Isabella Burton
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Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one Bella. Isabella has been diagnosed with MPS IV or Morquio Syndrome Please read our story and watch our video.


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  THURSDAY, AUGUST 21, 2008 04:07 PM, CDT
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Well we just heard about Bella's appointment with Dr. Karlin. They are going to see her on Sept 4th at 1 to do an overall check of her bones and do some neck x-rays. They will check her knees, hips, back and neck. Dr Karlin will also check her feet and see what his thoughts are and then we will see Dr. Zimbler on the 22nd of Sept and get his opinion. He gave her the braces so we will see if he thinks she should keep them or if we should try something else. But other than that there is nothing going on. Getting ready to head up to ME for a few days and relax at the camp. Where there is no phone,tv or computer so true relaxation. Hopefully the weather will cooperate for some time in the lake swimming. Then we come back and school starts. Gabi starts the 3rd and Bella the 8th. They are looking forward to it and have there outfits all planned out.

Thanks for your support everyone. Update again soon.

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EMAIL AUTHOR
ergburton1@yahoo.com