Today I am wondering just how much one person can take. Somedays are just too much to handle and on those days, I wish I did not have to get out of bed. I know I must. I have 4 children who depend on me. Still, it is very hard at times. Tomorrow Jacob is going to have another video EEG. As I have said, we are pretty certain that what we are seeing are more seizures. We know this is going to continue to happen but we are not comfortable adding another seizure med on top of the one he is currently taking (360 capsules a month) unless we know 100%. We know having him take so many meds is taking a toll on him but we know he is far worse without all of them. Still, I hate putting him through this test as he hates being attatched to so many wires. Since this is a video EEG, he will not be able to get up and move about and the test is scheduled for 8 hrs. (last time it was 24 so we are thankful it's not that one again!). He will have to sleep for part of the test but that will be no problem for him! We do have to keep him up a bit later tonight though to make sure he is sleep deprived. He'll like that extra time with Mommy and Daddy. I am not sure how long it will take to get the results. I am hoping that it will still be this week. Please keep him in your prayers tomorrow that the test goes well. Please say a prayer for a special little boy who is expected to earn his angel wings today. His name is Corey. He has Mitochondrial disease which his younger sister also has. Praying for strength for his family.
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