CaringBridge^TM
Guestbook

Thanks for visiting our guestbook!
(This is an open guestbook.  Please feel free to add an entry to the guestbook for others to read.)

**** IF YOU DON'T SEE YOUR ENTRY AFTER ADDING -- PLEASE CLICK ON RELOAD/REFRESH ****
*** AOL Users:  The AOL browser seems to have particular problems reloading after this page is updated.  Your Entry is probably already there - you are just not seeing it.  Close your screen completely and re-enter it.***

Click here to sign the guestbook.

Click here to go back to the main page.

I can't believe how quickly Christmas is coming around. It won't be long now!

Love

Vikki

Hello, Just a short message to say



Love Viks

Hey Jeremy, I have a poem for you

Hickory, dockory, hic,
the day your clock gets sick,
and says, "Tock Tick,"
but not "Tick Tock,"
call the Hickory Dickory Doc




Love Viks

Hi Jeremy

www.postpals.co.uk
Love
Sue
xxxxxxx

www.postpals.co.uk
Love
Sue
xxxxx

Love Viks

Hi Jeremy! I'm just stopping by to say hi and let you know that I'm thinking of you! I hope you have a GREAT week! God bless and *warm hugs* ><>†<><

Hi Jeremy
Just popped in to let you know I’m thinking of you.

Love
Sue
xxxxx

www.postpals.co.uk

HAPPY EASTER LOVE WWW.POSTPALS.CO.UK

I know im early, but

Happy Valentines Day



Love Viks from Post Pals

Merry Christmas Jeremy and family. We hope your holidays are fantastic. You are in our prayers.

Happy Thanksgiving!
We hope your holiday is blessed with family and
friends. You are in our prayers on Thanksgiving
Day and everyday.
Hugs,

Hope this finds you doing well. Am thrilled to see things are going great for you. We're keeping you in our prayers.

Happy 4th Birthday Jeremy!!!!

Hiya, just saying a hello, I have a few jokes for you today, this time about bears



Q: What do you get if you cross a skunk with a bear?
A: Winnie the Pooh!



Q: Why do bears have fur coats?
A: Because they'd look stupid in anoraks!







Lots of love and big…







Viks

Why do bears have fur coats ?
Because they'd look stupid in anoraks !

What do you call a big white bear with a hole in his middle ?
A polo bear !



Love Post Pals

Hiya, a few jokes to try and make you smile this weekend.



What are prehistoric monsters called when they sleep?
A dinosnore!



What do elves do after school?
Gnomework



Where do tadpoles change?
In a croakroom!











Love Viks on behalf of everyone at Post Pals

Hello, I thought I would stop by to leave some jokes for you, I hope they make you smile.

Love Viks and Everyone at Post Pals

Q: How do you know that cats are sensitive creatures?
A: They never cry over spilt milk!

Q: What do you get if you cross a cat and a gorilla?
A: An animal that puts you out a night!

Hi Jeremy, Long time no update, hope all is going good for you. I'll keep the prayers going for you. Hugs, Angel Sprite

Hello Jeremy!!! Hope your having a great day!

Happy Valentines Day, From Everyone at Post Pals

- Wednesday, December 24, 2003 10:57 PM CST

---

Love everyone at Post Pals


viks <viks@postpals.co.uk>
- Monday, December 22, 2003 6:30 PM CST

---

I don't know if you will remember me but Adam will I am Jackie's grandmother, I can't begin to tell you how very sorry that I am for the death of your son Alex and than to go through the same illness with Jeremy, I know what it is like to loose a child and nothing can take that pain from you, but with many prayers and a good support system we manage. I know this probably doesn't help nothing ever does but there will be days as you know that we don't cry as often. I guess the best advise I can give anyone is to put all your faith in God sometimes thats hard to do but he will always be there for you when others aren't he will be. I will continue to pray for all of you. God bless all of you.

Margo
Margo Powers <catilacgirl2252@aol.com or catilacred@yahoo.com>
Princeton, WV USA - Sunday, December 21, 2003 11:04 PM CST

---

I am very glad for your son and wish you all the best for x-mas and happy New Year. Thank you very much for your support and enjoy those families celebrations.
Silvia Ribeiro <pougui@mageos.com>
pau, france - Friday, December 19, 2003 6:52 AM CST

---

Dearest Jeremy

I gently wrap warm thoughts of you
in my little christmas prayers
For Heaven to smile on you
For Angels to watch over you
and the love of Jesus to fill your heart

Have A Merry Christmas
God Bless You And Your Family This Holiday


Chris Ullrich - Grand daughter dx with AML M5 <c_ullrich@msn.com, www.caringbridge.com/page/isabellaledesma>
Hemingford, Ne USA - Tuesday, December 16, 2003 11:16 PM CST

---

Just wanted to wish you all a great holiday and a Healthy and Happy New Year!
Jeremy you're in our thoughts & prayers!!!!



Angel Chris ~ Smile Quilts ~
chrisrusso_@hotmail.com
- Sunday, December 14, 2003 3:06 PM CST

---

Jeremy - you are in our thoughts & prayers.
We hope your family has a nice holiday and you continue on the road to feeling good & doing great buddy.


Angel Chris ~ Smile Quilts ~
chrisrusso_@hotmail.com
- Thursday, November 20, 2003 3:17 PM CST

---

happy birthday

I me by have a child i has krabbe the doktors have taken som test yesterday.
I´am so afraid aboudt that.
i now the answer about 2 week.
i hobe God will help os.

love Charlotte and Yosef
Charlotte el derbas <elderbas@hotmail.com>
Hjørring, Denmark - Sunday, November 9, 2003 4:16 PM CST

---

Happy Birthday Jeremy!
Deb Bieging
- Tuesday, October 21, 2003 6:03 PM CDT

---

Jeremy, My heart is all a flutter to know how fantastic it is to reach your third birthday. You amaze me with all of those miracles you perform each day and that most people take for granted!! I know how special this day is because you are also two years out of transplant which is huge. I bet you will be going to preschool real soon and then you will be learning so much more and having fun with all the kids. I am so proud of you and hope to see you in a few weeks as you pass through out little piece of heaven here in Kentucky.
The Rugari Family <annerugare@mindspring.com>
Edgewood, KY - Monday, October 20, 2003 8:40 PM CDT

---

Congratulations Jeremy!!!!
Dr. Escolar <maria.escolar@cdl.unc.edu>
Chapel Hill, NC USA - Monday, October 20, 2003 2:26 PM CDT

---

Happy Birthday to Jeremy. Three is such a wonderful age !!We are so glad that things are working well for all of you. I will never forget Alex. He has a special place in my heart. Give Adam a hug for us too !!Things are well here in Minnesota. I am working and JErry is retired. We just went to SEattle in August to visit Scott. He is doing fine. LOVe to all of you, SUZAN and JERRY
Suzan and JErry WEisser <jersuz1@charter.net>
Duluth, MN USA - Monday, October 20, 2003 8:24 AM CDT

---

HAPPY 3rd BIRTHDAY JEREMY!!!!!!!!!!!

WE are wishing you lots and lots of fun and adventures in your upcoming year! Wow, Jeremy you are such a big boy, 3 already, hardly seems possible, you are growing up very very quickly! IT sure sounds like you are having BIG fun as you grow, way to go, and sharing loads of love with your family and friends. WEll, I suppose I should sign off, I don't want to keep you any longer... you're probably busy helping dad with a construction project, or mom with some of her projects or maybe even better yet, tickling your big brother Adam, please tell him we said hi!

Lots of Love
BIG HUGS,
micki ands al gartzke <mickig@miliserv.net>
shorewood, wi - Monday, October 20, 2003 6:26 AM CDT

---

Happy Birthday Jaremy!!!
From one of the caringbridge familys.
We hope you had a GREAT day!!
So glad your doing so well!
God Bless you and your family.


Kelly DeDomenic

Lots of Love,Nancy (Kelly's mom) <www.mldedom@aol.com>
Monroeville (Pgh), Pa U.S.A. - Sunday, October 19, 2003 10:23 PM CDT

---

way to go! It looks like everything is going good. You are always in out prayers
Beka Rud
Willard, WI USA - Sunday, October 19, 2003 6:38 PM CDT

---

Happy Birthday Jeremy!
Edie~Hunter's Hope Volunteer~ <epbailey@aol.com>
Amherst, NY - Sunday, October 19, 2003 12:49 AM CDT

---

Happy Birthday Jeremy! Keep giving Mom and Dad fits! Thats your job!
Scott, Terry and "Angel Liam" Hammonds
Scott and Terry Hammonds <Rebel1018@aol.com>
C.C. Hills, IL - Sunday, October 19, 2003 11:20 AM CDT

---

Jeremy, we are all wishing you all the best and a Happy & HEALTHY Halloween from everyone at Smile Quilts.
Mom, I am so very sorry to hear about Alex, I hadnt known.



Angel Chris and all your friends at ~ Smile Quilts ~
chrisrusso_@hotmail.com
- Sunday, October 12, 2003 5:45 PM CDT

---

Happy belated birthday Alex, sorry we are so late... I love hearing you say that Jeremy is doing so well. We will keep you in our prayers.
With love,
Erika Sears
~Angel Haley's Mom~
Erika Sears <GregErika@MindSpring.com>
Seneca, SC - Thursday, August 28, 2003 2:58 PM CDT

---

Hey Jeremy, how are you doing? I hope you all are enjoying your summer!!! Did I ever tell you we found some bunnies in our backyard recently. Actually, our dog did - the kids were in the pool and she was barking like crazy under the pool deck. Finally when we checked there was a bunny nest with a baby bunny in it. Then after more looking through it we found 2 more. So since I have 3 kids and there was 3 bunnies, they each named one. We left lettuce and water and carrots out there but it was never touched so we dont think the mom came back. About 2 days later we took them in to feed them and we had them a week, feeding them kitten milk from a kitten bottle or dropper. They were SO cute! They called them Jean, Robin and Nibbles. My son Gooch called his Jean, named after Jean Smart in XMen. They opened their eyes while we had them and by the end of the week we had them they were running all over, more running than hopping. My husband was convinced they were going to grow up and bite our fingers off, so we turned them over to a Childrens Museum that is a wildlife rehab center near us. I hope they are being taken care of, if they werent already released. I know the kids loved them and they really were cute!! That was our thrill for the summer – hope you are enjoying yours!


Angel Chris & all your friends at Smile Quilts Smile Quilts Website
chrisrusso_@hotmail.com
- Monday, August 11, 2003 2:23 PM CDT

---

hi
i dont think you know me. i know benjamin walker and i read about your son. it must be so hard for you, but just be glad he is here in your lives. i want you to know i am thinking of you and your family and hope everything continues to go well for you!
kelsey dodge
kelsey dodge <k_24_2006@hotmail.com>
osseo, wi usa - Friday, August 1, 2003 0:47 AM CDT

---

great pictures glad everything is going well. You are in our prayers
Beka
- Monday, July 14, 2003 7:10 AM CDT

---

Hi there Lovely Thoms family!

Sorry it has taken us so long to come by for a visit to see Jeremy's adorable little face. Happy belated birthday wishes to Alex in Heaven. It sounds like your lives continue to be filled with so many blessings. Frank & I would love to hear Adam play some day. My young cousin and their band "Crowned King" just signed their 1st record deal and it should be coming out soon. Frank & I love music. We can't play worth a darn but we sure love to listen to all types. Hopefully next year Adam will be at the sympsosium and can fill the room and our souls with his music - that would be truly inspirational!!

Tanys, we pray that you will find a job that fits perfectly with who you are. You and Randy are just so loving, hearts of Gold. We'll send lots of positive energy.

Jeremy, we sure miss your smiling face :)

Much LOVE to you and your boys,
Lisa & Frank (angel Chloe's mom & dad)
xoxoxoxoxoxo
the Fedoraks <clffedorak@shaw.ca>
Vancouver, BC CANADA - Thursday, July 10, 2003 12:24 AM CDT

---

Hi
Glad to hear that Jeremy is doing so well. I will continue to pray that you find a job soon. Give my regards to Adam
Love
Grace
Grace Caruso <grace.caruso@verizon.net>
Brooklyn NY, - Monday, July 7, 2003 10:34 PM CDT

---

Fabulous news about Jeremy!!! I can't believe he is eating so well now. We are still waiting to hear when Gina's surgery will be. I hope it is soon. I am getting a little frustrated because her eating could be better!!!!!!
It was good to hear your update and will continue to keep all of your family in our prayers..............I know how you feel about Alex's 16th birthday. That was a tough day for me, too. Sixteen is a big milestone with these kiddos. I must say, though, this last year I keep seeing license plates on different vehicles with Nick's birthdate on them: 516. I think he is zipping around in heaven driving all the kids around and wants me to know that he is fine. I hope that Nick doesn't teach Alex any bad driving habits!! Hugs and love,
Anne Rugari
Edgewood, KY - Monday, July 7, 2003 1:37 PM CDT

---

Hi,
We are glad that Jeremy continues to do well. He is such a cutie!! We also hope that you made it through Alex's birthday. We can only imagine how difficult these days must be for you. We will pray hard that you are able to find a job. May God grant you the strength you need.
God Bless
Pam,Bill, Katie and Ryan Kristoff
- Monday, July 7, 2003 9:27 AM CDT

---

Sounds like Jeremy is doing really well. I am looking forward to seeing him again this year! It was a nice time at the symposium again this year, so nice to see old friends and make some new ones. Thank you for sharing Jeremy and Alex with all of us.
God Bless, Kelly
Kelly <kellysue@mindspring.com>
Durham, NC - Sunday, July 6, 2003 9:17 PM CDT

---

It is so wonderful to hear that Jeremy is making progress in different areas. Laura's language skills really flourished during that 3rd year post-T. It is such a joy to get to know them in this way!
I'll be praying for work to come.
Love to you and wishes for a very happy 4th of July!!!
-Carol and family
carol cross <www.caringbridge.org/mo/lauranews>
- Friday, July 4, 2003 6:59 AM CDT

---

Thanks for the update! I love the pictures!!! It's so great to hear that Jeremy is doing so well, I always love seeing him move around so fast while we are at the symposium!
Happy Birthday Alex, we hope you have a wonderful day with all of your buddies!!!!
With love and hope,
Erika Sears
Erika Sears <GregErika@MindSpring.com>
Seneca, SC - Thursday, July 3, 2003 8:30 PM CDT

---

I am hoping that things are going well there.
I just wanted to drop by and wish you a safe and healthy 4th of July



Angel Chris and all your friends at Smile Quilts
chrisrusso_@hotmail.com
- Sunday, June 29, 2003 10:28 AM CDT

---

Happy Father's Day, Randy! Enjoy your day.

God Bless, Kelly
Kelly <kellysue@mindspring.com>
Durham, NC - Sunday, June 15, 2003 10:24 AM CDT

---

I hope things are going well there, and I hope you know we are all pulling for you and praying for you! I have seen several families mentioning the symposium, I hope you were able to attend and found it informative

Chris
~ Gooch's Site ~ * * ~ Adopt A Kid's site ~
- Thursday, June 12, 2003 8:59 AM CDT

---

Hello my name is Jenna and i was born with a rare bone disease.
Jeremy's story encouraged me, and gave me hope. I love his smile,a nd he is in my prayers.
My webpage is: http://www.matmice.com/home/fgitherandchampion
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Thursday, May 15, 2003 1:25 AM CDT

---

Hey there cutie, I am glad to see that you are doing well. I hope that what Amie & I set out to do with the Adopt A Kids Site is working, and you have more people praying for you and visiting your site. I just wanted to take this opportunity to wish you a Happy & Healthy & Blessed Easter/Passover/spring time, whatever you prefer!!


Chris
~ Gooch's Site ~ * * ~ Adopt A Kid's site ~
- Thursday, April 17, 2003 9:18 PM CDT

---

Hey sweetie, I am glad to see that you are doing well and hope the next update is more good news. I hope the crowns are the end to the eating dilemma. Let me take this opportunity to wish you a Happy & Blessed Easter and let you know how much everyone cares about you and everyone at Smile Quilts is thinking of you and is praying for you.



Angel Chris and all your friends at Smile Quilts
chrisrusso_@hotmail.com
- Monday, April 14, 2003 0:27 AM CDT

---

Dear Thoms Family,

We will pray that Jeremy's teeth crowning goes well and that it helps his sweet little mouth to enjoy his food. Tanys our hearts go out to you, we are so sorry to hear about your job. We will think positive thoughts that something wonderful comes your way. We are very excited about seeing you all again in May. It will be so much FUN!!!!

Congrats to Adam for his talent show!!! Hey, he should bring his guitar to the symposium and put on a show for all of us. Just a thought.

Continue to enjoy your Blessings,
Lisa, Frank and Angel Chloe
xoxoxoxoxoxoxoxoxooxoxoxoxo
the Fedoraks <clffedorak@shaw.ca>
Vancouver, BC CANADA - Saturday, April 12, 2003 7:31 PM CDT

---

It doesnt really matter if you're Irish or not, its another reason to drop by and wish you well if you're not!
Happy St. Patrick's Day, hope this finds you doing well.



Angel Chris from Smile Quilts
chrisrusso_@hotmail.com
- Monday, March 10, 2003 11:49 PM CST

---

I hope this finds you doing well and feeling good Jeremy.
Lots of people are thinking of you.
Hugs & Prayers,

Chris
~ Gooch's Site ~ * * ~ Adopt A Kid's site ~
- Tuesday, March 4, 2003 9:48 AM CST

---

Jeremy,

Yup, just like the old man! I should know, I knew him when he was . . . less old. Ask him what a Lowrider is. He'll roll his eyes, then tell him you mean the car. It sounds like you would have loved his old yellow Chevy.

Thoms family, Thank you for the Christmas card, and this website. I feel like a bit of a snoop, having read all of the journals from the beginning. But you both do such a good job at telling the tale of Jeremy and the whole Thoms clan.

You are all in our prayers,

Mark and Linda
Mark Jenkins <Mark@JenkinsWeb.net>
Woodbury, MN USA - Monday, March 3, 2003 6:55 PM CST

---

Jeremy you are just the cutest, sweetest little boy (we love the picture of him in his little red shorts & hat too!!!! tooo cute!!!). We are so happy to hear that Jeremy is doing so wonderfully and that he is running around and doing all the things that 2-year olds do. Have fun sweetie and we'll hopefully see you again at the Symposium. We are happy to know that your family is doing well and enjoying your blessings :)

Much love,
Lisa, Frank and Angel Chloe
the Fedoraks <clffedorak@shaw.ca>
Vancouver, BC CANADA - Thursday, February 27, 2003 3:58 PM CST

---

Way to go Jeremy, aced those 2 year studies like the professional that you are, one full-time bundle of little man, doing guy things, how so very cool! I can't wait to see you running around at the symposium in a couple of months, you are a remarkable young man with a great family. Hey Jeremy tell your mom, no apologies or excuses are necessary, we love hearing about all of you whenever you guys get the chance.

That's it from Milwaukee....
All our love,
Micki and Al Gartzke
micki <mickig@miliserv.net>
shorewood, wi - Wednesday, February 26, 2003 6:44 PM CST

---

Life is more normal now and I know how busy you are doing fairly normal things! Jeremy is a busy two year old and that takes a lot of time and energy. You have a teenager whick consumes a lot of mental energy! (Adam, I think you are great)! Don't feel bad about updating the website! At least I can talk to you on the phone and can't wait to see the amazing Jeremy and his wonderful family in May! I am hoping all the snow melts by then between here and Buffalo!
Hugs to all and when you hear about the 60 Minutes thing post a message on the board! Hugs to all.
Anne Rugari
Edgewood, KY - Wednesday, February 26, 2003 1:31 PM CST

---

Jeremy!!! I can't wait to see you again at the Hunter's Hope Symposium! You are such a miracle. Keep smiling and try not to get into too much trouble :)
Lisa (Hutner's Hope) <lisa@huntershope.org>
- Wednesday, February 26, 2003 9:12 AM CST

---

Hey Guys: God has blessed so much and I thank him for his wonderful hand in keeping and providing for each of you. I am so blessed when I receive reports where I have had the privalige to pray and then see good results. Thanks for the updates and I will check in again soon. Love Gail
Gail Skaggs <russell4ever@yahoo.com>
Hillsboro, Ky USA - Wednesday, February 26, 2003 7:29 AM CST

---

Happy Valentine's Day Jeremy and Family. I hope the extra love that is sent your way today is felt. Thank you for sharing Jeremy with all of us. Praying all is going well, looking for a new update :-)
Love, Kelly
Kelly <kellysue@mindspring.com>
Durham, NC - Friday, February 14, 2003 7:02 PM CST

---

Hi buddy! I just wanted to drop by before I forget and leave you some Happy Valentine's Day wishes!
I hope you know lots of people are thinking of you every day!




Gooch & Mom
Gooch's Site

- Tueday, February 11, 2003 6:22 PM CST

---

hope all is well there.
Please know lots of people are thinking of you and praying for you this Valentine's Day!!



Angel Chris from Smile Quilts

from the land of your cousin is right, you need to update ! :)
<chrisrusso_@hotmail.com>
- Tueday, February 11, 2003 0:52 AM CST

---

hi geuss you need to update love cousin cristal
Cristal Redmond <katspaw@n9rsu.c0m>
Eau Claire, WI USA - Thursday, February 6, 2003 5:07 PM CST

---

Jeremy, I am so happy to see you are doing well.
You are such a cutie & have been thru so much already.
Everyone at Smile Quilts wishes you much health & happiness in 2003!



Angel Chris from Smile Quilts
<chrisrusso_@hotmail.com>
- Thursday, January 02, 2003 at 08:48 AM (CST)

---

Hello Thoms Family,

I have been so out of touch over the past few weeks. But my time away has been fruitful and many blessings have been happening in our family. It is so awesome that Jeremy had such a great visit and wonderful results at DUKE!!! Way to go Krabbe KID! 60 Minutes, too cool! You are a star! I hope now that our lives will calm down somewhat I will have some more time to spend with my special Krabbe families. We wish you much hope, love, and many, many blessings to your family. Love,
The Rugari Family
Edgewood, KY - Tuesday, December 24, 2002 at 08:31 AM (CST)

---

Toto <totoofoz@cox.net>
Lyons, KS USA - Tuesday, December 24, 2002 at 12:38 AM (CST)

---

Hi just stopped by to wish you Merry Christmas!


Angel Craving Wings
Winnipeg , Mb Canada - Saturday, December 14, 2002 at 10:46 PM (CST)

---

Hey there little gingerbread boy!!!!!

Ok you know you must come to mommy at some time! But what a joy to hear you are running and giving your mommy so many smiles and memories!

Tanys and Randy,
Thank you for sharing Jeremy's story with us! What an inspiration he is, such a joy! Please know that you are always in our prayers. We will keep you Aunt Sandy in our prayers also. Thank you for such a beautiful update!

With Love and Admiration,
Amanda and Noah
XXXOOOXXOOXXXOOO

Amanda Thomas
N Richland Hills, TX USA - Thursday, December 05, 2002 at 11:20 AM (CST)

---

Hi
Thanks for the update.
Good Luck with the job.I am so happy to hear Jeremy(Little Ginger Bread Boy) is running. I am sorry to hear the sad news please accept my condolences. Also please tell Adam that his friends Grace & Anthony from Brooklyn send their regards.Anne told me about the 60 minutes show. I will be looking foward to seeing it.
Many hugs & kisses for Jeremy
Love
Grace
Grace Caruso(Krabbe Family) <grace.caruso@verizon.net>
Brooklyn, NY - Wednesday, December 04, 2002 at 11:53 PM (CST)

---

It is wonderful to be back in touch. I am so sorry that we lost touch at all. Having been one of Tanys' Mom's closest friends, I always feel that I represent some of her past and all the love that everyone has always had for her and her family. We wish Jeremy the very best and pray for him all the time. Love you all very much, SUZAN and JERRY
Suzan and Jerry Weisser <jersuz@cpinternet.com>
Dulluth, MN USA - Saturday, November 30, 2002 at 08:41 AM (CST)

---

Hello cutie Jeremy,

We were just remembering your darling face from when we met you at the Symposium. Hope you are well beautiful boy. Keep smiling, laughing, running and playing and we hope to see you again next year.

Much love to your brother, mommy & daddy too :)

Lots of Love,
Lisa, Frank and Chloe
xoxoxoxoxoxoxoxoxoxo
the Fedoraks <clffedorak@shaw.ca>
Vancouver, BC CANADA - Tuesday, November 19, 2002 at 12:35 PM (CST)

---

BOO! BOO! BOO! Happy Halloween Jeremy. Hope you are doing well. Big Hugs and Hugs and Hugs.

Are you going to Duke soon?

Anne and Gina
Edgewood, KY - Thursday, October 31, 2002 at 12:34 PM (CST)

---

That Jeremy sure is a little cutie. I hope you send that picture of him and his adorable smile to HH. I just love it and he looks terrific!!! Hugs to the family and it was great to talk with you a few days ago.
Anne and Gina
Edgewood, KY - Friday, September 13, 2002 at 07:23 PM (CDT)

---

i really happy that jeremy is getting better. all my prayers for him
tara overmyer <kimomine@aol.com>
las vegas, nv usa - Tuesday, September 10, 2002 at 07:30 PM (CDT)

---

Dear Ones,
So great to hear about the conference and the encouragement it was to you.
PTL about no cancer, Tanys. You are in our prayers for work and Jeremy's OT.
GOd bless.
Love in Christ,
Pastor John and Joanie
Philippians 1:6
Pastor John and Joanie Vincent <gbcptl@csinet.net>
LaPorte , IN USA - Wednesday, August 28, 2002 at 09:35 AM (CDT)

---

Dear Tanys, Randy, Adam and your little cutie Jer-bear,

We were so blessed to have met you at the HH symposium. We took one look at your beautiful little boy Jeremy and we truly believed with our own eyes that miracles really do come true. You have a very special family and we look forward to getting to know you even better next year. We too almost didn't attend this year and we are forever thankful that at the last minute we said "yes". What an incredible experience to see all of the beautiful faces of our precious children all together in one loving family.

Tanys, I am so happy to hear that you are okay. You have a very special Angel watching over you :)

Good luck on the job search. I look forward to future updates.

Thank you for sharing your family with us.

Love,
Lisa, Frank and Chloe
xxoxoxoxoxoxoxoxo
The Fedoraks <clffedorak@shaw.ca>
Vancouver, BC CANADA - Monday, August 26, 2002 at 10:09 PM (CDT)

---

Just wanted to say Hi It was great to read your update! You are in our prayers!
Amanda and Noah
Amanda Thomas <noahsmommy@faithmail.com>
North Richland Hills, TX USA - Sunday, August 25, 2002 at 09:53 PM (CDT)

---

Thank you for sending me the email letting me know you updated his page. I am so glad you all came as well. I told you it is a wonderful experience. Praise God on the good report on your thyroid, that was wonderful news. I will keep you both in my prayers for a job to come open. Let me know when you will be back in Durham.
Love, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Friday, August 23, 2002 at 06:28 PM (CDT)

---

Okay, now that I'm done crying I can tell you how wonderful it was to meet you all at the symposium this summer. I am ever grateful to our friend Anne for making that one last phone call. WE knew you all would just love it! Your message was very powerful. Sounds like the Bears are goign great guns, that isso cool! I hope you can tape the news show and send a copy to HH, we're trying to get copies of all the shows. also if you have an extra newspaper articles, if yo ucould send that in too!

Al had a really GREAT TIME fishing with Adam, what a kind and delightful young man you have raised, wow I was so impressed with him. If you guys are ever in Milwaukee, please let us know we'd love to see you. Hey, I think there is a Krabbe picnic get together getting planned for the Saturday of Labor Day weekend at David and Cindy Coopers house in Sun Praire, please let me know if you think you could attend. WE'd love to see ya. Shoot me an email!

Love and many many big hugs and kisses to you all, most especially that darling Jeremy. And Jeremy, you go kiddo with the OT!!!!
Peace and Prayers,

micki and al gartzke <mickig@miliserv.net>
shorewood, wi - Friday, August 23, 2002 at 03:19 PM (CDT)

---

It was very much a pleasure to meet you all in NY! Jeremy looks so wonderful - I thank God for his precious life!
I would really like to keep in touch as we all have many of the same issues to tackle with our children.
my very best regards to you,
love,
carol
carol cross <carolkcross@hotmail.com>
- Monday, July 15, 2002 at 07:26 PM (CDT)

---

I'm glad we got to see each other but sorry we didn't talk as much. Please forgive me if i didn't say much, sometimes it is hard to talk to others. I am so glad that Jeremy is doing so well. I wish Brittany had that chance. Hopefully we will get to know each other better throught the year and really get to talk next time. Brittany is sending hugs and kisses to you all. GOD BLESS THE WALTERS
Daniela <ddtbwalter@aol.com>
radcliff, ky usa - Thursday, July 11, 2002 at 08:28 PM (CDT)

---

Hi
It was really nice meeting your family. It was such a joy to see Jeremy walking and keeping you guys busy.
Love
Grace(Anthony's Mom)
Grace Caruso <Gcar314@aol.com>
Bklyn, NY - Wednesday, July 10, 2002 at 10:21 PM (CDT)

---

I'm glad that the transplant as worked. Jeremy is just a doll and we are looking forward to meeting you all on Friday. Have a safe trip and we see you soon. Happy fourth of July!!!!!sending hugs and kisses to Jeremy from Brittany.
GOD BLESS

The Walters
Daniela <ddtbwalter@aol.com>
Radcliff , KY USA - Wednesday, July 03, 2002 at 03:28 PM (CDT)

---

We rejoice with you to see how the Lord is answering prayer for you and Jeremy. What a thrill to hear of all that Jeremy is doing. God bless.
Love in Christ,
Pastor John and Joanie
Philippians 1:6
Pastor John and Joanie Vincent <jvincent@csinet.net>
LaPorte, IN USA - Wednesday, July 03, 2002 at 11:36 AM (CDT)

---

Sounds like he is just keeping you all very busy!! We are so happy he is doing so well. We can't wait to meet him on Friday!!!!!
Hunter's Hope <hunters@huntershope.org>
Orchard Park, - Monday, July 01, 2002 at 10:54 AM (CDT)

---

Praise God for the way he has worked in Jeremy. He is such an adorable little boy and an inspiration to all of us. We were so glad to have met him and your family on our first visit to Durham. Thanks for your prayers and encouragement for our family. Love and God Bless.

Ruth and Marty Kristoff <mkristoff@sbcglobal.net>
Glastonbury, CT - Thursday, June 06, 2002 at 06:50 AM (CDT)

---

Dear Randy and Tanys,
PTL for Jeremy's surgery results. We are so thankful and rejoice with you. Greet your dear Family for us as we thank the Lord for you.
Sincerely in Christ,
Pastor John and Joanie
Philippians 1:6
John and Joanie Vincent <jvincent@csinet.net>
LaPorte, IN USA - Tuesday, May 21, 2002 at 09:01 AM (CDT)

---

Goood news on the surgery outcome. IT will be fun for you all to play in the water this summer. Thanks for the nice update, we ALWAYS love hearing about Jeremy! WE will say prayers for the kids you mentioned as well as the new family you gave the Duke info to!

We really really hope that you can come to the symposium this summer, you would really really love it. Do you think that there is anyway that you could all attend, we would so love to see you there and I know you would just love being with everyone in the fabulous resort. Sharing time with families, learning new information for Krabbe researchers, getting an update for Dr. K and letting Jeremy strut his walking. Oh, I am praying very hard that you all will be able to come. I really hope you logisitics work out. IF you have any questions about anything transportation or event related feel free to contact me, I really really want you guys to come.

Love to you all,
Micki
Micki Gartzke <mickig@miliserv.net>
shorewood, wi - Tuesday, May 21, 2002 at 08:32 AM (CDT)

---

YES!!! I am so excited to hear Jeremy is walking!!!! Thanks for making my day!

Take Care,
Cindy Cooper (Angel Ashley's mommy)
Cindy Cooper <cadcooper@aol.com>
Sun Prairie, WI - Friday, May 17, 2002 at 09:23 PM (CDT)

---

Happy Mother's Day, Tanys! I hope you had a very blessed day. Jeremy walking is such wonderful news! What a blessing from God. I know you must be thrilled! Keep up the great work.
God's Blessings, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Sunday, May 12, 2002 at 09:28 PM (CDT)

---

Dear Randy and Tanys,
We will be much in prayer for Jeremy's surgery. So good to hear of his walking. Melissa just graduated with B.S. in Nursing from Ind. Univ. at S. Bend on May 7. We are all celebrating. She will be taking her state registration test in June. We appreciate your prayers for this. Thanks so very much for keeping us posted.
Love in Him,
Pastor John and Joanie
Philippians 1:6
John and Joanie Vincent <jvincent@csinet.net>
LaPorte, IN USA - Friday, May 10, 2002 at 10:18 AM (CDT)

---

WOW! this is great news about Jeremy walking! Way to go Jeremy. We are so proud of your accomplishments. Sounds good about the surgery. It will all be over in one day and having those central lines removed will be so terrific!!
Gina hasn't needed access to her line, except for routine labs in two years, so hopefully Jeremy won't need anything else done! I will call you soon!
Anne Rugari <annerugare@mindspring.com>
Edgewood, KY - Thursday, May 09, 2002 at 05:54 AM (CDT)

---

I can't tell you how excited I am to hear that Jeremy is walking!!! How wonderful!!!! We are working so hard to help Laura - she is so afraid to let go of us. I feel so encouraged and hopeful at hearing your news. I do hope your family will be able to come to NY for the symposium - I can't wait to see him walking about!! Thanks for your journal updates - I know it is hard to do them frequently!
Please give Jeremy a hug from Laura
love, carol cross
carol cross <carolkcross@hotmail.com, www.caringbridge.com/mo/lauranews>
St. Louis, mo - Wednesday, May 08, 2002 at 05:46 PM (CDT)

---

Have a Very Happy Easter
Grace Caruso <Gcar314@aol.com>
Brooklyn, NY - Sunday, March 31, 2002 at 02:21 AM (CST)

---

Blessings to you, my fine friend, Jeremy. I hope that the Easter Bunny hops over to your house and leaves you lots of little goodies. Your chick friend, Gina
Gina Rugari <annerugare@mindspring.com>
Springtime, KY - Friday, March 29, 2002 at 11:52 AM (CST)

---

Hi,
What a week you have had! It must have been so hard to see Jeremy so sick. I am glad to hear that he is doing better. Hopefully he will continue to get better everyday. We are so blessed to have had the opportunity to meet him here at Duke. He is absolutely adorable!! We will keep him in our prayers. God Bless
Pam Kristoff <PBKristoff@Aol.com>
Durham, NC - Tuesday, March 19, 2002 at 10:11 AM (CST)

---

Dear Jeremy, We are sorry to hear you were admitted to the hopspital, but happy to hear you did not have an infection and are home and feeling better now. We continue to keep you and your family in our thoughts and prayers. You are truly a gift from God and we are so encouraged by your progress after the transplant. We hope you will be able to come to the Hunter's Hope Medical Symposium in July. We would love to meet you.
Take Care,
David, Cindy & Angel Ashley Cooper
Cindy Cooper <cadcooper@aol.com>
Sun Prairie, WI - Monday, March 18, 2002 at 08:38 PM (CST)

---

Kisses and Hugs for this little angel, Take care guys and and happy to knew something about Jeremy.
Liliana Victor Melina and Carlitos <vsevilla@new.rr.com>
Neenah, Wi - Friday, March 15, 2002 at 11:43 PM (CST)

---

Dear Jeremy,
I am so proud of all of your accomplishments! I can't wait to see you in person this summer and we can have fun playing together. It is so exciting to be a part of a hopeful situation and we are going to grow up together and be friends for life! Our mommies will make sure of that. Keep having mom take lots of videos and pictures because you are going to have so many wonderful stories to share with the world! God is really working great stuff through you! Say hi to your mom and dad and big brother Adam.

Your pal, Gina
Snowy, cold, , KY - Monday, March 04, 2002 at 10:47 AM (CST)

---

How awesome you caught his first steps on video! He is absoulutely adorable!!!

Love,
Hunter's Hope
Hunter's Hope <hunters@huntershope.org>
Orchard Park, NY USA - Friday, March 01, 2002 at 11:57 AM (CST)

---

WOW! I am so happy for you, what an awesome thing having a video taping too!! I am so glad things are going well with Jeremy. Hope to hear about new exciting things again soon.
Love, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Tuesday, February 26, 2002 at 07:53 PM (CST)

---

Jeremy, After my visit today I wanted to understand more about Krabbes and thanks to your mom I found plenty of information. I'll be seeing you soon to play some more.
Lucretia <cretia54724@yahoo.com>
Bloomer, Wi USA - Tuesday, February 26, 2002 at 05:42 PM (CST)

---

HEY Jermey. You are in my prays my name is Ashley. And i am doing a project on krabbes disease. And I read your story and I got a perfect A++ because I found your web site and I did a report on you and your fellow frinds with the same disease. Well I am glad your doing good.
your friend, Ashley
Ashley <Stillman4@prodigy.net>
Byron, IL U.S - Monday February 18, 2002 3:38 PM CST

---

That is so awesome hon that all is going so well. Have prayed and I know that God will provide. I know it has been hard on you all as well and so we will keep you each in our prayers. Thank you for the updates and I am so proud of that little man!
Gail Skaggs <russell4ever@yahoo.com>
Hillsboro, Ky Fleming - Wednesday February 13, 2002 12:30 AM CST

---

WOW what wonderful news Mr. Jeremy! Taking your first step while being recorded on video. I guess you are not going to be shy. You want the world to see what you can do. YOu go get 'em!!!!! Jeremy you are a very bright spot inthe day, thanks for sparing your mom for a moment so she could let us all know the wonderful news!

Love Your Pal,
Micki Gartzke
((((((((BIG HUGS)))))))))))
Micki
Shorewood, WI GodBlessJeremy - Monday February 11, 2002 3:19 PM CST

---

Thinking of you, Our Wisconsin friends. Glad Jeremy is doing well. Thanks for the update. Hope to see you. God Bless
Silvia Sevilla <dasil99@hotmail.com>
Neenah, Wi, - Friday January 25, 2002 8:39 AM CST

---

Hi you guys! It is great to read about Jeremy's progress! I think of you all often. june
June Allison-Thacker, RN <allis006@mc.duke.edu>
Durham, NC USA - Monday January 21, 2002 7:53 AM CST

---

So happy for you and Jeremy's progress. God is so good!
Love, Paula
Paula McElroy <paulamc@execpc.com>
-

---

HEY GIRLIE----JUST YOUR FAVORITE AUNT. BOY THE PICTURES OF JEREMY ARE GREAT. HAVE YOU TALKED WITH YOUR DAD? I HAVEN'T HEARD FROM HIM SINCE WE CAME HOME. HAS NICHOL'S HUSBAND LEFT YET? HOW IS SHE DOING? GOT TO GET TO WORK.
LOVE YA, LINDA
LINDA HOMEBURG <LINDA.HOMEBURG@US.GAMBRO.COM>
LAKEWOOD, CO -

---

Dear Randy and Tanys,
Thanks so very much for keeping us posted as to how the Lord is continuing to work in dear Jeremy's life. What a blessing Jeremy is and Adam too.
You are in our prayers for wisdom and peace as the Lord holds you all in His powerful, tender arms close to His heart (Isaiah 40:10-11).
Love in Him,
Pastor John and Joanie
Philippians 1:6
Pastor John and Joanie Vincent <jvincent@csinet.net>
LaPorte, IN usa -

---

Merry Christmas to all of you this very special CHristmas. Just think last year you were at Duke and going through transplant. This year you are home with Jeremy and all of your family. What a blessing this holiday will be for you. GOD IS SO GOOD! I constantly marvel at how well Jeremy is doing and I know that it is your faith that has given you this remarkable miracle. Jeremy's life is such a wonderful, blessed example of prayer, faith, and love. Thank you for sharing him and his journey with us. Enjoy the season and continue to have love and hope as a gift each and every day.
Your friends in Kentucky
The Rugari's
KY - Friday, December 21, 2001 at 09:40 PM (CST)

---

Hi my little angel, I hope you still doing many thinks and I glad that your are progressing fast, God and his angels be with you and your family, and I hope the best for your baby, that he still in our preyes. Iam sorry for my english but, I tell you with all my heart and whit all my love.
Liliana, Melina, and fam <daprince777@hotmail.com>
Neenah, Wi USA - Wednesday, December 12, 2001 at 01:34 PM (CST)

---

Hi, I want to tell you want a pleasure it was to meet your family and visit with you at Kelly's. Jeremy is absolutely beautiful. He gives us a lot of hope. We are so fortunate to be part of such a special family(Krabbe). It is nice to know that you are not alone and there is hope. Ryan is now on day one and he seems to be doing well. We are constantly praying that God will slow down his disease so that the cells will grow. Thank you again for sharing Jeremy with us. He is quite an inspiration to us. We hope that you enjoying this holiday season. God Bless
Pam, Bill, Katie, and Ryan Kristoff
- Thursday, November 29, 2001 at 12:41 PM (CST)

---

I lost my computer the day after you all left. Sorry I have not emailed but I am still working on my computer problems! I am doing this from work. I just wanted to say thank you for coming to dinner at my house and meeting with the other families. Jeremy is such an inspiration to the others to see him! What a cutie you have! And a Blessing too! I will email you when I am back and running again at home with the other site's you were wanting.
God Bless, Kelly
Kelly Sroczyk <Kellysue@mindspring.com>
Durham, NC - Monday, November 26, 2001 at 09:52 AM (CST)

---

Congratulations on your one year post transplant birthday!!! This day deserves a special celebration, because it marks Jeremy's second birthday and second chance at life! How exciting.........This next year will get easier and better! You made the huge mile marker!!!!!
I hope that all of you have a wonderful Thanksgiving, you have so much to be thankful for. Many blessings to all of you.
Anne Rugari
Edgewood, KY - Wednesday, November 21, 2001 at 09:45 PM (CST)

---

Hey, what a beautiful baby! Glad Jeremy is doing so well. Your journey has been so inspirational and touching. Blessings to all of you! ox BJ and Timmy
Bobbi Jo Toy Schwagel <TOYCOMM@WWT.NET>
Eau Claire, Wi usa - Saturday, November 17, 2001 at 09:55 PM (CST)

---

WOW ALL GREAT NEWS for Jeremy and his testing results!!!!!!!!!!!!!
Micki Gartzke
God Bless Jeremy, - Saturday, November 17, 2001 at 08:26 PM (CST)

---

Dear Jeremy, Happy Belated Birthday! I can't wait to see your birthday pictures. Your precious smile brings tears to my eyes. My beautiful Ashley has not smiled in over a year and I miss her smile so much! Your story is such an inspiration to our family and we pray that your family gets the best news possible when you go to Duke this weekend. Good Luck!!

Cindy, David & Ashley Cooper
www.caringbridge.com/wi/ashleysjournal
Cindy Cooper <cadcooper@aol.com>
Sun Prairie , WI - Wednesday, October 31, 2001 at 09:13 PM (CST)

---

Tanys: all is great in here and yes will pray for you all. Thank you for the updates and I pray Gods blessings on you ....I know how hard it is to be with out money for sure. May God bless you richly hon.....always
Gail Skaggs <russell4ever@yahoo.com>
Hillsboro, , Ky USA - Tuesday, October 30, 2001 at 07:45 PM (CST)

---

Things sound good except the job thing! We will pray for that area stronger! I hope to see you when you are here in Durham. Where are you staying? Let me know and I will come and see you. You should have the chance to meet Leandra and Ryan(who is just starting this week). I hope to hear from you. God Bless, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Tuesday, October 30, 2001 at 07:39 PM (CST)

---

Jeremy is just astounding! I am so happy that he shared in his grandmother's joy of eating cake any way he wanted to, afterall it was HIS birthday! I am so thrilled that Adam is going on this big adventure with you and that you are taking the plunge and going through DC for him. We have to do a balancing act with these kids to make sure they benefit when their brothers or sisters are taking up so much of their parents energy! I am really worried about Randy and the job? Have you thought about doing any fundraisers? Micki and I can help you with some ideas? Let us know................when are you returning from your trip. I will call you, let me know!
Love and hugs, anne rugari and Jeremy's pal, Gina
- Tuesday, October 30, 2001 at 11:43 AM (CST)

---

Hi

What great news about Jeremy! Our prayers will continue for Jeremy and your family and friends. So, Jeremy's now a morning baby, up and running early. GOOD LUCK- GOD BLESS YOU!!!!!!!!! WE look forward to your return and the good news about Jeremy's test results. ARe you going to be meeting up with any of the other K families while you are down there? I'm sure they would all love to see Jeremy as he is inspirational. I sure hope you have a wonderful time in DC, it is such a beautiful and moving city. I am hopeful to go there sometime soon myself. So much history and reverence.

I'm really excited to see the new photos of Jeremy, as always. Thanks for letting me know about the update. Thanks for taking the time when you get a chance to update us about Jeremy, it means so much to so many of us.

Love, Peace and Prayers,
micki
Micki GartZke
GodBlessJeremyThoms, - Tuesday, October 30, 2001 at 09:23 AM (CST)

---

I am very happy to read this! Jeremy sounds like a typical 1-yr old. Happy Birthday, Jeremy. I hope it was a wonderful day full of baby mischief and birthday cake! I hope all goes well in November and that you have a nice time in D.C. Take care. Hey, how about some new pictures?
Judy Fletschock <judith.l.fletschock@xcelenergy.com>
Eau Claire, WI USA - Monday, October 22, 2001 at 10:38 AM (CDT)

---

I just stumbled on this, I'm 11 years old and devastated by this. I wish him a perfect birthday and the best of life!
Tobias Sanchez
Annapolis, MD USA - Saturday, October 20, 2001 at 08:51 PM (CDT)

---

I just stumbled on this, I'm 11 years old and devastated by this. I wish him a perfect birthday and the best of life!
Tobias Sanchez
Annapolis, MD USA - Saturday, October 20, 2001 at 08:51 PM (CDT)

---

Happy Birthday Big Guy! I am so thrilled to know all of you and especially to be sending these big birthday Wishes!

I wish that all Krabbe kids could have the same chance as Jeremy did! Gina is blowing him kisses and hugs on this very special day.

Hope he ate lots of cake and ice cream. Gina ate ice cream for desert tonight in celebration of Jeremy's birthday.

Have fun birthday boy!

The Rugari's
Edgewoodq, KY - Friday, October 19, 2001 at 06:47 PM (CDT)

---

Just wanted to wish Jeremy a happy 1st birthday! Very glad to hear things are better for him.
love, Carol Cross
carol cross <carolkcross@hotmail.com>
st. louis, mo - Friday, October 19, 2001 at 03:40 PM (CDT)

---

Happy, Happy 1st Birthday Jeromy!
may this be the first of many, many!!
Cathy Wachtstetter <skugalskid@aol.com>
Ft Laud Fla, - Friday, October 19, 2001 at 02:52 PM (CDT)

---

H A P P Y 1st B I R T H D A Y J E R E M Y!!!!!!!!!!!!

WE sure hope you have lots and lots of fun on your BIG 1st birthday. We look forward to hearing about it!!!!!!!!!!

Lots of love and hugs,
your pal, Micki
Micki
GodBlessJeremy - Friday, October 19, 2001 at 11:48 AM (CDT)

---

Jeremy, you sure are an amazing guy! I am so excited about all of your wonderful progress! Way to go, keep mom on her toes!
Good Luck with your trip to Duke and your one year studies, you have made a huge milestone mark! Can't wait till you and Gina can have some play time together. Hopefully it will be at the symposium next year!

Anne Rugari
Edgewood, KY - Tuesday, October 16, 2001 at 08:44 PM (CDT)

---

Happy Birthday Jeremy!!! Wow, seems like longer than a year somehow. I'm so glad to hear he is doing well. We missed you this weekend. Y'all take care of yourselves.
Karyn & David <karyn@spence.com>
Lyons, CO USA - Monday, October 15, 2001 at 10:58 PM (CDT)

---

What a wonderful update! Thank you for sharing all JEremy's good news with us. THis provides such tremendous hope for so many. What an inspiration Jeremy is. Your days sound very full of normal toddler activities, how fun AND EXHAUSTING.

Gosh, happpy happy birthday to Jeremy at the end of the week. HIs birthday is close to my LeA's. HEr birthday was yesterday, she would've been 5. It is so good to see your Jeremy doing so well. I can't wait til I can come up and meet you guys sometime. How far away are you from Black River Falls? I have a cousin that lives there, maybe I could make a combined adventure? Good luck on your trip to Duke!

Jut wanted you to know I was checking in on you all and very much appreciate the time you take to share with us Jeremy's life, it is truly a gift.

Love Micki
Micki GArtzke <gartzke@bubblers.com>
Shorewood, WI GodBlessJeremy - Monday, October 15, 2001 at 12:27 PM (CDT)

---

Just thought I would check in on Jeremy and see you just updated today. I am glad to hear things are going good. What a blessing! We will keep you in our daily prayers for continued good health and for your upcoming trip to Duke and DC. It has to be so awesome to watch Jeremy do all the things you watched Adam do. God Bless you all, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Monday, October 15, 2001 at 07:07 AM (CDT)

---

I USED TO WORK WITH RANDY, GLAD THAT EVERYTHING IS GOING GOOD. YOUR FAMILY IS IN MY PRAYERS.
SANDY ROEHM <SANDYROEHM@AOL.COM>
EAU CLAIRE, WI USA - Friday, September 28, 2001 at 06:47 AM (CDT)

---

Just wanted you to know I am thinking of you and little Jeremy and am praying for God to bring him through this quickly.
love, Carol Cross
carol cross
- Wednesday, September 26, 2001 at 03:09 PM (CDT)

---

Sorry to hear of these trials you are still facing. I hope things smooth over for you and Jeremy. We check his website often. Prayers are coming your way.
God Bless, Kelly
Kelly Sroczyk <Kellysue@mindspring.com>
Durham, NC - Friday, September 21, 2001 at 08:11 AM (CDT)

---

We will continue to say prayers for sweet Jeremy as he goes through this bump in the road. Thank you for taking the time to update us with your latest news. Please give Jeremy a kiss and hug from his friend Micki, thanks.

Peace to you all my friends,
xoxo Micki
micki gartzke <gartzke@bubblers.com>
shorewood, wi, GodBlessAmerica - Thursday, September 20, 2001 at 08:51 PM (CDT)

---

Wow! What an experience little Jeremy gave you! I am so very glad that there was nothing more serious going on. I know how hard it is not to let a little worry blow up into a huge fear! I think of your family often and really hope you will be able to come to the HH symposium next year. How wonderful to see all of our children together. Laura continues to do well also (she is now over 2 years out of transplant). Thanks for updating your website - there are many of us out here who love to hear how things are going for your little guy!
God's blessings to you and all of your family - love, carol Cross
www.caringbridge.com/mo/lauranews
carol cross <carolkcross@hotmail.com>
st. louis, mo - Tuesday, September 11, 2001 at 09:50 PM (CDT)

---

Thank God everything worked out. You are in everyone's prayers.
Lynn Smith <dlsmith4122@yahoo.com>
Annapolis, MD - Friday, August 31, 2001 at 09:30 AM (CDT)

---

Tanys,

So glad to hear things perked back up for Jeremy!!!!!!! He is one strong fightin' little cowboy. Good to hear that he wasn't gonna let some buckin' bronco of a virus knock him down for long. BIG WEEK, just like you said. I hope you all are catching up on some rest.

This scary episode brings a couple of questions to my mind? Do you stay in close contact with Dr. Kurtzberg, Jeremy's transplant doctor, even though you are seeing Dr. PEters up in MN? And why do they take out the central line when there is such a chance of needing access for future draws, etc? Maybe you could let me know if you get a chance, I know you are super busy, so I totally understand if you don't get the chance.

I can clarify for you how the interview happened. Hunter's Hope sent out news releases to the tv stations in the local cities where Krabbes transplant children live. Then your tv station talked to Hunter's Hope and received your contact information so they could call you and do Jeremy's interview. We are all most interested to see the interview.

Got to go, I am babysitting for my little 2 yr-old friend, Anna this am for a few hours. Must get dressed and put on my running shoes to keep up with her.

Lots and lots of continued prayers and love,
(((((((((((GREAT BIG HUGS))))))))))))
Micki
micki gartzke <gartzke@bubblers.com>
shorewood, WI USA - Tuesday, August 28, 2001 at 08:26 AM (CDT)

---

Hi all...I admire all of your strength! Jeremy sounds like he is quite the trooper. Keep moving forward with your faith and with God as your guide. My prayers are with you that Jeremy continues to improve. Say hi to Adam and give Jeremy a big hug for us. He is such a sweetie!
Judy Fletschock <judith.l.fletschock@xcelenergy.com>
Eau Claire, WI - Tuesday, August 28, 2001 at 08:20 AM (CDT)

---

Glad to hear that Jeremy is doing well.I hope that you will be able to go to the symposium next year. I also have a 12 year old son and he is looking foward to going again next year. It really is a good experience for the children.
take care
Grace Caruso <Gcar314@aol.com>
Brooklyn, NY - Monday, August 27, 2001 at 10:05 PM (CDT)

---

So glad to hear that Jeremy is doing so well. His picture is adorable. I have just entered a message on Leandra's website. She has just begun her transplant process at Duke and it is so encouraging to other Krabbe families to know that babies like Jeremy and Gina Rugari are doing great after transplant. My prayers continue to be with you and your family. It would be wonderful if you can go to next year's symposium. I know Anne and Gina had a great time.
Kathy Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Wednesday, August 15, 2001 at 08:11 PM (CDT)

---

HI,

Everything sounds like it going so well for you guys, such good news! HEy next time you come to Milwaukee you should let us know, we live in Milwaukee and would love to meet up with you however it would be convenient for you!!!!!

I will keep praying that all continues to go so well for Jeremy. And we certainly will ask in our prayers that you all can come to the symposium next year, it is an absolutely incredible experience.

Thanks for the update we really appreciate you keeping us so closely informed of Jeremy's wonderful progress!

Take care, hugs and kisses to y'all,
Micki
Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Friday, August 10, 2001 at 10:23 PM (CDT)

---

Sounds like good news all around! I hope you get all good reports from Dr. Peters. I will look for an update on Jeremy's weight, hope it is up too. We will keep your husband and family in our continued prayers. A job outside in this heat is a lot to endure. Please remember that you are never far from thought or prayer. The Hunter's Hope Medical Symposiusm was wonderful, hope you all can come next year and show everyone Jeremy! Take Care.
God Bless, Kelly
Kelly Sroczyk <Kellysue@mindspring.com>
Durham, NC - Monday, July 16, 2001 at 10:57 AM (CDT)

---

Dear Thoms Family!
Such great news from Eau Claire! We sure did talk about how well Jeremy is doing at the Hunter's Hope Medical Symposium. We can't wait until you are there with us and Jeremy is playing with all the kids! It was so wonderful for us to see Laura and Dalton and Joseph. These transplant children are giving so much hope for the future of other Krabbe kids. I will have to send you a separate email to tell you all about it. Jeremy looks absolutely terrific in his photo! So big and growing quickly. What a little miracle he is! Can't wait until we hear about his weight and check up with Dr. Peters! Let me know! Take care and enjoy your life, I know that every day it gets a little easier and easier. Much love to you and all your boys!

Anne Rugari
Edgewoodq, KY - Monday, July 16, 2001 at 09:19 AM (CDT)

---

Greetings, my friends. Each and every day, Timmy and I look at the smiling pictures of Jeremy and his mom and feel so blessed. Praise God for miracles and modern medicine and technology! Praise God for the sunshine today, and for the flowers and bugs and fresh air! Timothy is into bugs these days. Timmy says hugs and love to Jeremy. BJ
Bobbi Jo Toy Schwagel <toycomm@wwt.net>
Eau Claire, WI USA - Monday, July 16, 2001 at 07:01 AM (CDT)

---

Really glad that job came through. Everyone's prayers worked as we new it would. Take care all of you!
Lynn Smith <dlsmith@starpower.net>
Annapolis, MD usa - Monday, July 09, 2001 at 06:07 AM (CDT)

---

I am so glad all is well with you and Jeremy and Randy and I knew the Lord would provide hon. He is so good to us and I am praising him for it all. Thanks for the updates and for the faith it has increased in you. Love Gail
Gail Skaggs <russell4ever@yahoo.com>
Hillsboro, Ky USA - Saturday, July 07, 2001 at 08:31 PM (CDT)

---

Yeah!!! for Jeremy!! I'm soo happy he's doing so well. Randy--good luck. I'll be praying for that job for you....Congrats to your folks, too. Tanys, hope to see you in a few months.
Karyn <karyn@spence.com>
Lyons, CO USA - Sunday, June 24, 2001 at 09:04 PM (CDT)

---

I had a niece named Haley Nicole Freeman who passed away in April of 1998. I am a registered nurse now living in Phoenix and have never forgotten what my family went through due to this disease. I wish all of the families best wishes and strength in caring for their children.

Nan Freeman <charlesswallin@aol.com>
Phoenix, az USA - Friday, June 22, 2001 at 07:40 PM (CDT)

---

I'm glad you are all doing so well. I was in Kentucky visiting the Rugari's last month and couldn't help but think of you. I'm praying that job offer is just around the corner.
Lynn Smith <dlsmith4122@starpower.net>
Annapolis, MD usa - Tuesday, June 19, 2001 at 06:24 AM (CDT)

---

Thanks for writing and keeping us updated our Jeremy's progress. It sounds like everything is going well for you all. We are keeping you all in our prayers. Sorry it's been awhile since I've written or called you. You know how the summers are for us--very busy! Now even more busier since we're building a house--yes we found land (10 acres) out in the country towards Colfax, but still in the Elk Mound school district. Well, talk to ya later.
Love, Jess,Dale and Alyssa Lauer
Jessica Lauer <lauerdj@hotmail.com>
- Sunday, June 17, 2001 at 07:44 PM (CDT)

---

I am so very happy to hear of Jeremy's progress! He is such a cutie-pie too!!!! When Laura hit about 9 months post transplant - things seemed to kick in for her too. She started gaining strength and started "talking" more too. I am following your journey with understanding and joy and such hope for Jeremy's future - I do hope we can meet and have the little ones (Laura, Gina, and Jeremy) do a photo shoot!!!! I don't think I could possibly take enough pictures! God bless your family and give you strength for each new day. -Carol Cross
carol cross <carolkcross@hotmail.com>
st. louis, mo - Saturday, June 09, 2001 at 09:29 PM (CDT)

---

How wonderful to see Jeremy doing wo well. You are in our continued prayers. Randy, the Lord has the right job for you. Love in Him,
Pastor John and Joanie
Philippians 1:6
Joh and Joanie Vincent <jvincent@csinet.net>
LaPorte, IN - Saturday, June 09, 2001 at 02:30 PM (CDT)

---

Dear Randy and Tanys,

Thank you so much for getting everyone updated on Jeremy ~ he is so amazing and strong. The article about Jeremy was beautiful ~ what a gift he truly is. We continue to keep you all in our deepest thoughts and prayers. Please give that sweet Jeremy lots of hugs and kisses from all of us here at Hunter's Hope!!!!
Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY - Friday, June 08, 2001 at 01:37 PM (CDT)

---

Dear Randy, Tanys & family, Thank you so much for letting us know about Jeremy's progress. We are SO HAPPY for you!! We will continue to watch for updates and pray for only the best for all of you. The newest picture of Jeremy is wonderful--what a cutie!! The newspaper article was so well done and very touching. Thanks for sharing it.
Also, we apologize for not getting back to you after you e-mailed us a few weeks ago. We will try to be in touch soon. If you get a chance to check out Ashley's website, it is www.caringbridge.com/wi/ashleysjournal
God Bless,
David, Cindy & Ashley Cooper


Cindy Cooper <cadcooper@aol.com>
Sun Prairie , WI - Thursday, June 07, 2001 at 09:54 PM (CDT)

---

HI GUYS WHAT A GREAT UPDATE. I REALLY ENJOYED THE ARTICLE THAT YOU INCLUDED. IT WAS VERY TOUCHING. I MISS YOU ALL SO MUCH. I GET A LITTLE JEALOUS HEARING ALL THE GOOD NEWS AND NOT BEING ABLE TO BE THERE WITH YOU TO SHARE IN IT. I AM SO HAPPY FOR YOU ALL AND LITTLE JEREMY - HE HAS COME A LONG WAY AND DOING A SPECTACUALR JOB. I CAN'T IMAGINE HIM WIEGHING ALMOST 14 LBS - SOUNDS LIKE HE IS FITTING RIGHT IN WITH THE OTHER THOMS MEN - BIG EATERS. I THINK OF YOU OFTEN AND KEEPING YOU IN OUR PRAYERS. GIVE THE LITTLE FELLOW A HUG FROM HIS BEST BUDDY. MISS YOU ALL AND TALK TO YOU SOON.
HEIDI <teandhe137@earthlink.net>
LEASBURG, NC - Thursday, June 07, 2001 at 06:18 PM (CDT)

---

Hi to everyone,

You are so cute to say, excuses, excuses! WE are the lucky ones, lucky that you find the time when you have some available to write a journal update sharing the ongoing miracle of Jeremy's life!!!!! I loved the article you posted in the photo section! Thank you ever so much for sharing that with us here! I was already awash in tears of joy reading through your journal entry, but then when I read the newspaper article, an even more powerful swoosh of emotion swept through me, it was as if my soul opened right up and all the faith I have burst out. I can just feel how right everything is going for Jeremy. I am so happy for your family that you are all receiving this wonderful gift of Jeremy's great progress in life. 13.10 lbs, is he on the super grow diet? Good boy!! Sitting up, with two teeth, WOW! Sounds like in a couple of weeks he'll be rolling all around the house, can't wait to hear.

Keep up the good work! You're all doing great! We will keep your family in our prayers, everything will come together I just know it will.

Much LUV and best wishes
your pal, Micki





Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Thursday, June 07, 2001 at 06:01 PM (CDT)

---

We are so glad that things are going well with Jeremy. The rest will fall into place, I am sure!! Love you all very much and pray for you every day. Hugs, SUZAN and JERRY
Suzan and Jerry Weisser <suzt@webtv.net>
chippewa falls, wi usa - Thursday, June 07, 2001 at 03:00 PM (CDT)

---

Hi there~ I am a friend of the Rugari's. Eventhough we do not know eachother I wanted to let you know that I will keep you and your family in my thoughts and prayers!
Kelley O'Hara <Kohara@bgnet.bgsu.edu>
- Wednesday, June 06, 2001 at 03:23 PM (CDT)

---

So you did have the baby...another baby boy! Congratulations! It sounds like God is using you both to reach out to others and to trust Him for what the future holds for little Jeremy. I'm looking forward to looking at the web page further, to see a picture, and would love to be updated as to how all is going. You are in our prayers!
Erich & Kathy Halberg <EKHalberg@Juno.com>
Circle Pines, MN USA - Monday, May 28, 2001 at 10:16 PM (CDT)

---

So Great to hear your Good News!
Keep up the good work.
Cant believe how BIG your getting.
Now the lines are out so get ready for summer!

Cathy Wachtstetter <Skugalskid@aol.com>
Ft Lauderdale , Fl - Wednesday, May 23, 2001 at 11:22 PM (CDT)

---

Glad to hear all is going well and you are getting settled back into your home life. Jeremy remains in my prayers. Hope to read another GREAT update soon!
God's Blessings, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Tuesday, May 22, 2001 at 10:18 PM (CDT)

---

I am glad to know that Jeremy is doing well. Thank you for sharing his story. I lost my son Anthony Peter to Krabbes in 1976 and it helps to know that there is hope for the future. I will keep your family in my prayers because I know that it is not easy. May God bless you all. I send hugs & kisses to Jeremy.

Sincerely ,

Grace Caruso <Gcar314@aol.com>
Brooklyn, NY, NY usa - Sunday, May 20, 2001 at 11:33 PM (CDT)

---

HI GUYS-HOW IS MY LITTLE GUY DOING? GROWING BIG AND STRONG I HOPE. THE WALK WAS A VERY BIG SUCCESS - WE RAISED 39,852.00 FOR THE DUKE PBMT FAMILY SUPPORT PROGRAM. IT WAS A LOT OF FUN AND HARD WORK. DID YOU GET MY BALLOON? THERE ARE 2 OF THEM OUT THERE WITH JEREMY'S NAME ON THEM. I HAVE BEEN MATCHED AGAIN - PLEASE PRAY FOR ANDREW AND HIS FAMILY. THEY ARE ALSO CHRISTIANS - GOD IS GREAT! CHECK WITH YOU ALL LATER - PLEASE GIVE MY LITTLE GUY A GREAT BIG BEAR HUG FROM HIS BEST BUDDY. ---HEIDI
HEIDI EPLING
LEASBURG, NC - Monday, May 14, 2001 at 10:02 AM (CDT)

---

HI!!!!!!!

Thanks for the new update. More good news. 6 mos and going strong-go Jeremy go. Heard the good news on the 9.2 RBC. Way to go!!!!!! WE think of you everyday and you remain in our prayers.

GREAT BIG HUGS AND KISSES all around,
LUV, your pal,
Micki Gartzke

P.S. JEremy, keep up the good work, you're doing great!
Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Thursday, May 03, 2001 at 08:24 PM (CDT)

---

I AM THE GREAT AUNT OF CHANDLER MICHAEL RANEY.
CHERYLE CREECH <RCBCREECH@CS.COM>
SOMERSET, KY USA - Tuesday, May 01, 2001 at 10:13 PM (CDT)

---

Yeah, an update! You are keeping us on pins and needles all the time! We love to hear how Jeremy is doing and how you and your family are surviving post transplant life. What great news about the lines and no port! How will they get his blood each month? Anyhow you guys will figure it all out. Your life will get more and more normal once you aren't doing all those dressing changes and cap changes. You will be amazed at how much more time you have......you can update the site more!!!!!
I am so thrilled that all is going well for you! Take care and Gina sends big hugs to Jeremy.
Anne Rugari
Edgewood, KY - Tuesday, May 01, 2001 at 09:16 PM (CDT)

---

Thanks for writing in your journal again. I wish the best for your entire family, we are all thinking and praying for you guys. Remember God will never give you anything you can't handle-----everything is in his hands!!
Jessica Lauer <lauerdj@hotmail.com>
- Tuesday, May 01, 2001 at 06:47 PM (CDT)

---

HI GUYS- AT MY AUNT'S HOUSE AGAIN AND I HAVE BEEN SURFING THE NET ALL DAY LOOKING AT CHRISTIAN ADOPTION AGENCIES. PLEASE PRAY FOR US IN THIS ENDEAVOR. IT IS SO GREAT TO HEAR
JEREMY IS DOING SO WELL - I CANT IMAGINE HIM AT 11LBS 14 OZ.
MY LITTLE GUY IS GROWING UP! I WILL CONTINUE TO PRAY FOR HIM AND YOUR FAMILY. GOD IS GOOD - ALL THE TIME. REMEMBER THE WALK AND I WILL LET YOU KNOW HOW IT WENT. WATCH FOR OUR BALLOON. TALK WITH YOU LATER. LOVE YA LOTS. GIVE MY LITTLE BUDDY A BEAR HUG FROM ME. MISS YOU GUYS. HEIDI
HEIDI EPLING
LEASBURG, NC - Tuesday, May 01, 2001 at 02:28 PM (CDT)

---

Dear Jeremy,

What a wonderful update (it is about time ~ we think of you all the time!!!)!! We are so happy to hear that everything is going so well. We will continue to keep you and your family in our thoughts and prayers. We send you lots of hugs and kisses!!!
Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY - Monday, April 30, 2001 at 09:34 AM (CDT)

---

HI GUYS,
BOY DO I MISS YOU GUYS. I RECEIVED THE PACKAGE YOU SENT THE OTHER DAY - I WAS SO EXCITED TO HEAR FROM YOU. THE PICTURES WERE AWESOME!! I MISS THAT LITTLE GUY TERRIBLY. WHAT A AWESOME LITTLE BOY. I AM SO GLAD TO HEAR HE IS GAINING WEIGHT AND DOING MORE BABY THINGS. I WILL BE WALKING IN THE FIRST ANNUAL RAINBOW OF HEROS WALK THIS SATURDAY - MAY 5 FOR THE DUKE PBMT AND I WILL BE WALKING IN HONOR OF JEREMY - WATCH FOR THE BALLOON I SEND OFF WITH A MESSAGE TO MY LITTLE BUDDY. I WILL ALSO BE PUTTING O PICTURE OF THE LITTLE GUY ON THE HEROS WALL. PRAY FOR THIS GREAT FUNDRAISING EVENT. WELL GOTTA GO - THINK OF YOU OFTEN. I WILL BE PRAYING FOR THE FAMILY. LOVE - HEIDI "BEST BUDDY"

HEIDI EPLING
LEASBURG, NC - Saturday, April 28, 2001 at 05:38 PM (CDT)

---

I hope and pray that things are continuing to go really well with Jeremy. You both and Jeremy have been in my prayers daily.
God's Blessings, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Sunday, April 22, 2001 at 05:13 PM (CDT)

---

GOD bless you all you are in my prayers
judy rhinehart <alexjudy@alltel.net>
ellington, ny chautuaqua - Sunday, April 22, 2001 at 08:57 AM (CDT)

---

- Saturday, April 21, 2001 at 09:52 PM (CDT)

---

Thank you for sharing such good news with all of us. You bring joy to many with Jeremy's progress. We will continue to pray for many red blood cells. And make sure the docs don't take any more than they have to. Tell them "don't be so greedy"

Anyways, just was thrilled to see a new update. Thank you for sharing. I already knew Jeremy was doing well as Anne Rugari told me of your recent chat. Go Jeremy go.

May you "weeeee" til your heart's content.

Much Love, Micki Gartzke
Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Sunday, April 08, 2001 at 09:50 PM (CDT)

---

Dear Randy, Tanys & family: We are so happy to hear Jeremy is home! We pray that he continues to make progress and remain healthy. We are also from Wisconsin. We live near Madison (our address is Sun Prairie). Our daughter Ashley was diagnosed with Krabbe disease in November at 6 months of age. She is doing as well as can be expected, but will not be having a transplant. We will continue to pray for your precious little Jeremy and for the rest of his family. Thanks for sharing Jeremy's story.
David & Cindy Cooper <cadcooper@aol.com>
Sun Prairie, WI - Sunday, April 08, 2001 at 07:52 PM (CDT)

---

Dear Jeremy,

It is so great to see an update on you!!! We are so happy that you are doing so well ~ actually you are doing super!!! We wish you lots of love and we hope that you continue to do so wonderful. We look forward to your next update. Lots of hugs and kisses to you!!!

Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY - Friday, April 06, 2001 at 09:49 AM (CDT)

---

Dear Randy and Tanys,
What wonderful news from your most recent update! Our soveriegn, powerful God and tender caring Shepherd loves you all so very much (Isaiah 40:10-11). You are all in our prayers and thoughts.
Love in Jesus,
Pastor John and Joanie
Philippians 1:6
John and Joanie Vincent <jvincent@csinet.net>
LaPorte, IN USA - Thursday, April 05, 2001 at 09:10 PM (CDT)

---

GREAT NEWS! Keep it up! You sound so much more
relaxed and happy. Its so good to hear good things.
Your family deserves to be together again. Enjoy
being with your boys and we'll keep checking up
on you all.Have a nice Easter!
Cathy Wachtstetter <Skugalskid@aol.com>
Ft Lauderdale, Fla - Thursday, April 05, 2001 at 06:35 PM (CDT)

---

Tanys,

Lisa Killinger sent me your link as a Prayer request January 4th. I have been checking in periodically and was going through may prayer list and decided to check on Jeremys progress. Praise God! That you are now home as a family at long last and that Jeremy continues to thrive and grow strong.May our precious Lord continue to pour his Blessings out upon Jeremy and your entire family!!! In Jesus Precious Name we ask this. Amen.
Kathy White
Eau Claire, WI 54701 - Monday, March 26, 2001 at 11:11 AM (CST)

---

Glad to hear you are back!
Cindy Rasmussen <RasmusHass@aol.com>
Eau Claire, WI USA - Friday, March 16, 2001 at 08:22 PM (CST)

---

Glad to hear you are home and all together as it should be. I will keep checking in to see what great progress little Jeremy is making. Thanks for allowing us to hear all about Jeremy.
God's Blessings, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Thursday, March 15, 2001 at 10:34 PM (CST)

---

Safely home! What wonderful news to read of your l o n g-awaited return home. Thank you for taking the time, to share with all of us who check in on Jeremy's site regularly, to let us know about your first couple of days back. Sounds like it must feel good! I just read Anne and Carol's messages, they have stood in the same shoes you are now wearing, and their messages sound so encouraging. I hope that provides you with some additional post-transplant happy hopefulness. Well, please give little Jeremy a BIG kiss and hug from his friend, Micki. Looking forward to returning often to check in. Glad to hear about Jeremy and his "happy normal self" and I will say many prayers for lots and lots of Happy Naps. May you experience peaceful strength as you, Jeremy and your whole family continue on. See ya 'round, Micki Gartzke
Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Wednesday, March 14, 2001 at 08:42 AM (CST)

---

The day finally has come! You are united as a family again. What a wonderful reunion it must have been for all of you. I can feel the tingles as I rejoice in your bonding once again. The next phase of transplant life will be different. There will be more adjustments to make and a little different change of pace in your lifestyle. It will become routine and normal to you. Little by little the medical supplies will disappear and then one day there will be none.
I am so happy for your family and I am hopeful that all will continue to go well with Jeremy. Please keep us updated as we will all be anxious to hear about his progress.

Anne Rugari
Edgewood, KY - Tuesday, March 13, 2001 at 09:57 AM (CST)

---

I am so thankful to hear that you are safe at home. I check in often at Jeremy's site and rejoice with you on all of his progress. God bless you and give you strength and peace for this next period of post-transplant life!
Carol, Laura's mom
carol cross <carolkcross@hotmail.com>
st. louis, mo - Monday, March 12, 2001 at 09:08 PM (CST)

---

Dear Tanys, Randy, Adam, & Jeremy,
We are so happy to hear that you all made it home and that Jeremy is doing well!! You all must be overjoyed to be together again!! We will keep you in our thoughts and prayers and hope that Jeremy will continue to do wonderful!! We send lots of hugs and kisses!!
Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY - Monday, March 12, 2001 at 10:09 AM (CST)

---

Glad to hear the trip home was uneventful. Before long your time spent in North Carolina will be a distant memory. God bless and good luck.
Lynn Smith <dlsmith4122@starpower.net>
Annapolis, MD 21401 - Monday, March 12, 2001 at 06:16 AM (CST)

---

Hello to all of you, and welcome home to Wisconsin. We are so thankful that you are home. We will pray for you as you go to Minneapolis,tomorrow.Thank you for the update. We have been wondering and praying that you would be able to make it home. It is such wonderful news.May God continue to bless you as you all get to know each other again. Love and prayers to all of you.
Tom Barb and Steve Anderson
Barb Anderson <BAndebel@aol.com>
Eau Claire, WI USA - Sunday, March 11, 2001 at 04:29 PM (CST)

---

hello my name is michelle and i love kids with all my heart and i pray that your son gets well. im really glad that he has gotten better. well best wishes.
michelle pavlik <sweetlips_692002@yahoo.com>
byron, Ga. usa - Thursday, March 01, 2001 at 11:07 AM (CST)

---

Tanys, God go with you as you begin your travels homeward.
Cindy Rasmussen <RasmusHass@aol.com>
Eau Claire, WI USA - Wednesday, February 28, 2001 at 07:11 AM (CST)

---

And, if possible, it would be really great if you could bring some Spring weather back with you. We would all appreciate it!!
Judy Fletschock <Judith.L.Fletschock@xcelenergy.com>
Eau Claire, WI USA - Monday, February 26, 2001 at 08:32 AM (CST)

---

I am very happy for you Tanys, Randy, Adam and Jeremy. I hope and pray things continue to get better for you all...you deserve it! Keep up the faith. We are happy that you are coming home to our ICY, snowy, cold Wisconsin! Take care! Judy, Steve, Jordan, Joshua and Lindsey Fletschock
Judy Fletschock <Judith.L.Fletschock@xcelenergy.com>
Eau Claire, WI USA - Monday, February 26, 2001 at 08:22 AM (CST)

---

100 days Post Transplant WOW!
Congratulations!
Hope the 3 of you will head home in the next few days.
You have come so far. Have a safe trip.
It will be so nice for you all to be together again.
It takes a very special Big Brother to have
his Mom gone for such a long time.
Adam, Its time for you to get to know your
special little brother, and enjoy him.
It has been so nice to follow your progress.
Much Happiness and Good Health to the 4 of you.
Cathy Wachtstetter <Skugalskid@aol.com>
Ft Lauderdale, Fla - Sunday, February 25, 2001 at 04:42 PM (CST)

---

Tanys, You are so close to going home, that must be such a good feeling and a relief. I know it isn't over yet, probably just another stage of it all but you have done so well this far so keep it up. We have thought about you all the whole time, we should be up this summer so we will probably see you all then. Take care. Carmen, John, Kyle and Briana
Carmen Eikenberry <ikecarm@msn.com>
Port Orange, FL USA - Sunday, February 25, 2001 at 04:27 PM (CST)

---

Tanys and Randy, The diagnosis of Krabbes is very, very difficult, as you know too well. It seems incredibly unfair that after all the bad news and the myriad inconvenient situations surrounding health building post transplant, you still need to deal with the financial issues as well. Remember though, that this is just one short time of your life, and that as hard as it is now it *WILL* get better. Your priorities are in order, you are pioneering, and it's not easy doing this just as it is not easy for any pioneer. But it is possible.
If you ever just need to talk, send an email. We know how you feel, and now, 2 1/2 years post transplant, it is easier, and definitely was worth it. Take care, you are fantastic parents.
~Wendy, Julia's mom
Wendy <emtech-journey@ic.net>
Ann Arbor, MI USA - Sunday, February 25, 2001 at 10:32 AM (CST)

---

Blessings and love, Tanys! Looking forward to your return w/ sweet Jeremy. Lifting you in thoughts and prayers, BJ
Bobbi Jo Toy Schwagel <toycomm@win.bright.net>
Eau Claire, WI USA - Sunday, February 25, 2001 at 12:07 AM (CST)

---

Wow! You guys are almost ready to go back home and live together as a family again! You have each done such an amazing job of doing what you have to do to get through this - well done. See you soon I hope, glad I found your website so I can read your updates if I don't see you...

Justine Wayne <wayne002@mc.duke.edu>
Durham, NC - Wednesday, February 21, 2001 at 01:45 PM (CST)

---

It is so wonderful to read your update. We are so happy that soon you all will be together and going home!! Our prayers are with all of you. We admire all of your strength and we are so proud of all of your progress Jeremy!! You are an amazing little guy with a loving and caring family. Take care!!! Lots of hugs and kisses to you!!
Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY - Wednesday, February 21, 2001 at 10:30 AM (CST)

---

What wonderful news to read today on your website. It brought tears of joy to my hopeful eyes. Everything seems to be going in the right direction for Jeremy and your whole family. Thank you for updating your website, I have been looking forward to getting new news. Anne Rugari talked with me the other day and told me that Jeremy was doing great! Jeremy is a winner and he's on his way home, where he belongs, surrounded by the love of all his family, friends and community. I just know in my heart that everything is going to work out just wonderfully for all of you.
GO JEREMY GO!!!!!!!!!
Best wishes,
Micki Gartzke
Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Tuesday, February 20, 2001 at 06:23 PM (CST)

---

I loved your last message, that is what I did and continue to do is find all the positive things that God put into my life because of Krabbes and having David. David may be gone but I still continue to see how God has used my experience with the disease and David. Jeremy is lucky to have such wonderful caring parents. Jeremy is a strong little boy, he too soon will be feeling better and acting just like a baby without krabbes. God Bless you all, if Tanys needs anything let us know.
God Bless, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Sunday, February 11, 2001 at 08:52 AM (CST)

---

Hope things are going as well for you as they are for Gina
We are hoping that you will have all the same good things to report that are being reported on Gina.
These babies are so special and it is such a blessing that
some help is being found to give them a "normal life"

Cathy Wachtstetter <Skugalskid@aol.com>
Ft Lauderdale, Fla - Thursday, February 08, 2001 at 09:59 AM (CST)

---

Blessings and love and Kitty Kisses (from Timothy, of course!) from the wonderful Winter wastelends from Wisconsin. We miss you and are eager for your return home. Praying that it will be soon. Hang in there and know that you are loved. BJ
Bobbi Jo Schwagel <toycomm@win.bright.net>
Eau Claire, WI USA - Tuesday, February 06, 2001 at 11:25 PM (CST)

---

Dear Randy and Tanys,
Thanks so very much for the update. Randy, how your last paragraph blessed my heart! Two verses of God's soveriegn power and His Shepherding kindness are so great-Isaiah 40:10-11. He is holding you all close to His heart!
We love you in the Lord!
Pastor John Vincent
John M. Vincent <jvincent@csinet.net>
LaPorte, IN USA - Friday, February 02, 2001 at 04:21 PM (CST)

---

We are all battling insurance woes. Our company refused to pay for the training necessary for the take home pumps as well as the anesthesia used in Austin's latest spinal tap. Neither my husband nor myself have worked since we came here at the end of November.

But each day I open my eyes in room 5201 and am thankful that Austin's eyes open too. And then, nothing else seems as important.

Bobbi Jean Price <bjbdmars@aol.com>
Durham, NC US - Friday, February 02, 2001 at 12:58 AM (CST)

---

Dear Tanys, I just read Anne's message and want to encourage you also that you will make it through all this and come out a stronger person. I was with Anne and Gina their first week in their apt. and it was all so overwhelming. I was amazed at the degree of responsibility placed on the Mothers of transplant babies after their discharge. You just have to take it one hour at a time and focus on the most important things. Trust and believe that everything falls into place with God's plan even through the worst of it all. I know my life has been changed for the better by my personal experiences with Gina and her family. On a return trip to the apt. before Anne and Gina finally went home to Kentucky, Anne was so anxious to go home and the waiting was unbearable. Now that it has been one year since Gina's transplant it is much clearer to look back at the miracle of her life and see all the ways that one precious child has touched and changed the lives of so many. I pray that when you need comfort and encouragement that you will remember everyone's words and trust and believe. Miracles happen and Jeremy is another of God's miracle Krabbe babies.
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Wednesday, January 31, 2001 at 07:33 PM (CST)

---

Dear Randy,
Okay, now listen, there is so much to be thankful for and you hit the nail on the head. Your main focus needs to be on Adam, Jeremy, Tanys and yourself, everything else will fall into place. Call Dr. Kurtzberg at Duke and she can have someone handle most of the insurance issues. As far as getting docs set up, Dr. Kurtzberg can handle that as well. You need to dump some of this back into their laps, they are more than willing to help if they are aware that there are struggles. You must take one day at a time and look for the positives of each day. I know how hard it is without Tanys, but before you know it she and Jeremy will be home and your family will be complete again. Trust me, in just a few short months you will forget about a lot of the problems. Gina is on her way back to Duke again for her one year studies. Can you believe it was already three months ago that we met! Time has flown by and you will be saying these same words very soon. I really think that your job's changes are preparing you for something different and better. I think, too, spring will soon be here and you will be finishing off some of those projects. We have no control, God has all the control. Let him help you.
Please take care of yourself and please, keep updating the journal. It is wonderful to hear from you and you will be happy that you made journal entries. There are a bunch of Krabbe families that want to follow the site and check up on Jeremy. He is encouragement for other families who have suffered the loss of a child from Krabbes. You and your family will inspire many people through your experience. Trust me, it will be very rewarding. Maybe Adam can update the journal sometime and tell us about what he is doing.
Take care and I will see Tanys and Jeremy next week at Duke. Until then, Take care.

Anne Rugari
Edgewood, KY - Tuesday, January 30, 2001 at 09:05 PM (CST)

---

We sure hope this message finds you with a few moments of peace and comfort amongst all the difficult times you are encountering. WE will continue to say prayers for you and Jeremy. Jeremy is a fighter and such a beautiful little boy. I just loved the sparkle in his eyes in the Santa outfit. You journal sounds like times have been tough, but you are hanging in there. Good for you. One day at a time, and before you know it you will be back here in chilly Wisconsin. Please give Jeremy a kiss and a hug from his friend, Micki in Wisconsin.
Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Tuesday, January 30, 2001 at 08:48 PM (CST)

---

Dear Rick, Tanys, and Jeremy,
Our prayers are with all of you during this time. We hope Jeremy gets better very soon and he will beat the CMV virus. Hang in there and know that we will continue to pray that the days will get better. Take care and we wish you all the best.
Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY - Tuesday, January 30, 2001 at 12:22 PM (CST)

---

Our prayers go out to you. The little angel that my mom watches that has Krabbes diease is doing well and we hope the soon Jeremy will be doing well.
Cassandra <calliekellie@hotmail.com>
Madison, Wi USA - Monday, January 29, 2001 at 09:04 PM (CST)

---

Hello Tanys and Jeremy Allen, I am sorry it took so long to write, but I just got the address from Brad Brovan. I hear Jeremy is pulling through. That is wonderful. You definately have angels watching over him and your family. He will be the 2nd miracle that this family has experienced. I'm sure it is tough for you to be so far away from Randy, Adam and your home. I don't know how you do it. You will be rewarded some day for your strength. Amanda, Amy and Jeremy say hello. Well take care and we hope you are all together soon. Our prayers are with you. God Bless you all. The Grnos
Lynn & Rick Grno <Grno5@aol.com>
Ocala , Fl USA - Thursday, January 25, 2001 at 07:25 PM (CST)

---

hi guys, i am at my aunt's house and thought i would surprise you with a little entry to say i am thinking of you and pray for you often. it has been a great pleasure to be jeremy's best buddy. what a privledge to be able to be involved with a very special little boy and his family. you all are very close to ny heart. see you soon.
love, "best buddy" heidi
HEIDI EPLING
- Saturday, January 20, 2001 at 06:33 AM (CST)

---

Dear Jeremy,

Our thoughts and prayers are with you. We love reading about you and all of your achievements. You are a very strong little boy and we wish you all the best. We hope you continue to do well as we will keep you in our hearts and prayers.
Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY - Monday, January 15, 2001 at 11:35 AM (CST)

---

I hope Jeremy continues to do well. We continue to remember him and you in our prayers. Let me know if there is anything I can do for you.
God Bless, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Sunday, January 14, 2001 at 09:11 PM (CST)

---

Dear Tanys,
It is so good and encouraging to hear that the lab tests are continually getting stronger, just like Jeremy. I know it seems like a long time for those 50 days but when it comes you'll just wonder where all the time went. I can't believe my cousin Gina is one year old and soon one year post transplant. I know this time next year will be Jeremy's celebration. Hang in there Tanys and let each day come and go one at a time, believe me it is easier said than done but I know you can do it. Please know that you and your family are in my prayers.
Stay strong and keep smiling, just like Jeremy.
Lauren Kersting
Lauren Kersting <laurenkersting@yahoo.com>
Schaumburg, IL USA - Thursday, January 11, 2001 at 05:28 PM (CST)

---

I know this road seems long; but those 50 days will be done before you know it and you will be home. I'm sure Adam misses you terribly. Changing the meds schedule sounds like a good fix. We think of you often and continue to pray for you all.
Lynn Smith <dlsmith4122@starpower.net>
Annapolis, MD USA - Tuesday, January 09, 2001 at 06:50 AM (CST)

---

Hi Tanys... I just wanted to let you know that Gloria Ripley called me tonite to see if I had heard any news on Jeremy. I told her I would go to my friend's house that has the internet & see how everything is going. Seems that
everything is going fairly smoothly considering all that has happened. You have so many supporters & that is so
awesome!!!! Please remember to keep the faith & we love and care for all of you!!! Looking forward to seeing you two soon. Jodi

Jodi Boone
Altoona, WI - Monday, January 08, 2001 at 08:52 PM (CST)

---

I received this as an email prayer request and will lift you and your son in prayer. God is faithful and true. My verse today is Isaiah 26:3 "Thou wilt keep him in perfect peace, whose mind is stayed on thee."
Pete Koenig <pkoenig@encortech.com>
Fall Creek, WI - Monday, January 08, 2001 at 10:36 AM (CST)

---

Dear Tanys,
Good news about the CMV being negative this week! I was so happy to hear the news. I lifted Jeremy up to heaven in prayer in church today and prayed for his continued recovery from the transplant. Keep up your spirits those 50 days may seem long but you are in the best place you can be for Jeremy. Don't think about your job right now, it will all fall into place. I know it will. Your most important job is taking care of Jeremy and yourself right now. When you get home you can worry about "life". The next 50 days are important in keeping healthy for the next part of your journey. I will call soon. Your friend,
Anne Rugari
KY - Sunday, January 07, 2001 at 08:48 PM (CST)

---

Dear Tanys, We hope that you have had time to read the updates on Gina, especially the past few weeks with the celebration of her first birthday. Jan. 29 will be one year since her transplant and our hearts are joyful in knowing that she is doing so well. Keep the faith that your precious Jeremy will also be home soon and that God will work out all the details of your lives. It is awesome how so many lives are touched by the life of one child and each day there is more awareness of Krabbes. Thank you for sharing your family with everyone on the web. We pray that some day there will be prevention of this disease. We continue to follow your updates and pray that your needs will be met. Your friends in Christ's love,
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Sunday, January 07, 2001 at 06:39 PM (CST)

---

Dear Jeremy and Family,
Hi my name is Cassandra Vitense and I am 15 years old and live in Madison, Wisconsin. My mom does inhome daycare and in early October after many test and hospitalizations, we recieved the news that one of the children she takes care of has Krabbes. It has been a struggle for all of us but with the help of all the wonderful sites and yours we have been able to learn about this diease. Some days are trying and there are times when all we can do is sit and cry along with Ashley but knowing that there are other families out there coping right along with us gives us the courage and strenght to go on. We often wonder what our little angel Ashley did to deserve this but we are learning to think of the postive instead of the negative. I watched and learn to feed Ashley when she was on the NG tube and now I have learned how to feed her since she had the stomach feeding tube inserted. Ashley has good days and bad but no longer smiles when she is awake. Every now and then she will smile when she is sleeping and we have been told that she is playing with the angels in heaven that will one day guide her and love her as much as we all do. You are in are prayers and daily thoughts.
With Much Love,
Cassandra Vitense
Cassandra Vitense <calliekellie@hotmail.com>
Madison, Wi USA - Friday, January 05, 2001 at 05:05 PM (CST)

---

Hi, my name is Tami and I work with Randy at American Phoenix. I know that while Randy is away things will be tougher than they have already been and my prayers are with you and your family. I want you to know that I think that Jeremy has been placed with wonderful parents who care very much for him. There are so many parents' who couldn't care less about their children and you should find strength in your love for him and your son Adam. I hope that I can someday offer you and Randy some help, and I wish I could give you more hope. God bless you and your family.
Tami Schara <tschara@webtv.net>
Boyd, WI 54726 - Friday, January 05, 2001 at 02:52 PM (CST)

---

Dear Tanys,
I was so touched by Jeremy's precious face today.My friend Lisa Killinger graced me with your web site. Know that I am praying for you and your family. Our God is so powerful. I think some times we forget that He spoke this world and it's inhabitants into being.He controls the big things in life as well as the small things,like your little Jeremy.His eyes are on you and your family. Continue to glorify God for He is listening. When you get too scared and feel you just can't do what is asked of you,find comfort in this passage from Isaiah 41:10 So do not fear, for I am with you;do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.He loves you,your family as well as His little Jeremy.Trust Him.He will help you. Your sister in Christ, Tammy
Tammy Koenig <tammyk@cvol.net>
Fall Creek, WI USA - Friday, January 05, 2001 at 10:21 AM (CST)

---

Dear Tanys, My name is Sherry, I am Lisa Killinger's mother in law. She has been keeping me updated on the progress of your little angel, Jeremy. I just visited your web site for the first time. I am very pleased to report to you that there are 10 more of your sisters and brothers in Christ who are praying for your whole family. We are a home Bible study group from Colorado Springs. God created every member of your family for only one reason. That reason being to have a personal relationship with each of you. Therefore it will be impossible for him to turn his back on any of you. There will be times when you will feel so isolated and alone that you will think that you just can't possibly get through one more day. These are the times when you will be able to do absolutely nothing but just TRUST that God meant it when he said in Deuteronomy 31:8, "The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged." In all history of mankind, God has never gone back on his word. There is no reason for anyone to think he is about to start doing that now. You just keep picking your feet up, God will continue putting them down in the path he has prepared for you to walk. Being a grandparent myself, I find myself praying fervently for your parents whom are caring for your other little angel, Adam. May God bless you and keep you, Jeremy, Tanys, Randy, Adam, Grandma, and Grandpa. In Christ's love, Sherry :~)
Sherry Killinger <gskskk@qwest.net>
Colorado Springs, CO USA - Thursday, January 04, 2001 at 11:00 PM (CST)

---

Dear Tanys, I can't imagine the emotional stress you must be bearing right now. But God has a plan for you and your little boy. You just can't see it because you are too close to it. By the way, I'm Brenda, Lisa Killinger's aunt. I and my husband had the priviledge of leading Lisa to the Lord. I grew up in the Fall Creek area and went to school there all my life. I became a Christian almost nine years ago and now I'm a pastor's wife. I'ts amazing what God can do with us.
I principal our small Church/school and ever since I heard of your suffering we at the school have been praying for you and your family. Lisa has kept me updated up til now. I just read a passage in Luke this past week when Jesus told Peter that he would pray that his faith would not fail. I will be praying that for you. Put your confidence in the Lord He will never fail you no matter what the outcome.
God Bless you, Brenda
P.s. For with God nothing is imposible. Luke 1:37
Brenda Kannenberg <vbcbkann@discover-net.net>
Thorp, WI usa - Thursday, January 04, 2001 at 05:44 PM (CST)

---

God bless you, Jeremy & family! Keep your faith in the Lord for he is in the healing business! All of the prayers coming your way are like many rays of sun light beaming through the eye of a needle, focused right on you & Jeremy.
You are in my prayers!
Julie McCarthy <labnloon@chibardun.net>
Cumberland, WI Barron - Wednesday, January 03, 2001 at 11:34 PM (CST)

---

HAPPY NEW YEAR! It just started to snow, again. So awesome! It seemed like we had way way too many winters without snow or not enough. Timothy and I love to look at the tiny intricate flakes and to make snow angels. Shoveling has its perks too!

Tanys, Randy, Jeremy, and Adam, Be encouraged and remember that you are loved. It is so cool to see the outpour of people's hearts; praise God for technology! Thank you to everyone who has been praying for and encouraging baby Jeremy and his family. BLESS YOU!! I have enjoyed this up-close and personal way that we have been able to communicate with the Thoms, blessing them and each other.

Peace and love everyone! Goodnight. BJ
Bobbi Jo Toy Schwagel <toycomm@win.bright.net>
Eau Claire, WI USA - Tuesday, January 02, 2001 at 10:38 PM (CST)

---

Dear Tanys,
My name is Carol Cross and my daughter Laura was transplanted Aug. 99 and I wrote to you one time before. I just read your journal entry and I just wanted to encourage you to take one day at a time. If you come to the end of the day and you and Jeremy are there together, you have done a great job! There are sooo many things to worry about in the future and so many "what ifs" and "when will that happen" that you will just wear yourself out with them all. But if you only focus on the day that you have with your precious child, you can do it with God's strength. I really know how hard it is right now for you - emotionally, physically, mentally. But you really have come through the hard stuff and it will get easier. It may not seem like it just yet, but it will.
You are fighting the fight for Jeremy and are doing a marvelous job. Your love for him will give you strength and help you go on when you feel like there is nothing more you can give. And God will fill in all the rest. And you know God gave Jeremy you because He knew you could do it. Keep fighting the fight for him. I will pray for you and your family and ask God to give you peace of mind in all of the many roles you have to fill right now. God bless you in this new year - it has so much hope! my best regards to you, Carol
Carol Cross <crossbr@slu.edu>
St. Louis, mo - Monday, January 01, 2001 at 10:15 PM (CST)

---

HAPPY NEW YEAR! We are so thrilled that you are out of the hospital. Arliss and I helped moved Anne and Gina and stayed with them the first few days out on their own. It is great to have the privacy but a little scary to be on your own too. Just remember those nurses are only a phone call away and the hospital too. Gina also got the CMV virus but at a later date and had to be on antibiotics for it. Fortunately, the doctors have caught it very early and will be able to continue treatment. Tanys, it is all so overwheming, especially when you are by yourself but know that many hourly prayers are with you and God will give you the strength you need each day. Also, there are many people in the community and churches who are willing to help in any way so use the contacts that you have or ask for more resources. The transplant process has come such a long way even with the things the doctors learned from Gina's transplant and soon Jeremy will be home, healthy and normal. May God Bless You and Keep You and Your Family in His Loving Care as you begin the new year.
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Monday, January 01, 2001 at 12:27 PM (CST)

---

Hey Tanys and Randy and Jeremy! Timothy is sleeping, but I am positive that he sends his love and kitty kisses...yes, my boy, now three, thinks that he is a cat. Meow (ox)!

Each and every day I lift you in prayer and ask God to give you overflowing courage and strength. I know that he has and will continue to do so. LEAN ON HIM. REST IN HIM. DEPEND ON HIM! Do not worry that you are not pleasing God or giving Him enough of your time, consideration, praise, glory, etc. HE UNDERSTANDS!!!

Cindy and I are eager to see you and to be with you in January. We are trusting God to work out all the details, like where to stay, and what He wants us to do with and for you while we are there, etc. He has already provided care for Timothy and airfare. Praise the Lord!

Blessings and love to all of you. Wish you could be here to experience the fabulous snow and beautiful Winter that we have been having. Let it snow, let it snow, let it snow!!!. Love, BJ
Bobbi Jo Schwagel <toycomm@win.bright.net>
Eau Claire, Wisconsin USA - Monday, January 01, 2001 at 12:14 AM (CST)

---

Dear Randy and Tanys,
I just read your update, and it made my heart ache for you. I can relate a little to what you are going through and how overwhelming all of it can be. When Steven has his surgery and trach and all of that, it was an experience that I will never forget, and didn't know either that I could get through it, but I did, and only with God's help, that is for sure. Don't be ashamed to cry....you need to do that. It is a very stressful, unknowing situation and you have the right to be down sometimes.Tom and I went through that too, and thankfully when I was down in the dumps, he was up and vise versa. Hold on to each other and the Lord and he will get you through. You have come so far...Praise the Lord! We will continue to pray for you, specifically for you needs that you requested.We love you all and care about you.
Love, Tom, Barb and Steve Anderson
Barb Anderson <BAndebel@aol.com>
Eau Claire, WI USA - Sunday, December 31, 2000 at 06:48 PM (CST)

---

Dear Tanys and Jeremy,I know it is hard to keep up the work you are doing with your son, please remember that God is with you every step of the way. Keep the faith. You have a stessful situation to take care of and you are doing a wonderful job. Your rewards in the future for your hard and loving work will be so great. I love the pictures of your little Santa Bear. I will continue to pray for all of you each day. Love and prayers,Jody Duce
Jody Duce <mikeandjody@cvol.net>
Stanley, wi u.s. - Sunday, December 31, 2000 at 01:10 PM (CST)

---

Dear Jeremy Glad to hear things are going well for you. I think of you often and pray everyday for a speedy recovery for you. Glad you had a Merry Christmas. Love and All my prayers,Jody Duce CNA from St. Joes birth center
Jody Duce <mikeandjody@cvol.net>
stanley, Wi U.S. - Saturday, December 30, 2000 at 10:35 AM (CST)

---

Hello Jeremy and family,
It is so great to hear that you'll be moving on to a place of your own soon. Every step is that much closer to home. You sound like a real trooper, keep it going strong. I hope you all had a joyous holiday and know that I pray for you and your family to have a blessed new year. We are all celebrating with glee sweet Gina's first birthday and believe that you are truly following her footsteps.
Keep up the good work Jeremy, hugs to you and your family.
Lauren Kersting
Lauren Kersting <laurenkersting@yahoo.com>
Schaumburg, IL USA - Wednesday, December 27, 2000 at 10:43 PM (CST)

---

Today is moving day. Hooray! Things will seem so different. No more constant interruptions. Jeremy is doing so well through all of this. You are all in our prayers.
Lynn Smith <dlsmith4122@starpower.net>
Annapolis, MD USA - Wednesday, December 27, 2000 at 06:18 AM (CST)

---

Merry Christmas to Jeremy, Adam, Tanys and Randy. How wonderful to see the adorable pictures of Jeremy in his Santa suit. We are feeling especially joyful to see the pictures of Gina on her first birthday celebration and know that soon little baby Jeremy will be leaving the hospital and on his way home. Our prayers continue to be with all of your family as you endure Jeremy's transplant process. Be assured that God is using your precious son for His plan in touching the hearts of many. As we celebrate the birth of Jesus may none of us ever, for even a moment, take for granted the wonderful gift of life and may we remember God's promise for life eternally. Have a special day today and cherish every loved one.
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Monday, December 25, 2000 at 12:25 PM (CST)

---

We're glad to hear that Jeremy is doing so well, what a great Christmas present. Hopefully that will help you guys enjoy the holiday somewhat. Take care, Lori, Jerry, Bailey & Sydney
Lori Wekkin <llwekkin@hotmail.com>
Durand, Wi Pepin - Saturday, December 23, 2000 at 12:28 PM (CST)

---

Merry Christmas to you!. The new pictures are adorable. Jeremy looks so good. We are so thankful for his progress. Keep it up. We trust that the holidays will be special for you, even though you are away from home. May God be very close to you. We wish you the very best. We will stay in touch. We love the updates. It is so neat to be able to check up on you whenever we want to. Merry Christmas!
Love, Tom Barb and Steve Anderson
Barb Anderson <BAndebel@aol.com>
Eau Claire, WI USA - Friday, December 22, 2000 at 12:42 PM (CST)

---

What an adorable Santa Claus. It is wonderful to see Jeremy looking so big, his brother should beware that little brothers can get bigger than them. I know from experience, never thought my little brother would be bigger than me but now I am so proud that he his (he watches over me now). It is nice to hear that you'll be in your own place soon to enjoy the holidays. You'll be ready to go back to NC after you see all the snow in Wis. Hope all continues to go well, stay strong Jeremy.
Happy holidays,
Lauren
Lauren Kersting <laurenkersting@yahoo.com>
Schaumburg, IL USA - Wednesday, December 20, 2000 at 07:21 PM (CST)

---

Jeremy you are way too cute! You have filled out so much since the first pictures of you on your journal. You are so adorable in that Santa outfit! I hope you and mommy and daddy and your brother Adam have a terrific Christmas. Good Luck when you get out it is really nice to have your own place. Gina's blood pressure was up for awhile, too. It is the meds and hopefully will be under control real soon. She was on blood pressure medicine for a few weeks after we got out of the hospital. Please try to update when you have a chance to get on the computer. Randy you can always get on from any computer anywhere and update! Enjoy your visit with your family and I will be in touch soon.

Anne Rugari
Edgewood, KY - Tuesday, December 19, 2000 at 07:13 PM (CST)

---

Hi! We are so excited to hear of Jeremy's progress! We are praying for rapid healing, and that God will continue to provide for all your needs.

We are experiencing such a meaningful Christmas season here at Valleybrook that I hate for you to be missing it! Last weekend, Kendal portrayed Mary's father and all the emotions of her telling him that she's pregnant, Joseph isn't the father but God is! He thinks she is insane or losing it, that Joseph may divorce her or could even have her stoned! But then he realizes the validity of her encounter with the angel and that she may very well be carrying the Messiah! It was a tear-jerker!

You are definitely missing WINTER! Seems to snow daily and the temps just aren't habitable! I've lived in Wisconsin for 25 years and don't remember a winter like this. (Except for my first WI winter. It was below zero for 6 weeks staight, but I didn't know any better!)

God bless you! We will keep praying for God's hand of healing!
Kathy Smith @ Valleybrook <wisconsinsmith@hotmail.com>
Eau Claire , WI USA - Tuesday, December 19, 2000 at 12:15 PM (CST)

---

Hello! We're in the middle of another snowstorm here in WI- suprise, huh! Probably have 3 inches of fresh snow since this morning and roads are slick. Heard that Chippewa schools let out early, but don't know about the Eau Claire ones.

Wonderful news that Jeremy's cells are growing!!! Hope the worst of everything is behind you. We are anxious to see Jeremy again, and have you back home.

My mom is visiting and watching Landon today as I am working. She enjoys helping out when needed. He is growing so much and weighs 13 lbs already. I'm sure Jeremy will catch-up fast once he gets better. Landon has been smiling a lot and making more noises like he's trying to carry on a conversation. Just a little charmer! Doing daycare with Addie makes having one baby seem easy, but it hasn't been too bad. It will be good once they are a little older, and once it is summer so we can be outside.

Kevin enjoys his trucking job, but I worry with him out in the bad weather. He has seen a lot of horrible accidents. He tells me about his day, and I just cringe. Maybe low pay at the DNR was okay after all!

I saw tigger at noon today. He is definitely missing human contact! I try to spend a little time scratching and a little time playing with him, but he misses his mommy and daddy!

Keeping you in prayer, Love Heidi
Heidi Massey
- Monday, December 18, 2000 at 04:18 PM (CST)

---

Hi all, Happy to hear of Jeremy's progress and pray that it continues. We hope for the best for all of you. And, Randy, we share your feelings of moving to a warmer climate. Today in Eau Claire, WI, we are supposed to get 6-8 inches of the lovely white stuff and it is also cold and blowing too!
Judy Fletschock <Judith.L.Fletschock@xcelenergy.com>
Eau Claire, WI - Monday, December 18, 2000 at 12:31 PM (CST)

---

I know you'll do fine when you get out of the hospital. I watched Anne in action when Gina was an outpatient; getting blood, giving meds, etc. Pretty soon you will feel like you have a nursing degree. Take care, you are all in our prayers.
Lynn Smith <dlsmith4122@starpower.net>
Annapolis, MD USA - Monday, December 18, 2000 at 06:29 AM (CST)

---

Yeah Randy, Glad you traveled safely to Durham from Wisconsin. It must have been a hard trip for you, the angels were carrying you to your wife and son safely! I am so thrilled to hear about Jeremy's cells growing so well! What a trooper this guy is! So Tanys, you had a birthday this month, too! Mine was the 10th. We have a lot in common! Good luck on Tuesday. Let me know where I can get in touch with you. I would feel terrible if I couldn't call you once a week! Have fun on moving day!

Anne Rugari <annerugare@mindspring.com>
Edgewood, KY - Friday, December 15, 2000 at 09:25 PM (CST)

---

HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY DEAR TANYS, HAPPY BIRTHDAY TO YOU!!!!!!!!!

Randy, it was great to get an update straight from the horse's mouth last Sunday! I continue to pray for you guys and am excitedly watching Jeremy's counts rise! Know that you are loved and missed; can't wait for the day when you bring Jeremy home...
Kendal Anderson <kendal@pastors.com>
Eau Claire, WI USA - Friday, December 15, 2000 at 09:33 AM (CST)

---

Glad to hear all is going well and Jeremy is doing well enough to go to out-patient status. We are still keeping him in our prayers. Let me know if there is anything I can help you with.
God Bless, Kelly
Kelly Sroczyk <kellysue@mindspring.com>
Durham, NC - Thursday, December 14, 2000 at 09:25 PM (CST)

---

Good job Jeremy, keep up the work for those cells to GROW CELLS GROW. I know those cells will continue to grow, just ask Gina, she'll tell you. I hope you and your family are keeping warm and know that I keep you all in my thoughts and prayers. It is so nice to see Jeremy in his pictures, what nice smiles he has brought to everyone. Hang in there little guy. Hugs to you all.
Lauren Kersting (Gina Rugari's cousin)
Lauren Kersting <laurenkersting@yahoo.com>
Schaumburg, IL USA - Thursday, December 14, 2000 at 08:53 PM (CST)

---

I'm so glad to hear things are going well. Great pictures.
Deb Bieging
Chippewa Falls, WI - Thursday, December 14, 2000 at 12:15 PM (CST)

---

I have not had the pleasure of meeting you but have heard alot about the family. I am new a new lab tec. where Randy works. I have kept you and little Jeremy in my prayers. Hope all goes well. I know everyone is thinking about you. Hope to meet everyone soon.
Vicki <smi_lee32@hotmail.com>
Cadott, WI U.S. - Wednesday, December 13, 2000 at 09:13 AM (CST)

---

Blessings and love! So glad to know that Jeremy is doing well and that the cells are growing. What a trooper! Praise God for email and the web; it is absolutely awesome that we can so easily communicate w/ you and be a part of your process. Timothy is sleeping (Lucky for me!). I know that he would want me to tell you that he misses and loves Jeremy. ooxx, Blessings and love, BJ
Bobbi Jo Toy Schwagel <toycomm@win.bright.net>
Eau Claire, WI USA - Monday, December 11, 2000 at 10:36 PM (CST)

---

so glad to hear that things are going well. grow cells grow!!!!!!!!!!. You are all in my thoughts and Prayers.

AnnMarie Pitra <iidoc@aol.com>
Downers Grove, IL - Friday, December 08, 2000 at 04:50 PM (CST)

---

MORNING GIRL, LINDA HERE. HOPE ALL IS WELL. I WAS THRILLED TO HERE HOW HI HIS COUNT IS. I HAVEN'T HEARD FROM YOUR FATHER SINCE HE LEFT ON TUESDAY. SURE HOPE ALL IS WELL WITH THEM. GIVE THAT BABY A HUG AND KISS FROM ME. LOVE YA,
LINDA
LINDA HOMEBURG <LINDA.HOMEBURG@US.GAMBRO.COM>
DENVER, CO JEFFERSON - Friday, December 08, 2000 at 06:41 AM (CST)

---

Way to go, Jeremy! What wonderful news about the engraftment! I remember how exciting that was for Gina's progress and know that Jeremy will continue to GROW CELLS GROW! We are praying for all of the prayer concerns in the family and know that God will give you the strength and guidance you need every day. We also have been praying for Gina's successful surgery on St. Nick's day and know that her baby brother, Nicholas is watching over all the children. With love,
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Thursday, December 07, 2000 at 02:23 AM (CST)

---

my hope and prayers are with you troughout your journey.
god bless you all.












laurina <lkt42@uswestmail.net>
whitebear, mn usa - Wednesday, December 06, 2000 at 10:11 PM (CST)

---

Hi Tanys and Jeremy,
So thankful to hear of your progress. Keep it going. We will pray about the clothes that are missing. They will show up. We feel bad about your job situation, but God will work that out as well. Who knows what he has in store for you. We will continue to pray for you and your requests. Think of you all the time. Our prayers are with you.
Love, Tom Barb and Steve Anderson.

- Wednesday, December 06, 2000 at 04:07 PM (CST)

---

Way to go Jeremy! We hope you engraph! You have done so well, you probably will. THat will be a HUGE milestone for you!! Gina had high blood pressure,too. So it is controlled with the medication. He will only be on if for a short time hopefully. Glad to hear all is going well and that you are doing okay without your hubby there. I am sure it gives you piece of mind to know someone is with Adam. I am sure that he is enjoying his visit with his dad. Please keep us updated as much as possible to let us know how the trooper is doing. Kiss that little guy for us.
The Rugari's
- Tuesday, December 05, 2000 at 09:55 PM (CST)

---

hi! o0xxxxx, timmy
timmy schwagel <toycomm@win.bright.net>
eau claire, wi usa - Tuesday, December 05, 2000 at 08:49 AM (CST)

---

GOOD MORNING. HOW ARE YOU AND JEREMY DOING TODAY? HOPE ALL IS WELL AND THE CELLS ARE STILL AT 5. YOUR FATHER AND I WERE LOOKING AT THE PHOTOS AND WE THING JEREMY LOOKS A LOT LIKE MY DAD. DO YOU REMEMBER YOUR GRANDFATHER? LOOK AT HIS EYES AND HIS NOSE. SURE LOOKS LIKE A SMITH TO ME. WELL MUST GET TO WORK. BE SURE AND GET ME A PHONE NO. WHERE I CAN REACH YOU AFTER YOU LEAVE THE HOSPITAL. LOVE TO ALL, LINDA
LINDA HOMEBURG <LINDA.HOMEBURG@US.GAMBRO.COM>
DENVER, CO JEFFERSON - Tuesday, December 05, 2000 at 06:38 AM (CST)

---

- Tuesday, December 05, 2000 at 06:26 AM (CST)

---

Hi Randy and Tanys and Jeremy , Oh by the way Tanys I work with your partner, Dan Nelson he send his best to you all. I wouldn't want to be in yourshoes right now but, if you think about it, this makes the Family alot stronger. May GOD be with you .We are praying for Guys . Love April, Doug And Dave Thoms, and Esther Thoms sends her Blessings also .
DouglasRThoms April Thoms <Douglas R Thoms / Facl/Eau/HTI@HTCH>
Eau Claire, Wis Eau Claire - Sunday, December 03, 2000 at 06:42 PM (CST)

---

Hi Jeremy T
Douglas R Thoms <DouglasR Thoms/ facl/Eau/hti@HTCH>
Eau Claire, Wis Eau Claire - Sunday, December 03, 2000 at 12:05 AM (CST)

---

Tanys, Randy, Jeremy, Althought the pain of having to go through this is great, it is wonderful to hear of the good progress Jeremy is making so far. Every Krabbe baby saved is one for the history books. Keep up the good work, and keep in mind that in a couple of years what seems so hard now will only be a memory as you have a healthy child to love and hold. PS, give Dr. Driscoll and Tracy a kudo from us!
Wendy, Julia's mom <emtech-journey@ic.net>
Ann Arbor, MI - Friday, December 01, 2000 at 07:54 PM (CST)

---

So happy to hear that Jeremy is doing so well and the cells are growing. You are in our thoughts and prayers and I have passed the word on to friends that are also praying for Jeremy.





Angie Spence <bnaspence@acronet.net>
Kenosha,, WI - Friday, December 01, 2000 at 04:34 PM (CST)

---

Hi Randy and Tanys, we just wanted you to know we are thinking of you guys a lot. We are hoping for the best for you all. Love, John, Carmen, Kyle and Briana Eikenberry
Carmen Eikenberry <ikecarm@msn.com>
Port Orange, FL USA - Friday, December 01, 2000 at 02:52 PM (CST)

---

Hi Tanys & Randy.... I am so happy & releived for you that Jeremy is doing so well. I hope & pray that he continues to improve. The power of prayer is working. Looking forward to seeing him in person. I hope Adam is doing well through all of this. Take care & I will check back in a few days. Jodi

Jodi Boone
Eau Claire, WI - Thursday, November 30, 2000 at 08:29 PM (CST)

---

I just got done talking to Grandma & she just wanted me to tell you "hello" and that she's waiting patiently for you guys to all come home. Lori
Lori Wekkin <llwekkin@hotmail.com>
Durand, Wi United States - Thursday, November 30, 2000 at 01:15 PM (CST)

---

Hi guys, just wanted to let you know that we are all thinking of you and Jeremy, and also saying prayers for you all. Jeremy sounds like a fighter, he will prevail. Love, Jerry, Lori, Bailey & Sydney Wekkin
Lori Wekkin <llwekkin@hotmail.com>
Durand, Wi United States - Thursday, November 30, 2000 at 01:06 PM (CST)

---

Yeah Jeremy!!!! Yeah Cells!
Karyn Spence <karyn@spence.com>
Lyons, CO USA - Wednesday, November 29, 2000 at 06:40 PM (CST)

---

I am so glad everything is going so well for you all! Getting out of the hospital early is very scary! Laura went home very early as well. It is hard at first but not having any night visits from the nurses and interns is incredibly great!! We will continue to pray for all to go as it should and that you will be able to leave the hospital shortly.
-Carol Crossl
Carol Cross <crossbr@slu.edu>
- Wednesday, November 29, 2000 at 05:10 PM (CST)

---

Dear Tanys and Randy,
PTL for the wonderful news of God's miraculous growth of cells! We continue to pray that you all will experience the Lord's marvelou grip of grace holding you so very close to Him.

Pastor John and Joanie Vincent <gbcptl@csinet.net>
LaPorte, Ind. LaPorte - Tuesday, November 28, 2000 at 11:25 AM (CST)

---

Randy Tanys and family,
Praise the Lord on your news for Sunday. We trust that things will steadily improve. Great news. We will continue to pray. Love to all.
Barbara Anderson <BAndebel@aol.com>
Eau Claire, WI USA - Tuesday, November 28, 2000 at 09:23 AM (CST)

---

ME AGAIN. STILL PRAYING FOR YOU AND THE LITTLE ONE. I'LL TRY TO CALL LATER THIS WEEK..
LOVE YA,
LINDA
LINDA HOMEBURG <LINDA.HOMEBURG@GAMBRO.US.COM>
LAKEWOOD, CO - Tuesday, November 28, 2000 at 07:24 AM (CST)

---

Blessings and love to all of you! Timothy and I speak of you many times a day and pray for you often. As you know, we are very fond of Jeremy and Timmy is eagerly waiting for Jeremy to "get home now!" so that he can hang out with him. Timothy tells me so every day. We are so excited to know that the cells CELLS ARE GROWING! PRAISE THE LORD!!! When you are feeling weary and heavy laden, remember to SEEK GOD'S FACE!! Love and hugs, BJ
Bobbi Jo Toy Schwagel <toycomm@win.bright.net>
Eau Claire, WI USA - Monday, November 27, 2000 at 09:52 PM (CST)

---

Hi Tanys, Randy & baby Jeremy,
I got your webpage from Kelly Sroczyk in Durham. We had a baby daughter Emilee who had Krabbes and was transplanted there at Duke a year ago this month. Unfortunetely she passed away at Duke from complications in January. She was 2 days shy of becoming 9 months old. She faught a tough battle but God had other plans for her. Jeremy sounds like he is a fighter as well and God will take great care of him. We will keep you in our prayers.
Emilee's webpage is www.caringbridge.com/page/emileespage
Keep your faith and be strong.
Sue, Dan & Kaylee (Emilee's big sister) Schmidt
Sue Schmidt
Savage, MN - Monday, November 27, 2000 at 02:46 PM (CST)

---

It's wonderful to hear that Jeremy is growing new cells. The prayer warriors are chanting GROW CELLS GROW! We remember the day when Gina's started growing and it was so exciting. Little Gina will lead you along the way, Jeremy, so just follow her. PRAYERS ARE ANSWERED AND MIRACLES DO HAPPEN. Our love to the Thoms family, you are all in our prayers.
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga - Monday, November 27, 2000 at 12:28 PM (CST)

---

Hi again! Hang in there you guys! Wish we could do more to make this easier for you. Know that there are many people thinking and praying for you--including us! Take care of yourselves, and take it one day at a time. Keep up the faith!
Judy, Steve, Jordan, Joshua & Lindsey <judith.l.fletschock@xcelenergy.com>
Eau Claire, WI USA - Monday, November 27, 2000 at 10:29 AM (CST)

---

All of the Rugari clan are praying for success. Grow Cells Grow is the motto now. Hope things continue to go well. This is good news indeed!
Smith family <dlsmith4122@starpower.net>
Annapolis, MD USA - Monday, November 27, 2000 at 06:31 AM (CST)

---

We are so glad to hear that the cells have started growing!! Hope that everyday adds to the uphill climb for him and all of you. My entire family is saying prayers for you. We love you very much. SUe TRACY and all!!
suzan tracy <suzt@webtv.net>
chippewa fallsa, we usa - Monday, November 27, 2000 at 01:55 AM (CST)

---

wonderful news. My prayers are with you.GROW CELLS GROW!!!!
Ann Pitra
Downers Grove , il - Sunday, November 26, 2000 at 10:16 PM (CST)

---

GROW CELLS GROW!
What a great news! Way to go Jeremy! It gets very exciting about 6AM every morning. You anxiously await the news to hear how many cells are growing. Gina's cells came in on day 9 also. That is too exciting! What a wonderful gift to recieve. Keep up your faith and strengh, wonderful things are happening! Keep on nursing Jeremy! You are a tough guy!
The Rugari family
Edgewood, KY - Sunday, November 26, 2000 at 08:28 PM (CST)

---

iiii /lo0ve yoo0uuuu! timmy
timmy <toycomm@win.bright.net>
Eau Claire, WI USA - Sunday, November 26, 2000 at 08:16 PM (CST)

---

Great News! I told you have Jeromy follow Gina
and he too will do Great! Keep up the good work
and Grow Cells Grow!

Cathy Wachtstetter <skugalskid@aol.com>
Ft.Laud, Fl - Sunday, November 26, 2000 at 07:37 PM (CST)

---

Hi Tanys..... I just want to let you know that I have been thinking about you alot & wondering how you were. I did not know anything about Jeremy until I received a letter from Gloria Ripley. I went to Valleybrook church & found out about the website. Great idea. Modern technology can be wonderful. I want you to know that I truly hope for the best for you and Jeremy, Randy & Adam. Many people are praying for you & the power of prayer is awesome!!!!
Take care & know that you and your family are in the hearts of many people.
Jodi Boone
Eau Claire, WI - Sunday, November 26, 2000 at 04:17 PM (CST)

---

Dear Randy,Tanys and family,
We just heard today(Sunday Nov.26) that you are in North Carolina with your new son. We will pray for you for sure. You have been on our minds alot lately, since I saw the birth announcement in the paper. I have wanted to call or drop you a line, but I didn't and I wish that I had. I am sorry for all the pain and hearthache that you are going through, but you sound optimistic.... the prognosis is good??? We will pray for a full recovery for Jeremy. It was great to be able to see the pictures of all of you. I was thankful that we went to Valleybrook today. We have been going to Clearview Church the past few weeks, so have missed the news at Valleybrook. All we can say is that we are sorry, we will pray for you and may God Bless all of you.May he also give you the strenght and endurance that you need to run the race before you. You all take care........we will pray.....
Love to you, Tom and Barb Anderson,Jenny Steve and Tim too.
Barbara Anderson <BAndebel@aol.com>
Eau Claire, WI USA - Sunday, November 26, 2000 at 02:12 PM (CST)

---

Great to get news on Jeremy! Look forward to having you all back here in cold WI safe, sound, and healthy!!
Still praying for all of you at this difficult time.
Love, MaryAnn and Heidi
MaryAnn Speckien
- Sunday, November 26, 2000 at 11:34 AM (CST)

---

Dear Tanys, Randy and Jeremy,
We are following your updates and noticed that you mentioned the nurse, Maggie at Duke. She was one of the nurses who took excellent care of baby Gina and we had the opportunity to meet her. She was on duty the day that Arliss and I helped move Anne and Gina to their apt. and she had become very much in love with Gina. We are so happy that she is there with you all. Say hello to her for us if you will. All of the doctors and nurses and staff are wonderful at Duke and God watches over all of them to give them the strength and knowledge to take care of all the children. Being at the Children's Hospital was a life changing experience for us. I hope you got our personal email and that you know that many people are praying for Jeremy and your family. God Bless You and give you all that you need each day.
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Saturday, November 25, 2000 at 09:27 AM (CST)

---

Dear Thoms Family,
We said prayers for you and Jeremy this day and thanked God for the great knowledge that the Docs at Duke have for saving our Krabbe children's life. Jeremy will get better. He's a little fighter and Gina is saying prayers for him!
Take care of yourself, Tanys.
Anne Rugari
Edgewood, KY - Friday, November 24, 2000 at 12:41 PM (CST)

---

i mmiiiiiiss you. gobble goooooooooobble! xxxxxxxxxxoo, timmy.
Timothy Schwagel <toycomm@win.bright.net>
Eau Claire, WI USA - Thursday, November 23, 2000 at 07:18 PM (CST)

---

Just wanted to wish you a happy Thanksgiving - I am thanking God with you that Jeremy is on his road to recovery and that soon he will be free from Krabbes. -Carol and little Laura
ps. Laura's site is caringbridge.com/mo/lauranews
carol cross <crossbr@slu.edu>
st. louis, mo - Thursday, November 23, 2000 at 11:15 AM (CST)

---

Jeremy is on my mind and in my prayers every day! I'm most likely coming over there ( States ) early next year and I'm looking forward seeing little Jeremy and the rest of the Thoms family! Hugs and kisses!
Mari <mari.huhtanen@finnair.fi>
Helsinki, Finland - Thursday, November 23, 2000 at 09:21 AM (CST)

---

Happy Thanksgiving! May you get much needed rest and peace this Thanksgiving day! Let me know if I can be of assistance for you.
Kelly Sroczyk
Kelly Sroczyk <Kellysue@mindspring.com>
Durham, NC - Thursday, November 23, 2000 at 09:10 AM (CST)

---

May you have much to be thankful for today, and in the next year. Have a happy Thanksgiving together!! (And Adam, you are in my thoughts too!! Take care of yourself.)
Karyn Spence <karyn@spence.com>
Lyons, CO 80540 - Thursday, November 23, 2000 at 01:40 AM (CST)

---

Hello, I have tried unsucessfully to send you a personal email so if it is different than the one you have listed on Jeremy's web page please let me know. I would like to keep in touch and share some information with you. Have a thankful day and know that your faith will sustain you.
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga - Wednesday, November 22, 2000 at 07:17 PM (CST)

---

jeremmy, hi. ii lloovvee yyoouu.. timmy xxxxoooooooo

timmy schwagel <toycomm@win.bright.net>
eau claire, wi usa - Wednesday, November 22, 2000 at 08:13 AM (CST)

---

During these difficult times you will find strenght from God and Jeremy will also. I will keep you in my prayers
GROW CELLS GROW!!!!!
HAVE A HAPPY THANKSGIVING TOGETHER!
ANN PITRA ( ANGELA'S MOM) <iidoc@aol.com>
downers grove , il - Wednesday, November 22, 2000 at 12:29 AM (CST)

---

It's time to begin the chant, GROW CELLS GROW!!!!Our family keeps you in our prayers.
Anne Rugari
Edgewood, Ky - Tuesday, November 21, 2000 at 02:36 PM (CST)

---

Hi! You don't know me, but I worked with Rob Gulotta at Valleybrook Church this summer and am in Mary Kay with Bobbi Jo Schwagel. They have kept me abreast of your journey with Jeremy. I admire you all for your strength and courage. Trust in Him and know we are all praying for you!
Linda Wood-Riesterer <lwood@cvol.net>
Eau Claire, WI USA - Tuesday, November 21, 2000 at 11:02 AM (CST)

---

hello I just wanted to stop by and let you know that I too will be with you during these busy, scary, and heartfelt times . My Daughter Angela also had Krabbes, its been 2 years she is in Heaven now.
I will keep you all in my prayers and know that you are never alone.
All the best to you all
Ann Pitra <anniguy@netscape.net>
downers grove, il - Monday, November 20, 2000 at 10:38 PM (CST)

---

Hello to the Thoms family,
We are close friends of the Rugari family and Gina is our "Baby Faith" miracle. We have been involved with Gina's transplant and we are so happy that you have met Anne and Gina. We want you to know that Jeremy and your family are in our daily prayers along with many prayer warriors in Big Canoe, Georgia. We will be following his progress every day. May God give you all the strength you need each day and may you be blessed with people whose lives are touched by Krabbes Disease.
Trust in the Lord and believe in miracles.
Kathy and Arliss Brigman <ambkhb@mindspring.com>
Big Canoe, Ga. - Monday, November 20, 2000 at 08:28 PM (CST)

---

Hi Randy, Tanys and Jeremy. Greetings from Wisconsin. I just wanted to let you know that everyone at CBC (Calvary Baptist Church) is praying for you and your family. We try to get an update every week and pray for you in our sunday school class. Take care and let us know if we can do anything for you.
Jodi Wood <jodiwood@execpc.com>
Eau Claire, WI USA - Monday, November 20, 2000 at 02:57 PM (CST)

---

love you girl
antie
linda
linda homeburg <linda.homeburg@us.gambro.com>
denver, co jefferson - Monday, November 20, 2000 at 10:27 AM (CST)

---

Sunday, Nov. 19th
Dear Tanys, Randy, Jeremy and Adam.
Thinking of you all the time and praying for ALL of you. Remember Tanys as a little girl and know I will get to see JEremy grow up too !! Keep up those spirits. You can do it. With lots of love over the years, SUE Tracy
suzan tracy <suzt@webtv.net>
chippewa falls, we usa - Sunday, November 19, 2000 at 04:33 PM (CST)

---

Hi - my name is Carol Cross and my daughter Laura was transplanted here in St. Louis Aug. of 99. She was a newborn as well. She is 15 months post transplant (today) and is doing great. No sign of Krabbes whatsoever! I'm so glad all went well on transplant day for Jeremy. From now on, everything done for Jeremy will be to help him (I thought the chemo was so hard mentally because I knew it was "hurting" Laura). I will be praying for him and for your whole family. I know it is so hard but try to take just one day at a time and not think to much about tomorrow (it certainly has enough worries of its own!). I looked at Laura's time in the hospital as a special gift to me - no work, no cooking, no laundry, no housework, - just Laura. I held her and rocked her and enjoyed every day that I had with her. I pray that your time with your son will be as special and that you will feel God's love and presence there with you in his room. my thoughts are with you, Carol Cross
carol cross <crossbr@slu.edu>
St. Louis, MO - Sunday, November 19, 2000 at 12:02 PM (CST)

---

Hey Randy and family especialy Jermemy...
I hope all is well, may God bless little Jermemy and and the rest of the family.
I have just started reading about Jermemy last night at work, there was a print out on the bulletin board.
My family and I will keep on praying for you. Hang in there littl guy.
We will checking the site daily, and even more once a day.
God bless Jermemy and family.
Chad Schrankler (co-worker, D shift, API( <cschrankler@charter.net>
Eau Claire, WI USS - Saturday, November 18, 2000 at 08:25 AM (CST)

---

Dear Thoms Family.
Sorry we had trouble connecting today. I will be in touch with you soon. I, too, said a prayer for you after we hung and while you were with the chaplain. Gina and I whispered one to our loving Lord together. We share in your hope for a new life for Jeremy. Keep up your faith, Jeremy is so lucky to have you both for parents. You are a very special family. I will call this weekend.

Anne Rugari
Edgewood, KY - Friday, November 17, 2000 at 09:39 PM (CST)

---

Hi this is Kelly in Durham. I sent you an e-mail too, hope you recieved it. You both and Jeremy are in my daily prayers and do not forget that if you need anything that I can help with while here in Durham call me. May God give you the strength to deal with each new day, whatever it may bring.
God Bless, Kelly
Kelly Sroczyk <Kellysue@mindspring.com>
Durham, NC - Friday, November 17, 2000 at 08:38 PM (CST)

---

Hi to Jeremy and family.

My name is Micki Gartzke. I live in Shorewood, Wisconsin. I heard about Jeremy from Anne Rugari. I just want to let you know that I will say prayers for Jeremy as he fights his way through this transplant battle. I had a little girl, LeA, who was born October 14, 1996 and she had Krabbes. She was our first child and by the time she received her diagnosis, transplant was no longer an option. She lived to be 2 years old. so I know you have li'l Angel LeA cheering for your whole family. You are not alone. I will follow your progress and keep you in my thoughts. Best wishes and Lots of hugs and kisses to Baby Fighter Jeremy. I am so glad you got to meet Anne Rugari. Take CAre, Micki Gartzke
Micki Gartzke <gartzke@bubblers.com>
Shorewood, WI USA - Thursday, November 16, 2000 at 06:47 PM (CST)

---

Hello Thoms family,
I have heard of Jeremy and your family from mine, Gina and Anne Rugari. I want you to know that you are all in my thoughts and prayers and know that you'll get through these next few months. I keep the Hunter's Hope bear in a special place and will give a big hug to think of you. Being family so far away I truly appreciate this website and I know your family and friends will too. Keep your spirits up through this little ride and share the smiles that will come along the way.
Lauren Kersting, Gina's cousin

Lauren Kersting <laurenkersting@yahoo.com>
Schaumburg, IL USA - Thursday, November 16, 2000 at 05:19 PM (CST)

---

My prayers and thoughts are with allof you during this time of separation and anxiety. May you continue to know God's healing Spirit during the ups and downs of these days.
Gerry Mann <mann@discover-net.net>
Chippewa Falls, WI USA - Thursday, November 16, 2000 at 04:52 PM (CST)

---

Hang in there. My son Jeramie is on day 87 post transplant for late onset Krabbes. I will be praying for all of you. Please remember to take care of yourself it will be very helpful getting you thru the first 100 days.
Darnell Eveland <darneveland@aol.com>
Janesville , WI - Thursday, November 16, 2000 at 04:06 PM (CST)

---

We are praying for Jeremey, hope everything is going as good as can be expected. Everything happens for a reason, we may never know the reason, but we trust that all will work out for the best.
Dave and Mary Miller <Dame5758>
Fairfield , Ca. U.S.A - Thursday, November 16, 2000 at 12:22 PM (CST)

---

Hi Randy, Tanys, Jeremy and Adam, My thoughts and prayers are with you. Keep up the faith! It is all in God's hands, and remember that he will continue to help you all through this. Thank you for the updates. I loved the pictures..he is a cutey! I hope all goes well today. Take care and stay strong...you can do this! If you need any help with anything here at home, please call. We have a few inches of snow on the ground this morning!
Judy Fletschock <Judith.L.Fletschock@xcelenergy.com>
Eau Claire, WI USA - Thursday, November 16, 2000 at 10:46 AM (CST)

---

Hang in there Jeremy and family. It's a tough road with many ups and downs. We all praying for you and your family and especially little Jeremy. Keep your faith, never doubt and keep looking up.
Gina's grandma Ann
Ann Strickland` <kastrick@msn.com>
Boca Raton,, fl USA - Thursday, November 16, 2000 at 09:54 AM (CST)

---

Hi Thomses! Isn't it amazing what a support network the web can be? I have been a long time friend of Tanys, went through her and Randy's struggle with her first baby. You guys, I'm so happy that there is this treatment for Jeremy now!! I just KNOW he is going to be ok!! You are all in my thoughts and prayers every day.
Karyn Spence <karyn@spence.com>
Lyons, CO 80540 - Thursday, November 16, 2000 at 01:33 AM (CST)

---

Dear Jeremy:
I learned about you on Gina Rugari's Web Site. I will follow your progress with great hope. Take lessons from Gina,she seems to be a pretty good role model. All my best to you, your Mom, Dad, and Brother. Its a rough road, but it will be worth it when you and Gina are playing and Healthy. Good Luck and God Bless.
Cathy Wachtstetter <Skugalskid@aol.com>
Ft. Lauderdale, Fla - Wednesday, November 15, 2000 at 09:20 PM (CST)

---

Dear Jeremy,
Keep up the good work, little guy. You and I have the same fate and that is to battle this Krabbes. My mom tells me all about you everyday and we say a little prayer. Keep up all your fighting and hard work, tiger! I'll hug my Hunter Bear for you today.
Your friend, Gina
Gina Rugari
Edgewood, KY - Wednesday, November 15, 2000 at 08:45 PM (CST)

---

HiTAnys, RAndy and Jeremy My thoughts are with you as well
as my prayers. I think of you often and hope things are
going well. Love and miss you Della
Della Wolden <dwolden@millstream.net>
Cadott, Wi USA - Wednesday, November 15, 2000 at 06:04 PM (CST)

---

Tanys, Randy, Jeremy, and of course, Adam,
So glad you've finally gotten the website up and going. It's nice to hear an update and know that things are going well. Jeremy and actually your whole family are in our prayers every day. Jordan makes sure we pray that "baby Jeremy"gets better. Though we cannot even imagine what you're feeling or going through, you are not alone.
Love, Wendy, Dave and Jordan
Wendy Dusick <dusicks@discover-net.net>
Eau Claire, WI US - Wednesday, November 15, 2000 at 05:59 PM (CST)

---

GREETINGS FROM SOUTH FLORIDA. ANNE RUGARI IS MY DEAR FRIEND AND I KNOW HOW IMPORTANT IT WAS TO HER AND HER FAMILY TO RECEIVE ALL THE WONDERFUL SUPPORT THEY DID DURING GINA'S TRANSPLANT AND STAY AT DUKE. IT SOUNDS LIKE YA'LL HAVE FAITH AND HOPE AND PLEASE KNOW THERE WILL BE A LOT OF PEOPLE OUT THERE CHEERING YOU ON AND PRAYING FOR YOU. GOD WILL NOT GIVE YOU MORE THAN YOU CAN BARE. PLEASE KEEP US UPDATED.
CINDY WURSTER <CJWURSTER@AOL.COM>
WEST PALM BEACH, FL USA - Wednesday, November 15, 2000 at 05:17 PM (CST)

---

I too am a friend of the Rugari Family. I have had the opportunity to hold and love on Gina---so I do believe in miracles!! You now have one more person praying for your family.
Latrell Hardesty <latrellh@fuse.net>
Cincinnati, OH - Wednesday, November 15, 2000 at 05:13 PM (CST)

---

Jeremy, Tanys,Randy, and Adam,
You are in our thoughts and prayers...give Jeremy a hug from all of us at work, Tanys. We miss you.

Betsy Kelly <bkkcf@yahoo.com>
Chippewa Falls, WI - Wednesday, November 15, 2000 at 04:26 PM (CST)

---

Karyn has been updating us about Jeremy from the first day that you called to tell her the heartbreaking news about him, she was in tears. You have been in our thoughts and prayers every day. We are checking your website everyday and are glad to hear that Jeremy is doing well so far.
Bob and Angie Spence <bnaspence@acronet.net>
Kenosha, WI U.S.A. - Wednesday, November 15, 2000 at 04:14 PM (CST)

---

Dear Jeremy and Family,

Hi!!! Anne Rugari has told us about you. We just want you all to know that you are in our thoughts and prayers. We wish you strength and courage as Jeremy not only battles with this devastating disease but as he undergoes a transplant. We look forward to your updates and a chance to know more about this special baby - Jeremy. Take care!!!
Hunter's Hope Foundation <hunters@huntershope.org>
Orchard Park, NY United States - Wednesday, November 15, 2000 at 03:24 PM (CST)

---

Hi Jeremy, Tanys & Randy, I believe as you do, that God will answer all of our prayers in this difficult times. Be Strong and God Bless All of You!!! If you need anything, please call.

Steve Fletschock <steven_Fletschock@hti.htch.com>
Eau Claire, WI - Wednesday, November 15, 2000 at 01:10 PM (CST)

---

Hi to you all. I too am a friend of the Rugari's. We know all too well what you are going through and will add your family to our prayers. I will check your site every day to see how it's going.
Lynn Smith <dlsmith4122@starpower.net>
Annapolis, MD USA - Wednesday, November 15, 2000 at 12:05 PM (CST)

---

HI I am a friend of the Rugari's! I will continue to pray for Jeremy and your family as well! Keep the faith!
Kelley O'Hara <Kohara@bgnet.bgsu.edu>
Bowling Green, OH - Wednesday, November 15, 2000 at 10:16 AM (CST)

---

Dear Thoms Family,
I am a friend of the Rugari's and have been keeping updated on Gina and I would like to let you know that I will add Jeremy and your family to my prayer list. I wish you the best of luck and I know that God will watch over your whole family and take care of you.
Debbie Ogden <h20ski@usa.net>
Ft. Wright, KY USA - Wednesday, November 15, 2000 at 06:11 AM (CST)

---

Dear Thoms Family,
It has been an honor to meet you and little Jeremy. I feel so attached to your family and we just met. I hope that Gina will help in your hope for healing Jeremy from this catastrophic disease. Keep your faith and chins up, months from now you will have your little boy to play with. God Bless all of you and I am so happy that you have a website!

Anne Rugari <annerugare@mindspring.com>
Edgewood, KY - Tuesday, November 14, 2000 at 08:51 PM (CST)

---

You are in our prayers
Suzan Tracy & Jerry Weisser <ingobert@qwest.net>
Duluth, MN OURS - Tuesday, November 14, 2000 at 06:05 PM (CST)

---

Dear Randy and Tanys,
How we are covering you with prayer! You mean so much to us and we pray you will experience the Lord holding you in the hollow of His mighty, loving hands and by His grip of grace. Love in Jesus, Pastor John and Joanie (Philip. 1:6)
Pastor John and Joanie Vincent <gbcptl@csinet.net>
LaPorte, Ind. USA - Tuesday, November 14, 2000 at 09:22 AM (CST)

---

You are constantly in my thoughts and prayers. Keep the positive energy flowing. Rany and Tanys you also need to take care of yourselfs. Please check out meditation. Love, Pat
Pat Haas <pat_haas @aurora.org>
Milwaukee, WI USA - Tuesday, November 14, 2000 at 09:03 AM (CST)

---

I know that this is hard on all of your family, even those who are indirectly involved. I pray many blessings upon you and your precious child, and may you know that God is above watching over you all. We do not always understand why things happen but rest assured God has control. The song "Take it to the Lord and leave it there" has a great meaning and benefit if we can but do just that. Patience is one of the hardest virtues we can achive but during the times of testings we practice it without even being aware we are. Thank you again for allowing me to be a part of your time of testing and if you need to lean I am here. May God bless you all...Gail
Gail Skaggs <russell4ever@yahoo.com>
Flemingsburg, Ky USA - Monday, November 13, 2000 at 09:27 PM (CST)

---

We are thinking of you and hope everything is well.
Jessica Lauer <lauerdj@hotmail.com>
Elk Mound, Wi U.S. - Monday, November 13, 2000 at 08:17 PM (CST)

---

May the best of luck come your way! Kathy and I think of your family often and we are praying for a quick recovery. Remember that the Lord never lets you walk alone. Take a walk on the beach and check for those footprints.
Jim Tellstrom <jtellstr@itol.com>
Sturgeon Bay, WI USA - Monday, November 13, 2000 at 07:32 PM (CST)

---

Hope that Jeremy is doing well. I am Suzan Tracy's friend, and your mom Carol worked at St. Joseph's Hospital,
so couldn't help but think about all your family when Sue
let me know about Jeremy. Best wishes to all your family,
and we will be thinking, and praying for all your family.


Carol McBain <cmcbain@charter.net>
Chippewa Falls, Wi 54729 - Monday, November 13, 2000 at 07:25 PM (CST)

---

Hope that Jeremy is doing as well. I am Suzan Tracy's friend, and your mom Carol worked at St. Joseph's Hospital,
so couldn't help but think about all your family when Sue
let me know about Jeremy. Best wishes to all your family,
and we will be thinking, and praying for all your family.


Carol McBain <cmcbain@charter.net>
Chippewa Falls, Wi 54729 - Monday, November 13, 2000 at 07:23 PM (CST)

---

Love you all very much!!! We are saying prayers every day for Jeremy and the rest of his family. I hope you have received the gift sent to help you. The web page is wonderful Hugs and Kisses, SUE TRACY and Jerry WEisser
suzan tracy and jerry weisser <suzt@webtv.net>
chippewa falls, wi usa - Monday, November 13, 2000 at 06:38 PM (CST)

---

We love you guys, are thinking of you each day and praying that all goes well. You are on our minds daily and will continue to be in our hearts and in our prayers. Gods blessings for you, Randy, Adam and your precious Jeremy.
kathy and jim <ktellstr@yahoo.com>
sturgeon bay, wi door - Monday, November 13, 2000 at 06:09 PM (CST)

---

- Monday, November 13, 2000 at 06:02 PM (CST)

---

I enjoyed you website update, Wish everyone well and will be home soon. God Bless all of you. I will be bringing this website to work for all of Randy's co-workers. We are all praying for Jeremy.
Gayle Anderson <cganders@win.bright.net>
Strum, WI USA - Monday, November 13, 2000 at 04:22 PM (CST)

---

Click here to sign the guestbook.

Click here to go back to the main page.