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Wednesday, October 25, 2000 at 02:56 PM (CDT)

WE'VE ADDED NEW(OLD) PICTURES.HAVE A HAPPY HALLOWEEN

HI EVERYONE,
MICK HAD HIS DR. APPT. YESTERDAY AND THE DR. IS VERY PLEASED WITH THE PROGRESSION OF THE HEALING OF THE BONE'S THANK GOD. AND AS YOU CAN IMAGIN HE IS WANTING TO GET OUT OF THE HOUSE . SO NOW HE'LL TRY TO GET INTO THE MINI VAN, BUT THINGS ARE LOOKING VERY WELL ON THAT END OF THING'S.ACTUALY WE CANNOT COMPLAIN,THINGS ARE SEEMING TO BE FALLING INTO PLACE,BUT JUST AS SOON AS I SAY THIS SOMETHING MAY GO WRONG. SO LET'S JUST TAKE IT ONE DAY AT A TIME.
WELL IT'S THAT TIME OF YEAR,I HOPE YOU HAVEN'T BOUGHT YOUR CHRISTMAS CARD'S BECAUSE I HAVE SOME THAT ARE FAIRLY INEXPENSIVE AND THEY ARE FOR A GREAT CAUSE,OUR KID'S WITH CANCER,BECAUSE THEY CAN'T FIGHT CANCER ALONE,I PERSONALLY THINK THIS IS GREAT ,I NEEDED CARDS FOR CHRISTMAS ANYWAYS.WELL HERE'S HOW YOU DO IT.AT THE BOTTOM OF THE PAGE THERE'S AN AREA FOR WEB PAGE ADDRESS' I'LL PUT CANDLE LIGHTERS (CARD'S 6$ AND CANDLE'S 10$ )ADDRESS IN HERE, THIS WAY YOU CAN ALSO BUY CANDLES THAT ALSO BENEFIT THE KIDS AND YOU CAN MAKE DONATION'S FOR FAMILY TRIP'S AND HELP TO FUND A FAMILY WHO CHILD MAY BE SUFFERING THE SAME WAY WE WERE.

I WOULD LIKE TO TAKE A MOMENT AND SAY THANK YOU TO A FAMILY MEMBER OF MINE,WHO I HAVE NOT HAD THE PLEASURE OF MEETING YET,WE WERE GOING TO GO CAMPING AND MEET WHEN MICAHEL'S HEALTH WAS BETTER, AND NOW THIS ACCIDENT, THIS IS A VERY SPECIAL THANK YOU TO JOHN DAVID HILDBOLD,FOR MAKING A DONATION IN MICHAEL'S NAME TO THE NATIOANAL CHILDREN CANCER SOCIETY,THIS PERTICULAR CHARITY AND MANY OTHER'S WERE A TREMENDOUS HELP TO US,THIS ONE IN PERTICULAR HELPED FUND OUR LIVES WHILE AT "DUKE" HELPED WITH HOUSING,PHONE,FOOD,PARKING,ETC.THE CANDLE LIGHTERS ALSO HELPED AND NEVER ASKED WHERE THE MONEY WAS GOING,BUT OF CERTAIN THAT WE NEEDED THIS HELP.
JOHN HILDBOLD,THIS MEANS A GREAT DEAL TO OUR FAMILY AND FRIEND'S THAT YOU WOULD HONOR OUR SWEET PRECIOUS LITTLE DARLING MICHAEL IN THIS WAY,THANK YOU!

OH,I'M SO EXCITED ABOUT X-MAS FOR THE KIDS,WE MAY GET TO DELIVER THESE TOYS IN PERSON,KEEP THEM COMING,MY MOM AND I HAVE STARTED OUR OWN LITTLE COLLECTION OF TOYS,EVEN IF WE HAVE TO MANY TOYS(THIS CAN'T HAPPEN) THE KIDS HAVE B.I.N.G.O. ONCE A WEEK AND THEY NEED DIFFERENT TOYS TO GET FOR PRIZES,THIS IS "INCENTIVE" TO GET THEM "OUT OF THE ROOM".AND THEN THE SPECIAL PRESENT FOR JUST BECAUSE,I THINK THE NURSE'S PLAY A BIG PART IN THE KIDS RECOVERY(MOST NURSES) AND THEY NEED THAT LITTLE X-TRA UMPH......... AND WE CAN HELP. I KNOW CAUSE I LIVED IT,SOME TIMES IT'S EASIER THAT THE NURSE GIVE THEM SOMETHING INSTEAD OF MOMMY OR DADDY,BUT EITHER WAY THIS IS GOING TO FUN, AND I'M SOOOO EXCITED.
WELL HAVE TO GO PLEASE, REMEMBER THE KIDS IN THE HOSPITAL,THEY STILL NEED OUR PRAYERS.
ONE LAST THING,THE DR. CALLED WITH MICHAEL'S COMPLETE AUTOPSY REPORT."NOTHING"
HE BELEIVES THAT MICHAEL'S LITTLE LUNGS JUST GAVE OUT.PRAY FOR OUR BABY,I MISS HIM SO MUCH.

Wednesday, October 18, 2000 at 01:12 PM (CDT)

HI EVERYONE,
MICK AND I ARE DOING A LITTLE BETTER TODAY,IT'S VERY TOUGH,BUT WE'RE DOING IT.

I WANTED TO WRITE TO LET EVERYONE KNOW ABOUT THE TOYS THAT I'M ASKING THAT YOU COLLECT FOR THE KIDS AT X-MAS,
I'LL EXPLAIN.
I WAS HOPEING TO GET YOUR HELP TO GATHER PRESENTS FOR THE CHILDREN AT BOTH HOSPITALS
FOR CHRISTMAS,SIMPLE FUN THINGS THAT ARE HIP AND UP TO DATE,LIKE HOT WHEELS,HOT WHEELS X-V- RACERS,BARBIES,STICKERS,BEANIES,MOVIES,TRY TO GET THE GOOD DISNEY MOVIES, I KNOW THEY COST A LITTLE MORE BUT, I NOTICED THAT THEY HAVE A VERY POOR SELECTION OF MOVIES AT DUKE FOR THE KIDS,(WE BOUGHT ALL MICHAELS SO HE COULD WATCH WHAT HE WANTED)KNOW IF YOU ONLY BUY ONE THING THIS IS GREAT,I'LL BE TRYING TO GET OUT TO HELP STOCK,BUT NOT JUST YET,
NO CANDY, DECORATIONS WOULD BE FUN,LIGHTS,CLING-ONS, XMAS-TOYS DECORATIONS ETC.
I KNOW THIS WIL BE THE BEST X-MAS FOR THEM YET.
WRAPPING PAPER,IF YOU JUST WANT TO SEND ME RAPPING PAPER THAT WOULD BE FINE(REMEMBER FUN KIDS PAPER) THE BRIGHTER THE BETTER,
NOW AS FOR MONEY,IF YOU WANT TO SEND MONEY,
PLEASE MAKE CHECKS PAYABLE TO :
DUKE PEDIATRIC CANCER RESEARCH PROGRAM
SEND TO: DUKE CHILDRENS HOSPITAL
P.B.M.T.U. 5200
DURHAM N.C. 27710
DON'T FORGET YOUR NAME,AND THAT IT'S IN MEMORY OF MICHAEL....
OR YOU CAN SEND THE CHECK AS STATED ABOVE TO ME AND I'LL SEND IT IN A SPECIAL ENVELOPE AND CARD IN MEMORY OF MICHAEL FROM HIS FRIEND'S,PLEASE MAKE SURE YOU MAKE CHECK OUT PROPERLY.( OR I MAY HAVE TO RETURN IT TO YOU)
WE CANNOT THANK YOU ENOUGH FOR HELPING,I CAN ONLY TELL YOU HOW HAPPY MICHAEL WAS TO GET PRESENTS,ALL DAY LONG 24 HOURS A DAY IF HE COULD OF ANF IF I COULD HAVE,HE DESERVED EVERYTHING,YOU KNOW I THOUGHT OH,IS THIS TO MUCH,BUT THAN I THANK GOD I DID THIS,SO HE HAD ALL THOSE THINGS IN HIS SHORT LITTLE LIFE,
LOVE AND PEACE BE WITH YOU ALL AND HAVE A GOOD HALLOWEEN,I'M GOING TO KEEP THIS IN THE WEB SITE FOR AW HILE SO YOU'LL HAVE TIME TO READ IT.
A QUICK UPDATE ON MICK AND ME.WE ARE HANGING ON BY A THREAD.MICK WILL GO TO THE DR. TO HAVE SOME PINS PULLED ON TUESDAY THE 24TH,SO PRAY FOR HIM THE PAIN IS HORRIBLE
.HE WILL HAVE TO HAVE MORE SURGERIES ON DOWN THE ROAD TO REMOVE ALL THE PINS AND PLATES, AND RODS.SO KEEP PRAYING THAT ALL GOES WELL WITH HIS LEGS AND THAT HE'LL GET TO KEEP BOTH OF THEM( LOOKS GOOD ,HE CAN MOVE HIS KNEES AND HIS TOES)
THANK YOU ALL FOR YOUR CONTINUED SUPPORT.
PRAY FOR OUR ANGELS AND PRAY FOR THE CHILDREN AND KEEP THE FAITH,AS GOD WILL NOT GIVE US MORE THAN WE CAN HANDLE,
LOVE TO YOU ALL,JANE AND MICK

Saturday, October 14, 2000 at 04:00 PM (CDT)

I KNOW IT'S BEEN A WHILE SINCE I'VE WROTE IN THE WEB PAGE.IT'S NOT EASY AROUND HERE THESE DAYS,LOTS OF WORK TO BE DONE THAT WE NORMALLY TAKE FOR GRANTED.THANKS TO MY SISTER IN LAW MANDY WE MADE IT THUS FAR. MICK IS UNHAPPY BEING SO CONFINED TO THE BED AND WHEEL CHAIR, IT'S HARD FOR ME TO WATCH HIM,WE CAN REALLY SEE EACH OTHERS PAIN NOW,WE MISS MICHAEL SO MUCH,I TOLD MICK THAT MICHAEL WOULD BE GIVING HIM SUCH A HARD TIME ABOUT BEING A LITTLE BABY,(NOT THAT HE IS,WELL SOMETIMES,BUT HE HAS EVERY RIGHT)I WAS GETTING OUT OF THE SHOWER THIS MORNING AND I LOOKED AT PICTURES OF MICHAEL ON THE WALL AND I LAUGHED, BECAUSE I WAS STANDING THERE WITH OUT CLOTHES AND MICHAEL WOULD ALWAYS TEASE ME ABOUT BEING NAKED,YES MICHAEL I WAS NAKED THIS MORING I COULD HERE YOU SAYING MOMMY YOUR NAKED,THERE ISN'T ONE DAY THAT GOES BY I DON'T CRY UNCONTROLLABLY,I JUST START AND THAN I FIND MYSELF HAVING TO STOP,I WENT TO THE CLOSET THE OTHER DAY AND ALL YOUR COATS ARE HANGING IN THERE AND I SAW YOUR HALLOWEEN COSTUME FROM LAST YEAR,AND YOUR FLANNEL COAT YOU WOULD ALWAYS WEAR,JUST THE THOUGHT OF YOU NOT BEING HERE TO SHARE IN OUR LIVES NEVER EVER AGAIN JUST KILLS ME,SOME DAYS I JUST DON'T KNOW HOW WE DO IT THAN I AWAKE TO ANOTHER DAY
I AM SO ANGRY NOW,I'M KIND OF GLAD THAT I DON'T GO OUT OF THE HOUSE MUCH,AT THIS POINT,THE LADY THAT HAS DONE THIS TO US NOW,SHE SITS AT HOME AWAITING A TRAFFIC VIOLATION??????? GO FIGURE,!!!!!!!!!!!!!!
I HAVE TO GO FOR NOW,I WILL UPDATE AGAIN REAL SOON ,,,,
I WAANT TO TALK ABOUT THE TOYS FOR THE KIDS,I HAVE NOT CHANGED ANYTHING THIS WILL STILL GO ON COME HELL OR HIGH WATER,THE TOYS WILL BE DELIVERED TO THE KIDS.
UNTIL NEXT TIME , PRAY FOR THE KIDS AT THE HOSPITAL,THEY ARE ALL STILL HAVING THIER UP'S AND DOWN'S, AS WE CONTINUE ON IN OUR LIVES THEY CONTINUE TO FIGHT FOR THIER LIVES!
GOD BLESS YOU ALL.

MICHAEL I LOVE YOU,SWEET DREAMS,UNTIL I SEE YOU AGAIN,SEE YOU BRIGHT EYED AND BUSHY TAILED,MOMMY AND DADDY,
AND YOUR OTHER FAMILY,THEY ALL MISS YOU SO MUCH,
MICHAEL I HOPE YOU HAVE THE BEST COSTUME FOR HALLOWEEN,I KNOW THIS IS OUR FAVORITE TIME OF YEAR,BUT IT WILL NEVER EVER BE THE SAME WITHOUT YOU HERE TO SHARE WITH.

Saturday, October 14, 2000 at 04:00 PM (CDT)

I KNOW IT'S BEEN A WHILE SINCE I'VE WROTE IN THE WEB PAGE.IT'S NOT EASY AROUND HERE THESE DAYS,LOTS OF WORK TO BE DONE THAT WE NORMALLY TAKE FOR GRANTED.THANKS TO MY SISTER IN LAW MANDY WE MADE IT THUS FAR.MICK IS UNHAPPY BEING SO CONFINED TO THE BED AND WHEEL CHAIR,IT'S HARD FOR ME TO WATCH HIM,WE CAN REALLY SEE EACH OTHERS PAIN NOW,WE MISS MICHAEL SO MUCH,I TOLD MICK THAT MICHAEL WOULD BE GIVING HIM SUCH A HARD TIME ABOUT BEING A LITTLE BABY,(NOT THAT HE IS,WELL SOMETIMES,BUT HE HAS EVERY RIGHT)I WAS JUST GETTING OUT OF THE SHOWER THIS MORNING AZND I LOOKED AT PICTURES OF MICHALE ON THE WALL AND I LAUGHED BECAUSE I WAS STANDING THERE WITH OUT CLOTHES AND MICHAEL WOULD ALWAYS TEASE ME ABOUT BEING NAKED,YES MICHAEL I WAS NAKED THIS MORING I COULD HERE YOU SAYING MOMMY YOUR NAKED,THERE ISN'T ONE DAY THAT GOES BY I DON'T CRY UNCONTROLLABLY,I JUST START AND THAN I FIND MYSELF HAVING TO STOP,I WENT TO THE CLOSET THE OTHER DAAY AND ALL YOUR COATS ARE HANGING IN THERE AND I SAW YOUR HALLOWEEN COSTUME FROM LAST YEAR,AND YOUR FLANNEL COAT YOU WOULD ALWAYS WEAR,JUST THE THOUGHT OF YOU NOT BEING HERE TO SHARE IN OUR LIVES NEVER EVER AGAIN JUST KILLS ME,SOME DAYS I JUST DON'T KNOW HOW WE DO IT THAN I AWAKE TO ANOTHER DAY,I AM SO ANGRY NOW,I KIND OF GLAD THAT I DON'T GO OUT OF THE HOUSE MUCH,AT THIS POINT,THE LADY THAT HAS DONE THIS TO US NOW,SHE SITS AT HOME WAITING A TRAFFIC VIOLATION??????? GO FIGURE,!!!!!!!!!!!!!! I HAVE TO GO FOR NOW,I WILL UPDATE AGAIN REAL SOON ,,,,
I WAANT TO TALK ABOUT THE TOYS FOR THE KIDS,I HAVE NOT CHANGED ANYTHING THIS WILL STILL GO ON COME HELL OR HIGH WATER,THE TOYS WILL BE DELIVERED TO THE KIDS.
UNTIL NEXT TIME , PRAY FOR THE KIDS AT THE HOSPITAL,THEY ARE ALL STILL HAVING THIER UP'S AND DOWN'S, AS WE CONTINUE ON IN OUR LIVES THEY CONTINUE TO FIGHT FOR THIER LIVES!
GOD BLESS YOU ALL.

MICHAEL I LOVE YOU,SWEET DREAMS,UNTIL I SEE YOU AGAIN,SEE YOU BRIGHT EYED AND BUSHY TAILED,MOMMY AND DADDY,AND YOUR OTHER FAMILY,THEY ALL MISS YOU SO MUCH,
MICHAEL I HOPE YOU HAVE THE BEST COTUME FOR HALLOWEEN,I KNOW THIS IS OUR FAVORITE TIME OF YEAR,BUT IT WILL NEVER EVER BE THE SAME WITHOUT YOU HERE TO SHARE WITH.

Saturday, October 07, 2000 at 08:04 AM (CDT)

GOOD MORNING TO ALL.
HELLO MICHAEL,I HAVE BEEN MISSING YOU PRETTY MUCH THESE PAST FEW DAYS.IT'S BEEN DIFFICULT,IT'S HARD TO DO ANYTHING,
DADDY IS ALWAYS RIGHT THERE.
MANDY HAS BEEN A GREAT HELP,WE COULDN'T HAVE DONE IT WITHOUT HER.BUT I'M NEVER ALONE,SO IT'S HARD TO CRY.DADDY IS DOING SO WELL,HE IS STILL IN ALOT OF PAIN,BUT HE WILL MAKE IT OK,I AWOKE YESTERDAY MORN. TO HIM AT THE BEDROOM DOOR,IN THE WHEEL CHAIR,THE FIRST TIME BY HIMSELF,THIS SHOULD HAVE BEEN THE DAY THEY CONCIDERED LETTING HIM COME HOME FROM THE HOSPITAL,NOT LAST WEEK.WE CANNOT TALK TO THE DR.HE WONT RETURN CALLS.SO WE'RE HOPING TO FIND A DR. CLOSER TO HOME AND A LITTLE MORE RECEPTIVE TO MICKS NEEDS.OUR SUPPORT SYSTEM HAS BEEN GREAT,WE HAVE THE BEST FRIENDS AND FAMILY IN THE WHOLE WORLD.AND TRUST ME I DON'T SAY THIS LIGHTLY,IT TOOK US MANY YEARS TO FIND THEM,(WELL THE FAMILY NOW I GUESS WE DIDN'T HAVE MUCH SAY IN THE PICKIN') BUT I COULDN'T HAVE DONE A BETTER JOB,I LOVE YOU ALL DEARLY AND CANNOT THANK YOU ENOUGH FOR ALL THAT YOU HAVE DONE AND CONTINUE TO DO,YOU ALL ARE QUITE AMAZING,MICK'S FAMILY HAS SHOWN SUCH CLOSNESS,THESE PAST FEW MONTHS AND MY MOM WELL WE ALL KNOW THAT WE COULDN'T MAKE IT WITHOUT OUR MOM'S BY OUR SIDE,THIS IS WHY I WORRY ABOUT MICHAEL SO MUCH,HE NEEDS HIS MOMMY,WHAT CAN A CHILD DO WITHOUT THIER MOM?
I HOPE YOU ARE OK,I LAY IN BED AT NIGHT WITH THIS INCREDIBLE ACHE IN MY HEART FOR YOU, TO SEE YOU,TO FEEL YOU,TO HEAR YOUR VOICED,OH HOW I LONG TO HEAR YOU!
I MISS YOU SO MUCH, THE EMPTINESS IN ALL OUR LIVES WITHOUT YOU HERE IS SO LARGE AND CANNOT BE EXPRESSED BY WORDS.ONLY THE SADNESS IN MY EYES CAN SHOW YOU HOW MUCH I WISH I COULD JUST HOLD YOU.I HAVE TO GO NOW .I LOVE YOU MICHAEL,MOMMY

Monday, October 02, 2000 at 07:19 AM (CDT)

it's been one week since the accident,i cannot sit up for very long,i'm trying to cut back on the pain pills for the baby's sake but it's hard,i hurt,
I CAN'T IMAGIN THE PAIN MICK IS SUFFERRING,HE CAN'T MOVE, THE LEFT LEG HAD A COMPOUND FRACTURE AND THE RIGHT LEG THEY REPLACED THE KNEE AND THE FIXED THE FOOT HAD TO PUT IT ALL BACK TOGETHER,FRACTURED BACK AND PELVIC BONE.HE HAD STICHES IN THE CHEST FOR A CUT THAT WE'RE NOT SURE ABOUT.BUT HE IS MOVING HIS LEGS AND HIS TOES AND IS TRYING TO MOVE HIS LEGS AND HIS BODY SO HE CAN COME HOME.ONCE HE CAN MOVE HIMSELF FROM THE BED TO THE CHAIR HE CAN COME HOME.WITH ALOT OF PHYSICAL THREAPY.I HAVE 4 FRACTURED DISKS IN MY LOWER BACK AND THE BABY WAS OK ON THE NIGHT OF THE ACCIDENT .I AM SO ANXIOUS TO SEE THE BABY AGAIN,TO MAKE SURE WE'RE OK.
WE HAD CALCULATED THAT ON MONDAY (WELL LETS DO THIS)TODAY I HAS BEEN 12 WEEKS SINCE MICHAEL HAS BEN GONE AND THE BABY WILL BE 12 WEEKS OLD TOMORROW.MICHAEL SAID( MANDY REMINDED ME)MOMMY YOU CAN HAVE ANOTHER MICHAEL JUST LIKE ME!

MY BABY I MISS YOU SO MUCH AND YOUR DADDY,I AM TERRIFIED FOR THE FUTURE, BUT As WE DID I HAVE TO DO NOW,
I CAN'T THINK ABOUT TOMORROW ONLY FOR TODAY,
MICHAEL,MY HEART ACHES FOR YOU,.UNTIL WE MEET AGAIN,BRIGHT EYED AND BUSHY TAILED PUMPKIN.I WILL ALWAYS LOVE YOU .
MOMMY AND DADDY

Thursday, September 28, 2000 at 05:07 AM (CDT)

WE ARE ALIVE,THANK YOU GOD.I CAME HOME LAST NIGHT,MICK IS IN SO MUCH PAIN I CAN 'T BELEIVE THIS HAPPENED,
SUNDAY EVENING AROUND 7:15 WE WERE ON OUR WAY TO LIGHT THE NIGHT,WHEN A WOMEN (YES,GOD SHE WAS DRINKING)PULL IN FRONT OF OUR MOTORCYCLE,NO WE DIDN'T HAVE HELMETS ON BUT WE HAD NO HEAD INJURIES,THANK GOD,WE WERE WEST BOUND ON THE BLVD AND SHE WAS EAST BOUND,DRIVERS SAY SHE HAD BEEN A PROBLEM DRIVER ALL THE WAY DOWN THE RAOD ,SWERVING AND OFF THE ROAD,NO TEST WERE DONE TO SEE IF SHE HAD BEEN DRINKING (TO PROVE),BUT SHE DID ADMIT TO HAVING BEEN DRINKING.
MICK FLEW THROUGHT THE AIR APPROX,50FT AND I FLEW APPROX 70 FT MY HUSBAND AND MICHAEL SAVED MY LIFE,WE WERE ON OUR WAY TO PAY TRIBUTE TO MICHAEL INSTEAD HE CAME TO US THIS EVENING,
MICK IS IN SERIOUS CONDITION,ON SUNDAY NIGHT THEY DID EMERGENCY SERGURY TO PUT A PIN IN HIS COMPOUND FRACTURED LEG,(LEFT) AND YESTERDAY THE DOC. FINISHED PUTTING THE OTHER LEG AND FOT BACK INTO PLACE,I HAVE TO GO WRITE MORE LATER,THANK YOU GOD FOR GIVING US THIS DAY AND MICK I AM SO SORRY FOR YOUR PAIN,BUT I CAN ONLY THANK YOU FOR THINKING OF ME AND THE BABY WHEN YOU HAD NO TIME TO THINK AT ALL.MICHAEL I MISS YOU BUT I NOW KNOW YOU ARE WITH ME,

Monday, September 25, 2000 at 02:41 AM (CDT)

Jane and Mick were both injured Sunday night on their way to Naples Light up the Night for Cancer. Jane is in North Collier Hospital with a back injury, lacerations, and observation of the 10 week fetus. Mick was air lifted to Lee Memorial Hospital where he will be treated for multiple fractures of his legs, knees and feet, and back and pelvis injuries. He will need 3-4 surguries and will laid up for 6-9 monthes. They were injured when a car pulled out in front of their motorcycle just a few blocks from home. They had spent the early part of the day at the Candlelighters picnic.

Saturday, September 23, 2000 at 09:48 AM (CDT)

GOOD FOOD, GOOD FUN, AND GREAT FRIENDS.
TO OUR FRIENDS JOHN AND DEBBIE,10 YEARS YESTERDAY OF MARRIAGE.
YOU ARE TRULY OUR DEAR FRIENDS AS I SAID IN MY TOAST LAST NIGHT,THANK YOU FOR BEING THERE FOR US THE PAST MONTHS, AND THANK YOU FOR YOUR UNCONDITIONAL FRIENDSHIP,THIS IS TRULY A FRIENDSHIP MICK AND I CHERISH, WE LOOK FORWARD TO MANY LONG YEARS AHEAD,WITH OUR FAMILIES TOGETHER AND SHARING TOGETHER.
LAST NIGHT WAS WONDERFUL,THANK YOU FOR !

NOW AS FAR AS MAKING IT THROUGH THE WEEKEND.WE'LL SEE ONLY TIME CAN TELL.I HAD ONE MOMENT LAST NIGHT,NO ONE KNEW.I GAVE JOHN AND DEEBIE PICTURE FRAMES FOR THIER GIFT AND PUT A PICTURE OF JOHNNY AND MICHAEL in one of the frames, it's a beautiful black and white picture that deb actually sent to me e-mail.and it caught me off guard.it made me think about every-other time that we have been out together,either jeanine watched the boys or I was caling my mom to check on him,None of this happened last night,No phone calls,No worring about michael and having to wonder if he went to sleep ok for grandma,or what time to pick him up in the morning.
oh god how do we do this,MICHAEL I MISS YOU SO MUCH,I WANT YOU BACK HERE WITH ME I ,JUST WANT TO FEEL YOU ,SMELL YOU,TOUCH YOU,HOOOOLLLLLLDDDD YOU ONE LAST TIME,OH,GOD WHY??????????????????????
WHY THE PAIN,I CAN'T STAND IT ,
PLEASE NO THAT WE LOVE YOU SO DEEPLY
I WILL CARRY THIS PAIN TO MY GRAVE,I JUST HOPE THAT THE BABY WILL BE OK AND THAT WE WON'T PUNISH THE BABY FOR YOU NOT BEING HERE AND COMPARE,IT DOES SEEM IMPOSSIBLE SOMEDAYS TO THINK,ABOUT ANYONE BUT YOU IN OUR LIVES.
WE'LL BE OK, BUT KNOWING ALSO THAT WE'LL BE JUST OK FOR THE REST OF OUR LIVING YEARS IS HARD TO FEEL ALSO.
HOPE YOU AND BROOKE ARE HAVING FUN TOGETHER,SHOW HER AROUND,SHE NEEDS A LITTLE BROTHER AND YOU WANTED A SISTER?

MICHAEL MY LITTLE SNUGGLE BUG,I'M SORRY I CRY SO MUCH,PLEASE NO IT'S NOT YOUR FAULT,IT'S JUST THAT MOMMY LOVES YOU SO SO MUCH AND I MISS YOU EVEN MORE,BABY.SO DOES YOUR DADDY. HE MISSES YOU MORE THAN I THINK WE'LL EVER KNOW.
GOD BLESS YOU AND KEEP YOU SAFE TIL I GET THERE.
LOVE MOMMY,DADDY AND YOUR BABY.

Monday, September 18, 2000 at 07:20 AM (CDT)

I'M SORRY TO HAVE TO SAY GOD HAS RECEIVED ANOTHER ANGEL,"BROOKE" I JUST CAN'T BELIEVE IT.SHE ALWAYS LOOKED SO STRONG AND AS IF SHE WAS DOING OK.26 DAYS (OR MORE) IN ICU.OH DEAR GOD WHY,TO THE FAMILY WE NEVER SPOKE MUCH,BUT WE DID SEE ALOT OF EACH OTHER,I AM SO TERRIBLY SORRY FOR YOUR LOSS BROOKE WAS SO BEAUTIFUL AAND SWEET AND SHY,WITH THAT BEAUTIFUL RED HAIR,SHE WILL BE MISSED DEARLY.GO IN PEACE LITTLE ONE AND NO YOU'LL BE FREE FROM PAIN AND ANGUISH,WE LOVE YOU ALL SO DEARLY,GOD BLESS YOU!

THE KIDS NEED YOUR HELP FOR X-MAS.
WE NEED THINGS LIKE BEANIE BABIES AND HOT WHEELS AND STICKERS AND ALL THAT FUN STUFF FOR THE KIDS.JUST SEND THEM TO ME OR STRIGHT TO THE HOSPITAL,WHICH EVER YOU CHOOSE.BUT I NEED YOUR HELP.SEND GIFTS TO:

JANE RICE
160 9TH ST N.W.
NAPLES FL. 34120

duke children's hosp.
erwin rd. and fulton rd.
unit 5200 p.b.m.t.u.
Durham,NC 27710
atten:child life or head nurse,x-mas gifts for the children

I WILL SEE TO IT THAT THE PRESENTS MAKE IT TO THE HOSPITAL OF YOUR CHOICE.
DON'T STOP SENDING THEM,AND JUST SEND ONE THING,HOT WHEELS ARE 74 CENTS AT WALMART.
BEANIES ARE 5.00$ AND STICKERS WELL THEY ARE VERY INEXPENSIVE.IF YOU ALL BUY ONE THING WE'LL HAVE ENOUGH FOR THE KIDS AT X-MAS

THIS IS JUST THE BEGINNING!
I WON'T STOP UNTIL WE FIND A CURE!

IF YOU NEED MORE INFO PLEASE CALL ME OR E-MAIL ME,THANK YOU FOR YOUR HELP,JANE,MICK,MICHAEL AND THE BABY

the walk in lowdermilk park on sundaay starts at 6:30 the actual walk it's self begins at 7:30,there are fun things happening before they begin and we need donations to help find a cure
SO BRING YOUR CHECK BOOK,I KNOW I WILL!

Friday, September 15, 2000 at 07:31 AM (CDT)

HAPPY BIRTHDAY TO ME!
WELL IT'S NOT THE BEST OF DAY'S BUT WE'LL MAKE IT THROUGH ANOTHER,THE DAY STARTED OUT MISSING YOU BADLY IT'S MY BIRTHDAY AND I WANTED YOU HERE SO I COULD HAVE SOMEONE TO TELL ALL MY DARK DEEP SECRETS TO ABOUT THIS ONE BIRTHDAY IN PERTICULAR(35 YUCK)I JUST WANTED THIS BIRTHDAY TO GO BY HOPEING IT WOULDN'T CHANGE THINGS BUT JUST AS YOUR GONE, I CAN'T CHANGE THINGS.FRIDAY,ANOTHER DAY CLOSER TO THAT MONDAY DAY,I WISH I COULD JUST PASS UP MONDAYS NOW,THEY NEVER BOTHERED ME,THE WAY THEY DO NOW!THEY TRULY ,FOR A LACK OF BETTER WORDS, "SUCK"SO I JUST PICK MY HEAD UP AND GO INTO WORK.
I WAS READING JORDYN PAGE YOU DON'T(WELL MAYBE YOU DO) JORDYN,HER MOM IS REALLY HAVING A HARD TIME WITH JORDYNS LOSS,IT'S BENN 17 WEEKS I THINK AND SHES PREGNANT ALSO,BUT MUCH FARTHER ALONG,TELL JORDYN TO SEND HER MOMMY A SIGN.SHE NEED HER SO BAD,MAYBE IF JORDYNS BUSY YOU COULD DO IT AND WHILE YOUR DOING IT (MOMMYS' HERE TOO)SEND ME ONE!MICHAEL I NEVER THOUGHT THAT THIS DAY COULD AHVE EVER BEEN POSIBLE IN MY LIFE AND THE PAIN THAT I HAVE EXPERIENCED IN MY LIFE NOTHING CAN COMPARE TO THIS NOT THE LOSS OF A DOG (AS A CHILD)NOT THE LOSS OF A PARENT,NOT THE LOSS OF GRANDPARENTS,NOTHING HURTS LIKE LOOSING YOU!AND THE RAWNESS OH GOD.IT'S STILL LIKE A DREAM,I WANT TO HEAR YOU SEEYOU SMEEL YOU TOUCH YOU,I WANT TO HEAR YOU LAUGH LIKE YOU USED TO AND BE FUNNY, YOU WHERE SO FUNNY.I WANTED TO SEE YOU IN THE BAKC YARD RIDING YOUR ATC. OR YEELING MOM I'M STUCK COME GET ME,EVERY 5 MINUTES,I WANT TO GO THE NIKE STORE AND BUY YOU NIKE CLOTHES AND SHOES (FOR CHEEP FROM THE FACTORY STORE)I WANT TO BUY YOU THINGS AND TEACH YOU THINGS AND SHOW YOU THINGS,AND I WANT YOU TO TEACH ME THINGS YOU TAUGHT ME SO MUCH,WE ALL LEARNED FROM EACH OTHER,I HAVE TO CLOSE NOW I CAN'T DO THIS ANYMORE ,
IT'S MY BIRTHDAY MICHAEL AND I AM GOING TO TREY TO HAVE A GOOD DAY OK?

I LOVE YOU! MOMMY
SEE YOU ON THE BRIGHT SIDE BABY.
SORRY I DIDN'T CORRECT MY SPEELING OH WELL

Wednesday, September 13, 2000 at 02:48 PM (CDT)

hi I know its ben a couple of days since I've wrote.I have been busy at the doctors.yes it's truly a baby.I saw his or her heart beating inside of me yesterday for the first time.My mom said something to me today which I thought was intresting,you know I held Michael in my arms the night he left us ,with such passion in our hearts and and minds, could this be the soul of our child,living on inside of me.This is something to think about.

There will be a light the night walk on Sun sept 24th at lowdermilk park.abate is honoring Michael.I hope you will all be able to join,who live in the area.Our family will all be there,and many other families and friends of our's.We(mick and I) will honor Michael for the first time ourselves this evening.
God and Michael What A Pair.

Wednesday, September 13, 2000 at 02:48 PM (CDT)

Sunday, September 10, 2000 at 10:31 AM (CDT)

SUNDAY ALMOST EXACTLY 2 MONTHS NOW THAT YOU LEFT US.I AM FEELING A LITTLE BETTER ABOUT THE BABY.BUT I STILL CAN HARDLY BARE THE PAIN OF YOUR ABSENCE,THE SLIENCE IS UNBARABLE.I STILL HEAR YOU..........
AND THE DAY OF YOUR DEATH IS SO FRESH,I DON;T NO TAHT I HAVE EVER SAID ANYTHING ABOUT THE AUTOPSY,THE PRELIMINARY RESULTS ARE SHOWING NOTHING,NO FUNGUS NO VIRUS' NO INFECTION,"NOTHING"THIS IS REALLY HARD TO UNDERSTAND,THE ONLY CONCLUSION I'VE COME UP WITH IS THAT YOUR LITTLE BODY JUST GAVE OUT.
DADDY IS AT THE SHOP AGAIN THIS MORNING,
DID I TELL YOU RICK CARELLI "WON" THE RACE(TRUCK SERIES) WAY TO GO "RICK" CARISSA MUST BE SO HAPPY FOR HER DADDY. THAT'S DADDY'S DREAM IS TO RACE AND WIN BIG I THINK!
WELL I AM GOING TO CLOSE FOR NOW!

NEW PICTURES AND HI TO JASMINE AND PATTY AND EVERYONE AT THE HOSPITAL! THE PACKAGE IS COMING(IT'S NOT IN THE MAIL YET) BUT IT'S COMING!
GOD BLESS YOU ALL!

HAVE A GOOD DAY MICHAEL
,I LOVE YOU!
MOMMY AND DADDY
"AND YOUR NEW BABY BROTHER OR SISTER"

I'M SORRY MICHAEL..............
I WISH YOU WHERE HERE. IT HURTS SO BAD...

Sunday, September 10, 2000 at 10:31 AM (CDT)

Friday, September 08, 2000 at 09:35 PM (CDT)

i know it has been a while since i updated,but things have been busy around here.I guess you could say that.with work and all.mick is still trying to get the cars ready to race again.I went and had lunch with the girls again today.but as I said before I have been sick and not feeling well,at one point I thought I had an ulser,well it's not an ulser,it's a baby!
yes I ,we , are going to have a baby.
I found out yesterday.i suspect I'm about 1 1/2 months along.when I first found out I was angry,why did you do this to us, michael was perfect, he was all we ever wanted or needed in life.and now I realize taht we were blessed to have michael for those five wonderful years and now he will help us to do the same for this child.I'm still not feeling well but I'll see my doctor on tuesday.the dr. that delivered michael has retired. and now there is a new dr. and his wife is part of the staff and they're really neat people and we like to do alot of the same things.like go to the keys(keywest) and motorcycles.and there fairly young,so hopefully we'll have this dr. deliver this baby.well michael said (when I told him that his cancer had come back)that we could have another baby just like him,oh dear God above we could never have another Michael,and we all will miss you until we meet you at the pearly gates(and you had better be waiting there for me, your girlfriend can wait)
oh michael how could I ever love some one as much as i love you,I feel so sad and guilty your not here to see your new baby brother or sister,i justy feel guilty period going on in life without you,all I do is cry I can't stop.I still can't talk about you without crying.I have your clothes that I go to everyday and hold them and smell them.tonight I went to the g's store at the corner and there was aboy waiting on me and he said (the phone rang)thats probably my mom and than he says hello subway this is mike. and I just smiled and listen to him to talk to his mom.than went about my way.anyways I going to close for now.
MICHAEL,WE LOVE YOU AND MISS YOU,SWEET DREAMS,SEE YOU BRIGHT EYED AND BUSHY TAILED.MOMMY

Monday, September 04, 2000 at 09:19 AM (CDT)

he did at that,michael had a front row seat watching daddy on friday and saturday,thank you!yeah!go daddy go!this was something we spoke of,wishing he was there and yet he was!than i could hear him say just as plain as day "DAD IT'LL BE OK YOU CAN FIX IT!"
and he would have said that i just no it!
oh for those of you who don't know .mick blew up the motor in the amx .blew a rod.
his friend mike says MICK I KNEW YOU WANTED A BLOWN MOTOR BUT THIS IS A LITTLE CRAZY, he blew a rod threw the oil pan!ouch!.
today i have been thinking alot about you,and crying a little,the pain is easier do deal with these past few days.
still very fresh,is the day you left us and thats hard to get out of my mind.Know that you are still number one buddy and daddy is the best and i'll always be your greatest mommy.I love you !!!!!!xoxoxoxoxoxoxoxGREAT BIG "HUG"......................
THOUGH YOU MAY NOT BE HERE WITH US I CAN FEEL YOU NOW AND I KNOW YOU WILL NEVER LEAVE US.I WILL ALWAYS LOVE YOU AND MISS YOU !MOMMY!SNUGGLE BUGS!BIG KISSSSSSS!

Saturday, September 02, 2000 at 09:47 AM (CDT)

yesterday was very interesting.I had spoke to sara thursday night(I think)or was it friday morning? anyway we have been talking trying to find out some results of your autopsy, and yesterday i don't think was very good for her.she really has a lot of emotional pain with your death, first she was ok. and as time goes by she has her ups and downs,(as do so,so many of us)but as for sara this is the firt I have heard from her.anyway the dr. came back with prelimanary report and there is NOTHING.GOD HOW CAN THERE BE NOTHING! WITH IN 6 HOURS OF YOUR SHOWING SIGNS OF BREAthing PROBLEMS YOU WHERE GONE, SO HOW CAN THERE BE NOTHING,I SO CONFUSED,I just wait and see what the others bring.

same as yesterday i miss you so much.I am going to have some pictures enlarged for sara she is having the awards in Oct. so I thought I would help her gather pictures.

daddy did real well with his testing and tuning racing last night,the carborator needs some work,but he was running 83-85mpr and 8.48-8.52 ? I thinnk thats right anbd his reation times where ok. 5.^ i think around that and up but they where still good. so his dream is now a reality.He said to me last night"I wish Mike was here"so do I , so do I"!
Something I had put inito the cards I would like to share:

THE TIDE RECEDES BUT LEAVES BEHIND SEASHELLS ON THE SAND,THE SUN GOES DOWN,BUT GENTLE WARTH STILL LINGERS ON THE LAND,THE MUSIC STOPS,AND YET IT ECHOES ON IN SWEET REFRAINS...FOR EVERY JOY THAT PASSES,SOMETHING BEAUTIFUL REMAINS.
SEE YOU BRIGHT EYED AND BUSHY TAILED BABY!
WE LOVE YOU AND ACHE FOR YOU DEEPLY.
MOMMY AND DADDY.

Friday, September 01, 2000 at 07:43 AM (CDT)

here it's friday already.the week was better.daddy and uncle rod are racing this weekend,tonight as Matter of fact.That's if they can keep their eyes opened.they didn't get home until 2:30 a.m..than daddy had to be to work at 7:00 am. I bet he's sleeping in the storage room (hahaha)I was talking to sara your nurse from duke and we were talking about the day she came over and i went to block buster vidoe's and the grocery store and you and her were trying to find your walkman c.d. playerI remember coming through the door and you both asking me where it was and it was right next to the t.v. she said you still had fun jamming to baywatches theme or something like that.you really liked your c.d.player,I think sometimes this was your way of coping.it was something that made you feel whole,normal?I GUESS I'M ONLY GUESSING.well theres a bear rumbling over me it's your uncle rod he has awakened and now i bet he's HUNGRY,HUNGRY HUNGRY. TO BAD THERE'S NO FOOD IN THE HOUSE.yes, i have not gone shopping yet for food.I have thought about it.and jsut that quick its gone, well gotta go .love you and miss you mommy and daddy

Monday, August 28, 2000 at 09:30 PM (CDT)

another monday is almost past us.8 weeks now your gone.i still see you in the hospital.always wanting to do something! i'd say what and you'd say listen to my music.and than i'd get your kool c.d. player and you and i would jam out to garth brooks or dixie chicks or space jams . space jams waas our favorite. we used to drive down the streets in naples and just have the music as loud as we could and JAM
i thought everyone was looking at us, but that was ok cause we were having fun.i have video of you dancing in front of the t.v. it's so neaat to see you able to get around.boy dec 99 till july was a very tough time for us but we managed to make the best of things. we had alot of fun,we would go all around the hospital grounds and see the helicopters and the trains and all over.we could tell people how to get around. we knew the place better than most people.we went to the butterfly museaum and the life and science and we would just drive and i would ask you which way? and off we'd go. hope you sleep well to night and have the sweetest dreams. come to me if only for a moment. i beg of you. i just want to see you,i miss you. and love you cuddle bug's.mommy and daddy

Sunday, August 27, 2000 at 09:06 AM (CDT)

hi baby. monday was tough and than the days seemed to get worse and by thursday uncle rod and aunt missy and baby dill came over and stayed till friday night,uncle rod is still here.
Well monday was tough as i said and than tues. was worse and wedsnesday I think was one of my worse days yet.i didn't answer the phone and called off work until tomorrow.we did manage to stay busy through out the weekend. and went to the races on friday and sat.daddy helped mike green again last night.Ron his helper wasn't availible so guess who got to help!
and boy he loves helping.uncle rod's car should be ready next weekend to race at the track.Immokalee raceway DON'T YA ' KNOW?
we were rained out last evening but they did race some.
thursday I had lunch with jimmy's mommy,tell him I say hello,and jackie and erik,your liltte buddy,(he's doing so well michael it was hard to see him. mommy picked him up and started to cry and almost dropped him.you remember you and erik were diagnosed on the same day back in oct, of 97") and miss kim,whitney's mom and a couple of ladies form the luekemia soc. and vicki,from wishing well( oh and don't let me forgat erik's grandma,vinny ) michael i have tried so hard to be able to go on.and i have found out that unless i keep busy this isn't going to happen.so hopefully i will feel better tomorrow and be able to get an early start on the day.i just have been so ill(not really sick)i feel weak and last night i must have eaten something bad cause i was so sick,coming form every where.so we'll see how things go today.
daddy and uncle rod are at the shop already,trying to finish the rear end on the 68' amx.than uncle rod will go home from there.when mommy goes to the track i ususally sit in the van.
I cannot stand being away from daddy and than i really haven't felt good so i'll turn the a\c\ on and veg. out(hide out)but lately people know where i am.they want to keep me comp. but i just reeealy don't have any thing to say.it is just so hard. YOU WERE MY WORLD YOU CONSUMED MY WHOLE THOUGHT PROCESS AND MORE THAN 24\7 AS THEY SAY.IT WAS EVERY WAKING MOMENT AND THAN SOME EVEN BEFORE YOU WERE SICK,I ALWAYS KEPT YOU ON THE MONITERING SYSTEM IN THE HOUSE,AND AS I SAID BEFORE ABOUT THIS SYSTEM ,I COULD HEAR YOU BREATHING(THIS REMINDS ME OF A SONG)WATCH YOU SMILE WHILE YOU ARE SLEEPING AND WONDER ,AND THANK GOD FOR THE MOMENTS WE'VE TREASURED,I DON'T WANT TO FALL ASLEEP I JUST WANT TO STAY RIGHT HERE IN THIS MOMENT I TREASURE, FOREVER, I DON'T WANT TO FALL ASLEEP CUASE I'LL MISS YOU BABY AND I DON'T WANT TO MISS YOUR FACE, I DONT WANT TO MISS YOUR SMILE AND THESE MOMENT I'VE TREASURED.FOREVER MICHAEL.
MOMMY AND DADDY

Monday, August 21, 2000 at 01:14 PM (CDT)

i'm so lost.its been 7 weeks.daddy and i had really hard night last night,we cried for a long time and we just held each other.i just want you here with us.i can hardly bare this pain.I want to call work and tell them i won't be in, but I know I can't do that to my co workers,they have picked up the slack for some time now .i have been on the phone with jackie and kim today we are going to try to have lunch later this week.mondays are going to be tough.real tough,being that there mondays to begin with,we are going to have to work especially hard to get through them.
i have been crying its seem for ever.so i went to my room and in my draw where i keep your clothes and i knelt down and just screamed for a long time and it didn't HELP AT ALL.i have been trying to keep busy with finishing the cards but the computer is not being so kind to me.I'm going to try to eat something,I'll write again tonight.I LOVE YOU MICHAEL,MOMMY

Sunday, August 20, 2000 at 07:34 PM (CDT)

sunday night already.boy the weekend went by to fast.we went to the races yesterday.besides the last time,just recently,the time before that i went to the races you were with us.mike green gave you a ride in his altered that was in jan the weekend we were able to take you from the hopsital for a couple of hours at a time and i think even 2 nights( friday\saturday)you went down the track and it was the koolest thing.i hope everyday is like that day for you.i sure do miss your calling me. i try to imagin the way things are going for you.I also think that you were just so special that god wanted to spare you the pain of the world. he wanted you just the way you were.so smart,caring,polite,(for the most part)generous,giving,understanding,just untainted. you were this genuine person. you wanted everyone to be as happy as you were and have the love that surrounded you daily.you couldn't(didn't) understand. the lack of effort on somes part,but didn't comprehend their lack of trying ,you just wanted to help so that you could be a part of there lives and share with them.we had so may plans,i caan't wait to go back to the cabin.such a peaceful place.we had been gone form the house so long that this wasn't really our(mine yours and daddys) home anymore.i felt as though n.c. was and the apt. couldn't be so we chose the cabin to be the place.the place to lay your sole to rest and to be able to be with you wholly.and forever.daddy and i know that we love that place and we'll always have it and we knew how much you loved to be out doors and camp in the mountains and the cabin.
I was listening to space jams the other morning and i see you sitting on my bed in the hospital clapping your hands and just having a good ole' time.i called the nurse in that night to see you and they all started palying with your x-v racers and than they all had to get some for their kids.same when we went to the bop room mommy brought your x-v racers in again and all the kids came out of their rooms to paly with you. and they all wanted them to so their moms had to go by them some.but it was so neat to see everyone come out of their rooms to play. you wanted to go there when we didn't have to be there so you could play with your friends.
i haven't been feeling to well. i feel sick alot of the time,i think i eat once a day. just so i won't pass out. than i feel worse.i just wish that i could feel better. and yet i think i'll feel this way the rest of my life. just that it will come and go.
i'm going to say good night my sweet angel.mommy and daddy hope you have a peaceful nights sleep and i love you!hope you are finally bright eyed and bushy tailed iin the morning again.cuddle bugs!sweet dreams

Thursday, August 17, 2000 at 08:32 PM (CDT)

I FIRST HAVE TO TELL EVERYONE TO KEEP THIER FINGERS CROSSED FOR JESS.(JESS IS MICHAEL BUDDY FROM THE HOSPITAL .SHE WAS WITH US FOR 5\6 MONTHS) SHE WANTS TO BE A DOCTOR AND SHE'S TAKING THE "BIG" EXAM ON SATURDAY.YOU KNOW WE WISH YOU THE BEST.JESS I KNEW WHAT YOU WHERE FEELING BEFORE YOU WROTE. KEEP FOCUSED AND STAY STEADY. YOU KNOW MICHAEL WOULD HAVE WANTED THIS FOR YOU BECAUSE THIS IS WHAT YOU WANT.

"GOOOOOOOOOO JESSSSSSSSS WE LOVE YOU!

I'm just in from work this evening and i wanted to share somethings with you.I have been watching home videos of michael from 3 days old and, wow at one month he was trying to talk I swear.(I have it on video)it is so neat this one tape i made for my aunt jannie and I guess she never received it(woops). maybe soon.and I said tell aunt Jannie hi and he did!(HAHAHA)WHEN MICHAEL WAS BORN HE HAD EXTRA DIGITS ON HIS FINGERS(EXTRA FINGERS,THE PINKIES)one was what you would call a tag(just a small piece )and the was a normal functioning finger(what a great pianist)( my spelling is horrible)any ways.he had surgery to remove them at three months,i have a picture of him at three months SITTING-UP on my mom's lap.He was born in April and his first tooth came in on the 4th of July.(3 1|2 months old)he was walking when he was 9 months old and talking having conversations with you at 16 mo..I caught him in the peanut butter. and he says "michael's in the peanut butter"he always had this thing about when he was doing something or wanting something he would say" ahh michaels ahhh michael ahhh michaels.... and kept repeating it and I caught him trying to climb out the front screen window.He was so little and I made him climb down (almost) by himself. I said are you afraid,scared and he says "scared mommy" he says "scared" uhhhuh! mommy! and I'm laughing.he wasn't to high of the ground, just one large step.and he would be singing to the radio and tapes watching himself in the tv.and of course those times when he's sleeping so peacfully.and running threw the hose and jumping into the swimming pool,riding the back hoe and the front end loader through the yard.THEY ARE BEAUTIFUL VIDEOS.most of the time i laugh,sometimes i cry.when i hear him cry it makes me very,very upset.we really did celebrate his life from the moment he was born and before. the baby shower was great. and than the christining was to follow.the family was close for a few months after he was born and than every birthday MoM made a huge blow out.and christmas, we had to move out. but it's great to have these.I'm going to close now.and I am getting closer to sending out the beatiful cards(thank yous).almost there!
God Bless you all and michael where ever you are.until we meet again!

JESUS CHRIST HAS PROMISED TO TAKE OUR HARDSHIPS AND BRING GOOD FROM THEM.

Tuesday, August 15, 2000 at 11:07 PM (CDT)

it's now 12ish. i find myself sitting behind this computer once again at a loss for words, yet so much in my mind.it has been 5 weeks and 1 day. and ever more the pain is strong.i find myself wanting to tell every one about you and who we are not to feel the pain but to know! does that make any sense. i guess to know to thank God every day.to be able to have the choice of whether or not you want to see your child today or to make a descision that is yours that will keep!or just to know your child is in his/her bed and that you can GO AND GIVE THEM A KISS ON THEIR CHEEK!or to be able to hear there voice(OR NOT!) but these are choices that you have. now and only now!i guess i could go on but i'm tired .i have family that steals from us in our worse time of pain and yet will expect that we be there once again to pick up the peices, WELL MAYBE NOT THIS TIME!my son said to me , on his dieing bed mom i want to get a job so i can give money to paul. i wanted to cry. he wants to give money to someone who he admires who he looks up to and all i can do is cry,my precious child. thank you for your joy and your pain. you have tought me the way of life and this is the way it should be. no matter what we do we cannot change the past . but! we could enhance the future. in time we maybe able to even change it.but we have to work together.
MICHAEL I LOVE YOU !mommy

Sunday, August 13, 2000 at 11:08 PM (CDT)

ALMOST 5 WEEKS SINCE YOUR GONE.
MAY GOD GIVE US THE STRENGTH TO GO ON WITHOUT YOUR SWEET SMILE AND TENDER VOICE.MAY YOU PLAY IN HEAVEN TIL YOUR LITTLE HEARTS CONTENT.
WAIT FOR US TO GREET YOU,MY LITTLE SOLDIER.

HI ITS BEEN A FAIRLY QUIET WEEKEND.I STARTED TO DO OUR THANK YOU NOTES.WELL IT'S TURNED OUT TO BE A REAL PROJECT.EVERYTHING JUST HAS TO BE PERFECT AND I THINK I FINALLY DID IT. YOU SEE I'M MAKING THE CARDS AND THEY ARE ALSO IN MEMORY OF MICHAEL.SO THEY HAVE TO BE PERFECT.I HAVE BEEN SITTING BEHIND THE COMPUTER FOR THREE DAYS STRAIGHT NOW AND I HAVE ABOUT 100 MORE TO GO.HAHAHAHAHA!MY MOM CAME OVER TO VISIT TODAY.IT'S ALWAYS DIFFICULT WHEN SHE PULLS INTO THE DRIVE.FOR BOTH OF US.I'M EXPECTING MICHAEL TO GET OUT OF HER CAR AND COME RUNNING TO ME LIKE HE USED TOO.AND GRANDMA IS LOOKING FOR THAT GREAT BIG "GGGRRAAAAMAAA"
WELL MICHAEL WE SURE ARE NOT THE SAME.I CAN'T HARDLY GO TO SLEEP AT NIGHT.
IT'S THE LAST THING I WANT TO DO.I KNOW THAT I WON'T SEE YOU THERE AND I CAN STAY BUSY IF I'M AWAKE.GOD THE PAIN ITS SO HORRIBLE.THE DAYS ARE SOME WHAT BETTER.BUT I JUST HAVE TO KEEP GOING.YET I CAN'T BRING MYSELF TO GO ANY WHERE.I HAVE TO BE IN JUST THE RIGHT FRAME OF MIND AND IT TAKES ME ALL DAY TO GET READY TO GO TO WORK.DADDY CAME TO U.P.S. THE OTHER NIGHT AND WHEN HE LEFT I CRIED. YOU ARE ALWAYS WITH HIM.ONLY THIS TIME YOU WEREN'T.SOME DAYS I WONDER IF I'M GOING TO JUST LOOSE MY MIND.IT'S UNLIKE ANYTHING I'VE EVER FELT.I LOVE MY LIFE AND I LOVE MY HUSBAND,BUT I AM ONE OF THOSE PEOPLE WHO COULDN'T UNDERSTAND PUT YOUR SPOUSE FIRST.YOU CAME OUT OF ME YOU ARE A PART OF ME AND I'M JUST NOT WHOLE ANY MORE. OH GOD MICHAEL I WANT YOU IN MY ARMS I WANT TO FEEL YOUR BREATH AS I DID EVERY NIGHT WHILE YOU SLEPT,I WANT TO HEAR THE AIR YOU BREATH. I JUST WANT YOU HERE WITH ME.I WANT YOU BACK JUST FOR ONE MOMENT.GOD GIVE ME STRENGTH.I LOVE YOU AND MISS YOU BABY. SWEET DREAMS BIG GUY!MOMMY

Saturday, August 12, 2000 at 01:27 PM (CDT)

we made it through another week without you.God I still have come no closer to reaching any kind of understanding and I guess I may never.Its just so painful the thought of you being gone out of our liveS forever,this is one thing I can not bare the thought.FOREVER..................

THIS PRAYER JUST CAME TO ME FROM A SPECIAL FRIEND OF MY AUNT JANICE.

MICHAEL'S STAR IN HEAVEN

THERE AS A CHILD, MICHAEL HAS BEEN A VERY SICK BOY
HE NEVER KNEW HE HAD SO MANY FRIENDS FAR AWAY FROM HIS HOME
IN A PRAYER CIRCLE THEY HELD HIM UPTO THE FATHER MANY DAYS
WHEN THE FRIENDS WENT HOME PRAYERS WERE SAID FOR HIM EACH DAY
THE FATHER KNEW HE WAS HURTING ALSO HIS FAMILY THERE
THE ANGELS SAT AROUND HIS BED,TEARS RAN DOWN THEIR FACE
YOUR LITTLE BOY WAS NEVER ALONE, MANY SPIRITS WERE THERE
PRAYING SAINTS LIFTED HIM,INTO THE FATHERS ARMS
I KNOW AN ANGEL CAME FOR HIM LIFTING HIM ON A PILLOW
THE FATHER DIRECTED THEM TO BE REAL KIND TO THIS LITTLE FELLOW
THE LITTLE SOLDIER THAT HURT SO MUCH,HE WAS JUST ONLY FOUR
STARS YOU CAN COUNT THEM ARE IN HIS CROWN
THE FATHER COUNTS THEM ONE BY ONE
ON HIS CHEST IS MANY METALS GOD IS PROUD OF HIM
EMPTY ARMS OF A MOTHER AND A FATHER BUT YOU KNOW WE WILL MEET IN HEAVEN
HOW DO I KNOW THAT MY FRIENDS,MY CHILD DIED AT JUST THREE DAY
I HAD TO LET HER GO TO THE FATHER I KNOW HE WILL TAKE CARE OF THEM
ISN'T IT NICE I SEE IN MY MIND TWO LITTLE FRIENDS MEETING THERE
NO MORE PAIN OR TEARS FALL DOWN THEY WILL PLAY IN HEAVEN
DEDICATED TO LITTLE CHILDREN THAT WE HAVE SUCH A SHORT TIME
BUT MOTHER AND FATHER, YOU HAD A SON JUST REMEMBER HIS SMILE
I WILL NOT TELL YOU YOUR HURT WILL GO FROM YOUR BROKEN HEART
MINE LINGERS AND IT'S BEEN A LONG,LONG TIME AGO
THE ONLY THING I CAN TELL YOU TODAY, YOU HAVE TO GO ON
GOD TOLD US WE HAVE HOPE FOR TOMORROW,YOU WILL MEET AGAIN
HEAVEN IS WHERE OUR CHILDREN ARE*******PLAYING WITH THE ANGELS

"YOU KNOW MICHAEL WAS AN ANGELS NAME SO HE FEELS RIGHT AT HOME"

BY
MARGARET BRUESKE

THANK YOU MARGARET

Saturday, August 12, 2000 at 01:27 PM (CDT)

Thursday, August 10, 2000 at 08:51 AM (CDT)

i have added new journal entries but some how they have gone into history. i do have good news that is michaels nurses, SARA AND SANDY won the awards that we had requested they be honored for,these awards are for recognizing the nurses and friends of nursing awards. i had asked sara to send pictures of the banquet,and i will put them in the picture album,won't be any time soon .i think this is so exciting. you did it Michael! you helped the nurses earn an award! isn't that soooo kooool. i love you baby. till we meet again.MOMMY AND DADDY

Thursday, August 10, 2000 at 08:15 AM (CDT)

i just woke up and i've been crying ever since.i miss michael so much. the pain is so bad.i feel as though i will be sick.
i've been reading my e-mail.thank you to everyone.michael was our best buddy and this is just so hard to live our lives any other way.he is so special as are the other children.

NEVER LET YOURSELF SUCCUMB
TO FEELINGS OF DIVINE BETRAYAL
WHICH IS SATIN'S MOST EFFECTIVE
TOOL AGAINST US.INSTEAD,
STORE AWAY YOUR QUESTIONS FOR A
LENGTHY CONVERSATION ON THE
OTHER SIDE, AND THEN PRESS ON
TOWARD THE MARK.
"FOR THE WORD OF THE LORD IS RIGHT;AND ALL HIS WORKS ARE DONE IN TRUTH" PSALM 33:4 KJV

I HAVE SOME GOOD NEWS AND BAD NEWS ABOUT THE FAMILIES AND FRIENDS AT THE HOSPITAL.
FIRST CHUCKY AND MELANIE PASSED AWAY.
CHUCKY WAS 16 I THINK AND MELANIE WAS 21. CHUCKY HAD BEEN FIGHTING IN ICU FOR ALONG TIME (GOD BLESS YOU AND REST YOUR SOUL)TO PAULA AND CHARLES YOU NEVER GAVE UP AND THIS YOU CAN BE FOREVER THANKFUL.GOD BLESS YOU. AND TO CINDY MELANIES MOM,I KNOW THIS WASN'T WHAT WE EXSPECTED,I CAN ONLY BE THANKFUL THAT SHE IS THERE WATCHING OUR LITTLE ONES.GOD I HATE MY LIFE NOW,I DON'T WANT TO KNOW THIS PAIN.I HAVE LIVED IN THE STREETS OF MIAMI AND NOT KNOWN WHERE I WAS GOING TOMORROW BUT IS THIS THE HELL WE HAVE HEARD OF ON EARTH. WHY NOT ME?????????????????
I AM THANKFUL THAT I HAD THE CHANCE TO MEET ALL YOU WONDERFUL PEOPLE AND ALL THE BEAUTIFUL CHILDREN BUT THIS IS JUST SO HARD FOR US TO BARE.I LOST COUNT OF HOW MANY CHILDREN HAVE PASSED AT 12 AND THERE HAVE BEEN SO MANY MORE. WHEN WILL THIS STOP?WHEN WE FIND A CURE?
GOD BLESS YOU AND KEEP YOU SAFE
NEVER TAKE THINGS FOR GRANTED AS THEY COULD BE GONE TOMORROW.

Thursday, August 10, 2000 at 08:15 AM (CDT)

Tuesday, August 08, 2000 at 09:34 PM (CDT)

i just came home from work. its good to back.the days are so long though,i hope i can keep myself busy.mick is still at work.he is working on the race car.and i need brakes on my minivan.
i just don't know that i can keep up with this writing,it's almost as if i have to make up things to write about.cause i know if i write about michael i'll cry and i'm so tired.tired of crying,but at the same time i feel guilty if i don't cry.i look at his beautiful face in a picture on the wall and i ask myself why, GOD, WHY?and i think i'm starting to get angry.i just want to scream loud.......we will have to think about this for the rest of our lives and wonder, why such small children? when they have so much ahead of them.anyone actually. cancer is so bad. and so quick.we have to find a cure . we just have to.we fought here at home to make people aware to have their bone marrow tested. they had know idea how easy it is. we most continue this fight. for all the children. God bless you!

sometimes the lord
offers no explaination or
interpretation of his response
to our requests and cries,
except by inference,
"this is my will for you"

Tuesday, August 08, 2000 at 07:32 AM (CDT)

we are slowly moving in the right direction.yesterday was a very good day.i was back to work as was mick,but this is my first time back since dec.what a great bunch of people i work with. they truly are my family.the boss i have now j.b.i just don't know what i would do with out him these past 7 months.

one thing that will be hard to adjust is that our schedule was maintained around michael so now we have to be alone for those hours of the day.my hardest time is all day.I've been trying to stay busy.cleaning "yes cleaning" and today i get the honors of going to ft myers to drop off a trailer to have brakes put on and then pick it up tomorrow.but my girlfriend will drive up with me today and we'll have lunch with her husband.
i had thought about doing something with my hair,two and a half feet of hair ! its driving me crazy. but no one will cut it and when they finally do they don't do a very good job. well i have to go,take care.love to all .JANE

GIVE ETERNAL REST TO THEM,O LORD,
WHOSE SOULS HAVE TAKEN FLIGHT,
AND LEAD THEM TO A BETTER WORLD
WHERE THERE IS PEACE AND LIGHT
GRANT THEM ETERNAL FREEDOM
FROM TROUBLE,PAIN AND CARE,
AND FULFILL FOR THEM THY PROPHECY-
THERE SHALL BE NO NIGHT THERE.

HELEN STEINER RICE

Sunday, August 06, 2000 at 06:28 PM (CDT)

days are long and the nights fly by still i long to hold you. i can hardly bare the thought of you without crying.will it get easier?someone suggested that i find a counselor to speak to.i can hardly say i miss you without the tears flowing.
i saw christy,uncle red daughter yesterday at the race track.boy has she grown. and so mature when i started to cry she said its ok.12 years old. we went to the race track friday.dave went all the way to the finals and than lost by reaction time. bummer! and mike was out early.
uncle rod has given daddy a car to work on to race,it's a 68' amx.so daddy gave him the list(oh know! hope you have losts of money uncle rod.)so i guess daddy will stay busy with the race car.today was kind of lazy. we have everything put up of yours ,for now.dad has put the pictures of you on the wall in the our bedroom. well until the next time.i love you,MOM AND DAD .

Thursday, August 03, 2000 at 01:54 PM (CDT)

daddy and i just returned from ft myers. we gave the dr's office here in florida most of your things,for the other kids to have when there in the hospital.its just so strange.i still feel as though any minute your going to come to the door and everything will be the way it used to be.i miss you.i still can't stop thinking about you.every waking moment.i think of you and wonder every thing from eating to being kept clean and well taken care of. no more meds so i guess this is good for both of us.daddy has put all your special race cars and base balls and all your special cars under the t.v. in the living room. we kept all your out side toys so the family would have some toys to play with when they come visit.
i want to thank everyone for being at the service. it was so nice to finally meet some of you and others i was just glad to see,its been 6 months since we have been back to the house and theres alot that needs to be done.mick and i will go to work on monday and try to resume some routine if its possible. well i'm going to close for now .bye, jane

Tuesday, August 01, 2000 at 06:05 PM (CDT)

i am just not up to doing this i sit and wonder where you are. and how you are doing with out us. the hardest thing for me is seeing you on the day you left us.it haunts me.i see your little face so full of trust in me,and than i wonder did i do what was to be done.did i fail you.and can you forgive me?i am so sorry you are not here with mommy and daddy i wish it would have been me that had to leave so you could have done all the things you had planned in your five wonmderful years. you where going to go to school and than college and than get a great job so you could build a very fast race car. and so you could have all the wonderful things that come along with all that hard work.i know you would have had a great hand in fixing up the cabin so i will alwaaays think of you as we work.restoring it and wonder what you would have wanted we already have two beautiful trees planted very close to the porch area so when we are sad we can look at the trees and think of you running like the wind or roaring around on your tricylcle.the service at the cabin was really neat you would have enjoyed it.we had all the family around to celebrate how great our time was with you and share our fondest memories of you.we sprinkled a handful of your ashes on the rainbow trout pond and later this year we will go to the top and lay a stone or cross with your name on it so when we are there dad aand i can go visit you.michael i wish things where diferrent now but the fact remains we cannot change things. i guess i say this to tell myself to stop crying you would be so sad if you saw me crying.but i just can't.to think that i won't get to se you play little league with the other kids and watch you run ever again. to be able to hold your soft cheek to mine.to hear your sweet voice momma,"i need you", i won't get to see you on your atc or watch you have a family and have a wife a children. just all these things go through my mind all day all night,its just so hard. today has been well so far. we have everything out of your room.i set the computer up in the spare room. ddad and i deciced to give most of your things to the hospital here.books,games,toys,balls etc.i have so many things of yours that i just can't part with so i will have to have daddy build me room to store it all.all the bikers where at your service here in fl and the sheriff of collier county was there to say farewell to you and all the moms, and dr salman and debbie, and leah. and mike and all your friends and family,people that you only knew in pray. it was just beautiful uncle jimmy read some scriptures for you and aunt kathy read a poem from aunt paulette and i went up to pay you TRIBUTE as you so rightfully earned.michael i love you but you know if i don't get off this computer it will shut me down.i will see you in my dreams when its time sweet dreams until than, good night snuggle bug, or as we say see you bright eyed and bushy tailed in the morning baby I LOVE YOU.

Sunday, July 30, 2000 at 07:53 PM (CDT)

three weeks now that you have been gone. the urgency in my life is gone. i have been trying to update the page and its not letting me stay on line. please read the history . and i will update soon...........I LOVE YOU MY SWEET SWEET ANGEL.I WANT TO SEE YOU AND I CAN'T, PLEASE COME TO ME I NEED YOU,I MISS YOU AND I NEED TO SMELL YOU, I NEED TO FEEL YOU. DADDY IS HURTING SOOO BAD WE CAN'T EVEN GO IN YOUR ROOM. PLEASE SHOW ME A SIGN, I NEED YOU,MOMMA

Wed Jul 12 14:05:43(CDT)2000

JULY 10TH AT 10:15 P.M. GOD RECIEVED OUR ONLY CHILD,MICHAEL CHRISTOPHER RICE,5YEARS AND 2MONTHS WE WERE BLESSED WITH THIS VERY SPECIAL BOY.WHAT JOY HE BROUGHT TO EVERYONE WHO KNEW HIM OR WAS LUCKY ENOUGH TO MEET HIM,I REMEMBER A TIME WE WENT TO FUJIAMIS FOR DINNER, MICHAEL WAS VERY YOUNG YET.WE WERE SITTING WITH THIS OTHER COUPLE AND YOU COULD SEE THERE EYES ROLL WHEN THEY SAW THIS LITTLE BOY COMING TO EAT AT THIER TABLE.WHEN WE WERE DONE EATING THEY CAME TO MICHAEL AND TOLD HIM THAT THEY WERE VERY HAPPY TO HAVE HAD DINNER WITH SUCH A TERRIFIC LITTLE BOY THAT WAS SO WELL BEHAVED. WE ARE SO SAD WITHOUT HIM AND I KNOW THAT GOD WILL CARRY MICHAEL'S STRENGHTH TO US SO THAT WE CAN GET THROUGH THE NIGHTS AND DAYS WITHOUT MICHAEL BY OUR SIDE.
TWO DAYS HAVE PASSED SINCE YOUR GONE,I MISS YOU SOOOOO SOOOO MUCH MY HEART ACHES TERRIBLY AND I CAN'T EAT AND SLEEP WELL THATS A WHOLE NOTHER THING.DADDY FINNALLY WENT TO SLEEP LAST NIGHT VERY LATE.JOHN AND DEBBIE JOHN AND JENINE CAME IN LATE LAST NIGHT AND AUNT DEBBIE AND UNCLE JIMMY ARRIVED EARLY THIS MORNING AND RORO CAME YESTERDAY,AUNT MANDY,UNCLE CHRIS,AUNT ALI,TIM,AUNT TAMMY ,AUNT JANNIE,UNCLE ROD,GRANDMA, MISSY AND DILLON MARCEL,DAWN,LISA AND CHRIS AND A FEW OTHER PEOPLE ARE ON THERE WAY HERE TO CELEBRATE YOUR LIFE AT THE CABIN.
WE WILL LEAVE OUT OF HERE THURSDAY MORNING.
MICHAEL WILL BE CREMATED AND WE WILL TAKE HIS REMAINS TO THE PROPERTY AND HAVE A CEREMONY ON FRIDAY AROUND THE RAINBOW TROUT POND(MICHAEL OFFICAILLY NAMED THE POND OVER THE FORTH OF JULY WEEKEND)AND THAN DADDY AND I WILL TAKE THE REST OF YOUR ASHES TO THE TOP OF THE MOUNTAIN AND SPREAD YOUR ASHES , ONE LAST RIDE ON THE ATC.I ALSO WANT YOU TO KNOW THAT I AM SO SORRY FOR NOT GETTING YOU HOME TO SEE YOUR ATC ONE LAST TIME THIS IS SOMETHING THAT WILL BOTHER ME FOR A WHILE.I KNOW YOU WENT TO THE RACES HERE ONE LAST TIME.(MICHAEL WENT TO THE DRAG STRIP HERE AT WILKESBORO)AND YOU AND AUSTIN CAUGHT THE WORLD RECORD BASS THIS LAST TIME(WE DIDN'T EAT THIS ONE)AND YOU DID WHAT YOU LOVE TO DO BEST AND THAT WAS TO BE WITH AUSTIN AND GARRETT.I DO HAVE SOME VIDEO THANKS TO STEINUNN AND TONY FOR THE USE OF THE CAMCORDER..WE WILL HAVE FIREWORKS AND SCREAMERS FOR YOU AND AUNT DEB AND I WILL PLANT TREES FOR YOU(AUNT DEB WANTS TO PLANT A MAGNOLIA FOR YOU).I HAVE TO SIGN OFF FOR NOW.PLEASE IF YOU WOULD LIKE TO JION US ON FRIDAY AT THE CABIN IN ELK PARK WE WOULD LOVE TO HAVE YOU, ITS 15 HOURS FROM NAPLES AND JUST GIVE US A CALL 919-383-4639, WE WOULD LOVE TO HAVE YOU THERE TO SAY OUR SO LONGS FOR NOW TO MICHAEL!

MICK AND I WOULD LIKE TO THANK EVERYONE FOR ALL THAT YOU HAVE DONE,WE WILL BE HOME SOON TO LAY MICHAELS SPIRIT AND TO SHARE A WONDERFUL MEMEORIAL SERVICE AT ST ANNS VERY SOON (POSS. THE 23RD ISH....)

GOD BLESS YOU SNUGGLE BUG!WE LOVE YOU!

Monday, July 24, 2000 at 06:02 PM (CDT)

MICHAEL CHRISTOPHER RICE
APRIL 11, 1995 - JULY 10, 2000
How do you make your heart accept reality when the reality is unacceptable? Your mind knows the truth but can't believe it is true. The slightest memory brings pain so severe that you cannot even let the thoughts in. ^M^ICHAEL WE MISS YOU SO.
Everyone that could make it came to the mountain cabin in North Carolina to say "goodbye" to you. Those who wanted to be there and could not will be at the memorial service in Naples. Most of us gathered at the apartment in Durham for the four hour procession to the mountains where your ashes were spread. Mom and Dad placed a wreath near the rock where you sat by the pond to fish. At dusk everyone shared their beautiful memories of your short life.
Do you remember being Aunt Jannies back seat driver? When she made the wrong turn you politely told her she was going the wrong way. And Daddy teaching you to spell while you rode with him in the car.
S-T-O-P spells stop, E-X-I-T spells exit. You could barely talk, but you could spell. Mommy had your ABCs on the refrigerator and you learned to recognize the letters for what they were. To our delight one of your most favorite things was to snuggle, you always had time to snuggle with your favorite people. You were the most loving and compassionate child, you did not want to go to Heaven and leave Mommy alone and sad so you suggested that she could get another little boy like you, of course there could never be another like you. You sang like an Angel and you could run like the wind on the beach. How you loved the sunsets and the sunrise and the great outdoors from your own front yard to the mountains to the beach.
We spread wildflowers on the pond and spread seed to grow there in your memory. Did you catch the balloons we released? They were for you and the other children as I know you have a lot of friends there in Heaven, some you didn't know were there already, I bet you were surprised to see Brandy.
I know you were there in the soap bubbles that seemed to want to stay with us, they attached themselves to the trees and blades of grass irridescent and playful, so much like you staying with us until you were just not strong enough anymore.. Aunt Jannie gave everyone a sheaf of wheat, the symbol of everlasting life which is now yours. We miss you my darling. Save a place in Heaven for me close to you.
MEMORIAL SERVICES FOR MICHAEL ARE BEING HELD AT ST. ANN CATHOLIC CHURCH, CORNER OF 3RD STREET AND 9TH AVENUE S. NAPLES, FL ON SATURDAY JULY 29, 2000 AT 10:00 AM.

Monday, July 24, 2000 at 06:02 PM (CDT)

Wed Jul 12 14:05:43 CST 2000

Tue Jul 11 11:24:39 CST 2000

Watch for another star in the sky tonight. our precious angel joined the others last night. Needless to say we miss him terribly. He leaves a void that can never be filled, but the happy memories will be with us forever. Watch over us Michael and take special care of mom and dad.

Sat Jul 8 14:55:22 CST 2000

10:55 9 days after michaels relaps. the news is not promising,we are at this point hoping for that miricle to continue and keep michael here with us. it so hard to see it any other way! he is just so beautiful. he so smart yet still needs mommys help. he can tell you everyting you need and want to know about racing "any kind of racing". we are going to try to make it to the cabin again today, aunt mandy uncle chris and the kids austin michael christopher,(michael christopher,he was named after their uncles) and garrett. sorry garrett i can't remember your middle name.
well we are in the hospital now waiting for micahels palttelette to finish and for his other meds to infuse. than have the doctor take a look, he has been vomiting all night and with the runs and a slight fever, and alot of tummy pain. so i want to make sure we have everyhting we need for the weekend to be comfortable.

so heres what the doctors said we can do and are already doing.
we cut back on the anti- rejection meds till we finally stopped them.in the hopes tha the graft versus leukemia will take hold.only time will tell for the next few weeks we just have to wait and see what the blasts(cancer %) are in the blood. today hasn't come back yet,wed thru friday before the 4th. the blasts were 1,4,3, than this week they have been 7,9,12, we are not doing the count everyday, but everything else still is holding well, so come'on God work your miricles and heal michael.please don't take him away from us! please,please,please! I beg of you to hepl heal michael and restore him to full health for a while longer(long while).MAY PEACE BE WITH YOU AND NEVER STOP PRAYING FOR MIRICLES.AND FOR MICHAELS CANCER TO BE TAKEN FROM HIS BODY AND HE BE RESTORED TO FULL HEALTH.
this past week we went to the living science and life museum. it was really neat michael had a chance to see bears butterflies,wolves,we had a nice time.i have to get off of here before i get knocked off. have a great day as we will try! take care ! jane mick and michael

Tue Jul 4 20:26:56 CST 2000

HI EVERYONE,MICHAEL MICK AND I HAD GREAT TIME AT THE CABIN.MICHAEL CAUGHT THE BIG TROUT AND MICK AND I ATE IT FOR DINNER.IT WAS VERY GOOD.
THESE PAST FEW DAYS HAVE BEEN GREAT.I HAVE BEEN TRYING TO IMAGIN THE SILENCE,THIS IS SO HARD TO IMAGIN THAT THIS COULD BE OUR LAST FEW DAYS TOGETHER.I BY KNOW MEANS HAVE GIVIN' UP.BUT THEY SAY WE NEED TO BE PREPARED.I WONDER WHERE HE WILL GO AND IF HE'LL BE WITH ME ALWAYS. AND THAN I CAN'T IMAGIN THAT HE COULD BE GONE AT THE SAME TIME. HIS HEALTH SEEMS SO GOOD. BETTER THAN EVER. HE WAS LITTLE TIRED THIS WEEKEND. AND SO I FREAKED AT HIS EVERY WHIMPER. THIS IS SO HARD. WE HAVE SO MANY PLANS AND YET WE BEING STIFELED WE HOPE TO GO TO THE CABIN AS MUCH AS WE CAN. ITS ONLY 4 HOURS AND ACROSS BEAUTIFUL TERRAIN AND THE TEMP. WAS ABOUT 65-70 ALL DAY LONG. WELL I WILL TRY TO UPDATE AFTER TOMORROWS TEST.

KEEP PRAYING AND HOPE THAT WE CAN BRING MICHAEL HOME HEALTHY AND CANCER FREE BY A MIRICLE! GOD BLESS YOU ALL AND THANK YOU GOD FOR GIVIING US ANOTHER DAY WITH MICHAEL

THANK YOU ALL FOR THE KIND WORDS WE RELLY NEED YOUR SUPPORT AT THIS TIME. JANE MICK AND MICHAEL
P.S. HAPPY FOURTH OF JULY. WE HAD GREAT FIRE WORKS AT THE CABIN MICHAEL RELLY LIKED THEM.
LOVE YOU ALL, THANKS AGAIN.JANE

Saturday, July 01, 2000 at 11:24 AM (CDT)

Michael, mommy and daddy are going to the cabin for a few days. When they return the fight will start anew. Dr. Kurtzberg said she is not ready to give up yet. They have cut back on the host v graft medication in hopes of inducing the graft v leukemia cells fight, also I understand there are some donor cells still available from the original transplant that they may go ahead and give him provided the blast cell count stays down. Ideally there should be no blast cells. Chemo-therapy is not an option because it kills donor cells. Continue praying for Michael and all the children. Grandma

Friday, June 30, 2000 at 01:41 PM (CDT)

Dear Friends,
Jane has asked me to make this entry for her since she cannot get to a computer and she wants to spend as much time with Michael as she can. Unfortunately, the news is not good. The cancer cells have returned, but we will not give up. The doctors are once again giving us three weeks but they have said this before. Now we have to fight like crazy and PRAY. Hopefully we will be coming HOME soon. That is where Michael wants to be and in my heart I know it is the right place for him. Your job is to contact everyone you can and have them pray for Michael. Grandma

Sunday, June 25, 2000 at 01:35 PM (CDT)

HI! WE ARE DOING SO WELL! WE WERE ALMOST READY TO LEAVE THE HOSPITAL THIS AFTERNOON, THE NURSE SAID YOU DON'T HAVE TO WAIT FOR THE BLOOD RESULTS AND THAN JOHN CAME IN AND SAID WE HAVE AN ALERT ON MICHAEL'S PLATTELETTES (NOT TO WORRY)THEY ARE LOW AGAIN BUT WE'LL JUST GET SOME AND THAN GO HOME!WE HAVE HAD A VERY RESTFUL PAST COUPLE OF DAYS(WELL AS RESTFUL AS COULD BE EXPECTED)MICHAEL IS IN THE HALL WITH THE BOYS ON THE UNIT. WE BROUGHT UP HIS X-V RACERCARS(THEY ARE HOTWHELLS THAT HOLD A CHARGE) AND THEY ALL LOVE THEM.NOW THE MOMS AND DADS HAVE TO GO BYE THEM SOME. MICAHEL HAS BEEN SO GOOD. HE HAS BEEN SO HELPFUL TO ME AND HE IS GETTING AROUND SO MUCH BETTER EACH DAY BRINGS MORE STEPS BYE HIMSELF.

THE CYCLE OF LIFE AROUND HERE IS SO APPARENT, YOU HAVE HEARD MANY PEOPLE SPEAK OF IT BUT YOU ACTUALLY SEE IT HERE. WHAT I MEAN TODAY IS THAT MICHAEL BOWDEN'S ROOM ALREADY HAS A NEW CHILD IN THERE.I HAVE NOT TOLD OUR MICHAEL JUST YET.(ABOUT MICHAEL BOWDENS DEATH)I'M SURE IT WON'T BE LONG ,IF NOT TODAY
I SURE HOPE THAT MICHAEL BOWDEN FAMILY IS WELL. THIS WAS SOMETHING NONE US EVER SAW POSSIBLE YET WE KNOW ITS INEVIDABLE FOR MOST.

WELL WE SURE DO MISS EVERYONE SOOOO SOOOO MUCH! I EXPECT WE COULD BE HOME WITHIN A COUPLE OF MONTHS. THIS FRIDAY WE WILL TRY TO GO TO THE RACE TRACK(ORANG COUNTY SPEED- WAY TO WATCH THE FIREWORKS NOT THE RACES. WE'RE NOT ALOUD TO GO TO THE TRACK FOR THE RACES "YET" SOON.
WELL I HAVE TO GO NOW LOVE TO ALL!. JANE

Friday, June 23, 2000 at 03:19 PM (CDT)

well i thought i would have more time to update the page, but michael wants to leave. well we have not been near a computer for a while so real quick we are "NOT HOME SORRY TO SAY" we have been to see the primary dr. today and we have got to discontinue some meds and the most important one is the one that we were having trouble with. no more amphotericin! but MICHAEL IS DOING GREAT. WE HAD A LITTLE SCARE LAST WEEKEND WITH THAT AMPHO. BUT ALL IS WELL . TOMORROW WE DON'T HAVE TO GO TO CLINIC OR THE BOP ROOM OR DROP OFF BLOOD. THANK GOD WE HAVEN'T BEEN ABLE TO REST AT ALL. NOW MAYBE WE CAN ONE DAY! WELL HAVE TO GO. THE POKER RUN, KIDS GAMES ,ARE THIS WEEKEND AND THE LIGHT HOUSE DRAWING IN LABELLE. HOPE YOU HAVE A CHANCE TO JOIN THEM CALL MICK AT THE SHOP 941-597-6001 OR ABATE ITS LISTED IN THE PHONE BOOK THEY CAN HELP(I'M SORY I DONT HAVE MY PAPAER WORK WITH ME) BYE GOD BLESS.
ONE LAST THING WE NEED EVERYONE TO SAY A PRAYER FOR MICHAEL BOWDEN HE WAS 11 YEARS OLD AND LOST HIS BATTLE WITH CANCER THIS MORNING. MICAHEL YOU WILL BE MISSED GREATLY AND YOU FOUGHT SO HARD. GOD BLESS YOU AND YOUR FAMILY . REST IN PEACE OUR DARLING!

Friday, June 23, 2000 at 03:19 PM (CDT)

Saturday, June 17, 2000 at 03:36 PM (CDT)

We're going home!!!! yeah! the prayers have worked once again. thank you God!
It does look as though he was having a reaction to the amphotericin!
so we're leaving.bye
jane

Saturday, June 17, 2000 at 02:01 PM (CDT)

michael had a reaction to the amphotericin,he had the shakes so as soon as we gave him the demerol he was peeling the blankets off. another side affect is fevers so dr. martin is still considering letting us go home. he has to back in tomorrow any ways. so we'll see
PRAY PRAY PRAY.

Saturday, June 17, 2000 at 01:53 PM (CDT)

2nd entry

I think we're going to be admitted. Michael has a fever of 102.5. aunt deb and uncle jimmy are waiting to see what is going to happen. mick doesn't know yet. i'll keep you posted.I have to go michael has a headache. bye for now .jane

Saturday, June 17, 2000 at 11:09 AM (CDT)

I can tell you all now that when aunt deb and uncle jim leave I'm going to have my hands full with michael . he is already asking me why do they have to go. and they just arrived this morning at 9:00 a.m. I'm so happy to see them. the girls are so big. We are thinking of having a bbq this afternoon or go to the store to get the things that we need while we have someone here to help.
So as the story goes with the apartment.I couldn't go over to look at it until the day of the move. so when we went over it seemed to be worse than the apt we are in.I talked to the girl in the office and explained to her that we wwwwould stay here with the dehumidifier. and went back to the apt yesterday after clinic and it was gone , gone . I couldn't believe it. so now I have to go out and buy one. If it wasn't for the fact that the airconditioner isn't working properly and it is threatening my childs life. We wouldn't worry about it. OH WELL!
THE UNIT IS EITHER FULL OR DARN CLOSE TO IT! ALL NEW KIDS!
Michael bowden is having some troubles,he is on a by-pap machine(it forces air into your lungs). so pray for him.Connor isn't feeling well today.his brother and sisters and dad left today so he's very blu.Yousef is having bleeding that they can't find the main problem area.Chuckie, from what i understand the doctors asked mom and dad if they would consider taking him off the machines? I thought the same thing as they did, I suppose(no way and give up on my child) the dad said that chuckie would open his eyes from time to time and he thought that he was trying to comunnicate. at that point I wouldn't be able to give up either.Jasmine went home, HOME, THANK YOU GOD!
WELL HAVE A GREAT DAY AT THE YARD SALE AND THE CAR WASHES. HOPE YOU ALL DON'T GET TO WET. MICHAEL IS HAVING SOME TREATMENT NOW AT THE BOP ROOM AND THAN WE'LL GO FIND THE FAMILY AND JUST ENJOY THEM! LOVE TO YOU ALL! HOPE TO BE ABLE TO WRITE MORE OVER THE WEEKEND SINCE WE'RE ON THE UNIT I CAN USE THE COMPUTER HERE.! BYE. JANE ,MICHAEL, NICKI, ALEX, UNCLE JIMMY AND AUNT DEB

Friday, June 16, 2000 at 01:47 PM (CDT)

we have some very good news!!! michael is making his own plattelettes!!!!! wonders never cease.
we are not moving. i had everything ready to move, at the door ,and than i went over to check out the other apt. and it, to me seemed to be worse.so here we stay. aunt deb and uncle jim and the girls will be here tomorrow. michael is so excited. he can't wait,what's today mom? and whats tomorrow. they are coming when?? all day long.
well these are the best days we have had yet. thank you God for all you have done for michael and the family. Thank you everyone for your prayers and support.
I am sorry that I have'nt been able to keep up with the web page the home meds keep us very busy. michael is in clinic now so I have to go .LOVE TO YOU ALL. SOME OF THE KIDS HERE ARE NOT DOING VERY WELL SO KEEP PRAYING.!!!!! GOD BLESS!.JANE AND MICHAEL

Tuesday, June 13, 2000 at 04:17 PM (CDT)

HI EVERYONE , MICHAEL AND I ARE DOING VERY WELL. WE SPEND MOST OF OUR DAYS IN THE CLINIC.TODAY WE WERE ABLE TO LEAVE FAIRLY EARLY. WE GOT HOME TO THE APT AROUND 2:OO ISH.JESS CAME OVER SO I COULD COME OVER AND TYPE IN THE WEB PAGE.
AUNT DEB AND THE GIRLS ARE COMING SAT. AND WE SHOULD BE ABLE TO SOME THINGS.ITS REAL TOUGH BEING HERE ALONE AND ITS BEEN SO HOT WE CAN'T GO OUT IF THE APT.TILL LATER IN THE EVENING.IF WE'RE HOME IN TIME. OTHER WISE I START HIS MEDS.AND THATS IT FOR THE DAY
WELL EARL SHOULD BE EITHER ON HIS WAY TO MARTY AND JOANNS(THEIR GRANDSOON FROM COLORADO) OR THERE ALREADY. I KNOW MICK AND TONY COULD USE A HARD WORKING MAN LIKE YOU THERE.
CAR WASH WAS DELAYED IN NAPLES THIS WEKKEND AND THE YARDSALE IS COMING UP SOON THERE WILL BE 2, ONE ON STANHOPE CIR.OFF OF RADIO RD.? I THINK. IN MAYWOOD! AND THE OTHER IS AT THE GOLDEN GATE COMMUNITY CENTER.CALL LISA FOR DETAILS 354-0755 OR IF YOU WANT TO HELP.WELL HAVE TO GO BAck TO MICHAEL AND JESS. HOPE THE RAIN HAS HELPED THERE. I KNOW IT IS MUCH NEEDED. HAVE A GREAT EVENING WE LOVE YOU ALL AND WE ARE A DAY CLOSER TO COMING HOME. JANE

Tuesday, June 13, 2000 at 04:17 PM (CDT)

Sunday, June 11, 2000 at 11:42 AM (CDT)

SIGN THE PAGE PLEASE

Michael wants to tell everyone Hi! and that he is doing very well. we don't need platelettes today,tomorrow most likely.Mick will be going home tomorrow and Michael an I get to spend all day at the clinic.Michael will have several I.V. meds for a while .Which will keep us on daily visits to the clinic...voriconozole,amphotericsin,azithromycin and solumedrol.(to translate..the first 2 are the anti -fungle the next is an antibiotic and than the steriods)than he gets more by mouth.most are given in the morning.he has nefedipine for blood pressure,atigall(for liver complications),trimox(because he hasn't any spleen)vitamins(the only normal and most none complicated)flinstones chewables,urdisol(diuretic for releaseing fluids)methadone,(for pain and and they are giving this to him so he doesn't have withdrawl from the original pain medications)acyclovir(antibiotic),atenolol(heart medication, for the s.v.t.,tacyacardia)and lets see if I can remember the rest of them...cyclosporine this I have know idea about.I think it has something to do with the non-rejection of grafting the cord blood transplant,diural another diuretic.Ithink this is all of them.I actually don't mind giving him his meds, its time consuming and it keeps us busy through the day. All though I would like to sleep in JUST ONE DAY thats all I ask,ONE DAY!
well Connor is doing about the same today and so is Michael(Bowden)than Chris who was transplanted around the same time as Michael,we think he should get to go soon and Tory, she will be transplanted tomorrow, and Nate he is in michael's old room,(WHERE THE GAURDIAN ANGELS ARE)ROOM 3, he is on day 3. What a bunch of special little kids, and just so tough.When I grow up I want to be just like them!!!!!! GOD BLESS EACH AND EVERYONE OF THEM. GROW CELLS GROW
Have a great day and don't forget to call Lisa for the yard sale and stop by T&D auto for entries for the HAND MADE LIGHT HOUSE DRAWING.ALL PROCEEDS GO TO MICHAEL. PLUS THIS IS A GREAT WEEKEND TO GET TOGETHER TO RIDE..... RIDE..... RIDE.....!!!!!! I WISH WE WERE THERE TO HELP. NEXT YEAR WHEN MICHAEL IS BETTER WE WILL HELP IN MANY WAYS.
THANK YOU GOD FOR THIS DAY WITH MICHAEL AND FOR ALL YOU HAVE DONE FOR THE KIDS.
LISA ALSO SIAD SOMETHING ABOUT A CAR WASH THIS WEEKEND! GO GET YOUR CAR WASHED!!!!! IF YOU LIVE IN NAPLES FL. TO REACH LISA CALL HER AT 354-0755 SHE NEED ALL THE HELP SHE CAN GET!!!!! THANKS .JANE
DON'T FORGET TO SIGN THE PAGE. PLEASE....BYE

Saturday, June 10, 2000 at 01:35 PM (CDT)

We had a great night. we bbq'd chicken and sliced potatoes and corn on the cob. The best part was we caught fire flies(lightening bugs) and put them into a pickle jar!REMINDED ME OF WHEN I WAS AKID WE USED TO GO TO MY AUNT MILLIES IN EERWIN PA. AND CATCH THEM WITH ALLLLLLL OF OUR COUSINS) It was just sooooo fun! Michael and Mick are very tired today. Mick is actually sleeping in the bop rooM (the treatment room)while we are getting our meds infused. Jess and her friend Dan came over and Ed, Chris' dad. what fun. we were running a little late it wasn't until 8:00 when we got out to the bbq area. Michael feel asleep before we could go. and then woke up after Jess got there.Michael,Connor and Chris are in the bop room together(while mick is sleeping)and Lydia,Connors mom gave them each a water balloon. well we'll be done her soon. than michael won't need any meds until 6 or 7p.m so we'll talk to you later or tomorrow. HAVE A GREAT DAY! JANE MICK AND MICHAEL

Friday, June 09, 2000 at 03:40 PM (CDT)

WE ARE AT THE APT.! MICHAEL WAS RELEASED TO OUTPATIENT STATUS. WE HAVE HAD THE AFTERNOON TO DO NOTHING! WE WILL BEGIN MEDS HERE REAL SOON. THE AIR-CONDITIONING IS STILL A PROBLEM BUT THEY ARE WORKIING ON IT AND HAVE BEEN REALLY NICE ABOUT IT. IF THERE'S NOT A CHANGE SOON WE WILL MOVE TO ANOTHER APT. THE 15TH IS THE SOONEST AVAILIBLE. MICHAEL IS SO HAPPY THAT WE ARE HOME(SO TO SPEAK) AGAIN I AM GOING TO GET THROWN OUT OF HERE AND PROBABLY SOONER THAN 5:00 THE GIRLS ARE GOING AWAY FOR THE WEEKEND.
I WANT TO SAY CONGRDULATIONS TO MARY SHE IS GRADUATING FROM NAPLES HIGH!. GREAT JOB MARY! AND COLLEEN YOU SHOULD BE SO PROUD.I MADE AN ERROR. THE BALL THAT WAS GIVEN TO MICHAEL FROM THE WORLD SERIES THAT WASN'T. WAS FROM MY UNCLE MIKE.I TRULY AM SORRY. THERE ARE ALWAYS SO MANY THINGS I AM SUPPOSE TO REMEMBER AND I CAN'T.(TO WRITE INTO THE WEB PAGE) I DID REMEMBER JUST NOW THAT LISA IS HAVING A YARD SALE BENEFIT FOR MICHAEL REAL SOON AT THE GOLDEN GATE COMMUNITY CENTER. ANYONE WHO WANTS TO DONATE THINGS. OR HELP LISA SHOULD CALL HER AT 354-0755(IN NAPLES) IT WILL BE SOON! I DON'T THINK AN ACTUAL DATE HAS BEEN SET JUST YET.LISA I CAN'T THANK YOU AND CHRIS ENOUGH FOR ALL THAT YOU DO AND ARE STILL DOING. MICK IS GOING TO COME HOME TO NAPLES ON MONDAY I THINK! SO KEEP YOUR EYES OPEN WELL I HATE TO GO BUT ITS TIME. I GAVE WENDY SOME MOVIES TO PICK OUT FOR ME SO WE HAVE SOME TO WATCH TONIGHT.I TOLD HER I WAS KEEPING HER TIL 7:00 PM THEY LAUGHED. HAVE A GREAT WEEKEND. AND A BLESSED ONE. BE SAFE AND PRAY FOR THE CHILDREN ALL OVER THE WORLD. JANE MICK AND MICHAEL

Thursday, June 08, 2000 at 04:40 PM (CDT)

HI EVERYONE.
MICHAEL AND I WENT DOWN TO HAVE AN ECHO DONE THIS MORNING.OF COURSE WE WON'T HAVE THE RESULTS UNTIL TOMORROW BUT WE DO GET TO GO HOME YEAH!!! THE ONE THING I DIDN'T MENTION WAS THAT MICHAEL'S HEART WAS ENLARGED. NOT TO WORRY, THE PERSON WHO DID THE ECHO SAID THAT HIS HEART LOOKED GOOD! HIS NAME WAS WOODY. THE ONLY ONE WHO WOULD DISCUSS THE PROCESS AND SAID ALSO THAT IT LOOKED NORMAL(NOT TO TAKE THIS FOR GOSPEL)SO WE WILL GET DISCHARGED TOMORROW AND GO HOME ON ALOT OF MEDS AND HAVE TO GO TO THE CLINIC EVERYDAY FOR A WHILE. MICK IS THINKING OF GOING HOME VERY SOON. HE HAS TO TEND TO THE SHOP. ONE OF THE GUYS IS GOING ON VACATION,AND TONY NEEDS HELP.
WELL CONNOR IS GOING THROUGH THE PROCESS OF TRANSPLANT,FEVERS AND ALL, NOT FEELING WELL AT ALL. I AM ASKING THAT WE ALL PRAY FOR THE KIDS HERE AND ASK GOD TO HELP THEM MAKE IT THROUGH THIS. THE OTHER MICHAEL HAS BEEN HAVING SOME SET BACKS BUT IS DOING BETTER TODAY. THANK YOU GOD! AND JASMINE HAD HER SINUS SURGERY THIS AFTERNOON, SHE WILL BE AT THE HOSPITAL WHEN WE GET BACK. WE NEED ALL THE PRAYERS HERE THIS WEEK. NOT THAT THE KIDS ARE DOING BAD BUT THEY'RE HAVING SOME COMPLICATIONS. PLEASE LET GOD BECOME CLOSER TO THEM SO HE CAN HELP GUIDE THEM THROUGH, SO THEY CAN GO HOME.
I AM AT THE APT OFFICE NOW. TOMORROW WE ARE GOING TO HAVE A BBQ. JESS OUR BUUDY WILL HELP AND MAKE POTATOE SALAD AND WE ARE GOING TO HAVE CHICKEN WITH T-SANG(SAL AND DAWN THANKS FOR TURNING US ON TO THIS)ITS A TERIAKI SAUCE YUM!YUM!
OH I FORGOT TO MENTION THIS KOOL THING MICHAEL GOT FROM HIS "GREAT" UNCLE MIKE. IT IS A BASEBALL FROM THE YEAR THAT THERE WASN'T A WORLD SERIES. I THINK IT WAS 1994? IS THAT RIGHT? I SHOULD HAVE ASKED MICHAEL AND MICK THEY KNOW BETTER THAN I DO. WELL GOTTA GO THE OFFICE IS CLOSING . LOVE TO YOU ALL SIGN THE PAGE! .JANE.
SORRY FOR THE ERRORS IN SPELLING.
I WAS LITERALLY THROWN OUT OF THE OFFICE.
SO I HAD TO HURRY AND FINISH

Wednesday, June 07, 2000 at 12:27 PM (CDT)

we are still waiting to see if we'll get to go to the apt.the doctors are down stairs reading the ct scan and reviewingthem with the radioligist and i think other doctors to reach an agreement as to what is going on with michael's lungs and the scans. i as his mother hace had these intinctual feelings , i'm not quite sure what this means but none the less i am very concerned. if i had to say now the past few days yesterday and today he is doing better but tires very easily(not uncomon,but different)His moods have been very good. we have this saying everynight before we go to bed(simple but our own)see you bright eyed and bushie tailed in the morning and michael has lived up to those words every morning these past few days.
I just found out that connor has lived in belgium before and "YES,THIS IS OUR CONNOR HERE AT DUKE" WOW JUST AMAZING! I was just talking to lydia connors momy and she was telling me..... when we lived in belgium.... i went wait no way..hold on I was speachless, so I showed her the web reading. now the saying goes wht a small world we live in and heres proof. no matter where you are ,no matter how far you are, we are all really still so very close in our hearts and our minds! it just has me bewildered. connor and micahel (well i think connor likes me better) are becoming close friends (when michael comes out of his room to play)but connor is 6 and micahel is 5 and yousef is 4 and than the other michael is 11.
So anytime now we should know if we wil get discharged or not(or at least when)dr. driscoll said tomorrow most likely. well gotta go the french fries are done. LOVE TO YOU ALL BYE!JANE

Tuesday, June 06, 2000 at 08:50 AM (CDT)

THIS MORNING I COULDN'T WAIT TO FIND OUT THE RESULTS TO THE CT SCAN. WHEN I SAW TRACEY KELLY I ASKED HER ABOUT THE SCANS AND SHE SAID WE'LL TALK LATER, SHE WAS STANDING A THE NURSES STATION AND SHE DIDN'T WANT OTHERS LISTENING.I WALKED INTO THE HALLWAY AND SHE SNUCK THROUGH THE DOUBLE DOORS AS THEY WHERE CLOSING AND WE TALKED ALL THE WAY DOWN TO THE 3RD FLOOR,. I WANTED AS MUCH INFORMATION AS POSSIBLE. I DIDN'T CARE WHERE I HAD TO GO, (AND THAN DOWN TO THE CAFETERIA.) SHE SAID THAT THE RIGHT SIDE IS ALMOST CLEAR(THE LUNGS)(THANK YOU GOD)THE LEFT SIDE BOTTOM(WHERE THE FUNGUS ORIGINATED)LOOKS WORSE BUT THAT DOESN'T MEAN THAT THERE'S PROBLEMS. IT COULD BE THAT THERES A POCKET WHICH WOULD HAVE TO BE DRAINED OR THAT THATS WHERE ITS GATHERING AND COULD BE LESS THE NEXT SCAN(IN A COUPLE OF WEEKS OR LESS)SO ONLY TIME AND GOD WILL TELL.PLEASE DON'T LET IT GET WORSE. THEY ARE DOING EVERYTHING THEY CAN TO CONTROL IT AT THIS POINT AND IF IT DOESN'T GET BETER, WELL I'M NOT GOING TO GO THERE.
WELL I CAN'TREMEMEBER IF I TOLD YOU THAT WE FOUND THE RACE TRACK HERE IN ORANGE COUNTY. ALL THE KIDS WANT TO GO WITH MICHAEL WHEN HE GOES AND THEY ARE ALL OUT OF TRANSPLANT. ONE DOWN CRAIG WENT HOME YESTERDAY(TO THE APT)YEAH CRAIG AND FAMILY!!!!! WAY TO GO !!!.
WE LOST ABOUT THREE MORE KIDS THESE PAST FEW WEEKS. AMY WAS JUST THE OTHER DAY. SHE WAS 16 ALSO. AND THAN WE LOST DALTON 10 MONTHS OLD AND BRITTON SHE WS ALSO 10 MONTHS OLD. BRITTON HAD BEEN HERE MOST OF HER LIFE.AMY WAS DOING WELL AND THAN SHE ENDED UP IN P.I.C.U. FRIDAY THE DAY WE WENT ON THE RADIO AND THE NEXT MORNING SHE WAS GONE, SHE HAD A LONG BATTLE AND FOUGHT LONG AND HARD FOR 7 YEARS, DALTON WAS HERE A LONG TIME ALSO. HE WAS MOST AMAZING. I THOUGHT HE WAS GOING TO PULL THROUGH JUST AS HE DID THE OTHER COUNTLESS TIMES. I REALLY AM NUMB. AT THIS POINT ITS HARD TO JUST CONCENTRATE ON MICHAEL. THESE FAMILIES ARE A PART OF US ,GOOD OR BAD, HAPPY OR SAD. ITS HARD NOT TO GET INVOLVED. WELL I GUESS IF I JUST STAYED IN OUR ROOM. BUT YOU KNOW US WE CAN'T DO THAT. THEY NEED US JUST AS MUCH AS WE NEED THEM.
WHAT I AM GOING TO DO IS KEEP CLOSE TABS ON MICHAEL THIS TIME OUT(SOON) THE APT. WE'RE IN IS HAVING PROBLEMS WITH THE AIRCONDITIONING SYSTEM. ITS VERY WET AND MOIST.I DON'T LIKE THAT AT ALL. IT HARBORS ALOT OF GERMS. SO I TOLD MICK TO TAKE CARE OF IT.FOR THE MONIES THAT ARE BEING PUT OUT THEY WILL FIX IT I'M SURE OTHER WISE I SICK MEGHAN ON THEM( HAHAHAHAHA )SHE IS OUR CHILD LIFE SPECIALIST. WELL THE PRAYER WILL COME IN DUE TIME. THANK YOU TO THE LADY WHO WROTE IT AND THANK YOU AUNT JANNIE FOR HAVING SUCH COMPASSIONATE FRIENDS. WE LOVE AND MISS YOU ALL! HAVE A GREAT DAY. JANE

Monday, June 05, 2000 at 07:32 PM (CDT)

WAIT TILL YOU SEE THE PICTURES WE TOOK OF THE BOYS HERE TODAY MICHAEL,YOUSEF,MICHAEL BOWDEN, AND CONNOR THEY ARE GOING TO BE SO GREAT. ALL THE BOYS ON THE BONE MARROW TRANSPLANT UNIT. AND SOME OF THE NURSES. THEY WERE ALL PLAYING CHECKERS TODAY AND THAN WENT DOWN TO THE END OF THE HALL TO PLAY AND THAN WE RELIZED THIS WAS A GREAT OPPORATUNITY TO CATCH THEM ALL TOGETHER, SO WE SNAPPED PICTURES,BUNCHES OF THEM.
I STILL CAN'T TELL WHAT IS HAPPENING WITH MICAHEL HES HAS BEEN DOING SO WELL TODAY AND THAN I PUT THE PULSE OX ON HIM AND THE DARN THING READS ONLY 90 HE SHOULD BE AT 99-100 SOME WHERE IN THAT RANGE.SO THE NURSE PUT OXYGEN ON HIM WHILE WE ARE BOTH OUT OF THE ROOM AND HE DECIDED HE WANTED TO GO TO SLEEP. BUT IT HAS BEEN A REALLY GOOD DAY HE WAS VERY BUSY PLAYING AND DOING THINGS. I'M SURE HE WILL SLEEP WELL TONIGHT. NOW IF I COULD ONLY GO TO BED EARLY ALSO. WELL LAST NIGHT I WAS IN BED AFTER THE TELETHON WAS OVER AND THAT WAS AROUND 7:30 AND STAYED IN BED UNTIL 9:00AM. WHEN I RELIZED THAT THE CLOCK WAS FLASHING I JUMPED OUT OF BED (THE ELECTRIC HAD GONE OFF SO I THOUGHT IT WAS HIM BUT IT WASN'T)BECAUSE THE MAINTENECE MAN WAS TO COME AT 9:00. AND DIDN'T SHOW TILL LATER. SO I GOT UP AND DID CLEANING, THANK YOU GOD!I WAS STILL IN MY JAMMIES. BUT AT LEAST I HAD A CHANCE TO CLEAN UP A LITTLE.
WE HAD A REALLY GOOD DAY YESTERDAY ALSO. 3 MILLION DOLLARS AND 208 MILLION NATION WIDE CAN YOU BELEIVE IT A NATIONAL RECORD!!!!!! UNBELEIVEABLE! THANK YOU ALL FOR YOUR HELP IN TAKING CARE OF THE PEOPLE WHO NEED IT. I FOUND OUT THAT EVEN IF YOU SAW THE TELETHON IT WAS ONLY LOCAL IN YOUR AREA, UNLESS WE WERE AROUND THE CLINIC WHERE THEY WERE BROADCASTING FROM DUKE, DURING THE SPOT WITH DR. KERTZBURG (WHICH WE WEREN'T )YOU COULD HAVE SEEN US,BUT WE WEREN'T SO YOU DIDN'T GET TO SEE US. I DIDN'T SPEAK I JUST WAVED TO MICHAEL. I CALLED HIM ON THE PHONE CAUSE THE PHONES WEREN'T RINGING FOR US AND THAN I WAVED TO HIM SO HE COULD HEAR ME TOO.IT WAS SO FUN.THAN WE WENT ON PASS FOR THE AFTERNOON.
WELL WE HAD A CT SCAN DONE TODAY. TOMMOROW WE'LL HAVE THE RESULTS BACK TO THAT. PRAISE TO GOD FOR EACH DAY WE HAVE HERE AND MICHAEL IS DOING WELL! I CAN'T IMAGIN HIM BEING WORSE, BUT YET I STILL AM SO WORRIED THAT SOMETHING ISN'T RIGHT. I STILL HAVEN'T PUT THE PRAYER IN.I DO PROMISE I WILL.ITS JUST THAT ALL THE FAMILIES HERE ARE USING THE COMPUTER AND I AM NOT THE BEST TYPEIST ESPECIALLY IF I HAVE TO READ FROM (O.K. AND SPELLER)SOMETHING. NOW 3 TIMES I HAVE BEEN KNOCKED OFF LINE AND LOST EVERTHING SO I WILL TRY TO DO IT IN THE MIDDLE OF THE NIGHT WHEN NOBODY WILL NEED THE TIME ON THE COMPUTER. I PROMISE!!!!!!! ITS A GREAT PRAYER AND IT NEEDS TO BE HEARD. SOON!!!! LOVE TO YOU ALL. JANE MICK AND MICHAEL

Monday, June 05, 2000 at 11:16 AM (CDT)

3,000,000 raised here at DUKE AND 208,000,000 RAISED NATIONALLY GREAT JOB EVERONE . THANK YOU! GOD BLESS EACH AND EVERYONE OF YOU! MICHAEL IS MUCH BETTER .I'LL UPDATE LATER. JANE

Sunday, June 04, 2000 at 09:49 AM (CDT)

good morning everyone, Michael is doing ok today. His tummy has been hurting on and off for the past couple of days so far it passes with zantac but it was back this morning which has me worried,but time will tell. HERE ARE THE PHONE NUMBERS I PROMISED FOR THE CHIDRENS MIRACLE NETWORK 1-877-501-4559 OR 1-919-684-3000, AGAIN WE WILL BE THERE FROM ABOUT 11:30- TIL ABOUT 2:00p.m. Hope to hear from you this afternoon. Please "GIVE" even if its just a dollar. We need this research to continue, REMEMBER IF IT WASN'T FOR THE EXPERIMENTAL DRUG THAT MICHAEL RECIEVED HE "WOULD NOT BE HERE TODAY" HAVE A GREAT DAY! GOD BLESS YOU! JANE

Saturday, June 03, 2000 at 09:38 PM (CDT)

I COULDN'T REMEMBER WHAT I HAD WRITTEN EARLIER IN THE PAGE. SO I WENT BACK TO READ. I AM NOW FEELING SOME REAL EMOTIONS THESE PAST FEW DAYS AND I'M NOT SURE WHY. WE HAVE A FRIEND OF THE FAMILY,WHO LOST HIS DAUGHTER A COUPLE OF DAYS AGO. SHE WAS 16 AND WAS HIT BY A CAR, BY A GIRL TALKING ON HER CELL PHONE. HER CAR WENT OUT OF CONTROL AND PINNED HER AGAINST A TREE AND KILLED HER. YOU KNOW AFTER ALL WE HAVE BEEN THROUGH WE ARE HERE AND WE KNOW WHAT IS GOING ON. I CAN'T IMAGIN LOSING A CHILD IN ANY WAY SHAPE OR FORM BUT THIS REALLY HAS TO BE THE HARDEST WAY . SO UNEXPECTANTLY(JOHN ACTUALLY SOLD ME MY FIRST CAR.) I HAVEN'T SEEN THEM IN MANY YEARS BUT THE PROBLEM IS I FEEL THERE PAIN MORE SO THAN YOU CAN UNDERSTAND.I DON'T EVEN UNDERSTAND IT. PLEASE JUST NERVER TAKE YOUR CHILDREN OR ANYONE YOU LOVE FOR GRANTED ENJOY THEM AND LOVE THEM FOR EVEY MINUTE THERE IS IN THE DAY. IT IS SOMETHING I TRY EVEN NOW TO DO. BEING SO FAR AWAY FROM HOME ITS SO HARD TO KEEP UP WITH MY FRIENDS AND FAMILY AND THIS TARES ME A PART. AND MICK AND MICHAEL. BUT REMEMBER THAT THEY ARE THE ONLY FAMILY YOU HAVE AND FRIENDS ARE SO HARD TO COME BY. WHEN WE HAD THE CHANCE TO GO HOME BEFORE WE CAME HERE THAT WAS WHAT I WANTED TO DO NOT GO OUT TO DINNER ,NOT TO GO HOME, I WANTED TO JUST SEE OUR DEAR DEAR FRIENDS JOHN AND DEBBIE. HAVE A GLASS OF WINE AND LIGHT A FIRE AND JUST SUT AND ENJOY THEM( SAL AND DAWN ALSO ) WE HAD CHINESE FOOD AND MICHOLBOBS RIBS(YES ROD WE HAD MICHOLBOBS) NOW I COULDN'T KEEP MY EYES OPEN BUT THAT WAS OK. I REMEMBER THE WARMTH OF MY FRIENDS AND THE SUPPORT THAT THEY GAVE US AND THATS WHAT REALLY COUNTS IN LIFE. MEMORIES THAT WILL LAST FOREVER.
NOW TOMORROW IF YOU WILL ENJOY YOUR FRIENDS AND FAMILY EVEN IF IT IS TO GO THROUGH AN OLD PHOTO ALBUM OR CALL THEM SINCE YOU WHERE GOING TO LAST WEEK ANYWAYS. AND ALSO JOIN US FOR THE TELETHON."THE CHILDRENS MIRACLE NETWORK" I THINK IT IS ON C.B.S. I WILL PUT A PHONE NUMBER IN A.S.A.P.. I KNOW I DID SAY I WAS GOING TO PUT THE PRAYER IN BUT IT HAS BEEN SO BUSY HERE AND NOW I HAVE TO GO AGAIN BUT I WILL AS SOON AS I GET TO THE APT TOMORROW OR SOONER. GOD BLESS YOU ALL HAVE A GREAT SUNDAY. LOVE TO YOU ALL . JANE MICK AND MICHAEL

Saturday, June 03, 2000 at 04:42 PM (CDT)

well lets see where do i begin. it has been the most interesting few days. emotions are flying all around me. well yesterday was the radio interveiw and than tomorrow is the telthon,THE CHILDRENS MIRACLE NETWORK, ME AND A COUPLE OF MOMS FROOM THE FLOOR WILL BE ANSWERING PHONES BETWEEN 12:00 AND ABOUT 2:00 until michael get his pass . yes i said pass.WE WILL ALSO BE ON T.V, I will put some make-up on and fix my hair because its national t.v. (not really that reason but because i feel like it, finally) we have been getting passes the past two days thats why i haven't been able to write and i did put the prayer in and i lost it so i will put it in later tonight when theres know one around.LAST BEFORE I CLOSE MICHAEL'S X-RAYS CAME BACK EITH MARKABLE IMPROVEMENT THE DR SAID NOT TO EXPECT THIS BUT THATS JUST WHAT THEY SAY ALL THE TIME, SO WE EXPECT SOME TIME NEXT WEEK WE'LL GET TO GO BACK TO THE APT. TALK TO LATER! THANK YOU GOD AND EVERYONE FOR YOUR PRAYERS. JANE

Thursday, June 01, 2000 at 09:27 AM (CDT)

HI THERE, WELL I WENT OFF YESTERDAY AFTERNOON FOR AWHILE IT WAS NICE JUST TO GET OUT AND DO SOME WINDOW SHOPPPING. MICHAEL IS ABOUT THE SAME, HOPEFULLY WE'LL HAVE X-RAYS TODAY AND WE'LL KNOW BETTER AS WHAT TO EXPECT, HE HAD HIS BREATHING TREATMENT THIS MORNING AND THE THERAPIST SAID HE HAD TO PUT HIM ON THE OXYGEN, BUT WE THINK IT WAS JUST A FLUKE, THAT THE PULSE OX WASN'T SCURED PROPERLY. HE HAS BENN SO CUDDLEE... I WAS SITTING IN THE FAMILY ROOM WITH HIM YESTERDAY AND WE WERE SNUGGLING AND ROCKING BACK AND FORTH . I WAS TELLING ONE OF THE MOMS JUST NOW THAT IT USED TO BE, AT HOME,I'D HAVE TO GRAB HIM AS HE RAN BY TO GET A HUG ,"LET ME GO MOM I'M DOING SOMETHING GOTTA GO GO GO" WELL I HAVE A PRAYER THAT SOMEONE WROTE FOR MICHAEL THAT I WILL PUT IN LATER AND TELL YOU ALL HOW THE X-RAY IS THAN TOO.
HI AUNT JANNIE AND UNCLE KEN AND GRANDMA, AND TO JULIE AND EVERYONE WHO HAS BEEN WRITING "IN THE WEB PAGE, LET ME KNOW HOW YOUR FAMILY IS DOING , THIS IS NOT THE END OF THE WORLD HERE.I AM NOT SAYING HOW YOUR LIFE IS NOT IMPORTANT TO US, BECAUSE IT IS. EVEN IF ITS JUST THAT YOU HAD A BAD DAY OR A NEW KITTEN OR YOU WERE FIGHTING WITH YOUR , WHOO EVER. WE LIKE TO HERE FROM YOU IT VERY IMPORTANT TO US THAT THERE IS NORMAL THINGS GOING ON OUT THERE, LIKE MY BEST FRIEND OF 20 SOME YEARS SHE HAS ALWAYS BOUGHT FORD ESCORTS AND NOW SHE FINALLY BOUGHT A MAZDA 626, SHE WAS AFRAID TO TELL ME , BUT IT MADE ME SO PROUD TO KNOW THAT SHE DID IT. SHE IS SINGLE AND TWO KIDS AND DID THIS ON HER OWN( GO TAMMY! ) WE LOVE YOU ALL AND MISS YOU SOOOOOOOOOO SOOOOOOOO MUCH AND THIS IS OUR LIFE LINE TO YOU SO PLEASE PLEASE USE IT! HAVE A SPECTACULAR DAY. AS WE WILL!!!!!!!!!!!!!! JANE

Wednesday, May 31, 2000 at 07:52 AM (CDT)

hey there! i asked the nurse sandy about some of the high readings in michael's blood work and she had to go ask the doc. well when she came back she said that theres a great possibility that michael is making his own platelettes and red blood cells, and very large cells from what i can understand, now don't get your hopes up to soon. lets take one day at a time, but none the less we are well on our way to recovery. i expect that we could be back in the apt by next week sometime if all goes the way it has. today the hospital is having a telethon, for the childrens miricle network, they want a few of the families to talk on the radio(yes they asked me and yes i'll be doing a spot over the weekend)i will try to get michael into the mode,i know he could do a good job he if set his mind to it. michael is still sleeping now. he slept in my bed last night and i slept in his , with one eye open , i didn't want anyone poking me with needles or trying to do breathing treatments on me. anyways have a fantastic day, the weather is better this morning , a little cold abot 58 or so, bye.

Tuesday, May 30, 2000 at 08:54 PM (CDT)

i was siting here looking over the past entry and i had someone talking to me when i was in the family room so i thought i would take a few minutes to tell you more about michael and him hitting me. its one of those moments where you don't really know what to do.i can tell you this, that this one incident took me off gaurd, but my heart smiles when michael fights with me because i know this is his way of release . i also know that this is unacceptable behavior, and i also know that this is what is keeping him alive( in more ways than we'll ever know)these kids have to have this kind of fight in them other wise they won't make it. but still on the other hand. I don't want him going around hitting everyone and thinking that i'm soory is ok.but like in said its the steroids. and i have heard other moms speak of there kids doing the same thing. one broke her foot when kicking her brother (i won't mention any names) and i knoe she is the sweetest and most respectful and tolerant child i know, she let michael climb all over her when she was so very sick(GOD LOVE HER) and others through trantrums and hit there parents , i think its becaaaaaues they have this stuff built up inside them(not just the meds) and this is there only release.
well on the flip side. the kids are having there ups and downs here again. we have a boy whos a little older and he's hasn't been doing to well, i spoke to his mom tonight and she said he is a little better, and than another baby whos not doing to well. and than connor who had his transplant today( one of michaels buddies )the other micahel has still been walking the halls as much as he can. he really is a fighter. adn then a couple of brand new families and more on the way. there is a 15 month old in michaels old roon his name is nathaniel. little Nate. and than there masiey she is 4 months old . they were at the hospital where michael was originally diagnosed and treated at ashville with the wonderful dr betty and his staff at mission memorial(st josephs)and then theres another teenager, and one on the way, i met there family yesterday. such nice people, i think i have more true friends here and hope to keep in contact with you all for the holidays and for michaels HOME COMING PARTY you are all invited. we will give plenty of notice. the whole city of naples is invited also. i have enough crayons and markers and paper to keep probably all of Florida busy. well i am going to watch judging amy now take care have a great day! GOD BLESS YOU ALL..............JANE,MICK AND MICHAEL

Tuesday, May 30, 2000 at 04:14 PM (CDT)

HI EVERYONE!!!! THE DOCTORS WHERE IN A WHILE AGO, THE GOOD NEWS IS MICHAEL CAN COME OFF THE OXYGEN!!!! THANK YOU GOD, ANOTHER GREAT THING YOU HAVE DONE FOR ALL OF US. HE HAS BEEN DOING VERY WELL THESE PAST FEW HOURS AND THE LUNGS SOUND ALOT CLEARER. THE MEDS ARE WORKING. THE DOC. ASKED US WHAT DO WE THINK IS WORKING AND I THOUGHT THAT
WAS A VERY INTERESTING QUESTION, I SAID WELL IF THE VORICONOZOLE WORKS THIS QUICKLY THAN THATS WHAT IT IS AND IF ITS SOMETHING ELSE THAN THE TIME FRAMING WOULD BE THAT ITS NOT WHAT THEY THOUGHT IT WAS AND WAS JUST A COLD (SO TO SPEAK)BUT AS I REFLECT ON THE PAST FEW MONTHS I RELIZE THAT ONCE HE CAME TO DUKE THEY STARTED MICHAEL ON THE VORICONOZOLE AS SOON AS WE GOT HERE AND RIGHT AWAY HE WAS DOING BETTER! SO YES IT COULD WORK THAT FAST.SO FROM NOW ON MICHAEL WILL HAVE THE VORI. I.V. AND THIS IS THE WAY IT WILL BE FOR A FEW MONTHS, MAYBE LONGER. HE IS STILL VERY TIRED SLEEPING ALOT BUT I GUESS THIS IS A LITTLE BREAK FOR BOTH OF US . THE HOME MEDS WERE REALLY KEEPING ME BUSY(WHICH I NEEDED) AND NOW I'M DOING NOTHING AGAIN.AND I WILL HAVE TO CHANGE THE SCHEDULE WHEN WE RETURN HOME TO THE APT. BECAUSE THEY DIDN'T START THE MEDS AS I TOLD THEM THEY WHERE ADMINISTERED AT HOME. OH WELL!!!!!!!
HE IS MY LITTLE PREDNISONE HEAD(IF YOU KNOW ABOUT STERIODS, THAN YOU KNOW WHAT I MEAN)MICHAEL SMACKED ME IN THE FACE TODAY SO WE HAD A LITTLE SHOW DOWN AND I WON OF COURSE! I'M SORRY MOMMY!
HE SMACKED THE NURSE,(TRACY SHE IS THE NURSE PRACTICIANER)SQUARE BETWEEN THE EYES. SO I HAD TO DO SOMETHING BECAUSE SORRY "JUST DON'T GIT IT". ANYWAYS HE SAID MOMMY I AM SORRY, I SHOULD KISS IT. BUT I WAS SO UPSET. THAN OF COURSE IT TAKES ME TO WHETHER OR NOT HE HAS BECOME TO SPOILED???? WELL I WAS ONLY TICKELING HIS LEG AND WHAM#$%^&* MY HEAD AND EYE STILL HURT.THIS SHOULD BE FUN TRYING TO GET THROUGH THIS PART, WELL HAVE A GOOD DAY GOD BLESS YOU! JANE

Tuesday, May 30, 2000 at 09:19 AM (CDT)

HELLO EVERYONE, I THINK I MAY HAVE SAID SOMETHING TO THE AFFECT THAT MICHAEL ISN'T ON OXYGEN, BUT HE IS STILL , THE DOC. WANTED HIM TO STAY ON THE OXYGEN SO HIS LUNGS WON'T GET TIRED. BUT HE IS SEEMING TO SLOWLY GET BETTER "SLOWLY" AS THE NIGHT BEFORE LAST HE WAS BREATHING RAPIDLY AGAIN AND HIS RESPIRATIONS WENT INTO THE 70'S BUT THIS MORNING HE IS ON 1 1/2 % O2 AND HIS RESP. ARE IN THE 35-38 RANGE ,NOT EATING AGAIN BUT WE'RE TRYING. WELL I CAN'T STAY IN THE FAMILY ROOM TO LONG. I HAVE ALREADY BEEN TALKING TO OTHER PEOPLE AND THAT HAS LIMITED MY TIME HERE, HAVE A GREAT DAY! AND KEEP PRAYING, AS WE ARE. LOVE TO ALL JANE MICK AND MICHAEL.

Monday, May 29, 2000 at 03:38 PM (CDT)

YEAH! ITS BACK UP. MICHAEL IS ABOUT THE SAME TODAY. A LITLLE TIRED. WE HAVE BEEN SLEEPING ALL AFTERNOON. MICHAELS BUDDY JESS HAS BEEN TO THE SHORE ALL WEEKEND AND SHE IS NOW HOME SO SHE'LL BRING US PIZZA LATER TONIGHT. WELL I HAVE TO GO THE DOC. ARE HERE. I'LL WRITE FIRST THING IN THE MORNING. OR MICK WILL WRITE TONIGHT. GOD BLESS AND PRAY FOR THE KIDS

Sunday, May 28, 2000 at 09:24 AM (CDT)

goodmorning everyone. michael is still about the same, his mood is still very good and waiting for the race to begin today. i just came to the hospital after a good nights sleep at the apt. when i woke it was dark so i thought it was still early,than the phone rang it was michael . he wanted to make sure i didn't forget his race cars. you see mick and michael line the cars up on the bed as to which order they are on the track during the race....1st...2nd....3rd and so on .you get the jist of it. so if he doesn't have all the cars he won't be able to line them up right(words from michael)micahel just came down to the family room with me to say "HI TO EVERYONE" now he found videos so he'll probably want to go back to watch them. Mick went to get himself some breakfast. MICHAEL WANTS TO SAY MORE BUT HE JUST DOESN'T KNOW WHAT TO SAY SO I GUESS WE'LL HAVE TO CHECK TO SEE WHOS BEEN WRITING . HE DID SAY HE WANTS TO SAY HI TO HIS FRIENDS 'HI FRIENDS'. WELL I'M GOING TO CLOSE FOR NOW SO HE CAN SEE THE ENTRIES LOVE TO YOU ALL. MICHAEL SAID I CAN BREATH WITH OUT MY OXYGEN MOM!......BYE FOR NOW .............................................JEFF GORDON COLORS ON THE SCREEN...
MICHAEL WANTED ME TO ADD THAT HE DOESN'T WANT SILLY STRING AND CONFETI PLEASE.

Saturday, May 27, 2000 at 12:11 PM (CDT)

2nd entry ....It is 1:10 p.m. michael is trying to rest. His breathing is different each time i look and i will drive myself crazy if i'm not careful. Dr. Kertzberg was in first thing this morn. She says they are not going to do the bronc. they think its to risky. Michael is coughing up the same things that they would need for the scopeing anyway so they will test this.(he has his own spittune) we can only pray that this is not fungus. and that doesn't mean that they have done all they can for fungus, but it still doesn't ease my mind that he has been on these meds for the fungus and it has come back with avengense so to speak. he is very tough though and he will pull through this. i really don't know what to think at this point, he has gotten worse in the past couple of days.I kept telling the dr. that he had a cough and they would just send us back to the apt. but hines sights 20/20???? i wish i would have done or said something more now that i think of it. Michael has been resting most of the day so far. i will get him up and a bout soon to see how he really feels. they will do chest x-ray everyday til they will be able to see a change. if theres a noticeable change for the worse than they'll know better either way. which is good i guess. but we'll know which way to go. i think it will be better after todays treatments,i hope god willing he will recoop and this is just something viral .I'll write again soon.Jane

Saturday, May 27, 2000 at 07:54 AM (CDT)

hello to you! well I'm not sure which is scarier(is that a word)being here again or michael being here again. He seems to be ok so far,but i do think we don't have time to wait until monday to do test to see where he stands, his breathing went to a rapid pace from yesterday afternoon to now, i think if wew were to wait til monday things could be real bad. the good news is that he is holding with out having to have oxygen this morning .his breathing is still very labored. 29-50 resperations per minute and the heart rate is better this morning also it was around 140-147 at times through out the night and now its 110 or so. we'll see what happens here after the dr comes to see michael.i'll try to write again later,one more thing we are pushing for a broncoscopy a.s.a.p.

Friday, May 26, 2000 at 06:21 PM (CDT)

minor set back, michael was addmitted today for lung problems. we are in the hospital now. we have him on oxygen .but this is only because his sats are low ,his spirits are good. and he seems to being handleing it well, mick and i are off to the apt. to gather some things . i'll write again later. pray nthat the fungus hasn't come back and that we'll be out at the apt. again real soon. jane mick and michael

Thursday, May 25, 2000 at 10:53 AM (CDT)

TORNADO WARNINGS THIS MORNING OF COURSE WHILE I'M IN BRUGGERS BAGLE SHOPPE.WELL IT CAME IN LIKE GANG BUSTERS AND WENT OUT EVEN FASTER. BUT THEY ARE KEEPING THE KIDS IN THE BACK ROOMS UNTIL IT COMPLETELY PASSES(AT THE CLINIC). WE ARE IN MOST LIKELY FOR PLATELTTES TODAY BUT MICHAEL HAS HAD BLOOD IN HIS COUGH.I THUOGHT IT MIGHT BE FROM THE NOSE BUT HE HAS BEEN DOING A REALLY GOOD JOB "NOT"PICKING BUT THE NURSE JUST SAID THAT IT COULD STILL BE FROM THE NOSE, WE'LL KNOW BETTER LATER. HE ALSO WAS FEELING A LITTLE PUKEY', AND HIS TEMP HAS BEEN HOLDING AT 99.6,THIS MORNING AND HE SAID HE WASN'T FEELING WELL, BUT ONCE I GOT HIM UP AND MOVING HE SEEMED TO BE DOING BETTER. WELL I AM GOING TO CLOSE FOR NOW AND I'LL WRITE LATER THIS WEEK. JANE MICK AND MICHAEL

Tuesday, May 23, 2000 at 01:39 PM (CDT)

a long day so far and its not over, we came to the clinic at 9:00 and michael needed platelettes and blood and iv ig,imunoglobin? and than we haven't seen doctor kertzberg yet,. Mick had his port out this morning and all is well, he is in a little pain,cause they stuck there foot to his chest and yanked the port out(just kidding) i said something like that in front of michael yesterday and he was looking at me like is she for real?Michael is doing very well he is soooooo happy daddy is here and so am I. we had fried chicken for diner with mashed potatoes and asparagas. yum,yum! jess came by and helped with dinner and dishes, and back to work for me . the meds are an all day thing . never ending but as i said before we are just so glad to be in our own place. well have to get back to clinic. i'm trying to be patient but its not easy when you have things that have to be done by a schedule and you don't have that schedule with you. have a good night talk to you all soon. Jane Mick and Michael.

Monday, May 22, 2000 at 12:06 PM (CDT)

Hi, michael is doing very well, today was really good no platelettes needed yet. This was kind of a good day for michael so far,I explained to michael about the children who passed away while we were here, and our dog brandy who died the day we came here. He was very sad and cried a bit, and said he would pray for the children,(his friends) and that he will miss them ,I explained that god is taking care of them now. this was tougher on me I think. He is just such a bright child. I wish I could write more but I am being yelled at I want to go mom, bone head , love to you all,jane and michael.

Sunday, May 21, 2000 at 12:39 PM (CDT)

hi everyone , micahel is geting plattelettes as i write . we went down to the cafeteria for lunch and sat in the garden while we ate. life out side is great. we have alot of meds to contend with but this is not a problem, a little scary at times but we're coping. we have to be in clinic at 8:30 a.m. so we can be first in and first out. mick will be here at 5:30 monday evening. we can't wait and than jess our buddy has been helping some so not to worry we getting along just fine. when we return home. i start getting the meds together for the next doses and that takes all afternoon, i do the 5,6,7,8,9, and 12:00 p.m. meds and than get the iv. meds set up for the evening T.P.N. AND THE SOLUMEDROL AND THE GROWTH FACTOR, G.C.S.F than i'm done about 3 hours later and doing the mommy things inbetween, he really has been so good, a little impatient but trying so hard. MR PICKER IS BACK AND HE WILL BLEED IF MICHAELS NOT CAREFUL, SO I HAVE TO WATCH HIM CONSTENTLY. I TELL HIM HE'S ACTING LIKE A 2 YER OLD MOMMYCAN'T LEAVE HIM FOR TWO MINUTES WITHOUT COMING BACK TO BLOOD ON THE SHEETS OR SOMETHING. than i have to threaten him to take something away from him (i'm so mean) i really can't get him to stop, this is what i mean about him being back stubborn, boy is he !!!!!. well got to go michaels mr picker is here. have a great day!!!!
JANE AND MICHAEL

Saturday, May 20, 2000 at 12:25 PM (CDT)

hi there everyone, we are at the hospital today for "OUT PATIENT CARE" BETTER THAN BEING IN THE OUT PATIENT CLINIC,BECAUSE WE KNOW EVERYONE! SO MICHAEL CAN PLAY AND OF COURSE HAVE HIS PICTURE TAKEN WITH THE OTHER KIDS, HE IS GETTING PLATTELETTES AND THAN WE GET TO GO BACK TO THE APT. YEAH!
WELL THESE PAST COUPLE OF DAYS HAVE BEEN GREAT, THERE IS A REAL WORLD OUT THERE WAITNG FOR US! ITS NICE TO SEE OTHER WALLS BESIDES THE HOSPITAL WALLS.
AS I LAY IN BED AT NIGHT I AM SO THANKFUL FOR EVERYTHING AND ALMOST IN DISBELEIF.
I AM THANKFUL FOR ALL OF YOU AND THE BEAUTIFUL DAYS I HAVE WITH MICHAEL.BECAUSE OF YOU AND YOUR PRAYERS.I AM THANKFUL THAT GOD LISTENED TO ALL OF YOU AND GAVE ME MY CHILD FOR ANOTHER DAY. I AM THANKFUL FOR THE KINGSIZE BED THAT I SNUGGLE WITH MICHAEL IN AT NIGHT AND I AM THANKFUL FOR MY AUNT HELPING ME GET EVERYTHING FOR THE APT. AND I AM SO VERY THANKFUL FOR MY MOTHER, NOT MANY PEOPLE HAVE THE OPPORTUNITY TO HAVE THERE MOTHER THERE WITH THEM TO HELP WITH THERE CHILD IN SITUATIONS LIKE THIS OR EVEN FAMILY.WE ARE THANKFUL FOR OUR FAMILY WHO HAVE COME HERE AND HELPED WITH THE SUPPORT. I AM THANKFUL TO HAVE HAD MY HUSBAND BY MY SIDE WHEN THINGS WERE TOUGH. AND I AM SO THANKFUL FOR THOSE WHO DIDN'T KNOW US, NOW WE HAVE THIS HUGE FAMILY, WHICH I MISS DEARLY. THANK YOU ALL FOR BEING THERE FOR US!
WELL I WILL TRY TO KEEP YOU POSTED AS MUCH AS POSSIBLE .IT IS GOING TO BE HARD SINCE WE ARE GOING ALL DAY AND THE OFFICE CLOSES AT FIVE P.M.(THATS WHERE THE COMPUTER IS) SO WE WILL DO OUR BEST. HANG IN THERE! WE ARE ALL DONE SO WE ARE GOING GALAVANTING??????
GOD BLESS YOU "ALL" WE LOVE YOU HAVE A GREAT DAY, AS WE WILL !!!!!!!!!!
REMEMBER THE ADDRESS IS AT THE BOTTOM OF THE PAGE AND SO IS THE PHONE NUMBER AND THE BEST TIME TO CALL IS AFTER 6 PM . JANE AND MICHAEL. DADDY WILL BE HERE MONDAY AND HE WILL HAVE HIS PORT TAKEN OUT ON TUESDAY!. BYE!

Wednesday, May 17, 2000 at 09:53 PM (CDT)

well it is now 10:55 we have been back in the room since 9:05, and i have not stopped taking things down off the walls, and i am still not done. michael is radiant, i hope to get a picture in the web page of michaels discharge. so far so good .things are going as scheduled .we have all the meds all ready to go home on .(i have to pick them up on our way out)the home health came to the apt today and i was and still am so tired that i thought i wasn't going to be able to follow so michael helped me through my flushing his lines and changing his caps on his lines, well he did most of it. than he started getting real silly, and that was making me confused. which wasn't hard to do.. i am sitting in the family room with other moms, and hope things are going to go well for them. we know that things can be tough around here and i have been there done that so to speak and i am telling them go with your instincts, follow your heart i have been told many times you are the childs advocate, if you don't say something no matter the situation "WHO WILL" speak up say what you are thinking! so they get mad, big deal! at least you have spoken! ALWAYS FOLLOW YOUR HEART!
WE WILL BE IN THE APT AT AROUND 11:00.
SO THIS IS HOW THINGS WILL WORK ON FIRDAY , WE HAVE TO DROP OFF BLOOD WORK ,I WILL DRAW BLOOD FROM MICHAEL AND THEN I WILL HAVE TO BRING THEM TO THE CLINIC AND DROP THEM OFF AND THAN WAIT FOR A CALL TO SEE IF WE HAVE TO COME IN OR NOT AND HE WILL HAVE TO HAVE PLATTELETTS FOR A WHILE EVERYDAY, HIS PLATTE. DROP REAL LOW TODAY THEY WERE 3 . I WAS JUST TOLD THAT WANT TO SEE IF HE CAn MAKE HIS OWN.THAN WE WILL COME IN FOR TRANSFUSIONS, AND IF HE HAS ANY OTHER PROBLEMS THEY WILL EITHER GIVE ME HOME MEDS OR THEY WILL DO IT AT THE CLINIC OR WE COULD BE ADMITTED.
SO I HEARD THEY DO HAVE A COMPUTER AT THE APT. COMPLEX SO I WILL BE USING THAT AS SOON AS I FIND IT AND GET SETTLED. WE WONT HAVE ANY THING TO DO TOMORROW AND THIS WILL BE THE ONLY DAY WE WONT HAVE TO GET UP EARLY, FOR A WHILE SO WE WILL ENJOY THE DAY. WHAT EVERWE MAY BE DOING. MICHAEL'S AUNT JANNIE BOUGHT MICHAEL A KOOOOL KOOOL WAGON IT HAS RUBBER WHEELS THAT YOU CAN PUT WHEELS AIR IN. IT IS LIKE A LIMOUSINE. IT HANDLES THE BUMPS GREAT. HE JUST LOVES IT. WELL GOD BLESS SEE YOU SOONER THAN YOU THINK.
OH THE ZIP CODE IS 27705 LOOK AT THE BOTTOM OF THE PAGE. LOVE TO ALL. JANE

Monday, May 15, 2000 at 08:38 PM (CDT)

WHAT A DAY. DAY 40.
.
.
. WE WILL BE DISCHARGED
ON THURSDAY THE "12th"
.
.
WE WILL STILL HAVE TO MAKE DAILY VISITS TO THE HOSPITAL, AND I WILL BE DRAWING BLOOD AND INFUSING ALL HIS MEDS AT THE APARTMENT. HE WILL GO HOME ON ALOT OF DIFFERENT PRESCRIPTION MEDS. THIS IS GOING TO INTERESTING. BUT ANOTHER CHALLENGE FOR BOTH OF US. WE WERE OUT OF THE HOSPITAL FOR ABOUT 5 HOURS TODAY MICHAEL FINALLY GOT TO TAKE A NAP IN HIS NEW APT. MY AUNT JANICE AND I MOVED EVERYTHING FROM THE MOTEL THERE THIS EVENING WHILE GRANDMA STAYED WITH MICHAEL. THE REAL CHALLENGE COMES MOVING THE THINGS FROM THE HOSPITAL. AND GETTING ALL THE RACING STUFF OFF THE WALLS AND CARDS AND SUCH. WE WILL PUT TOGETHER A SCRAP BOOK OF EVERYTHING. THIS WILL KEEP US OCCUPIED. THE APT IS GREAT. I DO THINK THIS IS ALREADY HELPING MICHAEL IN HIS RECOVERY AND ANYONE WHO MAY NOT AGREE SHOULD JUST SEE HIM!!!! ONLY THING IS HE WANTS TO WALK AROUND LIKE HE USED TO AND ITS JUST NOT POSSIBLE. HE TRIED AND HE WENT OUT OF SIGHT FOR ONE SECOND AND FELL.THANK GOD HE DIDN'T HIT ANYTHING, BUT HE DID BRUISE HIS LEGS AND HIT HIS HEAD ON THE CARPET AND BOY DID HE CRY, I THINK HE WAS NOT ONLY SCARED BUT DISAPPOINTED IN HIMSELF. I TRIED TO REASSURE HIM THAT HE WILL HAVE HIS STRENGTH BACK ,BUT NOT RIGHT AWAY.
WE RECEIVED THIS COOL PACKAGE FROM OUR FRIENDS AT ABATE, THE HOG AND THE CAR HE JUST THOUGHT WAS THE NEATEST, HE WANTED THAT CAR SO BAD. AND MICKEY YOUR THINGS THAT YOU GOT FROM MASH BASH,HE LOVED THEM.I JUST THINK YOU ARE THE SWEETEST TO THINK OF MICHAEL.HE LOVED THE ERASER WITH THE MOTORCYCLE. AMY I RECEICED THE MAIL TODAY THANKS.
WELL WE WENT TO THE MOTEL AND JUST HUNG OUT FOR THE DAY. HE WANTED TO DO SOMETHING BUT HIS LITTLE BODY WAS JUST TO TIRED. HIS WHITE CELL COUNT WAS 18.6 ALL ON HIS OWN TODAY. I WAS ASKED BY A FRIEND ABOUT THE COUNTS AND THERE AGAIN I FORGET TO EXPLAIN. THE WHITE CELLS SHOULD BE BETWEEN 3.8 AND 14.0. THE REASON MICHAELS ARE SO HIGH FIRST WERE BECAUSE OF MICKS CELLS, BUT NOW THERE GROWING ON THERE OWN AND HE WON'T RECEIVE MICKS CELLS ANYMORE UNLESS THERES A PROBLEM. AND ALSO HE GET SHOTS THAT HELP THE WHITE CELLS TO GROWWWWWW! HE IS STILL HAVING TO BE TRANSFUSED WITH PLATTLETTE DAILY AND RED CELLS FROM ABOUT EVERYOTHER DAY OR SO. HE HAS HAD A LOT OF MEDS D.C.'d (DISCONTIUED).THE DEFIBRATIDE WAS FOR THE VENO-OCCLUSIVE DESEASE AND SOME ANTI-BITOICS AND ALOT WENT PO. (BY MOUTH) LOOKING FORWARD TO THOSE BILLS. I REALLY HAVE HAD ENOUGH OF THE HOSPITAL SCENE. SOME FAMILIES(PARENTS) ARE GETTING ON MY NERVES.(WHOOPS DID I SAY THAT) "IT IS TOUGH".
WELL THAT'S ENOUGH . I AM HUMAN!
THANK YOU GOD FOR WHAT YOU HAVE DONE FOR MICHAEL AND OUR FAMILY, I WILL NEVER TAKE THE FAMILY FOR GRANTED. WE WILL SPEND AS MUCH TIME WITH THEM AS POSSIBLE FROM HERE ON OUT.
WE HAVE A NEW ADDRESS AND PHONE NUMBER AND THIS WILL PROBABLY BE THE LAST FEW ENTRIES HERE THESE NEXT FEW DAYS AS WE DON'T HAVE A COMPUTER AT THE APT. SO I WILL GO TO THE LIBRARY WHEN I CAN. THE ADDRESS IS.... RICE.........................
..........1300 WHITE PINE DR.............
.................UNIT 1303..............
..............DURHAM,N.C. 27710 ??? I AM NOT SURE OF THE EXACT ZIP. I WILL GET IT And make sure. GOOD NIGHT AND SLEEP WELL.
AFTER THURSDAY WE WILL ALSO!

Sunday, May 14, 2000 at 07:35 PM (CDT)

WHAT A MOTHERS DAY TO REMEMBER FOREVER!
MICHAEL IS RESTING NOW AFTER A LONG FOUR HOURS. WE FIRST WENT TO LUNCH AT AN OUTDOOR RESTURANT,WE WERE THE ONLY ONES THERE,IT WAS 2:30 GRADUATION DAY HERE AT DUKE. THE LADY AT THE RESTURANT GAVE MICHAEL EVERYTHING AND ANYTHING HE WANTED. SHE WOULD NOT LET ME PAY FOR LUNCH.SHE HANDED ME HER CARD AND SAID YOU HAVE A FRIEND IN DURHAM! I HAD TO HOLD BACK THE TEARS!WE WENT TO THE APT, MODEL TO LOOK AND SHOW JESS, THAN WE DROVE AROUND.I LET MICHAEL POINT THE WAY,BY THE BASEBALL STADIUM,FOOTBALL FIELDS,WATCHED GUYS PLAY VOLLEYBALL, THAN WE WENT TO THE MOTEL ROOM TO GET THE DUCK FOOD AND OFF TO THE GARDENS WE WENT, MICHAEL,ME AND JESS, WHAT A FANTASTIC DAY, THANKS JESS FOR HELPING, WE NOT ONLY FED THE DUCKS BUT THERE WHERE BIG OLE'CAT FISH,DOZENS OF TURTLES AND COUNTLESS OTHER KINDS OF FISH,GEESE AND DUCKS.JUST THE PERFECT DAY. WE HAD MET UP WITH GRANDMA AND AUNT JANNIE JUST AS WE WERE LEAVING THE GARDENS, YOU SEE THE FOOD WAS ALL GONE FOR THE DUCKS SO IT WAS TIME TO GO. SO WE CAUGHT THEM IN THE PARKING LOT AND THEY FOLLOWED US TO THE MODEL. THEY WILL HELP US GET SETTLED TOMORROW. WELL AS I SIT HERE AND REFLECT UPON THE DAY, ALL I CAN SAY THANK GOD. AS I WALKED WITH MY CHILD TODAY THROUGH THE GARDENS, DURING LUNCH AND WATCHING THE VOLLYBALL PLAYERS, I AM JUST IN AWH OF HIM. THE STRENGTH HE HAS CARRIED WITH HIM ALL THESE MONTHS IS AMAZING. WHEN ADAM PETTY DIED I RELIZED THROUGH MICHAEL THAT HE DID AND DOES KNOW ABOUT DEATH, I JUST HAVEN'T BEEN THE ONE TO TELL HIM. I CAN HONESTLY SAY I THINK HE HAD SOME WAY OF RECOGNIZING IT, HOW DO YOU TALK TO A 2 YEAR OLD AND THEN WHEN HE WAS 3 AND 4 AND THAN HE WAS SICK SO FAST AND SO BAD OFF THAT WE BELIEVED THAT IF WE SAID ANYTHING TO HIM HE WOULD HAVE LOST HOPE. I TRULY BELIVE THAT MICK AND I DID THE RIGHT THING. HE HAS PROVEN TO US!IF YOU COULD HAVE SEEN HIM TODAY MAKING NOISES LIKE LITTLE BOYS DO. HIDING WITH JESS IN THE CLOSET OF THE APT.PLAYING AND BOUNCING ON THE BED PRETENDING THEY WERE SLEEPING. JUST A... GIGGLEING. AND WAVING TO GRANDMA AND AUNT JANNIE THROUGH THE WINDOW OF THE VAN, I JUST AM SO THANKFUL. THESE ARE THE BITTER SWEET MEMORIES THAT JACKIE SPOKE OF. FIND THE TIME TO ENJOY YOUR KIDS ACTUALLY WATCH THEM PLAY, LOOK AT THE EXPRESSIONS ON THERE FACE THE GLEAM IN THERE EYE WHEN THERE SMILING,WATCH THEM AS THEY LEARN ABOUT THINGS THAT OTHER PEOPLE ARE TELLING THEM, WATCH THEM AS THEY THROW A PEICE OF BREAD TO THE DUCK AND THE DUCK GRABS IT OR THE FISH JUMPS OUT OF THE WATER AND AS THE TURTLES CAME FROM ACROSS THE LAKE,WATCH THEM!SEE HOW IT WILL MAKE YOU SMILE. LAY ON THE GRASS, SMELL THE PLANTS AND THE BEAUTIFUL ROSES IN BLOOM AND THE FRESH SMELL IN THE AIR, REMEMBER IT CAN ALL BE GONE IN AN INSTANT. I THINK EVERY CHILD SHOULD BE SPOILED TO AN EXTENT SHOW THEM THE WAY AND THEY WILL LEARN AND BE THANKFUL. THESE ARE THE BITTER SWEET MEMORIES! HAPPY MOTHERS DAY! .JANE

Sunday, May 14, 2000 at 12:10 AM (CDT)

sunday 1;45 a.m.
DAY 39,
THANK YOU FOR HELPING US GET THROUGH THE DIFFICULT TIME!
...........HAPPY MOTHERS DAY!..............
....OF ALL THE RIGHTS OF A WOMEN THE GREATEST IS BEING A MOTHER..............

I KNOW ,I KNOW, WE JUST HAD TO MUCH FUN TODAY. WHITE COUNT IS THROUGH THE ROOF 21.9.
WE FOUND AN APT. WE WILL HAVE A NEW ADDRESS THERE SOON, AS OF MONDAY WE CAN START MOVING THINGS IN.WE WILL HAVE HELP TO PAY FOR IT FROM THE NATIONAL CHILDRENS CANCER SOCIETY.MICHAEL DID REALLY WELL. WE WENT TO GET THE APT, AND HE WALKED WITH ME TO GO INSIDE AND LOOK AROUND.WE PLAYED GAMES THIS MORNING TO TRY TO GET HIS MIND OFF OF WHEN 3 O'CLOCK WAS GOING TO ROLL AROUND. FROM THE MINUTE HE WOKE. WHEN ARE WE GOING TO HAVE PASS MOM? AND DROVE THE NURSE CRAZY BOY!WE WENT TO MCDONALDS TO GET FRENCH FRIES AND A POWER RANGER TOY AFTER THE APT. AND THEN WE WENT TO THE MOTEL. IT WAS A 2 HOUR PASS AND WE GET TO GO AGAIN TOMORROW.THE NURSE THAT CAME ON TONIGHT SAYS I HEAR YOU'LL BE GETTING OUT NEXT WEEK? SO I GUESS THEY ARE PLANNING ON DISCHARGING MICHAEL AS A MATTER OF FACT SHE JUST WALKED BACK IN AND CONFIRMED THAT WE ARE ON THE CHART TO BE DISCHARGED.THANK YOU JESUS. WE WILL HAVE ALOT OF MEDS TO GIVE AT HOME,LIKE HIS NUTRIENTS ANTIBIOTICS AND OTHER MEDS THAT THERE TRYING TO START GIVING BY MOUTH, THE T.P.N.(NUTRIENTS) RUN NOW FOR 18 HOURS AND SOME OTHER MEDS RUN OVER A HALF HOUR TO A FEW HOURS. TOMORROW AUNT JANNIE AND GRANDMA WILL RETURN FROM PITTSBURG SO WE'L WAIT FOR THEM TO GET HERE SO THEY CAN HELP US GET AROUND,OR NOT. WELL I'M GOING TO GO TO BED. HAVE A GREAT MOTHERS DAY. I THINK THIS WILL BE THE BEST MOTHERS DAY I'VE EVER HAD. I FOUND MYSELF CRYING AS WE WALKED TO THE MOTEL THIS AFTERNOON. ITS THE FIRST TIME MICHAEL HAS BEEN OUT SINCE THE END OF MARCH. I HAVE TO TELL YOU SOMETHING, WHEN WE WENT DOWN TO GET THE MINI VAN, THE HOSPITAL WAS HAVING THE OPENING OF THE CHILDRENS NEW PLAY AREA AND THE DOC.(DR MARTIN) WAS THERE AND SAW US WALKING ABOUT,HE SAID THAT IT WAS GREAT TO SEE AND WISH HE COULD HAVE SAID SOMETHING, IT WAS ALL THE PEOPLE WHO DONATE TO THE HOSP. WHO WHERE BY INVATATION ONLY HERE AND HE SAID THE TIMING WAS JUST BEAUTIFUL SEEING WHY AND WHERE AND WHAT YOUR MONEY IS USED FOR.GOOD NIGHT!
FOR THOSE OF YOU WHO MAY NOT HAVE HEARD, KYLE AND PATTIE PETTY'S SON ADAM DIED YESTERDAY, HE WAS 19 YEARS OLD. I CANNOT MAKE HEADS OR TAILS OF THIS. HERE THEY CAME HERE TO TRY TO HELP AND CRYING OVER OUR CHILDREN AND NOW GOD HAS THERE OLDEST SON. May You give them srength to call upon You in there greatest time of need GOD BLESS!

Friday, May 12, 2000 at 06:29 PM (CDT)

2nd entry day 38

the doctor came by and i wasn't here again. i had walked to the family room to see what i had to eat. HE WAS STANDING OUT SIDE THE DOOR. I SAID" HI WHATS UP? HE SAYS HOWS A PASS FOR TOMORROW SOUND, I THINK I SAID WHAT, HE SAID PASS? OH! THAT WOULD BE GREAT ARE YOU SERIOUS? YAEH? , I CAME IN AND TOLD MICHAEL HE SAID THE SAME THING I DID. AND ALSO SAID YEAH WITH CLENCHED FISTS. I ASKED MICHAEL IF HE WANTED TO GO TO THE GARDENS AND HE SAID NO, I WANT TO GO GET MY APARTMENT, OK FINE WE'LL SEE WHAT WE CAN DO! HAVE A GREAT DAY!

Friday, May 12, 2000 at 05:26 PM (CDT)

DAY 38, A TEST OF FATE.
DADDY IS BACK IN NAPLES, MICHAEL SAID THIS MORNING AS WE WALKED THE HALL THAT HE MISSES DADDY. I SAID ALREADY HE ISN'T EVEN IN FLORIDA YET.
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
WE HAVE GIVEN ANOTHER CHILD TO GOD TODAY HIS NAME WAS PADRAM THEY WERE FROM IRAN. WE HAVE A FEW FAMILIES THAT ARE FROM THE FAR EAST AREA. PADRAM HADN'T BEGUN TRANSPLANT. HE HAD A INFECTION, HIS DAD HAD ASKED ME ALOT OF QUESTIONS THE OTHER DAY, HIS SITUATION SEEMED TO ALOT LIKE MICHAELS AND I THINK HE WAS LOOKIING FOR ANSWERS.
BRITTON, SHE IS 9 1/2 MONTHS OLD WENT TO I.C.U. THIS MORNING WITH BREATHING PROBLEMS. LETS PRAY SHE WILL BE WELL. AND DALTON HAS BEEN IN ICU FOR SOME TIME NOW AND TOOK A TURN FOR THE WORST. HE HAS BEEN PUT ON A VENTILATOR. HE IS 10 MONTHS OLD. NO THESE CHILDREN DON'T HAVE CANCER BUT THEY HAVE BEEN THROUGH TRANSPLANT. LETS PRAY THAT THESE KIDS GET BETTER.
THE DOCTOR TOLD MICHAEL THAT THEY HAVE TO TEACH MOM SOME THINGS ABOUT WHEN WE GET TO LEAVE THE HOSPITAL,LIKE I.V. MEDS I GUESS. I WASN'T IN THE ROOM WHEN THEY ROUNDED. I WAS IN THE FAMILY ROOM WITH THE OTHER FAMILIES FOR SOME SUPPORT. I'VE ASKED THAT HE COME BACK SO WE CAN TALK, I HOPE HE DOES COME BACK!
MICHAEL HAS BEEN HAVING SOME TROUBLE WITH THE SIGHT WHERE THE BIOPSY WAS DONE. IT HAS BEEN BLEEDING ON AND OFF. BUT I THINK IT WAS BECAUSE HIS PLATTELETTES WERE ONLY 20 OR LESS. SO THEY TRANSFUSED HIM WITH THE PLATTE. AND DAD'S CELLS TODAY. HE'S SO CUTE NO ONE CAN BELEIVE HOW WELL HE IS MOVING AROUND.SO INDEPENDENT.
ANOTHER DAY IS BEHIND US.WE THANK YOU GOD FOR THIS DAY AND HOPE THAT YOU WILL GIVE US ANOTHER. KEEP MICK SAFE AND BRING HIM BACK TO US SOON. HAVE A GOOD NIGHT AND PRAY,PRAY,PRAY!. JANE

Friday, May 12, 2000 at 05:26 PM (CDT)

DAY 38, A TEST OF FATE.
DADDY IS BACK IN NAPLES, MICHAEL SAID THIS MORNING AS WE WALKED THE HALL THAT HE MISSES DADDY. I SAID ALREADY HE ISN'T EVEN IN FLORIDA YET.
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
WE HAVE GIVEN ANOTHER CHILD TO GOD TODAY HIS NAME WAS PADRAM THEY WERE FROM IRAN. WE HAVE A FEW FAMILIES THAT ARE FROM THE FAREAST AREA. PADRAM HADN'T BEGUN TRANSPLANT HE HAD A INFECTION, HIS DAD HAD ASKED ME ALT OF QUESTIONS THE OTHER DAY, HIS SITUATION SEEMED TO ALOT LIKE MICHAELS AND I THINK HE WAS LOOKIING FOR ANSWERS.
BRITTON, SHE IS 9 1/2 MONTHS OLD WENT TO I.C.U. THIS MORNING WITH BREATHING PROBLEMS. LETS PRAY SHE WILL BE WELL. AND DALTON HAS BEEN IN ICU FOR SOME TIME NOW AND TOOK A TURN FOR THE WORST. HE HAS BEEN PUT ON A VENTILATOR. HE IS 10 MONTHS OLD. NOE THESE CHILDREN DON'T HAVE CANCER BUT THEY HAVE BEEN THROUGH TRANSPLANT. LETS PRAY THAT THESE KIDS GET BETTER.
THE DOCTOR TOLD MICHAEL THAT THEY AHVE TO TEACH MOM SOME THINGS ABOUT WHEN WE GET TO LEAVE THE HOSPITAL,LIKE I.V. MEDS I GUESS I WASN'T IN THE ROOM WHEN THEY ROUNDED I WAS IN THE FAMILY ROOM WITH THE OTHER FAMILIES FOR SOME SUPPORT. I'VE ASKED THAT HE COME BACK SO WE CAN TALK, I HOPE HE DOES COME BACK!
MICHAEL HAS BEEN HAVING SOME TROUBLE WITH THE SIGHT WHERE THE BIOPSY WAS DONE IT HAS BEEN BLEEDING ON AND OFF. BUT I THINK IT WAS BECAUSE HIS PLATTELETTS WERE ONLY 20 OR LESS. SO THEY TRANSFUSED HIM WITH THE PLATTE. AND DAD'S CELLS TODAY. HE SO CUTE EVERYONE CAN'T BELEIVE HOW WELL HE IS MOVING AROUND.SO INDEPENDENT

Thursday, May 11, 2000 at 03:23 PM (CDT)

DAY 37, LOOK UP TO HEAVEN.....
THANK YOU GOD! WE LOVE YOU AND ALL YOUR POWER!
A VERSE FROM MY LITTLE BOOK...
"HUMBLE YOURSELVES IN THE SIGHT OF THE LORD, AND HE SHALL LIFT YOU UP"
IT IS ONE OF THE GREAT PARADOXES OF ALL TIME. JESUS HUMBLED HIMSELF ON A CROSS SO THEY WE MIGHT BE LIFTED UP. THE WAY TO TRUE SUCCESS AND HONOR IS THROUGH HUMBLE SUBMISSION TO GOD. TRY PUTTING GOD AND OTHERS FIRST IN YOUR LIFE AND WATCH WHAT HE WILL DO! IT IS THE WISE THING TO DO!

WE HAVE BEEN ABLE TO SHARE FIRST HAND THE MIRACLES OF THE LORD HERE BEFORE YOUR EYES.
I SAID IF I EVER DOUBTED BEFORE I AM IN TOTAL SUBMISSION TO THE LORD. AND WILL ALWAYS BELEIVE, HE HAS GIVEN ME MY CHILD FOR ONE MORE DAY AND I WILL BE FOREVER GREATFUL FOR THIS.
TO ALL OF YOU WHO CONTINUE TO STAND BY MICHAEL AND OUR FAMILY,MAY YOU NEVER HAVE TO GO THROUGH THIS, BUT KNOW THAT YOU ARE THE REASON WHY OUR MICHAEL IS HEAR. THE LORD HAS HEARD OUR PRAYERS AND HE ANSWERED US,WITH ANOTHER DAY WITH MICHAEL THANK YOU.
..............NO MORE CANCER...............
.... JANE,MICK AND MICHAEL

MICK WILL HAVE A BREAK AND SO WILL MICHAEL. THEY ARE GOING TO HOLD HIS WHITE CELLS FROM DAD TIL NEXT THURSDAY TO SEE HOW HE DOES ON HIS OWN. WE WERE TOLD TO GO AHEAD AND LOOK FOR AN APARTMENT. MICHAEL WILL BE ABLE TO BE DISCHARGED POSSIBLY VERY SOON .I SAY ABOUT 1 1/2 WEEKS.JULY 14TH IS OUR 100 DAY MARK. THIS DOESN'T MEAN WE'LL GET TO COME AND IT DOESN'T MEAN WE WONT BE HOME SOONER BUT DR. KERTZBERG SAID DON'T LOOK TO ME TO LEAVE ANYTIME BEFORE 100 DAYS.NOW OF COURSE WE WILL STILL HAVE DAILY TRANSFUSION OF PLATTELETTES AND POSSIBLY BLOOD AND HE WILL STILL BE ON ALOT OF HOME MEDS. AND WE WILL HAVE TO COME TO THE HOSPITAL DAILY. THERES ALOT INVOLVED BUT AT LEAST WE WILL BE OUT OF THE HOSPITAL!!!!!!!!
HAVE A WONDERFUL NIGHT AND A EVEN BETTER MORNING AND WHEN YOU LOOK INTO THE STARS TONIGHT SAY HI, TO US WE'LL BE LOOKING TOO.
GOD BLESS YOU ALL!

Wednesday, May 10, 2000 at 06:59 PM (CDT)

BONE MARROW RESULTS ARE HERE..........

NO CANCER!!!!!!!!!!!!!!!!!

ALL DONOR CELLS WORKING HERE!DOING VERY WELL ON THERE WAY TO MAKING THERE OWN, AHEAD OF THE GAME AND LOOKING GREAT!
THANK YOU !!!!! THANK YOU !!!!!!!
THANK YOU GOD ! THANK YOU!
THANK YOU JESUS!
THANK YOU EVERYONE FOR YOUR PRAYERS! YOU DID IT!

Wednesday, May 10, 2000 at 04:48 PM (CDT)

HI, NOT MUCH OF A DIFFERANCE TODAY WITH OUR MICHAEL EXCEPT FOR THE FACT THEY DID THE BIOPSY THIS AFETRNOON, WE DON'T HAVE ANY RESULTS BACK YET. SOON. HE DID VERY WELL THROUGH THE PROCEDURE. HE WENT DOWN TO THE O.R. HE HAD HIS C.D. HEAD SET. WHEN WE ARRIVED TO THE O.R. HE WAS A LITTLE SCARED, HE STARTED ASKING ALOT OF ?'S BEFORE WE WENT HE WAS ASKING, AND THEN HE SAID "I'M READY TO HAVE MY PROCEDURE" JUST SUCH A BIG BOY. THE DOCTORS ARE DOWN THERE NOW LOOKING AT THE SLIDES. MICHAEL HAS BEEN A LITTLE STIFF FROM THE ASPERATION,THEY DID IT IN THE RIGHT HIP AREA. HE HAS NEVER HAD ONE THERE BEFORE. MICHAEL IS STILL IMPROVING IN THE BLOOD COUNT SLOWLY, AS I SAID BEFORE THE PROCESS IS JUST SUTTLE. I WILL TRY TO GET MORE NEW PICTURES IN TONIGHT OR TOMORROW. HAVE A GOOD NIGHT LOVE AND PEACE TO YOU ALL, HAVE A GOOD DAY! REMEMBER TO BE KIND TO YOUR NEIGHBOR.
JANE MICK AND MICHAEL

Tuesday, May 09, 2000 at 03:47 PM (CDT)

HELLO EVERYONE! THERE HERE! THE PICTURE IS IN THE PAGE.ITS THE THIRD PICTURE. I HAVE MORE BUT THERE IN MY CAMERA AND IT TAKES 4-6 DAYS TO GET A C.D. MADE.
MICHAEL IS DOING WELL. HE WENT TO CELL MATES TODAY, THATS WHERE HE GOES TO THE FAMILY ROOM W/OUT MOM OR DAD FOR ONE HOUR WITH THE OTHER KIDS AND JUST DOES WHAT EVER THEY WANT GAMES,SHOW AND TELL, ETC.ONLY TODAY HE MADE A CARD FOR HIS GRANDMA, WHICH IS A SURE SIGN HE IS FEELING BETTER. HE HASN'T BEEN TALKING TO HER FOR ALONG TIME NOW HE THINKS WHEN SHE COMES THAT MOM AND DAD ARE LEAVING.
NO WORD AS TO WHEN THE BONE MAORROW BIOP. IS YET. BUT YOU'LL BE THE FIRST TO KNOW.
I HAD BOUGHT MICHAEL A NECLACE THAT HAS A CROSS ON IT AND WANTED FATHER PATRICK TO COME And bless IT, WELL HE WAS HERE AND MICHAEL IS ZONKED OUT. SO TONIGHT HE WILL COME!
12.3 WHITE CELL COUNT! STILL USING OXYGEN WHEN HE SLEEPS AT NIGHT AND NAPS! HE IS WALKING SO MUCH BETTER STILL NEEDS ALOT OF ASSISTANCE. I CAME INTO THE ROOM THE OTHER NIGHT,I WENT TO CHECK TO SEE IF THE LAUNDRY WAS FREE, AND MICHAEL WAS HALFWAY ACROSS THE ROOM BY HIMSELF PUSHING HIS POLE! OF COURSE MY HEART WENT INTO MT THROAT! AND THAN HE PUSHED THE POLE HALFWAY DOWN TO THE NURSES STATION ABOUT THREE ROOMS DOWN. YOU SE WE MISSED THE INDEPENDENT STAGE, AND NOW HES THERE,HE ALSO SEE'S THE OTHER BOYS DOING IT SO "HE WANTS TO DO IT ALL BY HIMSELF,MOM"
WELL I'M CLOSING FOR NOW. YOU KNOW I'LL BE BACK WITH MORE LATER SO HAVE A PEACEFUL NIGHT!
LOVE!

Monday, May 08, 2000 at 08:43 PM (CDT)

hi there! SORRY WE HAVEN'T BEEN ON THE WEB TODAY. MICHAEL IS STILL DOING VERY WELL. TODAY HIS WHITE CELLS COUNT IS 9.2 AGAIN THESE ARE MOSTLY HIS CELLS, VERY FEW ARE DADDY'S!
I HAVE SOMETHING VERY SPECIAL TO SHARE WITH YOU ALL. ON THE UP SIDE....
I AM SO VERY PLEASED TO BE ABLE TO TELL YOU SOME GOOD NEWS ... JULIE A VERY SPECIAL FRIEND OF MICHAEL'S HAS COMPLETED CHEMO. WAY TO GO JEWEL'S AND ANOTHER VERY SPECIAL FRIEND THAT WE DON'T GET TO SEE AS OFTEN AS WE'D LIKE HAS ALSO FINISHED HIS CHEMO,KYLE ARMANTROUT.SUPER!
THIS IS SOMETHING WE ARE SO VERY HAPPY ABOUT THESE KIDS HAVE BEEN THROUGH SO MUCH,MAYBE NOW THEY CAN START TO GO ON WITH THERE LIVES! I KNOW THAT MOM WILL STILL BE ON THE EDGE OF HER SEAT. BUT WE CAN ONLY PRAY THAT MOM WILL TRY TO GO ON WITH THEM! I ALWAYS SAID THAT WHEN MICHAEL IS 18, MY HAND WILL GO "THUMP", TO HIS HEAD TO SEE IF HE HAS A FEVER, AND HIS GIRLFRIEND WILL LOOK AT ME LIKE I'M ABSOLUTLY CRAZY!
AND I HAVE SOMEONE ELSE I WOULD LIKE TO MAKE MENTION OF "KELSIE WOW! YOU ARE SO TALENTED, GREAT JOB ON WINNING 1ST PLACE IN THE SHRIMP FESTIVAL 5-K FOR GIRLS 11 AND UNDER.
I REALLY HAVE SO MUCH TO SAY, WE HAD THAT BENEFIT FOR THE KIDS THIS WEEKEND AT THE MASH BASH AND I HAVEN'T GOT ALL THE DETAILS YET, FROM WHAT I UNDERSTAND IT WAS A GREAT TURNOUT! WE RECIEVED A COUPLE CARDS TODAY ONE FROM THE LADIES AT THE MOOSE LODGE 1304 , AND FROM GRILL AND FILL JASON ,KENNY AND RANDY, THANK YOU ALL FOR YOUR FINACIAL SUPPORT FOR MICHAEL, HE SAID DAD I HAVE MORE MONEY THAN YOU NOW!WE CANNOT THANK YOU ENOUGH FOR WHAT YOU ARE DOING.YOU TRULY ARE KIND FOLKS AND WE WISH YOU ALL THE BEST!

WE ARE STILL ON PINS AND NEEDLES. I WAS TOLD TODAY THAT I NEED TO SCHEDULE A BONE MARROW BIOPSY FOR MICHAEL NEXT WEEK. I WAS HOPING THAT THIS WOULD JUST KIND OF.........
GO AWAY? THAT'S TO MUCH TO ASK FOR HUH?. THIS IS SOMETHING I'M A LITTLE UPSET OVER. THE ANTICIPATION IS SO GREAT SO I TRY TO PUT IT OUT OF MY HEAD! BUT IT JUST WON'T GO AWAY. AS A MATTER OF FACT I HAVEN'T SAID ANYTHING TO MICK YET( ONLY BECAUSE THE TIMING HASN'T BEEN RIGHT, WITH MR. EARS)
BUUT GOD HAS HELPPED US THROUGH THUS FAR, HE WILL GET US THROUGH THIS!
THANK YOU FOR BEING HER TODAY. I LOVE AND MISS YOU ALL! HAVE A GREAT DAY

WHEN THE ALARM GOES OFF TOMORROW MORNING, DON'T HIT THE SNOOZE BUTTON. START YOUR DAY OFF A HALF HOUR EARLIER. REMEMBER THE OLD PROVERB "THE EARLY BIRD CATCHES THE WORM?" SMILE UP AT THE CEILING AND REJOICE IN YOUR NEW DAY OF ADVENTURE. LIFE IS FULL OF POSSIBILITIES. CHANGE IS POSSIBLE. REMEMBER, THIS IS THE FIRST DAY OF THE REST OF YOUR LIFE!
A WORD TO THE WISE..........
GOD BLESS AND REJOICE IN EVERYDAY THAT HE HAS MADE FOR US,MAKE EVERYTHING YOU DO COUNT.

Sunday, May 07, 2000 at 04:18 PM (CDT)

WHAT A GREAT DAY!!!!!
WISH YOU COULD HAVE BEEN HERE TO SEE MICHAEL, "NO" POLE FOR A HALF AN HOUR. MICHAEL WAS UNHOOKED,DETACHED,FREEEEEEEE!
BUT NOT WITHOUT CAUSE!KYLE PETTY, PATTY PETTY, STEVE PARKS, AND ABOUT 200 MOTORCYCLES. WHAT A SCENE. KYLE, PATTY, STEVE AND SVERAL OTHER PEOPLE CAME TO THE FLOOR AFTER WE WENT DOWN AND WATCHED THEM COME IN. OUT OF ALL THE ROOMS, KYLE MOST ENJOYED MICHAELS, ONE OF THE REASONS HE LIVES FOR .TO SEE HIS BIGGEST SMALL FANS!IT WAS JUST SO KOOL, WORDS CANNOT EXPRESS HOW GOOD THE DAY WAS.I WENT DOWN FIRST AT ABOUT 11:30 A.M., WE WERE COMUNICATING VIA 2 WAY RADIO. THAN THE CHILD LIFE SPECIALIST CAME TO ME AND SAID MICHAEL IS DOWN HERE AND HE WANTS YOU!SO WE WERE ALL TOGETHER WHEN KYLE CAME OVER AND TOOK PICTURES WITH HIS BEST FAN, MICHAEL,THAN PATTY ASKED ME IF I HAD A CHILD HERE AND I TOLD HER ABOUT MICHAEL SHE SAID COME ON LETS GO !!!!TO THE FLOOR TO SEE HIM(THERES MORE TO THE STORY BUT NOT ENOUGH TIME). SO THEY CAME UP AND WENT INTO THE OTHER KIDS ROOMS AND THAN CAME TO MICHAELS ROOM AND THEY WERE MOST IMPRESSED. NEEDLESS TO SAY!

I WILL PUT PICTURES IN THE WEB PAGE A.S.A.P.
MICHAEL HAD KYLE SIGN HIS HOTWHEELS CAR AND STEVE SIGNED THE CARS LIST THAT WE HAVE!

PLEASE SIGN THE WEB PAGE MICHAEL SO LOOKS FORWARD TO GOING TO THE FAMILY ROOM TO VEIW HIS WEB PAGE.
THANK YOU FOR SHARING YOUR THOUGHTS WITH US AND JUST STOPPING IN AND SAYING HEY!
12.0 WHITE CELLS AND 100% DONOR CELLS! THANK YOU GOD FOR ANSWERING ALL OUR PRAYERS.

MICHAELS COUNTS ARE STILL ON THE RISE. THE DOCS ARE SO HAPPY WITH THE PROGRESSION. WE ARE STILL KEEPING OUR FINGERS CROSSED AND WE WILL NEVER TAKE THIS FOR GRANTED.WE ALSO STILL NEED ALL THE PRAYERS WE CAN GET. NOT ONLY FOR MICHAEL BUT FOR THE OTHER CHILDREN AS WELL! GOD BLESS YOU! HAVE A GOOD NIGHT! LOVE MICHAEL, JANE AND MICK

Saturday, May 06, 2000 at 10:25 AM (CDT)

goodmorning everyone. Michael,dad and I are sitting in the family room. michaels counts are really good 12.0 today. the boys are sitting in here playing bumper pool, craig,michael,and one of the nurses. this is a good exercise day. we have walked the halls 3 times now. and still going. michael is doing so much better.He laughs,and says silly things,and just is talking up a storm. we cannot thank you all enough for your continuing support and prayers. we believe that if it wasn't for your prayers,we may be experiencing things diferently. and for this we will be eternally greatful.
the weather is gorgious these past few days. these are the days we live for. just so beautiful.
have a good weekend.We Love you!

Friday, May 05, 2000 at 07:32 PM (CDT)

hi there,
I BELIEVE THAT OUR MICHAEL IS BACK!!!!!!
BETTER AND BETTER EACH MINUTE.
GOD IF I DID NOT BELEIVE BEFORE I SURELY BELEIVE NOW YOU ARE THE HIGHER POWER IN ALL OUR LIVES AND I WILL CONTINUE TO BELIEVE IN "YOU"
THE WAY THINGS ARE GOING,TRULEY THE THING THAT IS HAPPENING BEFORE YOURS EYES IS'
" A MIRICLE "
I KNOW MICHAEL WON'T LET YOU DOWN.
HE IS HERE FOR A REASON AND MICK AND I WILL MAKE SURE WE DO OUR BEST!
I HOPE YOU KNOW THAT NO NEWS IS GOOD NEWS.
WHAT I MEAN BY THIS , THE WING HERE ON THIS FLOOR, THE CHILDREN ARE DOING SO WELL. I PERSONALLY BELEIVE THAT IT IS BECAUSE THAT GOD IS HERE, HE SEE'S WHAT THE CHILDREN WANT. MAY GOD BE ALWAYS BESIDE YOU AND HELP YOU TO DEAL. YOU HAVE TO JUST BELEIVE THAT HE WILL!
AND AS SUSI SAID ABOUT JUSTIN, HE SAID A PRAYER! WE'LL NEVER KNOW WHAT THAT PRAYER WAS.BUT I HAVE ALWAYS BELIEVED THAT THAT IS WHAT GETS US THROUGH!( YOU'LL KNOW WHAT I MEAN SUSI) WE LOVE YOU!
GOD BLESS YOU!AND THANK YOU!

Friday, May 05, 2000 at 01:55 PM (CDT)

BINGO !!!!FOUR TIMES
WE WON, WE WON,
TOYS , PRIZES,SO MUCH FUN,FOUR BOYS AND ONE GIRL. WE KICKED SOME BUTT!THE FEVER CAME IN LAST NIGHT IT WAS 100.6 AT ITS HIGHEST AND NO SIGN OF IT TODAY, THANK YOU FOR PRAYING! I KNOW YOU WERE CAUSE I COULD FEEL IT AND GOD ANSWERED OUR PRAYERS AND TOOK IT AWAY!MICHAEL IS BETTER AND BETTER EACH MINUTE. WE STAYED UP TILL KIND OF LATE LAST NIGHT AND THAN GOT UP AGAIN AT 2:30ISH SO WE SLEPT IN THIS MORNING. YOU KNOW YOU HAVE THE SWEETEST INTREST HERE, MICHAEL,HE SAW THAT THE OTHER MICHAEL(THIS IS ANOTHER CHILD)HAD A HOTWHEEL AND HE WANTED ONE LIKE IT SO THE OTHER MICHAEL GAVE HIM THE CAR, AND OUR MICHAEL JUST SO SWEETLY SAYS, THANK YOU MICHAEL FOR THE CAR!.
MICHAEL AND DADDY ARE WATCHING TERMINATOR TWO, I KNOW THE LANGUAGE IS NOT ALL THAT GREAT,BUT I DON'T HAVE A SAY IN THIS, SO I WARNED THE NURSES THAT COME IN THE ROOM!
HAVE A GREAT DAY WE LOVE ALL OF YOU!!!!
JANE,MICK AND MICHAEL.

Thursday, May 04, 2000 at 05:56 PM (CDT)

SOMETHING NEW NOT SO GOOD
MICHAEL IS STARTING TO RUN A FEVER
WE WILL KEEP A CLOSE EYE ON HIM THROUGH THE NIGHT. HE'S STILL BEING SILLY.
SEE YOU TOMORROW!THURS 10:00 P.M

WOW!!!!!!!!!!!!!!!!!
WHAT A DAY GOD MADE FOR US!MICHAEL HAS BEEN SUCH A GOOD LITTLE BOY! HE WAS HELPING MAKE NECKLACES'. WE HAVE TO MAKE THEM MOM!HE SAID,YOU SHOULD HAVE SEEN HIS FACE. AND WHAT A JOB DADDY DOES TEACHING HIM. YOU KNOW HIS ABC's AND HOW TO SPELL, CAR,FAR,TAR(OF COURSE HE WAS A ROOFER)HE REALLY DOES DO A GREAT JOB,AND PATIENTS(I LEARN HOW TO SPELL SOME DAY ) !!
SO DO YOU WANT THE NEWS ABOUT THE CELLS?

THEY'RE THE DONOR CELLS AND DADS!!!!!!!!!!!!!!!!!! SO WHAT THIS MEANS IS THAT THE DONOR CELLS ARE GROWING WHICH MEANS THESE ARE MICHAELS NEW CELLS!
"""" THANK YOU JESUS!!!!!!!!!!!!!!!! THERE ARE A FEW MEDS THAT WILL BE GONE HERE IN THE NEXT FEW DAYS AND THAN SOON IT WILL BE JUST HIS STEAK AND POTATOES(THE T.P.N.). AND EVENTUALLY HE'LL HAVE FREE TIME OFF THE POLE!!!!!###***&%$##$%I AM JUST SO HAPPY, I COULDN'T ASK FOR ANYTHING MORE. NOTHING COULD MAKE ME SO HAPPY! SO WE STILL HAVE TO WATCH OUT FOR THE GRAFT-V-HOST WITH IN THE NEXT DAYS WELL ACTUALLY DAY 40 - 80
DOCTOR KERTZBERG SAID SHE CAN'T BELEIVE HOW WELL HE'S DOING AND THAT HE HAS DONE AS BEST AS HE CAN DO FOR THE ODDS THAT WERE AGAINST HIM. WELL AS I SAID FROM THE DAY THEY TOLD US HE WOULDN'T BE GOING HOME WITH US ,"THEY KNOW EVERYTHING ABOUT THERE JOB, BUT WHAT DO THEY KNOW ABOUT GOD, AND PRAYERS! AND WE ALL HAVE SEEN IT HERE! MICK,MYSELF AND ALL OUR FAMILY AND FRIENDS AND YOU KNOW WHO YOU ARE,WE CAN NOT THANK YOU ENOUGH FOR ALL YOU HAVE DONE WITH PRAYERS AND SUPPORT, THANK YOU FOR BEING THERE AND SHARING YOURSELVES! I WOULD ALSO LIKE TO THANK THE BOYS IN MS. LARA'S CUB SCOUTS, WITH BRANDON AND TRAVIS. YOU GUYS ARE THE BEST. TELL EVERYONE THANK YOU FOR MICHAEL!THANKS LARA

JOHN AND ROBIN, WOW THIS IS GREAT I WISH WE COULD BE THERE FOR MASH BASH. WE MAY BE ABLE TO MAKE IT TO THE JUNE EVENT !

WELL I WISH I COULD WRITE MORE BUT I'M GOING TO GET KNOCKED OFF LINE

NEW PICTURES PUT IN TODAY I'M STILL TRYING TO GET THEM IN THE RIGHT WAY AND SMALLER THE SYTEM KEPT CRASHING
. GOTTA GO LOVE TO YOU ALL JANE,MICK, MICHAEL, AND GRANDMA

Thursday, May 04, 2000 at 08:03 AM (CDT)

GOODMORNING ALL, ANOTHER GOOD MORNING FOR ME, AS I WAS AWAKEN BY MY WONDERFUL MICHAEL "HI MOM" EVEN MORE STRENGTH BEHIND IT! AND THAN WHEN I WALKED THROUGH THE DOOR HE WAS HIDING UNDER THE BLANKET! UH-OH WHERE'D MICHAEL GO? THE NURSE WAS STANDING OUR SIDE THE ROOM DOWN THE HALL AND SHE JUST LOOKED AT ME LIKE.....WHERE!!!!!IS HE REALLY GONE? SARA SHE SO FUNNY! I'M SORRY I DID WRITE LAST NIGHT. AS SOON AS I WAS FINISHED IT DISAPEARED "GONE" AND WE WERE ON OUR WAY OUT THE DOOR SO I HAD TO LET IT GO TILL TODAY.

THE MASH BASH IS THIS WEEKEND AT THE KOA OFF OF ROUTE 951 SOUTH TOWARDS MARCO OR GO OFF THE EAST TRAIL BY THE HITCHING POST. "EVERYONE SHOULD GO" THIS IS A GREAT EVENT FOR THE BENEFIT OF THE KIDS! (DEFINETLY DIFERENT) WE HAVE SO MUCH FUN.
ALSO THE RELAY FOR LIFE IS MAY 19TH
I DO NEED MORE DETAILS ON WHERE, SO WHO EVER IS READING THIS AND KNOWS THE TIME AND DATE PLEASE LET ME KNOW! THIS IS ALSO A GREAT EVENT. I MISSED JIMMY SINGING LAST YEAR BUT I HEARD IT WAS REALLY NICE AND LOTS OF KIDS ACTIVITIES 24 HOURS!I WOULD LIKE TO HAVE A LUMINARY SET UP IN HONOR OF MICHAEL, I JUST DON'T KNOW THAT WE'LL BE ABLE TO DO IT FROM HERE.

NEW PICTURES!!!!
PLEASE DON'T FORGET TO SIGN THE WEB PAGE NOWS THE TIME TO MAKE NOTES TO MICHAEL. HE'S MORE ALERT AND ACTULLY LISTENING TO ME WHEN I TALK.

MICHAEL WANTS ME TO TELL EVERYONE THAT HE WISHES YOU WERE HERE, I MISS YOU AND I LOVE YOU! MICHAELS EXACT WORDS. I LEAVE YOU WITH THIS!

Wednesday, May 03, 2000 at 10:00 AM (CDT)

goodmorning everyone, today is better than yesterday. michael called me this morning in the motel "HI MOM".Just the greatest thing to hear. his white cell count is 12.4 today ,they are giving him platelettes now and he was tranfused with red cells as his hemoglobin was in the 8. area .he was playing with dad this morning bouncing around and we painted a little,and got a package from the Heintz family. playdough paints and cards .thank you carol and roy.

HI TO ALL THE GIRLS AGAIN AT CLARION .KEEP UP THE ENTRIES WE LOVE TO READ THEM, THANK YOU COUSIN JESSICA. AND THANNK YOU TO THE REST OF THE FAMILY.I KNOW ITS BEEN ALONG TIME SINCE WE BEEN TOGETHER.I LOVE YOU AND MISS YOU!

HELLO TUFF GIRL .THANK YOU FOR THE GIFT YOU GAVE TO MICHAEL,SUCH A SWEET KIND THING FOR YOU TO DO .I THINK WE'LL PROBABLY END UP GETTING JEFFERY CREDIT. YOUR MOMMA RAISED YOU VERY WELL. YOU ARE A BEAUTIFUL YOUNG LADY!
WE ARE ONE DAY CLOSER TO COMING HOME TO YOU ALL. AS I SAID BEFORE WE WILL HAVE A GREAT BIG PARTY WHEN MICHAEL GETS HOME.

THE MASH BASH IS THIS WEEKEND AT THE KOA OFF 951 SOUTH PLEASE TRY TO GET OUT THERE ITS IN HONOR OFF OUR KIDS WITH CANCER AND OUR "MICHAEL"

HAVE A GREAT DAY ,JANE

Tuesday, May 02, 2000 at 07:22 PM (CDT)

YUM,YUM We had a really good dinner. we,jess,me and mick all helped and michael coached. we made mashed potatoes, a ham slice,asparagus,creamed corn and CHERRY PIE FOR DESSERT. well mick and i had a restful night and so did michael and grandma,last evening.mick watched hockey,hockey,hockey and i looked for cracks in my eye lids. than the fun began . when mick finally did come to bed he tossed and turned like ,making a salad. so needless to say i didn't sleep there after. but it was nice just to hold him! michael has been up walking several times today and been really anxious to do it. he sat with us while we made dinner and than while we ate, during dinner he asked mick "daddy may i be excused from the table" AWHHHH! MY LITTLE GUY!well i'm going to the motel to sleep ( first judging Amy than sleep ) have a great night,sleep well and enjoy being in your own bed!.God bless you all.

God bless Shayla and her family. As God has received another one our children.
Brenda i don't know that you'll see this but i am thinking of you and your family, i hope you find peace and that God will give you strength.

Tuesday, May 02, 2000 at 12:15 PM (CDT)

hi there, michael is a litle sluggish today. i think he was up all night with one of the nurses, ms. sandy, he just loves her and sara,the other nurses just get shoved to the back. we were working on our picture album, its the michael races on the bone marrow unit book,and then the teacher came in but he was tired so off to sleep he went. his cell count this morning is 9.9, we should have results from the last test they did tomorrow, hold your breath and cross your fingers and pray all night!. GUESS WHERE MICK AND I SLEPT LAST NIGHT! YOU GOT IT AT THE MOTEL , MICHAEL ACTUALLY LET GRANDMA SPEND THE NIGHT WITH HIM. WE LOOKED AT APTS. LAST NIGHT,JUST THE OUTSIDE OF THEM .I'M AFRAID TO THINK ABOUT ANYTHING BUT TODAY, WELL I GUESS I THINK ABOUT WHAT WE WILL DO WHEN HE GETS PASSES, I WANT TO OCCUPY ALL HIS FREE TIME WITH GARDEN WALKS TRAINS,HELICOPTERS, JUST ANYTHING BUT THE INSIDE OF A ROOM. MICK IS STILL GIVING MICHAEL WHITE CELLS PROBABLY FOR A FEW MORE WEEKS. BUT AS SOON AS THE DR SAYS WE CAN GO OUT ON PASS WE WANT TO HAVE SOMEWHERE TO GO OTHER THAN THE MOTEL FOUR WALLS.
MICHAEL IS FEELING SO MUCH BETTER.HE STILL ISN'T MOVING AS QUICK BUT THE SPIRITS ARE BACK AND HE WANTS TO DO THINGS,HES BETTER EACH TIME HE WAKES. THERES MORE AND MORE OF MICHAEL THERE. WELL I'M GONNA GO BACK TO THE ROOM AND FINISH WHAT I STARTED WITH THE PHOTO ALBUM. HAVE A GOOD DAY .JANE,MICK,MICHAEL AND GRANDMA

THIS TOO SHALL PASS!

Monday, May 01, 2000 at 05:15 PM (CDT)

hello , day 26 ,
sorry we haven't been here sooner, but i decided to take a long nap this afternoon.
MICHAELS COUNTS TODAY ALONE ARE 3.4, ANOTHER BLOOD TEST WAS DONE TO SEE WHOS WHOS, AND WHATS WHAT.MICHAELS COUNTS ARE VERY GOOD THESE DAYS HIS BILIRUBIN IS 1.0 AND THE HEMOGLOBIN IS 10.1, BUT THERE KEEPING EVERYTHING ABOVE THE NORMAL BECAUSE OF HIS FUNGUS(THERE MAY NOT BE ANY FUNGUS OR IT MAY NOT BE NOTICABLE)THE THING ABOUT FUNGUS IS EVERYONE HAS SOME IT JUST SIT IDLE TILL YOU HAVE A REASON FOR IT TO COME ALIVE. WELL I GUESS SINCE MICHAELS DOING SO MUCH BETTER WE NEED TO MAKE OUR NURSES AT HOME THESE KOOL NECKLESS' THAT WE'VE BEEN MAKING, BUT I GUESS YOU HAVE TO PUT YOUR ORDER IN , WHICH MEANS YOU HAVE TO SIGN IN. OH WELL HUH,(HI NURSEY POOHS)AND WE'LL MAKE THINGS SO WE CAN PUT PICTURES IN THE WEB PAGE. OH WE CAN'T WAIT TIL WE GET TO GET OUT ON PASSES THE WALMARTS PHOTO PLACE WON'T BE ABLE TO KEEP UP WITH OUR ADVENTURES . KIM WHERE DID YOU STAY? WHAT APT. COMPLEX? OR DAWN,GOTTA GO THE DR IS HERE BYE

Sunday, April 30, 2000 at 10:16 PM (CDT)

NEW PICTURE ALERT , MORE NEW PICTURES, I KNOW IT TAKES A WHILE FOR THE PICTURES TO LOAD, SO GO GET YOURSELF A GLASS OF WATER WHILE THERE LOADING AND THAN WHEN YOU GET BACK YOU'LL SEE WHY YOU WAITED. MICHAEL IS TRYING TO REST NOW, THE PAIN MEDS ARE STOPPED. HE WILL PUSH THE BUTTON AS HE DID JUST NOW, THE BEST THING IS HE'S STARTING TO BE ABLE TO GO WITHOUT OXYGEN. I WILL PUT IT ON HIM WHILE HE SLEEPS, BUT SO FAR THIS LATE EVENING HE HAS BEEN WITHOUT IT! "HAVE A GREAT DAY". LOOK AT TODAY AS YOU NEVER SEEN A DAY LIKE THIS BEFORE. MAKE IT THE BEST DAY POSSIBLE, ANOTHER THING LET THAT PERSON GO AHEAD OF YOU AGAIN IN THE GROCERY STORE ON THE HIGHWAY AT THE BANK WHERE EVER YOU MAY BE,SEE IF YOU CAN FEEL THE DIFFERENCE?

Sunday, April 30, 2000 at 01:07 PM (CDT)

2:09p.m. day 25,
michael is upset because we don't have the whole outfit for the atlanta braves game this after noon, well we have it but the pants got shuffed to the motel room some how.THE DOCS. CAME IN AND DIN'T HAVE MUCH TO SAY,we'll see what his counts are tomorrow.no changes. he's feeling better ,the pain pump is off except for the button, he can push that when and if he needs to. we are going to take a walk here in a minute.went to lunch with a.kathy and u. bill, mexican food , soooooo good !
they are having the grand opening of the new clinic today. suppose to have some kind of critters there.My mom and I will go check it out michael wants me to get him something from there.i don't know about cooking anything for dinner tonight, i am stuffed. well i'll write late maybe.
HAVE A GREAT DAY! THE SUN IS SHINING BEAUTIFULLY TODAY!

Sunday, April 30, 2000 at 09:56 AM (CDT)

HI! MICHAEL IS ABOUT THE SAME TODAY NOT MUCH TO SPEAK OF.HIS COUNTS ARE 6.0, WERE BRINGING DOWN THE AMOUNT PAIN MEDICATION THAT IS ACTUAL CONTINUOUS AMOUNT THAN HE'LL ONLY HAVE A BUTTON TO PUSH AS NEEDED. HE STILL IS NOT COMPLETELY AWAKE EVEN WHEN HE'S AWAKE, LIKE I SAID BEFORE HE TRIES SO HARD TO STAY AWAKE BUT HE'S JUST NOT ABLE TO , SO THE NEXT COUPLE OF DAYS WE'LL BE ABLE TO SEE BETTER.
HAVE A GREAT DAY! MAKE A GOOD DINNER AND ENJOY IT FOR US! I MAY GO TO THE STORE AND GET SOMETHING FOR OUR DINNER TONIGHT!BYE FOR NOW,
P.S. DONT FORGET TO LOOK AT THE PICTURES AND
SIGN THE WEB............................ PAGE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Saturday, April 29, 2000 at 05:07 PM (CDT)

HI HOW ARE YOU TODAY? WE ARE DOING BETTER EACH MINUTE,MICHAEL MUST FEEL LIKE A MILLION BUCKS TODAY. HE HAD A NICE LONG BATH, AND RODE THE TRICYCLE AGAIN, THIS TIME ATTACHED TO OXYGEN FROM THE ROOM. WHAT A SITE. 20 FEET OF TUBING, CHEERIOS CAME LATER IN THE DAY AND CINNIMON ROLLS,AND SODA, DR PEPPER HIS FAVORITE, HE IS JUST DOING SO WELL, BETWEEN SLEEPY SPELLS, AND HE TRIES SO HARD TO STAY AWAKE.WHEN I LEAVE THE ROOM AND COME BACK IN HE SAYS,HI MOM WANNA SNUGGLE WITH ME? HOW CAN YOU SAY NO!
WELL TOMORROW IS OUR TELL TALE DAY AND MONDAY WILL TELL ALL,IN CASE YOU DON'T UNDERSTAND, MICK GIVES MIKE CELLS EVERYDAY EXCEPT SUN. SO MONDAY WILL TELL US HOW MANY CELLS ARE ACTUALLY THERE, 2 DAYS AGO WE DID A TEST TO SEE WHO'S CELLS ARE WHO'S? WE'LL HAVE THAT TEST BACK IN 8 MORE DAYS, THE CELL TEST IS TO SEE WHICH CELLS ARE MICHAELS LETS HOPE AND PRAY THAT THERE AREN'T ANY OF MICHAELS . WHAT WE WANT TO SEE ARE THE DONOR CELLS AND DADS, WELL GOTTA GO.. LOVE TO EVERYONE AND HAVE A GOOD NIGHT.

Saturday, April 29, 2000 at 03:51 AM (CDT)

GOODMORNING TO EVERYONE,DAY 24 OF TRANSPLANT,DAY 123, WOW MICHAEL HAS BEEN IN A HOSPITAL BED FOR 123 DAYS NOW MY POOR POOR BABY,SEEMS LIKE A LIFE TIME WHEN YOU THINK OF IT THAT WAY. POPSICLE FOR LUNCH NO CHEERIOS YESTERDAY. WE'LL SEE WHAT THE CELL COUNT IS A LITTLE LATER THIS MORNING.HE SITS UP A LITTLE LONGER EACH TIME HE WAKES. I HAVE NEWER PICTURES TO PUT IN THE WEB PAGE BUT I'LL WAIT A DAY OR SO,SO EVERYONE HAS A CHANCE TO VEIW THESE NEW ONES. AND I WILL CHANGE THEM MORE OFTEN NOW THAT I KNOW HOW TO!. I'D LIKE TO SEND A COUPLE OF HELLOS OUT THERE FIRST TO JESSICA AND HER FRIENDS NANCY,KIMMIE,AND DORIE,AT CLARION,YOU KNOW WE ARE AT DUKE UNIV.(GO DUKE ?)JUST KIDDING! THANKS FOR KEEPING UP WITH MICHAEL JESSICAS 3RD COUSIN JESS'DAD IS MY DADS, BROTHERS SON AND HIS SISTER IS MY AUNT (HAHAHAHA) GOTCHA THERE WE'LL EXPLAIN ANOTHER TIME, SPEAKING OF MY AUNT BOBBI AND UNCLE PAT AND DANI. HI HOW ARE YOU,UNCLE PAT YOU HAD MADE A COMMENT ABOUT NOT KNOWING MICHAEL BUT YOU DO REMEMBER WE WERE AT YOUR HOUSE ONE YEAR DON'T YOU WHEN MICHAEL WAS REAL LITTLE?AND HELLO TO THE SLAGLE CLAN( SO TO SPEAK ) NEW GRAND BABY?
HI TO AUSTIN AND GARETT MICHAEL MISSES YOU SOOOOOOO MUCH! AND ALEX AND NICKI
A GREAT BIG HELLO TO YOU BOTH AND A HUGE HAPPY HAPPY BIRTHDAY TO YOU NICK! THE BIG TEENAGER NOW YEAHOOOO ! HAVE A SUPER DAY!AND HI TO AUNT DEB AND UNCLE JIMMY, AND AUNT SUE AND UNCLE LARRY GLAD SO SEE YOU OUT THERE AND TO YOUR FRIENDS HELLO! RACHEL AND ADAM,AND MOM AND DAD!HI THERE ,READY TO GO TO THE RACES?DENISE AND ROCKY HOLD THE FORT DOWN WE'LL BE HOME BEFORE YOU KNOW IT.
NOW I HAVE A SPECIAL PERSON OUT THERE WHO IS CHANGING JOBS,FROM WHAT I UNDERSTAND SHE MAY HAVE ALREADY LEFT, HER NAME IS CAROLYN.CAROLYN RAISED OVER ONE MILLION DOLLARS TO HAVE THE CHILDRENS OUT PATIENT CANCER, CLINIC BUILT,AMONG MANY,MANY OTHER ACOMPLISHMENTS,THERE ARE WAY TO MANY TO LIST.CAROLYN YOU HAVE TOUCHED MANY PEOPLE WITH YOUR HEART AND YOUR SOLE, BY DOING WHAT YOU BELIEVE IN SO MUCH.ONE THING I HAD ADMIRED SO MUCH ABOUT YOU WAS THAT YOUR JOB CAME EASY TO YOU,(EXCEPT THE CRYING PART, WELL THAT WAS EASY ALSO)YOU LOVE WHAT YOU DO. THATS A RARITY NOT MANY PEOPLE CAN SAY THEY LOVE THERE JOB THE WAY YOU DO. YOU HAVE SUCH PASSION IN WHAT YOU BELIEVE TO BE RIGHT FOR THE CAUSE, YOU WILL BE MISSED BY SOME AND BY OTHERS YOU'LL FOREVER BE IN THERE HEARTS. AND YET OTHERS WILL BE SO GLAD TO SEE YOU ON A DAILY BASIS, LIKE REX AND CLAY, BUT ALWAYS KNOW THIS I TRULY AM A BETTER PERSON FOR HAVIING "YOU" IN MY LIFE. AND THIS IS WHAT I BELIEVE TO BE TRUE. ENJOY YOUR LIFES NEW ADVENTURE, AND PLEASE GIVE CLAY AND REX A GREAT BIG HUG FOR ME.. WELL I WILL WRITE LATER WITH THE COUNTS.

GODS GREAT COMMAND IS NOT DO BUT BE!
ANNA J. LINGREN

GOD BLESS. HAVE A GOOD DAY. SMILE FOR MICHAEL AND LET THE NEXT PERSON GO BEFORE YOU!

Friday, April 28, 2000 at 05:00 PM (CDT)

We have visitors, AUNT KATHY AND UNCLE BILL ARE HERE, BOY THEY BROUGHT ALOT OF TOYS,TOYS,TOYS. WELL I FIGURED OUT HOW TO DO MY OWN PICTURES IN THE WEB PAGE.you will have to move your curser to be able to veiw the pictures.you can also print them and they will come out,SO NEEDLESS TO SAY I CHANGED THEM. MICHAEL IS SITTING UP IN HIS BED LOOKING AT NEW PICTURES WE RECIEVED FROM GRANDMA, SO HURRY AND DON'T FORGET TO LOOK AT THE NEW PIX. THE X-RAYS FROM TODAY LOOK MUCH BETTER THE DOC SAYS. THANK YOU ALL SO MUCH FOR HELPING US THROUGH THIS WITH YOUR PRAYERS AND SUPPORT. I KNOW I WILL NEVER BE ABLE TO THANK YOU ENOUGH. BUT I KNOW THAT YOUR THANKS WILL BE TO SEE OUR BEAUTIFUL, BEAUTIFUL SON COME HOME TO ALL OF US..
God bless each and evreyone of you , we could not do this with out you! you are the best!Love to you all, have a great night, Jane Mick and Michael. michael says hello to you all!

Friday, April 28, 2000 at 10:14 AM (CDT)

GOOD MORNING EVERYONE!
GROW CELLS GROW""""""" 9.4"""""""""
WHITE COUNT THIS MORNING.
THE DOCS CAME IN YESTERDAY AND DREW BLOOD TO BE ABLE TO TELL WHOS CELLS ARE WHOS , SO LETS PRAY THAT
"NONE OF THESE CELLS ARE MICHAEL", WE WILL ACCEPT SOME OF DADS, BUT THE REST TO BE MICHAELS NEW CELLS,
PRAY ,PRAY ,PRAY! CINNIMON ROLL FOR BREAKFAST AND RIDING THE BIKE THIS MORNING. TRYING TO WORK ON THIS DARN PAIN MEDICATION,HE HAS BEEN COMPLAINING OF HEADACHES AND A LITTLE TUMMY PAIN. SO THE DR, PER MICK IS GOING TO TRY TO WEEN HIM OFF THE DILOTTID, WE'LL SEE WHAT HAPPENS, I THINK HE JUST HAS SO MUCH GOING ON THAT ITS EASIER TO SLEEP THROUGH THIS, BUT HE REALLY CAN'T KEEP HIS EYES OPENED, HE IS JUST SO SLEEPY.
RAIN AGAIN TODAY, IT WAS NICE LATE IN THE AFTERNOON YESTERDAY, I WENT TO THE UNION HALL TO BUY MICHAEL AND MICK SOME DUKE T-SHIRTS, AND WE WALKED A LITTLE TO THE CHURCH, AND WE WENT AND GOT MORE BEADS TO MAKE MORE NECKLESS'.
WELL I WILL WRITE MORE LATER THIS EVENING, GOD HEAR OUR PRAYERS PLEASE GET MICHAEL WELL AND REMOVE THIS SICKNESS FROM HIM AND HEAL HIM SO WE CAN ALL GO HOME,(SOON?), LOVE TO YOU, JANE,MICK AND MICHAEL

Thursday, April 27, 2000 at 09:57 AM (CDT)

GOOD MORNING EVERYONE, GUESS WHERE MICHAEL IS? HE IS DOWN AT THE PHEREIS ROOM WITH DADDY. YEP HE ROD ETHE TRICYCLE, HE WAS DOING OK BEFORE I TOOK HIM DOWN WITH OUT OXYGEN WHEN I GOT HIM DOWN THERE HIS SATS WHERE ONLY IN THE HIGH 80'S SO I PUT HIM BACK ON OXYGEN. HE IS SITTING ON DADDYS LAP, BOY HE GOT KOOL STUFF TODAY FROM U.P.S.(DELIVERY), THIS IS A FIRST (FROM UPS) I WAS BEGINNING TO MISS MY JOB,(NOT). MICHAEL HAD IS CHEERIOS THIS MORNING, HE IS CALLING ME FROM THE TWO WAY RADIO SO I HAVE TO GO . I WILL WRITE AGAIN LATER. CELLS ARE AT 6.0 THIS MORNING, OH THE PACKAGES WHERRE FROM JOHNNY AND THE WINDORS AND THE ABATE FAMILY AND FROM GRILL AND FILL,RANDY JASON AND KENNETH, THANKS GUYS GOTTA RUN

Wednesday, April 26, 2000 at 11:01 PM (CDT)

day 22, 1st entry 00:00 hours,midnight

well i have had some people say they are having a hard time reading the page ,but you know what happens to you after you hit thirty, well i guess you just go down hill from there, but i wouldn't' know anything about that , for i will only be twenty this sept.(HAHA) JUST KIDDIN, DONT GET ALL UPSET,. ANYWAYS I HOPE THIS IS BETTER.
IF YOU HAVE ANY TROUBLE READING THE PAGE FOR WHAT EVER THE REASON LET ME KNOW ,I'LL CHANGE IT. MICHAEL LIKES TO HELP ME DO THAT. HE'LL PICK THE COLORS. YOU KNOW I WAS TALKING TO A FRIEND LAST NIGHT AND SHE WAS CONCERNED ABOUT HOW WE ARE DOING. WE REALLY ARE JUST FINE . EACH DAY AND EACH MINUTE MAY BRING SOMETHING NEW , GOOD OR BAD, BUT IF YOU WHERE HERE IN OUR SHOES , YOU COULD SEE. THAT YOU JUST "DO IT" ITS FOR YOUR CHILD, FOR YOUR SANITY, FOR YOUR LIFE BACK AND IT REALLY IS JUST THAT, YOU REALLY DON'T HAVE A CHOICE ,WELL I GUESS YOU DO , YOU COULD LEAVE OR YOU COULD ADMIT YOURSELF TO THE 7TH FLOOR.I'LL TELL YOU WHAT, I JUST THANK GOD I HAVE MY HUSBAND HERE WITH US,THIS IS WHAT WE KNOW. THE 3 OF US TOGETHER AND I KNOW IT WOULD BE HELL IF HE WASN'T HERE FOR SUPPORT. MICK IS MY BACK BONE, HE ALWAYS HAS THIS WAY OF PUTTING THINGS INTO PROSPECTIVE, ESPECIALLY WHEN YOU FEEL AS IF YOUR LOOSING YOUR MIND. THAT POINT WHEN THE DOCS. TOLD US MICHAEL WASN'T GOING TO MAKE IT , AND MICK AND I WHERE SITTING OUT IN FRONT OF THE HOSPITAL AND MICK SAYS WE'LL TRY TO TAKE HIM TO THE RACES ON MAY 7 AND I SAID WERE WE IN THE SAME ROOM. MICK SAID,JANE HES GOING TO MAKE IT , AND THIS IS THE WAY WE WENT!
WELL MICHAEL HAS SHOWN US ALL THE WAY TO GO! IF HE CAN DO THIS YOU CAN DO ANYTHING, HE IS FEELING BETTER AS I SAID EARLIER, EACH TIME HE WAKES YOU CAN SEE IN HIS EYES HOW HES DOING. I KEEP ASKING HOW DO YOU FEEL AND HE SAYS GOOD ! I ASK CERTAIN QUESTIONS ABOUT THE AREAS OF CONCERN FOR HIM AND HE SEEMS TO BE DOING GOOD. WELL I'M REAL ANXIOUS TO SEE THE WHITE CELLS TOMORROW. THE NURSE THAT HAD HIM THE NIGHT OF THE SCARE SHE SAID HE SOUNDS SO GOOD . WELL I'M GOING TO CLOSE FOR NOW AND REMEMBER THERE ISN'T ANY THING THAT CAN'T BE DONE, AS I TELL MICHAEL TAKE THE "T" OFF CAN'T AND YOU CAN! GOD BLESS. HI, TO ALL OF YOU ,YOU KNOW WHO YOU ARE! WE LOVE AND MISS YOU! JANE,MICK AND MICHAEL

Wednesday, April 26, 2000 at 04:54 PM (CDT)

cheerios for lunch AND A HALF OF A CINNIMON roll, GROW CELLS GROW!!!!!!
THE CELLS TODAY ARE AT....DONTADAN!!!!

THE ENVELOPE PLEASE...................

!!!!!!!!! 7.7 YEAHOOOOO!!!! . WE ARE JUST SO HAPPY !!!! HE HASN'T BEEN UP AND ABOUT YET BUT HE LOOKS BETTER, WE'RE STILL HAVING PROBLEMS ADJUSTING THE PAIN MEDICATION, WELL THE NEW MED. BUT I THINK WE HAVE IT NOW. WELL I'M GOING TO GET BACK TO MICHAEL, THANK YOU FOR PRAYING FOR MICHAEL, I WAS TELLING A FRIEND OF MINE THAT I THINK MICHAEL WAS HEARING PRAYERS ALL EASTER WEEKEND LONG! ALL OVER THE WORLD!!! GOD BLESS, AND CHIN UP, IF MICHAEL CAN DO THIS..YOU CAN DO ANYTHING, LOVE TO YOU ALL JANE,MICK AND MICHAEL, COLORADO WON'T BE THE SAME, HERE COMES JOANN AND MARTY (HAHAHA)

Wednesday, April 26, 2000 at 10:06 AM (CDT)

michael and mick had a pretty good night,he already had his cheerios this morning, he's trying to watch zaboomafoo, zaboo the lemar, they have a primate center here with the lemars, we will see them before we leave. michael is very tired this morning but he's still awake,his weight is up a little but he's also eating and getting nutrition. i told the nurse last night and the docs said they would back down on the nutrition.
Not to much of a change with mike. He is a little more alert but still not wanting to hardly even talk but it is better .its a slow process, but progressive!

Tuesday, April 25, 2000 at 05:39 PM (CDT)

GROW CELLS GROW, THE DOCS CAME ON THIS AFTERNOON AND LETS SEE THE ROLLERCOASTER IS AT THE TOP TODAY, THE ONE DR SAID THAT HE BELIEVES THAT THE CELLS ARE COMING IN . HIS BREATHING, AS I SAID EARLIER, IS MUCH BETTER. MICHAEL HAS BEEN SLEEPING ALL DAY. THE COUNTS ARE ALL GOOD EXCEPT THE B.U.N. THIS TELLS US ABOUT THE LIVER AND KIDNEY FUNCTIONS AND THE CREATININE . SO WE'RE REALLY NOT SURE WHY HES SLEEPING SO MUCH, BUT THE DR DID SAY THAT PEOPLE WITH LIVER FUNCTION PROBLEMS WILL BE TIRED.
ANNE HE HAS BEEN HOLDING THESE HARLEYS ALL NIGHT AND ALL DAY.AND HOLDING ONTO THE LINUS BLANKET(HIS BLANKEY IS IN THE WASHER) . WELL HE'S BEGINNING TO LOOK LIKE A CHEERIO, THE DRS ARE GOING TO CUT BACK ON HIS STEAK AND POTATOES OR IN I.V. FOOD TERMS, THE T.P.N. BUT HE HAS EATEN 3 TIME TODAY AND ALL 3 TIMES ITS BEEN CHEERIOS.
THE WEATHER HAS BEEN YUCKY ALL DAY. RAIN AND COLD. BUT LIKE I SAID BEFORE IT CAN RAIN ALLLLLLLL DAY! I DON'T CARE, NOW WHEN WE GET OUT IT (LISTEN TO ME WHEN WE GET OUT) IT MAY NOT RAIN, ONLY SUNSHINE FROM THERE ON OUT, STEINUNN I WILL BE AT THE MOTEL TONIGHT IF YOU WANT TO CALL.

FOR BUBBA:
TO SEE THE WORLD IN A GRAIN OF SAND AND
HEAVEN IN A WILDFLOWER, HOLD INFINITY IN THE PALM OF YOUR HAND AND ETERNITY IN AN HOUR,
WILLIAM BLAKE

A NEW LIFE BEGINS FOR US WITH EVERY SECOND. LET US GO FORWARD JOYOUSLY TO MEET IT. WE MUST PRESS ON, WHEATHER WE WILL OR NO, AND WE SHALL WALK BETTER WITH OUR EYES BEFORE US THAN WITH THEM EVER CAST BEHIND.

JEROME K. JEROME

GOD BLESS AND HAVE A GOOD NIGHT P.S. MICHAEL STILL HAS A GOOD SENSE OF HUMOR AND THAT SPARK ABOUT HIM. IT IS JUST RESTING UNTIL HE CAN ENJOY IT WITH US!LOVE JANE

Tuesday, April 25, 2000 at 09:10 AM (CDT)

GOOD MORNING , NO CHANGES AT THIS POINT , MICHAEL WOKE UP AND HAD HIS CHEERIOS AND THAN HIS MEDS AND OFF TO SLEEP AGAIN. HIS WHITE CELL COUNT IS 6.0 THIS MORNING, THE 2ND TIME THEY HAVE BEEN THIS HIGH WITH MICKS WHITE CELLS , WE THINK THESE ARE MIKES CELLS , WELL HAVE A GREAT DAY TALK TO YOU LATER,

Monday, April 24, 2000 at 07:06 PM (CDT)

3rd entry day +19 8:10 P.M

the doc. just poked his head in the door , the x-rays look the same as on the 21st, a little wet , michael has been eating cheerios all day (well when he eats)he is sleeping now. HIS SATS ARE GOOD 100% WE DROPPED THE OXYGEN DOWN TO ABOUT 40% FROM 100% YESTERDAY, HIS BREATHING LOOKS TO BE BACK TO NORMAL NOW.
LINDA T. WE RECIEVED THE PICTURES THAT YOU SENT. THANK YOU! YOU CAN SEE THAT RED IS SAYING HEY MICHAEL AND YOU CAN TELL THERE ALL SAYING HI TO HIM THATS KIND OF KOOL, WELL I'M GOING TO TRY TO GET SOME REST NOW .WE ALSO RECIEVED ALOT OF CARDS TODAY AND TWO PACKAGES, ONE FROM AUNT MANDY & UNCLE CHRIS AND THE KIDS, AND AUNT JANNIE AND UNCLE KEN, AUNT JANNIE DID YOU BUY YOUR SELF SOME MEMORY ALBUM THINGS FOR GABBY'S PICTURES, WELL GUESS WHAT YOU SENT THEM TO US! OH WELL..... YOU'LL JUST HAVE TO COME GET THEM,
BYE FOR NOW ,REMEMBER GOD LOVES YOU AND HAVE A GOOD NIGHT,
TO EVERYONE THAT WE SO DEARLY MISS WE THINK OF YOU EVERY MINUTE HOPE YOU ARE WELL AND SAFE KEEP A CLOSE EYE ON YOUR LOVED ONES. GOD BLESS. JANE

Monday, April 24, 2000 at 07:06 PM (CDT)

Monday, April 24, 2000 at 12:55 PM (CDT)

2ND ENTRY DAY + 19,

CHEERIOS FOR BREAKFAST AND MILK TO DRINK .
THANK YOU GOD FOR HEARING OUR PRAYERS.
MICK IS HAVING HIS CELLS WITHDRAWN RIGHT NOW. THANK YOU TO EVERYONE FOR THE EASTER CARDS AND BASKETS(DILLON) AND ESPECIALLY FOR THE EASTER PRAYERS. WHAT A GREAT DAY!
WE HAVE'T HEARD BACK FROM THE DOC YET. SOON!
HOPE EVERYONE HAD A GOOD EASTER. WE HAD A WONDERFUL DINNER THAT MY MOM PREPARED( WITH A LITTLE HELP FROM HONEY BAKED(HAHA ROD).THE EASTER BUNNY WAS VERY BUSY HERE AT THE HOSPITAL, HE JUST DIDN'T KNOW WHERE MICHAEL WAS EXACTLY,RONALD MCDONALD HOUSE? NOPE! THE MOTEL? NOPE! MIAMI? NOPE! NAPLES? NOPE! THAN I THINK HE SAW THAT THERE WAS A LITTLE BOY IN THE HOSPITAL,BUT THIS LITTLE GUY WAS UP ALL NIGHT! SO WHERE DO I LEAVE THE BASKET? HE THOUGHT AND HE THOUGHT, I KNOW HE SAID, I'LL WAIT TILL THE NURSES ARE AWAY FROM THE ROOM AND I'LL LEAVE THEM IN THE HALL WAY, AND DON'T YOU KNOW, WHEN MICHAEL WOKE UP ON EASTER SUNDAY, THERE WEREN'T ANY BASKETS IN HIS ROOM, HUH!? SO HE ASKED, MOM DO YOU KNOW WHERE THEY ARE? I SAID WELL LETS SEE IF I CAN FIND IT! SO WE LOOKED ALL AROUND, AND THAN DADDY CAME HE SAID HE SAW SOMETHING IN THE HALL. SO I OPENED THE DOOR AND WHAT TO MY WONDERING EYES SHOULD APPEAR (WOOPS THATS CHRISTMAS & SANTA) WELL WHEN I OPENED THE DOOR THERE WAS A GREAT BIG BASKET FULL OF GOODIES SITTING OUTSIDE THE DOOR,BRING THEM IN BRING THEM IN ,SAID MICHAEL(SO EXCITED) I TOLD MICHAEL, YOU NEVER WENT TO SLEEP SO HE HAD TO FIND SOMEWHERE TO PUT THEM! SO HE UNWRAPPED THE BASKETT AND IT HAD MOVIES AND CANDY,GUMMY FOOT,LIGHTED HAND(THAT YOU PUT OVER YOUR FINGER TIPS)STUFFED ANIMALS, CANDY, CRAYONS ,CANDY ,OH AND HE GOT A HARLEY FROM MOM , SO NOW HE SLEEPS WITH MICHAEL THE HORSE,SKIPPY THE BUNNY(HE NAMED THEM ALL HIMSELF) AND THE TWO HARLEYS, ONE FROM DENISE AND ROCKY, THE PANHEAD AND THE EVO, WELL I'M GOING TO GO NOW, HAVE A GREAT DAY! AND NEVER STOP PRAYING ! AND PLEASE IF YOU RIDE , RIDE FOR BUBBA AND RED TUES THE 25TH,SERVICES ARE AT TEMPLE BETH EL 16225 WINKLER ROAD FT MYERS FL 33909 ALSO SEE THE WEB PAGE AT..... Cruzinswfl@aol.com. God bless you and keep you safe, Michael Rice and family

Monday, April 24, 2000 at 09:34 AM (CDT)

may god shine down upon us for we have lost a dear FRIEND&HUSBAND on easter of all days. GOD KNOWS YOU ARE A SPECIAL PERSON AND NEEDED YOU TO HELP HIM ON THIS BUSY DAY. MAY YOU REST IN PEACE AND LOOK DOWN UPON US WITH YOUR STRENGTH,COURAGE,AND WISDOM AND I'M GOING TO BE A LITTLE SELFISH, BUT BUBBA COULD YOU PLEASE PUT IN A GOOD WORD TO GOD FOR US ABOUT MICHAEL, THANK YOU.BUBBA WAS A MAN WHO DID FOR OTHERS. HE ALWAYS PUT OTHERS ABOVE HIMSELF .I LEARNED THAT THE MINUTE I MET HIM. WHEN WE MET IT WAS BECAUSE OF THE MOTORCYCLE GROUP ABATE .ONE DAY I WAS TOLD THEY WHERE THINKING OF DOING A BENEFIT FOR MICHAEL. A COUPLE OF FRIENDS OF MINE CAME TO THE HOSPITAL TO GET ME AND WE WERE GOING TO TALK TO THE GROUP ABOUT IT . WELL LITTLE DID I KNOW THE PLAN WAS ALREADY IN PLACE, BUBBA LET ME SPEAK (WELL CRY) ABOUT MICHAEL AND THE CHILDREN . THE WHOLE GROUP OF THEM STOOD AS I WENT UP TO SPEAK WITH A STANDING OVATION, AND I THOUGHT I WAS IN CONTROL,BUT BOY WAS I NERVOUS THAN. BUT IT WAS WITH BUBBA AND HIS FRIENDS THAT WE WERE ABLE TO RAISE MONEY FOR MICHAEL. AND THIS I WILL NEVER FORGET.( I NEVER KNEW THESE NEW FRIENDS OF OURS PRIOR TO THIS DAY, THANK YOU ALL)
MICHAEL IS BREATHIING SOMEWHAT BETTER TODAY, ITS AS IF HE'S BREATHING MORE REGULARLY, HE IS STILL VERY TIRED, THE WHITE CELL COUNT IS 1.2 TODAY WHICH COULD MEAN THESE ARE PART OF HIS CELLS , SEE HE DOESN'T GET DADDYS WHITE CELLS ON SUNDAY, THAN ON MONDAY MORN. HIS COUNTS ARE NORMALLY BELOW THE POINT . AND THIS MORNING THERE UP! THE DR. JUST CAME IN AND WE DID AND X-RAY ALSO, ON THE CHEST. HIS PHOSPHORUS IS UP AND THE KIDNEYS ARE UNSTABLE.
SO THEY ARE DOING THE STEPS TO FOLLOW THESE NEW CONCERNS. DR MARTIN WILL GO DOWN TO COMPARE X-RAYS, I AM ANXIOUS TO SEE WHAT HE THINKS, DR MARTIN ALSO SAID THAT HE WILL NOT SAY ITS FUNGUS WITH OUT A C.T. SCAN. WELL HAVE A GREAT DAY. MICHAEL IS GETTING READY TO DO P.T. BYE

Sunday, April 23, 2000 at 09:36 PM (CDT)

Happy Easter! Michael is giving us quite a scare with his breathing difficulties. I don't think either of us will sleep very much tonight.The doctors don't think the fungus is causing his problems now, they think it might just be fluid retention in his lungs along with the inflamation that comes along with it. his spirits are still very good but he isn't very active. He is a tough little kid and very strong. HE really misses the track at Immokalee Drag Strip so any info or pictures would really brighten his day.Once again we want to thank everybody for there help and support. Maybe some day in the future we can be there to help someone else.

Sunday, April 23, 2000 at 09:36 PM (CDT)

Sunday, April 23, 2000 at 08:11 AM (CDT)

2nd entry day 18 easter sunday,

HAPPY EASTER TO EVERYONE, I SEEM TO HAVE SLIPPED, THE DR. CAME IN AT 5:00A.M. AND HAVE ME SCARED TO TEARS. MICHAELS BREATHING IS OF REAL CONCERN,THEY HAVE EVERYTHING READY FOR HIM TO GO TO I.C.U. I'M NOT GOING TO LET THIS HAPPEN, THEY SAID THAT IF HE GOES ON A VENTILATOR THERES A GOOD CHANCE HE WONT COME OFF, THE FUNGUS IS THE REASON FOR THAT,THERE STILL NOT SURE, HIS BREATHING IS COMING FROM THE TUMMY AND UP HIS WHOLE BODY MOVES, NOW DON'T GET ME WRONG THE CHILD WAS UP TO GET HIS EASTER BASKET (S), AND WATCHING T.V. WITH MICK AT 6:30 A.M. AND PLAYING WITH HIS NEW PANHEAD(HARLEY) THE EASTER BUNNY BROUGHT HIM. I AM SCARED THOUGH. IF THE FUNGUS IS THERE, THEY HAVE DONE EVERYTHING TO CONTROL IT AND THERES NOTHING MORE THEY CAN DO. THE OTHER THINGS THAT COULD BE HAPPENING ARE THE CELLS ARE COMING IN THIS IS WHAT I BELIEVE,NOW HE HAS A FEVER, THE CELLS GROWING CAN CAUSE FEVER AND BREATHING COMPLICATIONS, THE LUNGS HAVING FLUID IN THEM CAN CAUSE FEVER AND THE BREATHING PROBLEMS. JUST KEEP YOUR FINGERS CROSSED AND KEEP PRAYING THAT THIS DARN FUNGUS IS NOT WHAT WERE DEALING WITH HERE TODAY , ON EASTER, LOVE TO YOU ALL ,JANE MICK AND MICHAEL

Sunday, April 23, 2000 at 03:41 AM (CDT)

...WE COMPLICATE OUR LIVES WHEN WE BORROW TROUBLE FROM THE FUTURE.WE WASTE OUR ENERGY WORRYING ABOUT WHAT MIGHT HAPPEN TOMORROW;WE BECOME FRANTIC AND PRESSURED LOOKING AT THE MANY RESPONSIBILITIES ON OUR TO-DO LIST FOR THE NEXT WEEK;WE LIE AWAKE OBSESSING OVER OUR PLANS FOR THE UPCOMING MONTH.
AND MEANWHILE WE MISS THE PRECIOUS GIFT OF PEACE THAT GOD HAS GIVEN US RIGHT HERE,RIGHT NOW,IN THIS TINY PRESENT MOMENT THAT TOUCHES ETERNITY.BE LIKE THE WILD FLOWERS, JESUS TELLS US IN THE GOSPELS, SIMPLY SOAKING UP TODAY'S SUNSHINE:"TAKE THEREFORE NO THOUGHT FOR THE MORROW:FOR THE MORROW SHALL TAKE THOUGHT FOR THE THINGS OF ITSELF" (MATTHEW 6:34)
CHILDREN LIVE THE SAME WAY,DELIGHTING IN THE HERE AND NOW,UNTROUBLED BY THE FUTURE.WHEN WE CAN FIND THAT SAME WHOLEHEARTED SIMPLICITY,WE TOO WILL KNOW THE PEACE OF GODS KINDOM.
HAPPY EASTER TO YOU ALL,
I THINK MICHAEL IS FEELING BETTER ,BUT THE NURSE JUST CAME IN TO SET UP RESPITORY EQUIPTMENT JUST IN CASE. SHE AND THE DR. THINK THAT MAYBE HES GETTING TIRED, I DONT , I THINK HE'S DOING BETTER . WE WERE WATCHING TOY STORY, HE GAVE ME A KISS, HE WAS LAUGHING,AND DRINKING HIS MILK, THESE ARE ALL SIGNS OF FEELING BETTER, WE'LL SEE WHAT THE MORNING BRINGS ALTHOUGH IT IS 5 AM. BUT LETS REJOICE THE GLORIOUS DAY AND BE HAPPY FOR IT IS EASTER DAY. GOD BLESS. JANE

Saturday, April 22, 2000 at 06:10 PM (CDT)

."...AS CHRIST WAS RAISED FROM THE DEAD THROUGH THE GLORY OF THE FATHER, WE TOO MAY LIVE A NEW LIFE."
ROMANS 6:4 NIV

NO CHANGES AT THIS TIME ,MICHAELS STILL HAVING DIFICULTY BREATHING, THE BLOOD GAS,OR GAS BLOOD LEVELS ARE ABOUT THE SAME THROUHT THE DAY ,51-53,HIS SPIRITS ARE GOOD FOR THE MOST PART. WE CHANGED HIS PAIN MEDICATION FROM FENTENOL, TO DILOTTA(I DONT KNOW HOW TO SPELL THAT EITHER), HE IS RESTING BETTER, ALMOST IMMEDIATLY.THE EASTER BNUNY CAME HERE THIS MORNING,I THINK IT WAS THE EASTER BUNNIES HELPER. HE TOLD ME HE WOULD COME ON SUNDAY SO THIS MUST JUST BE THE ONE FROM FLORIDA, HE HAS A LONG TRIP BACK AND HAD TO DO THE KIDS WHO ARE OUT OF STATE BECAUSE THERE SICK OR ON VACATION OR FOR WHAT EVER THE REASON YOU MAY NOT BE HOME, FIRST . AND WE HAD A CHURCH MAKE DINNER FOR THE FAMILIES TONIGHT ,WOW WHAT A SREAD, LASAGNA,RAVIOLI,CHICKEN POT PIE, SALADS, AND ALL KINDS OF DESSERTS.DADDY IS GOING TO THE MOTEL CAUSE HE SO TIRED HE CAN HARDLY KEEP HIS EYES OPENED. WELL HAVE A WONDERFUL DAY WITH YOUR FAMILIES TOMORROW. GOD BLESS YOU ON SUCH A SPECIAL DAY. GRANDMA IS BRINGING US HONEY BAKED HAM DINNER TOMORROW. SO DON'T WORRY ABOUT US. LOVE MICK JANE AND MICHAEL

Saturday, April 22, 2000 at 09:54 AM (CDT)

GOOD MORNING EVERYONE, DAY #17

I HAVE REALLY GOOD NEWS AND SOME VERY CONCERNING NEWS FIRST THE NOT SO GOOD. HIS BREATHING WAS REALLY BAD THROUGH OUT THE NIGHT AND MICK WAS VERY BUSY BETWEEN X-RAYS AND RESPITORY THERAPIST AND THE NURSES AND THE BEEPING, NO SLEEP AT ALL, MICHAELS LUNGS ARE WET, THE CONCERNS THERE ARE THAT IT COULD BE THE FUNFUS.... IF IT IS THE FUNGUS WE COULD LOSE HIM THEY HAVE DISCUSSED THIS WITH US JUST IN CASE,IF HIS BREATHING DOESN'T GET BETTER THEY WILL PUT HIM ON A VENTILATOR, NOW THE OTHER THINGS ,WHICH THE DOCS THINK, IS THAT HIS CELLS ARE COMING IN.WHEN THE CELLS START TO GROW THIS CAN CAUSE THE LEAKING OF FLUID INTO THE LUNGS, THIS CAN CAUSE THIS TYPE OF BREATHING COMPLICATIONS,AND FLUID RETENTION. THEY HAVE MICHAEL ON THE MEDS TO TRY TO CONTROL ALL OF THESE THINGS.
NOW THE GOOD NEWS IS THAT THE ULTRASOUND THAT WAS DONE YESTERDAY HAS SHOWN THAT THE BLOOD IN THE LIVER IS FLOWING PROPERLY SO THE MEDS THEY PUT HIM ON FOR THE V.O.D. ARE DOING THE JOB, THE X-RAY SHOW THE LUNGS ARE WET AND THE C.M.V. TEST WAS RE-DONE AND HE DOES NOT HAVE C.M.V. VIRUS. SO LETS PRAY THAT THE FUNGUS HAS BEEN UNDER CONTROL AND WHAT IS HAPPENING HERE IS THAT HIS CELLS ARE COMING IN !
THANK YOU FOR WRITING IN THE PAGE, ITS GREAT TO SEE EVERYONE OUT THERE,
HAVE A GOOD DAY AND A VERY HAPY EASTER MORNING, TALK TO YOU LATER, JANE MICK AND MICHAEL

I HAVE LEARNED TO LIVE EACH DAY AS IT COMES AND NOT TO BORROW TROUBLE BY DREADING TOMORROW, DOROTHY DIX

Friday, April 21, 2000 at 05:22 PM (CDT)

HELLO EVERYONE, DID YOU FORGET TO SIGN THE PAGE TODAY? MICHAEL NEEDS ALL THE SUPPORT HE CAN GET, HE MISSES HOME SO SO BAD,
HE HAS BEEN HAVING TROUBLE BREATHING ALL DAY . WE HAVE HAD HIM ON THE OYXGEN AT 55% MOST OF THE DAY. HE IS SCARED, IF YOU TAKE THE BREATHING TUBES OFF HE WILL SAY HES HAVING PROBLEMS BREATHING.THE DOCS. TOOK A CHEST X-RAY AND EVERYTHING LOOKS OK. HE SAID IT LOOKED WET, BUT NO SIGNS OF PNEMONIA(I HAVE KNOW IDEA HOW TO SPELL THAT AND THE DICTIONARY DOSEN'T EITHER)HE WANTS ME TO SNUGGLE WITH HIM SO HAVE A GOOD NIGHT. TALK TO YOU IN THE MORNING SOMETIME, LOVE & GOD BLESS.

Friday, April 21, 2000 at 12:44 PM (CDT)

GOOD FRIDAY DAY # 16

DEAR LORD, REST IN MY HEART. MAY OTHERS SENSE YOUR SERENITY IN ME.

GOOD FRIDAY TO YOU!
WELL WE HAD A ROUGH NIGHT, MICHAEL HAS HAD BREATHING PROBLEMS AND HIS BODY ACHES, THEN THE REAL FUN BEGAN(PLEASE DON'T TAKE THIS THE WRONG WAY) HE HAD AN EPISODE OF S.V.T. TACHYCARDIA, AT AROUND 2:00 A.M. THE NURSES HAD TO MEDICATE HIM TO STOP IT FROM BEATING TO HIGH( TACHYCARDIA IS WHERE HIS HEART RACES OFF INTO 200 BEATS PER MINUTE OR MORE, FOR THOSE OF YOU WHO DON'T KNOW) AND AS QUICKLY AS IT STARTED THE ADENIDINE STOPS IT "BOOM" I HAD MY HAND ON HIS HEART WHILE THEY DID IT AND JUST PRAYED! HIS BILIRUBIN IS DOWN 3.5 AND THE OTHER BLOOD WORK IS REALLY REALLY GOOD ALL WITH IN THE NORMAL RANGE, HAVE A GREAT EASTER, JANE MICK AND MICHAEL

Thursday, April 20, 2000 at 09:22 PM (CDT)

DAY #15,

FINDING PEACE IN A HECTIC WORLD....

DEAR JESUS,
HELP ME NOT TO BE SO BUSY THAT
I MISS THE SMALL PLEASURES
YOU'VE SPRINKLED THROUGH MY DAY.
HELP ME TO NOTICE THE WAY THE
SUNLIGHT FLICKERS THROUGH
THE LEAVES OUTSIDE THE KITCHEN
WINDOW;
HELP ME TO PAY ATTENTION TO THE
SMILE OF SYMPATHY MY CO WORKER
GIVES ME;
HELP ME TO REALLY
TASTE THE RICH,HOT TASTE OF COFFEE
IN MY CUP.
REMIND ME NOT TO TAKE THESE
TINY TREASURES FOR GRANTED.
GIVE ME A CHILD'S HEART THAT SEES
THE LOVELY SIMPLE THINGS IN LIFE.
AMEN.

TRUE SERENITY COMES WHEN
WE GIVE OURSELVES TO GOD......

WOW, NOW THATS WHAT WE LIKE TO SEE ,,,,,
THANK YOU ALL FOR WRITING IN THE WEB PAGE, HI AMY AND STEVE, HELLO TO YOU IN NEW JERSEY, MICK IS FROM THE CAPE MAY AREA, WE LOVE IT THERE" IN THE SUMMER" OF COURSE.
WE WOULD LIKE TO SAY HELLO TO:JAN,
SUE NELSON,ANN AND A SPECIAL HELLO TO CALISSA AND TO THE KIDS AT OUR CHURCH,AT ST.ANNS,,UNT SUE AND UNCLE LARRY GLAD TO HAVE YOU BACK!GINGER AND MEAGEN, HI TRAVIS WE MISS YOU ALL VERY MUCH,AND EVERYONE ELSE,
..........MICHAEL HAS ALREADY WENT ON AN EASTER EGG HUNT, WE GOT A WHOLE BUNCH OF TATOOS AND STICKERS AND BUGS.I KNOW WHERE WE ARE GOING TO SEND THE BUGS (BACK TO FLORIDA).WE WENT FOR A RIDE ON THE BIKE AND RIDING IN ONE OF THE DESK CHAIRS, TO HUNT FOR THE EGGS.
HIS BILIRUBIN IS DOWN TO 5.1 TODAY AND THAN HIS WEIGHT IS 20.8 THE BEST YET!!!!!!!!!!!!!!, HE DID NOT EAT THE SPAGETTI, BUT HE WAS EATING THE SHERBERT AND HE HAD DUNKIN DOUNUTS, THE TUMMY PAIN IS STILL VERY UNCOMFORTABLE, LIKE I SAID WE WILL BE ABLE TO CONTROL IT BETTER IF HE HITS THE BUTTON(THE PAIN CONTROL BUTTON), THE NURSE,SARA IS CHECKING INTO IT NOW AS A MATTER OF FACT.THEY WANT TO CONSULT WITH THE CARDIOLIGISTS, SO THEY CAN CONTROL THE BLOOD PRESSURE.ITS SOARING AGAIN OVER 165/100.
THE EASTER BUNNY IS TO COME HERE TOMORROW AND THEN THE REAL ONE WILL COME ON SUNDAY ,BUT WE'LL NEVER SEE HIM,

IT IS ONE THING TO SEE THE LAND OF PEACE FROM A WOODED RIDGE.....
AND ANOTHER TO TREAD THE ROAD THAT LEADS TO IT.
ST. AUGUSTINE

HAVE A GREAT DAY , GOD BLESS YOU ALL JANE ,MICK AND MICHAEL

Wednesday, April 19, 2000 at 02:29 PM (CDT)

well i finally did it .I broke down and cooked , well cooking, i'm making spagetti ,just couldn't stand it anymore, i debated wheather or not to make a stew or chicken, but i have had a craving for garlic bread ,SO SPAGETTI IT IS, michael is doing pretty well today we kind of had a tough night , "PAIN" IN THE TUMMY, can't seem to come to a happy medium, but we'll just keep pushing the button and than it will work itself out, his weight today is 21.3 and the tummy is 64 1/2 c.m, his bilirubin did go higher but not to bad 5.4, we'll see what tomorrow brings, well gotta get back to the spagats, love to all.....................
JANE ,MICK AND MICHAEL, DON'T FORGET TO SIGN THE WEB PAGE, HAPPY ANNIVERSARY LAURA AND MARTY, (I FORGOT SORRY) p.s. i'll write again later!

Tuesday, April 18, 2000 at 06:27 PM (CDT)

hello everyone , i made a mistake about michaels weight it is 21.6 was 21.6 it is now 21.3 , the tummy measurments were correct, we just found out he has C.M.V. virus, which to you or I its just the common cold, but they will start a new antibiotic to control it , this virus is something you carry forever once you get it, so at this point they just have to control it,michael has been up already 3 times to day riding his tricycle, and walking.
Aunt sue and uncle larry we received your package today thank you for the spoon and michael loves his planes, and the book, Aunt Mandy and Uncle Chris, austiin and garett thank you for the outfit and stuff, and the cards that so nice,and the bubble blowing nascar, michael gets so excited when he gets mail, like i said before, he looks forward to the mail coming, denise and rocky, you guys are so thoughtful, the easter basket is so neat and all the kool kool stuff the harley , he sleeps with it along with michael the horsey, michael didn't eat the chocolate
I DID!as michael would say" BAD MOMMY"A unt jannie and uncle ken thank you for all you have done the baloons are just what we need to brighten his day and room, I WOULD ALSO LIKE TO THANK THE PEOPLE AT HOME WHO SENT THE BEAUTIFUL BLANKET FROM PROJECT LINUS,Michael is resting now his tummy still hurts pretty good , his blood pressure is up again, his body aches really bad,but he was that little boy again on the trike today who has that great outlook, and spunk to get moving,to get back "HOME", grandma and I went to find the easter bunny so he knows where michael is on easter, this will be the first year we wont have a picture with michael and the easter bunny,I remember michaels first easter. he was born on the 11th and i think easter was on the 13th or the 17th that year but i took him to see the bunny and had his picture taken , THE BUUNY SWALLOWED HIM UP, ALL 9.6OZ OF HIM,BUT THIS IS THE BEST PICTURE, MY FAVORITE, WELL THE BILIRUBIN IS UP FROM 1.7 TO 5.1 THE DOC SAYS NOT TO WORRY,AND THAT HE WOULDN'T BE SURPRISED TO SEE IT HIGHER TOMORROW.UNTIL TOMORROW, LOVE TO ALL , JANE MICK AND MICHAEL, P.S. DON'T FORGET TO SIGN THE GUESTBOOK,
GOD BLESS YOU!
NOTHING IS WORTH MORE THAN THIS DAY!
JOHANN WOLFGANG VON GOETHE

Tuesday, April 18, 2000 at 10:16 AM (CDT)

THE SAYING HERE IN NORTH CAROLINA I GUESS IS "IF YOU DON'T LIKE THE WEATHER WAIT 24 HRS." it is raiining and dreary, but that didn't stop us from receiving the best anniversary present from "GOD" Michaels weight and tummy are down the best in a while, the weight is 22.3 the
tummy is 65 1\2cm his tummy looks almost normal this morning, thank you God, i know you are out there listening to all the magnificent prayers,

Monday, April 17, 2000 at 05:31 PM (CDT)

the good news is michael wants to eat , we'll see, i'm in the family room now waiting for the biscuts to cook , he said he wanted orange sherbert also, daddy is working on that , well the old saying says a new days dawning, and it is here, everytime he awakes he seems to be better and better . tummy is down 68cm, the weight is down 22.1 YAHOO! i was listening to michael last night dreaming and it makes me so sad he was talking as if he was awake he says "mom some one special is here, i said, where? there here mom i want to go see , michael where they have presents for me mom, where michael he turns his little head and says OH! I THOUGHT I WAS AT HOME MOMMY" I CRIED FOR HIM , I WISH I COULD JUST TAKE HIM AWAY FROM ALL THIS ,but he is doing much better now and thats going to get us home sooner, thank you god for hearing all of our prayers, please keep doing what you've been doing and we'll be home before you know it, JANE MICK AND MICHAEL

Monday, April 17, 2000 at 10:47 AM (CDT)

HI EVERYONE, YOU KNOW I NOTICED THIS SITE IS VISITED ALMOST 100 TIMES DAILY, AND ONLY A FEW OF YOU SIGN IT, ITS OK TO SIGN, EVEN IF WE DON'T KNOW YOU ,I AM A FANATIC WHEN IT COMES TO THIS PAGE, ITS MY ONLY FORM OF RELEASE, I CHECK IT OFTEN JUST TO SEE WHERE OUR LIFE LINES ARE TODAY,
MICHAELS WEIGHT IS DOWN A WHOLE K.G. YEAH!!! HE WAS UP LAST NIGHT WITH ME WATCHING POWER RANGERS AGAIN, THEN HE RESTED PRETTY WELL TROUGH THE NIGHT, HIS BILIRUBIN IS UP TO 2.2 NOT TO WORRY JUST YET, NO FEVERS SINCE THE NIGHT BEFORE LAST LATE EVENING, HE SEEMS TO STILL HAVE BAD TUMMY PAIN,I GUESS THIS IS TO BE EXSPECTED WITH THE LIVER GOING THROUGH ALL THE MEDICATIONS AND CHEMO AND RADIATION, HE IS A SLEEP NOW, WHEN HE WAKES HE SEEMS TO BE ABLE TO FUNCTION A LITTLE BETTER THAN THE PAST FEW DAYS, HE COULDN'T KEEP HIS EYES OPEN,WE ALREADY WHERE ON THE TRICYCLE THIS MORN. HE WENT TO SEE DADDY HAVING HIS BLOOD WITH DRAWN, AND ON THE WAY BACK HE SAID TO THE DOCS. "LOOK OUT", WELL I' M GOING TO CLOSE I WILL UP DATE AGAIN LATER THIS EVENING(LATE), TODAY IS MINE AND MICKS SEVENTH YEAR OF MARRIAGE, THE ONLY THING I WANT IS TO BE
"HOME" WITH "MY FAMILY AGAIN" .

Sunday, April 16, 2000 at 09:52 PM (CDT)

ALMOST 11:00 PM. MICHAEL WAS UP RIDING THE TRICYCLE, HE TRIED TO RUN OVER THE NURSE, NOT THAT HE IS FEELING THAT WELL BUT HE'S STILL HAS THAT UUUMMMFFF!!SO MUCH IS GOING ON WITH HIM, BUT IT LOOKS A THOUGH THE DRS. ARE RIGHT ON TOP OF THINGS,I ASKED DR PAUL ARE YOU IN HERE SO MUCH BECAUSE YOU REALLY REALLY LIKE MICHAEL OR IS IT THAT YOU HAVE TO SEE WHAT HE'S DOING NEXT, THERE IS ALWAYS SOMETHING GOING ON IN OUR ROOM, RACES, ETC, AND MICK AND MICHAEL WILL HAVE THE MINITURE CARS SITTING ON THE BED IN THE ORDER OF LEADING POSITION, SO THEY CAN KEEP TRACK OF WHOS IN 1ST PLACE, OR WE ARE MAKING THINGS AND SUCH, WELL THE NEWS IS THAT THERE IS FLOW REVERSAL OF THE BLOOD IN THE LIVER, BUT WE ARE TRYING SOMETHING NEW, ITS NOT EVEN IN THE HOSP.(I.V. MED) IT SHOULD BE HERE TOMORROW, HIS FLUID IN TAKE AND OUT PUT ARE DOING WELL,(THE LIVER IS SO HUGE THE SIZE OF A BASKET BALL) BUT NOT WITH OUT HELP , WHICH IS O.K. HIS BLOOD PRESSURE HAS DROPPED 100/68, HIS HEART RATE HAS DROPPED 75-^ AND HIS RESPIRATIONS HAVE DROPPED 22-35, THE SATS. ARE BETTER SINCE THIS MORNING BACK TO 98-99, WITH OXYGEN,WOW! I JUST GOT UP BECAUSE MICHAEL WAS MONING OR SOMETHING, MUMBLEING,AND I PICKED UP BLANKY AND MOVED IT SO I COULD GET HIM UP TO PEE AND I SAW THIS STREAM COMING ACROSS THE BED ALL THE WAY TO THE DOOR,OH MY GOSH, LOOK OUT! HE WAS PEEING AND IT WENT SHOOTING. I WAS ALMOST IN A HEAP OF TROUBLE ,BUT THANK GOODNESS,,ITS A GOOD FOUR FEET TO THE DOOR FROM THE BED,, HAHAHAHAHAHAHA! WELL HE WANTS ME TO LAY WITH HIM,
UNTIL TOMORROW, LOVE AND PRAYERS

Sunday, April 16, 2000 at 09:52 PM (CDT)

Sunday, April 16, 2000 at 03:55 PM (CDT)

hi everyone , well so far so good, michael will show the docs when it time to play with the big dogs he does " NOT SIT ON THE PORCH" HIS FLUIDS ARE STARTING TO COME OUT SLOWLY, HIS TEMPS ARE HOLDING THERE OWN, NO TYLONOL!!!! YEAH!!! THE ULTRASOUND WAS DONE A LITTLE WHILE AGO, GRANDMA SAID SHE HEARD THE TECH TELL THE NURSE THAT THE BLOOD SEEMS TO BE GOING IN THE RIGHT DIRECTION , WE'LL KNOW BETTER IN A LITTLE WHILE, BUT THIS IS THE BEST NEWS I COULD HERE, IF THE FLOW OF BLOOD IS DOING SOMETHING IT SHOULDN'T BE WE COULD BE IN SERIOUS TROUBLE, NO BIKE RIDE YET! BUT I WILL GET HIM OUT! HOPE YOU HAD A NICE SUNDAY, ALL I HEAR IS THE RACES
OH!!!!!!!!P.S. JEFF GORDON WON YA HOO!!!!!

Sunday, April 16, 2000 at 10:04 AM (CDT)

PALM SUNDAY, 11:00 A.M. MICHAEL JUST SAW THE DOCS. HE WAS SLEEPING TILL THAN AND IS SLEEPING AGAIN. HE HAS HAD A RESTLESS NIGHT. HIS RESPIRATIONS ARE HIGH, RANGING FROM THE HIGH 40'S TO THE 70'S AT TIMES, HIS HEART RATE IS 82 HIS SATS ARE 97 NOW THEY WERE AT 94-96, THROUGH OUT THE NIGHT, THE DOCTORS ARE LOOKING AT REMOVING THE FLUID, BECAUSE OF THE WAY HE IS BREATHING, THEY ARE GOING TO TRY, SOME OTHER MEDS TO SEE IF THEY CANT GET THE FLUID OUT THAT WAY, BUT WITH IN 24 HOURS IF THERES NO CHANGE THEY WILL TAKE HIM TO I.C.U. TO REMOVE THE FLUID, THE PROCEDURE , THE DOC. WILL SADATE? HIM AND THEN STICK A NEEDLE INTO THE TUMMY CAVITY AND REMOVE THE FLUID, AND THEN MONITER HIM FOR A WHILE, THEY DO HAVE SOMETHING ESLE THAT SUGGEST V.O.D. THE FACTOR THAT I SPOKE OF YESTERDAY, THE COMPLICATION ARE OF COURSE THE SADATION MEDICATION,HITTING THE WRONG ORGAN, AND BLEEDING, THEY WILL GIVE HIM PLATELETTES, ADN HE WILL GET DADS WHITE CELLS TOMORROW BEFORE THE PROCEDURE(IF THEY DO IT), HIS WHITE CELLS ARE DROPPING 1. AND THE PLATELETTES ARE 14 (NO ROOM FOR MR PICKER TODAY) HE HAS NOT DONE ANYHTHING WITH OUT HAVING TO DO IT, IT HAS TO BE A MUST THING! LIKE PEEING AND MEDS, AND OF COURSE THE DREADED TRICYCLE, HE JUST WANTS TO SLEEP, HIS TUMMY LOOKS SO BAD TODAY THE LIVER IS SO ENLARGED, JUST KEEP PRAYING, LOVE TO ALL HAVE A GOOD DAY , JANE ,MICK AND MICHAEL

Saturday, April 15, 2000 at 12:44 PM (CDT)

1:45 and michael is just now waking up, i my self didn't get out of his bed til 9:30, not with out being forced out, to get michaels weight, he is doing well so far no fever,he did have a fairly good night, just the normal, mom, i have to pee! hes giving his michael horsey oxygen , he is so cute "look dad" ! hes had enough!!!!
the fluid is still there ,the good news is the heart does not show signs of fluid retention, the testicals, were not sure yet. his blood counts are good, but the white cells are only at 1.8(better than none)he has to get what they call a.t.III its one of the fators in the clotting agents, from what i could understand from the nurse, they will give this factor i.v so there isn't any clotting problems internally, we will get him on the tricycle anyways today , he is yelling at me he doesn't want to ! but there are 3 things he must do daily ,1:exercise 3x,mouth care 4x(we always try to do more) and bath, that is the tough one ,but it all works out in the end, cause he'll have an accident, so we clean him then!he just hates to bath cause he gets so cold,well i hope everyone has a pleasent day, its raining and kind of cold here, but thats ok rain everyday til we can get out of here than we don't feel so bad for not being able to go out side.
love to you all, jane mick and michael

Friday, April 14, 2000 at 06:20 PM (CDT)

MICHAEL TRULY IS THE MEANING OF THE WORD STRENGTH, HE IS MY REASON FOR LIFE AND SO IS MICK, IF YOU COULD ONLY SEE THE THINGS THAT GO ON HERE,ALL IN ONE DAY, FIRST NO SLEEP ALL NIGHT, FEVER OF 105. MORE THROWING UP ,SOME BLOOD, HE IS SO GOOD WHEN IT COMES TO THE ALARMS GOING OFF AND HE HAS TO PUT THE OXYGEN ON, HE'LL BREATH AND TAKE DEEP BREATHS SO THE ALARM WILL STOP, SORE TESTICALS,( THEY THINK IT'S FLUID)RESPITORY THERAPIST HAS BEEN IN 2 TIMES, THE SCHOOL TEACHER , THE PHYSICAL THERAPIST, SONA GRAM of the heart THEY THINK THERE MAY BE FLUID AROUND THE HEART., oh x-ray of the chest first thing before i even came over ,the doctors have been in twice ,the people to deliver the FOOD trays, than pickup the tray 3 times x 3,the nurse is in here almost all day grandma came after 3:00, jess our buddy was here for her lunch,just how do you get any rest? but he still rode the tricycle twice, he breaths like a little fish , aunt deb and the girls would be so proud of the fish lips, when you put his stuff on his lips so there not so dry, he smacks his lips , it is the cutest thing ,daddys favorate thing to watch, mom bought him a small stuffed horse guess what he named him, ???? MICHAEL,GO FIGURE, WELL ALL AND ALL HE IS THE ONE WHO KEEPS FIGHTING THROUGH THIS, TODAY HE HAS BEEN JUST SO TIRED, AND HE HAS TRIED, TO SLEEP BUT NO CHANCE, WELL I'M GOING TO CLOSE TILL TOMORROW, GOD BLESS JIMMY,HE LEFT US YESTERDAY WITH A BEAUTIFUL SMILE, SO THIS IS WHAT I WILL REMEMBER, I MISS YOUR BEAUTIFUL SMILE AND THOSE EYES.... OH! GOD KEEP YOU SAFE BIG GUY, WE'RE ALL GOING TO MISS YOU SOOO SOOOO MUCH. YOU WERE ONE OF MY FAVORITE PEOPLE , I HAVE BEEN BLESSED TO KNOW YOU AND WE WILL MEET AGAIN,KEEP YOUR EYES ON MOM AND DAD CLOSLY FOR A WHILE THEY WILL MISS YOU AND WILL NEED TO KNOW YOU ARE THERE WATCHING THEM , I DIDN'T GET TO HEAR YOU SING, BUT I'M SURE I WILL IN MY DREAMS TONIGHT, LOVE TO YOU ALL AND THANK YOU FOR YOUR PRAYERS, PLEASE WHEN YOU GO TO CHURCH LIGHT 7 CANDLES FOR THE KIDS WHO HAVE LEFT US TO BE WITH GOD FOR MICHAEL

Friday, April 14, 2000 at 10:45 AM (CDT)

HI, I PROBLY WON'T HAVE TO MUCK TIME TO KEEP YOU UP DATED THE NEXT FEW DAYS BUT PLEASE DO NOT WORRY I WILL DO IT IN THE MIDDLE OF THE NIGHT ,MICHAEL IS ON OXYGEN AND HIS TUMMY IS VERY LARGE TO DAY ALL THE COUNTS, AND BLOOD WORK LOOK GOOD EXCEPT THE FEVERS. HIS TEMP WAS 105.3 WHEN I CAME IN THIS MORN HE IS VERY
UNCOMFORTABLE, HE CANT BREATH TO WELL, BUT HIS SPIRITS ARE STILL GOOD , HE DID NOT SLEEP ALL NIGHT DAD DIDN'T EITHER, BUT I HAVE TO GET BACK TO HIM .LOVE TO ALL AND LETS KEEP PRAYING THIS IS THE WAY IT GOES , MICHAEL AND FAMILY

Thursday, April 13, 2000 at 08:01 PM (CDT)

the signs of engraftment could be taking place, were not sure but usally the kids experience leg pain, fevers and the skin changes colors, so far thats michael, pink from fevers and leg pain,and don't look at me. (only mommy)and the blotchyness from the cells checking out the body, there all going huuuummmm, do we want to be here? and than micks power cells are doing the job this could also be from his cells( micks ), we had the ct scan today no results yet,michael additude is still very good, really considering what this child goes through in one day it would last me a life time and i know i would be hitting someone!!!!!, he has to have his dressing changed yet tonight, but he's has a fever, i asked sandy, the nurse, to wait till the tylon. kicked in then he won't be so cold,.. michael and mick and i have a new buddy , her name is jess, shes 23 years old and she seems to like alot of the same things we like, like michael and camping and hiking, she comes and hangs out with us so we have someone to talk to about just plain old conversation, or none at all, like today i think i told her my whole life story( yeah she was here a while )while mick took michael to ct scans. she went camping and hiking in calif. over the past week, and i had asked her to get mike a worry stone, she did, he held on to it all night, we made the nurses these kool neckless' did i tell you, well the other nurses are all complaining they don't have one ,, yes i hear you in florida, we'll go get a truck load of beads kay ? kay!one alst thing, mandy and chris and austin and garett, thank you for the gifts of clothes and the awsome books and pictures you made, and denise and rocky thank you, for the easter birthday package , as i said michael lives for his mail, the mail guys name is rocky!!!!!, he has a son 5 years old and his name is nicholas, we saw them while crossing the street yesterday. well GOOD NIGHT TO ALL, GOD BLESS AND SLEEP WELL,JANE MICK AND MICHAEL

Thursday, April 13, 2000 at 10:42 AM (CDT)

HI ! IT IS NOW 11:45, MICK IS HAVING HIS WHITE CELLS EXTRACTED AS I WRITE, EVERY MONDAY AND THURSDAY AT 10:00AM, IT TAKES ABOUT TWO HOURS. MICHAEL STARTED RUNNING A FEVER THIS MORN, 102.3, WE GAVE HIM TYLONOL, AND HIS FEVER IS DOWN, MICK IS DONE, AND FEELING A LITTLE SORE, WELL WE FINALLY HAVE A TEACHER IN HERE TEACHING MICHAEL,, I THINK HE'LL ENJOY THIS VERY MUCH , SO FAR SO GOOD,THAN WE ALSO HAD THE LADY FROM THE FOOD SERVICE COME HERE BECAUSE OF THE NICE NOTES MICK PUT ON THE MENU( NO I DIDN'T SAY A THING , I BLAMED IT ALL ON MICK )THE FOOD , I WOULD N'T FEED OUR DOG, PLUS THE MENU IS VERY ,LIMITED, BUT I WAS NICE, I SWARE,,,, THE LADY JACKIE WAS VERY UNDERSTANDING, SHE SAID SHE WOULD SEE WHAT SHE COULD DO!!!!!HE IS FEELING PRETTY GOOD, WE WILL DO A CAT SCAN TODAY AND THE BILIRUBIN IS THE SAME 1.5 THE DOC THINKS HE IS RETAINING FLUID IN THE AREA WHERE THE SPLEEN WAS SO THEY WANT TO BE SURE , THE CT SCAN WILL SHOW THIS, AND OF COURSE, THE FUNGUS , TO BE SAFE ,NOW I HAD MENTIONED THIS TO THE DOC YESTERDAY, ABOUT DOING SOMETHING BEFORE IT GETS OUT OF CONTROL, HE SAID HE WANTED TO WAIT BUT THE FEVER I GUESS SCARED HIM, SO WE'RE DOING IT,SO THINGS ARE GOOD TODAY, HAVE A NICE DAY, IT RAINING HERE! JANE MICK AND MICHAEL

Wednesday, April 12, 2000 at 08:29 PM (CDT)

hello everyone, how are you tonight,? we are doing well this evening, we went for our walk and bike ride today, still having a little trouble breathing, but the docs, say his tests are good, and the the tummy is smaller today and the weight is o.k. not to concerned ,,, mike is showing them,a thing or two,,,, also teaching them a thing thing or two about drag races and cars races and there drivers,& hockey& riding a.t.c.'s, and how to live life through a
" FIVE YEAR OLD EYES ", THE NURSES ARE GREAT HERE , THEY ACTUALLY LOVE HIM TO PIECES, WERE VERY LUCKY, THEY TAKE SUCH GOOD CARE OF HIM , SARA SITS OUT SIDE THE ROOM ALL NIGHT UNLESS SHE HAS TO GO TO THE OTHER PATEINTS ROOM , SHE SAID SHES A PARANOIDE NURSE,( YOU KNOW I LIKE THAT),MICHAEL WANTS TO SLEEP IN MY BED TO NIGHT, I THINK HE THINKS IF HE'S IN MY BED HE WON'T BE BOTHERED , THEY DON'T BOTHER ME AND SAME WHEN GRANDMA COMES IN HE SAYS HE WANTS HER TO LEAVE, HE KNOWS MICK AND I GO TO LUNCH, OR DO SOMETHING, GOTTA GO THE PICKER IS HERE, ( THATS MICHAEL, YES HE'S STILL PICKING, NOW ITS THE LIPS TOO, BESIDES THE NOSE,, MR PICKER!!!!!),, LOVE TO ALL GOD BLESS AND SLEEP WELL, IF WE CAN'T,,, AT LEAST SOME ONE CAN FOR US!!!! BYE

Wednesday, April 12, 2000 at 09:54 AM (CDT)

HI EVERYONE ,MICHAEL JUST HAD HIS DRESSING CHANGED ON HIS LINES, OOOOHHHH! THE ALCOHOL!!!!!!, POOR LIL' GUY, I CANT STAND IT HE SCREAMS ALMOST THE WHOLE TIME , HIS BLOOD PRESSURE IS HIGH STILL,140 / 94 HIS HEAD IS KILLING HIM AS HE YELLS LOUDER, BUT WE GET PASSED THAT PRETTY QUICK, THE GOOD NEWS IS THE BILIRUBIN IS DOWN ( GO BACK IN JOURNAL TO SEE BILIRUBIN)FROM 2.2 TO 1.5 AND HIS TUMMY IS A LITTLE BIT SMALLER TODAY, MICK SAID IT WAS AN O.K. NIGHT, HIS SPIRITS ARE PRETTY GOOD, AND HE WILL GO WALKING WHEN DAD GETS BACK,, HIS WHITE COUNT IS STILL HIGH 5.6. DADDY, THE POWER HOUSE WITH THOSE WHITE BLOOD CELLS(HELPING TO SAVE YOUR CHILDS LIFE!!!! WHAT A GREAT FEELING) WELL HAVE A GREAT DAY AND DONT FORGET YOUR PURPLE!!!!!THINKING OF YOU!

Tuesday, April 11, 2000 at 08:26 PM (CDT)

happy 5th birthday baby (OH HES NOT A BABY ANY MORE) , he is so sweet, i want more presents mom !!!!!! you could wrap anything he doesn't care!this morning he wasn't feeling to well, but we reminded him its his birthday and he perked right up! michaels liver is larger today but, the docs. think it might be for another reason than the veno-occlusion i spoke about. thank you Jesus!lets just hope its something less complicated. his tummy is larger they measure it 2x a day and weigh him several times , his blood pressure has bee fluctuating all day , on the high to very high side , and than ok! his party was fun he had the power ranger cake, and a few presents. the best presents came in the mail today he received a picture signed by JEFF GORDON,FROM COREY SABAN, AND THE POWER RANGERS, FROM KIM SWEAT, WHITNEYS MOM, SORRY YOU HAD PROBLEMS GETTING INTO THE PAGE TODAY, I DID TO , BUT WE ARE DOING WELL AND HIS DADDYS CELL ARE WORKING MUCH BETTER THAN THEY EXSPECTED, THE HARDEST, PARTS OF MY DAY IS LEARNING WE LOST ANOTHER CHILD FROM HOME, A VERY SPECIAL LITTLE GUY , A.J. HE PASSED AWAY THURS , I JUST RECEIVED WORD TODAY ,,,WE ARE VERY SADDENED , THEY ARE PART OF OUR FAMILY, ACTUALLY WE FOUND OURSELVES ALMOST LIVING TOGETHER, JUST AFTER X-MAS, TIL FEB,
.............A.J WE'RE GONNA MISS YOU LITTLE GUY , WE LOVE YOU. MICHAEL AND HIS MOM AND DAD, YOU FOUGHT SO HARD, MOST DAYS YOU COULDN'T TELL YOU WERE SICK, YOU ARE NOW IN THE LORDS HANDS BECAUSE HE KNEW WHAT WE ALL KNEW HOW TRULY AN INSPERATION TO YOUR FAMILY AND ESPEACIALLY SISSY, AND EVERYONE ONE YOU TOUCHED , I CAN'T SAY WHAT A SPECIAL LITTLE GUY HE WAS SO VERY BRAVE THEY ALL ARE. I'M GOING TO CLOSE NOW AND PLEASE PRAY FOR OUR CHILDREN WHERE EVER THEY ARE, GOODNIGHT

Monday, April 10, 2000 at 07:08 PM (CDT)

i hope that everyone had a good day. today theres lots of SPRING everywhere and yes that does mean new life, TOMORROW IS THE BIG DAY, I'M SURE SOME MAY BE CONFUSED, MICHAEL AGREES, BUT TOMORROW IS HIS BIRTHDAY, SO PLEASE , PLEASE SEND HIM A E-MAIL ON THE WEB PAGE OR TO THE E-MAIL ADDRESS HE WOULD REALLY LIKE THAT, YOU SHOULD SEE HIS FACE WHEN PEOPLE TELL HIM HAPPY BIRTHDAY, BUT HES JUST SO SWEET AND SAYS NOTHING , WHEN I KNOW HE WANTS TO SAY " ITS TOMORROW"!WE HAVE HAD A PRETTY BUSY DAY, WE HAD A BASEBALL PLAYER FOR DUKE COME SEE MIKE AND GAVE HIM A BASE BALL SIGNED BY THE WHOLE TEAM,A HAT AND A POSTER, HIS NAME IS JEFF BECKER, YESTERDAY DUKES BASKETBALL PLAYER SHANE BATTIER, CAME AND HE SIGNED A PAIR OF SHOES FOR MIKE (HIS SHOES THE PLAYERS) WELL THE NEWS ABOUT MICHAEL TODAY, IS THE DOCS THINK HE HAS THE FIRST SIGNS OF VENO-OCCLUSION, WHICH IS ONE OF THE THINGS WE WORRIED SO MUCH ABOUT BEFORE WE EVEN STARTED TRANSPLANT, THERE ARE TWO THINGS THAT CAN CAUSE FATAL CONSEQUENCES IN THE BMT(BONE MARROW TRANSPLANT) PATIENTS, BUT THEY ARE STILL WATCHING HIM VERY CLOSELY, THE TELL TALE SIGNS ARE THE BILIRUBIN, WHICH TELLS YOU ABOUT THE LIVER FUNCTIONS, REMEMBER I SAID HE WAS RETAINING FLUID? WELL HE SEEMED TO BE GETTING RID OF THE FLUID ON HIS OWN,AND STILL IS, THE OTHER THINGS ARE THE PAIN IN HIS SIDE, WELL THATS AN ENLARGED LIVER AND THATS BECAUSE HE IS RETAINING THE FLUIDS IN HIS LIVER, WHICH ULTIMATLY CAUSE THE PROBLEMS WITH THE FLOW OF THE BLOOD, ITS KIND OF HARD TO EXPLAIN, I DONT UNDERSTAND MY SELF, BUT THE BLOOD IS SUPPOSE TO FLOW ONE WAY, WHICH HIS IS !!!!! PER CAT SCAN AND WHEN THE OCCLUSION STARTS IT BACKS THE BLOOD UP TO MAKE IT GO PLACES ITS NOT SUPPOSE TO WHICH COULD BE FATAL, JUST SO HARD TO EXPLAIN, AND TO UNDERSTAND, HE STILL HAS HIGH BLOOD PRESSURE,AND HEADACHES, HIS MOUTH SORES ARE STILL THE SAME HIS BREATHING IS LABORED SO THEY PUT HIM ON A BLOW BY( OXYGEN ) THROUGHT THE NIGHT, THATS BECAUSE OF THE PRESSURE ON HIS LUNGS FROM THE LIVER BEING ENLARGED, WE STILL WENT AND RODE THE TRIKE 3 OR 4 TIMES TODAY AND WE HAND DELIVERED (MIKE DID )HIS BIRTHDAY INVATATIONS, MAIL CALL!HE YELLS SO ADORABLE, WELL I'M GOING TO CLOSE NOW , ONE LAST THING, WE LOST ONE OUR OWN FROM HOME YESTERDAY AROUND 6:00 P.M., BECCA SHE WAS 6 YEARS OLD, SHE DIED AT HOME WITH HER MOM AND DAD, DO HER A FAVOR AND WHERE PURPLE WED. AND LOOK UP IN THE SKY AROUND 1:30 -2:30 AND WATCH FOR THE WHITE DOVES THE FAMILY WILL RELEASE IN HER CELECBRATION THERE WILL ALSO BE BUTTERFLIES AND WHITE BALLOONS , GOD BLESS YOU AND YOUR FAMILY, NEVER NEVER TAKE THINGS FOR GRANTED AND PLEASE TAKE THE TIME TO REALLY SMELL THOSE SPRING FLOWERS AND THINK OF THESE BRAVE KIDS AND WHAT THEY REPRESENT, "LIFE"

THEY WILL ALWAYS LIVE ON IN OUR HEARTS AND SPIRIT, GOD BLESS YOU ALL , SLEEP WELL AND BE AT PEACE!

JANE MICK AND MICHAEL

Monday, April 10, 2000 at 07:08 PM (CDT)

Sunday, April 09, 2000 at 03:50 PM (CDT)

MICHAEL AND DADDY ARE SITTIING IN MICHAELS BED WATCHING THE RACE, MICHAELS PLATELETTES ARE LOW AGAIN THIS MORN. SO THEY WILL GIVE HIM A PLATELETTE DRIP (CONTINUOUS) THE BEST PART IS THAT (SUZI AND PAUL) MICHAEL IS BEING WATCHED OVER BY YOUR ANGEL ALSO, WHAT I MEAN BY THAT IS MICHAEL IS RECEIVING THE PLATELETTES FROM JUSTINS SUPPLY, THANK YOU JUSTIN,MAY YOU WATCH OVER YOUR MOM DAD AND SISTER,AND MAY I ADD OUR MICHAEL. HIS LIVER FUNCTION IS A LITTLE OFF . DR. KERTZBERG SAID NOT TO WORRY ITS TO BE EXSPECTED AND THAT THEY WILL WATCH HIM CLOSELY, HIS FLUID IS COMING OUT SSLLOOWWLLYY!!!!!! HIS WIEGHT IS STILL UP FROM 21.3 KG TWO DAYS AGO, TO 22.3 THESE PAST TWO DAYS. BUT HOLDING STEADY, WOOPS CORRECTION, MICK IS WATCHING THE RACE BY HIMSELF, MICHAEL CRASHED! SLEEPING LIKE A BABY. HIS WHITE CELLS ARE HOLDING AT ABOUT 2.8 BECAUSE OF MICKS CELLS, HE DOES NOT GET THEM TODAY SO WE'LL BE ABLE TO SEE A LITTLE BETTER TOMORROW MAYBE WHATS GOING ON WITH HIM,AS FAR AS HIS OWN COUNTS,HIS TUMMY AND HEADACHES ARE STILL GIVING HIM TROUBLE ,BUT THAT DIDN'T STOP HIM FROM GETTING ON HIS TRICYCLE,TWICE TODAY, WITH A LITTLE PUSH FROM MOM..HIS BLOOD PRESSURE IS KIND OF HIGH 141/100 AND DIFFERANT ON HIS OTHER ARM AND LEGS., BUT WERE KEEPING OUR EYES ON HIM. MICK AND I ARE GOING TO GET SOMETHING TO EAT AND GRANDMA IS GOING TO STAY WHILE WERE GONE, THAN MICK WILL COME BACK TO HAVE HIS SHOTS AND WATCH TIME DELAYED RACING WITH MICHAEL LATE TONIGHT, WELL WE FINALLY FINISHED MAKING SANDY HER NECKLESS. HER HUSBAND WILL COME TONIGHT TO PLAY GIUTAR FOR MICHAEL. WELL HAVE A GOOD NIGHT .LOVE AND THANKS FOR YOUR SUPPORT AND PRAYERS FOR MICHAEL AND THE FAMILY,,,,,, MICK JANE AND MICHAEL

Saturday, April 08, 2000 at 09:18 PM (CDT)

I ALWAYS TELL MICHAEL HE MY SUPER HERO! AND TODAY HE HAS BEEN JUST THAT MY BRAVE NIGHT AND SHINNING ARMOR. DR KERTZBURG WAS IN TODAY WE HAVAEN'T SEEN HER IN A WHILE ( I'M ALWAYS AFRAID TO SAY ) SHE SAID THAT ALL THE DOCS. ARE VERY PLEASED WITH HIM . HE IS HAVING TUMMY PAIN AND THE MOUTH SORES ARE BEGINIING TO GIVE HIM TROUBLE. WE DO MOUTH CARE 4 XS A DAY OR MORE IF WERE UP IN THE MIDDLE OF THE NIGHT I'LL DO IT THAN TO, WE WERE MAKING A BEADED NECKLESS FOR THE NURSE THIS EVENING WHILE LISTENING TO SPACE JAMS AGAIN, HE WAS DANCING ON MY BED, WELL ROCKING BACK AND FORTH. HE IS SUCH A WONDERFUL LITTLE GUY, WE WERE SITTING THERE AND HE SAYS MOM..... THANK YOU FOR BUYING ME THAT GUITAR FOR MY BIRTHDAY (HE ASKED FOR A REAL GUITAR, SO WHAT DOES MOM DO? SHE GOES AND BUYS IT FOR HIM, WELL.....ANYTHING HE WANTS)BUT HE IS JUST SO FULL OF JOY, BUT I CANT DO ANYTHING , HE ALWAYS WANT MOMMY....( I'M NOT COMPLAINING BY ANY MEANS )THE BEST PART OF MY DAY IS WHEN HE ASK TO SNUGGLE WITH ME!DADDY IS STILL VERY SORE FROM HAVIING HIS PORT PLACED , BOTH MICHAEL AND MICK ARE HAVING THERE DRESSINGS CHANGED DAILY( NO TAPE ON MICHAELS RIGHT NOW THOUGH , THANK GOD ,BUT THEY DO USE ALCOHOL SWABS, OUCH!!!!!!)HE WILL SCREAM THE WHOLE TIME THEY DO THE DRESSING CHANGE, THE DRS. SAY ITS GREAT FOR HIS LUNGS, OH THE NURSE JUST CAME IN AND TOLD ME THAT HE RETAINING FLUID AGAIN , OVER A LITER. SHE HAS GIVIN' HIM LACIX (?)TWICE NOW, AND HE'S STILL SLEEPING,. I WAS READING JUSTIN PAGE THIS EVENING(THE BOY WHO PASSED AWAY) WOW THE FAMILY IS AMAZING, THROUGHT THIS TIME, I WAS READING PAST JOURNALS AND JUSTIN STARTEDOUT DOING SO WELL, THIS IS WHY ITS SO HARD TO TELL YOU THAT MICHAEL IS DOING SO WELL, BUT AS I SAY HE HAS HIS UPS AND DOWNS BUT STILL HE SO SWEET, THE NURSE , SANDY SHE SAID SHE BEGGED TO HAVE HIM TONIGHT , SHE SAID ( IN A BEGGING VOICE ) HES MY CO-PRIMARY , SHE SAID SHE JUST HAS TO COME IN HERE TO SEE HIM EVEN IF SHE NOT HIS NURSE( SHE HAS COME IN EVEN WHEN SHES NOT WORKING, SANDY AND SARAH ) . WELL LETS KEEP PRAYING THAT HE CONTINUES TO DO SO WELL THESE NEXT FEW DAYS , HE WAS ALSO COMPLAINING OF SLIGHT HEAD ACHES , HIS BLOOD PRESSURE HAS BEEN A LITTLE HIGH,SO THEY HAD TO GIVE HIM MEDS FOR THAT,PLEASE CONTINUE TO PRAY, AND DON'T FORGET TO SIGN THE WEB PAGE FOR MICHAEL, LOVE TO YOU ALL, MICHAEL ,JANE AND MICK. OH PS THANK YOU FOR THE KIND WORDS FROM THE PEOPLE WHO ARE JUST VISITING MICHAELS PAGE AND FROM OURFRIENDS AND FAMILY, WE LOVE THAT, PLEASE SAY A PRAYER FOR GRANDPA LEE TO GET BETTER AND COME HOME TO RORO!. STIENUNN, THANK YOU!

Saturday, April 08, 2000 at 09:18 PM (CDT)

Saturday, April 08, 2000 at 10:04 AM (CDT)

goodmorning to all, michael is getting daddy's white cells as we speak, he will also get red cells today as his hemoglobin is 8.0 this morn. we are having really good days, we played bingo yesterday and michael WON YEAH!!!!!! HE PICKED OUT A JURASSIC PARK WATCH, NOW HE HAS 10,000 WATCHES WE RECEIVED A KOOL PACKAGE FROM DISNEY WORLD FOR HIS BIRTHDAY .DISNEY CONFETTI EVERY WHERE AND HE HAS A TRIAN AND A WRIST POUCH AND A SMALL MICKEY AND A HAT ( BUT THE HAT IS FOR A BABY SO WE GAVE IT TO KATHERINE,NEXT DOOR AND WE MADE A KOOL CARD FOR HER.WE'LL WRITE AGAIN LATER, I HAVE SOMETHING I WOULD LIKE TO ASK, I'M NOT SURE WHERE THE JUNK MAIL IS COMING FROM BUT I DON'T REALLY HAVE TIME TO READ ALL THE JUNK ,NOW I DO LOVE THE PRAYER LETTERS ,DON'T STOP SENDING THOSE BUT, THE THINGS THAT AREN'T BEING FORWARDED THAT ARE COMING FROM SPECIFIC SEARCH ENGINES ARE TO MUCH. AND BOTHERSOME, SO THANKS FOR UNDERSTANDING, JANE MICK AND MICHAEL

Friday, April 07, 2000 at 03:47 AM (CDT)

today was the best day ever. michael was in such a good mood , transplant is going well. michael was very busy today doing things, he went for a ride on that tricycle to help dad have his blood done this morning, and than this afternoon he was trying to eat pizza , not enough sauce,uncle chris where are you when we need pizza????? and than he was eating pretzles and than in the late evening we tried to make a grilled cheese but we have to be real careful with what he eats and i wasn't sure where the cheese was bought ,,,( from the deli down stairs ) and how it was processed and than we tried a hot dog he took bites of all of them. so were on the right path. this evening we were playing on my bed he was listening to space jams and singing, and than we played checkers on the computer and beat the pants off the pirate, just a absolutly great day, we have our michael back, he wants dad to bring him a suasage biscut and hashbrowns and an orange juice in the morning from hardees, have a good day! i'll try to write again soon, jane mick and michael

Thursday, April 06, 2000 at 08:49 AM (CDT)

AS YOU ALREADY KNOW MICHAEL DID THE TRANSPLANT YESTERDAY.NO COMPLICATIONS AS OF YET. WE WERE ABLE TO GET SOME AND I MEAN ONLY A LITTLE SLEEP LAST NIGHT, HIS TUMMY IS STARTING TO HURT AGAIN ,SO I HAD THE NURSE UP THE PAIN MED SO HE COULD SLEEP A LITTLE BETTER, BUT HE ONLY RESTED AND GRUNTED "ALL" NIGHT THAT IS MY WAKE UP CALL( MICHAELS GRUNTING ) AND IT WAS GOING ALL NIGHT, I FINALLY ENDED UP IN BED WITH HIM AND AS WE GET COMFORTABLE THEY COME IN AND WANT A WEIGHT,OOOOOHHHHHH!!!WE JUST WANT TO SLEEP!!!!! HES PLAYING CHECKERS WITH DAD NOW AND I HAVE TO GO CAUSE MICKS HAVING THE PHERESIS THIS MORN.10:OO, AND I'M TRYING TO DO LAUNDRY( THE WHITE CELL EXTRACTED ) LOVE TO ALL, OH I ALMOST FORGOT, MICHAEL RECEIVED AN E-MAIL FROM THE MAN ON CROCK FILES JAY CARTER(FROM AUSTRALIA )THANK YOU ALL, FROM AUSTRALIA TO CANADA AND BACK AGAIN ,YOU ALL ARE TERRIFFIC PEOPLE, AS CHARLOTTE WOULD SAY, GOD BLESS EACH AND EVERYONE OF YOU... MICHAEL

Wednesday, April 05, 2000 at 07:53 PM (CDT)

Hi, it's mick. I want to thank everybody for the great happy birthday wishes for michael. Today at 12:30 p.m. michael got his cord blood transplant and so far so good. only time will tell if it is going to take. mike's spirits are still good and he is just as grumpy as ever and giving the nurses a hard time.I have to go now because it's time for me to get my shots of g.c.s.f. which is a med to stimulate white blood cell growth. tomorrow they will harvest my white cells to give to michael to help in his fight against infection. they perform this on me twice a week. thanks again and good-bye, MICK, JANE, AND MIKE

Tuesday, April 04, 2000 at 09:00 PM (CDT)

wow what a day, michael had a good birthday, lots of things for his birthday, a power ranger doll and hot wheel x-v- racers scate borders awsome!!!!! TOMORROW IS THE BIG DAY!(between 12 and 2 ) we had some problems with breathing today so they are doing some extra test to see whats going on chest x ray and blood test something about the co2 levels in the blood stream, they ( the blood tests) look o.k., he has no counts now so were ready to go. he is receiving dads cells ( hes growing wiskers, and has racing fever ) the p.t.(physical therapist) came in she said we were doing a good job , but she would still recommend 3 days a week of p.t on his legs and arms i think, i told her what ever she says we want whats best and to be on top of it, boy i can get him to do almost anything if i tell him i'll buy him something HAHAHAHA! (I'M BROKE NOW), well on the down side we lost another child today , while we were setting up his birthday party, his name was justin, god rest his sole and give susie and paul the strength to go on with out him, please God watch over them for us, susie reassured me not to give up on michael, thank you for your strength and you will be with me always, well i will go to michael now and i'll write as soon as i can tomorrow say your prayers, god love you and keep you safe, jane mick and michael

Tuesday, April 04, 2000 at 09:00 PM (CDT)

Monday, April 03, 2000 at 03:52 PM (CDT)

well hello everyone from belgium to co. what a wonderful world we live in, michael recieved note from people in arz, penn, ill, col. port st john fl, montreal ca, minnetonka, miami, ny.,his cousin nicki, and 600 fire fighters(well not all of them), mich. just so many kind folks out there and it makes me want to cry, YOU ARE THE BEST, MICHAEL HAS BEEN RECIEVING WHAT THE DOCS CALL A.T.V. I CALL IT HORSE SERUM. HE HAS HAD NO REACTION TO IT EXCEPT HE WAS COLD( THEY EXSPECTED A HIGH FEVER ) HE WILL HAVE HIS BIRTHDAY PARTY TOMORROW SO WE CAN INVITE THE KIDS ON THE FLOOR AND THE FAMILY,DAD HAD HIS WHITE BLOOD CELLS EXTRACTED TODAY , HE DID GREAT , MICHAEL RODE THE TRICYCLE DOWN WITH DAD AND WATCHED FOR A WHILE AND THAN WANTED ME TO TAKE HIM BACK TO THE ROOM.AUNT DEB STAYED WITH MICHAEL LAST NIGHT AND WHEN I CAME OVER HE WAS ALL WINEY MOOOOMMY I MISSED YOU I DON'T FEEL, WELL THIS IS WHEN YOU HAVE TO FIGUE OUT IF HE IS REALLY , REALLY YUCKY OR IF HES JUST PLAYING THE MOMMY ACT, HE REALLY IS DOING WELL FOR HAVING HAD RADIATION AND CHEMO, THIS HORSE SERIUM IS FOR REMOVING THE T-CELLS SO HIS COUNTS ARE NOTHING NOW, HE FEELS REAL BAD . BUT WE KEEP HIM GOING HE WILL DO THIS AND HE WILL EXERCISE AND DO THE MOUTH CARE . ITS SO HARD ,HIS BODY IS BREAKING DOWN INTERNALLY, BUT WERE ON TOP OF IT AS BEST AS WE CAN THROUGHT THE NIGHT, ALL DAY WE DO RINSE SPIT, RINSE SPIT, AND HE DOESN'T WANT TO WALK SO WE GET ON THE BIKE . WELL I'M GOING TO CLOSE FOR TODAY I'LL LET YOU KNOW HOW THE PARTY GOES, LOVE ALL OF YOU OUT THERE AND THANK YOU SO MUCH FOR YOUR PRAYERS, BLOOD, FINACIAL SUPPORT AND COMMUNITY SUPPORT, YOUR GREAT, HAVE A GOOD NIGHT, MICHAEL LOVES YOU !!!!!! THE RICE FAMILY

Sunday, April 02, 2000 at 10:41 AM (CDT)

hi this michael i riding my tricycle again, thought i would say hi to you all and have a great day I LOVE YOU !!!!!!!!!!OXOXOXOXOXOXOXOXOXOXOXOXOXO BYE

Sunday, April 02, 2000 at 10:15 AM (CDT)

GOODMORNING AGAIN THERES AN ARTICLE IN THE NAPLES DAILY NEWS, GO TO NAPLES NEWS, AND THEN LOCAL SECTION AND YOU CAN ALSO GO TO THE SEARCH SECTION (ONCE YOUR IN THE NAPLES NEWS) AND TYPE IN MICHAEL RICE YOU'LL GET TO SEE PAST ARTICLES, THIS ARTICLE TODAY, IS SHORT, ITS AN UPDATE, MICHAELS UNCLE ROD IS IN WITH HIM NOW , SHOWING HIM HOME VIDEOS OF BABY DILLON, I'LL WRITE AGAIN LATER, JANE MICK AND MICHAEL

Sunday, April 02, 2000 at 08:04 AM (CDT)

GOOD MORNING,MICHAEL AND I ARE SITTNG IN THE FAMILY ROOM CHANGING THE COLOR OF HIS WEB PAGE AGAIN, HE RODE THE TRICYCLE TO THE FAMILY ROOM. SINCE THE FAMILY IS HERE I'VE DECIDED WE'RE GOING TO HAVE A BIRTHDAY PARTY TOMORROW, ALL POWER RANGERS! WE'LL FINISH THE PRESENT SHOPPING TODAY, MY SISTER-IN-LAW,MISSY LOVES TO SHOP SO I'LL HAVE HER PIK UP THE PARTY SUPPLIES, AND POWER RANGERS BIRTHDAY CAKE, HE WASN'T FEELING WELL , ITS AMAZING WHAT THE TRICYCLE DOES FOR A KID, WE'LL WRITE AGAIN LATER AND WE'LL GET PICTURES OF THE PARTY, GOD BLESS AND HAVE A GREAT DAY! LOVE OXOXOXOXOXOXOXOXOXOXOXOXOXOXOOXOXOXOXOXOXXO MICK JANE AND MICHAEL

Saturday, April 01, 2000 at 10:52 AM (CST)

WELL I HOPE YOU ALL LIKE THE NEW COLORS ON THE PAGE BECAUSE MICHAEL LIKES THEM, WE ARE SITTING IN THE FAMILY ROOM WITH JASMINE AND THEY ARE MAKING PICTURE FRAMES WITH STYROFOAM TYPE STUFF, ITS SO KOOL MICHAEL WILL BEGIN CHEMO IN ABOUT (WOOPS HE'S GETTING IT NOW), HE , I THINK REALLY LIKES JASMINE OR HE LIKES THE THINGS PATTY HAS TO DO IN JASMINE ROOM, HE ASKED IF HE COULD COME IN TO HER ROOM . BUT THE CHILDREN ARE NOT ALOUD INTO EACH OTHERS ROOM, RORO AND AUNT DEB ARE HERE AND A BIG SURPRISE IS THAT ALEX HIS COUSIN IS HERE ALSO, THAN UNCLE ROD AND AUNT MISSY AND DILLON AARE ON THERE WAY( WOW ALOT TO CONTEND TO ) WE WILL LEAVE WHILE THE FAMILY VISITS, UNTIL WED. AFTER WED, NO ONE WILL GET ME OUT OF HIS ROOM, SO THE COMPUTER WILL BE THE LAST THING I DO , IF AT ALL, BECAUSE I HAVE TO LEAVE THE ROOM. UNLESS THINGS ARE GOING PERFECT, I WILL HAVE A LIMITED AMOUNT OF TIME TO EAT AND GO TO THE BATHROOM SO THE COMPUTER WILL COME LAST. HAVE A GREAT DAY LOVE TO ALL, JANE MICK AND MICHAEL

Friday, March 31, 2000 at 05:47 PM (CST)

I'M GOING TO THE MOTEL ROOM TONIGHT, SO I THOUGHT I'D LET YOU KNOW MICHAEL IS DOING VERY WELL, HIS ONE CENTTRAL LINE LOOKS A LITTLE RED TODAY SO WE ARE TKING EVERY PRECAUTION TO NIP IT IN THE BUD SO TO SPEAK, WELL I'M GOING TO CLOSE FOR NOW TALK TO YOU TOMORROW

Friday, March 31, 2000 at 12:35 PM (CST)

good day to everyone ,michael will have his last radiation treatment today. his counts are dropping very quickly now his white blood cells are at 10, which is good still but compared to 38 a day or so ago. his platlettes are 151 and his red cell are 2. and the hemaglobin is 10.1 i think, i look at them daily so unless i have them in my hand its hard to remember exactly, we will start chemo tomorrow .it runs over one hour or so the doc says. remember the best part of michael relapsing at this time, is that he has never had radation treatments or this chemo he will recieve over the weekend (he relapsed off of treatment this time)we also have the new cord blood and there are a couple of other plus'... michaels RORO(GRANDMA) and his aunt deb will be here tomorrow and my mother will be back from pittsburg over the weekend, uncle bill and aunt kathy will come in may and my best friend of 20 years will be here some time during the week. its also her birthday this weekend , YOU NO SHES A FOOLS BABY, TAMMY HAPPY BIRHTDAY DARLING, YOU ARE MY TRUE SOLE MATE. THANK YOU FOR CALLING ME THE OTHER NIGHT.( I WAS IN THE MOTEL ROOM AFTER THE NEWS OF MICHAEL CAME IN AND THE PHONE RANG IT WAS YOU, YOUR ALWAYS IN TOUCH WITH ME NO MATTER WHERE I AM, I LOVE YOU DEARLY WE ARE ONE , HOW OLD ARE YOU 23?. TODAY IS ANOTHER VERY SPECIAL PERSONS BIRTHDAY ,LISA DENISONS, HAPPY B-DAY HOPE YOU HAVE A GOOD NIGHT WITH CHRIS , I LOVE YOU GUYS. WELL WE ARE GETTING READY TO GO TO TREATMENT HAVE A GOOD WEEKEND , IF YOU DON'T HEAR ANYTHING ITS BECAUSE THE KIDS BUMPED THE COMPUTER AGAIN, I WARNED EVERYONE THIS TIME TO WATCH THEM,(MEAN OLE' WOMEN). HAVE A GOOD NIGHT LOVE TO ALL, AND ON SUNDAY PRAY FOR MICHAELS FULL RECOVERY. GOD BLESS. Jane , mick and michael

Thursday, March 30, 2000 at 11:00 PM (CST)

IT IS NOW ALMOST TWELVE O' CLOCK, MICHAEL HAS BEEN SLEEPING SINCE ABOUT 6:00 P.M., HE'LL PROBLY HAVE ME UP ALL NIGHT WATCHING POWER RANGERS, OR RADERS OF THE LOST GALAXY. OR SOMETHING LIKE THAT,I DON'T MIND . THATS THE QUALITY TIME WE SPEND TOGETHER.ANOTHER PERFECT RADIATION TREATMENT THIS AFTERNOON , I CANT REMEMBER IF I TOLD YOU THAT OR NOT, MICHAEL AND I WENT ALONE WHILE DADDY RESTED, AND HE DID SO WELL, ONE MORE DAY AND HE'LL START CHEMO, I GUESS I FORGET THAT NOT EVERYONE KNOWS WHAT BLASTS ARE( OR WHAT CERTAIN THINGS IN GENERAL MEAN), THEY ARE CANCER CELLS , SO WHEN WE SAID THAT HIS BLOOD HAS 3 % BLAST THAT MEANS HE HAS 3 % CANCER IN THE BLOOD STREAM, WELL I HATE TO TELL YOU ALL THIS , WE LOST ANOTHER CHILD TODAY HIS NAME WAS STEVE HE WAS 17 YEARS OLD , I DONT KNOW MUCH MORE , THIS IS THE 3RD CHILD. I'M GOING TO CLOSE FOR NOW. TALK TO YOU TOMORROW, GOD BLESS THE CHILDREN AND THERE FAMILIES AND GOD BLESS STEVE, MAY HE BE IN A BETTER PLACE WITH OUT SICKNESS AND PAIN, AND GOD, GIVE HIS MOM AND DAD STRENGTH TO GO ON IN LIFE WITH OUT YOU . AMEN

Thursday, March 30, 2000 at 04:01 PM (CST)

PART THREE OF A VERY BUSY DAY, MICK AND MICHAEL ARE BOTH DOING GREAT. MICHAEL MORE THAN MICK ( WHAT A BIG BABY ) ACTUALLY HE WAS A LITTLE SORE, BUT DOING BETTER THIS AFTERNOON. RADIATION WENT WELL AS USUSAL, THE PERFECT LITTLE ANGEL. AND TOMORROW EVEN BETTER. THE DOCS. ARE SAYING HE LOOKS WONDERFUL.A LITTLE CHANGE IN PLANS, MICHAEL WILL BE GETTING A DIFFERENT CORD BLOOD THAN THE ONE ORIGINALLY PLANNED, THIS IS SOPPOSE TO BE A BETTER ONE , THIS ONE IS ONLY 3 OF 6 MATCH, BUT LARGER SO THE RATIO OF BLOOD TRANSFUSED IS SAID TO BE BETTER. WELL EVERYONE HAVE A BLESSED NIGHT AND WE WILL TALK TO YOU TOMORROW, JANE MICK AND MICHAEL

Thursday, March 30, 2000 at 10:29 AM (CST)

mick is out of surgery and doing fine , real silly and drinking hot coffe through a straw, michael will have his radiation again this afternoon this wil be num.7 two more to go and than chemo on sat. sun. and monday, than tues. he will rest and TRANSPLSNT IS SCHEDULED FOR WED, TALK TO YOU LATER, JANE

Thursday, March 30, 2000 at 06:57 AM (CST)

well i'm going to have my hands full today michael has already warned me that him and daddy are going to make me do all the work today , while they sit in bed moning and groning, mom get this mom do that , i told him that i would say PUSH THE NURSES BUTTON, . mick will have his surgery at 1:00 and michael has radaiton at 2:00 so mick will be alone , see you for now , god bless , jane

Wednesday, March 29, 2000 at 06:35 PM (CST)

ON A BETTER NOTE , WITH ALL THIS COMOTION I HAVEN'T TOLD YOU ABOUT MICHAEL, HE IS DOING BETTER THAN EVER,WE JUST FINISHED DOING SOME ARTS AND CRAFTS . HE MADE ME A PICTURE.. THIS AFTERNOON HE CAME TO THE FAMILY ROOM AND PLAYED WITH , JASMINE , SHAIKA, AND ANOTHER LITTLE GIRL WHOS BROTHER IS HAVING A TRANSPLANT,HE MADE SOME PICTURES WITH LIKE A BINGO STAMPER ...PRETTY KOOL. THIS IS WHAT A TERMINAL CHILD DOES?, I DON'T THINK SO. HIS SPIRITS ARE BETTER THAN EVER, WE WENT DOWN FOR RADIATION AGAIN TWICE TODAY, WHAT A BIG BOY, HE SO PERFECT,HELD PERFECTLY STILL AND THIS AFTERNOON HE SLEPT . HE IS SO BEAUTIFUL WHEN I SEE HIM THROUGH THE MONITER, JUST A LITTLE ANGEL,(DURING THE RADIATION THEY HAVE A MONITER SO I CAN SEE HIM AND TALK TO HIM)WHAT CAN I SAY HES JUST DOING SO WELL NOW SO THERE IS OUR STRENGTH, WE LOVE ALL OF YOU AND KEEP THE FAITH I KNOW WE HAVE, HAVE A WONDERFUL NIGHT, GIVE THE KIDS AND FAMILY A BIG KISS FOR US. OH AND ROCKY OR RACELLE I CAN'T REMEMBER WAHT WE NAMED OUR RACOON THANK YOU FOR THE UP LIFTING NOTE, THE KISS DID NOT HIT THE WALL, IT WENT SMACK DAB ON THE CHEEK, AND THANK YOU TO ALL OF YOU GUYS FOR THE WORDS OF ENCORAGEMENT, BYE... JANE, MICK AND MICHAEL

Wednesday, March 29, 2000 at 09:24 AM (CST)

THE NEWS THE DOCS. GAVE US IS NOT PROMISING, BUT WHAT DO THEY KNOW ABOUT " GOD " HE WORKS MIRACLES AND THIS IS WHAT MICHAEL IS OUR MIRACLE, WE COME THIS FAR TO LET HIM JUST GO , AND I BELIEVE AS YOU DO HE WILL MAKE IT THROUGH THIS , WE JUST HAVE TO KEEP THE FAITH, YESTERDAY WAS SATINS DAY, TODAY AND FOR THE REST OF THE TIME ARE OUR DAYS. THEY SAY THAT WE HAVE A COUPLE OF CHOICES WHICH WE HAVE ALREADY MADE THE DECSION WE ARE GOING AHEAD WITH TRANSPLANT, THE OTHER WAS TO LET HIM GO , " no way" AND WITH IN 3 WEEKS HE WOULD BE GONE, HE'S SUCH A FIGHTER. HOW WOULD HE FEEL IF WE DID THAT TO HIM??????? AND THE OTHER IS THAT WE GO WITH THE TRANSPLANT AND HE COULD STILL SAIL, BUT HE WILL RELAPS AGAIN. ITS JUST A MATTER OF TIME, THE RADIATON HAS ALREADY BEGUN TO TAKE AFFECT, WE WENT FROM 8% BLAST TO 3% WE'LL SEE WHAT TODAY SHOWS , THE COMPLICATONS OF TRANSPLANT ARE ABOUT THE SAME AS FAR AS I KNOW, WE WILL BE TALKING TO THE DOCS. AGAIN TO REALLY UNDERSTAND , WE WERE NOT LISTENING TO WELL YESTERDAY, SO WE'LL GO OVER THIS AGAIN TODAY AND I'LL WRITE AGIAN WITH MORE DATAILS. LOVE TO YOU ALL AND THANK YOU FOR YOUR PRAYERS, AND ASK GOD TO CONTINUE TO MAKE "MIRACLES HAPPEN" ( THATS FOR YOU SHAYLA )GOD BLESS YOU , JANE MICK AND MICHAEL

Tuesday, March 28, 2000 at 05:55 PM (CST)

we have some bad news ,the cancer has come back. there were 8% blast in his blood yesterday and today there is 3%, i haven't had a chance to talk to the family yet . we will let you know more when we know more, please keep praying harder then ever, michael, mick and i need you now more then ever. jane mick and michael....... God please give us the strength to carry us through, please help michael and take the cancer from him AND RESTORE HIS HEALTH, Amen, GOD BLESS MY CHILD AND KEEP HIM WITH YOU AT ALL TIMES , AMEN

Tuesday, March 28, 2000 at 08:42 AM (CST)

well another good day. he's perfect , a little scared but he's so good , just sits so still when the machine starts (radiation). dad and i were both up early. i stayed at the motel last night and when i came over at 7:00 am this morning his dad was standing at the front entrance. you guys were already awake teeth brushed and all dressed.. THIS PAST WEEKEND MICHAEL HAD A COUPLE OF CHARITY EVENTS HELD FOR HIM IN NAPLES FL. I MUST TELL EVERYONE , FIRST WHO WERE INVOLVED WITH ABATE, THANK YOU, THANK YOU FOR BEING SO KIND AND FOR ALL YOUR SUPPORT, MY HUSBAND ( MICK ) WAS THERE TO SHARE THE DAY WITH YOU AND HE SAID THAT EVERYONE WAS REALLY GREAT!. AND TO ALL MY FRIENDS AND FAMILY WHO HAVE BEEN WORKING SO HARD ON THE BAKE SALE AND HAIR CUTS AT HAIR SAFARI( A SPECIAL THANK YOU TO JUDY AND ALL YOUR CO-WORKERS ) YOU GUYS HAVE DONE SO MUCH , BETWEEN YOUR OWN LIFE, NEW BABIES , HUSBANDS PERIOD ( HAHAHA )SOME WORK TWO JOBS AND OTHERS ARE JUST TRYING TO KEEP THER OWN HEADS ABOVE WATER. YOU GUYS ARE TRULY THE MEANING OF THE WORD FRIENDS.I WILL UPDATE AGAIN LATER IF POSSIBLE. THANK YOU TO EVERYONE. WE DON'T KNOW WHAT WE WOULD DO WITHOUT YOU .THANK YOU TO EVERYONE AT UPS ALSO ,IF IT WASN'T FOR THERE COOPERATION I COULD BE OUT OF A JOB AND INSURANCE, YOU ALL ARE THE BEST.CHRIS AND LISA THANK YOU FOR ALL YOU ARE DOING. JANE MICK AND MICHAEL,,,,,,,,, .LOVE TO ALL . GOD BLESS EVERYONE!!!!!!! !!!!!!!!OXOXOXOXOXOXOXOO

Monday, March 27, 2000 at 04:56 PM (CST)

MICHAEL DID FANTASTIC, YOU SHOULD OF SEEN HIM, WE COULDN'T OF DONE BETTER OURSELVES . HE HELD SO STILL ALL THE TIME 7 MIN. EACH SIDE, SO FAR SO GOOD . HES NOT FEELING SICK TO HIS STOMACH(YET) HE IS RESTING NOW,WHAT A TROOPER.WE COULDN'T BE IN THE ROOM WITH HIM DURING THE TREATMENT, SO I BROUGHT HIS SPACE JAMS C.D. IN THE ROOM, HE LISTENED TO IT , WHEN HE CALLED TO ME I TALKED TO HIM FROM A SPEAKER INTERCOM,SO GOOD !!!!!!! HE IS THE BEST!!!!!! GOD LOVE HIM!!! TAKE CARE EVERYONE!!!! TILL TOMORROW HAVE A NICE HOME COOKED MEAL FOR US. ( NOT TO MAKE YOU FEEL BAD) REALLY, ENJOY THE NIGHT.GOD BLESS YOU ALL , WERE ON THE DOWN SIDE .......... JANE MICK AND MICHAEL

Monday, March 27, 2000 at 12:35 PM (CST)

1:30 almost ,michael will start radiation in about 30 min. daddy is here. and we're all ready to go . mick will have his port placed on thurs. michael went to the dentist this morning .how did she put it (the doc.)imaculant teeth, perfect. good job mom and dad.!!!!!!!! one less thing to worry about , if michael were to have a cavity they would have to do surgery to take it out. well i'll write later after radiation to let you know how it went . LOVE TO ALL AND WISH HIM LUCK, JANE MICAK AND MICHAEL

Sunday, March 26, 2000 at 05:09 PM (CST)

Sorry, Computer is down again. Will make new entry ASAP.

Saturday, March 25, 2000 at 05:16 PM (CST)

GO BACK, michael is sitting with me in the family room ,he's sitting on a tricycle and riding it up and down the hall way . patty jasmines mom always includes michael when ever they come to play in the hall or color, or what ever they maybe doing and this time he decided to come out. so were going back to riding ,,,,,BYE FOR NOW MICHAEL

Saturday, March 25, 2000 at 04:07 PM (CST)

THIS HAS BEEN A LONG RAOD AND ITS NOW FINALLY ARRIVING, I REMEMBER HOW I FELT WHEN MICHAEL WAS DIAGNOSED BACK IN OCT OF 97', THE PAIN AND PIT IN MY STOMACH. THAT PIT AND PAIN ARE BACK. THE BIG DAY IS MONDAY ,WE'RE GOING AHEAD WITH THINGS AS PLANNED. THE COMPLICATIONS ARE OVERWELMING, THE ONLY THING IS ,IS THAT THEY DON'T HAPPEN ON THE FIRST DAY AFTER TRANSPLANT. I HAVE TO GO MICHALE IS REQUESTING MY PRESENCE . REAL BRIEF, WE WENT TO THE MOTEL AND HE SLEPT GOOD FOR ABOUT AN HOUR . ...... GOTTA GO, LOVE TO ALL, HAVE A GOOD WEEKEND AND GOD BLESS EVERYONE .... JANE AND MICHAEL

Friday, March 24, 2000 at 05:50 PM (CST)

well just as i suspected ,he is feeling some what better, although he's is complaining that his shoulder hurts and he keeps pushing his pain button, today was kind of exciting for michael, he recieved the package he has been waiting for. this package was loaded with things from the gatornatinals ( dragsters, in gainsville FL.) and some things from the swampbuggie races in naples fl. these things came from michaels friends lisa,chris ,clay, and tawny denison, thanks lisa.and than of course, the gatornationals are from a couple of people paul and red. to thank you all I ask that you go to the picture site on michaels web and this is worth any thank you i could say. well were going to hang up all the pictures in his room . he wants to wait for daddy to come on sunday so he can show him. michael is still running fevers today , no appetite but we did walk a little down the hall. he made me and jasmine a beaded neckless, they are the koolist, one thing before i go i have to mention the people that are out there keeping in constant contact with michael and me, micks partners family and extended friends thank you for being there, all your kind words and all the support you have given me. this has opened and rekindled alot of relationships, and i even met a cousin that i have'nt seen since she was a baby, and her family that i have'nt seen since i was young. you all are very important to us .have a wonderful night OXOXoXoxoxoxoxoxOOXOOXOXOXOXoxoxoxoOXOOXO,, jane and michael P.S. GO BACK 2 TIMES TODAY TO READINGS

Friday, March 24, 2000 at 01:27 PM (CST)

michael hasn't been feeling well since we decided to go to pizza hut , so we didn't go, his fever is 102.4 we gave him tylonol to bring. he's resting now. the radiation people will come to his room to do the measuring. we hope that this afternoon he'll be feeling better, p.s. i am sitting in the family room with about 4 children who had transplants, and they are all doing the foil art, it is the neatest thing to see them all , i hope michael will soon warm up to them and jion them. GO BACK ON THE JOURNAL , I WILL UP DATE AGAIN LATER..... LOVE TO ALL JANE AND MICHAEL

Friday, March 24, 2000 at 10:43 AM (CST)

were going to pizza hut,for buffet, and than we'll go for measuring for radiation, and to check out the facilities. talk to you later, jane and michael............ ....HAVE A GREAT DAY.

Thursday, March 23, 2000 at 07:14 PM (CST)

michael did pretty good today, he was feeling well most of the day. he had a fever first thing this morning but he wasn't complaining about any aches or pains for a while but i did give him tylonol.than this afternoon we went to the motel and were there for a while and his fever started to come back, this time it went away on its own. i spoke to the docs. and the radiation begins on monday for 4 1/2 days, than over the weekend he'll receive chemo,than monday or tues april 3 or 4, i think, he'll have his transplant. mick is getting last minute things done , taxes bills, banking etc. before he leaves .i exspect him here on sunday or monday.so the -9 day count down tenativly begins on monday. michael is resting now, not totally unaware of whats to come, as for mom now, i'm scared to death, let god guide me now. for are we doing the right thing ? its hard to think of what he is to endure the next 100 odd days, and not think is this the answer . when we know the cancer will come back even more vengful, so god its in your hands please keep him safe, and unafraid. god bless and goodnight. .... jane

Thursday, March 23, 2000 at 07:14 PM (CST)

Wednesday, March 22, 2000 at 09:53 PM (CST)

HI ITS NOW 10:45 MICHAEL IS SLEEPING, WE WENT TO THE RESTURANT, AND ORDERED DRINKS AND BY THE TIME WE TOOK ONE SIP MICHAEL WANTED TO LEAVE , SO I BROUGHT HIM BACK TO THE HOSPITAL , HE WAS STARTING TO RUN A FEVER, ITS BEEN A LONG ROAD FOR HIM, I THINK HE RELIZES THAT THE TRANSPLANT IS NEARING, HE WAS AFRAID TO GO DOWN FOR HIS BREATHING TREATMENT, CRYING AT TIMES, SO I REASURED HIM THAT THIS WAS EASY. THE RADIATION THERAPIST CAME TO TALK TO ME THIS AFTERNOON, THIS IS SOMETHING MICHAEL HASN'T DONE BEFORE, I TOLD THE DOC. HE EXPLAINED THAT MICHAEL WOULD LAY ON A COUCH AND RECIEVE RADIATION ON EITHER SIDE TWICE A DAY FOR 4 1/2 DAYS. POSSIBLY 1 HOUR AFTER HE WILL BE SICK FROM THE RADIATION, NOW THIS IS THE PART THAT SCARES ME, I ALSO ASKED IF THERE COULD BE ANY SIDE AFFECTS AS FAR AS BRAIN DAMAGE AND HE REASSURED THAT THE STUDIES HAVE NEVER SEEN ANY,( VERY SHORT TERM STUDIES ) WELL I HAVE TO CLOSE NOW BEFORE THE COMPUTER SHUTS ME DOWN , GOD BLESS

Wednesday, March 22, 2000 at 01:03 PM (CST)

HI EVERYONE , THIS AFTERNOON WE WENT DOWN FOR THE PULMUNARY TEST, NO RESULTS YET. WE WERE JUST NIGHTED BY QUEEN MARY, MICHAEL IS NOW SIR MICHAEL NIGHT OF THE DAWN( I THINK THATS WHAT SHE SAID ) JUST THE NEATEST THING, HE WAS SO INTENT LISTENING TO HER AS SHE SPOKE ,OUR NEXT STEP IS THE EYE DROPS TO DIALATE HIS EYES AND THAN AT 3 0R 4 O'CLOCK THE DR. WILL COME CHECK HIS EYES.THIS HAS BEEN ALONG MORNING ALREADY ,MICHAEL IS NOT FEELING TO WELL. THE FEVERS ARE MAKING HIM FEEL TERRIBLE, HE IS STILL HAVING TUMMY PAIN, THE WORST PART OF THE DAY SO FAR IS THAT WHEN WE WENT FOR TESTING WE HAD TO GO INTO A ROOM WHERE THE PEOPLE ARE VERY SICK .I TRY TO AVOID PLACES LIKE THAT LIKE THE PLAGE BUT IN THESE SITUATIONS WE DON'T HAVE A CHOICE ,I FINALLY FOUND SOMEONE WHO KNOWS ABOUT THESE LITTLE PATIENTS AND HELPED US AROUND , AND SHE ALSO MADE PEOPLE TAKE ANOTHER ELEVATOR. I'LL WRITE MORE TONIGHT. HAVE A GOOD AFTERNOON , JANE AND MICHAEL

Tuesday, March 21, 2000 at 06:35 PM (CST)

TODAY WAS QUITE FUN ,MICHAEL WAS PLAYING WITH JASMINE AND HEAVEN .THEY WERE DOING FOIL ART, KIND OF INTERESTING . THAN WE WENT TO WHAT WE CALL CELL MATES, HE DIDN'T LAST TO LONG, HE WANTED MOMMY..... STILL HAVE FEVERS OF 102 TODAY , WE STARTED OUT HAVING A CAT SCAN FIRST THING TODAY AND THAN WE WENT TO ECHO. THE RESULTS OF THE CAT ARE BACK , AND LOOKIN' GOOD. THE SPLEEN IS GONE, GO FIGURE (HA,HA,HA)JUST KIDDING! THE LUNGS ARE CLEAR TOTAL RESOLUTION, AND THE LIVER, NO SIGNIFICANT CHANGE. ALL GOOD !!! HE WAS TRYING TO EAT A TACO FROM TACO BELL AND NOW WE'LL GO FOR THE BEANS, TOMORROW WE WILL HAVE PULMUNARY FUNCTIONS TEST AND THE RADIATION THERAPIST WILL COME TALK TO US , SO I THINK WE ARE WAY AHEAD OF THE GAME,WHICH COULD MEAN WE'LL GO TO PRETRANSPLANT EVEN BEFORE THE END OF THE MONTH. I HAVE SOME ONE , ACTUALLY ALOT OF SOME ONES THAT I WOULD LIKE TO SAY HI TO,,, MY NIECES CLASS IN FLORIDA IS READING THE WEB PAGE, ....HI ALL OF ALEX' CLASS MATES IN MRS HOLLYS CLASS, PLEASE FORGIVE MY SPELLING I DON'T ALWAYS HAVE TIME TO GO BACK BEFORE THE COMPUTER SHUTS DOWN, THANK YOU FOR BEING SO BRAVE, I KNOW READING THIS PAGE ISN'T ALWAYS EASY , BUT JUST REMEMBER,MICHAEL WILL BE BETTER AND WE WILL COME TO SEE YOU, ALSO REMEMER THAT GOD IS WATCHING OVER US ,IT WILL BE HIS DISCISION, PLEASE HAVE A GREAT DAY.THANK YOU FOR YOUR SUPPORT.

Tuesday, March 21, 2000 at 06:35 PM (CST)

Monday, March 20, 2000 at 08:50 PM (CST)

today started out not so good,michael had a fever and it was at one point 104.8, right now hes sittng next to me banging on the door against the wall. we ended up going to pizza hut for a late lunch. he wants to go again tomorrow, well the reason I'm writing tonight is that we were sitting here just goofing off and kate one of our buddies (they call themselves) came in our room , i love to talk to her shes a very nice person, so here we are just a yackin' and she said after she looked at michaels pictures in his photo album, she said that she had to go , as she got up she asked me to come into the hall so we could talk( i was warned about this)I said whats up she said i have something i have to tell you , and the little boy around the corner 1 1/2 years old passed away today now i never saw him but i love his little sis her name is joy(boy can you tell why shes just that a JOY) his name was jeff, this was very unexpected, we new something was up,over heard something the drs. said and later i saw the grandparents running threw the hall. this is something my friend kim had warned me about but the reality is that god has taken him ,how will we go on if he were to take mine? GOD BLESS MY MICHAEL AND ALL THE CHILDREN, GOD BLESS YOU JEFF ! AND YOUR FAMILY PLEASE GIVE THEM STRENGTH.

Monday, March 20, 2000 at 08:47 AM (CST)

morning to all , last night was kind of rough ,michaels fevers are back. he was very uncomfortable through out the night, tummy pain and just not feeling well.his fever was at 102.3 already this morning. last night it was about the same coming back in about 5-6 hours , so back to square one ,i guess. just when we take a few steps forward something wants to keeo knocking us back. but we're going to keep fighting and michael already is ,throughing his meds on the floor,!!!!!!! not once not twice but three times. the nurse, maggie, says i can go get twice as much if you want. just so he keeps fighting thats good, just doesn't make us very ahppy when we ahve to pick his meds up off the floor. just so everyone knows michael has recieved lots of letters and presents, form all over aunt sue and uncle larry sent this kool icky yicky, ( frogs in a gel to smoosh) and anne and her friends sent a really wway kool race truck #6 rick carelli good race this weekend rick, so neat to see you , and cards from all over,aunt bobbie and uncle pat thank you ( and danny )linda we've recieved two cards there the best ( thanks to dino and all the race car drivers )denise and rocky two cards thank you,the trzyna family a big box with lots of goodies,amy and her mom violet thank you to the pariseau family all the sisters for all the work they've done you guys are terrriffic!thank you,rod and missy and dillon, mandy for bringng the kids, tha candlelighters who have always been there and the things you've done for us.THANK YOU ALL FOR YOUR SUPPORT AND PRAYERS, RORO AND LEE THANK YOU FOR THE MARKERS AND NOTE PAD. AND ANYONE ELSE THAT I DIDN'T MENTION,ITS NOT THAT I FORGOT, YOU ALL HAVE BEEN SO SUPPOERTIVE AND WE JUST DON'T KNOW WHAT WE WOULD DO WITH OUT YOU , HAVE A GREAT DAY AND SAY YOUR PRAYERS

Sunday, March 19, 2000 at 01:43 PM (CST)

2:35 p.m. yeah!!!!! michaels eating!!!!!!! after two long months with only enough food to feed a ant. he's finally eating, chinese rice and bean soup, and more rice,...... the best news is that its staying down too. we went out on pass over to the motel and his fever went up to 103. 3 so i brought him back. we gave michael some tylonol and the fever went away. wish we could figure out these fevers . have agreat night ....

Saturday, March 18, 2000 at 03:26 PM (CST)

well as it looks they will be startiing michaels radiation (the bone marrow process this is called day -9, than it goes to +1-100), on april 3. they want mick back so he can donate white blood cell regularly, check this out, the drs. came in today and told mick that he would be donating the cells to michael 3 days week ,he will also have a medi -port just like michael ,,now michael thinks this is so cool, now they have much more in common. mick will be going home tomorrow morning and he will be back in two weeks approx.to have the port placed. we have to sit down with both michael and the drs. to discuss the process. of course we have to check scans i would presume to make sure the fungus is starting to come under control. love to all, have a good day and give the kids a kiss for us. bye,mick jane and michael

Saturday, March 18, 2000 at 09:19 AM (CST)

HI !! MICHAEL WANTS TO GO OUT TODAY FOR A PASS ,BUT ITS FREEZING OUTSIDE .WERE GOING TO TAKE HIM WALKING, I'M NOT SURE HE KNOWS YET ! WELL I WISH I WAS IN NAPLES TODAY SO I COULD HELP ALL OF MY FRIENDS WITH THE UP COMING BENEFITS FOR MICHAEL, CAR WASHES, BAKE SALES & HAIR CUTS AND EVEN A BIKE RUN,THE MOTORCYCLE CLUB IN NAPLES ( ABATE ) IS HAVING A BIG TODO ON MARCH 25 . WELL I'LL WRITE AGAIN LATER MICHAEL WANTS ME TO SIT WITH HIM TAKE CARE HAVE A GOOD SAT.

Friday, March 17, 2000 at 10:01 AM (CST)

goodmorning everyone , we're trying to get michael out today ,he is still having pain on his side the other side of the spleen.he and his dad are sitting here talking about the message we just recieved from paul ross, paul said he is on his way to the gator nationals in florida, he said he will get a picture signed by tony schumacher. we ,also just found the annoncement on espn that we will get to watch them (gator nationals) he slept through the night pretty good mick said. he ate tacos yesterday and beans .the fevers are subsiding now .thank you jesus. but his side is still very swollen. but having mick here make such a differance in michael, well we still have three more days together,til mick goes to florida, we will try to talk to the docs. today to see if they have a tenative plan as to when we will go for transplant... have a great day GOD BLESS YOU ALL. JANE ,MICK, AND MICHAEL

Thursday, March 16, 2000 at 01:35 PM (CST)

this morning i called to see if michael needed anything before i came over (you see my mom is here, and mick, so sleeping accomodations are hard ) i can't spend the nights here either mick or grandma,any way he wasn't feeling to well, but by the time we came into the room he was starting to feel better, alittle mashed potatoesand crackers last night and today nothing yet but i went and got all his favorite things. soup, grahm crackers,pizza puffs.etc well i'm getting yelled at michael want to use the computer .have a good afternoon jane mick and michael

Wednesday, March 15, 2000 at 04:15 PM (CST)

HI MICHAEL IS FINALLY STARTING TO SHOW SOME IMPROVEMENTS WE MADE THANK YOU CARDS FOR A LITTLE GIRL HERE AND HE WANTED TO HAND DELIVER THEM TO HER (JASMINE )THAN HE WANTED TO GO ON A PASS ...!!!!! YA HOO !!!!!!! TOMORROW WE WILL GO ON PASS. LOVE TO YOU ALL .HAVE A GREAT NIGHT MICK JANE AND MICHAEL

Wednesday, March 15, 2000 at 02:22 PM (CST)

TODAY MICK AND I TRIED TO DO SOME SHOPPING AND GET THE THINGS YOU REALLY MISS WHEN YOUR NOT AT HOME ,LIKE A POTATOE PEALER AND A SHARP KNIFE,MICHAEL SEEMS TO BE OK FROM THE SURGERY STILL TRYING TO STABLIZE THE PAIN, IT HAS BEEN A BUSY WEEK,WE RECIEVED THE RACE TRUCK ( EARL I WILL GET HIS NAME FOR YOU ITS RICK CABERELLI, I THINK )# 6 AND PICTURES OF FRIENDS AND THERE GIRL FRIENDS,A HUUUUUGE BOX OF STUFF FROM HEATHER AND ERIC AND THERE MOM AND DAD. THANK YOU JAX, LOVE TO YOU ALL,CARDS AND PICTURE OF DINOS RACE CAR IN FL. FROM HIS MOM,THANKS LINDA, AND CARDS FROM OTHER FRIENDS JUST BECAUSE THANX TO YOU ALL,

Tuesday, March 14, 2000 at 01:51 PM (CST)

I'M SORRY, I DIDN'T TELL WHAT IT WAS THAT MICHAEL RECIEVED .IT IS A TRUCK ,NOT JUST ANY TRUCK ,THE ITS A TRUCK FROM THE DRIVER OF NASCAR SERIES .I WENT TO PUT THE PARAGRAPH IN AND HIT THE WRONG BUTTON SO YOU WILL HAVE TO GO BACK IN THE JORNAL TO READ THE REST. BYE FOR NOW AND THANK YOU !!!!!!

Tuesday, March 14, 2000 at 01:44 PM (CST)

IT 'S HERE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! THE GREATEST THING MICHAEL RECIEVED ALL DAY ,,THANK YOU ANN AND FRIENDS AND THE LITTLE CARD FROM HIS DAUGHTER, YOU ARE TRULEY SPECIAL PEOPLE ....THAT IS THE MOST COOLEST THING ( IN MICHAELS WORDS )WE WILL WATCH TO SEE RICK ON T.V. HOPE YOU DO WELL RICK WIN A RACE FOR US ..MICK DID SOME SHOPPING TODAY SO HE COULD GET A LITTLE BREAK ,BEING THAT HE'S BEEN AT HOME WITH OUT US ,WORKING AND HAVING TO DO EVERYTHING ELSE, HOUSE, DOG,CATS BILLS ETC. AND OTHER THINGS THAT NEED ATTENTION .THE CARDS ARE TRICKLELIING IN. THANK YOU TO EVERYONE WE HANG EACH AND EVERYONE UP. WE LOVE THE MAIL.THE POST MANS NAME IS ROCKY GOTTA GO FOR NOE LOVE TO ALL HAVE A GOOD EVENING. JANE MICK AND MICHAEL

Tuesday, March 14, 2000 at 09:21 AM (CST)

goodmorning everyone, michael is awake and alert this morning,he is in a little pain,but this is to be expected. the plan for now is that we could begin the transplant process as early as 10 days from now. they did start the new med. yesterday, so 10 days are for recovery from the operation. mick and i would still like to try to get michael out of the hospital, not just for pass but for a couple of days. knowing that he would not be able to enjoy a vacation at this time (he can't walk unassisted) .oh when his cousins where here he had a blast him and austin are two peas in a pod. power rangers to the rescue. the both had there power ranger jammies on i'll try to get that picture scanned so everyone can see. we went to toys r us again, what fun we had and aunt mandy made us all laugh with helium balloons . sounded like a munchkin I was on the floor rolling. hope everyone is well . we love and miss you all so much , BUT WE WILL BE HOME SOON.

Monday, March 13, 2000 at 08:01 PM (CST)

FIRST I WANT TO SAY THIS IS THE SECOND ENTRY I HAVE PUT IN .THE FIRST ONE TELLS ABOUT THE SURGERY. SO, YOU MUST GO BACK!!!!!!!!!!!!!!!! THERE WILL BE A NEWS PAPER ARTICLE OUT TODAY IN THE NEWS PRESS WITH PICTURES OF MICHAEL AND THE STORY BEHIND THE CHILD. HOPE YOU ALL GET TO SEE IT ...HAVE A GOOD NIGHT, SAY YOUR PRAYERS AND KISS THE ONES YOU LOVE ...JANE

Monday, March 13, 2000 at 07:50 PM (CST)

HI TO ALL. MICHAEL JUST CAME OUT OF SURGERY. THE DOCS. DID REMOVE HIS SPLEEN .THEY ALSO STARTED THE VORICONOZOLE THIS EVENING. HE IS DOING VERY WELL AT THIS TIME . MICK IS HERE. MICHAEL WAS VERY GLAD TO SEE HIM. THE SPLEEN WAS VERY DESEASED, WE THINK THIS WAS A GOOD IDEA TO REMOVE IT.THE SURGERY WAS AT THREE O'CLOCK THIS AFTERNOON AND WE JUST GOT HIM BACK TO HIS ROOM( IT IS NOW 8:45 PM) THANK YOU ALL FOR YOUR PRAYERS AND CONCERN. HES DOING WELL. WE WILL TALK TO YOU LATER. THE COMPUTER IN THE FAMILY ROOM HAS BEEN DOWN . I'M IN THE LIBRARY. WHICH IS A GOOD DISTANCE FROMTHE ROOM. ITS NOT EVEN IN THE SAME BUILDING . SO AS SOON AS THE COMPUTER IS BACK UP I'LL BE UPDATEING REGULARLY AGAIN ..............LOVE TO ALL JANE MICK AND MICHAEL

Friday, March 10, 2000 at 04:25 PM (CST)

good afternoonto everyone, I'm not sure if michael was over welmed with his company or what but things didn't go as well as I thought , OH he was happy to see austin.of course but he did not feel to well we'll have to see what tomorrow brings. I KNOW YOU ARE ALL WAITING TO SEE WHAT HAPPENED WITH THE SCANS , SO HERE GOES,THE DOC. THINKS THAT THEY NEED TO GO WITH THE VORICONOZOLE, HE THINKS THE LEASIONS ARE NOT BETTER IN FACT THEY THINK THAT THEY ARE WORSE. NOW THIS COULD QUITE POSSIBLY BE BECAUSE HIS COUNTS ARE GOOD AND WITH OUT GOOD CELLS YOU CAN'T HEAL PROPERLY, AND AT THIS POINT THEY ARE SAYING THAT THEY MAY BE WORSE BECAUSE ( I KNOW THIS IS DISCUSTING ) THERE IS MORE PUS AND LARGER LEASIONS . SO WE WILL PUT IN FOR THE VORI. AND HOPE TO START TOMORROW OR EVEN THIS EVENING MICHALE IS BACK IN HIS ROOM RESTING I'LL WRITE AGIAN LATER HAVE A GOOD NIGHT . JANE AND MICHAEL

Friday, March 10, 2000 at 09:31 AM (CST)

GOOD DAY TO ALL. I RECEIVED A CALL YESTERDAY FROM MICHAELS AUNT MANDY IN INDIANA, SHE ASKED ME WHAT IT WAS SHE COULD DO TO HELP. ISAID BRING AUSTIN AND GARRETT TO SEE MICHAEL WELL THIS MORNING I AWAKE. MY MOM CALLED SHE SIAD THEY WERE 40 MILES AWAY. AND NOW THEY ARE HERE. I TOLD MICHAEL I HAVE A SURPRISE FOR HIM, HE SAID WHAT? I TOLD HIM TO THINK OF HIS MOST FAVORITE SMALL PERSON IN THE WHOLE WIDE WORLD, HE SAID AUSTIN. IT WAS SO COOL SO THIS AFTERNOON WE HAVE A FOUR HOUR PASS FROM 12 TO 4 AND WE WILL BE SPENDING IT WITH THEM AND HIS AUNT JANNIE AND UNCLE KENN WILL BE HERE TONIGHT ALSO. NO WORD ON THE SCANS YET BUT SOON, ANY TIME NOW ,I'LL WRITE AGAIN ...HI TO ALL IN COL. AND BELGIUM KEEP THE MAIL COMING WE LOVE YOU ALL, YOUR THE BEST........... HAVE A WONDERFUL DAY..... WE WILL JANE AND MICHAEL

Thursday, March 09, 2000 at 05:22 PM (CST)

hi ! we just came back from cat. scan no results yet. we didn't get to go on pass yet, but we haven't given up. they are running some meds now that are due later this evening so we can go for a few hours anyways. i'll let you know about the scans as soon as I know. Hope your night is peaceful and full of time spent with your family!!!!!! love michael and jane

Thursday, March 09, 2000 at 05:22 PM (CST)

Thursday, March 09, 2000 at 01:02 PM (CST)

HELLO EVERYONE IT IS NOW 1:55 PM NOSCAN YET WE ARE MISSING OUR TIME TO BE OUT ON PASS . THE DOC REASURED ME THAT WE COULD STILL GO.& THAT HE WANTED TO GET THIS DONE AS SOON AS POSSIBLE . SEE I SAID THEY WERE GETTING NERVOUS.MICHAEL WAS UP ALL NIGHT . NOT FOR REASONS YOU MIGHT THINK FIRST I CHANGED HIS BEDDING AND THAN HE WANTED TO PLAY. WE DID PLAY A FEW GAMES OF HENRY ( ITS KIND OF LIKE SIMON MEMORY GAME. ) AND HE KICKED MY BUTT. BUT THAN WHEN I WAS DONE HE WASN'T READY TO GO TO SLEEP ,I TURNED ON A POWER RANGERS MOVIE ,I THINK IT WAS 3 HRS LONG FINALLY AT 5:00 AM I GOT UP TO GO TO THE RESTROOM AND WARNED HIM THAT WHEN I COME BACK THE T.V. IS GOIING OFF . NEEDLESS TO SAY HE DID NOT LIKE THAT BUT HE DID FINALLY GO TO SLEEP OF COURSE HE SLEPT TILL 9:30. SO WE ARE STILL WAITING FOR THE SCAN AND IF THEY DON'T DO IT BEFORE 3:00PM WE WON'T HAVE RESULTS TIL TOMORROW.... I WILL LET YOU KNOW A.S.A.P. LOVE TO ALL HAVE A GREAT DAY !!!!!!!!!!!!!!!!XOXOXOXOXOXOXOXOXO

Wednesday, March 08, 2000 at 08:16 PM (CST)

TOMORROW IS THE TELL TALE DAY. THEY ARE DOING THE CAT. SCAN TO SEE IF THE FUNGUS HAS CHANGED ON THE SPLEEN ,IF IT HASN'T THEY ARE GOING TO TRY TO GET THE VORICONOZOLE ORDERED. WE WILL SEE UNTIL TOMORROW GOD BLESS. HAVE A GOOD NIGHT ...JANE AND MICHAEL

Wednesday, March 08, 2000 at 04:24 PM (CST)

HI EVERYONE !I WOULD LIKE TO TAKE THE TIME TO TELL EVERYONE THAT WE ARE GOING TO MISSING SOMETHING VERY SPECIAL. I JUST FOUND OUT THAT ONE OF THE CHILDREN THAT WE HAVE BEEN SO CLOSE WITH IS HAVING HER LAST CHEMO TREATMENT THIS COMING MONDAY. SO I WOULD LIKE TO WISH HER A VERY SPECIAL HELLO FROM OUR FAMILY TO HERS. AND TO WISH THEM ALL THE BEST AND WE MISS YOU VERY MUCH AND DEE.... I WOULD LIKE TO THANK YOU FOR BEING THERE WITH ME TO GO DO OUR MOMMY THINGS TOGETHER. ALYSHA GOD BLESS YOU TO A FULL RECOVERY AND NO MORE HOSPITALS....... WE LOVE YOU JANE MICK AND MICHAEL. MICHAEL WENT WITH ME TO THE MOTEL TODAY AND WE WALKED AROUND OUTSIDE A BIT. HIS FEVER WAS AT 103. AGAIN BRIEFLY AND THAN IT WENT BACK DOWN. IT IS NOW 5:25 PM AND IT WAS 99. IN ONE EAR AND 102. IN THE OTHER I'M IN THE FAMILY ROOM WITH GRANDMA AND MICHAEL IS A SLEEP IN THE WAGON. HE DIDN'T WANT TO GO TO THE ROOM . THEY HAD TO CHANGE THE CAPS ON HIS CENTRAL LINES SO THE NURSE TOOK HIM INTO THE TREATMENT ROOM.IT WAS REAL NEAT THE WALLS ARE PAINTED WITH FLORESCENT PAINT SO WHEN YOU TURN THE LIGHTS OUT YOU SEE STARS AND THE MOON ( THE MAN ON THE MOON )HIS SPIRITS ARE GOOD HE WAS BOUNCING ON THE BED AT THE MOTEL ROOM. AND PLAYING WITH HIS HOTWHEELS. GOTA GO BEFORE THE COMPUTER SHUTS DOWN

Tuesday, March 07, 2000 at 05:33 PM (CST)

HI IT IS NOW 6:25 PM MICHAELS FEVER IS NOW 104. AGAIN .I CAN'T FIGURE THIS ONE OUT. WE WE DID GET TO GO OUT TODAY. MICHAEL ACTUALLY ATE A HANDFUL OF FRIES. NOT THE BEST, BUT ITS SOMETHING. MICHAEL HASN'T BEEN ABLE TO GET TO THE ROOM TO READ ALL THE MESSAGES. BUT I THINK I COULD SPEAK FOR HIM , AND SAY YOU GUYS IN IL. CO. BELGIUM AND FLORIDA ARE FANTASTIC OH AND OF COURSE UNCLE BOB AND PAULETTE IN ARIZONA AND ANYONE ELSE I MAY AHVE FORGOT NOT THAT I FOR GOT ITS JUST THAT I'M OVER WELMED WITH YOUR KINDNESS AND WE DEFINITELY FEEL THE PRAYERS BEING SENT OUR WAY KEEP THEM COMING I HAVE TO CLOSE FOR NOW MICHAEL NEEDS ME THANK YOU EVERYONE... JANE RICE AND FAMILY ......AND MICHAEL

Monday, March 06, 2000 at 10:23 PM (CST)

IT IS NOW 11:15 PM MICHAEL IS SLEEPING PEACEFULLY. HE HAD A LONG DAY. THE DR. CAME IN TODAY AND WE DISCUSSED THIS PROBLEM WITH HIS SPLEEN . HE SAID THEY WILL BE DOING A CT SCAN AT THE END OF THIS WEEK OR THE MIDDLE OF NEXT WEEK. THEY ARE GOING TO PUT IN A REQUEST FOR THE EXPERIMENTAL DRUG (ANTI-FUNGLE) IF THE SCANS SHOW THERE IS NO IMPROVEMENT. THEY HAVE NEVER REQUESTED THIS MED BEFORE WITHOUT PROOF THAT THERE IS FUNGLE (VORICONOZOLE). SINCE DEC NONE OF THE SCANS HAVE COME BACK POSITIVE . EXCEPT NOW THEY DO HAVE SOME PROOF THAT THERE IS A PARASITE THAT KITTENS CARRY ( THE DR SAID WE DON'T HAVE TO GET RID OF THE CATS ) AND THE BACTERIA THAT WAS GROWING IN HIS LUNGS GOODNIGHT FOR NOW...

Monday, March 06, 2000 at 07:37 PM (CST)

hello everyone from belgium to colorado.. ...what a good day we had except for those darn fevers, first we did our general health care and than we started to plan where we were going to escape to today,as it turned out toys r us was the place of the day. $67.00 worth of hotwheels ,nascars and power ranger videos ,than we were to go to taco bell, but by that time came he wasn't hungry, so next time I'll do taco bell than toys r us. well than we headed back to the motel and guess who was there "GRANDMA" he was so excited to see her I think he may think that hes been abandoned.I try to reasure him that I'm not going to far when I go but that doesn't always help,but he is getting better at letting me leave . you see were not aloud to eat,use the bathroom or shower in his room. so this is difficult for both of us. but hes happy to be able to get out as muchas he fights with me that he doeesn't want to .he has a great time and doesn't want to come back well today he did , i think he knows hes sick and hes scared well have a restful peaceful evening and say a quiet prayer for us and we'll be listening................................ OH MICHAELS BIRTHDAY IS COMING UP. APRIL 11TH HE BE FIVE YEARS OLD. WE WERE SUPPOSE TO BE DONE WITH TREATMENT THE DAY BEFORE HIS 5TH BIRTHDAY..... NEXT YEAR FOR SURE

Monday, March 06, 2000 at 01:08 AM (CST)

IT'S NOW 2:00AM THIS AFTERNOON MICHAEL AND I WENT FOR A WALK TO THE HELICOPTERS AGAIN ,I FORGOT MY HOTEL KEY AND BY THE TIME I WENT BACK UP STAIRS TO GET IT I WOULD HAVE HAD TO BE BACK TO THE ROOM ANYWAYS SO WE JUST WALKED AROUND .WE ALSO RODE THE PEOPLE MOVER. HE LIKES THAT . WE WERE THE ONLY ONES ON IT TODAY. MICHAELS HEMOGLOBIN WAS 7.9 SLOWLY DROPPING ALL WEEKEND. BLOOD WAS GIVEN AROUND 10:00 THIS MORNING .THAN WE UNHOOKED HIM AROUND 3:00 AND THAN WHEN WE WENT TO HOOK HIM BACK UP THEY COULDN'T GET A BLOOD RETURN THEY TRIED FOR HOURS ON AND OFF ,I TOLD THE NURSE I DON'T EVEN WANT TO KNOW ABOUT THIS.. SHE SAYS HAS THIS HAPPENED BEFORE? I SAID NO, THERE BRAND NEW LINES WE JUST GOT HERE LAST FRIDAY, THE LINES AREN'T EVEN A WEEK OLD. SO WE PUT TPA (I 'M NOT SURE WHAT IT IS SOME SORT OF ANTI CLOTTING AGENT ) IN THE LINE AND ALMOST 2 HOURS LATER THEY FLUSHED AND GAVE A RETURN THANK YOU JESUS! HE IS SUCH A LITTLE TROOPER. SO TUFF AND YET SUCH MOMMIES LITTLE ANGEL. I MISS MY LITTLE BOY .

Sunday, March 05, 2000 at 08:29 AM (CST)

hi everyone, if you are reading today ,I started to write early this morning and added some pieces to the journal .but you have to go back to read them .so if you don't want to miss anything go back a couple of times. thanks and god bless everyone. jane ,mick , and michael

Sunday, March 05, 2000 at 06:48 AM (CST)

mandy and chris please write to the e-mail address then I can give you the info that you need and I can talk back and forth to you . also anyone who has signed the register pat and jana,carol ,roy christopher and nick. and aunt sue ,uncle larry,and anyone who isn't in the e-mail uncle bob ,paulette debs and the girls i couldn't find your e- mail, i tried as soon as i got it from mick. love to you all bye for now .

Sunday, March 05, 2000 at 06:39 AM (CST)

goodmorning, mick said michael threw up a couple of times throughout the night and had a fever of 39c . I still have to check to see waht 39c is. last night michael was so trierd ,we had taken him for a ride to find chucky cheese. we found it but it was packed full of kids so we couldn't take him in we also found the "TACO BELL" YAHOO! this is a big thing for michaels eating habits . the docs say its ok to feed him what he wants ( craves ) as i said before mick is going back home today I'm not sure how we are going to manage with out him. I know I need him here. my mom will be here MONDAY some time . its just not the same as having the family unit together.but we will manage some how . write agian later . KEEP PRAYING FOR MICHAEL.

Saturday, March 04, 2000 at 06:50 PM (CST)

hi everyone . so glad to see everyone out there. i wish michael would stay in the room long enough so i can read some of these things to him. maybe tomorrow i'll just bring him in here instead of going all over . mick won't be here. hes going back home. so i won't be able to get him out and about as well. for the family members and close friends that are signing the web page please go to my e- mail also. i'm not sure how to get back to everyone ( i'm still learning how to use this darn thing) but if you go to the e-mail i can just reply back . thank you for all you kind words you' ll never know how much it means to me knowing your right there listening to us. WE LOVE AND MISS YOU SO MUCH. MANDY YOU TELL THOSE BOYS, THERE COUSIN CAN'T WAIT TO PLAY WITH THEM XOXOXOXOXOXOXOXOXOXOXOX.......

Saturday, March 04, 2000 at 06:50 PM (CST)

Saturday, March 04, 2000 at 11:52 AM (CST)

HI THERE, MICHAEL IS NAPPIING AFTER A BIG MORNING. MICK AND I TOOK HIM TO THE HOTEL AND ALL OVER THE GROUNDS OF DUKE AS FAR AS WE COULD IN THE WAGON. ITS NOT REAL HANDICAPPED EQUIPT.WE TOOK HIM OVER TO SEE THE HELICOPTER LANDING AREA,BY THE TRAINS ,THEY MUST USE COAL FOR ENERGY HERE SOMEWHERE. THE TRAINS WHERE FULL AT ONE TIME. THEY ARE PILOTS HERE ON THE GROUNDS FOR THE HELICOPTERS . WE RAN INTO TWO OF THEM ,THEY WERE FROM PITTSBURG. THEY SAID TO COME TO THERE QUARTERS AND THEY WILL TAKE MICHAEL TO THE HELICOPTER. AND HE RECEIVED A FLIGHT HAT PIN FROM ONE OF THE CRITICAL CARE NURSES . SHE WAS VERY NICE. WE HAVE HAD CLOWNS AND RESTLERS, COME TO THE ROOM SO FAR WELL HAVE A GREAT DAY TALK TO YOU SOON. JANE MICK AND MICHAEL

Saturday, March 04, 2000 at 06:42 AM (CST)

good morning, michael is still sleepng last night wasn't to bad he mostly awoke to go to the bathroom, his heart rate was in the 130's or higher last night, his resperatons where kind of high also 45-50 he was breathing very labored. and we both wake up with our mouths so dry through the night. were not used to the climate. grandma sould be here soon she leaving either this afternoon or tomorrow morning. dad will be going back home also, we are not pre transplant yet.when it comes time for transplant and you are feeling better we are taking you out of the hospital for about one week. so anyone who would like to see us can do so than we'll probly go to the cabin in elk park n.c. we don't know exactly when but hopefully real soon. HAVE A GREAT DAY EVERYONE, WERE ARE MISSING YOU

Friday, March 03, 2000 at 03:09 PM (CST)

part 4 I'M NOT SURE THAT PUTTING PARTS TO THIS SCREEN IS A GOOD IDEA. SOON WE WON'T EVEN KNOW WHAT DAY IT IS. FROM WHAT I UNDERSTAND THINGS GET PRETTY HAIRY ONCE WE START TRANSPLANT . TODAY MICHAEL BEAT HIS DAD AT CHECKERS WITH MOMMY'S HELP. WE TOOK HIM DOWN TO THE CAMPUS STORE AND I GOT HIM A DUKE BASKETBALL. ITS WAY COOL..... I'VE BEEN SEEING ALOT OF THE OTHER PATIENTS AND THERE FAMILIES ,THE CHILDREN ARE SO SPECIAL ,BUT TO LOOK AT THEM IT BRINGS ME TO THE REALITY OF WHATS TO COME, THEY ARE SO SICK AND AT THE SAME TIME THEY ARE FIGHTING FOR THERE LIVES , MINUTE BY MINUTE, THEY ARE AMAZING CREATURES. THIS IS ALSO FRIEGHTENING. LIKE I SAID LOOKING AT THE KIDS IS REALITY OF WHATS TO COME . MICHAEL HAS BEEN SO SICK FOR THE PAST 2 1\2 MONTHS WE HAD HOPED WE COULD GET HIM OUT OF THE HOSPITAL FOR A WHILE BEFORE TRANSPLANT. WEATHER THE DRS. WILL LIKE THAT .ONLY TIME WILL TELL. KEEP PRAYING SEE YA SOON .... BYE

Thursday, March 02, 2000 at 05:40 PM (CST)

part 3 michael has been with Dr. Salman for about 2 1\2 years now .weekly chemo, chemo every night . on dec 20 th michael started running a fever ,we thought he probly had the flu , although we are always so careful with him. called the dr and she said does he complain of anything ,no, so she said to go ahead and just bring him in on his regularly scheduled time. so we did . and they kept him pretty much until the 27th of jan. we were back in on the 30th, from there we came to duke. he seems to be doing well these past few days. fevers are going away with out tylonol. today he hasn't really had to high of one 101*.we went for a ride in the wagon all over the hospital for about 1 1\2 hours the nurses get nervous. they're not used to letting there patients leave the floor. I"m going to close for now god bless everyone and keep praying for the children.

Thursday, March 02, 2000 at 07:01 AM (CST)

part 2, day 7, I started writing earlier and lost everthing. well michael was taken to ashville where he was treated by Dr. O.Batey he was stabelized for 18 hr,than we were transferred to tampa. michaels daddy had to drive back to fl. by his self because we had been camping, someone had to break camp and drive the truck home. longest days of his life and mine.we stayed at all childrens hosp. for about 1 month than we found Dr. Salman,we sure do miss him.He's in FT MYERS FL. end for now . talk more later. JANE

Wednesday, March 01, 2000 at 07:54 PM (CST)

for those of you who are just learning about our michael, he's 4 1\2 years old . we were hiking in the mountains of N.C. linville falls area to be exact, when michael started to complain his legs hurt. michael had been eating doritos,and bit his tongue the blood was petty severe at that time I told mick that something is severely wrong with him. we took him to crossnor hosp. wher dr. kelly mayfield diagnosed him with leukemia. now many people asked us if we wanted to get another opinion? we new this was what was wrong. part one of a long story thanks for being there we love you grandmas,aunties and uncles and grandpa lee

Tuesday, February 29, 2000 at 01:36 PM (CST)

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