Monday, April 25, 2005 8:11 PM CDT

THIS IS ONE OF THE HARDEST JOURNALS, I HAVE WRITTEN.

LEXY WENT TO CLINIC TODAY FOR BLOOD COUNTS AND TO SEE DR. MATTHAY.

LEXY'S GUMS WERE OOZING TODAY SO DAWN KNEW LEXY WOULD BE GETTING PLATELETS WHICH SHE DID GET THEM SINCE HER PLATELETS WERE AT 3000 AND SHE HAD JUST GOTTEN PLATELETS LAST FRIDAY. LEXY WAS SUPPOSE TO START CHEMO TODAY BUT WILL NOT BE STARTING CHEMO.

LEXY HAS A LARGE MASS IN HER STOMACH AREA AND THAT IS WHY LEXY'S TUMMY HAS BEEN HURTING. DAWN DID TELL ME, THAT SHE HAD TO LET LEXY'S PANTS OUT BECAUSE HER TUMMY IS SO BIG. DAWN DID THINK SOMETHING WAS WRONG YESTERDAY BECAUSE HER TUMMY WAS REAL HARD AND THEN WHEN HER PANTS HAD TO BE LET OUT DAWN KNEW THERE WAS A PROBLEM AND AS DAWN SAID "I WAS HOPING IT HAS TO BE SWOLLEN FROM NEEDING TO GO TO THE BATHROOM WHEN IN MY HEART I KNEW I WAS WRONG."

LEXY'S LIVER FUNCTIONS ARE OFF AND THE RIGHT SIDE OF lEXY'S BACK IS FULLER OR BIGGER AND DR. MATTHAY SAID THAT DOES INDICATE LIVER INVOLVEMENT.

DR. MATTHAY DID SAY THAT BASICALLY THAT LEXY IS RESISTANT TO ANY KIND OF CHEMO AND IT WILL BE UP TO DAWN AND GREG ON WHETHER TO KEEP TRANSFUSING HER.

DR. MATTHAY, WILL GIVE TRANSFUSIONS TO LEXY AS LONG AS SHE CAN GET UP AND GO TO THE CLINIC AND DID SAY THERE WILL COME A TIME WHEN LEXY WANT BE GETTING UP AND MOVING AROUND AND WILL BE ON LOTS OF PAIN MEDICINE AND AT THAT POINT TRANSFUSIONS MAY NOT HELP HER HAVE A GOOD QUALITY OF LIFE BY PROLONGING HER LIFE WITH TRANSFUSIONS. DR. MATTHAY WANTS LEXY TO BE AT HOME AS MUCH AS POSSIBLE AND NOT IN THE HOSPITAL OR GOING TO THE CLINIC.

LEXY IS TO START ON STOOL SOFTNERS NOW AND IF NOT GOING TO GIVE ENEMMAS BECAUSE THE MASS IS SO BIG AND IT IS PRESSING ON THE INTESTINES WHICH WILL MAKE IT HARDER FOR LEXY TO GO TO THE BATHROOM.

DAWN TOLD ME THAT HER AND GREG WERE SO HAPPY WHEN ON LAST THURSDAY LEXY'S ARMS AND LEGS WERE NOT HURTING AND THEY WERE HOPING SOMETHING IS WORKING AND ONLY HER TUMMY IS HURTING.

DR. MATTHAY DID TELL DAWN TODAY THAT WITH HER DETERMINATION, YOU ARE THE ONE THAT HAS KEPT LEXY FIGHTING.
DAWN AND GREG ARE THE BEST AND JOHN AND I WERE TALKING DAWN IS THE GREATEST ONLY THINKING OF LEXY AND WHEN I FINALLY GOT A HOLD OF DAWN THIS EVENING I KNEW SOMETHING WAS WRONG BECAUSE DAWN DID NOT ANSWER HER CELL PHONE AND WHEN SHE FINALLY ANSWERED SHE SAID MOM I WILL CALL YOU WHEN I GET HOME I AM ON MY WAY. WHEN SHE CALLED I SAID YOU MUST HAVE BEEN TALKING TO THE DOCTOR AND SHE SAID YES AND WHEN I WAS GOING TO CALL YOU, YOU WERE ON YOUR WAY HOME AND I COULD NOT GIVE YOU BAD NEWS WHILE DRIVING AND THEN DAWN WAS DRIVING HOME. SHE IS THE GREATEST AND AS I TOLD DAWN LAST NIGHT YOU HAVE BEEN TO THE END OF THE EARTH TO HELP LEXY AND NOW IT IS TIME TO LET GOD HELP LEXY WITH ALL HER SUFFERING. I KNOW I HAVE SAID THIS BEFORE BUST DAWN IS SO UNSELFISH, AND HAS ALWAYS PUT LEXY FIRST. TO GREG YOU ARE ALSO THE GREATEST BEING A GOOD DADDY TO LEXY AND GETTING THE ARMY TO TRANSFER YOU TO WHEREVER TO GET LEXY THE BEST TREATMENTS.

DAWN AND GREG HAVE AN APPOINTMENT WITH DR. MATTHAY AND THEY WILL TALK ABOUT WHAT TO EXPECT AND WHAT NEXT AND TO TALK ABOUT HOSPICE. DAWN AND GREG TALKED LAST NIGHT ON WERE THEY DOING THE RIGHT THING FOR THEM OF LEXY, WHAT A THING TO HAVE TO SET DOWN AND TALK ABOUT. ALL I CAN SAY IS GOD PLEASE BE WITH MY FAMILY AS I KNOW HE WILL ALWAYS BE THERE FOR US.

ON A HAPPIER NOTE AS I WAS TALKING TO DAWN LEXY WALKS INTO THE ROOM WITH HER OFFICE STUFF, THAT IS HER PEN, TABLET AND BARBIE COMPUTER AND SHE WAS WWRITING HER WAY. I TOLD DAWN GET HER TO TRACE HER HAND AND SHE TOLD DAWN REAL QUICK NO BUT THEN AGAIN THAT SOUNDED GREAT TO HEAR HER FIGHT BACK. PAPA MADE A COMMENT THAT LEXY WAS THE ONE PERSON THAT LOVED HIM NO MATTER WHAT, SHE HAS ALWAYS LOVED HIM AND SHE KNEW HE LOVED HER JUST AS MUCH AS HIS BESTEST FRIEND AS HE SAYS.

DAWN AND GREG WILL NEED SO MANY PRAYERS TO GET THEM THROUGH THEIR DARKEST DAYS, THEY ARE THE GREATEST.

I DID TELL DAWN TONIGHT THAT AT LEAST WE SAW LEXY HAVE A GOOD TIME AT DISNEY LAND, A PARTY AND A DINNER AT UNCLE GLENN'S AND AUNT JEANIES IN HER HONOR, WHAT A SPECIAL LITTLE GIRL LEXY IS. LEXY GOT TO GO T0 ATHE ZOO SUNDAY AND SHE LOVES THE ZOO. WHEN LEXY WAS HERE SHE ASKED PAPA TO TAKE HER TO THE ZOO, SO PAPA SAID HE DID NOT TAKE HER TO THE ZOO AGAIN YET, SO I AM SURE PAPA WILL BE TAKING LEXY TO THE ZOO SOON. I TOLD HIM WE COULD WALK IN THE ZOO CARRYING HER AND SHOW HER A COUPLE OF ANIMALS AND WALK BACK OUT, I AM SURE WE WOULD GET A SMILE.

PLEASE KEEP LEXY IN YOUR PRAYERS FOR GOD'S WILL.

PAT NEWTON
(LEXY'S NANA)

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Friday, April 22, 2005

Dawn, called me this evening and they are on the way to the hospital for platelets and blood.
Lexy had blood drawn this morning and her blood was at 6.9 and her platelets were at 4,000. Lexy had got platelets last Tuesday night in Nederland while she was here. Pray for Lexy.

Pat Newton

Thursday, April 21, 2005

Lexy, Dawn and Aden are back in California and Lexy is doing good.

They were suppose to return to California on Tuesday but as we had packed all the suitcases and locked the door, papa was holding Lexy and Dawn saw the back of Lexy's head, there was a big whep with a knot on it. Dawn called her doctor in California and they decided to send Lexy to the hospital in Nederland. We took Lexy to the new hospital which they gave Lexy platelets and the knot was gone by the time they gave Lexy her platelets. We were there for 12 hours and Lexy was ready to go as she had had enough of that hospital.

They did leave on Wednesday morning to go home and Lexy is ok. Lexy will have blood counts on Friday at home and if she needs platelets or blood she will get it Friday. Monday Lexy will see Dr. Matthay and start chemo again if she is ready for chemo. Dawn will also ask Dr. Matthay what is causing the bleeds or whatever is causing the knots to come up on Lexy's head. Last week she also had a knot come up on her forehead and it went away.

Make A Wish had called Dawn last week and asked if they wanted tickets to the Giants Baseball Game tonight in San Francisco, so that should be fun for the family tonight.

I want to also thank everyone for coming by for Lexy's party. It was a huge success and it made Lexy so happy. Lexy, had fun at Uncle Glenn and Aunt Jeanies house, as they made supper for us and Uncle Jared and Aunt Katie, Brandon, Breanne and Brittany and Chris and Mimma were there also so it was a mini family reunion before the big party. Monday, we met Auntie Angie and Dyllon, Shane and Noah for pictures. Lexy did play baseball in the backyard with the boys and Riley came over to play with her and later Cindy came over and brought Madison, Morgan and Christian over to see Lexy before they left.

Please continue to keep Lexy in your prayers and may God Bless Each of You.

Pat Newton
(Lexy's Nana)

Monday, April 18, 2005

Hello everyone,
Just wanted to let everyone know the party was great. Lexy had a wonderful time. She was full of energy and running around playing with all of the kids. We had lots of family, some old friends and some new friends. We got to meet some of the people that only know her from her website. What a wonderful blessing.
We started the day going to church with Mimma (Lexy's great-grandmother). Of course, her preacher Brother Corkran prayed for Lexy. He will never know how much we truly appreciate it. Lexy was a little cranky and told me she wasn't going to play or have fun at her party. Then after church we went home to prepare. When that started, she began to get a little excited. By the time the first guest got there she started to realize there was really going to be a party, then when the clown walked in with the music playing and his cart of balloons she was jumping up and down she was so excited. Mr.Heslop or Shiner the Shriner clown said her expression was worth a million bucks. He brought his wife along to oversee his balloon art.Lexy made instant friends with Morgan Hanes and they ran around playing. Then Lexy's old friends Riley and Daisy arrived. All 4 were having a blast. They were inside playing make-up and saw the trailer pull in with the petting zoo and pony. Lexy ran to find me yelling the animals are here. She couldn't wait to see them. There were 3 small bunnies, a goat,2 lambs, 2 chickens and the pony to ride. Lexy really enjoyed the bunnies as did every other kid there. Needless to say, Lexy refused to ride the pony. We finally managed to get her by the pony fo take a picture only when my cousin Wes bribed her with money. Look for the pictures soon. You will see one of Lexy by the pony with $5 sticking out of the saddle. Lexy had loads and loads of fun as all of us did. She also got lots of wonderful gifts. I think we figured out there were over 100 people there. We had guests from as far as the Houston area to Deridder Lousiana, even Lexy's first and favorite nurse Emily Downing from Texas Children's came to celebrate with Lexy.
I'd like to give a special thanks first to mom and dad for throwing such a wonderful party and for making my little girl feel so special and loved each and every day. To Katherine Martindale for helping us set up and taking pictures which I can't wait to see. To Melody Martindale for handling the grill, helping us set up, the veggie tray, and the tables and chairs.To Aunt Jeannie for the chocolate dipped tray of goodies, the cookies and for taking care of Aden. To Aunt Ouida for making the wonderful coconut cake. Janice for the lemon cake, Kaye and James for the sandwich tray, Michelle and Steve for the fruit tray, Ken and Amy for the chips,salsa and drinks, Mimma for the cookies and drinks, Mr Heslop our wonderful clown, Heartstrings ranch for the animals, Wes and Laura for the buns and brownie, Uncle Jared for being the valet and parking cars, Aunt Faye and Aunt Ruth for the autograph dog that served as our guestbook. I really hope I didn't leave anyone out. I feel like I'm on an the Academy Awards.Every one of you helped Lexy have a wonderful day.
I would like to also thank all of you that brought gifts and Lexy even got a bouquet of roses from Uncle Bulldog. What a lucky girl she is. I wound like to thank Brother Stancil and Brother Frasier from Val Verde Baptist Church for coming amd praying for Lexy. Thanks also to Alexandria's Angels for there gift to help make her trip special.
I can't begin to explain how full my heart is when I think of all the people that love and pray for Lexy everyday. I really never knew such kindness was possible. A lot of you only know Lexy from her website, yet she has become a part of your lives. I feel like she is truly an Angel of Earth to have touched this many people. My gratitude is never ending. Please continue to pray for her. Our miracle is on the way.
Dawn

***********************************************

FRIDAY, APRIL 15,2005

UPDATE:

LEXY IS DOING GOOD, SHE HAS A BUSY DAY GETTING CHEMO, PLATELETS AND BLOOD. I DID TALK TO HER AND SHE IS STILL SO EXCITED ABOUT HER PARTY.

I DO NEED TO LET YOU KNOW, IT'S NOT A BIRTHDAY PARTY AS HER BIRTHDAY WAS NOVEMBER 14TH. LEXY DOES NOT UNDERSTAND SHE THINKS A PARTY IS A BIRTHDAY PARTY. SHE WANTS A CAKE AND CANDLES AND THAT IS WHAT SHE WILL GET.

THANKS TO EVERYONE THAT IS COMING TO MAKE THIS A VERY SPECIAL DAY FOR LEXY.
WE HAVE HAD SO MANY EMAILS AND CALLS ON THIS PARTY.

GOD BLESS EACH OF YOU.

PAT NEWTON
(LEXY'S NANA)


THURSDAY, APRIL 14, 2005


I JUST TALKED TO DAWN A LITTLE BIT AGO, AND LEXY WAS GETTING CHEMO AND HAD BLOOD DRAWN FOR BLOOD COUNTS. LEXY, GOT PLATELETS LAST TUESDAY. TOMORROW ON FRIDAY LEXY WILL GET PLATELETS AND BLOOD AND THE CHEMO WHICH WILL BE FINISHED FOR THE WEEK. LEXY'S PLATELET COUNT WAS AT 5000 AND BLOOD AT 6.6. LEXY IS FEELING GOOD.

I HAD WRITTEN ON THE LAST JOURNAL THAT WE ARE HAVING A PARTY FOR LEXY AND TO MEET HER LITTLE BROTHER ADEN.

LEXY CALLED ME TODAY AND WANTED TO KNOW IF SHE COULD HAVE A CAKE AND I SAID YES AND SHE SAID SHE WANTED A RED CAKE AND WITH WHITE STUFF ON TOP WITH A CANDLE AND I SAID YES WE WILL HAVE YOU A CAKE WITH WHITE ICING WITH YOUR PICTURE ON TOP AND A CANDLE THEN SHE SAID CAN I HAVE 2 CANDLES. LEXY WANTS A PICTURE OF HER AND MINNIE ON HER CAKE. I THINK SHE THINKS A PARTY IS LIKE A BIRTHDAY TO HER, SO I WILL HAVE TO GET A PRIZE FOR HER.

I TOLD HER SHE WOULD HAVE A CLOWN AT HER PARTY WITH BALL0ONS AND I CALLED HEART STRINGS RANCH IN BEAUMONT AND THEY WILL BE THERE WITH A MEDIUM SIZE PONY FOR PONY RIDES AND A PEN 12X12 WITH ANIMALS FOR A PETTING ZOO. KAREN AND CHARLIE CRAIG FROM HEART STRINGS RANCH MADE LEXY'S DAY. LEXY WAS SO EXCITED WHEN SHE HEARD ABOUT THE PONY AND PETTING ZOO AND STARTED JUMPING ON THE BED AT CLINIC TODAY. I AM SO HAPPY SHE HAS SOMETHING TO LOOK FORWARD TO.


REMINDER:

PARTY FOR LEXY!!!!!!!!!!!!!!!!!!!
EVERYBODY IS INVITED.


WILL BE IN NEDERLAND, TEXAS ON SUNDAY,
APRIL 17, 2005 AT JOHN & PAT'S (NANA & PAPA'S) TIME 2:00-TILL-5:00. THE ADDRESS IS 2803 ERWIN OFF 27TH IN NEDERLAND. IF YOU HAVE ANY QUESTIONS PLEASE CALL.

IF YOU ARE CLOSE AND WOULD LIKE TO COME BY AND SEE LEXY AND MEET ADEN AND OF COURSE SEE DAWN THEN COME BY AND JOIN IN THE FUN. WE WILL HAVE CAKE, COOKIES AND SNACKS AND JUST WATCH A LITTLE GIRL HOPEFULLY HAVE THE TIME OF HER LIFE BECAUSE WE WANT THIS DAY TO BE SO SPECIAL FOR HER.

IT WILL BE OUTSIDE WITH THE ANIMALS. COME AND HAVE FUN!!!!!!!!!!!!!!!!!!!!!!!!!

PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)

Tuesday, April 12, 2005

MONDAY I DO BELIEVE I WAS ON TOP OF THE WORLD. I ANSWERED MY CELL PHONE AND I HEAR LEXY SAY "NANA, I COMING TO SEE YOU" AND SHE HAD EXCITEMENT IN HER VOICE AND SHE SAID YOU WANT TO TALK TO MY MOM AND I SAID YES!!

DAWN, TOLD ME SHE HAD TALKED TO DR. MATTHAY AND THEY WILL BE COMING TO SEE US ON SATURDAY, APRIL 16TH. DR. MATTHAY DID SAY SHE THOUGHT IT WOULD BE WONDERFUL FOR LEXY, AS LONG AS DAWN HAS LEXY'S PAPERS AND A HOSPITAL CLOSE IN CASE SHE WOULD NEED PLATELETS, AND DAWN DID TELL HER THERE WAS A HOSPITAL 5 MINUTES AWAY.

MONDAY, JANET THE NURSE PRACTIONER CAME IN AND SAID LEXY MAY NOT START CHEMO BECAUSE SHE HAS BEEN GETTING PLATELETS ABOUT EVERY 3 DAYS, AND IT MAY BE ON ACCOUNT OF THE CHEMO BRINGING THE PLATELETS DOWN. DR. MATTHAY, CAME IN AND SAID SHE DID NOT THINK THAT IT WAS THE CHEMO THAT WAS BRINGING THE PLATELETS DOWN AND TO START THE CHEMO WHICH THEY DID. THEY DID COUNTS ON MONDAY AND LEXY'S PLATELETS WERE DOWN TO 5000 AND THEY DECIDED NOT TO GIVE PLATELETS YESTERDAY BUT GIVE THEM TODAY, SO SHE COULD GET PLATELETS AGAIN ON FRIDAY SINCE SHE WILL BE COMING TO TEXAS ON SATURDAY. TODAY ON TUESDAY LEXY GOT CHEMO AND PLATELETS AND A REACTION TO THE PLATELETS WHICH WERE HIVES TO HER BACK AND SHE IS ITCHING. LEXY IS NOT IN PAIN NOW.

SATURDAY, DAWN,LEXY AND ADEN WILL COME TO TEXAS, AND SATURDAY EVENING UNCLE GLENN AND AUNT JEANIE WILL HAVE DINNER FOR US AND THAT WILL BE A GREAT TRIP SINCE JEANIE COOKS GREAT AND LEXY WILL BE ABLE TO PLAY WITH MUFFIN WHO IS A MINATURE YORKIE AND LEXY USUALLY DRAGS AROUND, POOR MUFFIN. THIS WILL ALSO BE THE FIRST TIME FOR THE FAMILY TO MEET ADEN WHO IS A LITTLE CHUNK AS I AM SURE YOU HAVE SEEN THE PICTURES OF ADEN. UNCLE JARED AND AUNT KATIE, BRITTANY AND HER HUSBAND CHRIS WILL BE THERE, BRANDON AND BREANNE, MIMMAW AND AUNTIE AND UNCLE MARTY AND DYLLON, SHANE AND NOAH.

SUNDAY WE ARE PLANNING TO GO TO CHURCH WITH MIMMAW AND THEN FROM 2:00 - 5:00 WE ARE PLANNING A PARTY AT OUR HOUSE FOR LEXY. THERE HAVE BEEN SO MANY PEOPLE PRAYING AND ASKING ABOUT LEXY WE THOUGHT THIS WOULD BE A GREAT WAY TO LET PEOPLE COME BY AND HAVE SNACKS WITH LEXY AND SAY HI!!!!!!!

SUNDAY WILL BE AN OPEN INVITATION TO ANYONE WHO WOULD LIKE TO COME BY, YOU DO NOT HAVE TO LET US KNOW JUST SHOW UP AND SEE LEXY AND SEE THE NEW LITTLE ONE "ADEN" AND OF COURSE DAWN. GREG, WILL NOT BE ABLE TO COME SINCE HE JUST TOOK A WEEK OFF TO GO TO DISNEYLAND. WE ARE SO HAPPY TO HAVE THEM COME SINCE WE WERE NOT SURE LEXY WOULD BE ABLE TO MAKE ANOTHER TRIP TO TEXAS. IF YOU HAVE ANY QUESTIONS YOU CAN EMAIL ME AND I WILL EMAIL YOU BACK.

PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS AND GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)

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FRIDAY, APRIL 8, 2005

QUICK UPDATE:

LEXY, STARTED CHEMO ON MONDAY. LEXY HAS BEEN IN PAIN THIS WEEK, HER ARMS AND LEGS HAVE BEEN HURTING. TWICE THIS WEEK SHE DID GET A DOSE OF MORPHINE AT THE CLINIC TO HELP THE PAIN. LEXY DID GET BLOOD AND PLATELETS. TODAY LEXY IS FEELING BETTER AND IN NO PAIN SO THAT IS A GREAT THING. LEXY DID GET PLATELETS AGAIN TODAY. LEXY WILL START CHEMO AGAIN NEXT MONDAY.

PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)


MONDAY, APRIL 4, 2005

Hello everyone,
Well we made it back from Disneyland. What a wonderful trip. Lexy had so much fun and no one deserves it more.
Tuesday morning at 9am a limo showed up to take us to the airport. Lexy was unimpressed, she asked if she could go to sleep: I on the other hand was so excited that we didn't have to drive to the airport, park and haul all of our bags in. It kind of made me wonder if this trip was going to be to much for her. We got on the plane and she still wasn't that excited. The flight was only an hour and twenty minutes. As we were about to land I was looking out the window and just happened to see Disneyland(at least I think it was Disneyland, it could have been some other amusment park)anyway, it was enough to get her excited. She couldn't wait to get off of the plane. She even got to run to her Papa. Nana and Papa were waiting for us when we got off of the plane. We finally got our bags loaded into the rental car. Trying to fit all of our bags into it was no easy feat especially with the way I pack. Thank god they gave us a mini van. We got to the hotel(it was beautiful and right there on the grounds, we could walk out on the balcony and see Disney California Adventure). Pretty cool. We made it over to Disneyland just in time to see the Princess show. Lexy was so excited to see everyone. Then it was on to toontown. We made a stop along the way at a few rides. Dumbo was a favorite. At toontown we got to say hi and take pictures with Minnie and Mickey mouse. We had a pass that got us to the front of the lines. After I finally learned what exit I was supposed to go in to use it, it was absolutly wonderful. Lexy loaded up and prizes and we headed back to the hotel about9:00 after the fireworks of course. We headed out again to Disneyland for breakfast with the Princesses. Lexy said she didn't want to go until she realized she could get their autographs. She met Cinderella,Snow White, Jasmine, Belle, Fairy Godmother, and Mary Poppins. Lexy loved every minute of it. They kept calling her princess Alexia.Then it was on to the rides. Aden got to ride his first ride, It's a small world. After realizing he could ride some of the rides, every once in a while Lexy would tell us she wanted to ride something Aden could ride. When asked she will tell you her favorite ride is the one that goes real fast where her Nana closed her eyes and her eyes got real big. (roller coaster in toon town) Thursday we had breakfast at Goofy's Kitchen. It was lots of fun for her. She will tell you everyone was there. Then it was back to Disneyland for lots more rides. I forgot to mention that before going to Disneyland she told us all that me, Nana, and her were going to wear Minnie ears and Papa,Aden and Daddy were going to wear Mickey ears. This changed only slightly before we got there. Daddy had to wear Goofy ears. So, Lexy and I got our Minnie ears, Dad got his Goofy hat and Aden got Pooh ears. How cute we all looked. Lexy and I only had to wear ours on the first day, but she made her Daddy wear his everyday. Anything for Princess Alexia. Lexy did really well overall. She felt pretty good and didn't need to go in for plateletts. She got a little cranky at times, but I think we all did.
Make-a-Wish gave us a wonderful experience. One we will definitly never forget and will always be gratful for.
Friday, Lexy woke up with some pain in her leg. This is about par for the course. She always had some pain the weekend before chemo is about to start. She was also pretty tired. We took Nana and Papa to LAX and then drove down the coast back to Orange County since we had time to spare. When we arrived back in San Fran the limo was waiting for us with a sign with her name on it. How cool is that.
Saturday we went to the hospital for counts and plateletts. Then it was off to Galt to pick up Major from Grandma Ivy's. Lexy was insisant that we all got to pick up the dog. So we left about 5 after spending all day in the hospital.
Chemo started today. Can't wait for it to get that pain under control.
Thanks all of you for your continued support and prayers. We are forvever gratful.
Love,
Dawn

Sunday, March 27, 2005 11:36 AM CST

HAPPY EASTER TO EVERYONE!!!!!!!!!!!!!!!!!!!!!!!!!!

THIS IS JUST A QUICK UPDATE TO LET YOU IN ON WHAT'S GOING ON IN LEXY'S BUSY LIFE.

TUESDAY MARCH 22, LEXY GOT PLATELETS AND PAMIDRONATE WHICH IS THE MEDICINE THAT HELPS WITH BONE PAIN. THEY WERE AT THE CLINIC ALL DAY. IT TOOK 4 HOURS FOR THE PAMIDRONATE THEN THE CHEMO TOOK 1 HOUR AND 1 HOUR OF FLUIDS THEN SHE GOT PLATELETS WHICH TAKES ABOUT AN HOUR AND A HALF.

FRIDAY MARCH 25, LEXY GOT HER LAST DAY OF CHEMO FOR THIS ROUND AND SHE ALSO GOT PLATELETS AND RED BLOOD. LEXY HAS BEEN FEELING PRETTY GOOD, SHE IS TIRED AND NOW NOT EATING MUCH OR DRINKING MUCH.

SATURDAY, UNCLE KURT AND HIS MOM TINA SKINNER CAME TO VISIT THEM AND BRING ALL KINDS OF EASTER THINGS TO LEXY AND ADEN. AUNT TRACI COULD NOT COME BECAUSE SHE IS VERY PREGNANT WITH TWINS.

SATURDAY, THEY GOT A VERY IMPORTANT DELIVERY, LISA FROM "MAKE A WISH" CAME OVER AND BROUGHT A HUGE LION KING MYLAR BALLOON, PRINCESS MYLAR BALLOON AND A MICKEY MOUSE MYLAR BALLOON, AND ALSO A FEATHER BOA AND A NEW PEN SO SHE CAN GET HER AUTOGRAPHS. TWO YEARS AGO WHEN WE TOOK HER THAT WAS HER MOST FAVORITE THING TO DO WAS TO GET AUTOGRAPHS. LIS ALSO BROUGHT OVER THE MAKE A WISH PACKET WITH THE AGENDA. LEXY'S LIMO WILL PICK THEM UP AT THEIR HOUSE AND BRING THEM TO THE AIRPORT ON TUESDAY AND THEY WILL BE STAYING AT THE CALIFORNIA GRAND RESORT. IT WAS SUCH SHORT NOTICE LESS THAN A WEEK FOR LMAKE A WISH TO PUT THIS TOGETHER. THIS WAS AN EMERGENCY TRIP SO LEXY CAN GET HER MAKE A WISH TRIP WHILE SHE IS FEELING GOOD.

LEXY HAS PACKED HER ESSENTIALS IN ONE SUITCASE SHE HAS HER BABY AND TOYS AND HER WRITING STUFF, IN THE OTHER SUITCASE SHE PACKED THE MOST IMPORTANT THINGS HER BLANKIE, PANTS WITH LONG SLEEVES, AND PANTIES AND AN OLD TIE DYED SHIRT SHE MADE A CAMP THEY ATTENDED LAST YEAR.
LEXY IS SO EXCITED AND COUNTS THE DAYS. LEXY DID ASK DAWN IF WHEN SHE GETS OFF THE PLANE IF SHE CAN RUN TO US LIKE SHE USUALLY DOES. IT WOULD MAKE MY DAY TO SEE HER RUN.

TODAY IS EASTER AND THEY ARE ON THEIR WAY TO GALT THEY WILL BE AT CAROL AND JIMBO'S AND TIFFANY AND AMANDA WHICH LEXY LOVES SO MUCH AND HAVE FUN WITH THEM HOPEFULLY. LEXY DID TELL DAWN SHE DIDN'T WANT TO THROW EASTER EGGS AND DAWN SAID NO FIND THEM AND LEXY SAID NO I DON'T WANT TO. MAYBE SHE WILL WHEN SHE SEES OTHERS. LEXY DOES NOT HAVE LOTS OF ENERGY SINCE SHE IS NOT EATING OR DRINKING MUCH, SO LAST NIGHT DAWN DID GIVE LEXY FLUIDS TO KEEP HER HYDRATED SINCE SHE WAS NOT TAKING MUCH IN AND HAD THROWN UP (CHOKE UP) ONCE.

MONDAY LEXY GOES TO CLINIC AND SHE WILL GET PLATELETS AND HOPEFULLY IT WILL GET HER THROUGH FRIDAY WHEN THEY RETURN. DR. MATTHAY TOLD THEM PLATELETS USUALLY ONLY LAST 5 DAYS. WE WILL WATCH LEXY CLOSELY, AS DAWN KNOWS THE SIGNS FOR SPOTS OR BLEEDING.

DR. MATTHAY WILL LET ORANGE COUNTY HOSPITAL KNOW ABOUT LEXY AND DAWN WILL BRINGING PAPERS FOR LEXY IN CASE A DOCTOR IS NEEDED.

PLEASE PRAY THAT LEXY WILL BE ABLE TO ENJOY HER TRIP OF HER LIFETIME BEGINNING ON TUESDAY. PRAY THAT SHE HAS NO PAIN AND CAN ENJOY HER SELF TO THE FULLEST.

I WILL UPDATE AS SOON AS I CAN. OFF TO DISNEYLAND WE GO.
WHERE I HOPE ALL OF LEXY'S DREAMS COME TRUE.

PAT NEWTON
(LEXY'S NANA)

Monday, March 21, 2005 10:59 PM CST

Hello to everyone,
Well, where to start. We went to the clinic today and met with Dr. Matthay. The cancer is still growing despite the chemo. The chemo is helping some because it seems to help with the pain, but the pain returns a few days after the chemo has stopped. We were given 2 options. The number two must be every doctors favorite number. It always seems like there are only 2 options. Enough rambling. Option 1 we could continue the chemo or option 2 put her on hospice to manage the pain(what an option). As I sat there speachless, Greg was left to answer. As long as the chemo doesn't cause any painful or unmanagable side effects we would continue the chemo. She is already on pain medicine, but the other option would mean putting her on some stronger medicine that would manage the pain when the cancer grows again. This would cause her to be out of it most of the time. This did not seem like an option to us at all. We are going to give her the pamidronate (a medicine used in some cancers to help relieve bone pain) tomorrow to hopefully hold the pain off a little longer. Her platelets are only 14,000 today but we did not have a transfusion. The doctor wants to try and wait a couple of days.
On the happier side of things. Disneyland here we come. Make a Wish came to the house friday to meet with Lexy. At the time she was uncooperative and wouldn't even talk to the ladies that were here. The only thing she did say was "Mom if it's ok can we go to Disneyworld". At the time, we knew the doctor would not approve that, but while we were in clinic this morning I mentioned Disneyland. Dr Matthay said she thought that would be wonderul. When we got home I made a phone call and set it in motion. We will leave tuesday of next week and come back friday evening. Nana and Papa will be meeting us there. Lexy is very excited. She was actually jumping up and down earlier while I was on the phone.
Lexy had some visitors this weekend. Carol, Jimbo, Amanda, and Tiffany came to see her. They got here saturday. We went to Chuck E Cheese because that is where Lexy wanted to go. Then we went to Fisherman's Wharf. It was Tiffany's birthday weekend and she chose to spend it with Lexy. Thanks to all of them . Lexy was up and playing with Amanda. It was good to see that.
Thanks to everyone that writes in the guestbook and to all of those that read the updates, but don't write in. It means a lot to know that our little angel has touched so many of you. She truly is an angel on Earth.
Love,
Dawn

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FRIDAY MARCH 18, 2005

I JUST TALKED TO DAWN THIS EVENING AND LEXY HAD HER CHEMO THIS MORNING. LEXY IS STILL HURTING SOME BUT NOT AS BAD, SO IT IS BETTER.

DAWN IS ON THE WAY BACK TO THE CLINIC AS LEXY NEEDS PLATELETS AGAIN. LEXY GOT PLATELETS ON MONDAY AND WEDNESDAY AND TODAY NOW. DAWN DID SAY LEXY WAS TIRED TODAY.

PLEASE KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)

THURSDAY 11:00
JUST A GOOD UPDATE!!!!!!!!!!!!!!!!

DAWN JUST CALLED ME AND TOLD ME LEXY CALLED PAPA AND TOLD HIM HER LEG WAS ALL BETTER AND DID NOT HURT. IT SOUNDED SO GOOD TO HEAR HOPE AND HAPPINESS IN DAWN'S VOICE AGAIN AND I EVEN HEARD LEXY TALKING.

DAWN TOLD ME LAST NIGHT HER AND LEXY WERE LAYING ON THE BED TALKING TO AUNTIE ON THE PHONE AND LEXY WAS KICKING HER LEG AND GIGGLING AND HAD EVEN WALKED DOWN THE HALL AFTER GREG TRYING TO HIT HIM AND PLAY WHAT A GOOD SOUND. LAST NIGHT WHEN DAWN TOOK HER BATH SHE ASKED LEXY IF SHE WANTED TO TAKE A BATH WITH HER AND LEXY SAID YES AND GOT IN AND DAWN SAID MAN HOW LONG HAS IT BEEN SINCE YOU TOOK A BATH WITH MOMMY AND LEXY SAID SINCE ZURRIE (MISSOURI) AND DAWN SAID THAT'S A LONG TIME AGO AND LEXY SAYS YEP!!!!!
LEXY EVEN GOT OUT OF THE BATH BY HER SELF AND THAT IS WONDERFUL. ISN'T IT AMAZING HOW WE GET EXCITED ABOUT LITTLE THINGS LIKE THAT BUT IT IS SUCH A GREAT THING. LIKE I SAID EARLIER WE ARE NOT GIVING UP AND WE WILL KEEP FIGHTING AS LONG AS LEXY CAN.

DAWN DID ALSO SAY ADEN HAS A COLD HOPEFULLY HE WILL FEEL BETTER IN A FEW DAYS.

THURSDAY EARLY AM

JUST AN UPDATE TO LET YOU KNOW LEXY IS STILL IN PAIN. LEXY IS EATING AND THAT IS GOOD.

I TALKED TO DAWN YESTERDAY DURING THE DAY AND YOU KNOW A MOM'S INSTINCT I COULD TELL SOMETHING WAS WRONG. I ASKED DAWN IF SHE WAS OK AND SHE SAID YES BUT NOT VERY CONVINCING. SHE TOLD ME SHE WAS SITTING BESIDE LEXY AND HOLDING ADEN AND SHE COULD NOT TALK ABOUT IT RIGHT NOW IN FRONT OF LEXY, AND I ASKED HER IF SHE WOULD TALK TO ME LATER AND SHE SAID YES AND I ASKED HER IF I NEEDED TO COME TO CALIFORNIA NOW AND SHE TOLD ME SHE WOULD LET ME KNOW WHEN I NEEDED TO BE THERE. GREG, LEXY'S DAD CALLED LAST NIGHT AND TALKED TO JOHN AND TOLD HIM THAT DR. MATTHAY DID TALK TO DAWN YESTERDAY AND TOLD HER SHE NEEDED TO TALK TO GREG ABOUT A DNR WHICH IS "DO NOT RECESUTATE". DR. MATTHAY DID SAY SHE WAS NOT GIVING UP ON LEXY AND WOULD STILL TREAT HER TO THE BEST QUAILTY OF CARE OF LEXY. DR. MATTHAY DID SAY IT WOULD NOT BE SOON BUT IT WAS COMING. THIS DOES NOT MEAN THAT THE DOCTOR OR OUR FAMILY IS GIVING UP AND WE WILL KEEP FIGHTING AS LONG AS LEXY CAN FIGHT AND GOD WILL HELP HER FIGHT. DAWN AND GREG WILL TALK WITH DR. MATTHAY ON MONDAY.

WHEN I TALKED TO DAWN LAST NIGHT SHE HAD BEEN TO THE STORE TO GET MORE EGGS, CRESCENT ROLLS, DORITOES, COKE, AND OREOS AND THAT IS HER FAVORITE FOOD RIGHT NOW, SHE HAS NOT GOT SICK FROM THE CHEMO AND IS STILL EATING.

DAWN AND GREG ARE FEELING LOTS OF EMOTIONS THAT THEY SHOULD NOT BE FEELING, AND I JUST TRIED TO TELL DAWN THEY ARE GREAT AND ALL DAWN COULD TELL ME WAS "SHE IS JUST A BABY" AND I CAN'T HELP HER AND I TOLD HER JUST LOVE HER.

PLEASE KEEP THE FLORY FAMILY AND ALL OF LEXY'S FAMILY AND FRIENDS IN YOUR PRAYERS. LEXY HAS AND STILL DOES TOUCH SO MANY PEOPLE. I CAN TELL BY THE GUESTBOOK ENTRIES AND THE EMAILS AND PHONE CALLS WE GET, LEXY IS DOING HER JOB ON EARTH. I LOVE LEXY SO MUCH AND IT HURTS TO SEE HER IN PAIN AND I CAN ONLY IMAGINE WHAT HER MOM AND DAD FEEL TO SEE HER THAT WAY NOT PLAYING AND RUNNING AROUND PLAYING KITCHEN, MAY I HELP YOU TO GET OUR ORDER AND MAKE US FOOD WITH HER LITTLE KITCHEN AND BARBIES AND HER WORK WHICH IS "WRITING" AS SHE CALLS IT. INSTEAD WE SEE HER JUST LAYING AND WATCHING MOVIES OR SLEEPING AND PLAYING WITH "MAJOR" HER DOG AND OF COURSE HOLDING ADEN. LEXY LOVES ADEN SO MUCH AND HE HAS BEEN SUCH A GOD SEND, GOD CERTAINLY KNEW WHAT HE WAS DOING WHEN HE BROUGHT ADEN INTO OUR LIFE, HE IS SO SWEET AND JUST GETS PASSED AROUND.

UNCLE MARTY AND AUNTIE CAME OVER LAST NIGHT TO SEE US AND WE SHOWED THE PICTURES THAT WE TOOK LAST WEEK AND WHAT A BEAUTIFUL FAMILY AND I WILL PUT THE NEW PICTURES ON AS SOON AS I CAN. THANKS TO EVERYONE FOR CARING AND LOVING LEXY. MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)

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TUESDAY MARCH 15, 2005

JUST A QUICK UPDATE TO LET YOU KNOW AFTER TALKING TO DAWN YESTERDAY SHE DID NOT GET GOOD NEWS.

LEXY STARTED THE IRINOTECAN WHICH WILL BE FOR 5 DAYS THEN OFF 2 DAYS AND THEN FOR 5 MORE DAYS.

LEXY IS STILL IN PAIN HER RIGHT LEG IS HURTING AND WHEN I ASKED ABOUT HER BACK, DAWN SAID SHE DOES NOT BEND DOWN BECAUSE SHE KNOWS IT WILL HURT.

LEXY SAW DR. MATTHAY YESTERDAY AND SHE FEELS LIKE THERE IS MORE BONE MARROW INVOLVEMENT SINCE SHE HAD FEVER YESTERDAY AND THE PAIN AND HER COUNTS ARE DROPPING OFF QUICK. LAST FRIDAY HER PLATELET COUNT WAS AT 19,000 AND ON MONDAY THEY WERE AT 8,000 SO SHE DID GET PLATELETS AND HER HEMOGLOBIN COUNT WAS AT 8.4 AND ON MONDAY IT WAS AT 7.7 SO SHE WILL GET RED BLOOD TODAY AND ALSO THE CHEMO.

DR. MATTHAY DID SAY IF THE PAIN IS NOT BETTER TOWARD THE END OF THE WEEK SHE MAY ADMIT LEXY AND GIVE HER A DOSE OF PAMIDRONATE WHICH IS A MEDICINE THAT SOMETIMES HELPS WITH BONE PAIN.

IF THE PAIN HAS NOT DECREASED BY MONDAY THEY WILL MEET WITH DR. MATTHAY AND REVISIT THE OPTIONS FOR LEXY.

OPTIONS ARE WHETHER THE IRINOTECAN IS WORKING OR IF SHE IS SICK FROM THIS ROUND OF CHEMO AND CAN CONTINUE NEXT WEEK FOR THE NEXT 5 DAYS OF IRINOTECAN OR THERE IS ONE OTHER CHEMO SHE CAN TRY BUT IT USUALLY BRINGS THE PLATELET COUNTS DOWN AND SHE WOULD MOST PROBABLY BE IN AT LEAST EVERY OTHER DAY GETTING PLATELETS AND THAT IS NOT GOOD. THE OPTION IS STILL TO GIVE LEXY THE BEST QUALITY OF CARE WITHOUT MAKING HER SICKER AND BEING IN THE HOSPITAL WHICH LEXY DOES NOT WANT TO BE IN THE HOSPITAL.

WE WILL KNOW MORE ON MONDAY OR TOWARDS THE END OF THIS WEEK. HOPEFULLY LEXY WILL NOT GET TOO SICK FROM THE IRINOTECAN.

PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)

SUNDAY MARCH 13, 2005

WE JUST RETURNED TONIGHT FROM CALIFORNIA, AND YES I ALREADY MISS LEXY AND ADEN.

WE GOT TO CALIFORNIA ON WEDNESDAY MORNING AND MY MOM LEXY'S MAW MAW, CAME WITH US AND SHE HAD NO TROUBLE FLYING AND WITH ALL THE WALKING SHE EVEN KEPT UP WITH US. IT WAS WONDERFUL SEEING LEXY BUT SHE IS SO SKINNY SHE WEIGHS ABOUT 33 POUNDS AND HAS NO MUSCLE, AND DAWN EVEN HAD TO GO AND BUY HER SIZE 2-3 PANTIES AND HER PANTS AND SHIRTS HANG OFF OF HER. SOME OF THE THINGS SHE SAYS IS SO CUTE. SHE WANTS PANTS WITH "LONG SLEEVES" WHICH ARE LONG PANTS AND SHE DOESN'T MEAN CAPRIE BECAUSE THEY DO NOT HAVE LONG SLEEVES, BUT I HAD BROUGHT HER A COUPLE PAIRS OF CAPRIS AND I DID TALK HER INTO WEARING THEM. WE HAD TIME FOR A QUICK LUNCH AND OFF TO THE CLINIC. LEXY STILL HAD NOT BEEN DRINKING ENOUGH OR EATING ENOUGH. LEXY NEEDED A POTASSIUM BOLUS OF FLUIDS SINCE SHE WAS NOT TAKING IN MUCH. SINCE SHE WAS GETTING POTASSIUM SHE WAS PUT ON A HEART MONITOR SINCE THE POTAASSIUM CAN CAUSE HEART PROBLEMS. LEXY HAD THE NURSES ALL EXCITED BECAUSE DAWN HAD BROUGHT A STOOL CULTURE. LEXY HAS ALSO BEEN DIAGNOSED WITH VANCOMYCIN RESISTANT ENTEROCCUS (VRE) WHICH IS INFECTION FROM THE INTESTINES THAT IS RESISTANT TO THE VANCOMYCIN ANTIBIODIC. TO BE CLEARED OF THE INFECTION LEXY MUST HAVE 3 NEGATIVE STOOL CULTURES AT LEAST 1 WEEK APART, THE THE ONE THAT DAWN DID TURN IN ON WEDNESDAY WAS POSITIVE. WITH LEXY HAVING VRE SHE HAS TO STAY IN AN ISOLATION ROOM AT THE CLINIC, SO FOR THE PEOPLE THAT TAKE THEIR KIDS TO THE CLINC KNOW THAT IS NO FUN STAYING IN A ISOLATION ROOM.

WE HAD PLANNED TO GO TO CHUCKIE CHEESE THE NEXT NIGHT BUT LEXY DECIDED WE NEEDED TO GO WEDNESDAY NIGHT, WHICH WE DID. LEXY HAS NOT FELT TOO GOOD WHICH I AM SURE SHE JUST HAD NO ENTERGY SINCE SHE HAD NOT ATE. WE HAD A GOOD TIME WE CARRIED HER AROUND AND SHE EVEN ATE A SLICE OF PIZZA.

JANET FROM CLINIC CALLED THURSDAY MORNING AND SAID LEXY'S ELECTOLYTES WERE STILL NOT IN LINE AND THAT DAWN WOULD HAVE A CHOICE TO EITHER GIVE LEXY FLUIDS AT HOME OR BRING LEXY IN FOR 24 TO 36 HOURS TO GET HER COUNTS IN ORDER AND START HER ON TPN WHICH IS A NUTRIONAL SUPPLEMENT THROUGH LEXY'S LINE. THEY WERE GOING TO TRY TO START TPN AT HOME BUT SINCE LEXY'S POTASSIUM WAS STILL OFF IT IS TOO DANGEROUS TO START TPN WITHOUT MONITORING BECAUSE IT CAN CAUSE HEART ARREST IF YOU BLOOD IS NOT IN ORDER AND THEY WILL NOT START IT ON HER AT HOME, SO THE DECISION WAS MADE TO GO INPATIENT ON TUESDAY TO START THE TPN WHICH THEN THEY WILL PUT HER ON A HEART MONITOR AND TAKE BLOOD AT ANY TIME THE HEART CHANGES AND THEN ADJUST THE TPN. LEXY WILL NOT BE HAPPY ABOUT THAT SINCE SHE DOES NOT WANT TO GO TO THE HOSPITAL.

THURSDAY, WE WENT TO THE ZOO WHICH LEXY KEPT COMPLAINGING ABOUT HER LEG HURTING AND SHE TOLD US SHE WOULD RIDE IN A WAGON BUT NO WE JUST PULLED THE WAGON AND PAPA CARRIED HER AROUND THE ZOO. lEXY ALSO COMPLAINED ABOUT HER BACK HURTING, IT WILL BE GOOD FOR THE CHEMO TO GET STARTED ON MONDAY.

FRIDAY WE WENT DOWN TO WHARF 39 WHERE THE SEA LIONS ARE AND SHE ENJOYED THAT BUT ONCE AGAIN PAPA DID HAVE TO CARRY HER SOME AND SHE RODE IN THE STROLLER SOME. LEXY DID START EATING A LITTLE MORE WHICH THAT WAS REALLY GOOD BECAUSE WHILE CARRYING HER YOU CAN FEEL EVERY BONE AND IT ALMOST FEELS LIKE THEY COULD BREAK.

SATURDAY WE WENT TO SEE MONSTER INC ON ICE WHICH I THINK SHE REALLY ENJOYED IT IS JUST SHE DOESN'T SEEM LIKE A HAPPY LITTLE GIRL BECAUSE SHE DOES HURT A LOT. SATURDAY NIGHT SHE COULD HARDLY WALK AND IT HURT TO BEND DOWN BECAUSE HER BACK AND SIDE HURT AND HER LEG IS HURTING IN THE UPPER PART OF HER LEG THIS TIME. SHE DID MENTION A COUPLE OF TIMES THAT HER HEAD HURTS.

THEY DO HAVE HER BACK ON THE PAIN MEDS TO TRY AND KEEP THE PAIN UNDER CONTROL. TONIGHT WHEN I TALKED TO DAWN SHE DID SAY THAT LEXY WAS WALKING AND HAS NOT COMPLAINED ABOUT PAIN BUT CAN TELL HOW SHE IS ACTIING THAT SHE STILL HURTS, BECAUSE SATURDAY NIGHT SHE WOULD HOLLER OUT IN PAIN, OR IF YOU PICKED HER UP DIFFERENT IT WOULD HURT, SO HOPEFULLY THE PAIN MED IS WORKING.

IT DOES HURT SO MUCH TO SEE LEXY IN SO MUCH PAIN AND I CANNOT DO ANYTHING TO HELP. LEXY ASKED ME WHY WE HAD TO GO HOME AND I TOLD HER I HAVE TO WORK AND SHE SAID WHY AND I TOLD HER I NEED MONEY TO BUY YOU SOMETHING AND THEN SHE SAID NANA I DON'T WANT ANYTHING AND THEN THAT BROKE MY HEART. I LOVE HER SO MUCH AND I WILL HAVE NEW PICTURES UP SOON AND ADEN IS SUCH A CHUNK AND SO CUTE.

LEXY NEEDS YOUR PRAYERS. EVERYTIME I SEE HER I SEE ALITTLE WORSE, AND THAT IS SO SCARY. IT REALLY HURTS WHEN LEXY SAYS PAPA CAN YOU HELP ME UP I CAN'T GET UP OR CAN YOU PUT YOUR ARM UNDER ME. THIS CHEMO HAS JUST GOT TO WORK VERY SOON, IT SEEMS DIFFERENT PARTS OF LEXY IS HURTING, WHEN SHE GETS THE PAIN BACK.

MAY GOD CONTINUE TO BLESS EACH AND EVERYONE OF YOU AND THANK YOU SO MUCH FOR THE ENTRIES ON LEXY'S WEB SITE THEY ARE SO UPLIFTING AND WE READ AND APPRCIATE EACH AND EVERYONE OF THEM.

PAT NEWTON
(LEXY'S NANA)

***************************************************

Tuesday March 8, 2004

JUST A QUICK UPDATE AS i AM PACKING TO SEE THE LITTLE STINKERS AND I CANNOT WAIT.

FRIDAY, UNCLE JARED AND AUNT KATIE ARRIVED AND STAYED TILL SUNDAY AND HAD A GOOD TIME SEEING LEXY AND ADEN AND OF COURSE DAWN AND GREG. FRIDAY EVENING THEY DID GO TO THE WHARF BECAUSE LEXY SAID SHE DID NOT WANT ANYTHING TO EAT BUT I WOULD EAT SOME CRAB SO OF COURSE THEY WENT TO EAT CRAB AND LEXY HAD A BITE OF BREAD AND WATER. JARED DID TELL ME THAT IT WAS BAD NOT SEEING LEXY HYPER LIKE SHE USUALLY IS AS NOW SHE JUST SITS AROUND AND NEEDS YOU TO CARRY HER AND WHEN YOU DO YOU FEEL EVERY BONE IN HER LITTLE BODY SINCE SHE HAS LOST SO MUCH WEIGHT AND MUSCLE.

SUNDAY, GRANDMA IVY, GRANDPA JOE AND AUNT DEB CAME TO VISIT THE FLORY' AND HAD A NICE VISIT.

LEXY IS ON IV FLUIDS SINCE SHE IS NOT EATING AND THEY ARE TRYING TO GET HER ELECTROLYTES CORECT SO THEY CAN START HER ON TPN WHICH IS A SUPPLEMENT THROUGH HER LINE. LEXY HAS BEEN COMPLAINING OF HER TUMMY HURTING AND HAS BEEN THROWING UP. THE DOCTOR DID WANT TO PUT HER IN THE HOSPITAL TODAY TO TRY AND GET HER READY FOR TPN BUT LEXY DID NOT WANT TO GO IN THE HOSPITAL AND DAWN TOLD ME THAT WAS THEIR GOAL TO KEEP HER OUT OF THE HOSPITAL AS MUCH AS POSSIBLE AND FOR NOW SHE IS OUT AND TOMORROW SHE WILL GO FOR MORE COUNTS AND FLUIDS.

I HAVE TO STOP WRITING NOW AND FINISH PACKING.

PLEASE CONTINUE TO PRAY FOR LEXY AND I WILL UPDATE AS SOON AS POSSIBLE.

PAT NEWTON
(LEXY'S NANA)

Friday, March 4, 2005

LEXY IS DOING OK!!!!!!!!!!!!!!

LEXY STARTED HER 2ND 5 DAY ROUND OF CHEMO LAST MONDAY AND WILL FINISH TODAY. LEXY WILL BE OFF FOR 2 WEEKS AND THEY WILL TRY TO GIVE CHEMO AGAIN.

LEXY HAS NOT ATE OR DRANK ANYTHING IN THE LAST 2 DAYS BUT LAST NIGHT SHE DID EAT A COUPLE OF BITES OF A PEANUT BUTTER SANDWICH, WHAT A THING TO HAVE AFTER NOT EATING BUT THAT IS WHAT SHE WANTED. LEXY IS DOWN TO 35 POUNDS NOW AND THAT IS SKINNY FOR LEXY. DAWN CRIED A COUPLE OF DAYS AGO WHEN SHE GAVE LEXY HER BATH SHE IS JUST SKIN AND BONES AND WE ARE USE TO HAVING A "CHUNKY DUB" AS HER UNCLE JARED USE TO CALL HER. DAWN DID TALK TO THE DOCTORS ABOUT HER EATING AND ASKED ABOUT THE TPN AND THEY TOLD HER THEY FELT LIKE LEXY WOULD WANT TO EAT AFTER THE CHEMO ROUND IS OVER AND IF NOT THEY MAY GIVE HER MEDICINE TO STIMULATE HER TO HELP HER WANT TO EAT. LEXY DOES NOT WANT TO BE SICK SO SHE DOES NOT EAT. LEY DID THROW UP ON WEDNESDAY AND YESTERDAY SHE KEPT SAYING SHE WAS HOT AND WAS GETTING SICK BUT SHE NEVER DID THROW UP.

AS FAR AS LEXY'S PAIN THAT HAS BEEN GOOD, DAWN HAS CUT LEXY'S PAIN MEDS DOWN TO 1 TABLET OF OXYCONTIN DURING THE DAY AND 2 TABLETS AT NIGHT SO THAT IS ABOUT HALF OF THE DOSEAGE.

THURSDAY AT CLINIC SHE DID HAVE BLOOD TAKEN FOR BLOOD COUNTS AND HER ANC IS HOLDING IT OWN AT 958, HER BLOOD IS AT 8.7 WHICH IS NOT GREAT BUT NOT DROPPING AND MAYBE BY MONDAY SHE MAY NEED BLOOD. PLATELETS WERE AT 21,000 AND TODAY SHE MAY GET PLATELETS.

LEXY IS LOOKING FORWARD TO SEEING UNCLE JARED AND AUNT KATIE TODAY WHO WILL BE VISITING FROM TEXAS AND WILL BE THERE TILL SUNDAY. I WILL MENTION THAT AUNT KATIE HAS ACCEPTED HER INTERNSHIP IN MINNEAPOLIS WHICH SHE WILL BE DEALING WITH CHILDREN WITH PHYSCOLOGICAL PROBLEMS FROM BEING SICK SO WE ARE VERY PROUD OF HER. WEDNESDAY PAPA AND I AND MAWMAW WILL BE THERE AND I CANNOT WAIT.

LEXY HAS HAD A GOOD TIME WITH MELODY AND DAWN SAID THAT MELODY HAS SEEN HOW SPOILT ADEN IS AND LOVES TO BE HELD AND MELODY HAS HELPED SO MUCH WITH ADEN AND LEXY.

PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
LEXY'S NANA

Sunday, February 27, 2005 8:53 PM CST

TODAY IS A GOOD DAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

NO FEVER, NO DIARHEA, NO THROW UP!!!!!!!!!!!!!!!!!

WHAT MORE COULD YOU ASK FOR, LEXY HAS BEEN A LITTLE LIKE THE OLD LEXY.

LEXY HAD CHEMO AND PLATELETS ON SATURDAY AND TODAY SUNDAY IS A DAY OF REST FROM CHEMO. IT IS ACTUALLY SUPPOSE TO BE 2 DAYS OFF FROM CHEMO AND THEN THE NEXT 5 DAYS AGAIN. SINCE THERE IS NO BAD SYMPTOMS FROM THE CHEMO LIKE DIARHEA, FEVER OR THROW UP MAYBE THEY WILL BE ABLE TO DO CHEMO TOMORROW INSTEAD OF WAITING TILL TUESDAY SINCE THAT WOULD GIVE HER 2 DAYS OFF AND THAT WILL BE DR. MATTHAY'S CALL AND THEY WILL SEE HER TOMORROW. DR. MATTHAY WILL LOOK AT LEXY'S HEAD AND DECIDE WHAT TO DO ABOUT THAT.

TODAY LEXY CHASED HER DAD DOWN THE HALL PLAYING AND EVEN STOOD ON HER LEFT LEG AND KICKED AT DAWN WITH HER RIGHT LEG AND BY THE WAY PLAYING. THAT IS GREAT THAT SHE HAS EVEN FELT LIKE PLAYING. DAWN DID SAY HER HEAD LOOKED A LITTLE BETTER TO HER. DAWN SAID SHE SEEMS TO FEEL BETTER AND ACT LIKE THE OLD LEXY SO GOD AND THE CHEMO IS HELPING.

MELODY FROM NEDERLAND TEXAS WHICH IS DAWN'S FRIEND FROM TEXAS ARRIVED TODAY WITH A SUITCASE FULL OF SURPRISES FOR LEXY AND ADEN. I HEARD THEY ARE DOING GIRLY THINGS EVERYONE IS PUTTING ON MAKE-UP, JEWELRY AND JUST HAVE TO LOOK CUTE AND OF COURSE GET YOUR PURSE IN ORDER SHE IS REARRANGING HER NEW PURSE AND THAT IS SO GOOD TO HEAR BECAUSE SHE HAS NOT EVEN WANTED TO PLAY JUST LESS PUT MAKEUP OR WHATEVER ON. MELODY DID SHOW UP WITH THE ECHO MIKES AND IF YOU ARE FROM DAWN'S AGE OF TIME YOU MAY REMEMBER THE ECHO MIKES SO MELODY BROUGHT ALL THREE OF THEM ONE, THAT IS DAWN, MELODY AND LEXY ONE AND THEY HAVE BEEN SINGING, CAN'T YOU JUST HEAR THAT, ALTHOUGH I WOULD LOVE TO HEAR IT.

UNCLE JARED AND AUNT KATIE IS FLYING FROM TEXAS ON FRIDAY AND WILL BE LEAVING ON SUNDAY. JARED IS DAWN'S BROTHER AND LEXY JUST LOVES HER UNCLE JARRRRED AND AUNT KATTIE ON WEDNESDAY MARCH 9TH PAPA AND MYSELF AND MY MOM WHO IS 79 AND HAS NEVER FLOWN BUT HAS TO SEE LEXY AND ADEN WHO IS HER ONLY GREAT GRANDSON WILL BE ARRIVING IN SAN BRUNO TO SEE THEM AND I CANNOT WAIT.

MIRACLES DO HAPPEN AND LEXY MIGHT AS WELL BE THE ONE TO GET IT SO YOU KEEP PRAYING FOR OUR LITTLE MIRACLE.

I WILL UPDATE AS SOON AS I HAVE ANY INFO.

PAT NEWTON
(LEXY'S NANA)

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

FRIDAY EVENING FEBRUARY 25, 2005

LEXY HAD CHEMO TODAY FOR 1 HOUR FLUIDS FOR 1 HOUR AND THEN PREMEDS WHICH LEXY HAS TO GET OR THE BANTIMYCIN ANTIBIODIC LEXY WILL BE GETTING BY IV 3 TIMLES A DAY WILL RED FACE SYNDROM. LEXY WILL BE GETTING THE ANTIBIODIC BECAUSE YESTERDAY THE CULTURE DID GROW WHICH SHOWS AN INFECTION AND THEY DID TELL DAWN IT IS OF THE INTESTINE AND I DO NOT KNOW THE NAME OF THE INFECTION.


DAWN DID TALK TO THE NURSE PRACTIONER TODAY ABOUT LEXY'S HEAD AND THEY WILL TALK WITH DR. MATTHAY ON MONDAY AND THE NURSE PRACTIONER DID SAY MAYBE THEY COULD DO RADIATION TO KEEP THE PAIN AWAY. HER HEAD HURTS WHEN YOU TOUCH IT. LEXY WILL GET THE ANTIBIODICS BY IV 3 TIMES A DAY WHICH DAWN WILL GIVE TO LEXY. TOMORROW THEY WILL HAVE TO GO TO THE HOSPITAL FOR CHEMO SINCE CLINIC IS CLOSED ON SATURDAY AND SUNLDAY AND LEXY WILL ALSO GET PLATELETS, THEY ARE DOWN TO 15,000. DIARHEA IS BETTER ACTUALLY NONE TODAY AND LAST NIGHT YEAH!!!!

NOW SOMETHING CUTE: ADEN MADE A NOISE AND LEXY SAID MOM WHAT DID HE SAY AND DAWN SAID HE SAID II AND LEXY SAYS GOOD BOY HE SAID WHAT THE SEA LIONS SAY. THAT'S GOOD BECAUSE LEXY IS SO IMPRESSED WITH THE SEA LIONS.

I WILL UPDATE AS I HAVE INFO. KEEP US IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)


FRIDAY A.M. FEBRUARY 25, 2005

LEXY HAD HER CHEMO YESTERDAY AND DID GET BLOOD. LEXY'S PAIN IS BETTER IN HER LEGS AND ARM SINCE HER PAIN MEDICINE HAS BEEN MORE THAN DOUBLED.

PAPA GOT A SURPRISE PHONE CALL LAST NIGHT WHEN HE ANSWERED, LEXY WAS ON AND SHE TALKED FOR A COUPLE OF MINUTES AND PAPA TOLD HER "CAN I COME SEE YOU" SHE SAID YES AFTER MELODEEEE AND UNCLE JARED AND AUNT KATIE SO WE ARE PLANNING A TRIP AND I HAVE EVEN TALKED MY 79 YEAR OLD MOM TO GOING. SHE HAS MISSED SEEING THEM AND WANTS TO SEE THEM SO BAD BUT HAS NEVER FLOWN AND IS A LITTLE SCARED BUT SHE WILL MAKE IT.

WHILE TALKING TO DAWN LAST NIGHT LEXY STARTED CRYING AND WHEN DAWN ASKED WHAT IS WRONG SHE SAID HER HEAD WAS HURTING THAT IT IS BURNED, SHE DESCRIBES IT AS A SUNBURN. THE SPOT IS ON THE UPPER BACK OF HER HEAD AND YOU CAN NOT TOUCH IT BECAUSE IT DOES HURT HER.

YESTERDAY THEY HAD A PROBLEM WITH HER CENTRAL LINE HOPEFULLY IT WILL BE OK TODAY, AND THEY WILL NOT HAVE TO REPLACE IT. WEDNESDAY, SINCE LEXY HAD RUN A FEVER THEY TOOK BLOOD CULTURES AND YESTERDAY THEY GOT THE RESULTS THAT THEY HAVE GROWN SO THEY GAVE LEXY IV ANTIBIODICS AND TODAY AT CHEMO THEY WILL FIND OUT WHAT KIND OF INFECTION.

PLEASE PRAY FOR LEXY TO HAVE NO MORE PAIN AND MAKE HER COMFORTABLE AND TO HAVE ANGELS ALL AROUND HER AND KEEP HER SAFE.

I ALSO WANT TO THANK THE MANY PEOPLE THAT HAVE CHECKED ON LEXY WHETHER BY PHONE MAIL EMAIL OR THE GUESTBOODK ENTRIES, IT MEANS SO MUCH TO GET ENCOURAGING MESSAGES FROM YOU. MOST OF ALL I WANT TO THANK YOU FOR THE PRAYERS AND THE HUGS ON THE HUG METER, SO PLEASE KEEP THE PRAYERS AND HUGS GOING.

MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)


WEDNESDAY 9:00 P.M. FEBRUARY 23, 2005

WE JUST TALKED TO DAWN AND THEY HAD JUST MADE IT HOME FROM THE CLINIC. LEXY GOT CHEMO TODAY AND SHE HAD TO GET PLATELETS AGAIN TODAY, THE COUNT WAS 12,000 AND ON MONDAY WAS 9,000 AND SHE RECEIVED PLATELETS ON MONDAY ALSO. LEXY'S HEMOGLOBIN IS A LITTLE LOW SO THEY WENT AHEAD AND CROSS TYPED HER BLOOD IF SHE NEEDS IT TOMORROW, HER COUNT IS 8.2 SO MOST PROBABLY SHE WILL NEED IT. THE REASON SHE NEEDED PLATELETS SO QUICK WAS SHE HAS BEEN IN SO MUCH PAIN AND HAS HAD FEVER AND THAT TAKES AWAY YOUR PLATELETS AND LEXY IS NOT MAKING NORMAL AMOUNTS OF PLATELETS IF ANY. LEXY WAS ALREADY TO GO TO BED SHE HAD BENEDRYL BEFORE HER PLATELETS AND IT ALWAYS MAKES HER SLEEPY AND SHE HAD NOT SLEPT SINCE THE BENEDRYL. lEXY DOES NOT HAVE MUCH PAIN AT THE TIME THEY ARE UPPING HER OXCOTYN FROM 2 PILLS IN 24 HOURS TO 4 PILLS IN 24 HOURS AND CAN ALSO HAVE OXICODYNE AS NEEDED EXTRA FOR PAIN EVERY 2 HOURS. LAST CHEMO ROUND LEXY HAD LOTS OF PROBLEMS WITH DIARHEA AND THAT IS WHY THEY CUT THE DOSE DOWN THAT LEXY WILL BE RECEIVING BUT LEXY HAS HAD LOOSE BOWELS TONIGHT SO HOPEFULLY SHE IS NOT GETTING DIARHEA AS DAWN SAID SHE IS SO SKINNY.

ADEN IS DOING GREAT JUST DOING A LOT OF SLEEPING AND BEING A GOOD BOY.

LEXY WILL SEE MELODEEEE AS LEXY SAYS, ON SUNDAY AND SHE WILL BE VISITING FROM TEXAS AND WHEN SHE LEAVES ON SATURDAY, I THINK THE FRIDAY BEFORE THAT UNCLE JARED AND AUNT KATIE WILL BE VISITING THEM FOR THE WEEKEND SO LEXY WILL BE GETTING LOTS OF HUGS.

CHEMO TOMORROW AT 10:00 A.M. AND MOST LIKELY BLOOD AND HOPEFULLY THE PLATELETS WILL BE OK TOMORROW.

I WILL UPDATE AGAIN AS SOON AS I HEAR FROM DAWN. THANKS FOR CHECKING ON LEXY.
PAT NEWTON

WEDNESDAY 7:00 P.M. FEBRUARY 23, 2005

I WILL START THIS UPDATE WITH A LITTLE HUMOR. I ASKED DAWN IF LEXY WAS EATING AND SHE SAID YES AT THE MOMENT SHE IS EATING SALAMI WITH CREAM CHEESE AND JELLY BEANS WHAT A MIXTURE OH AND I CANNOT FORGET THE BARBQUE CHIPS AND OREOS. I ASKED DAWN IS THAT WHAT SHE IS EATING FOR DINNER AND SHE SAID WHATEVER SHE WANTS AT LEAST SHE IS EATING.

DAWN TOLD ME LAST NIGHT LEXY HAD 102. FEVER BUT DID NOT BRING HER IN BECAUSE LEXY BEGGED NOT TO GO TO THE DOCTOR'S SO DAWN DECIDED NOT TO TAKE HER AND GAVE HER TYLENOL. THE FEVER AT THIS TIME IS DUE TO THE CANCER WHICH THEY CALL TUMOR FEVER OR CANCER FEVER. THIS MORNING LEXY ALSO HAD FEVER AND DAWN DID GIVE TYLENOL AND KNEW THEY WERE GOING TO CLINIC FOR CHEMO, SO WHEN THEY GOT TO CLINIC LEXY HAD NO FEVER BUT WHILE THEY WERE THERE SHE DID RUN FEVER OF 102. SO THEY TOOK BLOOD CULTURES AND GAVE AN IV ANTIBIODIC, WHICH THEY ALWAYS DO JUST IN CASE OF AN INFECTION. DAWN DID SAY IF THE FEVER WOULD HAVE BEEN HIGHER THEY WOULD HAVE BROUGHT HER IN LAST NIGHT.

YESTERDAY GREG WAS ABLE TO GO TO THE CLINIC WITH THEM AND IT WAS A GOOD THING BECAUSE LEXY IS STUCK TO GREG RIGHT NOW, WHAT A GOOD THING TO HAVE 2 LOVING PARENTS. TODAY DAWN TOOK LEXY AND ADEN BY HERSELF, I ASKED HER HOW DID YOU DO THAT SHE SAID EASY I PUT LEXY IN THE BIG STROLLER AND ADEN IN THE HALTER. TODAY WHEN LEXY NEEDED TO GO TO THE POTTY SHE CARRIED LEXY AND ADEN AND WHEN SHE GOT TO THE DOOR SHE PUT LEXY DOWN AND SHE WALKED IN AND WHEN THEY STARTED OUT OF THE POTTY, LEXY SAID DON'T BOTHER MOMMY YOU CAN'T CARRY ME AND ADEN AND DAWN SAID "NOW GIRL YOU WOULD BE SURPRISED WHAT ALL I CAN DO" AND LEXY THOUGHT THAT WAS SO FUNNY AND JUST GIGGLED. LEXY DID WALK BACK TO HER ROOM WHICH WAS A WAY FOR HER TO WALK WITH A LIMP.

I SAID YESTERDAY THAT IT WAS LEXY'S RIGHT LEG BUT ACTUALLY HER LEFT LEG IS BOTHERING HER MORE AND DAWN DID SAY SHE COULD TELL HER LEFT KNEE IS LARGER.

PLEASE KEEP LEXY IN YOUR PRAYERS.
NOAH IS DOING OUTPATIENT CHEMO THIS WEEK AND AUNTIE SAID HE IS DOING GOOD, SO KEEP NOAH IN YOUR PRAYERS.

THANKS TO EVERYONE THAT HAS CHECKED ON LEXY. I PUT A NEW HUG METER ON LEXY'S WEBSITE SO PLEASE CLICK ON IT AND GIVE HER A HUG AND SAY A PRAYER.

MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)


TUESDAY P.M., FEBRUARY 22, 2005

I JUST TALKED TO DAWN AT ABOUT 9:00 OUR TIME AND THEY HAD JUST GOT HOME FROM THE CLINIC.

LEXY HAS HAD SUCH A ROUGH DAY WITH LOTS OF PAIN. LEXY DID GET MORPHINE A COUPLE OF TIMES AND THE CHEMO DID START TODAY. THEY DID UP THE DOSE OF HOME MEDS. TOMORROW LEXY GOES BACK TO CLINIC FOR CHEMO AND THEY WILL TALK ABOUT PUTTING LEXY ON A MORPHINE PUMP.
DAWN DID SAY THEY WILL ASK THE DOCTOR IF THERE IS SOMETHING ELSE LEXY CAN BE PUT ON BECAUSE MORPHINE MAKES LEXY FEEL BAD AND IT DOES HELP WITH THE PAIN BUT THE SIDE EFFECTS OF THE MORPHINE MAKES LEXY JUST SO OUT OF IT AND UNCOMFORTABLE.

WHEN I ASKED DAWN IF SHE HURT AND DAWN SAID YES MOM AND I SAID WHERE, IS THE SAME PLACES THAT HURT HER RIGHT LEG AND LEFT ARM AND DAWN JUST SAID PRETTY MUCH IF SHE MOVES SHE HURTS. THE CLINIC DID TELL THEM IF LEXY'S PAIN GETS OUT OF CONTROL AGAIN TONIGHT TO BRING HER IN AND THEY WILL ADMIT HER. WHILE I WAS TALKING TO DAWN LEXY WAS CRYING AND DAWN ASKED IF SHE HURT AND SHE SAID YES BUT I DO NOT WANT TO STAY AT THE DOCTOR'S TONIGHT.

I JUST WISH THERE WAS SOMETHING I COULD DO TO TAKE THE PAIN AWAY BECAUSE SHE HURTS SO MUCH. I LOVE HER SO MUCH, I JUST WISH EVERYONE THAT HAS EVER WRITTEN ON LEXY'S WEBSITE ASKED ABOUT HER OR EVEN HEARD ABOUT HER COULD KNOW HER LIKE I DO, SHE IS SO LOVING AND WANTS TO BE HUGGED AND SHE CAN SURPRISE YOU AND PUT HER ARM AROUND YOU AND GIVE YOU A PECK ON THE CHEEK AND SAY "I LOVE YOU" AND THAT WILL JUST MELT YOU AND THAT IS MY LEXY.
I KNOW WHAT THAT FEELS LIKE AND I REMEMBER PAPA AND AUNTIE TELLING ME LEXY GAVE THEM A SURPRISE HUG AND A KISS, AND THAT IS SO WONDERFUL.

I DO PRAY THE CHEMO WILL START WORKING AND TAKE AWAY THE PAIN AND I KNOW YOUR PRAYERS THAT ARE FLOODING HEAVEN CAN TAKE AWAY THE PAIN.

THANKS TO EVERYONE FOR CHECKING IN ON LEXY AND LETTING US KNOW YOU STOPPED BY. MAY GOD BLESS EACH AND EVERYONE OF YOU. PLEASE PRAY FOR LEXY TO MAKE HER COMFORTABLE AND GIVE OUR FAMILY STRENGTH TO GET US THROUGH OUR TRYING DAYS.

PAT NEWTON
(LEXY'S NANA)


TUESDAY A.M., FEBRUARY 22, 2005

I TALKED TO DAWN THIS MORNING AND SHE HAD NOT HEARD FROM CLINIC IF THEY WOULD START LEXY'S CHEMO TODAY BUT DID SAY LEXY WAS HURTING.

I JUST TALKED TO DAWN A FEW MINUTES AGO AND THEY ARE AT THE CLINIC AND LEXY IS IN LOTS OF PAIN AND I COULD HEAR HER CRYING WHICH WAS AWFUL HARD TO HEAR. THEY WERE GIVING LEXY MORPHINE AND ARE GOING TO UP HER DOSE OF PAIN MEDICINE AT HOME AND THEY ARE GOING TO START THE CHEMO TODAY. THAT WAS THE NEWS I GOT ABOUT 12:30 THEIR TIME AND IF ANYTHING CHANGES I WILL UPDATE.

PLEASE KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)


Sunday, February 20, 2005

I am just reminding everyone we still need prayers for Lexy.

Friday night when I talked to Dawn, Lexy had told Dawn a couple of times her leg would hurt so Dawn did give Lexy ocicodine. It is Lexy's right leg that is hurting. Saturday during the day Lexy did complain some that her leg hurt and Saturday night her left arm just below the shoulder started hurting, and Sunday her leg and arm are hurting but Dawn is keeping Lexy on pain medicine and hopefully it will make Lexy feel better with no pain.

My heart is so heavy and I am so upset, thinking about Lexy and I cannot forget the pain Lexy was in last month shen she was screaming and could not get relief. It is horrible when you hear her scream and there is nothing you can do but hold her and try to wish the pain away.

Lexy did enjoy Jodie's trip to see them and of course Lexy wanted to show the sealions to Jodi which they went to see and what a sight they are to see. Greg kept Aden while Dawn, and Lexy took Jodi to see the town. Lexy was not feeling real good as her leg had started to hurt.

Jodi left on Sunday to go back to Texas, then Dawn, Greg and Lexy and Aden went to Galt for the baby shower for their good friends Traci and Kurt which are expecting twin girls. Lexy was hurting some so Dawn did give medicine and Lexy helped Traci with the gifts.
Lexy had to shop on her own for the twin baby girls, she got them their first baby dolls.

Please keep Lexy in your prayers as chemo will start next Tuesday and hopefully it will give Lexy some relief. May God Bless each and everyone of you.

Pat Newton
(Lexy's Nana)


Friday, February 18, 2005

LEXY IS DOING GREAT!!!!!!!!!!!!!!!!!!

LEXY HAD BLOOD TAKEN TUESDAY AND RESULTS CAME BACK TUESDAY EVENING. PLATELETS ARE GOOD THEY ARE AT 30,000 AND ON THE 11TH THEY WERE AT 37,000, WHICH IS GOOD AND SHE IS NOT GETTING PLATELETS EVERY OTHER DAY.

TUESDAY NIGHT LEXY THREW UP 1 TIME AND DIAHREA 2 TIMES, BUT THE LITTLE STINKER SNEAKED AND GOT HER A YOGURT AND SHE HAD A BEAR DRINK(INSURE LIKE PRODUCT) AND SHE IS NOT SUPPOSE TO HAVE MILK PRODUCTS RIGHT NOW, SO MAYBE THAT IS WHERE THE THROW UP AND DIARHEA CAME FROM.

WEDNESDAY, LEXY HAD AN APPOINTMENT WITH DR. MATTHAY.
DR. MATTHAY SAID SHE LOOKED GREAT.

TUESDAY, FEBRUARY 22, LEXY IS SUPPOSE TO START THE 2ND ROUND OF CHEMO, WHICH SHE WILL BE GETTING A SMALLER DOSE THAN LAST TIME AND IT WILL BE OVER 10 DAYS INSTEAD OF A LARGER DOSE OVER 5 DAYS. DR. MATTHAY DID NOT THINK THAT LEXY COULD GO THROUGH A ROUND OF CHEMO LIKE SHE WENT THROUGH 3 WEEKS AGO BECAUSE OF ALL THE COMPLICATIONS SHE HAD WITH DEHYDRATION AND THROW UP AND DIAHREA. LEXY WAS GIVEN 1 DOSE OF MEDICINE THAT IS GIVEN TO PEOPLE WITH BONE CANCER LAST ROUND OF CHEMO AND THIS ROUND OF CHEMO THEY ARE NOT GIVING HER THE 1 DOSE MEDICINE TO SEE IF THAT IS WHAT HELPED LEXY'S PAIN OR WAS IT THE CHEMO THAT HELPED THE PAIN, AND THIS WILL TELL IF THE CHEMO DID ANYTHING. WE ALL THINK THE CHEMO MUST BE DOING SOMETHING BECAUSE OF LEXY'S PLATELET COUNT. DR. MATTHAY SAID SHE WOULD NOT DO ANY SCANS UNTIL AFTER 2 MORE ROUNDS OF CHEMO BECAUSE IF THEY DID SCANS NOW THERE IS NOTHING ELSE TO TRY AT THIS TIME ANYWAY, SO AFTER 2 MORE ROUNDS OF CHEMO THEY HOPE IT WILL MAKE A GOOD CHANGE TO LEXY.

LEXY GOT A VISIT FROM JODIE,THURSDAY NIGHT AND WILL BE THERE UNTIL SUNDAY. JODIE IS THEIR FRIEND FROM NEDERLAND, TEXAS SO THAT WILL BE GREAT, AS LEXY DOES LOVE JODIE, AND OF COURSE RILEY, DAISY AND MIKE, EVEN THOUGH IT HAS BEEN A WHILE SINCE SHE SAW THEM SHE STILL TALKS ABOUT THEM AND NEVER FORGETS ANYTHING.

JODIE'S SISTER N LAW, ANNE MARIE WILL HAVE A TEAM FOR RELAY FOR LIFE IN VIRGINIA BEACH AND THE TEAM NAME WILL BE IN HONOR OF LEXY AND THE NAME OF THE TEAM WILL BE "LEXY'S FRIENDS". RELAY FOR LIFE IS A GREAT ORGANAZATION AND YOU ALL KNOW WE NEED A CURE FOR THIS CANCER BEAST, THERE ARE SO MANY OF US COUNTING ON A CURE AND A MIRACLE. I WILL PUT A LINK ON THE WEB SITE FOR THE TEAM. I WISH ALL THE LUCK TO
"LEXY'S FRIENDS" TEAM.

PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS AND KEEP CHECKING ON HER AND I WILL UPDATE AS SOON AS I GET NEW INFO.

MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)

Sunday, February 13, 2005 7:51 PM CST

UPDATE TO LET EVERYONE KNOW LEXY IS OUT OF THE HOSPITAL.

LEXY WENT HOME FROM THE HOSPITAL SATURDAY EVENING, AND TRYING TO LET EVERYONE KNOW SHE WANTED CHEESE ENCHILDADAS.

WEDNESDAY EVENING LEXY WAS PUT IN THE HOSPITAL BECAUSE OF DEHYDRATION. LEXY HAS ENJOYED AUNTIE BEING THERE AND THURSDAY AND FRIDAY NIGHT AUNTIE STAYED WITH LEXY AND DAWN AND GREG WENT HOME WITH ADEN. LEXY IS DOING GOOD. THEY PUT HER ON FLUIDS UNTIL SATURDAY THEN THEY SAID BLAND DIET BUT LEXY WANTED ENCHILADAS SO ON THE WAY HOME THEY STOPPED AND HAD ENCHILADAS, I KNOW THAT IS NOT TOO BLAND BUT AGAIN THAT IS WHAT LEXY WANTED.

SUNDAY THEY WANTED TO SHOW SAN FRANCISCO TO AUNTIE SO THEY WENT TO THE WHARF AND SHOWED AUNTIE THE SEALIONS (ARF ARF'S) AND OF COURSE HAD TO HAVE DUNGENESS CRAB WHICH DAWN SAID SHE ATE ALMOST A HALF OF ONE WHICH WAS PRETTY BIG. LEXY RODE THE CAROUSEL AT THE WHARF WHICH IS ONE OF HER FAVORITE THINGS TO DO.

AUNTIE, SAID LEXY HAS HAD A GREAT DAY TODAY, NO ACHES OR PAINS, LOTS OF LAUGHTER, NO THROWING UP AND NO DIAHREA AND THEY WERE GOING TO HAVE ICE CREAM NOW.

I WAS REMINDED THAT AUNTIE AND LEXY ARE SLEEPING IN A TENT IN LEXY'S ROOM TONIGHT, THAT OUGHT TO BE FUN AND I WISH I WAS THERE WITH THEM.

THIS HAS BEEN A GREAT DAY FOR LEXY. SHE WANTS AUNTIE TO COME BACK AND BRING NO ONE (NOAH) WITH HER AND NANA AND PAPA. TOMORROW WILL BE A SAD TIME FOR LEXY WHEN AUNTIE LEAVES.

NEXT THURSDAY JODIE, DAWN'S FRIEND FROM TEXAS WILL VISIT FOR A FEW DAYS AND LEXY WILL ENJOY THAT.

PLEASE KEEP LEXY IN YOUR PRAYERS AND MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)

Wednesday, February 9, 2005 9:11 PM CST

I feel like this is a big Roller Coaster.

Lexy is back in the hospital. Last journal entry on the 8th which was yesterday she just came home from the hospital.

Today when I talked to Dawn Lexy was playing with her valentines she was so busy making, or her work as she says.
This morning Janet, the nurse practioner called and said they were going to try and set up Home Health to give Lexy fluids at night so she would not have to have them during the day. The home health came out and took blood for blood counts and Dr. Matthay called Dawn and said she needed to bring Lexy to the hospital within the next 2 hours to be admitted unless Lexy looked worse. Dawn told her she had actually done a little better today and wanted to go outside for a few minutes. Dr. Matthay told Dawn that Lexy was close to being acidic like she was last Saturday when Lexy was admitted to ICU for dehydration.
Lexy is getting so dehydrated from all of the diarhea, they cannot seem to stop it. Lexy goes at least several times an hour. Lexy is on fluids now and was asleep when I called a few minutes ago and so was Aden and probably Daddy. Dawn had left to pick up Auntie (Angie) which is Dawn's sister from Texas, as she flew in today. The story is with Auntie that she left 3 little boys at home with Marty but Auntie's youngest, my grandson who is 4 has leukemia and is being treated at Texas Children's Hospital in Houston. I know Lexy will be excited when she wakes up and sees Auntie as I know Auntie will love seeing Lexy and Aden.

I will update again as I get any info.

Please continue to let us know you stopped by and sign the guestbook as I know the entries uplift me and I know Dawn and Greg read the entries and they do need to be uplifted.
Keep Lexy in your prayers and to put angels all around Lexy to watch over her.

Pat Newton
(Lexy's Nana)

t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t t

Tuesday February 8, 2005

LEXY IS AT HOME!!!!!!!!!!!!!!!!!!!!!

JUST A QUICK UPDATE TO LET EVERYONE KNOW LEXY IS HOME AND IS AT LEAST DRINKING A LITTLE.

I JUST WANT EVERYONE TO KNOW WHAT A GREAT SENSE OF HUMOR THIS GIRL HAS EVEN THOUGH SHE FEELS LIKE YUK.

WHILE WE WERE IN SAN FRANCISCO WHEN LEXY HAD SUCH BAD LEG PAIN. NOW THIS IS LEXY TALKING!!!

DAWN IS STANDING BY LEXY'S BED AND SHE LOOKS UP AT DAWN AND SAYS PAPA AND LEXY REALIZES SHE CALLED HER MOM PAPA AND SAID " I HAVE LOST MY MIND " AND OF COURSE WE ALL HAD A GOOD LAUGH WHICH I AM SURE WE NEEDED LOTS THAT DAY. LATER LEXY WANTED TO HOLD ADEN AND SHE HELD OUT OUR ARMS STIFF AND CLAPPED AND SHE THOUGHT WHAT SHE WAS DOING AND SHE SAID MOM "ARF ARF", EVER SINCE LEXY WAS A BABY, PAPA WOULD READ TO HER AND WE WOULD ALWAYS SAY WHAT DOES THE SEA LION SAY AND SHE WOULD CLAP AND SAY ARF ARF, SO IT REMINDED HER OF IT WHEN SHE PUT HER ARMS OUT CLAPPED LIKE COME ON ADEN AND SHE THOUGHT OF THE SEA LIONS.

YESTERDAY DAWN WENT DOWN TO GET A DRINK AND WHEN SHE WALKED BACK INTO THE ROOM, LEXY TOLD DAWN THE DOCTOR CAME AND I TOLD HER YOU WENT FOR A DRINK AND DAWN FIGURED SHE WAS TALKING ABOUT THE NURSE AND LEXY SAID IT'S OK THOUGH I TALKED TO THE DOCTOR FOR YOU. IN A FEW MINUTES LATER DR. MATTHAY WALKED IN AND SAID I CAME BY AND TALKED TO LEXY AND DAWN SAID I DID NOT KNOW IT WAS YOU I THOUGHT IT WAS A NURSE SHE TALKED TO.

LEXY IS STILL HAVING THE DIARHEA AND SOME THROW UP BUT BEFORE THEY LEFT THE HOSPITAL TODAY THEY GAVE HER A BOLUSE OF FLUIDS AND GCSF SHOT THROUGH HER LINE TO BRING HER ANC UP AND THE FLUIDS HOPEFULLY TO KEEP HER FROM BEING DEHYDRATED AGAIN.

LEXY HAD A SURPRISE VISITOR TONIGHT, GRANDMA IVY SHOWED UP FOR A WHILE TO VISIT WITH LEXY AND ADEN AND OF COURSE DADDY AND MOMMY.

TOMORROW AUNT ANGIE WILL BE THERE FROM TEXAS TO SEE LEXY AND IS VERY EXCITED TO SEE THEM ALL AND THE NEW BABY. MELODY, DAWN'S FRIEND WAS ALSO SUPPOSE TO BE WITH AUNT ANGIE BUT MELODIE GOT SICK THIS MORNING AND WENT TO THE DOCTOR AND THE DOCTOR SAID TO NOT GO SINCE LEXY HAS NO ANC. MELODIE IS RESCHEDULING TO GO LATER.

I WILL UPDATE AGAIN AS SOON AS I HAVE ANY NEW INFO.

PAT NEWTON
(LEXY'S NANA)



PLEASE KEEP HER IN YOUR PRAYERS.


Monday February 7, 2005

Lexy is still in the hospital and hopefully she can go home tomorrow.

Dawn has had her hands full today with Greg going to work today Dawn had Aden and Lexy. Being the person my daughter is she never complains and keeps on going, I am so proud of her for being so strong.

Dawn thought they would be going home today after the 1st doctor came around but Dr. Matthay thought they should stay another day so they could monitor her input and output.

Lexy got platelets and fluids which were enough to keep her lines open so they can monitor her input. They will check the electrolytes in the morning. Lexy's ANC is at 180 which is low and hopefully it will start coming up and it usually comes up within 7-10 days after chemo begins. Lexy started the GCSF Shot which is a shot to bring her ANC up. The GCSF will be given through Lexy's line so she will not have to have a shot. From the blood that was taken Saturday the cultures did not grow anything so that is good.

Lexy still has diarhea but NO PAIN, and she has not had any pain meds so that does tell us that God and the chemo are working everyday. Lexy is on Cefixime which is an antibiodic to help with the diarhea.

Just because there is no pain please do not quit praying we need those prayers everyday.

Not only does Lexy need prayers but Dawn and Greg need an uplifting. I cannot even imagine how it is to watch your child suffer, I know how it is to watch as a grandmother and that makes my heart so heavy and I feel so helpless.

May God bless each and everyone of you and I will update as soon as I have any other news.

Pat Newton
(lexy's Nana)




Sunday February 6, 2005 11:27 AM CST

LEXY IS IN THE HOSPITAL!!!!!!!!!!!!!!!!

I talked to Dawn several times yesterday and Lexy was not feeling good with all the throw-up and diarhea it is hard to feel good. Kurt and Tracie came to see Lexy yesterday and Lexy even sat in their new car and watched tv for a little bit and that was good considering she does not want to do anything as I as sure she is weak from not eating since the 27th of January and she has lost about 7 pounds she is at 15.8 kilograms or 35 pounds.

The home health nurse came out and took blood for blood counts and her hemoglobin is 12.1 and her platelets were at 55,000 which is good because the last time she got platelets was on Thursday. The dodctor did call Dawn with the blood results and told her if the diarhea got more frequent to bring her in.

Last night about 9:00 their time Dawn called me and told me she was bringing Lexy in because of the diarhea, and they had a room for her.

When Lexy and Dawn got to the room the nurse came in to take blood pressure and could not get a pressure and then came in with a resident could not still get a pressure with the machine, they tried on both of her arms and legs and they could not get Pulses in her extremities and especially her feet because of being so cold and dehydrated and then the ICU doctor came and then the room was full of doctors and nurses and 2 nurses out in the hall waiting they were trying to hurry and get oxygen stats, blood cultures and other things and Lexy was so cold. At that time Dawn asked the nurse if she should call Greg and they said yes as Greg was home with Aden and Dawn as she said was so upset and scared to have so many people working on Lexy, and again God was there. The reason for not getting a blood pressure with the machine was severe dehydration and cold. The doctors decided at that time that they would take her to I C U which they did and gave her 3 boluses of fluids which is large amounts of fluids given quickly. When I talked to Dawn this morning Lexy has 6 Bags of different things hanging on her pole. Last night at about 1:00 Lexy woike up and said she felt better and she even wanted to watch cartoons. This morning Lexy was still asleep and Dawn said this was the most peaceful sleep she had seen her in and that she needed it so much.

At 11:00 this morning they were moving Lexy back to her room on the oncology floor and she was still asleep.

I will update as soon as I have any info.

Please keep Lexy in your prayers and thank you so much for all of the prayers and the entries in the guestbook as that lets us know you are stopping by and saying a prayer.

Pat Newton
(Lexy's Nana)

****************************************************

Tuesday, February 1, 2005 9:00 PM

Lexy had Ironotecan IV Chemo today, which was her 4th day and she takes it for 5 days.

Lexy also got platelets again today and blood, so she had a full day at the clinic. Lexy got platelets last Thursday, Sunday, Monday and Today.
They also gave Lexy medicine for diarhea which they can only give her 1 dose, hopefully it will help with that problem and she has not thrown up today, but the diarhea is still there.
Lexy also had fever today which was at 102 but it finally went down. The fever is caused from the neuroblastoma tumor cells. Dawn did tell me she has not complained about pain which is good news, so the chemo and God are doing their job, because I do give God all the credit for letting us have Lexy this long.

This is when family and friends pull together to help us get through the tough times.
Lexy will have company the next few weeks by some special people Lexy loves. Auntie (Angie Ard) who is Dawn's sister and Lexy's Auntie and Melody Gilbert who is Justin's mommy and Dawn's friend from Texas will be visiting them next week, and then the following weekend Dawn's friend Jodi Love from Texas will be visiting them. Jodi is Riley and Daisy's mommy. Lexy will be ready to be spoilt a little more since they have not seen Lexy in awhile.

Uncle Jared and Aunt Katie will be making plans to see Lexy soon. Aunt Katie is having a busy month, she has been visiting lots of hospitals around the country, and these are the maybe the top 5 hospitals where she would like to do her internship for child phycologist like Orange County Hospital, Chops, Children's Hospital in Minneapolis, Texas Children's and Cincinnati Ohio Childrens Hospital, hopefull, she has visited several other good hospitals around the country.

Please keep lexy in your prayers we are still seeking a miracle.

I will post new pictures soon and they are so cute and baby Aden is beautiful and of course my Lexy is so beautiful.

Pat Newton
(Lexy's Nana)

Sunday, January 30, 2005 10:33PM CST

Just thought I would take a little time to update. Lexy came home from the hospital today. She is only taking the oral pain meds and they are keeping her pain under control. She finished her second day of chemo and either that or the med she got friday seems to have worked a little or either her pain is just under good control. (of course I'd like to believe that is was the chemo) She got out of bed today and walked around quite a bit and her limp was alot better. She also walked around quite a bit at home.
According to the doctors we are no longer looking for a cure, but something to buy us more time and keep her quality of life good. We are hoping the pamidronate and the chemo ironotecan are the answer. We were told by the doctors that we don't have much time left; however we all know that doctors don't know everything. After all the doctors are just people in the end God has all the control, so we are asking all of you to take a minute and say a prayer for Lexy.
Thanks to all of you for your wonderful guestbook entries. Your words of encouragment and prayers mean so much to all of us.

Love,
Dawn (Lexy's mommy)

PRAY FOR LEXY

UPDATE: SATURDAY JAN. 29,2005 925 PM

THIS MORNING STARTED OFF REALLY SCARY.
LEXY WAS IN PAIN THIS MORNING AND WAS VERY HOT AND THEY TOOK HER TEMP AND IT WAS AT 104.9 AND 30 MINUTES LATER IT WAS 105.1. THEY GAVE TYLENOL AND PUT HER ON A COOLING MATTRESS AND WITHIN AN HOUR IT WAS DOWN TO 102.0. THEY GAVE LEXY MORPHINE TO GET THE PAIN BACK UNDER CONTROL AND SHE HAS DONE A LITTLE BETTER TODAY.

LEXY DID HAVE A WONDERFUL NURSE ANN MARIE TODAY THAT WAS ON TOP OF EVERYTHING TODAY.

LEXY DID HAVE LOTS OF COMPANY TODAY. CAROL, JIMBO, TIFFANY AND AMANDA CAME TODAY AND GRANDMA IVY. TRACI AND CURT CAME TODAY FROM RENO TO SEE LEXY.

GRANDMA IVY WILL BE VISTING, FOR A FEW DAYS.

I WILL UPDATE AS SOON AS I HAVE ANYMORE INFO.

PLEASE KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)

UPDATE: FRIDAY JAN. 28, 2005 8:35 PM

THIS IS THE UPDATE I ALWAYS PRAYED THAT I NEVER WOULD HAVE TO ENTER:

DAWN, GREG AND JOHN(PAPA) MET WITH DR. MATTHAY THIS EVENING FOR A PLAN OF ACTION.

THE PLAN IS NOT FOR A CURE BUT TO KEEP HER COMFORTABLE. DR. MATTHAY GAVE 4 OPTIONS:
(1) IV CHEMO IRINOTECAN
(2) ORAL CHEMO CYTOXIN
(3) ORAL CHEMO VP16
(4) KEEPING LEXY COMFORTABLE

THEY ARE TRYING LEXY ON A DRUG (PAMIDRONATE) THAT IS USED FOR BONE CANCER THAT HOPEFULLY WILL GIVE HER A LITTLE RELIEF FROM PAIN. IT IS GIVEN IV FOR 4 HOURS AND CAN BE GIVEN 1 TIME IN 3 WEEKS.

DAWN AND GREG DECIDED ON OPTION 1 WHICH IS THE IV CHEMO. DR. MATTHAY SAID THEY COULD TELL RESULTS IF IT WAS HELPING FASTER THAN USING ORAL MEDS. WE WILL KNOW IN A COUPLE OF WEEKS IF IT IS HELPING. LEXY DOES NOT QUALIFY FOR ANY OTHER STUDIES. HIGH DOSE CHEMO IS NOT AN OPTION SINCE HER COUNTS HAVE NOT CAME UP ON THEIR ON SINCE THE MIBG THERAPY LAST NOVEMBER. HIGH DOSE CHEMO COULD MAKE HER SICKER AND MAKE HER BE IN THE HOSPITAL LONGER AND NOT A GOOD QUALITY OF LIFE.

THE NEW CHEMO IRINOTECAN WILL START ON SATURDAY MORNING AND WILL BE FOR 1 HOUR FOR 5 DAYS.

AS OF TONIGHT LEXY IS OFF IV PAIN MEDS AND ONLY ON ORAL PAIN MEDS (OXYCOTIN ) AND (OXCODINE). LEXY HAS HAD A FEVER TODAY FROM 103 TO NOTHING TONIGHT.

DR. MATTHAY TOLD THEM IN HER EXPERIENCE AT THIS POINT THERE IS NOT A CURE FOR LEXY AND TIME IS SHORT AND FOR LEXY AS SHORT AS WEEKS TO MONTHS.

THE MAIN GOAL IS TO KEEP HER COMFORTABLE.

THE WAY LEXY IS NOW MAY BE THE WAY SHE WILL BE AND NOT THE LITTLE GIRL WE ALL KNOW AS RUNNING AROUND AND BEING SILLY LEXY.

THERE IS ALSO A CHANCE THAT THIS IS THE TREATMENT WE HAVE BEEN LOOKING FOR LEXY AS IT IS OUT OF DOCTORS HANDS AND IS IN GOD'S HAND NOW.

PLEASE PRAY FOR LEXY AND GREG AND DAWN AS THIS IS VERY HARD ON THEM. LEXY IS THEIR HEART AND IF YOUR COULD ONLY SEE LEXY CONSTANTLY HOLDING HER LITTLE BROTHER AND SINGING TWINKLE TWINKLE LITTLE STAR TO HIM.
ALL OF LEXY'S FAMILY AND FRIENDS NEED YOUR PRAYERS TO HELP EACH OF US THROUGH THIS AS I KNOW GOD WILL SEE US THROUGHJ.

I WILL UPDATE AGAIN AS SOON AS I HAVE ANY INFO.

THANKS FOR THE MANY CALLS TODAY AND THE PRAYERS.

PAT NEWTON
LEXY'S NANA



FRIDAY. JANUARY 28, 2005 2:47 AM

THIS IS JUST A QUICK UPDATE!!!!!!!!!!!!!!!!!!!!!!

THURSDAY NIGHT AT ABOUT 9:30, LEXY WAS ADMITTED TO THE HOSPITAL AT SAN FRANCISCO CHILDREN'S HOSPITAL.

LEXY WAS IN SO MUCH PAIN, THAT WE HAVE ALL BEEN IN TEARS TODAY. LEXY WAS SCREAMING MY LEG, MY LEG AND SHE WOULD CALL OUT TO ALL OF US AND THERE WAS NOTHING WE COULD DO BECAUSE SHE HAD ALL THE MEDICINE SHE COULD HAVE AT THE TIME. LEXY'S LEG HAD BOTHERED HER A FEW DAYS BUT THE PAIN STARTED GETTING WORSE YESTERDAY ON WEDNESDAY. WEDNESDAY EVENING LEXY KEPT COMPLAINING ABOUT HER LEFT LEG HURTING AND HER RIGHT ANKLE, SO DAWN CALLED THE DOCTOR THAT EVENING. DR. MATTHAY DID TELL DAWN SHE WOULD GET LEXY'S PAIN UNDER CONTROL THAT AT THIS TIME SHE COULD NOT DO HARSH CHEMO BECAUSE HER PLATELETS ARE STILL NOT COMING UP ON THEIR ON WITHOUT GETTING TRANSFUSED ABOUT EVERY 7 DAYS BUT THAT SHE MIGHT COULD DO A COUPLE OF RADIATION TREATMENTS ON A SPOT BUT NOW HER PAIN IS IN HER RIGHT LEG. DR. MATTHAY DID TELL DAWN THAT HER OR ONE OF THE OTHER DOCTORS WOULD BE OVER TO SEE HER TODAY IN CLINIC SINCE LEXY HAD TO GET BLOOD COUNTS TODAY WHICH SHE DID RECEIVE PLATELETS. THIS MORNING, DR. MICHELLE SAW LEXY AND BY THE TIME WE GOT LEXY TO CLINIC LEXY WAS IN SO MUCH PAIN THEN AND DAWN HAD ALREADY GIVEN HER TYLENOL AND OXYCODONE. WHEN THE DOCTOR DID SEE HOW MUCH PAIN LEXY WAS IN THEY GAVE HER MORPHINE BEFORE DRAWING BLOOD, AND BEFORE THYEY GAVE PLATELETS THEY GAVE HER TYLENOL AND HYDROCORTIZONE AND MORPHINE AGAIN SINCE SHE WAS IN SO MUCH PAIN.

THE DOCTOR DID COME IN AND TALK WITH, SHE SAID IT WAS MOST LIKELY THE YUCKY NEUROBLASTOMA DOING IT'S DIRTY WOK AND IT TRAVELS AND DAWN TOLD THE DOCTOR ABOUT LEXY SAYING HER HEAD HURT ON MONDAY AND SHE SAID IT COULD HAVE BEEN THE CANCER IN THE BONE MARROW WOKING BECAUSE IT TRAVELS. AGAIN THEY CANNOT DO ANYTHING HARSH ON ACCOUNT OF THE PLATELETS, BUT THEY WILL KEEP THE PAIN UNDER CONTROL. DAWN DID TELL THE DOCTOR THAT WE ARE NOT GIVING UP AND WE WILL KEEP FIGHTING AND THE DOCTOR SAID I DID NOT MEAN THAT. THEY DID GIVE A PRESCRIPTION FOR OXYCODONE AND OXYCOTIN. DAWN DID TRY THE MEDICINES BUT THEY WOULD NOT MAKE THE PAIN GO AWAY. DAWN CALLED THE DOCTOR AGAIN THURSDAY NIGHT AND THEY SAID TO BRING HER. DAWN, GREG AND PAPA TOOK LEXY IN AND I STAYED WITH ADEN. DAWN DID CALL AND THEY HAD GIVEN HER 2 MORE DOSES OF MORPHINE AND THEY TOLD DAWN SHE MAY GO HOME TOMORROW OR WHEN THEY GET HER PAIN UNDER CONTROL AND THE THEY WILL PROBABLY HAVE HOME HEALTH OUT WITH A PCA PUMP FOR PAIN. I KNOW THAT WAS THE WORSE DAY OF MY LIFE TO SEE HER IN SO MUCH PAIN AND WE COULD DO NOTHING THEN SHE WAS ALL FOR GOING TO THE HOSPITAL TO FEEL BETTER AND THEN WHEN DAWN TOLD HER THAT THEY WERE TALKING TO THE DOCTOR TO BRING HER TO THE HOSPITAL AND THEN SHE GOT SO UPSET SHE DID NOT WANT TO GO SCREAMING I WANT TO STAY HOME DAWN KEPT TELLING HER I CANNOT LET YOU STAY HERE I CANNOT HELP YOU. I SAW THE PAIN IN MY DAUGHTERS EYES TODAY AFTER TALKING TO THE DOCTOR AND WE SHED A FEW TEARS A I TOLD DAWN IT MAY SEEM DIM RIGHT NOW BUT WE HAVE GOT TO HAVE FAITH.

THEY HAVE AN APPOINTMENT WITH DR. MATTHAY ON MONDAY FOR A PLAN OF ACTION OF WHAT CAN BE DONE FOR LEXY. I KNOW WE NEED SOME MIGHTY PRAYERS AND ONLY GOD CAN GET US THROUGH NOW. PLEASE SAY A PRAYER FOR LEXY.

THURSDAY EVENING AFTER LEAVING THE DOCTORS OFFICE WE STILL HAD TO TAKE LEXY TO THE ZOO, NOW SHE WAS HALF OUT OF IT FROM ALL THE MEDICINE, SHE COULD NOT WALK BECAUSE IT HURT TOO BAD AND GREG DID MEET US THERE SO HE HELD HER MOST OF THE TIME AND HE WOULD SKIP WHILE HOLDING HER AND I GUESS IN HER MIND SHE THOUGHT THIS HAS GOT TO BE EASY I CAN DO THIS SO SHE TOLD GREG TO PUT HER DOWN AND WE ARE JUST LOOKING AT HER THINKING WOOWWW BUT SHE TOOK TO STEPS AND COULD DO NO MORE, WE RENTED A WAGON BUT SHE WANTED TO BE CARRIED, SO WE HAD AN EVENING AT THE ZOO.

PAPA WENT TO SEE LEXY AND ADEN ON THE 17TH OF JANUARY AND I GOT THERE ON THE 24, SO WE HAVE ENJOYED THE KIDS SO MUCH AND THE NEW ADDITION TO THE FLORY FAMILY IS BEAUTIFUL AND LEXY LOVES HIM SO MUCH AND I KNOW HE IS SO GOOD FOR LEXY.

I WILL UP DATE AGAIN AS SOON AS I HAVE ANY NEW INFO.

PAT NEWTON
LEXY'S NANA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

SUNDAY JANUARY 16, 2005

I DO HOPE EVERYONE HAS HAD A GREAT WEEKEND.

LEXY HAD BLOOD DRAWN TODAY FOR COUNTS AND THE RESULTS ARE GOOD, AND WE HOPE THAT IT MEANS SHE IS DEFINATELY MAKING HER OWN BLOOD PRODUCTS SINCE GETTING THE STEM CELLS BACK.

LEXY'S COUNTS:

HEMIGLOBIN: 9.1
PLATELETS: 45,000
WHITE COUNT: 2.7
ANC: 1300

LAST THURSDAY LEXY'S GSF SHOTS WERE STOPPED BUT IF THE ANC GOES BELOW 500 SHE WILL START THEM AGAIN. PLEASE PRAY THESE ARE TRUE COUNTS AND SHE IS MAKING THEM.

LEXY SEES THE DO9CTOR AGAIN ON WEDNESDAY.

I WILL UPDATE AGAIN AS SOON AS I HAVE ANY NEW INFO.

PAT NEWTON
(LEXY'S NANA)

SATURDAY JANUARY 15,2005

JUST A QUICK UPDATE, SINCE THINGS HAVE BEEN A LITTLE CRAZY.

LEXY, ADEN AND DAWN WERE RELEASED FROM THE HOSPITAL ON MONDAY.

WHEN DAWN WALKED INTO LEXY'S ROOM LEXY LOVED HER NEW BABY BROTHER ADEN WAS NOT NOT QUITE SURE IF SHE WANTED TO HOLD HIM SO SHE STOOD BY DAWN WHILE SHE HELD HIM. THEN SHE SAW HIS ARMS AND LEGS MOVE AND GOT EXCITED. THEN GREG MADE A NOISE AND DAWN SAID DADDY YOU SCARED ADEN. LEXY WAS THEN READY TO HOLD HIM AND THEN SHE DID NOT WANT TO PUT HIM DOWN. LEXY GOT PLATELETS THAT MORNING.

TUESDAY MORNING WHEN I WAS TALKING TO DAWN LEXY WALKED IN THE ROOM AND SAID WHERE IS ADEN AND DAWN TOLD HER HE WAS IN HIS BED AND SHE CAME BACK AND SAID NO HE'S NOT AND DAWN SAID YES HE IS AND SHE CAME BACK AND SAID HIS COVER IS ON HIS HEAD I WILL MOVE IT AND SHE DID, I DO BELIEVE SHE WILL BE A LITTLE MOTHER HEN.

WEDNESDAY LEXY AND ADEN HAD DOCTOR APPOINTMENTS. THEY TOOK ADEN TO HIS DOCTOR APT. AND HE IS JAUNDICE, SO THEY TOOK BLOOD WORK ON HIM AND THEN THEY LEFT TO GO SHOPPING AND LEXY'S APT WAS FOR LATER IN THE EVENING. DAWN GOT A PHONE CALL TO BRING ADEN IN BECAUSE OF HIS COUNTS THE JAUNDICE COUNT WAS TOO HIGH SO DAWN DID AND THEY PUT HIM IN ICU WITH THE LIGHTS AND GREG TOOK LEXY TO HER APT. BUT WRONG DATE FOR HER SO THEY WENT BACK TO THE HOSPITAL WITH DAWN AND ADEN. THURSDAY MORNING LEXY WENT FOR BLOOD COUNTS AND SHE GOT PLATELETS. ADEN WAS RELEASED LATE THURSDAY EVENING AND HE WENT BACK FOR BLOOD COUNTS ON FRIDAY MORNING AND IT WAS DOWN TO 11 BY THE METER AND IT WAS AT 14 WHEN HE LEFT THE HOSPITAL.

SUNDAY HOME HEALTH WILL COME OUT AND TAKE BLOOD FOR COUNTS ON LEXY, BECAUSE OF THE CLINIC BEING CLOSED ON MONDAY. HER BLOOD WAS HOLDING ITS ON AND HER ANC IS COMING UP.

LEXY IS FEELING GOOD AND IS NOT HURTING.

I DID TELL DAWN SHE WILL HAVE TO PUT A CALENDAR AT THE DOOR SO SHE WILL KNOW SHERE SHE IS SUPPOSE TO BE GOING.
PLEASE KEEP THE FLORY FAMILY IN YOUR PRAYERS.

PLEASE SAY A PRAYER FOR NOAH, HE HAS BEEN FEELING A LITTLE STINKY HERE LATELY.

GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)

***********************************************************************************

SATURDAY, JANUARY 8, 2005 7:49 P.M.

LEXY IS A BIG SISTER!!!!!!!!!!!!!!!!!!

ADEN WAS BORN AT 7:49 P.M. CALIFORNIA TIME: HE WEIGHED 8 POUNDS 6 OUNCES. WHEN GREG CALLED ADEN WAS SCREAMING SO HE DOES HAVE GREAT LUNGS. DADDY AND MOMMY SOUNDED VERY HAPPY. GREG'S UNCLE KEN FROM STOCKTON CAME OVER TO SEE THEM AND STAYED WITH LEXY WHILE DAWN AND GREG WERE UPSTAIRS ON 15TH FLOOR WHERE ADEN WAS BORN. CAROL AND TIFFANY IS STAYING WITH LEXY RIGHT NOW WHILE GREG IS WITH DAWN AND ADEN. WHAT A TRIP A DAUGHTER WITH CANCER ON THE 7TH FLOOR OF THE BONE MARROW UNIT AND MOMMY UPSTAIRS ON THE 15TH FLOOR HAVING A BABY. I DID TALK TO DAWN ALSO AND SHE SOUNDED SO PROUD AND DAWN DID SAY SHE TALKED TO LEXY AND SHE HEARD ADEN CRYING AND SAID OH ADEN IS CRYING. WHAT A DIFFERENT SOUND TO HEAR ON THE PHONE. GREG'S UNCLE DID SEND ME NEW PICTURES HE TOOK OF LEXY TODAY AND I WILL TRY TO PUT NEW PICTURES UP TOMORROW OF LEXY AND AS SOON AS I CAN GET PICTURES OF THE BABY.
I WILL WRITE AGAIN AS SOON AS I GET NEW INFO. PLEASE KEEP THE FLORY FAMILY IN YOUR PRAYERS AS IT WILL BE QUITE HARD AND AN ADJUSTMENT ON THEM FOR A WHILE.

PAT NEWTON
LEXY'S NANA

Friday January 7, 2005

Hello to everyone,

Well Lexy is still in the hospital. She will be here until her blood counts come up. She has been doing well. She ran a fever a couple of nights ago, but other than that she is doing very good. She has gone from getting platelets everyday and blood every other day to platelets every other day and blood every 2-3 days.
We have been in the hospital for almost 2 weeks now and Lexy has to remain in her room, so she is beginning to go a little stir crazy. Who could blame her. We did play hospital bingo yesterday on tv and she won a baby doll. She really enjoyed that. She got to mark her own card. We also watch lots of movies and cartoons.
Please keep praying for Lexy that her counts recover quickly so we can start fighting this horrible disease. Please also say a prayer that the 2 days of chemo she was able to do have worked and her bone marrow is looking better. Also, add an extra prayer for all of the kids and their parents that have to fight for their health.
Love,
Dawn

Sunday, January 2, 2005 1:43 PM CST

Hope all of you enjoyed your New Year. Lexy is doing good. She is still needing platelets every other day and blood about the same, but the pain seems to be gone. She has been off of all of the pain meds for 2 days now. Yesterday, however was the first day that she has not ran a fever. Hopefully counts will start to come up soon.
The doctor came in this morning and told Greg that she expects counts to start coming up in 7-10 days. She also said that if Lexy doesn't run any more fevers then they may consider sending her home sooner on some i.v. antibiotics. She will have to go to the clinic everyday for blood counts. I think they are doing this because they don't want me to go into labor on them.(ha,ha)
Lexy had visitors yesterday. Carol, Jimbo, Tiffani and Amanda came to see her. It was really good to see her a little more active,giggling and playing with her cousins. Amanda and her Grandma had also made Alexia and Aden each a blanket which she has enjoyed showing to everyone. Today I was told to bring her "princess" shoes (ballet shoes) so she could show the nurses her princess dancing. I can tell she is feeling much better, because she is being her usual outgoing self.
Thanks to all of you who are flooding heaven with prayers. Greg, Lexy and I appreciate it so much. Please keep praying.

Love,
Dawn

Thursday, December 30, 2004 1:54 PM CST

Hello to all. Hope you all had a wonderful Christmas. Happy New Year to everyone. I hope it doesn't put anyone into shock when they see that I have written this entry. Greg, Lexy and I are sitting in her hospital room waiting for the stem cells. They should start that infusion anytime now.
Lexy is doing much better today. Yesterday they pulled her off of the oral pain med oxycodone. She is still on the 24hr iv morphine, but they also decreased the amount she was getting last night. She slept comfortably or as comfortably as you can sleep going to the bathroom every 2 hours. I guess Greg now knows how it feels to be pregnant since he has to take Lexy to the bathroom when she needs to go.(ha,ha) She has been awake alot more and even wanted to play babies last night. So we dressed her babydoll in her jammies and gave her a shot. We've also watched Barney 500 times at least. I keep bringing different movies from home, but Barney always wins. Fortunatly for us it is on DVD and she likes to use her headphones with her DVD player.
Yesterday morning when the doctor came in Lexy was a little cranky (understandably so) she wanted to listen to Lexy with the stethescope. Usually this is no big deal to Lexy, she will pull up her shirt and let them at her. Well not this time, she told her no. Lexy's teddy bear (pink bear with a heart nose and heart ribbons around her neck) was laying next to her. The doctor asked if she could listen to the bear and Lexy was quick to tell her no her bear didn't have a heart. The doctor told her that her bear had lots of hearts all over the ribbon and Lexy told her that the bear didn't have a heart that made noise. Amazing how smart kids are.
I'd like to think everyone for your guestbook entries and for all of the prayers being sent to heaven. Please keep praying for her. With God all things are possible. Our miracle begins with prayers.
Please include Noah (my nephew) in your prayers also. He is in the hospital in Texas fighting with fevers and counts also.
Love,
Dawn (Lexy's Mommy)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

TUESDAY, DECEMBER 28, 2004

LEXY IS STILL IN PAIN BUT THE PAIN IS A LITTLE BETTER. THEY HAVE PUT LEXY ON A 24 HOUR DRIP OF MORPHINE. DAWN SAID LEXY WAS AT LEAST WATCHING A LITTLE BIT OF TV TONIGHT BUT WHILE I WAS TALKING WITH DAWN SHE TOLD HER TO TELL PAPA AND I THAT SHE DIDN'T FEEL GOOD. LEXY DID GET PLATELETS AGAIN TODAY AS SHE GOT PLATELETS AND BLOOD YESTERDAY. TONIGHT SHE WILL GET BLOOD AGAIN, AND NOT SO MUCH THAT SHE IS LOW BUT SHE WILL NEED IT IN A DAY OR SO AND IT WILL MAKE HER FEEL BETTER TO GO AHEAD AND GET THE BLOOD. TODAY THEY DID A CHEST X-RAY AND NO RESULTS ON THAT YET. LEXY HAS A FEVER THIS EVENING. THE TEMP WAS 101.5 SO THE DOCTOR TOLD DAWN THAT LEXY WILL BE IN THE HOSPITAL AT LEAST 2 WEEKS OR UNTIL HER COUNTS COME UP AFTER HAVING HER STEM CELLS ON THURSDAY. IT GENERALLY TAKES ABOUT 3 WEEKS FOR THE COUNTS TO COME UP AFTER THE CHEMO SHE HAD AND THE STEM CELLS. BOTH OF LEXY'S ARMS AND BOTH LEGS ARE HURTING. DAWN TOLD ME THAT LEXY WAS PUFFY BECAUSE OF ALL THE FLUIDS THEY ARE GIVING HER. DAWN AND GREG ARE HANGING IN THERE.

IF YOU DON'T HAVE A PICTURE OF LEXY THEN PLEASE WRITE HER NAME DOWN AND EVERTIME YOU SEE THE PICTURE OR HER NAME PLEASE SAY A PRAYER FOR HER. WE NEED SPECIAL PRAYERS NOW FOR HER.

LAURA CALLED TODAY AND SHE WAS LIGHTING HER CANDLE. LAURA TOLD ME THEY HAVE A CANDLE FOR LEXY AND EVERYTIME LEXY NEEDS A SPECIAL PRAYER THEY LIGHT IT. ONE NIGHT JOSH OR RYAN SAW THE CANDLE LIT AND ASKED LAURA WHAT'S WRONG WITH LEXY, FOR THE BOYS KNOW JUST SAY A PRAYER FOR HER WHEN THEY SEE THE CANDLE LIT. MY MOM CALLED TO SEE HOW LEXY WAS AND I TOLD HER WE JUST NEED LOTS OF PRAYERS SO I KNOW MY MOM IS PRAYING FOR HER. JEANIE SAID SHE HAD BEEN PRAYING TODAY FOR HER SO I KNOW EVERYONE THAT KNOWS LEXY IS SAYING PRAYERS AND THANK YOU SO MUCH, JUST PLEASE DON'T STOP SAYING THOSE PRAYERS.

DAWN AND GREG'S FRIENDS KURT AND TRACI , WHO IS PREGNANT WITH TWINS CAME TO SEE LEXY AFTER THEY FOUND OUT LEXY WAS IN SO MUCH PAIN. THANKS YOU GUYS, YOU ARE GREAT FOR THE FLORY FAMILY.

MAY GOD BLESS EACH AND EVERYONE OF YOU AND ALSO SAY A SPECIAL PRAYER FOR NOAH.

PAT NEWTON
(LEXY'S NANA)

MONDAY, DECEMBER 27, 2004

DAWN, CALLED TODAY AND LEXY WAS ADMITTED. LEXY DID NEED PLATELETS AND BLOOD, SO SHE GOT BOTH. THEY THEN GAVE HER MESNA TO KEEP FROM HAVING BLADDER SPASMS FROM THE HIGH DOSE CHEMO, CYTOXAN. LEXY WILL ALSO GET CYTOXAN, TOMORROW AND THEN ON WEDNESDAY WILL BE A DAY OF REST. THURSDAY, LEXY WILL GET HER STEM CELLS BACK.

I DID TRY TO CALL DAWN A COUPLE OF TIMES TONIGHT AND LEXY WAS CRYING SO HARD BECAUSE SHE IS IN PAIN. LEXY'S RIGHT ARM IS HURTING AND SO ARE HER LEGS. DR. MATHAY DID TELL DAWN THAT THE REASON FOR LEXY'S PAIN IS BECAUSE OF THE CANCER CELLS IN HER BONE MARROW. THEY HAVE GIVEN LEXY MORPHINE AND OXYCODINE BUT THE LAST TIME I TALKED TO DAWN LEXY WAS STILL IN PAIN. I PRAY THAT LEXY GETS RELIEF FROM THE PAIN IN A FEW MINUTES AS SOON AS THE MEDICINE TAKES EFFECT. I DID JUST TALK TO DAWN AGAIN AT 10:05 AND LEXY WAS STILL SCREAMING BEACAUSE OF THE PAIN. PLEASE SAY A PRAYER FOR LEXY.

DR. MATTHAY CAME IN TO SEE LEXY TODAY AND ASKED THE GENERAL QUESTIONS THEN SHE ASKED DAWN WHAT HER DUE DATE WAS FOR ADEN AND DAWN TOLD HER JANUARY 19TH, AND SAID HEY DAD MAY HAVE A WIFE HAVING A BABY ON THE 15TH FLOOR AND LEXY ON THE 7TH FLOOR, TALK ABOUT CRAZY. DR. MATTHAY DID TELL DAWN HOPEFULLY LEXY COULD GO HOME ON THURSDAY BUT IF LEXY RUNS A FEVER AT ALL THEN SHE WILL HAVE TO STAY AT THE HOSPITAL UNTIL HER COUNTS COME UP AND DAWN WAS TOLD THAT IT WOULD BE AROUND 3 WEEKS SO HOPEFULLY THE COUNTS COME UP QUICK BUT THEN DR. MATTHAY SAID YOU COULD HAVE YOUR HANDS FULL WITH A NEW BABY AT HOME AND A DAUGHTER AT HOME THAT DID NOT FEEL GOOD WITH FEVER. PLEASE PRAY FOR THEIR LITTLE FAMILY THEY NEED HELP AND I KNOW GREG'S COUSIN CAROL WILL BE THERE TO HELP AS NEEDED AS SHE ALREADY HAS HER CLOTHES IN HER TRUCK SO SHE CAN LEAVE AS SOON AS SHE GETS THE CALL THAT DAWN IS IN LABOR.

I WILL UPDATE AGAIN AS SOON AS I HAVE ANY INFO AND MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)

SUNDAY, DECEMBER 26, 2004

CHRISTMAS IS OVER AND I AM LOOKING FORWARD TO THE NEW YEAR IN HOPES OF IT BEING A BETTER YEAR IN 2005. WHO KNOWS MAYBE THIS IS THE YEAR FOR THE CURE FOR NEUROBLASTOMA.

LEXY HAD A GOOD CHRISTMAS, SHE IS LOOKING A LITTLE PALE TONIGHT AND DAWN DOES THINK SHE WILL NEED BLOOD TOMORROW AND PLATELETS.

LEXY IS SCHEDULED TO BE AT THE HOSPITAL IN THE MORNING WHICH THEY WILL ADMIT HER AND GIVE HER HIGH DOSE CHEMO ON MONDAY AND TUESDAY AND WEDNESDAY WILL BE A DAY OF REST FOR LEXY AND THEN ON THURSDAY THEY WILL GIVE LEXY HER STEM CELLS BACK TO HER AND IF LEXY DOES GOOD WITH NO FEVER OR NO REACTIONS TO THE STEM CELLS SHE WILL BE ABLE TO GO HOME ON THURSDAY NIGHT.

THE REASON THEY ARE GIVING LEXY HER STEM CELLS BACK IS THAT HER PLATELETS ARE NOT MAKING ON THEIR OWN AND HER ANC IS NOT COMING UP SO SHE HAS TO HAVE HER STEM CELLS SO HOPEFULLY IN ABOUT 3 WEEKS LEXY'S COUNTS WILL BE UP AND THEN THEY CAN FIND SOMETHING ELSE LEXY CAN TRY TO GET RID OF THE NEUROBLASTOMA CELLS. THE SCAN RESULTS LAST WEEK SHOWED NEUROBLASTOMA CELLS IN LEXY'S BONE MARROW AND IN BOTH OF HER LEGS WHICH HER RIGHT LEG HAS BEEN HURTING AND DR. MATTHAY SAID IT WAS MOST PROBABLY FROM THE CANCER CELLS IN THE BONE MARROW.

ON A LIGHTER NOTE THERE IS STILL NO NEW BABY ADEN IN THE FLORY FAMILY WHICH WILL PROBABLY BE ANY DAY.

I WILL UPDATE AGAIN AS SOON AS I HAVE ANY NEW INFO.

PLEASE KEEP LEXY IN YOUR PRAYERS WE DO NEED A TOUCH FROM GOD. MAY GOD BLESS EACH AND EVERYONE OF YOU FOR HE KNOWS YOUR NEED.

PAT NEWTON
(LEXY'S NANA)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

THURSDAY, DECEMBER 23, 1004

JUST A QUICK UPDATE TO LET YOU KNOW THAT LEXY JUST GOT HER BLOOD COUNTS BACK AND SHE DOES NEED PLATELETS. DAWN AND LEXY ARE ON THE WAY TO THE CLINIC TO GET PLATELETS. LEXY'S LEG DOES STILL HURT BUT SHE CAN WALK, BUT WHILE SHOPPING FOR LAST MINUTE CHRISTMAS SHE IS RIDING IN HER STROLLER. THE DOCTORS GAVE HER OXICODINE BUT IF THE PAIN CONTINUES THEY WILL GIVE HER LIQUID MORPHINE. LEXY TOLD ME SHE GOT A NEW PURSE WITH PERFUME, WHICH A LADY GAVE HER AT THE PERFUME COUNTER AND SHE TOLD ME WAS GOING TO CALL PAPA BECAUSE HE WANTED TO TELL HER SOMETHING.

I WISH EVERYONE A MERRY CHRISTMAS AND GOD BLESS EACH OF YOU. KEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)



WEDNESDAY, DECEMBER 22, 2004 10:46PM

AS LEXY'S MOM SAYS " IT IS NOT GOOD"

LEXY HAD A CT SCAN, BONE MARROW BIOPSY, ECHO CARDIOGRAM AND A MIBG INJECTION ON TUESDAY AND TODAY LEXY HAD THE MIBG SCAN AND MET WITH DR. MATTHAY.

DR. MATTHAY, GOT THE RESULTS FROM SOME OF THE TEST AND TOLD THEM THAT LEXY HAD CANCER CELLS IN HER BONE MARROW AND IT WAS EXTENSIVE IN BOTH OF LEXY'S KNEES. THE SPOT ON LEXY'S RIGHT KNEE WAS WORSE THAN WHEN THEY DID THE LAST MIBG AFTER THE MIBG TREATMENT. DAWN DID TELL DR. MATTHAY THAT LEXY'S LEG WAS HURTING HER AND THE DOCTOR SAID THAT IT WAS FROM THE BONE MARROW. DR. MATTHAY DID NOT HAVE THE RESULT OF THE MIBG WHILE THEY WERE THERE BUT DID CALL THEM WHILE THEY WERE ON THEIR WAY HOME. DR. MATTHAY SAID THE MIBG SCAN DID CONFIRM THERE ARE CANCER CELLS IN THE BONE MARROW.

TODAY THEY MET WITH DR. HORN AND SHE IS THE BONE MARROW TRANSPLANT DOCTOR. DR. HORN DID TELL DAWN AND GREG, THAT LEXY IS SO FULL OF ENERGY AND IT IS HARD TO EXCEPT HOW SERIOUS THIS IS. DR. HORN PLANS TO GIVE LEXY A HIGH DOSE OF CYTOXAN CHEMO AND THEN A COUPLE OF DAYS LATER WILL GIVE HER STEM CELLS BACK TO HER, AND THE DATE IS NOT SET UP YET BUT POSSIBLY WILL BE TUESDAY. THE REASON FOR THE HIGH DOSE OF CHEMO IS TO TRY TO RID THE BONE MARROW OF SOME OF THE CANCER CELLS BEFORE REPLACING THE STEM CELLS SO THE NEW STEM CELLS WILL GRAPH TO LEXY. AFTER LEXY'S COUNTS ARE BACK UP THEN WE WILL START FIGHTING AGAIN. WHEN I TOLD DAWN WE WOULD GET LEXY THROUGH THIS AGAIN SHE SAID "YES WE WILL IT IS JUST ANOTHER BUMP IN THE ROAD".

LEXY GOES TO CLINIC TOMORROW, THURSDAY FOR BLOOD COUNTS.

WHILE I WAS TALKING TO DAWN TONIGHT I COULD HEAR LEXY JABBERING AND I ASKED TO TALK TO HER AND SHE HOLLERS "NO JUST TELL HER AND PAPA MY LEG HURTS" I LOVE THAT BABY GIRL SO MUCH AND YES SHE IS MY HEART.

PLEASE KEEP TREY'S FAMILY IN YOUR PRAYERS AS HE HAS JUST EARNED HIS ANGEL WINGS.

PLEASE KEEEP LEXY IN YOUR PRAYERS.

PAT NEWTON
(LEXY'S NANA)

MONDAY, DECEMBER 20, 2004

TODAY WAS BLOOD COUNT DAY FOR LEXY!!

IT WAS NOT QUITE THE NEWS WE WANTED TO HEAR, BUT THEN AGAIN IF ALL OF THE CANCER IS GONE FROM THE FIRST TREATMENT OF THE I 131 MIBG TREATMENT THEN LEXY DOES NOT NEED A 2ND OR 3RD TREATMENT. DR. MATTHAY DID TELL DAWN AND GREG AT THE BEGINNING THAT IF EVERYTHING WAS OK AFTER THE 1ST TREATMENT THEN LEXY COULD HAVE A 2ND AND MAYBE A 3RD TREATMENT BUT SHE DID NOT THINK LEXY COULD GO THROUGH A 2ND TREATMENT BECAUSE OF EXTENSIVE NEUROBLASTOMA IN HER BONE MARROW AT THE BEGINNING.

I TALKED TO DAWN TODAY AND LEXY IS GETTING PLATELETS AGAIN TODAY, AS HER COUNT WAS AT 8,000 AND HER GUMS WERE BLEEDING. DAWN HAD SEEN SOMETHING AROUND LEXY'S MOUTH BUT THOUGHT IT WAS CHOCOLATE AND THEN SAW IT AGAIN AND DAWN ASKED LEXY "WHAT ARE YOU EATING AND LEXY SAID A SANDWICH SO DAWN WIPED HER MOUTH AND SAW THAT IT WAS BLOOD, DO AT THAT TIME DAWN CALLED THE CLINIC TO SEE IF THEY HAD THE RESULTS YET EVENTHOUGH SHE KNEW LEXY NEEDED PLATELETS AND SHE DID. LEXY'S ANC WAS ALSO DOWN TO 700 WHICH IT IS NOT COMING UP EITHER. THE NURSE TOLD DAWN THAT LEXY WOULD ALSO BE GETTING A BONE MARROW BIOPSY TOMORROW ALONG WITH THE ECHO CARDIOGRAM, CT SCAN, AND A MIBG INJECTION, DAWN TOLD THE NURSE SHE DID NOT KNOW ABOUT THE BONE MARROW BIOPSY SO THE NURSE CALLED DR. MATTHAY SO DAWN COULD TALK TO HER. DR. MATTHAY TOLD DAWN THEY NEEDED A BONE MARROW BIOPSY ON FILE SINCE THEY WOULD MOST PROBABLY GIVE LEXY HER STEM CELLS BACK NEXT WEEK AND THAT SHE FELT LIKE LEXY WOULD NEED PLATELETS NEXT THURSDAY. LEXY WILL ALSO SEE A BONE MARROW DOCTOR TO PUT THE STEM CELLS BACK IN. HOPEFULLY WHEN THEY PUT LEXY'S STEM CELLS BACK IN LEXY'S PLATELETS WILL START COMING UP ON THEIR OWN. SINCE LEXY WILL BE GETTING HER STEM CELLS BACK SHE WILL NO LONGER BE ELGIBLE FOR THE I 131 MIBG THERAPY TREATMENT.

PLEASE KEEP LEXY IN YOUR PRAYERS FOR HER SCANS ARE TUESDAY AND WEDNESDAY BECAUSE WE CERTAINLY NEED A MIRACLE BECAUSE AS MY MOM'S PREACHER SAID " THE STAGE IS NOW SET FOR A PERFECT MIRACLE"

I WILL UPDATE AS SOON AS I HAVE ANY OTHER UPDATES.

PLEASE CHECK ON TREY HE NEEDS A SPECIAL PRAYER AND A MIRACLE, HIS LINK IS ON LEXY'S WEBSITE JUST ABOVE THE JOURNAL ENTRY.

MAY GOD BLESS EACH AND EVERYONE OF YOU AND I DO PRAY THAT YOU HAVE A SAFE AND HAPPY HOLIDAY.

PAT NEWTON
(LEXY'S NANA)

********************************************
FRIDAY DECEMBER 17, 2004

LEXY IS STILL DOING GOOD, SHE DID HAVE TO GET PLATELETS AGAIN YESTERDAY WHICH WAS THURSDAY DECEMBER 16TH. HER PLATELET COUNT WAS AT 8,000.

PLEASE EVERYONE REMEMBER LEXY'S SCANS ARE THE 21ST AND THE 22ND OF DECEMBER SO PLEASE SAY A PRAYER FOR HER.

THIS WEEKEND OUGHT TO BE A LOT OF FUN FOR DAWN AND LEXY BECAUSE GREG'S FAMILY WILL BE THROWING A BABY SHOWER FOR AEDAN.

GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
LEXY'S NANA

WEDNESDAY DECEMBER 15, 2004


LEXY IS DOING GOOD!!!!!!!!!!!!!!!

LAST THURSDAY LEXY GOT PLATELETS AND SHE WENT FOR BLOOD COUNTS ON MONDAY AND ALSO RECEIVED PLATELETS AS HER COUNT WAS 10,000. TUESDAY, LEXY GOT BLOOD. THE DOCTOR DID SAY SHE LOOKED GOOD AND NO PAIN.

SCAN DAYS HAVE BEEN SET TO SEE IF THE MIBG THERAPY WORKED.
THE CATSCAN, ECHO CARDIOGRAM AND THE MIBG INJECTION WILL BE DECEMBER 21ST AND ON DECEMBER 22ND LEXY WILL HAVE THE MIBG SCAN AND SEE THE DOCTOR LATER THAT EVENING FOR THE RESULTS OF THE TEST. WE NEED LOTS OF PRAYERS AND WOULDN'T THAT JUST BE THE BEST CHRISTMAS PRESENT.

LEXY HAS BEEN IN THE BEST MOOD. LAST NIGHT SHE CALLED TO TALK TO PAPA AND MYSELF. LEXY TOLD ME WE CAN COME SEE HER AND SLEEP IN HER BED AND PAPA CAN TOO. I SURE DO MISS HER. EVERYDAY I CALL DAWN ON MY WAY HOME FROM WORK AND LEXY WAS SCREAMING I LOVE YOU NANA AND PAPA, SO THEN SHE DID CALL PAPA AT HOME AND IT SEEMED SO GOOD TO HEAR HER TALK LIKE HER OLD SELF.

PLEASE KEEP LEXY IN YOUR PRAYERS FOR CLEAR SCANS, THAT WOULD JUST BE WONDERFUL. IF THE PAST THERAPY WORKED AND LEXY DOES NOT HAVE TO HAVE HER STEM CELLS YET THEN THEY WILL SET UP ANOTHER I131 MIBG RADIATION THERAPY LIKE LAST TIME, SO KEEP THOSE PRAYERS GOING.

MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
LEXY'S NANA

MONDAY DECEMBER 13,2004

LEXY, WENT FOR BLOOD COUNTS TODAY.
LEXY, DID GET PLATELETS TODAY HER COUNT WAS AT 10,000. LAST THURSDAY SHE GOT PLATELETS WHICH HER COUNT WAS ALSO AT 10,000. TOMORROW SHE WILL GO AND GET BLOOD, HER COUNT WAS 7.1.

I COULD HEAR LEXY IN THE BACKGROUND WHILE I WAS TALKING TO DAWN JUST A TALKING. LEXY IS HELPING HER MOMMY AND DADDY UNPACK. YES, THEY ARE SETTLING DOWN IN CALIFORNIA WITH A HOUSE. THEIR FURNITURE ARRIVED TODAY WHICH WAS GREAT TIMING, SINCE THEY JUST FOUND THE HOUSE SATURDAY, AND THEY HAVE BEEN LOOKING FOR A HOUSE. THEY WILL BE ABOUT 15 OR MINUTES FROM THE HOSPITAL, SO DAWN WILL NOT KNOW HOW TO DRIVE, SINCE SHE IS USE TO DRIVING ABOUT 2 HOURS TO GET TO THE HOSPITAL IN ST. LOUIS WHEN THEY LIVED THERE AND WHEN SHE WAS GOING TO TEXAS CHILDREN'S HOSPITAL IT ALSO WAS ABOUT A 2 HOUR DRIVE.

I WILL UPDATE AGAIN AS SOON AS I HAVE ANY NEW UPDATES.

PLEASE KEEP LEXY AND ALL THE OTHER LITTLE WARRIORS IN YOUR PRAYERS.

PAT NEWTON
LEXY'S NANA

FRIDAY DECEMBER 10, 2004

JUST A QUICK UPDATE:

LEXY WENT FOR BLOOD COUNTS MONDAY AND HER PLATELET COUNT WAS 33,000 AND SHE WENT BACK THURSDAY FOR BLOOD COUNTS.

THURSDAY HER PLATELET COUNT WAS AT
10,000 SO SHE DID GET PLATELETS. THIS IS THE FIRST TIME LEXY'S ANC COUNT HAS BEEN DOWN SINCE THE I 131 MIBG TREATMENT AND IT WAS AT 540 AND THE NORMAL ANC COUNT IS 1,000 OR OVER, SO SHE DID GET A SHOT TO BRING HER ANC UP. THE ANC COUNT SHOWS WHAT HER AMMUNE SYSTEM IS AT.

LEXY IS DOING GOOD OTHERWISE. I MISS HER ALOT AND WE WILL SEE HER SOON AND OF COURSE MOMMY AND DADDY. LEXY'S MOMMY IS DOING GOOD AND IT WILL NOT BE LONG TILL AEDAN WILL BE HERE, SINCE THE DUE DATE IS JANUARY 19TH.

PLEASE CONTINUE TO KEEP LEXY IN YOUR PRAYERS AND ALL THE OTHER NEUROBLASTOMA WARRIORS.

MAY GOD BLESS EACH AND EVERYONE OF YOU AND I HOPE YOU HAVE A HAPPY HOLIDAY.

PAT NEWTON
(LEXY'S NANA)



SUNDAY, DECEMBER 5, 2004

LEXY, HAD A BUSY WEEKEND. LEXY WENT TO A PARADE SATURDAY NIGHT. LEXY DID GET HER PICTURE WITH SANTA AFTER LOTS OF COAXING AS SHE DID NOT WANT TO SIT ON SANTA'S LAP. THE PHOTOGRAPHER TOOK SEVERAL PICTURES OF LEXY WITH OTHER THINGS LIKE A BEAR, HOBBY HORSE, AND A TOY BOX AND SANTA SNEAKED IN THE PICTURE BEHIND LEXY AND WHEN LEXY SAW THAT PICTURE SHE DECIDED SHE WOULD SIT ON SANTA'S LAP. WHEN I GET A COPY OF THAT PICTURE I WILL PUT IT ON HER WEB SITE.

LEXY HAD BLOOD DRAWN FRIDAY AND HER PLATELETS WERE AT 7,000 SO NEEDLESS TO SAY SHE GOT PLATELETS. MONDAY SHE GOES FOR BLOOD COUNTS AND SEES THE DOCTOR MONDAY EVENING. TOMORROW IS DOCTOR DAY, LEXY GETS BLOOD DRAWN MONDAY MORNING, SEES THE DOCTOR IN THE EVENING AND BETWEEN THOSE TWO TIMES DAWN SEES HER DOCTOR. HOPEFULLY, SOON LEXY WILL START MAKING HER OWN PLATELETS AND NOT NEED A TRANSFUSSION OF PLATELETS.

WE GOT THROUGH SOME TOUGH TIMES WHEN GING GING EARNED HER ANGEL WINGS LAST WEDNESDAY. GING GING, WAS A WONDERFUL PERSON AND WOULD TELL ME I CAN'T DO MUCH FOR LEXY BUT I SURE CAN SAY A PRAYER FOR HER, AND PRAYERS IS WHAT HAS GOTTEN LEXY THIS FAR, AS I GIVE GOD ALL THE CREDIT FOR LEXY BEING WITH US TODAY.

THANKS TO EVERYONE FOR REMEMBERING LEXY IN YOUR PRAYERS, BUT PLEASE DO NOT STOP PRAYING WE STILL NEED A MIRACLE. MAY GOD BLESS EACH AND EVERYONE OF YOU.

PAT NEWTON
(LEXY'S NANA)



THURSDAY, DECEMBER 2, 2004

I HOPE EVERYONE IS DOING GREAT. THINGS HAVE BEEN A LITTLE CRAZY AT OUR HOUSE THESE LAST COUPLE OF DAYS.

LEXY'S GREAT GRANDMOTHER OR AS LEXY CALLS HER (GING GING) DIED WEDNESDAY. GING GING, WAS THE SWEETEST PERSON AND BEAUTIFUL AND NOT ONLY ON THE OUTSIDE BUT ON THE INSIDE ALSO. LEXY WILL BE TOTALLY CONFUSED WHEN SHE COMES TO OUR HOUSE AND NOT UNDERSTAND WHY GING GING WILL NOT BE IN HER ROOM AT OUR HOUSE. IN JULY WHEN THEY WERE DOWN WE TOOK LEXY TO SEE GING GING AT THE NURSING HOME AND I KNOW LEXY WILL NOT FORGET THAT BECAUSE SHE DOES NOT FORGET ANYTHING.

LAST FRIDAY WHEN LEXY HAD BLOOD COUNTS, HER PLATELETS WERE AT 15,000 SO THEY GAVE LEXY PLATELETS, AND ON MONDAY HER COUNTS WERE AT 40,000. MONDAY THEY TOOK COUNTS AGAIN AND THE COUNTS WERE 15,000 AND AND ON FRIDAY THEY WILL TAKE COUNTS AGAIN.

I WILL UPDATE AGAIN AS SOON AS I HAVE ANY INFO.

MAY GOD BLESS EACH AND EVERYONE OF YOU.........

PAT NEWTON
LEXY'S NANA