on their tiptoes to try to kiss you, I urge you to STOP whatever it is you are doing, and soak up that lovin' that your child is dishing out to you. There is NOTHING more important than that. What I would give to be able to get those sweet butterfly kisses from Connor each day...... Connor has always been so generous with hugs and kisses and sweet words.

I also want to ask you all to continue sharing "Connor stories" in the guestbook, if you have some to share. You don't know how much it means to us. We LOVE to hear his name! So many people tell us that they just don't know what to say around us, or they are afraid of upsetting us, so they don't mention Connor's name. PLEASE, PLEASE, feel free to talk about Connor to us ALL YOU WANT. It really helps keep us going. Thank you to those of you who have been making donations to charities in Connor's memory. Also, for those of you doing toy drives for Vanderbilt in Connor's name, THANK YOU. We are so proud to be Connor's Mommy and Daddy, as he continues to make a difference in the world. We anxiously await the day when it will be 'our time' to join Connor. But, since we are still here, we know there is still a purpose for us. Hopefully, we can make Connor proud.

**Connor, Mommy and Daddy miss you terribly. Thank you for continuing to show us signs that you are all around us! We are so glad that you don't have to hurt anymore. We know that you are keeping those streets of gold hot on your bicycle and go-cart. We can't wait until we can be with you again, and we know that someday, when God decides that it is time, we will be. Until then, we are so blessed that we were chosen to be your parents. There has never been a more special child than you. We love you, our Sunshine Boy, with all our hearts, and we will FOREVER!
Love, Mommy and Daddy**

Thanks, dear friends, for helping us along. We need you, and we appreciate you. Have a wonderful week, and a blessed Thanksgiving. Don't forget what that day is all about, GIVING THANKS. We should all give thanks EVERY DAY for all we have. Peace to all, and may God bless us all!

We love you,
~~Rhonda and Eddie, forever Connor's (The "Bravest Little Trooper's") Mommy and Daddy


Tuesday, November 9, 2004 11:04 PM CST

Hello family and friends, thanks for continuing to check in on us.

It has now been a little over a week since Connor made his journey home to Heaven. We are nearly numb with grief. Some moments are more tolerable than others, although NONE are as they have ever been before. We miss Connor more than I could ever convey with mere words. Yes, we are so happy that he no longer has to suffer, no longer has to be in pain, no longer has to even think of cancer and all it's ramifications. But, and yes, there is a but....we are completely devastated by his absence. Any of you who have had the misfortune of traveling down this road know exactly what I mean. For those of you who have never lost a child, I pray that you never have to feel a pain such as this. It is the WORST, nothing else could ever hurt this badly.

Without our faith in God, we couldn't survive this. But, we know that we WILL see Connor again, and then, we will never have to part from him again. Oh, what a glorious day that will be! God is continuing to hold us up, and we trust that He will until our time here is up. THANK YOU, God, for the gift of Connor!

Eddie and I went out to Angelheart Farm today. It was our first visit to the new location. It is absolutely BEAUTIFUL! We are so happy for Tracy, and for the program. What a peaceful, serene location, atop a hill in Nolensville. It was so good to visit with Tracy, and hear her tell some of her favorite "Connor stories". Connor sent us signs that he was all around us today while we were there, as I had asked him to do. I know that he is with us every minute, watching over us and helping us through the days. We have been going to the mausoleum each day. It is so comforting to be there.

I had promised in my last journal that I would share details regarding Connor's Memorial Service. We have had so many people tell us that they thought the service was beautiful, and a wonderful tribute to Connor's life. Connor was honored by the Goodlettsville Fire Dept. (for those of you who do not know, Connor is the youngest Honorary Goodlettsville Fireman).They stood guard at either end of the casket during the hour prior to the beginning of the service. It was so touching to watch. They also came up, and each one saluted Connor. We had a Bagpiper, (THANK YOU DANIEL!) both in the church prior to the service, and then again at the cemetery outside of the mausoleum. At the very beginning of the service, Eddie and I went up front and stood, and Eddie read the "letter" that I had written for Connor. I included the letter in the last journal, but for those who may have missed it, here it is:

To our son, our hero, our "Bravest Little Trooper"

Ten years ago, your Mommy and Daddy were blessed with the arrival into this world of you,
Connor Jordan Hunley.
Words can not describe the sheer joy of the moment of your birth,
and when we held you in our arms for the first time.
Oh how lucky we are,
God chose us, US, to forever be your Mommy and Daddy.
There could never be another loved more than you, Connor.
We have had ten wonderful, blissful years together.
People have always been drawn to you, our precious child.
That is no surprise to us, because we know that what you are
goes beyond "special".
God placed you here on this earth to help others.
You have been through so much in the past three years,
but we never heard you complain a single time.
You never asked, "Why me?"
You never lost your zest for life.
You never let the "C" word get the upper hand.
You wanted control over the situation,
and, now we can see, you had the ultimate control.
You lived EVERY day to the fullest.
We are in awe of you, and of your strength.
People tell us that we are strong.
Well, Connor, you are the reason we are able to be strong.
You taught us the true meaning of strength, courage and perseverance.
God used you in a mighty way, and He continues to use you to touch others.
As we are left here to go through each day without you,
we know that God will hold us up.
We know that you will be all around us.
You will be missed beyond words,
not just by us,
but by each person fortunate enough to know you.
We love you, Connor.
We love you with every fiber of our being.
We will be with you again someday, when God decides that it is time.
Thank you for the gift of you.
Thank you for a lifetime of precious memories.
Thank you for the love you have given.
Thank you, God, for allowing us to be Connor's Mommy and Daddy.
Forever, Connor's Mommy and Daddy.

**********

My cousin, Tabitha, then read a poem that she composed the morning of the funeral. It is as follows:

Simply Connor

C - Today is for Connor. Another day for courage. But today is Connor's day to shine. He has won. He is with his Father in Heaven. Wouldn't you have liked to see the smile on Jesus' face when He saw Connor??

O - is for Outrageous strength and ability. His endurance surpasses all imagination. Thank you, God, for Connor.

N - The first N is for Never. His willingness to Never lose faith, hope and trust in our Lord and Savior.

N - The second N is for Nana. God truly blessed Connor with the BEST Nana ever! May your light shine in the hearts of Nana's everywhere.

O - is for the ongoing comfort and strength that God will pour out for Connor's parents. He has a plan - Connor didn't have wealth, fortune, or even health, but the love he was given by his parents was much more welcomed.

R - is for Rhonda and Eddie. Words can not say enough how you two have touched so many lives. And, R is for reward. The greatest is knowing that one day you will be reunited with Connor in Heaven.

I love you so much -
~Tabitha

**********

Thank you, Tabitha, for sharing that with everyone!

We did play the song that Paige wrote for Connor. I am still trying to get it to play on this page, I'll keep working on it. The first minister to speak was Bro. Jerry Harwell. Jerry is married to my cousin, Rhonda. He did a fantastic job honoring Connor and his life. We then had the song "Drive" by Alan Jackson played. It was always one of Connor's favorites, and so fitting, as Connor LOVED to be behind the steering wheel of anything that moves! Our minister, Bro. Keith Parker, then spoke about Connor. He included an email from Jim in Illinois, and a poem by Susan, and friend and neighbor. They are as follows:

**********
Guestbook entry on Connor's web site--added on November 3, 2004 from Mr. Jim Warda in Illinois

And along came a Connor.

He, somehow, was there in my life, in so many moments.

When I was afraid, I remembered Connor and his courage.

When I was tired, I remembered Connor and his determination.

When I wanted to give in, I remembered Connor and his strength.

When I was weary, I remembered Connor and his spirit.

And, now, I think of Rhonda and Eddie, and his entire family. As a parent, I cannot imagine their pain.

I have no words.

Except to say that, along came a Connor, and we will never forget him.

Jim Warda
Gurnee, IL USA - Wednesday, November 3, 2004 10:49 AM CST

**********

Written by family friend and neighbor Susan Davault - Nov. 2004


'From Connor'

Big blue eyes
Short blonde hair
The sweetest face
you'd see anywhere
And we loved him so.

Then one day
Time it came
God said, "Connor,
Come on up and play."
And we let him go.

"Mom! If you could
see me now.
I've got a great big smile,
And Dad, I'm running,
Riding all around!
And there's NO more pain.

This is an awesome place!
I've seen Jesus' face -
I even have a go-cart
that wins every race!
And there's NO police!

Now this is what I know -
I really miss you so
But God told me
He's coming back
Any Day
And we'll all be
Home to stay!"

**********

Both Jerry and Keith did an amazing job of detailing the impact that Connor has had on so many people. We were touched beyond words.

We then played the song, 'With Hope' by Steven Curtis Chapman. The words are as follows:

WITH HOPE

1 Thess. 4:13-14; Heb. 6:9, 10:23

That is not at all how
We thought it was supposed to be
We had so many plans for you
We had so many dreams
And now you've gone away
And left us with the memories of your smile
And nothing we can say
And nothing we can do
Can take away the pain
The pain of losing you

We can cry with hope
We can say goodbye with hope
'Cause we know our goodbye is not the end
We can grieve with hope
Because we believe with hope
There's a place where we'll see your face again
We'll see your face again

Never have I known
Anything so hard to understand
Never have I questioned more
The wisdom of God's plan
But through the cloud of tears
I see the Father smile and say well done
And I imagine you
Where you wanted most to be
Seeing all your dreams come true
'Cause now you're home and now you're free

We can cry with hope
We can say goodbye with hope
'Cause we know our goodbye is not the end
We can grieve with hope
Because we believe with hope
There's a place where we'll see your face again
We'll see your face again

We have this hope like an anchor
'Cause we believe that everything God promised us is true

We can cry with hope
We can say goodbye with hope
'Cause we know our goodbye is not the end
We can grieve with hope
Because we believe with hope
There's a place
By God's grace
There's a place where we'll see your face again

written by Steven Curtis Chapman
©1999 Sparrow Song / Peach Hill Songs (BMI) (admin. EMI Christian Music Publishing

**********

Eddie and I then went up to Connor, kissed him and told him that we'd see him soon. I was able to tuck my sweet Sunshine-boy in one last time with his favorite Scooby-Doo blanket. We were escorted from the church building to the mausoleum by the Goodlettsville Fire Engines, and more Fire engines greeted us as we pulled in. There was a short service inside the chapel. Just prior to, and following the service, we had the 'Wishes' CD playing. It was the soundtrack for the nightly fireworks display at the Magic Kingdom, from when we were there in May of this year. Connor LOVED it. Afterwards, outside, we released balloons in royal blue and yellow, Connor's two favorite colors. If you have been reading the guestbook, you may have read some of the stories of how the balloons all joined back up in the sky, to make their way to Connor.

We are so touched by the show of support to us over the past three years. And, especially, to Eddie and I and our families over the past week. I want to personally thank Christian, Lu and Tammy for all you did to help us prepare for the visitation and the service, we couldn't have done it properly without your help! Thank you to EVERYONE reading this, you have all played a part in Connor's life, in one way or the other. Thank you to all who sent flowers, cards, notes, gifts, birthday greetings, prayers, the list goes on and on. Thank you to everyone who was able to come to the visitation and/or the service. We know, beyond the shadow of a doubt, that Connor has, and will continue to, impact SO MANY LIVES. Thank you all for lifting us up in prayer. Eddie and I, and our family, need those prayers NOW as much as ever. The days are not getting any easier. We miss Connor so very much, more than anyone could ever imagine. There is a huge, huge void in our lives. Connor has been the center of our universe for the past ten years. We just have to keep trusting in God to help us through the days without Connor here with us. Just getting through MOMENTS at times, is quite a challenge. Please, please keep us in your prayers. Also, please keep Cheyenne's family in your prayers. As most of you know, she passed away two days before Connor. We know that she and Connor are having a wonderful time together in Heaven. But, we also know that her family is feeling much of the same emotions that Eddie and I, and our family are feeling. It hurts, Oh, how it hurts!

Hug your children tight every day of their lives. Never let a day go by without making sure that they know how important they are. I am so thankful that a day never passed by without us telling Connor how much he meant ot us. He KNEW how loved he was, thank God!

^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^

Connor, Mommy and Daddy miss you so much! We are so thankful for all the memories that we made as a family. We can feel you all around us. We love you more than anything in the whole wide world! Don't you ever forget that, sweetheart. Mommy and Daddy will see you one day soon, when God decides it is time. Until then, please know that you are on our minds and in our hearts every second of every day. All our love, WE LOVE YOU CONNOR!!!!!! ~~Mommy and Daddy (Zoe and Doris send their love too, Connor!)

^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^


We love you!
~~Rhonda and Eddie, forever Mommy and Daddy to Connor, the "Bravest Little Trooper!"


Friday, November 5, 2004 5:35 PM CST

(full obituary at end of journal entry)
Hello family and friends, thanks for checking in. We want to start by thanking EVERYONE for all the support and love shown to us this week. God has held us up through the hardest days of our lives, as we knew He would. We are blessed with the most wonderful families, and network of friends. It was apparent to everyone this week that Connor has impacted SO, SO many lives in his ten years. He finished the job on earth that God had laid out for him, and he received his early reward. I will try to detail more about the service at a later time, I just can't put it into words right now. I will share a message to Connor that I wrote, and Eddie read, with me by his side, at the beginning of the service:

^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^

To our son, our hero, our "Bravest Little Trooper"

Ten years ago, your Mommy and Daddy were blessed with the arrival
into this world of you, Connor Jordan Hunley.
Words can not describe the sheer joy of the moment of your birth,
and when we held you in our arms for the first time.
Oh how lucky we are,
God chose us, US, to forever be your Mommy and Daddy.
There could never be another loved more than you, Connor.
We have had ten wonderful, blissful years together.
People have always been drawn to you, our precious child.
That is no surprise to us, because we know that what you are
goes beyond "special".
God placed you here on this earth to help others.
You have been through so much in the past three years,
but we never heard you complain a single time.
You never asked, "Why me?"
You never lost your zest for life.
You never let the "C" word get the upper hand.
You wanted control over the situation,
and, now we can see, you had the ultimate control.
You lived EVERY day to the fullest.
We are in awe of you, and of your strength.
People tell us that we are strong.
Well, Connor, you are the reason we are able to be strong.
You taught us the true meaning of strength, courage and perseverance.
God used you in a mighty way, and He continues to use you to touch others.
As we are left here to go through each day without you,
we know that God will hold us up.
We know that you will be all around us.
You will be missed beyond words,
not just by us,
but by each person fortunate enough to know you.
We love you, Connor.
We love you with every fiber of our being.
We will be with you again someday, when God decides that it is time.
Thank you for the gift of you.
Thank you for a lifetime of precious memories.
Thank you for the love you have given.
Thank you, God, for allowing us to be Connor's Mommy and Daddy.
Forever, Connor's Mommy and Daddy.


^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^


Please keep us and our entire family in your prayers, as well as Cheyenne's family. Each moment of each day is so difficult without Connor here. We do find such peace in the fact that Connor is now in the arms of Jesus. We know that we will re-join him some day, when God decides it is time. What a day, glorious day, that will be.....

I would like to ask that anyone who has a special memory of Connor that they would like to share, please leave it in the guestbook. Even if you have never met him, if there is anything that sticks out in your mind through the years of this web site, that maybe touched you in a special way, please share it with us. We love to hear "Connor stories". We will forever cherish each and every memory. We love you all and thank you for continuing to lift us up on this journey.

Cherish every moment, never take a second for granted, we cling to those "moments" that Connor has given us, and will for the rest of our lives.

We miss you so much, Connor! You are, and will forever be, Mommy's Sunshine Boy! Thank you for all the little signs that you are showing us and others, that you are still around us. Mommy and Daddy anxiously await the day when we can hold you, hug you and kiss you again. Then, we will never have to say "Goodbye". We love you more than anything in the WHOLE WIDE WORLD!!!!!! Nothing will ever change that! Sweet dreams, Angel-Cake, Mommy and Daddy send you our eternal love.....

We love you,
Rhonda and Eddie, Forever Mommy and Daddy to the "Bravest Little Trooper!", Connor Jordan Hunley

~~~~~~~~~~~~~~~~~~~~
Connor's Obituary:

Connor Jordan Hunley
Hendersonville, TN
Age 10
November 1, 2004

November 1, 2004. Preceded in death by his grandfather, Joe Hunley and uncle, Mike Fulton. Connor was an Honorary Goodlettsville Fireman, honored for "His Commendable Display of Bravery". He was also an Honorary Chief of Police for Metro Nashville Davidson County. He received a 'Livestrong' award from the Lance Armstrong Foundation.
He received the Southern Region 'Vice President's Award' from Kellogg's Snacks in recognition of his Courage, Strength and Inspiration to Others.
He was also the 2003 Make-A-Wish Child Ambassador for the Annual "Waiting For Wishes" event hosted by the Kevin Carter Foundation. Connor had a great love for animals, cars, bicycles, motorcycles, hockey, his Playstation 2, Monster Garage, American Chopper and his family. Due to his zest for life, you would often see him riding the halls of Vanderbilt Children's Hospital on his I.V. pole or riding his bicycle in his neighborhood all the while taking chemo. Connor touched many, many lives in his ten years here on earth. His family and friends will live with their special memories of Connor for a lifetime, until they are reunited someday in Heaven. He has now won the battle over cancer. In life's race, he has beat us to the finish line. Earth's loss is surely Heaven's gain.

If you were a star that wasn't expected back in the universe for a thousand years, I'd wait.

If you were the sky and everyone went inside when you got sad and started to rain, I'd Stay.

And if you were a peach and the world decided to get rid of all peaches, I'd pick you up, Put you in my pocket....AND KEEP YOU...FOREVER.

He is survived by his parents, Eddie and Rhonda Hunley; maternal grandparents, Carl and Diane Graves; paternal grandmother, Beverly Hunley; maternal grandfather, Neal Akins; great grandmothers, Cassie Fulton, Roberta Akins, Maybelle Graves, Clara Glaus and Carrie Hunley; uncles, Johnny Akins and Chad Graves; aunt, Tammy Wasilewsky (Shelton); and an extended and loving family of cousins, aunts and uncles; his cat, Zoe and hamster, Doris. His remains are at Hendersonville Funeral Home where the family will receive friends from 11 a.m. til 3 p.m. and 4 til 8 p.m. on Wednesday, November 3, 2004. Services will be conducted 1 p.m., Thursday with visitation starting 12 noon at the Hendersonville Church of Christ with Bro. Keith Parker and Bro. Jerry Harwell officiating. Pallbearers: Johnny Akins, Brandon Butler, Kevin Butler, Chad Graves, Jeremy Hardin and Shelton Wasilewsky.

Honorary Pallbearers: Dr. Sadhna Shankar, Dr. Debbie Van Slyke, Dr. John Brock, Nurse Kelly Newman, the entire Pediatric Oncology Clinic and Department at Monroe Carroll Children's Hospital at Vanderbilt, Mr. Jordan Stafford, Students and Staff at Goodlettsville Elementary School and Kellogg's Snack Team-Southeast Region.

Memorial contributions may be made to Caring Bridge.org; Make-A-Wish Foundation of Middle TN; Angel Heart Farms; Hugs and Hope Foundation; Make A Child Smile; Children of the Promise; or the Sumner County Humane Association. HENDERSONVILLE MEMORY GARDENS & FUNERAL HOME, 353 Johnny Cash Parkway, Hendersonville, TN, (615) 824-3855



Monday, November 1, 2004 10:49 AM CST

****Arrangements for our son, our hero, Connor****

Visitation - Tuesday, Nov. 2 - from 4-8 pm
- Wednesday, Nov. 3 - 11-3 and 4-8 pm
Both of these visitations at Hendersonville Memory Gardens and Funeral Home 353 Johnny Cash Pkwy. (Gallatin Rd.) Hendersonville, TN 37075 Phone number (615)824-3855

Funeral service - Thursday, Nov. 4 - 1:00 pm at Hendersonville Church of Christ 107 Rockland Rd. Hendersonville, TN 37075 Phone number (615)824-6622, Visitation on Thursday will be one hour prior to service at the church building.

Interment following at Hendersonville Memory Gardens Mausoleum and Chapel.

If anyone desires to make a memorial in Connor's memory, some options are Caring Bridge, Make-A-Wish Foundation, AngelHeart Farm, Hugs and Hope Foundation, Make A Child Smile, Tumbleweed Foundation, Children of the Promise, or your local Humane Society, as Connor wished to be a Veterinarian when he grew up.
Thank you all for loving our little boy!

***************

Our precious sunshine boy, Connor Jordan Hunley, went to be with Jesus at 7:40 am this morning. Nana and Poppy were here with us, as they, along with us, never left his side throughout the night. In true Connor fashion, he was fighting right up until the end. We told him yesterday, on his tenth birthday, that it was O.K. to stop fighting, and to just rest in God's loving arms. I know in my heart that Connor was thinking of us, his family left behind, when he fought through the day yesterday and through the night last night, so that he wouldn't pass on his birthday. I also know that he had many awaiting his arrival, including Uncle Mike and Granddaddy, along with all of his CaringBridge and Vanderbilt friends who made the journey before him. He talked at length about his Uncle Mike last week, even though he was three days old when Mike passed away. So, we are greatly comforted by the fact that he has MANY who will take care of him until we can rejoin him. I have to tell you, Connor had the most beautiful, peaceful smile on his face when he left us this morning. Please keep us in your prayers, especially in the coming days. We are heart-broken, heart-shattered, by the earthly loss of our "Bravest Little Trooper"....

Thank you all for your continued support, you all have made this journey much more bearable. We are blessed, beyond belief, that God chose us to be Connor's parents. I know it wouldn't be right to say that we loved Connor more than any parents ever loved their son, but I can say that there will never be another child loved any more than Connor.

We love you, our sweet sunshine boy, we will miss you with every fiber of our being until the day when we will be reunited, never, ever to part again. All our love,

Connor's Mommy and Daddy

Arrangements will be posted later. Connor will be at Hendersonville Funeral Home and Memory Gardens, but we haven't worked out all the details yet.


Saturday, October 30, 2004 9:13 PM CDT

Hello family and friends, thanks for checking in. I just want to do a short update tonight. As most of you know, tomorrow, Sunday, Oct. 31st., is Connor's tenth birthday. In my last journal, I told you all that Sunday would be kind of an Open House day here at our home. We have, unfortunately, seen a considerable decline in Connor over the past 36 hours. So, we have to change the plan. We will have family and loved ones here tomorrow, but we will not be able to do the open house. We hope you all understand, as we certainly do not want to hurt anyone's feelings. But Connor's needs are our top agenda, and he just can not handle alot of traffic at this time.

Please keep Cheyenne's family in your prayers. Cheyenne is now gracing the streets of Heaven with her beautiful presence. Her parents, Roy and Donna, and their family, are left behind to continue on without her, awaiting the day when they will all be reunited. Please also keep Kody and his family in your prayers, as he is recovering from brain surgery.

We appreciate your support. Thank you for all you are doing for us. We need an extra room to store all of Connor's birthday cards, and we are grateful. Please continue to pray for Connor. God is cradling him in His arms, of that, we are certain. Please pray for strength for all of us in the coming days. Have a safe and happy Halloween.

Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Thursday, October 28, 2004 8:22 AM CDT

**UPDATE - Saturday morning - Precious Cheyenne has joined the Heavenly ranks early this morning. Please keep her family, especially parents, Roy and Donna, in your prayers.

Hello friends and family, thanks for checking in! Well, it's Thursday.....three more days until Connor's 10th birthday! He is counting down the days. He is still being flooded with birthday cards each day. I haven't counted, but I KNOW he has received over a thousand!!! Thank you, thank you, thank you to each of you for helping to make this his best birthday ever!

His pain is finally under control, thanks to the increase in his morphine pump. Of course, in order to get it under control, he is sleeping much of the time. We can't have it both ways. As anyone who has travelled this road knows, you get to a point where you are just SO THANKFUL that they are not hurting, that you just accept the hours and hours of sleep. Obviously, we would LOVE for Connor to be awake, so that we could be interacting with him more. But, as his disease continues to advance, that is just not possible. Connor is only able to be in one position in bed, and is not able to get up at all, it is just too painful.

As I told you in a recent post, the oxygen is here, although it is not turned on yet. I talked to Connor about it again late last night. His breathing does seem to be becoming more labored, so I told him to just THINK about using the oxygen some, so that his body doesn't have to work so hard. He did tell me he would think about it.

He still has not wanted to talk about the current situation, and we are following his lead. When he is ready, we will know. We will not try to force too much info on him. We are letting him call the shots on "the talk". He is assured ALL THE TIME that we are here, right by his side, and that is where we will remain. He knows, as he is reminded often, that if he wants to talk, or has any questions, that we will be here to answer them. We do not talk about the specifics of this situation around him, even if he is asleep.

I want to send out a special THANK YOU to Kellogg's/Keebler, Eddie's work. They have been, and continue to be, so good to us. As most of you know, they sent us on a 10 day trip to Florida in May, when we learned that Connor had relapsed yet again. They also had a brand spanking new go-cart waiting for him when we arrived home. They are now allowing Eddie to be home with us, during this most crucial time. Thank you, thank you so much. Eddie is exactly where he needs to be right now, and we are thankful. They are the MOST WONDERFUL group imaginable!

On Saturday night, our neighborhood friends surprised us with a candlelight vigil in front of our house. It had been raining all evening, and, thanks be to God, the rain stopped as they were all gathering for the vigil, and stayed away throughout. It was a touching sight to step out the front door, and see all the people who came in support of Connor. A couple pf people said a few words about Connor, then we sang a couple of songs, and had prayer. Connor was asleep during this time, but we told him all about it. We want to thank all of our neighbors who participated, it meant so much to us!

We have been asking and asking about his birthday, and what HE would like for it to be extra special. Connor does not like to be surprised, so we want him to be in control of his birthday. I suggested to him, last night, that we could have kind of an open house that day, so that well-wishers could come and go, as they were able. That way, he will not be overwhelmed with alot of people at one time. He seemed to like that idea, so that is the plan. Anyone wanting to stop by on Sunday is welcome. We do have to request that anyone who has signs of sickness, such as cold, stomach virus, etc., please remember that Connor CAN NOT be around any sickness, as his immune system is so compromised right now. He has still been running a fever, and we are not sure of the nature of the infection. Any sickness right now for Connor could be most devastating. Thank you for understanding. We can not guarantee that Connor will be awake. We are praying that he IS able to enjoy his special day.

We thank you all for helping us along this journey, we couldn't do this without the help of God, and without the help of our great support system. Thank you for EVERYTHING you are doing for Connor, and for us. Most of all, thank you for the prayers that are storming heaven on Connor's behalf. THAT is where our strength is coming from. I have to send a special thank you to Connor's best friend, Jordan, who lives in our neighborhood. He has been so wonderful about coming by to visit with Connor, even just sitting with him if Connor is asleep. He is such a remarkable young man! Please continue to pray for our extended family, grandparents, aunts, uncles and cousins, as they all help us try to cope day-to-day, as they try to cope themselves. We all continue to pray for a miracle for Connor, for Divine intervention. We know so many of you are doing the same. I must say that there is not a day when Connor complains about any of this. As sad as it is to see him lying there, unable to get out of bed, we are so "in awe" of his attitude. I don't know many adults who could handle his situation with such grace. We are so blessed to be Connor's parents, SO BLESSED.

Have a wonderful weekend everyone. If you celebrate Halloween, enjoy those special moments that come on that day. Oh, the excitement in children's eyes! Cherish every moment of family time each day. Never let a day go by without thanking God for the blessings in your life, and we are all SO BLESSED. Please remember all our friends in your prayers. Cheyenne is having a difficult time, and really needs lots of prayers. Kody is recovering from brain surgery, please pray for a complete recovery. Lots of kids, lots of BIG problems, this is reality. Thank you for the prayers for Connor, please continue to pray for him each day, we THANK YOU SO MUCH! Peace to all, and may God bless us all!

We love you,
~~Rhonda, Eddie and Connor, our "Bravest Little Birthday Trooper!"


Friday, October 22, 2004 8:47 AM CDT

Hello friends and family, thanks for checking in. I want to start off by saying that we are overflowing with gratitude for the tons of birthday cards and packages, and for all the guestbook entries for Connor. Connor has gotten hundreds of cards over the past week. You don't know how much it means to us, and to Connor. Mail-time around here has gotten to be quite a production. We thank you all from the bottom of our hearts. It is so comforting to know that so many people are praying for, and caring for, our son.

Connor has not had the best week. He started running a temp on Monday. It has been up in the 104-105 range (under the arm) several times. We are not sure where the fever is originating from. He was put on an antibiotic on Tuesday, a broad-range antibiotic, so hopefully, it is going to work on the culprit. He was switched back to the morphine pump on Saturday. He told us that he thought it worked better for him than the fentanyl. The dosage has been tripled since Saturday, but it finally seems to be providing relief. We also noticed, yesterday, that his breathing seems to be more labored, with shorter breaths. His nurse (Kiersten) came out yesterday to check it, and went ahead and ordered oxygen. She told Connor, which really scared him. But she assured him that it was here, just in case, that he may not be needing it right now. Also, this week, she was not able to get blood draws for labs from his PIC line. She tried to stick him one on Wednesday in his arm, and couldn't get a vein. She talked to me and Eddie yesterday in private, and said that, at this point, it really isn't worth the stress to Connor to be poking him for labs. She said she would leave it up to us and Connor. We told her to ask Connor, and if he said, "No more", then it was no more. So, she gave him the option, and, of course he said "no more" (who wouldn't???). The oxygen was delivered last night. Thankfully, Connor was asleep at the time.

Connor has not been open to talking about his situation at length. He knows how much info he can handle. We have assured him over and over that we are HERE FOR HIM, and he can talk to us about it when he is ready. He was quite sad yesterday after the subject of oxygen came up. The year that Connor was diagnosed (2001) was the same year that Eddie's Dad, Joe, passed away two weeks after heart surgery. Connor remembers that Joe was on oxygen at the time, so that is what he relates it to. Luckily, Nana and Poppy, and my younger brother, Chad, were here yesterday, so Chad distracted him by playing video games with him. That seemed to get his mind off things.

Connor is sleeping much of the time. Some days, he will be awake for hours at a time, but he really forces himself to stay awake. He has slept through several visits this week. Again, we ask you, if you are planning on coming for a visit, please call first. That is a big help, as sometimes Connor just wants quiet. Thank you all for understanding.

Thank you all for everything you are doing to cheer Connor up! His birthday countdown is on--9 days away--Oct. 31st. Connor will be 10 years old! Thank you to everyone who has sent cards and gifts, it really has been a "birthday month" for Connor. He has gotten so many wonderful surprises. Please pray that Connor is able to enjoy his birthday. We keep asking him what he wants, and how he would like to celebrate it. He is still "thinking about it". A special THANK YOU to Paige and family for the wonderful recording of her singing her special song to Connor. It is the most beautiful thing I have ever heard.

Please say a prayer for our friends from the lists above. Kody is experiencing problems right now from possible tumor growth. His Mom, Kim, is a major supporter of all the kids on caringbridge. Kody needs lots of prayers right now. Please visit his site and offer them some of those encouraging words in his guestbook.

Thank you for the continuous support that you give to us. We are so thankful. We are thankful for each new day that God gives us as a family, and we ask for another. This is, without a doubt, a most difficult journey. We continue to ask for God's intervention, and for an earthly healing for Connor. Watching your child in pain and suffering is one of the worst things in the world, as many of you reading this know firsthand. Please keep those prayers going for us all, along with Connor's grandparents, uncles, aunts, cousins...... We all feel so helpless right now. Thank God every day if your child is healthy. Thank God even if they are not, He will carry us through. We are glad you are here, peace to all, and may God bless us all!

We love you,
~Rhonda, Eddie, and Connor, our "Bravest Little Trooper"


Saturday, October 16, 2004 7:36 AM CDT

NEW PHOTOS ON PHOTO PAGE--added 10/18

Hello everyone, thanks for checking in. Connor is sleeping at the moment, so I thought it would be a good time to update. Things are about the same. We have been working all week on trying to get down the best pain control for Connor. We are still not quite there. He was switched from a morphine pump to a fentanyl pump. He also had to have a PIC line placed in his arm yesterday. Because of the position he is in, his port access was not wanting to work. He can only lie in the one position, so we opted for the PIC line instead. Two nurses came out to place the line, and bragged on how well Connor did, they actually said he did better than any child OR ADULT they had ever had. That is our "brave little trooper".

So much has been going on this week, my mind is kind of in a fog. I wanted to share something very special, one of the MANY "special" moments in this week. Connor has a friend, Paige, whom he has known since 1st grade, just before diagnosis. Paige and her family have been "there" for us throughout Connor's illness. I have often thought that Paige would be Connor's bride some day, they just have that kind of connection. Well, one night this week, Paige, her Mom Becky, and her brother and sister, Cody and Skylar, stopped by to see Connor. Paige wanted to bring him a surprise. The surprise was a special song that SHE had written for Connor, to the tune of 'Wind Beneath My Wings' by Bette Midler. And not only did she write the song, she actually SANG it for Connor, right there in our living room. We were touched beyond words. Connor was dozing and kind of in and out of sleep, but I'm quite certain he heard every word that Paige sang. Paige, I know you all read this. As I told you that night, that meant more to us than anything imaginable. You are so special to us, and we thank you for being Connor's friend.

Yesterday, Connor was surprised by a visit from one of Nashville Metro's finest, Chaplain (Officer) Duke with the Nashville Metro Police Department. He was sent here with orders from the Chief of Police, Chief Ronald Serpas. Connor was presented an award, making him an Honorary Chief of Police for Nashville, Davidson County! He even has his own badge and Policeman's hat now. Thank you, Officer Duke and Chief Serpas, for honoring Connor in this way. He was smiling from ear to ear!

I want to thank all of you who have put the word out about Connor's upcoming birthday (Oct. 31). He has been bombarded with cards this past week, both at home and at the post office. We are amazed! I haven't taken a count yet, but I'm sure that our postman could probably use some assistance in Connor's mail delivery. Thank you, thank you, thank you all for making sure that Connor's birthday month is so very special. A special thank you to Cheyenne and family, and Ryan B. and family, for the special packages for Connor, as we know that you all are in your own battles right now. Connor has gotten so many special things lately, thank you to everyone for putting a smile on his face.

Connor's favorite "classic" show to watch is Starsky and Hutch. Since the new movie came out, he has gotten so interested in the series. He has the first two seasons on DVD, and watches them all the time. Well, this past week, he got an email from David Soul (Hutch), and an autographed photo with a personal note from Paul Michael Glaser (Starsky). He couldn't believe it. He also really likes Loretta Lynn, and he got an autographed photo with a personal note from her as well, along with her newest CD. Thank you to everyone for making these things happen.

We want to thank everyone for all you are doing for us. I can assure you that the Hunley's will not go hungry, there has been a continuous supply of food brought to us this past week. Thanks to all who have brought things by. Thank you to our church family, and to Christian for coordinating meals for us. Thank you, also, to the Cushman's (Sadie Grace's parents and grandparents) for all the food you have been bringing by. Thank you for all the visits and phone calls. Please, if you are thinking of a visit, please just give us a call first to make sure it is a good time for Connor. He can become overwhelmed, and we want to keep that from happening. We want him to be as comfortable and "at ease" as possible. Thanks for understanding.

We are so fortunate, and so humbled, to have you all in our lives. This is a most difficult journey, but we know that we are not alone in this. We do continue to pray for God's intervention, for an earthly healing for Connor. We know that it is all in God's hands. We claim Connor's healing, in His name. Among the countless cards this past week, came an envelope from White House High School, which is about 20 minutes from where we live. One of the classes made Connor cards on the computer, each student designing his or her own card. The cards were ALL special, but there was one that really caught my eye, because of one line in the card. The card was made by Kellye Rainwater, and read as follows: "The strongest wishes for your comfort and healing are being made. THERE IS ALWAYS SOMEONE PRAYING FOR YOU. Keep your faith, and know that you are loved." That one line--There is always someone praying for you-- stopped me in my tracks. As I thought about it, and thought about this web site, and all the support that comes through it, I realized that Kellye is exactly right. With all the prayers going up ALL OVER THE WORLD, there is most likely SOMEONE, SOMEWHERE, praying for Connor at all times. How comforting that is to me, Connor's Mom! Thank you, Kellye, for making me see that. And thank you ALL for being here for us! Please continue to pray for Connor, and for all his other friends fighting battles of their own. And please always remember to pray for the families of the children who have gone on to the glory that is Heaven. Have a wonderful weekend, make the MOST of each day with your family and loved ones. Every moment is precious, never take a single one for granted. Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, October 12, 2004 9:18 AM CDT

Hello friends and family, thanks for checking in.

October 12, 2001--three years ago to the day......we heard the words for the first time...."Connor has cancer". Our lives would change FOREVER. Connor's "carefree" childhood was no longer. Everyday "normal" routines ceased to exist. Simple, mundane worries and troubles took a back burner, and were no longer even worthy of a thought or comment. Our journey into the "childhood cancer" world began. Yes, it happened to "our" child. It was no longer something that could be avoided by a change of a television channel, or by turning our head another way. Our child was starting what would be, and continue to be, a battle for his life. Our six year old child, in 1st grade, whose biggest challenge was getting up in the morning to make it to school on time. The challenge had now shifted to making it through TODAY and praying that TOMORROW would be a good day. Those first days, weeks, months....I can still see Connor, at home, lying on the sofa, as run-down as anyone could possibly get. Eyes weak, hair coming out, but spirit as strong as ever. Thank God for our "strong-willed" child! Three years later, I know that it is that same "strong-will" that has allowed Connor to muster up the strength to keep fighting, even when his body is telling him something entirely different. Three years of our lives, one third of Connor's entire life.....fighting for another day......

We are so overwhelmed by the outpouring of love and prayers through this website. Scroll down through Connor's guestbook, as Colette talks about in her recent posting, and you will find that people from ALL OVER THE WORLD are lifting Connor in some of the most heartfelt prayers I have ever heard. We are thankful, SO THANKFUL, to have you all "with" us each day. We feel those prayers, right to the core of our being. THANK YOU, THANK YOU ALL!

Connor has been doing O.K. since I posted on Friday. I use that term loosely. He is still in a lot of pain, despite the heavy, heavy pain medication. We did meet yesterday, here at home, with the Hospice nurse and social worker. They were so helpful and caring. Connor wanted us to talk somewhere else, so that he couldn't hear us. He does know that his cancer is back, but he told us he did not want to hear anything more, so we will let him control how much info he can handle right now. We assured him that we will be with him, right by his side, and that when he is ready to talk more, or ask any questions, we will be there. He knows what he can handle, and what he isn't ready for. We are sure that, in his mind, he probably already knows. As far as Hospice, he just knows that it is another Home Health team that will be coming out, so that he can be at home, and not in the hospital.

Some days, he sleeps all day, other days, he is awake much of the day. He has had lots of visitors, sometimes he sleeps through the visits. We ask that anyone wanting to come by to see him, please, please call first. If it is not a good time for Connor, we will let you know. He becomes overwhelmed, at times, with everything, and is not always in the mood for company. Please try to understand. Our priority right now is to keep Connor completely comfortable and at ease.

We appreciate all the cards, gifts, phone calls, visits, food, guestbook entries, and all that you all are doing for us. I'm not able to answer emails right now, as my time is Connor's, but I do read them all, and appreciate all the kind words. We know, without a doubt, that God has us in His loving arms, carrying us through each day. Our strength comes from Him. We ask that you continue to pray for Connor, for the pain to subside, and for him to have some happy, joyful moments. Cancer is so cruel, but we can not let IT control our precious days. We are thankful for each new day, and we ask God for another. Life is so precious, yet can change in the blink of an eye. Make the most of every day, do that for Connor. Please always remember our other buddies going through their own battles, and for those families who no longer have their child with them here on earth. Peace to all, and may God bless us all!

We love you!

~~Rhonda, Eddie, and Connor, our "Bravest Little Trooper!"



Friday, October 8, 2004 7:32 PM CDT

Hello friends and family, thanks for checking in. Oh how I wish I could give some positive news. The scan results were confirmed. There is now metastasis disease in all areas of Connor's lungs, all throughout his liver, and in the area outside the perimeter of where the tumor was removed, into his right thigh. We are so heartbroken. Nana and Poppy stayed with Connor today while Eddie and I went down to meet with Dr. Shankar and Dr. Debbie. We haven't been home long. Hospice will start coming out the first of next week. We met with them while we were at the hospital today, as well. Connor will start on a chemo drug, VP16, but it is NOT a cure. It could slow down progression of the disease, OR it may not. We will try it, as it is not as toxic as other chemo drugs. No chemo or radiation would be curative now. Connor is considered terminal. We will work with hospice to get down a good plan for pain management. This could involve another epidural. He slept all day long, only waking for a few minutes at a time. I'm going to end this update by asking for you all to continue to pray for Connor, for us, and for our families'. We are so blessed with such a great support system. I will try to update as often as I can, to keep you all informed. Thank you for helping us along on this journey. We will continue to look to God for guidance and strength, this is in His hands, as it really has been all along. Please hug your children tight, make sure they know how loved they are, EVERY DAY. Peace to all, and may God bless us all!

We Love You All!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Monday, October 4, 2004 9:37 PM CDT

**Update--Wed. morning 10/6**
Connor will be re-scanned Thursday (10/7) afternoon at 2:30 pm. Eddie and I will then have a meeting with Dr. Shankar on Friday afternoon at 2:00 pm to find out and discuss the results. Please continue to pray for a miracle. Thank you all so much for the wonderful messages you have been leaving in the guestbook. We read them ALL, and they mean so much to us! I'll update when I have more info.

Hello everyone, thanks for checking in. I want to start by asking for URGENT PRAYERS FOR CONNOR. He had scans last week in preparation for his upcoming radiation treatment. Dr. Shankar called me back this morning with the report. Connor now has "multiple" new areas of concern showing up in all lobes of his lungs, the largest being in the right lower lobe. In addition to that, he has "multiple" new areas of concern in his liver, varying in size, in both lobes of his liver, (quoting)"extremely numerous". Since contrast was not used for the scan, he will be re-scanned with contrast this week, the scan has yet to be scheduled, just to confirm the findings. This is, of course, the worst possible news. After the next scan, we will meet with Dr. Shankar to discuss what's next. It is so difficult for me to imagine that after all Connor has been through, and still going through with regards to his recovery from surgery, that the cancer has metastasized this quickly. He is still in the hospital bed, here at home, the majority of the time. He is still using his walker, and his wheelchair. He is not eating much of anything, some days absolutely nothing. I am hooking him up to his TPN each night. It supplies half of the nutrition that his body needs. Along with all of this, his leg pain is back. I will be doubling one of his pain meds, per Dr. Shankar's instructions, to try to bring him relief from the pain. He had seemed to be doing so well with his recovery. But the past few days, he had seemed to be declining. We went to Nana and Poppy's yesterday for the first time since before surgery. He enjoyed being up there, even if he was lying down the entire time, and sleeping alot. He had the scan on Thursday of last week. Then, on Friday, he had a minor surgery to change out his suprapubic catheter, as it had become completely clogged. It was going to come out that day, but Dr. Brock made the decision that morning to leave it in for a few more days, which is a good thing.

He had been scheduled to start radiation on Oct. 18th, twice a day for two weeks. Of course, if the findings are confirmed, that plan will certainly change. I will update with more info as I receive it, so that prayers can be specific. Thank you all for the birthday greetings for me. Connor wrote out a special card for me, and gave me a stuffed kitty that looks like Zoe. It meows and purrs. He also INSISTED on giving me $23, I have it tucked away, he refused to keep it himself. So, even though he had to have surgery that day, the best gift in the world was that we were together as a family, that is all that really matters. Connor does not know this latest news yet, and will not know until it is confirmed. In my worst nightmare, I can't even begin to imagine that conversation.

Thank you all for standing by us. We need you all now more than ever. We are thankful for you all. Please continue to pray for Connor's miracle. God is carrying us, of that I am certain. Peace to all, and may God bless us all.

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Sunday, September 26, 2004 7:32 AM CDT

Hello family and friends, thanks for checking in. Connor is doing well at home. He is still in the hospital bed most all of the time. He had physical therapy come out twice this past week. He had the same lady both times, and he really likes her, which is a huge plus! She came out on Tuesday, worked with him for about an hour, and kind of laid out the goals she would like for him to be able to achieve over the next few weeks. Thursday, he had three different appointments at Vanderbilt, so Eddie and I had the task of getting him down the steps in our house, and out to the car. We had him all situated in his wheelchair, ready to carry the chair, with him in it, down the steps. Connor decided, at the last second, that he wanted to try the steps himself, with us supporting him. So that is exactly what he did. We were SO proud of him. The day was rather tough on him, as he had not been "up", out of bed, for more than an hour at a time. But, he did so well. We went to the clinic to have his needle pulled from his port, and emla put on for a new needle. Dr. Debbie and Nurse Ann were so great with Connor, doing whatever it took to make him comfortable, thank you ladies! Then, we were off to Dr. Brock's office to discuss the catheter situation. By the time we made it to Dr. Teng's (Radiation Oncologist) office to discuss the upcoming radiation, we were running quite late, and he had had to leave. So, we re-scheduled for tomorrow (Monday, the 27th), and made our way BACK to the clinic to meet back up with Ann and Debbie. Ann re-accessed Connor's port, and we were outta there. Have I mentioned before what a fantastic "medical care team" Connor has at Vanderbilt?? On Friday, when Gretchen (Physical Therapist) came back out, she was SOOO impressed with Connor's progress since Tuesday. He went down the stairs with her, and back up again. Way to go, Connor!!!

In reading the guestbook, there appears to be some confusion as to the radiation treatment. Connor did have five treatments of brachytherapy (bead therapy) in the hospital, prior to the pathology report coming back from surgery. It was then decided to stop the brachytherapy, and plan for external radiation, as there was still cancer remaining, in spite of the radical surgery. It was necessary for Connor's body to heal up from surgery before starting the radiation. He will be re-scanned this week, providing he has healed up enough, then the radiation will be planned, based on the scans. It should start in a week or so.

I'm so sorry that so many of you have been having problems posting to the guestbook. It appears to be an overall caringbridge problem. It seems to happen periodically. Hopefully, this week will see great improvement for that problem. Thank you for your patience, and for your diligence in getting the wonderful messages to Connor, and to us.

I must say a GREAT BIG THANK YOU to our church family, and to Valerie and her 12 year old daughter, Brianna, for spearheading the yard sale that was held yesterday for our family. There was an overwhelming response, the weather was perfect, and it was a complete success. THANK YOU to the countless people who were involved in this! I know this was a huge undertaking, and we are thankful to all who donated their time and energy for us. Thank you, thank you, thank you!!! We certainly are blessed with such a fantastic support system, and with so many people who love and care for Connor!

We have a new addition to our family. Our wonderful neighbor, Susan, who has been a great friend to me, brought over her "mama" hampster and 9 babies last week for Connor to "hampster-sit". She thought this would lift his spirits, and it did. She told him that he could have one of the babies when they were big enough. When she picked them up, she brought over one of the older males that she already had, to show to Connor. He fell in love with it, so she gave it to him, instead of one of the babies. He named it Doris, from "Home Alone 3". (Yes, I did say it was a male!) Connor LOVES Doris. He has wanted a hampster for so long. Thank you so much, Susan, for making this wish come true for Connor! Doris is actually quite cute, he is a black bear hampster. He wears his wheel out each night. This morning, I was awakened by a crash. I investigated, and found the cage in the floor, thankfully still closed, with Zoe, the guilty party, standing beside it, peering in. She, naturally, is NOT impressed with our new family member. But, we have been loving her up alot, to let her know how much we love her. She has been exercising tons of self-control, in regards to Doris, but this morning, she gave in to the temptation.

I'll let you all know, when we find out the plan for radiation. Nana and Poppy are coming down tomorrow, to help me get Connor to Vanderbilt. Thank you all for continuing to encourage our family. A special thank you to Rita, from New Jersey, for the absolutely beautiful graphite drawing of Connor and myself, that she made from the photo on the photo page. We received it this past week. Thank you, also, to my friend, Christian, for our "dinner out" on Friday night, I really needed that! We are so blessed to have so many people praying for and supporting Connor. Please continue those prayers for him, and for all of the other children battling. Please visit Justin's page (link above), and offer condolences to his family. He passed away this past week, after his two year battle. He had just turned 18 on Sept. 17th. He never lost his faith, and always kept his eyes focused on Jesus. He was and continues to be an inspiration to us all.

Have a wonderful week, everyone. Thank God each day for all the blessings in your lives. Hug your children tight, and make sure they KNOW how much you love them, and how thankful you are for them. We appreciate you all, each and every one. Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Saturday, September 18, 2004 7:58 AM CDT

Hello everyone, thanks for checking in. I am doing this update from HOME!!! We got to come home on Friday evening, after 17 days in the hospital. To quote Dorothy, "There's no place like home...". Zoe (our cat) was nearly turning cartwheels at the sight of us coming in the door. We were just as happy to see her.

We had to have a hospital bed delivered yesterday before we came home. It is similar to the air bed that Connor had in the hospital. We tried him on a regular hospital bed on Thursday, but he was in too much pain. We did set this bed up in our living room, so that Connor is more centrally located in the "hub" of activity. We had a nurse come out as soon as we got home last night, to show me how to do the TPN nutrition feedings that he is getting at home. It runs each night from 8:00 pm to 8:00 am. His doctor wants this to continue until his eating picks up enough, continually, to know he is getting what his body needs.

His physical therapy has been going well since my last update. Wednesday and Thursday, he took steps with his walker. He also sat in the wheel chair on Thursday on his special Roho cushion for about an hour. Karen, his Physical Therapist, wanted to make sure he could sit as long as it would take for us to drive home in the car. An ambulance could have brought him home, if necessary, but he did OK with sitting. It was made a little easier, because Jennifer, Laurie, Tiffany, and maybe even more that I'm not aware with, with Child Life, arranged a scavenger hunt, just for Connor. So, once he was situated in the wheel chair, the hunt was on. It took us from the 8th floor, to the first floor, the second floor, and back to the 8th floor playroom. At the end, he got lots of great surprises. It looked like Christmas in September. But it did lift his spirits, that's for sure. Thank you to everyone who made this happen!

I'm not going to talk much about the colostomy and urostomy, to spare Connor embarrassment, but I do want to share one thing. On Thursday, I had requested that the stoma nurse come by, so that I could change out the colostomy bag, by myself, before we went home on Friday. I wanted to make sure I felt comfortable with it. To our surprise, Connor wanted to do it himself. Becky, the nurse, talked him through it, and he did the entire procedure! We were so proud of him!

I want to say THANK YOU to the amazing medical team that Connor has had over the past two and a half weeks. From the nurses on our arrival morning, to the surgeons, anesthesiologists, OR nurses, 8th floor nurses, care partners (Hi Tina!), Child Life staff, especially Jennifer and Laurie, Radiology staff, PICU nurses and staff, EVERYONE played a part in making Connor comfortable. We thank you all from the bottom of our hearts. A special thank you to Kelly, Connor's favorite nurse from clinic, she came up on a couple of different occasions, to his room, to help ease his anxiety. She came up Thursday, at Connor's request, because his port needle needed to be changed, and he is most comfortable with her. Thank you, Kelly! So many people were involved with Connor's care, and we are thankful for each of you. He really bonded with one of his nurses, Dana. She and Connor actually had a "date" on Thursday night, to watch the premiere of Survivor. Thank you, Dana, for the special attention to Connor!

Connor will have a Physical Therapist coming out to our house starting Tuesday, for as long as he needs. Hopefully, this weekend and Monday, he will work well with Eddie and myself. I'm hoping that being home with his friends stopping by, will motivate him to work even harder. He really has done such an amazing job!

We give God the glory for Connor's remarkable recovery from surgery. It has been a long process, but each day has been better. We now concentrate on starting the external radiation to rid Connor's body of remaining cancer. We meet this next Thursday with Dr. Teng, Radiation Oncologist, to discuss the plan. He will be re-scanned just prior to starting the radiation. We pray, we pray and we pray some more that this is the miracle we have been waiting for.

We are living for TODAY. We are thankful for TODAY. TODAY is really all any of us have. When our minds start to wander to tomorrow, we remind ourselves that all we can handle right now is TODAY. God will get us through TODAY, then He will be waiting for us in tomorrow to get us through that, as well. We thank each of you reading this. You have all been so good to us, and we are grateful. A big thank you to Nana and Poppy for all you have done, and for allowing Eddie and me a couple of hours a couple of different times, to get out of the hospital for a while. Colette, my dear, thank you for the beautiful guestbook entries that you leave, taking such time and attention with each one. So many of you have been a continuous source of encouragement for us, and we thank God for you ALL! Thank you for continuing to check up on Connor. Thank you for signing the guestbook. Thank you to those of you who stop by, but maybe aren't comfortable signing or don't know what to say. We are glad you are here, regardless. Thank you to everyone for the gifts, cards, balloons, calls, thoughts and prayers. I must tell you, everyone at Vanderbilt who came into Connor's room, commented on the "decorations" in his room. I put each card he received since surgery on the walls. His room was COVERED in cards and balloons. It was very cheerful.

Please continue those prayers for Connor. We are waiting for that earthly healing. We pray that the radiation does it's job. We trust in God to see that that happens. Please keep our friends from the list above in your prayers, as well. Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Monday, September 13, 2004 4:20 pm

Hello everyone, thanks for checking in. Connor seems to be doing well. Alot of you have commented on Connor eating the 26 shrimp on Thursday. He actually hasn't eaten much of anything SINCE then. Eddie goes out and picks up whatever he might be craving at the moment, but he doesn't seem to have much of an appetite. He is on the TPN tube feedings now, so I'm sure that just makes him feel full. He did just put in a request for more shrimp tonight, so hopefully he will chow down again. He certainly doesn't need to lose any more weight.

Saturday morning, he was sedated here in the room. The doctors took the bandage off his bottom, removed his staples and put steri-strips on, and removed his epidural. Later that day, Karen, his Physical Therapist, came by and worked with him. He sat on the edge of the bed for five minutes or so. Plus, he let us move him into his therapy chair, where he sat for about 45 minutes. He did such a good job. The chair is on wheels, so we were able to roll him around the hall. It was the first time out of his room in 10 days. On Sunday, he sat in his chair for about 5 or 10 minutes, but was hurting too bad, so we moved him back into bed.

There is a rumor that we could be going home in a few days. I think he has a ways to go yet, physically, but if we can get him to a going-home point, he can recuperate much better AT home. He is missing his friends, and most of all, ZOE (his kitty), pretty badly. He will be going home on the TPN feedings, until his appetite picks back up to an acceptable level. He will also have to have physical therapy at home. All of that is still being set up.

Connor has an appointment on Sept. 23 with Dr. Teng, the Radiation Oncologist. Sometime shortly thereafter, he will be re-scanned in his pelvic area. He will then receive the external radiation. A definite plan for duration and times-per-day has not been determined yet. He will have to be healed up well enough from surgery first. We are looking at around the first week in October for the radiation to start. We PRAY with every ounce of our being for this to be the miracle we have all been waiting for, for the radiation to kill the cancer cells FOREVER from Connor, never to return again. AND, for it to be an earthly healing. We are out of options, medically. That is why we are just trying to think about TODAY, and TODAY only. We will trust and believe that the radiation will do the trick. AND, for the rhabdo to never be able to grow again.

Thank you all for being here with us. Yes, we are frustrated. Yes, we are discouraged. But NO, we are not giving up. I know I sound like a broken record saying that, but I always want to emphasize that. Connor isn't giving up, so we will not give up on him. People have asked how he is feeling emotionally, I must say, I think he is doing a fabulous job staying positive. Even with all the changes since surgery, he seems to be adapting as well as anyone possibly could. I am so proud of him, he is my hero. Please keep him in your prayers. We appreciate everything that everyone is doing for us. Thank you, thank you, thank you for each and every kind act towards our family. Please also remember to pray for our friends. Sadie Grace is in Vanderbilt now, just down the hall from us, and is having a difficult time, please pray for her family to get some answers, so that a solution can be found. Nikie is at home, but needs tons of prayers, as well. Jason needs your continued prayers, as he continues his new chemo regimen. Justin just lost his aunt this past week, please pray for his family. Cheyenne is recovering from brain surgery. Lots of children, lots of problems, lots of Moms and Dads wishing they could take their place, lots of prayers needed......

Take care, have a great week, count your blessings, hug your children TIGHT,

We love you all!
~Rhonda, Eddie and Connor, our "Bravest Little Trooper"!


Friday, September 10, 2004--8:00 am

**UPDATE**Friday morning
The pathology report came in yesterday. He had some positive margins, meaning cancer is still present. The part of the tailbone that was removed during surgery, as the tumor was pressing against it, also had cancer cells in the marrow. The doctors do believe, however, that it WAS confined to the marrow in that one bone, they said it was direct growth and localized. So, as things often do, the plan has changed. He had his last bead therapy treatment Thursday evening, and the tubing was pulled that went into his body to deliver the therapy, while he was still under sedation. He will continue to heal up from surgery.

In approximately three weeks, he will have either three weeks of everyday external radiation, or two weeks of twice a day external radiation. Please help us pray about this. The surgeons said that the report brought no "real" surprises to them, but, of course, we were hoping for better news. It was like being kicked in the stomach. This cancer is so relentless, we have to be just as, and even moreso, relentless and diligent with our prayers. The devil is really working overtime trying to bring us down, we have to stay positive. Connor will most likely have to try to sit in a chair some either today or tomorrow. He hasn't been out of bed in a week and a half. He will also require some physical therapy, and we will be going home with continued physical therapy. He will have the epidural turned off later today, to see how he does with oral pain meds. If he still needs the epidural, they can immediately turn it back on. He has had the absolute BEST Anesthesiologist/Pain Control team imaginable. Hopefully, in a few days, Connor can try to walk some.

On a much lighter note, last night, when we returned to the room from radiation, Nana and Poppy had brought us dinner. Connor was so hungry, he ate 26 shrimp! He had me count the tails when he was finished. Just thought I'd share that with you, he was so proud!

Please keep Connor in your prayers, he has a long way to go yet, and he is certainly not out of the woods. We will continue to trust in God for Connor's earthly healing. Thank you for being here for us! We love you all!


Wednesday, Sept. 8, 2004

Hello everyone, thanks for checking in! Connor's recovery seems to be going well. Thank you for all the heart-felt prayers for him. He was able to go back on solid foods as of this past Saturday. He hasn't eated a whole lot, so I think they are going to put him on TPN feedings, which he has never done before. He really can't afford to lose any more weight. He still has his epidural in, and it will probably remain for a few more days. We have been raising the head of the bed up some, trying to prevent pneumonia. He will be in bed until the brachytherapy (bead therapy) is complete, which should be Monday of this next week. He started it on Tuesday, having one treatment that day. He had two treatments today. He will have two on Thurday, two on Friday, and two on Monday, and, as of right now, that will complete the therapy. The tubing that is in place now will then be removed, and then more movement will be allowed as he continues to heal. His surgical incisions seem to be healing up nicely.

We will be having a stoma nurse come by in a few days to do the teaching for the colostomy and the urostomy. Connor has been opening up a little at a time, and asking me a few questions. I know he will adjust, it will just take some time. He has always amazed us before with his resilience, this time will be no different.

The pathology report from the surgery is not back yet. Hopefully we will hear back from it within the next few days. We pray, OH HOW WE PRAY, that this radiation will kill out any and all cancer cells at their root, never to return again!

We thank you again for all the support you are giving us. We are so thankful to have such wonderful family and friends. Thank you so much for all the cards, gifts, phone calls, visits, meals, and mostly, PRAYERS, for Connor. We are blessed in so many ways! We also want to thank Connor's entire medical team. He has some fantastic doctors and nurses! Please also keep Connor's grandparents and extended family in your prayers. This is really taking a toll on everyone. But, we WILL get through it, one day at a time. Please, if you can, say a prayer for all of our friends from the links above, I know they would all greatly appreciate it. Peace to all and may God bless us all!

We love you!
Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Friday, September 3, 2004 4:07 PM CDT

Hello everyone, thanks for checking in! Thank you for the tons of guestbook entries! You don't know how much it means to us to read all of the wonderful words of encouragement. Connor is doing O.K. He is in a regular room now, he was moved Wednesday evening. This morning, he had to go down to radiation for a CT scan for planning of the bead therapy that will start on Tuesday. The tubing was placed during surgery. The therapy will be for a total of seven days, twice a day. But it will not be for seven days in a row. It looks like it will be given for three or four days, with a three day break, then the remaining three or four days. Connor went down to radiation on his bed and was sedated for the test. He will be sedated each time for the treatment, which is good news, as he will be quite sore for quite some time. Right now, the only body movement he is doing is rolling slightly to one side, with pillows placed underneath his back. He stays like that for two hours, then alternates to his back and to the other side. He has the epidural in place, and will likely have it for a while yet. Today is his first day being on clear liquids. He hasn't eaten since Sunday, and is asking for food. But, his body is not awake good enough yet for that. We have to know that his system is working well enough. He has not seen anything on his body that was done from his chest down. When the nurse or doctor is checking it out, he always says he doesn't want to see. But, ONE DAY AT A TIME. He is completely overwhelmed right now, and who wouldn't be with all he has been through.

We thank all of you who have stopped by, those who have sent cards, those who have called, those who have brought food, and especially all of the prayers. As each day goes by in Connor's recovery, we are seeing the need more and more for him to be able to rest. We are needing to ask that right now, if you are thinking about coming by to see him, that you call first. He became quite upset today with everything, and the nurse had to put out a 'no visitors' sign on his door. When he gets upset,his stomach incision is aggravated, and it is hard to calm him down. Please try to understand. We are so thankful to you all for wanting to see him, we truly are, but maybe after he heals up some, it will be a more pleasant visit. Right now, he needs "quiet time" more than anything, time to adjust to all that has taken place.

We are thankful for you all. I tell people all the time just how wonderful this web site has been for us. We thank CaringBridge for offering this service free to families going through medical situations. So many of you who are praying for Connor might not have ever known of him had it not been for this web site. Please continue to pray for Connor. Please pray for the radiation therapy to kill any remaining cancer cells. Please pray for Connor's physical healing and emotional well-being. We pray that his pain is 100 percent controlled 100 percent of the time. Please pray that Connor adjusts well to the changes that have taken place as a result of the surgery. Thank you all for being here on this journey with us, you could have gotten off the boat at any time, but you haven't, and we appreciate your support. We love you all, have a wonderful weekend, spend some GOOD QUALITY TIME with your family, that is so important! Remember all of our friends from the lists above, and keep them in your prayers as they fight their own battles. Peace to all and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Wednesday, September 1, 2004 11:53 AM CDT

Hello everyone, thanks for checking in. Just wanted to update everyone, as I know you are waiting to hear how Connor is doing. Thank you, Lu, for the update in the guestbook. Connor came through surgery well. As Lu said, the tumor was the size of a cantelope. They removed it with Connor on his stomach. After that, the Radiation Oncologist placed the tubing, so that Connor can get the radiation bead therapy. They then turned Connor from his stomach to his back and did the colostomy and urostomy. Before finishing up, they put in an epideral for pain control. He did end up having to go the the ICU unit overnight. He was alert, but very groggy last night. They increased his pain meds twice during the night. I had to leave his room this morning for nurse shift change for an hour. When we got back in there, he was awake, with his eyes open. We are concentrating right now on his pain, trying to manage that as well as we can. He did so good this morning, the nurse had to have him roll on his side just a little to get him off his back. He did remarkably well. He is on an air bed, which should help with healing and pain issues. He will be in bed for probably two weeks. I know that sounds like a long time, but the radiation therapy can't start until he has healed up for at least 7 days, then the therapy itself will be for 7 days. The tubing that is placed doesn't need to move around alot. Plus, Connor had quite an extensive surgery, so that healing time will do him well. As far as the cancer goes, the surgeons told us that they "do not feel as good about the margins as they did after surgery last year". This, I understood them to say, is because of the size of the tumor. It was encompassing the entire pelvic area. So, even though they removed the tumor, there could be lingering cancer cells that could not be seen by the naked eye. They did say that the surgery went "as well as could be expected". That is why the radiation therapy is so crucial now, to kill any cancer cells that may possibly be remaining. That is our specific prayer. Plus, for Connor to have a smooth, painfree healing process. We were thankful that Lauren's "Sissy", Jennifer, was in the operating room yesterday with Connor. She did a wonderful job keeping us updated throughout the day. Thank you so much, Jennifer!!!

We were so overwhelmed by the number of people who came out in support of Connor yesterday. The waiting room stayed nearly full of Connor supporters. Thank you to ALL OF YOU who sat through those long hours with us yesterday, and for all the phone calls checking on Connor. And, thanks to those who brought food, we stayed well-fed. You all mean so much to us.

Please keep those prayers going for Connor. I'll try to update when I can. I do not have a computer in the room, so I'm not sure when I can get back in here. Connor may actually be moved into a regular room later today. Thank you all for being here with us, even in spirit! We love you all!

~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Monday, August 30, 2004 9:59 PM CDT

Hello family and friends, thanks for checking in. Surgery is tomorrow, in about 9 1/2 hours. We spent most of the day today at Vanderbilt, in preparation for surgery. It was not a pleasant day, by any stretch. We left there at almost 7:00 pm, so we are busy packing now. As far as we know, everything is still the same regarding the actual surgery, if you haven't already read it, you can go to 'Journal History', and read my last entry. I did get the report today from the MRI on Friday. Not good news. The tumor has continued to grow, despite trying the latest chemo. It had grown 3 centimeters in a month. It is no wonder that Connor's pain has been on the increase. The chest CT scan report wasn't in the system yet, so we will find out about that tomorrow. Today was one of those days when you feel as though NOTHING is going right. I know that the devil is working overtime to get us down, hoping that we will not be able to get back up. But, we will not let that happen. Connor continues to amaze me with his strength and resilience in the midst of adversity. He is still fighting, and we are still not giving up. Your prayers are carrying us right now, no doubt about that. So, I want to ask you all to please, please continue to pray for our son. We are going in tomorrow with the belief that Connor's miracle awaits. 'Ask, and it shall be given to you.....'

For those of you who have emailed and asked--the surgery will start at 7:30 am, and will be an all day surgery. The waiting room is on the Third floor of Vanderbilt Children's Hospital. When you get off the elevator, the waiting room is right there. I will update as soon as I possibly can. It may be that I have someone do an update for me, after Connor is out of surgery. We know that you all are going to cover Connor in prayers tomorrow, and we are so grateful to you all for that. We appreciate all the acts of kindness on Connor's behalf. Thank you, thank you, thank you. We are blessed! I am including the prayers requests from my last entry:

Please pray for Connor, for so many things......


----his emotional state, that God will grant him a peace about surgery and treatment

----his pain, that the new meds will make it STOP

----the surgery itself--that it goes better than anyone expected, that the surgeons make the right decisions, that every cancer cell is removed from Connor's body

----recovery from surgery--that Connor is kept comfortable, his pain controlled, that he adjusts well to the procedures performed during surgery

---that Connor will remain forever cancer-free, and grow up to be a happy, healthy, well-rounded Christian man!



We love you all!

~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, August 24, 2004 5:09 PM CDT

**UPDATE: MONDAY MORNING--no word yet on Friday's scans. We are leaving for a couple of appts. at Vanderbilt. I will do an update tonight if we find out anything new today. Thank you TONS for all the encouragement you are giving us as we await tomorrow's surgery.....

**Check out the August 31st issue of Woman's World magazine (usually located at the check-outs), there is a story on Tracy and AngelHeart Farm. Connor, Gabe and several of our friend's pics are included with the article. I can't find a link to it online. Thanks, Ellen H. in Florida for letting me know about it. Also, Gabe's Mom, Lu, wrote a beautiful letter to our local newspaper. Check it out if you can: Lu's Letter. You can go to Gabe's site here.

**********
Hello everyone, thanks for checking in. We are doing O.K., just trying to take things one day at a time. We have been back and forth to Vanderbilt ALOT lately, in preparation for surgery. Connor did complete the five day course of Topotecan/Cytoxan. He seemed to do well with the chemo, never actually getting nauseous-sick. It did wipe him out physically. We are just glad to have it over with. He has already had one platelet transfusion since finishing the chemo, and we anticipate another platelet transfusion, and possibly blood transfusion, on Friday. We just came from the clinic. We talked to Dr. Shankar about pain control for Connor, as his pain has definitely been on the increase in the past several days. We are going to try a couple of new things, hopefully, we can get the pain under control.

The next scans will be this coming Friday, August 27. A pelvic CT scan will be at 4:00, a chest CT scan at 4:30, and a pelvic MRI at 5:00. Wouldn't it be just wonderful if those tests all came back clear??? As far as the surgery goes, it is scheduled for Tuesday, August 31st, starting at 7:30 am. It will be a HUGE surgery. There is no way to know how long it will last, as so many things will have to be decided in the operating room. But, we anticipate an all-day surgery. The tumor is, of course, in his pelvic region, in a difficult place to get to. Since this is the third time in the same location, Connor will have to have a colostomy and a urostomy. As difficult as that is to type, we have been told that this is our only chance at saving our child. With the tumor continuing to grow, it is already affecting Connor's bodily functions, and will continue to escalate if we do not act immediately. Believe me, we have looked at this from every possible angle. This cancer is relentless, and we have to be relentless in our fight to rid Connor's body of it. Connor wants to grow up, and live out his hopes and dreams, and we will do everything possible to make that happen. We know that Connor has an outstanding team of doctors, and we trust them completely. We feel like we are making the best decisions based on all the info we have, and based on all the research we have done on rhabdo.

Today, we met with Dr. Teng, the Radiation Oncologist. He will be attempting, if possible, to place the tubing for radiation beads, during surgery. It may not be an option, as so much will be removed, they may not have enough tissue left to place the beads, it will be decided during surgery.

As overwhelming as this is to us, you can only imagine how overwhelming it all is for Connor. He does not want to talk about it at all. He only knows the basics right now. I have told him that I will give him as much info as he wants. I am hoping that he gets to a point this week when he will ask. It is so hard to comprehend, although he realizes the need for this surgery. He is quite emotional right now, understandably. We will take him in on Thursday to meet with Dr. Brock, so that he can explain some of what to expect to Connor.

Connor went fishing with Nana and Poppy yesterday, while Eddie and I met with Dr. Brock. No, they didn't catch anything, but that is O.K. He also got to drive a tractor, ALL BY HIMSELF.


It belongs to my cousin Kyla's husband, Jeremy.. He was at Nana and Poppy's to aerate their lawn, and let Connor drive the tractor. Connor was so excited when he was telling me about it.

Please pray for Connor, for so many things......

----Scans this Friday, that he has responded to this latest chemo

----his emotional state, that God will grant him a peace about surgery and treatment

----his pain, that the new meds will make it STOP

----the surgery itself--that it goes better than anyone expected, that the surgeons make the right decisions, that every cancer cell is removed from Connor's body

----recovery from surgery--that Connor is kept comfortable, his pain controlled, that he adjusts well to the procedures performed during surgery

---that Connor will remain forever cancer-free, and grow up to be a happy, healthy, well-rounded Christian man!

We are so appreciative of you all. Thank you for continuing this journey with us. Thank you for lifting us up. Thank you for each and every kind act you have done for us. Thank you for carrying us when we can't find the energy to carry ourselves. Thank you for believing in us all. Thank you for caring for our son, our only child--that means more to us than you will ever know. We thank God for you all. We thank God that he chose us to be Connor's parents. We thank God for each new day. We thank God for his Son on the cross, so that we have the hope of eternal life. We have so much to be thankful for. And we are so thankful......

We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"





Friday, August 13, 2004 6:52 AM CDT

Hello everyone, thanks for checking in. I apologize for the delay in updating. This update will have to be brief. Everything changes from day-to-day, it seems, with Connor's treatment plan. He started a five day course of Topotecan/Cytoxan on Wednesday of this week. He was originally going to get it outpatient the first three days, then be admitted over the weekend, but that changed. He received it the first day in the clinic, and the remaining four days, he is getting it at home. A nurse is coming out each day to administer the chemo. I am doing the IV fluid infusions. Connor has not done anything since this chemo started except lie on the sofa. It has wiped him out completely. He is still in alot of pain, even on his pain meds. After this chemo finishes, he will have to get the Neupogen shots for 10 to 14 days to bring his white count back up. He will then have a CT scan and an MRI of his pelvis. We met this week with Dr. Schwartz (Orthopaedic Surgeon) and Dr. Shankar (Oncologist), along with Dr. Debbie (Psychologist) to discuss surgery. Dr. Brock (Urologist/Surgeon) is still out of town until Monday, so nothing is definite regarding surgery. But, it does seem as though it MAY happen around the 31st of August, or the first week of September.

Thank you all so much for continuing to encourage us. It is much-needed, and so very much appreciated. Please understand if I haven't responded to emails or phone calls this week, Connor has needed my full attention. Please, please continue those prayers for him, and for his earthly healing. As difficult as things are getting, we are not giving up, I emphasize, NOT GIVING UP. We are believing in the promises laid out in the Bible, and are asking, trusting, and believing that our prayers will be answered. I'll try to do a more detailed update, as soon as I have more definitive information.

Have a wonderful weekend everyone, the weather has been beautiful here for the past several days. Thank God for the blessings in your life. Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, August 3, 2004 3:17 PM CDT

I want to start out by extending my deepest sympathies to:

^i^ ^i^ Celeste's Family ^i^ ^i^
and
^i^ ^i^ Alex's Family^i^ ^i^

Alex lost her earthly battle with cancer on Sunday. She was the little girl who founded "Alex's Lemonade Stand' to raise money for cancer research. This year, 2004, to date, she has raised over $700,000, with the help of people from all over sponsoring their own "Alex's Lemonade Stand". She is leaving such a legacy behind her, and just think, it all started with ONE LITTLE GIRL. Please keep her family in your prayers. Celeste lost her earthly battle early this morning. She has fought long and hard and has made such an impact on all who knew her. Her family can use lots of prayers at this time, as they prepare for the coming most difficult days.


Hello family and friends, thanks for checking in! I know alot of you are probably wondering if a "next step" (medically) has been laid out yet for Connor, so I'll start with that. I heard from Dr. Shankar, she is trying to get a meeting set up with all of Connor's physicians. This afternoon, I heard from Dr. Brock, Connor's Surgeon/Urologist. Now, HE is going out of town through next week. Eddie and I are about ready to beat our head against the wall in frustration. We KNOW that Connor's symptoms are increasing, and we also KNOW that we need to act immediately to do something to save our child. Dr. Brock told me that at this point, due to the fact that Connor has stopped responding to chemo, that surgery may no longer be an option. He does not want to say that for certain, until he hears back from the other surgeon/surgeons involved to get their feedback. He did say that the surgery would be more complex than what they thought in May, due to the fact that the tumor is quite larger. The word "disfiguring" was used, as a possibility. I conveyed to him the need to have a meeting as soon as he gets back into town. He agrees. He assured me that the wheels of motion will continue to turn in his absence, to look at this from every angle. I have put a call in to Dr. Shankar, so that Eddie and I can meet with her ASAP, to discuss any options that she feels we may have. The clock is ticking, time is crucial.


Now, onto more pleasant news, I would like to say:

"THANK YOU!"

to everyone who helped make the benefit for our family a huge success on Sunday, August 1st. We are overwhelmed by the generosity of all those involved. The weather was perfect, lots of people came out, tons of people donated for the auction (THANK YOU ALL!), countless volunteers spent the ENTIRE DAY at the park, people donated their talents by singing, all kinds of delicious food, a bounce castle for the kids (THANKS LU, ROB, and GABE!), all in all it was a wonderful day. The second shift at Albany Int./Appleton Wire spearheaded this effort, led by Juanita and Sue. All shifts joined in to help, and with the help of various businesses in the Portland/Westmoreland area, the benefit was able to happen with only 2 weeks planning. There were so many people involved, I would not want to inadvertantly leave anyone out, so please just know that our family thanks you ALL from the bottom of our hearts. You are helping us to be able to focus ALL of our energy on Connor, and for that we are so thankful. His pain is never-ending, but he does not let it slow him down. He was at the benefit for at least three hours on Sunday, and was going strong for most of that time. He will rarely let on to others about the pain, never complaining. If you ask him how he is doing, his reply will most likely be, "fine" or "good". I am in awe of his strength and determination. He lifts us up, isn't it supposed to be the other way around?

When Dr. Brock called me today, I had taken Connor and his friend, Brian, to a Skate park near Opry Mills. You can skateboard, roller-blade or ride your bike there. Connor and Brian took their bikes, and had a good time. It didn't take long for the heat to get to them. I had tried to talk them into going swimming, but they wanted to go to the park. I tell you, I stood there, thanking God that Connor still feels good enough to ride his bike. He always suffers at night with the pain after a particularly strenuous day, but boy, did he have fun. We are trying to make the most of every day and do fun things when he feels like it. Some days all he wants to do is lie on the sofa, watching T.V.

Tomorrow, August 4, is Nana's birthday. We will be going up there to spend some time with her tomorrow evening. HAPPY BIRTHDAY NANA/MOM!!! We love and appreciate you so very much!

Take time each day to thank God for the blessings in your life. They are there, and they are plentiful. Spend QUALITY time with your children, hug them tight and tell them how much they mean to you. Enjoy each day to it's absolute fullest. Be thankful if your children are healthy. Please continue to pray for Connor, we are NOT giving up. We will continue to trust and believe that his miracle is yet to come. Thank you all for everything you do for us. We are thankful for you, every one of you. We are also thankful for CaringBridge. This web page has been a wonderful thing. I wish that we did not have a need for it, but we do, and we are thankful for it. Please also remember all our other friends (from above) fighting their own battles. Have a wonderful week, everyone, peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Thursday, July 22, 2004 12:17 AM CDT

UPDATE---TUESDAY MORNING, JULY 27---

We got results back from Connor's tests. The tumor continues to grow. It has grown another centimeter in the past three weeks. Not the news we were praying for. But, we are pleased to say that the chest CT scan was clear, thank God. Please continue to pray for Connor's miracle. With the progression of the disease, Connor's pain and other related problems continue to worsen. We are in a waiting mode this week, as two of Connor's doctors are out of town. We need to act, and we need to act now. I will update with any additional news as I get it, although it may be a few days before I know anything further. Thank you all for the prayers, we will continue to trust in God for a complete earthly healing for Connor. Yes, we are discouraged, I think it would be nearly impossible NOT to be at this point. Watching Connor as he struggles with constant pain has alot to do with that. But, we are not giving up, no matter what. We will fight this with everything we have in us. Thank you all for EVERYTHING you are doing. We appreciate you, and we need you......


Hello family and friends, thanks for checking in! Connor has been doing O.K. since he got out of the hospital. He got his last chemo on Friday at the clinic. Thank you, Lu and Gabe for coming down to hang out with us. Gabe has scans this coming Tuesday, please say a prayer for CLEAR SCANS FOR GABE! Connor has tolerated this chemo well, both rounds, thank God! We took him to Gatlinburg over the weekend to go back to Dollywood (thanks Bill from Kellogg's for the tickets!). There is also a new waterpark, Splash Country, that is an extention of Dollywood. Connor especially liked the water park, specifically the wave pool. He was in quite a bit of pain on the trip, but overall, he had a great time. It was certainly well-deserved after the week he had last week.

Tomorrow (Friday the 23rd)is the day for Connor's next chest CT scan and pelvic MRI. The CT is scheduled to start at 4:30, the MRI at 5:00. Please, please, please say a prayer for these tests, we NEED some encouraging news. Eddie will be in the chapel once again, during the tests. If anyone would like to come by Vanderbilt Children's Hospital to pray with him, you are welcome to. Dr. Shankar is still out of town, so I am certain that it will be the first of next week before we get any results back. I will call on Monday, if I don't hear anything before then, and try to get someone to check the radiology report. I'm not sure when Dr. Shankar will be back, she told me the end of the month. We should be having a meeting to decide how to proceed, as soon as she gets back, if not before. Of course, we were told that surgery is the only possible curative option, and even with that, chances for a recurrence are great. I just feel like we need to proceed immediately, as Connor's symptoms are not improving. Time is of the essence.

Thank you for all your continued support of Connor. Please continue to pray for him, for an earthly healing. As I have stated many times, we will trust and believe that God will heal Connor. We are filled with gratitude for all the wonderful acts of kindness to our family. A heartfelt THANK YOU to Nana's work, Albany International, for organizing a benefit for our family. It will be held next Sunday, August 1st, at Meadowbrook Park in Portland, TN, starting at Noon. There will be live music, food, and an auction. We are so thankful to you all for doing this for us. A special thank you to Juanita and Sue for getting this off the ground. We are so fortunate to have such a wonderful support system, we could not do this without you all, near and far.

Please also remember all our friends in your prayers, those still battling, those in remission (that they STAY in remission), and the families of the children who have passed on to a better place. We are thankful that Logan had clear scans this week, WAY TO GO LOGAN! Thank you all for continuing to check in on us. We feel the love that you send. I'll let you know as soon as I get scan results back. Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Wednesday, July 14, 2004 2:31 PM CDT

Hello everyone, thanks for checking in! Things have improved greatly with Connor's latest "problem" since my update on Friday. The weekend was miserable, we tried everything imaginable (medicinal) to help him, but nothing worked. On Monday, while in the clinic for chemo, it was decided to admit him to the hospital. We just got home a little while ago. He had to have a feeding tube put in (through his nose) on Monday (thank you, Kelly and Donna, for your gentleness with Connor!!!), then we started the Golytely through the tube to try to help him be able to go to the bathroom. After vomiting all night Monday night, he started to get some relief Tuesday (yesterday) morning, only to have the feeding tube come out around 8:00 am. Of course, it had to be re-inserted. Any of you who have ever experienced someone getting a feeding tube knows how "unpleasant" it is. The first time was bad enough, but yesterday, he vomited the entire time it was going down. He was so pitiful, Eddie and I felt so helpless. But, after that, the rest of yesterday and all of last night was quite productive. He finished up the Golytely (2-plus gallons)during the night. This morning, I loosened the tape on his face, and Connor reached up immediately and pulled that tube right out. We could not believe it. He had his chemo today, and then was discharged from the hospital. We want to send out a THANK YOU to all of Connor's wonderful caregivers from the past couple of days, especially Nurse Sperry and Care Partner Christina. Thank you, also, CLS Laurie, for your help in easing Connor's anxieties. He will go in tomorrow and Friday for the chemo, outpatient in the clinic, and that will finish up the cycle. We are so thankful to God that Connor was not completely "blocked off" by the tumor, as we had feared. The past week has been very trying, to say the least. But God does hear all our prayers, and that is what we have relied on.

Sunday morning, we did go to church. Eddie and I went down front to have special prayers for our family. Connor was lying down throughout the entire service, he felt terrible and had no strength. Thank you to everyone who came down to offer us words of support and encouragement. A special thank you to my precious friend Christian, and Meme for helping us, and helping Connor. We love you all!

All of you reading this have helped us tremendously throughout this, but especially over the past few days. We KNOW that you all are praying, and God is hearing and answering those prayers. Thank you, thank you, thank you a million times over for all you do! We are all feeling better today, and ready to continue to fight and BEAT this! I have to tell you, there has not been one syllable of complaint come out of Connor's mouth over the past few days. After seeing all he has been through, I can honestly say that I am amazed by him. When I think about just the past couple of days, I wonder, if it had been me, could I have POSSIBLY been even one iota as strong as Connor. I doubt it, I really do. Thank you, God. Thank You for giving Connor just what he needs to continue to fight. Thank You for giving us just what we need to help him every moment of every day. Thank You, God, for choosing ME to be Connor's Mom. I am blessed, I truly am....

A special HAPPY 80th BIRTHDAY GRANDMA CASS! Her birthday was yesterday, July 13th. She is such a special lady, and means the world to me.

And thank YOU ALL for being here, for continuing to be here for us. You all give us strength. Please continue to pray for that miracle for Connor. No, we will never give up, God is on our side! His next MRI and CT scan are still scheduled for July 23--CT at 4:30, and MRI at 5:00. Please also continue to pray for our friends who are fighting their own battles, their links are above. Some of the more urgent requests are prayers for Trever, Isaac, Celeste, Kevin, Eric, Cheyenne, LaKota and Michaela. Each child is so special, each battle is so difficult, each family is heartbroken to watch their child go through it, please remember them in your prayers. Also, please pray for continued remission for those who are now cancer-free, and ALWAYS remember the families of those who no longer have their child here on earth with them. Thank God for the blessings He has given you. Thank God for your children, never take a day for granted. Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "BRAVEST LITTLE TROOPER!"


Friday, July 9, 2004 5:59 PM CDT

Hello friends and family, thanks for checking in. I'm sorry that I haven't updated before now, this week has been an extreme roller-coaster ride.

Connor has continued his chemo this week, and will go in tomorrow (Saturday) to the hospital to get it again. He will then go in each day next week, Monday-Friday, and that will finish up this course. He has not had a good week. His pain continues, he has had stomach problems this week, and now he is having problems with constipation. We saw Dr. Shankar on Tuesday. I asked her if she could print me off the MRI report from Friday. I was quite surprised to read:

"Since the prior examination, the mass continues to increase in size."

According to the report, it has grown approx. another centimeter in the past 3 weeks. I asked her about it, and she doesn't seemed concerned since the growth is not as significant as it was BEFORE he started this chemo. This was a blow to us, as we were under the assumption that there was NO growth, that it was stable.

As I mentioned, Connor is having problems with constipation. We BEG OF YOU for specific prayers for this. When he first relapsed on May 7, the MRI was clear enough, even to me, to show that the tumor was already pressing on his rectum. He is constantly asking me to please pray that he can go to the bathroom. I won't go into any further detail on this now, as he would not want me to, just PLEASE PRAY. THANK YOU!

As this week has gone by, he is becoming more and more inactive. He doesn't feel like doing much of anything, and doesn't really want to go anywhere. This is so out of character for Connor, so I know he feels quite bad.

His next CT scan and MRI have already been scheduled. They will be on July 23. The CT is at 4:30, the MRI is at 5:00 pm. We will probably be having a meeting with Connor's entire medical "team" the week after that, to determine our next step. I pray that this tumor STOPS growing. If his bowel problem continues, that will obviously have to be addressed well before then-- immediately.

We are tired, we are stressed, we are on-edge. But, we are greatly encouraged by all of the emails and guestbook entries. It is VERY DIFFICULT for us to talk about this via the phone right now, please try to understand. Please continue to pray for Connor. We will not give up, Connor is a fighter, and we will help him fight, with everything we have in us.

On a lighter note, we did enjoy the Fourth of July. We went to Nana and Poppy's and Poppy grilled hamburgers and hotdogs. We shot fireworks there, AND when we got back home. I think Connor actually still has a few fireworks left.

Thank you all for checking in. I know this update is not very upbeat, trust me, I wish I had nothing but GREAT NEWS to report. We are trusting and believing in God for a miracle in Connor, we will NOT falter on that trust. Please remember all of our friends who are fighting battles of their own. A few are listed above. We found out this week that a friend of our from Vanderbilt, Nikie, has relapsed. She just had surgery to remove a new spot from her lung. Please visit her site if you can, and offer her some encouragement. We appreciate you all, we are thankful for you and all you do. Thank you, so much, for the cards and gifts for Connor. Have a good weekend everyone! Peace to all and may God bless us all!

We love you!
~~Rhonda, Eddie, and Connor, our "Bravest Little Trooper!"


Saturday, July 3, 2004 8:33 AM CDT

***UPDATE--2:20 pm--Dr. Shankar called while I was out and Eddie talked to her. This is what she said: The tumor in his pelvic region has NOT grown in the past 3 weeks, since his last MRI. It has also NOT gotten any smaller. So, it is STABLE. Of course, this is not the best news, yet it is a POSITIVE thing that it has not grown. So, it would appear as though the chemo is keeping it at bay. We will proceed on Tuesday with this next 10 day cycle of Irinotecan/Vincristine. Connor also had a chest CT scan. The spots that showed up three weeks ago were gone, but there is a new spot in a different location that needs to be followed up on. So, in another 2 to 3 weeks, he will have the tests repeated again. That is basically all that Dr. Shankar told Eddie. No smaller, no larger--proceed with chemo, then re-scan. Thank you for all the prayers for Connor. We thank God that the tumor is NO LARGER. Please continue to storm Heaven, as we will be doing the same....


Good morning everyone, thanks for checking in! We do not have any results back from the testing that was done yesterday. We HOPE to hear something today, but if not, I guess it will be Monday or Tuesday. The waiting is torturous. We are trusting and believing that we will get POSITIVE news for a change. We know that so, so many of you were praying for Connor while the tests were being performed, and that brings us great comfort. A special THANK YOU is in order for Mr. Wayne G., Rob B., Sarah Jane (Q-Bert's Mommy), and The Thomas family, Helen, Rex and Craig. We appreciate you all taking the time to join Eddie in the chapel. Your kindness is very much appreciated. Connor did very well during the tests. They gave him valium to help relax him, and he cat-napped during the MRI, although he would be quick to tell you that he didn't sleep. But, as soon as the MRI was complete, he asked, "Was I really in here only 5 minutes?" When, in reality, it was over an hour. We were all three completely stressed out last night. On edge, on edge, on edge! Afterward, we told Connor we would take him anywhere he wanted to go to eat, and he chose Cici's Pizza. We made some new friends while eating. Hello Tina and family from Mt. Juliet! We stopped in at Walmart around 10:00, and I ran into a friend of mine from High School. It was so good to talk to you, Melony! Connor and I ended up sitting up until almost 2 am. This computer had a virus, as of Thursday evening, so I have been doing everything I could do to rid it of the virus. I hope I have finally resolved the problem. I could not email or do much of anything on the computer yesterday.

I pray everyone has a safe and fun Fourth of July. Hopefully, it will not be a complete washout, as far as rain goes, for anyone. Remember to say a prayer for our troops and our leaders. Also, please say a special prayer for our friends on the menu above. Some of the more urgent requests are directly above the journal. Thank God for the blessings in your life, especially if your children are healthy. We all tend to take things for granted at times, it is human nature. Be mindful of those less fortunate than yourselves. Hug your children a little longer, and TELL THEM how much they mean to you. We thank you all from the bottom of our hearts for your diligent prayers for Connor, and his earthly healing. Please, please continue those prayers. Thank you, also, to everyone for your continued acts of kindness towards us. We want to thank Kelloggs/Keebler for your continued help and support. I will post an update AS SOON as I get news back from Dr. Shankar. Take care, peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Friday, June 25, 2004 1:37 AM CDT

YET ANOTHER UPDATE--Wednesday night--11:05 pm--An idea came to me today that I wanted to share. I will be in with Connor throughout his tests Friday evening. Eddie will be at the hospital, but he can't be back there with us the entire time. We thought, if any of you live near Vanderbilt, and want to come down to the Children's Hospital anytime from 4:30 until probably 7:00, we would welcome you to come to the Chapel on the 2nd floor of the hospital and pray for the tests. I know that countless numbers of you will be praying at the exact time, I just thought this might be a good idea for those who might want to. We will be in Radiology on the first floor, but when Connor goes in for his tests, Eddie will be joining you in the chapel to pray.

**********

Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in Heaven. For where two or three come together in my name, there am I with them.

Matthew 18:19-20

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Thank you for all the prayers in advance!

UPDATE--Wednesday, June 30th--Connor's tests did not get scheduled for Thursday, as planned. He will have them FRIDAY, July 2--Chest CT scan at 4:30, and Pelvic MRI at 5:00. We hope to hear something back that night or over the weekend. And we pray that the "something" is that the tumor is GONE. At least, stable or shrunk, so that we can proceed on Monday with another 10 day cycle of Irinotecan/Vincristine, in an effort to shrink it more before surgery is scheduled. Please pray specifically Friday at these times, during these tests. THANK YOU, THANK YOU, THANK YOU!


Hello everyone, thanks for checking in! Well, another week of everyday chemo has almost come to a close. Connor has tolerated this chemo quite well. So far, for the most part, so good! He did have one bout with diarrhea last weekend, which is the main side effect with Irinotecan, but none since. His energy level has decreased some, but that is to be expected. I honestly can't see how he "keeps on keeping on" like he does!

I want to remind everyone to visit Ian's page. He went to Heaven last Sunday morning, Father's Day, and his family needs our support. He, too, was battling a rhabdomyosarcoma relapse. Rhabdo is quite rare, 300 cases in the US per year, and it is also quite relentless. We strongly feel Ian's family's loss.

In speaking with Dr. Shankar this week, we learned that she is hoping to do another MRI next Thursday, July 1st, on Connor. I will post in this journal when I know for sure what time. We PRAY that the tumor is responding to this chemo. If so, he will have another 10-day cycle of Irinotecan/Vincristine. After that, surgery will be scheduled.

Connor's pain is still constant, and severe. We had to change his meds this week, to try to better treat the pain. This is one of the most difficult things for him, and for us. As his parents, we want to "fix" his pain, but we are helpless and unable to do that ourselves. We pray, and pray, and pray for the pain to stop. This is taking a great toll on all of us. Connor is an emotional basket-case, and I am no different. Today (well, Thursday), was an emotionally draining day for the both of us. I try as hard as I can to be strong and positive for Connor, but this is all catching up with me. Please pray for me to be able to stay "up" for him, and to have my "breakdowns" in private.

We are continually overwhelmed and gratified by the tons of support for us. Thank you for all the cards, emails, and gifts. A special THANK YOU to the Young and the Restless Sunday School class for the wonderful meals you have been sending us over the past 2 weeks. And, thank you, Christian, for coordinating this for us. It has been a huge help! If we lived to be a thousand years old, we could NEVER repay all the kindness shown to us over the past almost 3 years.

Please also pray for Kevin. He has relapsed with cancer after being in remission for about 10 years. His wonderful wife, Linda, has been so kind to us, since our chance meeting last year. They are trying to make some difficult decisions regarding his treatment plan. They live in Goodlettsville, and have 5 children. I know they need the support right now.

I have to tell you, as I have a million times before, Connor Jordan Hunley is my hero! Yes, he's my son, and I'm quite partial to him. But, as I watch his struggle day in and day out with this blasted disease, I never once hear him complain. Yes, he is in pain, and that is obvious, but he never asks, "why me?", or anything like that. I am in awe of him, I really am. I pray that someday, we can look back on this, and tell his CHILDREN just how brave their Daddy was throughout this journey. We beg of God each day for another day. We pray for Connor to get his "earthly healing", if that is God's will. It is hard to imagine that after all he has been through, that he would not beat this again. Please continue those prayers for Connor. We are continuing to trust, and BELIEVE, that Connor will be healed, here on earth.

Thank you for being here. I hope you all have a wonderful weekend. Don't take one single moment for granted. Hug those children each day, each hour, and tell them just how much they mean to you. Please keep all of our friends battling in your prayers. Peace to all, and may God bless us all!

We love you,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Friday, June 18, 2004 8:38 AM CDT

***UPDATE***SUNDAY MORNING, JUNE 20, 2004--

Little Ian has gone on to Heaven this morning. Please, please visit his site, and offer up prayers for his family, as they deal with the coming days. Ian fought such a hard fight....


Hello everyone, thanks for checking in! We are home from the hospital. We came home Wednesday evening. Connor's surgery went well. He is, of course, very sore. He started getting his new chemo Monday night. He got his first three doses while he was inpatient. I have to tell you, SO FAR, SO GOOD. He has not had ANY side effects. PRAISE GOD! We have heard that the effects sometimes strike in the second week. But, we are just so thankful that he is doing so well right now. Yesterday (Thursday), I took him into the clinic for his outpatient infusion of the chemo. We will return today, and every day next week. If all goes well, he will not have to be hospitalized again, due to the chemo. One "positive" about this chemo drug is that he doesn't have to take the Neupogen shots everyday, as he has had to do before. Today in clinic, he will have to get his dressing changed, the dressing that is over the top of his newly-inserted port. He is NOT going to be happy about that, but it has to be done. His pain is definitely on the increase. He now has a fentanyl (Morphine) patch. In addition to that, he is on Lortab, and Tylenol. He wakes up each morning in INTENSE pain. It breaks my heart to see it, yet not be able to take it away immediately. Please pray specifically for the pain to subside. We pray that the chemo start to work NOW on shrinking the tumor.

Connor had a good time last Friday, when he went to see Shrek 2 with his friend. Saturday was Nana's company picnic at Beech Bend. Connor got to help pass out bingo cards and he also got to draw out some names for a game. He drew three names out, and one of them was NANA. Thank you everyone at Albany Int. for making Connor a part of your "family". We appreciate all you guys have done for us! The storms hit during the picnic, which was O.K. for a while, because we were inside a building for the meal and bingo. The rain continued afterwards, so we all got a good drenching. We rode out the storm, and the rain FINALLY tapered off. Afterwards, Connor was able to walk up to any ride he wanted, and ride it without a wait, which was nice. The park was deserted.

You can look back at the journal history, and read my last journal for details on the game plan for Connor, as it stands right now. We are continuing to pray for a miracle, and believing that one will happen. We are not going to give up, as I have stated before. We are taking one day at a time, and trying to make the MOST out of each day. Thank you all for your continued wonderful support. We are constantly encouraged by the guestbook entries and e-mails. Thank you to all who are sending Connor cards and gifts. He LOVES mail-time. And I LOVE the smile that you all are putting on his face, with the love you are sending him. Thank you, thank you, thank you for all you do. A special thank you to Mary T. and Holly C. for your calls. EVERYTHING being done for Connor and for us is SOOOOO appreciated! Most of all, the prayers. Please, please continue to pray for Connor.

~~~~~~~~~~

Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, yes, I will help you, I will uphold you with My righteous right hand.

Isaiah 41:10

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Congratulations to my cousin, Kyla and her husband, Jeremy. They welcomed their son into the world on Wednesday, June 16th. Little Brett Isaac weighed in at 6 lbs. 2 1/2 ounces. Connor and I got to see him and HOLD him yesterday. He is such a tiny little thing. We wish the three of them the best life has to offer! Congrats also to Granddaddy Kevin and Nana Sherry, this is their first grandchild!


Connor and Brett--June 17, 2004




Please visit Ian's page. He has stopped all treatment, and is at home on hospice. He got to go to the beach last weekend with his family, and I know the trip was very bittersweet. Please keep Ian, his mom and dad, Kellie and Brian, and the rest of their family in your prayers. Ian is in alot of pain that they are trying to get under control. Oh how I hate cancer, all cancer, especially rhabdo!

Please also send up a prayer for Ken and Fran in Texas. I got an email this morning from Fran. Their 12 year old grandson, Brandon Long, in Colorado was playing yesterday and collapsed and died on the playground. They are going to do an autopsy to determine what happened. The family is understandably devastated. Ken and Fran have been a constant encouragement to Connor. Please keep them and their extended family in your prayers.

We are so glad you all are here on this journey with us. It means so much to us to have your support. We wish all you Dad's out there a wonderful Father's Day, whether you still have your child here with you or not, you are STILL a DAD! Eddie's birthday is Monday. HAPPY BIRTHDAY DADDUTHIA! Connor calls Eddie, Dadduthia, and he calls me, Mammuthia. We think it is so cute! Have a wonderful weekend, everyone. Please keep all of our friends in your prayers. So many are having scans this week. Thanks again for everything you are doing for us! Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Friday, June 11, 2004 7:23 AM CDT

**Update** Monday Morning, June 14th, 6:50 am--

We are getting ready to go to the hospital. Please keep Connor in your prayers. He is extremely anxious about the surgery. He barely got any sleep last night, between the anxiety and the leg pain. Please pray, also, that his tumor IMMEDIATELY starts responding to the chemo. We should be in the hospital just for a couple of days, barring no complications. Thank you all for everything! Please pray, also, for our little friend, Ian, who is dealing with his own rhabdo relapse.


Hello everyone. Thanks for checking in. First of all, thank you ALL so much for storming Heaven with prayers for Connor's latest MRI. I'll get right to it. Dr. Shankar called yesterday with the results from the MRI. There is definitely growth of the tumor. It has grown approximately 2 centimeters in the past month. Of course, not the results we were hoping and praying for. But, we will not let this latest setback discourage us.

This is the plan as we know it. Since there is growth, there is going to be an attempt to shrink the tumor with a couple of rounds of a chemo drug, Irinotecan, which Connor has not had(and Vincristine, which Connor has had.) He is scheduled for surgery this Monday, June 14th, at 11:00 am, to insert a port-a-cath. For those of you who don't know, this is a device that will be placed in his upper chest, for chemo, labs, etc. He will also be admitted that same day for two or three days. Chemo will be immediately started that same day. One round of this drug consists of everyday chemo for five days, two days off(on the weekend), then five more days of chemo. So, basically, ten days of chemo constitutes a "round". He will get his first couple of days of chemo inpatient. He will then be able to come home, if he tolerates it well. We will go into the clinic each day for the chemo. The current plan is to repeat an MRI after that two weeks. Between rounds, there is a week's break. So, the MRI will be during that week. IF there is a decrease in size, or the tumor is stable, we will proceed with the second round (another two weeks of chemo). After that two weeks is up, another MRI will be performed. If there has been response, then surgery will be planned to remove the tumor.

Surgery was discussed with us last week, although in the beginning, we were told that it would not be an option. The surgeons are a little more optimistic about it. I have to stress, SURGERY IS OUR ONLY OPTION FOR A CURE. EVEN WITH SURGERY, THERE IS A GREAT CHANCE OF THE CANCER COMING RIGHT BACK. Without surgery, we were told "months left". Eddie and I have struggled with all the info that we have received, and prayed about it. As Connor sat with Dr. Shankar, receiving the news about three and a half weeks ago, for the first time, she asked him point-blank, if he was ready to fight again. His response was, "yes." That is all we needed to hear to vow then and there that we would do whatever it takes, certainly within reason, to HELP him fight. He is not ready to give up, and neither are we. The details of surgery have not yet been discussed with Connor, so PLEASE, make no mention of them to him. As soon as we know, for certain, that it will be taking place, he will be told, but not before. Surgery, in order to stand even a chance of being successful, HAS to include the removal of the tumor, along with, for certain, his rectum, colon, and urethra. There appears to be no bone involvement, so his limbs will be spared. As devastated as we are with these details, we are mindful that this is Connor's only "medical" chance. We could not live with ourselves if we didn't give it a shot. We are trusting and believing that Connor's miracle is yet to come, an earthly healing. We will NOT stop believing in that, NO MATTER WHAT. We will take things one day at a time, as we have been doing, and be thankful for each day.

In anticipation of starting everything up on Monday, Eddie is off today, so that we can make the most of this weekend. We are planning to take Connor to Nashville Shores today, to swim. He was invited to see Shrek 2 tonight with a friend of his in our neighborhood. Tomorrow, he and I are going with Nana to Beech Bend in Bowling Green, for Nana's company picnic. He will have a full day of fun, fun, fun! All he knows, and has wanted to know thus far about Monday is that he will have a port put in. He cried when we told him, he remembers how much he hated his port before, it was constantly tender. Plus, he told us last night that his friends would make fun of him. We ASSURED HIM that that will NOT be the case. We will talk to his friends ourselves, to make them aware of the port, before they see it for the first time. He had an incident this week, where one of his friends told him that he was a "sissy, because his Mom rubs his legs for him every night". This made me SO ANGRY, because Connor is in constant pain in his legs, yet NEVER COMPLAINS. The only possible way for him to be able to drift off to sleep every night is for me to massage his legs. To think of how brave he is, and then to have someone call him a sissy just made my blood boil. So, the next day, after I had calmed down, the boy came over and I was able to sit him down and have a long talk with him. I detailed some of what Connor has been through, and continues to go through. I told him how disappointed I was to hear what he had said. He just sat there and took it all in. Apparently it went well, as he is the boy who has invited Connor to a movie tonight. I can't TELL you how excited Connor was to know that the boy could choose ONE PERSON, and he chose Connor. Thank you, God!

Thank you all for your continued support. Thank you for all the cards and gifts you are sending Connor. Thank you, most of all, for all the prayers being lifted on his behalf. We beg of you to PLEASE continue those prayers.

^^^^^^

Again, I tell you that if two of you on Earth agree about anything you ask for, it will be done for you by my Father in Heaven. For where two or three come together in my name, there am I with them.

Matthew 18:19-20

^^^^^^

Thank you, tons, to all of you who have started prayer chains, and for those of you who have put Connor on prayer boards. We are humbled by everyone's kindness and compassion. I know that I have left out details, we are just overwhelmed with info right now. I have touched on the main points of the plan for Connor. I will say that St. Jude's has told us that IF THERE IS A CHANCE FOR SURGERY, that Connor would not qualify for clinical trials at this point.

Please continue your prayers for Shakonda, Chyanna's Mom. Chyanna's viewing will be tonight from 6-8 at Roundtree and Napier Funeral Home in Franklin, TN. The funeral will be tomorrow at noon at First Missionary Baptist Church in Franklin, with another viewing from 11-12, prior to the funeral. Please pray for peace and strength for the family.

I leave you with this today, as we are so blessed to have you all in our lives:

**********

Grains of Sand

How many grains of sand on the beach?
How many blades of grass in the meadow?
How many drops of dew on the tree?
If you could count all these,
You could count the number of God's blessings.

**********

Praise be to the God and father of our Lord Jesus Christ, who has blessed us with every spiritual blessing in Christ.

Ephesians 1:3

**********

Thank you all for everything! Peace to all and may God bless us all!

We love you,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Sunday, June 6, 2004 2:16 PM CDT

Update: Tuesday, June 8--

Connor will be having his pelvic MRI tomorrow--June 9th--at 12:00 noon. This MRI will be compared to the one from a month ago, when it was determined that his cancer was back. Please, please pray for his miracle. Wouldn't it be the most wonderful thing if they look at the MRI, and find NO SIGN of cancer?!?

His bone scan and bone marrow tests were both clear, thank God! His chest CT scan showed a couple of "very tiny spots". He will be re-scanned in (probably) two weeks. We PRAY that the spots are INFECTION and not rhabdo in his lungs. I will update as soon as I have any new info. Remember--Wednesday, the 9th at 12:00 noon CST. THANK YOU!!!!!



**Update-Monday 2:00 p.m.--Our precious friend, Chyanna, has gone to Heaven, never to hurt again. Please keep her family, especially her sweet Mom, Shakonda, in your prayers. This picture was made at the Cowboy Ball in Oct. 2003--Chyanna and her Mom:






Hello everyone, thanks for checking in! First of all, we appreciate SO MUCH all of the guestbook entries of support for Connor. Thank you all for your continued support. I'm sorry if I haven't responded to them all, just please know that we read them, each and every one, and they bring us much encouragement.

This past week was spent winding down from our trip. Sunday afternoon, we took Connor's go-cart up to Nana and Poppy's for him to ride it up there. He had a big time on it. Monday, some people in our neighborhood called the police, so he had to stop riding it to his friends' houses. Now we have a track around our house, but that is O.K., he is having fun, that is all that matters.

Wednesday evening, Connor was the Guest of Honor at a party given by the folks at Kellogg's. It was kind of a Welcome Home party after the trip to Disney. It gave everyone who had not had the opportunity to meet Connor, the chance to meet him and spend time with him. It was held at the Hibachi Grill at Opry Mills. We all had a blast. The food and service was great, then we moved on to the bowling alley and the game room. Connor was very nervous at first, but soon opened up and had a great time. Everyone with Keebler was wonderful to us, and made us all feel so at ease. Dan Leonardi, VP of the Southern Region, presented Connor with the 'Southern Region Vice President's Award in Recognition of his Courage, Strength and Inspiration to Others'. I received a dozen beautiful red roses, just for being Connor's Mom, which, by the way, is my greatest honor! They presented all three of us with some really cool racing jackets. Thank you, everyone, for making it such a special night! Thank you, Nana, Sherry, Grandmama, Tammy, Ragan, and Victoria, for attending with us.

Thursday, Connor had to go in for his Bone Marrow Test. Nurse Kelly did the test, thank goodness. Kelly, you are, as I told you, such a blessing to us. Kelly has such an amazing relationship with Connor, and all the kids. They trust her beyond words. There has never been a more caring, gentle person as Kelly. Connor was so nervous before leaving home, but when he found out that Kelly would be doing it, his apprehension eased up considerably. His marrow was drawn out from both sides of his lower back, and will be biopsied. We should find out results tomorrow (Monday the 7th). After the test, we met with Dr. Brock and Dr. Pietsch, two of Connor's surgeons from last year. Providing that all of the tests from his marrow, bones and chest come back clear, there may be a surgical option. If the cancer is anywhere else other than the primary site, surgery would NOT be an option. There is no way to speculate until we know for sure about the tests. On Friday, Connor had to be back at Vanderbilt for the bone scan and chest CT scan. We were there most of the day. He did so well. I feel so sorry for him, having to have so many things done, but, he never complained once! The nurse in Radiology who puts in Connor's I.V., Michelle, is just wonderful with him. He actually wanted to hang out with her while Eddie and I ran upstairs to get some lunch. We ran into Dr. Shankar while we were up there. She told me that she will call me tomorrow with results from all the tests. IF all are clear, Connor will most likely be having another pelvic MRI on Tuesday. It has been one month since the MRI that showed the return of his cancer, so we need to see what, if any, changes have occurred in the past month.

I know this is all confusing. It is to us, as well. It just comes down to this. Surgery, if it is an option, is the only possible "Curative" option that we have. Even with surgery, there is a great chance of the cancer coming right back, Without surgery, we would have to travel elsewhere for clinical trials, as Vanderbilt is not currently offering any that Connor would qualify for. We WILL go to the ends of the earth, if that is what it takes. Chemo and radiation, we have been told, at this point would be palliative, or "buying time". Eddie and I have tough decisions to make. This is all so overwhelming right now. Connor is giving us strength with his attitude towards everything. The child never slows down, even when he is in constant pain. I know I've said it a million times, but he is MY HERO! I'm so proud of him, and his zest for life.

I will try my best to keep you all informed the best that I can. We need you all, I really mean that. We continue to trust in God for a miracle. We know they are out there, so that is what we are praying for. A wonderful friend, Colette, put the following quote from Martin Luther King Jr. in the guestbook:

"I have held many things in my hands, and lost them all. But whatever I have place in God's hands, I still possess."

Thank you, Colette, for that timely reminder. I think that says it all. We will trust and believe and keep the faith!

Please say a special prayer for our friend at Vanderbilt, Chyanna. We saw her on Friday and she is having an extremely difficult time right now. She does not have a web page. Please pray for her mom, as well. She is a single mom, and having a difficult time juggling everything right now. We appreciate it!

Thank you all, once again, for your presence. Thank you for everything that you continue to do for us. I'm trying to work on thank-you's. I'm sorry that I am so behind on EVERYTHING. We are just winging it right now, trying to do anything and everything that Connor wants to do. Please continue to pray for all of us. Pray for Connor's symptoms to disappear. Pray for all the pain to go away. Pray for an earthly healing. Pray for strength for us. Thank you, thank you, thank you a million times over. Peace to all, and may God bless us all!

We love you!

~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"












Sunday, May 30, 2004 9:47 AM CDT

Hello everyone, thanks so much for checking in! This update is quite lengthy, so you may want to go get something to drink. Make yourselves comfortable, O.K. ready? Yes, we are home from Connor's dream vacation to DisneyWorld and the beach. We had a BLAST, and the weather was PERFECT! It rained some our very first night there, and the rest of the time, it was SUNNY, SUNNY, SUNNY!

We arrived on Wednesday, the 19th, around 12:00 noon. Eddie drove us straight through from midnight Tuesday night. We checked into the Polynesian Resort at Disney that afternoon. The resort was FABULOUS! The room and view was even more fabulous! I have to tell you, we were on the ground floor, and if you walked about 10 steps off the patio, you were on the white sand of the beach on the lake that separated us from the Magic Kingdom. We had an awesome view of the Castle. As you stepped on the beach, there it was, MY dream come true, a hammock, hanging between two palm trees. I started each and every day out there in that hammock, swinging gently in the early morning breeze. The location of our room could NOT have been any better. When we arrived in our room, Connor had a gift basket awaiting him. Plus, he had a photo card of Woody and Buzz Lightyear, signed by them, welcoming him to Disney World. He was ecstatic! He kept asking how they knew that THEY were his favorites....hmmmm.....the magic of Disney! (With a little help from the Keebler Elves!) We had dinner there at the resort that first night. During dinner, they had some games for the kids to participate in, which Connor did, such as a hula-hoop contest, and pushing a coconut around a circle with a broomstick. After dinner, he was ready to hit the pool. They had a volcano there at the pool, with a water slide going through it. Connor spent alot of time in that pool! We went to Magic Kingdom that night and watched the AMAZING fireworks display. Yes, there is something MAGICAL about being there, we all felt it. The fireworks are set to a "Wishes" theme, how fitting for us. Of course, it was very emotional, as well. Fortunately, it was dark and noisy, so Connor didn't see just HOW emotional it was for his Mom. Connor's "most favorite ride in the whole wide world", It's a Small World, was closed for refurbishing. He was SSSOOOO disappointed, to say the least.

Thursday, we decided to go to Typhoon Lagoon. It is a huge water park. They have a very large wave pool, numerous water slides, a kids area, AND A LAZY RIVER. The lazy river was mine and Connor's favorite. Eddie is a big water slide fan. We spent the day there, then headed back to the resort. One of the best things about being at a Disney resort is the fact that you don't have to drive anywhere on Disney. They have monorails, buses, and boats to take you wherever you want to go. That evening, Connor wanted to stay at the pool, and Eddie rode the monorail over to Epcot by himself. That night, we went to Downtown Disney for dinner at Wolfgang Puck's. We did a little shopping there before heading back to the resort for the night.

Friday, we went to the Animal Kingdom. That was the one park that we had missed on Connor's Make-A-Wish trip back in May, 2002. You do a ton of walking at that park. We got Connor a wheel chair at each park we went to. His legs hurt him constantly, and there is no way he could manage all the walking. We enjoyed the Safari there at the Animal Kingdom. We saw giraffes, a huge mountain lion, alligators, elephants, etc. That evening, we made reservations for the Luau at the resort. We had a wonderful dinner, and got to experience the Aloha dinner show. It was fantastic!

Saturday, we finally drove, and headed to Universal Studios and Islands of Adventure. We had a really good time at both parks. Connor rode several rides that day, including Men in Black, and Terminator. Eddie and I rode the Back to the Future ride. Yes, I have a weak stomach, and got quite nauseated on that one. I recovered after a while. Connor was so sweet, he was so concerned for me. I had broken out in a sweat during the ride, so I'm quite certain that I was as white as a ghost when he saw me get off the ride. Connor tried climbing a rock wall at Islands of Adventure. He gave it his BEST effort, but his legs were hurting. We had dinner that evening at one of our faves, Jimmy Buffett's Margaritaville. Yum, yum, yum! They had live music and a girl on stilts walking around making balloon animals for the kids.

Sunday, we went to the other water park, Blizzard Beach. They also had a lazy river, and lots of rafting rides. We had a good day there. At the end of the day, Connor was on one of the kids water slides. Eddie and I were walking to get a better view of him. When we spotted him again, he was doubled over, and a park attendant was standing over him. It scared us to death. We went running over to where they were. Connor raised up, removed his hands from his chest, and he had a huge scratch going down his chest. Well, apparently, some "lady" came by him and her extremely long fingernail somehow made it's way down his chest. He said she then took off running. Eddie and I tried to find her, without success. So, needless to say, we were ready to leave the park at that point. Connor was hurting pretty bad on his chest. Sunday night, Connor ordered room service. He thought that was the coolest. The food was AWESOME.

Monday, we went back to the Magic Kingdom. It was SOOOO crowded that day. We basically just walked around, as the lines were all about an hour's wait. We left there, went back to the resort and got cleaned up. Connor had an autograph book, signed by all the Disney characters, and a Buzz Lightyear waiting for him when we returned. We headed back to Universal that evening, as Connor had a special surprise in store. His Kellogg's/Keebler friends, namely Lori, had arranged a special treat for Connor. One of his most favorite celebrities is Emeril, the chef from the Food Network. Well, what do you know, he just happened to be in Orlando taping some "Cooking with Kids" shows. (I think they will air in October). Connor has always talked about how he wishes he could go to New York to watch an Emeril taping. So, Lori contacted Universal, and they gave us tickets for Monday night's taping. He LOVED IT! He actually puts it at the top of his list of his most favorite things from the trip. You should have heard Connor yelling "BAM!" and "kick it up a notch!", two of Emeril's favorite sayings.

Tuesday, we hung out at the resort all day. Connor wanted to spend the day there at the pool, as we were checking out the next morning. Eddie and I rented boats, and got to ride all over the lake. We had a fun day. That evening, Connor got to go to the "Neverland Club" at the resort. They have dinner for the kids, and a ton of games and activities. Eddie and I went over to the Grand Floridian for dinner while Connor was there. When we returned, the wonderful ladies there at the Neverland Club had collected some toys and games for Connor, which they then presented to him. They were the best! Thank you, thank you, thank you for making Connor's night such a special night!

Wednesday was check out day at the Polynesian. Connor was extremely sad to be leaving there. We had made friends with the resident ducks, rabbits, birds, lizards, which would all come onto our patio. As we were getting ready to leave the room, Connor looked over and there was a duck looking right in the door at him. Connor started crying, he was so sad to be leaving his "friends".

After leaving Orlando, we heading over to Kissimmee to visit the Give Kids the World village. This is the village where we had stayed on the Make-A-Wish trip. They encourage former guests to come back for a visit. We had lunch in the Ice Cream Palace. We played miniature golf, played games and reminisced about our stay there before. The man who checked us in actually remembered us from two years ago. Confidential to Caleb Little, we told Mayor Clayton "Hi" from you, and he sends you and Cameron his best! After leaving there, we drove on to Cocoa Beach. Our first stop was Ron Jon's Surf Shop, Connor's favorite store there. We then checked into the brand new Ron Jon's Cape Caribe resort. It was awesome! I recommend it to anyone visiting the Cocoa Beach/Cape Canaveral area.

Thursday, we hung out at the resort, enjoying the pool, and the beach. The resort is right beside Port Canaveral, where all the cruise ships leave port from. We got to see the Disney Cruise set sail that evening. What a fabulous ship it is! That night, we drove over to Merritt Island for dinner at a Mexican restaurant right on the Banana River.

Friday, we checked out of the hotel, and headed over to the Orlando Princess boarding area for our deep-sea fishing adventure. We left port at 10:30, stayed out all day, and returned at 5:00 pm. It was A-W-E-S-O-M-E! Connor had an absolute blast! We were on an 80 foot boat, 18 miles out to sea. We all thoroughly enjoyed the day. Eddie caught about 5 fish, including a couple of red snapper. Connor caught one fish. Rhonda caught NO FISH. But, hey, we had fun, that's all that counts! If you are in Cocoa Beach, and you want to go deep sea fishing, this is the boat to go on. They had the BEST CREW! They serve you lunch, and all the beverages you want. After arriving back at port, we started our drive home. We drove to Georgia, and stayed overnight in Tifton, GA. Yesterday, Saturday, we drove the rest of the way home, stopping in Atlanta for lunch.

We arrived back home last night around 6:00 pm, completely exhausted! Grandmama had been coming over taking care of Zoe, our cat, and she was here to greet us. Connor had one more surprise in store from the wonderful Kellogg's folks. There is one thing, and one thing only that Connor constantly talks to me about wanting. He always wants to know how old he has to be to get one. That one thing is a Go-cart. So, Kellogg's ALSO made that dream happen. Connor went out to the garage, and sitting there was a brand spanking new bright yellow go-cart! As if this dream trip wasn't enough, he comes home to a go-cart! The child NEARLY collapsed. He leaned over on the go-cart and I literally thought he was going to pass out. Keith, Marliss and Ashton (Keith is one of Eddie's best friends from Kellogg's) stopped by right as Connor discovered the go-cart, so they got to see his excitement, as well. Connor took everyone for a ride around the neighborhood, and he rode it until it got too dark to ride. THANK YOU, THANK YOU, THANK YOU, THANK YOU, THANK YOU all who made this dream come true for Connor. We got to have a delicious dinner prepared by Marliss and Lori, which they brought over for us earlier this week, so that it would be here when we arrived home. Thank you, ladies, for a wonderful dinner, you are the best!!!!!

I tell you, we are blessed, we are truly blessed. It is easy to focus on the negatives in our lives, but we are trying to shift that focus on the POSITIVES. That includes EACH AND EVERY ONE OF YOU READING THIS! We have the best support system in the world, no doubt about it. I could sit here for days telling of all the kind deeds and the caring people in our lives. You are carrying us right now, I just want to tell you that. There is no way that we could ever repay all the kindness bestowed upon us. But, as Connor's Mom, I can tell you that you all mean the world to us, and we will be forever indebted to you. From the trip, to the go-cart, to the gifts, to the guestbook entries, to the phone calls, to the cards, to the PRAYERS, every thing you all are doing, and have done for us is giving us the strength to get through each day. Yes, the trip made it easier to push Connor's situation to the back of our minds. But, it is always there. The fear of what lies ahead. We are looking to God for a miracle for Connor. We are trusting in God for a miracle for Connor. We are believing in God for a miracle for Connor. We will not accept the dismal news given by the doctors. We will do everything in our power to help Connor beat this again. Please continue those heartfelt prayers........

I will be in touch with Connor's doctors on Tuesday, as they will not be in tomorrow due to the holiday. I did have to call last week to have more pain meds called into a pharmacy in Orlando. I didn't ask anything about St. Jude's, as I really didn't want to know any new info until we got back home. But, I did find out that Connor will be having a bone marrow test, probably Wednesday of this week. Also, he will have another chest CT scan, and a bone scan, probably Thursday of this week. I will update when I have more info on specifics regarding a game plan. Please pray for his bone marrow, chest and bones to be clear of any disease. He is taking this as well as he possibly could. He is such a brave and courageous child. He hurts constantly, yet doesn't complain of the pain. I am amazed at his attitude. All of these children are amazing. So much more brave that I could ever hope to be.

Well, I realize this is long, but I wanted you all to be able to feel like you were there with us. Yes, I took a ton of pictures, some of which I will be posting as soon as we get them developed. We had the time of our lives, we are so grateful, SOOOO grateful. Now, we get ready to fight, fight, fight! Thank you all for standing with us. We need and appreciate your support! Please, never cease to pray for all of our buddies going through this battle, all those in remission, and the families of all those who lost their earthly battle with this dreaded disease. Peace to all and may God bless us all!

We love you!
~~Rhonda, Eddie, and Connor, our "Bravest Little Trooper!!!"


Tuesday, May 18, 2004 7:39 AM CDT

Hi everyone, thanks for checking in. Let me begin by saying....THANK YOU, THANK YOU ALL. Thank you for the countless prayers that are being lifted for Connor. Thank you for the guestbook entries. Thank you for the cards. Thank you for the gifts. THANK YOU ALL FOR MAKING THIS DISNEY TRIP HAPPEN. Thank you for everything. You are all CARRYING US, I just want you to know that. God has given us the strength each day to FACE each new day, and to face it with a positive attitude. As I have said, we WILL NOT GIVE UP. Connor amazes me each day with his attitude toward his situation. He is opening up and asking questions. He talks about it some. This is a good thing. We have told him that he can ask us anything, and we have encouraged him to share his feelings about it all. But, most importantly, we remind him that he is NEVER alone. We will fight this with EVERYTHING we have in us. To the ends of the earth. Connor's pain has increased, we have started him on stronger pain meds. Please pray specifically for his pain to subside.

We turned in Connor's school books yesterday. Connor has STRAIGHT A's FOR THE FOURTH, FIFTH, AND SIXTH SIX WEEKS! He made the "Principal's List". We are SO PROUD OF HIM. He will receive a certificate in the mail along with his report card. His last session for the school year with his homebound teacher was Friday. Instead of work, she took him to Dairy Queen and to Target to pick out a toy. I want to say a special thank you to Mrs. Pemberton (GES), Darlene (home-bound), Dr. Conley (Art), Mr. Sipe (P.E.), Wynne (Guidance Counselor), Ms. Kelly and Ms. Fullerton (Secretaries), and the entire staff of Goodlettsville Elementary School for making this a fun year for Connor when he was able to attend school.

Now, I have to say that there are MANY EARTH ANGELS among us. I wouldn't dare start naming names, as I fear I would inadvertently leave someone out. As I mentioned in my last journal, The Kelloggs/Keebler Company, with whom Eddie is employed, learned of Connor's desire to return to Disney World. Well, I have to say that we will be leaving TONIGHT to drive down for a week, possibly a few days more, depending on how Connor tolerates the trip. One person told another, then another, and we have been COMPLETELY OVERWHELMED by the generosity, caring and compassion shown to Connor, and to us, in making this trip happen. I want to extend our SINCERE GRATITUDE to EVERYONE AT KEEBLER, and the countless number of family, friends, and strangers who have stepped up to make sure that Connor has the best time imaginable. God will surely bless you all for your kindness!

This will be my last entry until we get back, as I will not have computer access. I will not be able to check email, either. I just wanted you all to know, so that you are not left waiting for a reply.

We are still in discussions with Connor's physicians regarding a plan of action upon our return. There is a strong possibility that we will be traveling to St. Jude in Memphis, as they have some Phase I Clinical Trials available that are not available at Vanderbilt. Connor's records are being copied and sent down there to be looked over to determine if he would even be eligible for any of the Trials. Everything is in limbo right now. We still haven't met with Dr. Brock, as he has been waiting for the rest of Connor's surgical team from last year to be able to meet with him. That meeting between us and him could happen this afternoon.

I want to thank you all, again, for your support. Believe me when I tell you that we COULD NOT FACE EACH NEW DAY without your presence. We know that God is ultimately in control, regardless of the grim statistics given to us by the medical world. We will never give up. We are praying for a miracle, that is what Connor needs, a MIRACLE. We do feel all the prayers, and we are being lifted up by that. Please, please continue to storm Heaven on Connor's behalf. I am begging you, from a Mom's aching heart, please pray for an earthly healing for Connor, and for a long, cancer-free, happy, healthy, SPIRITUAL life here on earth.

With all that being said, I must tell you that Connor had a great weekend. His girlfriend, Ginny (see photo page), came in from Knoxville to be with him. We went to a carnival in Portland Saturday night, he had a BLAST. We all laughed so much that night. She spent the night with us, and left Sunday for home. Ginny, you, my dear, are a blessing in our lives, and you ARE FAMILY to us. THANK YOU FOR THE LOVE YOU HAVE AND SHOW TO OUR SON. We love you! Also, Sunday evening, my wonderful friend, Chrsitian, invited us to her in-laws to swim. Connor, Will and Caitlyn (Christian's children)were in that water until dark. Thank you so much to Christian, Bill, Will, Caitlyn, Nana and Pappy for hosting us, and for letting Connor have a BLAST swimming! We also thank our families, Nana, Poppy, Grandmama, and EVERYONE, for all your support and help. We know that you all, too, are hurting desperately. We all have to remember to take things ONE DAY AT A TIME, and let Connor enjoy EACH DAY to it's fullest.

Have a great week everyone, please remember all our friends in your prayers, especially the special prayer requests above, and Chyanna here in Nashville (she doesn't have a web page). Please pray for a fun-filled, safe, pain-free, problem-free trip for Connor. I'll let you know as soon as we get back. Peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Thursday, May 13, 2004 8:41 AM CDT

As I sat staring into the face of my 9 year old son yesterday as he was told his cancer had returned for the third time, I was once again reminded of what bravery and courage truly are. Connor accepted this news better than I could EVER imagine any person could. Yes, he asked the difficult questions. We answered the best way we could. His world has been rocked again. But, we assured him, over and over again, that there will never be a time when he is alone in this battle. We gave him the hope that we will go after this with everything we possibly can. He told Dr. Shankar that, yes, he would fight. We will speak with Dr. Brock probably on Friday, then we will make a decision about how to proceed. Eddie had been scheduled for his vacation next week, prior to this. A plan is now in the works for us to be able to take Connor back to DisneyWorld next week. This is being planned by the wonderful people at Kelloggs/Keebler, the company Eddie works for. We are utterly speechless at their kindness and generosity. We were actually able to tell Connor last night that we would most likely be going. His face lit up like a Christmas tree. We got the O.K. yesterday for a family trip next week, before we have to start in with any treatment. But, she did encourage us to do it soon, rather than later. There is no way to predict how quickly Connor's tumor will grow. Nor, how soon it will start to really affect his quality of life that now exists. He is having quite a bit of pain in his legs, due to the tumor sitting on nerves. The pain is worse at night, keeping him up until the wee hours of the morning at times. Please, in addition to all the prayers you are praying for his, please pray for the pain to stop, and for him to be comfortable.

Please also pray for Chyanna. She is the little girl who had a blood cord transplant a couple of months ago. She and Connor were the Child Ambassadors for the First Annual Cowboy Ball for AngelHeart Farms in October, 2003. We saw her Tuesday afternoon, and she is having a very difficult time. She needs our prayers, also.

As we are faced with the unknown, one thing is certain. God is right here beside us, to help us through each new day. We will live IN TODAY, and try our hardest not to worry about tomorrow. God will give us what we need when tomorrow comes. Connor, who defines the meaning of "BRAVE LITTLE TROOPER", gives us strength. I want you ALL to know that we attribute so much of his reaction yesterday to the countless prayers that you were praying at precisely 2:00 pm, and throughout the day. We could feel those prayers, we were uplifted by those prayers. We thank you from the bottom of our hearts. A special thank you to Nana and Poppy for taking us to the hospital yesterday, and sitting in for support as their only grandchild was given this devastating news. I know it was so hard for you, as well, but you did it for Connor, and for us. Thank you, it means the world to me.

Thank you all so much for being here with us. We need your support, now more than ever. Please continue to leave us messages in the guestbook, we read tham each and every one, and they bring us much comfort. Thank you to all of you who have started prayer chains on our behalf. Prayer is the answer here.

~~~
Again, I tell you that if two of you on earth agree about anything you ask for,
it will be done for you by my Father in heaven. For where two or three come together in my name,
there am I with them.

Matthew 18:19-20
~~~


Take care, peace to all and may God bless us all!

We love you,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, May 11, 2004 5:40 PM CDT

I know you all are waiting for an update. I wish I could tell you that we received encouraging news. But, the fact is , WE DIDN'T. It is as bad as it gets. Period. Eddie and I are trying to take in all that was discussed today. After we sort through our emotions and make some decisions, I will give more info. We are just not certain what course we will take right now.

We will go back in tomorrow with Connor, so that Dr. Shankar and Dr. Debbie can sit down with him, with us right there by his side, and tell him. No, we have no clue how he will react. I know how I would react. This is just all too overwhelming. Connor is 9 years old, he has been fighting courageously since he was 6 years old. What kind of sense does that make. Yes, we are mad. But not at God, we are mad at the cancer. We will not give up. We are not going to throw in the towel. We will support Connor in everyway imaginable to help him deal with this. He is outside playing with his friends at the creek, totally oblivious to what he will be told tomorrow.

Please, please don't stop praying. Please pray for him, specifically at 2:00 pm tomorrow. God is in control, we will continue to pray for a miracle. Thank you all for the wonderful guestbook entries and emails. Forgive me if I can't answer them right now. Connor has our undivided attention. But, the encouragement helps us more than I could ever tell you. We are thankful for you all.

We love you...


~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"







Tuesday, May 11, 2004 5:40 PM CDT

I know you all are waiting for an update. I wish I could tell you that we received encouraging news. But, the fact is , WE DIDN'T. It is as bad as it gets. Period. Eddie and I are trying to take in all that was discussed today. After we sort through our emotions and make some decisions, I will give more info. We are just not certain what course we will take right now. We will go back in tomorrow with Connor, so that Dr. Shankar and Dr. Debbie can sit down with him, with us right there by his side, and tell him. No, we have no clue how he will react. I know how I would react. This is just all too overwhelming. Connor is 9 years old, he has been fighting courageously since he was 6 years old. What kind of sense does that make. Yes, we are mad. But not at God, we are mad at the cancer. We will not give up. We are not going to throw in the towel. We will support Connor in everyway imaginable to help him deal with this. He is outside playing with his friends at the creek, totally oblivious to what he will be told tomorrow. Please, please don't stop praying. Please pray for him, specifically at 2:00 pm tomorrow. God is in control, we will continue to pray for a miracle. Thank you all for the wonderful guestbook entries and emails. Forgive me if I can't answer them right now. Connor has our undivided attention. But, the encouragement helps us more than I could ever tell you. We are thankful for you all.

We love you...
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Friday, May 7, 2004 1:17 PM CDT

**PLEASE PRAY FOR A MIRACLE FOR CONNOR**

This is an entry I don't want to make, but you all need to know. We just found out this morning the results from Connor's scans. His cancer is back, in the same area in his pelvis. Eddie and I will go Tuesday to meet with Dr. Shankar to go over options. She told me we would have some very tough choices to make. Please pray for a miracle for Connor. Please pray for all of us.

Connor DOES NOT KNOW YET. If we feel a need to tell him anything this weekend, it will just be that "something" showed up on the scan, and that we will know more next week. So, please, please, no phone calls this weekend. Please understand. I don't want Connor to wonder why Mommy is crying, so I'm going to try my hardest not to. You may reach me through the guestbook or through email. I'll update after we learn more. We are completely devastated.....

Thank you for all the prayers you have prayed, and all the prayers you will pray, and for all the support. We love you all!

Love, hugs and prayers,
Rhonda, Eddie and Connor, our "Bravest Little Trooper!"

HAPPY MOTHER'S DAY EVERYONE! A special Happy Mother's Day to those of you who no longer have your child here on earth with you. You are still a most special Mother and always will be!






Sunday, April 25, 2004 11:34 AM CDT

Hello everyone, thanks for checking in!

Well, let's see, where to begin?? Let me start with this:

Connor returned to school this past week! YYAAHH! He went three days, four hours each day, and did GREAT! The getting him up and getting him there was the hard part. We have gone without STRUCTURE and SCHEDULES for SOOOO long. The night before his second day back, I was lying down and talking with him at bedtime. He said, "I can't wait to get back to school tomorrow, so that I can see all my friends." MUSIC TO MY EARS! I just know it will do him good to be there. He is still working with his homebound teacher twice a week. His grades will actually continue to come from her. AND, he got his report card on Friday, ALL A's! I am so proud of him, after all he has been through, and all of the school he has missed, to get all A's! Now, if I could just get him to let me help him work on his handwriting. He gets in such a big hurry when he is writing. Anyway, thank you so much for all your prayers regarding his return to school!

Friday night, Connor, Nana, Grandma and I participated in the Relay For Life in Portland. Mom's (Nana) work, Albany International, always has a team in the Relay. This year, their team alone raised more than $13,000 for the American Cancer Society! Way to go guys!!!!! These people have supported Connor AND US throughout his entire TWO battles with cancer. Connor was very apprehensive to participate in anything Friday night when we first got there. But after a while, he lightened up a bit. They announced the names of all the Survivors in attendance, and they walked over and got their ribbons. When they announced Connor's name, the place exploded in applause and cheers. OF COURSE, it made this Mom cry. He then walked the Survivor lap with Rita Taylor, Chairperson of the event. I was so proud of him. The Relay goes from 7:00 P.M. until 7:00 A.M. with walkers on the track the entire time. At midnight, they had a Womanless Beauty Pageant. What a hoot! There were 23 contestants participating, with names like: Ima Butts, Jawannaman, Hottie Harley Davidson, etc., you get the idea. It was hilarious. We got back to Nana's at 1:30 A.M. What a night!

Connor will be having a CT scan of his chest and an MRI of his pelvis on May 5, starting at 11:00 am. These will be his 3 month scans.Please, please pray for all to be clear.


Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in Heaven. For where two or three come together in My name, there am I with them.

Matthew 18:19-20


Gabe had his scans last week, ALL CLEAR, THANK GOD! Hooray, Gabe! Stop by his page if you can, and offer up some congratulations for Gabe and his wonderful parents, Lu and Rob. Lu has started a chapter of Candlelighter's back up here in Tennessee. She has some great plans for helping out the families of cancer kids in this area. Please stop by her new site: Lu's Page. She has included some great info and links. Thank you, Lu, for your efforts!

A great big THANK YOU to Kevin Carter of the Tennessee Titans. His annual 'Waiting For Wishes' Celebrity Waiter Dinner at the Palm raised over $125,000 this year! He is a big supporter of the Make-A-Wish Foundation. The current issue of Nashville Lifestyles magazine has a full page ad for the event. Connor is in a couple of the photos, as he was the Child Ambassador for Make-A-Wish at last year's event.
Click here for article.
(Sunday afternoon--there seems to be a problem with the link, I'm trying to get it resolved. Thanks!)


Please visit some of the sites above. The kids really could use the encouragement. We are so thankful for you all. Please keep Connor in your prayers. I know I've asked before, but please pray for his emotional well-being. He is still having a difficult time with mood swings. Believe me when I tell you that some days are UNBEARABLE for us all. We cherish the good days, and pray for more of them. He has been through so much since Oct. 2001, there is no question about that. But the courage and bravery of him, and ALL THE CHILDREN, is astounding. Thank God for your blessings. Thank God if you have healthy children, never take that for granted, NEVER. Do something nice for someone this week, maybe even anonymously. Spread some joy around, smile often, laugh lots. We love you all, peace to all, and may God bless us all!



Love and hugs,
Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, April 13, 2004 9:35 AM CDT

Good morning everyone, thanks for checking in! Yes, I know, I know, I have been so slack lately in updating. I'm sorry, I'm sorry, I'm sorry! I certainly don't like to go so long between, I can't remember things that happened yesterday, let alone, TWO WEEKS AGO! Anyway, I'll do my best to update.

Connor did have his head CT on March 30th. It was fine, although they scared me when they called me with the results by telling me that there was a "benign cystic area" on the back side of his brain. After checking with a couple of different doctors, including Dr. Shankar, it was determined to be a buildup of cerebral fluid in that particular area. She said it can happen at any time on any part of the brain, and that it was of no concern. Thank God!

Saturday, April 3rd, I went with Mom (Nana), and my younger brother, Chad to see 'The Passion of the Christ'. All my life, I have known of and read of what Jesus went through for US. But to see it, up close and personal, right there in front of you, well, it is really hard to even try to explain just what this movie does to you. The pure agony and torture that Christ went through, for ALL FOR US, is more that anyone could ever comprehend. And watching Mary as she watches her child go through this, is heart-wrenching. Thank you, Jesus, for the sacrifice you made for us!

We have been "baby-sitting" a frog and a newt. They belong to Ragan and Victoria, Connor's cousins, who, with their Mom and Dad, have been in Orlando this past week. Zoe, our cat, is not amused. She is, however, thankful for the crickets that we have to feed to the frog. So thankful, in fact, that she seeks them out, turns the bowl over, gets the cylinder out of the bowl, and proceeds to have a "cricket appetizer". Yes, we have made two trips to the pet supply store to replenish the crickets. I think I finally found a safe haven for the bowl. Too much temptation for Zoe.......

This past Friday, Good Friday, I went with Nana, Grandma, and my aunts, Sherry and Ann, to Louisville. I have a great aunt who lives up there. She has recently been through chemotherapy, and is having more problems. Her daughter, Sylvia, is recovering from inflammatory breast cancer. And her other daughter, Linda, has been having some health problems as well. We had a good visit with them. I can remember going up there when I was little, and how much fun it always was. We wish you well, Aunt Margot, Sylvia and Linda! You are in our prayers!

Easter Sunday, we awoke to discover that the Easter Bunny DID make a stop at the Hunley house. We went to church, and had a beautiful worship service. The church was filled to capacity. I'm thankful that we live in a country where we can openly praise God, some people are not so fortunate.

Sunday afternoon, Connor and I got to go to the Predator's playoff game against the RedWings. Polly, who works for the Preds, was kind enough to give us tickets. Thanks Polly!!!!! The game was AWESOME, the Preds won 3-1. It was so exciting to be there.

I want to ask for prayers for Kevin Martin. We met him and his wonderful family last year, after Connor's relapse. They had moved here from Nevada, where they were friends with Richie's family. It is amazing how this Caring Bridge network brings people together. They knew of Connor through Richie's page, then we "happened" to run into them in a restaurant, where Linda, Kevin's wife, recognized Connor. It was definitely a "God-thing"! Anyway, Kevin is a ten year cancer survivor. He is now having some problems with his lungs, and is currently undergoing a variety of tests. They are awaiting results, and PRAY that it is not a return of cancer. Please keep this family in your prayers, and sign his guestbook if you can, to offer support. Linda has been a great support to us, since we met them, now they need OUR support. Thank you!

Well, Sumner county schools are on Spring break this week, which means Connor doesn't meet with his homebound teacher. He is, however, going to start back to school on Monday, April 19th, on a part time basis. He will also continue on home-bound through the rest of this school year. He is, obviously, very nervous about the return to school, please, please pray for it to go SMOOTHLY. He hasn't actually been in school since before Christmas. I think it will be really good for him to be back, once he is used to it. According to his teacher, Mrs. Pemberton, his classmates really miss him and ask about him all the time. The STRUCTURE will be good for ALL OF US!

We appreciate you all. Thank you for stopping by. Thank you for your support. Thank you for the guestbook entries, the phone calls, the cards, gifts, and most of all, THE PRAYERS! I want to ask for prayers for my older brother, Johnny. God knows his needs, physically, mentally and SPIRITUALLY, just please pray for God to guide him, he is having a difficult time right now. Connor will be having his chest CT scan and his pelvic MRI in 3 or 4 weeks. We pray that they will continue to be CLEAR. Please visit some of our buddies on the drop-down menu above, and offer them support, if you can.

Cancer is so unfair. Somedays are worse than others. Everyday after diagnosis is extremely difficult. NOTHING is EVER the same again, N-O-T-H-I-N-G. Anyone who has ever been through it, or had someone close to them to go through it, knows exactly what I am talking about. The fear of a relapse NEVER subsides, because the chance is ALWAYS there. Our faith and our trust in God are what we have to rely on. Our support system is very important to us. It's unfair for anyone, but the children......to have their childhood STOLEN from them seems most unfair. And then, of course, the children who lose their earthly battle with cancer, I'll NEVER understand why that happens. Yes, we all know that they are in a better place, where we all long to be some day, but their families need them HERE with them.

I feel a need to apologize for being so slack in answering emails, guestbook entries, and returning phone calls. Some days, I question my own ability to "keep up" with life. I used to consider myself a pretty "together" person, I guess this goes along with watching your child fight for their life. I think it must chisel away at our brain cells. Once again, thank you so much for your prayers! Have a great week everyone! Can you believe, we have a rain/sleet/snow mix happening here today! Crazy weather, it is supposed to be back in the 70's this next weekend. Take care, peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Saturday, April 10, 2004 5:18 AM CDT




Easter Thoughts

At Easter time my thoughts go back
To that night 'neath the olive trees,
When Christ asked those He had chosen,
Can ye not watch one hour with me?

Not one knelt there beside Him,
Not one took heed of His plea.
What would my response have been
Had He asked that question of me?

He was betrayed then bound by the soldiers,
And led down the hill all alone.
Abandoned by those claiming to love Him,
No concern or compassion was shown.

Three times Peter denied Him,
As Christ predicted he'd do.
Oh, Master, have I been guilty
Of also denying you?

He was mocked by the crowd in the courtyard.
A crown of thorns pierced his head,
As He carried the cross the Calvary,
Where He suffered and died in our stead.

But there was no defeat in His dying,
He arose to live evermore,
Showing to those who love Him,
Death isn't a wall....but a door!


By Barbara Hayes Howell

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Matthew 28:1-10 NIV
After the Sabbath, at dawn on the first day of the week, Mary Magadalene and the other Mary went to look at the tomb. There was a violent earthquake, for an angel of the Lord came down from Heaven, and, going to the tomb, rolled back the stone and sat on it. His appearance was like lightning, and his clothes were white as snow. The guards were so afraid of him that they shook and became like dead men. The angel said to the women, "Do not be afraid, for I know that you are looking for Jesus, who was crucified. He is not here: He has risen, just as He said. Come and see the place where He lay. Then go quickly and tell His disciples: 'He has risen from the dead and is going ahead of you into Galilee. There you will see Him.' Now I have told you."

So the women hurried away from the tomb, afraid yet filled with joy, and ran to tell the disciples. Suddenly Jesus met them. "Greetings," He said. They came to Him, clasped His feet and worshiped Him. Then Jesus said to them, "Do not be afraid. Go and tell my brothers to go to Galilee; there they will see Me."

Matthew 28:16-20 NIV
Then the eleven disciples went to Galilee, to the mountain where Jesus had told them to go. When they saw Him, they worshipped Him; but some doubted. Then Jesus came to them and said, "All authority on Heaven and on earth has been given to me. Therefore, go and make disciples of all nations, baptizing them in the name of the Father and of the Son and of the Holy Spirit, and teaching them to obey everything I have commanded you. And sure I am with you always, to the very end of the age."

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Have a blessed Easter, reflect on the sacrifice made by Jesus. We all have the opportunity to spend eternity in Heaven, He made that possible.....



Thanks for stopping by. I'll update in a couple of days.

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"





Monday, March 29, 2004 4:31 PM CST

^i^ ^i^ ^i^

Please keep Maxie's family in your prayers. They have some "most-difficult" days ahead. Maxie lost his rhabdo battle on Saturday, March 27, 2004, just 7 days shy of his eleventh birthday. He has fought a courageous fight, and now he is in the presence of God, where we all long to be some day.
^i^ ^i^ ^i^


Hello everyone, thanks for checking in! It's a rainy Monday, but that's O.K., those of you who know me KNOW that I love rainy days! Connor is doing fine. We will be going on Wednesday evening for the report on the testing he had done (neuro-psych). His clinic appt. for tomorrow is being put off until next Tuesday, April 6. Dr. Shankar is out of town this week, and we really want to see her. She called Friday to let us know, which I thought was super-thoughtful. She has been with us since the beginning and REALLY knows Connor, so we are more comfortable with her.

We had a good weekend, overall. Connor and Eddie went bowling together Friday night, I was soooo tired, so I wimped out on them and gave them their "boys night out". Connor bowled TWO STRIKES IN A ROW! He was so excited to tell me. He still smiles when I mention it. Saturday afternoon, I took him and his friend, Brian, to the Hendersonville Skating Rink. They had a great time. We met the nicest man, David, who owns the rink. His granddaughter, Hailey, is going through treatment at Vanderbilt for ALL, so he immediately recognized Connor by his bald head as having taken chemo. He gave Connor a cool Dale Jr. cap. Thanks David! Oh, yes, by the way, I forgot to mention that Connor is teaching me to inline skate. No, I haven't broken any bones YET. It is just something I've never done, and I thought Connor would enjoy it if I skated with him sometimes in the neighborhood. I'm not sure what my neighbors are thinking, probably that I've FINALLY gone off the deep-end!

Yesterday, Connor and I went to Nana and Poppy's. Poppy took Connor fishing. Connor has been wanting to go for a while now. I think they caught 2 or 3, but threw them back in. They had fun anyway, that's what it is all about. Nana cooked a WONDERFUL lunch, and she and I watched a Lifetime movie, we LOVE to watch Lifetime! When we got home, Eddie was in the process of cleaning out the garage, so I helped him with that.

I added the Scooby-Doo theme today. I think it's great that Scooby is still around. I grew up on Scooby-Doo, as I'm sure alot of you did. Remember Saturday mornings, how they USED to be, with Scooby, Bugs Bunny, Fat Albert, etc., AND the Schoolhouse Rock segments. Now THOSE were the Saturday mornings I remember!

Connor has a scan tomorrow at Vanderbilt. Please say a prayer that it will be all clear. We have no reason to think that it won't be, it is just a precautionary scan of his head. His regular scans should be in about six weeks, I'll keep you posted.

Have a great week everyone! Thank God for all your blessings, they are there, and they are numerous! We are thankful for you all, and for your continued support. You are a strong-hold for us, whether you realize it or not. Take care, peace to all, and may God bless us all!

Love, hugs and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, March 23, 2004 8:43 AM CST

Hello everyone, thanks for checking in! It's a sunny day in Tennessee today, it's going to be up to near 60 degrees. HELLOOOOOOOOO Spring! There hasn't been alot to report, that's why I haven't updated before now. Connor is doing O.K. We have some appts. at Vanderbilt this week, then he goes back to the clinic next Tuesday for the first time in 6 weeks. That is the longest stretch since his original diagnosis in 2001! We still do not have results back from his neuro-psych testing. We should get that back either the latter part of this week, or the first of next. Shortly after that, we are going to try to get him back into school, at least on a part-time basis.

********************

God Knows.....


When you are tired and discouraged from fruitless efforts...
God knows how hard you have tried.
When you've cried SO long and your heart is in anguish...
God has counted your tears.
If you feel like your life is on hold
And time has passed you by...
God is waiting with you.
When you're lonely and it seems
as though noone is there...
God is by your side.
When you think you've tried everything
And don't know where to turn...
God has a solution.
When nothing makes sense
And you are confused or frustrated...
God has the answer.

If suddenly your outlook is brighter
And you find traces of hope...
God has whispered to you.
When things are going well
And you have much to be thankful for...
God has blessed you.
When something joyful happens
And you are filled with awe...
God has smiled upon you.
When you have a purpose to fulfill
And a dream to follow...
God has opened your eyes and called you by name.
Remember that wherever you are
Or whatever you're facing...
God knows.

--Kelly D. Williams


********************


O.K. guys, for a "feel-good" story, go to Chance's page, and read how some wonderful people stepped in to get Chance a new computer when his went out. Yes, there is "GOOD" in this world!

Praying you all have a wonderful week. Please keep Connor in your prayers. His emotional state is VERY FRAGILE right now. Thank you to my Mom, Nana, for being my "therapist" each day, as we deal with this. Thank you also to my friends, Christian, Lu, Donna, and Patty for trying to help me cope with everything. Thank you to ALL OF YOU FOR YOUR SUPPORT. It means so much to us. Please continue to pray for all of our friends in treatment or in remission. Even in remission, the battle is far from over, with life-long monitoring. Never forget to pray for those who have lost their children to this or any other disease or accident, they NEVER stop grieving. Thank you all for standing by us, we will never forget it!

Peace to all and may God bless us all!

We love you,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Saturday, March 13, 2004 8:34 AM CST

**No, I haven't updated yet, just wanted to get in the St. Patty's Day spirit with the background--Happy St. Patrick's Day to all!!!!**

Hi everyone, thanks for checking in! What a beautiful sunny day we have here in Tennessee! Thank you, God, for another day!


**********

This is the day the Lord has made;
let us rejoice and be glad in it.
Psalm 118:24

**********

Connor has had a pretty good week. He had the achievement/IQ testing at Vanderbilt. He had two 2 hour sessions, one Wednesday, then finished up yesterday. The results will now be compiled, and we will have a meeting to go over everything. After that, we will have a meeting at Connor's school, and devise a plan for his return to school. He also worked with his homebound teacher on Tuesday and Thursday.

Connor had a special visitor on Thursday afternoon, after his "school session". Kevin Carter, Tennessee Titan #93, called Wednesday and was wanting to come by for a visit. You may recall, he and Connor did a photo shoot, and shot a commercial last February, just before Connor's relapse. It was for Kevin's fundraiser that he has each year for the Make-A-Wish Foundation. He has stayed in touch with Connor, and even had us to a game a couple of months ago. Anyway, he brought Connor a COOL remote-control Hummer that Connor LOVES (Eddie, too!). He then "hung out" with Connor in his room playing Playstation. Kevin is a phenomenal person, both on AND OFF the field. He and his beautiful wife, Shima, do so much to "give back" to the community. Kevin has received many awards for all of his philanthropic efforts. Kevin, thank you so much for EVERYTHING you have done to encourage Connor. Your friendship means so much. Sorry that you were bombarded by Connor's friends requesting autographs. They all think you are the best!

Yesterday, while Connor was in for his testing, I met Joey's mom, Donna, for lunch. She made me laugh so much. She brought me a hand-made bracelet, with C-O-N-N-O-R spelled out on it. THANK YOU, DONNA, I will cherish it for always. We had a great lunch, and even greater "girl-talk". Joey will be two years off treatment this summer. They are an exceptional family!

Yesterday afternoon, right up from our house, the "Peep bus" was on display. Now, I don't mean THAT KIND OF PEEP, I mean the marshmallow candy kind of peep! The bus was really cool, painted in all the Easter candy colors. You could go on the bus and they had different little displays inside. Before we left to go up there, Eddie asked me if I had the camera. I told him yes, that I had put it into my purse. WE ARE SUCH GEEKS SOMETIMES! Anyway, you don't see that bus everyday, so we enjoyed it.

Last night, we went to see 'Starsky and Hutch'. We had been carrying around some tickets that were given to us, so we decided to use them. The movie was REALLY GOOD. Connor actually said it was the best movie that he has seen in a lllooonnnggg time. Some language, but not too bad. Connor loves cars, as you all know, so he was really getting into all the cars from the 70's era.

He is still snoozing right now, I'm certain he will be up ANYTIME, ready to get outside and play. I want to get out and go to a few garage sales, YES THEY ARE STARTING UP AROUND HERE, YYAHHH! Please say a prayer for Connor. We really need some help and guidance with regards to Connor's medications and behavior. Just trust me when I say that some days are REALLY BAD. I told someone yesterday that I have really learned patience, more-so that I ever thought I would have. I don't like to go into detail in here, just please pray about it, I appreciate it more that I can tell you!

As we approach Wednesday, March 17, we will be thinking of Eddie's wonderful Dad, Joe, who passed away Feb. 8, 2001, the same year that Connor was originally diagnosed. Joe's birthday is on St. Patrick's Day. We miss you so much, Joe!





Taken in December of 2000




Have a great weekend, and great week ahead, everyone! Please continue to pray for all of our friends either going through treatment, or the ones in remission, to STAY in remission. Also, please pray for the families of the children who have gone on to be with God. The pain these families go through EVERYDAY is beyond the comprehension of anyone who has never experienced losing a child. Be thankful for all you have. Try not to complain about "having to run the kids from here to there for this practice and that practice". BE THANKFUL THAT THEY ARE ABLE TO DO THOSE KID-THINGS! So many children are not, period. We love and appreciate you all! Peace to all and may God bless us all!

Love, hugs and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Sunday, March 7, 2004 7:11 PM CST


<BGSOUND SRC="http://www.geocities.com/rshunley1969/whowouldntwannabeme.mp3.wav" LOOP=TRUE>

**The names for the links in this entry blend in with the background, just move your cursor over the name, and it will show up better for you to click on**

Hello everyone, thanks for checking in! Connor is doing fine. He worked with his home-bound teacher twice this week. We will start some achievement testing this week at Vanderbilt to kind of see where Connor is, where his strengths and weaknesses are academically, etc. Hopefully, within a few weeks, he will be back in regular school, at least a few days a week, to start. He does very well with his home-bound teacher. He is quite nervous about going back to school, who can blame him?? But we know that in just a short period of time, he will have adjusted well. Please pray specifically for that, THANK YOU!

Thursday evening, I had a Board Meeting for AngelHeart Farm. Connor and Eddie hung out together that night, then again on Friday night, as my dear friend, Christian, and I went out to dinner together. Saturday, Connor and I, along with Connor's friend, Brian, went to Nana and Poppy's for a while. The company that Nana works for was having a yard sale to raise money for the Relay for Life in Portland, that is coming up. They always have a team, and raise alot of money for cancer research, GO APPLETON WIRE! Then, Saturday night, Eddie, Connor and I met Eddie's family for dinner. Today, we went to church, and have been out running all day. Connor is still out right now playing at one of his friends' house.

We don't have to go back to the clinic until March 30! Wow, it seems so strange not being there several times a week, but BOY, ARE WE GLAD!!! There is a story in the Tennessean today that is heartbreaking, the story of a little boy named Andrew, whom we know from Vanderbilt. Please, even if you don't have time to read this article on Andrew, please say a prayer for him, he has been through so much.

Please also continue to pray for our friends having difficulties right now:

Cody's page

LaKota's page

Abby's page

Ian's page

Maxie's page

Little Sadie Grace's page

Little Cyrus's page


Thank you all for your love and support! Thank you for continuing to sign Connor's guestbook! I hope you all have a GREAT WEEK! Enjoy each and every day, sunny or rainy (snowy in some cases!). Each day is a gift from God, use it wisely. Once again, I remind you to stop by some of our friend's pages on the drop-down menu just above the journal entry. You have no idea just what it means to know that people care enough to stop by the pages, and leave guestbook entries. There have been many days that the kind words you all leave have really helped us to face another day. That may sound cliche', but, I assure you, it's 100 percent TRUE!

Thank you all, peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, March 2, 2004 9:51 AM CST

Good morning, everyone, thanks for checking in. Temps outside in the 60's and near 70 today, what's not to love about that?!?!? Nothing much to report on the home front. Just coasting along, no news is good news. Connor has spent alot of time over the past few days, OUTSIDE with his friends. Roller hockey, exploring the creek, putting up tents, you name it, they've done it. Spring is in the air! Thank you, God, that Connor is able to get out and ENJOY HIS CHILDHOOD, FINALLY!

Not much went on over the weekend. Eddie worked Saturday, I cleaned house, Connor played all day. Sunday, Connor and I went to Nana and Poppy's. Connor got out up there and rode his bike in their neighborhood, and made a new friend, who lives next door to them.

Thank you for your prayers regarding Connor's appt. last Friday. We are trying to get Connor's meds where they need to be, I pray that the changes made will be positive changes.




While we haven't had a lot going on, we are mindful of those friends of ours who have had ALOT going on. I will ask you, once again, to please visit the following sites, and offer them much-needed support:

Cody, who had a bone marrow transplant two ot three months ago, and now is showing abnornal growth in his neck. He started radiation yesterday.....

LaKota, who just relapsed with AML, LaKota's Mom, Debbie, is a great support to all of the Caring Bridge kids, and sadly, lost a child, Cody --age 2 1/2-- to an AML relapse in 1990.

Ian, a precious little boy who has just relapsed with rhabdo. He is starting treatment this week.....

Abby, who is presently FIGHTING for her life....

Ross, who just lost his earthly battle with MLD, after he AND his brother, Trevor, both had stem cell transplants in Dec., 2003. Please continue prayers for Trevor, and for the family....

Angel Dustin, Dustin went to Heaven 18 months ago, his Mom kept his page up, sharing her heartbreak, on Sat., Feb 28, 2004, after updating that day, she collapsed and joined Dustin in Heaven. She leaves behind a son, Tyler. Please, please pray for Tyler and this family, as they deal with this lastest devastating blow.

There are so many others, too many others......

I hope you all have a wonderful week. Please visit some of the kids on the drop-down menu and offer support, they all are in need of support. Hug your kids tight, tell them how loved they are, tell them EVERY DAY. Thank God for all of your blessings, you know there are too many to count. Spend some time playing with your kids, everything else can wait. Thank you for being our friends. We are thankful to you all for all of the support and encouragement you give to us. We are truly blessed! Please pray for Connor to forever remain cancer-free!

Love and peace to all, may God bless you all!

Love, hugs and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Thursday, February 26, 2004 2:08 PM CST

***Thursday night--11:00 pm--nothing new, just changed the background, I know the gold ribbons made it difficult to read the words on the page---sorry!***


Hello everyone, thanks for checking in. We are doing fine this week. Connor is working with his teacher right now. He got a report card Tuesday, STRAIGHT A's! Way to go, Connor!!! We will be at Vanderbilt tomorrow for an appointment, please say a prayer for us regarding this appt. I won't go into detail on here, but God knows our needs, and it is NOTHING regarding cancer or the threat of...

Today, I want to use Connor's page to ask for special prayers for a few of our special friends, please, please visit their sites and offer encouragement to them:


Cody's Page

LaKota's Page


Abby's Page

Katia's Page

Ian's Page



Even if you only have time to say "I'm praying...", I know it would mean the world to these families. Please also say a prayer for Angel Jen's Mom, Judy, who had surgery last Friday and is recovering at home. She is one special lady!

I hope everyone has a wonderful weekend. Thank God for the blessings in your life, they are there! We are thankful for the friendship of each one of you. We appreciate you.

Now, do something for YOU, turn up your volume and click on the following:

Riversongs--Rain


Peace to all and may God bless us all!

Love,
~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"



Monday, February 23, 2004 4:50 PM CST

***Prayer Request--Please go visit Lakota. We need to storm Heaven with prayers for her. Please sign her guestbook, and let her (and her Mom, Debbie) know that you are praying. Thank you so much!***

Hello everyone, thanks for checking in! Thank you to everyone for the well-wishes and "congrats" in the guestbook. We are thrilled beyond belief by the results from Connor's tests. In case you missed the last journal entry:

**Connor is cancer-free,
thank you God!**


Dr. Shankar called today, and confirmed what Nurse Kelly had already shown me in the reports. But, to hear it come from Dr. Shankar's mouth made it even more real. "Thank you" seems so inadequate in expressing our gratitude to all of you for all of the prayers you have prayed for Connor.

Count your blessings,
Name them one by one;
Count your blessings,
See what God hath done;
Count your blessings,
Name them one by one
Count your blessings,
See what God hath done.......

********************
The following poem is by Helen Steiner Rice:


Never Borrow Sorrow From Tomorrow

Deal only with the present,
Never step into tomorrow,
For God asks us just to trust Him
And to NEVER borrow sorrow--

For the future is not ours to know,
And it may never be,
So let us live and give our best
And give it lavishly--

For to meet tomorrow's troubles
Before they are even ours
Is to anticipate the Saviour
And to doubt His all-wise powers--

So let us be content to solve
Our problems one by one,
Asking nothing of tomorrow,
except "Thy will be done."

*********************


We took our little weekend trip to Pigeon Forge this weekend, as planned. Eddie was in a meeting Friday night and Saturday until around noon. His good friend, Keith, Keith's wife Marliss, and their children Ryan and Ashton, were also there for the weekend, so we had someone to hang out with. The kids (and the Dads)rode go-carts Friday night. Saturday afternoon was spent in Gatlinburg, just walking around. We went to Ripley's Believe It Or Not Museum. Connor LOVES to watch the Ripley's show that comes on TV, so he really enjoyed the museum. We all met back up for dinner Saturday night. We had a wonderful time at dinner. Eddie, Connor and I had shopped in a little magic store in Gatlinburg, so we arrived at dinner with all sorts of little "tricks" up our sleeves. We had such a good time with the tricks, that, after dinner, we all piled in one vehicle and went back to the store, so that everyone else could shop. After getting back to the hotel Saturday night, I hit the sack immediately (yes, I'm a wimp!), and Eddie, Keith and Connor hung out downstairs until the wee hours of the morning playing cards. I think Connor was the "dealer". Needless to say, I was the first one up Sunday morning.

We headed back out of Pigeon Forge around 2:30 or so, after paying a visit to the Flea Market. We then met Ginny for a late lunch. We had a great time with her. Connor was so happy to see her, she had him blushing at times. The child is in LOVE! We finally arrived home around 7:30 last night, much to the delight of Zoe, our kitty. I found this graphic last night, and it looks JUST LIKE Zoe. Connor was amazed when he saw it:


Zoe's twin


Our new friends, Chance, Angel and Patty arrived safely back home Saturday. We so enjoyed the time we were able to spend with them. I know they made some lasting friendships and impacted alot of lives in a positive way while they were here.

We appreciate you all, more than you know. Please keep all of our friends in your prayers. Those just diagnosed, those currently in treatment, those in remission, and the families' of those who have gone on to be with God. A couple of families' need extra prayers this week: Angel Connor Stoke's family and Angel Cade's family. I know how much those thoughts and prayers can make a difference. It may not seem like much to you, but it means the world to the recipient. May you all have a wonderful week. Cherish every moment! Do something nice for someone, it's the little things that count.

I want you all to take a peek at a little miracle from up above:

Cyrus's Page

Little Cyrus was born on Feb. 11, 2004 in Minneapolis, MN, weighing only 11 1/2 ounces and only 10 inches long! He was 13 weeks premature. I found the link through Monica and her daughter, Gabbie's page.


Peace to all and may God bless us all!

Love, hugs and prayers,
~~Rhonda, Eddie and Connor, our "Brave Little Miracle Trooper!"


Thursday, February 19, 2004 4:41 PM CST

***PRAISE GOD, CONNOR IS CANCER-FREE!***


The reports were in today from Radiology, and his CT scan AND his MRI both showed NO EVIDENCE OF DISEASE!! How great is that!!! I am nearly turning cart-wheels, if I could, I would! We went in to have his PIC line removed, (THANK YOU, NURSE KELLY FOR YOUR GENTLENESS WITH CONNOR, WE ADORE YOU!!). Connor was SO nervous in anticipation of that procedure, but it went just fine. Connor is now TUBE-FREE for the first time in a whole year! Kelly then looked in the computer for the reports, and there they were. She went over what they said with me, but I think all I got out of it was NO SIGN OF CANCER! The concrete block has been hoisted off my chest. Thank you, thank you, thank you, Thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you, thank you for all the prayers lifted on Connor's behalf! God is so good! Please, please, continue to pray for Connor to forever stay CANCER-FREE! We've "been there, done that" with the rhabdo beast before, so we NEVER want to allow ourselves to take for granted Connor's good health. As my dear friend, Lu (Gabe's Mom)said on Gabe's page (and it's great advice, by the way!), we don't want to live in fear each day of Connor's life, of another relapse, we want to live each day to it's fullest. Knowing that prayers continue to go up for Connor really helps us to be able to do just that, ENJOY EACH NEW DAY!

~~~~~~~~~~~~~~~~~~~~

Rejoice in the Lord always. I will say it again: Rejoice! Let your gentleness be evident to all. The Lord is near. Do not be anxious about anything, but in everything, by prayer and petition, WITH THANKSGIVING, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.

Philippians 4:4-7

**********

Shout for joy to the Lord, all the earth.
Worship the Lord with gladness;
come before Him with joyful songs.
Know that the Lord is God.
It is He who made us,
and we are His.
we are His people,
the sheep of His pasture.
Enter His gates with thanksgiving
and His courts with praise;
give thanks to Him and praise His name.
For the Lord is good
and His love endures forever;
His faithfulness continues through all generations.

Psalm 100 1-5--A psalm for giving thanks

~~~~~~~~~~~~~~~~~~~~



Tuesday, we met Chance, Angel and Patti at the clinic. They came down loaded with books, pins and gifts for the kids. They are the sweetest, most thoughtful people! Lu and Gabe also met us there. Connor's tests ended up taking well over two hours (the MRI itself was over an hour and a half, of him having to lie there PERFECTLY still). Towards the end of the MRI, Connor started sweating and was nauseated. They stopped for a minute and got him a cold washcloth, and that really seemed to help. I felt so sorry for him. That was his longest MRI ever. Anyway, we were back there so long that Lu went ahead and took Chance, Angel and Patti on back to their hotel. I know they were tired.

Yesterday, Connor and I picked them up from their hotel, and took them to AngelHeart Farm. Lu and Gabe met us out there. Tracy was so kind in letting us all come out on short notice. Connor and Chance were more interested in exploring the tadpoles in the creek that runs through the property. But they had a blast! Angel did a fabulous job riding, she even had Tracy talk Patti into riding with her. Patti did beautifully, Angel just giggled to see her Mom get on the horse. Gabe did very well himself. He is becoming quite the Equestrian! He talks up a storm now, and has healed up so well from his surgery in November. It was a gorgeous day, we had a great time. We all went to eat lunch afterward. After that, we met Kim P. from Hugs and Hope in Madison, and Chance, Angel and Patti continued on their Tennessee adventure with her. I am so thankful for the time that we got to spend with them this week. Just goes to show how SPECIAL this Caring Bridge network is! Thank you, Ken, Fran, Robert, Becky, Mary, and everyone responsible for bringing Chance and his family to Nashville. You all are special Angels on Earth!

Connor worked with his homebound teacher this afternoon. She always brags on him and how well he picks right back up where they left off. He actually hasn't been able to work with her for over two weeks, due to his hospital stay. For those of you who have been inquiring, Connor will make a gradual transition back into school. We are working on some testing and planning for this to take place. There is no hurry, home-bound is in place and will be there as long as we need it.

He is now outside, "camping out" with some of his friends. That means they packed coolers with drinks and food and have "hiked" down to the creek for a picnic. I'm sure he will come home soon with his jeans wet up to his knees. It is SO GOOD to see him doing BOY THINGS! Not being stuck in the hospital! Thank you God, oh, thank you!

Tomorrow, Connor and I will accompany Eddie to Pigeon Forge and Gatlinburg for the weekend. His company is having their annual meeting there, so we thought we'd take full advantage of a weekend away. We are looking forward to it, of course, first thing Connor will do as soon as we drive down the parkway in Pigeon Forge is yell, "I WANNA RIDE THE GO-KARTS!!!" He will want to do that before we even get settled into the hotel. This weekend will be all about Connor, and letting him have a blast! We'll even get to see Ginny while we are there, as she lives in the Knoxville area. Please say a prayer for us to have a safe trip. We will be back on Sunday.

Once again, thank you for being here with us. Yeah, you think you are THERE....but you are really HERE, in our hearts anyway! Have a great weekend, everyone, hug your children tight, ALWAYS thank God for the blessings in your life, there are many. We love you all!

Love and hugs,
Rhonda, Eddie and Connor, our "Cancer-Free, Brave Little Trooper!"


Tuesday, February 17, 2004 8:29 AM CST

Good morning everyone, thanks for checking in! Well, the day has arrived, Connor's end-of-treatment chest CT scan and pelvic MRI. He will be having them early this afternoon. I will post results as soon as we have them, although we really don't EXPECT to hear anything until probably Thursday evening or Friday morning.

~~~~~~~~~~~~~~~~~~~~

Do not be anxious about anything, but by everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding will guard your hearts and your minds in Jesus Christ.

Philippians 4:6-7

*****

...And the prayer offered in faith will make the sick person well; the Lord will raise him up.

James 5:15

*****

He has delivered us from a deadly peril, and He will deliver us. On Him, we have set our hope, that He will continue to deliver us, as you help us by your prayers. Then many will give thanks on our behalf for the gracious favor granted us in answer to the prayers of many.

2 Corinthians 1:10-11

*****

Hear my prayer, O Lord;
listen to my cry for mercy.
In the day of my trouble,
I will call to You,
for You will answer me.

Psalm 86:6-7 A Prayer of David

*****

He said to her, "Daughter, your faith has healed you. Go in peace, and be freed from your suffering.

Mark 5:34

~~~~~~~~~~~~~~~~~~~~


We are trusting in the promises laid out in the Bible for a complete healing in Connor. We have seen with our own eyes what God can do, specifically with Connor's surgery last May. Please pray for CLEAR scans and a CLEAR MRI. TODAY AND FOREVER. Thank you from the bottom of a parent's heart.


Last night, Chance, his sister Angel, and his Mom, Patti, arrived in Nashville around 10:30. Connor and I surprised them by meeting them at the bus station and taking them to their hotel. We were so thrilled to finally meet them. They are a wonderful family. Chance and Connor really hit it off. They have so many of the same interests! They are planning on coming to the clinic today to meet their other friends they have made through Caring Bridge. This trip they have made from Savannah, Georgia (14 hour bus trip!), was made SOLELY for the purpose of them meeting their new-found friends. Now, how special is that?!? We pray for them to have a wonderful stay in Nashville. Anyone who has kept up with Chance, and is wanting to meet them, email me privately, and I will give you hotel/phone number info for them.

Little Rae Rae's (Mackenzie Rae Reynolds)visitation will be today from 4-9 pm at the Highland Baptist Church in Pulaski. The funeral will be tomorrow at the church at 2:00 pm. The funeral home in charge of the arrangements in the Carr and Erwin Funeral Home in Pulaski. Their phone number is (931)363-1533, for more info. Please keep this family in your prayers, as they are facing a MOST difficult time. Little Rae Rae was not even 2 years old.

I will post results from Connor's tests as soon as I get them, remember, it may be a couple of days.

Thank you ALL so much for your support and encouragement. We couldn't do it without you!

We love you all!

~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Saturday, February 14, 2004 9:40 AM CST

Added Sunday, Feb. 15--Typing through the tears....I just learned through Craig's page that a beautiful little baby girl, Rae-Rae, passed away yesterday, suddenly. She was in the room next to Connor a few weeks ago when he was in for chemo. She is only 1 or 2, I'm not quite sure, but I know she was well-loved by EVERYONE at Vanderbilt. Apparently, she died from a mass of blood behind her brain, they thought she had a stomach virus and dehydration. This literally makes me SICK, I can't understand it. Please pray for her family.....

Happy Valentine's Day (and Happy Birthday (aunt)Sherry, Angel and Angel Colby!) family and friends! Thanks so much for checking in! We are home, we are home, we are home! We got home last night around 6:00. There is no place like home, to borrow a quote from Dorothy!

Connor had his PIC line placed Friday morning around 9:30. That is his first PIC line ever. We have had a lot of friends, including Gabe, who have had them, but never us, until now. A small tubing is run up through the vein in his arm through the needle. Then a tiny wire to place to where it needs to be. Connor's line goes 28 cm. up his arm and, if I understood correctly, into his chest. This line is temporary. We only had to have it so that I could administer the IV antibiotics here at home. He has an access that comes out of his arm much like the central line access. He told me last night that it didn't hurt at all. He is getting the Vancomycin 4 times a day, which involves a midnight hookup. The medicine goes in over an hour and a half, then it has to be unhooked and the line flushed out. Well, I went to bed at 11:00 pm last night. Connor was still awake playing Playstation. (Yes, I thought he deserved to stay up as late as he wanted to!) So, I told him IF he was up at midnight, please help make sure I get back up to hook him up. Well, at midnight, right on the nose, he woke me up. I can imagine him sitting there watching that clock, minute by minute. He was such a good helper! Now, grant you, I wake up NUMEROUS times throughout the night EVERY night. So, I wasn't relying solely on Connor to be my alarm clock, (did you REALLY just roll your eyes??), but he was a HUGE help! He will be getting the antibiotic through Tuesday, at least. So that's not too bad. We have come home before and had a 21 day regimen to complete.

Connor is still snoozing, surprise, surprise! When we got home last night, first thing we had to do was give Zoe (our kitty) lots 'o lovin'. Then, Connor had his best friend, Jordan (one of our neighbors) over. We ordered pizza for them, so they just hung out for a while. I'm sure as soon as Connor awakens this morning, they will be playing together all day.

Concerning the new hospital, yes, it is beautiful. The funny thing was, there were so many "perks" that we didn't discover until our last night there. There was actually a family laundry room, a family kitchen, and a family business center with a computer, right there on our floor. So, Thursday night, I was up until 1:00 am doing laundry. There are computers and small refrigerators in every patient room, which is great! Believe it or not, they already had a full house, which is sad. We had a couple of uncalled-for, unpleasant incidences (is that a word??) over the last two days of Connor's stay, I won't go into detail, but OVERALL, he had great care and nurses throughout the week.

Please remember our friends currently in the hospital. John Marlin is still recovering from his bone marrow transplant. He is having alot of the side effects right now, and he certainly needs prayer. Also, Chyanna, still recovering from her cord blood transplant, is also experiencing some of the side effects. Little Andrew (either 2 or 3)was BORN with cancer. He was in remission at Christmas-time when we saw them after a bone marrow transplant. He has now relapsed, we need to pray for a MIRACLE for this family. Also, I received an email about a little 2 year old boy, Brandon Simms, who has a brain tumor and is there at Vanderbilt. Craig was admitted yesterday for a round of chemo. These are just a SMALL number of the kids who are in need of prayers. Also, our friend, Cody, has had "activity" show up on his latest PET scan, please pray for that to CLEAR UP COMPLETELY! **Cody's Page**. Katia in Florida is having major "after transplant" side effects as well. She has been in the hospital STRAIGHT THROUGH SINCE AUGUST!


Our friend, Chance, from Georgia, is coming this next week to visit all of his friends at Vanderbilt. He is a 14 year old survivor of cancer, diagnosed with a brain tumor when he was only 3 years old. He, his Mom, Patti, and his sister, Angel, will be making this trip Monday, please pray for a safe journey for them. ***Chance's Inspirational Page*** Chance is amazing, please pay a visit to his site, I know you will be amazed, as I am, with him and his compassionate nature at such a young age.

We are scheduled for Connor's end-of-treatment chest CT scan and pelvic MRI on Tuesday afternoon. Please pray for all to be CLEAR! His PIC line will stay in until his results are looked over by the tumor board next Thursday. Thank you for your support. It is so hard to believe that it has been 2 and a half years since this all began. In February of 2001, Eddie lost his Dad, Joe, two weeks after he had heart surgery. Joe was a wonderful, Christian man, and we still miss him dearly. Then, in October of that same year, Connor was diagnosed. Nothing about life is EVER the same again after a cancer diagnosis, as I know many of you reading this know, FIRSTHAND. It really puts everything in perspective, and it also lets you know who your REAL friends and REAL loved ones are. I have alot of faults, but I HOPE and PRAY that if someone I truly cared about was going through something like this, that I would be by their side. I know everyone has problems, I do know that, but when it's your child, it's different. We are blessed with so many who love us, and have wanted to be a constant source of support. As I've said before, this is something you NEVER get used to, having a child with a LIFE-THREATENING ILLNESS. Nothing becomes "old hat" about that, trust me on that one. So, as the parent watching your child go through all of the "crap" involved, each and every hospital stay is just as tough as the one before, some even more-so. Some might think "Oh, Connor is in the hospital again, well, they are used to it by now...", but let me tell you, if it were THEIR child, they would look at things much differently. These children should be thinking about "kid stuff", not hospitals, procedures, cancer and all of the possibilities involved, etc. So, once again, let me say "THANK YOU!!!!!!!" to those of you who have "been there" for us. It means the WORLD to us, I really mean that. Connor's battle is FAR from over. He will have to be monitored for the rest of his life. So, we sincerely appreciate your continued prayers for Connor to live a long, healthy, happy, cancer-free life here with us. Thank you for letting me vent!

Now, as thankful as we are that Connor is doing so well, we are always aware that there are grieving families out there, grieving for the loss of their precious children, taken from them all too soon. PLEASE visit the "angel" sites on the drop-down menu above. Today would be a good day to visit Colby's site, as it is his 6th birthday, but he is celebrating in Heaven, as his family is left here to "celebrate" without him. These parents and siblings are forced to continue to try to "live" each day, when this world holds nothing for them any longer. They REALLY need our prayers. It breaks my heart into a million pieces to think about what they go through....

A great big 'ole THANK YOU to Mitchell Martin and his Mom and Dad for the cookie bouquet! **Mitchell's Page** Connor received it at the hospital yesterday afternoon, and was absolutely THRILLED! Mitchell is a rhabdo survivor himself, his link is on the menu above. They are a wonderful Christian family, I know you will enjoy visiting his site. Thank you, also, to our visitors this week. We appreciate you all! Gabe stopped by with his beautiful Mom, Lu. Gabe is doing incredibly well, following his surgery in November. He was chattering up a storm, and busy as a bee! He is a cutie-pie! Also, Connor's teacher, Mrs. Pemberton, thank you so much for calling and checking on Connor. She had a bag for Eddie to pick up yesterday at school. They had their Valentine party yesterday, so Connor had fun reading all his Valentine's from his classmates last night. He misses his friends at school......

Well, sorry this is so long. I hope you all have a wonderful, candy and flower-filled Valentine's Day! Connor's "Valentine" is Ginny, of course. He had a special card waiting when he got home last night from her, he blushed from head-to-toe. Thank you, Ginny! Take care everyone, we love you!

Love, hugs and prayers,
~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Monday, February 9, 2004 10:26 PM CST

***Added Wednesday, February 11--1:00 pm--

We thought Connor was going to get to go home today, things change...

*******Heading to surgery at 4:10 pm*******

~~~~~7:30 pm--Connor is back in his room following surgery. He went back in tears, but he did just fine. He is starting to come off his anesthesia, so he is starting to hurt a little. Thank you for your prayers. We will be here for a few days, not sure what the plan is yet. I will keep you updated. Thank you all so much!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
(now backing up to earlier afternoon)
He has developed another infection, so, they want his central line (the line that goes into his chest for chemo, meds, blood draws, etc.) OUT TODAY. It has been in for a year now, and seems to be the source for all of these latest infections. So, since his platelets are at 16,000 (normal range 150,000-400,000), he is getting a platelet transfusion at this moment. Then, in an hour, around 2:00, they will draw counts again to see where his platelets are. They will HAVE to be at least 50,000 for the surgery, so that there will be no uncontrollable bleeding during surgery. The plan after surgery is to put in a temporary IV for the continuation of antibiotics, then, in a couple of days, put a PIC line in. So, we will be here for a few more days. Anyone of you reading this before surgery time, please pray for everything to go smoothly. Connor is very nervous about this procedure, understandably, not to mention the fact that they told him yesterday he could go home today, now that STINKS! Thank you for all your support! I'll let you know how things are going later on tonight.



Hello family and friends! Thanks for checking in. Yes we are still in the hospital. For those of you who don't know, Connor was admitted Friday with a fever. We actually came into the clinic that day for a blood transfusion, but just before starting the blood, they checked his temp, and it was 102. So, they proceeded with the transfusion while we waited for a room. He had a really bad cough for a few days last week, but that was it. His counts were completely bottomed out. He had less than 100 white cells, normal range--4,500 tp 11,500. His platelet count Friday was 20,000, normal range --150,000 to 400,000. So, Saturday, he developed nose-bleeds. He ended up getting 2 platelet transfusions, one Sat. morning, the other Sat. night. He didn't feel like doing ANYTHING Saturday. It takes ALOT to get Connor down, but he wasn't interested in T.V., Playstation 2, or anything else. He wouldn't eat or drink anything. He actually didn't eat a bite of anything all day Friday and Saturday. Our buddy, Nikie, and her Mom, Cyndi, were here Friday and Saturday, so we got to visit with them, (Hi guys!)

We had been given tickets and backstage passes to the George Strait/Dierks Bentley concert for Saturday night. (THANK YOU BEN!!!) We had two tickets, so Connor and I were going to go. Well, obviously that plan changed. So, Nana and Poppy came down to stay with Connor for awhile so that Eddie and I could go. The concert was in downtown Nashville, so we knew we could get back quickly if need be. Connor developed another nosebleed, and was needing his Mom (that's me!), so we came on back around 9:30. THANK YOU NANA AND POPPY FOR "BEING THERE" for us, as you've been throughout his journey!

Sunday was the big day here at Vanderbilt. MOVE DAY to the new Children's Hospital! Wow, what a facility! It stunk that Connor had to be in for a fever, but if he had to be here, Sunday was the day. They have been working on the hospital the entire TWO AND A HALF YEARS that Connor has been in treatment. The new hospital will serve children within a 250 mile radius of Nashville. Let me tell you, it is GORGEOUS! We were moved around Noon on Sunday. It was a carefully orchestrated event. We arrived in our BRAND NEW ROOM, and I'm sure our mouths were hanging open. It is incredible. And the bathroom in the room has a full-sized tub/shower combo! Those of you who have spent many nights in the hospital can see how important THAT detail is. Plus, Connor is the first patient EVER in room 6416! Now, as exciting as that is, we want this to be our ONLY inpatient stay ever. Connor has been able to get out a little bit, with a mask on, to check everything out. He is neutropenic right now, obviously.

Last night, Connor had a special surprise. When Eddie and I went to the Meet and Greet Saturday night before the concert, we got to talk to Dierks, and told him Connor was in the hospital. Well, he and his friend, Michelle, came out last night to visit with Connor. They were here for about an hour. Dierks and Connor played PS2, then Dierks played his guitar and sang a few songs for Connor. They were SOOOOOO nice to take time out of their busy, busy schedules to visit with Connor. THANK YOU, DIERKS AND MICHELLE!

Today, Connor's infection was identified as an Alpha Strep blood infection. He is on two different antibiotics right now, and we should know tomorrow more about how long he will be here. We do know that we will be going home on IV antibiotics, when we do get to go home. He had to have another blood transfusion today. His counts are still VERY LOW, please pray for them to RISE so that he will start feeling better, and will be better able to fight off this infection. Right now, his body is defenseless against any germ. His doesn't have a fever tonight, although he has had one the entire stay.

Thank you for all of your continued prayers. Connor is scheduled for a pelvic MRI and a chest CT Scan next Tuesday, February 17th. After we get the results back from that, we should be able to say that Connor is in remission! We just know the tests will be free of any sign of cancer. Trust in God, trust in God, trust in God.......

We are so grateful to you all, have a great week, hug your children tight, remember the important things in life. Please pray for those still fighting, all our friends in remission, the families' of those who have earned their angel wings...... Thank God for all you have!

We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Monday, February 2, 2004 10:02 AM CST

***Yet another Friday 2/6/04 update: I had to come home to pack for at least a 3 day stay. Connor developed a fever just before they started his transfusion, so that got us an admission. Ya know, we were really anxious to see the new hospital, but not quite like this. The BIG MOVE is Sunday, so we will be involved in that. Hopefully, we will get to come home Monday (at the earliest). Please pray for Connor's fever to break, and for the cultures to NOT GROW ANYTHING. Thank you for all your support. Once again, I will not have access to this page or my email until we get into our new room at the new hospital, I think all the rooms there have computers. Thanks and have a great weekend!*****

******Added Friday morning @ 10:30--Just want to ask everyone for prayers for the family of Carlie Jane Brucia from Florida--as most of you know, her body was found early this morning after her disappearance on Sunday. The monster is in custody and is being charged with her murder. I can't BEGIN to imagine what Carlie's family is going through right now. Please say a special prayer for them. Please also pray for the family of Conor Ford. I just found out he lost his earthly battle with the cancer monster yesterday. Little Alex Haigler went home to be with Jesus this morning. Please keep these families' in your prayers as they prepare for the hardest days of their lives.

On a lighter note, three of our friends are recovering from transplants from the past week and a half, John Marlin, Chyanna Alexander and Katia Solomon, please pray for the success of the transplants and for side effects to be kept at a minimum. Thank you so much!

I am taking Connor in today for a blood transfusion and a platelet transfusion. He also has a very nasty cough, please pray for him to remain fever-free, so we can avoid any hospitalizations. Thanks and we love you all!******



Hello, hello, hello! Thank you all for checking in! Yes, we are home. YES, WE ARE HOME FROM CONNOR'S LAST CHEMO! Can you BELIEVE IT??? Connor is still sleeping this morning, so I thought I'd FINALLY update.

The past couple of weeks have been VERY difficult. The anxiety of ending treatment, and everything that entails, has NEARLY gotten the best of the three of us. BUT, we made it through the treatment, it is now behind Connor. It was an especially tough week in the hospital. For those of you who have inquired, NO, the new hospital is still not open, the newest date is February 8, this coming Sunday, for the move. Anyway, the chemo was really hard on Connor, as we had expected. His emotional state was very fragile all week. We had some rough days. Please pray for Connor, he has so much on his plate right now. He has Brooks on his mind alot, we are trying to face his fears regarding Brooks death head-on. I want to say a special 'THANK-YOU' to Dr. Debbie for all her help, not only over the past week, but over the past year. Debbie, you have been more help to all of us that you will ever know. She is going to help us devise a plan for the back-to-school transition. Connor will not have to be thrust back in full-time, we can do it gradually. That will be best for him right now. We, as a family, have many issues to work through together. Life, as it is for any cancer-family, has been day-to-day total chaos over the past two and a half years. There is NOTHING in your lives that cancer does not affect. N-O-T-H-I-N-G! The range of emotions that you experience on a day-to-day basis is unreal. As I've said before, everything revolves around cancer. My dear friend, Lu, Gabe's Mom, gave me a pep talk a few days ago, and she told me that we now have to choose to NOT let cancer dominate our lives, it WILL NOT WIN. We won't give in to the fear of relapse. Thank you, Lu! By the way, Gabe had his scans Thursday, Lu called me Friday evening, his SCANS WERE CLEAN, NO SIGN OF CANCER, YEAH!!!!!! Way to go, Gabe!

Connor will have a scan of his chest and an MRI of his pelvis in a couple of weeks. I'll let you know the exact date when I get it. (ADDED 2/3/04--SCAN OF CHEST WILL BE 2/17/04 AT 2:00, MRI OF PELVIS WILL IMMEDIATELY FOLLOW THAT SAME DAY AT 2:30--PLEASE PRAY!) We KNOW the scans will be clear, please help us pray for that to be a reality. This week, we have appointments four out of five days at Vanderbilt. Next week will be the same, I'm sure.

Friday night at the hospital, our buddies, Diego (from Child-Life) and Rebecca (Connor's nurse), surprised Connor with a little after-hours fun. Connor and Diego had a Silly-string battle. It was so funny. Thank you, Diego and Rebecca, for making Connor's last night in the hospital, so much fun! We love you guys!



Saturday, Connor's last day in the hospital, started out with Eddie bringing a 'Way to go, you did it Connor!' cake to the hospital, along with a bottle of sparkling grape juice and three champagne glasses.

Connor was discharged around 3:30 in the afternoon. We had a family prayer before leaving the hospital room. We then came home, changed clothes, and went BACK to Nashville, for the Predator's game, thanks to Vanderbilt, Diego, and the Child-Life staff. We had dinner before the game in the corporate reception room at the 'Geck'. We then proceeded to our seats, GREAT seats by the way, along with everyone else with Vanderbilt. There were probably 30 people in our group. The game was great, the Pred's pulled a win off in overtime with only 15 seconds remaining. We then went back to the reception room, where several of the players came by to sign stuff for the kids. We had a really great time. Thank you, Vanderbilt and the Predator's, for a great family night out!

Yesterday was sleep-in day for Connor. He had certainly earned the right to sleep as late as he wanted, which turned out to be about 2:30 in the afternoon! We told him we would do anything he wanted to do. He asked his friend, Jordan, to go with us. We went to the Car and Truck show in Nashville and looked around. Connor is a car fanatic, as most of you know. We then went to Connor's choice of a restaurant, China Star, and pigged out on the chinese buffet. Connor actually did not have much of an appetite. He went for three days in the hospital last week without a single bite! But, he always enjoys China Star. We were going to ride go-carts after that, but they were not open (might've been because it was 43 degrees, ya think?), so we went bowling instead. We had a great time, Connor and Jordan especially. We got home last night in time to see the end of the Super Bowl. Congrats New England! (Although I have to say, I was pulling for Carolina!) Janet Jackson and Justin Timberlake, you should be ashamed of yourselves. Even BEFORE the exposure incident, your dancing was disgusting, do you know that kids were watching, you needed to GET A ROOM! O.K., enough said, I just think it is ridiculous when someone, as they do, has such an opportunity to impact our youth, and they choose to 'act a donkey' on national television, what a shame.

We are so thankful, SO thankful. Thankful that we have our child here with us. Thankful that God has given us another day together. Thankful for our families'. Thankful for our friends. Thankful for YOU! YOU have been such a guiding force for us throughout this journey. Your presence, your prayers, your kind words, your cards, your gifts, your friendship, YOUR PRESENCE. Just knowing we have so many on 'Connor's team', rooting for us each day, well, that really helps us get through the days. We have been blessed, we know that. God had been so good to us. We are thankful. Thank you God!

As we celebrate Connor's ending of treatment, we are very aware of all of our friends who are still battling, and those who lost their earthly battle. Please continue to pray for our friends, and our friend's families'. Some of them are on the drop-down menu above, I will be adding more names, as I get them, I have a list now to add. So sad, so sad to know of so many 'new' kids, starting this hellish battle. Also. please continue to pray for Connor. PRAY WITHOUT CEASING... that is what we will do. We will never get so comfortable that we will not pray. We know Connor is here today because of prayers. We will NEVER take that for granted. Please, please, remember to hug your children extra-tight, and thank God for them. He has blessed you with the opportunity of being their Mom or Dad. They need the assurance that you are there for them, that you love them, that you will do anything for them. Let them be aware of that EVERY DAY! Our children are one of life's greatest gifts. Always thank God for that gift.

Thank you for coming by, we need you, we appreciate you, we love you! Have a great week everyone!

Love, hugs and prayers,
~~Rhonda, Eddie, and Connor, our "Bravest Little Miracle Trooper!"


Wednesday, January 21, 2004 9:56 AM CST

***Connor is scheduled for his next (and last!) chemo on January 27. This will be a five day stay. Please pray for it to go smoothly. Thank you so much!***

Hello family and friends, thanks for checking in. First of all, thank you for the "extra" love you have shown over the past week to Connor as he has had to deal with the loss of his 10 year old friend, Brooks. He had asked me questions and talked about it some, on his own time. I didn't press him to open up. God certainly answered my prayers, I was praying Connor would not want to go to the visitation or service, and he didn't even ask me. Eddie and I went to the visitation Sunday night, then I went to the funeral on Monday by myself. The service was beautiful. It was a celebration of Brooks and the impact he made on so many people. He truly was wise beyond his years, as most of these children are forced to be by this dreaded disease. His family will miss him beyond belief, but they are assured that he is now in the arms of Jesus, safe and secure, awaiting the day when they will all be reunited. In addition to his parents, Lee and Sue, Brooks is survived by his brother, Forrest, and his sisters, Jessica and Olivia. Please keep this family in your prayers.

Please visit a special page made by our new friend, Judy. A link to her beautiful daughter, "Angel" Jennifer's site is on the drop down menu:

Connor's page created by Judy
Thank you, Judy!


It was a rough week at Vanderbilt, as two more children lost their earthly battle with cancer over the weekend. Our thoughts and prayers are with the family of 15 year old Marissa, and with the family of Nick, I'm not sure how old he was, but he was a relatively new diagnosis. We had never met either of them, but will definitely be keeping their families' in our prayers.





Last Friday at the clinic, Connor had to get blood and platelets. We were quite certain he was low on both. He had been having nose-bleeds, and his lips were nearly white. We got to hang out with our buddy, Craig, and his Mom, Helen, at the clinic. We were due to go back to the clinic yesterday, but Connor was so tired from not sleeping the night before, that I called to see if we could reschedule. His teacher was due to come at 2:00, and I knew we would be really pressed for time, and I just wasn't up for that extra stress. So, tomorrow, we go back for counts again. I have to go to court in the morning in White House for a speeding ticket that I got a few weeks ago. Connor was with me when I got pulled over. He was sssoooo mad at the policeman. Of course, I tried really hard, but I was tearing up a little, and the policeman told me not to cry. THAT is what made Connor mad. I tried to explain after the fact that I had been breaking the law by speeding, but he wasn't going to have any of it. He will be going to court with me, I hope he doesn't disrupt the courtroom in protest.




Hopefully, Connor's counts will be back up, and he will be able to go to school Friday and Monday. He hasn't been since before Christmas. In another month or so, he should be back full time! I'm sure that will be an interesting transition. Please pray specifically for that. THANK YOU!

I hope you all have a great weekend! If you have time, please visit some of the sites on the drop-down menu above, and leave an encouraging note in some of the guestbooks. Your notes are what get us through alot of days, whether you realize it or not. Please also say a prayer for my Grandma. She is very special to me. She had a suspicious spot removed from her head this week, and they are sending it off to see if it could be skin cancer. Please pray for the test to be NEGATIVE. I certainly appreciate it. (I love you, "Cass"!) Thank you all for stopping by, I apologize if I haven't answered your email over the past few days, I have kind of been in a slump lately. I'll try to do better! We love you all, peace to all, and may God bless us all!

Love, hugs and prayers,
Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Thursday, January 15, 2004 7:18 AM CST

Update 1/17/04--6:50 am--IT IS WITH VERY HEAVY HEART THAT I TELL YOU THAT OUR FRIEND, BROOKS RICHARDSON, LOST HIS EARTHLY BATTLE WITH CANCER YESTERDAY EVENING AT VANDERBILT. CONNOR AND I HAD BEEN AT THE CLINIC ALL AFTERNOON. HE HAD TO GET A BLOOD AND A PLATELET TRANSFUSION. WHEN WE GOT HOME, I HAD A MESSAGE ABOUT BROOKS, AND IT WASN'T LOOKING GOOD. WE WENT BACK DOWN THERE. I DEBATED ON WHETHER TO LET CONNOR GO, BUT HE WAS PRETTY INSISTENT ON BEING THERE FOR HIS BUDDY. WHEN WE GOT THERE, HE HAD JUST PASSED. I AM HEARTBROKEN FOR HIS PARENTS AND HIS FAMILY AND FRIENDS. EVEN THOUGH WE ALL KNOW HE IS NOW CANCER-FREE, WITH JESUS IN HEAVEN. BUT STILL, HIS PARENTS ARE LEFT HERE WITHOUT THEIR CHILD, IT MAKES NO SENSE. PLEASE PRAY FOR THEM, THEIR NAMES ARE SUE AND LEE. THEY HAVE THE HARDEST DAYS OF THEIR LIVES JUST AHEAD. PLEASE ALSO PRAY FOR CONNOR, I TRIED TO GET HIM TO OPEN UP AND TALK ON THE WAY HOME, BUT HE JUST SAT AND STARED OUT THE WINDOW. I CAN ONLY IMAGINE ALL THE THOUGHTS THAT ARE GOING THROUGH HIS MIND. THOUGHTS THAT NO 9 YEAR OLD SHOULD EVER HAVE TO THINK. FOR ANYONE READING THIS WHO KNOWS OF BROOKS, I DON'T HAVE INFO YET ON THE SERVICE. I JUST CHECKED THE TENNESSEAN THIS MORNING, AND IT ISN'T IN THERE YET. IT WILL PROBABLY BE IN THERE TOMORROW.--TENNESSEAN.COM--
Sunday, January 18--visitation from 3-5 and from 5-7 pm at Woodlawn funeral home on Thompson Lane Sunday. Funeral will be held Monday, Jan. 19, at 2:00 pm at Hillsboro Church of Christ with visitation Monday one hour prior to service. To read full obituary, Click here and scroll down to Stockton Brooks Richardson. THANK YOU FOR ALL YOUR PRAYERS....

Hello everyone, thanks for checking in! Connor's chemo last week was rough, to say the least. He stayed in his room the majority of the time, which for Connor, is unusual. It just hit him especially hard. Having the two 'five day chemos' in a row really took it's toll. His marrow just didn't have enough time to recover in between. His next chemo is scheduled for January 27th. It is another five day stay, same drugs, so he really could use some prayers. I cringe to think it could be WORSE than last week. But, IT IS HIS LAST CHEMO. Yes, his last one and he is finished with treatment. Yes, we are relieved, but, as I've said before, 'been there, done that', so we are being more cautious this time as far as a way to celebrate. One of Connor's doctors suggested a quiet little weekend trip somewhere, just the three of us. NOT a big celebration. So, we are hoping to be able to do that. Because as scary as it is to finish and stop chemo, Connor has accomplished SOOOOOO much, and he certainly deserves recognition for that. We haven't had a conversation yet with Dr. Shankar concerning after-treatment plans. It would be my hope that scans could be done every two months, instead of every three months, as was done the first time. That may not even be a possibility. We do have faith that God will keep Connor in remission, but God also gave us a brain, and we realize that there is always a chance for relapse again. So, we will pray, as we do all the time, for Connor to remain cancer-free and live a long, happy, healthy life. Isn't that all any of us really want for our children??

Thank you all for the prayers lifted up last week for Connor. A special thank-you to Mary T., in Baltimore. We 'met' Mary through Hugs and Hope. She called the hospital last week to check on Connor, it was such a joy to finally get to speak with her. Also, Ann R., in California. She sent Connor a box-full of presents. When I came home to get clothes, it was sitting on our front porch. I took it back to the hospital with me. Connor had been vomiting while I was gone. He got that box, and was so excited opening his gifts. Wonderful timing, Ann, thank you so much! We appreciate all of the cards that you all continue to send to Connor. And to all of you who are signing Connor's guestbook, THANK YOU, THANK YOU, THANK YOU!





I have a couple of prayer requests. The first one is for Ashley and Ryan. **Click here for their page** Ashley was diagnosed back in 2000 with ALL. She relapsed in her bone marrow in October, 2003. She is getting ready for her transplant. Ryan is her 21 month old little brother. This past Saturday, Jan. 10, he was admitted to the hospital, and they diagnosed HIM with ALL, as well. They are actually sharing a hospital room. Can you imagine what their parents are going through right now?!? Please, please pray for this family. Also, Katia S., in Florida, just had lung surgery to get rid of an infection. She relapsed in August, 2003, with AML. She is getting ready for her transplant. They have been in the hospital SINCE SHE RELAPSED. Please pray for this family. **Click here for Katia's page**

I'm going to try to add some children to the drop-down menu at the top of the journal. There never seems to be a shortage of new names, it really is very scary. We all have so much to be thankful for. I thank God every day for another day. Another day with Connor. We are so thankful to have him here with us. So many families' no longer have their child with them. So many are left to face each new day without their precious child. Stop for a moment and whisper a prayer for these families. Nothing but the grace of God, and the strength that only He can give them, will get them through today.

We appreciate you all. And I do mean 'all'! You give us the will and determination to get through the days, with the love and support that you give us. Thank you for taking this journey with us, we know you didn't have to. I hope everyone has a wonderful weekend, hug your kids extra-tight. Focus on the positive, to do otherwise is not productive in any way. Take care, peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and COnnor, our "Bravest Little Trooper!"


Friday, January 2, 2004 9:08 PM CST

***Quick update--Wednesday, January 7--Connor was admitted yesterday for his overnight chemo (we thought) but his doctor had looked at his roadmap wrong, and we are in for a five day stay. I had to run home to get more clothes because I only packed for one night, so I thought I'd let you all know. I have NO ACCESS to a computer at the hospital. They have moved most all of them to the new hospital already. So I won't be able to check the page or email until probably Sunday. Thank you and please keep Connor in your prayers! He is feeling pretty rough right now, Nana and Poppy are there with him right now.***

HAPPY NEW YEAR EVERYONE! Can you believe it, 2004?!? I hope you all had a wonderful Christmas and safe New Year. We have had a couple of good weeks. Santa Claus DID come to the Hunley house, believe it or not! I think it was kind of a borderline decision on whether or not he would be stopping here. I hear that he called a midnight staff meeting Christmas Eve to discuss Connor's good/naughty status. He tweaked by, barely.

The anticipation was nearly enough to cause Connor to spontaneously combust. I was wondering if he would ever go to sleep Christmas Eve night. I actually had to wake him up Christmas morning, I couldn't wait any longer. He was as excited as any 9 year old could possibly be. He got most everything on his list, and some to boot, thanks to his generous Hugs and Hope elves. THANK YOU, ALL, FROM THE BOTTOM OF OUR HEARTS! We headed to Nana and Poppy's around lunch time to have Christmas with my family. Once again, Connor came out quite well. Then, that night, we went to Grandmama's house for Christmas with Eddie's family. It was a rather busy day. Does everyone else pack all of the visiting into one day? But we did have a good Christmas, we are so thankful that Connor was able to enjoy it.

Yesterday, Jan. 1, was Gabe's 2nd birthday. We went to his birthday party in Franklin. He was so cute. The kids all had a blast. It was held at a Gymnastics center. Lots of fun stuff to play on. I didn't think we were going to be able to get Connor out of there. It has been at least a couple of weeks since we had seen Gabe, Lu and Rob. Gabe has recovered beautifully from his surgery. We are so happy for them and wish him a long, long life of being cancer-free! Happy Birthday, Gabe!

We have been to the clinic a few times since Christmas. Connor got platelets the day after Christmas. His counts today had come up more, so tonight is his last Neupogen shot this round. His platelets still are only at 43,000--they should be 150,000-400,000. They will have to be at least 75,000 before he can get chemo next week. His next scheduled admission is this coming Tuesday, January 6. It will just be an overnight stay. If you remember, last time, he had outpatient chemo, only to come home the day before Thanksgiving and vomit over and over. Being inpatient will mean that they can keep him hydrated well, plus give him anti-nausea meds via his central line.

For those of you who don't know, the BRAND SPANKING NEW Vanderbilt Children's Hospital is slated for opening on January 9. There will be a massive patient move that day from 11 am-6 pm. I heard that the National Guard will be coming in to assist. Connor is not scheduled to be there then. A couple of weeks after that, he will be admitted for his LAST chemo, a five day stay. Now that is tentatively what Dr. Shankar told me. Yes, we are that close to being finished with chemo. But, to be perfectly honest with you, I am scared to death. Since he relapsed, that nagging fear is always there. I know, I know, have faith. And I do have tons of faith, but I would be lying if I told you that I KNOW everything will be fine. Having to think about your child's mortality kind of does that to you. So, I will continue to pray EVERYDAY for Connor's complete healing, and a long, cancer-free life. There are so many kids out there, at this very moment, struggling for life. I just can not fathom the point in this. I have asked so many times, WHY NOT ME??? I would gladly take on this beast, just let my child BE a child, but, that is just not the way it works. No, I will never understand it as long as I live on this earth. God will make it all clear to me someday, I'm sure of that. And I do know that Connor and all of the others battling have touched so many lives, but at what expense to them. I don't mean to sound so angry, it is just that so many Caring Bridge kids have passed away in the last few weeks. It seems like every few days, I sit down here, open my emails, and there it is, another child gone. Another family left to try to face each day without their child with them. I can't see the logical meaning in that. It is not the natural order of things. For all of you parents in that position reading this, there is not a day that goes by that I don't pray for you. My heart breaks for you, I wish I could wave a magic wand and bring your healthy child back to you....




I have an urgent prayer request. When Connor was originally diagnosed back in Oct., 2001, one of the first "Mom's" to approach me in the clinic was Sue Richardson. Her son, Brooks, was just finishing up treatment. She really helped me alot there in the beginning. Well, a few months back, we were shocked to hear that Brooks had relapsed. He and Connor were actually in rooms right next to each other for one of their stays. They hung out in each other's room and became good friends. Well, right now Brooks is fighting for his life. He has been in the PICU with infections and bleeding. He has been on a ventilator. I can only imagine what they are all going through right now. Please, please offer up some prayers for this young man. He is, I think, 10 years old. He needs a miracle at this point. Thank you!





Wishing you all the best of everything in 2004! Thank you all for the support you have given us. We are thankful everyday for the outpouring of love from you all. NO WAY could we still have our sanity without you. O.K., I heard that....yes, I AM still sane (I think!). Anyway, you, and you, and you are all special to us. God has placed all of you in our lives,and we are so grateful for that! Peace to all, we love you all, and may God bless you all!

Love and hugs,
~~Rhonda, Eddie and Connor, our "Brave Little Trooper!"


Tuesday, December 23, 2003 11:13 PM CST


Hello everyone...thanks for checking in! Guess what??? I am updating on our NEW COMPUTER! A GREAT BIG THANK YOU to the Jackson families'--Shirlee, Tommy, Mark, Becky, Virginia, Marilyn, Rex, Debbie, Brian, and Craig. We are so very grateful...beyond words. Brian and Craig brought it yesterday evening. I was up until 3:00 am, switching over to the new computer, transferring data, etc. I tell you, there are so many people out there who have helped us throughout this journey. Alot of them, we don't even know. So if you ever lose faith in the human race, just contact me and I'll restore your faith with the stories of love and support we have been showered with.

Connor's hospital stay went O.K. Only a couple of days/nights of pretty bad nausea and/or vomiting. I have to tell you, we met a wonderful family while Connor was in. The lady Connor bonded with (HI FIFI!), her grandson was in the PICU. Please say a prayer for Luke. He is 19 months old, came in less than two weeks ago with an infection in his arm. It turned out to be E-coli. The surgeons had to amputate his entire arm. It breaks my heart to even think about it. Anyway, Luke has the most wonderful family. The type of people you feel as though you have known for years. Fifi played Monopoly with Connor for hours, several days running. I told her she has the patience of Job. They have been told that Luke will probably be in the hospital for a couple of months.

The past week has been especially trying for the CaringBridge family. We have lost several kids to this monster called cancer. Please pray for these families'. I can't begin to imagine their anguish and grief. Not that ANY time is better, but right before Christmas seems to make it even worse. As I have said before, noone thinks it could happen to them. But these children were just as seemingly healthy as any child, before diagnosis. Then, BAM, one day their world was turned into total chaos and devastation. We feel sometimes (Eddie and myself) that we are caught up in a tornado/whirlwind, and it never stops, it just keeps on picking up speed, spinning and turning uncontrollably. We NEVER could have even fathomed that we would be faced with watching our child go through this. I thank God everyday that I still have my child here with me. There are some places you don't want to let your mind roam to......... We are still rejoicing in the fact that Connor's lung scan came back clear! Thank you, again, for the prayers, God heard and answered!

Connor got out of the hospital on Saturday evening. Sunday, Ginny came to visit! She also came by the hospital last week while Connor was in. She spent the whole afternoon and evening with him last Wednesday. Sunday, she stayed for a couple of hours. We had a good time visiting with her, as always. She is a sweetheart. A couple of Connor's friends were here when Ginny arrived. They were QUITE impressed with Connor's "girlfriend".

Connor and Ginny--Dec. 21, 2003


We took my car to Mom's Monday night. They have a wonderful mechanic up there, and I needed brake work. We left the car, and we left Connor. Connor didn't really need work, but we needed some shopping time without him with us. The hospital stay really messed me up with my Christmas shopping. I didn't plan very well this year. Looks like I will be out tomorrow with all the last minute procrastinators. Mom brought Connor home this morning, and she went to the clinic with us. Connor's counts have not dropped yet, so he did not have to get a transfusion. We will go back on Friday, the day after Christmas, and have them checked again. We went over to the hospital after leaving the clinic, to visit. We saw Nikie and her Mom, Cindy. Nikie is in for chemo this week. They are hoping to go home tomorrow evening (Christmas Eve). We saw Cody and his Mom, Cathy, in the clinic. Cody has astounded everyone with his progress since his transplant. He was only in for three weeks with the transplant! Praise God! We also saw Chyanna, and our buddy, Jack. Jack is looking so wonderful. He just went on his Disney World Make-A-Wish trip the first week in December. He was still wound up talking about how much fun he had.

After leaving Vanderbilt, we went to AngelHeart Farm to see Tracy. She and Connor exchanged gifts. She then presented me with a "gift" from the friends and family of Skip Lutz. Connor met him last year at a little place downtown, Radio Cafe, when we went to hear a volunteer from the program. He was the sound man there. He really took to Connor, and Connor really enjoyed talking with him that night. He passed away a few months back, and his friends and family wanted to give us a little "help" in honor of Skip. They also made a kind donation to the program at AngelHeart. So for that, we say Thank you, and May God bless you all! Thank you, Tracy, also, for your gift to us!


We are so blessed. We have had a lot of "Christmas Angels" this year. We are so grateful, SO GRATEFUL. You know who you are, thank you. This time of the year is a time to reflect on everything we have to be thankful for.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

And there were shepherds living out in the fields nearby, keeping watch over their flocks at night. An angel of the Lord appeared to them, and the glory of the Lord shone around them, and they were afraid. But the angel said to them, "Do not be afraid, I bring you good news of great joy that will be for all the people. Today in the town of David a Savior has been born to you; he is Christ our Lord. This will be a sign to you: You will find a baby wrapped in cloths and lying in a manger." Suddenly a great company of the heavenly host appeared with the angel, praising God and saying,

"Glory to God in the Highest,
and on earth, peace to men..."

Luke 2:8-14



************

A Christmas Prayer-- by Robert Louis Stevenson

O God, our loving Father,
Help us rightly to remember the birth of Jesus,
That we may share in the song of the angels,
The gladness of the shepherds,
And the worship of the wise men....

May the Christmas morning make us happy
To be thy children
And the Christmas evening bring us to
our beds with grateful thoughts,
Forgiving and forgiven, for Jesus' sake.

Amen.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~



We want you all to know how much you mean to us. Your presence, seen or unseen, gets us through each day. We are strengthened by the encouragement that you give us. We are thankful, we will forever be thankful. May you all have a glorious Christmas. Remember that Christ is the reason for the Christmas season. Without Christ, you really have no reason to join in the celebration of His birth. Enjoy and cherish each moment, make beautiful memories, start new traditions, sit down in the floor with your child and let THEM do the talking. Let THEM suggest a game to play together. Seeing the joy in their eyes when they get a wonderful gift of YOUR TIME, well, what more do you need than that. Thank God for your blessings, and yes, you are blessed. God is so good to us, as undeserving as we are sometimes. His love is never-ending, all we have to do is accept it. Merry Christmas, family and friends, and may 2004 be a year of good health and happiness for you all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Wednesday, December 17, 2003 10:57 AM CST


****ADDED FRIDAY, DEC. 19--I AM SORRY TO HAVE TO SAY THAT LITTLE JAKE LOST HIS EARTHLY BATTLE LAST NIGHT WITH CANCER. HE IS NOW IN THE ARMS OF JESUS, PLEASE PRAY FOR PEACE FOR THIS FAMILY


Angel Jake's page


^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^



POOF-----LUNG SCANS WERE CLEAR! YYAAHH!
Thank you so very much for the prayers you have sent up! We went yesterday for the scans, then Connor was admitted for his five days of chemo. Dr. Shankar told me that there are no spots showing up now, PRAISE GOD! We are obviously so relieved. I told her that she had given us the best possible Christmas present! Also, Gabe did very well with his surgery, and he is already home! Lu called me on Friday, they had the biopsy results back and everything was negative. We are so thankful that our little buddy is now cancer-free! Thank you, God!



We have had a very busy couple of weeks since my last update. I'm going to have to start making notes so that I can remember everything for the update. First of all, the wedding in Gatlinburg of my cousin, Kyla, was beautiful. And just as they started down from the chapel to get into the limo, it started snowing. It was a busy day, driving almost four hours up there, staying for a couple of hours, then four hours back. Congratulations Kyla and Jeremy!

That Sunday, we met Eddie's Mom, Nannie, and Aunt Tammy, Uncle Shelton, Ragan and Victoria, to eat brunch for Nannie's 91st birthday. She is such an amazing lady, and a wonderful Christian example to all who know her. On Thursday night, Dec. 11, we met Nannie once again, along with Uncle Harold and Aunt Linda, and lots of friends and family for another birthday dinner on her actual birthday. We had a great time, lots of "good country cookin'" from Cracker Barrel. Happy Birthday Nannie!


That Sunday night, we were able to go to the Linda Davis Christmas Show at the Opryland Hotel, compliments of Vanderbilt. Lu, Rob and Gabe also had tickets and we were seated together. We enjoyed a good dinner and show. Thank you, Debbie V. and Linda for the tickets!


Connor went to school a few days since I've updated. His Christmas musical was last night at school, so we missed that once again. But, there's always next year. His class Christmas party is today. The kids are not exchanging gifts this year. We took his teacher's gift to her on Monday.

Saturday evening, I went with Mom (Nana) to her work Christmas party in Bowling Green. We usually go every year. We had a really good time. Connor stayed with Poppy, then he and I spent the night up there. We woke up Sunday morning to good old biscuits and gravy, MY FAVORITE! Nana makes THE BEST GRAVY in the world. I could lilve on the stuff, although I would soon have to buy a whole new wardrobe.

Last Friday evening, (sorry for jumping around so much), we received a phone call at home from Kevin Carter from the Titans. He invited us to be his guests for the game this past Sunday. It was SOOOOO cold, but we had a great time! Kevin is just the nicest person. We were in the very front row, right behind the players. Kevin came over before the game started to say Hi. Connor was ecstatic! He even came over during the game and brought us cups filled with hot chicken broth to warm us up. He had also given us passes to the club level, which is inside. SO, around half-time, we went up there to thaw out. We came back out and watched the rest of the game, which the Titan's won, by the way!!! After the game ended, Kevin came over once again and gave Connor one of his gloves that he had worn during the game. He also gave him a game ball! WHAT A DAY!



So, we will be here until Saturday or Sunday. His chemo wasn't started until around 10:00 pm last night, so we may be here an extra day. We pray that we are able to be at home for Christmas, and that is the plan. Connor is doing OK so far. He had some nausea during the night, nothing severe. Hopefully, this will go smoothly. Please say a prayer for him. Also, for all of our friends still undergoing treatment. There are lots of kids who will be here through Christmas, confined to their rooms, due to low counts. While you are out in the hustle and bustle of the Season, stop and take a moment to thank God for all you have. You really have so much to be thankful for. So many no longer have their child, brother, sister, mother, father, etc., here with them to share in the joy of this time of the year. Please pray for peace for these families'.



Thank you to all of you for checking in. I'm sorry it has been so long since I've updated. I will try to do one more before Christmas. I want to thank my cousin, Jennifer, and her family, also Sandy and her brother, Rick and Janelle, and others who have "helped" us with Christmas this year. You just don't know how much this means to us. God has really blessed us with our own Earth Angels. Just when things seem to hit rock bottom, we are lifted back up again. Thank you to Connor's Christmas Elves from Hugs and Hope! He has been so excited when the mail comes to get his packages. Hugs and Hope, you are the best! There are so many to thank, I could sit here for days and not name everyone who has helped us over the past two years. Please know that not one kind deed has gone un-noticed. We are so thankful, SOOO thankful. May God return the blessings to you all that you have brought to us!

Merry Christmas to you all, we love you all, and may God bless us all!

~~Rhonda, Eddie and Connor, our "Brave Little Trooper!"



Thursday, December 4, 2003 2:37 PM CST



Hello everyone, thanks for checking in! Connor is working with his home-bound teacher right now, so I thought it would be a good time to update. By the way, hope you like the new click-down bar with the kid's names, NO, I didn't do it, THANK YOU to Gooch's Mom, Chris, for her help on that. She is the computer whiz, not me.

Last Wednesday, as I told you in my last entry, Connor was in the clinic to get chemo. We went home that evening, he wasn't admitted. This was the day before Thanksgiving. By that night, he started vomiting, and vomited all night long. I felt so sorry for him, he could not even keep his nausea meds down. He had been warned by one of his nurses in clinic that it was VERY important for him to drink lots and lots of fluid, and go to pee alot. That is so that his body can rid itself of the poison most commonly known as "chemo". One of the drugs he received is known to cause damage to the bladder, which she told him could result in a bleeding bladder if the chemo doesn't get flushed out. Kinda scary, huh? Well, it was to him, and it was to me. Anyway, so common sense would dictate that if he is constantly vomiting, that nothing is getting flushed on through his system. The reason I'm telling you all this is to say that NEXT TIME, I'm going to insist on an overnight stay, not chemo all day, THEN send us on our way. (That rhyme was unintentional) I would much rather stay at Vanderbilt one night than him go through the hell of vomiting all night, uncontrollably. When he is inpatient, he is CONSTANTLY getting fluids via his Hickman catheter. Also, his nausea meds can be administered through his IV, so he doesn't have to try to swallow anything by mouth while he is getting sick. The entire first time he went through chemo, his scheduled chemo stays were always one nighters. O.K., I've rambled on enough about that. After we left the clinic, we met Ben (from Make-A-Wish), his wife Brittany, and Ben's wonderful Mom at The Palm restaurant here in Nashville for the unveiling of Connor's caricature(sp?). When we attended Kevin Carter's fundraiser for Make-A-Wish there in April, the Manager, Charlene, had Connor put his autograph on the wall, anywhere he wanted, amongst all of the "other" stars. Connor chose a spot right next to Mike Myers. So his John Hancock has been there, now his picture is, as well!

We were thrilled to see it. Connor was not feeling well after the chemo, so he just kinda wanted to get it over with. But he thought it was cool. Thanks, Charlene!

Thanksgiving started off on a bad note, Connor was tired and DID NOT want to get ready to go anywhere. We got to Nana and Poppy's late, but that was fine. For the rest of the day, everything went great. We enjoyed spending time with my family, and stuffing ourselves. Connor actually ate pretty good, considering he had been so sick overnight. Mostly mac 'n cheese, but that's O.K. We stayed up there most of the day, then stopped by to see Grandmama (Eddie's Mom) for a few minutes, before coming home.

Friday, Connor and I slept in. That afternoon, our friend Allison, and her Mom, Shearon, took Connor to see "Elf". He had a great time. Thank you, Allison! I worked on putting decorations outside. It was soooo cold that day. And we had our first taste of snow, yyyaaahhh! It really put me in the holiday spirit. For those of you reading this who live up North, I know, I know, we don't even know what a good snowfall is. It didn't stick to the ground that day, but it 'shore wuz purty', as we say in the South.




Sunday, after church, Connor and I went to Nana and Poppy's again. (I LOVE HAVING THEM CLOSER TO US, THEY ARE PROBABLY GONNA GET SICK OF SEEING US SO MUCH!) Mom, Grandma and I went to my cousin, Kyla's, bridal shower. She got a TON of stuff. She and her fiance', Jeremy, are getting married this coming Saturday, Dec. 6, in Gatlinburg. Mom, Grandma and I are going to leave out EARLY, and I do mean EARLY Saturday morning, drive up for the wedding, then drive back the same day. It is about a 3-4 hour drive one way. Plus, the weatherman is also calling for possible snow Friday night into Saturday, and Gatlinburg is in the mountains. Hope we don't get snowed in (no I don't-hee-hee). But I know a 9 year old who would be hitching up the horse and sleigh here at home if his Mommy was stuck in Gatlinburg. He is going to stay home with Eddie, too much riding in one day for him. (adding this the day after wedding)




Connor went to school Monday and Tuesday of this week. YES! He had a good day Monday, but a not so good day Tuesday. He got his "car" moved twice that day. They have a racetrack on the wall, and when they get into trouble, they have to move their car, to Caution, then to the Pit, then something else, then to the Principal's office they go. So, four strikes and you're OUT. Connor had two, so he managed to avoid the walk down the hall. We had a nice, long talk that night. His teacher and I both think that he just tries too hard to make that adjustment back into school after being out so much. Who can blame him?? Hopefully, in a couple of months, he will be finishing up treatment and can be back full-time. Hopefully, and prayerfully!

Yesterday, we went into the clinic for counts. We weren't there long, Connor isn't needing a transfusion just yet. Debbie V. from Radiation had called me and wanted us to come by the Radiation Dept. We went down there and she had QUITE a surprise for Connor. Back when he relapsed, she was talking with him one day and asked him who, in country music, he really likes. He told her Toby Keith. So, yesterday, she presented him with a signed photo AND, are you ready for this??? A signed full size guitar! Connor was so excited! Debbie, you are the best, my friend. Connor has been showing everyone, including strangers, his new Toby guitar. He is getting closer to starting his band now, anyone wanting to audition?
.



I hope you all had a wonderful Thanksgiving. This past week has been much better with Connor's outbursts. Yes, they have happened, but not nearly as much as last week. I attribute that to all of the prayers that I know you all sent up for him, and for us. So many of you emailed me with encouraging words, plus guestbook entries. I want you to know that EACH one helped tremendously, you guys are the BEST! When I tell you that we couldn't do it without you, I mean, WE COULD NOT DO IT WITHOUT YOU! Thank you, thank you, thank you for everything. We have the best prayer warriors out there!

I will be speaking with Dr. Shankar on Tuesday of next week to find out when his next admission will be. It will be the five day, and I think it will be the week of Dec. 15. I still do not know when she will schedule the scan to be repeated, but I'm sure it will be very soon, so they can see if the spots have changed or increased in number. Please pray for them to JUST BE GONE--POOF! We are trying not to think about it and enjoy the Christmas season, but it always lingers in the back of my mind. Nope, I knew I couldn't get through one entry without telling you--I HATE CANCER!

Please say an extra special prayer for our little buddy, Gabe, and his Mom and Dad. He will be having surgery on Monday morning, the 8th, to remove his leftover tumor. If you can, visit his site and offer them some words of encouragement: Gabe's site. He will be two years old on January 1st.

Have a great weekend, everyone, thank you so much for being here, I know you didn't have to be.
********************

Happiness isn't about what happens to us,
it's about how we perceive what happens to us.
It's the knack of finding a positive for
every negative, and viewing a setback as a challenge.
If we can just stop wishing for what we don't have,
and start enjoying what we do have,
our lives can be richer,
more fulfilled,
and happier.
The time to be happy is now.

~~Lynn Peters

********************





Sorry if this turns out dorky, I just thought I'd give it a try and make it up as I go. I saw several different ones on web sites using the letters from Thanksgiving, so, here goes:

M--May you have a wonderful holiday season
E--Eagerly approach each new day
R--Reflect on your many blessings
R--Rely on God for your every need
Y--You are special to us!

C--Celebrate Christ's birth every day
H--Help someone in need
R--Reciprocate a kindness that was shown to you
I--Influence someone in a positive way
S--Share the joy you have in your heart!
T--Treasure each moment with your loved ones
M--Make special memories...
A--Ask, and you shall receive
S--Stop! Relax, enjoy, slow down...

We love you all, peace to all, May God bless us all! Until next time~~

~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Wednesday, November 26, 2003 10:14 AM CST

Added Friday, Nov. 28:

'On Being A Champion'
by: Mattie J.T. Stepanek--9 years old--Sept. 1999

A champion is a winner,
A hero...
Someone who never gives up
Even when the going gets rough.
A champion is a member of
A winning team...
Someone who overcomes challenges
Even when it requires creative solutions
A champion is an optimist,
A hopeful spirit...
Someone who plays the game
Even when the game is called life...
Especially when the game is called life.
There can be a champion in all of us,
If we live as a winner,
If we live as a member of a team,
If we live with a hopeful spirit,
For life.

*********************

Dedicated to all of the children fighting,
and for those gone on to Heaven....


**PLEASE STOP BY NIKIE'S NEW WEB PAGE AND SIGN HER GUEST BOOK. IT IS STILL IN THE PROCESS OF BEING DESIGNED, SO CHECK BACK OFTEN FOR AN UPDATE. SHE IS CURRENTLY IN VANDERBILT FOLLOWING MAJOR SURGERY LAST WEEK TO REMOVE HER LEG TUMOR. CLICK HERE FOR NIKIE'S PAGE

Hello friends and family and thanks for checking in. I waited on updating hoping I would have results for you all from Connor's CT scan from yesterday. He did have the scan, and we went to the clinic to wait. After Dr. Shankar and Dr. Pietsch consulted with each other for a couple of hours via the telephone, this is what Dr. Shankar told us. The spot that showed up last month is still there, but HAS NOT GROWN, thank God. It appears as though it may have moved. But, he does have "numerous" other spots showing up now, as well. They are just not sure what this is. Dr. Pietsch is just not ready yet to do surgery to go in and take out tissue from Connor's lungs. SO, back to the waiting game. They will, once again, repeat the CT scan in three to four weeks. There was one particular spot that was larger than the others. Of course, we feel as though we didn't accomplish alot yesterday. But, we are so thankful that the original spot had not grown. This could be an infection in his lungs that hasn't cleared up, they just really do not know. But, obviously cancer is not ruled out either. So, we pray and we wait....

Connor has been doing O.K. since my last update. We did come in last Wednesday to be admitted. He was not admitted due to a couple of different things. First of all, Dr. Shankar did not want to do chemo until after the scan. If he had chemo, his counts would drop, and if he needed surgery immediately, he could not have it until his counts climbed. Secondly, apparently he has had the maximum amount of one of the chemo drugs, Doxorubicin, that he was to get this cycle. This is the FIRST TIME I was told this. The Doxorubicin is the drug that has to be monitored because it can cause heart damage. The other two drugs he was to get, can be given over an all-day clinic stay. So, since his scan was yesterday, today we are in the clinic for the all-day chemo. Connor is waiting to be hooked up. One of the two drugs, Cytoxin, usually ALWAYS makes Connor sick, and this is the first time he has gotten it in clinic. I hope he does well today.

Connor's emotional outbursts at home seem to be on the rise lately. No, they don't "seem" to be, they ARE. We REALLY can use some extra prayers for this. Some days, I am really not sure if we are going to make it through the day, it IS that bad. We are in therapy with him, trying to help this situation, but with the huge amount of stress that goes along with his illness, things do not seem to be getting any better. We are doing the best we can, but it is really taking a toll on all of us.

Our family would like to wish you all a very Happy Thanksgiving. Thank you to everyone who continues to send Connor cards and gifts. I am behind on thank-you cards, and for that I sincerely apologize. But not one single kind deed goes un-noticed. We have so much to be thankful for, don't forget to thank God for all of the blessings in your life. We are thankful for so many things. First of all, the fact that Connor is here with us, we are most thankful! We are also thankful for all of you. We could not be trudging through the days without you all, believe me when I tell you that. We are thankful for all of the prayers that are lifted on our behalf. We are thankful for all of our supportive family and friends. I am thankful that we will be together with my family tomorrow for Thanksgiving. We are thankful that we have a roof over our head, and food to eat. We are thankful that God chose us, me and Eddie, to be Connor's parents. We love him more than life itself, and we just want to see him well, and here with us. We are thankful for the CaringBridge family and support system. I could go on and on with my list. Count your blessings, you ARE blessed. And thank God for that. We love you all, peace to all, and may God bless us all!

~~Happy Thanksgiving!
~~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Friday, November 14, 2003 7:47 PM CST

Hello friends and family! Thanks so much for checking in! Yes, we are home, PRAISE GOD! Connor's blood cultures did grow positive for a blood infection. His fevers subsided, so we came home Thursday evening on I.V. antibiotics. He will be getting that through Wednesday morning. He will be admitted that day (Wednesday the 19th) for the three days of chemo that he missed this past week. His infection needed to be cleared up first. Thank you all so very much for the outpouring of love and support through the guestbook, emails, phone calls, visits. and mostly, PRAYERS, this week. Thank you, Sandi, for the lifelike kitty-cat that was delivered to Connor in the hospital. It came at a time when he was really missing our cat, Zoe. You have no idea how much all of you mean to us. Sometimes I hesitate to vent in this journal, but you have all convinced me that you are here for us in the good AND the bad. So, for that, I thank you from the inner-most depths of my heart. There have been many times over the past two years of this, that I have been so very discouraged, then I would read a post, quite possibly from YOU, in the guestbook, and I would feel an immediate peace come over me. We would not be making it through this without the continuous and abundant love that we feel through the friendship of each of you. God has been so good to us. How blessed we have been to have so many who have wanted to be there for us in every way imaginable! I hope someday that we have the opportunity to repay even a portion of the kindnesses that have come our way. I thank God everyday upon awakening for giving us another day, and for all of the blessings of each day. As we have been doing, we continue to live in today, trying our absolute hardest to not think about what tomorrow may bring. God will give us what we need TODAY, and then, with the new day, He will once again give us our daily supply to get through THAT day.

Connor actually went to school today. I was so glad that he woke up in good spirits. He was in a very cooperative mood, I must say. He did get to school an hour late, due to the I.V. transfusion here at home. I dropped him off, then went back to meet him for lunch. I took cupcakes, to celebrate his birthday. Yes, it was two weeks ago, but he hasn't been to school since before that, and I wanted him to be able to share the celebration with his classmates. He was so excited, and beaming with pride. When lunch was over, I walked back to his classroom with him, he held my hand all the way. I then asked Mrs. Pemberton if she had anything she needed done, such as grading papers, etc., and she said, "Yes." So, for the rest of the afternoon, I got to sit in the classroom grading papers. I was thrilled to be able to be there and experience some of what goes on in the classroom. I think that Connor actually enjoyed having his 'ole Mommy there. Just before the final bell, Mrs. Pemberton was reading a book to them. All of the kids were sitting on the floor on a mat. Connor came over to where I was, in full view of his classmates. He climbed up in my lap, put his arms around my neck, gave me a big kiss, and told me he loved me. Well, I just about melted right then and there, as you can imagine. You see, it has been QUITE A WHILE since Connor has even remotely wanted his friends to see any of that mushy stuff. So, you know Mommy was on Cloud Nine. Today really made up for the rest of the week. I cherish those moments, I really do. There is nothing like it in the world. I thank God that Connor is still here, and I pray that he lives a long, happy, healthy Christian life. What more could I ask for, for my child, right??? So, I think you can all see what an impact your prayers have made this week. Thank you, thank you, thank you. Please keep us in your prayers, plus, all of the other children still battling, those in remission, and particularly the families of the children who are now in their Heavenly, eternal home. My heart rips apart when I think of what these families go through , each day as soon as they open their eyes, without their child with them. So please make it a point to say a special prayer for them. The holidays are supposed to be a joyful time, but for some, that joy has been taken from them ENTIRELY too early.

Please visit some of the sites at the top of this page, if you haven't before, and offer some words of encouragement. Unfortunately, my list keeps growing. If you have a child's page that you would like for me to add, please email me and let me know. I would be more than happy to do that. I am so thankful for the CaringBridge site. Thank goodness that someone saw a need to provide this free service to anyone facing a health crisis. It has been such a good way to keep people informed. This journal has been a great outlet for me. And the guestbook, oh, what could I possibly say about that?!?!?! Such a wonderful tool of encouragement for Connor, and us, as well. CaringBridge has linked us to so many other families in very similar circumstances. We all have a bond, without a doubt. It is certainly an elite club that no one desires to be a member of. But I cherish the friendships we have made.


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Friends are those people who know the words to
the song in your heart and sing them back to you
when you have forgotten the words.
--Unknown

**********

A faithful friend is a strong defense;
And he that hath found him hath found a treasure.
--Louisa May Alcott

**********

The love we give away is the only love we keep.
--Elbert Hubbard

**********

Grace and peace to you from God our Father
and from the Lord Jesus Christ....I thank
my God through Jesus Christ for all of you.
--Romans 1:7-8

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

A wonderful young lady by the name of Cynthia Wright has chosen Connor (and us) to be a part of her Girl Scout Project. She has put together a Community Cancer Awareness Day and Chili Supper in support of Connor. It will be held tomorrow, Saturday, Nov. 15th, at Rivergate Church of Christ in Madison, TN., off Alta Loma Rd., behind Home Depot of Madison. It will be from 12 p.m. to 6 p.m. I am not sure what all she has planned, but I know she has put SO MUCH WORK into this. What an outstanding young leader she is! Thank you, Cynthia, for choosing Connor as your "project". We are blessed to know you. Your cheerfulness and love of life is contagious. May God send back the blessings to you that you have brought to others. Thank you all who have helped Cynthia with this. We are so grateful.

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

What Is Joy?

The joy of the Lord is your strength.
--Nehemiah 8:10

Some people think Christians should always be smiling and happy, and something is wrong if they aren't.

But this isn't necessarily true. Jesus stood outside the tomb of His friend Lazarus, and we read that "Jesus wept." (John 11:35) As he approached Jerusalem, "He saw the city and wept" (Luke 19:41) because if it's spiritual blindness and guilt. He knelt in the Garden of Gethsemane and was "in agony...[and] His sweat became like great drops of blood" (Luke 22:44).

Don't confuse happiness with joy. Happiness comes with happy circumstances; joy wells up deep inside our souls as we learn to trust Christ. Joy does not mean that we are never sad or that we never cry. But joy is a quiet confidence, a state of inner peace that comes from God.

Life's troubles will rob us of our happiness, but they can never rob us of the joy God gives us, as we turn in faith to Him and seek His face.

--From 'Hope For Each Day' by: Billy Graham

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Thank you so much for being here, you didn't have to be, but you are. Please say a special prayer for our precious little friend, Gabe. His parents found out a couple of weeks ago that he has relapsed with rhabdomyosarcoma. He has just completed treatment about a month ago. I hate this monster called cancer! Please continue to pray for Connor's repeat scans on Tuesday, Nov. 25th. We want completely clear scans, and we trust that that is what the doctors will see. I hope you all have a great weekend, enjoy each moment. Use the weekend wisely, that means spending time with loved ones, NOT house work or other "chores". Make a special memory to last a lifetime. Hug your children tight, tell them how special they are, they need to hear it as much as you need to say it. Never, and I do mean NEVER take anything or anyone for granted. Remember--the most important things in life AREN'T material things. You certainly can't take it with you, and what will it matter anyway, in eternity? Take care, peace to all, and May God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, November 11, 2003 9:45 AM CST

Just a quick update to let you all know that Connor was admitted on Monday with a fever. He developed another hole in his Hickman catheter over the weekend. We were in the ER on Sunday having it repaired. It opened back up Monday so I took him into the clinic. They repaired it again. By the time we left the clinic, he was starting to have chills, but no fever. On the way home, he started feeling warm, so I took his temp. It was 100.7. By the time I turned around and got him back to the clinic, it was 102.9. About 30 minutes later, it was 104.2. So, he was admitted. He is on Contact Isolation, due to the chicken pox exposure in clinic a couple of weeks ago. His fever only broke once during the night for a short period of time. This morning, it is back in the 102 range, with Tylenol. I haven't spoken to a doctor yet today, so I'm not sure what plan they may have about the catheter. I would think that it needs to come out. Please pray for Connor. He is sleeping most all of the time with this fever. Eddie called a little while ago, talking about how hard it is to try to work knowing Connor is in here like this. He said some people probably think that this is old news to us now, and that we are just coasting along. But it will NEVER be old news to us. This is our baby, our only child, our entire world. You NEVER get used to the knowledge that your child is battling for his life against a monster like cancer-N-E-V-E-R. Please pray for us as well, everything seems to be snow-balling lately with this, and we are feeling the effects in every aspect of our lives. Thank you so much for checking in, I'm sorry for the "downer" update. We do know for sure that the chemo is put off for now, until they can get a handle on this fever and infection. I'll try to keep you informed as I can from here. We don't have a computer in the room, so I have to leave Connor to do this. Also, I don't have access to my email when Connor is in the hospital. Thank you all, peace to all, and May God bless us all!

We love you~~

~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, November 4, 2003 10:36 AM CST

Hello everyone, thanks for checking in! November already, it is supposed to be 80 degrees here today, C-R-A-Z-Y weather! I hope everyone had a wonderful, safe Halloween. Thank you ALL for the birthday wishes for Connor, he had a great day. He told me Saturday (the day after) that it was his best birthday ever! Music to my ears! We started Friday off by going to my Mom (Nana's) work to see her at lunchtime. They all really get into Halloween, and lots of them dress up. There were some awesome costumes! Connor wore his, as well. He dressed up like a 70's dude. He had on this HUGE afro wig, bell bottoms, tye-dye shirt, funny sunglasses, and a peace necklace. They had been collecting money there in a piggy bank for Connor's birthday. He got well over 200 dollars! What a wonderful bunch of people---thank you Appleton Wire!!! We also stopped by to let Aunt Sherry see Connor's costume, even though he had shed his big hair by then. Then, on to the clinic. Connor was none-to-happy about having to go on his birthday. We had gone in on Thursday, and his counts were very low, but not quite low enough for platelets, so we had to go back Friday. We got there, and yes, he needed platelets. While he was getting them, Emily, Donna, Chris and Kelly had him come back to their area away from the other kids. They had a huge stack of birthday presents for him. Thank you, ladies, you are the best! We are so lucky to have such great nurses, in the clinic and in the hospital! He got some really cool presents, he was so excited. I think it made the trip somewhat easier. After leaving there, we went home to get ready to go trick-or-treating. Connor and John Tyler went together in our neighborhood. They had a great time. John Tyler was a skeleton. His little sister, Caroline, was Raggedy Ann. She is one year old. Her Nana had made her the costume. It was adorable. She had a head-full of red yarn hair. I was dressed up as a Viking (warrior?) girl. Eddie dressed up as a Ozzy Osbourne-type vampire. Yes, he was quite scary. I would have been scared of him if I hadn't known him. After trick-or-treating, we went to a Halloween party. Another friend of Connor's in the neighborhood, Braeden, and his Mom had invited us. We had a great time, especially Connor. They had "bobbing for apples". Connor had his head in that water half the night. That was his first time ever doing that. They also had a pinata, which Connor loves. Connor won the 'Most Original Costume' for the boys. We also took his birthday cake and everyone sang to him. He was so tired by the time we left there. So, YES, he did have a fabulous birthday. Thank you to everyone who made it so special for him!

I'm gonna back up a day to the day before Halloween. We went to Murfreesboro for a Trunk-or-Treat party. It was given by a group from MTSU. Our good buddy from Vanderbilt, Diego, had invited us. He was one of the ones putting it on. His girlfriend, Rebecca, was also there. She is one of Connor's favorite nurses. Thank you, guys, for inviting us.

Yesterday, on Monday, we had a meeting at Connor's school with his new Home-bound teacher. She is a really nice lady. She is coming today for the first time to work with Connor. After that, we had to go to the clinic. Connor had to get a blood transfusion. He is in isolation for a couple of weeks at the clinic because someone there last week exposed the kids to chicken pox. Connor has had the vaccine, plus they gave him two more shots in his rear last week, just to be safe. Chicken Pox can be VERY BAD for kids going through treatment. So, because he was exposed, even though he doesn't have it, he has to stay away from the other kids at the clinic for two weeks. That means next week while he is in the hospital, he will have to be confined to his room. Boy, oh boy, what a week we are going to have. Anyway, yesterday, he had to stay in an examining room while he was transfused. Luckily, he took his Playstation 2 and some games to clinic with him. I wheeled one of the TV's into the room, and he was quite content to sit there and play for over two hours.

It is official, I have been hesitant to mention it, but Nana and Poppy have sold their house and closed on their new house. They are moving today and tomorrow! They will actually be closer to us, YYYAAAHHH!!!! We are so excited for them. The closing has been being put off for a while for different reasons beyond their control, but they finally closed yesterday. We will be going up there this evening after Connor's teacher leaves. Congrats, Nana and Poppy, on your new home!

Now that I think I have covered everything else, I will share Connor's test results with you. I know I had promised to post them as soon as I had them, but I just couldn't deal with it over his birthday weekend. I got the results on Thursday, at the clinic. His pelvic MRI is clear, which is wonderful. However, his chest CT scan was not clear. There is a spot on one of his lungs. This is exactly what the report states: 'There is a very small, new, tiny area of soft tissue density in the left upper lobe....in a child with a known malignancy, metastatic disease cannot be excluded.' Dr. Shankar told me via the telephone, on Thursday, that she wanted to consult with Connor's Surgeon, Dr. Pietsch, before she devised a plan. I found out yesterday that he believes, as does Dr. Shankar, that they need to repeat the CT scan in three weeks. So, the Tuesday of Thanksgiving week, he will have another CT. Prayerfully, the previous reading will be a false reading, and the spot will be gone. If not, and it is still there or has grown, it is my understanding that he will be considered to have relapsed again. This CAN NOT BE THE CASE. We will not accept that possibility. PLEASE, PLEASE pray for Connor. Please pray for a completely clear CT scan. He has been having these chest CT's because alot of times, Rhabdomyosarcoma will metastasize in the lungs. We pray this is not the case now. Please understand the delay in telling you all this. It is just not something that is easy to say, obviously. Connor knows absolutely nothing of these results. We will not share anything about it with him until we know something concrete. He has enough on his plate as it is. In speaking with Allison, Dr. Shankar's nurse, yesterday, she assured me that this three week delay in finding out for sure will not make a difference. My concern was that if it is something, that it could grow and spread in that period of time. She said that this plan is the best, in the opinion of everyone involved. That will not make the wait any easier for us. We will just pray and hope for the best.

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Give thanks to the Lord, for He is good;
His love endures forever.
Let the redeemed of the Lord say this--
those He redeemed from the hand of the foe,
those He gathered from the lands,
from east and west, from north and south.

Some wandered in desert wastelands,
finding no way to a city in which they could settle.
They were hungry and thirsty,
and their lives ebbed away.
then they cried out to the Lord in their trouble,
and He delivered them from their distress.

Psalm 107:1-6

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Thank you to everyone for the birthday cards, gifts, and emails. Connor got alot of ecards, and we thank you for them, as well. Unfortunately, we are not able to open them. This computer is on it's final days, I'm afraid. I don't know how much longer I will be able to do updates on here. If it quits altogether, I will update from the hospital when we are in-patient. I can't even answer emails, 95 percent of the time, so if you have emailed and not received a response, that is probably the reason. I have had alot of people, either in the guestbook or in person, tell me that they have not been able to get emails to go through to us. I apologize if you have had a problem with this. I'm sure we have emails bouncing around in cyber-space. Anyway, each and every kind act for Connor's birthday is very much appreciated. Thank you for helping him have his "best birthday ever!" Have a great week, everyone! Remember, don't take a single moment for granted. Not one single day is guaranteed. Don't leave things unsaid. No matter if it is "I'm sorry", "I love you", "I appreciate you", or "I was wrong". Don't wait until tomorrow to say it. Tomorrow may never come, make the most of today. Life can change in the blink of an eye. Never think that it could not happen to you, we found out the hard way that it can. Hug your children tight, let them know EVERYDAY how much they are loved. We love you all, peace to all and may God bless us all!

Love and hugs,
~~Rhonda, Eddie and Connor, our "Brave Little Trooper!"


Tuesday, October 28, 2003 5:07 PM CST

Hello friends and family, thanks for checking in on Connor. The countdown is on at our house---three more days until the big day---Connor's NINTH birthday!!! He is very excited as it draws nearer. We are so thankful that we were blessed with his birth nine years ago. WOW, that sounds like so long ago. I know it's because of all he has been through in the past two years. It seems as though we have been engaged in this cancer battle FOREVER. Hopefully, and PRAYERFULLY, Connor will be finishing up treatment in just a few months.

Last week's chemo was certainly not one of Connor's better weeks. The chemo seemed to hit him harder than usual, I'll spare you the details. But, on the bright side, he had (as he always does) the best care imaginable. Vanderbilt really does have the best nurses and doctors. A great big THANK-YOU to all of you who were there for Connor last week with all of his difficulties. We didn't think Friday would ever come.

Now I want to make a prayer request. It is for a little boy named John Marlin. He is 12 years old, and was just diagnosed a couple of weeks ago with AML. He had his port put in on Tuesday of last week, then started chemo right after. He was two doors down from Connor. Eddie went to school with John's Dad, Tommy. He lives in the Hendersonville/Goodlettsville area, too. His Mom's name is Emily. I know they are all so scared right now, especially since he was just diagnosed. Connor took it upon himself to go down and introduce himself, and he hung out with John quite a bit. Just please remember them in your prayers. We want a full recovery for John, same as for Connor. These kids really should not have to be dealing with such things. Their biggest problem at this age should be getting their homework turned in on time. Some of John's family has been following Connor's story for the past two years, and praying for him. We are going to return that kindness now by praying so hard for John.

Connor was discharged from the hospital on Friday. We had a Cowboy Ball to go to Friday night! It was the fundraiser for AngelHeart Farm that I have been talking about. It seems to have been a huge success. Everyone there had a great time. Connor got quite bored with it midway through. One of the girls who used to be a Child-Life Specialist at Vanderbilt was there. She came over a couple of times to try to help occupy Connor. When it seemed as though we were going to have to leave, she (THANK YOU AMY!!!) took him to her house which was just a couple of miles away. They hung out and watched movies and ate popcorn. She, as you can see, is such a wonderful person and friend. We have missed her so much since she left Vanderbilt. Amy, girl, you are the B-E-S-T!!! Before Connor left, he hung out with Luke Perry for a while. We were seated at the Host table, as was Luke. He was the host for the evening. What a great guy! He is so down-to-earth and easy to talk to. He has agreed to be the Spokesperson for Angelheart Farm. We left there after midnight, and headed over to pick Connor up. He was snoozing, of course, and slept most of the way home. Did I mention that a friend of Tracy's and Angel Heart Farm, Frank, took us and Chyanna and her Mom to the Ball in a limo?!? It was truly a night to remember. I'm hoping some of my pictures turn out well so that I can add them to the photo page.

Saturday night, Connor went with John Tyler and his Mom and sister to their church for a Halloween party. He had a blast, coming home with all sorts of tales to tell. Sunday, we went to Nana and Poppy's to spend the day. Nana had cooked enough food to feed a small army. Monday, Connor went to school. He didn't want to cooperate getting ready. I hate when our morning starts off on a bad note. But he was smiling when I picked him up at school, he had a good day.

Today was MRI and CT scan day. We will not know results until Thursday or Friday. I will post them when I get them. Connor had a rough time with the MRI this morning. He has always done so well, holding still for so long. Today, he was in the machine for an hour. He was in tears when it was over. I think I finally convinced him to be sedated next time. He goes through enough as it is, if we can simplify anything for him, then that is what we need to do! After the scan, we went to the clinic, which was a madhouse today. Connor had his counts checked, and yes, he was already needing a blood transfusion. He also saw Dr. Shankar. We told her of some increased leg pain he has been having. She had him walk down the hallway to check for a limp. Sometimes it is more pronounced than other times. She didn't really think there was anything to it. That is our prayer! He also had a problem with his central line today. He just had one side repaired a few weeks ago. Well, the other side developed a bubble today, so Dr. Pietsch had to come up and repair it. We ended up being at the hospital from 8:30 until 4:00. Connor was exhausted and slept on the way home. We did get to see our buddy, Jack, in the clinic today. He is getting ready to turn three. He only has to go in once a month now.

That's about all the news on the Hunley front. I hope everyone has a safe, fun Halloween. There are several "Trunk or treat" locations around us. It is a much safer alternative to door-to-door trick-or-treating. Our church is doing it for the first time, so that is probably what we will do. Connor STILL hasn't made up his mind what he wants to be. It changes from day-to-day. I know, I know, we are coming down to the wire. Hopefully, I can pin him down on something tomorrow. Thank you to all of you for the birthday cards, gifts, prayers, and well-wishes. We, especially Connor, appreciate them all! A special thank-you to Ann all the way from California for the Army Build-A-Bear. Dave and Kathy, you guys are the best, thank you, thank you, thank you! Please say a prayer for our buddy, Gabe, he is finished with treatment, and is getting ready to have a biopsy of the area where the tumor was. Please pray for excellent results from that. He is only 22 months old.

Thanks again for stopping by. Thanks for everything! FYI to Ginny at the bank--thank you for my "therapy" sessions. You are such a wonderful person! Everyone be safe this Friday night! We love you all!

~~Rhonda, Eddie and Connor, our "Brave Little Trooper" and Halloween Spookster birthday boy!


Sunday, October 19, 2003 6:28 AM CDT

Greetings everyone, thanks so much for checking in! I'm sorry to be so long without updating. We have been extremely busy over the past week, TOO busy. But Connor has had some really fun times.

The Thursday of my last update, Connor's counts were extremely low, he was neutropenic(sp?). He received a blood and a platelet transfusion that day. He was house-bound for a couple of days, just to be safe. He would have been susceptable to anything and everything that he came into contact with.

On Saturday, he and I went to Nana and Poppy's to spend the night. The plan had originally been for him to go by himself. A wonderful lady who works with my Mom, (THANK YOU PENNY!) had given tickets to Eddie and myself for Sunday's Titan's game. Due to Connor's counts being so low, plus the fact that I was in one of those modes where I couldn't be away from him, I went to their house with him. Eddie ended up going to the game with a friend from his work, they tailgated, he had a great time. Plus the Titan's won!!!!!

Sunday morning, my cousin Tabitha, her daughter Chelsea and new baby Carly, and I went to Tabitha's church. It was their Homecoming day and the White Family was going to be singing. It had been a while since I had been able to see them, so I decided to go. They were wonderful, as always, and very uplifting. Connor got to sleep in. We had a good day.

Monday, we headed back to clinic again. Connor was in need of MORE blood, so he received another transfusion. Eddie was on vacation for the week, so he went with us. We saw Caleb Little and his Mom, Debbie. They found out last week that, probably as a result of chemo, that Caleb's left ventricle in his heart has depressed function, and is only working at 40 percent. They should have found this out in May, when he had the echocardiogram. But, the Oncologist (I won't say her name, but it isn't Connor's)who read it then did not say ANYTHING about this heart damage. If it had not been for the fact that Caleb was scheduled last Friday for a dental surgery, they still wouldn't know. Thank goodness then, JUST, and I do mean JUST before surgery, the anesthesiologist decided to look at the last echo, just to be sure, and he saw it. So surgery, of course, was cancelled. Debbie is SO ANGRY, as she very well should be, about this "mistake". This "oversight" by the Oncologist should NOT have happened, no room for mistakes here. I hope they get some answers, and SOON! A note to the Little's-- We are praying extra hard for you guys, please know that.

Tuesday was a good day. I had a meeting at Connor's school with his teacher and one of his doctors. We talked mostly about the need for home-bound instruction coming from someone OTHER THAN MOMMY. Mrs. Pemberton, Connor's wonderful teacher, stressed that I need to be taken out of the near-impossible task of instructing Connor when he is not able to go to school. She said that with me being his primary caregiver, home nurse, hospital roommate, not to mention, "MOMMY", that I do not need to be his teacher. I really feel as though a weight has been lifted off my chest. Homework had become SUCH A STRUGGLE. Now, probably week after next, when Connor isn't able to go to school, he will have a teacher/tutor come here to work with him. Thank you, Dr. Debbie, Mrs. P, and Connor's Guidance Counselor, Wynne, for working together to devise a plan.

On Wednesday, we had a unique invitation. There is an organization called, "Songs of Love" (songsoflove.org), who write songs for sick children. It is a group of songwriters from all over who want to share their time and talent to brighten a child's day. One of the Child Life Specialists had asked me a couple of weeks ago if I would fill out one of their forms for Connor. You put their interests, favorite things, favorite people, etc., and someone writes them a song. Well, probably not three days after turning in the sheet, we got a call from a local songwriter in Nashville, Sue Fabisch. She and her partner, Steve Christopher, had completed writing Connor's song, it just needed to be recorded. They really had a great plan as to the recording session. We were invited to Outback Steakhouse on West End in Nashville, on Wednesday at 1:00. The restaurant was not open to the public at that time. Sue and Steve invited tons of their friends in the music business to come out and help record. I don't know how many people were there, I would say between 40 and 60. Sue sang the lead on the song, and EVERYONE else sang the chorus. IT WAS AWESOME! Connor was, understandably, completely overwhelmed at first. He really does NOT like to be the center of attention around people he isn't familiar with. But the song sounded great, everyone put their all into it. After the song was complete, Outback served us all lunch, on them. THANK YOU OUTBACK!!! Connor even had a visit from one of the Nashville Predators (hockey team), Scott Hartnell, and Gnash, the Predator's mascot. They brought him some Predator goodies, and Scott, along with Polly, who works PR for the Predators, invited us to Thursday night's game. We made some really great friends at Outback. They even presented Connor with a guitar, signed by alot of the people who came out to sing. A local TV News team came out and recorded some of the event. So Connor made it to the Six O'clock news on Wednesday night. We had a great time and want to thank EVERYONE involved in doing this for Connor. The song is something we will cherish! Please check out their website listed above, especially if you are a parent of a sick child. This is a fantastic organization. The president of Songs of Love, John, actually came in for this from New York. Thank you John!

Thursday, back to the clinic. Connor's counts had risen substantially, thank you God! We got to stop our nightly shots. That night, we went to the Hockey game. John Tyler went with us. We were shocked when we went to find our seats and realized that we were in the front row, right on the glass! Eddie and I were as excited as the boys. It was an awesome game, of course the Predators won. Connor screamed so much that night that he was hoarse the next day. After the game, PR Polly took us down to the Locker Room. We met alot of the players as they came out. Connor, Eddie and John Tyler actually got to go into the locker room. It was a great night. Thank you so much, Scott and Polly, for doing this for us!

Friday, after a late night Thursday night, Connor did get up to go to school. It had been awhile since his counts had allowed him to be there, I think he was a little excited, although he would never have admitted that. Eddie and I got to spend the day together, then picked Connor up that afternoon. I had a nice talk with Mrs. Pemberton after school. We are blessed to have her in our lives. She really cares so much for Connor, it is so obvious. Plus, she understands alot of what he goes through, because she is a cancer survivor herself. God was really at work with Connor's class assignment this year, it was no coincidence that Connor got Mrs. P.

Yesterday, another busy day. The old adage is true, "There is no rest for the weary". But, it was a "good" busy. Connor's great Aunt and Uncle, Linda and Harold, planned a party for Connor. No particular reason, they just wanted to do something special for him, as they see what he goes through with treatment. I really had mixed feelings about it. I don't ever want to tempt fate over Connor's cancer. I think only someone who has "been there" can truly understand that. But none the less, they had a party for Connor. It was wonderful, they are such great Hosts. They even rented one of those things for kids to jump in. There was a ton of food, lots of treats for the kids and adults, perfect weather, the party was AWESOME! Connor's girlfriend, Ginny, even came into town for this. Now that in itself was one of the biggest thrills for Connor. But anyway, everyone seemed to have a great time, the kids enjoyed themselves, it was a wonderful day! Thank you, thank you, thank you Uncle Harold and Aunt Linda for doing this for Connor, we love you so much, you are so good to us! Also, thank you to everyone who attended! After the party, Ginny came back to our house. Connor got to show her his drum set. He loves "his Ginny" so much. She has been one of the many blessings to come out of this.

Connor will be admitted tomorrow, the 20th, for five days of chemo. As you have been reading, the hospital stay will actually be a "break" for us. If only chemo were not involved. Next Tuesday, the 28th, Connor will be having scans and an MRI. P-L-E-A-S-E pray for clear results. As the day draws nearer, the anxiety level goes through the roof. Then the "wait" for results. Of course, Oct. 31st is Connor's 9th birthday. Thank you God! Thank you to everyone who has sent him cards and gifts for his birthday. Attn: Birthday Fairy--thank you for the passes you sent. We are not yet sure of when we will be going. I will try to remember to post it.

Please continue to pray for all of the other children going through this nightmare. Pray also for the ones in remission, that they STAY in remission. Also, remember to pray for the families of the precious ones who are now cancer-free in Heaven. With the holidays approaching, I know they will be needing extra prayers, as they will have an empty spot at the table where their loved one should be. It makes no sense to me, someday it will perhaps.

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And we know that all things work together for good to those who love God, to those who are called according to His purpose.
Romans 8:28

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Thank you to every single one of you for continuing on this journey with us. Oct. 12 marked the two year anniversary of Connor's original diagnosis. For over two long years, he has been having to fight this beast called cancer. Yet, each day the pain and reality of it all is fresh and new as soon as we open our eyes. No, we haven't "gotten used to it". It still rips out my heart every time I let my mind go there, and really stop to think about all of this. The mere fact that our child has such a thing as cancer. The physical, emotional and financial strain it puts on the family doesn't get any better. I wish there could be a magical cure. We just have to continue to pray without ever ceasing, and put all of our trust in God for a complete healing, and a long, happy, healthy life for Connor. He is wise beyond his years in alot of ways, that is sad for all of these children. I hear of new diagnosis' all the time. Did you know that
EVERY DAY 46 CHILDREN SOMEWHERE IN THE U.S. ARE DIAGNOSED WITH SOME FORM OF CANCER? That takes my breath away to think about that---46. There are 350 new cases of Rhabdo diagnosed each year. That may not seem like many, but let me tell you, just one new case when it is YOUR child, is one too many. I HATE CANCER!

Please pray for Connor this week, for the chemo to go well, do it's job, and not make him sick. And remember the 28th, please pray hard for that. Our gratitude to every one of you goes beyond words. We could not do this without you, each of you. Sometimes we feel all alone in this, then we realize that not only God, but all of you are helping to lift us up and keep us going. Some of you have told me that you don't see how I can get out of bed each day, with what Connor goes through. Let me tell you, there is ABSOLUTELY NOTHING YOU WOULD NOT DO FOR YOUR CHILD. I thank God for giving us the strength to face each new day and what it may bring.

I'm sorry for such a long update! Have a great week, and may God bless you all!

We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Thursday, October 9, 2003 4:52 AM CDT

Hello everyone--thank you for your continuous support by visiting Connor's page. The past week seems to have gone by fast. We all say that from time to time, but I think it is a funny statement. The amount of time in a day is the same every day, (unless it is the time change in October and April). I suppose, due to what is happening in your day, it may seem to drag on forever sometimes.

Connor has been doing well since he got out of the hospital EARLY last Friday morning. We were lazy that day and slept in. Connor was glad to see all of his friends that afternoon when they returned from school. He was watching out the window for the school bus. That night, we went bowling. Connor is so cute walking slowly up to roll his ball down the lane. He does quite well, he beat me one game. Of course, Eddie has to be the show-off and win every game. No, I am not a sore loser, he is just a winner who likes to remind you that he won every five minutes. Eddie's Mom (Grandmama) called, so she decided to come to the bowling alley. After she got there, I just let her take my place. Connor and I were tired from the sleep deprivation from being in the hospital and getting out so late at night/early in the morning, however you want to view it. He and I decided to take our car and go home to bed, Eddie and his Mom continued to play, then she brought him home. It was a fun night, and Connor really enjoyed himself.

On Saturday, a friend of mine from elementary AND high school called. She recently moved back to Tennessee from Pennsylvania. She had been there for ten or twelve years. We decided she would come to see us. So on Sunday, she met us at our church and attended the Worship Service with us. We then had lunch and went back to our house. She brought her daughter, Jordan, who is (OH NO, my mind just went blank, I'm sorry Ann!)I think five or six years old. Ann and I had a great time catching up on all these years. It has been so long since we had seen each other. Connor was too wired to stay inside to entertain our guests, so off on his bike he went. Ann, Jordan and I went for a walk around our neighborhood. The weather was beautiful, a perfect Fall day.

Connor went to school on Monday, as his counts usually don't start to drop dramatically until Wednesday of the week following chemo. He had a good day at school, came out smilin', I love to see that. He did get into trouble in music, because he was mixing his notes up. But for Pete's sake, he has missed so much, I'm just glad he does as well as he does. Right after school, we headed down to AngelHeart Farms. Tracy had asked us to come so that Connor could be in a photo shoot for their local paper, the Williamson AM. Our buddies, Gabe and his Mom, Lu, came to the farm, as well. It was their first time there. Connor sat atop a horse, holding Gabe part of the time, and Tracy, Jennifer and Melissa, a Board Member, stood beside them. I can't wait to see the finished product. I'm not sure when it will be published, although it would have to be soon. It is an advertisement for the Cowboy Ball, a benefit gala that Tracy and Jennifer are putting on to raise money for the program. Connor and Chyanna,(she's the one who just had the bone marrow drive) are going to be the honored guests for the evening. There will be live music, dancing, a live and silent auction (with some GREAT items), an old time robbery, romantic carriage rides and light food. Luke Perry will be the host for the evening, Lee Roy Parnell is one of the artists scheduled to perform. Any one of you who live locally. and might be interested, just email me and I'll give you ticket info. I think it will be a great night. Connor was actually scheduled to be inpatient that day, but I asked Dr. Shankar to back his chemo up a day, and she agreed to it. The Cowboy ball will be held on October 24.

Tuesday, Connor went to school until noon. I picked him up and we headed to clinic. His counts had started to drop, so they ordered blood to tranfuse on Thursday (today). He very well may need platelets by now, as well. He could not go to school yesterday because of the low counts.

Now, let me share a 'happy story' with you. A couple of weeks ago, Connor and I had to go to the bank. Just before going, we had stopped at a yard sale. At this yard sale, they had an old drum set for $100. Well, while there, Connor sat down and played the drums. He then proceeded to ask me if he could have them, to which I told him, "No." So, all the way to the bank, he was mad at me and sulking. When we went inside the bank, everyone was greeting us. Connor sat down and wouldn't speak to anyone (because he was so mad at me because I'm the worst Mommy in the whole world!). Anyway, I was explaining to some of the girls why he was so mad. To make a long story short, on Monday of this week, Ginny at the bank, called me and asked me when I could bring Connor by. She proceeded to tell me that the employees at the bank had been collecting money amongst themselves to buy Connor a drum set. They had not collected quite enough, so they contacted the store to see about a discount because one of the girls used to work there. Guess what? The store DONATED the drum set to Connor!!! I was in shock, I could NOT believe it! So, Monday afternoon, right after school, I stopped at the bank and told Connor that I had a transaction to make. So he went in with me, and Ginny came over, said Hi, and asked Connor if he would come with her for a minute. I wish you all could have seen his face when he saw that huge box with the drum set in it!!!! He was completely speechless and taken by surprise. He was totally caught off guard. He grabbed Ginny and gave her a huge hug, and thanked everyone. I would like, now, to thank Ginny, Susan, Lynn, Dot, Teresa, Linda, Paula, Yevette, Debbie, Elisha, Inger, John, Marty, Shelia, Karene, Dawn, and Danna for what you all did for Connor. They then gave me the money they had collected to help pay some bills. A big thank you, also, to our local Wal-Mart for donating the drum set, WOW!!!! What a kind and generous act from all of you. Eddie finished setting it up late Tuesday night. No, I haven't bought ear plugs yet, but they are on my list. Connor is planning his band now. He asked a little girl down the street if she would be their lead singer. She told him, "NO, I'm not gonna be in an all boy band!" So that position is still available... He also has laid out a strict set of rules regarding his drum set. Only Connor, Mommy, Daddy, and Zoe (our cat) can play the drums, because he said we would take care of them, and he is afraid his friends won't. Thank you, thank you, thank you Amsouth and Walmart, we are so grateful to you.

Today we will go in for Connor's blood transfusion. Hopefully it won't be an all-day thing. Getting Connor down there will be the toughest thing. He is SICK of going down there, who can blame him? His next admission day is October 20, for five days of chemo. October 28 is CT scan and MRI day, please go ahead and start praying now for that. I'm already nervous about them. Then, of course, his 9th birthday is October 31, Halloween!! I can't believe he is almost 9 YEARS OLD! Also, I would like to ask you to pray for me, for God to give me the strength I need to not ever break down in front of Connor. I got into a big funk over the weekend. I could not stop thinking about the "what if's?". I usually can block all of that from my mind pretty well, but not this time. I was nearly making myself sick thinking about everything. Sometimes the reality of Connor's entire situation sneaks up and punches you right in the gut. This was one of those times. So, I have to remain positive, and I KNOW that Connor will stay cancer-free! There is absolutely no other possibility!



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Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.

Philippians 4:6-7

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Thank you all for being here on this journey with us. Connor is my hero, my brave warrior! It amazes me how he never complains about the treatment. I know I've mentioned that before, but I'm in awe of him because of that. I have learned alot from Connor. I've learned that the worldly things you thought mattered, they don't matter at all. Your family and friends, and foremost, a relationship with God, those are the important things. No matter what we don't have, as long as we have each other, who needs anything else?

In closing, I would like to congratulate my cousin, Tabitha, and her husband, Donnie, on the birth of their baby girl, Carly Abigail, born Tuesday. I know they are ecstatic!

Have a great day, everyone. Please know how much we appreciate you all. You lift us up with your kind words in the guestbook. Thank you for that, heck, thank you for reading this, PERIOD! We love you all!

~~Rhonda, Eddie and Connor, our "Brave Little Trooper!"


Thursday, October 2, 2003 8:55 AM CDT

Hello, family and friends, and thanks for checking in! Connor is still here at Vanderbilt getting his chemo. We were scheduled to go home tomorrow, but the doctor making rounds told us we can leave tonight, after the chemo finishes. That will be around 9:00. YIPEE!(UPDATE: I'm adding this Friday morning at 1:00 am--we were discharged at 12:15--UGH! They kept dragging it out more and more. Next time we will stay overnight and leave first thing in the morning--sorry, but I'm a little upset over having to awaken Connor to drive home at this time of night!(end of Update entry) Of course, as some of you know, that can change from minute to minute. We pray for no fevers today.

On Friday of last week, we went to the clinic for counts. His white count was up, so we were able to stop the Neupogen shots. His platelet count was still low, 36,000, but they decided not to give him a transfusion, and just see if it would come up on it's own. When we returned home from clinic, our wonderful new friend, Linda Martin, brought us a delicious dinner AND a "movie basket" with everything we would need for a family night at home watching movies. Thank you, Linda, I can't possibly tell you how much we appreciated and enjoyed that.

Saturday, I took Connor to Nana and Poppy's to spend the night, so that Eddie and I could have a "date". We went out and had a nice dinner. It is difficult to go out and try to forget, momentarily, Connor's situation. Everything, and I mean EVERYTHING in our lives revolves around cancer. Everywhere we go, everything we do, it goes with us. Have I told you lately how much I hate cancer?

Sunday, we got up and went to church, then to Nana and Poppy's to retrieve our yungin'. For those of you who don't understand Southern lingo, that would be the equivalent of saying "young one". Anyway, we had a nice lunch and enjoyed spending time with them. Connor had a great time up there, as usual. When we got home, first thing he did was hop on that bicycle and take off for John Tylers' house. I'm so glad he has found such a good friend, and I really enjoy talking with his Mom. She is a nurse, so she understands alot of what Connor goes through.

Monday, Connor went to school. He had a good day. Thank you, Mrs. P, for getting everything together for us to take to the hospital. He seems to get really tired by the afternoon when he goes to school. I know it is hard on him, trying to make the adjustment from home to school, then out again getting treatment. But he never complains....

DRUMROLL--Connor brought home his report card Monday for the first six weeks, and Guess what?!?!?! He is on the Honor Roll!!!!!!!!!!!!!! We are so proud of him. I think it really boosted his morale, he is pretty hard on himself sometimes. We knew he could do it!

Tuesday, we came in to be admitted. Connor's platelets had climbed to 79,000. They really should be 100,000 or greater to get chemo, but they agreed to go ahead and admit him since they were above 75,000. It takes him so long to recover from his chemo, and just as soon as he does, it is back in for more. Gabe was admitted Tuesday, as well, for his last chemo. YAH, Gabe! We were put on the sixth floor, where they usually only put teenagers, because of the overload of patients. Now, mind you, this is our first time up here. It is a bit nerve-wrecking. We don't know any of the nurses. It is like being in a whole new hospital. These people up here are not used to Connor and his antics. I'm trying to keep him at bay, but for any of you who know Connor, that is easier said than done. Tuesday night, they started his chemo around 6:00 or 7:00. By 9:00, he was nauseated, but the meds kept it at bay. He had so much medication, that he was quite "goofy". At 10:00, he decided to roam the hallways, he didn't look like he could stand up on his own. I chased him down and made him get back in bed. He was slightly upset with me, yes, Debbie L., you are right, I am sugar-coating again! O.K., O.K., he was rather livid with me, hating me for a little while, until he wanted to snuggle.

Wednesday, October 1st, was my birthday. I didn't want anyone to know, I didn't want any hoopla since Connor would be in here. The only thing I want and need is for my baby to be well again, and stay well. It will be hard to celebrate anything (other than HIS birthday) until he is well. God, please hear all of the prayers sent up for Connor. You have told us to ask, and it will be given unto us. I told Eddie and my Mom that it sure makes for a nice birthday, watching poison drip into your child, although you know that if he doesn't get it, he won't make it. Catch 22, all the way. But, yes, I am thankful. I still have my child with me. I can barely stand to think of how those of you who have lost your precious children, make it day by day. But then I realize, only with God's help. Yes, we all hear, "God won't give you more than you can handle", but, as I've read several times, "I just wish He didn't trust me so much!". God has a plan in all of this, I know and believe that. I also know that as long as I am on this earth, I won't be able to understand why. So we make the best of every situation, and take it minute by minute. AND BE THANKFUL FOR EVERYTHING THAT YOU HAVE! If it is possible, stop reading right now and go hug your children and tell them how much you love them. They need to know, so remind them often. Cherish every moment. Some don't have that opportunity any longer. I'm not trying to be morbid, so please don't take it that way. I just have to say that I hurt for those who have lost their children, I really do. And, if I were ever in that situation, I would certainly hope that people wouldn't abandon me.

On a lighter note, Connor made me the sweetest things yesterday for my birthday! He got some craft kits, and made me a car, a ship, and an airplane. He used a hot glue gun, YIKES, but I carefully monitored him. Then, last night he made me rice crispie treats with another kit from the playroom. He asked them if he could use one, and the girl in the playroom told him that they were for children who are having birthdays. So, what do you think Connor told her. "Well, today is my Mom's birthday". All of this took place without me being present. So, next thing I know, the girl from the playroom brings it to Connor's room and says, "Happy Birthday." I thought that was so sweet of Connor, because he wanted to make me something (to eat) for my birthday.

He has had a lot of nausea, but has only vomited one time. (knock on wood). Hopefully the rest of the stay will go smoothly, although while I've been typing, he has awakened, and on the W-R-O-N-G side of the bed. Whew, these meds really affect his demeanor in a huge way. I think today will be quite a challenge. Please pray for the nausea to stay at bay, and no fevers, so that we can go home.

Thank you all for being here, thank you to all of Connor's caregivers, he really does have some of the best! A special thank-you to Dr. Debbie, we are so glad you are involved with Connor's care, AND we consider you our friend. I thank God every day that we have such a fantastic support system! Thank you, Santa, for the gift certificates, Connor was very excited! May God bless you for your kindness. Thank you to everyone who encourages Connor, and us. Thank you to all who have given anonymously (sp?). Each and every kind deed will remain in our hearts forever! Have a great weekend everyone!

We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper"!


Thursday, September 25, 2003 7:53 AM CDT

Good day everyone, thanks for checking in! Connor hasn't been feeling well the past week. He has had a terrible cold. His fever has not gotten high enough to be admitted, thank goodness! He has a sore throat, runny nose, hacking cough, sneezing, etc.... He hasn't been eating much, in fact, he has lost four pounds over the past week. He really can't afford to lose any more weight, he is already too thin. On Friday, we went in and he did have to get blood and platelets, as expected. His counts had plummetted since Tuesday.

On Saturday, we had decided to have a garage sale. So, we started putting stuff out around 6:00 in the morning. We had our first "customers" at 6:30. We did really well with the sale, getting rid of "stuff" that we absolutely DID NOT need. It was a perfect day for it. We wrapped that up early afternoon. We then went to the bone marrow drive for Chyanna. I think they had a really good turnout. I pray that a match is found for her. I feel so bad that Eddie and I are just now getting on the Registry. It is such a simple process, a little paperwork, needle stick, a little blood drawn out, and that's it. And, to think, you could SAVE a life. I can't think of a reason to NOT get on the registry.

Sunday was a lazy day at our house. Connor didn't feel up to going to church, plus his counts still have not had time to climb very much. He did play with John Tyler some, he even got to stay with him and his Mom for a while so that we could run a few errands. I'm so thankful that he has found such a good friend, it is great to see him doing "kid" things. There is a small, shallow creek on the side of this neighborhood. I went looking for Connor one day, and he and John Tyler were walking up the street. They had a fishing tackle box and some homemade fishing poles in their hands. They looked like a scene out of the Andy Griffith Show. It is moments like these that I cherish. Things that a few months ago, I wondered if Connor would EVER be able to do again. THANK YOU, GOD! Sunday night, we went by my friend, Christian's house to take her a birthday gift. Her birthday was Monday, Sept. 22, HAPPY BIRTHDAY SISSY! Connor had fun playing with Will and Caitlyn. He and Will were making up songs and playing them on Will's guitar and keyboard, they are so silly.

Monday, I had my follow-up appt. with my doctor. My counts had continued to climb, thanks to the iron supplement he has had me on. Connor stood by my side while they drew blood, HE is the brave one I draw strength from.

Tuesday was clinic day for Connor. They were quite busy, so it was awhile before his counts were in. They were still very low, so blood was ordered. As they were drawing blood for counts, they discovered a hole had developed in his Hickman catheter. For those of you who don't know, his Hickman is surgically implanted into his chest, it has two tubes that hang out of it, for blood draws, transfusions, chemo, etc. Well, one of the hanging tubes had the hole. They had to page the surgeon who put it in. His assistant came up and took us to one of their treatment rooms so that it could be repaired. No surgery was involved, thank goodness. Just a minor inconvenience, although Connor found it to be rather exciting, that's a B-O-Y for you! After that, it was too late to start the transfusion, so we agreed to come back on Wednesday.

So, yesterday, in for the transfusion. It actually works out better that way. Because they can order the blood the day before, so that it is there and waiting when you come in the next day. Connor made some new friends yesterday in the clinic, Nikki and Shane. Both relatively new diagnosis'. It always pains me to see new kids in the clinic. You can always recognize the "new families". That look of disbelief on their faces....I hate cancer! Connor's platelets are still quite low, so we will have them checked again on Friday. Hopefully, by then, his white count will be up enough to stop his nightly Neupogen shots.

Last night, we went to see Disney On Ice--Toy Story. Thank you, Tanya from Make-A-Wish and Terence from Ticketmaster, for the tickets! Connor didn't feel great, but we went anyway. We were pleasantly surprised to realize that we were seated in one of the Suites. YYEESS! Your own private viewing room, with snacks, drinks, private bathroom, what a great way to see a show! Connor has always been a big fan of Toy Story, what kid isn't?!? But then again, Eddie and I enjoy it, too! We were in the room with two other families. The show was great, it was a good night. Connor was so tired when we got home. I put his ice pack on his arm, and he went to sleep while we were waiting for it to numb up. He barely woke up while he got his shot, although it hurts like &*()#! That is what Connor says anyway, not the word, but H-E-double hockey sticks! The medicine going in is what hurts, probably like getting a tetanus shot.

He is still snoozing this morning, although he is coughing his little head off. He has ANOTHER appointment at Vanderbilt today, then back tomorrow for counts. That means we have been to Nashville every day this week, but at least we are not inpatient (knock on wood!). He will be admitted this coming Tuesday, Sept. 30 through Friday, October 3, for chemo. Our little buddy, Gabe, will also be in Tuesday night for his LAST CHEMO! We are so happy that he is finishing treatment, and PRAY for continued clear scans, with NO return EVER of the "C" word. Hopefully, Monday, Connor will be able to go to school, if only for one day before going back into the hospital. He misses everyone at school. Just a few more months, and he will be back full-time!

The following poem, I dedicate to E-V-E-R-Y O-N-E of you reading this, because you ARE all our friends, and we love and appreciate you.............

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God Gives Us Friends To Help Us Through The Difficult Times

God gave us the seasons --
each with it's own beauty and reason,
each meant to bring us a blessing,
a joy, and a feeling of love.

God gave us dreams --
each with it's own secret,
each sent to give us feelings of
inspiration, hope and tranquility.

God gave us the sunshine --
the rainbows and the rain,
the beauty and freedom of nature
to teach us the wisdom of gentle acceptance.

God gave us miracles --
in our hearts and lives,
little things that happen
to remind us we're alive.

God gave us the ability
to face each new day
with courage, wisdom
and a smile from knowing
that whatever sorrow or pain we face,
He abides with us
securely in our hearts.

Most of all, God gave us FRIENDS --
to teach us about love
and guide us through this world,
always available to help us forward
toward a greater understanding
and a greater sharing and giving of love.

----Author: Regina Hill

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Thank you, friends, for being here today. My vocabulary doesn't include the proper words to convey what you all mean to us. Thank you for your support, encouragement, your mere presence. It is so important to us in this journey with Connor's illness. Please pray for Connor, we just want the cancer to be gone forever, and for him to get his life back, you know, the one where he can be a "kid" all the time, without thoughts of sickness, treatments, hospital stays, and even worse. No child should ever have to conceive of these things. PERIOD.

I hope you all have a wonderful weekend, can you believe it is almost October. Connor's birthday is October 31, yes, that is Halloween. He is getting excited, he will be 9 years old!

We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Thursday, September 18, 2003 8:04 AM CDT

Good day everyone, thanks for checking in! Connor was discharged from the hospital on Saturday afternoon. Oh, it is always so good to get back home! My sweet little girl, Zoe, (our black cat), is always glad to see us. I guess she is used to it by now, but I always wonder just what she thinks when Connor and I disappear for several days at a time. When Connor got home, he immediately got his bike out and started riding. It is wonderful to see him ride, especially since we were told in May that he might possible not be able to walk again after surgery. He has come such a long way, and we give God the glory for that! He has had his hand on Connor, evidence of that fact is seen by all who know him. Thank you, God! Although we are FAR from being out of the woods, we put all our trust in God for a complete healing in Connor.



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For I will restore health unto thee, and I will heal thee of thy wounds, saith the Lord.

Jeremiah 30:17a
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Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in Heaven. For where two or three come together in my name, there am I with them.

Matthew 18:19-20
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Surely he took up our infirmities and carried our sorrows, yet we considered him stricken by God, smitten by Him and afflicted. But he was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was upon him, and by his wounds, we are healed.

Isaiah 53:4-5
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The hospital stay went well, better than usual, really. Connor did have lots of nausea, but never vomited! What a relief! The meds kept it under control. I want to thank Sandy Hilliard for the package he received in the hospital, he was so excited to get mail. Thank you all so much for the prayers for a "smooth" chemo stay, obviously God answered. One of Connor's "most favorite nurses", Rebecca, had Connor for a couple of those days. Watch out, Diego, I think Connor has developed another crush. He really does always have the best care on Five South. We are so thankful for the compassionate team of nurses, care partners, doctors, and everyone else involved in Connor's care. He spent alot of time in the playroom. He loves it when his buddy, Diego, is in charge of the playroom. He always comes up with the best activities for the kids. Saturday, he came out with a Sumo wrestler suit on, to moderate a game the kids played, what a sport! A couple of nights during Connor's stay, he would wait until I fell asleep, then he would go out and hang out with the nurses. I wasn't real happy about that, mainly because I would get the brunt of his "lack-of-sleep" grumpiness the next day. All in all, it was a good stay, one more closer to being finished with treatment. Our buddy, Gabe, came by to hang out a couple of days. There has also been an Amish family there that we have struck up a friendship with. Connor is fascinated by them, and loves to hear them talk. They speak Dutch to each other, and have quite a pronounced accent. But, of course, they probably think we have "quite a pronounced" Southern accent.

Last week, I received an email from a lady who had read a guestbook entry I made on another web site. The site was for a young man (I think 12 or 13) named Richie, who lives in Nevada. He has the same type of cancer as Connor, dealing with a relapse, and recently had a stem cell transplant. Anyway, her son and Richie went to school together in Nevada. She and her family have recently moved to this area, probably about 3 or 4 miles from us. Well, that in itself was remarkable. So Saturday night, we decided to get something to eat at a little place at the marina close to where we live. You really have to KNOW about this place to find it. We had to wait for a table, and John Tyler had gone with us. He and Connor were down by the water looking for fish. I had noticed this lady, also down by the water holding a little girl. She turned and came up to me and asked me if that was Connor. I said Yes. She then asked me if I was Rhonda. Well, I guess you've figured out by now that it was the lady, Linda, who had emailed me about knowing Richie. We were both astounded, that we had ended up there, of all places, at the same time. That, my friends, was no coincidence. God led us both to that spot, for that meeting. We got to meet her, her husband and their five children. WHat a wonderful family. We look forward to seeing them again, and getting to know them. It just goes to show what a small world it really is!

Connor has been to school Monday, Tuesday and Wednesday of this week. Thank you, Ms. Pemberton, for working with Connor and helping him with the transition back and forth! Tuesday, he only went a half day, as we had two different appointments at Vanderbilt. We went to the clinic for counts. His counts had not plummetted yet, that is why he got to go to school yesterday. We will go back to the clinic on Friday, and by then, he will probably need a blood transfusiion, and possibly platelets, as well. He has felt good this week. Going strong from the time he gets up, until we MAKE him get into bed at night.

This coming Saturday, Sept. 20, 2003, there will be a bone marrow drive for a little friend of ours, Chyanna Alexander, who recently relapsed. She was originally diagnosed in January, 2001, with Neuroblastoma. She had a bone marrow transplant in Oct., 2002. She relapsed in July, 2003, with Myelodysplatic Leukemia (MDS), brought on from the high dosage of chemotherapy she received. This next bone marrow transplant is her ONLY hope of survival. She is, I think, 7 years old. She is in the First grade. Any of you reading this, who live in the Nashville area, won't you PLEASE come out Saturday and get on the Bone Marrow registry. They will be at 3760 Nolensville Road at the Oak Factory Furniture store. I spoke with Chyanna's Mom in the clinic Tuesday, and they are planning on being there all day Saturday. We will be going sometime that afternoon, to get registered. Chyanna is African American, and the odds of finding a matched donor are better for someone in her own racial or ethnic group, because the characteristics that make a match are inherited. We have been wanting to register anyway. God forbid, there may come a day when Connor would need a bone marrow transplant, and we would hope and pray that a match would be there for him.

We, as the rest of the world, was saddened to awaken Friday, September 12, to the news of Johnny Cash's passing, as well as John Ritter's. Johnny Cash lived about 3-4 miles from us. He was a fixture in the Hendersonville community. What a legend! His dear wife June, just passed away in May of this year. They have now been reunited in Heaven. Johhny will be greatly missed by the entire world, although his music will remain forever! Our local paper had tributes to him this week. In one of them was the following, written by John R. Cash himself:


^i^ ^i^ MEET ME IN HEAVEN ^i^ ^i^

We saw houses falling from the sky
Where the mountains lean to the sand.
We saw blackbirds circling 'round an old castle keep
And I stood on the cliff and held your hand.

We walked troubles brooding wind swept hills
And we loved and we laughed the pain away.
At the end of the journey, when our last song is sung,
Will you meet me in Heaven someday?

Can't be sure of how it's going to be
When we walk into the light across the bar
But I'll know you and you'll know me
Out there beyond the stars.

We've seen the secret things revealed by God
And we heard what the Angels had to say.
Should you go first, or if you follow me
Will you meet me in Heaven someday?

Living in a mansion on the streets of gold
At the corner of Grace and Rapture Way
In sweet ecstasy while the ages roll,
Will you meet me in Heaven someday?
***
Rest in Peace, Johnny and June!
^i^ ^i^ John R. Cash--2/26/32-9/12/03 ^i^ ^i^

May God be with their family during this difficult time.


Thanks to all of you for your continued support. A personal note to our secret "Santa", thank you so much for the restaurant gift certificates. FYI- the envelope that came yesterday had a lovely card with a note about the enclosed certificate, but the envelope had been opened, and the certificate was gone. But we thank you just the same, Santa! Some happy postal employee will be enjoying a meal....May God bless you, Santa, for reaching out to us. Thank you to all who continue to send Connor words of encouragement. He was saddened last week at the hospital to see a family who had lost their child. Connor was out by the nurses station when they came out of the PICU, and he just knew, and he was right. Actually, two children went home to God on that day. These are the things that Connor has to deal with now, although we try our best to shield him from that type of news. It is on his mind, his EIGHT YEAR OLD MIND. I try hard to grasp the reality of all of this, I just can't, no matter how hard I try, understand. I want Connor to think about "little kid" things, not about hospitals, sickness, and death. I just want to wake up one morning and realize that this was all just one big long terrible nightmare. But, we all know that won't happen, so we forge onward, dealing with this DAY BY DAY. Please keep us all in your prayers, emotionally, physically, financially, spiritually. We love you all!

Love and hugs,
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


P.S. Please stop by our buddy, Caleb Little's web site and say "Hi". He and his family lost their beloved dog this past week, Sugar Bear. They all adored her and are grieving something terrible. Caleb's page
Thank you!


Wednesday, September 10, 2003 3:16 PM CDT

Hi everyone, thanks for checking in! We are in Vanderbilt for Connor's five day chemo stay. He gets Etoposide and Ifosfamide this stay. We should get out sometime Saturday, that is the plan anyway, things can always change.

Connor has had a good week this past week. We enjoyed being back at home, that's for sure! Tuesday, we had to come back in for his CT scan. We found out that it was just a chest scan. They normally do a chest, abdomen and pelvic scan. I actually talked with Dr. Shankar about that yesterday, and she assured me that they will do a complete MRI or scan in October. I just want to make sure that we stay on top of things. We heard back from the scan on Friday, and it was "normal". which, of course, is a GREAT THING! Praise God! We had to go to the clinic that day before the scan to get the contrast that he has to drink. Connor had visitors while in the clinic. Ben Hanback, whom we know through Make-A-Wish, called the day before to see when Connor would be in. He brought Connor's new music buddy, Dierks Bently, in to the clinic to see him. Dierks brought his guitar and played THREE songs, including 'What Was I Thinkin'?' Connor was SO THRILLED, to say the least. Thank you so much, Dierks and Ben, for doing that for Connor, you made his day!!!

Thursday and Friday, Connor went to school. He did well, it is so good for him to be able to be around his friends. He had good days, although when I picked him up Friday, he informed me that he didn't think he would go back on Monday. OH REALLY?!? I don't recall a time in my childhood when I could pick and choose the days that I felt like "going to school". I, in turn, informed him that, providing his counts were fine, and he felt well, that he WOULD be going to school. That was the end of that discussion.

I had lunch last Thursday with my long-time friend, Terre. It was her birthday, so we met and had a great lunch. We worked together for 11 years before Connor's diagnosis. She knows me so well, and, now imagine this, she still loves me....GO FIGURE!!! Anyway, we had a good time catching up.

Saturday, Connor got up and went with his new friend, John Tyler, to his (John Tyler's) football game. He had a great time. According to John Tyler's Mom, Gaye, Connor ate, and ate, and ate some more. Apparently, he was trying to build himself up before this chemo. She said she bought him a hot dog and soda. A short time later, he went back to the concession stand and came back with a nacho and cheese. Then, back again for another hot dog, THEN they had lunch afterwards at a Mexican restaurant and he cleaned his plate there, as well. WHEW.....I've never known COnnor to eat that much in such a short period of time. Now I know who to send him to when I can't get him to eat anything. John Tyler is a neighbor from down the street. He and Connor are so much alike in alot of ways. That can be good, and sometimes bad. They tend to butt heads alot, because they both like to be the "leader". But they quickly make up, and are best friends again. It is so wonderful to see Connor enjoying life, and doing the things that most children get to do. They are together every chance they get, riding their bikes, playing games, whatever they can find to do.

Saturday night, we went out to dinner with Eddie's sister, Tammy, her husband, Shelton, Connor's cousins, Ragan and Victoria, and Grandmama. Connor had now seen them in a while. We had a really good time with them. We got home pretty late. Connor was pooped after his long day.

Monday, Connor DID go to school. Believe it or not, he was actually up at 5:00 AM. Yes, 5:00 AM!!! I awoke to the TV blaring, went into the living room, and there was Connor on the sofa hee-hawing laughing watching, (are you ready for this???), Mama's Family. He LOVES that silly show. He then got ready for school and went outside to ride his bike. He was amazed with how nice it is outside first thing in the morning. I was just thrilled that I didn't have to struggle to get him out of bed. He had a good day at school. According to his teacher, at one point he snuck in a "power nap". He played hard with John Tyler when he got home. At one point, after John Tyler left, I saw Connor pushing his bike up the street. I asked him what was wrong. He said, "I found this butterfly, and it's wing is broken and it can't fly." He was being so careful to be gentle with it. I took it for him so that he could ride the rest of the way home. When we got there, we decided to put it in my flowers. It seemed to like it there. When we went out Tuesday morning to leave, it was still sitting there, beside the flowers, fluttering it's wings. I was so proud of Connor for taking the time to show such compassion for one of God's creatures. He was determined to help that little butterfly.

I have mentioned a couple of friends on here lately, Cody Brummett and little Sadie Grace Cushman. They now have CaringBridge sites, like Connors. Their addresses are as follows:

caringBridge.org/tn/cody77

and

caringBridge.org/tn/sadiegrace

Please visit their sites, and, if you can, offer some words of encouragement. Another friend, Sandlyn, got wonderful news that her latest scans were CLEAR!! Praise God for that, they have had quite a scare lately, we were so thrilled to hear this good news. We got to see Hannah Ryals and her beautiful Mom, Kim, in the clinic yesterday. Hannah is finished with treatment, and was just in for a check-up. It is always so good to sit down and talk with Kim. Connor's buddy, Gabe, was in last night for his SECOND-TO-LAST overnight chemo. We are so glad he is almost finished with treatment. He is a little doll! A big thank-you to my Mom, (aka Nana), for coming down yesterday to bring us to the hospital. Poppy usually comes, too, but was sick, so she came alone. I had one of my emotional breakdowns when she got there. I think it had been coming for a while. Getting Connor to the clinic has become quite a stressful chore, to say the least. Who can blame him??? If it were me, I probably wouldn't want to come either. Getting medicine that makes you vomit doesn't sound very appealing......

And on that note, Connor has managed, so far (fingers crossed) to not vomit. He has been quite nauseated, and has gotten lots of meds for that. Hopefully, this round won't be too hard on him.

Thanks, again, for checking in, we are so glad that you take the time to find out what is going on with Connor. You are all a blessing to us, whether you know it or not. We truly ARE blessed, no doubt about it. We could not do a single day of this without you. Thank you all for your support, it means so much to us, believe me!

Have a great week, Fall is on the way, my FAVORITE season! We love you all!

Love and hugs,
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Monday, September 1, 2003 7:11 PM CDT

Hi there, and thanks for checking in! O.K., I have an announcement to make........



WE ARE HOME!!!!!!!


It is so good to be home again. This stay was one of our longest yet, and boy, oh, boy, were we ever ready to break out of there! We were discharged today a little after noon. This stay was very interesting, to say the least. The beginning was rough, until Connor's fever went away for good. Then, for an entire week, he felt great, he was just getting his antibiotics. Now, let me tell you, Connor feeling "great", means he has 100 percent of his energy. Combine that with being confined to the hospital, and WATCH OUT, VANDERBILT! I need to say a GREAT BIG WHOPPING "THANK YOU" to all of the nurses, care partners and doctors on Five South. You really had your work cut out for you with Connor over the past two weeks. Thank you, thank you, thank you for helping keep Connor entertained. He found a ride-on car, that is really for someone probably half Connor's age. He realized that he could ride it, his knees knocking against the handles. Well, you HAD to see him. He nearly wore a track around the hallway on the Fifth floor. There was no stopping him. EVERYONE who ventured onto the fifth floor probably got a small dose of Connor and his hot rod. He even customized it, thank you, Diego for helping him with his accessories. He taped a rear-view mirror on it with medical tape. I have added a photo to the photo page of his customized ride. I publicly apologize right now to anyone who may have been run over by our "madman". He had more energy than I think I have ever seen him have, he kept us on our toes! He was getting Benadryl along with the antibiotics, to help with side effects. On most of the human race, Benadryl tends to make one sleepy, but Connor is the exception to that rule. I think it hypes him up even more than usual. He stayed up late EVERY night, I don't know how I'm ever going to get him back on some kind of routine. His best girlfriend in the whole wide world, Ginny, came Saturday evening to visit with him. He asked her to stay until midnight, so that is just what she did! Thank you, Ginny, for making Connor's whole world that night. He was on Cloud Nine! They outdid me, I think I konked out around 11:00. Then, last night, he APPARENTLY was up until approx. 2:00 AM, yes, you read that correctly, 2:00 A.M.! Nurse Anthony, I'm gonna get you next time I see you! I obviously was sleeping quite soundly, and had no idea Connor was up entertaining the nurses all night. I'm going to try to thank some of you right now for making this stay quite pleasant under the circumstances:

Thank you to......

Deanna, Jane, Rebecca, Linda, Debbie, Terri, Janice, Jessica(yes, Jessica, I'm updating!), Carrie, Anthony, Tracy, Heather, Lois, Lora, Dr. Debbie, Ms. Rebecca (Vand. teacher), Nicole, Adele, Yo, Toni, Natasha, Kelli, Chris, Emily, Denise, Ms. Mary, Erin, Mike, Tina, Diego, Angie, Julie, all the Child-Life volunteers, and EVERYONE else, I'm sorry if I missed anyone. You know how scatter-brained I can be.

Thank you, also, to everyone who came out to see Connor, and all of those who sent cards, all of those who called, and for the countless prayers that were sent up on Connor's behalf. Nana and Poppy helped me keep my sanity by coming out three different days so that I could leave for a while. Thank you, thank you, thank you!

Connor has to go tomorrow for his CT scans. Once again, I have a big knot in my stomach. I KNOW everything is going to be fine, but it still makes me nauseated everytime he lies in that machine, then the W-A-I-T-I-N-G for results. Please, oh please, God, let the scans be CLEAR! His next admission is now September 9, one week from tomorrow. This will be a five day admission for chemo.

I have a couple of prayer requests: please pray for Sadie Grace, she is only three months old. She started having seizures last week, and had to be put into a coma to get them to stop. They have tried to bring her out, but she is continuing to have the seizures. The CT scan was good, so that is a good sign. Please pray for the doctors to be able to discover the root of the problem, so they they can devise a plan to control it. Also, please pray for her Mom and Dad, Scott and Cindy, and her grandparents, Marsha and Jimmy. They are Scott's parents. I don't know the names of Cindy's parents, or I would post that as well. Marsha is best friends with Jewel. Jewel is my wonderful friend, Christian's Mom.

Also, please pray for Katia. She is a beautiful three year old, who has relapsed with Leukemia. You may visit her page here: Katia's page. She and her family have been thrown back into this battle again, they all need our prayers. This disease is relentless.....

Cody Brummett has also relapsed, he is a 16 year old Senior at Westmoreland High. I grew up in Westmoreland. He plays football, but now has to put everything on hold as once again, he battles cancer.

(I'm adding this Tuesday morning, as I have just read of two childrens' passing. Please visit their sites and offer support to their families'.)

Brittany's page

Jessi's page


It all seems surreal, SO MANY KIDS RELAPSING, and SO MANY NEW DIAGNOSIS'. And LOSING so many precious children. It literally makes me SICK TO MY STOMACH. I want to ask each of you, right now, if you have your children with you, go to them and hug them, hug them tight, and tell them how much they mean to you. Please don't ever take one single minute for granted. Children are, indeed, a gift from God. We need to remind ourselves of that, each day that we live and breathe. God can call his children back, whenever he chooses. Sometimes, way too soon, in our eyes. Nothing is guaranteed on this Earth. We once, mistakenly, thought that this could NEVER happen to anyone we knew, much less, US. But it can happen, in the blink of an eye, your world can turn upside down. So, please, live each day to it's fullest. Don't wait until you are FORCED to put things into perspective. Take pleasure in the smallest of things, because one day you may realize that those are the only things that matter.

************************************************************

Humans can live without food for about forty days, without water for about three days, and without air for about eight minutes. But we can not survive at all without Hope.

Hope looks for the good in all people, regards problems as opportunities, and pushes ahead when it would be easier to quit. Hope lights a candle instead of cursing the darkness. Though we sometimes hasten our own failure by abandoning Hope, Hope never abandons us.

No situation or circumstance is hopeless if we consider the strength of prayer and the infinite power of God. We need only place our tangled ball of troubles in His lap. Gently...with Trust.

As long as we are alive, Hope is there, waiting for us to partake in it's wonders. Keep Hope alive.

~exerpt from book entitled 'No Jesus, No Peace, Know Jesus, Know Peace'

~~~~~~~~~~~~~~~~~~~~~~

Humble yourselves, therefore, under God's mighty hand,
that He may lift you up in due time.
Cast all your anxiety on Him because He cares for you.

1 Peter 5:6-7 (NIV)

~~~~~~~~~~~~~~~~~~~~~~


Thank you all for stopping by Connor's page. We love and appreciate you all. Some of you we know very well, some of you, we've never met. But it seems as though we know you all, because you have been here with us, to lift us up with your kind words and prayers. We will never forget that kindness, and certainly God will not forget. May you all be Blessed..................

Have a great week! (Can you believe it is September already?!?!)

~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Thursday, August 28, 2003 8:52 AM CDT

Hi everyone, thanks for checking in! We are still here at Vanderbilt. We found out Monday morning that Connor actually had three infections that would be treated with three different antibiotics. It would need to be done in-patient. So, we are here until Monday, Labor Day. He has not had a fever since Sunday morning, thank God! His counts are on the rise. He was room-bound until Tuesday. He was about to climb the walls. Those of you who have been around Connor know how hyper he is....need I say more?!? I'm just glad he is feeling so well. The infections are all in his blood stream. One is e-coli. My first question was, "How did Connor get E-Coli???" All I knew about it was what we all hear on the news. The doctor told me that we all have e-coli strains in our intestinal tract, it is just that with Connor's weakened immune system, his body is not able to fight it off, and it had gotten into his blood-stream. These kids are so vulnerable to EVERYTHING! Hopefully, the antibiotics will knock it out. Connor has been having lots of visitors stop by, thank you to everyone for the visits, phone calls, cards,gifts, and mostly, PRAYERS! There is no doubt about it, God is watching out for Connor, and He will see him through this.

Connor will get out, like I said, on Monday. Then Tuesday, we have to come into the clinic. Then, that same day, the 2nd, Connor has his CT scans at 4:30. So PLEASE pray for clear scans. Scans and MRI days are the most stressful days. The anticipation of the tests, then the waiting to find out results are the toughest. Yes, we have Faith that everything will be fine, but that doubt still lingers in the back of your mind. This is a fear that we will live with for the remainder of our lives, it N-E-V-E-R goes away. Those of you who have been through this know exactly what I am talking about. Every aspect of our lives revolves around this disease. We thank God that we have such a wonderful support system, which includes each one of you reading this. We couldn't make it through the days without you! Nana and Poppy, thank you for coming yesterday to stay with Connor so I could go home and get more clothes. You mean the world to us!MArsha, thank you for letting me know about the journal page, I'm so sorry, I didn't realize that the words blended into the graphics. I'll try to check it better from now on.

I'm sorry for not updating sooner, I tried on Tuesday, got half-way through and Connor has needing me "RIGHT NOW", so I had to stop where I was. Thanks again for checking on Connor, we appreciate you all more that I can say! Peace to all, and may God bless us all! Everyone have a great Labor Day weekend! We love you all!

~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Sunday, August 24, 2003 5:59 PM CDT

Hi everyone, thanks for checking in. We are still here at Vanderbilt. We have no clue how long we are going to be here. Connor has still been having fevers off and on. Friday night, during the night, he started having severe chills. I got into bed with him, trying to hold him. He was shaking so bad that I thought we were both going to fall off the bed. His fever then shot up. It got up to 104.5-under the arm, so it was probably actually over 105. I was so scared, but trying hard not to show it in front of him. He got Tylenol, and it took a while for the fever to start dropping. He had one of his favorite nurses, Carrie, that night, thank God! She was so wonderful for him and me. THANK YOU CARRIE! She takes care of Connor as if he were one of her own children. His cultures are still positive for two different bacterias, although they still do not know exactly what they are. So, he is being treated with four different antibiotics. He has had two blood transfusions since Friday, and one platelet transfusion. His counts are still rock-bottom, so he is confined to his room, since he is neutropenic. He is asleep right now. Hopefully Monday or Tuesday, we will find out more info on what we are dealing with, and have a better handle on when we may get to go home. He is scheduled to come back in on September 2 for five days of chemo. Hopefully, we won't be here straight through until then. Nana and Poppy came yesterday to stay with Connor so that I could go home and get more clothes. I don't know what we would do without them! Connor had a great time with them. Thank you, Nana, for helping Connor paint the beautiful "picture" on his window.

The local radio station, 92.9, has been here all weekend doing a Ratio-thon to raise money for the Children's Hospital. They are getting ready to wrap it up at 7:00 pm tonight. They interviewed Eddie on Saturday, then me today. They wanted parents to talk about their child's story. It is heart-wrenching to hear some of the stories. They wanted to talk with Connor, but he wasn't up to it. A big thank you to Mix 92.9 and Rick and Anna Marie for doing this for the hospital!

Thank you all for all of the well-wishes. Please continue to pray for Connor, to get over this hurdle, and completely and totally beat this dreaded disease. And while you are at it, don't forget to pray for all of the other children battling each day, and for all of the families left behind by those precious children who lost their Earthly battle with cancer. I HATE CANCER!

Take care everyone, peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Thursday, August 21, 2003 12:30 AM CDT

Hi guys! Thanks for checking in. Connor was admitted into Vanderbilt yesterday for a fever and chills. We were just coming into the clinic for counts. He slept all the way down in the car, which was unusual for him. By the time we got upstairs to the clinic, his fever was 101.1. He was admitted, and last night had some vomiting and diarrhea. He still has a fever today, but, so far, no vomiting. He does feel really bad. Dr. Debbie came by to work on a craft with him, and he really didn't feel like doing that, so she just hung out with us. He is watching a movie right now, just tired and generally, not feeling well. His blood cultures drawn yesterday have just come back positive for a couple of different bacterias. We should know more later. I would estimate that we will be here probably through the weekend. He has already been started on antibiotics.

He came home from the hospital in Friday. His chemo went well, thanks for all the prayers. The nurse that he had last Thursday night had a problem with his central line. She couldn't get one side of it to flush. It took her and an IV team to finally get the blood clot out of the line. The same thing happened yesterday when he got into his room. I'm not sure what the problem is, but Dr. Pietsch stopped by yesterday to have a look at his line. I don't know yet, but it could be that he could end up having surgery to replace the line. I mentioned the problems with his line a few minutes ago to the Resident. She said that it is entirely possible that this infection could be a result of the problem last week. Connor's counts are continuing to drop, so he is less likely to be able to fight off anything that might be attacking his body. He got a blood transfusion yesterday afternoon. They haven't checked his counts today, as far as I know.

We went to Nana and Poppy's on Sunday afternoon. Connor did alot of bike riding and shooting his BB gun. Monday and Tuesday, he went to school BOTH days ALL day! He really enjoyed himself. I'm so glad he was able to go. Ms. Pemberton is going to be the most wonderful teacher, Connor just loves her! His new guidance counselor, Mrs. Wynne, is also going to be great. She is so sweet. We didn't know her before, but she actually goes to church where we do. So, he has a great support system at school. He loves his classmates, and has all kinds of things to tell me when I pick him up. Hopefully, he will be able to go a couple of days every three weeks. That is our hope.

Tuesday night, we went to hear a live concert at Tower records by Dierks Bentley (What was I thinkin'?), an up and coming country singer. Ben and Brittany Hanback were also there. Ben is the President of our local Make-A-Wish. Ben knows Dierks, so he got us backstage. Connor was so excited to be able to meet Dierks and have him sign some stuff for him. Dierks had his beautiful dog, Jake, with him. Jake was giving Connor doggie-kisses. Thank you, Ben and Brittany, AND Dierks, for a great night!

THe nurse just came in here, Connor is asking for me, so I've gotta run. Please say a prayer for this infection to GO AWAY! We love you all!!

~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"

Please forgive my typos!


Wednesday, August 13, 2003 6:40 AM CDT

Hello everyone! Thanks for checking in on Connor. It really means alot to us to know that so many people are concerned.

I'll pick up where I last left off. Connor came home from his last hospital stay on IV antibiotics. That went very well. The medicine was in a little ball-like contraption. I would hook him up, and he would put the ball in his pants pocket and go outside and play like it was nothing. After 30 minutes, he would come in and we would unhook that one and hook up the other. We had it down to a science. Thankfully, we are all done with that now, and his cultures, so far, have been negative.

The Wednesday after he got out of the hospital, my cousin, Tabitha, and her daughter, Chelsea, came down and we went to Chuck E. Cheese. Connor and Chelsea had a great time playing and hanging out. When we left there, we headed out to AngelHeart Farm. Chelsea wanted to see the horses. Connor actually rode, for the first time in many, many months! He did great! He started by going around in the riding ring, but then wanted to go on the trail, so Tracy walked along beside him while he rode. He didn't even complain about pain. It was so good to see him back on a horse. Chelsea rode after Connor. It was her first time on a horse. She kept wanting to know if it was a "slow" horse. It was so funny.

On Sunday, August 3rd, we went to Nana and Poppy's to celebrate Nana's birthday, which is actually August 4th.


**Happy Birthday, Nana!**


It was a great day. We ate, then had birthday cake. Most all of my family was there. My Mom is such a special person. She has always been so giving of herself, with no concern for her own wants or needs. I feel so blessed to have her as my "Mom". She always sacrificed so much to make sure we had what we needed. She is the most unselfish person I know. I LOVE YOU MOM!

Last Tuesday, I took Connor to the clinic for counts. His counts were way down, borderline on a transfusion. They gave HIM the choice of getting blood that day or coming back on Friday. No, No, No, you can't do that with Connor. He is a major procrastinator. Of COURSE, he chose Friday. Oh well, he made it until then, even thought he was very pale, and his leg pain always seems to be worse when his counts are down. He did get platelets that day. They came back as less than 10,000, they should be between 150,000 and 400,000. Thank goodness he didn't have any free bleeding. He has actually pulled two teeth within the last two and a half weeks. The tooth fairy has been paying him alot of attention. And yes, he pulled them himself! Once he realized they were loose, he kept wiggling them until he finally just got a good hold on them and out they came. He was so proud of himself!

Friday, we went back to get the blood transfusion. He actually had to get one the previous Friday as well. He is really going through the donated blood from the blood drive that the Goodlettsville Fire Dept. held for him. They got 50 pints that day. Over the past month, he has probably had 5 transfusions. As I've said before, it is obvious by his counts how hard this chemo is on him.

Sunday was a good day. After church, we went to eat. Then we went to visit with some friends of ours, Adie and Peggy. They were our neighbors when we lived in Hermitage. They are an older couple who lived across the street. They are just like family, and it had been a while since we saw them. Connor had a wonderful time. They had a new camper, so of course, he had to check that out.

Guess what Connor did on Monday? He went to the first day of school, a half-day! We are working on keeping him in his school, Goodlettsville Elementary. He is in second grade, and was assigned a wonderful teacher, Ms. Pemberton. We couldn't have been happier to see his name on her class listing. He was so very nervous. He wanted me to stay at the school. But he got settled in nicely, and had a great time. He came out smiling. He won't be able to go much until he is finished with treatment. He will have a home-bound teacher. But when his counts allow it, he will go to school. I think it will be so good for him to be able to be with familiar faces. Most everyone there knows his story, so most of the time, he is treated no differently than everyone else.

Yesterday, on Tuesday, we came in to be admitted for his three days of chemo. We got to the clinic kind of late, but we were still in a hospital room by 3:30 or so. One of our favorite nurses, Denise, was here when we got over here. It was her last day. We are so sad to see her go, but wish her well in her new endeavors. We got lucky in the fact that we actually got a myelo-room. They are the rooms that children who are awaiting, or who have had a bone-marrow transplant usually are in. It is very rare to get one for just a regular chemo stay. They are at least twice the size of a regular room, plus they have a COMPUTER in the room, YAH!!!! We were so excited, to say the least. Connor was dancing around the room, and I have to admit, I felt like it. SO, we'll be here until Friday. The chemo was started last night around 8:00. By 8:35, Connor was vomiting. It was pretty violent, but after a little while of that, so far he has not vomited since. He seemed to rest pretty well last night. I failed to mention that this room also has a regular sized bed for me. So I don't have to curl up in the fetal position to sleep in the window seat.

Please say a prayer for this chemo to go well. Hopefully and prayerfully, he will not get sick anymore. He had a chest x-ray yesterday, we haven't heard back from that yet. He also had an echocardiogram on Friday that we haven't heard back from. Please also remember all of our other little friends and their families in your prayers. Please say a special prayer for Sandlyn. She finished treatment for rhabdo just before Connor was originally diagnosed. She has been cancer-free ever since. Her scan last week showed a spot on her lung. They are not sure yet what it is, so they are going to watch it closely. Rhadbo, alot of times, can come back in the lungs. Her family is, understandably, VERY concerned. Please pray for this spot to just disappear on it's own, and for Sandlyn to forever remain cancer-free. Oh the fear we all live with now. It is with us every day that we live and breathe. Cancer really is a monster, waiting in the shadows for a chance to get back in. It is a constant battle. And certainly a constant fear. The philosophy, "One day at a time" is the only way to live. NO WAY can you think about tomorrow, getting through today is challenge enough.

Thank you all for your continued support. I know I sometimes sound like a broken record, but we are so appreciative of you all! Please keep us in your prayers. Especially keep Connor in your prayers, that the cancer stays away forever. We just want life to be "normal" again, whatever that is. He has missed out on so much, and had to grow us so fast. It is harder on him than I ever let on in this journal. I was talking with a friend of mine, Caleb Little's Mom, Debbie, in the clinic last week.
I was upset on that particular day, and she was there to calm me. Thank you, Debbie, you helped me more than you know. We were talking, and she told me that she knows I sometimes "sugar-coat" my journal entries, she said she does the same thing. There is so much that goes on with these kids, than we could ever convey with mere words. Connor has so much anger in him at times. And it is completely understandable, given his circumstances. I would probably be angry, too. I won't go into it in detail, but please pray specifically for that, for him to be able to find a way to better deal with that anger, with our help.

I hope you all have a great week. I know most kids have already, or will soon, return to school. Whatever happened to the days of not going back from summer vacation until after Labor Day? Oh well, those days are gone forever. Take care, peace to all, and May God bless us all!

Love and hugs,
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Sunday, July 27, 2003 10:18 AM CDT

UPDATE: MONDAY MORNING--JULY 28--WE ARE HOME, YAHHHH! HOME HEALTH CARE HAD TO COME OUT AND TEACH ME HOW TO GIVE IV ANTIBIOTICS, CONNOR IS GETTING TWO DIFFERENT ONES, ONE EVERY SIX HOURS, AND THE OTHER EVERY EIGHT HOURS, SO WE ARE HAVING TO GIVE THEM AROUND THE CLOCK, BUT ANYTHING IS BETTER THAN BEING IN THE HOSPITAL, THERE IS "NO PLACE LIKE HOME!" CONNOR WILL GET THEM THROUGH AUGUST 5, HIS NEXT SCHEDULED ADMISSION IS AUGUST 12.


Hi everyone! Yes, I'm finally updating! I'm so sorry, it has been sooooo long. Thank you, Jessica, for "reminding" me that I need to update! Ha ha! I hope you all have had a great couple of weeks. Connor is in Vanderbilt. We have been here since Tuesday. He came in for his regular five days of chemo. But, he developed an infection in both sides of his Hickman tubes, so we have been trying to get that cleared up. It appears as though the antibiotics are finally working, so we may be going home later today. He had some blood in his urine last night, so we are waiting for results back from a urinalysis and culture. The first three days of chemo were R-O-U-G-H. He was sick alot, and, as a result, didn't eat anything. By Friday, he was doing much better. There is a McDonalds here in the hospital, and right outside, there is a sitting area next to a bunch of trees. We have been going out there and feeding the birds, squirrels, and chipmunks. The chipmunks are so cute, the will come up and eat right out of your hand. Connor named one of them "Kippy", and another one he named "Squeaky". I would like to thank all of the wonderful staff here at Vanderbilt for making Connor's stay comfortable. He has the best nurses and care partners! ALL of you are awesome! Thank you, also, to Nana and Poppy for staying with Connor yesterday while Eddie and I left for a little while, we appreciate you so very much!

Before we came in, Connor did have a good time at home. On July 13, we had a cookout at our house for my Grandma's birthday. We had a great time. Nearly all of my family was able to come. Happy 79th birthday "Cass"!

Last weekend, Connor spent the night with Nana and Poppy on Friday night. He had fun spending time with them and my brother, Chad. On Saturday night, we got to go to the drag races, courtesy of our good friend, Sandy Hilliard, THANKS SANDY! Connor had a blast! He especially loved the Jett cars, they would get to over 200 mph in 4 seconds! That was our first time going, and we all enjoyed it very much. On Sunday, Connor's "girlfriend" Ginny, and Meghan from Vanderbilt, came to our house to visit with Connor . We had a great day visiting with them. Meghan is going back home to Rhode Island, where her family is. We wish her the best! Vanderbilt is just not the same without her and Ginny here.

Connor's counts are really taking a long time to recover after each chemo. He had to have two transfusions over the past two weeks. They will start dropping by the end of this week again. We start his Neupogen shots today, YUCK! My doctor put me on iron, and I am feeling much better. Thank you to all of you who have been asking. Eddie also went to the doctor. His doctor suggested a low-carb diet. He has lost 11 pounds in a week and a half! He is doing great.

Thank you to all of you for continuing to keep up with Connor. We appreciate you all! Happy anniversary to Brandi and Jeremy! Thank you to all of you for sending Connor cards of encouragement. Please continue to pray for him, for the cancer to STAY AWAY FOREVER. Also, for the chemo to not be too hard on his body, with little, or better yet, NO SIDE EFFECTS. It makes it easier to get through the days when we stop and reflect on what a wonderful support system we have. We certainly could not do it without you. We truly are blessed, in every sense of the word. Thank you, God, for the continued blessings you bestow upon us. Please also continue to pray for all of our friends, and those we don't know, who are sick or going through treatment. Unfortunately, there are way too many. But of course, one is too many. Also, send those prayers up for all of those families who no longer have their children here on this Earth with them. We know they are cancer-free in Heaven, but they are missed so very much, EVERY DAY. Thank you all for checking in, we love you all so much!

Love, hugs, and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Friday, July 11, 2003 2:27 PM CDT

Hi there everyone! First of all, let me say, THE MRI CAME BACK CLEAR! PRAISE GOD! We have had many sleepless nights since last week, when we heard about the CT scan showing something. The MRI showed "no sign of tumor or mass". Dr. Shankar said it is most likely post-operative changes. Thank you, God, for this latest report! And thanks to all of you for the continuous prayers! Please comtinue to pray for Connor, for the cancer monster to STAY AWAY AND NEVER RETURN!

We got out of the hospital on Friday, the Fourth. So, we were able to grill at home that night, and shoot some fireworks. Saturday, a good friend of Eddie's, Wavil, and his family took us to see the Nashville Sounds play baseball. Connor really had a great time. He hasn't been to a Sounds game since he was really young.

Last week, I went for my physical, and it was determined that I am anemic, my hematacrit (sp?) was at 19. So, Monday, I had to go in for a Colonoscopy and Upper light-tube check. I had polyps on my colon about three years ago, so they thought maybe they had returned. Fortunately, all of the tests came back fine. No polyps, no ulcers (surprise!?!), and a biopsy on my stomach was negative. So, I am on iron to try to build my blood back up. Thanks to Nana and Poppy for coming down so early on Monday to stay with Connor while Eddie took me to the hospital.

Today, we are in the clinic. We thought we were just coming in for counts, but the counts have dropped already. A lot quicker than usual. So, Connor is getting a blood transfusion. His counts were as follows:

White blood count -- less than 200 (normal range is between 4,500 and 11,500.)
HCT -- 18normal range is between 42-50BR>Neutrophils -- 100 (normal range is between 1,700 and 8,500)
Platelets -- 33,000 (normal range is between 150,000 and 400,000)

So, hopefully, he will feel much better after getting the blood. He has been having alot of leg pain lately, but he has been trying to ride his bike again. Who would have thought he would even be able to TRY so soon after surgery!!! We are loving our new house, and there is a little boy right next door who is seven, so Connor has a playmate.

Our friend, Gabe is back in the hospital. His blood cultures came back positive, so they had to bring him in last night, after just going home on Wednesday from chemo. He is going to have to get his port out this afternoon. He will then be here, possibly a couple of weeks, to get the infection cleared up before they can put his port back in. Please pray for Gabe, and his wonderful Mom and Dad, Lu and Rob. Gabe's web page is Gabesmyheart.org if you want to drop them a little note of encouragement. Gabe, if you remember, also has rhabdomyosarcoma, and is only 19 months old.

Thank you all for checking in! We certainly appreciate it so very much! This nightmare is made a little easier when you have such a great support system. We live this 24 hours, seven days a week, and our entire world revolves around the hated disease called cancer. It will be so wonderful to someday return to some type of "normal" life, whatever that may be. Until then, we will just keep trusting in God to see us through this, and to heal Connor. Plus, live by our "One day at a time" motto. Take care, peace to all, and may God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Wednesday, July 2, 2003 10:06 AM CDT

Hi there friends and family! I hope you are all having a great day. We are in Vanderbilt. Connor is getting his next dose of chemo. This is the one that makes him pretty sick. They started it last night around 9:00. He vomited around 10:30. He is doing okay so far today. He will be getting it constantly through Thursday night. Hopefully, we will be able to go home on Friday, the Fourth. If not, the hospital is having a cook-out in the courtyard off the playroom on Friday. If you HAVE to be here, that makes it a little more tolerable.

We are getting moved into our new home. We love it! Nana, Poppy, Sherry and Kevin came Friday, we worked like DOGS and got just about everything from the old place to the new place on Friday. THANK YOU ALL FOR HELPING US! I am really thankful to have such a wonderful family! They all came back on Saturday and continued to help, along with Kyla. We still have tons of unpacking to do, but just being there is so nice! Eddie can finally grill again. It was against the city ordinance where we were, but now we are back in the grilling business.

Connor did go last week for his CT scans, bone scan, and echocardiogram. I didn't hear anything from the clinic, so I called Friday and left a message for someone to call me with results. They never called, and we were SO BUSY with the move. So, yesterday, I was able to talk to Dr. Shankar about it. The bone scan and echo were both fine. There is an area (1.5 centimeters by 1.7 centimeters) showing up on the CT scan. She first said it could be something post-op. But, she has ordered an MRI for this coming Tuesday, July 8 at 5:30. PLEASE PRAY, we can't imagine that it could be anything this soon after surgery. The pathology reports, as I've written before, showed clear margins after surgery. We are trying not to panic, but now we have that waiting game until the MRI. I HATE CANCER! It always seems to be lurking in the shadows like the evil that it is, just waiting to strike again. The fear is always there. O.K, O.K., we are not going to jump to conclusions, just please pray for it to just be something like scar tissue. We have to cling to our Faith, and take it one day at a time, as always.

I hope you all have a safe and happy Fourth of July. Be careful with those fireworks, we are already hearing of many injuries in our area, from carelessness. Spend time with your family, and enjoy the day. Thank you all for continuing to follow Connor's journey. Thank you to Nina, Donna, Shirley, Tabitha and everyone who helped with the latest bake sale for us in Westmoreland, WE LOVE YOU ALL! Also, thank you to the Hugs and Hope group for the raffle they had for us and another family. You all don't realize how much it means to us. We REALLY, SINCERELY appreciate your help! Please sign Connor's guestbook if you can to let him know you were here. I'll update again as soon as I know more. Peace to all, and may God bless us all!

We love you!
~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Friday, June 20, 2003 7:53 AM CDT

Hi everyone! Thanks for checking in! I know, I know, I have gone entirely too long without updating, we have just been so very busy. I am so sorry to keep you all waiting. Connor is doing well. He is walking without the assistance of ANYTHING! He put it all to the side. He does have a limp, but HEY, he is doing FANTASTIC! He continues to amaze everyone with his recovery.

He did go back into the hospital last Tuesday (6/10) for 5 days of chemo. It did make him really sick. It gets a little worse each time. That is how it was the first time he went through treatment. It seemed as though the further he went along, the worse it got. I guess it is because of the chemo building up in his system. Not to mention, immunity building up after time. That is my theory, anyway, correct or not. Anyway, the chemo has also brought along a severe case of diarrhea. He has been suffering with it since the middle of LAST week. He is pretty miserable, as you can imagine. I will spare you specifics, but will tell you we now have a prescription to be picked up today called.......get this......Happy Hiney. Isn't that the greatest name?!? We, along with Connor, have laughed so much about that name, let's just hope it works.

Thought I'd share with you, Connor has his first taste of "puppy love". Actually, he would tell you he is "madly" in love. The object of his affections is a beautiful (inside and out) Child-Life Specialist at Vanderbilt by the name of Ginny. She is a true sweetheart. Connor sure knows how to pick 'em. He tells me he will certainly marry Ginny. When Connor was having major anxiety issues just before surgery, Ginny would spend lots of time with him, doing different "calming techniques". She would sit and massage his aching legs for long, long periods of time. Connor was her focus during that week. We think the world of Ginny, as well. She has become like a member of our family.....daughter-in-law?....well, not quite yet. Let's wait a FEW years. I'll announce the engagement before we send out any invitations, deal?

Another bit of news, we are moving. Just about five miles up the road. We have been renting a townhouse for three and a half years. We had a house in Hermitage for 8 years. We sold it just before Connor was to start Kindergarten, so that we could move to this area. Eddie grew up in Goodlettsville, and we liked the schools. Our "plan" was to rent for a year or so, and then purchase something out here. Then, DIAGNOSIS. Need I say more??? We are not exactly in any position to purchase, unless it is a wing at Vanderbilt, which we should own by now. So, anyway, we have kind of gotten stuck in this rent-mode. We fould a house to rent, after several months of searching diligently. We are very excited. It is in Hendersonville, off New Shackle Island Rd. We will be moving everything next weekend, June 27-30.

Connor has some major tests this coming Tuesday, June 24. He will have a CT scan of his chest, abdomen, and pelvis. He will also have a bone scan, and an echocardiogram, to check for any heart damage from the chemo. Nana and Poppy will be going with us on that day, it WILL undoubtably be a very stressful day. Please, please say a prayer for everything to come out CLEAR. He is taking his Neupogen shots every night since last weekend. His counts yeaterday had really started to drop. We will go in this Monday, probably for a blood transfusion and a platelet transfusion. Then, his next admission date is Tuesday, July 1st. This is for three days of chemo. We hope to get to go home on July 4th, we'll just have to wait and see. We did spend Memorial Day in the hospital, we are hoping to be able to spend the Fourth at home in our new house.

Guess what the Goodlettsville Fire Department did??? Several, I think 8, of the guys shaved their heads for Connor, including Chief Gibson. They invited us over this past Monday to witness the event. They were SOOOO kind to do this in support of Connor. YOU GUYS ARE THE BEST, THANK YOU, THANK YOU, THANK YOU for ALL you do for him! It was actually on Fox 17 News at 9:00 last night. It spoke of how they made Connor an Honorary Goodlettsville FireFighter, the youngest EVER in Goodlettsville's history! We are so proud!

I hope all you Dad's out there had a wonderful Father's Day. I know it was tough on some of you, those who have lost their children to this terrible disease. Please don't forget the families who no longer have their children with them. The days have to be unbearable, the nights just as long, I can't BEGIN to imagine..... I sat and read some of the updates Sunday night and cried and cried. Please remember these families in your prayers. I know it is difficult to think about, but they REALLY need our prayers and support. God forbid, if I were ever in their shoes, I would hope that people would continue to support and pray for me.

Tomorrow, June 21, is Eddie's birthday. (shhhh....number 36!) I'm not really sure yet what we will do, but HAPPY BIRTHDAY EDDIE!!!!!!! I know he has received the best birthday present already, Connor's miraculous surgery and recovery. Who could POSSIBLY ask for more???

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Peace I leave with you. My peace I give you. I do not give to you as the World gives. Do not let your hearts be troubled and do not be afraid.

John 14:27

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Thank you all for checking in. I hope you are all having a wonderful summer. Enjoy each day, in every way that you can. Spend AS MUCH TIME AS YOU CAN WITH YOUR CHILDREN AND FAMILIES. That, my friends, is what is important. Make lasting memories. Don't take a single moment for granted. Thank you for your continuous support. We NEED and appreciate it more than we could ever tell you. Take care, Peace to all and May God Bless us all!

We love you, each and every-one!
~~Rhonda, Eddie, and Connor, our "Bravest Little Miracle Trooper!"


Friday, June 6, 2003 8:59 AM CDT

Hi everyone, thanks for checking in! Things are going great with Connor's recovery! He was working with the physical therapist every day last week while in the hospital. He was convinced that he could not walk, even with the walker. Then, on Wednesday, Nana and Poppy came down so that Eddie and I could run some errands. When we returned, as I started in the door to his room, Mom (Nana), told me to wait just a minute, and they closed the door back. Next thing we know, here comes Connor out of the room on that walker, up and down those hallways like nobody's business! We were, once again, amazed! So, we were discharged on Friday. We never expected such a speedy recovery, but, we also never expected such an outcome of surgery! It is so hard not to let your Faith be tested under such circumstances, but God never lets you down.



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The Privilege of Prayer (an exerpt from Hope For Each Day by Billy Graham)

Ask, and you will receive, that your joy may be full.

John 16:24

What a privilege is ours, the privilege of prayer! Just think of it: You and I have the incredible privilege of approaching the God of the Universe, "the High and Lofty One who inhabits eternity, whose name is Holy" (Isa. 57:15)! We can only do this because Jesus Christ has opened the way.

We are to pray in times of adversity, lest we become faithless and unbelieving.
We are to pray in times of prosperity, lest we become boastful and proud.
We are to pray in times of danger, lest we become fearful and doubting.
We are to pray in times of security, lest we become self-sufficient.

Pray, believing, in the promise of God's Word that "If we ask anything according to His will, He hears us" (1 John 5:14).
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NEWSFLASH: Connor's pathology reports from samples taken during surgery came back on Thursday----NO SIGN OF CANCER REMAINS--CLEAR MARGINS WHERE THE TUMOR WAS! Once again, PRAISE GOD FOR HIS HEALING POWER!


We have been home since Friday. Connor is doing well. He has ALOT of pain at times. He has a very large incision site coming down his right hip, underneath his bottom, and back up the center of his bottom. We bought him a twin air mattress to sleep on temporarily, he seems to feel better on it. With that portion of the pelvic bone gone, they reattached his hamstring to soft tissue. So, there is concern of him pulling that loose if he tries to do too much, too soon. Try telling that to an active 8 year old. He has already graduated from the walker to crutches, and tries to NOT use them. He is not suppose to be putting more than 50 percent of his weight on his right leg. Short of tying him down, it is becoming increasingly difficult to make him understand the importance of following the doctor's instructions. But, from what we can tell, he is healing up nicely.

Connor will still have to take 8 to 12 months of chemo. He will be inpatient every three weeks, more, of course, if he develops a fever. His first admission is this coming up Tuesday, June 10. This will be a 5 day stay. He will alternate every three weeks--5 day stay---3 day stay. There are different chemo drugs involved with the stays, that is why one is longer than the other.

We are totally and completely BLESSED to have ALL OF YOU! There is not a day that goes by that I don't thank God for our many blessings. Thank you to all of you for all of the wonderful gifts, balloons, phone calls, visits, and mostly, PRAYERS! Please keep those prayers a comin', as Connor still has many, many months of treatment left. A big thank you to the Nashville Fire Department and the Goodlettsville Fire Department for not only putting on the blood drive for Connor on his surgery day (50 pints--YAH!), but also for the Golf Tournament held last week. We truly, sincerely appreciate all the help you give to us, as we are trying to keep our heads above the water financially, as we deal with Connor's illness. THANK YOU, THANK YOU, THANK YOU!!!!!

Please continue to pray for all of our friends going through treatment. There are, unfortunately, SO MANY. Connor has two other pals named Gabe Sipos and Jack Ferrell. Gabe's Mom, Lu, made the three of them matching t-shirts that had "Three Bald Buddies--Connor, Jack and Gabe" on the back with a picture of three frogs sitting side-by-side. Then, Jack and his Mom and Dad went to Gatlinburg a couple of weeks ago, and they brought them back the floppy type hats with airbrushing on them with the Three Bald Buddies theme. They are so cute! Anyway, please say a special prayer for them, Gabe has rhabdomyosarcoma (same as Connor), and was diagnosed in December, just before his first birthday on January 1. Jack has Leukemia, and was diagnosed in August, 2002. He is. I think about 2 and 1/2. Thank you for the prayers! Gabe has a web site-- Gabesmyheart.com --check it out if you can!

Thank you all for staying by our sides, we could never repay all of the kindnesses bestowed upon us. A special thank you to the Hugs and Hope group for all of the support they have given us over the past year and a half! I hope everyone has a great weekend! We love you all! Peace to all, and May God Bless You All!

Love, hugs, and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Tuesday, May 27, 2003 8:25 AM CDT

Hi everyone! Thanks for checking in, and for all of the nice guestbook entries. Sorry to keep you all in suspense concerning Connor's recovery. We don't have a computer in the room, so I have to sneak out to get on here. He's doing GREAT! Making progress every day. Today is the first day since last Wednesday that he can EAT, so he has a very long list of everything he would like, anyone out there deliver steaks and country ham first thing in the morning??? He still has his air bed, it's been great for him. Yesterday, Karen from Physical Therapy came by to work with him. We lifted him out of bed and into a recliner. He stood for a few seconds with the help of his new walker. He then sat in the chair for probably three hours, napping part of the time. Nana and Poppy stayed with him for a while yesterday, so that Eddie and I could run some errands, (Thank You!!!). Thank you to everyone for the phone calls, cards, gifts, balloons, visits, and most of all, the PRAYERS!!! Our prayers were answered on Friday, Thank you, God! Everyone present Friday, I believe, received a huge blessing by being able to witness what transpired in the operating room. We couldn't be happier at this point. It all seems kind of surreal, we had really geared ourselves up to be dealing with all the surgeons had talked to us about. Yes, our Faith has wavered at times, but it has been fully restored! We wouldn't be where we are today without all of you, and the prayers that you have continually sent up for Connor. Please continue to pray for his full recovery, and no return EVER of the "C" word. Please also pray for all of our other buddies still going through treatment, and those in remission. Our friend, Lauren, is still here, as well. She had surgery Friday to remove her port, which was causing her infection. One of Connor's surgeons actually was able to do her surgery, since Connor's went so well and finished up so much sooner than anticipated. Lauren's parents are Tammy and Reese, and they are some of the nicest people you could ever meet. Please visit her site and offer words of encouragement: caringBridge.com/tn/laurenlegge

This has been a very, very difficult time in our lives. There is no question about that. But through all of this, have come many blessings, such as the huge circle of friends that has developed. We are thankful for each and every one of you, never doubt that for a moment. Please say a prayer for all of those families who have lost their children to this monster. Holidays, birthdays, and just "days" in general, are so difficult when that person is no longer on this Earth. Be thankful for each day you have with your loved ones, never take a single minute for granted, things can change in an INSTANT. Hug those little ones a little tighter today, and even more so tomorrow.

I'b better get back to Connor now. Thank you so much for your continued support, it makes the days easier. We appreciate you all!!! The blood drive was a huge success this past Friday. Thank you so much to everyone who came out to donate, the goal of 50 pints was reached---50 pints exactly! Also, thank you to everyone who sat with us in support on Friday. It really helped to have so many friends and family with us that day, a very important day! Have a great week everyone, I'll update again soon, I promise!!!

We love you, peace and God's blessings to ALL!

~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Friday, May 23, 2003 7:35 PM CDT

****HALLELUJAH!!!!!!****
*****PRAISE GOD!!!*****

Oh, thank you, thank you, thank you God! All of the prayers being said for Connor HAVE BEEN ANSWERED!!! His surgery was six hours long, NOT 14. They took 1/4 of his pelvic bone, and the tumor, but guess what?!?!?! He STILL HAS ALL OF HIS INTERNAL ORGANS!!! Yes, he has his bladder, urethra, colon and rectum!!!!! They were able to work around it after all, surprisingly to the doctors, but not to us, GOD HAS WORKED A MIRACLE!!! He will be confined to bed for a few days, he can't eat or drink for two days. He will be on crutches for a while, we don't have alot of details on that yet. All we know is that God spared our child! Thank you ALL so very much for all of the prayers that have been said on his behalf. We wouldn't be at this point if it weren't for that. God Bless You All!!! Connor has an air bed (it's great!), and an epidural for pain control. He will have a rough few days, but nothing we can't overcome. We are SO VERY THANKFUL TO GOD FOR WHAT HE HAS DONE FOR OUR CHILD!!! The doctors, themselves, were amazed, don't you love to hear that??? They even thought he would be losing LOTS of blood today, he didn't lose ANY, so NO TRANSFUSIONS! We are so blessed to have a support system that reaches to each corner of God's Earth! Thank you all, each and every single one of you, for all you have done to get us to this point! Please continue to pray for good reports, he still will have 8-12 months of chemo, and we are definitely not out of the woods yet, but this is such an encouragement to us! A SPECIAL THANK YOU TO EVERYONE WHO CAME OUT YESTERDAY TO GOODLETTSVILLE FOR THE BLOOD DRIVE FOR CONNOR SPONSORED BY THE GOODLETTSVILLE FIRE DEPT. THEY REACHED THEIR GOAL OF 50 PINTS! WE ARE SO BLESSED TO KNOW SO MANY CARING, GIVING PEOPLE! ALSO, THANK YOU TO ALL OF THOSE WHO HAVE BEEN FASTING AND SACRIFICING THIS WEEK FOR CONNOR, WHAT AN AMAZING OUTCOME TO ALL OF OUR PRAYERS!!!!!

THANK YOU ALL FOR EVERYTHING!!!

Have a great weekend!!

Love, hugs, and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Miracle Trooper!"


Thursday, May 15, 2003 10:45 PM CDT


Monday, May 19, 2003:QUICK UPDATE SINCE LAST ENTRY:

CONNOR WAS ADMITTED TO VANDERBILT SUNDAY NIGHT, MAJOR ANXIETY ISSUES AS SURGERY DAY IS APPROACHING. HIS DOCTORS THOUGHT IT BEST THAT HE BE INPATIENT FROM NOW THROUGH SURGERY AND RECOVERY. THEY HAVE ALOT OF PREPPING TO DO BEFORE FRIDAY. WE ARE HAVING SOME VERY TOUGH DAYS, PLEASE, PLEASE KEEP US ALL IN YOUR PRAYERS. CONNOR IS TRYING TO BE AS BRAVE AS HE CAN, BUT IT IS INCREASINGLY DIFFICULT. IF ANYONE IS THINKING ABOUT COMING BY TO SEE HIM THIS WEEK BEFORE FRIDAY, IT MIGHT BE BEST TO CALL FIRST, WE CERTAINLY WOULD APPRECIATE IT. OTHERWISE, KEEP SENDING THOSE PRAYERS UP FOR THE SURGERY TO BE A TOTAL SUCCESS, AND FOR CONNOR AND HIS WELL-BEING.
WE LOVE YOU ALL!!!!!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!!!"




Hello everyone! Thanks so much for checking in on us. Your support means EVERYTHING to us!Another week has passed us by, and we are drawing ever so close to surgery day on May 23. It is getting more and more difficult to block it from our minds as the day approaches.....

Last week, we spent alot of time at Vanderbilt. Four of five days, we had appointments. We met on Wednesday with the Radiation Oncologist, Dr. Teng. We had not been there since right after Connor finished his 30 radiation treatments last year. Dr. Teng may or may not be needed for Connor's surgery. It is all contingent on how much or how little of the pelvic cavity has to be removed. External radiation is not an option, Connor has already had the maximum dosage that he can have. So they MAY implant the tubing for the radiation "seeds", as they are called. As I said, nothing is 100efinite at this time, all the decisions will be made IN SURGERY. Connor had a big time while we were waiting to see Dr. Teng. Gail, the receptionist down there, challenged Connor to races up and down the hallway on the rolling Doctor's chairs. You should've seen them, both on their stomachs, racing down the hallway! They were getting quite a few looks, to say the least. We didn't get to see Q-Bert. Her "Mommy", Sarah Jane, broke her leg when a stray dog ran into her as she walked Q-Bert and Buddy. Our prayers are with you, Sarah Jane!

Friday, Connor had to go in for counts. He required a blood transfusion, as expected. So we were in the clinic for a few hours. Speaking of blood transfusions, the Goodlettsville Fire Dept. is trying to organize a blood drive for Connor. Tentatively, the date is set for May 23, yes, Connor's surgery day, but that is the only day they could get. It will be from either 10-4 or 10-6 at the Goodlettsville Community Center. I'll post the info before the actual day, I just want to be sure to have it correct. Connor's blood type is A , but ALL blood types are needed, of course. He will be taking chemo for a year following his surgery, so he will be requiring lots of blood for transfusions. We would CERTAINLY appreciate anyone who would be willing to come out and donate!

Friday night was a "DREAM NIGHT" for Connor. A friend/co-worker of Eddie's, Keith, had contacted someone he knows at the Grand Ole Opry. One e-mail led to another, and Connor was invited to a night at the Opry. We got there a little while before the show started, and our WONDERFUL Hostess/Guide, Ms. Eloise, led us to our seats. Now get this, we were sitting FRONT ROW-CENTER. We could not believe the seats! The show started, and about 30 minutes into it, Ms. Eloise came for us, to take us back-stage. We met a ton of people, from Mandy Barnett to Rebecca Lynn Howard (Connor's new Fiance'), Rider's In the Sky, Little Jimmy Dickens, Hal Ketchum, Jeannie Sealy, Jean Shepard, and several of the other Opry regulars. We got to go into the dressing rooms and sit behind the performers on stage. After we went back to our seats, Mike Snider took the stage, and invited Connor to stand up there during his performance. The photo is now on the photo page, PLEASE check it out. You can see the huge screen in the background, with Connor right smack dab in the center. What a thrill and honor, on stage at the Grand Ole Opry. Talk about a Once in a Lifetime chance. He did so well, just like he belonged there! Thank you, Ms. Eloise, Mac, Keith, and everyone at the Opry for a magical night! It was certainly a night that Connor will NEVER FORGET!!!!

Sunday was Mother's Day, of course. Connor and Eddie got me perfume, a CD, and cards. We went up to Nana and Poppy's in the afternoon. We had a delicious lunch of Chicken and Dumplins and all the trimmings. We gave Nana her gifts, and then she gave me an unexpected gift, a Mother's ring with Connor's birthstone in the center of Eddie's and mine. It is beautiful!I was thrilled, THANK YOU NANA AND POPPY! We had a really nice day, just spending it with family. I really am the luckiest Mommy in the world, to have the pleasure and honor of being Connor's Mommy. That is all the gift I need. Earthly possessions mean NOTHING, that is sometimes a hard lesson learned. God and Family mean EVERYTHING, what else do you need??? Cherish every mili-second with your family, things can change in an instant.

Yesterday, May 14, was a special day. It was the birthday of Zackery Kull, who would've been 11 years old. He passed away last year after a valiantly brave battle with cancer. This was his family's first birthday with out him here. I heard about Zack last year on the Hugs and Hope web site. Not long before he passed away, he received a guitar from Kid Rock, one of his favorites. To honor him yesterday, Connor and I bought balloons, then took them out on a boat dock in Hendersonville, and release them to the sky. We watched them until they were out of sight. Connor told me that he is sure that God reached out and took them, so that He could hand-deliver them to Zack. I like to think that He did just that! If you have a moment, visit Zack's CaringBridge site and offer his parents a note of encouragement, with Mother's Day, and his birthday, I know they have had a painful week. His web page address is http://www.caringBridge.org/fl/zackerykull.

Tomorrow night, Eddie will be spending the night walking in the Hendersonville Relay for Life to raise money for the American Cancer Society. Hopefully, the weather will cooperate. Our friend, Christian, will also be staying. Our church has three teams in the Relay, named "Connor's Hope".


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
But those who wait on the Lord
Shall renew their strength;
They shall mount up with wings like eagles,
They shall run and not be weary,
They shall walk and not faint.

Isaiah 40:31
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thank you all so much for checking in. We appreciate each and every act of kindness. We had the privilege of meeting a wonderful friend tonight, Sandy Hilliard. She has followed Connor for so long now, and sent him cards and gifts. She lives about 20 minutes from us. She is a stitcher for Love Quilts. They make quilts for sick children. They made Connor a quilt with a theme of "Cats", as requested by him. She delivered it tonight, along with two matching pillows. The quilt and pillows are BEAUTIFUL!!! So much time, energy, and LOVE went into that quilt, we will cherish it forever! It was so nice to finally meet one of Connor's utmost encouragers face-to-face. Thank you, Sandy, for ALL YOU DO!!! And we love the quilt and pillows, they are gorgeous!

I will try to update next week, just before we go into the hospital. He will be admitted either Wednesday or Thursday, then the surgery will start probably around 7:30 Friday morning. It will most likely be 14, yes, 14 hours long. P-L-E-A-S-E keep Connor in your prayers, especially that day, NEXT FRIDAY, MAY 23. We appreciate it so much. If I am unable to update immediately following surgery, I'll have my friend, Christian, put an entry into the guestbook, to let everyone know how things went, so check there, if there is no update on the main page. Please pray for all of the other children going through treatment, and there are SO MANY. Please say a special prayer for a dear friend, Lauren, 11 years old. She is in the hospital right now, having a difficult time. Her web page address is caringBridge.org/tn/laurenlegge. I wish I could name everyone, unfortunately, there are WAY TOO MANY.

Take care, peace to all, and May God Bless Us All!!

~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Tuesday, May 6, 2003 8:53 PM CDT

Hi there family and friends! I hope you are all doing well, and, if you live in this area, that you have survived the storms of the past couple of days. Whew! It has seemed as though they are neverending. We are getting a brief break tonight, but more are expected to roll in later.

Connor went into the hospital last Monday for chemo. He had three days of it, then a day of observation. We were there until Thursday. On Tuesday, we had already scheduled a consultation with Dr. Schwartz, the Orthopaedic Surgeon who will be doing part of Connor's surgery. Our wonderful friend, Christian, came to the hospital so that she could be with Connor while we met with the doctor. We had to wait over TWO hours in the waiting room before they called us back. Well, I suppose Connor thought he had waited LONG ENOUGH. He had one of his "anger episodes", for lack of a better term. It turned into quite a visit. Finally, his nurse, (understatement---GODSEND), Denise, came down and was able to calm him down. She took him back up to his room, so that we could meet with the doctor. We actually got some good news, Dr. Schwartz is quite optimistic about his part of the surgery, and thinks that Connor will be able to walk again. YES!!!!! One prayer answered......

Wednesday, Nana, Poppy and Chad came down to stay with Connor while Eddie and I met with the Plastic Surgeon who will be doing that part of the surgery, Dr. Shack. He explained to us that as a result of the extensive surgery, there will be a large empty cavity in the pelvic region. He will take muscle and skin from Connor's inner thigh (maybe both), from his knee to upper thigh, to fill in the cavity. He doesn't think it will affect his ability to walk, or use his legs.

The tumor board--all Surgeons involved--will be meeting this Thursday, May 8, to go over all of the details of the surgery. We will then meet with Dr. Brock to get a report on their plans. The surgery is still set for MAY 23. He will be admitted on the 21st or the 22nd. It is so hard to believe that it is only 2 and 1/2 weeks away. We are still trying to put it COMPLETELY OUT OF OUR MINDS, as hard as that is sometimes.

This past Saturday, Christian and I had a "girl's evening out". She had arranged a couple of surprises, with her Mom's (Mimi's)help. We went out to Green Hills Mall, where we both had a manicure. She then took me to a salon there in the mall, where Mimi had arranged for me to indulge in a 30 minute massage! I have NEVER been for a massage before, and WOW, did I enjoy it?!? I came out feeling like a complete and total NOODLE. She then took me to dinner. On the way home, we stopped in at the Chef's Market for dessert. What a night! Thank you SO much, Christian, for taking such good care of your "Sissy"! I really needed that night, you are wonderful!

Sunday, Connor wanted to spend the night with Nana and Poppy. A lady my Mom works with, Karen, had given him a gift card for Outdoor World/Bass Pro Shop, and he bought a tent with it. He took the tent up there with him, and they set it up in their yard. I'm really surprised he didn't insist on him and Chad (my brother), sleeping in it, but the storms started that night. He had a great time up there, as always, and didn't want to come home.

Today, we went to the clinic. Our good friends, Caleb Little and his Mommy, Debbie, were there, so Connor and Caleb got to play together. Caleb looks so good, he is just getting over a bout with pneumonia, bless his heart, but he was as charming as always. Connor had blood drawn for counts. His counts are dropping, but have not bottomed out yet. Nurse Kelly went ahead and ordered blood for him for a transfusion on Friday. He will probably need platelets by then, as well. Tomorrow, we meet with Dr. Teng, the Radiation Oncologist. He will be on standby on surgery day. If they can't get all of the area that they plan to get, they will implant the radiation seeds into the area. But, chances are that there will no longer be anything there to implant them into. But we will meet with him, just in case it is necessary.

****************************************
The Lord is my light and my salvation;
Whom shall I fear?
The Lord is the strength of my life;
Of whom shall I be afraid?

Psalm 27:1
****************************************


I hope all of you Mothers out there have a WONDERFUL Mother's Day! I know I will enjoy the day to it's fullest. Connor told me today that he would tell me what he was getting me for Mother's Day if I would tell him what he was getting for Christmas. WHAT??? I told him that is more than a few months away, and I couldn't say with any degree of certainty right now WHAT he would get. I also tried to explain how that takes the fun out of it, when it isn't a surprise anymore. I really don't think he bought it!

Connor is the absolute JOY of our lives. I watch him taking all of his meds, and some of them are QUITE YUCKY. He takes his shots every night, goes through all of the procedures, and everything else involved in treatment, and he NEVER COMPLAINS. Yes, he is angry right now at the "whole" situation, who wouldn't be??? I can't even imagine what must be going through his 8 year old mind. All I know is that he is my HERO! IN every sense of the word. He has taught me more of life's lessons in the past year and a half, than some people learn in their entire lifetime. I am so fortunate that God entrusted me to be Connor's "Mommy". I could not receive any higher honor on this Earth than that. We will see Connor through this, he is just too strong to not beat this. Thank you, God, for this day. Please help us to live each and every day to it's fullest.......

Thank you all for checking in, I'm sorry if I rambled tonight. Thanks, again, for all you do to encourage and support us. A great big THANK YOU to Aunt Shirley, Tabitha, Nana, and everyone involved in the yard sale that was held for us this past Saturday. You all are the best! Take care, peace to all and May God bless us all!

Love, hugs, and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"




Sunday, April 27, 2003 0:37 AM CDT

Hello family and friends! We hope you are all doing well. The last time I updated, we were at Vanderbilt. Connor did get to come home before Easter, so we were able to enjoy the day at church, then with family. I hope you all had a wonderful Easter, and found the infamous "prize egg". What a wonderful day....a day to reflect on Christ's Resurrection after his death on the cross. God gave the ultimate sacrifice, so that we could all learn of Christ's love for us, accept Him as our Saviour, and enjoy the knowledge that we can all live eternally with Him in Heaven. What a day, glorious day, that will be!

Connor went in for an MRI on Monday. Then on Tuesday, we went in to meet with Dr. Brock, then into the clinic for counts and to meet with Dr. Shankar. Connor's counts were fine, thank goodness. His MRI showed a little change, POSITIVE change. The tumor appeared to be slightly smaller, with some possible dead cells in the center. As a result, he will receive another cycle of chemo before surgery. He will be admitted Monday, the 28th, for a three day stay. We will then wait for his counts to bottom out, then recover. HIS SURGERY IS NOW SCHEDULED FOR MAY 23rd. He will be admitted a couple of days before to have his system cleaned out and to prep him for the surgery. We will meet this week with two of the Surgeons involved, for consultations. Connor still knows nothing of the surgery, other than the fact that they will try to remove his tumor. He will probably start learning a little at a time this week. We certainly DO NOT want to overwhelm his little mind any more than it already is. It will be difficult for him to comprehend the full scope of what is ahead. We, ourselves, can't comprehend it, so how can we expect an eight year old to understand. Connor is having a difficult time right now with his anger, and expressing it. Eddie and I are receiving the brunt of his frustrations, which is to be expected. We have been told, and it makes sense, that Connor feels total lack of control over every aspect of his life. So, as a result, the only thing he feels he can control is "US", Eddie and I. It is extremely hard to deal with at times, please pray for this situation. Connor is on several different pain medications, and mood-altering drugs, so that just adds to his mood swings. He is going through so much, more than anyone could possibly understand. That is why it is IMPOSSIBLE for us to think about tomorrow, today is challenging enough on it's own.......

On a lighter note, Tuesday evening was a special night for Connor. It was the "Waiting for Wishes Celebrity Fundraiser for Make-A-Wish with Kevin Carter". It was held at The Palm restaurant in downtown Nashville. Connor was very nervous at first, with the media attention as soon as he walked in, but things calmed down after a while. There were approx. 30 of the Tennessee Titans players there. They were our "servers" for the evening. Our good friends, Donna and Joey Housley, joined us for dinner. Joey went through treatment last year, and is now in remission, PRAISE GOD! For dinner, we had Filet Mignon, Lobster, Crab, and all the trimmings. YUM, YUM, YUM, what delicious food! The players did a great job. We were introduced by Ben Hanback, president of Make-A-Wish of Middle TN, and Eddie made a little speech. Connor got a football, that he had all of the players sign, plus, he received two of the guys "server's jackets" signed by the players. Kevin and his wonderful wife, Shima, were so kind to us, and made us feel so welcome. Connor deserved this night, and he thoroughly enjoyed, (as did his Mommy and Daddy!). Thank you to Kevin for all of his hard work for the Make-A-Wish Foundation, he is such a giving person. Also, a BIG thank you to Tanya, Linda and everyone at Make-A-Wish for choosing Connor as the Ambassador for this event. It really was a magical night for us all!

Please say a prayer for some of our buddies going through treatment, Jack Ferrell, Gabe Lupos, Hannah Ryals, Caleb Little, Lauren Legge, "Gooch" Russo, countless others, plus all of those now in remission, that they STAY in remission. Also, please say a special prayer for my cousin, Sylvia, in Louisville, KY. She is going through treatment for Inflammatory Breast cancer. She now has a caring Bridge site at caringBridge.org/ky/sylviahinton--please pay her a visit and sign her guestbook for support if you can. Two of the cancer warriors lost their battles over the past couple of days. Please pray for them and their families.........
Miss Ashley Yates, 20 years old. You may have seen her picture in the classified section of the Tennessean over the past year and a half, asking for prayers for her inoperable brain tumor. She lost her Earthly battle with cancer, but will no longer have to fight against it in Heaven, as she now has a new, cancer-free body. Her funeral will be Monday in Ashland City, TN. PLEASE pray for her family, for God to give them the strength to get through this. I can't, and don't want to imagine, the pain they are feeling at this time. The other child is a little boy by the name of Tyler Robbins, of Pennsylvania. He had recently relapsed, and had fought such a tough fight. His family really needs our prayers right now, as well.

We participated in Portland's Relay For Life on Friday night. My Mom's work, Appleton Wire, had a couple of teams in the event. Their teams more than DOUBLED their goal of $3,300.00. WAY TO GO APPLETON WIRE! WE ARE SO PROUD OF YOU ALL! I was unable to walk in the event. I developed a stomach virus in the night on Thursday night. Lots of that wonderful vomiting and diarrea. I am still not 100 percent. Hopefully by Monday when Connor is admitted, I will be feeling much better. I have had chills on and off all day today, actually yesterday, Saturday. Connor has been my little caregiver, bless his heart.

Please continue to send those prayers up for Connor. Oh, how wonderful it would be for his cancer to just DISAPPEAR, so that he would NOT have to have this dreadful surgery. But, if that is not God's plan, we will deal with the surgery, and it's after-effects, as they come. We will not give up in this battle. We will do what ever it takes to have Connor well again. We will accept no less. We are trusting in God for a complete healing. We want Connor to be a living testimony of God's miraculous abilities. We try not to be consumed with the "what-if's" of this journey. All we want is for our son to be well, happy, and able to live a normal life. I, as Connor's Mommy, wish that his childhood had not been robbed of him by this disease, but it has. We just have to accept that and forge onward........

Thank you ALL for all you have done, and ARE doing for us. We appreciate EVERY act of kindness. I am SO far behind right now on Thank-You cards, but I will be trying hard to catch up. We are encouraged by all of you, whether you realize that or not. It truly gives us the strength to get through each day right now, knowing we have so many out there who are genuinely "on our side". Thank you for EVERYTHING! We just hope that one day we can, somehow, repay the kindnesses that have been bestowed upon us. Take care, everyone, have a great week. I will update again as soon as possible. We love you all, each and every one! Take care, peace to all and May God Bless Us ALL!

Love, hugs and prayers,
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"




Wednesday, April 16, 2003 4:02 PM CDT

Hi everyone, sorry it has been so long with no update. Our computer was down for a few days, (THANK YOU, MR. OLDHAM, FOR GETTING IT UP AND RUNNING AGAIN!)and now we are back in Vanderbilt.

We had to take Connor to the ER Monday night around 11:00 pm. He started running a fever and by the time we left home, it was 102.2. With children going through treatment, a temp of 100.5 sends them to the hospital. He was admitted, and we got to our room Tuesday morning at 4:00 am. Needless to say, we were exhausted. Blood was drawn for cultures, and we haven't heard anything back from that yet. So, we will be here until at least Friday. I hope and pray we are not here Easter. But, Connor feels great, he just has to be monitored while they wait for the culture results.

Monday afternoon, we met with Dr. Brock, Connor's Urologist and one of the Surgeons who will be performing his surgery to remove the tumor. We had been dreading the visit, ignorance is bliss, and we had been trying not to think of it.

There will be 4 surgeons involved, Dr. Brock, a Pediatric Orthopaedic surgeon, a Plastic Surgeon, and a General Surgeon. The surgery will be an ALL DAY surgery. He told us that it could not be any more major than it is, VERY RADICAL. Nothing is for certain until they get in there, but they will have to go through the pelvic bone to get to the tumor, so he will lose the lower right part of that bone. He will also possibly lose his urethra, rectum, colon, and part or all of his bladder. As I said, NOTHING is definite at this point, so we are praying for Connor's miracle. Obviously the surgery will be life-altering, losing the pelvic bone may result in his not walking again. The surgery itself is a very risky surgery.

It had been scheduled for May 9, but it may be longer, all of the doctor's schedules have to work out right. We are hoping it will be longer. Connor will have an MRI this coming Monday, April 21. His doctors will read that to determine whether or not he is responding to the chemo. Everything is just kind of "wait and see".

Obviously, we are completely and totally devastated about the surgery. If there were any other way.......
But there is NOT, he HAS to have the surgery to have any chance of survival. PLEASE, PLEASE, PLEASE pray for Connor. He has no idea what is ahead. He knows he will be having surgery, but only knows it is to remove the tumor. We, with the help of his doctors, are going to slowly tell him SOME of the details. He has already lost most of his childhood with this dreaded disease, it is SO VERY UNFAIR!!! But, our Faith in God will carry us through. We have to know and believe that God will heal Connor. Also, please pray for all of the other children going through this nightmare AND their families, and ALL OF THE FAMILIES WHO HAVE LOST THEIR CHILDREN TO THIS MONSTER CALLED CANCER.

Thank you to everyone for all of the continued support, what would we do without all of you?!?!?! We are so fortunate to have such a large support system. I will give an update as soon as possible. Thank you all so much for continuing to check in on Connor! I went for several days without being able to retrieve my emails, and lost alot of them, so I'm sorry if I didn't answer them. To all of you who were on my email address list, I lost it when the computer went down, so if you would, please send me a blank email to rshunley@comcast.net so that I can re-save it. Thanks so much! Happy Easter everyone! Remember the reason we celebrate Easter! Peace to all, and may God bless us all! Miracles do happen, the 7 POW's are proof-positive of that.

We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"




Thursday, April 3, 2003 7:47 PM CST

Hi there everyone! I'm giving a quick update from Vanderbilt Children's Hospital. Connor was admitted yesterday (Wednesday) for his five days of chemo. He was up some during the night last night vomiting, then proceeded to sleep until nearly 3:00 P.M. today. Yes, you read it correctly, THREE O'CLOCK!!! His little body was really needing to catch up on some rest. We are in the playroom right now, they just started his second dose of chemo. We will see how tonight goes. Please pray that his nausea doesn't get any worse. We will be here until Sunday or Monday. Then he will have scans about two weeks after that, then surgery. I still do not know an exact date, but will update you as soon as I do.

Let me tell you about Connor's day on Tuesday, the day before admittance. Tracy, our dear friend at AngelHeart Farms, had arranged a special day for Connor. We arrived at the farm around 12:45 in the afternoon. A '59 Cadillac limo was waiting to take us on Connor's surprise. While en route to Leiper's Fork, Connor received a phone call from a very special person to him, JOHN SCHNEIDER, BO DUKE HIMSELF! Can you believe it!?! He was SSSOOO excited, to say the very least. After his phone call, we arrived in Leiper's Fork to see lots of people awaiting Connor's arrival. After some picture taking, guess what pulled up in the middle of town.......Give Up?.......the GENERAL LEE! Connor hopped in, in true Duke boy style--through the open window, and the driver took off. Eddie and I hopped in the back seat of the old "Mayberry-style" patrol car, and the chase was on! They drove to a field, where they proceeded to do doughnuts, and drive CCRRAAZZYY! Did I mention that when they took off in town they they were burning some rubber? Well, anyway, we chased them back to town where the Sheriff proceeded to arrest him AND put him in jail. He broke out after a very short period of time. After that, we got to tour an awesome Recording Studio thanks to a wonderful friend that we made that day. That night, Tracy had given us tickets to the Predator's game. They didn't win, but after the game, Connor got to go down on the ice, and Gnash (Predator's mascot), presented Connor with his signed jersey. Connor said that day was the BEST day of his life! He had a blast. We were all so tired by the time we got home. I had to nearly blast Connor out of the bed Wednesday morning to come in to the hospital. THANK YOU, THANK YOU, THANK YOU Tracy for the incredible day you made happen for Connor. You are the best!

Thank you to every one who has sent cards, thoughts and prayers, and for all of the hospital cards and visits. We appreciate them all. Special thanks go to Nana and Poppy for bringing us in and staying with us on Wednesday, my dear friend and "Sissy", Christian, for hanging out with us at the hospital and bring Connor his very own, monogrammed bath robe, Mike Kelly and his Firefighter buddies for hanging out with Connor, all of his other visitors, Sandy Bass and Tiffany from Hugs and Hope (It was great to finally meet you!), and Miss Conley, Connor's Art Teacher. She came this afternoon bringing tons of stuff from his school-mates, INCLUDING a quilt with squares designed by his classmates. We were so touched. What a special thing for her to do for Connor. Mindy, you are a very special, caring and compassionate person, THANK YOU for presenting us with a gift that we will treasure for a lifetime! Also, thanks to Sandy Hilliard from Hugs and Hope for the fruit basket and balloon. I couldn't possibly name everyone by name that we would like to thank, but please know that we sincerely appreciate EVERY act of kindness that you are sending our way!

Please forgive my typos, the playroom is getting ready to close. FYI--Our home computer is nearly dead, it was hit by a virus, and is on it's last days. I can't get any emails while we are here, and I'm not sure if any will be there when I get home, so if I don't answer, that is the reason.

Thank you all for everything, please keep praying for that miracle for Connor, he is such a fighter. We love you all, peace to all and May God bless us all!

Love, hugs, and prayers,
~~Rhonda, Eddie and Connor, our "Brave Little Trooper!"


Tuesday, March 25, 2003 12:02 AM CST

Hi family and friends, and THANKS for checking in! To start with, Connor's counts have not yet rebounded, so he can't be admitted today for chemo. It will be next week. We went to the clinic Friday, and yesterday, and they are still quite low, he is still neutrophenic. It is just taking so much longer this time for the counts to come back up. He seems to feel really good, his energy level seems fine. He is still in quite a bit of pain, so he's still taking his pain medication.

Saturday, Tracy with Angelheart had invited us to a horse show in Murfreesboro, so off we went. According to his counts, Connor probably had no business going, but we took the chance. I'm glad we did. He really had a great time. All of the kids who participated got to walk around the arena with the horses, the volunteers, and the Angelheart banner. They were then all awarded with a blue ribbon to hang around their necks with a medallion attached. A friend of Tracy's, Sally, sang a song that she wrote called "Butterfly", about the kids and the program. It was very touching, to say the least. Tracy, you are AMAZING, and we love you! Thank you so much for ALL you do for Connor!

Sunday, after church, Connor and I went to Nana and Poppy's for the day. Connor had SO MUCH FUN! He played outside most of the day. He shot targets with his BB gun, helped Poppy trim a tree, and just enjoyed the beautiful spring day. Before we left, Connor, Nana and myself hiked through the field behind their house to a big tree that stands alone way down in the field. All around the tree were blooming buttercups. They were beautiful. Connor picked a bouquet for Nana and me. He is always picking me flowers. Poppy fried up some catfish for us. Connor had requested it last time we were there. Poppy is quite the gourmet chef. Thank you, Nana and Poppy for a wonderful, care-free day. My older brother, Johnny, was there too. He and Connor always have a big time wrestling and playing.

We are going to try to get out this week as much as possible and enjoy the gorgeous Spring weather. Please continue to pray for Connor's complete healing. The Elders at our church came to our home Friday evening. We had them pray around Connor as instructed in James, Chapter 5, verses 14 and 15. It was very moving. We really appreciate them doing it for us. We do anticipate another healing in Connor. Please also pray for relief from the pain he is experiencing.

We appreciate EACH AND EVERY ONE OF YOU!!!!! Thank you for everything that you are doing for us. We will make it through this, I have complete Faith in that. Please check back in again soon, I'll try to keep you updated as best as I can. Take care, peace to all, and May God bless us all! Don't forget to pray for our Country, our President and leaders, and especially, our Troops and their families!

Love and hugs,
We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"


Thursday, March 20, 2003 10:00 PM CST

Hi everyone, and THANKS for checking in on Connor. He is doing O.K. right now. He is having so much pain in his legs. He had chemo last Tuesday. By Friday morning, his leg pain had escalated, so I called the clinic and they had me bring him in. Luckily, Nana and Poppy were at our house that morning, so they brought us, and Eddie met us at the hospital later on. The doctor sent us for a CT scan, she wanted to see if the tumor had grown. She read the scan immediately, and it appeared to be about the same, little if any change. This past Tuesday, we went back to Vanderbilt for an MRI on his pelvic area. The MRI was, more or less, just to give the surgeons another view of the tumor, as they plan the removal of it. We then went to the clinic for chemo. He had blood drawn, and his counts were rock bottom, as expected. So, that day he got a platelet transfusion. We went back on Wednesday (yesterday), for a blood transfusion.

We have been trying to take advantage of these gorgeous days by going to the park quite a bit. Today, he and I took a blanket and just relaxed in the sunshine. Tuesday afternoon, Connor got to do something really cool. One of his Fireman buddies, Mike, had invited him to come by the Fire Station where he works. Connor actually got to sit in the back of the tower truck with Mike, and he helped him drive the back of the truck. I was in the front, so I couldn't see Connor, but he had a blast. Thank you, Mike and the rest of the guys, for making Connor's day!

We still do not have a definite date for Connor's surgery. As soon as I know, I'll post it on here. The 3 surgeons involved are supposed to be meeting this week to map out a game plan. We haven't heard anything yet. Connor is still scheduled for admission on Tuesday, providing his counts come back up by then. This will be his five day stay at Vanderbilt. After his counts recover from that round of chemo, surgery will be scheduled.

Thank you so much to everyone who has called, emailed, signed Connor's guestbook, brought food, sent cards and gifts, and most of all, PRAYED. We are so grateful to have such a wonderful support system. Believe me, no kind deed goes un-noticed. We may not be able to get back with you right away, but please know that we are so thankful for each and every one of you! Please continue to pray for Connor, we are trusting in God for a complete and total healing. Please also pray for relief from the constant leg pain. We have been told that it is probably being caused by the location of the tumor. It is most likely sitting on the nerve endings going to Connor's legs. Of course, the Vincristine (chemo) just adds to the problem. He is on strong pain medication, but he still hurts day and night.




Please also say a prayer for our Country, our President and his advisors, and most of all, our Armed Forces. Yes, we are at war, like it or not. So now, we hope for a speedy resolution, with little bloodshed. I also pray for the loved ones of all those deployed, that God will grant them peace and hope in the days ahead. God Bless America!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I leave you peace; my peace I give you.
I do not give it to you as the world does.
So do not let your hearts be troubled or afraid.

John 14:27

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I hope you all have a wonderful weekend. We are living by the "One Day At A Time" rule, that is all we can do at the present time. Thank you for everything, especially the prayers.........................


We love you all!
~~Rhonda, Eddie and Connor, our "Bravest Little Trooper!"





Tuesday, March 11, 2003 8:50 AM CST

Hello everyone, thanks for checking in. Connor was in the hospital from Thursday evening until Sunday evening. He did receive his first round of chemo. The first two drugs are drugs that he had throughout his first battle, the third drug was new to him. Friday was a tough day, with the nausea and vomiting. Saturday and Sunday were much better. But, he never once complained, he truly is SOOOO brave. He had lots of visitors, that really helped lift his spirits. Thank you to ALL OF YOU who visited, and thank you to everyone who called to check on him. Most of all, thank you ALL so much for the prayers. I have heard some very touching stories over the past few days of the different prayers going up for Connor from all over the world. It is very heart-warming to know that SO MANY CARE SO MUCH! God DOES hear and answer prayer, that is the Truth that we cling to right now......

************************************************************
From 'Healing Prayer' by Reginald Cherry, M.D.

God has invited us to pray about all our needs, anything that concerns us. He has given us Faith to believe for answers to our prayers. He has made it abundantly clear that it is His will to heal us. AND He has promised that our praying WILL get results. Jesus said, "Ask, and it shall be given you; Seek, and ye shall find; Knock, and it shall be opened unto you; for everyone that asketh, receiveth; and he that seeketh, findeth; and to him that knocketh, it shall be opened." (Matthew 7:7-8 KJV)

Prayer should be our first recourse, not our last resort. How do we pray for healing? Specifically instead of generally. Speak to the mountain of disease when you pray. Command it to be gone. We have this authority as believers. When you pray, be bold and assertive. Don't be apologetic or timid. Nothing is too great or small to bring to God. As we seek and follow God's pathway, we see healing that can't be explained by medical science.

************************************************************

We started back on the Neupogen shots last night. Connor, once again, was so courageous. He never questioned, he just sat there quietly and let me administer it. It actually nauseated ME to have to do it.

Tomorrow, Wednesday, we go into the clinic for outpatient chemo. His counts will probably drop dramatically by this weekend. Next Tuesday, the 18th, he will go in again for outpatient chemo. His next scheduled hospital stay is Tuesday, March 25. That will be a five day stay for a different regimen of chemo that he has never had before. Then, after his counts recover from that, the surgery will be scheduled, after CT scans are done again.

The clock is ticking closer and closer to surgery. We need that miracle, more than ever. The complete determination, as to surgery, has not been made yet. That will probably happen this week or early next week. It looks as though surgery will be around the second week in April. I will update as I get more info.

THANK YOU SO MUCH FOR ALL OF THE EMAILS AND GUESTBOOK ENTRIES. I truly wish that I had time to respond personally to each and every one of you. I am trying to spend as little time as possible on the computer, and AS MUCH TIME AS POSSIBLE WITH CONNOR. I know you all understand. But, we really appreciate the support, it really helps us. Please continue to pray. We love you all!!!!!

Love, hugs, and tons of prayers!
~~Rhonda, Eddie, and Connor, our "Bravest Little Trooper!"


Wednesday, March 5, 2003 10:42 AM CST

********UPDATE SINCE THIS ENTRY******** (MARCH 6, 2003--2:10 p.m.) CONNOR IS WAITING TO BE ADMITTED RIGHT NOW. WE ARE IN THE CLINIC. WE WILL BE HERE UNTIL PROBABLY SUNDAY. THANK YOU FOR THE PRAYERS!


Hello to all of our dear family and friends. Thanks for checking in on Connor. Just thought I'd give a quick update on yesterday and Connor's surgery. He came through it just fine. They did not keep him overnight, so he is resting here this morning. Dr. Brock did a biopsy and scoped his urethra. They also put in a Hickman catheter into his chest, and did a bone marrow test. We were told that the tumor is in a very difficult place to get to. The surgery to remove it will be "very major and radical". His urethra will most likely have to come out, and possibly his rectum and part of his pelvic bone. That is not for certain yet, though. We were floored with this latest info, naturally. BUT, God can work miracles, and that is what we are praying for. Connor will have one round of chemo, to see if the tumor responds at all, then we will wait for his counts to fall and then rebound. After that, the surgery will take place, probably in three to four weeks. We had alot of people come out to the hospital yesterday to sit with us and pray with us. Thank you ALL so very much, your support was very much needed and appreciated. Thank you, also to all of you who emailed or called to check on Connor. And especially, THANK YOU ALL FOR THE PRAYERS! If you want to know if you can do anything, my reply would most definitely be -- PRAY, PRAY, and PRAY SOME MORE!

************************************************************
Exerpt from 'Hope For Each Day' by Billy Graham

Power for Problems

~~~~~~I can do all things through Christ who strengthens me.
Philippians 4:13~~~~~~

A friend told me of a non-believer who came to him in the midst of a troubled day. Knowing my friend was a Christian, the man asked, "If I become a Christian, will all of my problems go away?"

"No," said my friend, "but you will have the power to deal with them."

God will give us wisdom and courage. He will surround us with brothers and sisters in Christ to help carry our burdens, and even provide us with insight and practical assistance.

Satan will always try to discourage those who belong to Christ. When problems persist, he may even whisper, "See, God doesn't care about you!" But with the Holy Spirit's help, we can combat the evil one and contradict his lies.

If God dismissed all our problems with a single stroke, we would be left defenseless, unequipped to meet the inevitable attacks of the enemy of our souls. BUT IN THE MIDST OF LIFE'S PROBLEMS, GOD SUPPLIES EVERYTHING WE NEED TO SEE US THROUGH.
************************************************************

Yes, will make it through this, with God's help. We also know that the support of all of you will be a major source of comfort for us. Thank you for signing Connor's guestbook to encourage him. He really, really needs it. He is discouraged right now, to say the least. He wants to know, "Why?", and I don't know how to answer that, looking into the pained eyes of an innocent 8 year old child. Please continue to pray for us, and please understand if I can't answer all of the emails, we really do appreciate them all, but right now, I have to devote my time to Connor and getting him better. I'll update again as soon as I know something more. Thanks again!

We love you all!!

~~Rhonda, Eddie, and Connor, our "Bravest Little Trooper!"




Friday, February 28, 2003 4:29 PM CST

It is very difficult to think of what to say in this update, so I'll just say it.....Connor has relapsed. We are completely devastated and in utter shock. We just found out yesterday. He had been having pains in his right leg for about a month. We took him in last week for a bone scan, and they ruled out bone cancer because that scan was clear. Then, on Tuesday of this week, he had his regularly scheduled CT scans of his chest, abdomen and pelvis, plus an MRI on his leg. Both showed the same thing, the tumor is back in the same area as before. We met with the Oncologist and the Urologist today. This coming Tuesday, Connor will have surgery to insert a Hickman catheter into his chest for meds and drawing blood. At the same time, the Urologist will go in and biopsy the tumor and look around to see what exactly they need to do. They will also check his bone marrow while he is sedated to make sure it has not gotten into the marrow. He will be admitted into Vanderbilt that day. After that, a treatment plan will be devised, depending on what the biopsy shows. We were told to expect another year of treatment. When Connor was first diagnosed, his survival rate was 80%. With this relapse, the survival rate drops to 25%. BUT, we beat it once, we WILL beat it again, there is NO OTHER OPTION. So now we ask you, beg you for prayers, prayers, and more prayers. Pray for a miracle for Connor. Pray for God to give Eddie and myself the strength to be able to be positive for Connor. He HAS to stay positive so that he can beat this. God is ultimately in control, not survival rates. We just have to look to Him for everything. We will take this ONE DAY AT A TIME, as we have done from the beginning. Thank you all for checking in. I'm so sorry to have to tell you this. We appreciate all of the support and prayers. Thank you for everyone who has signed Connor's guestbook. He really needs the encouragement. He also has a stomach virus w/vomiting and diarrhea, AND strepthroat. Please pray.............................

God bless us all!
Peace, love and hugs,
~~Rhonda, Eddie and Connor, our "Brave Little Trooper"


Sunday, January 26, 2003 at 06:58 PM (CST)

Hi there family and friends---thanks for checking in! We have had SNOW a couple of times over the past week and a half. The first one was beautiful, about 7 inches, which is unusual for Tennessee. It COMPLETELY snarled traffic up all over the area. School was in session that morning when it started, and even though they immediately closed it, the snow had already accumulated quite a bit. It took me three hours to get Connor and get home, what would usually take about 20 minutes. Eddie was on the other side of Nashville, in Brentwood. That would normally take him about 40 minutes, it took him SIX AND A HALF HOURS! Bless his heart, he was so sick of being stopped on the interstate that he got out of his car and built a snowman on top of the car. That was on Thursday, January 16, so school was out the next day, on Friday, as well. Then Monday, the 19th, was the Martin Luther King, Jr. holiday. Tuesday, school was two hours late. Wednesday, on time and all day. Then Wednesday night, more snow, so no school on Thursday and Friday AGAIN! Wow, the kids are lovin' it! Frankly, I really enjoyed the first snow, but I'm ready for it to stop. We got out in the snow and went sledding and had snowball fights. That was the most snow that Connor had ever seen. It was a blast!

Needless to say, the Chamber of Commerce banquet has been postponed. We haven't gotten notification of the re-scheduled date yet. The suit they supplied him looks FABULOUS! We will make lots of pictures, AND figure out how to get them on this site.

Other than the snow, we really don't have alot of news this time. It has been too bitterly cold to really get out and do alot. So, we have just enjoyed our "family time". I know you all get tired of hearing me say this, but I hope I NEVER again take for granted each and every second of our "family time". I am SO THANKFUL that we are at this milestone with Connor's health. I hear of other children who have lost the cancer battle, but have received the ultimate reward for their brave fight. It tears my heart into tiny pieces when I think of what their parents, siblings, and extended family members are going through. I pray DAILY for God to give them strength to carry on with whatever plans He has for them on this earth. 'Lose a parent, lose your past; lose a child, lose your future'. I'm sorry to get on this subject, but it is so real and close to my heart with all we have been through. I think of it every day. I would like to ask for your prayers, for me, as Connor's Mommy, to continue to have the Faith that has carried us through this. Sometimes I allow the "what if's "to creep into my mind, as much as I don't want them to. I can't even imagine.......................

Well, the Superbowl is at Half-time right now. I'm sure most of you are watching it. I hope everyone has a wonderful week. Spend every possible moment with your loved ones. Drop all the housework for awhile, and spend 'fun-time' with your children. The memories you create now are the memories they will cherish for a long time to come. When times get hard, and the going gets almost too tough to handle, remember that God is always right by your side, ready for you to ask Him for His help. Turn your problems over to Him, it works, TRUST ME!


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
From 'Songs of Hope'--Exerpt entitled "The Source of Hope"

The song of the robin, the majesty of snow-covered mountain peaks, the lustrous beauty of a spring flower, and the predictable movement of the stars in the night sky are but a few of the wonders that point us to God, the Source of all Hope.

They are reminders that no circumstance--poverty, pain, sickness, loss, disappointment, grief, even the prospect of our own death--can steal our hope when it is safely anchored in God.

*******************
Father of All Hope, thank you for promising to never leave my side as I walk though the dark, confusing, lonely, and painful places in my life.

Thank you for your promise to replace my clouds of despair with the brilliant, penetrating light of Your everlasting love. Thank You for filling my heart with peace and my mind with wisdom and understanding.

Thank you for a voice with which to sing Your praises with my whole heart.

Amen.
*******************

I can lie down and go to sleep, and I will wake up again,
because the Lord gives me strength.

Psalm 3:5 NCV

*******************

It means the world to us that you are still checking in on Connor. We are so grateful to each and every one of you, more than I could ever possibly convey with words. Thank you so much for the continued encouragement you give us. Connor goes this coming Tuesday to the clinic for chest x-rays and blood work, please pray that all is well. His next scans are the last week in February. We trust that God will allow continued healing in his body, and the scans will be clear. We love you all, take care and peace to all!

~~Love and Hugs!
~~~Rhonda, Eddie and Connor, our "Brave Little Trooper"!


Sunday, January 26, 2003 at 06:58 PM (CST)

Hi there family and friends---thanks for checking in! We have had SNOW a couple of times over the past week and a half. The first one was beautiful, about 7 inches, which is unusual for Tennessee. It COMPLETELY snarled traffic up all over the area. School was in session that morning when it started, and even though they immediately closed it, the snow had already accumulated quite a bit. It took me three hours to get Connor and get home, what would usually take about 20 minutes. Eddie was on the other side of Nashville, in Brentwood. That would normally take him about 40 minutes, it took him SIX AND A HALF HOURS! Bless his heart, he was so sick of being stopped on the interstate that he got out of his car and built a snowman on top of the car. That was on Thursday, January 16, so school was out the next day, on Friday, as well. Then Monday, the 19th, was the Martin Luther King, Jr. holiday. Tuesday, school was two hours late. Wednesday, on time and all day. Then Wednesday night, more snow, so no school on Thursday and Friday AGAIN! Wow, the kids are lovin' it! Frankly, I really enjoyed the first snow, but I'm ready for it to stop. We got out in the snow and went sledding and had snowball fights. That was the most snow that Connor had ever seen. It was a blast!

Needless to say, the Chamber of Commerce banquet has been postponed. We haven't gotten notification of the re-scheduled date yet. The suit they supplied him looks FABULOUS! We will make lots of pictures, AND figure out how to get them on this site.

Other than the snow, we really don't have alot of news this time. It has been too bitterly cold to really get out and do alot. So, we have just enjoyed our "family time". I know you all get tired of hearing me say this, but I hope I NEVER again take for granted each and every second of our "family time". I am SO THANKFUL that we are at this milestone with Connor's health. I hear of other children who have lost the cancer battle, but have received the ultimate reward for their brave fight. It tears my heart into tiny pieces when I think of what their parents, siblings, and extended family members are going through. I pray DAILY for God to give them strength to carry on with whatever plans He has for them on this earth. 'Lose a parent, lose your past; lose a child, lose your future'. I'm sorry to get on this subject, but it is so real and close to my heart with all we have been through. I think of it every day. I would like to ask for your prayers, for me, as Connor's Mommy, to continue to have the Faith that has carried us through this. Sometimes I allow the "what if's "to creep into my mind, as much as I don't want them to. I can't even imagine.......................

Well, the Superbowl is at Half-time right now. I'm sure most of you are watching it. I hope everyone has a wonderful week. Spend every possible moment with your loved ones. Drop all the housework for awhile, and spend 'fun-time' with your children. The memories you create now are the memories they will cherish for a long time to come. When times get hard, and the going gets almost too tough to handle, remember that God is always right by your side, ready for you to ask Him for His help. Turn your problems over to Him, it works, TRUST ME!


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
From 'Songs of Hope'--Exerpt entitled "The Source of Hope"

The song of the robin, the majesty of snow-covered mountain peaks, the lustrous beauty of a spring flower, and the predictable movement of the stars in the night sky are but a few of the wonders that point us to God, the Source of all Hope.

They are reminders that no circumstance--poverty, pain, sickness, loss, disappointment, grief, even the prospect of our own death--can steal our hope when it is safely anchored in God.

*******************
Father of All Hope, thank you for promising to never leave my side as I walk though the dark, confusing, lonely, and painful places in my life.

Thank you for your promise to replace my clouds of despair with the brilliant, penetrating light of Your everlasting love. Thank You for filling my heart with peace and my mind with wisdom and understanding.

Thank you for a voice with which to sing Your praises with my whole heart.

Amen.
*******************

I can lie down and go to sleep, and I will wake up again,
because the Lord gives me strength.

Psalm 3:5 NCV

*******************

It means the world to us that you are still checking in on Connor. We are so grateful to each and every one of you, more than I could ever possibly convey with words. Thank you so much for the continued encouragement you give us. Connor goes this coming Tuesday to the clinic for chest x-rays and blood work, please pray that all is well. His next scans are the last week in February. We trust that God will allow continued healing in his body, and the scans will be clear. We love you all, take care and peace to all!

~~Love and Hugs!
~~~Rhonda, Eddie and Connor, our "Brave Little Trooper"!


Saturday, January 11, 2003 at 09:39 PM (CST)

Hello, friends and family, thank you for checking in on us! GO TITANS!! Yes, we have just come from Nana and Poppy's, where we watched the Titans beat the Steelers in the play-offs--34 to 31. Wow, what a close game! We are so proud of our Tennessee Titans. One more game next week, then the winner goes on to the Super Bowl on the 26th, like I said.....GO TITANS!!!!!

Okay, sorry I got a little off course, I'm still wound up from the game. I hope everyone had a safe and happy New Year! We heard back from Connor's chest x-rays from the 30th of December, ALL CLEAR! Yah! We give God all the glory for Connor's continued great reports! I could go on for days about the power of prayer and what it has meant to us! What a living, walking testimony Connor is to that! Believe it or not, he actually gets embarrassed when he hears me telling people of his treatment and subsequent healing. He doesn't want anyone knowing he had cancer, if they do not already know. I tell him that him BEATING cancer is something to be very proud of. Bless his heart, I know he just wants to erase the whole past year and try to pretend it never happened. Please pray for him, I know he has alot of pent-up feelings that he won't discuss about the entire ordeal. He has been through the ringer, that is for sure. These poor kids, they lose SO MUCH of their childhood, and know about so many adult issues that they shouldn't have to even think about.

Connor went back to school after a LONG Christmas break. They were out until January 7th. His teacher wrote me a note yesterday, bragging on Connor and how well he has done since he has been back. They wrote out their New Year Resolutions Wednesday. Connor's were.....Number 1. Clean his room (glory, glory, I'll be rejoicing when THAT happens!) Number 2. Work on handwriting (he is really trying harder) Number 3. Work harder. She said she has already seen improvement in only 4 days. WAY TO GO, CONNOR! He starts back with the Cub Scouts Monday night. I know he is excited about that. They haven't had a meeting in 3 or 4 weeks. It is so hard for me to believe it is January!

Connor will be participating in a Chamber of Commerce banquet this Thursday to honor the Goodlettsville Fire and Police Dept.'s. They are being honored for things they have done for the community this past year. They chose their "Connor project" as their honored service. They actually are furnishing Connor with a Fire Dept. Dress uniform just like the Firefighters, to wear to the banquet. We are so thankful for these guys, (and you, too, Brenda!) for all the help they have given to us over the past few months. They are very deserving of the recognition they will be receiving!

My job is going GREAT! I absolutely LOVE IT! The people I work with are wonderful. I just can't say enough great things about it. What a blessing it was for me to find it! Eddie finally got a route with Keebler. He has been waiting for quite some time for something to come available. He now, also, has a company car. We really have been blessed SO MUCH lately, the greatest blessing being, OF COURSE, Connor's healing. It really is bittersweet at times, though, when we hear of other children being diagnosed, or another family who has lost a child to the cancer monster. It seems so unfair. I know that as long as I live on THIS Earth, I will not be able to understand it. Yes, that will be one of the first questions I ask when I get to Heaven. I know, I know, I shouldn't question, but what parent in their right mind would NOT question why their child and other children have to suffer? I'm sorry, it just gets so frustrating sometimes. Every time we go to the clinic, it seems like there is a whole new set of kids and parents there who have just been diagnosed. They are still in that "zombie-state" of horror and disbelief that the word "cancer" is ever being uttered about their child. Oh, how I remember the day we first heard that word. It is the most unforgettable, unbelievable feeling that a parent could ever experience. THANK GOD we have come so far in this journey!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Don't worry about anything; instead, pray about everything! Tell God what you need, and thank Him for all He has done. If you do this, you will experience God's peace, which is far more wonderful than the human mind can understand. His peace will guard your hearts and minds as you live in Christ Jesus. And this same God who takes care of me will supply all your needs from His glorious riches, which have been given to us in Christ Jesus.

Philippians 4:6-7. 19

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I hope you all have a wonderful week. Thank you so much for continuing to encourage us. No, our journey with this is far from over, but we take everything ONE DAY AT A TIME! We are so thankful for each and every one of you. I can't imagine where we would possibly be today if it weren't for everyone who has been there for us. We DO need your continued prayers. Thank you in advance! We love you all!!!! Take care and peace to all!

Love and hugs,
Rhonda, Eddie and Connor, our brave little "Trooper"!!


Tuesday, December 31, 2002 at 09:29 PM (CST)

Hi everyone, and HAPPY NEW YEAR!! Thanks for checking in! Wow, the last day of 2002, what a year it has been! This time, last year, we were only a couple of months into Connor's treatment, with many months still ahead. We are SO THANKFUL that this New Year brings Connor's good health and healing. Our prayer is that he stay CANCER-FREE forever! We hear so many stories of relapses, but we have faith that that will NOT be the case with Connor. PLease continue to pray for him, and his health.

The past month has been so very busy, as I'm sure it has been for everyone. What a whirlwind Christmas was this year. It seems as though we were at home only to sleep. I'm looking forward to the "busy-ness" tapering off, and things getting back to normal, whatever that may be.

Connor had scans on December 3, which came back cancer-free, THANK YOU GOD! He will have them again on February 25, we scheduled it today. He went to the clinic today for his regular monthly check-up and chest x-rays. We saw our good buddies, Hannah and Kim. I despise the reason we met them, but I am so thankful that we did meet them, they are wonderful friends, WE LOVE YOU GUYS!! Connor has had a bit of a cold, and not much of an appetite for several days now. Dr. Shankar didn't seem concerned, as long as he is not losing weight, which, so far, he isn't. We should hear back from the x-ray in a couple of days.

On Dec. 11, we, along with about 40 people, were treated to a ride on the General Jackson showboat by Eddie's Uncle Harold and Aunt Linda, to celebrate Eddie's grandmother, "Nannie"'s, 90th birthday. What a night it was. Nannie was completely surprised and overwhelmed by it all. She is a remarkable, beautiful, poised and classy Christian lady. It was so fun to share in her "Special Day"!

Connor got to ride in the Goodlettsville Christmas parade with the rest of his cub scout troop on Dec. 14. I went with my Mom to her company Christmas party on the same night, but I know he really enjoyed the parade, although it was FREEZING outside.

On Dec. 20, we were treated to the Linda Davis Family Christmas show at the Gaylord Resort (used to be Opryland Hotel). Vanderbilt Hospital's Radiology Dept., specifically Debbie Vandegrift (thank you Debbie!), arranged it all. We got to sit right in the front at Linda Davis' special table, as her "Guests". She came out after the show for a meet and greet. We all loved it and had a fabulous time.

Santa Claus came to the Hunley household, as expected. Connor got lots of cool things, although when you ask him what all he got, he draws a blank. He even got a big box via UPS from his special Christmas elves from Hugs and Hope, the Rech family from Pittsburgh. They sent him a ton of gifts, and it was all stuff that he loves and was wishing for! Thank you so much, Courtney, Steve and Kelly, for your thoughtfulness and generosity! Also, a special thank-you to the Goodlettsville Fire Dept., my Mom, and my cousin, Jennifer, for helping make this Christmas special, we love you all and we are SO THANKFUL!

Yes, we are at home tonight, it is raining here, and I think home is the safest place to be on a rainy New Year's Eve. Too many crazy people on the roads tonight. Our wish for you all is for the best year EVER in 2003. May you all enjoy good health, lots of quality family time, and happy days, each and every day! Make sure your family and friends know how much you care about them, don't ever put off telling them, tomorrow is certainly not guaranteed, today may be your only chance. You can never say "I love you" too much, or give too many hugs. Each day is so precious, enjoy it to the fullest, don't waste a second!

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The Lord is my light and my salvation; Whom shall I fear? The Lord is the strength of my life; Of whom shall I be aafraid?

Psalm 27:1

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Happy New Year, one and all, may Peace and Happiness prevail in your lives! We love you all!

~~Rhonda, Eddie and Connor, our "Brave Little Trooper"!!


Saturday, December 21, 2002 at 09:37 AM (CST)

Hi everyone, another story for you today...........
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Two Babes In A Manger
(Author Unknown)

--Prelude: In 1994, two Americans answered an invitation from the Russian Department of Education to teach morals and ethics (based on biblical principles) in the public schools. They were invited to teach in prisons, businesses, the fire and police departments, and a large orphanage. About one hundred boys and girls who had been abandoned, abused, and left in the care of a government-run program were in the orphanage. They relate the following story in their own words..............................

It was nearing the holiday season, 1994. Time for our orphans to hear, for the first time ever, the traditional story of Mary and Joseph arriving in Bethlehem. Finding no room in the inn, the couple went to a stable, where the baby Jesus was born and placed in a manger. Throughout the story, the children and orphanage staff sat in amazement as they listened. Some sat on the edge of their stools, trying to grasp every word.

Completing the story, we gave the children three small pieces of cardboard to make a crude manger. Each child was given a small paper square, cut from yellow napkins I had brought with me. No colored paper was available in the city. Following the instructions, the children tore the paper and carefully laid strips in the manger for straw. Small squares of flannel, cut from a worn-out nightgown an American lady had thrown out as she left Russia, were used for the baby's blankets. A doll-like baby was cut from tan felt we had brought from the United States. The orphans were busy assembling their mangers as I walked among them to see if anyone needed any help. All went well until I got to one table where little Misha sat. He looked to be about six years old and had finished his project.

As I looked at the little boy's manger, I was startled to see not one, but two babies in the manger. Quickly, I called for the translator to ask the lad why there were two babies in the manger. Crossing his arms in front of him and looking at the completed manger scene, the child began to repeat the story very seriously. For such a young child, who had heard the story only once, he related the happenings very accurately, until he came to the part where Mary put the baby Jesus in the manger.

Then Misha started to ad-lib. He made up his own ending to the story as he said, "And when Mary laid the baby in the manger, Jesus looked at me and asked me if I had a place to stay. I told him I have no mamma and I have no papa, so I don't have any place to stay. Then Jesus told me I could stay with Him. But I told Him I couldn't, because I didn't have a gift to give Him like everybody else did. But I wanted to stay with Jesus so much, so I thought about what I had that maybe I could use for a gift. I thought maybe if I kept Him warm, that would be a good gift. So I asked Jesus, 'If I keep you warm, will that be a good enough gift?'

"And Jesus told me, 'If you keep me warm, that will be the best gift anybody ever gave Me.' So I got in the manger, and then Jesus looked at me and He told me that I could stay with Him--for always."

As little Misha finished his story, his eyes brimmed full of tears that splashed down his little cheeks. Putting his hand over his face, his head dropped to the table and his shoulders shook as he sobbed and sobbed. The little orphan had found someone who would NEVER abandon or abuse him, someone who could stay with him--FOR ALWAYS!
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That story really touched my heart....my hope is that it did the same for you!

Merry Christmas everyone! Try to put the commercialism aside and concentrate on family and the Reason for the Season. Be sure to read the story of Christ's birth to your little ones: Luke 2:1-21.

We love you all, thanks for your support and for checking in!

Peace to all.............~~Rhonda, Eddie and Connor, our "Brave Little Trooper!"


Thursday, December 19, 2002 at 02:05 PM (CST)

Hi everyone! I'm sorry it has been so long since an update. I'm going to do something a little different today. I'm going to put in a Christmas story from a book entitled, 'Chicken Soup for the Soul--Christmas Treasury for Kids'. I will update on Connor and everything that has been going on in a few days. Everything HAS been going great. It is just that HECTIC time of the year. Merry Christmas everyone!
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AN UNLIKELY ANGEL

It was just before Christmas. An angry, middle-aged man stood at the counter of the animal shelter, gripping the leash of an aging German shepherd. "Why won't you take him?", he shouted. "I need to get him off my hands!"

The adoption counselor tried once more to explain. "At fourteen, Samson is too old to be a good adoption candidate," she said.

"Well, then, just take him and put him down," the man yelled. "I want to be rid of him!"

"We don't take animals just to put them down," the counselor explained. "May I ask why you no longer wish to keep the dog?"

"I just can't stand the sight of him," the man hissed, "and if you won't put him down, I will do it myself!"

Trying not to show her horror, the counselor pointed out that destroying an animal was illegal. She urged the man to consult with his veterinarian for other options.

"I'm not spending any more money on this animal," the man grumbled, and, yanking the leash, stalked out.

Concerned, the counselor wrote down the license plate of the man's truck and offered up a prayer for Samson.

A few days later, a German shepherd was found abandoned. He was brought to the shelter and recognized as Samson. The owner was contacted by the police, and admitted that, distraught over his divorce, he had chosen to take revenge through Samson. He was charged with abandonment.

The wife and couple's son lived in Pennsylvania. They were contacted and were horrified to hear of Samson's plight. The only problem was, they had absolutely NO money to go and retrieve Samson from the shelter in New Hampshire. The staff assured her they would come up with something. In the meantime, he was becoming depressed and moping around, missing his family.

Christmas was only two weeks away when an Angel arrived at the shelter. Through a friend of a staff member, he had heard of Samson's plight. He was willing to drive Samson to Pennsylvania to be reunited with his family.

The staff was a bit leary of his intentions until he explained why he wanted to do this good deed. It seems that the year before, he left his beloved dog in his van while he went to do his grocery shopping. While he was inside, the van caught fire. By the time he came out, the van was fully engulfed in flames. He ran towards the burning van, but was stopped by onlookers. They proceeded to tell him that his dog was safe! A stranger had seen what was happening, and had risked his life to rescue the dog from the van. The dog's owner vowed then and there that if he ever had a chance to rescue someone's pet, he would certainly do so.

A few days later, Samson and his Angel were on their way. The dog seemed to know he was going home, because his ears perked up and his eyes were brighter than they had been in some time.

Just before Christmas, the mail brought one of the best cards the shelter had ever received. Along with a thank-you note were photos of a deliriously happy Samson romping with his family in the snow and snuggling with them by their Christmas tree. Samson was truly where he belonged, and the staff knew he would live out his days happily there.

They also know Samson's journey home was a true Christmas miracle, and that Angels--and heroes--may still appear when you need them, even in the most unlikely forms.

--Submitted by Crystal Ward Kent
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I'll update soon, but please take a moment to reflect on the REASON FOR THE SEASON. Take extra measures to do something extra nice each day for some unsuspecting soul. Enjoy the magic of the Christmas season, and embrace those loved ones who are so close to your heart. Wow, what a gift to be happy AND HEALTHY at Christmastime!

We love you all!
Happy holidays and HO HO HO!!!

~~~Rhonda, Eddie and Connor, our "Brave Little Trooper"!!




Saturday, November 23, 2002 at 05:14 PM (CST)

Hello, everyone! Thanks for checking in. My, my, how busy we seem to be lately. I'm sorry it has been so long since I have updated. I know there are those of you who check often for updates, and we are so apppreciative that you all care so much!

I'll pick up where I left off. CONNOR'S EIGHTH BIRTHDAY! As most of you know, Connor's birthday is actually on Halloween. That day, I surprised Connor at lunchtime with cupcakes and cookies. He was embarrassed at first, but then he was excited because all of his classmates enjoyed it so much. That evening, we met up with Aunt Tammy, Uncle Shelton, Ragan and Victoria, and went to Moss Wright Park to trick-or-treat. Alot of businesses in Goodlettsville set up booths along the walking trail for a "safe" night of trick-or-treating. It was the first time we had been there, and the kids really seemed to enjoy it. At the end of the booths, they were having hayrides, so we all hopped on a wagon full of hay and rode around the fields behind the park. We all really enjoyed the night. Connor didn't have to go to school the following day, I think it was teacher inservice, so he got to sleep in after a busy birthday. A big THANK YOU to everyone for all of the wonderful gifts that you brought or sent to COnnor for his birthday! I am still trying to get out thank-you's. He tore into some of the packages so fast and furious, I hope I don't miss anyone, but we appreciate them all!!

The following Sunday, Nana and Poppy had a birthday party for Connor at their house. I had asked Connor a couple of weeks prior to his birthday where he wanted to have a party this year, and he didn't even think about it, "NANA AND POPPY'S!!!" So that is what we did. It was small, mostly just family, but boy, did they decorate and make it really special! Thank you, Nana and Poppy, you are the BEST!!! Connor actually got a Red Ryder BB Gun from them, with the understanding that it stays at their house, (they live out in the country), AND that he never uses it without an adult with him. He was so proud of it. He practiced all afternoon with his balloons and cans.

Tuesday, November 5, was clinic day. We got down there around 8:30 and were there until 12:30. He had blood drawn for the first time without his port. Nurse Kelly was oh so gentle with him. It wasn't nearly as bad as he thought it was going to be. We then had to go over to the hospital for the chest x-rays. That took FOREVER. Then back to the clinic for the bloodwork results. His counts were all good. A couple of days after that, we found out that the x-rays were also good, PRAISE GOD! That is always music to our ears. Connor wanted to go back to school after leaving down there, so he got back around 1:00.

That evening, I started training to work part-time at Dillards. I worked that evening and the next evening (Wednesday). I had also sent a resume to a church that is about 10 to 15 minutes from Connor's school. They called and wanted me to come in on that Thursday for an interview. The interview went well, and they called me later in the day and asked me to come in to work on Wednesday, the 13th. That night, after my interview, I went back into Dillards to work. I worked that weekend, and talked with the lady who had hired me. I told her about the other job, but that I wanted to work a two week's notice, in case I ever wanted to come back for the extra hours. She was so nice about it.

I know I'm bouncing back and forth on the days, so please bear with me. On Saturday, we went to a birthday party for a friend of Connor's, Hannah Greene. She also just finished up treatment not long ago and is doing great. Her party was held at Gilda's Club, (named for Gilda Radnor). Connor had a really good time at the party. We then went out to visit with Tracy and all of the horses of AngelHeart Farms. She has changed locations, and is now in Franklin. She has a couple of new additions to her horse family. One of them is Buddy, a miniature horse. He is the cutest thing! We had a great time at the barn. I even got to hang out in the barn loft with the cat. I haven't been in a barn loft since I was little.

On Sunday, November 10, Eddie and Connor went to the Titan's game. They were invited by Vanderbilt and they got to sit in a suite, owned by a business who graciously donated it that Sunday for the kids. They had a really good time. Some of the Titan's cheerleaders came up to say Hi, and Kix Brooks of Brooks and Dunn also came in to see them.

I started my new job on the 13th, as planned. The people there are GREAT! I absolutely, positively LOVE IT! We start the day off with a devotional and prayer. I work from 8:30 to 2:30, so I am able to continue to take Connor to and from school. That was of the utmost importance to me in my job search. I truly feel as though God led me straight to this job. I had prayed and prayed for the perfect one to come along, and I do believe I have found it. I am on a 60 day trial basis right now. I just know everything will work out. I am a Ministry Assistant Secretary and I even have my own little office, WITH A WINDOW!

Well, Thanksgiving is upon us. It would take me forever to list everything that I have to be thankful for this year. But, I bet you can all guess my #1 reason...................
Yes, Connor's good health. God is so good, he proves that to us every day. I pray for continued good health for Connor, and a long, happy Christian life. I am very thankful for Eddie, he often doesn't get the recognition he deserves, but he is such a wonderful husband and great Daddy to Connor. During our tumultuous past year, he is the one who had to continue to try to function and go to work everyday, with the strain of what was happening with Connor on his mind 24/7. Thank you, God for giving me such a wonderful husband and life-mate. I also thank God everyday for my Mom. My Mom is my best friend. I don't know where I would be or what I would do without her. She has been right by my side throughout this, trying to support me, when inside, her own heart was breaking, not only for her Grandson, but also for her daughter. I've said it before, and I'll say it again, she has been my rock. Mom, I love you more that I could possibly ever tell you, just please always remember that. Then of course, the rest of our family. We are so thankful for all of the support and encouragement you have given throughout this year. I am also thankful for all of our friends, both old and new. We have made some wonderful new friends as a result of Connor's illness. People like Christian, who I know I could call in the middle of the night and she would meet me just to let me cry on her shoulder. She has been a God-send to us. Then all of my on-line friends, I couldn't possibly name you all, but please know that I love each and everyone of you! I am thankful to all of you who have touched Connor's life in such a big way with gifts, cards, and words of encouragement. Yes, I have tons to be thankful for this year.

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Oh, that men would give thanks to the Lord for His goodness, and for His wonderful works to the children of men!

Psalm 107:8

Praise the Lord! Oh, give thanks to the Lord, for He is good! For His mercy endures forever.

Psalm 106:1


Rejoice always, pray without ceasing, in everything give thanks; for this is the will of God in Christ Jesus for you.

1 Thessalonians 5:16-18

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Our prayer is that each and every person reading this, has a wonderful Thanksgiving. Enjoy the day for what it is, a day set aside to give thanks, not for material possessions, which are SO unimportant, but for the love, health and safety of your family, friends and loved ones. Most of all, give thanks for God, that we all have Him to go to in prayer for our EVERY need, nothing is too big for God.

Thank you all for checking in. Thank you all for being a vital part of our lives, we are so grateful. A special thank-you to Cheryl Myers. She and her friends embroidered and quilted Connor a beautiful quilt, with cats as the theme, which he received today. No, we have never met Cheryl, but she is another of the Earth-Angels that God has sent our way.

Happy Thanksgiving, everyone! We love you all! Peace to all, and may God bless us all!

Love and hugs,
~~Rhonda, Eddie and Connor, our "Brave Little Trooper"!!!!


Wednesday, October 30, 2002 at 04:40 AM (CST)

Hi everyone! Thanks so much for checking in. I hope and pray everyone is doing great and enjoying these beautiful Fall days. Well, time for an update on the Hunley household. Things have been going well, praise God! Connor has not had any further pain in his legs, thank God! So we have not had any more visits to the doctor since my last update. His next scheduled appointment is this next Tuesday, Nov. 5. He may have blood work, but will definitely have chest x-rays. His next CT and bone scans should be around the first week in December. I can't believe November is almost here! What a mind-boggling, whirlwind year 2002 has been for us.

Since my last update, Connor has joined the Cub Scouts. He is actually a Tiger Cub, since he is in first grade. We tried the baseball thing when he was four and five, and his interest in that kind of faded. It actually got comical toward the end of his second year of playing. He would sit down in the outfield, and we were constantly having to yell out there for him to get up and pay attention. Then, his coaches decided to make him hind-catcher. Now, that was an experience. Of course, he was only five, with all of that equipment on. The ball would come back to his vicinity, and he would casually sashay over to get it, as if he were in slow motion chasing a snail. We did actually make him finish out the season, much to his dismay. Eddie and I really enjoyed it, but I don't think it was one of Connor's favorite things in the whole wide world. Anyway, back to Cub Scouts. He is loving it so far. We visited their camp weekend before last, and he was very impressed. It rained that day, so we didn't camp out. This Saturday night, one of the Dad's is hosting a cookout/bonfire, so we are looking forward to that. Scouting has changed alot over the years, and they encourage total family participation. Eddie is actually Asst. Den Leader of Connor's pack.

Sunday, October 20, Connor and I went with Nana, Grandma and Aunt Sherry to Louisville to see Sylvia, our cousin that has been diagnosed with breast cancer. She has moved back in with Aunt Margot for treatment. Her spirits are high. She has a very positive attitude, she knows that God is in control, whatever the outcome. She is not quite sure yet of her exact prognosis. She had a port put in yesterday. It had been a long time since we had been up there, Connor was actually only probably two years old. We really enjoyed our visit. Please keep Sylvia in your prayers, as she is beginning her battle against this dreaded monster.

This past week, Eddie was on vacation. Thursday, October 24, we took Connor out of school at lunch time for a little weekend get-a-way. Let me brag on the Goodlettsville Fire Dept. A couple of weeks ago, they invited us to the Fire Station on a Monday night. They made Connor an Honorary Fireman, and presented him with a couple of personalized shirts and a certificate. They then presented us with a check to take Connor on his end-of-treatment "wish trip". He wanted to go to Dollywood in Pigeon Forge. What an amazing group of caring people! So, we took off Thursday afternoon, and stayed through Sunday. We had a fabulous time! We went to Dollywood on Friday, and spent the day. It started raining mid-afternoon, but we didn't care. Just about everyone there bought ponchos, so there was a sea of yellow and orange wandering around. We rode the coal-powered steam engine up into the hills, Connor loves that. Saturday, we drove up into Gatlinburg. Our first stop, of course, was "Cooter's Place" from the Dukes of Hazzard, Connor's favorite show of all time. Cooter (aka Ben Jones) has a "garage" type museum in Gatlinburg that just opened this year. The General Lee was in there, as was a direct descendent of "Flash", Roscoe's dog that always rode in the patrol car with him. The wonderful lady working there let Connor sit in the General Lee, and even blow the horn. Connor was on cloud nine! It was difficult to get him out of there. We then drove up into the mountains. We stopped several times at vantage points to view the gorgeous fall colors. There is nothing more beautiful. Kind of a masterpiece of God. We collected several different colors and varieties if leaves to take home with us. Of course, during our visit, Connor and Eddie had to do the "guy thing", and ride the go-carts. They love it! We had a great time. THANK YOU, THANK YOU, THANK YOU to the Goodlettsville Fire Department for making this happen, there is no possible way we could have gone without your help!

Monday night was Cub Scout meeting time. We ironed the leaves we collected inside wax paper, to take and show the troop. No, I'm not usually so creative, I guess I just had a moment from my childhood come over me, and thought to do the little project. All of Connor's little friends seemed impressed with all of the different leaves "straight" from the mountains.

Yesterday, Tuesday, Connor had a field trip to the Belle Meade Plantation. I have been taking him to school and picking him up, so he was excited about riding a school bus, bless his heart. When I picked him up, he started telling me all about the history of the Plantation and all the dates, and everything he had learned. I was so proud of him, he really paid attention! After school, we met our great friends, Christian and her children, Will and Caitlyn, at Circus World in Hendersonville. They wanted to do something special for Connor for his birthday, which is tomorrow, on Halloween. Christian had him choose where he wanted to go. We had yummy pizza, then the kids played a few games. We then bowled for an hour. We had a blast! Thank you so much, Christian, Caitlyn and Will for a wonderful evening!!!! We love you guys!

Well, as I mentioned, tomorrow Connor will turn 8 years old, WOW! Oh what a year his 7th year has been. Thank God, the worst is behind us now! He will be closely monitored, but it is our belief and Faith in God that he is going to stay healthy. You should see his hair coming back in. His color is great and he has gained a few pounds. A far cry from a year ago at this time. I cringe, literally, just thinking about it! We thank God everyday for the healing that has taken place in Connor! There is absolutely NO DOUBT in my mind that the Divine intervention of God is the reason Connor is healthy today! We pray daily for all of our friends still going through treatment, and for those families who have lost their precious angels to this monster. Before Connor's diagnosis, we had no idea, didn't even want to think about, how many families' lives are turned upside down-inside out by cancer. It is astounding, believe me. Just walk up the hallway on the fifth and sixth floor at Vanderbilt, you will see exactly what I am talking about. Noone with healthy children would ever want to even think about such a thing happening, but believe me, it DOES happen. 46 children are diagnosed EVERY SINGLE DAY. Ours just happened to be one of those 46. Please continue to pray for Connor's good health, and for all of the other children out there who are continuing the battle or who have completed treatment, that they can beat this disease. It is just plain 'ole NOT FAIR for anyone, especially innocent children, to have to go through such a thing!
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A Meditation on the 23rd Psalm--by: Emily Matthews

It is those times when the rainbow seems farthest away that we are closest to the Lord.....when we are once again reminded that His love IS the only way. It is those moments when we feel most alone that we hear His gentle voice whispering, "Take My hand, dear child, it's going to be okay." For only then does our troubled heart allow us to trust a humble Shepherd.
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Romans 8:16-18

THE SPIRIT HIMSELF BEARS WITNESS WITH OUR SPIRIT THAT WE ARE CHILDREN OF GOD.

AND IF CHILDREN, THEN HEIRS--HEIRS OF GOD AND JOINT HEIRS WITH CHRIST, IF INDEED WE SUFFER WITH HIM, THAT WE MAY ALSO BE GLORIFIED TOGETHER.

FOR I CONSIDER THAT THE SUFFERINGS OF THIS PRESENT TIME ARE NOT WORTHY TO BE COMPARED WITH THE GLORY WHICH SHALL BE REVEALED IN US.

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I want to thank each and every one of you for your continued support and encouragement. Where, oh where, would we be today if it were not for our family, friends and loved ones?!? The outpouring of love from you all has been like a shining light for us. We know there is no way we could ever repay everyone for their kindnesses, but please know that we have the utmost love and admiration for all of you. Please say a little prayer for Connor tomorrow on his birthday, or whenever you read this. Help us thank God for all He has done for Connor. We are so thankful to be celebrating another year of life in our precious child. Thank you, also, for all of the cards, gifts, money, thoughts and prayers that you have showered Connor with over the past year, and most recently, over the past couple of weeks preceding his birthday. His P.O. Box has been full everyday.

Thank you all for checking in. I hope you all have a wonderful rest of the week! Take care, peace to all, and May God bless us all!

We love you very much!
~~Rhonda, Eddie and Connor--our "Brave Little Trooper"!!!!!!


Wednesday, October 16, 2002 at 03:57 AM (CDT)

Hi everyone! SURPRISE....I'm finally updating! Wow, it seems the days just fly by now. Thank you all for checking in on Connor.

Connor had his port removal surgery, as planned, on September 30. Nana and Poppy came down to take us to the hospital. Connor was fine until JUST as they were taking him back. But, of course, he didn't remember anything when it was over with. Everything went smoothly. He is healing up nicely from that. It is so good to have that thing out. He is still pretty tender in that spot.

Tuesday, Oct. 1, was clinic day. It was also my birthday. Now do you really expect me to tell you how many? O.K., O.K., 33 years old. Once again, Nana and Poppy came down to take us to clinic. They also brought me a birthday cake, and homemade vegetable soup that Poppy made, yum, yum! Connor did not have to have blood drawn, as I had thought. Dr. Shankar said he wouldn't have to have counts EVERY month. They sent us down for chest x-rays, as rhabdo can come back in the lungs. He will be having the x-rays every month. We took the films back up to the clinic. Dr. Shankar read them immediately, and everything was ALL CLEAR! Praise God! That night, Eddie and Connor took me out to dinner to celebrate my birthday. We have LOTS to celebrate this year. All I could possibly ask for, I received with Connor's healing!

Connor has been doing very well in school. He loves it, has made lots of new friends, and he loves his teacher, Mrs. Resha. He has been making 100's every week on his weekly spelling tests. They have now started having math bee's every Tuesday, and last week, Connor won, which meant he got to keep a special trophy on his desk all week. He also was one of the two Reading Award winners for the month of September. We read 66 books at home during the month. So, another trophy adorned his desk for that honor. He got all A's on his report card for the first six weeks. He got one S- in P.E.--apparently he has given a "little" attitude to his P.E. teacher a couple of times, mostly with facial expressions. What? Surely not OUR Connor, Attitude?? Yes, I'm being sarcastic. We see that side of Connor quite often here at home. But we did have a serious talk about it, he knows how he is expected to behave at school. Hopefully, this six weeks will be better in P.E.

Connor went to the dentist last week for the first time since he was diagnosed. He could not go AT ALL throughout treatment, for risk of infection. He has three small cavities. The first appt. we could get to have them filled is the first week in December. He has asked me lots of questions about what will be done. I think he is looking forward to the "laughing gas" alot more than the actual fillings.

Yes, I am continuing my job search. Eddie is going to put me out on the street, if I don't find something soon. I have a couple of good prospects that I should know about by the end of this week. I have been out searching each and every day.

Over this past weekend, we went to a birthday party/family reunion for Poppy's mother/Nanny. Connor played really hard with all of the kids there. We then went to Nana and Poppy's house, where he rode his bike for a while. Sunday, he rode some more at home. Sunday was Nana and Poppy's anniversary. (HAPPY ANNIVERSARY...WE LOVE YOU!!) They stopped by for a little while. By Sunday night, Connor started complaining of pain in his upper leg/groin area. By Tuesday morning, it was worse, and he was walking with a limp. I took him to school, then came home and called the clinic. They said we needed to bring him in. Eddie came home and we picked him up from school and headed down there. The pain had subsided, Dr. Shankar checked him out. She poked and prodded, and he didn't complain at all. She said that we did the right thing, but she thought it was nothing more than a pulled muscle from all of the bike riding he did over the weekend. THANK GOD! She said if the problem persists, she will order an MRI, just to see what is going on.

This is what it is going to be like from now on. We don't want to panic every time Connor has an ache or pain, but we can't afford to ignore it AT ALL. There is no way to know how long his cancer had been there before it was found, but they do know that rhabdomyosarcoma is a very fast-growing cancer. This is where we have to rely on our Faith in God and put all of our trust in Him, and in Connor's doctors. Thank goodness, he will be having scans and x-rays often. Dr. Shankar said there is a possibility that this pain is resulting from the after-effects of radiation. We know that bone growth will probably be affected, we just didn't expect it to be this soon, which it very well may not be. Connor still is going to have a lot to deal with over the next several years, as a result of the "C" word. That is why we WILL live each day to the fullest and not take one day for granted. Our main prayer right now is for the cancer NEVER to return. That is a big fear, as they told us in radiation that radiation itself can cause a different form of cancer to return in the area where treatment is given. BUT, God is in control, so that is where we have to put our faith and trust.

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REJOICE IN THE LORD ALWAYS.....DO NOT BE ANXIOUS ABOUT ANYTHING, BUT IN EVERYTHING, BY PRAYER AND PETITION, WITH THANKSGIVING, PRESENT YOUR REQUESTS TO GOD. AND THE PEACE OF GOD, WHICH TRANSCENDS ALL UNDERSTANDING, WILL GUARD YOUR HEARTS AND YOUR MINDS IN CHRIST JESUS.

Phillippians 4:4,6-7

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Please say a prayer for a cousin of mine, Sylvia, who lives in Louisville. She just found out that she has breast cancer, and is starting treatment immediately. Breast cancer affects SO many families. This month is National Breast Cancer Awareness Month, if you see people wearing the pink ribbons, that is what they are for. The gold ribbons are the Childhood cancer awareness ribbons. Please also pray for all of those innocent children still going through treatment, there are lots more of them than anyone of us could possibly imagine, just take a walk down the hall on the fifth or sixth floor at Vanderbilt, talk about a reality check! God bless all of those families who have lost their little ones to cancer, and there are new Angels all the time, fortunate for Heaven, unfortunate for those left here to grieve.

Thank you all for taking the time to check in. We are so fortunate to have such a large suppport system. I don't know how we could have made it through this past year without ALL of you. This past Saturday, October 12, was exactly one year since we heard Connor's name in the same sentence as the word cancer. At that moment, our entire world came crashing down, and the breath was knocked completely out of us. I cringe just thinking about what it was like in the beginning, trying to come to terms with his diagnosis. I can barely even stand to think about all he has gone through over the course of the past year. But, PRAISE GOD, he did it! We are so proud of Connor. No one, especially a child, should ever have to go through all of that. Yes, I still believe that cancer is SO UNFAIR! I hate it, that is all there is to it. But we trudge on, one day at a time. Thank you for the cards you continue to send Connor. Sally Petty, thank you so much for your card creations. She makes Connor the sweetest and most imaginative cards, and sends them to him weekly, as she has done throughout treatment. We appreciate ALL of you for all you have done for us, and for Connor. We will never forget how wonderful everyone has been to us when we have needed it the most!

Have a great week, everyone...may you see the love and glory around you, in everything you do. Don't forget to carve that pumpkin. Of course, Halloween is OUR favorite, as it is Connor's birthday. He will be 8 years old on October 31! My, my, my, how he is growing up! Take care, peace to all, and May God bless us all!

We love you!~~Rhonda, Eddie and Connor, our "Brave Little Trooper!"


Wednesday, September 25, 2002 at 03:54 PM (CDT)

Hi Everyone!!! Thanks for your patience in an update and thanks for checking in. I have been having computer problems for the past week. I couldn't get to the web page at all for a while, and couldn't receive or send emails. It seems as though it was a problem with Comcast, I'm not sure what, but hopefully now it is resolved. I'll try to update as best as I can, from memory.

September 11, thank God, was a peaceful day for us all. There was a big build-up as to what might happen that day. When I took Connor to school that morning, I stayed there because they had a special program outside right after school started. It was wonderful to see all of the little children, all in their groups, honoring their Country and their Freedom. It was a great day for reflection. We all have SO much to be thankful for!

Sunday, September 15, was mine and Eddie's 12th anniversary. The night before, Connor spent the night with Nana and Poppy so that Eddie and I could go out to dinner and celebrate. We had a great time. On Sunday, there was a write-up in the Tennessean by Henry Piarrot. He did a beautiful job on it. I hope everyone has had a chance to read it. If not, you can go to tennessean.com and look under editorials for Henry Piarrot and see the article.

Wednesday, September 18th, Connor and I got to school an hour early to participate in 'See You at the Pole'. It was a chance to come together with other parents, students, teachers and administration to pray for our children and their school. We were so fortunate to be able to do this. I thank God that Connor has a Christian principal and leader at his school, Ms. Anne Alexander. She has been wonderful to us throughout Connor's illness. I wish that we could have more "prayer before school". It is really upsetting to think that so many people are trying SO hard to put a stop to prayer and even the mention of God's name.

Saturday, Sept. 21st, we started our day at the Nashville Zoo. Vanderbilt's Oncology department had a Pediatric Cancer Survivor's Day at the zoo. As soon as we got there, Connor was whisked away by the wonderful Amy Seitz, former child-life specialist at Vanderbilt. Amy was with us from the beginning, and just recently left Vanderbilt to work directly with the American Cancer Society. It was SO great to see her. Eddie and I attended a "class" for parents. It was very informative. There was a child psychiatrist who described all the stages the children go through with treatment and beyond. He then answered questions. We learned alot from him. We then had a question/answer forum with a doctor and nurses. After that we were reunited with our children for lunch. We saw many of our friends, Brandee Green , her Mom, and Hannah and Felicity. We also saw Connor's buddy, Caleb Little with his Mom, Dad, and brother Cameron. The kids were all so excited to be seeing each other. It was great to see everyone, and to see all of the children looking SO wonderful.

Now on to Saturday evening. Our wonderful friend, Christian, her Mom, Jewel, children Caitlyn and Will and sister, Nicole, hosted a fabulous "end of treatment/celebration of life" party for Connor. It was held in Hendersonville at Jewel's beautiful home. Friends and family came to help us celebrate Connor being "CANCER FREE!~!". It was a great party, with even better company. Thank you so very much, Christian and family, for the party. What a wonderful thing for you to do for Connor and for us. Thank you to all of you who took time out of your weekend to come celebrate with us. Q-Bert was even there! She was quite popular with everyone. Little Gracen Woods was also there. She is six years old and completed treatment 2 months before Connor. She actually had rhabdomyosarcoma also, same as Connor and even in the same general area. We are so thankful for her clean bill of health, as well. I can't possibly name everyone who was present, but we do thank each and every one of you for attending. It was a very special night! Thank you, God, for Connor's good health!

After the party, Connor went home with Nana to spend the night. A super-nice lady Mom works with, Penny, had given us tickets for the Titans game on Sunday. Eddie and I went. The game was going well, so it seemed, and we left in the fourth quarter, with the Titans leading the Cleveland Browns, 28-14. By the time we got home, Cleveland had scored two touchdowns, which resulted in a tie. In overtime, they scored a field-goal which resulted in the Brown's winning the game. Just goes to show, it's never over 'til it's over. But we did enjoy the game, none-the-less. Thanks, Penny, for the tickets!

Connor will be having surgery on Monday, September 30, at Vanderbilt. It will be to remove his port-a-cath from his chest. YAH!!!!!!! He will be so glad to get it out. Then Tuesday, we will be at the clinic for bloodwork and chest x-rays. Please say a prayer for him, that all goes well next week for him. He is nervous about the surgery, but knows he will be asleep for it.

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AND HOPE DOES NOT DISAPPOINT US, BECAUSE GOD HAS POURED OUT HIS LOVE INTO OUR HEARTS BY THE HOLY SPIRIT, WHOM HE HAS GIVEN US.

Romans 5:5

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Enjoy the crisp Fall mornings, I know we are! Don't you just LOVE this time of year?!? Cherish each day that has passed and all of it's many memories that have been made. Do not take ONE single day with your loved ones for granted. Be thankful for all that you have, and I don't mean material possessions. Our loved ones should know how much they mean to us. Remind them often!

Thank you all so very much for checking in! Have a wonderful week and weekend! Take care, peace to all, and May God bless us all!

We Love You!~~Rhonda, Eddie and Connor--our "Brave Little Trooper!"


Tuesday, September 10, 2002 at 10:33 AM (CDT)

***September is Childhood Cancer Awareness Month***

HI there everyone!! In case you don't know already,

~~~~~~CONNOR IS CANCER-FREE!!!~~~~~~

He had his scans last week, and they were all good. He is officially in remission from this dreaded monster. Praise God!! Oh, thank you, thank you, thank you for all of the prayers that have been sent up for him. God does hear, and answers prayers! Connor is living proof of that! Yes, the doctors play a huge part in this, but God gives them the knowledge to know what to do and how to do it. We are so thankful to all of the staff at Vanderbilt for all they have done for Connor, and for us, as well. Of course, Connor will continue to be monitored. He will go in once a month for blood work and chest x-rays. Then every three months, he will have scans. Chances of a relapse are greatly reduced after two years with no recurrence. Then after five years, he will be considered completely cured. So, as you can see, we are not completely finished yet. Please continue to keep him in your prayers, for the cancer to never rear it's ugly head again.

Connor had a good week at school last week. As a matter of fact, the day of his scans, we didn't leave Vanderbilt until almost 1:00, and he insisted on going to school. He was there for an hour and a half and then the school day was over. We're so proud of him! He has gotten all good reports, and has made 100's on his spelling tests each week. He has made lots of new friends, but still gets to see some of his old friends in the cafeteria. He comes out smiling every afternoon.

Connor's program taped at AngelHeart Farms aired last Thursday night, and then again Sunday morning. He did soooo good, as did Tracy. For those of you who might not know, Tracy is the founder of AngelHeart. She looked beautiful, and Connor was so very handsome. Thank you, Channel 8 and Tennessee Crossroads for giving this exposure to Tracy and her program at the farm.

Friday evening, we had an interview with Henry Piarrot, a free-lance writer for the Tennessean. The article that he is writing on Connor will be in this Sunday's paper (Sept. 15). It will be in the local news section. For those of you who live out of state, it will be available online at tennessean.com. Connor didn't have alot to say, he was being bashful. Henry was wonderful, very down-to-earth. He made us feel at ease.

We told Connor we would take him anywhere he wanted to eat Friday night to celebrate. He wanted to go to Shogun in Cool Springs. So that is what we did. He loves it, because they cook right in front of you. They even came out and played a celebratory song on some type of drum, and sang to him. We had a great time. After that, we headed to Cheval. Tracy hooked us up with tickets again, since we were sick before and missed it. Thank you Tracy!!!! We really enjoyed the show. It is simply amazing what the horses were trained to do, and the performers, WOW!!

Saturday night, we were treated to a night at the Grand 'Ole Opry by Nana. It was Nana, Grandma, Connor, Eddie and myself. They were having a "birthday party" for George Jones that night. He performed, along with Alan Jackson, Lee Ann Womack, Kenny Chesney, and various Opry regulars. We really enjoyed the show. THANK YOU NANA!!!

I hope everyone takes time out tomorrow, Sept. 11, to remember all those who gave their lives last year in the terrorist attacks. Wow, what a year it has been. We have actually had our own "Sept. 11", in addition to the one the nation had. Please remember all of the fallen heroes of that day, as well. Many gave their lives, unselfishly, trying to save others. Thank God for the freedom that we have in this great country of ours! Say a prayer for our Armed Forces. We will be praying for my brother, Chad, who's in the Navy. We love you, Chad, and are so proud of you!!!

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BE JOYFUL ALWAYS; PRAY CONTINUALLY; GIVE THANKS IN ALL CIRCUMSTANCES, PRAY CONTINUALLY, FOR THIS IS GOD'S WILL FOR YOU IN CHRIST JESUS.

1 Thessalonians 5:16-18
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Yes, it is true, sometimes we have no control over circumstances, but there is never a time when we cannot go to our God in prayer. He is always, always there, ready to listen. Praise God for answering our prayers!

Take time to reflect tomorrow on all that God has given you. Enjoy the time you have with your family and friends. We love you all! Take care, peace to all, and May God bless us all!!

Love and hugs,
~~Rhonda, Eddie and Connor, "our bravest little Trooper!!"


Sunday, September 01, 2002 at 09:41 PM (CDT)

UPDATE:******SEPTEMBER 6******--PRAISE GOD, PRAISE GOD, PRAISE GOD, CONNOR'S SCANS ARE CLEAR!!!!!!! WOW, WE ARE SO VERY EXCITED! THANK YOU, THANK YOU, THANK YOU ALL SO MUCH FOR STORMIN' THE HEAVENS WITH PRAYERS FOR HIM. HE IS NOW "IN REMISSION"~~~YAH! YAH! YAH! I WILL UPDATE THE ENTIRE JOURNAL IN A COUPLE OF DAYS, BUT JUST HAD TO SHARE THAT WONDERFUL NEWS WITH YOU ALL! ~~RHONDA, OH SO PROUD TO BE KNOWN AS "CONNOR'S MOMMY"~~THE ABSOLUTE GREATEST JOY OF MY LIFE!


Hi everyone! Thanks for checking in. Can you believe it is September already?!? Before we know it, the stores will start playing Christmas music, YIKES! I apologize for the delay in updating the journal. I have been sick pretty much since the last update. I got some of what Connor had, then lost my voice for a couple of days. I think it is now FINALLY starting to subside. This is the sickest I have been in quite some time. Connor, thank goodness, is fine now, just a little cough remaining.

He missed 2 days of school the week before last. He went back on that Friday. He really missed not being there while he was at home. I am so glad he has adjusted so well to school. Thank you all so much for the prayers. He really likes it, and has made lots of new friends. He has had 2 spelling tests so far, and he made 100's on both of them....YAH!!!! His teacher, Mrs. Resha, is awesome. He thinks the world of her. I have been taking him to school each day and picking him up in the afternoon. There is no greater feeling than waiting patiently in the car, then see him come out with his backpack on, smiling from ear to ear. He then tells me about his day each day. Of course, no classroom would be complete without the "bully". Connor's class is no exception. But Connor seems to handle it well. He has had several run-ins with this little boy, but has stood his ground each time without resorting to hitting. So far, so good. The little boy has kicked him a couple of times. I really worry about Connor's port. It is a round little metal device that was surgically inserted under the skin of his upper right chest. All of his chemo would go into it, and blood could be drawn out of it. Hopefully, very soon, it can be removed. It is always tender, and I worry that someone will hit it. It does protrude from his chest a little.

There hasn't been alot of activity in the Hunley household since I have been sick. We haven't been doing alot of "running around". Connor spent the night with Nana and Poppy last weekend. He had a blast, as always. I took the opportunity to rest up. So far, Eddie has remained healthy. Thank goodness! I have started my "job search". I really wanted to work at Connor's school, doing anything. But right now, they do not have any openings. So, I am searching for something in the Goodlettsville area, preferably school hours. Please say a prayer for me, for the right thing to come along. I certainly would appreciate it!

Today, we went to Nana and Poppy's. We had a great day, and a terrific lunch, thanks for the fried catfish, Poppy! On the way back, we stopped at the funeral home. A dear friend of my Aunt Ann's, Mr. Glenn Hodges, passed away Friday night. He just found out about a month ago that he had cancer. He was a fine man, well-liked by everyone. He left behind two children, Brandon and Christy, please also say a prayer for them, and for Ann, to help them with their grieving.

I hope everyone has a most enjoyable Labor Day. Spend time with your family. It doesn't have to cost anything to have fun. Just count your many blessings, and tell your loved ones just that.....that you LOVE THEM!! Don't wait until later, there may not be a "later". We are coming up on my favorite season, FALL! It is reminiscent of days past. Football games, pep rally's, playing in the leaves, crisp evening air, leaves changing color, getting ready for Halloween. Wow, I can hardly wait!

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It Takes the Bitter and the Sweet to Make a Life Complete

Life is a mixture of sunshine and rain,
Laughter and teardrops, pleasure and pain--
Low tides and high tides, mountains and plains,
Triumphs, defeats, losses and gains--
But always in all ways, God's guiding and leading,
And he alone knows the things we're most needing--
And when he sends sorrow or some dreaded affliction,
Be assured that it comes with God's kind benediction--
And if we accept it as a gift of His love,
We'll be showered with blessings from our Father above.

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...If you have Faith as small as a mustard seed, you will say to this mountain, 'Move from here to there', and it will move; Nothing will be impossible for you.

Matthew 17:20

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Thank you, all, for checking in. We truly, sincerely appreciate each one of you, and all of your support. Connor will be going this coming Tuesday, September 3, for his end-of-treatment scans. He will have a chest, abdomen, and pelvic CT scan, in addition to a bone scan. This is where I have to ask, beg of you to please pray for him. We are so very hopeful that all scans will be COMPLETELY CLEAR! We know that he has come so far in this battle, we just want him to be totally healed, and remain cancer-free forever. I can't and don't understand this terrible disease. It affects SO many families. Everyone knows someone who has had it or has it now. It is just so difficult to comprehend why a child goes through it. I'm sorry, but I can't help but question sometimes. I pray about it every day of my life. I trust in God completely. It's just that when it is happening to your child, and you have virtually NO CONTROL over it, you feel completely helpless. Oh, please, God, let Connor be healed!

Take care, peace to all, and God bless us all!

We love you!~~Rhonda, Eddie and Connor, our "brave little TROOPER!!"


Tuesday, August 20, 2002 at 04:58 PM (CDT)

Hi to all! Thank you for checking in! I left off Sunday night before last, so I'll start there. Monday morning was Connor's first day back at school. It was a half day. He woke up, eager and ready to go. I went in with him. His 1st grade teacher is Mrs. Resha. She welcomed him into the classroom and he found his new desk. I told him "bye" a hundred times or more. I'm not sure who had the harder time, me or him. I finally hugged him and forced myself out the door. I spoke to his principal, Mrs. Alexander, for a few minutes. She could see that I was trying to hold back some tears, and bless her heart, she told me I could hang out at the school if I wanted to. But, no, I had to do this, so I left. By the time I got to my car, the emotions came out. I had to call MY Mom. I'm such a big baby. I was so excited when 11:30 rolled around, and I could pick him up again. He came out, ALL SMILES, and hopped into the car. He started telling me all about everything. He had a couple of remarks about his bald head, and wearing a baseball cap, but he seemed to be fine. We then had to go to the clinic for counts. They were dropping, a little sooner than expected. Precious Nurse Kelly told Connor he would need to come in Tuesday for a blood transfusion. He was upset, he didn't want to miss the second day of school. I told him he could go for a couple of hours, and then I would pick him up. Monday afternoon, me met our DEAR friends, Christian, Will and Caitlyn at Chuck E. Cheese. The kids had a blast, and Christian and I were able to just relax and talk (and eat, of course!). Will is 5 years old--let me share what he did for Connor. The character dressed up as Chuck E. Cheese came up to our table to greet the kids. He immediately reached over and snatched Connor's cap off his head. I was kind of stunned and didn't really know how to react. Will stepped right up to Chuck E., and demanded, "Chuck E., you give Connor his hat back!" He was very upset with him. I couldn't believe it, here he was, FIVE YEARS OLD, and standing up for his buddy, Connor. It was the sweetest thing! Christian told me that she had been telling them that Connor was self-concious about his baldness, so Will knew that, and was taking up for him. Thanks, Will! We love you!

Tuesday morning, off to school again. Then, we went to the clinic. He got his transfusion. Wednesday was his first full day of school. He did great, just a little tired. We went to Vacation Bible School Wednesday night. School all day Thursday, then Friday, I picked him up at 1:30, to go back to the clinic for a count check. His platelets were very low, so he received a platelet transfusion. His neutrophils were in the negative range, YIKES! His white count was at 700, should be at least 4500. So, needless to say, he was rock-bottom on everything, and neutropenic as well. We were the last ones to leave the clinic Friday evening, and Connor was VERY TIRED. Saturday, we didn't even get dressed until almost noon. There was a pool and pizza party going on where we live, so we wandered down there. Connor was too tired to be out in the pool, or the sun, so we sat in the office/lounge area and had our pizza. Then we went to the Humane Society in Hendersonville, just for our regular visit with all of the cats. He and I both LOVE to go up there. All of the kittens are in one room, not in cages, so you can just go in there and sit in the floor and play with them all. Great therapy!

Sunday morning, we missed church, I just let him sleep in. We then went to Nana and Poppy's house and spent the day. She had fixed chicken and dumplin's, and a ton of other stuff. It came a great storm while we were there. I love a good storm, no, not violent storms, but a thunder crashing type of storm. We sat out on the carport and had watermelon. It was a good day, as it always is when we go up there.

Yesterday, Connor went to school. He had been showing symptoms of a cold for a few days, but he had not been running a fever, so he went. By the end of the school day, he was feeling pretty bad. His throat hurt, his nose was running, and he was coughing his little head off. He and I were up alot last night. He felt horrible. He started running a fever sometime during the night. We got ready this morning, and headed to the clinic. We took an overnight bag, in case he was admitted. Fortunately, his counts were all back up, so NO MORE NEUPOGEN SHOTS!!!!!!!!! I have been giving them to him every full round of chemo since the beginning, when he was diagnosed. He took them for 10 to 14 days each round. So, that amounts to 10 to 14 shots, then a week break before starting them again. He has done so well with them, I know they hurt like crazy. We are so thankful to not have to do that anymore. The doctor today said she thinks he just has a really bad sinus infection, so she prescribed an antibiotic. We are so glad to be at home. Providing he stops running a fever, hopefully he can be back at school on Thursday. We will just have to wait and see. His little nose is raw. I told him we could just pile up in bed, eat soup and watch T.V.

Thursday night, August 22, is Channel 2 night at Cheval, the Horse Show going on at Opryland Hotel. Two dollars of every ticket sold will go to AngelHeart Farm, where Connor goes and rides. If you have thought about going to Cheval, that would be the night to go! Tracy, AngelHeart founder, called us today, and has tickets for us, so we will be there. The commercial that Connor has been in is for the show that night. I heard that it is still airing, I haven't seen it in a while.

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ACCEPT IT: LIFE IS NOT FAIR!--by:Jim Gallery

At first glance, the statement, "Life is not fair," appears rather negative. But the acceptance of this truth turns negative into positive. When we stop asking, "Why me?" and focus on, "what now?", God begins His work.

The Apostle Paul wrote from a prison cell, "....I have learned to be content whatever the circumstances...." (Phil 4:11 NIV). Paul is not encouraging laziness or despair. He is admonishing his readers to accept their circumstances and then get about the business of living.

Whether the day you face is filled with problems or happiness, challenges or ease, the Psalmist is right, "This is the day the Lord has made, let us rejoice and be glad in it." (118:24 NIV) Robert Schuller says it well: "Life is not fair, but God is good." And since God can handle it, whatever "it" is, this is the day to move on. Yesterday is past, tomorrow is not guaranteed, today is a gift from God. Let's accept it, be thankful and enjoy it!

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We would like to express our continual gratitude to each and every one of you for the support and encouragement that never ceases. We are so fortunate, as a family, to have such a great circle of friends and family to constantly uplift and inspire us. Please keep those prayers a'comin' for Connor. After we get him over this sinus infection, our next BIG day is September 3, when he will go in for his scans.
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I WILL HEAL MY PEOPLE AND WILL LET THEM ENJOY ABUNDANT PEACE AND SECURITY.
Jeremiah 33:6

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Thank you all for taking the time to read Connor's update. I hope you all have a wonderful week. Embrace life each day--always try to look on the bright side, don't let adversity keep you from winning! Take care, peace to all, and God bless us all!

We love you!
~~Rhonda, Eddie and Connor, our "Brave little trooper!"


Sunday, August 11, 2002 at 08:43 PM (CDT)


UPDATE: TUESDAY, AUGUST 20---WE ARE HEADING FOR VANDERBILT THIS MORNING. CONNOR DEVELOPED A BAD COLD LATE LAST WEEK. LAST NIGHT, DURING THE NIGHT, HE SPIKED A FEVER. I WILL UPDATE THE PAGE AS SOON AS I GET A CHANCE, HE MAY BE ADMITTED, THAT IS THE USUAL PROTOCOL WITH A FEVER. PLEASE SAY A PRAYER FOR HIM TODAY. THANKS..........
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Hi everyone! Thanks for checking in! CONNOR HAS HAD HIS LAST CHEMO TREATMENT---AUGUST 6!!!!!! PRAISE GOD! I'll tell you more about it in a minute, let me backtrack a little...............

Last Sunday, August 4, was my Mom's birthday---don't worry Mom, I'm not telling your age! She and Poppy came down for lunch. I made spaghetti, and Connor and I made her a birthday cake. We had a really good time visiting with them, and I think Mom had a really good birthday!

Tuesday, Nana, Poppy and Chad came down to pick us up. Chad had to leave back out for Gulfport. We took him to the airport. Connor was pretty upset to see him go again. Then we headed to the hospital. We went to the clinic to wait for a hospital room and to get hooked up to fluids. Connor got into a room around 2:00. His chemo was started around 8:00. There was a mishap, (understatement), with the most potent chemo drug. The nurse was getting it ready to put on the I.V. pole, and the plug came out of the bag and it spilled onto the floor beside Connor's bed. He was actually asleep when it happened. It had to be treated somewhat like a chemical spill, because of the damage it can do if it comes into contact with skin. The cleanup took about an hour. Then more had to be ordered from the hospital pharmacy. The replacement came up around 10:00 pm. He was hooked up to that bag. The vomiting started at 11:30, continuing ALL NIGHT until 5:00 a.m. He finally was able to go to sleep. I got one hour of sleep, then the doctor came in just after 6:00 am and woke me up. Connor slept until around 12:00 noon. Sarah and Q-Bert came by to see him. Q-Bert was wearing one of her bandanas that Connor gave her, she looked so cute! Connor got sick again after they left. The doctor decided to keep him a few more hours to make sure he was not going to get dehydrated. We left the hospital around 6:00 pm.

The nausea continued into Wednesday. By Thursday, he was feeling quite a bit better. Christian, Will and Caitlyn stopped by Thursday afternoon. They brought Connor a big smiley face cookie. They are so thoughtful and sweet. Thursday night, we really went out on a limb and let Connor go to the drive-in with a life-long friend of mine, Christy, her husband, Chuck, their son, Tyler and daughter Daysia (sorry for the spelling). Connor did fine, and had a great time!

Friday, Connor and I headed for the hospital playroom. We were invited to a "Christmas" party to honor the Vanderbilt Christmas card fundraiser by the Friends of Vanderbilt Children's Hospital. Connor was one of four winning "artists", drawing pictures to be put on the cards this year! We are so proud of him, he did a great job on his picture. Hopefully, we can scan a copy and put it on here sometime in the future. Friday night, we went to the Opry Plaza concert, Billy Joe Shaver. We are HUGE fans of Billy Joe, he is a fantastic songwriter and musician. One of his songs that you might recognize is 'Old Chunk of Coal'. He made mention of Connor mid-way through the show. We had a great time. Connor took his guitar and had him sign it.

Yesterday, I woke up with some sort of a stomach virus, of which I am still dealing with at this minute. We did some back to school shopping, went by the horse barn, and went to a few yard sales.

Today, we did absolutely nothing but lay around at home. I haven't felt like doing anything. Hopefully tomorrow will be a better day. I know it will because it is........

~~~THE FIRST DAY OF SCHOOL!!~~

Connor is excited, but nervous, as well. He is so worried the children are going to make fun of his cute little bald head. I'm going to let him wear a cap. I'll talk with his Principal, I'm sure she will agree to let him wear one for the first few weeks, if he wants to, but then his hair should be coming back. Tomorrow is a half day, then Tuesday is the first full day. It is going to take some getting used to for Connor and myself, as well. He will go in tomorrow afternoon to the clinic for counts. He may miss a few days, until his counts rebound, but then, hopefully, everything can level out.

Wow, to think of ALL he has been through since last October.......... I can hardly stand to think about it. What a roller-coaster ride, one we are more than happy to get off of. Thank God for His healing power. Thanks to all of you for standing by our side during the darkest time in our lives. We are so thankful for all of the prayers that have been prayed in Connor's behalf. I honestly do not know how families get through something like this without God in their lives. I am crying as I write this, are they tears of anguish thinking about all he has been through, or tears of joy and relief to think that the worst is behind him? I know that so much of his childhood has been robbed of him by the cancer monster. I get so angry sometimes when I think of all he has had to endure at the tender age of 7 years of age. He knows more about medical things, pain and suffering, and sickness than most adults. I'm sorry I'm rambling.............

A poem by: Pamela Owens Renfro entitled--
BE STRONG AND DON'T GIVE UP

REMEMBER...THERE IS A DEEPER STRENGTH AND AN AMAZING ABUNDANCE OF PEACE AVAILABLE TO YOU. DRAW FROM THIS WELL: CALL ON YOUR FAITH TO UPHOLD YOU. LIFE CONTINUES AROUND US, EVEN WHEN OUR TROUBLES SEEM TO STOP TIME. THERE IS ALWAYS GOOD IN LIFE. TAKE A FEW MOMENTS TO DISTRACT YOURSELF FROM YOUR CONCERNS---LONG ENOUGH TO DRAW STRENGTH FROM A TREE OR TO FIND PLEASURE IN A BIRD'S SONG. RETURN A SMILE; REALIZE THAT LIFE IS A SERIES OF LEVELS, CYCLES OF UPS AND DOWNS--SOME EASY, SOME CHALLENGING. THROUGH IT ALL, WE LEARN: WE GROW STRONG IN FAITH; WE MATURE IN UNDERSTANDING. THE DIFFICULT TIMES ARE OFTEN THE BEST TEACHERS, AND THERE IS GOOD TO BE FOUND IN ALL SITUATIONS. REACH FOR THE GOOD. BE STRONG, AND DON'T GIVE UP.

Thank you all for all your support! May God Bless You All! Please continue to pray for Connor. He will have scans on September 3..............

Take care and have a great week!

We Love You All!~~Rhonda, Eddie and Connor, our "Brave Little Trooper!!"


Saturday, August 03, 2002 at 10:14 PM (CDT)

Hi there everyone! Thanks for checking in. Wow, I've really let this get behind this time, I'm so sorry. I actually have to look at our calendar to make sure I don't forget anything major from the past week and a half. When I last wrote, Connor's counts had plummeted. He got a blood transfusion AND a platelet transfusion, so that perked him up some. His white count was still very low. He started running a slight fever last Friday, but never enough to warrant a trip to the E.R., THANK YOU GOD!!

Last Saturday, we went to Nana and Poppy's. Of course, Chad is in from the Navy, so as soon as Connor hopped out of the car, he wrapped himself around Chad and I thought we were going to have to pry him off. He is absolutely crazy about Chad. Nana had cooked a delicious lunch, and we had a great day up there.

Sunday, we were afraid to get Connor out again, due to his white count and being neutrophenic, so we hung out at home. It has really been too hot to do anything outdoors.

Monday, we got to go to Christian's house. She had invited us up to do "whatever Connor wanted to do." So she and I got to talk some while Connor played with her children, Will and Kaitlyn. They went out to the pool, but didn't stay in very long. Swimming seems to always intensify the pain that Connor has sometimes. So then we ate lunch, then headed to the theater. The kids wanted to see the new 'Crocodile Hunter' movie, so that was what we saw. We enjoyed it, Connor thought it was awesome. Thanks, Christian, for a very relaxed and comfy kind of day.

Tuesday, we went back to the clinic to have Connor's counts checked again. Fortunately, everything was back up, so they told us we could stop the shots. Now that is always music to our ears! After we left there, we stopped by Music City Dodge, where I used to work. It was so nice to visit with everyone there. I worked there for almost eleven years up until the day Connor got sick. Tuesday evening, we dropped Connor off to stay with Grandmama. Tracy at Angelheart asked me to be on her Board of Director's, and we had our first meeting. Eddie sat in on the meeting too. We picked Connor back up, and he was in some major pain. I'm really concerned about this, as I've mentioned before. The internal radiation burns should be healed up by now, yet he still has intense pain down there. I've mentioned it several times to his doctors, but so far, nothing has really helped.

Friday, Connor and I went to a few garage sales. It was soooooo hot! Unbearably hot! Then Connor decided he wanted to spend the night with Nana and Poppy. I met Nana at Grandma's in Portland. Mom's sister, Sherry was there too. We sat around and visited for a while, then I got hugs and kisses from Connor and we went our separate ways. Eddie and I went to see the new Mel Gibson movie, 'Signs'. I really enjoyed it, at least the parts that I saw. Alot of the time, I had my hands covering my face. The movie is intense, scary! There were some people in front of us with really small children, I'm talking maybe four years old. The movie scared me to death! But I thought it was very good and thought-provoking~~Eddie didn't like it quite as much as I did.

Today, Eddie and I went down to the pool for a couple of hours. Tonight he looks like a lobster. I got ready this afternoon, went to pick up Connor, and we went to Mt. Moriah church outside of Portland to hear our favorite gospel group, The White Family. It was a great singing! They are AMAZING!!! As I've told you before, Connor enjoys it as much as I do. It is the only thing he will actually sit still for. He knows the words to most all of their songs, I love to watch him sing along, praising God!

Tomorrow, Sunday, August 4, is my Mom's birthday~~~~~Happy Birthday Mom, I Love You So Much!!! My Mom is such a special part of my life, she is the most wonderful Mpther in the world! She is coming down here tomorrow, so Connor and I are going to make her a birthday cake in the morning. Yikes!

Connor goes in this Tuesday, August 6, for....get this.....




*************HIS LAST CHEMO TREATMENT!!!!!!!!!!!!!*********

YAH! YAH! YAH! YAH! YAH! YAH! YAH! YAH! YAH! YAH!

Can you believe it??!!?? We are so excited! He will have his end-of-treatment scans and tests on September 3, please storm the Heavens with prayers for him. We are so thankful for all that God has done for him and us over this past year! I could write a book.....maybe someday I will, who knows? God is so good! He has calmed this storm that we have been up against.

Be joyful always; pray continually; give thanks in all circumstances.
1 Thessalonians 5:16,17

Thank you all for your constant encouragement. I don't know what we would do without it. Everyone can use encouragement and support in one way or another. Thanks to all of you who have taken the time to sign Connor's guestbook....he loves to hear the entries. You don't realize how just a few words can pep him right up. Thanks to the Hugs and Hope group for everything they have done and continue to do. What a great bunch of volunteers! They have been a huge source of support for me , as well, over the past 10 months. There is a link at the bottom of this page, check out the site if you haven't already.

Thanks again fro checking in, have a great day, take care and May God Bless Us All!

We Love You All!!~~Rhonda, Eddie and Connor, our brave little "Trooper!!"


Thursday, July 25, 2002 at 10:28 PM (CDT)

Hi there everyone! Thanks for checking in. Connor was admitted last Tuesday, as planned. He was feeling fine until the nurse came in with the chemo. As soon as he sees it, he starts getting very nervous. He actually fell asleep shortly after it was started. We were hoping and praying that he would just sleep right through it, but, no such luck. Eddie left at 9:00 that night to go home, and not even 5 minutes later, the vomiting started. It went on for several hours nonstop. Wednesday, he still felt really bad, but guess who came to cheer him up.......Q-Bert and her Mommy, Sara. For those of you who do not know, Q-Bert is the therapy dog in the picture with Connor on his photo page. Q-Bert always makes Connor feel so much better. We got home Wednesday evening from the hospital.

Saturday morning, Connor had recovered well enough to go to AngelHeart Farm. Joe Elmore from Channel 8 (Tennessee Crossroads) was there to do a story on the program. Connor got his microphone hooked up and away he went. Our buddy Hannah Greene and her family was also there for the taping. Hannah just had her last chemo. Yah!! The kids did great. Tracy made sure that Connor got to ride on the Gator with her to empty the horse p**p. Believe it or not, he loves that AND cleaning the stalls. Saturday night, we headed up to Tammy (Eddie's sister) and Shelton's house in Springfield. We had a cookout with them, Ragan, Victoria, and Grandmama. We had a really good time, and had some great food! Yum, Yum!

Sunday, after church, Eddie had to go in to work for a while, so Connor and I just hung out at home. Can you believe it??? I know, I know, we stay on the go alot. But when Connor is feeling good, we take every advantage to get out and enjoy the day. Life is too precious to waste even one day......

Tuesday, back to the clinic for counts. We thought Connor would also get chemo, but we found out that he skips the next 2 weeks in this cycle and the next. So that means, ONE MORE CHEMO!!!That will be an inpatient admission on August 6. We were so excited to hear that! Connor's counts had started dropping, so Nurse Kelly (sweetheart that she is!!) told us we'd better come back Thursday (today), just to be safe.

Wednesday night started Vacation Bible School at our church. It will be held for the next four Wednesday nights. We took our neighbor, Chelsea (8) with us. We finally got to meet our unseen wonderful friend, Christian. Christian has been sending Connor cards since shortly after he was diagnosed. She even drops off packages at our door, but we had never seen her. She and I have been in touch via email. It was so great to finally meet her last night! We love you Christian!

Today, we headed back to the clinic. Connors counts had plummeted, as expected. He received a blood transfusion, plus a platelet transfusion. His platelet count was 23,000, and should be at least 150,000. His white count is 200, and should be between 4,000 and 11,000. So he is neutrophenic, which means he is very susceptible to any and every germ out there, so we are pretty much housebound. I am still giving him his neupogen shots each night, so hopefully that will bring his white count back up.

The following is from a book entitled: 'God's Inspirational Promises' by Max Lucado.
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There is a window in your heart through which you can see God. Once upon a time, the window was clear. Your view of God was crisp. You could see God as vividly as you could see a gentle valley or hillside.

Then, suddenly, the window cracked. A pebble broke the window. A pebble of pain.

And suddenly, God was not so easy to see. The view that had been so crisp had changed. You were puzzled. God wouldn't allow something like this to happen, would He?

When you can't see Him, Trust Him....Jesus is closer than you have ever dreamed.
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Jesus said, "DO NOT LET YOUR HEARTS BE TROUBLED. TRUST IN GOD, AND TRUST IN ME."
John 14:1
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Thanks again for checking in. A special thank you to all of you from the Nascar and Tyler McGrath sites. We sincerely appreciate the encouragement you are sending our way. Tyler was a very special little boy in New York with Leukemia. He became an Angel this past Sunday, which was also his 9th birthday. We know that he is in Heaven now, but would you please say a prayer for his family. I can't even imagine what they must be going through. May God grant them peace.

I hope that everyone has a great weekend! My brother, Chad, is in from the Navy, so we are hoping to see him this weekend. Connor absolutely adores Chad, so he can't wait to hang out with him. Take time out to enjoy all of the simple delights in life. Learn the meaning of true happiness. It may not be what you have always thought it to be. Look inward and upward for true happiness. Don't forget, you can NEVER say I LOVE YOU too much! And one more thing while I'm on my soapbox.....I pledge allegiance to the flag.....one nation, under GOD.......with liberty and justice for all! Don't be afraid to tell others of what God has done for you in your life!

Peace to all and May God Bless Us All!!!

We Love You All!~~Rhonda, Eddie and Connor, our brave little "TROOPER!!"


Tuesday, July 16, 2002 at 07:59 AM (CDT)

Hi there everyone! Thanks for checking in. I meant to update last night, but fell asleep. Connor will be admitted into Vanderbilt today for chemo. He should only be there one night. Please say a prayer for this round to go well. Six more weeks of chemo! Wow!

I think I left off last Monday. Tuesday was a VERY BIG day for Connor. He and I had met a wonderful lady named Kathy a few weeks ago. She and I talked about Connor and his situation. It turned out that she knows Benji Olson, who plays for the Tennessee Titans. We had a call sometime after that from Benji's wife, Tracy. They invited us out to the Titan's training facility. They even sent a limo to pick us up Tuesday morning. We got there at 10:30. Benji, Tracy, and Bob (PR for the Titans), gave us a great tour of the entire facility. Connor got to meet some of the players. We got to go into the locker room, weight room, indoor practice field, and some of the offices, including Bud Adams'and Jeff Diamond's. They gave him a football, and tons of other cool stuff. We had a blast. Thank you, Benji and Tracy, for making Connor's dream come true!

Thursday, we went to visit with Paige, Sky, and Becky. Paige was in Connor's class last year. Sky is her sister and Becky is her Mom. Becky made a cookie bouquet for Connor shortly after he was diagnosed and they brought it to the hospital. She is a sweetheart. They had invited us over to swim. Connor got in the water for maybe 2 or 3 minutes and started hurting really bad. So we went inside for them to play. Connor had a great time. He thinks the world of Paige (SHHHHHHH!). Thank you, guys, for having us over and showing such hospitality! Thursday night, Grandmama came by and took Connor out for ice cream.

Friday, we went up to AngelHeart Farms. Tracy had some friends in town from Michigan, who wanted to meet Connor. We talked with them for a while, but Connor didn't feel like riding. So we hung out with Tracy and Anna for a while. I think he was scared he would get sick like last time, because of the heat. But that is O.K., we enjoy just being up there.

Saturday was my Grandma's ("Cass") birthday. Mom had planned a surprise cruise on the General Jackson. She has talked lately about wanting to go on the riverboat, but she had NO IDEA that is where we were heading. She and my Aunt Ann picked me and Connor up. She thought we were just going out to eat lunch. We were met there by Mom (Nana), her sister (Aunt)Sherry, Sherry's daughter Kyla and Kyla's boyfriend Donald. Grandma was so surprised. We had a wonderful cruise. We ate lunch and watched a show as soon as we boarded, then we were free to wander about the boat. Connor loved it, too. Hope you enjoyed your birthday, Grandma! Connor wanted to spend the night with Nana and Poppy, so after the cruise, he went on back home with Nana. Eddie and I had a night out Saturday night, and had a great time.

Sunday, I went up to Mom's around 1:00. My cousin Tabitha and her daughter Chelsea, met us there. We went to hear the White Family sing at a church close to Nana and Poppy's. They were absolutely wonderful, as always! We have become quite close to them. Connor and I listen to their CD's in the car all the time. As I have said before, if you live in this area, and you hear that they will be performing, you should go see them. I promise you will thoroughly enjoy it! When we got back to Nana's, Poppy had cooked a fabulous lunch for us. Umm, Umm good. He is such a great "chef"! Connor and Chelsea played for a while. Oh, by the way, Connor wanted me to tell you all that he and Poppy found a june-bug. They tied a string around it's leg, threw it up in the air, and watched it fly around. But he said to be sure and tell you that he let it go after that, and he never once hurt it, very important!

Connor is up this morning, he's been playing his Playstation. He asked me to PLEASE put in here that he wants everyone in the whole wide world to sign his guestbook. He loves for me to read him the entries. Thanks to all of you for continuing to send Connor cards to encourage him. We appreciate everything more than we could ever express to you.

It seems as though, the closer we get to the end of treatment, the more frightened Eddie and I get. There will always be a fear of relapse. I know, I know, think positive, but when you have been through what we have been through over the past year, you can't help but to think of what might happen. That's why we try to not think past today. We have tremendous Faith in God, but we need your prayers. Yesterday was "one of those days" for me, feeling very discouraged about everything. Connor was in alot of pain all day long.

This is my prayer, as Connor's Mommy:

Lord, when my heart is troubled, let me trust in You. When I become discouraged, let me depend upon You. When I lose Faith in this world, let me hold tightly to my faith in You. Remind me, Lord, that in every situation and in every season of life, You will love me and protect me and my family. You are my strength, Lord, and I need never lose hope because you remain the same today and forever. With You, Lord, nothing is impossible. Please let us expect the miraculous healing in Connor that we know you are capable of. Please restore his body to perfect health, and for it to remain in perfect health. Please help us in every aspect of our lives, spiritually, emotionally, physically, and financially. Please help us to remember that things will improve. Please bless all of our family and friends. Let them know what a blessing they are to us. Please forgive us our sins and help us to remain faithful to you. In Christ's name, AMEN.

I hope everyone has a great week. Live each day to the fullest, there is no guarantee on tomorrow. Take care, peace to all, and May God bless us all!

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NOONE HAS EVER SEEN GOD, BUT IF WE LOVE ONE ANOTHER, GOD LIVES IN US AND HIS LOVE IS MADE COMPLETE IN US.

1 John 4:12
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We love you all!~~Rhonda, Eddie, and Connor, our brave little "Trooper"!


Monday, July 08, 2002 at 09:43 PM (CDT)

Hello, our cherished family and friends! Thank you for your visit to Connor's page. It is always so encouraging to see that number rising, and reading all of the guestbook entries. I hope you all had a wonderful 4th of July! Wow, it has been so very hot here in Nashville.

Connor's commercial did start airing last Sunday. We don't have a schedule of times....I'm sorry! But we have been watching alot of Channel 2 over the past week. It seems to air between 6:30 and 8:45 in the morning, at various times throughout the day, then late in the night. Eddie caught it once around 1:30 a.m. Connor looks GREAT in the commercial. Tracy, at AngelHeart, gave us a tape of it, we are going to try to copy it. I wish everyone could see it. The article in last week's Tennessean was wonderful, telling all about ABC Auction and the things they have done for us, and especially for Connor.

We went into the clinic last Tuesday for chemo. Everything went well. Connor's counts had started dropping. We also got to talk with Amy Seitz, Child-Life Specialist. Amy has been with us since the very beginning, she has a heart of gold, and such a gift for working with the children and their families. Well, anyway, Amy is leaving Vanderbilt to take a position with the American Cancer Society. We know it is a great opportunity for her, but...gosh-darn, we are going to miss her smiling face so much. She assured us that she will be stopping by to visit. GOOD LUCK AMY!!! After we left the clinic, we went to Portland to see my Grandma Cass' (Cassie's) new apartment. We visited with her and Nana for a couple of hours. We had a really good time.....just hanging out. I know I've told you how wonderful my Mom (Nana) is, but my Grandma is awfully special, too. I love them both so very much.

Wednesday, we went up to AngelHeart in the morning to ride horses. Tracy was there, and helped Connor saddle up Cisco. Just before he was ready to ride, he got sick, all of a sudden, and started vomiting. Bless his heart, I guess it was just too hot. Tracy took us in their lounge/office and let Connor lie down and cool off. We just hung out in there with her for a while, then left for home. Tracy knows exactly what he is going through, and knows just what to do to help him.....she is an Angel!

Wednesday night, late, Connor had a long-overdue BM. It caused him to be in excruciating pain ALL NIGHT LONG. He is on a daily laxative, but still has problems, mostly due to the fact that he is so frightened it is going to hurt. He was screaming out in pain at times. I tried everything I could think of. He never slept a wink that night. He finally fell asleep sometime Thursday during the day. When he woke up, he felt a little better. We met Uncle Shelton, Aunt Tammy, Ragan and Victoria at Santa Fe's, then went to Moss Wright Park to watch the fireworks. They were fabulous. We really had a good time. Connor was in some pain, but at least it was controllable.

Friday, I had to go to the dentist for a filling. After we left there, we went to the clinic for counts. They had told me earlier in the week that it wouldn't be necessary, but Connor seemed more lethargic than usual. His counts were low, as I had expected, so he had a blood transfusion. We had to go to the Emergency Room to have it done, because it would not be complete before the clinic closed. Connor DOES NOT like the E.R. He has very unpleasant memories from back in the beginning of this nightmare.......catheters, needles, too many different people poking and prodding. Anyway, after getting the blood, he felt much better.

Sunday, we went to a cookout/pool party at some very good friends of our's house. Dale and Joann, we had a wonderful time. It was so relaxing and stress-free. They have a beautiful home, and they both are the most gracious host and hostess. It was truly like we were a member of the family. Eddie was special friends with their daughter, Mischelle, right out of high school. Mischelle passed away 2 and 1/2 years ago after a very brave battle with cancer. She was such a wonderful person. Everyone who knew her, loved her. She left two beautiful sons behind, Brett and Drew. She was only 29. I am so thankful that Dale and Joann have those two boys, so that Mischelle can live on in them. No finer person ever lived...............
We also got to meet some new friends, Scott, Joni and Katie, (ummm....that's Kaitlyn, as she is quick to tell you). They are neighbors of Dale and Joann's, and such nice, down-to-Earth people. Katie and Connor are the same age, and had a wonderful time playing together.

Today, Connor went into the clinic for chemo and counts. Fortunately, his counts had rebounded, so we can stop the Neupogen shots, that is always GREAT NEWS!! We got to see our buddies, Caleb Little and his Mommy, Debbie. It has been a while since we saw them. The boys were so excited to see each other. Caleb, you are looking so handsome! It was so good to see them, and to see Caleb doing so well! We also got to see Amy one more time, as this Friday is her last day at Vanderbilt.

Tonight, we went to Loco Lupe's in Hendersonville. As soon as we got there, a lady came up to Connor and introduced herself to him. She is a cancer survivor of three years. Her name is Pam, and she lives in Hendersonville. She and her husband, David, spoke with us for quite some time. They were SO EXTREMELY ENCOURAGING! What positive outlooks! I tell you, it is amazing how many wonderful people we meet through these most unfortunate circumstances. Pam, I'm gonna take you up on that offer to call you, you are an inspiration to me, and your Faith is contageous!


^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^ ^i^
TWO PEOPLE CAN ACCOMPLISH MORE THAN TWICE AS MUCH AS ONE; THEY GET A BETTER RETURN FOR THEIR LABOR. IF ONE PERSON FALLS, THE OTHER CAN REACH OUT TO HELP. BUT PEOPLE WHO ARE ALONE WHEN THEY FALL ARE IN REAL TROUBLE. AND ON A COLD NIGHT, TWO UNDER THE SAME BLANKET CAN GAIN WARMTH FROM EACH OTHER. BUT HOW CAN ONE BE WARM ALONE? A PERSON STANDING ALONE CAN BE ATTACKED AND DEFEATED, BUT TWO CAN STAND BACK-TO-BACK AND CONQUER.

Ecclesiastes 4:9-12 NLT
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Thank you, one and all, for taking the time to check in. We are so blessed. Please continue the prayers, we are so lucky to have you all! Enjoy your day, (or night), cherish each moment, don't sweat the small stuff. Remember, you can never say "I Love You" too much. Also, smile alot, you know it takes more facial muscles to frown than it does to smile. And smiling is contageous. Thank God for giving you another day, each and every day! Take care, peace to all, and May God Bless Us All!

We Love You!~~Rhonda, Eddie and Connor, our brave little "TROOPER!"


Sunday, June 30, 2002 at 06:09 PM (CDT)

Hi there, friends and family. Thanks for checking in on Connor. Can you believe tomorrow is July 1st. Half the year has passed by already! I hope everyone has a happy and safe Fourth of July. Be careful with those fireworks.

I last updated on Eddie's birthday. He and I rode the General Jackson riverboat that night. It is a "three hour tour" down the Cumberland into downtown Nashville. We enjoyed it thoroughly. The weather was beautiful. We had a great time and Connor really enjoyed spending the night with Nana and Poppy.

The next day, on Saturday, we went to ABC Auto Auction's company picnic. They have done so much for us since Connor was diagnosed. Connor and I were in there last week and they invited us to the picnic. It was held at a park on Old Hickory lake. We had a fantastic time. Connor and Eddie entered some of the contests like the three-legged race and the sack race. We all played BINGO, we didn't win but we had a blast. Thank you, ABC, for including us. We really did have a wonderful time.

Connor was admitted into the hospital on Tuesday for chemo. While in the clinic, we got to visit with our buddies, Kim and Hannah. Connor got into his room around 3:30 that afternoon. This round hit him really quick and really hard. He was up ALL night Tuesday night. He finally fell asleep around 5:00 am Wednesday morning. Sarah and Q-Bert came by around 11:00, and he was still sound asleep. They left and came back at 1:00. I woke Connor up then, to see them and to see if the vomiting was going to stop so that we could go home. Fortunately it did. I guess Q-Bert was the medicine he needed. Anyway, we were dismissed around 3:00 that afternoon. He actually never got sick any more, just a little nausea.

Thursday, I had to call for an emergency dental visit. I had a crown come out, plus an abcessed tooth. We had planned to have lunch with Jacque, our new friend from Hawaii, and her friend Dottie, from Hendersonville. We drove to the restaurant and I told them we couldn't stay because of the dentist appointment. They offered to let Connor stay with them, and he was all for it. So that is what we did, and they brought him by the dentist's office when they were finished. Jacque, Dottie and their husbands were SOOOOOOO very nice. We were so pleased to finally get to meet them and spend a little time with them. Jacque, I'm gonna take you up on that invitation to visit with you in Hawaii one of these days.

Thursday night, we went to Gallatin to attend a benefit concert for AngelHeart Farms. Lee Roy Parnell and Victor Mecyssne were the artists performing. We had a fabulous time and the concert was great! Connor had both of the guys sign his guitar. Eddie made an opening "speech" to tell a little about AngelHeart Farms and what it has meant to us. He did a wonderful job.

Friday night was another benefit for AngelHeart, held on Woodland Street in Nashville at the Radio Cafe. Anna Scala, one of the lovely volunteers from AngelHeart, was the artist performing. She writes and sings children's songs. The show is geared toward children, and Connor had a BLAST!!! Anna, you did a beautiful job, we were so glad to be a part of it. And to all you other parents out there reading this with children going through treatment, please, please email me for info about AngelHeart. Tracy would LOVE to have more children in the program. It's FREE, and the kids, (and parents too), will LOVE IT!

Saturday, we went to Lakewood ballpark to watch Connor's cousin, Ragan, and his team, the Braves, play in their baseball tournament. Connor used to play at the same park. He played two years in a row for the Mariners, then he got bored with it. Anyway, Ragan's team won their game, so then we went back at 6:00 Saturday evening to watch them play again. And again, they won. We had a great time at the park, it brought back a lot of good memories from when Connor played. After the game, Eddie and Connor both were wanting to go bowling, so we went. I sat this one out.....gimme a break, I was tired. If they had their way, we would NEVER be at home. Anyway, Eddie would kill me if I didn't tell you all that on the second game, he bowled a 205. He was on FIRE>>>>SMOKIN'!!!

Today, Connor and I went to Nana and Poppy's. Eddie had to work for a while. We had a delicious lunch, as always. Boy, can my Mom cook. I'm not sure what happened to me, obviously I don't take after her in that department. We just got home a little while ago.

Thanks again, for stoppin' by. I hope everyone has a fantastic week. Try to stay cool. Connor's commercial started airing today on local Channel 2. We will find out the times tomorrow, I think, so I will post them on here. Also, on Monday, July 1st, Connor and ABC Auction will be featured in an article in the Davidson AM, an insert in the Tennessean.

We are so thankful to all of you for all you do for us. We are so encouraged by the fact that so many of you still send Connor cards, and check his webpage. We are truly blessed to have so many caring, loving friends and family.
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GRACE AND PEACE TO YOU FROM GOD OUR FATHER AND FROM THE LORD JESUS CHRIST....I THANK MY GOD THROUGH JESUS CHRIST FOR ALL OF YOU.

Romans 1:7-8
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Take care, everyone, Peace to all and God Bless us all!

We love you! ~~Rhonda, Eddie and Connor, our brave little "Trooper!"


Friday, June 21, 2002 at 12:40 AM (CDT)

Hello, precious friends and family! I actually started this update two hours ago, and LOST everything that I typed in.....ughhhhhh! So, I'm going to try again. Forgive me for my typos, it is very late. Let me start out by giving you the scan results:
GREAT!!!!!

Nurse Connie called me this morning, and this is what she told me:
---Chest scan was clear (rhabdo sometimes froms in the lungs)

---No masses are present

---As for the previous tumor, "very minimal residual thickening" in the area (I'm going to discuss that further with Dr. Shankar on Tuesday...it may be from radiation??)

---A mass is no longer identifiable in the area of the previous mass.

YAH! YAH! YAH! YAH! YAH! YAH! YAH!

What wonderful news! A great big, HUGE THANK YOU to all of you for all of the prayers that you have sent up on Connor's behalf. Prayers ARE ANSWERED!!! Now ten more weeks of chemo, and hopefully,(prayerfully), we are DONE WITH TREATMENT!

AND ALL THINGS, WHATSOEVER YE SHALL ASK IN PRAYER, BELIEVING, YE SHALL RECEIVE.
Matthew 21:22

Today, Friday, is Eddie's birthday (shhh--'35'), so Connor will be spending the night with Nana and Poppy, so that I can take Eddie out. We celebrated his birthday with Connor on Thursday night, just a few short hours ago.

The past week has been another busy week. Yes, it is very hard to catch us at home. We need to SLOW DOWN! Last Friday, I took Connor in for counts, and, of course, he had to have a transfusion. We were at the clinic the biggest part of the day, but, fortunately for us, the Housley's (Donna and Joey) were there, so that helped to pass the time. They are so much fun. Connor tells me I laugh like a teenager when I'm talking with Donna. It seems as though we have known them forever. Joey will be going in this coming Monday for his scan and tests. Please say a prayer for him, that everything is great! Friday night, Connor and I met Tabitha, Chelsea, and Granny in Hendersonville to hear The White Family, yes, for the third time in a month and a half. But they are so uplifting, we can't get enough of them!

Saturday, we dropped in on Tracy at AngelHeart Farms. She asked Connor if he wanted to ride, at first he said no, but with a little arm-twisting (yeah, right), he said he would ride. Have I mentioned that Tracy has fought against and won the battle with the cancer monster THREE TIMES?!? She is AMAZING! We just love her to pieces, and she adores Connor. She is so good with him. The volunteers that she has are ALL wonderful! They give unselfishly of their time and energy to put a smile on all of the little boys and girls who come to ride. THANK YOU TRACY and all of you for all you do for us!

Tuesday, Connor went in for chemo before his scan. Mom (Nana) came down to take us to the hospital. THANKS MOM!! I always get pretty nervous on scan day, so it was great having her with us for moral support. I am so fortunate to have a Mother with whom I can also share a very special friendship. We are so very close, and I thank God for her!

Wednesday was "commercial taping" day. Connor was nervous about it at first, but Tracy helped ease his anxiety. They were filmed preparing Chester for a ride. Then Connor rode him. The commercial is for a special Channel 2 night at an upcoming horse show type performance coming to Opryland Hotel. Two dollars of each of the tickets sold that night will benefit AngelHeart Farms. I will post the times for the commercial as soon as we get them. I think it will run for about a month, maybe six times a day.

The past nine months have been quite a journey for the Hunley family. It seems like yesterday when we heard that dreaded word---cancer---used in the same sentence as 'Connor'. Every parents nightmare, and it was a reality for us. It has been a long road so far. We had a talk about it on Thursday night. We discussed how, even with the horror of it all, so many positives have shown up. Don't get me wrong, I would give anything to have had this NEVER to happen, but it did, so now we deal with it. But the outpouring of love and support from all of you has been overwhelming. It has really restored our faith in mankind. Our Faith in God has definately grown to astronomical proportions. It is so amazing to see God work his Healing Hand on Connor. And to watch Connor bow his little head and pray in times of need.....well, that speaks for itself. A seven year old should not know about such things as cancer, but, unfortunately, Connor does, and he deals with it in such an adult manner. He is inquisitive, and wants to know and understand about each procedure that takes place. He rarely complains about any of the treatment. He is our WHOLE WORLD!!! Yes, I think this is so unfair! But we are in the midst of it, so we put one foot in front of the other, one day at a time, and go on. Each bright new morn is another day that God has blessed us with. Don't forget to delight in the 'little things'. Connor has had a big time this week catching lightning bugs in a jar, then releasing them before he comes in. He told me that he wouldn't dare hurt them, because they are God's creatures too. Boy, oh boy, I am so proud of him.

Please continue to pray for Connor, and his continued improvement and complete healing. We are so thankful to each and every one of you for everything! I don't know where we'd be without all the support! A big "you go-girl" to Miss Hannah Ryals, 10 years old. She is our buddy that also lives in Goodlettsville. She had her scan on Tuesday as well, and found out that she is in COMPLETE REMISSION!! We are so happy for her, Kim and their entire family. I know she has had a lot of prayer warriors sending those prayers up for her as well.

Have a great weekend, everyone. Take care, peace to all, and God Bless Us All!

Love and hugs,
Rhonda, Eddie and Connor--our brave little "trooper!"


Thursday, June 13, 2002 at 09:13 AM (CDT)

Hi everyone. Thanks for checking in. I was trying to wait until after Connor's clinic visit this week so that maybe I would know about his next scan. Well, I finally found that out yesterday. It will be this coming Tuesday afternoon at 3:00 pm. Please pray for the results to be CLEAR! When Connor had his last scan, his internal burns from radiation were so bad that a readable scan was not possible.

After returning from our trip last Sunday, Connor was admitted for chemo on Tuesday. While still in the hospital on Wednesday, SArah and Q-Bert came by for a visit. That always perks Connor up. We were discharged on Wednesday afternoon. Connor's vomiting continued into Wednesday night. By Thursday, he was nauseated, but no more vomiting. Thanks to everyone for the prayers for this round of chemo.

Friday, we went to the pool where we live. For those of you who don't know, we live in a townhouse and there are two pools here for us to use. Anyway, a friend of Connor's from school also lives in this complex, and he came to the pool. We invited him to go out to dinner with us. We took them to a Japanese steakhouse in Cool Springs. We really had a good time. Then we went to a place downtown for Karaoke. It is a really cool place geared more for tourists coming to Nashville, where you can take children in. Connor, Eddie, and Joseph all did songs. Not me, I'm just a big 'ole chicken. I prefer to sit back and enjoy watching everyone else. Connor got up there and did "The Devil Went Down to Georgia" by the Charlie Daniels Band. He brought the house down! I can't tell you how great he did, and how much everyone loved him. I wish you all could have seen it. He also did the theme to the Dukes of Hazzard, which he also did very well on. We had a really good time. I think we have us a little superstar in the making.

On Saturday, Connor and I headed up to Portland. The White Family, (gospel group), were performing in Meadowbrook Park in Portland at 3:00 in the afternoon. We met Nana at Grandma's house, and we headed over there. My cousin Tabitha, her daughter Chelsea, and my other Granny were there also. We enjoyed a good afternoon of old time gospel singing. YOu can truly feel the Holy Spirit as the White Family sings. We just love them. We talked with them after the show. They even had a special prayer right there in the barn for Connor.

On Sunday, we went to a birthday party for one of our good friends also going through treatment, Joey Housley, who just turned 16 years old. I have become quite close with his Mom, Donna. They are such a wonderful family, and make you feel as though you have known each other forever, They had a cookout/pool party at their house. We all had a blast. We met so many of their wonderful friends.

Monday morning, we headed to Angelheart Farms so that Connor could go horseback riding. It had been a while, so we were so glad to see Tracy and Anna. Connor chose Chester to ride. He did fantastic. They were quite a team. As always, Tracy and Anna were so good with Connor. Any parents reading this who may be interested, please email me privately and I'll give you all the info. I guarantee you that your child will love it, and you will too! By the time we left there, Connor wasn't feeling very well, so we went home to rest. We had been invited by Tanya at Make -A-Wish to their Open House in their new offices on Monday night. Connor and I headed over there, and we had another wonderful time. We got to see some of the other children and their parents, as well as all the folks at Make-A-Wish, and alot of the donors and sponsors who make the wishes a reality. Tanya is is the wish coordinator, and she is absolutely incredible. We just love her to pieces.

Tuesday was clinic day. We weren't scheduled until 2:00. That morning we went to a "yard sale" at Barbara Mandrell's house. And boy, oh boy, what a house it it. You had to take shuttles up the long driveway to this huge mansion deep in the woods. The sale was inside, so we got to explore. I bought a couple of books, and Connor bought a stuffed bear, but the best part was just seeing the house. She recently sold it, and is clearing everything out. After that, we headed to the clinic. Connor got his chemo, and got his counts checked. His counts have started to drop, so we go back Friday to have them checked again, and possibly to receive a transfusion. We got to see Hannah Ryals at the clinic with her grandma. She was just there for counts. She is such a sweet young lady. She is 10 years old. Please add her to your prayer list if you haven't already. She also lives in Goodlettsville, not too far from us.

Yesterday, Connor went to work with Eddie for a little while. Then we all went to the pool for a couple of hours. Tanya and Janice at Make-A-Wish had gotten us tickets for the first ever Flameworthy Award Show in Nashville at the Gaylord Entertainment Center. It was televised on CMT last night. I went to pick up my Mom, (Nana), and we came back home to pick up Eddie and COnnor. Next thing Mom and I knew, a limo pulled up out front for us. Tanya, her husband Pat, Pat's brother and a friend pulled up right behind it. Eddie and Tanya had schemed on the limo, unbeknownst to me. So we all piled in the limo and headed downtown. We had great seats and the show was awesome! Connor is a HUGE fan of Toby Keith, so he was screaming his little head off every time his name was mentioned. My Mom also thoroughly enjoyed the show. I'm so glad she got to go with us. I took her back to Grandma's around 11:00 and got home at 11:30. Boy, were we pooped.

Connor is still snoozing this morning. Bless his heart, last night wore him out. PLease pray for his scan on Tuesday. Hopefully, there will be NO SIGN OF CANCER!!! The little guy has been through so much, he really needs a break.

An exerpt from 'Never Lose Heart' by Joyce Meyer:

Faith: The Antidote For Fear

Faith is the only antidote for fear.

If you or I drank some kind of poison, we would have to swallow an antidote, or the poison would cause serious damage or even death. The same is true of the deadly toxin of fear. There must be an antidote for it, and the only antidote for fear is Faith.

When fear comes knocking at our door, we must answer it with faith, because nothing else is effective against it. And prayer is the major vehicle that carries faith.

Faith must be carried to the problem and released in some way. It is possible to pray without faith, (people do it all the time), but it is impossible to have REAL faith and not pray.

James tells us that when we find ourselves in need of something, we should pray and ask God for it in simple, believing prayer. Those two words (simple, believing) are very important. The way we do that is by simply praying and having faith, believing that what we ask for from God, we will receive in accordance with his divine will and plan. Put your faith in the Lord, he has the power to deliver you from all fear.

FEAR NOT, FOR I AM WITH YOU; DO NOT LOOK AROUND YOU IN TERROR AND BE DISMAYED, FOR I AM YOUR GOD. I WILL STRENGTHEN AND HARDEN YOU TO DIFFICULTIES, YES, I WILL HELP YOU; YES, I WILL HOLD YOU UP AND RETAIN YOU WITH MY RIGHT HAND OF RIGHTNESS AND JUSTICE.

Isaiah 41:10

Thank you all for taking the time to check in. May peace be with you as you go into this day. Don't forget to delight in the simple pleasures of life. Don't fret over things that won't matter a hundred years from now. All that matters is your belief and faith in God, your family, friends, and loved ones. Material things come and go, and in the grand scheme of things, won't matter one little iota. Give those little ones a great big giant bear hug, and watch their eyes light up. Enjoy and live each day to it's fullest. Take care, peace to all, and May God Bless Us All!

We love you all!~~Rhonda, Eddie and Connor, our Brave Little Trooper!


Tuesday, June 04, 2002 at 06:58 AM (CDT)

Hello there everyone! Thanks for checking in. Yes, we are back from our week-long trip to Orlando and Disneyworld. We had a blast! We managed to visit every park with the exception of Animal Kingdom. Whew! We stayed very busy.

We flew out of Nashville on Monday morning. After arriving in Orlando, we headed to the Give Kids the World village. It was actually located in Kissimmee. From start to finish, they treated us like royalty. The village has 96 two bedroom villas, equipped with a full kitchen, (no, I didn't cook), washer and dryer, two full baths, and anything we could possibly need. There were palm trees everywhere. The village has an Ice Cream Palace, which begins serving ice cream at 7:30 AM daily. Connor had strawberry shakes for breakfast everyday, I know, I know, but we were on vacation. There was a Castle of Miracles, Amberville Train Station, a beautiful Chapel, Gingerbread House Restaurant, Julies Safari Theatre, two pools, two lakes, and a nature trail. Also, no shortage of lizards. Connor would always want one of us to go up the sidewalk first, in case one was going to run across in front of us. The village was unbelievable. I can't even begin to make you imagine the magic of it. As you strolled through the village, music would be playing on speakers outside, all Disney music, such as M-I-C---K-E-Y-----M-O-U-S-E. There were different activities and events everyday. One morning was breakfast with Disney characters. Wednesday night was Parents night out. YES!!! All of the children stayed at the village with a volunteer assigned to each child. They sent us with a gift certificate to Disney's Polynesian Resort--Ohana's restaurant. It was fabulous!!! The village has a mayor--Mayor Clayton, a six-foot rabbit. On two different nights, we signed Connor up to be tucked in by Mayor Clayton. He loved it. There was a pool party with a baby Shamu. A birthday party for Mayor Clayton, pictures with Mickey and Minnie, caricature drawings, and countless other activities. Breakfast and dinner were served each and every day in the Ginger Bread Restaurant. Everything was FREE. They gave us tickets to Magic Kingdom, Epcot, Universal Studios, Islands of Adventure, Seaworld, MGM Studios, lunch at the Hard Rock Cafe, Air Boat ride tickets, miniature golf tickets, and made even more tickets available, if you had time for anything else! I can't possibly say enough great things about the village. It was founded in 1986 by Henri Landworth, a survivor of concentration camps in World War II. He lost his entire family in the camps. His book is called Gift of Life, which I'm going to start today. We met his wife, Pam. She is a lovely lady, and very down-to-earth. She even served ice cream all day on Saturday.

Wednesday, Connor DID get slimed at Nickelodean studios. It was not broadcast over TV, but we taped it, and Connor was a natural. He did SOOOO good, and had a blast. Friday, we drove to Cocoa Beach, just south of Cape Canaveral, so that Connor could see the ocean. It was stormy after we got there, but we managed to get in an hour or so in the water. The parks all took great care of us, putting us to the front of the lines for the rides and character greetings. One day, Connor had his ENTIRE head painted like Spiderman. You should have seen him. We had lots of fun that night getting all of the paint off. Everyday, when we returned to our villa, there would be a couple of gifts there for Connor. He got movies, toys, stuffed animals, etc.

We want to say a gigantic, great-big, enormous THANK-YOU to Tanya and Janice at Make-A-Wish, and everyone at Give Kids the World for making this trip possible. It truly was the trip of a lifetime for us. Thanks also to Tanya for stopping by Nickelodean on Wednesday to see Connor get slimed. Tanya is the Wish Coordinator for Middle Tennessee. She is such a wonderful person. She took the time during Connor's unexpected hospital stay to re-organize everything so that the trip could still happen. Tanya, you are the best---We Love You!!! They gave us plenty of spending money, as well as a rental car. Make-A-Wish is such a fantastic organization, functioning entirely on donations. Thank you, guys, so very much!

We arrived back in Nashville Sunday night at 10:05 pm. Eddie had to work yesterday, poor thing, we were exhausted. Connor and I had errands to run, then we went to see the movie Spirit. Nana and Poppy surprised us with a visit Monday afternoon. We showed them some of the video that we took. Last night, we went to pick up our little kitty, Lexi. She stayed with Aunt Tammy and family. Thank you, guys, for taking care of our baby. We were so excited to see her. She turned one year old while we were gone.

I'll be posting some pictures from our trip when I get them back, and can get to a computer where I can do it. This computer is an older model, and I can't do it from home, but I WILL get some on here, I promise. I put in SIXTEEN rolls of film yesterday to be developed. Yikes! But everyone told me to take lots and lots of pictures, so that is just what I did. I have to tell you that other than lots of itching, Connor felt great for the entire time we were in Florida. THANK YOU GOD!!! I will be taking him in to the hospital today to be admitted for chemo. YUCK! We should be home tomorrow evening. Please say a prayer for him, for this round to go well. This is the one that really gets him.

Thanks to everyone for all you have done for us. Connor had lots of cards in his PO Box when we returned. Thank you, to the Hugs and Hope group, for always encouraging us. If you have time, click on the link at the bottom of this page for Hugs and Hope and check out their site. Also, please take a moment, if you can, to sign Connors guestbook, so that we will know you were here. It really means a lot to us.

Now a special request. One of our online friends, a ten year old little boy named Zack, passed away during the night Sunday night. He is from Florida, but he and his Mom have been at a hospital in Delaware since February, when he had a bone marrow transplant. He had been doing well, but last week developed a fatal brain infection. There was nothing the doctors could do for him at that point. He was such a special, brave little boy. Please say a prayer for his family, and, if you can, maybe send them a condolence card. Their address is as follows:

Frank and Jill Kull
6435 Stagecoach Rd.
Polk City, FL 33868

I can't, and don't want to even imagine what they are going through now. Zach's website is http://www.caringbridge.com/fl/zacherykull.

Thanks, one and all, for checking in. Have a wonderful day! Hug your little ones tight, and give them a kiss for us. Children are precious, God's greatest gift to us. What a privilege it is to have the honor of being a parent!! Teach your children to have a relationship with God.

"Jesus said, 'LET THE LITTLE CHILDREN COME TO ME, AND DO NOT FORBID THEM; FOR OF SUCH IS THE KINGDOM OF HEAVEN.' And He laid His hands upon them."

Matthew 19:14,15


Take care, peace to all, and God Bless Us All!

We Love You!~~Rhonda, Eddie, and Connor, our "Brave Little Trooper!"


Wednesday, May 22, 2002 at 08:04 AM (CDT)

SECOND UPDATE: SUNDAY MORNING MAY 26~~ WE GOT HOME FROM THE HOSPITAL AROUND 6:30 LAST NIGHT. CONNOR WILL HAVE COUNTS TODAY TO MAKE SURE, BUT IT LOOKS AS THOUGH WE WILL BE LEAVING FIRST THING IN THE MORNING FOR DISNEYWORLD!! HIS BLOOD CULTURES WERE NEGATIVE AND HIS COUNTS ARE RISING. HE RECEIVED A TRANSFUSION WHILE WE WERE IN THE HOSPITAL. THANKS FOR ALL THE CALLS AND WELL-WISHES. PLEASE PRAY FOR A SAFE TRIP! HAVE A GREAT WEEK!UPDATE--Friday, May 24--Connor developed a fever Thursday afternoon of 102.6, so we are now in the hospital. Today he has no fever, but of course they need to determine the cause of yesterday's fever, so we may be here a few days. The trip is up in the air right now. If we don't go Sunday, it will be mid-July before we are able to go. The next step is to see if Connor's counts rebound by in the morning. Please pray.......

Whew....another busy week at the Hunley household. Hi everyone! Thanks for checking in. The countdown is on...4 days to Disneyworld!!! We are extremely excited! Connor and I have never been before. Eddie hasn't been since high school. Connor has never flown before, so he is also excited about that.

Connor had his chemo last Tuesday, as planned. It hit him pretty hard, pretty fast. Thank goodness we had Anthony as our evening nurse. He is absolutely wonderful with Connor. He would sit with us while Connor was vomiting, and help with cold cloths, bed pan, etc. He has a new little man of his own, Lance, who is just a few months old. He is such a proud Daddy! Wednesday morning, Connor was still feeling VERY yucky, and still vomiting. But guess who stopped by for a visit.....Q-Bert and Sarah. I've talked about them before, Q-Bert is the Golden Retriever Therapy dog that we would see in the radiation clinic on Wednesdays, Sarah is her Mommy. They are wonderful! Q-Bert jumped up onto the bed with Connor, and Connor used her as a pillow. They even brought Connor a t-shirt with Q-Bert's picture on the front to wear in Florida. Thank you Sarah and Q-Bert! You were the best medicine for Connor.

We got home from the hospital Wednesday afternoon. We just relaxed at home. Connor was nauseated a few times, as usual. Thursday, I thought it might be good to get out for some fresh air. We went for a drive, and happened upon a yard sale. It was out in the country at a beautiful house with a huge yard and fields and woods all around. We got out and started looking around. Connor started feeling nauseated, so we decided to go. The wonderful ladies there offered him a chair. We started talking, and I must tell you, they were the kindest people! They were so concerned about Connor and his situation. It was a real blessing to meet them. Thank you, Joyce, for your kindness and encouraging words. It turns out that she attends church at the church where Connor attended pre-school. It really is a small world.

Friday, Tabitha (my cousin), and her daughter, Chelsea, came down for a visit. We went out for lunch, then took the children to Circus World. Friday evening, my cousin, Kyla, graduated, with honors, from Portland High School. We attended graduation, then went on to her house for a party hosted by her Mom and Dad, Sherry and Kevin. Sherry is my Mom's (Nana) sister. We had a really good time even though it was coming a monsoon outside.

Saturday morning, Nana and I went to a neighborhood yard sale. They have it every year, and it is fantastic. Can you tell I am somewhat obsessed with garage sales? I get it honest, from my Mom, but it is something that we really enjoy. Eddie took Connor to see Spider-Man. They thoroughly enjoyed it. Saturday evening, it was off to Connor's surprise party. It was at Chuck E. Cheese, and was given by Tanya and Janice from Make-A-Wish. Kind of a pre-trip party. Connor knew absolutely NOTHING about it, so, Boy was he surprised when we got there. We had a wonderful time. They brought him tons of stuff for his trip, including a Scooby-Doo suitcase. We had pizza and cake...yum-yum. Thank you to all who attended, Nana and Poppy, Grandma "Cass", Uncle Johnny, Aunt Tammy, Uncle Shelton, Ragan and Victoria, Eric and his sisters, Uncle Harold, Aunt Linda, and Nannie. You helped make it a very special day for Connor.

Sunday morning, we got up and went to church, then out for lunch. Then Connor and I decided to go to a gospel singing. The White Family was to be a the Good Shephard Baptist Church in Goodlettsville. We listen to them on Wayne's radio show on Sunday mornings. We were there for about 2 and 1/2 hours, and WOW, it was SOOOOOOO uplifting. Connor enjoyed it as much as I did. This family is amazing. You can just feel the power of God working through them. They are coming back to Portland in June to play at Meadowbrook Park, we are going to go back and take Nana and Grandma with us this time. Anyone who has a chance to see them perform, I would highly recommend it! I promise you, they will inspire and encourage you tremendously.

Monday was field day at Goodlettsville Elementary, Connor's school. Connor has been home-bound all year, but we have visited his class a few times. We went Monday, and had a blast. Field day was from 8:45 until 10:15. After that, we went back to the classroom. Then Connor wanted to eat lunch with his class, so we did. Afterward, he wanted to stay, so I left to run some errands, than picked him up at 3:00. It was so good for him to be there with his class. His teacher, Mrs. Miles, is retiring, this is her last year to teach. She is a wonderful lady, what every parent hopes for in a teacher for their child. Monday evening, Connor went to Grandmama's house to spend some time with her. They went to eat at Cici's and we picked him up afterward.

Tuesday, we had to go in for counts. Connor's counts are dropping, due to last week's chemo. Then onto Radiation for a follow-up with Dr. Teng, the Radiation Oncologist. Everything is going well so far. I had a good talk with Dr. Teng, I asked alot of questions. Connor will have another scan in about a month, and possibly an MRI, as well. Then we should know how well the radiation did it's job. Please pray for NO SIGN of cancer! Tuesday afternoon, we went back to school. There was to be a surprise party for Mrs. Miles. Paige's Mom, Becky, had put together a memory book for Mrs. Miles and all the children. It had their pictures in it, what they want to be when they grow up, and their favorite part of first grade. It also had a page for all of the children to sign. She also had a huge cake with Mrs. Miles picture in the center, surrounded by photos of all the children. It was SO beautiful....too beautiful to cut. Becky, you are unbelievable. Thank you for a wonderful party. We also got to meet Mrs. Miles' sister, Donna, and her husband, passing through on their way home to Arkansas. They told me they have been praying diligently for Connor since he was diagnosed. Yesterday evening, we met Nana, Grandma, Sherry, and Aunt Ann at the Cooker to celebrate Ann's 60th birthday. We had a really good time, eating and laughing alot.

This may be our last update until after our trip. Please pray for us to have a safe journey. A great big whopping THANK-YOU to Tanya and Janice and everyone who makes MAKE-A-WISH a reality for these children. We are SOOOOOO looking forward to our trip. We will be there for an entire week. I will give an update as soon as we get back. Connor is going to be on Slime-Time Live (Nickelodean) on Wednesday. I don't know if it will air that day or not. He is going to get SLIMED...and he is thrilled about that. We will have breakfast with Winnie and friends one morning. I can't wait for Sea World. Thanks to all of you who have sent me suggestions on things to do while we are there.

I hope everyone has a wonderful week. Spend every possible moment with your children, put the work aside, and play "their" games. The work will wait, the time spent with your children is so much more important, and something that they will always be thankful for. There is no greater gift a parent can give a child than their time, love, encouragement, support and a positive belief in God, who created them. The things you do now will determine what kind of adult your child grows into. Don't forget to tell them what a Blessing they are.

Thank you for the cards, gifts, and prayers for Connor. Please keep those prayers going up. Storm the Heavens! God hears, and answers each and every prayer. Take care, peace to all, and May God Bless Us All!

We Love You!~~Rhonda, Eddie, and Connor, our brave little "Trooper!"

SHOW ME YOUR WAYS, O LORD, TEACH ME YOUR PATHS; GUIDE ME IN YOUR TRUTH AND TEACH ME, FOR YOU ARE GOD MY SAVIOR, AND MY HOPE IS IN YOU ALL DAY LONG.

Psalm 25:4-5 (NIV)


Tuesday, May 14, 2002 at 06:45 AM (CDT)

Hi there everyone! We hope everyone is doing well. The sun is shining here after a rainy, VERY windy day yesterday. I'm sorry that I'm so behind on updating. Sometimes it just seems as though there are not enough hours in the day, know what I mean?

Last Monday, I took Connor into the clinic for platelets. After they checked his counts, they decided he did not need platelets, but he did have to have a blood transfusion. His red blood cell count was low. We were there for a few hours, and it seemed like he felt better afterward. He was still running a low grade fever when he woke up on Monday, but he didn't anymore after the transfusion. Monday night, in the night, I woke up with a major migraine and vomiting. What fun! Tuesday, we relaxed at home until early afternoon. Then, Eddie came home and we headed back up to Angelheart Farms to ride horses with Tracy and Anna. This time, Connor had decided to ride Basko. Basko is such a beautiful horse, and much bigger than Rocky. Connor did great, of course, Tracy and Anna play a big part in that. They are wonderful, they take Connor under their wing and walk him through each and every step. He absolutely LOVES going up there. Tracy finished up her radiation the week before last. Congratulations Tracy!!! Anna, as I told you before, is a childrens songwriter. She is going to do a show on Friday, May 24, at the Radio Cafe in Nashville on Woodland St., to benefit Angel Heart Farms. The show starts at 6:30, we would love to see some of you there!

Wednesday, we went up to First Baptist Church in Goodlettsville to attend the Mother's Day Out Graduation of Ragan and Victoria, Connor's 5 year old twin cousins. They looked so cute in their white caps and gowns. Their classes each sang a couple of songs. Ragan sang out above them all. It was so cute, he's a natural. They will be starting kindergarten this fall. Way to go, guys!

On Friday, Connor had to go back in for counts. Fortunately, Donna and Joey were there. As I told you before, Joey is 15 years old with Hodgins Lymphoma. He had a cold on Friday, but, bless his heart, he still entertained Connor while we all waited to be seen. Donna had brought treats, as she always does. They really are SUCH a wonderful family. Connor's counts were back up, so we got to stop our Neupogen shots. Dr. Shankar had told us that Connor could hold off on this next round of chemo until after his Make-A-Wish trip to Disneyworld in two weeks. But after a closer examination of the dates, she decided that he didn't need to go that long without chemo, so instead of this coming up Friday, he will be admitted today, on Tuesday. We were disappointed, but the doctor knows best!

Friday evening, while we were eating dinner, Eddie started talking about how much fun it would be to drive up to Gatlinburg. Then he convinced Connor, and I had no choice but to jump on the bandwagon. We left Nashville at 8:00 pm on Friday night. There is an hours difference, so we got there at midnight. They actually found a go-cart track that was open, so they raced each other around the track. We stayed in Pigeon Forge Friday night, and headed up to Gatlinburg on Saturday morning. The first stop we made was at Cooter's Place. It was just opened by Ben Jones, Cooter, of The Dukes of Hazzard. He had the General Lee sitting out front. Connor LOVED it! We then went to the new Aquarium. It was FANTASTIC!!! I can't say enough about it. There is a very long tunnel that you go through with water all around you. Shark are swimming right above your head. Then there are a couple of hands-on exhibits. We thoroughly enjoyed everything about it. We walked and looked around some in Gatlinburg. Then we came upon the Ripley's Haunted House. Connor oh-so-bad wanted to go in. I told him it would be really scary, but he was so insistent, and Eddie and I love haunted houses, so in we went. The very first room, Connor wanted to go back out. He started crying and screaming, and fortunately, one of the guys inside led me back out, as I carried all 55 pounds of Connor. Bless his heart, he was terrified. I don't think he will want to try that again for QUITE a few years. We ate lunch and headed back to Pigeon Forge. Eddie and Connor dropped me off to shop a little while they went back to ride go-carts. We headed for home Saturday evening, so that we could be home for Mother's Day.

Sunday, we ate lunch with Eddie's Mom, Grandmother, sister Tammy and her family. Then we headed up to Nana and Poppy's house. Connor and Poppy chopped down a cherry tree that had died. We had a very enjoyable Mother's Day. I hope all you Mothers out there enjoyed your Special Day!

I would like to ask you all to say a prayer for Connor. We leave in a few hours for the hospital for chemo. Pray for this round to go as well as the last. Hopefully, we can be finished with his daily shots by the time we go to Orlando. It would be nice to go with no reminders of chemo or shots or counts or ANYTHING like that. Hopefully, it will be a one night stay as usual, and we will be home late tomorrow afternoon.

MY BRETHREN, COUNT IT ALL JOY WHEN YOU FALL INTO VARIOUS TRIALS. KNOWING THAT THE TESTING OF YOUR FAITH PRODUCES PATIENCE. BUT LET PATIENCE HAVE ITS PERFECT WORK, THAT YOU MAY BE PERFECT AND COMPLETE, LACKING NOTHING.

James 1:2-4

Have a great day everyone! Thanks for checking in! We are so thankful for you all, and for your support. Thank you for the cards and packages that you continue to send to Connor. It really brightens his day. A special thank you to Claudia and Christian for being so encouraging to Connor. Thanks to Nana, my special Mom, for always being there for me, (and us), in every way possible. I don't know where I (or my sanity) would be without you! I Love You so much Mom! Take care, peace to all, and God Bless Us All!

We Love You All!~~Rhonda, Eddie and Connor, our Brave Little "Trooper"!


Monday, May 06, 2002 at 02:57 AM (CDT)

Hi everyone, thanks for checking in! Wow, another busy week at the Hunley household. Monday was kid of a "chill-out" day after the picnic on Sunday. We were so thrilled with how well Connor did with this latest round of chemo. Lots of praying, praying, and more praying.....does the trick every time!

Tuesday, we decided to surprise my Grandma with an afternoon visit. We drove to Portland, and guess what, she wasn't home. We went to a couple of stores and just hung out for a while. We went in a little store called Aunt Tillie's. The owner is a wonderful lady by the name of Rita Taylor. Rita is a cancer survivor of 16 years. I had read a beautiful and inspiring article that she had written for a local newspaper. Her words truly spoke to my heart. Anyway, she was at the shop, so we got to meet her. She and Connor hit it off instantly. They had lots to talk about. We visited for a while and then headed back to Grandma Cass's house. After a while, she and Nana returned. Grandma had an eye appointment in Gallatin. That was what I got for not calling first. Sherry (Nana's sister) called and invited us to go with her to the Cracker Barrel for dinner. We had a really good time. Thanks, Sherry, for dinner!!!

Wednesday was a day Connor and I had been looking forward to. There is a local lady, Tracy, who has several horses that she boards at a beautiful quarterhorse farm near where we live. Tracy is currently in her third bout with cervical cancer, she is 37 years old. What a beautiful lady. Anyway, she had invited us out to the farm to ride horses. There we were met by Tracy and a wonderful volunteer, Anna, for a very enjoyable afternoon. They took Connor through every step of getting ready to ride. He got to pick out his own horse, Rocky was his choice. Then he brushed Rocky, cleaned his hooves, saddled him up, and off he went. Anna is a children's song writer, and they even sang to Connor as he rode around an indoor arena. Then, after he was feeling a little more confident, they headed outside and up a trail. You should've seen him. He looked as though he had been riding forever. He had insisted on wearing his cowboy boots. He couldn't wear his cowboy hat, because ALL children are required to wear a helmet. After they got back, he cleaned Rocky's hooves again, then took him to his stall. They then fed all of Tracy's horses, and gave them all a carrot for a treat. Of course, Rocky got the biggest one for being such a good boy for Connor. There were a couple of lazy-type dogs wandering around the barn, and even a mommy-cat with her four kittens in one of the stalls. We were in Heaven!!! After tending to the horses was complete, Connor rode in a "Gator" with Tracy to some woods behind the barn to empty the 'horse poop'. Tracy let him accelerate, and accelerate he did! Thankfully, noone got whiplash. We had the best time up there with Tracy, Anna, Rocky, and all of the others. We are going this week for a return visit. Any parents reading this, with children going through treatment, email me privately, and I'll give you all the info. She will welcome you any day of the week. She is there five days a week. It did wonders for us, especially Connor. She gives them back a feeling of control over something, whereas they feel throughout treatment that they have lost all control. I would imagine that we will be spending alot of time up there throughout the coming months.

Thursday morning, I had a doctor's appointment. Connor went with me. After speaking to my doctor, he "prescribed" at the very minimum, 30 minutes of exercise a day. He said it would be a great release for me and my body with all of the stress of Connor's illness and watching him go through so much. He told me the last thing I need is to get sick myself from keeping everything bottled up inside. He even put Connor in charge of making sure that I DO exercise. Well, Connor is more than happy to take that responsibility. I'm quite certain he will stay onto me constantly to make sure I do exactly what the doctor said.

Friday, we had to go in for counts. Connor did not have to get chemo this week. His counts were down, so we will be going (in a few hours, actually) on Monday for a platelet transfusion, and possibly a blood transfusion. Friday night was the Relay for Life to raise money for the American Cancer Society. We went to Hendersonville first. Our church had three teams, entitled---Connor's Hope, Light the Fire Within. After the opening ceremonies, Connor walked the first lap carrying a torch. It was the survivor's lap before the actual Relay began. Eddie stayed there all night, (in the rain, I might add) with several church members, keeping walkers on the track at all times. I think Hendersonville raised approximately $96,000.00. Wow! Way to go guys! Connor and I then headed to Portland, where their Relay was going on as well. Nana and Grandma went with us. We hung out with my cousin Tabitha, and the team from Mt. Pleasant church. Connor got to see Bro. Jimmie, Joseph, and all his other buds. Joseph had his race car there, so Connor got to sit in it. There was also one booth that had an old car with the word 'Cancer' painted all over it. Connor got to beat up on it with a sledgehammer. Ah, what satisfaction. I didn't think we were going to be able to get him away from the car. Then there was a touching luminary lighting ceremony. All the names of survivor's were read (Connor's included), then the names of those who lost their battle. It was very moving. Thanks to Tabitha, Lorie, and Peggy for your donation for luminaries in Connor's name. We left there, and headed to Nana and Poppy's to spend the night, and YES, we were tired!!

Saturday morning, Nana and I arose early to go to some garage sales, one of our favorite past-times. Connor and Poppy stayed at home, of course, we left really early, so Connor was still snoozing. Nana and I had a good time, as we always do together. Have I ever told you how much I love my Mom and how much she means to me??? She and I always have so much fun together. Besides being my Mom, she is also my very best friend. Anyway, we got back to their house in the early afternoon. Connor and I left for home. Eddie had slept all day, from being up all night the night before.

Connor started running a fever Saturday evening, that continued throughout the night. I watched it carefully, and it finally broke around 2:00 am Sunday morning. I was scared to take him to church, so Eddie went alone. There was to be a church-wide picnic at a park on the lake in Hendersonville after church. Connor started feeling better, so we took off up there around 1:30. Connor got to go on a boat ride with some other kids. Then we met up with our friends, Brian and Abby Stanley, and their children, Dalton, Bailey, and Haines. Connor asked if Dalton could go with us when we got ready to leave, so off we went. Dalton was diagnosed with an extremely rare blood disorder several years ago, but is doing great now. He is such a wonderful young man. We went to a little restaurant by the marina to eat. Then the boys decided they wanted to go to the pool, so we took off for home. The water was extremely cold, so we didn't stay very long. We then went for ice cream, then back home so they could play Playstation for a while. Eddie and Connor took Dalton home, and I went walking in our neighborhood for my first "official" exercise session.

I'm going to close now and try to get a couple more hours of sleep. I know we will be at the clinic all day today. Thanks to all of you for stopping by. If you have an extra moment, please sign Connor's guestbook, and let him know you were here. A special thanks to Grandma Cass and Sally Petty for sending Connor his weekly cards. Also, to Claudia, who so faithfully encourages Connor through her guestbook entries. Thanks, also, to all of our new friends at Hugs and Hope. You guys are the best!!! You give so much of yourselves to uplift others, and for that, I know that God will greatly reward you.

The following is by Thelma Wells--from 'Hope for a Woman's Soul'...........

HOPE IS A PRECIOUS GIFT OF OUR SALVATION. OUR ONLY RELIABLE HOPE IS WHAT WE CANNOT SEE OR CONTROL; THE OUTRAGEOUS FAITHFULNESS OF GOD. EVEN WHEN THINGS DON'T WORK OUT THE WAY WE HAD PLANNED OR DESIRED, HE IS ALL-KNOWING, ALL-LOVING, THE BEGINNING AND THE ENDING. HOPE IS ACTING ON THE CONVICTION THAT DESPITE WHAT WE SEE WITH THE NATURAL EYE, GOD IS WORKING IN THE SPIRITUAL REALM TO ACCOMPLISH HIS PERFECT WILL IN OUR LIVES. HIS HOPE DOES NOT DISAPPOINT! WE MUST THINK HOPE...SPEAK HOPE...PRAY HOPE...SING HOPE...ACT OUT HOPE...STAND FIRM ON HOPE...SHARE HOPE. BECAUSE HOPE HAS BEEN GIVEN TO US, WE CAN EXPECT THE BEST, EVEN IN THE WORST SITUATIONS. PRAISE GOD!


Jesus said, "IF YOU BELIEVE, YOU WILL RECEIVE WHATEVER YOU ASK FOR IN PRAYER."

Matthew 21:22

Have a great week everyone. Thank God each and everyday for all that He has given you. Hug your children or your parents extra tight. Do something wonderful to brighten someone's day. Just a phone call to let them know you are thinking of them would do wonders for someone living alone. Smile....smile more....and even more. A smile can cheer even the hardest person, and a smile IS contageous. Take care, peace to all, and God Bless Us All!

We love you!~~Rhonda, Eddie, and Connor, "Our Brave Little Trooper!!!"


Sunday, April 28, 2002 at 08:25 PM (CDT)

Hello everyone! Hope you have all had a great weekend. We just returned a little while ago from the Vanderbilt Children's Hospital "Radiology Stars" picnic. It was held at "Smiley Hollow". It is this really cool farm about 15 minutes from Goodlettsville in Ridgetop. They had lots of neat things for the kids to do...miniature golf, horse-shoes, basketball, kiddie-rides, face-painting, a balloon guy, ponies, a llama, hula-hooping, even a hay ride. We had a great time. It is a very rustic farm with lots of old machinery and cars strategically placed around. The entrance had a covered bridge. Well, anyway, we thoroughly enjoyed ourselves.

Well, as you read in my last entry, Chad had been in from the Navy. Tuesday afternoon, Nana and Poppy brought him down here. We all visited for a while, then Nana and Poppy had to go home. We took Chad to the bus station around 10:30. He was in his white Navy uniform and looked so handsome. He had given Connor a "real" white Navy hat of his very own, so Connor wore it down to the station. We waited until Chad's bus pulled out, so that we could wave him off. We are really gong to miss him, but we really enjoyed spending time with him the past 10 days. Connor thinks Chad hung the moon, so he will miss him the most.

Tuesday, before Chad came down, Grandmama came by and picked up Connor. Then they went to Chuck E. Cheese for their "radiation's over" celebration. Connor really enjoyed himself. I took the time to run a few errands. It's the first time in a long time that Connor wasn't with me, and I did feel completely lost without him. But they needed some time together.

Oh, I'm kind of going backwards here, but my memory is not what it used to be. Last Sunday, we took Connor to the zoo. It was a perfect day for it. Connor enjoyed seeing all of the different animals. He and I rode the elephant together. He thought that was super cool.

Thursday, Eddie and I took Connor to his school because his class was studying various other cultures, and his teacher invited us to stop by. Connor hasn't actually been a student since his diagnosis in October. We have stopped by a couple of times to visit. Anyway, on Thursday, he was so excited. And you should have seen and heard his classmates when they saw him. They all dressed up in costumes from different cultures. This was in the library. Then, he got to go back to his classroom with his class. We just stayed in the background and enjoyed watching him glow. One little boy in particular, J.C., took Connor by the hand and was showing him everything they have been working on. They were all so wound up. Mrs. Miles, Connor's teacher, is retiring after this school year. Everyone is really going to miss her. She is a fantastic teacher and friend.

After we left school, on to the hospital for a CT scan. We had been nervously anticipating it for some time now that radiation is over. We couldn't find out any results until Friday when we went in to be admitted for chemo. To make a long story short, the chemo and radiation are both doing their job. There is NO sign of ANY new growth. Praise God!!! There is a lot of swelling and inflammation from the radiation burns inside his body. They are causing him a lot of misery. We are having to give a medicinal enema foam twice a day for three weeks, and I can tell you it is NO easy task. Bless his heart, he itches inside pretty much all the time, and gets little relief from his medications. It could be two to three months before we see remarkable improvement internally. Please pray for him to not suffer with the pain and itching, and for his medicines to QUICKLY heal him up. He also hasn't been able to have bowel movements without the help of an enema, since his radiation ended. His hospital stay did go better this time. He was sick Friday night, but in the middle of the night, I had the nurse change his anti-nausea medication to something we hadn't tried before, and then he didn't throw up anymore after that. We are so thankful for that.

We want to say a special THANK YOU to those businesses who have so generously donated to the American Cancer Society for the Relay For Life that is being held this Friday night. Eddie will be walking for Connor in Hendersonville for our Sunday School class team, named Connor's Hope. Connor and I will also be making an appearance in Portland for their Relay being held the same night. We hope to see lots of you there. We are so thankful for the American Cancer Society and their funding for research. We wouldn't be where we are today if it were not for that research. Most all families lives, unfortunately, have been touched in some way by the cancer monster. It may not have been a family member, perhaps 'someone you know', but most everyone DOES know of someone who has fought this battle. To those of you going through it now, do as Connor says, and KICK CANCER'S BUTT!!!

Thanks for all the prayers and well-wishes. I know there were lots of prayers going on for Connor's scan, and the news was definitely great. Dr. Shankar did say that she is VERY PLEASED with Connor's progress. We are so thankful to our Heavenly Father up above for watching over our precious son. We know that Connor will have a complete healing.


IS ANY ONE OF YOU IN TROUBLE? HE SHOULD PRAY. IS ANYONE HAPPY? LET HIM SING SONGS OF PRAISE. IS ANY ONE OF YOU SICK? HE SHOULD CALL THE ELDERS OF THE CHURCH TO PRAY OVER HIM AND ANOINT HIM WITH OIL IN THE NAME OF THE LORD. AND THE PRAYER OFFERED IN FAITH WILL MAKE THE SICK PERSON WELL; THE LORD WILL RAISE HIM UP. IF HE HAS SINNED, HE WILL BE FORGIVEN. THEREFORE, CONFESS YOUR SINS TO EACH OTHER AND PRAY FOR EACH OTHER SO THAT YOU MAY BE HEALED. THE POWER OF A RIGHTEOUS MAN IS BOTH POWERFUL AND EFFECTIVE.

James 5:13-16

Have a great week everyone! Please keep Connor in your prayers, as well as all of his new friends "fighting the fight"...Joey Housley, Caleb Little, Hannah Ryals, Hannah Greene, Ronnie Russo, Grayson Woods, Zack Kull......

Take care, peace to all, and May God Bless Us All!!

We Love You!!!~~Rhonda, Eddie and Connor, our brave little "Trooper!"


Saturday, April 20, 2002 at 06:56 AM (CDT)

Hi there, everyone! Thanks for checking in. This week, Connor has reached a milestone in his battle, RADIATION IS FINISHED!!! We are thrilled to have it behind us. Tuesday was his last day. We are going to miss all of the wonderful techs, nurses, and the smiling receptionist, Gail, but we told them we would be back....but ONLY to visit. There were lots of hugs and well-wishes, and I know they are going to miss Connor's smiling face as well.

Monday was spent at the clinic after radiation. Connor's counts were down, so he had to have a transfusion. He felt really bad that day. I get spoiled by his usual energy level, and I know it takes a lot to get him down, so when I see him like that, it rips my heart out. By the time we got home that evening, he was already feeling better. Chad came down to spend the night. We went bowling in Hendersonville. Connor walks up to the lane, first time, and first person up, and bowls a STRIKE!!! We were all sooo excited. We bowled three games and had a really great time. When we returned home, it was almost 11:00 pm. Connor pops in his Dukes Reunion movie, and he and Chad watched it. I came downstairs at midnight to tell them goodnight, and Connor was still going strong. He was so proud to have Chad spending the night. He thinks the world of him, and has missed him immensely. So he had to savor each and every moment. Tuesday, Eddie was going to have to stay in Bowling Green with his job, so Connor and I stayed at Nana and Poppy's. Connor's burns were bothering him pretty bad. Dr Teng told us on that same day that it would probably be a week or so before we start seeing significant improvement. The area where they are just causes intensification of the itching and pain.

Wednesday morning, after Connor ate breakfast prepared by Poppy, who by the way is an excellent cook/chef, he took off outside to ride his bike and jeep. It was a beautiful, but very warm day here. We left up there, early afternoon, and visited some more. We went to Granny Akins' house for a while, then we went up to Papa and Noreen's. Noreen had a mandolin, and Connor spotted it right away. He played it while we were there, and then talked about it all the way home. "But Mommy, I'll buy it with my very own money!" We then stopped out at Grandma "Cass"'s house in Portland. Grandma had cataract surgery that day. Nana, Aunt Sherry, and Kyla were there, so we visited with them for a while. Grandma was doing well, she was just tired. Eddie was home by the time we got there.

Yesterday, on Friday, we had to go to the clinic for chemo. As soon as we got there, we saw Kathy Woods, Grayson's mom. Grayson was getting blood and platelets. Bless her heart, she didn't feel good at all. We then had blood drawn, and Connor's counts were back up. Thank goodness.....no more shots for a few days! We saw Dr. Shankar, then headed to the back room to wait for the vincristine to come up from the pharmacy. Connor hung out with Joey Housley, the 15 year old with Hodgkins. Connor thinks he is sooo cool. I got to talk with his Mom, Donna, and I think she is sooo cool, too. We just love their family, it seems as though we have known them forever. Josh, Joey's six-year old brother, sent Connor a cool talking Spongebob toy. Thank you Josh! I then met another mother, her son's name is Austin, and he is 5 years old. He was just diagnosed two months ago, and with the same type, rhabdomyosarcoma, as Connor. Please say a prayer for him, his is in the fourth (most progressive) stage. It makes me so angry to know that another child is slowly losing their childhood to this monster. An old children's term comes to mind, and it fits the best.....it is NOT FAIR!!! After we left the clinic, we went to a few yard sales, then ended up at a music store in Hendersonville. Connor bought a guitar instead of a mandolin. He was thrilled. He is very interested in learning, and I think we may have hit on something. I told him he may be playing on the Opry one of these days. After we ate, we went by Grandmama's house. Odell was there, so he was showing Connor a little about his guitar. Connor was just strumming away.

This morning, Eddie left out early for Crossville to play in a golf tournament. Connor and I are going to a breakfast club meeting at Gilda's club for the first time. I'm hoping it really helps him to be around other children with cancer to talk and play.

Chad will be leaving on Tuesday for Gulfport, Mississippi for his next assignment. Please say a prayer for him for a safe journey. We are going to miss him, but it sure has been great to be able to spend some time with him. We love you Chad!!!

ALONG THE ROAD by Robert Browning Hamilton

I WALKED A MILE WITH PLEASURE
SHE CHATTERED ALL THE WAY,
BUT LEFT ME NONE THE WISER
FOR ALL SHE HAD TO SAY.

I WALKED A MILE WITH SORROW
AND NE'ER A WORD SAID SHE,
BUT OH, THE THINGS I LEARNED FROM HER
WHEN SORROW WALKED WITH ME!
________________________________________

FEAR NOT, FOR I AM WITH YOU;
BE NOT DISMAYED, FOR I AM YOUR GOD.
I WILL STRENGTHEN YOU,
YES, I WILL HELP YOU,
I WILL UPHOLD YOU WITH MY RIGHTEOUS RIGHT HAND.

Isaiah 41:10

Thanks again for checking in on us. Thanks for the cards you continue to send to Connor. You don't realize how much it encourages him. We truly are a Blessed family to have so many wonderful family and friends to support us. Please continue to pray for Connor and for us. Connor will have a CT scan this coming up Thursday, please pray it will be completely clear! We put our Faith is God.

A LESSON FROM THE BIRDS BY ELIZABETH CHENEY

SAID THE ROBIN TO THE SPARROW,
"I SHOULD REALLY LIKE TO KNOW
WHY THESE ANXIOUS HUMAN BEINGS
RUSH AROUND AND WORRY SO."

SAID THE SPARROW TO THE ROBIN,
"FRIEND, I THINK IT MUST BE
THAT THEY HAVE NO HEAVENLY FATHER
SUCH AS CARES FOR YOU AND ME."


Take care, everyone. Have a fantastic weekend and week ahead. We appreciate you all! Please say a prayer for a special lady. She is my cousin, Tabitha's, Aunt. She fought cancer several years ago and won. Now it is back, and very aggressive. She is such a lovely lady. Her name is Brenda Holmes. She needs lots of prayers.
Peace to all, and God Bless Us All!

We love you!~~Rhonda, Eddie and Connor, our brave little "TROOPER!"


Sunday, April 14, 2002 at 09:08 AM (CDT)

Hi everyone! Thanks for checking in. We truly do appreciate your support. We've had a good week. To top it off, my "little" brother, Chad, is home for a 12 day leave from the Navy. We haven't seen him in almost six months. Nana and Poppy drove to Pensacola on Wednesday to pick him up, and they got home Friday night. Yesterday, on Saturday, they came down here, and we saw Chad for the first time. Connor wrapped himself around his "Uncle Chad", and I didn't think he was going to let him go. We were all so thrilled to see him. He looks great. Eddie, Poppy, Connor and Chad went to the opening Busch race yesterday afternoon at the Nashville Superspeedway. Thank you, Tanya, at Make-A Wish for the tickets. They really had a good time. Nana and I spent the afternoon together, and enjoyed ourselves, as always. I am blessed to have a Mom who I am so close to. She and I always have a wonderful time together, no matter what we are doing.

Connor's radiation has gone well this week. His counts have been good so far, although they are expected to drop today or tomorrow. But the weather here has been great and we have taken advantage of it. He finished up his Achievement test on Tuesday. His teacher, Deborah, is great, but Connor was SOOO ready to finish that test. He is easily distracted, and everytime Lexi, our kitten, walked by, he had to stop and talk to her. But I can't blame him, because she is a sweetheart, if I do say so myself.

Connor only has two radiation treatments left. Yaaaaah!!!!! Monday and Tuesday should wrap it up. He is scheduled for a CT scan on April 25, the day before his next hospital admission. Please pray for NOTHING to show up where his tumor has been. He still has 20-22 weeks of chemo left. But our prayer is that the tumor will be gone, NEVER to return to his little body again. We know that miracles happen everyday, and I know that there are so many people praying for COnnor daily. He really is an inspiration to so many people, through his battle against this cancer monster. His courage is astounding.

Friday, after radiation, we headed up to the clinic for chemo. We got to see many of our friends. As we were going in, Hannah Ryals, and her Mom, Kim, were headed out. We haven't seen them lately, so we were thrilled to run into them. When we got inside, we saw Joey Housley, and his wonderful Mom, Donna. Joey was recently diagnosed with Hodgkins Lymphoma. On Wednesday of this past week, about 20 of his friends, including his 6 year old brother, Josh, all showed up to have their heads shaved with Joey. Isn't that great?!? That tells you how loved he is. They are a great family, and we are blessed to have met them. Also at the clinic, we got to see Hannah Greene and her Mom, Brandee. Hannah was one of the first children Connor befriended when he was diagnosed.

This past Wednesday was our last "routine" radiation visit on Wednesday, meaning our last "routine" visit with Q-Bert and Sarah. Sarah brought Connor more pictures. She had taken them the week before of Connor and Q-bert with a digital camera, and made a collage out of them. We will be going down sometimes on Wednesdays just so that we can see our new friends. Q-Bert has been so wonderful for Connor, and he always looks forward to seeing her.

Also on Wednesday, Connor and I went to the park in Hendersonville. We had an experience there that has happened numerous times in the past, but never to the degree that it went to that day. Of course, Connor has no hair right now, which he normally doesn't mind. But he does get a lot of stares from children and adults alike. Sometimes the children will make comments, but most of the time I hear them, but fortunately Connor doesn't. Well, on Wednesday, this certain boy decided to center in on Connor in a negative manner. Most always, unfortunately, other children who do NOT know Connor will not invite him to play with him, since he has been sick. So he plays by himself, and he is fine with that. But this boy started calling Connor some pretty bad names. I couldn't hear from where I was, but Connor came to me with tears welling up in his eyes. I asked him what happened and he told me a little of it. So I told him to just ignore it, and we moved to a different area. Well, here came the same boy. I was sitting down while Connor played, and the boy came right up beside of me and started telling COnnor he looked like a monster, and various other things. I didn't see his parents anywhere, so I took it upon myself to tell him that it wasn't very nice to call other people names, and asked him how he would feel if someone did that to him. Well, it didn't phase him in the least, and he continued. I told him that Connor had been sick, and that the medicine that he takes makes his hair fall out. I also told him that Connor was the bravest boy that he would ever meet. Well, then he started telling me that HE was the bravest boy and Connor wasn't brave at all. At that point, here comes Connor, with one fist up, and he told him to leave his Mommy alone. I tell you, all of the name-calling had been bad enough, but when he heard the boy saying things to me, that really got to him. You should've seen his face. I told Connor that fighting wasn't the answer, so again, we moved. This time the boy left us alone. Here I was, taking up for Connor, and he came to my defense. That is MY LITTLE HERO!!!

The following is from a book entitled 'Psalms of Hope':

ANSWERED PRAYERS

NOTHING CAN BE LOUDER OR MORE INTIMIDATING THAN SILENCE WHEN WE ARE WAITING FOR AN ANSWER TO OUR PRAYERS. IN THE NIGHTTIME OF THE SOUL, GOD'S SILENCE THUNDERS DOWN AT US, RATTLING OUR CONFIDENCE AND LEAVING US WONDERING IF HE HAS ABANDONED US.

AT THOSE TIMES WHEN GOD IS SILENT, WE MUST PLACE OUR HOPE IN TWO MIGHTY TRUTHS: THE TRUTH OF GOD'S SOVEREIGNTY AND THE TRUTH OF HIS FAITHFULNESS. GOD ANSWERS ALL OUR PRAYERS, BUT ALWAYS IN HIS OWN TIME AND IN HIS OWN WAY. WHEN WE PLACE OUR HOPE IN HIM, WE WILL NOT BE DISAPPOINTED--EVEN WHEN THE ANSWER THAT COMES IS NOT WHAT WE EXPECTED.

WHEN THE HEAVENS SEEM LIKE BRASS, AND WE CANNOT HEAR HIS VOICE, WE ARE WISE TO TRUST HIM AND WAIT PATIENTLY. IT IS IN THESE TIMES THAT OUR FAITH IS TESTED, STRENGTHENED, AND ESTABLISHED.


The LORD is my light and my salvation; Whom shall I fear? The LORD is the strength of my life; Of whom shall I be afraid?

PSALM 27:1

Thank you all for checking up on Connor. Thanks for all the prayers! We can never have too many prayers. We hope you all have a wonderful week. Tell your children, your parents, grandparents, aunts, uncles, cousins, and friends what a Blessing they are to you. Never take one single day for granted. Sow some seeds of kindness, and watch the joy grow. You can never give too much love. Smile, and it will be contagious. Praise any acts of kindness or generosity by your children...it will reinforce their spiritual development.

I would like for you to also pray for the courageous children I mentioned above that we see at clinic. Also, a little girl named Meghan Lusk, whose Dad works with Nana, was diagnosed this past week with Crohn's Disease. Please say a prayer for her and her family as they deal with this. Meghan is the same age as Connor, 7 years old.

Take care, peace to all, and May God Bless Us All!!!
We love you!~~Rhonda, Eddie and Connor, our brave little "TROOPER!"


Sunday, April 07, 2002 at 10:48 PM (CDT)

Hello everyone! Thanks for checking in. Hope you all had a great Easter. It was raining here, but , so what, God gave us another day! After church, we had lunch with Eddie's family. We then spent the rainy afternoon relaxing at home. That night, we went bowling again, and took our 8 year old neighbor, Chelsea. We had a great time.

Monday morning, we went back to the clinic for radiation. Connor also had to have blood drawn for counts. After we returned home, Deborah, Connor's teacher, came by and started him on his Achievement Test. Grandmama and Odell came by to visit after that. Then the clinic called back with the results from the counts. We get to stop his Neupogen shots for a few days.

Tuesday was Poppy's birthday. After radiation, we went by the bakery and picked up his cake, then headed to their house. We enjoyed spending the afternoon up there. Connor rode his bike, and talked Poppy into another ride on the lawn mower. Connor and Poppy go fishing together sometimes, so we got Poppy a fishing chair for his birthday. That is so he can relax while he is reeling in the "big one". Poppy will probably see alot of humor in that last statement.

Wednesday, Connor slept until 11:00. I woke him up and told him it was Q-Bert day. When we got to the clinic, there was Sarah and Q-Bert waiting for Connor. Q-Bert is a therapy dog, and she certainly is GREAT therapy for us. Sarah and Q-Bert are the sweetest! I told you wrong on one of my entries. Q-Bert is a Golder Retriever. I know now 'cause I asked her Mommy.

Thursday, after treatment, we went back to the cemetery to check on the baby bunnies, AGAIN. When we uncovered their nest, out they came, hopping around. I wish you could've seen them. They are the cutest things. We gathered them all back up, put them back in their nest, and covered them up. We even took Eddie back up there when he got home from work.

Friday, after radiation, we had to go to the Oncology clinic. Connor was to be admitted for his full round of chemo. We got there at 12:30, and finally got to his hospital room around 5:15. His chemo started around 7:00 pm and by 8:45 pm, the vomiting started. The nausea medications didn't seem to be helping at all. He finally fell asleep around midnight, after three hours of continuous vomiting. He awoke around 7:00 am and started again. Thsi went on all day, but we were discharged around 3:00 pm Saturday. He even got sick in the parking garage. He was so pitiful. One time, while he was still in his hospital bed, he looked up at me and said, "Mommy, I wish I didn't have to have cancer." It broke my heart into a million (more) pieces. There is nothing like the pain of having to watch your child in pain or suffering, and have no control over it. But through it all, Connor NEVER complains. He truly AMAZES me. He goes through so much, more than most do in a lifetime, yet he bounces right back, smiling. By the time we got home, he was asleep, so I carried him inside. Grandmama came by and visited. Connor never did get to feeling any better. But I did manage to get some Gatorade down him, and it stayed, Thank God! I was so worried about dehydration.

Sunday morning, my Uncle Wayne put out a prayer request on his gospel radio show on WYXE 1130 AM. By the time Connor woke up, he felt wonderful. I couldn't believe it. I thought he would at least be weak from all the vomiting, but he seemed fine. Nana, Aunt Sherry , and Sherry's friend Tina came down. Nana stayed here with us while Sherry and Tina went shopping. We had a good afternoon. We have a new swing on our deck now, so we were able to sit out quite a bit and enjoy the gorgeous, sunshiney day. Chelsea came over, and she and Connor played all afternoon. Connor never got sick, even one time. The power of prayer is mind-boggling! We had to start back on the Neupogen shots tonight. He will get them for the next 10-14 days to try to get his white count up. It drops after every full round of chemo.

Thanks again for stopping by. Take a moment to sign Connor's guestbook, if you have time. We appreciate all the cards, gifts, thoughts, and prayers. Whatever would we do without all of you??? Please keep those prayers a-comin'. We've come long way because of it, that's for sure!


MAKE SOMEONE HAPPY
BY THE WAY YOU LIVE.
MAKE SOME HEART MORE STEADY,
THROUGH THE HELP YOU GIVE.
STRENGTHEN OTHER FEET TO TRAVEL,
ON LIFE'S PILGRIM WAY,
COMFORT OTHER HEARTS IN SORROW,
BY THE WORDS YOU SAY.
THROUGH THE GLADNESS SHED AROUND YOU,
YOURS WILL BE THE GAIN,
FOR THE LIFE FOR OTHERS GIVEN
IS NOT LIVED IN VAIN.
~~Unknown

Have a great week, one and all. Live each day to the fullest, and don't fret over what tomorrow may bring, God is already there and is in control. We are so grateful to the Lord for all that we have. We are certainly not rich, monetarily, but we are RICH in what counts, family, friends, and the Grace of God. That's all that really matters anyway. Don't forget to hug your little ones (or big ones, for that matter) really tight and tell them how much you love them. Some people have such a hard time saying those three words, but , boy, when you say them, you light up someone's day!

Take care, peace to all, and May God Bless Us All!

We love you all!
~~Rhonda, Eddie and Connor, our brave little "Trooper!"


THEY THAT HOPE IN THE LORD WILL RENEW THEIR STRENGTH, THEY WILL SOAR, AS WITH EAGLES' WINGS; THEY WILL RUN AND NOT GROW WEARY, THEY WILL WALK, AND NOT FAINT.

Isaiah 40:31

P.S. A great big THANK YOU to Chris, for helping me out with the photos on here. She did a great job! I appreciate it so much Chris!


Saturday, March 30, 2002 at 07:12 PM (CST)

Hi there everyone! Hope you are having a great Easter weekend! Connor is actually napping at the moment, so I thought it would be a good time to update.

Monday, when we got the the clinic, the doctor took one look at Connor's treatment area, and decided not to treat him again. He gave us another script for something else for relief from the pain and burning. He told me to be the judge Tuesday as to whether or not it looked any better. His teacher came Monday afternoon, and they practiced for his achievement test, (it will be given this week). Grandmama and Odell stopped by for a few minutes to visit.

Tuesday, his burns didn't look any better, so we 'skipped' the treatment again. Connor was excited because it was the first weekday in three weeks that he didn't have to go to Vanderbilt. We just enjoyed a lazy day at home together.

Wednesday, back down there we went. His burns looked a little better, so they decided to treat him. He did fine with that, and then his nurse, Julie, accessed his port, and drew blood for counts. Then we went up to the oncology clinic to deliver some goods that we had brought. I have mentioned several times in our journal about how long the days are at the clinic. Especially if you are there for a transfusion. Well, they depend on donations of snacks (individual chips, eat-a-snacks, granola bars, and any other snack that children will eat) and drinks (individual juice boxes, capri-sun, etc.)for the children to have while they are waiting. They have a lot of sick children come through there each and every day, so they go through quite a bit of food and drink. The past few times we have been there, there has been nothing, so then you have to leave your child and go across the hospital to the nearest vending machines. If you know in advance that you are gonna be there awhile, you can bring things from home, but sometimes, you don't know until you are there that counts have dropped and your child needs a transfusion. If you know of any vending companies that might help the clinic, I know they would be very appreciative. Just e-mail me privately, and we can discuss it further.

After we got home Wednesday, the hospital called and told us to come in Thursday after radiation bcause Connor's counts had bottomed out. He needed red blood cells, and possibly platelets. But he was feeling so good! I was surprised this time, because, other than the problems with the burns, his level of energy was great.

Thursday, we went to the clinic first to have more blood drawn, then raced to the other end of the hospital for radiation, then back to the clinic for the transfusion. Oh, by the way, while we were in radiation on Wednesday, we got to see Q-Bert and Sarah again. Sarah had brought Connor two absolutely adorable photos of Q-Bert. They are both sweethearts! Thank you Sarah, for brightening our Wednesdays by sharing your precious baby Q-Bert with us! Anyway, Connor's transfusion took a couple of hours, and then we BUSTED outta there!

Friday, he got his radiation, then had to go for chemo. While we were waiting, we got to visit with our new friends, Joey Housley, 15 years old, newly diagnosed with Hodgkins, his Mom Donna, his sister Erika, and his little brother (6 years)Josh. Joey was waiting for bloodwork and the clinic was BEHIND. The Housley's are a great family. Donna arranged something this week for Connor. Of course, all of you know by now of Connor's fascination with 'The Dukes of Hazzard'. Well, Donna actually knows "Enos", aka Sonny Shroyer. She arranged a phone call from him Monday night. When Connor took the phone, the first words out of his mouth were, "Enos....you dipstick!" in Rosco P. Coltrane's voice. I could hear Sonny laughing from the other side of the room. Connor was so excited to talk with the "real" Enos. Thank you Donna, you are wonderful!

Friday night, we took Connor shopping for an Easter outfit (I know boys don't wear "outfits", but that word seems appropriate when we are talking about EASTER!), anyway, Eddie and Connor bickered over what tie Connor was going to get. Eddie wanted Connor's tie to match his shirt, makes sense, doesn't it, Connor was more interested in the design than the color. Eddie finally caved in, and Connor got the tie that doesn't really match. The important thing is that we are there to worship, not what everyone is wearing. We also went to one of our favorite restaurants, Loco Lupe's, for dinner. While we were eating, Eddie noticed someone across the room who was obviously going through treatment as well. She came over to our table and introduced herself. Her name is Tonya and she is currently being treated for breast cancer. Connor was in awe of her. Someone else who looked like him...with no hair! But I must say, she is one beautiful lady. She talked with us for the longest, she and her family have been through alot, but she has the most positive outlook, just like Connor. You can tell that she totally relies on God for her every need, so she has no fear of tomorrow. We were all really inspired by Tonya. We also met the rest of her family and exchanged numbers. After that, we went by Grandmama's for a visit. She had borrowed a tape from her brother and sister-in-law, Harold and Linda, that they had made. It was old home movies transferred over to VHS. Connor got to see his Daddy stumbling around as a one year old. Also as a newborn in an incubator. We also got to see Eddie's grandfather who died when Eddie was quite young. It was great to view the movies. Connor was amused by the hairstyles of the late 60's, early 70's.

This morning, Mom came down and she, Connor and myself went to a few garage sales. Of course it started raining, but we still had fun. We also stopped by where Eddie's Dad is buried. We were pulling some weeds around his tombstone, and my Mom was using her foot to move some what looked like fur of some kind. All of a sudden, an animal moved underneath her foot and she screamed. Come to find out, there was a little nest of baby bunnies burrowed up in the ground right by Granddaddy's rock. There were at least four of them in there. We didn't touch them, but they were so cute. It was really neat to us because we saw them there, and tomorrow is Easter. Kind of heartwarming, huh? Maybe it was a little message to us from Granddaddy to have a good Easter.

Tomorrow is Easter. I hope that you are going to be able to spend time with your family, and contemplate the true meaning of Easter. Thank you, God for the sacrifice you gave of your Son, to die on the cross for my sins, and the sins of all mankind.


DEAL ONLY WITH THE PRESENT,
NEVER STEP INTO TOMORROW,
FOR GOD ASKS US JUST TO TRUST HIM
AND TO NEVER "BORROW" SORROW.

FOR THE FUTURE IS NOT OURS TO KNOW,
AND IT MAY NEVER BE,
SO LET US LIVE AND GIVE OUR BEST
AND GIVE IT LAVISHLY.

FOR TO MEET TOMORROW'S TROUBLES,
BEFORE THEY ARE EVEN OURS,
IS TO ANTICIPATE THE SAVIOUR
AND TO DOUBT HIS ALL-WISE POWERS.

SO LET US BE CONTENT TO SOLVE
OUR PROBLEMS, ONE BY ONE,
ASKING NOTHING OF TOMORROW,
EXCEPT "THY WILL BE DONE."

~~~~~~Helen Steiner Rice~~~~~~

Thanks, again, for checking in on Connor. We appreciate and need the support. Please continue to pray for Connor, and for us as a family. We HAVE come a long way through prayer, and have every belief that God will heal Connor. A special thank you to all the folks at ABC Auto Auction in Old Hickory. They have been wonderful to us , and mostly to Connor. Thank you, guys, we love you!!

Take care, peace to all, and May God Bless Us All!! Have a blessed and happy Easter!

We love you all!~~Rhonda, Eddie and Connor, our brave little "Trooper"


SEEING WHAT WAS AHEAD, HE SPOKE OF THE RESURRECTION OF CHRIST, THAT HE WAS NOT ABANDONED TO THE GRAVE, NOR DID HIS BODY SEE DECAY. GOD HAS RAISED THIS JESUS TO LIFE, AND WE ARE ALL WITNESSES OF THE FACT. EXALTED TO THE RIGHT HAND OF GOD, HE HAS RECEIVED FROM THE FATHER THE PROMISED HOLY SPIRIT AND HAS POURED OUT WHAT YOU NOW SEE AND HEAR.

~~Acts 2:31-33


Monday, March 25, 2002 at 08:21 AM (CST)

Hi everyone, thanks for checking in. It's been a few days since my last update, and for that, I apologize. I started updating last night, fell asleep, finished it just now, only to find out that my "session time" had expired, so I'll try again. Last Tuesday, Connor started showing signs of the burns that we had been told about. They treated him, and gave us some ointment to use on his burns. After we left there, we went by Gilda's Club. As most of you probably know, it was founded in honor of the late Gilda Radnor, of Saturday Night Live fame, who died of cancer. The Nashville chapter is located in an old, but restored home close to Vanderbilt. The house is beautiful. We went on a tour, and loved it. Some of the rooms are meeting rooms, with big, comfy chairs, for chatting and coping with others about this disease. There is a "special" room upstairs, called 'Noogieland', just for kids. Connor thought it was really cool! We need to go to a new member meeting, get signed up, then we can go by anytime.

Wednesday was not a good day. Whitney's funeral was held at 10:00 am, so that was on my mind all day. Connor asked more questions, even though I was trying to hide my heartache. Fortunately, after his treatment, we were greeted in the Radiation dept. by Q-Bert. Q-Bert is a long-haired red Lab (I think). She comes with her owner, a wonderful lady by the name of Sarah, each Wednesday to visit with patients. She is 7 years old (in dog years), the same age as Connor (in human years!). She is sooo gentle and living. Connor loves seeing her, as does Mommy! She was good therapy for us that day.

Thursday, Connor started getting blisters, and was hurting really bad. The tough thing about it is his burns and blisters are in his groin area and on his entire bottom. He is not just uncomfortable, he is downright miserable, Bless His Heart! So Friday, when we went for treatment, the Doctor took one look and decided not to treat him that day. He prescribed a stronger antibiotic cream. We then had to go to the clinic for chemo. We were there ALL AFTERNOON. Fortunately, they have the transfusion room with video games, VCRs, and tons of stuff for the kids to do while they wait. But still, it makes for a very long day.

Saturday, I took Connor to a local church, Goodlettsville Cumberland Presbyterian Church, for their annual Easter Egg Hunt. They cover an entire football field with eggs and off the kids go. Connor had a blast. He even saw a couple of kids from school. It is so fulfilling to see him run and play just like he used to. Except for his lack of hair, there are times when you wouldn't have a clue that he is battling this monster. He is so positive and upbeat. After the hunt, we went back inside their activity building and checked out his goodies. He was so excited. He also got to see Ronald McDonald and the Easter Bunny. I can't confirm this, but I heard it was the REAL Easter Bunny!

Yesterday, after church, Connor and I went to Nana and Poppy's. Nana had prepared a delicious lunch, and we stuffed ourselves. After that, I wimped out a took a nap, first one in a while. Connor played outside all afternoon. He even rode around on the lawn mower with Poppy. That was the first thing he told me when I woke up, "Mommy, Mommy, I drove the lawn mower!" He was so proud. It was an absolutely gorgeous day! We got home around six. Then at 8:00 pm, Connor and Eddie decided we were going bowling. Of course, I was out-voted, so off we went. Connor won the first game, I won the second, and Eddie won the third. So we all went home happy. We had a great time. By the way, Sunday night is a good time to go, there was hardly anyone there.

Well, once again, thanks for checking in. We appreciate all of your support. Connor would love it if you would sign his guestbook! Please keep him in your prayers, particularly the burning issue. Please pray for relief from the constant pain and itching. He still has 17 radiation treatments to go, and the burns worsen with each one. But the radiation is absolutely necessary. Bless his heart, he is so brave, strong, and tough. It is rare that you would ever hear him complain about any aspect of his treatment. He simply amazes me each and every day. He is truly an inspiration!


LOVE IS PATIENT, LOVE IS KIND. IT DOES NOT ENVY, IT DOES NOT BOAST, IT IS NOT PROUD. IT IS NOT RUDE, IT IS NOT SELF-SEEKING, IT IS NOT EASILY ANGERED, IT KEEPS NO RECORD OF WRONGS. LOVE DOES NOT DELIGHT IN EVIL BUT REJOICES WITH THE TRUTH...ALWAYS HOPES, ALWAYS PERSEVERES. LOVE NEVER FAILS.

~~1 CORINTHIANS 13:4-8

You must give love to receive love. Take the time today to say "I Love You" more than you normally would. Enjoy every second and 1/2 second that you get to spend with your loved ones. Take nothing for granted. Enjoy the signs of Spring in the air. The budding of the trees, the grass turning ever greener, the crisp morning air, the beautiful song-birds, all a sign of God's Love for us.God gives us so much to be Thankful for, remember to thank Him each and every day for the many Blessings that He bestows upon you, both large and small. Take care, peace to all, and May God Bless Us All!

We love you!~~Rhonda, Eddie and Connor, our Brave Little "Trooper!"

**Don't forget, next Sunday is Easter~~Take a moment to reflect upon the true meaning of Easter**


JESUS SHALL REIGN

IT WAS HARD FOR HIM TO THINK ABOUT
THE BATTLE HE WOULD WIN;
WHEN IN THE GARDEN OF AGONY,
HE TOOK ON MANKIND'S SIN.

BUT STRENGTHENED BY HIS FATHER'S LOVE
WITH MINISTERING ANGELS SENT;
HE DRANK THE CUP OF OBEDIENCE,
AND WITH THE SOLDIERS WENT.

IT WAS HARD FOR HIM TO REALIZE
HE'D WEAR THE VICTOR'S CROWN;
WHEN ON THE CROSS, HIS SUFFERING
SHED BLOOD UPON THE GROUND.

AND WHEN HE FELT FORSAKEN
CIRCUMSTANCES SAID, "IT'S TRUE,
YOU WILL NOT SAVE YOURSELF, AND
YOUR GOD'S ABANDONED YOU."

HE CRIED OUT IN DESPAIR
AS HE LOOKED UP ABOVE;
AND GOD IN ALL HIS MERCY SHOWED
CHRIST HIS FATHER'S LOVE.

HE SAID TO HIM, "IT'S FINISHED!
SET FREE YOUR SPIRIT, SON!
THE ATONEMENT HAS BEEN OFFERED,
THE BATTLE HAS BEEN WON!"

SO JUST A FEW DAYS LATER
HE WORE THE VICTOR'S CROWN;
SAT RIGHT NEXT TO THE FATHER
AND SENT HIS SPIRIT DOWN.

TO STRENGTHEN US IN OUR AGONY
WHEN WE FEEL FORSAKEN, ALONE, AND LOST;
LET US CELEBRATE THE LOVE OF CHRIST,
WHO GAVE TO US HIS LIFE UPON A CROSS.

May peace surround you at Easter and always.


Tuesday, March 19, 2002 at 08:04 AM (CST)

Good day, everyone! Thanks for taking the time out of your day to check in on Connor. It means a lot to us AND to him. Well, as you may have read at the bottom of my last journal entry, after sitting around the clinic all afternoon, we were told there were no rooms available at the hospital. That really puts into perspective the number of sick children that there really are. Connor was so very sad, PSYCHE!, not really. He was elated. They told us to call Sunday morning to see if they would have a room then. So off we went.

A wonderful man that we met the night we went to the Lipscomb game had talked to Eddie on Friday, that same day we were at the clinic. He is an Assistant Fire Chief at the Nashville-Second Ave. station. He had a couple of items for Connor and wanted to bring the fire truck out to deliver them to him. Eddie had told him we were at the clinic. So, when we left, Eddie called him and he asked Eddie if we could run by the Station since we were close-by. His name is Lee. When we arrived, they presented Connor with a t-shirt like they wear, plus 2 way-too-cool caps. One of them, in addition to having Nashville Fire Dept., also acknowledges the 9/11 disaster. Connor was then taken on a tour and was allowed in each fire truck. They even got a call while we were there, so two of the trucks left out, sirens blaring. Those of you who know Connor, knows that he enjoys old-fashioned vehicles. Well, they had an "old-fashion" fire truck parked there that was going to be used in the St. Patty's day parade. One of the guys came out and told Connor that he needed to move it, and would he like to ride with him. Boy, would he ever!!! So, in he climbed, and off they went. They went around the block. I wish you could've seen the smile on Connor's face. He was on top of the WORLD!! The entire experience was wonderful for him. Thank you, guys, so very much for making his day!!!

Saturday morning, Nana and Poppy came by. Poor things, first thing they hear when they got here was, "Just a good 'ole boy, never meaning no harm...yada yada yada". Connor was booting up his Dukes of Hazzard game. I tell you, the child is addicted. If you come to our house, just prepare yourselves, Connor WILL have to show you his 'Dukes stuff'.

Sunday morning, I called the hospital first thing and left a message for the attending Physician to call me. Grandmama stopped by for a minute before church to see Connor, but he was still snoozing. We left home around 1:00 pm for the hospital. We got checked in and they started his pre-chemo fluids. Uncle Harold, Aunt Linda, and Nannie came by and brought lots of Easter surprises for Connor (and Mommy, too!). They visited with us for a while. Connor started receiving his chemo probably around 5:30. Eddie left for home around 8:00. At 9:30, the vomiting started. He had been given nausea medications to try to avoid it, but it happened. I think it was the combination of chemo and radiation being given simutaneously. Bless his heart, he got so sick, so fast. All the fluids made him swell. His face got so puffy. We had not seen that before in him, because he had always had the catheter before to keep him draining. It was scary. I laid down on the foot of his bed for the longest time massaging his legs and feet. That seemed to make him feel better. The vomiting went on until around 1:00 am, when he was finally able to get a little rest. Monday morning, it started again around 7:00 am. He was medicated again. By 10:00, he was ready to go to the playroom for a few minutes before his radiation treatment. They came for him around 10:45. We got back upstairs at 12:15, he was nauseated again, so more meds. Then we were discharged, and came home.

Now, on to some sad news. I've mentioned my cousin, Tabitha and her daughter, Chelsea, before. Tabitha's best friend is Amy. Amy's daughter is Whitney. She is six years old. She was diagnosed the SAME DAY as Connor. It was so weird, because we ended up in side-by-side rooms at Vanderbilt back then in October, 2001. Our families are from the same small town and have always known each other. Anyway, Whitney had an inoperable brain tumor. They tried chemo, but it didn't do anything for the tumor. Their last scan was January 2, 2002, and showed no change. They opted to not go with radiation. They just didn't feel as though it would help her, and they didn't want to put her through it. Mom called me Sunday at the hospital and told me that she had passed away at 2:10 in the afternoon. I was devastated, to say the least. Everyone was holding out hope for a miracle. So Monday, after getting home from the hospital, we got ready and went to Nana and Poppy's in Westmoreland. Connor stayed at their house with Poppy, and Nana, Eddie and myself headed for the funeral home. I got pretty upset, to say the least, but Pam, Whitney's grandmama, was being so strong. She actually came back there to sit with me. She told me that she didn't expect us to come, because of how hard it would be. But she assured me that Whitney was SO READY to go to be with God and Jesus. She had talked about how she would be able to run and play again in Heaven. They were at peace, it was amazing. They had watched her suffer so much. I tell you, what these kids have to go through, yet they remain SO STRONG AND BRAVE! I can not emphasize that enough. Amy, WHitney's Mom, was doing as well as could be expected. I think right now, she is just trying to get through the visitation and service, which will be Wednesday morning at 10:00 at Anderson and Woodard Funeral Home in Westmoreland. PLease pray for this family. They are going to need lots of strength to get through this. Whitney also has a sister, another Chelsea, who is seven years old and in the second grade. If you would like to send them a card, their address is as follows: Amy and Chelsea Proffitt (mom and Sis) and Pam Proffitt (Grandmama) P.O. Box 344 Westmoreland, TN 37186. They live in the same household. They need lots of support.

Well, it's Tuesday morning. Connor is up and feeling much better. Hopefully, the vomiting will subside. We'll leave here in a couple of hours for the hospital for his radiation.

Here's a quote from Helen Keller, an inspiration to us all!
'Be of good cheer. Do not think of today's failures, but of the success that may come tomorrow. You have set yourselves a difficult task, but you will succeed if you persevere; and you will find a joy in overcoming obstacles. Remember, no effort that we make to attain something beautiful is ever lost.

Thanks again to you all for encouraging us. We appreciate your continued support more than we could possibly ever tell you! Thanks for all you do to brighten Connor's day, from the guestbook entries, to the emails, to the cards and gifts. Our esteem gratitude, my friend. I forgot to add, we did tell Connor about Whitney. We have been honest about everything from the beginning with him. We feel as though that is of utmost importance. He understands that her cancer is completely different from the type he has. He knew that hers was not treatable like his is. He also has that astounding Faith that we all have, God WILL HEAL HIM!!! There is really no point in shielding him from the facts about this monster that has invaded his body. He has lost a part of his childhood and is having to fight an adult battle, so in a lot of ways, we will treat him as an adult, with info we know he can handle. He knows the lines of communication are always open, 24 hours a day, and if he ever 'wonders' about anything, all he has to do is ask. We always have told him that there are no 'stupid' questions. The only stupid question is the one that is never asked.

Take care, peace to all and May God Bless Us All!

Happiness happens from the outside: it depends on other people, events, results. Joy bubbles up from the inside; it originates with attitude.

Happiness is in the circumstances: joy is in the heart. Happiness may not happen: joy is a PROMISE from God.
_______________________________________
Beloved, think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you.

But rejoice, inasmuch as ye are partakers of Christ's sufferings; that, when his glory shall be revealed, ye may be glad also with exceeding joy.

I Peter 4:12,13

We Love you All!!!~~Rhonda, Eddie and Connor, our brave little "Trooper"!


Friday, March 15, 2002 at 07:43 AM (CST)

Hello all! Hope everyone is having a GREAT day. Connor is still snoozing this morning. After his radiation treatment today, we have to go on to the clinic to be admitted to the hospital for inpatient chemo. Yuck! His word and mine.

The past week has been mostly good. Sunday, Nana, Grandma, and my older brother, Connor's "Uncle Johnny" came down for a visit. Connor and Johnny always have a fun time playing, so Connor got pretty wound up. They were amazed with how good he was feeling. Then, Sunday evening, we went out to eat with Eddie's family for Grandmama's birthday, which was actually not until Tuesday. So Sunday was a full, but fun day.

Monday had us back at the hospital for radiation. They let me go back for the first time and see kind of how it goes. It was overwhelming for a parent to see, to say the least. Each day, when I'm waiting, I can hear the machine when the radiation is being administered, and I sit there and nearly have a panic attack. Then Connor comes out, all smiles, and gives me strength, as always. He is truly amazing.

Tuesday, when we returned home from the treatment, the tech called me and told me to make sure Connor's bladder was full for Wednesday's treatment. It seems as though that affects exactly where the treatment "hits", and they thought the past two treatments might have been a little "off". So, Wednesday, we go. They take Connor back and bring him right back out. He was going to need a new CT scan. They HAD been between 2 and 3 centimeters off for the past two treatments. So, of course, I was very concerned. We certainly don't want any area hit that wasn't necessary, especially bone. The doctor assured me that it had only been two treatments, and that it wouldn't affect anything. I hope and pray he is right. Anyway, they did not treat him Wednesday.

On the way home, Tuesday, I think, Connor told me another story that I want to share. He said that while he was on the radiation table, feet taped together, lying perfectly still, he started getting scared. He said he felt as though the machine was going to come down onto him and crush him. He then said he prayed to God to help him not be scared. He said he knew that it was the devil working on him to scare him. So then, in his mind, he could see God walked up to the devil and slap him across the face, and then told him to leave Connor alone. He said all of a sudden his fear went away, and the rest of the treatment went A-OK. This, from a 7 YEAR OLD!! I tell you, there is ALOT to be said for the power of prayer. I stand back in amazement at Connor for his Faith, Strength, and determination. He is certainly a daily, hourly, reminder to me of the Glory of God!

Thursday, on the way to the hospital for treatment, Connor started getting nauseated. By the time we went back, he was really feeling pretty bad. They brought him right back out and said that each time they put him on the table, he felt as though he was going to be sick. So they gave him some Zofran, for nausea, through his port, and we were put into a little room with a TV and VCR to wait for the medicine to kick in. While we waited, we started watching "Dennis the Menace". We both LOVE that movie. Of course, Connor's bladder was full (for treatment), so the waiting got to be a little much. He had to go. So then he had to drink again. This process was repeated FOUR times, due to other patients being treated in between Connor going to the bathroom, then drinking. Needless to say, we were there for three hours. FINALLY, he drank and made it to the table for his treatment. There was a big YAHOO! from all of us when the treatment was completed. Last night, Connor went to Grandmama's to stay while Eddie and I had a little time out together. When we dropped him off, he decided that he wanted to spend the night. That would be the first time since his diagnosis that he has spent the night away from us. But we said OK, and went on our way. We had an enjoyable dinner, then went to a comedy club and saw a comedian by the name of Tim Wilson. We really needed the laughs that he brought. We were on the way home around 9:45, and Eddie called to see if all was OK with Connor. Apparently, he had gotten really upset, wanting to come home. So we talked to him and told him we were on our way to come pick him up. Bless his heart, he was sniffling on the phone, it broke our hearts. Normally, he would have been fine. It was just, we feel as though he goes through enough without having to be upset over anything else. But we will try again another time.

I want to share a poem with you from the book 'Heartsongs' by Mattie Stepanek. He is the eleven year old little boy with Muscular Dystrophy. He has lost three siblings to the same disease. You may have seen him featured on Oprah. Anyway, he has published a couple of books of his poetry.

On Being Thankful

Dear God,
I was going to thank You tonight
For a beautiful sunrise,
That was pink behind the fog down the hill,
And for a wonderful rainbow,
That I ran under pointing to
All my favorite colors,
And for such a great sunset,
That sparkled orange across the water.
I was going to thank you tonight
For all these special gifts,
Except that none of them happened.
But do you know what?
I still love you, God,
And I have lots of other things
That I can thank you for tonight,
Even if you didn't give those
Very special gifts to me today.
It's OK, God,
Because I'll look for them all again,
When my tomorrow comes.
AMEN.

Thanks to you all for checking in on Connor. Please sign his guestbook if you have a moment. Thanks, once again, for all that you are doing for us and for him. He has been getting lots of cards and packages lately. We are so blessed to have so many wonderful, supportive family and friends to help us during this time. Please continue your prayers for Connor. There is no doubt in our minds that he has come this far due to all the prayers storming the heavens for him. Please say a prayer today that all will go well with this round of chemo. We will be at the hospital, at least through tomorrow afternoon. Thank you for all of your support! Take care, peace to all, and God Bless Us All!

UPDATE:FRIDAY EVENING 6:00 PM--We couldn't get a room at the hospital after waiting all day at the clinic. We are supposed to call Sunday morning to see if they have a room for him then. Connor was excited, to say the least.
We love you!~~Rhonda, Eddie and Connor, our brave little "Trooper!"


AND ALL THINGS, WHATSOEVER YE SHALL ASK IN PRAYER, BELIEVING, YE SHALL RECEIVE.
Matthew 21:22


Friday, March 08, 2002 at 05:09 PM (CST)

Hi everyone. I hope that you have had a great week. The weather here is absolutely beautiful today. It's 70 degrees outside. Connor and I just got home from the park. We've had a good day.

Sorry that I haven't updated all week. We are trying to get into some kind of routine with his everyday radiation going on. Sunday, Eddie had to go out of town with his job, so Connor and I spent the night with Nana and Poppy. We had a really good time. Monday, Nana worked until 10:00 a.m., so Connor, Poppy and I picked her up at work. Connor and I went in and visited with everyone for a few minutes. I tell you, those people out there are the nicest group you could possibly find anywhere. They have done (and continue to do) so much for Connor and us since his diagnosis. Nana is so fortunate to work with such a great bunch. We left Portland and headed to Vanderbilt. The radiation seemed to go well. Holly and Dennis are the tech's, and they are great with Connor. They told me that he laid perfectly still. He came out all smiles, so I knew by that, he was gonna be A-OK. We also went to the clinic for counts. They were down, so we had to be back at the clinic first thing Tuesday morning for a Red Cell Transfusion. It was over just in time to race to radiation for Tuesday's treatment.

The needle was left in Connor's port on Monday when blood was drawn, so that he would not have to be re-stuck for the transfusion. Then Tuesday, they told us they would leave it in until Friday, so they could do counts again. On Wednesday, he started itching really bad on and around his port, so I pulled the needle out. This morning, I put Emla cream on it to numb it, then a tegaderm bandage. After today's session, we went to the clinic for counts again. Fortunately, everything was up, so we can STOP the Neupogen shots until his next full round of chemo, which will be March 15. Oh yeah, Thursday, we also went to Dr. Brock's office (his Urologist). He said that everything looked great. He has healed up wonderfully from his surgery and also from the suprapubic catheter. And, of course, Connor got to see Pam, the best nurse in the WHOLE WIDE WORLD. Her friendship has been one of the many POSITIVES that has come out of Connor's illness. She is a true blessing, an "angel on Earth".

Oh, by the way, Connor has become somewhat "obsessed" with the "Dukes of Hazzard". He has two videos with episodes from the TV show. He also has a game for his playstation, "The Dukes of Hazzard--Racing for Home". Well, this week, he received an e-mail from James Best, aka Rosco P. Coletrane. He also had an entry in his guestbook from Tom Wopat, aka Luke Duke. He was SOOOOOOOOO excited. Anyone who has been to our home lately knows that he turns up the volume and sings the theme-song with all he's got. It is so funny. We need to sneak and get him on tape singing.

Well, I hope that everyone has a wonderful weekend. The temps are up, so everyone seems to be getting "Spring Fever". I saw several people out today in shorts. Enjoy the sunshine, or rain, whichever the case may be. Enjoy the birds singing, and the children laughing and playing. Thank God for each and every one of your blessings. So many times, we ask God to help us with something, then, when it happens, sometimes we forget to thank Him. The following is from a bookmark I received many years ago.

RULES FOR HAPPY LIVING

1. Count your blessings, not your troubles.

2. Live One Day At A Time.

3. Learn to say, "I Love You."

4. Learn to be a Giver, and not a Getter.

5. Look for the Good in everyone and in everything. Be a "good seeker", and not a "fault finder".

6. Pray every day. Thank God for His many blessings, and ask for his guidance. (Luke 18:1)

7. Do AT LEAST one good deed each day. Plant the seed of goodness, then stand back in amazement and watch it grow and grow.

8. Learn to "count" by learning to keep the most important things in first place.

9. Do not let things bother you, turn them over to God. Worry can destroy you.

10. Practice the "Do It Now" habit. The road to Hell is paved with good intentions. (II Corinthians 6:1-2)

11. Fill your life with Good. Clean out the trash, and fill your life with good deeds and thoughts. (Phillipians 4:8)

12. Learn to laugh and learn to cry. Laughter is really great medicine, but you also have to release your anxieties, and not hold them inside.

13. Learn to practice the happiness habit. Smile, and the World smiles with you.

14. Crowd out fears with Faith. Learn to fear nothing or no one. Think on your strengths and not on your weaknesses. (Hebrews 11:1-6)

15. Let Go and Let God Take Over. The only way to find peace and happiness is to let God take the controls of our life. (Psalms 23)

Take care, peace to all, and May God Bless Us All!

We Love You!~~Rhonda, Eddie and Connor, our Brave Little Trooper!!


Saturday, March 02, 2002 at 10:00 AM (CST)

Hi everyone. Thanks for checking in. Connor has been doing well the past few days. Of course, the main reason being~~~~the catheter is out!! I know I told you that in my last entry, but it's such BIG news to us, I wanted to say it again. The first couple of days, it was very challenging to get Connor to go, it would take up to an hour of sitting in there...waiting. But then, Friday, all of a sudden, everytime he went in there, within a minute, he would go. Yah! Yah! Yah! This is such positive news for us. Just knowing that the tumor is so small now that it is not, in any way, affecting his urethra.

I want to share with you something that I hope uplifts you. This has happened several times since the first time it happened. As you know, Connor is 7 years old. As a typical 7 year old--he knows about God and Jesus and praying, etc. We read the Bible and have prayer daily. He knows that you can pray anytime, anywhere. But in the past 5 months, I think he has discovered what it takes most people many, many years to learn. You see, the urinating issue has been a big challenge for him since he knew that the catheter was coming out. His body became accustomed to relying on the catheter. So, during these 1/2 hour to hour long bathroom sessions, I would continually pray for God to help him and relieve his anxiety so that his body would relax. Also, a couple of times, he has had me call close family friends to have them pray with him via the telephone. This week, Connor would also pray aloud. Well, one of the times, right after we both had prayed aloud, his urine started coming out immediately. As soon as he finished, he stood up, raised his arms up high, looked up toward the ceiling, and said, "Thank you God, Thank you Lord Jesus. And also Thank you God for sending your Son to die on the cross for our sins." He had tears streaming down his face. Well, I must tell you, as his Mother, I was absolutely speechless. He was so emotional and awe-struck by God's glory. I get chills thinking about it right now. SO, to make a long story short, Connor's Faith is astounding. It took me years to get to the point he is today. So you see, positive things are happening as a result of his cancer. God IS with him every step of the way, and he knows that. I am so proud of him!!! I know his story is touching so many people. I believe that God is using him, because of his strength, to show others the wonders and miracles of God's grace.

SURELY HE TOOK UP OUR INFIRMITIES
AND CARRIED OUR SORROWS,
YET WE CONSIDERED HIM STRICKEN BY
GOD, SMITTEN BY HIM, AND AFFLICTED.
BUT HE WAS PIERCED FOR OUR
TRANSGRESSIONS, HE WAS CRUSHED FOR
OUR INIQUITIES;
THE PUNISHMENT THAT BROUGHT US PEACE
WAS UPON HIM, AND BY HIS WOUNDS,
WE ARE HEALED.
ISAIAH 53:4-5 NIV

Connor has been getting his shots this week, like the "trooper" that he is. We went to the hospital Thursday. He had to go back to Radiation for x-rays and to get his body markings. I spoke with Dr. Teng, his Radiation Oncologist. He showed me on the x-ray, specifically, where the radiation will be given. Very little hip-bone will be affected. He said that there is a chance that Connor will have arthritis in that bone after radiation is complete. The main bone to worry about is his pelvic bone. One side will receive the bulk of radiation, causing it to stop growing. He will have a definite limp as the other side continues to grow. But Dr. Teng did tell me that he has known of children receiving radiation in this area to go on and play sports, even with the limp. I felt better after speaking with him again.

We have to be at the clinic for bloodwork Monday morning before he goes for radiation. When they checked his counts Thursday, they were dropping. His nurse thinks that by Monday, he is going to need a transfusion. Radiation is at 12:00. If needed, the transfusion will be given in the clinic as soon as we finish with the radiation.

Thank you for all you are doing for Connor. He gets so excited with mail delivery, to see all the cards that you guys are sending. He has had several schools and Sunday School classes send him manila envelopes full of cards. They are so cute, hand-made by the children. They say the sweetest and cutest things. Thank God for our precious children!!! Hug yours extra close today and tell them how much they mean to you. Please continue to pray for Connor and his complete healing. Also, please pray for the least amount of side effects from radiation.

Enjoy the "little" things in life. One day, you may look back and realize they were actually the "BIG" things. Take care, peace to all , and God Bless Us All!

We Love You!!~~Rhonda, Eddie and Connor, our brave little "Trooper"!!!


Tuesday, February 26, 2002 at 10:12 AM (CST)

Hi everyone! Thanks for checking in. Since I haven't updated since Thursday night, I'll start with Friday. Friday morning, Nana and Poppy came down to take us to the hospital. We had to be in Radiology at 10:30 for them to do their own CT scan. That was pretty rough for Connor because of all the dye and contrast that had to be inserted into his body. The techs were so impressed with him. For the actual scan, he had a clamp over his "privates", but yet he laid PERFECTLY STILL. I couldn't stay in the room with him, but I could see him on a monitor, and he didn't move a muscle. I can't tell you how proud I am each and every day of Connor and his strength. The techs told him that he did better than most of the adults that they get in there. My heart swells with pride, yet it makes me want to burst into tears to think of how well he does with all of the procedures, tests, poking and prodding that is done on his tiny body. After the scan, we went to the clinic for admission into the hospital for chemo. After waiting several hours, we were told that there were no rooms available in the hospital. We were told to go home and call back Saturday morning to see if they had anything. Can you believe it?!? Oh well, so goes it.

Saturday morning, I called first thing for the attending physician. He said they probably would have something, just wait by the phone and they would let us know. We decided to take Connor to Ragan and Victoria's birthday party. They are Tammy (Eddie's sister) and Shelton's twins, (boy and girl) who turned 5 on February 20. The doctor called and said they had a room, and Eddie told him we would be there after the party. We were so glad that we took him. He had a blast! He ran and played and laughed and had the best time. For a couple of hours, he forgot all about his cancer. After that, on to the hospital. We were admitted, and fluids were started. He finally was hydrated enough, and chemo was started around 6:00. He and I were awake most of the night, but no vomiting. Sunday morning, Eddie came after Sunday school, around 10:30. They were getting ready to discharge us, and Connor vomited, but only once. We came home and I gave him all of his nausea medications. Then I had to clamp off his catheter. Sunday afternoon was ROUGH. He was so nervous about urinating that it turned into a full-blown war, him against Mommy and Daddy, each time we tried to get him to go. Nana and Aunt Shirley came by to visit. While they were here, I unclamped him once to drain him because he was hurting so bad and begging me to drain his bladder. I felt so bad for him. After they left, it was back to TOUGH LOVE. Finally, Eddie positioned him on the commode the correct way (instead of to the side which is the way Connor had been sitting), and Connor start peeing. This was repeated a couple more times. Connor was so angry at Eddie, boy, can he say some bad things, but in the end, he knew Eddie was only trying to help him. From talking with so many other parents of children with cancer, the kids really have so much anger in them. They feel like they have lost all control over everything in their lives, so they lash out at the ones they love the most. It is really hard to deal with sometimes, but you learn to put yourself in their place, and realize that not only are they affected physically by the cancer, but they are greatly affected emotionally, as well. COnnor always feels so bad after an "episode", and apologizes over and over. He has always been, and continues to be, a very loving child.

Monday morning, Nana came down and went with us to Dr. Brock's office. Guess what, HE TOOK OUT THE CATHETER!!!!!!! Connor has had 8 catheters since October. Connor was laughing and crying at the same time when it came out of his stomach. He told Dr. Brock that he wanted to have a party to celebrate. Pam (Connor's favorite nurse) was in there with us. Connor loves her so very much. She is fantastic with him. Having her there helped his anxiety level alot. After leaving, tube-free, we went to the Spaghetti Factory for lunch. Then we weent in a shop on Second Ave. and Connor picked out a black cowboy hat. He loves Toby Keith, and had gotten a signed photo of him Monday morning in his PO Box. He wanted a hat like he wears. We came home after that. Nana went home, and we got down to the serious business of trying to get Connor back into the habit of going to the bathroom. It was a beautiful day, so we took his new bike outside that Santa brought, and he tried to ride it. He is still kinda sore in his groin area, so we gave up on that. All in due time. He then played with Chelsea, our next door neighbor. She is 8 years old and she and Connor used to spend most all of their free time together before Connor got sick. He enjoyed playing with her. Grandmama and Odell came by to visit for a few minutes. Connor had to show them his new "Dukes of Hazzard" tape that Eddie found for him. After they left, Connor concentrated on urinating again. His nervousness makes it difficult for his body to release his urine. I also had to start back on the Neupogen shots. He gets them for 10 to 14 days after every full round of chemo. He is so brave about it. The medicine really hurts going in.

He slept good and is in his room now playing Playstation. It has turned cold here, and we are getting a light snow-shower right now. Connor's teacher will come tomorrow. Thursday, we go back to radiation for some more pre-radiation tests and markings. Connor's counts will probably continue to drop this week after the chemo, so Thursday, we also go to the clinic to have blood drawn for counts. Monday, the radiation starts. Oh, by the way, Connor has not been able to get into a bathtub since October because of the catheters. TODAY, HE GETS TO TAKE HIS FIRST TUB BATH IN 4 AND 1/2 MONTHS! We are very excited about that.

We appreciate all of you taking time to check on Connor today. Please continue to pray for him and his complete healing. Also, please pray for the radiation to go well, with side effects kept to a minimum. We are very concerned about that, but trust in God to continue to watch over and care for Connor.

The following is from "Psalms of Hope":

God has given us a mighty sword with which to fight the predator fear--our Faith. Faith protects us from fear's torment and allows us to face each new day with hope and confidence. Faith frees us to tackle the real obstacles in our lives rather than to waste our energies dealing with difficulties that might never materialize. Our faith in God gives us the courage to face fear and drive it away.

"But I will restore health to you and heal your wounds," declares the LORD.
Jeremiah 30:17

I AM THE LORD THAT HEALETH THEE.
Exodus 15:26 KJV

We are so very thankful for all of you! Please sign Connor's guestbook, so that he will know you were here. Take care, peace to all, and God Bless Us All!

We love you!~~Rhonda, Eddie and Connor, our brave little "Trooper"


Thursday February 21, 2002 11:13 PM CST

Hi everyone. Thanks for checking in. It has been a few days since my last update, and for that, I apologize. Sunday, we went to Nana and Poppy's house. Connor did pretty well with the clamping of the catheter. His anxiety level is high concerning urinating on his own after so long, and that seems to be the root of the problem. Monday, we were not very successful. Tuesday was even worse. Wednesday was the day to see Dr. Brock. He decided to leave the catheter in until this coming Monday. He drew some urine out to be tested to make sure that Connor does not have an infection before the catheter comes out. I will clamp him off Sunday morning and leave him clamped straight through until Monday, when we return to see Dr. Brock.

Now on to our visit for our "Radiation Consultation". Eddie and I have known since Connor's diagnosis that he would have to have radiation. What we did not know, and what no one had warned us about, were the long-term side effects of the radiation. We were blown away yesterday with what we heard from the Radiology Oncologist. There are devastating side effects. Some of you may be familiar with this. The doctor actually told us that they never want to give radiation to children. After our conversation with them, we asked Dr. Brock about the necessity of the radiation with Connor, and he told us it was "absolutely necessary". We have no other option. He told us that we will have problems with radiation, but we will have bigger problems if we do not do radiation. One of the effects is that Connor's pelvic bone on one side will stop growing after it is hit with radiation. The chance of that happening is about 95%. The word "deformity" was used. Another effect is a great chance that another tumor will form in the same area in 10 to 15 years. There is also a 99% chance of major sexual side effects that I don't even want to go into. He may have long term damage to his bladder, rectum, or any thing else in the region being treated. The list goes on and on.

Needless to say, we were greatly discouraged. But, as we have been trying to do all along, we are going to take each day as it comes. Right now, our main concern is getting Connor healed of the cancer. We, with God's help, can and will deal with everything else.

MY GRACE IS SUFFICIENT FOR THEE: FOR MY STRENGTH IS MADE PERFECT IN WEAKNESS.
2 CORINTHIANS 12:9

Our main objective at the moment is to keep Connor positive and upbeat. He is a very strong-willed little boy who is having to fight an adult battle. He needs tons and tons of encouragement, and we intend to everything we can to do that. God does work miracles everyday. Please continue to pray for Connor to be healed.

WHEN THOU PASSETH THROUGH THE WATERS, I WILL BE WITH THEE; AND THROUGH THE RIVERS, THEY SHALL NOT OVERFLOW THEE. WHEN THOU WALKETH THROUGH THE FIRE, THOU SHALT NOT BE BURNED; NEITHER SHALL THE FLAME KINDLE UPON THEE.
ISAIAH 43:2

Thank you so much for everything. All the emails, cards, phone calls, thoughts and prayers mean so very much to us. I know I say that over and over again, but I truly, sincerely mean it from the bottom of my heart. Thanks to Tabitha and Chelsea for bringing Joseph down tonight to visit with Connor. It really lifts him up. Nana is coming in the morning to take us to the hospital. We have to be there in the morning for another CT scan, then admission into the hospital for the next round of chemo. Hopefully it will go well. I'll update the first chance that I get. Take care, each and every one of you, peace to all, and God Bless Us All!

We Love You!~~Rhonda, Eddie and Connor, our brave little "Trooper"!


Thursday February 21, 2002 11:13 PM CST


Saturday February 16, 2002 11:04 AM CST

Hi everyone, thanks for checking in. We have had a busy couple of days. Thursday, was Valentine's Day, of course. I took Connor to his school so that he could participate in the class party. He had a BLAST! They had made a couple of banner-like signs for him signed by all of his classmates. There was also a table of yummy food. Mrs. Becky Bustin, Paige's mom, had made a beautiful heart-shaped cake with the names of all the children on it. So they each had a personalized piece of cake. She is so talented. They brought Connor a 'Cookie Bouquet' to the hospital not long after he was diagnosed. Thanks Becky and Paige for all you do! Then the children passed out their Valentines. I can remember how exciting that was when I was their age. YES, I can still remember some things! Connor really enjoyed seeing everyone. Thanks, Mrs. Miles and Miss Rager for including Connor. You are the best!

After the party, we came home to get ready for the circus. Amy, Child-Life Specialist at Vanderbilt, had given us the tickets. The tickets were to be in the Vanderbilt Suite at Gaylord Entertainment Center. We were the first ones in there. It was so nice. There was hot food in the room. Very child-friendly food, chicken tenders, tater tots, and mac 'n cheese. The kids loved it. We all made new friends. We met Caleb, 5 years old with leukemia. He and Connor hit it off. I think they both really enjoyed each other. We enjoyed meeting Caleb's parents and his little brother Cameron. It was really a good day and night. We got home around 10:30, and we were pooped!

Yesterday, Connor slept until 11:00. His teacher came around 2:00, and he dozed off while she was here. He had been hurting, so I had given him medicine. So, of course, it made him sleepy. Deborah, his teacher, is always so understanding, so it was no big deal. She brought him a Scooby Doo mug for Valentine's Day, and brought me an inspirational daily calender. She is so sweet.

On Thursday, Connor's fave nurse, Pam, called and invited us to David Lipscomb High School for Friday night's basketball games. Her nephew, Adam, is a senior and plays on the team. We got there around 6:45. Pam was waiting in the front for us. We made our way to the bleachers. Connor had started hurting pretty bad on the way in. At half-time in the girl's game, Connor was honored by Adam with a huge basket that they had put together for him. It had a basketball signed by all the players and coaches of the boys team, a type of duffel bag, a water bottle, gatorade, snacks, and all kinds of goodies. A special prayer was lead by Mr. Steve Flatt for Connor. Connor didn't feel like walking out onto the court, so Eddie went out and thanked everyone for all the cards, prayers, and everything they have done for Connor. Then the cheerleaders came over to say 'Hi' to Connor. He was quite the celebrity. We met Will, Pam's husband, and he is just as wonderful as she is. Their entire family really made us feel so welcome. Pam, we can't thank you enough for all you do for us. We love you!

I just clamped Connor off again a little while ago, so he are hoping and praying for positive results today! He told me this morning that today was the day he was going to be able to pee on his own. He is SO READY to get the catheter OUT!!!

Thank you, one and all, once again for all the prayers, encouraging words, emails, cards, packages and everything you do. Connor received so many beautiful valentines from so many loving people. We are so blessed!

The following is from a book entitled 'HOPE for a Woman's Soul'. This particular writing is by Millie Stamm.

'As we look into the unknown future, with no clear path before us, we may become fearful. But God has provided for our future. Paul wrote, "and my God will meet all your needs according to his glorious riches in Christ Jesus" Philippians 4:19. It does not say "perhaps he will provide", or "he is able to", but he "will" provide. God is our hope for the future.
We can thank him for the past and have confidence in him for the future. Yet sometimes we find it difficult to trust him for the needs of today. But we must remember he is willing to do the same for us today as he did in the past and will do in the future. He is the great "I AM" of today, the all-sufficient One for this very moment.
Sometimes he takes us out of situations, problems, or needs; other times he takes us through them. Regardless of the way he works in our lives, we can trust him as our ever-present guide for today.


Thank you for taking the time to get an update on Connor. Please sign his guestbook, so that we will know you were here. Have a great day today. Take care, peace to all, and God Bless Us All!

We love you!~~Rhonda, Eddie and Connor, our brave little "Trooper"

UPDATE: 1:40 PM-SATURDAY~~~~~~CONNOR PEE-PEED OUT HIS PENIS~~~YAH!YAH!YAH! HE TRIED FOR ALMOST AN HOUR, DURING WHICH TIME HE CALLED BRO. JIMMIE AND HAD HIM PRAY WITH HIM, THEN WE KEPT PRAYING AND FINALLY IT HAPPENED. THIS IS A HUGE STEP FOR CONNOR! THANK YOU SO MUCH FOR ALL THE PRAYERS!


Wednesday February 13, 2002 10:12 PM CST

Hi everyone. Thanks for checking in. It's Wednesday night, and we are getting ready for bed. On Monday, I clamped off Connor's catheter, as planned. Several hours went by with NO LUCK. I unclamped him so that he could drain. A close family friend of ours, Don, had driven in from South Carolina to see Connor. So Nana, Grandma (Cass), and Don came down to visit. Then Don took us all out to dinner. We went to Cock of the Walk and had catfish. It was SOOOOOO good. We had a really good time, and Connor really enjoyed spending time with Don. Thanks, Don, We Love You!

Yesterday, when Connor woke up, we tried the clamping thing again. Once again, several hours past, Connor tried so hard to urinate, but it just wasn't happening. He was literally begging me to unclamp him so that he could drain. So that is what I did, and I didn't clamp him off anymore.

This morning, we had to go to the clinic to see Dr. Brock. He explained to us why he thought Connor couldn't go on his own. Part of it is psychological. There is actually a balloon attached to the catheter tubing inside Connor's bladder that keeps the catheter from coming out. It seems as though the tube had slipped into his bladder a little more that it should have, so that the balloon was actually blocking the opening from the inside of his bladder to his urethra. Does that make any sense? Anyway, he thinks that was the main problem. So, our next step is to check the tubing Saturday morning, make sure it hasn't slipped too far in again, then try to clamp him off again. Dr.Brock says that the catheter is coming out next week regardless of whether or not he goes before then. PLease, oh please, Lord, let him be able to go on his own.

The radiation will not start on Monday. We have a consultation appt. on Wednesday, the 20th, to set up everything concerning the radiation. On Friday, the 22nd, Connor will be admitted for chemo. I'm still not clear on when the radiation will actually begin.

Thank you to everyone for all the Valentine packages, cards, candy, and goodies that you have sent to Connor. A special Thank You to Nana's work, Appleton Wire, in Portland, TN. They sent a huge box full of all kinds of great stuff for Connor. He was so excited. Everyone out there has been unbelievable since Connor was diagnosed. They bend over backwards to encourage Connor and us, for that matter. Also, huge thanks to everyone at Hugs and Hope for all the Valentines and packages. You guys are great. We are so blessed to have so many caring, thoughtful people thinking of us during this time.

Whoever sows generously will also reap generously...for God loves a cheerful giver. And God is able to make all Grace abound toward you, so that in all things at all times, having all that you need, you will abound in every good work.

2 Corinthians 9:6-8

May God Bless You All! I hope that everyone has a wonderful Valentines Day. Enjoy the day with your loved ones. To those you love, but don't always say it to, tell them how much you love them and how much they mean to you. Sincerely ask someone how their day is going, then wait and listen for their reply. Smile, smile, smile as often as you can. Something as simple as a smile may make all the difference in someone's day. Hug your children extra tight, and let them know what a precious gift from God they really are. Let the household chores wait, ask your children what they would like to play, then take all the time that they want you to, and PLAY WITH THEM. Life is too short. Enjoy each other to the fullest extent! Take care everyone, peace to all, and God Bless Us All!

We Love You!Happy Valentine's Day!~~Rhonda, Eddie, and Connor, our brave little "Trooper"!


God is our refuge and strength...
An ever-present help in trouble.

Psalm 46:1


Your promise revives me...
it comforts me in all my troubles.

Psalm 119:50


Monday February 11, 2002 9:59 AM CST

Good morning. Thank you all for checking in. I'm sorry I haven't updated in a few days. Thank you for all the encouraging phone calls, visits, gifts, guestbook entries, and emails trying to lift us up. It worked!! Friday was just a restful day here at home. Uncle Harold and Aunt Linda came by with a huge basket full of goodies for Connor. They are such wonderful people. Linda calls each day to check on Connor. Connor, of course, had to show Uncle Harold his Playstation. Then, Friday night, Uncle Kevin and Aunt Sherry came by to visit. They brought Connor a huge bundle of balloons. I told him not to go outside with them, because he'd probably float up into the air. They stayed for awhile. It was good for all of us. Eddie and Kevin enjoyed playing CD's and "talking music".
Saturday, Connor was hurting quite a bit, but he decided he wanted to go to Opry Mills and walk around. He rarely wants to go anywhere, so we were more than ecstatic to go. We ate out there. One of the guys who was working in the restaurant went out and came back with a "point card" for the huge gameroom. He gave it to Connor and told him to have fun. So we spent probably an hour in the gameroom. Connor had a blast. Then we got a wheelchair and rode Connor around in the mall. One of the munchkins from 'The Wizard of Oz' had a booth set up in the mall. We stopped to talk with him. He sang the 'Lollipop Guild' song from the movie to Connor. Now that was exciting. A lady who happened to be standing there volunteered to take Connor's picture with the Munchkin with her digital camera. She is going to email tham to me at some point. We finally left the mall around 9:00. Connor really enjoyed himself, but was starting to hurt.

Yesterday, on Sunday, we let Connor sleep in. Eddie went to church alone. Grandmama came by around 2:00 to visit, and stayed for a couple of hours. Connor had to show her all of his skills on Playstation. Around 5:15, Connor and I decided to go to Mt. Pleasant General Baptist Church and visit. Eddie had gone to pick up prescriptions, so Connor and I went by ourselves. Everyone at the church was really surprised to see us. They were having a special candle-lighting service that was just beautiful. Then, the entire church had a very special prayer for Connor and his healing. After church, we were invited to go eat Mexican food (my favorite!!!). A large group of us went and really had a good time. Thanks Danny and Betty Jo for our meal! We then went back to their house (they are Joseph's parents), so that the 'boys' could play Playstation. Connor got to go out into the garage, and sit in Joseph's way too cool race car. He really had a great time. Joseph is such a wonderful young man, and Connor has really become attached to him in a big way! Joseph's entire family made us feel so at home with them. Thanks to all for such a great night. We didn't get home until around 10:30.

Today, I start clamping off Connor's catheter, to try to get him to urinate on his own. PLease, oh please, pray for Connor. He has been dreading this so much, even though he absolutely detests the catheter. He is so afraid everything is going to hurt.

Our Lord, we belong to You.
We tell You what worries us,
and You won't let us fall.

Psalms 55:22


He will command His angels concerning you,
to guard you in all your ways;
they will lift you up in their hands,
so that you will not strike your foot against a stone.

Psalms 91:11-12

Like a gentle shepherd, God guides us around the obstacles that block our path and through the waters that threaten to sweep us off our feet. Sometimes he carries our burdens, and sometimes he carries us. Through it all, we are never alone. He is always with us, sharing our cares, lightening our load, clearing the path before us, and assuring us that we will, one day soon, reach our destination.

--Taken from 'Psalms of Hope'
given to me by (Aunt) Linda

Please keep those prayers coming, also, please sign Connor's guestbook. He asks me each day to read it to him. Thanks you for all the wonderful things that each and every one of you are doing for us and for Connor. Take care, peace to all, and God bless us all!

We Love you!--Rhonda, Eddie and Connor, our brave little "Trooper"!


Thursday February 7, 2002 5:23 PM CST

Hi everyone. Thanks for checking in. We are home from the hospital. I couldn't get to a computer there to update you. Connor's surgery went fine. The tumor could not be removed. The tumor is very small, but in order to remove it, his urethra would also have to come out. He did get a port in his upper right chest, almost to his shoulder, and his hickman tubes in his chest came out. Now all of his chemo, blood work, and meds will go in through the port instead of his "tubies". He also got a new suprapubic catheter. We have to start clamping him off Monday, hopefully he will be able to urinate on his own. Then his catheter will probably come out by the end of next week. The incision to get to the area around the tumor was made between his scrotum and his rectum. He is going to be pretty sore for a few days, and his arm next to the port is also sore.

Connor will start radiation in 8 to 10 days. He will be receiving chemo at the same time. The doctors are confident that the combination of the two will furthur reduce the tumor to nothing. I would not be honest if I told you that I'm not discouraged. We had really geared ourselves up for the removal of the tumor. But, like I've said many times before, "One day at a Time!" We have every confidence in Connor's doctors, their ability, and the decisions that they make. We also know that God is going to bring Connor to a healing. We absolutely can not think of this any other way. There is no room for doubt.

AND WE KNOW THAT IN ALL THINGS GOD WORKS FOR THE GOOD OF THOSE WHO LOVE HIM, WHO HAVE BEEN CALLED ACCORDING TO HIS PURPOSE.

ROMANS 8:28


Thank you all for all the prayers. Please keep remembering Connor and us in your prayers. We are, indeed, lifted up by all the guestbook entries, card, and e-mails that we have received. We are blessed to have so many people encouraging us. Nana and Poppy braved the snow this morning, and came to the hospital to be with us. They followed us home, and have been with us all day. Nana even brought supplies to cook for us. Eddie had to work today, so I was really needing them. Thank you Nana and Poppy for everything.

Take care everyone, peace to all, and God Bless Us All!

We Love You!--Rhonda, Eddie and Connor, our brave little "Trooper"


Wednesday February 6, 2002 3:44 AM CST

Hi everyone. Thanks for checking in. TODAY IS THE BIG DAY!!! I've had almost 2 hours of sleep all night. Who could sleep at a time like this?!?

DO NOT LET YOUR HEARTS BE TROUBLED. TRUST IN GOD; TRUST ALSO IN ME.
JOHN 14:1

All will go well today, God is in control of everything. The flowers of May could not flourish if it were not for the showers and dark days of April. God has a plan for everything and everyone. I am amazed when I stop and think how many lives Connor and his story have touched. I know that God has great things in store for him.

Well, Monday we went for the CT scan. We haven't heard anything from it, so I guess Dr. Brock will talk to us about it before Connor's surgery. Monday night, we, along with Grandmama, went to Loco Lupe's in Hendersonville. The Mariachi band was playing. We saw some good friends of ours from church, then, just before we left, we saw our new friend, Hannah, and her family. Hannah is 10 years old, lives in Goodlettsville, and also has cancer. It was so ironic that we were there at the same time. Hannah looked great, her counts were up, and she seemed to be feeling good. Please remember Hannah and her family in your prayers also. She is a sweetheart.

Yesterday, (Tuesday), we hung out at home, trying to get ready for today. Bro. Jimmie and Joseph came by last night to visit with us. Connor was so excited when Joseph called to tell us they were coming. He says that Joseph is his new best friend. Thank you so much, guys, for putting that smile on Connor's face. He loves you and so do we! Of course, they ended up in Connor's room playing Playstation. Connor has a new game, The Dukes of Hazzard, and he absolutely loves it. Of course, we grew up with the Duke boys, Uncle Jesse, and Daisy, so it is great that he is so "into" it. Bro. Jimmie and Joseph brought Connor a HUGE basket full of goodies for at home and the hospital. Joseph brought Connor a picture of him in his dragster that he races. Connor thought that was super-cool! As soon as they left, Connor looked at me and said, "Mommy, I miss them already so much that I could cry." He has really taken to them. We are so blessed to have SO MANY WONDERFUL NEW FRIENDS!

Well, hopefully I will be able to let you all know via this website, how the surgery goes. Sometimes it takes a while to get a computer in the hospital, but I will do my best. Thank you to you all for each and every thing that you are doing for us. The prayers that are storming the Heavens are the main thing that has carried us this far. God is working a miracle in Connor, we just KNOW that! Connor's suffering of the past four months is but a stepping-stone in the purpose that God has planned for him. All the prayers, coupled with Connor's strength and determination (hard-headedness, if you will), have brought him this far, and God's grace will lead him on.

NOT ONLY SO, BUT WE REJOICE IN OUR SUFFERINGS, BECAUSE WE KNOW THAT SUFFERING PRODUCES PERSEVERANCE; PERSEVERANCE, CHARACTER; AND CHARACTER, HOPE.
ROMANS 5:3-4

Please keep those prayers a-comin'.

AH, SOVEREIGN LORD, YOU HAVE MADE THE HEAVENS AND THE EARTH BY YOUR GREAT POWER AND OUTSTRETCHED ARM. NOTHING IS TOO HARD FOR YOU.
JEREMIAH 32:17

A great big "Thank You" to you all. Take care, peace to all, and May God Bless Us All!

We love you!--Rhonda, Eddie, and Connor, our brave little "Trooper"!


Sunday February 3, 2002 10:28 PM CST

Hi everyone! Thanks for checking in. We have had a good weekend, and now are winding down. Yesterday, (Saturday), we hung out at home all day. Nana and Poppy came down around 5:00 pm to stay with Connor while Eddie and I had a little dinner "date". We really enjoyed ourselves. Connor had not been hurting all day, so that made it a lot easier to leave for a little while. When we got back, he was having a great time with them. He was talking 90 miles an hour, and laughing like you wouldn't believe. He was worn out when they left.

This morning, he woke up hurting pretty early. I gave him medicine and he went back to sleep. Eddie left for Sunday School, then Connor and I went for the Worship service. Our preacher, Keith Parker, had a special prayer for us after services. Connor wanted to go to Shoney's for lunch. We got home around 2:00. Around 3:30, Connor fell asleep on the sofa, and slept for 4 hours. He felt much better when he woke up. Of course, that means we will be up half the night. But that's OK, I can't bear to wake him when he is sleeping so well. I know when he sleeps, he is not hurting.

Tomorrow we go for a CT scan. Then surgery on Wednesday at 1:00. Please say an extra prayer for Connor this week. We just know that the surgery will go well, and the doctors will be able to remove all of the tumor.

DEAR FRIENDS, IF OUR HEARTS DO NOT
CONDEMN US, WE HAVE CONFIDENCE BEFORE
GOD AND RECEIVE FROM HIM ANYTHING WE
ASK, BECAUSE WE OBEY HIS COMMANDS AND
DO WHAT PLEASES HIM.
1 JOHN 3:21-22

I AM THE LORD, THE GOD OF ALL MANKIND.
IS ANYTHING TOO HARD FOR ME?
JEREMIAH 32:27

Thank you so much for encouraging us. You really keep us going. Sometimes it feels as though we are free-falling, but with the help of family and friends and God's grace, there is always a cushion to soften the fall. Take care, peace to all, and God Bless us all! Have a GREAT week!

We love you! Rhonda, Eddie, and Connor, our brave little "Trooper"!


Friday February 1, 2002 8:53 PM CST

Hi everyone! Thanks for checking in. We are winding down from a pretty rough week. Connor and I had no sleep on Monday night, Tuesday night, or Wednesday night, and very little sleep last night. But he did sleep until 12:00 noon today, so that was good. I hate to sound like a pessimist, but today was a baaaaad day. Connor has really been having mood swings lately, then when you factor in the lack of a good night's rest, watch out! His teacher came by today, and he wasn't the most cooperative student. After she left, things went from bad to worse. We were supposed to have a group of friends from Mt. Pleasant Gen. Baptist Church over tonight. Connor had looked forward to it all week. Then, this afternoon, his mood changed and he started arguing about everything and nothing. It escalated until we took away T.V. and Playstation. He then proceeded to throw the worst temper tantrum ever in the history of the world. That, in turn, caused his abdomen to start hurting really bad where the catheter goes in. To make a long story short, (because I'm rambling), I had to call my cousin, Tabitha, and postpone their visit. I hated to do it, but I actually thought we were going to eventually have to go to the ER. I've heard from other "cancer parents" of these mood swings, but could never imagine how bad they can actually get. Hopefully tomorrow will be a better day.

On a lighter note, I'm so proud of my "little" brother Chad. He graduated this morning from basic training for the Navy in Great Lakes, Ill. His next training will be in Pensacola. We have missed him so much, especially Connor. They are big buddies, and Connor can hardly wait to see him. Way to go, Chad!!!

Well, I hope everyone has a great weekend. Thanks for all the guestbook entries, emails, cards, and gifts. We are overwhelmed by your generosity.

GOD IS OUR REFUGE AND STRENGTH, AN EVER-PRESENT HELP IN TROUBLE. THEREFORE WE WILL NOT FEAR, THOUGH THE EARTH GIVE WAY AND THE MOUNTAINS FALL INTO THE HEART OF THE SEA, THOUGH IT'S WATERS ROAR AND FOAM AND THE MOUNTAINS QUAKE WITH THEIR SURGING.
PSALM 46:1-3

THE PRAYER OF A RIGHTEOUS MAN MAKES TREMENDOUS POWER AVAILABLE--DYNAMIC IN IT'S WORKING.
JAMES 5:16

KNOW GOD, KNOW PEACE
NO GOD, NO PEACE!

Take care everyone, peace to all, and God Bless Us All!

We Love You!--Rhonda, Eddie, and Connor, our brave little "Trooper"


Wednesday January 30, 2002 9:48 PM CST

Hi everyone. Thanks for checking in. We are winding down from a busy day. I took Connor to the clinic this morning to have blood drawn for counts. His counts were all back up. Yah! Yah! Yah! That means he did not have to have a transfusion. It also means we can stop his daily shot of neupogen for now. It starts after every full round of chemo (every third week) and continues for 10-14 days. Providing Connor does not spike a fever or have any other problems, we do not have another dr's appt. until Monday when he goes for his CT scan. Then one week from today, (the countdown is ON!!), surgery to remove what is left of the tumor. Something funny I wanted to add, this morning, when we were getting ready to go, Connor told me he hoped he had to get platelets today, so that he could play in the playroom at the clinic. Wow! But, at least he doesn't mind being there. Each time we go, we are always there for several hours.

Yesterday was another beautiful day. We stayed in all day, because I was still unsure of his counts, and didn't want to take any chances. Grandmama came by last night and visited with Connor for a while.

We can never thank you all enough for all the prayers, thoughts, gifts, cards, kind words, and "shoulders to lean on".

DO NOT FORGET TO DO GOOD AND TO SHARE WITH OTHERS, FOR WITH SUCH SACRIFICES GOD IS PLEASED.
HEBREWS 13:16

H: HEAVENLY
O: OMNIPOTENT
P: POWERFUL
E: EVERLASTING SAVIOR

Never fear tomorrow, God is already there!

Take care everyone, peace to all and God bless us all!

We Love You! Rhonda, Eddie, and Connor, our brave little "Trooper"!


Monday January 28, 2002 7:48 PM CST

Good evening everyone. Thanks for checking in. As I wrote in yesterday's journal, we spent the day at Nana and Poppy's house. Nana had cooked a delicious lunch of Chicken 'N Dumplins, broccoli and rice, mashed potatoes, white beans, cole slaw, macaroni and cheese, lima beans, corn bread, and strawberry jello cake for dessert. Yum, Yum, Yum!!! I have to say, I didn't take after my Mom with her culinary skills. She is a great cook! Anyway, after we stuffed our faces, we just visited with them for a while. Tabitha and Joseph came by to see Connor. After they left, I think we ALL took a nap. First nap I've had in a while. Connor and I got home around 7:00 pm.

This morning, we had to be at the clinic for counts at 9:30. His red blood count was very low so he had to get a Red Blood Cell transfusion. We were there most of the day. Connor was really weak all day, naturally, and was in quite a bit of pain in his legs and back. We have to be back down there Wednesday morning at 9:30 for counts again, and probably a Platelet transfusion. He was kind of borderline today on his platelet count, but not quite enough for that transfusion. He is also running a low-grade fever, and is neutrophenic, which means he can't have visitors until his counts come up some to avoid exposure to any kind of germ.

Thank you for being our continued support system. You have no idea the amount of gratitude that we have for each of you. May you all receive blessings back for all the blessings that you are bestowing upon us. We know that Connor's story is touching alot of people in alot of positive ways, and we are thankful to God for that. Please keep those prayers coming.

SURELY GOD IS MY SALVATION; I WILL TRUST AND NOT BE AFRAID. THE LORD, THE LORD, IS MY STRENGTH AND MY SONG; HE HAS BECOME MY SALVATION. ISAIAH 12:2

MAY THE LORD DIRECT YOUR HEARTS INTO GOD'S LOVE AND CHRIST'S PERSEVERANCE. NOW MAY THE LORD OF PEACE HIMSELF GIVE YOU PEACE AT ALL TIMES AND IN EVERY WAY. THE LORD BE WITH ALL OF YOU! 2 THESSALONIANS 3:5,16

Take care, peace to all, and God Bless Us All!

We Love You! Rhonda, Eddie, and Connor, our brave little "Trooper"!


Sunday January 27, 2002 8:20 AM CST

Good morning everyone. Connor is already up this morning eating scrambled eggs and bacon and watching Rugrats. He is excited because we are going to Nana and Poppy's house today. It is a bright-sunshiney day here and the temp is supposed to be something like 62 degrees.

Yesterday morning, I had to leave for a couple of hours to get my root canal finished. I came home and we relaxed at home for a few hours before getting ready for Scooby Doo. We went downtown around 4:30 to get something to eat before the show. Not long after we were seated, Connor started hurting. I had just given him his medicine before we left home, so it wasn't time for more yet. By the time our food came, he and I were both in tears. I literally carried him to the restroom and tried to soothe him, but it wasn't getting any better. We got back to the table, the waitress brought us our check and we left. We drove to TPAC, where the show was going to be. Connor was actually saying that he just wanted to go home. I finally talked him into trying to walk a little to see if that would alleviate some of the pain. We got inside and Eddie got him a wheelchair. His pain finally started subsiding. The show was an hour and a half long, and he made it through just fine. He really enjoyed it. After the show he asked us what our favorite part was, we told him, then he said that his favorite part was ALL OF IT! Thank goodness he was able to enjoy it. We actually were thinking beforehand that we were going to have to go to the emergency room.

Most of his pain is due to the catheter, as I have probably told you before. When he has bladder spasms, the walls of his bladder constrict and he is not able to release urine, even through the catheter. I think last night was a really bad bladder spasm. The nerve endings in his penis are affected in a big way with the spasms resulting in a lot of pain there. Hopefully after his surgery, the catheter can come out, and we can re-train him on going to the bathroom on his own.

Thanks for checking in, thanks mostly for all the prayers, and please continue praying for Connor. Surgery is just ten days away now, on February 6th. Yah! Yah! Yah! Take care, peace to all, and God Bless Us All!

We love you all!Rhonda, Eddie, and Connor, our brave little "Trooper"!

P.S. Thanks for signing the guestbook. He is always asking me to read him the new entries. We have been overwhelmed with the response he is getting from all over the world! We love you!

BE ANXIOUS FOR NOTHING, BUT IN EVERYTHING BY PRAYER AND SUPPLICATION, WITH THANKSGIVING, LET YOUR REQUESTS BE KNOWN TO GOD.
AND THE PEACE OF GOD, WHICH SURPASSES ALL UNDERSTANDING, WILL GUARD YOUR HEARTS AND MINDS THROUGH CHRIST JESUS.

PHILIPPIANS 4:6,7


Friday January 25, 2002 10:26 PM CST

Hello everyone! Thanks for checking in. Connor and Eddie are downstairs playing CD's and singing, Boy oh boy! So I thought it would be a good time to update the journal. Connor had a rough night Wednesday night. He was hurting and itching most of the night. His medications helped some, but never took it away completely. Thursday was an OK day, he laid around most of the day. Thursday night, he had some visitors from Mt. Pleasant General Baptist Church in Cottontown. My cousin Tabitha, her daughter Chelsea, Bro. Jimmie Vaughn, the Youth Minister, Betty Jo and Joseph, her son. We had a really good time talking with them. Someone mentioned PLAYSTATION, so Connor took the "boys" up to his room. Joseph showed Connor some new tricks on some of the games. Connor had a blast. After they left, he kept asking me when they would be coming back. It was really good for him to laugh and have such a good time.

Today we went to the clinic. We thought Connor would be getting Chemo, but apparently on this regimen, he skips this week and next. His Red Blood Count was very low, so we have to go back Monday morning, possibly for a transfusion. Hopefully everything will go well for tomorrow, because we can't let anything mess up SCOOBY DOO LIVE ON STAGE! The show is at 7:00 pm tomorrow night. We are all looking forward to it. Scooby has been around since I was a little girl, and was always my favorite too.

Thanks for the countless prayers that I know are going up for Connor. We appreciate each and every one of you, near and afar, for keeping up with Connor's progress. What would we do without you???
Take care, peace to all, and God Bless Us All!

We Love You All!--Rhonda, Eddie, and Connor, our brave little "Trooper"!

I CAN DO ALL THINGS THROUGH CHRIST WHICH STRENGTHENETH ME.
PHILIPPIANS 4:13


Wednesday January 23, 2002 10:09 PM CST

Hello everyone. Thanks once again for checking in. Today has been a good day. Connor woke up smiling, and has felt great all day. Yea! He rented a couple of games last night for his Playstation, so he has spent alot of time playing that today. His homebound teacher, Debra, came this afternoon and spent probably an hour and 1/2 working with him. He has lots of catching up to do, but just like with everything else, "One Day At A Time!"

Grandma "Cass", Aunt Sherry and Kyla came by this evening and visited with us for a couple of hours. Grandma brought her wonderful HOMEMADE Banana Pudding. Yum, Yum, Yum. She has been spoiling me with that since I was a little girl. Thanks Grandma, We Love You!

Thanks to everyone for all the continued prayers. Please keep 'em coming.

THE LORD IS NEAR TO ALL WHO CALL ON HIM, TO ALL WHO CALL ON HIM IN TRUTH.
PSALM 145:18

Thank you also for your encouragement. I shudder to think where we might be today without all the kind, encouraging, thought-provoking, prayerful, compassionate, and sympathetic words from all our friends and loved ones. Sometimes we all have to be reminded that God IS in charge, and all we need to do is turn our burdens over to Him, and He will carry them for us. Isn't that such a wonderful thing.

Take care, peace to all, and God Bless Us All!

We love you all! Rhonda, Eddie and Connor, our brave little Trooper!


Monday January 21, 2002 9:12 PM CST

Hi everyone. Thanks for checking in. We were really lucky this time with the "full round" of chemo. When I wrote Saturday, Connor had not really gotten sick any. During the night Saturday night, he started vomiting some. Then Sunday afternoon, he did again. We stayed in all day Sunday and rested. I actually got to watch a movie on "Lifetime". With me being the only female in the house (besides Lexi, our kitten), sometimes it is hard to watch the "Channel for Women". Oh well, all in all it was an enjoyable day.

This morning, Connor slept until after 10:00. We left around 1:30 to go to Dr. Brock's office. We found out, for sure, that Connor's next CT scan will be on Feb. 4 (Monday), and then surgery to remove the remainder of the tumor will be on Wednesday, Feb. 6. He will be in the hospital at least overnight. His doctors will then make a determination as to whether or not he will have radiation and how much he will need, if any. Then back to more chemo. Things are looking really good for Connor, thanks to all the prayers.

ASK, AND IT SHALL BE GIVEN YOU; SEEK, AND YE SHALL FIND; KNOCK, AND IT SHALL BE OPENED UNTO YOU:
FOR EVERYONE THAT ASKETH RECEIVETH; AND HE THAT SEEKETH FINDETH; AND TO HIM THAT KNOCKETH, IT SHALL BE OPENED.

MATTHEW 7:7,8

We got out for a little while this evening. The mall was empty, so we took Connor to the game room in there to play some video games, one of his favorite things. He will be going to bed soon. He is hurting pretty bad right now, so he just had some medicine. We still have to do his shot before bedtime. We started it back up yesterday, and will continue for at least 10 days, until his counts get to an acceptable level. He always prefers to do it at the end of the day as opposed to first thing in the morning. He is SOOOOOOO brave about getting it.

I hope everyone has a good night and a great day tomorrow. God gave us a beautiful day today, plenty of sunshine and blue skies. Take care, peace to all, and God bless us all!

We love you! Rhonda, Eddie, and Connor, our brave little "Trooper"!

P.S. All of you who have children, give them an extra tight hug tonight at bedtime, they are such a blessing.

TRAIN UP A CHILD IN THE WAY HE SHOULD GO: AND WHEN HE IS OLD, HE WILL NOT DEPART FROM IT.

PROVERBS 22:6


Saturday January 19, 2002 6:52 PM CST

Hi everyone. Thanks for checking in. I'm sorry I haven't posted in a couple of days. Thursday, Connor had such a good day and was feeling great, so we decided to take him to Chuck E. Cheese for dinner and to play for a while before his chemo Friday. He had a great time. As soon as we got there, we ran into one of Connor's friends from pre-school, Zachary. He really enjoyed seeing him. Then we saw some friends of ours, Monica and her son, Sylvain. It was good for us all to get out and have fun. Afterwards, we went to Baskin Robbins and picked up ice cream and went to Grandmama's house. Nannie was staying with her for a couple of days, so we all had ice cream and visited for a while.

Then Friday morning, on to the clinic for admission into the hospital for chemo. We got down there at noon, and into our room around 4:00 pm. Chemo was started around 8:30 after Connor was hydrated to the level he needed to be. He and I were up quite a bit during the night, mostly with him hurting in his penis. The catheter causes that, but also the chemo coming back out of his system seems to be really hard on him. I asked for him to get nausea medication twice during the night, and he only got sick once and it was very little then. I tell you, I prayed ALL NIGHT LONG for this round to go much better, and once again, prayers were answered!

Have mercy on me, O LORD, for I call to you all day long. Psalm 86:3

Nana and Poppy brought breakfast to the hospital, and miraculously, Connor's appetite was back. We couldn't believe it. They stayed with Connor while Eddie took me to the dentist for the root canal that had kept being put off since Connor was first diagnosed. We were gone for 2 hours and when we got back, Connor had a Nintendo in his room. He was really feeling good.

We were dismissed shortly thereafter. Nana and Poppy followed us home and helped unload all our "stuff". Eddie stopped and got bar-b-q and we all ate. Connor ate some bar-b-q, some white beans, and FOUR scrambled eggs. We are really going through the eggs lately. Anyone have a spare hen we could borrow? Connor wants them all the time. Grandmama came by and ate too, and visited for a little while.

It is now after 7:00. and Connor has been sleeping for about 2 1/2 hours now. I guess I'd better wake him or he will be up all night. Thanks for those continued prayers, and all the entries into the guest book. You all are very uplifting!

And whatever you do, whether in word or deed, do it all in the name of the LORD JESUS, giving thanks to GOD the FATHER through him. Colossians 3:17

Take care, peace to all, and God Bless Us All!

We love you! Rhonda, Eddie, and Connor, our brave little "Trooper"!


Thursday January 17, 2002 10:03 AM CST

Hi everyone! Thanks for checking in. Connor is still snoozing this morning. He had a big day yesterday. Dr. Brock took him back for surgery early, around 10:30 am. He didn't remove the tumor. He wants him to have another full round of chemo first. Connor will be admitted tomorrow (Friday) into the hospital. In a couple of weeks, Dr. Brock will do a biopsy of the area. He said the tumor is SO SMALL now that he is having a difficult time deciding whether to remove what is left or let the chemo continue working. He showed us the CT scans (3 since October), so we were able to see the difference for ourselves. In October, The mass literally filled in every crevice in the region between his bladder, urethra, and rectum. In November, it appeared to have reduced in size by at least half. Then this past Friday, it is virtually just a speck on the scan! Yeah! Yeah! Yeah! Connor's urethra and rectum are clear now, so hopefully very SOON his suprapubic catheter can come out.

Isn't it amazing what Prayer can do? That is exactly what has gotten us this far in this battle against this monster called cancer. Thanks for all your entries into Connor's guestbook, please sign in again and again, he loves hearing from each and every one of you! It is very encouraging.

We hope everyone has a great day! Take care, peace to all, and God bless us all!

We love you all! Rhonda, Eddie, and Connor, our brave little Trooper!


Monday, January 14, 2001--9:30 pm

Hi everyone. Thanks for checking in. Today has been a GREAT day. Wanna know why? Because Dr. Brock, Connor's Urologist, called to let me know he had read the CT scan. He said he saw "remarkable improvement" in the size of Connor's tumor. I asked him if he thought it was less that 50% of what it was originally. His words were, "Yes, my God, less than 10%, even less than 5%." In other words, the tumor has shrunk 95%!!!!!!! Can you believe it?!? Let me tell you, that is a perfect example of the Power of Prayer! He said that it is so small that he hasn't yet decided his next step. Connor will have an exploratory surgery Wednesday so that Dr. Brock can examine his bladder.(because of the suprapubic catheter being in for 3 months now.) He will then check the tumor and the area around it to determine whether or not to remove it. We are SO excited. Just to know the chemo is working so well. Thank you everyone for all your prayers, and please keep 'em coming.

A short, but sweet verse:

When I am afraid, I will trust in you.
Psalm 56:3

The Lord's faithfulness is monumental, majestic, true, and permanently dependable!

Take care, peace to all, and God Bless Us All!

We love you all! Rhonda, Eddie, and Connor, our brave little Trooper!


Sunday, January 13, 2002 at 06:28 PM (CST)

Hi everyone. Thanks for checking in. Well, I haven't updated since Friday so we'll start there. We went for the CT scan, then on to the clinic for chemo. Dr. Shankar wasn't at the clinic, but she called before we left and told me that she had looked at the scan. She said based on what she saw that the tumor appears to have shrunk 50% since November. Yea!Yea!Yea! She THINKS that Dr. Brock, Connor's urologist and the surgeon who will make the decision, will probably be ready to remove it. I should hear from him tomorrow after he views the scan. Please pray, pray, pray that we will get great news.

Last night we went to see the Predators play hockey. Connor did ride the Zamboni just before the start of the game. He did fantastic. They told him to wave at the crowd and boy, did he ever. His arm never came down the entire time. The game was great (Preds won 2-1 against the Ducks) and then all the kids got to go to the locker room to meet the players. Connor got his jersey signed by 8 or 10 players. He absolutely had the time of his life. We didn't get home until after 11:00 pm and he was exhausted.

Nana and Poppy came down to see Connor today and he enjoyed visiting with them. They brought breakfast and once again, Connor gobbled it down.

We are concerned about his legs. The Vincristine (chemo that he gets every week), has a side effect in some children that causes constant pain in their legs. Connor seems to be having more and more trouble all the time walking. We were told Friday that either they will have to cut down the dosage or he may have to have physical therapy. I think we are supposed to talk about that this week as well.

Well, I'll close for now. Keep those prayers coming, please.

DO NOT LET YOUR HEARTS BE TROUBLED. TRUST IN GOD; TRUST ALSO IN ME.
JOHN 14:1

Look to the LORD and his strength; seek his face always.
1 CHRONICLES 16:11


Take care, peace to all, and God bless us all!

We love you! Rhonda, Eddie and Connor, our brave little Trooper!


Friday, January 11, 2002 at 04:30 AM (CST)

Good morning everyone. I finally got to sleep at 2:30 am and I'm back up at 4:30 am, could it be anticipation about the CT scan? Connor, bless his heart, woke up at 12:00 and stayed awake in bed with me until 2:15 am. We really had a great talk. He really amazes me with some of the grown-up talk that he can come out with sometimes. The child never forgets anything. He was talking about stuff that happened 3 years ago, in detail. Some of the stuff, I don't remember. One thing he said that was so cute was, "I'm bald, I'm small, but I can handle it all." Short, sweet, to the point, but OH, how profound! I asked him to please tell me that again today so that I could write it down, but how could I possibly forget that. That is what I mean when I call him my "Little Trooper." It just makes my heart ache to think about all that he goes through with this disease.

Well, like I said, today is the day! Our scan is at 11:00 am, then on the clinic for chemo. He is so nervous about his scan, more so than he has been before. I've tried to reassure him by telling him that I will be right there with him. The thing about it is, we will not know results until next week. Dr. Shankar has already told us that.

May the Lord direct your hearts into God's love and Christ's perseverance. Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you.
2 Thessalonians 3:5,16

This is just another occasion when we have to put our Trust and Faith in God, and wait out the results. Please pray for us today, and every day. I know that we will get GREAT news back from the scan. We are just SO ready to get this "mass" out of Connor! I have prayed and prayed for it to just be gone from his body, never to return. God IS the great Healer and Physician!

Take care today, peace to all, have a great day, and by all means, God Bless Us All!

We love you! Rhonda, Eddie, and Connor, our brave little Trooper!

Love the Lord your God with all your heart and with all your soul and with all your strength.
Deuteronomy 6:5


Wednesday, January 09, 2002 at 08:23 PM (CST)

Hi everyone. Sorry I haven't updated in a couple of days, but I haven't been feeling well. I've had an abcessed tooth, but I'm not sure if it is related to that or just a virus. Anyway, I'm finally starting to feel a little better. Connor has had a good couple of days. We have been doing his IV antibiotics every 8 hours. Hopefully they are doing their job. I guess we'll find out soon enough. But he does seem to feel better.

His home health nurse came this morning to draw blood for counts. We expected to hear back tonight from that, but so far, we have not. His home-bound teacher came by this afternoon and left a TON of work for him to be working on as he feels like it. She will be back next week. Her husband came by too, and brought Connor a camo hat from the Nashville Fire Dept. Connor loves it. It matches his camo stuff that Nana and Poppy got him for Christmas.

If anyone reading this is going to be at the Predators game this Saturday night, look for Connor on the Zamboni before the start of the game. We are going with a group from Vanderbilt compliments of Amy, Child Life Representative. Connor is really looking forward to it. He will also get to go to the locker room after the game and meet a couple of the players.

Thanks for checking in. Please sign the guestbook. We love the encouragement. Please continue sending up those prayers. Our next CT scan is only 2 days away now, on Friday, the 11th. We know that we will get good news!!

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God.
Philippians 4:6

Take care, peace to all, and God bless us all!

We love you! Rhonda, Eddie, and Connor, our brave little Trooper!!


Monday, January 07, 2002 at 09:19 PM (CST)

Hi everyone. Well, much to our surprise, we are at HOME!!! Connor had a good night last night. I was awake this morning well before Connor, so I spent my time praying by his bedside. When he awoke, he looked at me and said, "Mommy, I feel much better today!" The answer to all our prayers. He was eating Rice Krispies when Nana and Poppy got to the hospital around 9:00 am. They brought Nana's yummy homemade biscuits and bacon that Poppy had fried. Connor ate it up. We couldn't believe it. His appetite is back.

He continued his IV antibiotics all morning. Around 12:00, the playroom closed for lunch. They let us bring Connor in there so that he could play without picking up germs from other children. He really enjoyed it. Nana and Poppy left around 1:15, and we went back to the room. We were told that he was going to be dismissed. We left the hospital around 3:00 this afternoon. It was so good to get home. Shawna, Connor's home health care nurse, came around 7:00 to teach me how to do the IV antibiotics. We have to do them every 8 hours for the next NINE days. His infection was a staff infection. He is being treated with Vancomycin. He gets Benedryl before to prevent "Red Man Syndrome", which he got with his first dose Saturday. That is exactly what it did, it turned his entire head, part of his chest and stomach, and part of his legs beet red. Anyway, it is a three hour drip, then we are done for 5 hours when we repeat the process.

Thanks for checking in, and for all the prayers. We are so thankful to be home tonight. As Connor tells me, "Home is the bestest place to be!" Take care and Peace to All!

We love you all! Rhonda, Eddie, and Connor, our brave little Trooper!


Sunday, January 06, 2002 at 06:09 PM (CST)

Hello everyone. Thanks for signing in. We are still at Vanderbilt and will be for at least a couple more days. Connor is still on IV antibiotics. His particular "bug" causing the infection has not yet been identified. Hopefully by tomorrow they will know more about what we are dealing with specifically, so that they can treat it with the proper antibiotic. He didn't have a fever all day on Saturday. He slept well last night until around 4:00 am. He woke me up and we were just talking. At 4:45 am, all of a sudden, he started vomiting pure blood. It was also coming out his nose. His platelets had bottomed out, so the nurse ordered some from the blood bank. I had to plug his nose the entire time he got the platelets. He was also given something for the vomiting. Eddie had gone home last night so that he could go to church this morning, but I called him because I was really scared. By the time he got here, Connor was asleep and slept until around 9:00 am, when Nana and Poppy got here.

He perked up a little with them here. Eddie and I went down to the cafeteria to have lunch. They left around 2:00. Connor and I dozed off for a little while, and woke up around 4:30. He had spiked a fever of 101.9. He has taken tylenol now. The nurse drew blood for another culture. We haven't gotten the results back yet. He is just really feeling bad now.

Please continue to pray for Connor. We know that all of you are, and that really makes us feel better. We know that God can make anything happen, and all we want is for Connor to be well. Please pray for us, our families and friends. Also, please pray for Connor's doctors to have the knowledge to do everything within their power to help Connor.

We really appreciate all the support. I can't express that enough. Please sign his guestbook. It is very encouraging to us to read your entries. Take care and peace to all. Oh, I have attempted to put pictures on here, the first one did fine, but the other two, well, you'll see. Maybe I can fix them when I get the chance. I'll try to update everyone tomorrow.

We love you all!! Rhonda, Eddie, and Connor, our brave little Trooper


Saturday, January 05, 2002 at 05:23 AM (CST)

Hi everyone. I'm writing this from the hospital. Yesterday was quite a day. Thursday night, Connor was up most of the night hurting. We had to be at the clinic Friday morning for chemo. First of all, his Oncologist, Dr. Shankar, noticed that Connor's right eyelid was drooping. That is a side effect of Vincristine, The chemo that he gets every week. She wants us to keep an eye on that, and if it doesn't improve or gets worse, she is going to have to cut back on the dosage. He then got his chemo. The nurse drew blood to do counts. When they came back, she told us that all of his counts had bottomed out and he needed a transfusion. As they were starting his transfusion, they took his temperature, and it was 101.5. The transfusion took a couple of hours, and his temp fluctuated the entire time. By the time he was finished around 4:30 pm, he was still running a temp, so they told us he would have to be admitted to the hospital for intravenous antibiotics. There were no beds available at that time, and the clinic was closing, so the nurses there took us down to a holding room in the ER to wait for a bed to come open. We were in there from 5:30 until 9:30. Yes, FOUR HOURS.

As you can imagine, by this time, we were all three exhausted and hadn't had anything to eat all day. Connor had breakfast in the car on the way down, but nothing since then. After getting in our room at 10:00 pm, Connor dozed off right away. I had to wake him up at 11:00 to give him his Neupogen shot. Poor thing. Had we of known we would be here, I could have given it to him before we left home, but he had to have it to try and bring his counts up some. I held the ice on his arm for a few minutes. When I woke him up, all he said was, "Mommy, please try to make it NOT hurt." He is SOOOOOOO brave. Bless his heart, he didn't have to energy to protest at all. He slept pretty good.

The antibiotics will start this morning, and we may be here until Monday. The nurses told me that we may go home with an IV to continue the strong antibiotics. SInce his counts are so low, he is extremely neutropenic, which means he is susceptible (sp?) to any kind of germ imaginable. Therefore, he is in a type of precautionary isolation at this time. He has to wear a mask when he is out of his room. But I would imagine that he will not be out of bed until we are discharged.

Thank you for checking in. Please, please, please, pray for Connor to get well. He has to go through so much. It's so hard to understand. We really appreciate everyone's support. Please sign the guestbook if you can, and let us know you were here. Take care and have a good day. Peace to all.

We love you! Rhonda, Eddie, and Connor, our brave little Trooper!!


Thursday, January 03, 2002 at 07:02 AM (CST)

Hi everyone. Thanks for checking in. Well, it is Thursday morning and Connor slept straight through ALL night for the first time in a LONG time. Yaah! He was up all night the night before, so yesterday he slept until 11:00 am. Yesterday morning at 3:00 am, he had me in the kitchen scrambling eggs and cooking bacon. Thank God his appetite is back.

Connor received a gift certificate from Kent at ABC Auction in Old Hickory (the FINEST group of people that you could ever meet!!!!!!!), anyway, the gift certificate was to take Mommy and Daddy to O'Charley's for dinner, so we went last night and had a really good time. (Thanks Kent!) It was good for Connor to get out and enjoy himself.

Thanks to everyone for all the support that you continue to give. It means the World to us. Please keep those prayers going up for Connor. We go for our next CT scan next Friday, the 11th. (Fingers crossed)

Take care and have a great day! Peace to all!

We love you all! Rhonda, Eddie, and Connor, our brave little Trooper


Tuesday, January 01, 2002 at 06:42 PM (CST)

HAPPY NEW YEAR EVERYONE! Our wishes to you for Health, Hope, and Happiness. We know that 2002 is going to be a better year for us. This will be the year that Connor will be 100% cancer-free. Everyone's continued prayers can and will make that happen. Today was a good day. Connor was all decked out in his new camo pants, shirt and floppy hat that Poppy, Nana, and Chad got him for Christmas. He looked super. We then went to Grandmama's house for lunch. He played with his cousins, Ragan and Victoria, and had a relaxed afternoon. At lease that is what I'm told (I dozed off on the couch for a couple of hours!). We have just returned home, and he is ready to eat again. He has lost over 2 lbs, as of this morning, so we really have to encourage him to eat well this week.

Thanks for checking in with us. Please sign the guestbook as often as you would like. We love hearing from everyone. All the support has been very uplifting.

Grace and peace to you from God our
Father and from the Lord Jesus Christ
....I thank my God through Jesus Christ
for all of you.
Romans 1:7-8

Take care everyone, and in this new year, let us all reflect upon the things that matter most to us. Thay are the only things that TRULY matter. Peace to all.

We love you! Rhonda, Eddie, and Connor, our brave little Trooper!


Monday, December 31, 2001 at 09:59 AM (CST)

Good morning everyone. Happy New Years Eve. Connor had a really bad night all night last night, so he is still snoozing this morning. He was in a lot of pain that his medications would not help. PLease pray for him. He has so many things to deal with now that no 7 year old should even know about. Why oh why can't I take his pain for him. I would just love for him to have a GOOD day today and be able to play with his new Christmas toys. He has had no energy since he came home from the hospital on Friday. This chemo has completely zapped him. He hasn't even had the energy to argue about his nightly shots. I need your prayers today as well to remain upbeat in front of Connor. I always try my hardest not to cry in front of him.

My Mom (NANA), Grandma, and brother Johnny are coming today, so that will be a help to both of us. Oh yeah, I made a big pot of Potato Cheese soup yesterday, and Connor loved it. It was so good to see his appetite coming back. We have got to put some meat on his little body.

Thanks for checking in. Have a great day. Take care and peace to all.

We love you! Rhonda, Eddie, and Connor, our brave little Trooper!!


Sunday, December 30, 2001 at 11:52 AM (CST)

Hi one and all. It's a beautiful, but cold, Sunday morning. Connor is still in the bed. He vomited last night at bedtime and lost everything that he had yesterday. He is very weak this morning. He did eat some toast earlier, and so far has kept it down. I'm hoping he doesn't lose too much weight before Friday when we go back for chemo. If he has, I'm afraid his doctor will want to put a feeding tube in. Please pray that doesn't happen. Any parent that has been through that knows what a nightmare it is. But I know, I know, think positive.

The worst part of last night was all the apologizing that Connor does. "Mommy, I'm sorry I messed up the bed." He has started doing that alot lately, and it breaks my heart. I always reassure him that he absolutely could NOT help it. I think it just bothers him that he feels like he has no control.

Thanks for checking in today. PLease, please, please pray for Connor. Pray for his healing, and also pray for each day to be easier than the one before. Thank you so much.

Take care and peace to all.

We love You! Rhonda, Eddie, and Connor, our brave little Trooper


Saturday, December 29, 2001 at 04:50 PM (CST)

Hi everyone. It's Saturday afternoon. Connor has been resting well last night and today. He had some pain around 4:00 am, but after taking his medicine, he was right back to sleep. He and I both took a nap around lunchtime today. He finally ate a few bites of soup this afternoon. That was his first food since Wednesday. Maybe he will start getting his appetite back. We have to start his Neupogen shots back tonight. He will get them for at least 10 days. We atart them after each full round of chemo to try to keep his white blood count up. He hasn't been able to play with any of his new toys from Christmas yet. Hopefully, he will feel like it tonight or tomorrow. It seems as though the vomiting has stopped, so that is definitely a plus.

Thanks for checking in, one and all. Have a great weekend.

Take care and peace to all.

We Love You!---Rhonda, Eddie, and Connor, our brave little Trooper


Friday, December 28, 2001 at 07:59 AM (CST)

Hi everyone. Thanks for checking in. I'm writing this from the hospital. Connor is asleep after a rough night. Eddie came by this morning before work, so he is with him now.

Well, yesterday morning when I woke Connor up to come down here for admission, he was once again in severe pain. I gave him his normal medications before we left home. His pain kept getting worse. By the time we were in the Oncology clinic, he was begging for something stronger for the pain. He got a dose of Morphine through his central line, and immediately his pain started easing up. Thank God!!! The pain is probably stemming from the trauma that his bladder went through between the catheter coming out and all the poking and prodding to get a new one in.

We got into our room around 1:15, and by 4:00, the pain was back worse than ever. It really was the worst he has had since this whole ordeal began. Once again, Morphine. He started getting his chemo at 7:45 pm and the drip was complete at 9:00 pm. He then has 12 hours of fluids behind the chemo. Around 2:00 am, the vomiting started. He was given medication, and went back to sleep. The vomiting returned at 6:00 am this morning. More medicine, now he is still resting. I pray that when he wakes up, his stomach will have calmed down. His eyes are so swollen and weak looking. Hopefully, we will get to go home this afternoon. We'll just have to see how he does. They won't release him until the vomiting stops, to avoid dehydration.

Thanks again fore your support, one and all. Please keep the prayers going up for Connor. God bless him, he is so brave.

Take care...we love you! Eddie, Rhonda, and Connor, our brave little trooper

P.S. Hopefully soon, I'll start putting pictures on the site. Thanks!


Wednesday, December 26, 2001 at 08:58 PM (CST)

Well, after several days of severe pain, today we finally got to the root of the problem. Connor's suprapubic catheter came completely out of his abdomen. I was in the process of taking his temperature when I saw it. It scared the heck out of me. Thank Heavens my Mom (Connor's Nana) was here when I discovered it. I called the Urology office and they told me to bring Connor into the ER immediately.

After being given Morphine for the pain and a local anesthetic, surgery was done to put in a new catheter. My Mom and I were in the room the entire time. Bless my Mom's sweet heart, she has been my ROCK throughout this entire ordeal. The surgery went well, Connor was semi-concious. It wasn't easy to witness, but Connor asked me to stay, so I stayed. He called out for me several times, so I was glad to be able to reassure him that I was there.

Hopefully tonight will bring his first good night's rest in quite some time. Please keep him in your prayers.

We will be admitted into Vanderbilt Thursday for inpatient chemo. Hopefully all will go well.

Peace be to All. Take care and We Love You!

SIncerely...Eddie, Rhonda, and Connor, our brave little Trooper


Wednesday, December 26, 2001 at 02:51 AM (CST)

This is my first Journal entry on COnnor's new Web Page. Thanks for checking in. Connor is 7 years old. He was born October 31, 1994. He is our only child, and our entire world. That world was turned upsied down about 2 and 1/2 months ago when on October 3, 2001, I went to pick up Connor after work, and he was sick. We first thought he was just constipated. I took him to his pediatrician the next day. They couldn't diagnosethe problem, so they went along with the constipation theory, even though Connor was not able to urinate to give a urine specimen. We left the doctor's office and 2 hours later, we were at the emergency room. An x-ray showed that his bladder was stretched to three times its normal capacity. He was holding approximately 700 cc's of urine, the amount a grown man's bladder would hold. He was unable to release it without the use of a catheter into his penis. After several trips to the ER and a couple of catheters in 24 hours a day that first week and 1/2, Dr. John Brock, Connor's pedratric urologist, decided to insert a suprapubic catheter. It was put through his abdomen directly into his bladder. This was done on October 12, 2001. It was then that Dr. Brock first noticed the "mass", as he called it. He told us it was approximately 5 centimeters in diameter, and it was located between his bladder, his urethra, and his rectum. This was on a Friday. On Saturday, the 13th, he had a CT scan. On Monday, Oct. 15, he had a biopsy done which confirmed Dr. Brocks suspicions. Connor has rhabdomyosarcoma, a rare form of cancer most always found in children age 2 to 6. Connor was 6, but turned 7 on Oct. 31, 2001. The first time you hear that dreaded word, "cancer", and the Dr. is talking about your "baby", your entire world flips upside down. A zillion questions start running through your mind. "How can this happen to MY CHILD??!!??", "Why would God allow this to happen to an innocent child??", "Why can't it be me instead?", and countless others. It is important to add that COnnor had always been healthy up to this point. He has always been one to not tell us when he is hurting until he absolutely can't stand it anymore. We have no way of knowing how long the tumor has been there.

Connor has to be the bravest little boy in the world. He has been through more in the past 2 and 1/2 months than most people go through in a lifetime. The majority of his pain at the present time is a result of his catheter. (the fourth suprapubic since Oct. 12) Hopefully very soon he can have it removed. The latest CT scan shows reduction in the size of his tumor. He has had 9 weeks of chemotherapy so far. He will be admitted tomorrow for his 10th session. He has 1 week of chemo inpatient, then 2 weeks outpatient, then back in every third week for a hospital stay. This past Friday, Dec. 21, was his first transfusion.

He is awake right now, hurting in his "wee-wee", as he likes to call it. Oh, if I could just take the pain for him. OUr faith in God is our strength. We know that everything happens for a reason. God WILL heal Connor completely. That is our daily prayer. He has a long road ahead, but we will overcome and beat this monster called cancer that has invaded his little body. Connor is our world, and at this point, nothing else matters but getting him well.

Thanks for checking in. I will try to update this as often as I can. If you are readin this, please pray for Connor's healing, and relief from the pain that he is experiencing. Also, please pray for God to give Eddie and I the strength to be a positive force for Connor. And lastly, please pray for Nana and Poppy, Grandmama, Papa, (Connor's granparents), great- grandmothers, uncles, aunts, cousins and other family members and friends, and give them strength during this time. Thank You so very much!!

Love, Rhonda, Eddie and Connor, our Brave Little Trooper


Wednesday, December 26, 2001 at 02:50 AM (CST)


Wednesday, December 26, 2001 at 02:50 AM (CST)


Tuesday, December 25, 2001 at 09:41 PM (CST)

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