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Brianna's Page
Welcome to Brianna's web page. It has been provided as a way to keep everyone updated on her medical status. In July 2004 she was diagnosed with juvenile dermatomyositis. It is a very rare disease thought to be auto-immune. Some of the symptoms include: progressive muscle weakness, active inflammation of the muscles, muscle pain , muscle atrophy, muscle contractures, fever, rash, fatigue, malaise, irritability, weight loss, difficulty swallowing due to weak muscles, joint pain and inflammation, calcium deposits under the skin (calcinosis), vasculitic ulcers, slowed growth, and mouth ulcers. We keep finding out about more but that is enough!
Because it is so rare there is little research being done. There is no set treatment protocols. They just try different combinations of the same (older) drugs to hopefully get a good response.
Currently there is no cure.
*HUGS* TOTAL! give Brianna more *HUGS*
Get hugs of your own
Visit Brianna's Quilt of Love
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