History

Journal History

Tuesday, February 17, 2015 10:06 AM CST

14 years since you are pain free and went to heaven. Not a day goes by that I don't think about you. I miss you lil man. You are my guardian angel forever. Love you so much.

Love Mommy

Monday, February 17, 2014 9:37 PM CST

13 years today you went to heaven. Miss you so much. Love you baby boy. You will always be my little angel. Hugs and kisses.

Love,
Mommy

Tuesday, August 27, 2013 9:14 PM CDT

Happy 14th Birthday Nicholas! I hope you are enjoying your birthday with all your angel friends. We miss you so much. We love you very much. You will always be mommy's little angel!

Love Mommy & Alexis

Sunday, February 17, 2013 5:21 PM CST

It's been 12 years. Love and miss you so much.

Love Mom and Alexis

Monday, August 27, 2012 1:02 PM

Happy 13th Birthday Nicholas! I'm sure you are celebrating your birthday with your angel friends.
We miss you so much. We love you bunches!

HAPPY BIRTHDAY to Mommy's Little Angel!

Love you,

Mommy & Lexi

Saturday, August 27, 2011 12:44 AM CDT

Happy 12th Birthday Nicholas!! Seems like yesterday I was holding you so close in my arms. Miss you so much little man.

We love you!
Mommy and Lexi

Thursday, February 17, 2011 11:12 AM CST

10 years today you earned your angel wings. We still miss you little man. Seems like I was just holding you in my arms yesterday. Love you very much.

Love,
Mommy and Lexi

Friday , August 27, 2010 8:37 AMCDT

HAPPY 11TH BIRTHDAY NICK! Just seems like yesterday I was holding you in my arms and now you are growing up so fast. I miss you so much. Big sister misses you too.
We love you so much little man.
HAPPY BIRTHDAY.

Love,
Mommy and Lexi

Wednesday, February 17, 2010 6:05 AM CST

It's so hard to believe it has been 9 years since you went to heaven and got your wings. We think about you every day. So many memories that have never went away. You will always be my litte man no matter how many years it is. Your big sister misses you so much!
Love you bunches and bunches!

Love Mommy, Daddy and Alexis

Thursday, August 27, 2009 3:20 AM CDT

HAPPY 10th BIRTHDAY Nick!!!! My double digit midget is now 10 years old today! Hope you are having a wonderful time celebrating will all your friends. We miss you very much. Tons of Hugs and Kisses! Love you Little man..

Love,
Mommy, Daddy and Lexi

Tuesday, February 17, 2009 6:52 AM CST

8 years ago today you went to Heaven. Seems like yesterday I was holding you in my arms. We still miss you little man. The pain, the thoughts of you and our memories of you are all still there. Your big sister misses you so much. I Love you little man very, very much.

Love,
Mommy, Daddy and Lexi

Wednesday, August 27, 2008 5:37 PM CDT

HAPPY 9TH BIRTHDAY NICK! We hope you are enjoying your birthday with all your angel friends. Miss you very much. Hugs and kisses.We Love you forever and always.

Love,
Mom,Dad and Alexis

Sunday, February 17 6:35 PM CST

Well little man it has been 7 years since you have gone. We miss you dearly. In my heart I feel you have never left me. Seems like yesterday I was holding you in my arms. I know you are free of pain now. We love ya Nick.

Love,
Mommy, Daddy and Lexi

Monday, August 27, 2007 7:16 AM CDT

HAPPY BIRTHDAY NICHOLAS! I CAN'T BELIEVE YOU ARE 8 YEARS OLD NOW. I'M SURE YOU ARE CELEBRATING WITH ALL OF YOU ANGEL FRIENDS!
MISS YOU VERY MUCH LITTLE MAN. LOVE YOU BUNCHES AND BUNCHES.
HUGS AND KISSES!
LOVE,
MOMMY, DADDY AND ALEXIS

Saturday, February 17, 2007 9:26 AM CST

I can't beleive it has been 6 years to the day that you have been gone. We miss you very much and think of you every minute of the day. Your big Sister is growing and growing each day. She will soon be a little women. She asks about you all the time. I tell you that you are in Heaven with Uncle Herb. Just remember we Love you very much and you are in our hearts. We hold on to the great memories.
Love,
Mommy, Daddy and Lexi

Sunday, August 27, 2006 1:54 PM CDT

HAPPY 7TH BIRTHDAY NICK!!
We miss you so much. I'm sure you are having a wonderful time celebrating your birthday with all your heaven friends.
Hugs and Kisses from Mommy, Daddy and Big Sister Alexis!

Friday, February 17, 2006 7:22 AM CST

It's hard to believe it has been 5 years today since you went to heaven. We miss you so much. Hope Uncle Herb is taking good care of you. Your memories are still close to my heart. I LOVE YOU LITTLE MAN.
Love Mommy, Daddy and Lexi

Saturday, August 27, 2005 12:11 AM CDT

HAPPY 6TH BIRTHDAY NICK!!!
I hope you, your Uncle Herb and your friends in heaven are celebrating your 6th birthday! There are balloons and roses in memory of you. I miss you so much.. BIG HUG goes out to you! We love you little man!
HAPPY BIRTHDAY!
LOVE,
Mommy, Daddy and Lexi

Thursday, February 17, 2005 4:09 PM CST

4 Years today you have been in Heaven. Your Uncle Herb came to join you on December 17,2004. I hope he has found you and you are playing and having a great time in Heaven. Mommy and MeMe put some flowers and balloons on your grave to show you how much we really miss you and love you. You will always be my Little Man. Love you bunches!
Mommy, Daddy and Lexi

Friday, August 27, 2004 5:28 PM CDT

Happy 5th Birthday Nick!!!! Hope you liked your balloons, flowers and car! Miss you soo much but I know you are having a fun birthday in heaven with all your angel friends.
Love you very much!

Mommy, Daddy and Big Sister!

Tuesday, February 17, 2004 6:54 PM CST

It has been 3 years today since Nicholas has went to heaven. We miss and LOVE YOU very much little man. You are in our thoughts and dreams every day. Just seems like yesterday you were here with us and then you were gone. I know you are with us and looking over us everyday. Love you little man!

Mommy, Daddy and Big Sister

Wednesday, August 27, 2003 5:21 PM CDT

Today is Nicholas 4th Birthday!!!! Hopefully you are celebrating with your angel friends. We miss you dearly and love you soo much. We put balloons and flowers on your grave site hoping you know we are thinking about you "little man". LOVE YOU BUNCHES!!

Mommy, Daddy and big sister Alexis

Monday, February 17, 2003 9:24 AM CST

Today February 17, 2003 is 2 years that Nicholas has been gone and up in heaven. I still feel the pain and hurt inside and miss my "Little Man" terribly. I know he is in heaven watching down over Daddy, Mommy and Big Sister Alexis. 2 years ago there was snow on the ground but nothing like we have today. In this world today, you never know when you will lose that special someone in your life. The grass is not greener on the other side. Be glad for what you have now and what you did have. We miss you Nicholas and we LOVE you too.
Love,
Mommy, Daddy and Alexis Bartlebaugh

Tuesday, August 27, 2002 at 06:28 AM (CDT)

Happy 3rd Birthday Nicholas!! Today, August 27th, Nicholas turns 3. I know he is probably in Heaven celebrating his birthday with the other angels. HAPPY BIRTHDAY LITTLE MAN! We all miss you very much. HUGS and KISSES!!
Love,
Mommy, Daddy and Alexis

Sunday February 17, 2002 9:35 AM CST

Today is Nicholas 1 year anniversary in Heaven. 1 year ago on the 17th he earned his wings and went to be with God. We miss you so much Nick and we love you very much. I feel very numb and hurt inside. But I know my little man is a happy boy and one of these days I will be reunited with him.
Lots of love Nick.
Mommy, Daddy and Alexis

Monday, August 27, 2001 at 08:02 PM (CDT)

NICHOLAS turned TWO years old today. Big sister Alexis and I put balloons and flowers at his grave site. I miss my little guy, but at least I know he is no longer in any pain. He is celebrating his birthday with his angel friends.

Sunday, February 18, 2001 at 08:23 AM (CST)

Nicholas passed away Saturday night 2/17/01 around 6:35 p.m. He passed in his sleep so he was in no pain. He has his wings now and is in heaven now with all the other ANGELS.
It has been 6 weeks now and the pain still hurts. I miss my little angel very much. I know he is watching over mommy, daddy and big sister Alexis.

Monday, January 29, 2001 at 06:19 PM (CST)

January 3rd, a Visiting nurse came in do evaluate Nick and after two visits referred him to the Hospice program. Nicholas was admitted thru the Hospice program on January 17, 2001. Kelly is his nurse and is so kind and great to Nick! We noticed that Nick is more sleepy and is having less wet diapers. He has been running fever for 3-4 days now. Finally, I had blood work done to verify if there was any infection. His white blood cell count was normal which indicated no infection. I've found that the disease has progressed and is now in the brain stem which is controlling his body temperature. By the looks of things, Nicholas will have his WINGS sooner then I thought. It's tough knowing this is the end of the road, but I feel I've done all I could for him and he will be happier and not in pain. Nick was 17 months old on Saturday. If you are reading this journal, please keep him in your prayers along with Big Sister ALEXIS.

Friday, December 29, 2000 at 07:18 AM (CST)

When Nicholas was 14 months (October), he lost his swallowing ability. After 3 days in the hospital we found that we could no longer able to give him any food by mouth. He has a suction machine that I use every day to suction out his secretions. He is also on a medication called Robinul which a side effect is to dry things up and this truly works. Everything has to be put thru the feeding tube now. I have found that switching to PediSure has made him gain weight. He eats 4oz every 3 hours and is sleeping all thru the night in his waterbed. In July, Nicholas was 12 lbs. Today he is 16 months old and is weighing in at 17 lbs 11 oz! I'm hoping he is my miracle baby..

Sunday, August 27, 2000 at 07:31 PM (CDT)

Nicholas is 1 year old today!! He now sleeps in a super single water bed and has been sleeping all night for us. He has a bottom tooth, a top tooth and another top tooth coming thru. He is eating more baby food then before.

Wednesday, July 26, 2000 at 08:50 PM (CDT)

Nicholas is 11 months old and was diagnosed with Krabbes Disease on April 24, 2000.It all started in 1999 with the birth of our 2nd child Nicholas. He was to be born on September 21, 1999 but came August 27, 1999 which was four weeks early. My pregnancy was great up until 34 weeks when I went into labor. I was given bed rest and medication to stop my contractions. Finally one week later, the bundle of Joy came. A baby BOY weighing in at 6lb 12.2 oz and 19 ½ inches long! He was fine in the hospital, normal and healthy. Once we got him home we noticed he was very fussy and irritable at times and arched his body. We thought it was the formula so we contacted our pediatrician, Dr. Henken at Jones, Daly and Coldren Associates, who advised it was colic. We knew something was wrong. After many trips to the doctor’s in a few days period I finally requested an upper GI to be done in November. Sure enough, he was diagnosed with Reflux. We tried medications to help the reflux but it seem to make him more irritable. There were many restless nights where he wanted fed every 2-3 hours. Cereal did not help, warm baths did not help so finally by 5 months old we noticed he still didn’t hold his head up straight and was only drinking 4 oz of formula. He didn’t hold his pacifier or toys and he was very irritable and constantly made his body stiff at times. Finally at 7 months old we told our pediatrician that something was wrong either a pulled muscle or something because he was not doing the others things a 7 or 8 month old should be doing. The pediatrician saw us and said it was developmental delay. I asked if we could be referred to a Neurologists. The pediatric neurologists, Dr. Barron was unable to see Nicholas till October. I finally fought my way and got in touch with an adult Neurologist. They advised they did not treat infants but was willing to see my son. We met with PA Neurology Associates on April 4, 2000. The neurologists set up an MRI which was done on April 13th. PA Neurologists got us an appointment with Dr. Barron on April 14th. Dr. Barron was upfront and honest with Ron and I and more less said according to the MRI reports, “ Your son may have a disease called Krabbes and this is a terminal illness” . To confirm the results, a DNA blood test had to be done. On Monday, April 17, we went to Hershey Medical Center to have the blood drawn and it was sent to Dr. Wenger’s lab in Philadelphia to be tested. It normally takes 6 weeks to get the results but since it was sent as a priority, we got the tests results one week later. On Monday, April 24, 2000 the blood test came back positive. I got the phone call at work from Dr. Barron stating he had the disease and my son was going to die by two years old. I had no words to reply at the time just tears fell from my eyes and thoughts as to why why why…..
Nicholas has an older sister Alexis who is five years old who does not have the disease, but could be a carrier. No tests have been done at this time.
My next step was to go to Dukes Hospital in North Carolina to see if a blood cord or bone marrow transplant could be done. After eight hours of driving down/ back and seeing three different doctors, we realized that a bone marrow or cord blood transplant was not a cure. I would have to stay in North Carolina for about four months total, he could reject the transplant, he had a 10% chance of a fatal and he would be in a wheel chair the rest of his life along with losing everything he does now, smiling, laughing and trying to move his hands and legs. I couldn’t see putting my son thru the pain. We decided to make him comfortable and enjoy him as long as we could.
So far, Nick is still eating and drinking well. He is on nerve medicine to relax his muscles. He loves showers and just being outside.
On July 3, 2000 Nick was admitted to Hershey Medical Center for mild dehydration He would not take his bottles and lost about 1 lb in 3 months April he weighed 15 lbs, June 6th he weighed 14.6 lbs and on July 3rd he weighed 14.2 lbs. On July 7th he had a G-Tube put in his stomach and he now weighs 14 ½ lbs.

Wednesday, July 26, 2000 at 08:32 PM (CDT)

Nicholas is 11 months old and was diagnosed with Krabbes Disease on April 24, 2000.
It all started in 1999 with the birth of our 2nd child Nicholas. He was to be born on September 21, 1999 but came August 27, 1999 which was four weeks early. My pregnancy was great up until 34 weeks when I went into labor. I was given bed rest and medication to stop my contractions. Finally one week later, the bundle of Joy came. A baby BOY weighing in at 6lb 12.2 oz and 19 ½ inches long! He was fine in the hospital, normal and healthy. Once we got him home we noticed he was very fussy and irritable at times and arched his body. We thought it was the formula so we contacted our pediatrician, Dr. Henken at Jones, Daly and Coldren Associates, who advised it was colic. We knew something was wrong. After many trips to the doctor’s in a few days period I finally requested an upper GI to be done in November. Sure enough, he was diagnosed with Reflux. We tried medications to help the reflux but it seem to make him more irritable. There were many restless nights where he wanted fed every 2-3 hours. Cereal did not help, warm baths did not help so finally by 5 months old we noticed he still didn’t hold his head up straight and was only drinking 4 oz of formula. He didn’t hold his pacifier or toys and he was very irritable and constantly made his body stiff at times. Finally at 7 months old we told our pediatrician that something was wrong either a pulled muscle or something because he was not doing the others things a 7 or 8 month old should be doing. The pediatrician saw us and said it was developmental delay. I asked if we could be referred to a Neurologists. The pediatric neurologists, Dr. Barron was unable to see Nicholas till October. I finally fought my way and got in touch with an adult Neurologist. They advised they did not treat infants but was willing to see my son. We met with PA Neurology Associates on April 4, 2000. The neurologists set up an MRI which was done on April 13th. PA Neurologists got us an appointment with Dr. Barron on April 14th. Dr. Barron was upfront and honest with Ron and I and more less said according to the MRI reports, “ Your son may have a disease called Krabbes and this is a terminal illness” . To confirm the results, a DNA blood test had to be done. On Monday, April 17, we went to Hershey Medical Center to have the blood drawn and it was sent to Dr. Wenger’s lab in Philadelphia to be tested. It normally takes 6 weeks to get the results but since it was sent as a priority, we got the tests results one week later. On Monday, April 24, 2000 the blood test came back positive. I got the phone call at work from Dr. Barron stating he had the disease and my son was going to die by two years old. I had no words to reply at the time just tears fell from my eyes and thoughts as to why why why…..
Nicholas has an older sister Alexis who is five years old who does not have the disease, but could be a carrier. No tests have been done at this time.
My next step was to go to Dukes Hospital in North Carolina to see if a blood cord or bone marrow transplant could be done. After eight hours of driving down/ back and seeing three different doctors, we realized that a bone marrow or cord blood transplant was not a cure. I would have to stay in North Carolina for about four months total, he could reject the transplant, he had a 10% chance of a fatal and he would be in a wheel chair the rest of his life along with losing everything he does now, smiling, laughing and trying to move his hands and legs. I couldn’t see putting my son thru the pain. We decided to make him comfortable and enjoy him as long as we could.
So far, Nick is still eating and drinking well. He is on nerve medicine to relax his muscles. He loves showers and just being outside.
On July 3, 2000 Nick was admitted to Hershey Medical Center for mild dehydration He would not take his bottles and lost about 1 lb in 3 months April he weighed 15 lbs, June 6th he weighed 14.6 lbs and on July 3rd he weighed 14.2 lbs. On July 7th he had a G-Tube put in his stomach and he now weighs 14 ½ lbs.

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