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Hello, I recently came across your site through the MPS forum, as I have a daughter with MPS IIIA. Your words were so very touching and I hope your family remains well. My thoughts are very much with you, Joanne Huff
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Saturday, September 10, 2011 7:46 PM CDT

just stopping in to say hello, i read your entry every once in awhile! Love to all!

carolyn lebron (caucci) austins mom <tweet84675@verizon.net or www.caringbridge.org/page/austinc>
phila, pa usa - Wednesday, August 27, 2008 3:35 PM CDT

Happy 9th Birthday in heaven Angel Jules! Missing you...as always.
Love, The Posts <ltjpost@yahoo.com>
- Sunday, April 20, 2008 8:34 AM CDT

Hello from a kindred spirit. My son, Jeffrey, died at the age of 12 on the day after Christmas in 1997. (His father died 10 years prior to that). Like Julia, Jeffrey also suffered from Hurler's Syndrome. Now he dons a brand new body in Heaven and my heart grieves still and yet rejoices still.

Thank you for what you wrote. It touched my heart. When people ask how many children I have, I say, "Three--2 on earth and 1 in Heaven." I can't leave him out.

Now I'm waiting on test results to see if my grandson has Hurler's. It's strange, 22 years down the road and now my daughter, at the same age I was when I was awaiting a diagnosis, must also wait. I'm praying it's good news. But either way, God's blessings befall us despite the tragedies of life, especially in the eyes of our children.

I wrote a poem in memory of Jeffrey several years ago and thought it might bless you.

YEAR AFTER YEAR

Angels delivered him on schedule.
God smiled the day he came.
A little light from Heaven,
Ignited by the Eternal Flame.

Pain disguised the blessing.
Blind eyes, lame legs, the joy.
But his smile revealed the purpose.
Love's design in one small boy.

Enduring years of affliction,
His smile would never wane.
The plan, the purpose, Love's intention,
Yielded Faith and Hope to gain.

Adversity bred the miraculous.
Distress signaled angels' wings.
Burdens broke the chords of fear.
Love's Power rose above all things.

With work on Earth completed,
Answering the call from above,
He left a tired body,
Flying high on Heaven's Love.

Jesus was there to greet him,
His Daddy and grandparents too.
Many had come to share the joy,
To witness Mom's dream come true.

A broken body mended.
Pain's reward set free.
Playful days eternal.
God's best would finally be.

"A job well done, Son," Heaven heard Him say.
The Savior's words had led the way.
Now Heaven holds the glory that a mother's heart holds dear;
But Faith, Hope and Love remain,
Year after year.

God bless Julia and Jeffrey and all the little children that have gone on before us!
Kitty
Moorcroft, WY USA - Tuesday, January 15, 2008 0:40 AM CST

Please know you are in my thoughts and prayers this holiday season and every day. May you be blessed in the New Year!
Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson

Tami
- Wednesday, December 19, 2007 4:58 PM CST

hello Moran family,
It has been way too long since I last checked in and I just wanted you to know we still think and pray for you all. Hopefully you still check the guestbook, the entry had me crying, happy and sad tears! love to you all and a joyous holiday season to you all
carolyn caucci <tweet84675@verizon.net www.caringbridge.org/page/austinc>
phila, pa usa - Wednesday, October 31, 2007 2:29 PM CDT

Miss Jules,
Can't believe it's been two years since you received your well -earned angel wings. We know you are now healed and happy, but we sure do miss you.
Hugs in heaven...
Love, Lisa & Jeff <ltjpost@yahoo.com>
- Monday, September 24, 2007 7:36 PM CDT

Dear Moran Family:

I just want you to know that I read your most recent update. What a tribute to you and your family. Most of all, though, what a tribute to Jules. Make no mistake, you have four children. It's just that Jules has now gone home. She is now ageless and timeless as she lives with Jesus.

I want you to know that Jules touched so many people in her short life. Her life on earth was a gift from God to thousands of people all over the world. By leaving her web page in tact, her gift will live forever, just as she now will live in joy, health and peace forever in heaven. Thank you for sharing your lives with us all. Thank you for the words in your final update. May the God of peace fill you and your family with peace now and forever.

God bless you all.

Jim McClelland

Jim McClelland
- Monday, July 16, 2007 9:05 AM CDT

It sounds like you're right on target to me. I am glad joy is starting to seep back into your lives and that you are not afraid to give love. I will miss your journal-for it holds the words of a wise woman. Love, very much. Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Saturday, May 26, 2007 8:06 PM CDT

Happy MPS Awareness Day! We think of your family and especially Julia often...
Hugs to you!
Jennifer Restemayer <jennmarie@bis.midco.net>
Bismarck, ND USA - Tuesday, May 15, 2007 4:41 PM CDT

To the Moran Family-- Oh Patty, your words are so eloquent, so honest, and so truthful. You have let us into your family during the most difficut moments a family can experience. Julia is still in our thoughts and prayers. Matthew will be doing something and ask out of the blue what do I think that Julia is doing right now? The children remember in their own way, and Julia has touched them in such a way that I believe she will always hold a place in their hearts and thoughts. I know that this is true for Matthew. While I am saddened to read that your journal will end, I understand that grieving takes on different forms at different times in our lives. I do hope that you will keep writing, however, even if only in a journal for only your eyes. You have a gift for words that would be a shame to suppress.

Michele Boyer <boyersc@cox.net>
Manchester, ct 06040 - Sunday, March 25, 2007 6:43 PM CDT

Just sending some

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To you,

From Everyone at Post Pals
www.postpals.co.uk

viks <viks@postpals.co.uk>
- Sunday, March 18, 2007 12:27 AM CDT

Thank you “Moran Fam” for opening your hearts and sharing as much as you have over the years. Our family could have never imagined at that dinner at St Bridget’s for “Baby Julia” what the next 6 years – or life for that matter – would bring. We have never experienced anything close to what you have shared with us and we have learned so much from you. Thank you for that. We all knew this journal would have to end – never quite sure how or when – but you have done it with grace. Your words sound of a family that is finding peace with what must be the most difficult of experiences of life - the passing of a child. God Bless the 6 of you!
Armstrong Family <barmstrong6@cox.net>
Manchester, CT - Tuesday, March 13, 2007 4:15 PM CDT

Thank you for sharing from your heart. Thank you for sharing Jules. Her journey will continue in all of us whom she touched. I think of her quite often, more than you know.
Love, Lisa <ltjpost@yahoo.com>
- Thursday, March 8, 2007 10:22 PM CST

Dear Mr. Hallmark,

I am writing to you from heaven, and though it must appear,
A rather strange idea, I see everything from here,
I just popped in to visit, your stores to find a card,
A card of love for my parents, as this day for them is hard,
There must be some mistake I thought, every card you can imagine,
except I could not find a card, from a child that lives in heaven,
they are still a parent too, no matter where I reside,
I had to leave, they understand, but oh the tears they cried,
I thought that if I wrote to you, that you would come to know,
that though I live in heaven now, I still love my parents so,
they talk with me, and dreams with me, we still share laughter too,
memories are our way of speaking now, would you see what you can do?
my parents carry me in their heart, their tears they hide from sight,
they plants flowers in my garden, there my living memory dwells,
they writes to other grieving parents, trying to ease there pain as well,
so you see Mr. Hallmark, though I no longer live on earth,
I must find a way, to remind her of her wondrous worth,
they need to be honored, and be remembered too,
just as the children of the earth will do,
thank you Mr. Hallmark, I know you will do your best,
find a way to tell them, how much they mean to me,
until I can do it for myself, when she joins me in eternity.

I know Christmas must be so hard for you although I can't comprehend how difficult it must be.

All my love,

Viks

viks <viks@postpals.co.uk>
- Friday, December 22, 2006 10:36 AM CST

Hello Morans! Today while I was sitting at the computer I looked down the "favorites" list and checked in to see if you have been updating. I love to read what you are thinking and feeling. It makes me ponder my own life. The kids are growing. Kathryn is 19 and a junior in bio science at the u. Anna is a senior and only applied to college 11 days ago. She has already heard from Augsburg and has been accepted. She is waiting to hear from the U. I think Augsburg is a better fit but sometimes kids surprize us. I think she would like the smaller school. She is feeling guilty about the cost. However she did get a 7000 scholarship for good grades so it is only a 6000 differance. Who knows. We will cross that road when it comes time. Both of the girls have had jobs for quite some time. Kathryn works in the grant department at the U. Anna has been at Target. Karl is a sophmore. He loves school and sports and everything in life. He plays soccer year round. He has a yard that he takes care of year round and he also referees soccer and umps baseball. Today Rob and I have been married 22 years!!! We are going out to dinner at a lovely place in St. Paul tonight. Hope the holidays bring you joy and love. The LaFleurs.
Lori LaFleur <ruplafleur@comcast.net>
Saint Anthony, MN USA - Friday, December 22, 2006 9:08 AM CST

Missing you today. Visiting here makes me feel closer to you. Snuggles.
Lisa <ltjpost@yahoo.com>
- Monday, November 13, 2006 3:42 PM CST

www.caringbridge.org/al/cameron

I don't know why the link below didn't work...

Emily Martin <esmw72@yahoo.com>
Anniston, AL USA - Sunday, September 24, 2006 11:08 PM CDT

To the Morans... many prayers of peace and comfort on this difficult and precious day. One year is quite a long time and also quite a short time, depending on your perspective in the moment. I pray that today yours is one of gratitude for the blessing that was and is sweet Julia. Cameron and Julia were born the same year and would both have been 7 years old this year. I just marked the 5 year anniversary of Cameron's death and it seems to have come almost as quickly as that first year did. I loved what you wrote about breathing and getting through each day. That is all that can be expected. I thank God for this network of people that our children brought us into... and I thank God that I have the chance to tell you that you are loved and Julia is remembered.

Cameron's Page (I think it's such a wonderful coincidence that we have the same background on Cameron's and Julia's websites...)

Love in Him from Alabama...

Emily Martin <esmw72@yahoo.com>
Anniston, AL - Sunday, September 24, 2006 11:05 PM CDT

And so it is. One year. Through the tears and pain we move forward. We miss her. We cry. We think. We wish. We honor. We rationalize. We think. We remember. We smile. We miss her. We thank God she was here. We thank God we loved her. We thank God she touched us. We smile. We will see her again. We smile. We will never forget. We love you.
Lisa & Jeff Post <ltjpost@yahoo.com>
Trumbull, CT - Wednesday, September 20, 2006 10:58 PM CDT

I am thinking of you all today. My heart both aches and rejoices for you. I know you have heard all the platitiudes you will ever need but I have a plaque hanging on my wall and your words brought it to my mind.

~Courage
Doesn't always roar.

Sometimes courage is
the quiet voice at the end of the day
saying.

"I will try again tomorrow"~
Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com>
Boonsboro, md USA - Wednesday, September 20, 2006 9:02 AM CDT

Thank you so much for sharing. You are never far from our thoughts.
Armstrong Family <Barmstrong6@cox.net>
Manchester, CT 06040 - Tuesday, September 19, 2006 4:32 PM CDT

Thinking of you!
Kathy H.
T.O., CA - Monday, September 4, 2006 7:48 PM CDT

I pray you had a wonderful 7th Birthday with Jules celebrated with many 'Angel' moments from not so very far away. Your family remains in my thoughts and know you are always surrounded by those of us who love you even us who hve not had a chance to meet your wonderful family. Many Hugs and prayers, Erica www.caringbridge.org/wi/ericathiel
Erica Thiel <scheiecat@yahoo.com>
Beaver Dam, WI - Tuesday, June 13, 2006 4:53 PM CDT

Patty,
You have done such a wonderful job with this web-site, and I'm sorry to say that I haven't checked in for a while - I actually had to read your most recent entry and the two before it to catch up!! YOU are an amazing writer! I wonder if there's a book in your future. . .
I can tell you that you tug on my heart strings every time I read one of your entries. You have a way with words and an ability to tell a story that is both entertaining and inspiring!
I LOVE the fact that your family has such a fondness for tradition - it is, after all, a big part of what makes a family a family! Even with this beig true, it seems many families get a bit lazy about carrying out tradtions year after year after year!! I wish our family had more of those special things that we "always do" on a certain day . . . it seems the few we did have, have been discontinued or changed . . . because we've gotten lazy about carrying them out.
Your example reminds me of what a family should be . . . You've been through so much together both good and bad and you've stuck together through it all. YOU are an amazing bunch, and I can certainly see why God would have placed Julia with you for her 6 and a half years on Earth. She was blessed . . . and it seems while she was being blessed, she was also blessing all of you, and all of US!! How amzaing . . .that her life, as short and difficult as it was, has had such a positive effect on so many people!
The fact that you have shared Julia's Journey and so much of your family life with all of us in the St. Bridget Community and far beyond and told each of your stories with such honesty and love is inspirational. I do think you should consider putting your story into book form . . .
Take care,

Cathy St.Onge <cathy743@hotmail.com>
Manchester, , CT USA - Saturday, May 20, 2006 6:09 PM CDT

Happy Mother's Day Patti! I pray that you have many Angel moments today!
Love,
Jennifer & Allison
Jennifer Restemayer <jennmarie@bis.midco.net>
Bismarck, ND USA - Saturday, May 13, 2006 9:54 PM CDT

Patti - Julia continues to live through your words and inspiration. Thank you for sharing.
Armstrong Family <barmstrong6@cox.net>
Manchester, USA - Monday, May 1, 2006 12:51 AM CDT

Patti- thanks for the update. You should write a book someday about Julia and your family's experiences. You have a way with words. Happy Birthday to Julia!
Love, Nancy
Nancy Grasso <brett.grasso@sbcglobal.net>
East Hartford, CT USA - Friday, April 21, 2006 7:10 AM CDT

Miss Julia, Happy 7th birthday in Heaven! We can only imagine what a great celebration the Lord is having for you.
Miss you lots,

Johan <johanlavery@aol.com>
- Thursday, April 20, 2006 9:48 PM CDT

Happy Easter to a wonderful family! We will be thinking of Julia on her birthday.
Margaret, Mike, and Grace Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Saturday, April 15, 2006 3:32 PM CDT

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 15, 2006 2:38 PM CDT

Your writing is so eloquent. I came upon your site only after your Jules had departed her earthly shell, but have taken the time to read her story. And what a story to be heard! The most important factor I will take away is that she was LOVED. Your accolade to her is heartening. Your family seems to be moving forward, yet keeping Julia’s spirit alive. I will pray for your family as you continue your new “norm”. Have a blessed Easter season and beyond.
Deb Mathy <debmathy@new.rr.com>
Green Bay , WI - Friday, April 14, 2006 7:25 PM CDT

May the Peace of Easter be with you all as you journey along life's (and God's) road.
Tom & Gay Mertz (St. Bridget parish)
- Friday, April 14, 2006 7:20 PM CDT

Thinking of you this Easter.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Friday, April 14, 2006 4:13 PM CDT

Oh, Jules, doesn't your mom have a splendid way with words? No one can write like she can and I am hoping she continues to keep your webpage, but only she can decide that. Have a Happy Easter in heaven and know that I will do something very special in your honor next week on your birthday. I miss you so! Heavenly snuggles, Jules!
Love, Lisa <LMPOST@cox.net>
- Thursday, April 13, 2006 2:18 PM CDT

PRAYER BEARS WEBSITE

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, March 16, 2006 9:36 AM CST

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