THIS WEBSITE WAS CREATED TO KEEP FAMILY FRIENDS AND VISITORS INFORMED AND UPDATED ON DEVIN'S PROGRESS
VISIT DEVIN'S 'PLACE THE STATES' GAME ! JOIN THE FUN ! CLICK HERE
Devin was diagnosed with Non-Hodgkins T- cell Lymphoblastic Lymphoma Stage III on September 19, 2003. He is currently on treatment protocol A5971, regimen B2. He is so strong and makes us proud everyday!
WE LOVE YOU DEVIN!!!
Devin with Steven Tyler of Aerosmith
EXTRA ! EXTRA !! READ ALL ABOUT IT ! Check it out.... Devin is on the official Aerosmith website.....too cool CLICK HERE
Devin holding Derek Parra's gold medal won in the 2002 Olympic Winter games. Oct. 2003 He helped Devin make a "wish box" in a program sponsored by Home Depot
DJ's Tommy and Joe from KBULL radio here in SLC raising money at a cancer telethon for The Huntsman Cancer Center.
DEVIN LIKES
TO READ !
AND
For the hospital celebration in honor of Dr. Seuss' 100th birthday in March, Devin wrote his own "Seussical" poem for the hospital
Cancer In Seussical Form By Devin Ross
I do not want it in here
Not here, not there, not anywhere.
Take this cancer
Take it all!!
Let chemo make it very small.
So small it does not exist,
Take it away, I insist !!
I’ve got things to do
Places to be.
My dream is to be cancer-free !
I’m only a kid,
Should I have to fight this fight?
I wish cancer was EXTINCT
With all of my might!!
LET'S HEAR IT FOR DEVIN HIP HIP HOORAY !!!
AND
LOOKEE HERE !
DEVIN WILL BE FEATURED ON THE MAKE A CHILD SMILE WEBSITE ! CLICK HERE
AND
DEVIN LIKES TO COOK !
Here he is with his sister Kara Hmmm, wondering what they are cooking up ??
He makes up recipes all the time and loves to watch Emeril has sent Emeril a letter... but is still waiting for a reply..
ONE OF DEVIN'S FAVORITES IS PEPPERONI PIZZA !
DEVIN LOVES AIRPLANES ! a recent trip to Hill AFB to see the planes
I'm getting to a point where I don't think about "our news" anymore. I think we have given up on it happening and are going about getting on with things. If you 'need' to know what it was about, e-mail me privately and I will fill you in..........there are reasons it was NOT mentioned on here.
We had another fun weekend with GG visiting from OK. We had planned to go to OK, but our friends at Delta airlines think that RT tickets from SLC - OKC are more valuable/expensive than a trip around the world, so Grandma came to us!! We had fun and the trip went by way too fast!!!! We're hoping to get out there over fall break...
Devin and Kara are doing well. We went ahead and enrolled Kara in the public school which backs our house. She has gone there before, so should know some kids. It is a year-around school, so I'm not thrilled about that, but I just was not so happy with the Lutheran school this last year. We still have NOT received our report cards or SAT scores!!! School has been out since the first week of June!!! We did get an envelope from the school today...with another kid's info.............wonder where my kids' stuff is?
We've got Devin enrolled in a charter school for math and science. He is super excited about starting school on August 21st!!! He will be switching classes and have lots of extra activities available through the school.
We still haven't heard anything from the gastro. I am beginning (no, not really beginning) to think the dr. is a nutcase. He had ordered all those tests through the pediatrician back the end of May....but apparently never looked at any of them. ????What the hell?? I mean my kid gets seven vials of blood drawn for nothing it seems. AFTER I explained to him on the 11th appt. that the tests he was talking about doing had already been done he finally went and looked them up...............AFTER he told me several times how to do 'poop collection'............PC is nothing new to me. I've collected my fair share and then some.............and evidently this poor 'poop dr' has no idea of the 'hats........designed especially for this purpose'. So...........we did all the samples and bloodwork a week ago this Monday and ARE still waiting to get results on that...........I've called his office a few times and still not having anyone call me back. Let me assure you that I put on my sweetest voice when I call.............I wonder if the receptionist gives him any of his messages? I am thinking the way to get results is to call the pediatrician and have him contact the gastro.....? Seems pretty backwards, but seems like backwards and medical 'professional' sometimes go hand in hand.
Tomorrow is the big Mormon holiday....."Pioneer Day". Its an excuse for our family to have friends over and shoot off illegal fireworks!! Fireworks are legal on 4th and 24th here, but unfortunately illegal/bootleg fireworks are illegal all the time. I am usually out of town for this holiday, but thanks to high gasoline prices we are home. There is a humongous parade downtown.........lucky for us its on all the major networks ALL DAY tomorrow. People treat it like the Macey's parade or Rose parade and actually camp out for good spots. Not me....I'm not one of the majority here and could care less about their parade.
Hope everyone is enjoying their summer. Thanks for stopping in to check on Devin. Hopefully we will get some answers soon on his gastro issues........I mean I've already received the bills for some of the tests done!!!!
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