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Thursday, May 18, 2006 12:58 AM CDT

The month of May is flying by and we've made it to all the activities so far. Claire and Maggie have made us very proud of their many accomplishment and awards. Claire was recognized for several academic achievements at Senior Recognition night. Maggie set the city record in the 100 meter dash (12.9 seconds). I've been thrilled to be here to witness all of it.

Not much has changed on my front. I'm no longer able to eat food by mouth because the tumor presses on the stomach and obstructs the passage to the intestines. I miss food and do get hungry, but overcome that with hard candy, sips of water, or chew and spit it out. I know, that's kinda gross, but gotta get my taste pleasures somehow!

The tube feedings are going well and we are thankful for them.

Looking forward to this weekend when we will have Claire's graduation open house. It will be fun to celebrate her achievements.

Keep my father in your thoughts and prayers as he is currently in the hospital due to small strokes.

Thanks for all your support--it gives us strength.
Love,
Theresa and family


Monday, May 1, 2006 11:17 AM CDT

Happy May Day!

It's busy season around here with graduation, track meets, recognition nights, weddings, etc.

I've been feeling OK. The feeding tube has helped me get some very crucial calories. It appears that I'm not getting much food through my stent, thus I depdend on the feedings for nutrition. I don't eat much by mouth any more.

My goal is to have the energy to attend every one of the girl's events this month, as well as some other social events on the calendar.

Thanks for thinking of me and our family. Your prayers for courage, strength, and faith are quite helpful.
Love,
Theresa


Wednesday, April 19, 2006 2:07 PM CDT

Hi. It's been a while. It's different "this time" around to write in here, but you all are so good at checking, I'll return the favor and communicate, too.

On March 27, I got a feeling tube on the advice of my oncologist. He said my cancer is a slow growing and I was not getting enough nutrition, thus weight loss, energy loss, etc. Getting the feeding tube was not a pleasant experience, at all!

But now it's working and I'm getting about 1200 calories during the night. It has helped my energy--I'm not gaining weight but at least I'm not losing. I still eat some soft foods by mouth. It's getting easier to watch everyone else enjoy "real" food while I eat jello!

I get "out and about" and take daily naps. The kids are busy and we are excited about Claire's high school graduation and Maggie's eighth grade graduation. Both are having a lot of fun at track and we have enjoyed the track meets.

Thanks for caring and enjoy the colors and smells of spring. What a great time of year!
Love,
Theresa


Tuesday, March 14, 2006 6:26 PM CST

Early Happy St. Patrick's Day!

Things are stable around here as of today. As you know "things" can change, but we like the stability.

Maggie is busy with soccer and looking forward to track season starting. Claire has already started track and had one indoor meet. She only has 40 some days left of school and is very ready to move on from high school!

Kirk is having surgery on his knee on March 20. A little arthoscopic (is that right for spelling, oh well) to fix some very nagging issues. Now I get to bug him about taking care of himself--it will be fun! He's looking forward to walking without pain and we are hopeful that will be the result.

Continued thanks for you prayers and concerns. We're hanging in there and taking it one day at a time.

Love,
Theresa, Kirk, and girls


Monday, February 20, 2006 9:22 PM CST

I've attempted to add a new journal twice and been kicked off due to my weak wireless connection. So, I now have Kirk's computer to save the day...or at least update this very dated journal.

Things are stable around here. I've been doing OK, keeping food in place and getting out and about nearly every day. This isn't an easy place to be, but I have some projects that keep me distracted and interested. Plus all of you have been in communication and that makes a huge difference.

Claire and Maggie are busy with activities and school, which is just how it should be. Kirk is traveling as necessary with work; once again Pelco is very understanding of our needs.

Looking forward to spring weather or at least warmer temps so we can get outside more. Thanks for staying in touch; we appreciate all the care, concern, and love.

Love,
Theresa and gang


Monday, January 23, 2006 8:49 AM CST

Looks like it's time for a new journal entry. Time flies when you are having fun...they say.

My health has been rather stable. I'm learning what foods stay put and what meds help them stay put. Mostly, I'm eating soft foods because my stent doesn't like solid foods.

Last week I had a massage and look forward to another one next week. Massage should be required for everyone at least once a week!

Last week Kirk was in California at his sales meeting and my sister, Ardith, was here on duty. (Kirk got an award for customer service, yeah-rah!) Ardith can work remotely thanks to the accommodations from her employer, Qwest. We had a good time and made great progress on Claire's graduation scrap book.

We appreciate all the help from friends, neighbors, and family. Keep praying for a shrinking, disappearing tumor, strength and a big appetite.

Love,
Kirk and Theresa


Wednesday, January 11, 2006 3:45 PM CST

So, you think it's time for new information, huh?

OK. Since we last "talked", we have been to an oncologist here in "See The Rabbits." He didn't have a magic wand, darn it. Suggested pain patches to control pain and well, like dude...no pain and higher than a kite. WooHOO! Therefore it is back to Darvacet which I'm tolerating just fine--given the alternatives.

Day to day is always an adventure. I'm not sure what foods will set off a call to the Porcelain Goddess, but we are getting a better idea all of the time. Maggie said I should eat broccoli flowerettes because they prevent cancer. They upset my digestive tract right now, too!

I'm still involved in some volunteer activities which is good for my brain and interaction. Lots of visitors are stopping by which is also a welcome diversion.

Many ask what they can do for us. Some real tough talks with God will be OK. Otherwise, we are getting along pretty well, the kids are busy and that keeps us busy. But here's what you can do for me: Quit putting off that one thing you have wanted to do but couldn't/wouldn't find the time, money, companion, etc. to do it. I don't care if it's a big deal or a small deal, just quit putting off the really meaningful moments in your life because of work. It's overrated.

Become a registered organ and tissue donor. Fight for rare cancer cures, too.

Cheers,
Theresa


Sunday, January 1, 2006 6:09 PM CST

Happy New Year to all!

It's always a celebration around here with Maggie and Claire's birthdays on the 30 and 31, respectively. We had a great time and enjoyed friends and family.

I'm maintaining my health at this point. Fatigue and lack of appetite are issues I deal with the most. Stomach discomfort is challenge. With lots of small meals and contant grazing (it's a cow's life) I'm getting some calories in.

We are checking out some options for possible treatments and also working on just using a lot of positive thinking to will this tumor away. It's happened before, why not now; why not me?

We appreciate your prayers, meditations, rain dances, karma rockets...any Divine interventions are welcome.
Cheers,
TA


Sunday, January 1, 2006 6:09 PM CST

Happy New Year to all!

It's always a celebration around here with Maggie and Claire's birthdays on the 30 and 31, respectively. We had a great time and enjoyed friends and family.

I'm maintaining my health at this point. Fatigue and lack of appetite are issues I deal with the most. Stomach discomfort is challenge. With lots of small meals and contant grazing (it's a cow's life) I'm getting some calories in.

We are checking out some options for possible treatments and also working on just using a lot of positive thinking to will this tumor away. It's happened before, why not now; why not me?

We appreciate your prayers, meditations, rain dances, karma rockets...any Divine interventions are welcome.
Cheers,
TA


Friday, December 23, 2005 10:45 AM CST

Every day this week has been a better day. More food, more energy, and more hope.

I'm feeling pretty good and getting out for walks and I just might take off on a run here any day. Well, if you are technical in what "run" means, then I'll probably go on a "slog" which is a slow jog. There are some snow shoes in the garage calling my name and snow that need "shoed" before it melts.

We are ready for Christmas and looking forward to it with lots of happy plans. Miracles do happen. We are blessed with an incredible support system.

Believe.

Love,
TA



Monday, December 19, 2005 6:13 PM CST

Dear Family and Friends,
As many of you know, last week we learned that I have a recurrance of the cholangiocarcinoma. This time it is in my abdomen. Right now there is a mass on my stomach. According to the Mayo team, this cancer is unresponsive to chemotherapy and surgery would just be a game of "chase." We would never stop chasing it because it will spread.

A stent was placed in my stomach to that food would pass (the tumor was blocking the passage to the intestines). So slowly, I'm eating more food and thinking about having a big, huge appetite!

And now we focus on what matters most. Kirk, Claire, and Maggie and their needs. Me, getting stronger so I have great days. I'd like to go skiing one more time.

We are coping and dealing with the seriousness of all of this, but yet, finding lots to be very happy about. I couldn't be blessed with a better husband and kids, family and friends.

Stay in touch--we'll see what the next several month bring.
Love,
Theresa


Tuesday, December 7, 2004 11:14 AM CST

….And they lived happily ever after.

What a year 2004 has been for us—and all of you who took the journey with us!

Now it’s time to move on. I’m getting stronger and sassier all the time. (That sassier part is a new kinder, gentler sassy!) Kirk’s worry “barometer” is gradually lowering, along with his cholesterol. Claire and Maggie have grown up a lot, but are getting back to being kids whose parents are home and healthy.

The four month check-up was a very anxious time for me. The reality of naughty cells dividing and invading was very present in my mind. Thankfully, the tests went and, for the most part, happy face cells were present and thriving! Happy face cells are now the only ones allowed in my body and mind.

My new, improved liver is working beautifully and I don’t have any loss of kidney function. (Kidney function loss often occurs due to the anti-rejection meds and steroids.) I have to return to Mayo for a CT scan in four months to check out some tiny, itty-bitty “thing” that appeared on my lung. Dr. Gores was not worried; he just wants to watch it and recheck it.

We have a profound appreciation for the courage of organ donor families. What an extraordinary gift at a most difficult time. Please discuss organ donation with your family and friends.

Family. WOW! The Schatzles and Andersons, (parents, siblings, in-laws, outlaws, cousins, etc.) were tremendous help and support. When that Anderson crisis line kicks in, it rivals the MDA telethon! Kid care, home chores, live donor testing, surgery support team, and help I don’t even know about. The miles they racked up via car or plane were amazing. Travel to exotic Cedar Rapids and Rochester, MN!

Our friends, near and far. Amazing! Jean Wenisch and Robyn Ramos took leadership with fundraising on our behalf. Patti Sorsby and Mary Krivit were the meal czars. Diana Patten, Tina Munn, Becky Baskerville and all the other kid supervisors. Judy Henderson, who took a week off from work to stay with me in Rochester during radiation and spent a couple of nights with the kids. Teachers who watched out for the girls at school. Everyone who played taxi, cleaned the house, baked goodies, prepared care packages...the list goes on and on and on. Love ya!

My Rotary club, Rotary West…is best. And other local Rotary clubs joined in to demonstrate that Rotary motto: “Service above self.” I appreciate you.

Pelco people…your kindness and generosity is above and beyond. World wide. Paul Klutz, Kirk’s boss (now former boss, but great friend), encouraged Kirk to take care of family first. When I was worrying that Kirk was spending too much time on my matters, Paul kindly said, “You let me worry about Kirk’s job and travel.” Okey-dokey, Paul!

Contributors to the transplant assistance fund: Your support lifted a big worry for Kirk and me and provided a lesson in generosity for our kids. What an incredible resource.

Caringbridge website has been a phenomenal communication tool for us. This is not a Mayo site—it is available to anyone going through long-term medical crisis.

Tangible and intangible, the help you have given us has touched us, changed us. Thank you.

We believe in miracles.
We believe in the power of prayer, good thoughts, and karma rockets—from all corners of the globe, from all faiths.
We have witnessed all that is good in humankind.
And we know who’s the mastermind—God (or insert the Divine Power of your choice).
We thank God for all the blessings we have received this year.

We are ready to move on and…live happily ever after.

Love,
Theresa, Kirk, Claire and Maggie


Thursday, December 2, 2004 10:35 AM CST

Home again, Home again. Dorothy was right when she clicked those ruby red slippers and said, "There's no place like home..."

The nurse, dietician and doctor consults were fine. I had to repeat the ultrasound so they could reach a conclusion about my spleen. One radiologist thought he saw "something" from the CT scan, but that same "something" didn't show on the ultrasound. Two other (obviously better!) radiologists and my doctor agreed that the first guy didn't know what he was talking about! OK, that's not what they said, but...

The important things like my liver and kidney function are excellent. All of my restrictions (lifting, activity, vacuuming, etc.) are lifted. And I had the time to purchase some gorgeous fabric from this one-of-a-kind fabric store.

Dr. Gregory Gores, the Mayo expert in cholangiocarcinoma, is truly one fine physician and he acts human, too! Writes with fountain pens only, but says he isn't creative. WHAT? He is the mastermind behind the protocol for treating cholangiocarcinoma with transplants--which isn't done anywhere else in the US--and he says he's not creative! People in music and art don't have a corner on creativity. Just cuz you can hang it on the wall or listen to it on music box, doesn't mean it's creative. I think my liver transplant was pretty creative--life saving creativity. I'll take that kind any day.

Check back here in a few days for the final posting. Gotta collect the thoughts and energy. In the meantime, celebrate the little things!

Love,
Theresa


Tuesday, November 30, 2004 9:06 PM CST

Day 2 of tests for the four month check up.

Renal (kidney) function and CT scan. Lots more needles today. When will modern medicine figure out how to do all of this without NEEDLES?

Tomorrow is consults with nurses, dieticians, doctors who will share the test results. Then we go home and get to figure out "what's next."

We'll share the results and then this journal will close.
Movin' on.

Thanks for all the support.

Love,
Theresa


Monday, November 29, 2004 8:49 PM CST

The four month check-up testing today was...special!

I'd forgotten the smells, sounds, and routines. All techs ask you to spell your name and state your birthdate. For good reason, I'd just forgotten that routine. The hand soap has a unique smell as well as the exam areas. It smells like a...medical clinic! Just hadn't smelled that Mayo smell for a few months.

Tests today included Blood test, Chest X-ray, electrocardiogram, ultrasound, bone density, social worker consult, and a visit with a dermatologist. No big deal, except for the dermatologist, who likes to inflict pain! She burned my warts which she believes are a result of immunosuppression. It was interesting to hear her tell me that the "old wives" tales about wart removal are bunk, BUT, the duct tape theory (cover warts with duct tape) works. Okey-dokey.

My special moment was when I attempted to use the mens restroom. It was in use--Thank God! But the gentleman in the wheelchair near the restrooms got a good chuckle. Then, after using the female restroom and collecting my urine sample (I know, too much info), I didn't even put the sample in the bag correctly. I sealed the part where the sample bottle was to go. Oh, what the heck. I dropped it into the appropriate "urine sample drop box" and figured the lab could just figure it all out.

Tomorrow is a kidney funtion test and CT scan.
Wednesday we meet with the nurse, dietician and doctor. That's when we will learn the results.

Have a great week.
Love,
Theresa and Kirk


Sunday, November 28, 2004 12:45 AM CST

Today is the official 4 month anniversary of my transplant. My how time flies.

We are on our way to Rochester for my four month visit to the Mayo Spa and Retreat. Oh, wait, I'm getting confused. This is the four month post transplant boot camp.

Just keep us in your thoughts and prayers that all test results are happy and positive.

We'll keep you posted. And then wrap up our journal here on the Caringbridge site.

Take care and have a good week.
Love,
Theresa and Kirk


Wednesday, November 24, 2004 10:19 AM CST

Happy Thanksgiving to all! It's 17 weeks post transplant.

Maggie’s Thanksgiving message:
I’m glad they didn’t put a turkey liver in my mom! I’m glad that we can spend Thanksgiving as a healthy family. My big sister was the most helpful to me when I was sad this year. Thanks to everybody who brought food because it was a lot better than what my mom or dad would cook!
--Maggie

Theresa’s message:
I’m also glad they didn’t put a turkey liver in me! What a year it has been for all of us. I’m so lucky to have a husband who was there every needle stick of the way. Claire and Maggie are the world’s best daughters and I’m thankful for their strength, humor, and love. (Yes, you two, love me! It’s the chores you don’t like!)

I’m thankful for family, friends, Pelco people, moral support, prayers, karma rockets, candles lit on our behalf, cards, emails, Mayo team, Dr. Kresnicka, Dr. Mo, my liver donor and her family and blood donors (I received 4 units).

Here’s hoping all of you have a great thanksgiving and use this opportunity to say a prayer for my donor family. Also, please have discussions with your family about organ donation. I love you all! We have incredible family and friends. THANK YOU! Theresa

Claire’s message
This Thanksgiving season will have more meaning this season than any other because now I know what it is truly like to be thankful. I would like to give thanks to all of you who helped us through this big change in our family. It was wonderful to receive so many hopeful cards, letters, and telephone calls. I know it all helped me to look past the bad and see the good in everything that happened. I saw how caring and compassionate people can become when others are in need, and I also found the good that came out of my mom’s illness. We are now closer than we have ever been and it’s opened my eyes to the miraculous events that can overtake our lives. Thanks to everyone who helped keep my sister and I on track while my parents were away. I know it could get a bit tough at times, but my sister and I appreciate it more than you will ever know. I would especially like to thank my mother’s donor and her family. Our family is blessed with an extraordinary group of family, friends, and doctors! THANKS EVERYONE! Claire

Kirk’s message
I couldn’t add anything more than Maggie, Claire and Theresa have already said. (Aren’t they AWESOME!!!) The support has been there since day one from an incredible group of family, friends and co-workers. Your support has meant soooo much to us, you’ll never know how much.

We continue to count our blessings every day and hope you can remember to keep Theresa’s donor and family in your thoughts.


Tuesday, November 16, 2004 9:18 AM CST


Post transplant life has been good so far and planning on it staying that way. I have not had any major medical complications. In two weeks, Kirk and I will go to Rochester for my 4 month check up. My how time flies--when you're having fun!

Have we told you how much we appreciate everyone's encouragement, prayers, thoughts, meditations, karma rockets, etc? THANK YOU!

The care and encouragement of family, friends, and beyond has made the journey of 2004 bearable. We now will never underestimate the value of kind words and thoughtful gestures of help.

THANK YOU!
We truly have been blessed.
THANK YOU!

Love,
Theresa, Kirk, Claire, and Maggie


Wednesday, November 10, 2004 9:35 AM CST


Today we celebrate 15 weeks post transplant and feel super lucky because my healing is happening without complications.
Wow!

The other day someone said to me, "What a difference a year makes!" Ain't that the truth. But, ya wanna know what the biggest difference is? The decision of one family to donate a loved one's organs on July 28.

Never underestimate the power of just one decision--big or small--it makes a difference beyond your wildest imagination.

I am eternally grateful for these strangers' decision.

Life IS good.

Love,
Theresa


Thursday, November 4, 2004 2:36 PM CST


Happy 56th Anniversary, Mom and Dad Anderson!
Whew, that's a lot of years of bliss! Their luckiest day was January 24, 1958, when their seventh child was born (me, of course!) and their happiest day was July 28, 2004. (Only a few of my siblings read this, so I can make all kinds of claims!)

It's now 14 weeks post transplant and I'm doing well. Kirk is doing well, too, as long as I remember my medicine. It's just a new discipline and it gets easier all the time, but I have missed a dose here and there. The anti-rejection medicine has to be taken 12 hours apart, so if I completely forget a dose (vs. take it several minutes late)...well, it's just not a good thing and makes Kirk really nervous. (He doesn't need any more "nervous.") Thank goodness for watches with alarms.

Election selection
The media outlets in Iowa are laughing all the way to the bank with the revenue from this recent election! Do people/voters really believe the sound bites in these horrendous commercials? Are we really that gullible? It's now back to trucks, fertilizer, and fast food for the advertising entertainment. The fun never ends here in Utopia.

Supposedly as a result of Bush's re-election, the stock market was up yesterday. OK, President Bush, now that you don't have to campaign anymore, why don't you loosen up on the stem cell research and solve this Iraq issue. But, most of all, will you please base your future decisions on fact? Ok, I got that out of my system. (It's not good for my liver to harbor tension, so venting or ranting on "paper" is healthy!)

Claire got extra credit in her US History class for helping with campaign activities. She and her friends canvassed some neighborhoods twice. It was fun to watch her form opinions and get involved. Josh Hartnett ("Mom, I've had a crush on him since 6th grade!") visited her history class one day--but she missed that due to a previously planned college exploration trip. Oh, the sacrifice.

This Journal:
I will be at Mayoville the week of November 29th for my FOUR MONTH (can you believe how time flies?) checkup. Three days of rigorous tests. We believe the results will be all positive and good. Stayed tuned that week for regular updates.

After that, it will be time to move on from this Caring Bridge journal. What a great tool this has been to stay in touch and share information to a lot of people. After December 15, 2004, (one year from my first visit to a doctor to solve what I had diagonosed as a stomach virus!) there will be no more entries to my Caring Bridge site.

You have been very instrumental in my healing and inspiration for my whole family. Thanks for sharing the journey.

Stop and smell the roses today! (I know, I know. My originality is stunning.)
Love,
Theresa



Wednesday, October 27, 2004 8:43 AM CDT

Thirteen weeks post transplant and the medicines keep reducing. YESSS!

Prednisone was reduced to 2.5 mg this week and it will go away in a month. I don't notice major side effects from this steriod, but the sooner it's out of my system, the better for my long-term health.

This whole transplant/cancer experience has affected every aspect of my life and there are moments when it's a little overwhelming. When I read articles about people who need transplants and take desperate measures to get them, I understand how they feel--emotionally and physically. And as I read those stories, I still wonder why I was blessed with a new liver so quickly. ("Quickly" in the transplant world where most people wait a year or more for a deceased donor organ.)

With the number of people who die every day in this country, there could be enough organs for all of those in need. While the death of a loved one is very tramatic, when it is an option, what better legacy of one person's life can be left than giving the "gift of life" to several people whose life depends on that donation. That's not even considering the "trickle down" effect of bringing new hope and relief to the recipient's family and friends. I'm of the opinion that donated tissue and organs will do more good and bring about more good will than any amount of money in their estate.

So what's the hold up? Where's the gap? Is it lack of knowledge about organ and tissue donation? Fear of the unknown? As a reader of this page, you now know it's value. (Or am I being a little presumptuous!?)

Is this what I'm supposed to do next--carry the banner for organ and tissue donation? Maybe it's your banner to carry. We have a lot of work ahead of us, huh?

Get started. Tell your family your wishes. Go donate a pint of blood today.

God bless my organ donor and her family. My hope is they have found peace in knowing that the spirit of their loved one has made a huge difference in my life--and I would imagine in many other lives, too.

Smile, it's a good day.
Love,
Theresa


Friday, October 22, 2004 10:30 AM CDT

Greetings to all!

Well, this flu shot deal is a kick in the pants, huh? I will get my shot at Mayo Clinic, but Kirk and the girls need to find a vaccine locally and that's proving to be a challenge. (I think Maggie is secretly happy that she hasn't had to endure the shot yet!) Since I am considered high risk, my family needs to get the vaccine.

So, in the meantime, we wash our hands frequently (using that hand sanitizer). I've used more antiseptic supplies in the last 3 months than I have my entire life! "Hi, my name is Theresa and I'm a germ freak." It's not to the level of obsessive, compulsiveness, but there's a lot of flu season to get through. Watch out!

Kirk and I suggested to Claire and Maggie that we home school them so they are not exposed to all those germy kids. For some unknown reason, they were not thrilled about that concept at all. Go figure.

It's pumpkin carving time here. Tomorrow we go to the pumpkin patch to get "real" pumpkins; the ones you get at the grocery store aren't "real." You learn something new everyday.

In case you are wondering what we are handing out on Halloween night--small bottles of hand sanitizer! Really!


Stay well. Live strong. Keep your germs to yourself.
Love,
Theresa


Tuesday, October 19, 2004 7:25 AM CDT

Greetings from Kiowa Trace, Cedar Rapids, IA.

It's 12 weeks post-transplant and in the words of Sonny and Cher, "...the beat goes on..." (Dates me, huh?)

Claire and I went to a lecture last night by Leonard Pitts, a syndicated columnist with the Miami Herald. I've always enjoyed his newspaper columns and he was even better in person. He's smart, reasonable, thoughtful, and thought-provoking.

The title of his presentation was "One Nation." His belief, backed up by data, is, we are more alike in our beliefs on major issues than we are different. Mr. Pitts believes the news we get fed represent a minority and polorized sector of our population and the majority view isn't reported because we are "sensible, responsible, and, well...boring." When I grow up, I want to be like him.

Thanks to Coe College for hosting him, The Gazette newspaper for sponsoring, and Patti Walsh and Diana Patten for getting us tickets to this sold out program!

It's nice for me to get out and about, but I'm always concerned that someone near me is carrying a potent, contagious virus! So, when you are contagious, please keep it to yourself! Wash your hands regularly. This message brought to you by your local transplant/immunosuppressed friends.

We are One Nation. Thank you, Leonard Pitts.
Love,
Theresa


Friday, October 15, 2004 8:35 AM CDT

Hello Friends and Family,

All is well on the post-transplant front. I know, all things in due time, yet I can't wait to get rid of the prednisone. Who needs that in their bloodstream? Oh, that's right, lots of athletes do!

CaringBridge is a superb service.
This web page that we have enjoyed is provided by CaringBridge. It is not a Mayo Clinic sponsored service; it was created by some other hospital in Minnesota and is free and avaliable to anyone. Therefore, if you or someone you know would benefit from this, pass it on. Click on "home" for more information. CaringBridge survives with some corporate sponsorship and individual donations.

Realization
It wasn't until this week that I realized how it feels to want someone to receive a transplant. A friend and member of my Rotary club is in need of a liver transplant. His name is Morris Greenfield; everyone calls him "Greenie." He has a much different diagnosis than I had, but is getting care from Mayo Clinic, too.

Greenie is not listed (as of this writing), but his health is declining rapidly. Please consider adding him to your prayer list--for his health to stabilize so that he can get listed.

I think I'm just beginning to understand what all of you were feeling while I was waiting for my transplant. Part of me wants to get on the phone, call the Liver Transplant department and tell them to get with it! Give Greenie the next liver that will work. I feel desperate for him, sad, worried, concerned and there isn't a lot I can do--except encourage, care, pray, send karma rockets...whatever will make his miracle happen. Is this how you all felt?

Greenie is a great person and very worthy of a new organ. The reason his liver is failing is not certain--he's had lots of tests. I'm keeping high hopes he'll get a transplant soon. Now I know what it's like on the other side of the fence and I'm not convinced it's easier over here.

Elections
President Bush is in town again today. Kerry and Edwards have been in the state a lot as well. It really puzzles me that a low population state like Iowa could really be one of the critical swing states. Won't it be interesting when the election results are in and it's some state they ignored that swings the vote! And furthermore, are these four men really the best that we can find in America to lead us? I dunno....

Life is interesting--not fair--but, interesting.

Have a beautiful weekend.
Love,
Theresa


Wednesday, October 13, 2004 9:01 AM CDT

11 Weeks since the "Big Day."

Here's what I can do now, that I couldn't then:
- Walk 30 minutes without resting. Woohoo!
- Eat well (no raw fish--who cares?)
- Smell spicy, aromatic foods and not feel nauseated.
- Drive.
- The only medical intervention is the blood tests every Monday.

So what do I do with my days? Whatever I want to! I'm not bored. There are books to read, yarn to knit, fabric to "fabricate", friends to reconnect with, oh yeah, and dust bunnies.

What will I do when I get the full "go ahead and live life full steam ahead" release from my Mayo team? Don't know yet--probably a little more of the same as above. I have learned that life is short and playing hard is of value.

Maybe I'll create the solution for world peace or cure cancer or pen the next best seller. You'll be the first to know.

Have an awesome day.
Love,
Theresa

P.S. Lessons learned: I shoulda known--that little ditty in Monday's journal is not from Carlin. It's one of those email legends that get passed around. From now on, it's only original prose.


Monday, October 11, 2004 9:36 AM CDT

Are the trees gorgeous where you live? It's so colorful right now here in Iowa--hope there's lots of color in your world, too.

Post transplant life is going well. Weekly blood tests, daily meds, and some tugging in the incision are the primary reminders that life is a bit different. Oh, yea, let's not forget the hand-sanitizer found in every room here! Claire thinks I've turned her into a germ freak! Could be worse, I tell her.

I'm taking the lazy route today with this journal. Kirk emailed the following message and I thought y'all might enjoy it. Some of us have had to learn this stuff the hard way; I'm hoping to spare you the hard lessons!

Since it's one of those emailed things, one can't really be sure it came from George Carlin, but nevertheless, it's great prose. Have a great week!
Love,
Theresa

Wonderful Message by George Carlin whose wife died recently:

The paradox of our time in history is that we have taller buildings but shorter
tempers, wider freeways, but narrower viewpoints. We spend more, but have less,
we buy more, but enjoy less. We have bigger houses and smaller families, more
conveniences, but less time. We have more degrees but less sense, more
knowledge, but less judgment, more experts, yet more problems, more medicine,
but less wellness.

We drink too much, smoke too much, spend too recklessly, laugh too little,
drive too fast, get too angry, stay up too late, get up too tired, read too
little, watch TV too much, and pray too seldom. We have multiplied our
possessions, but reduced our values. We talk too much, love too seldom, and
hate too often.

We've learned how to make a living, but not a life. We've added years to life
not life to years. We've been all the way to the moon and back, but have
trouble crossing the street to meet a new neighbor. We conquered outer space
but not inner space. We've done larger things, but not better things.

We've cleaned up the air, but polluted the soul. We've conquered the atom, but
not our prejudice. We write more, but learn less. We plan more, but accomplish
less. We've learned to rush, but not to wait. We build more computers to hold
more information, to produce more copies than ever, but we communicate less and
less.

These are the times of fast foods and slow digestion, big men and small
character, steep profits and shallow relationships. These are the days of two
incomes but more divorce, fancier houses, but broken homes. These are days of
quick trips, disposable diapers, throwaway morality, one night stands,
overweight bodies, and pills that do everything from cheer, to quiet, to kill.
It is a time when there is much in the showroom window and nothing in the
stockroom. A time when technology can bring this letter to you, and a time when
you can choose either to share this insight, or to just hit delete.

Remember, spend some time with your loved ones, because they are not going to
be around forever.

Remember, say a kind word to someone who looks up to you in awe, because that
little person soon will grow up and leave your side.

Remember, to give a warm hug to the one next to you, because that is the only
treasure you can give with your heart and it doesn't cost a cent.

Remember, to say, "I love you" to your partner and your loved ones, but most of
all mean it. A kiss and an embrace will mend hurt when it comes from deep
inside of you.

Remember to hold hands and cherish the moment for someday that person will not
be there any more.

Give time to love, give time to speak, and give time to share the precious
thoughts in your mind.

AND ALWAYS REMEMBER: Life is not measured by the number of breaths we take,
but by the moments that take our breath away.

George Carlin


Wednesday, October 6, 2004 9:55 AM CDT

It's a good sign when I have to look at the calendar and count the weeks it's been since the transplant.

TEN WEEKS AND (really, truly) COUNTING!

Today's item of business is GERM WARFARE.

The weapon of mass destruction we all will face this winter is the flu bug. It will be a critical year to develop the habit of washing your hands frequently, because most germs are spread by hand-to-hand contact. Since there is going to be a major shortage of flu vaccines available, we all need to increase our efforts to reduce the spread of germs and bacteria.

I'm particularly interested in this cause since my body is immuno-suppressed due to the antirejection drugs, which are imperitive for my survival. (Kinda heavy when you think of it that way, huh?)

Here's what the infection control experts (freaks!) at Mayo Clinic told us and told us and told us....
1. Wash your hands often. Use SOAP! It takes 60 seconds to get the germs off.
2. Hand sanitizers are very effective for killing germs. Use them.
3. Don't mingle with people who have colds or flu.
4. Wash your hands often.
5. Have hand sanitizer available for people who visit your house.
5. Stay out of crowds during peak cold and flu season.
6. Please wash your hands after using the toilet. PLEASE!
7. Don't touch your eyes and nose with your hands. Use a tissue or cloth. Your hands have germs.
8. Sanitize your keyboard and other surfaces touched by your germy co-workers, friends, or family.
9. Wash your hands often.
10. Use soap or hand sanitizer to rid your hands of germs.
11. You aren't required to shake hands as a means of greeting people.

Let's show these germs who's boss! Or at least, don't give your germs to me or my family, OK? You may think I'm a little over the top with this rant, but, you didn't get to watch the video with the little blue bacteria crawling on the lady's face after she scratched her nose. It was a mind-altering event for me!

Happy Hand-washing! Invest in hand sanitizer stock--it's going to skyrocket this winter. (along with your heating bill...)

Cheers,
Theresa

P.S. Have you seen the movie, Napoleon Dynamite? I thought it was pretty funny; your opinion my vary. But we all have known a Napoleon Dynamite. "Lucky."


Monday, October 4, 2004 9:36 AM CDT

Hello, readers! Happy Monday.

Today we celebrate the elimination of Cellcept, one anti-rejection drug I no longer have to injest. The "big purple pill" (not the little purple pill advertised on TV) is history and no longer appears in my pill caddy. YESSSSSS!

What's left in the medicine cabinet is Prograf and prednisone for anti-rejection, aciphex for acid reflux prevention (wanna keep the digestive system calm during this healing time), Bactrim for antibiotic, and a multivitamin. After my four month check-up, the only one left will be Prograf.

I think that's pretty darn good. During the pre-transplant phase, we were told many times to prepare ourselves for the "handful" of pills I would take every day. No one mentioned that the handful would/could be reduced, so I'm ecstatic about one medicine.

Perhaps in the near future, the researchers will find out how to tame the antibodies which attack foreign/transplanted organs. Maybe tolerance will happen--where the body accepts the organ without antirejection meds. I'm hopeful!

Have a peachy week!
Love,
Theresa


Wednesday, September 29, 2004 9:29 AM CDT

Today is 9 weeks post-transplant. It's a bright, sunny day.

As I walked two laps around the neighborhood this morning, I was reflecting on...a lot of things. Just one month ago, I didn't have the strength to walk two laps. Two months ago, I wouldn't have walked very far without someone with me because I didn't feel steady enough. Before the transplant, I didn't have the energy to even consider walking daily. The body is an amazing machine and our ability to recover from major trauma is truly astounding.

Yesterday, two months post-T, I was to eliminate one anti-rejection drug (cellcept), but, the nurse said I should finish out the prescription. Dang. It's only 5 more days worth, so that's not a major deal, yet, if I don't need the meds, I don't want the meds. It's not really the drugs--it's the short- and long-term side effects that are scarey. The reduction of drugs in my system is a positive, welcome event.

It's a gorgeous fall day here in CR. Crisp, calm, fresh air in clear blue skies bordered with a horizon decorated with trees showing highlights of yellow and gold. The cooler temperature is welcome, so my sun-sensitive skin can be comfortably covered with long sleeves/pants.

Take time to enjoy the day--you are worth it.

Love,
Theresa


Friday, September 24, 2004 10:17 AM CDT

It's somewhere around 55+ days since the transplant.
Wonders never cease!

I've had a reader (yes, you, Chanda) request for more "fun" transplant details:

Out of curiosity, I measured my incisions the other day--the incision that was held together with 48 staples! The transplant incision is about 15 total inches, in the design of a Mercedes symbol. Isn't that special? Some people think that's a lot of incision. Perhaps. Where would I be without it?

The "leftover" incision from the January exploratory surgery is about another 4 inches straight down the midline and around the belly button. It's quite the road map I'm sporting! I like to think of these marks as my life line.

So there, can you beat that?! Fortunately, bikinis never were a part of my swim/beach attire. Now, sun exposure is not healthy for me (or any of you out there!) because the anti-rejection makes the skin more prone to melanoma. I certainly don't need that!

None of this will stop me from snow skiing, however! Or a lot of other things I have yet to dream up.

It's been a great week. Thanks for all your continued support, prayers, thoughts, meditations, jokes, etc.
Healing is happening.

Love,
Theresa




Wednesday, September 22, 2004 9:21 AM CDT

Eight weeks since the transplant!

God bless my organ donor and her family.

Please have a conversation with your family about organ donation. What a gift it is.

Love,
Theresa


Monday, September 20, 2004 9:07 AM CDT

On Wednesday, it will be 8 weeks POST-transplant. (Just in case there is anyone else out there who doesn't know what POST-transplant means, I had a liver transplant 8 weeks ago! Post equals AFTER...) Saw a friend yesterday, and she wasn't sure what "post" meant---she really is a bright person.

The routine stays the same for now. Blood tests on Monday, take and record meds, blood pressure and temperature twice a day. I walk every day and stay busy with chores, reading, etc. and homework (see below).

It's weird...this week will be five weeks since I have been to a doctor. That's the longest I have lasted without MD intervention since December last year. WOO-HOO! I will return to Mayo for tests four-months after transplant--around Thanksgiving.

Claire and Maggie have settled into the schoool routine well. Both are in homework overload--whoever says that the kids and/or schools today are slacking, doesn't have kids in these schools. Somedays it's a little insane.

Claire is enjoying marching band with the first competition this coming weekend. Maggie has school and club soccer and seems to like the activity level. She's lots happier with a lot of exercise!

Kirk is slowly getting back to his work routine. Being the worry-wart that Kirk is, he doesn't like to be gone too long and keeps a close on my compliance with meds, etc. I'm working hard to really enjoy and appreciate that watchful eye of his! The good news is, his blood pressure is going down and the chest pains are subsiding. Do ya think he had a little stress this year?

It's another beautiful day in the neighborhood. Cheers!
Love,
Theresa


Thursday, September 16, 2004 8:27 AM CDT

Hello readers!

It's really good to be getting well. Strength is improving little by little. As I shared with my nurse coordinator, I'm learning the art of "pacing." No, not the walking back and forth in one area kind of pacing. This is finding the right pace at which to live each day without being completely exhausted or causing pain.

For example, roofing my house would not be a good pace right now. (When my brother was going through the live donor testing, one doctor told him of a woman who was roofing her house 2-3 weeks after transplant and ripped open her incision. Well, duh! They give you that lifting restriction for a reason-- a good reason.) Going for a walk, reading a book, calling a friend, playing the piano, helping the girls with homework--those all fall into the "good" pace. On the other hand, the pace of cleaning, cooking, dusting...that's just plain unhealthy and counter-productive for a long, long time. A really long time.

Beth, my nurse coordinator, also said that I'm not supposed to get too inspired about anything until after the 4 month check-up. It takes time to heal--she says this transplant recovery thing is a big deal! Go figure.

So, this is my "liver" sabbatical. Isn't it too bad that it has to come to that--a major medical issue and surgery recovery--to give myself permission to take life a little more slowly or at least more thoughtfully?

There's your lesson for the day: Please don't wait for the crisis to allow yourself time to play and reduce the pace at which you live. Oh, you think you couldn't survive at a much slower pace? Ha! Let me just share, that when forced to focus on what's really important, a lot of "stuff" will be eliminated from your daily routine. (Please don't quit brushing your teeth, OK?)

That's all for today. Cheers!
Love,
Theresa


Monday, September 13, 2004 11:46 AM CDT

Cruising in on 7 weeks post transplant. Pinch me.

All is well. It's amazing how I feel now. I didn't know how much my health was slowing deteriorating, because the body is such an amazingly effecient machine--we don't always recognize the changes. Furthermore, one can't complain about every ache, pain, blah-feeling, right? So, we just carry on, until the signs and symptoms become too strong to ignore.

The incision is healing well. My abdominal muscles have a lot of healing to do. You don't realize how often the abs are involved in your body's movement. I look forward to gaining that strength again, but it will be at least November before I can "work out" those muscles. I can be patient.

How long will we keep this site available? Probably till the 4 month check-up. You can expect updates 2-3 times a week. Or if I have some "wild hair" and need to vent, it may be more. Just stay tuned.

If you know someone who is going through serious medical issues, this CaringBridge is free and available. Just go to the home page and follow directions on how to set up a web page. We have found this to be a great way to help people stay connected without making a zillion phone calls. CaringBridge is supported by several partner businesses and donations. You can learn more about that in their Partner and Donate sites.

Enjoy the day! Look at all the miracles around you.
Love,
Theresa


Friday, September 10, 2004 1:20 PM CDT

45 days post transplant! Zippity-doo-dah, Zippity-day.

Ok, so driving isn't really that much freedom when your gut is still healing. My little jaunt to the bank and bike shop was enlightening. Every little thing was a big thing--the bumps, the turns, impatient drivers. I took a nap when I got home from that excursion! It's just good to know that I haven't forgotten how to drive and won't have to play "Driving Miss Daisy" forever.

Now, you're wondering what I was doing at the bike shop. Isn't that where everyone goes after transplant--looking for new wheels in their new life?

Tomorrow is September 11, the anniversary of the attacks on the Twin Towers in New York City. Just pray for peace.

Tomorrow is also the Iowa-Iowa State Football game. Who cares? Oh, yea, Kirk does. Go Hawks. Yea-Rah-Sis-boom-bah! (I wasn't a cheerleader in a previous life, was I? That would be a very scary concept.)

A special favor--the following friends are going through medical issues, please keep them in your thoughts and prayers: Judy H., Sheila, Vickie, and Morris. Thanks.

Keep it simple--make each day, each encounter matter.
Cheers,
Theresa


Thursday, September 9, 2004 10:13 AM CDT

Yesterday was officially SIX WEEKS post-transplant! If you don't mind, we will be celebrating every little "anniversary" of this extraordinary event. So, go ahead, join us and do the Liver Dance!

Not sure the Liver Dance will compare to the "Wedgie Dance" that Claire demonstrated for us recently. She and her friend, Natasha, are perfecting this "dance." The purpose of this dance is to remove your wedgie without using your hands! (I know, this is sophomoric, but, try to tell me YOU haven't twisted and squirmed a time or two to get that annoying wedgie unwedged--hands free!?)

Do you realize how many of your abdomen muscles participate when you laugh? My abdomen is rather tender and it hurt after the laughing we did watching this "dance."

It's good to have these crazy, impromptu, funny moments again. Things were a little too stoic around here.

Great to hear from all of you! We give thanks for all these blessings we've have received--including humor.

Find the funny side of life today!
Love,
Theresa

P.S. I'm going to drive today. Just a short trip. Freedom.


Tuesday, September 7, 2004 12:10 AM CDT

Aren't miracles fun?

I'm still just amazed at my new body part! Please hear me when I say, "Be good to your liver...and all of your body!" And be good to your mind and spirit, as well. Ya need them all working together.

The topic on my mind: Giving and Receiving.
You know the adage: "It's better to give than receive."
We are taught (or at least, I was!) at an early age to give--gifts to relatives, time and money to charitable causes, help out our friends, family, neighbors, etc. Giving is good for us; makes us feel good.

Do we get the same lessons on receiving? Those few lessons on receiving gifts: "Remember to say thanks after you open your gifts!" "If you don't like the gift, just smile and say thank you, anyway!" (Oh, how many times has that not worked with young kids! Or was it just my kids?)

My family has received so much this past year. It felt very weird to get the cards, emails, food, donations, offers of help. At first, we really didn't know how to respond to this outpouring of assistance. (Other than to say "thank you.") Learning the art of receiving takes some time...at least in our case, mostly because we'd been taught to GIVE! Also, it's not an ego booster to think you are in such need--even though that need may be way out of your control.

What I've learned from this past year is that our friends and family have a need to help/give when they see us in a crisis. Friends and family don't have the ability to make the cancer or bad bile ducts go away, but they can give: encourage, cook, clean, pray, run errands, care for the kids, etc. Accepting this help is healing for all of us.

If you know someone you believe can use your help, here's a way to ask: "What can I do for you this week?" "How can I help you with chores around the house?" "I'm going to the store, can I get you groceries?" or "What do you need from me this week?"

Understand that the answer may be, "I'm fine, we don't need anything right now." From my perspective, receiving is much harder than giving. Be patient when you are turned down and, if so inclined, keep asking because, eventually, your help may be RECEIVED!

Writing from experience, it takes some time to get used to the offers. I have very slowly (I is a SLOW learner!) learned that when the help/giving comes from the heart and when our receiving comes from the heart, we all win. We all get well, too.

Then, to think that I have received what I consider the ultimate gift--the gift of life with a donated liver--it's very humbling. I hope and pray the donor family finds peace in knowing the difference they have made in my life.

Kirk, Claire, Maggie, and I are very grateful for all that we have received this year. The help from around the globe has been astounding and appreciated.

Have a great week!
Love,
Theresa




Friday, September 3, 2004 9:54 AM CDT

All is well with the post-transplant healing.

Claire got a ticket for the Bush Rally this afternoon. I'll be surprised if they (she and her friends)last until President Bush actually arrives on the scene. Ticket holders have to be at the location by 4:30 p.m.--the President is "scheduled" to arrive at 5:30 p.m. But, oh, the excitement, the fanfare, and the demonstrators. It will be educational!

More importantly, Mom and Dad and Ed (the chauffeur!) will arrive before all this political hub-bub. I'm looking forward to the arrival of that entourage. They bring goodies--some real home made, farm fresh goods to nourish the heart and soul!

Kirk is getting back into full Pelco mode, scheduling travel and selling stuff. (If your company needs electronic surveillance systems, call Pelco, now!) That's good for all of us. Pelco, his employer, has been very understanding and caring during our pre- and post-transplant journey. His boss, Paul Klutz (did I spell that right?) is one awesome person who knows what's really important in life. Thanks, Paul, for everything.

Maggie is doing well with a full soccer schedule and plenty of homework. She's having a good time and is glad that we(Kirk and I) aren't "gone all of the time." Kids don't express themselves so well when a family member is sick. It's good to have the happy Maggie back.

Your quote for the day:
"Security is mostly superstition. It does not exist in nature, nor do the children of men as a whole experience it. Avoiding danger is no safer in the long run than outright exposure. Life is either a daring adventure or nothing." --Helen Keller.

Go have a daring adventure this weekend!
Love ya,
Theresa


Wednesday, September 1, 2004 10:39 AM CDT

Today is Five weeks post-transplant! Wow!

There's a lot to celebrate. Today is Bev's (my sister) birthday. She is older than me--OK, she is the OLDEST sibling in the line-up! July 25, 2004, Lance Armstrong won his 6th Tour de France and July 28, 2004, I won my Tour de Liver with a transplant! It was the yellow bracelet that did the trick, I'm sure. And this year the US women's teams (softball, basketball, soccer) won gold at the Olympics. Time to party.

Healing is happeneing. At this point, there's not much new to share. Well, if you want the finer details, the incision "looks good." That's what doctors and Kirk say. I know, they are all jealous they don't have the Mercedes symbol permanently placed on their abdomen. By the way, this ain't no Coupe I'm drivin', this is the high-end, fully-loaded Mercedes!

My parents and brother, President Bush, and Teresa Heinz-Kerry are coming to CR on Friday. It's gonna be a big day in the metropolis. Claire and her friends want to go to the Bush rally--just for entertainment purposes I believe. I suggested the Grandparent "rally" would be easier to access.

Maggie and Claire are happy with school (as happy as kids get, anyway) and have enough after school activities to help them go to bed without arguement!

Have a splendid week!
Love,
Theresa


Sunday, August 29, 2004 10:35 AM CDT

One Month Post Transplant--it still is amazing!

Thanks, again, to Ardith for spending the week here while Kirk was playing Pelco-man! She says it always rains in Cedar Rapids when she's here, so we are going to call her when there's the threat of a drought.

Ardith learned how to make paper this week. She made paper like a pro--I was a bit miffed! I still can't seem to get the "hang" of that, but I'm obviously a good teacher. We also made some tasty pesto. Additionally, we finished a little "top secret" Christmas project for my mom. It was a productive week.

The healing process is moving along nicely. My blood test results continue to be good and my Prograff (one of the anti-rejection drugs) got reduced this week. These drugs do marvelous things (help your body accept the foreign organ), but, do have numerous negative side effects. Therefore, the goal is the smallest dose possible to do the highest amount of effectiveness.

The first four months of post-transplant will be constant adjusting of medications. That's just the way it is as the body heals and the body gets used to a liver that is working correctly. It truly is an amazing organ--take care of your liver!

So, how do you live each day to the fullest and make each day count? Suppose that's all individual, but start with giving thanks that you woke up today, telling the people who are most important to you that they are most important to you, smile and find stuff to laugh about, and complete a project!

Speaking of completing a project, I'm proud to announce that I, a person who has numerous unfinished projects laying around here, completed my first knitted scarf. And what a scarf it is. I started it in February during radiation at Mayo. So, I'm not a speed demon with the knitting needles, nor am I very exact, but it's another completed project! Look out, Judy H., this is your scarf, a one-of-a-kind masterpiece.

Enough of that nonsense! It feels good to be home and get back to that family routine--all of it, the good, the bad, the moody. We are all grateful for the generosity, kindness, and love we've received this year. It's been quite a time and we are ready to move on to excellent health and paying the kindness forward.

Have a fun week, OK? OK.
Love ya,
Theresa


Wednesday, August 25, 2004 7:30 PM CDT

4 weeks post transplant--still amazing!

It was 4 weeks ago today that we got that call at 4:27 a.m. from Dr. Rosen informing us that a liver was available for me! We also had a message on our home phone around 4:18 a.m. from Dr. Rosen--we have kept that message in voice mail. The liver is working well and...take care of your liver, it really does lots of things you don't even realize until it doesn't work right.

While going through the pre-transplant phase, I sometimes wouldn't/didn't wanna believe that I had cancer--the rare cholangiocarcinoma. It's a very hard diagnosis to make because these nasty little cancer cells embedd themselves in the tumor and biopsies usually come back benign. That was the case for me.

However, the pathology report on my "former" liver, was positive for cancer in the bile ducts. The cancer was for real and the diagnosis was on target. All the treatment: radiation and chemo was necessary to prepare my body for the new liver.

Good riddence to bad livers and cancer! Hallelujah to organ donors--and I believe mine to be the best of all.

The first week of school is going well for Claire and Maggie. They are a bit tired, trying to get used to waking up early. That school groove will return soon!

Kirk is traveling this week and Ardith is here and taking good care of all of us. We are busy with some fun projects and hopefully we won't run out of time to make paper and pesto. That's not paper pesto or pesto paper--but it could be!

Life is good!
Love,
Theresa


Monday, August 23, 2004 3:21 PM CDT

This is Theresa's favorite sister Ardith again (Sorry Mary,when you are not here I am the favorite).

I am in Ceder Rapids with Theresa this week while Kirk is at a "working" retreat in Redding Ca. I hope that Kirk will relax and enjoy this time away. He deserves a break. Kirk if you are reading this I am taking really good care of Theresa.

Claire and Maggie just loved having their pictures taken this morning for the first day of school and I was so happy that their parents could be here for that.

We went to the "vampires den" early this morning for the first Monday morning blood draw. This will happen each Monday morning for about four months. Watch out for Theresa on Monday mornings - she has to fast and is really hungry by the time she gets done and can eat.

I got to watch Theresa get all her pills ready for the week and it reminded me a little of the game Mancala.

We went for a short walk and enjoyed visiting with Claire and her friends Natasha and Lauren. I am excited to report that we also played my favorite sport - shopping. We bought two medical alert bracelets for Theresa. I got my fix for the day and Theresa got here bracelets.

Theresa is doing great and it is so good to see! I can't help but think of the donor and what a gift to our family.

Thank you everyone for your thoughts and prayers! You just can't know how much they really mean!

Ardith


Friday, August 20, 2004 10:25 AM CDT

HAPPY BIRTHDAY, KIRK!
His email is kschatzle@mchsi.com--fill it up!

We are home in CR and what a glorious thing--sleeping in my own bed! Luxuries we take for granted.

We got home around 5:45p.m. on Thursday and, WOW, the decorations inside and outside were magnificent. Maggie and the neighbors made signs, hung balloons, etc. It was a great welcome home. Claire and Trish disinfected the house! Germ free is the way for me!

Trish made a great dinner of roasted potatoes, fresh green beans, and roasted chicken. It was very yummy. She can cook for us anytime! Kirk and Maggie went to the Tasty Freeze for ice cream treats for all of us.

Did I say that it's great to be home? I told the doctor I would heal faster at home--I know I'm right on that one!

We are going to celebrate today, too, it's Kirk's birthday. We just might party every day for a long time because we have so much to celebrate. Keep in mind, our partying will be subdued and brief--but partying nevertheless!

Claire and Maggie have "weathered this storm" pretty well and we are thankful for all the family and friends who helped while Kirk and I were in Rochester. We are blessed in so many ways.

We love you all so much!
Cheers to home and family and friends,
Love,
Theresa




Thursday, August 19, 2004 1:50 PM CDT

Day 22 and we are going home!

Met with the doctors and all is OK. (He said I'd probably tell him anything to get out of here! Not really.)

We are packed and ready to head down Highway 63 south for See Der Rabbits.

What an experience--once is enough! I am SO happy to have been given this gift--it is a miracle. There really are great people here at the Transplant House and we wish them all a speedy recovery. We all marvel at the medical care we receive at Mayo. This may be as close to medical nirvana as one can get.

Ardith and Tom, Dr. Potarucha says hello.
Thanks everybody out there for taking this journey with us.

Home again, Home again, jiggity, jig. YA-HOOOOOOO!

Love,
Theresa

PS-Sports IS NOT just a guy thing. Where'd Kirk come up with that one? Let's look at the female olympians and their success first, then we know it's really probably a "gal" thing.


Wednesday, August 18, 2004 5:01 PM CDT

(You're author today is...Kirk)

Day 21 today!!! Theresa got rid of 3 medicines today..she's especially thankful to get rid of the liquid versions. Those meds must be pretty disgusting judging from the faces that Theresa makes every time she takes them. Tomorrow we just may get to go home!!!!! We won't know for sure until after we meet with the Dr. But, we are getting close.

Theresa had another blood test, ultrasound, and cholangiogram this morning. All looked Okey Dokey. We also visited the hypertension nurse to learn the proper techniques for taking blood pressure and how to keep it under control. (Some of the meds she's currently on elevate the BP, so they watch it pretty close.)

Theresa also had her staples taken out today after a quick check up. She's such a studette! The Dr told her..."this one might hurt a bit"...but she didn't flinch. She's NAILS baby!!!! (as in...tough as nails)

I can't say enough good things about the care Theresa is receiving at Mayo. The "team" approach to medicine works! Yesterday, met with the Dr who had rejected 2 of Theresa's siblings from the live donor program. What a nice guy. We previously gave the folks at Mayo a lot of constructive criticism on how to make the program better. (We were most concerned that it took over 5 months to test 2 people.) But, the Dr did get the message and they will tweak the program because of our input! It's nice to know that someone actually does listen to the input and act on it rather than just filing it away.

Ya'll been watching the Olympics? Ya gotta love it...USA...USA...USA. Is sports just a guy thing or what?

Hopefully our next posting on our web site will be from home!


Kirk


Tuesday, August 17, 2004 6:57 PM CDT

Day 20! Post transplant--Can you believe it!

Tomorrow is the magic day--21. I get to quit taking 3 medicines--one is a liquid that is the most disgusting tasting stuff ever and I can't wait to pour it down the drain. All the the nurses and doctors have tasted this medicine so they know how awful it tastes--builds a little empathy. I'll be off the low bacteria diet as well.

We had a good visit with Claire and Maggie and Trish. Kirk spent the night with the girls and I sheltered Trish here at the Transplant House!

Today we met with our nurse coordinator, Beth, who gave us all of our "homework." For the next four months, I will have weekly blood tests when I get back to CR, plus I track my vitals (BP, temp., and weight). All this gets sent to Mayo every week so they can monitor my progress. No big deal--just what I have to do--become friends with a very experienced phlebotomist!

I won't have any major diet restrictions, unless you consider not having sushi a restriction. Why do people eat raw fish in the first place? Slimey.

My caregiver, Kirk, is doing well. He's become quite the chef--boils potatoes like a Food Network host! He likes hanging out in the kitchen with the other caregivers, most of whom are women. They marvel at his whistling abilities, too. Never a dull moment!

Tomorrow includes another blood test, ultrasound, and cholangiogram (check out the bile ducts and make sure the "ducts are in a row!"). Also a visit to the hypertension nurse--I hope it's the one I met in February. She was so much fun, positive and wise.

Wednesday or Thursday I get the staples out-- all 48 of them! Kirk wants to save them and maybe use them in an upholstery project. You know, reduce, reuse, recycle!

Did you hear about the young man in Houston who bought billboard ads for a new liver? He got his liver this week. Incredible. Wonder how other people waiting for transplants will resort to that. Please consider and talk about organ donation in your family.

Take care!
Love,
Theresa



Monday, August 16, 2004 9:19 PM CDT

Day 19 Post Transplant--YIPPEE!

We met with the doctors today, again. They like the progress they see and looks like they'll let me go on Thursday. Hip-Hip-Hooray!

Today we met with Dr. Potaruka (I messed up that spelling) who was the hepatologist (liver specialist) who followed Ardith and Tom's live donor testing and had to tell them they couldn't be my donor. Upon meeting him, I told him I felt as though I knew him! After talking with him, I know that he didn't take his decisions lightly and really sought the opinions of many other doctors to reach that conclusion. We had a very nice discussion about the live donor process and how to make it better. Ya know, I haven't met a doctor on this liver transplant team that isn't top notch. I feel so lucky to be in their care.

And it all turned out for the best, anyway. I got a whole liver from some very generous family.

Claire and Maggie are up for a visit today and tomorrow morning. Maggie is so lonesome. My sister, Trish, has taken over the kid care duties and she will need a medal of honor! She's getting the tail end of a long month and a stressful 9 months--the emotions are running wild in the 12-year-old child! Claire is maintaining as she usually does, but it will come spilling out of her sooner or later, as well! They are good kids--hope they don't run all the aunts and uncles away forever!!

Thanks to all of you out there in the world who have supported us in so many ways--we love you! Onward!

Love,
Theresa


Sunday, August 15, 2004 11:21 AM CDT

Day 18 post transplant! Awesome.

The sun came back to Rochester--thank God! It really helps the healing when the sun shines here.

I had blood tests early this morning--those weekend phlebotomists aren't as smooth as the full-timers. But we endure the poking. Tomorrow I will see the doctor to make adjustments in meds based on the tests. On Wednesday, I get to stop several medicines and I can't wait. Two of them are liquid and are the nastiest tasting stuff ever.

Someone asked about rejection. There is always a risk of rejection, but it lessens as time goes on. I will always take immunosuppressent drugs so that my natural immune system doesn't reject what it thinks is a foreign material. If I ever stop taking the immunosuppressants, my body will reject the liver.

Rejection in liver transplants is not as serious as it is with heart and kidney. The liver will repair itself--providing the rejection is caught early. Rejection in hearts and kidneys can mean damage to the organ and they will have to be replaced. My liver function will be monitored with regular blood tests after I get home.

According to the doctors here, the immunosuppressant drugs are getting better and better and tranplant patients need fewer drugs to do the job. Within the year, I should be down to only one drug for anti-rejection--I think that's pretty good.

Because I am immunosuppressed, germs are not my friend. And my friends and family who are germy will need to keep their distance! Wash your hands, get some anti-bacterial hand sanitizer and carry it with you. When you come to our house, you will be greeted with the hand sanitizer, first. Don't be offended--it's just the post-transplant way of life! And it just may prevent you from getting colds, too.

Counting the days till I get home sweet home!
Have a great Sunday.
Love,
Theresa


Saturday, August 14, 2004 8:22 AM CDT

(Your author today is Kirk...I'm baaack)

Greetings!!!!

Sorry we missed a posting yesterday. The internet connection has been down at the Gift of Life House so we haven't been able to update the site. It's still down today, but I'm using my laptop from our room to do the update...sshhhh...don't tell the Sister's that manage the "House" or I'll get into trouble.

Theresa and I had a fun day yesterday. We took a road trip to Lanesboro MN. The weather was perfect...about 70 with no wind or clouds. Lanesboro is a quaint little town with a few antique stores, resturants and other shops. A beautiful little town situated on the Root River with tall bluffs surrounding the town and a very nice walk/bike trail. We did manage to spend a little money to keep the town going. I had to pull Theresa away from the bike/canoe rental place as she is anxious to begin rebuilding those muscles.

Our last Dr appointment was last Thursday in which they reviewed Theresa's latest blood test and lowered one of her medications. They said she is doing AWESOME...must be those terrific caregivers! ;) It looks like we'll be going HOME Thursday, August 19th after a final appointment in late morning. YIPEEEEEE!!!!! Just in time for the start of school on August 23rd.

We had all day Friday and Saturday off. The only thing we have this weekend is a blood test early Sunday morning. I am planning another outting for us for today. Maybe a walk around Silver Lake in Rochester and possibly a movie later in the day. Tomorrow, we may have a lunch date with friends from Cedar Rapids who'll be traveling through Rochester.

Theresa's brother Bill, #8 in the Anderson clan, is going back to Texas today. Bill spent a couple of days in Rochester with Theresa and then did combat duty with Claire and Maggie until today. Thanks Bill for...everything...and no you can't take our dog back to Texas!!! (Hope you weren't too bored Bill. Thanks to Nancy for sharing her new husband!) Theresa's sister Trish (#5) will take over care of the kids and the house until we get home on Thursday.

Thanks for all the cards, letters and postings in the guest book. It's nice to hear from those you care about when you've been gone so long. But, we'll be back soon and better than ever!!!

LOL..............Kirk


Thursday, August 12, 2004 2:15 PM CDT

Day 15 post transplant! What a miracle!

Had doctor visits today and all is going well. Adjusting the anti-rejection meds to get them to the best level--lowering them right now. I feel good with the only pain being incision pain. The incision is like a mercedes sign. Although we counted the staples, we have not measured it yet, but all totaled I'm sure there's more than 12 inches. (I know you all like gory details!)

Bill and I had a good visit. He does make a mean cheese-less pizza. And yes, he misses his new, lovely wife, Nancy. Nancy is competing this weekend in a Karate tournament in Texas. She is a second degree black belt--she knows how to fight with weapons! The Anderson family doesn't give her any trouble! Good luck, Nancy.

The sun did peak out here in Mayoville today. It has warmed up a few degrees as well. Rochester is lucky that the Mayo brothers had such a strong vision to develop this marvelous one-of-a-kind medical practice. Without Mayo Clinic, this would just be another MinneSOta town with winter 10 months of the year! (yeah, I know, like Iowa is paradise--no, it's heaven!HA!)

It's off to run a few errands now. Kirk did the laundry. I'm restricted to lifting not more than 5 pounds and no vacuuming for a long,long,long time! Claire and Maggie are going to get really good at laundry.

We appreciate the notes, cards, thoughts, prayers, etc. I just can't express how much it means and how happy we are to be on the road to recovery and off of the slow boat of waiting and wondering.

Have a great day!
Love,
Theresa


Wednesday, August 11, 2004 3:28 PM CDT

Hello to all you Theresa Liver Journal readers out there. I am the Theresa-sitter for the day. Brother Bill has headed off to "mind" the kids in C.R. Kirk is on his way back up to continue his lovely husbandly ways. I am down from Saint Paul to stand in for Theresa's family members and to keep Kirk calm. He likes to know that someone is watching over Theresa, even though he knows in his heart of hearts that she would probably be just fine for a few hours on her own. I am pleased to report that Theresa's color is good, she ate a good lunch of bacon and scrambled eggs and toast, and she even slammed down her nasty medicine with a chaser of fruit juice. You go girl!!!

The last time I was down here was the end of February and the weather was typically cold and Minnesota gray. Well what do you know, it's still cold and more Minnesota gray. We gotta get Theresa outta here and back to warm, sunny and humid Iowa before the summer is over.

Brother Bill has left Theresa some lovely knitting projects with yarn that's called "eyelash". I have been giving it a try and it's pretty cool. The next time you see Theresa, ask her to model her latest knitting fashions for you.

Well folks, keep those notes coming. It is a highlight to read each day's mail. Theresa is doing fabulous! Thanks to the donor and all the wonderful people at Mayo and all of you out there sending prayers, good wishes and moral support. It's all working and she'll be back in Iowa where she belongs soon.

Peace to all,

Mary Walde


Tuesday, August 10, 2004 7:42 PM CDT

Hello everyone! This is Bill, Theresa's brother.
I am doing my job as Thersa's caregiver for a couple of days and part of that duty is the journal. So here we go.

First of hello to my new wife of six weeks. Miss you and love you very much.

We had a good day today. We ventured out of town to some small towns in eastern MN. We had a good time and enjoyed the day even though the weather was over cast and in the sixties all day. Theresa held up very well and did not try to push it to hard.

Did I mention I miss my new wife!

We then continued to Target when we got back in town and picked up some things for dinner. Pizza was the meal of choice. I dazzled her with my pizza making skills.(It is one of the things that won the heart of my lovely new wife.) She of course loved it and was of course WOWED.
We also had peanut butter, chocolate chunk, and chocolate chip cookies for dessert. I feel a bedtime snack coming on.

It is good to be here with Theresa and see the progress she has made in just the couple of days I have been here. She will be back to her old self in no time.

Let me just mention I love my new wife Nancy.

Taking good care of Theresa!!!!!!!

Theresa's brother Bill (Nancy's new husband)


Monday, August 9, 2004 7:40 PM CDT

Day 12 Post Transplant. Go ahead, do a liver dance!

An exciting day because Dr. Taner removed my final "jug." He consulted with my surgeon, Dr. Rosen, before removing it and told Dr. R that I might hit him if he didn't take it out! I wouldn't resort to violence, but being assertive about some things does help!

It was the abdominal drainage tube where nothing was draining. There was at least of foot of tubing inside of me! Gross--but necessary, they say. It is a new freedom to have that thing gone. It's just hard to find the right accessories for some of these medical doo-dads. The only "tubing" left is the biliary tube which will stay until Day 21.

All liver function tests were good today so things are looking snappy. I feel good, just a lot of incision pain...but I have "candy" for that.

A changing of the caregivers today; Kirk went home to take care of some business for a few days and my favorite brother, Bill, is here to cook, clean, and laugh at my knitting. I don't mind if he laughs, but when he makes me laugh it really does hurt!

He's my brother that just got married on July 4th and he took the time away from his bride to help us out. Thanks, Nancy, for enduring this week without your sweetie! He will go to CR later this week to be with Claire and Maggie. Bill will author a journal this week so y'all get a mixed perspective on things.

We had a good weekend with my sister-in-law, Cheryl Schatzle, who brought Maggie up for a visit. Sister Rogene reprimanded Kirk when he took Maggie inside the Gift of Life House because she (Maggie) had use the restroom. "Do NOT bring children in here and now that she's here, make sure she washes her hands!" Maggie shook for an hour after that! Somebody has to give the nuns a little excitement.

Happy Birthday to my other favorite brother, Ed, and my favorite nephew, Karl. I tried to call both of you and you weren't there. Other Birthday greetings to favorite neices Molly and Micheala. August is a big birthday month in this big Anderson family.

Continued thanks to all of you for your support, messages, and healing thoughts. It means SO much to all of us.

Check that organ donor box on your license and send positive thoughts and prayers to my donor family. What a gift I have received!

Love,
Theresa

P.S. We counted my staples. Stay tuned if you wanna know the number. Hey, it gets kinda slow up here in Rochester, ya never know where you'll find entertainment! Cheers!


Saturday, August 7, 2004 1:11 PM CDT

Day 10 post transplant. It's really so awesome.

We took Bev to the airport this morning. It was great to have her help us out this week. Now, we are waiting for Maggie and sister-in-law Cheryl to arrive for a short weekend visit. Maggie is bringing me more underwear because in her words, "I hope you are changing them every day!" It's an ongoing joke with her when she goes to camp and comes home with more clean underwear than dirty!

The weather in Rochester has been really nice. Today it's a bit cloudy and rainy, but that too will pass.

This may be the only city where you can feel comfortable sporting drainage "doo-dads". There is just no good way to hide this last jug and bag, so there it is. It will be removed on Monday, not a minute too soon!

The most touching part of this journey is the people we have met and their stories. The 18 year old grandson taking care of his 81 year old grandpa with such ease. He's a pretty mature kid. The live liver donor who gave part of his liver to a friend and seeing a bond there that is indescribable. The distance that people travel to come here to get the "best" medicine has to offer. Wonders never cease.

Then there's the other story of the heavy footed people in the room above us. Good grief, how can they tromp around their room that much--at 4 A.M.!! We are thinking that they are part of STOMP, that dance/drum troop. If not, they could be!

Kirk continues to dazzle everyone with his caregiving skills--but that's no surprise. I'm just happy to see him without that sad look. He's back to whistling and walking with a bounce in his step. The doctors don't need to worry about my compliance, because Kirk keeps track of everything!

Have a great weekend. As they say up Nort here, "UBETCHA!"

Love,
Theresa and Kirk


Friday, August 6, 2004 7:43 PM CDT

Hi, there everybody, it's me! She, who has a new liver! Isn't that awesome?

Isn't Kirk getting good at updating these pages? He couldn't let his sisters-in-law show hime up! (Even though the reason none of those pages are in the journal history is because none of them knew to ADD a page, not overwrite a page. Oh, well...)

For those of you just checking in, here's a brief overview of things.
July 28 we got a call at 4:27 a.m. that a cadaver liver was available for me. Miracles do happen. The transplant surgery took place at 2:30 p.m., although I got some happy gas around 1:30 p.m. It's a phenomenal transplant team here. WOW!

I was in the hospital until yesterday, Thursday, August 5.
We are now at the Gift of Life Transplant House, which is where we will stay until I'm released later this month.

Twice weekly blood tests and doctor, transplant team visits is how I will be monitored to make sure the meds are working right and my body is accepting the liver. So far, it's all been excellent.

We have had tremendous support from family and friends, watching the kids and helping Kirk get some relief from caregiving. Y'all are awesome--we love you!

So ya wanna know how I'm doing? One day at a time. As the nurse coordinator said to me, "Your body has been anatomically altered." (I thought that just happened during puberty!) So there's lots of adjusting internally going on. Sometimes it's not comfortable, but I have good drugs! I'm walking as much as I can and eating is slow but improving. Sleep is a great thing, too.

I'm still a bit in shock that I got this liver and I am so very, very grateful to the courageous donor family. What a tremendous gift! I think God had to give me this organ because heaven was being bombarded with prayers. It may have been that congregation of 25,000 prayer list that was the final straw! Thanks to everyone out there for your prayers, thoughts, meditations, liver dances... every bit of it helped us and continues to give us strength.

My favorite sister, Bev, flies home to Texas tomorrow. She was with the girls for this week and a couple of days up here. Then my favorite brother, Bill, also from Texas, is flying in on Sunday to be my caregiver for a few days while Kirk goes home to do some household management duties. Uncle Bill will keep watch over the girls for the remainder of the week.

We truly appreciate your guest book entries and emails. It's hard to find the right words to express how blessed, lucky, and humbled we are. Thanks for sharing this journey with us--on to healing!

Love ya,
Theresa


Thursday, August 5, 2004 6:52 AM CDT

Theresa will be released from the hospital today...for sure!!!!! Yeah!!!!!

Yesterday was a long and hungry day. Theresa was scheduled for an ultrasound and liver biopsy yesterday at 7:30am. (Keep in mind, to have these procedures, you must fast from midnight on.) The plan was to have these tests, then get released from the hospital in late afternoon as the biopsy requires you to lay still for a couple of hours after the procedure. The Dr who was supposed to do the biopsy was called in to assist on another liver transplant, so he wasn't available at the scheduled time. Theresa FINALLY had the procedures at 5:00pm. The ultrasound looked fine and we should have the results of the biposy this morning. (The biopsy is checking for any signs of rejection.) If you're counting - at least Theresa and I were - that's no food for a 17 hours!!!!

Theresa's biggest pain these days is from upper GI gas. This is an after effect from the "happy juice" they gave her during the transplant. The good thing is that she's not in constant pain. It just comes on all of a sudden. When it does, we go for walks and let it rip whenever the urge happens. (Not me...just Theresa)

Theresa's sister Bev comes back up to Rochester today. Claire is coming with her. Our thanks go to Patti Becker for acting as a long distance taxi service on such short notice! Cheryl Schatzle will bring Maggie up on Saturday so she can see her Mom. Then Sunday, I'll go back home with Maggie and be with the kids for a few days. During my absence from Rochester, Theresa's brother Bill will be hanging with Theresa. Bill is flying in on Sunday thanks to a donation from fellow Pelcoite & friend Paul Kluttz. Thanks Paulie!!! And, thanks Pelco Travel for helping with all the arrangements!!!!

I must also extend a BIG THANK YOU to the anonomous donor of 3 days hotel stay for Bev, Cheryl and Maggie. I don't know who you are, but we love ya!!! :)

It's difficult to thank everyone who's helping because there are so many. Co-workers, neighbors - watching kids and taking care of Mazy our dog, friends at home, friends from far away. It's just awesome and amazing! Contrary to what the media is constantly telling us, their are good people in this world...a whole bunch of them!!!!!

Kirk


Our address for the next couple of weeks -

Gift of Life Transplant House
Theresa Anderson, Room #13
705 Second St. SW
Rochester, MN 55902


Tuesday, August 3, 2004 2:45 PM CDT

(Message from Kirk
-Theresa's favorite caregiver!!!)

Theresa did get her trendy bile purse taken away this afternoon. She is thrilled and happy to have one less item to drag around the halls of Methodist hospital. The Docs say she is doing great. She looks unbelieveably good...no yellow eyes or skin! It's amazing what a new liver will do for you.

Dr. Nagourney stopped by to she how Theresa was doing this morning. (Dr. Nagourney was the Doc that did Theresa's first surgery in January.) He said that Theresa was the topic of many discussions amongst the entire group of transplant Docs. It seems that they got a good laugh out of the fact that, when the cart to take Theresa to have the transplant finally arrived - 3 hours late - Theresa literally ran to the cart, jumped onto it and said...let's go!!!! It seems they don't have many patients that eager for a transplant.

Theresa's only directions from the Docs today was "eat like a pig and exercise"! Okey Dokey Doc...we'll do both. The eating part is to increase her metabolism and thus, her liver function output. The exercise part is obvious.

From all indications, Theresa will be discharged tomorrow (Wednesday) after she has a liver biopsy. Probably either late afternoon or early evening. We will be residing at the Gift of Life Transplant House for around two weeks...give or take a few days.

Maybe you'll soon see Theresa's writing prowess back on display in this journal!

Theresa's favorite husband,

Kirk

P.S. Theresa's address if you would like to send a card-

Gift of Life Transplant House
Theresa Anderson, Room #13
705 Second St S.W.
Rochester, MN 55902


Tuesday, July 20, 2004 11:12 AM CDT

Lance now has the yellow jersey! (Talking Tour de France for those of you non-sports types.) His (Lance Armstrong, that is) story is just truly incredible and now he's on the brink of winning the Tour for an unprecidented 6th time! Hope he does it. (And don't ruin this fairytale with any doping accusations--OK?)

Bev had her CT scan Monday (yesterday). Should know her status by the end of the week. Whatever will be, will be.

Waiting. Waiting. I'm working to move beyond that mentality. It's taken a while and I'm not 100% there, but when I "wait," I get impatient, crabby, negative, etc. And those emotions don't provide good stuff for my mind, body, or spirit.

I'm moving on to doing. I'm doing some projects around here that spark my creativity and give me positive energy.

Last week, I finished a lap quilt for the St. Judes Children's Hospital Quilt of Dreams project. It's a collaboration between Hancock Fabrics and St. Judes. I'm not a hard core quilter--cutting endless squares and triangles is much too tedious. I prefer the more free form approach. Perhaps we'll post a picture of my "masterpiece."

This was a fun project that will hopefully make some child, who is going through some nasty medical treatments, happy. I think I can relate to those kids!

I learned how to make paper last week, so I'm gonna make messes around here with that. Maggie is much better at the paper making than I am, so she can make it and I can bind it, paint on it, etc.

There's that nifty laser saw sitting idle in the garage. Might start cutting some slabs of wood and see what I can create. The possibilities are endless with all the tools and materials sitting around here. Just don't tell Kirk about the saw thing. Then he will NEVER leave the premises! Or he'll rig up some of that Pelco electronic surveillance equipment to keep watch over me!

Maggie is at YMCA Camp Wapsie this week. She loves it there. Outdoor games, swimming, crafts, zip line, late nights, early mornings, mediocre food, and no parents.

Claire is continuing with her Icee "career." It's getting hotter and the shaved icee is getting more popular. What she likes most is the paycheck!

Have a great week. Go DO something fun--or come to my house and we'll make messes here. Paint, fabric, wood, beads, yarn...we've got it all. Cheers!

Love,
Theresa


Monday, July 12, 2004 10:51 AM CDT

Endurance.
Have you been watching the Tour de France? Talk about endurance. Go, Lance and US Postal Team. Would you take it wrong if I said, "Go Postal!" Hey, give me a break, I'm on drugs. (Just like some of the Tour riders!!)

I'd love to have the endurance of any one of those cyclist on the Tour. And their good knees, too. But, I'm on my own little "tour." What shall I call it--Tour de Liver? Tour de Cancer? Tour de Have-Faith-and-Hope-cuz-you-can't-control-the-rest? Or Tour de Twilight Zone.

The endurance part of my tour is tolerating these drugs that will lead to my healing and enduring the endless barage of needles I constantly face. Where's the research for new methods of gathering the data without a blood-letting ceremony? That deep breathing I learned in Lamaze has come in handy on many clinic visits! Actually, it's the inserting IV's and shots that are the least fun of all.
Endurance.

My sister, Bev, is now in the live-donor testing. She passed the blood test and is having a CT scan this week. Go, Bev! No spots on your pancreas, OK?

Have a dandy week. We're basking in the humidity here and loving every misquito that comes with it! Cheers.
Love,
Theresa


Thursday, July 8, 2004 9:55 AM CDT

Home again, home again, jiggity jig.

The trip to Texas was great. Kirk and the girls played while I napped and lounged around, conserving energy for the evening festivities. Most people said it was hot (95 degrees F) but I thought it felt great. Inside every building it feels like the North Pole--the utility companies in Texas have to love it.

My brother, Bill, married Nancy on July 4th. It was a beautiful event, with a 20 minute fireworks show as the grand finale. All my siblings and parents were in attendance, so it really was great to get together.

I have not started my next chemo round yet. My local oncologist is concerned about my gradually lowering blood counts and is consulting with Mayo. Mayo says, "Take the Xeloda--you're fine!" It's interesting to observe where they (Mayo) are conservative (with donors) and when they aren't (ME!).

Otherwise, I'm feeling OK. A nap a day keeps the cooties away!

Have a great day.
Love,
Theresa


Friday, July 2, 2004 9:28 AM CDT

The suitcases are nearly packed and we are ready to sweat it out in Dallas for a few days. My parents and all of my siblings are going to be there, so it will be a reunion as well. I'm not sure Dallas is ready for this very wild--I mean mild--group of outlaws and inlaws.

I was thinking about inviting a few docs and technicians from Mayo so they could just do some mass testing for a donor while we are all in one place, but then I figured that would kind of ruin the festive mood!

Without the chemo streaming in my system this week, I'm feeling stronger. I will celebrate the day when we can find a way to treat cancer without tearing the entire body down. We really do need to consider the massive benefits of stem cell research to help find better ways to treat and prevent many diseases. Handcuffing all scientists just because a few have bad motives, is not helping move medicine forward. OK, that was my political rant for the day.

To our American friends and family, have an enjoyable July 4th Independence Day celebration. To our international friends, here's hoping you have peace, prosperity, and good health in your life and country.

God Bless America,
Love,
Theresa and family


Tuesday, June 29, 2004 9:51 AM CDT

Hello, Readers!

Sorry about the journal sabatical...but, no news is good news, right?!

We have recovered from our disappointment that Tom didn't get to be my donor and are preparing for the process once again. My sister, Bev, is now subjecting herself to the live donor testing. We are thinking that NASA's astronaut rules are probably not as difficult to pass as these Mayo Clinic guidelines! Yet, who can argue with highly trained physicians who want to protect the long-term health of potential donors. They don't take any chances, which is why they have the best outcomes in the country.

Health wise, I'm feeling fine. A functioning biliary tube, good drugs, daily naps, and I'm good to go. I'm not going very far or for very long, but let's not get picky about the details.

The family is excited about July 4th when brother Bill is getting married to a sweet southern belle, Nancy. This Dallas, TX, event will rival anything J'Lo even thought about. On the evening of the 4th, when you notice the skies lighting up to the south, it's the "wedding event of the century" taking place! We plan to make a quick excursion to Dallas and I'm looking forward to going out-of-town to a place other than Rochester, MN.

Have you changed your license to indicate that you want to be an organ donor? Have you told your family that in no uncertain terms that you want to donate your organs and tissues? (That tissues isn't Kleenex--duh!) Get it done--it's a great gift of life.

Finally, we are honored and humbled by the kindness and generosity shown to our family. In case the news has your mind thinking otherwise, this world is filled with really good, kind people who will help those they barely know.

Have a great week.
Love,
Theresa



Tuesday, June 22, 2004 7:50 AM CDT

The rally is over. Tom couldn't get the endoscopic ultrasound into home. He too, like my sister, Ardith, was turned down to be my donor because of cysts on his pancreas.

He will fly home to Denver today. He's heartbroken. Thanks Tom, for everything you had to endure.

I got to see Tom on Sunday night in Rochester because I had to make a trip up to get my biliary tube changed once again. I don't get very much mileage from these tubes, but I feel better now that I have a new one.

So we are on the hunt for a superhuman with O blood type.

How'd I get on this path and how do I get off?

Keep us in your thoughts and prayers.
Love,
Theresa


Monday, June 14, 2004 10:32 AM CDT

IT’S RALLY TIME!

Put on your rally hat (inside out, upside down—whatever!) because we need a homerun!

My brother, Tom, is up to bat again (testing to be my donor) next week. The bases are loaded: Endo Scopic Ultrasound is on third, Liver Biopsy is on second base, and our Italian friend, Angio Gram is on first. We believe Tom can “hit the ball out of the park,” (pass these Phase 4 tests) but your positive energy, thoughts, prayers, cheers, and of course, the rally hat on June 21 will really help.

Have you noticed, I can use just about any metaphor for this “stuff?” It may be that the “juice” from my liver is free floating throughout my brain.

Summer vacation is going well here. Claire and Maggie are keeping busy with babysitting, social stuff, work, and all the opportunities for household chores.

I started my oral chemo again on Sunday. THIS IS THE LAST ROUND! WHEN Tom passes the tests, the transplant surgery will be scheduled (we think/hope) for mid-July.
In order to get my blood counts back up, I won’t have to take those big, fat pink pills anymore. YAHOO!

I’m feeling pretty good. Just the normal fatigue that accompanies this issue. I am ready for the next step and all the new things I will be learning after transplant.

Kirk, Claire, Maggie, and I are deeply grateful for all the kindness, help, support, prayers, thoughts, etc. we have been given. We look forward to being on the giving side soon. Take care!

Love,
Theresa


Tuesday, June 8, 2004 10:02 AM CDT

Greetings. Today is my dad's 84th Birthday. Happy Birthday, Dad/Grandpa. An interesting note on life span: his parents both died in their 40's. To think that in one generation, he has lived twice as long--that's really amazing. Does that mean I could live well into my 160's? How many livers will it take? Hmmm.

My brother, Tom, is going back to Mayo on June 21 for an endoscopic ultrasound. Translation: They stick this garden hose attached to a scope thingy down his throat and look around at his gut--specifically in his case, the pancreas. Seems the Andersons have this thing with things on their pancreas.

If he passes that test, then he will be scheduled later for the liver biopsy and angiogram. And transplant will occur soon after, providing the last two tests are OK.

Our hopes are high, but tempered with reality that any one of these tests can bump him from being a donor.

Therefore, if you are bored, start praying/thinking/meditating/etc. for positive test resutls for Tom. And keep his family close in mind as this is all a very big, big deal to them, also.

And life goes on. Claire got her first paycheck and now has a checking account. It will be an interesting lesson on managing and saving her money. She can do it.

We are constantly appreciative of all your thoughts, prayers, and encouragement.

Love,
Theresa


Friday, June 4, 2004 11:27 AM CDT

The first official day of summer vacation. Claire is going to work, Maggie is at a friends house for an "end of school year" party. We have lots of projects around here to keep them busy when they don't have social and work obligations!

Just read that Doonesberry, the comic strip, featured Caringbridge in some of its comics at the end of May. If you go to the homepage on this site, you may be able to read the story. Whether you like Doonesberry or not, the exposure for Caringbridge is excellent. This site has been so helpful for us to stay in contact with friends all over the world.

I'm feeling OK these days, but am always ready for the week off from those nasty, toxic chemo pills. As long as I get my daily nap, I'm good for the day. My appetite is usually good and I can eat what I want, but those aromas from Italian and Mexican foods don't settle well. So, Kirk doesn't get to put massive amounts of garlic in the food these days. The added benefit of that is the reduction of a little (or maybe big) problem he has with the emission of fumes from his body!

We are just waiting for that perfect liver to show up. It will arrive and all will be well, but there are days that the wait is frustrating. There just aren't enough livers available for all the people who need one. We are hopeful that Tom will get good news to be a live donor, but we are realistic, knowing the strict protocol at Mayo.

Be an organ donor.
Love,
Theresa


Wednesday, June 2, 2004 9:51 AM CDT

As of today, my brother, Tom, has not heard anything from the Mayo docs about returning for the final phase of testing. We expect he will hear from them later this week or next week. They don't rush the donor process.

I'm on week 2 of chemo--3 days left of this round then a week off. The fatigue is the biggest factor this time.

One half day of school is left for Claire and Maggie. They are so ready for it to be out--hope they are ready for the schedule of housework Kirk and I have lined up for them!

We are still getting rain, but the flooding has subsided. I don't care about the rain, but I would like to see the sun soon.

The cardinals have hatched. We have cardinals who make a nest in what is supposed to be a bird feeder. This nest is right outside our office windows. There are three babies this time and they are hungry little birdies, the mom and dad spend all day finding food. We've watched this process other years and the babies will be all feathered and out of the nest in two weeks. We're glad to bring you a bit of the Iowa Wild Kingdom!

Take care, stay healthy,
Love,
Theresa


Thursday, May 27, 2004 9:36 AM CDT

I accomplished an amazing feat this week. I love rhubarb pie, so I mooched some rhubarb from a neighbor and made a pie. Had to call my mom to get some "technical" cooking details when it didn't cook right. So this was a "twice-baked" pie. (That's the first feat--cooking.)

Then I ate the entire pie--not all in one setting, though. By Wednesday night it was gone and no one else here had a piece of it. Now I'm researching if there are medicinal qualities to rhubarb! I hope so.

The flooding continues here; the Cedar River is supposed crest today. The city has done a lot of flood prevention in the past years, so unless the dike breaks, homes and businesses will not have flood damage. There may be some sewer backup though. P-U.

My brother, Tom, finished his "3rd" phase of testing and the Mayo team will reveiw his results and let him know if they want him for the final phase. Tom was impressed with the transplant surgeon who shared some detailed pictures of a transplant with him.

Dr. Rosen is pretty awesome. It's one of those things where you wish you didn't have to know him, but you're glad he's the one who loves livers and transplanting them! It really is a phenomenal team at Mayo and I count my blessings quite often that we have access to their expertise and care.

I feel good today, like I should go for a run or something. Perhaps I'll walk.

Have an awesome day,
Love,
Theresa


Monday, May 24, 2004 10:04 AM CDT

It's the monsoon season here in Eastern Iowa. We'd like to ship some of this moisture to the Western US where forest fires are a threat.

We live about a 1/4 mile from the Cedar River--there's a park between us and the river. The park is flooded today and the river won't crest until Thursday. And more rain is in the forcast. Yikes! Thank goodness we live in the "highlands!"

I've recovered well from my illness shananigans of the past week or so. I'm as well as one can be with cholangiocarcinoma who is awaiting a liver transplant. That still just seems too weird. This is the twilight zone.

My hiatus from the chemo is over as well. Started my two-week, twice-a-day servings of Xeloda yesterday. The dosage has been reduced to 1,000 mg, in an attempt to keep the hand-and-foot syndrome away. Works for me.

We are still working on getting our basement put back together. It's given us the chance to go through stuff and get rid of junk, because the Junk Fairies have been pretty busy!

Claire is now gainfully employed at the Icee Hut--selling Icees. Woo-HOO! She's happy to earning money and we are happy, too!

Thanks for keeping us in your thoughts and prayers. We appreciate all your support.

Love,
Theresa


Friday, May 21, 2004 12:10 AM CDT

Home again, home again, jiggety jig!

I feel lots better now. My biliary tube was replaced and now I’m pretty sure that was the culprit for my week of not feeling well. Perhaps the pneumonia played a part as well, but considering the signs and symptoms, it was the tube. That’s what the Mayo doctor believed as well, which is why I was summoned to the Clinic. What a guessing game all of this can be.

Ardith, my sister, came to stay with the girls and hung around for an extra day to play maid, personal shopper, and gardener. She became painfully aware of how much prettier the flowers are here in Cedar Rapids vs. Omaha. What did she expect in Nebraska anyway?! We appreciated her efforts and she had fun helping us spend money.

The girls have 71/2 days of school left and yes, they are counting every one of those days. We are all singing, “School’s out for summer….” (Kirk is of course making up words to the song!)

Next week, Tom, my youngest (but not really that young now!) brother, will be in Mayo-ville for the Phase 3 battery of tests to be a live donor for me. It’s exciting, yet, knowing how difficult it is to pass the Mayo donor criteria, we are cautiously optimistic. So, please keep Tom and his family, wife Paula, and daughter, Charlotte, in your thoughts and prayers. He lives in the Denver, Colorado, area.

Love,
Theresa


Wednesday, May 19, 2004 9:16 AM CDT

Waiting for a procedure right now at Gonda 2 South at Mayo Clinic. They are going to look at my biliary tube to determine if it is infected. Already have the IV port in and have had antibiotics. Breakfast of Champions.

We came up yesterday (Tues) to see the docs and make sure everything is as OK as it should be. I'm feeling better and I think it's because (aside from the antibiotic) I'm not taking any toxic drugs.

Looks like we will go home today and face that basement.
The girls are ready to be done with school. Claire says it's like prison--no windows, they just take notes, and it's not fun. She will survive.

Take care,
Theresa


Wednesday, May 19, 2004 9:16 AM CDT

Waiting for a procedure right now at Gonda 2 South at Mayo Clinic. They are going to look at my biliary tube to determine if it is infected. Already have the IV port in and have had antibiotics. Breakfast of Champions.

We came up yesterday (Tues) to see the docs and make sure everything is as OK as it should be. I'm feeling better and I think it's because (aside from the antibiotic) I'm not taking any toxic drugs.

Looks like we will go home today and face that basement.
The girls are ready to be done with school. Claire says it's like prison--no windows, they just take notes, and it's not fun. She will survive.

Take care,
Theresa


Wednesday, May 19, 2004 9:16 AM CDT

Waiting for a procedure right now at Gonda 2 South at Mayo Clinic. They are going to look at my biliary tube to determine if it is infected. Already have the IV port in and have had antibiotics. Breakfast of Champions.

We came up yesterday (Tues) to see the docs and make sure everything is as OK as it should be. I'm feeling better and I think it's because (aside from the antibiotic) I'm not taking any toxic drugs.

Looks like we will go home today and face that basement.
The girls are ready to be done with school. Claire says it's like prison--no windows, they just take notes, and it's not fun. She will survive.

Take care,
Theresa


Monday, May 17, 2004 9:34 AM CDT

I know who's in control and it's not me.
I believe my outcome will be excellent.
I have faith in my medical team.
There is a purpose or reason for what happens.
I believe in miracles and will fight and keep the faith.

Having said all that, I WANT MY MIRACLE NNNOOOOOWWW! Wonder if God hears me better if I stand outside and shout vs. silent prayer. Could give the neighbors something new to talk about.

O.K. I got that out of my system. Another little ER visit last Friday due to chills and fever. Found a little patch of pneumonia. Yippee. A new antibiotic to take. I think I've tried all that are on the market. What a mess my immune system is. Chemo is on hold until further notice.

Here's inviting you to go have a terrific week and enjoy the good health you possess.

Cheers,
Theresa


Tuesday, May 11, 2004 10:20 AM CDT

Belated Happy Mother's Day to all the moms out there. I had a great day and hope yours was groovy as well.

The feet and hands are feeling better now as the tenderness subsides this week--it's a chemo free week! I hope this syndrome doesn't return.

It's exciting around here because our water retention tank sprang a leak sometime Sunday night. Water flowed freely in the storage room and two other rooms. On Monday the well dude came (and tracked mud in the house) and replaced the tank. Today, the carpet dudes are here getting the water out of the carpet and finding little surprises. In the meantime the insurance adjuster should show up. We needed to clean out those rooms anyway and this situation just forces that to happen. Just another little blip.

The good news on Monday was that I've been placed on the 24-hour call list. Which means, in the remote chance that the first few transplant candidates for a type 0 liver could not get to Rochester or other circumstances prevented them from being transplanted, I COULD get called. The chances are remote, but it's another notch closer to a new liver.

Otherwise, all is well here. Rains over the weekend have helped keep everything green and Kirk's popppies have bloomed!

Love,
Theresa


Thursday, May 6, 2004 10:00 AM CDT

Some people have asked what it's like taking chemo. Here's what it's like for me.

At approximately 7 a.m. and 7 p.m., I sit down at the dining room table with my little pill caddy. I open the appropriately marked compartment (Thurs. A.M.) and dump 3 pink tablets on my plate. The pills and I have a stare-down for a while. Not sure why, it just happens.

Since this drug must be taken with food, I eat a few bites, swallow a pill with a glass of water or milk, eat, swallow, etc. Then the ritual is complete and I go on my merry way.

Except for fatigue, which is also liver related, and constipation (am I getting to graphic and personal?) I don't notice much from the chemo. However, this week I have a new side effect: hand and foot syndrome. The bottoms of my feet are red and tender, the palm of my hands are a little tender, but the feet are worse. The fun and mystery just never ends!

I keep busy with some small "sit-on-my-butt" projects around here. The weather has been nice this week so I go sit outdoors sometimes -- since I can't walk too far this week. In due time, this will all be over, I'll have a new liver, and then figure out how to conquer the world.

In the meantime, please add my Rotary buddy, Greenie, to your prayer lists. (His last name is Greenfield, thus Greenie) His liver isn't working well and he's hopeful for a transplant, also. I told him maybe we could get a 2 for 1 deal, but he is AB blood type. Darn!

Have a great week.
Love,
Theresa


Monday, May 3, 2004 7:24 AM CDT

Today is my mom's birthday. Happy Birthday, Mom! This is the 37th anniversary of her 39th birthday. Happy 39 once again, Mom! Hey, if you wanna wish her a happy day, call her at 712-885-2645. Ask for Catherine!

For your additional entertainment, here's a little ditty to keep you singing all day long.

MY LIVER
(To the tune of that old, old song, “Linda”)

When I go to sleep, I never count sheep,
I count my score on the list for a liver;
And lately it seems, in all of my dreams,
They’re transplanting another new liver!

But what good does it do me,
‘Cuz UNOS doesn’t know I exist.
No need feeling gloomy, yet
Think of all the livers I’ve missed!

I walk down the street and to everyone I meet
I say, “Hey, what’s your blood type, I need a liver!”

Then I have to smile, for I can wait a while
Until I get a good liver.
You see, miracles still happen
And soon my lucky star will shine;
With one lucky break, I’ll make a new liver mine!

(UNOS = United Network of Organ Sharing)
Just another example to too much time on my hands!

My status: Just on the chemo, 2weeks on, 1 week off. It's OK. This is oral chemo; I take 3 tablets in the a.m. and 3 in the p.m. I feel better when I get out for a walk or two--that good old exercise helps everything work better.

Otherwise, things are just dandy around here. We could use some consistency in the weather--like 75 degrees and sunny every day! Not only do I want a liver, but also, perfect weather!

"And remember my sentimental friend, that a heart is not judged by how much you love, but by how much you are loved by others." --OZ

Have a great week!
Love ya,
Theresa


Monday, April 26, 2004 7:45 AM CDT

Happy Monday!

It's chemo season again for the next 2 weeks. No big deal. As long as there is lots of sunshine, I can tolerate this.

Congratulations to my friend, Judy, who completed her 3rd Boston Marathon last Monday. It was those training runs in Rochester that helped her cross that finish line!

The weekend included Maggie's soccer game (which she won, but who's keeping score?) and Claire's saxophone recital (which she played magnificently--her best yet! She said she refused to get nervous.)

I don't have to return to Mayo until July--as long as everything keeps working correctly. The liver prospects are out there, but the process for live donors seems to be moving at a snails pace. Kirk's gonna (in his ever so gentle manner) kick some Mayo butt this week to see what their hold up is.

We continue to be very thankful for all the prayers, thoughts, and encouragement that continues to come our way. It is so helpful to know people who don't even know us are cheering us on.

Have a dandy week!
Love,
Theresa


Thursday, April 22, 2004 12:20 AM CDT

My spring advice: If you do not have in your garden a Korean Spice Viburnum, you are missing the best smelling spring flower. There's nothing else like it and it will calm your nerves, turn your bratty children into saints, make your crabby spouse happy...it's magic! (OK, so some of that may be an exaggeration -is that spelled right?- but it is a beautiful smell.)

Calm week around here. Claire applied for one job--that's progress!
"But, if I fill out more than one app, what if they all call me to work?"
"Well, honey, you have 2 jobs or you get to choose where you work! Quite the deal for someone your age!"
Some lessons are just harder to learn for some people. Including parents.

Have we shared Kirk's latest change in his health? The girls and I knew for a couple of years, but admitting your eyesight is worsening is difficult for someone who has never needed glasses. Mid-life changes happen to even the best of us.

Yes, Kirk will be wearing glasses soon. He fussed about selecting the perfect pair so he didn't look like a geek. We kindly told him that glasses wouldn't make a difference there! Just in time for the Stanley Cup playoffs--he'll be able to read the score on the TV without our help! Be on the look out for the new, bespectacled Kirk.

"It's never to late in life or fiction to revise."--Nancy Thayer

Cheers to all,
Theresa


Monday, April 19, 2004 11:03 AM CDT

IT's exciting around here because...the tulips are blooming! I forgot that Maggie and I planted tulips last fall. The dumb bunnies or bambies have eaten the tulips in the front of the house, but the ones in our backyard garden are blooming. Yeah!!

Also, the Korean spice viburnum has bloomed its little light pink cluster flowers. They have the best fragrance. I wish I knew how to bottle that smell. The only down side is their existence is so fleeting.

This is the chemo-free week. It'll be interesting to see if there is any difference from the full chemo week.

We have a 16-year-old here who needs summer employment. Let me know if you have any Cedar Rapids teenager work leads!

Have a great week!
Cheers,
Theresa


Friday, April 16, 2004 7:32 AM CDT

TGIF everyone!

The first round of oral chemo ends tomorrow (Sat.) and then I get a week off. The side effects have been minimal and tolerable. I think I will get a gold star because I have taken my pills on time everyday! (Not sure who will give me that gold star...)

We had a brief Mayo visit this week for some check-ups. My primary doctor was out of the country on a family emergency, so I got to visit with some others on the liver team. Everything is fine/stable. I quizzed them on why Pat Summerall got a liver in 2 weeks. Here's why:

He went to that region (which includes Florida and some other states) because the wait for organs is the shortest in the country. For some reason, they have an excellent organ procurement system, not to mention a population that is much larger than the Minnesota (and other states) region.

When a person is placed on the organ list, they are given a score based on blood tests. With Mr. Summerall being in critical condition, his blood tests probably gave him a high score. The high score puts you high on the list. In that Florida region, the average score for liver transplant is 17. In the Minnesota region, the average score of people getting an organ is 28. Big difference, huh?

So, the next question is, why not go hang out in Jacksonville for a bit and get an organ sooner? According to one of the doctors, my current score of 20 would not transfer to Jacksonville; my score would probably be an 8. With a score of 8, I would receive a "marginal" organ. Marginal organs are from older donors or donors that had some disease that supposed wouldn't affect the recipient, but it might. The long term outcomes in Jacksonville are lower than Rochester. Furthermore, with cholangiocarcinoma, some organ networks do not believe that such diseases should be transplanted.

We learned there is no parity in the organ networks across the country and it is an issue that receives frequent discussion among transplant centers and the Department of Health and Human Services which ultimately oversees the organ sharing process.

I'm not moving to Jacksonville--yet. Please keep praying, thinking, meditating, liver-dancing, whatever means you use to call upon the Divine, for a liver miracle to occur. We appreciate it.

Love,
Theresa


Monday, April 12, 2004 9:41 AM CDT

Good Monday Morning to you all.

We had a nice Easter weekend. The egg hunt was a success--we sent lots of kids home maxed out on sugar! Sunday we had the pleasure of Easter dinner at Carol and Ken Lafferty's house. Carol is the sister of Kirk's sister-in-law, Cheryl. It's always great fun, because they all tell lots of family stories and laugh a lot. The kids played outside, rode the horse, drove the golf cart...it doesn't get much better than that. Thanks, Satterly family, for including us.

This week we are off to the Rochester resort for a check up and check in with the doctors. They miss me, I think!

I read where Pat Summerall, the 73 year old, recovering alcoholic, sportscaster, former NFL stud, got his liver on Saturday. He was on the donor list since April 2. Hmmmmmm. Gee, Pat, can you buy me a liver, too? OH, did I say that? I mean, good luck in your recovery, Pat.

Given that scenerio, I plan to have some heart-to-heart discussions on organ availability with my doctors. I'm gonna order one up for a two week delivery. Why not?

The oral chemotherapy is going smoothly. I have occasional abdominal pain, but have not been sick. I am thankful for that. Drinking copious amounts of water helps keep the toxic waste flowing OUT of my body. Nevertheless, I'm asking for the data on this chemo plan, too. Just have to make sure it fits my case and they aren't applying the "one-size-fits-all" style of medicine.

It's gonna be a great week. Ubetcha.

Love,
Theresa


Thursday, April 8, 2004 11:11 AM CDT

To my journal reading regulars, sorry about the lapse in updates here. When I'm home, it just doesn't seem like there is as much the muse about.

This is day 5 of oral chemotherapy. Six big pink pills a day. So far, it has been rather smooth. I'm drinking lots and lots of water to keep stuff flushed through my system and that just helps everything work better anyway!

The chemo regimen is 14 days on, 7 days off. I guess I get to do that until transplant time. You are jealous--I can feel it.

The weather has been warm and pleasant here in "Cedarville", which helps the overall outlook on life. We are gearing up for the 11th Annual Schatzle Anderson Neighborhood Easter Egg Hunt on Saturday, April 10.

I asked Claire and Maggie if they wanted to have the hunt again and it was a resounding "YES!" It could be the "art and science of filling plastic eggs" with candy that is the appeal for the girls. There is an art to snitching the candy without parents noticing! And then the science of which candy will be best in each egg.

We started this when there were only about 30 houses in the 'hood. Now, we have over 100 houses and we are known as the Easter Egg house! It's great fun to watch the little kids get eggcited about finding one egg.

So, some things remain the same and that's good.

Take care. Play hard.
Love,
Theresa


Monday, April 5, 2004 7:24 AM CDT

Day two of oral chemotherapy. So far, so good.

I haven't been very excited about this part of the treatment protocol. Who gets excited about taking 6 gigantic pills daily? But, since it is part of the "game plan," and I can't seem to talk the doctors out of it, I'm taking the no-big-deal approach to this.

The sooner a liver comes my way, the better.

I read in the paper that Pat Sommerall, a former NFL player and current sportscaster, has been admitted to the hospital in Jacksonville, FLA, awaiting a liver transplant. He is a recovering alcoholic. I just hope he's not getting that type O blood liver that is supposed to be mine!

People receiving transplants for alcohol related disease is around 20%. Just think, there would be many more livers available to others if we could help people get their alcohol problems under control much sooner in life. Alcohol, the legal drug of choice.

On a lighter note (had to get that rant out of my system), my sister, Judy, and her family were here over the weekend to help around the house. We kept them busy with some chores and gave her very deprived children the chance to decorate Easter Eggs for the first time ever! I'm not sure they found it all that thrilling!

Here's wishing you a happy, sunny week!

Love,
Theresa


Wednesday, March 31, 2004 2:14 PM CST

Can I brag about my kids one more time? OK, I will.

During the most chaotic time in our family, when they spent countless nights with very capable "sitters"--but not mom and dad, when they could have had excuses to let things slide, they didn't. Both made the top honor rolls at their schools in this last term! Claire did that in addition to nearly every weekend filled with show choir competitions and many evenings filled with 3 hour rehearsals. (The show choir folks rival any sports team with their practice and pressure.) So, congrats, Claire and Maggie! You are the BEST!

Is the moral to that story--they need us less? Or they worked harder to keep their minds at ease? Or we just have a couple of very brilliant, vibrant, talented kids?

You decide. I know which answer I choose!

Great to reconnect with my Rotary West friends today. Thanks for being such a great source of support and inspiration.

Happy Trails,
Theresa


Tuesday, March 30, 2004 9:30 AM CST

It's a milestone week here. Kirk is traveling for work, racking up those United 1K member points. He has Claire and Maggie trained to be my watchdogs and good watch dogs they are.

It's not really necessary because I'm behaving and following my rigorous regimen of several small meals, napping, and perhaps one or two small household chores per day. Whew! This isn't a schedule for the meek!

I visit the medical oncologist this week to start the chemotherapy protocol. One good thing is I get to take the chemo in pill form. It's two weeks on, one week off. This plan will continue until a transplant occurs.

It's just crazy how events like this turn your life upside down, inside out. Everything is up for reevaluation and prioritization. There is a meaning and purpose, I'm told.
And while you may have heard that life isn't fair, now you know life isn't fair.

So what do you do when life hands you lemons? Like a card I received said, "You stuff them in your bra...can't hurt, might help!"

Cheers,
Theresa


Thursday, March 25, 2004 8:31 AM CST

The liver “fairy” still has work to do.

Yesterday, my sister, Ardith, learned that she cannot be a donor. The tests discovered cysts on her pancreas, which currently are not anything serious. Being a liver donor is not in her long-term health interest, if the cysts would grow or change.

She was very disappointed and is on a mission to find another donor. We were disappointed, too, but thankful that she was willing to go through the testing and appreciative of the Mayo team for not compromising her health.

I am on the UNOS (United Network of Organ Sharing) list, but my score is not high enough to receive an organ from a deceased donor. In about a year, my score would be high enough to get an organ. The scores get increased every 6 months, unless the doctors make an appeal to the board. The absurdity is my health isn’t “bad” enough!
The sicker you are, the better off for a UNOS organ.

But that philosophy is all throughout medical care. The more sick, the more insurance and immediate care. No attention is paid to preventing one from getting so sick in the first place, which would reduce many medical care costs. It’s a very messed up system, and I’m sure my little rant here won’t change a thing.

Life here at the Schatzle Anderson household is slowly getting back to “normal.” This spring break week is the perfect downtime we needed from the rat race of the past three months.

Here’s hoping you have a great day.
“If you get the chance to sit it out or dance, I hope you dance.”

Love,
Theresa


Monday, March 22, 2004 3:59 PM CST

It's Spring Break here this week. We are hopeful for nice weather and sleeping in every morning.

My parents and sister visited this weekend and what a treat that was. We played cards, games, put a puzzle together, told tall tales and had a relaxing time together. Thanks Mom, Dad, and Trish for making the trek to CR. Travel is not easy for Dad, so we are really glad he didn't let that stop him.

I went to the medical oncologist today, Dr. Mo. (He could be one of the Three Stooges, but I don't think they speak Portuguese.) Part of the protocol I'm on includes a chemo therapy until transplant time. This treatment is a medicine taken by mouth. But, Dr. Mo and I decided to wait until further notice to start this treatment because.....

My sister, Ardith, is in the final phase of testing to be a live donor for me. She has passed three grueling phases and has the most invasive tests left. When she passes those, then we can schedule a transplant. There is always a chance that something will show up on these tests to drop her from eligibility. So, I'm requesting your prayers and thoughts for Ardith, for a positive outcome for her tests. The positive outcome is my wish first for her own good health results.

So, I like Dr. Mo because I really thought we should postpone the chemo until we know Ardith's results. With positive results, it's possible that the transplant may occur in the next 4-6 weeks. Dr. Mo didn't want to have my blood counts drop and potentially postpone surgery. My thoughts exactly, Dr. Mo!!

A few prayers for Ardith and her kids, TJ, Luci, and Kevin, will be appreciated.

Here's to a good week for all of you!

Love,
Theresa and family


Thursday, March 18, 2004 3:45 PM CST

Belated Happy St. Patrick's Day!

I celebrated St. Paddy's day wearing a shamrock headband through the halls of Methodist Hospital at Mayo. They were accented with my leprechaun socks. Dr. LeRoy was very excited and said that made his day. (It's always good to positively make the day of the medical team--they need to be happy!) Since, I'm half Irish, I think they gave me a discount on services!

Twenty-five low-dose radiation seeds were placed in my bile tube to radiate the tumor site close-up and from the inside. So I was radioactive all day and in isolation. Radiation prison. Kirk could visit for a total of 1 hour. I probably did have a green glow about me!

I passed the time by loudly singing all the Irish songs I know--and, that didn't take much time. The seeds were removed at exactly 9:02 a.m. today and I couldn't wait to get out of that room!

The next phase is the waiting game for a liver. Instead of thinking about that wait, I'm thinking about getting stronger now that radiation is complete. The weather is slowly improving so some walks will be in order and nothing is more healing than fresh spring air.

Once again, Kirk, the girls, and I, thank all of you for your support. (That kinda sounds like a political phrase!) It has come in many different forms and all are appreciated. We are astounded by the generosity of the people we know and just know that if we can't pay it back, we'll pay it forward.

Onward....
Love,
Theresa


Monday, March 15, 2004 11:07 AM CST

I'm back in Rochester for the week. A few consultations with doctors and then Brachy Therapy, which is radiation directly to the tumor site via my biliary tube. I know what you're thinking--I get to have all the fun!

Quality of life has been in my thoughts recently. I'm learning to value to day-to-day quality and improvements.

To heck with a workout at my target heart rate; I'm happy with walking for 20 minutes with energy to spare! Take a break of counting carbs, fats, proteins, or whatever the current counting fad is--I'm thrilled to find foods that stay settled no matter the nutritional makeup.

Sleep. Now there's a healthful commodity that is greatly overlooked. It's amazing how much stronger I feel after a full night of rest and even a nap or two.

But the true quality comes from my outlook on the current situation. Most of the time it's good, but I believe it's only human to have a few dark moments during "opportunities" like this. My attitude is helped with the faith that God has a good plan (but he/she isn't sharing just yet!), supportive family and friends (who have been extremely helpful), and a phenomenal medical team who I believe have my best interests at heart. I'm thankful for Dr. Gores, who several years ago developed an interest in this rare thing called Cholangiocarcinoma (or bile duct cancer). Nurses and doctors outside of the transplant department speak highly of this protocol and its success.

So, I encourage you to go enjoy the highest quality of your life that is possible. Whether it's climbing mountains, writing books, doing charity work, or just getting dressed by yourself everyday, marvel in the luxury it provides you.

Like the ad says: "Life is short. Play hard." And good luck in your NCAA pool!
Cheers,
Theresa

P.S. If you are bored, you can cheer for the Iowa Hawkeye WOMEN who did make it to the NCAA's. Iowa men, maybe next year, but then again, probably not!


Thursday, March 11, 2004 9:06 AM CST

ON this journey, you just never know where the bumps in this road are going to appear. Or if you prefer the mountain climbing metaphor, I didn't leave base camp this week--we needed more oxygen.

I was looking forward to a very calm and happy week at home. However, after 30 radiation treatments in 3 weeks, the body isn't very calm--it's very tired and not too hungry. Furthermore, this body is very picky about what it receives and if it doesn't like it, well....just use your imagination.

Today is a better day and believe me, I'm thankful! Many tell me there is a purpose or reason, I'm going through all of this, and I believe that. Could I just know that purpose NOW! (Do ya think that patience is one thing I need to learn?)

Claire is in Orlando this week with the Kennedy Show Choir. No she doesn't sing, she's in the combo band that plays the music for the choir. The schedule looks like lots of fun and a little performing.

Maggie is enjoying her status as the only child. She monitors my fluid intake regularly! Quite the nurse.

Next week it's back to Mayo for more doctor visits and one last radiation treatment. This radiation is called Brachy Therapy and is sent through my bile tube to the tumor site.
Three treatments and "they" say it's "no big deal."

Many of you who frequent the site have asked how you can help. One idea is to make a donation to the Caringbridge site. This website has been set up at no charge for people going through long medical treatments. Donations help them keep the site up and functioning well. It has been very helpful for us, so, there's one way you can help.

"The aim of medicine is to prevent disease and prolong life. The ideal of medicine is to eliminate to need of a physician." -- Dr. William Mayo, 1861

Have a great day!
Theresa




Friday, March 5, 2004 9:54 AM CST

ROSES ARE RED
MY HAIR IS TOO,
TODAY RADIATION IS DONE
YABBA DABBA DOO!

Just the pm zapping left.

How do people get through all this? Blind faith, caring and loving friends and family, lots of prayers, medication and meditation, and jolly radiation techs.

It's Friday and so that means it is snowing in Rochester. Doesn't look like they have street cleaning crews either.

Thanks to everyone who has sent prayers, messages, thoughts, jokes...you give Kirk and I strength in those trying moments.

Love,
Theresa and Kirk


Wednesday, March 3, 2004 6:08 PM CST

Only 2 days and 4 radiation treatments to go. I am ready to get this phase behind me. Oh, I know, I'm supposed to live in the moment--when they are nauseated moments I look forward!

We toured the ICU today as part of the pre-transplant education. I'm glad I will be sedated for that part of the journey.

This Gift of Life Transplant House is home to lots of different kinds of transplant patients and caregivers. The heart transplant patients compare notes on their blood test results. Those here for stem cell harvesting have other numbers they banter and celebrate. It's an interesting world.

I just wish they would ban cooking with onions! My olfactory nerve is in overdrive these days and that smell is not a good thing for me. (I know, it's not all about me.)

This too shall pass. Can't wait.

Love,
Theresa


Tuesday, March 2, 2004 9:19 AM CST

7 radiation treatments to go.

I had to update all my immunizations in preparation for the transplant. Five shots! This really is a boot camp disguised as a medical facility.

When this radiation is done, I get a week "leave" and then back up here for a different radiation through my biliary tube. I think that's it for this cholangiocarcinoma protocol. Then I wait for my new liver.

Other than some fatigue and small appetite, I feel pretty good. Everyday I get stronger, still healing from my January surgery. Kirk can hardly keep up with my walking pace now.

Everyday, in every way, your cards, messages, and emails help me get stronger, healthier, and help me keep the faith. Thanks.

Love,
Theresa

P.S. Thanks to all who have sent meals to the house. The kids have an abundance of Chicken Noodle Soup--give them a call if you want meal ideas. They've become rather assertive in this crazy time!


Monday, March 1, 2004 10:04 AM CST

9 radiation treatments left as of this writing.

It was a great Sunday because Claire and Maggie came to visit. How did I get blessed with such awesome kids? I really miss just the day-to-day stuff that happens in their lives. Never thought I'd miss helping them prepare for spelling tests so much. So, give your kids an extra hug today and enjoy all those little moments with them.

And if you see my girls, give them a hug, too. Don't ask them about me, just ask about their world and tell them they have one very proud mama!

Kirk is the Mayo Caddy/sherpa this week. He's always good for some laughs, songs, and lots of whistling. (No, he's not whistling at me...or others!)

Looking forward to a week that goes by quickly and uneventfully.
Thanks for all the support--it helps more than you can imagine.

Cheers,
Theresa


Friday, February 27, 2004 6:05 PM CST

I met with a nurse today in the hypertension department. Her name was Jo and she was so vibrant, positive, and funny. She just kept saying that this treatment plan is a great protocol and I will have great success. Jo gives the best hugs, I'm going to look her up often.

I get energy and inspiration from these very positive "experts" who are "climbing the mountain" with me. If I've said it once, I'll say it a million times, Mayo is an awesome, fantastic place and I'm thankful for the chance to get top rate care here.

Only 5 days (10 treatments) left of radiation. Zippity-Zap!

Judy has wrapped up her current "sherpa" duties and is headed back to boring ol' Colorado. Judy provided me with a very important medical device: a magic wand! The funny part is, last weekend a trio of doctors were making rounds and I asked them if they could just wave their magic wand and get this over with. They just gave me a somber, weird look and said no. Well, now I have the wand and I plan to wave it many times a day. Judy provided many other laughs and treats and time will reveal them! Thanks a million, Judy!

Kris now takes over. Can you believe she's taking the weekend off from her mom/wife duties to be with me? Thanks Mark, Matt, and Kelci for sharing.

So, one week of radiation and more consultations remain. It's going very fast and before we all know it, I'll have a new liver and a new lease on life.

Thanks for all your caring.

Love,
Theresa


Thursday, February 26, 2004 11:27 AM CST

Day 9 of radiation treatment. Zofran is a great drug.
Do you have the organ donor box checked on your drivers license?

We are staying at the Gift of Life Transplant House this week. My friend, Judy, is with me this week and it's been great to catch up on current and past events. Some days Judy takes on a Florence Nightengale look--others that of Clara Barton or Candee Striper. She has name tags to match and what is most funny: people ask her if she works here!
She likes to refer to herself as my "sherpa" which really is relevant considering the "mountain" we are climbing. I believe we have passed base camp 1.

The Transplant House is an interesting experience. They have lots of important rules about not spreading germs due to the number of immunosuppressed individuals residing there. I'm really quite OK with handwashing & disinfecting the table after my meals, but I often wonder if the person who sat in the recliner before me washed his/her hair today? The other residents are very nice and like to share their medical "war" stories. I prefer to look to the future.

Judy is perplexed about the rule that you cannot lay on the bedspread, you have to pull it down. You can lay under it, just not on top. We've had lots of fun with all this because we like rules--when we make them!

We have had lots of encouraging consultations with doctors and even the business manager. Because I have a good health history, the transplant and recovery will be less risky than those who have suffered from years of liver disease. Mayo has the best 5 year results for liver transplant of any place in the US. I'm in great hands!

Thanks for all your encouraging words. You are my connection to the real world and I appreciate it a bunch.

Love,
Theresa


Tuesday, February 24, 2004 9:04 AM CST

Happy Fat Tuesday, everybody!

I am on Day 7 (of 15) for radiation. Twice a day treatments. Kirk, who makes up words when singing songs, likes to sing, (to the tune of "You've lost that loving feeling") "You've got that nauseous feeling, woa, woa, woa,...).

Honestly, as long as the candy (meds) is distributed at the perfect time, I feel OK.

We made a little visit to the Cedar Rapids ER late Friday night due to chills and fever. My Mayo docs told CR docs to admit me and then return to Mayo on Saturday. So we did. The concern is cholangitis--infection in the bile ducts which is very nasty. All labs have come back (so far) negative, so who knows the cause. I was discharged Monday afternoon--thank goodness. This week was supposed to be a "no needles" week!

I'm here through March 5. My good friend from high school and college is going to be my "Mayo caddy" this week. Judy flew in from Colorado to take on this exciting job. We had often talked of a girls getaway,and surprisingly, Rochester was never on the list of potential sites. Sometimes you just never know how things are going to work out.

Kirk is looking forward to a week with the kids and attending Maggie's concert.

I'm looking forward to an uneventful time here for the next 2 weeks. I'm appreciative of the quality of care and expertise I'm receiving.

To all the Pelco "family": I'm in awe and I'm so grateful for all of your support.

Love,
Theresa

PS...Kirk will try to add a some new pictures within the next couple of days.


Tuesday, February 24, 2004 9:04 AM CST

Happy Fat Tuesday, everybody!

I am on Day 7 (of 15) for radiation. Twice a day treatments. Kirk, who makes up words when singing songs, likes to sing, (to the tune of "You've lost that loving feeling") "You've got that nauseous feeling, woa, woa, woa,...).

Honestly, as long as the candy (meds) is distributed at the perfect time, I feel OK.

We made a little visit to the Cedar Rapids ER late Friday night due to chills and fever. My Mayo docs told CR docs to admit me and then return to Mayo on Saturday. So we did. The concern is cholangitis--infection in the bile ducts which is very nasty. All labs have come back (so far) negative, so who knows the cause. I was discharged Monday afternoon--thank goodness. This week was supposed to be a "no needles" week!

I'm here through March 5. My good friend from high school and college is going to be my "Mayo caddy" this week. Judy flew in from Colorado to take on this exciting job. We had often talked of a girls getaway,and surprisingly, Rochester was never on the list of potential sites. Sometimes you just never know how things are going to work out.

Kirk is looking forward to a week with the kids and attending Maggie's concert.

I'm looking forward to an uneventful time here for the next 2 weeks. I'm appreciative of the quality of care and expertise I'm receiving.

To all the Pelco "family": I'm in awe and I'm so grateful for all of your support.

Love,
Theresa


Wednesday, February 18, 2004 4:14 PM CST

Greetings! This message is from Kirk. (Or as Theresa calls me the Candy Man, I make sure she stays on schedule with the little round pills)

Theresa just finished day 3 of radiation and the final day of chemo. She is doing pretty well and done praying to the porcelain gods.

It's a balmy 40 degrees here in Rochester and snow is forcast for Friday. I'm trying to figure out why it always snows on Fridays--our travel home day!

We enjoy reading your comments--keep'em coming!

Love ya,
Kirk


Tuesday, February 17, 2004 11:00 AM CST

Half way through Day 2 of radiation and one chemo injection remains. Do you want a synopsis of Day 1? Really? OK, it went something like this:
-Radiation treatment
-Take compezine (anti-nausea)
-Chemo
-Relax
-Race to the restroom and bow to the porcelain gods
-Check in for the next appointment
-Race to the restroom and....same as above
-Hour appointment with social worker
-Race to the restroom.....
-Meet with a nurse about something
-Afternoon radiation treatment
-Meet with the doctor (distant relative of Robert Goulet!)
-Leave the meeting early because the gods are calling
-Go to hotel, relax, attempt to eat and be calm.
That may be too graphic, but, hey, that's what having radiation near your digestive system will do for you! One side benefit might be the intense contractions of the abdominal muscles during the wretching process, could be really firm abs! Could be something that a lot of government dollars should research--I thought of it first!

Claire and Maggie got the Mayo tour on Monday. It was fun to have them here--they left before the Porcelain Gods appeared. I believe they got the idea that waiting around while my testing or having treatments is kinda boring. They are back in CR in the hands of very capable care givers. Thanks, Tina and Diana.

Today is better. Getting the medicine at the right time has helped. Drugs are my friends! (Of course, you know I mean the legal, prescribed drugs!)

In between radiation I'm having more pre-transplant tests. You can't believe what gets scanned, xrayed, measured, etc. Who thought of all of these tests? I'm all for a positive outcome, therefore I endure this. That's usually the biggest test: my endurance and attitude. But all of you out there in the world who have kept us in your thoughts, prayers, heart...that is a tremendous help. We are very grateful for the support in all forms. Thank you!

Here's wishing all of you a great day filled lots of laughing and hugs to and from those you love.

Cheers,
Theresa








Saturday, February 14, 2004 10:27 AM CST

Happy Valentines Day!

L is for the LOVE you all have shared that helps us keep the faith.
O is for ORANGE hair that gives Theresa that sassy attitude.
V is for the VICTORY we all we celebrate soon.
E is for an EXCEPTIONAL medical team, family, friends who make a difference!

Message from Maggie:
Think good thoughts. We know she's doing better because she still knows how to boss us around. Gotta go!
Love ya,
Maggie
Happy Valentines Day!



Saturday, February 14, 2004 10:27 AM CST

Happy Valentines Day!

L is for the LOVE you all have shared that helps us keep the faith.
O is for ORANGE hair that gives Theresa that sassy attitude.
V is for the VICTORY we all we celebrate soon.
E is for an EXCEPTIONAL medical team, family, friends who make a difference!

Message from Maggie:
Think good thoughts. We know she's doing better because she still knows how to boss us around. Gotta go!
Love ya,
Maggie


Wednesday, February 11, 2004 8:57 AM CST

Had another MRI yesterday, this one with IV stuff floating inside. What a Human Pin Cushion I've become! A little girl waiting for her test was fussing and crying yesterday.
She said to her mom, "No more needles!" I almost ran over to her and gave her a high five to join in her protest. Since I was hooked up to the IV and BP cuff, I remained compliant.

The purpose of this test was to help determine the radiation treatment plan. They determine the depth, width and volume of the "aspect" so the radiation can be pinpoint perfect. Kind of medicine's version of the global positioning system!

But, it's all part of the process back to good health. I don't really view my attitude as staying strong, it's just that there really aren't a lot of other choices for me. So, you persevere, find the humor, count your blessings as you observe others with more serious situations, and hang on to the support from places you'd never expect it.

Thanks to all of you out there.

"I know you believe you understand what you think I said, but I'm not sure you realize that what you heard is not what I meant." --S.I. Hiyakawa

Cheers,
Theresa


Sunday, February 8, 2004 1:17 PM CST

With the snow blowing across the roads, we returned home safely on Friday, Feb. 6, from another round of tests and doctor appointments.

Guess what?! I have tatoos! Little blue dots on my abdomen to mark exactly where to radiate the tumor. I feel so trendy, now! Does it count when the tatoo artist is in a white lab coat and has no visable tatoos?

We now have a treatment plan and are ready to move ahead and "get the show on the road."

I will receive radiation and chemo, with the radiation being the main form of treatment to KO the tumor and any associated cancer cells. It's 15 days, 2X a day for radiation and just 3 chemo treatments. Dr. says they do a good job of keeping nausea in check and hair loss should be minimal if at all. We'll see!! I think I may glow!

We met with the transplant surgeon who gave the "gloom and doom" speech, but is very optimistic about a positive outcome for me. Live donor partial transplant is a very viable option for us. Deceased donor liver would take more than a year to receive because of being the ever common blood type "O".
We are thankful that we have the option to receive care at Mayo where they have pioneered the treatment for cholangiocarcinoma and transplant in people who have this rare cancer. Aside from the sloppy nurse who blew an IV in my arm, the care has been exceptional.
Kirk is the ultimate "candy man" keeping me current on the meds and flushing my bile tube. And he usually finds the bright and light side of many moments in the halls and waiting areas of Mayo.

Claire and Maggie have been so wonderful and flexible through these last crazy 6 weeks. They will go to Mayo with us someday soon so they can see where and who are helping me get well. Their sense of humor has been an inspiration for Kirk and I. We have two incredible kids.

I'm feeling better and stronger everyday now and doing what I can to be as strong as possible prior to radiation.

Thanks to all of you for your positive thoughts, prayers, meditations, food, flowers, cards, calls, emails, etc. We are so very appreciative of all of the support. This has all been such an unexpected turn of health in my life. But we will rally, win, and then take our turn in helping you.

Love,
Theresa and Kirk


Sunday, February 8, 2004 1:14 PM CST

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